Posts Tagged ‘Storytelling’

Taking A Ride with Planes Trains and Canes

Wednesday, June 3rd, 2020

A logo features a square with  a black plane flying over it and a black train coming out of the globe. In white lettering at the top reads Planes Trains and Canes.

2019 Holman Prize winner, Dr. Mona Minkara along with her production team from Planes Trains & Canes. join me to talk about the documentary series. The show which is available on YouTube follows Mona as she travels alone to five different cities around the world using only public transportation.

The series highlights many of the challenges those with vision loss experience on a daily basis. If you pay close attention you even learn some useful skills for managing these experiences. For Mona the trip was about independence, freedom and more.

The captain has turned on the fasten seatbelts sign so hit play and get ready for take off!

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Transcript

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TR:
Hey Y’all.

I try to produce this podcast several weeks in advance of the release. I don’t always have as much lead time as I’d like.
In this particular case, I did.

With the latest police murder of George Floyd and the world wide protest that followed, I don’t feel comfortable releasing an episode without acknowledging this senseless and shameful killing.

I love producing this podcast and I truly think what you’re about to hear is a great episode,
but as a Black man I can’t help but feel like my focus should be on fighting for change. Truth is though, it’s not just Black people who should be fighting.
It’s all of our responsibility and if I’m being honest, I think the burden should be less on the Black community.
If you have the urge to inform me that there are white people fighting, please don’t. I know that. I’d ask you to consider your own role as I’m trying to figure out mine.

Not acknowledging the pain just felt like it would add even more.

Rest in Peace & Power to Mr. George Floyd and the rest of those murdered by the Police.

Thank you Reid My Mind Radio Family and I hope you understand why that was necessary.

Now, let’s shift gears and get into what I think is a goodie!

Audio: Sounds of airport fades into the inside of a plane.

From the planes PA System…
Flight Attendant:

Good day passengers.
Welcome aboard flight 99 to a better place!

Inflight service will be coming around soon with snacks!
In the meantime, please sit back, relax and enjoy your trip.
We now have a message from the captain.

From the planes PA System:

Music begins…

TR:

What’s up Reid My Mind Radio Family!

Welcome aboard the podcast bringing you compelling people impacted by all degrees of vision loss from low vision to total blindness.

Every now and then, when inspired, I bring you stories from my own experience as a man adjusting to becoming Blind as an adult.

My name is Thomas Reid and I’m not only your pilot, but I’m traveling on this journey with you.

Now if you are new to blindness and have some reservations about this flight I can tell you the ground control has approved us for takeoff. the forecasts a mix of clear skies with some possible thunderstorms. We are expected to hit a bit of turbulence along the way, but don’t worry, I got you!

Wheels up baby, let’s go!

Audio: Reid My Mind Radio Intro

TR:

In 2017 & 18 , this podcast featured profiles of each of the Holman Prize winners. If you haven’t checked out those episodes I definitely want to encourage you to go back and give them a listen.

While I decided not to produce Holman prize episodes in 2019, early this year, I came across one of the 2019 winners, Dr. Mona Minkara. She’s a Bio Engineering professor at North Eastern University and the host and producer of Planes, Trains and Canes.

MM:

Which is a documentary series on YouTube showing me traveling to five different cities around the world and using only public transportation on my own.

[TR in conversation with MM:]

So the first show that I started to watch, that was your first one when you were headed out of Boston to and going to South Africa. I’m trying to figure out, what is this feeling that I have. I said wow, I think this is a little anxiety. I’m like wow, this is good though, this is really good.

My podcast, I really like to reach out to those who are adjusting to being Blind. That’s my target audience. And so I’m thinking they’re going to feel what I feel but for different reasons. I travel independently, not necessarily like you’re doing. I’m watching because I thought about doing some of the things you’re doing where you’re walking through an airport and not getting the guide and I’m like wow this is exactly how I thought I would do it but I wasn’t sure if there was a different way. People who are new to blindness need to see it because I think some of the stuff like the constant questioning that you’re doing, the constant asking and figuring it out, people need to know that that is ok. And I love that!
So that’s why I contacted you.

MM:

That so awesome to hear you say that, so awesome because I’m going to be honest with you, I feel like this project actually even pushed me even more than I normally push myself. I would have never risked on my own a two hour layover in Atlanta going by myself to the gate. I would have never risked that on my own. But I did for the sake of this project. Like uh, we’ll see what happens.

[TR in conversation with MM:]

Oh my god, I’m so glad you said that because people need to know that. people definitely need to know that

MM:

I completely agree. And then what’s the worst thing that could happen. I think what’s really important to discuss with something like this is being flexible. I was willing and ok and at peace with getting lost. I told myself Mona it’s ok if I get lost, it’s ok if it takes me like three hours … it’s ok!

[TR in conversation with MM:]

The other thing that I like about what you’re doing and we’re going to get in to the questions in just a second but…

TR:

Ok, fine, I was excited! I don’t usually include me geeking out over my guests but it definitely happens.
I knew this would be a comfortable conversation from the start.

[TR in conversation with MM:]

How are you doing Mona?

MM:

Good, how are you Thomas?

[TR in conversation with MM:]

Good, I’m good. Do you prefer Dr. Minkara? My bad.

MM:

No, no not at all. I’ve been told I probably should but no!

TR:

I’m not really into formalities, but I realize she earned that PHD and. When she’s on that campus, at those conferences put some respect on her name! Especially considering the early advice given to her mother when learning Mona would be Blind.

MM:

I had a doctor tell my mom that it wasn’t going to be worth spending a penny on my education. The bright future that I had was over with that sentence. But it wasn’t. (laughs) My life is great! (Laughs)

TR:

From an early age, Mona was interested in pursuing science and knew she wanted to be a professor.

Audio: Magic School Bus/Bill Nye

MM:

even though a lot of times I got people discouraging me because it wasn’t very practical for a Blind person to be a scientist.
I’m probably a scientist because of Magic School Bus and Bill Nye the Science Guy.

[TR in conversation with MM:]

Shout out to Bill Nye!

MM:

Yes! I am a PBS Kid!

Audio: PBS Kid

I think a part of who I am is I truly just follow my passion and I really value freedom and independence. That kind of carried over to Planes Trains & Canes because it was the ultimate test of my independence to allow me to have my freedom.

[TR in conversation with MM:]

What came first, was it the Holman prize or was this a dream to kind of do this?

MM:

That’s as good question a very good question. I was a judge for the first year of Holman Prize. I remember going out there and helping to judge the applicant pool and being taken by this concept. Even the story of James Holman and why these people were applying.

TR:

James Holman AKA, the Blind traveler, completed a series of solo journeys taking him to all inhabited continents.
The competition is sponsored by the San Francisco Lighthouse. $25,000
is given to each of the winners who are all legally blind and in their own way exhibit the adventurous spirit and attitude of James Holman

Following that first year, Mona had a thought.

MM:

I’d like to apply one day. What is it that I like to do? I realized, I really love public transportation.

Public transportation is a tool that is under appreciated by a lot of people but it’s a tool for me that really gives me freedom.

TR:

Currently living in Boston, the third city where she’s lived on her own as an adult. Each of these cities having a completely different public transportation system.

MM:

And then it just clicked, the concept for Planes Trains and Canes. Traveling on my own using public transportation.

TR:

In addition, she sought out cities on different continents which meant diverse cultures.

MM:

I didn’t have a deeply scientific method other than I also wanted to go to cities that I didn’t speak the language. It’s another barrier right. You feel like you might be more lost in an non English speaking place.
It was fascinating, you can see in my upcoming episode for Istanbul, you don’t really need the language. It was mind blowing for me to realize how easy it was to still navigate in a city like Istanbul or Tokyo.

[TR in conversation with MM:]

Laughs… It’s funny to hear the Scientist say that there was no scientific method about… (Laughing)

MM:

Laughs… I mean I knew London
[TR in conversation with MM:]

From the videos, it doesn’t seem like you spend that much time there. How much time do you spend in each place?

MM:

It was like four days.

[TR in conversation with MM:]

To go all the way to South Africa for 4 days is like damn!

MM:

I know, I had to squeeze them with my new job it was insane. I just started being a professor.

TR:

In addition to Istanbul & Tokyo that’s four days in Johannesburg, South Africa, London and Singapore.
While Planes Trains & Canes is all about independent travel, making the videos requires a team.

MM:

I remember thinking like 3 years ago that whoever I did this with I have to have a Videographer that was somebody I could easily travel with , a solid person. And somebody who’s really not going to break character.

NG:
Hello

[TR in conversation with NG:]

Hello Natalie?

NG:

Hi, Thomas, how are you?

[TR in conversation with NG:]

Good, how are you doing?

NG:

Good!

TR:

During my initial conversation with Mona, she suggested I speak to her entire team. And I did. First up Natalie Guzi.

NG:

I’m a Camera Woman for Planes Trains & Canes. I’m 23 and this was my first time doing anything camera work related.

[TR in conversation with NG:]

That was one of my first questions. (Laughs)

NG:

(Laughs)
Cool, ok!

[TR in conversation with NG:]

From my understanding you were a friend or a co-worker of Mona’s?

NG:

Co-worker turned really good friend

So, I went to school to be a technical writing major and I saw an open position. One of those pull tabs job posts with a number and email. Mona had put up signs for that. the interview went well I guess. Laughs…

TR:
In a way, working as an Access Assistant for Mona, helped Natalie develop one of the most important skills for the videographer role in Planes Trains & Canes.

[TR in conversation with NG:]

You ask any Blind person and they’re pretty much going to have a similar experience about being with someone who is sighted going somewhere and then having the person who is sighted being talked to as if the Blind person wasn’t there. When did you first experience that ?

NG:

The first time I experienced that was at a Chemistry conference, like an international conference where I was Mona’s access assistant. it must have been like just checking into a hotel. it’s under Mona’s name, Mona’s the PhD Scientist, I’m the 23 year old, but the person checking her in was looking at me.

TR:
This experience isn’t exclusive to those who are Blind. I hear the same from others with different disabilities too. There’s two components; first, directing the conversation away from the person with a disability and then there’s the gaze. Focusing the eye contact towards the non-disabled person.
Now, check the technique!

Audio: Musical intro…

NG:

How we work together with that kind of an issue is that I would just make eye contact with Mona so if you’re trying to look at me my gaze, then that’s going to get redirected to her. So they know where I’m looking and they should be looking. Sometimes people would pick up that and make that adjustment. Sometimes not. Or if we were talking and there was no counter between us then I would almost step over to their side so I was also facing Mona.

TR:

As the videographer, Natalie has to make sure it remains about Mona.

NG:

I tried to be as fly on the wall as possible. (Laughs) Which is a little bit hard. It wasn’t like an undercover operation. (Laughs) It was like someone following a blind woman with a camera. There were a lot of like stares and or questions about why the camera. people addressing me that I shouldn’t film even though Mona was the subject.

[TR in conversation with NG:]

They didn’t know that she was a part of it they thought you were just following her or something?

NG:

Yeh. They would like wave their hand in front of the camera.

[TR in conversation with MM:]

And then you would have to explain things?

NG:

It depended on the situation. That’s a great question too. I’m remembering a time when at a train station in Johannesburg. I was trying to capture footage of Mona buying her train ticket. One of the staff there came up and told me I couldn’t be filming although all I really wanted to do was film the interaction of Mona buying a ticket. No, no, like here’s the business card we’re filming a documentary. We’re not mapping out your train system for any weird purpose.

[TR in conversation with NG:]

That seems stressful to me. Can you talk about that.

NG:

Sure. By nature I lean towards wanting to make people happy and feel comfortable and welcomed. And when you’re walking around with a camera and people don’t know why that’s not really a possibility.
It’s difficult having those eyes and feeling those emotions from other people coming your way and having to remind yourself of the situation and the mission in that moment.

[TR in conversation with NG:]

Did that get easier?

NG:

We had the opportunity to go to lots of different countries and experience different cultures so it shifted every place that we went. Like people would in Istanbul, being like welcome and we love it and come to our store as we were walking by trying to get video.
In comparison, the experience in the London tube wasn’t as welcoming.

TR:

These are the things making Natalie the right person for the job.

NG:

A thick skin. You got to have that self-confidence and confidence in the mission and in the team too.
I think Mona and I’s relationship we just always have each other’s back. So I think that trust and that collaboration really was like the heart of the whole project that kept us going.

TR:

That trust could even mean stepping in and putting yourself at risk.

NG:

In Johannesburg, Mona was crossing the street and this car was taking a corner really fast. I had to jump into the street and like put my arms out. I just thought that car was going way too fast. I wanted them to see two people in the street at least like saying stop.

TR:

Mona and Natalie have the foundation making up a real team.

NG:

We kind of work together. She gave me the feedback on what worked in different situations. It was nice to have a collaborator with that too and just follow Mona’s lead.

TR:

After watching Planes Trains & Canes and then having the chance to speak with Mona, it’s apparent, what you see is what you get.

MM:

I’m pretty assertive I would say as a person, but I understand not everybody has that personality. When I’m tired and exhausted and getting off a 16 hour flight I’m not the sharpest. I’m just like excuse me (said lethargically) my energy’s low. I could be ignored more easily in that situation verses when I’m bright eyed and bushy tailed , I’m like hello!

[TR in conversation with MM:]

You’re quick not to give off any pity vibe or anything like that.

MM:

Yeh, cause I don’t want your pity. I want you to treat me like any other human being. I just happened to be Blind. Sighted people ask for directions all the time. All the time! Just adjust yourself , just a little bit by verbalizing your directions. I appreciate it, thank you!

Audio Bumper for editors

TR:

In order to win the prize enabling Mona to start her adventure she would have to first accumulate enough likes on her Holman prize entry video.

Contestant’s seeking the 25 G’s must first posts their videos to YouTube. The videos need to explain their ambition and cannot exceed 90 seconds. Mona and Natalie paired up to shoot the video with Natalie taking her first shot at editing. The video foreshadowed some of the reactions they’d eventually receive while traveling.
Audio: Clip Planes Trains & Canes Ambition Video

TR:

Winning the prize enabled them to purchase a camera and wireless
microphone.

Natalie and Mona learned more than expected from editing that first 90 second ambition video;

MM:

How much work editing would be.

[TR in conversation with MM:]

Chuckles…

TR:

Mona recruited Anxhela (Angela) Becolli
, her current Access Assistant at Northeastern.

MM:

She actually was the one who edited Johannesburg. She’s actually with me right now and…. Ok, I’m bringing her in…

AB:

I wasn’t expecting to be on the call…

[TR in conversation with AB:]

So that was your first shot at editing?

AB:

I had done editing a little bit before. In college I studied Photography in China and there I had done a few projects in videography but mainly photography. This was my first full paid project.

TR:

The thing about creating a documentary series such as Planes Trains & Canes is that you don’t know what your story is until it happens.

MM:

We recorded with no story line in mind. Recording as life unfolds in front of you and then extracting the story. So there’s an element of being able to story tell what you lived as opposed to the other way around – you are building the story and then you record the story.

You don’t know what life is going to give you.

As I was living it I remember taking mental notes like oh my God this would be really interesting to share with the audience.

TR:

Construction takes place in the editing room.

AB:

The main part is the story part. When Mona and Natalie give me the videos they also gave me this list of what they wanted the story to look like. What there idea was and what they wanted to portray to the viewers. What the most important parts were. What parts were light hearted. What parts were very specific to being Blind, to traveling and what needed to be kept in no matter what quality the video or audio was.

TR:

Mona is clearly directing all aspects of this project.

MM:

This part needs to be sped up and it’s kind of boring. I think we should add more of this part. I would say ok, let’s find music that represents the fact that I was feeling fearful or excited. I only used music connected to whatever city I was in. So all the music in the Johannesburg episode in part two, is from musicians from Johannesburg.

I personally have a certain vision for the vive and what was happening and Angela would work with me and hear what I have to say and implement it.

TR:

Creating content like this means investing real time.

AB:

If you have 40 hours of video you’re taking about 60 hours to watch the videos because you’re going to make notes, you’re going to cut things and you’ll re-watch those.

TR:

Angela was already committed to other projects so Mona had to find another editor.

Ted:

I’m Ted Jimenez, I’m the second editor put on the team to work on the new episodes; London, Istanbul, Singapore and Tokyo.

I am a self-taught editor. I worked with small independent studios before back in my home the Philippines I worked for States Sessions. It was a company that put on productions for Indy musicians in the Philippines. I did music videos for them. Promotional videos for them. Now I’m in Boston.

TR:

Where he too works at Northeastern making psychological self-help videos.

Mona decided early on that Planes Trains & Canes would not be a narrated style documentary.

Ted:

This is where Mona and I have conflicting views. I was going in with like my script saying oh Mona could you narrate this portion for us. And she is more of a fan of in the moment. I’m not going to pre-record a script that tells a story I’d rather the audience live through the story because it tells the Blind experience more naturally than if it was just said by her.

TR:

Show, not tell!

Mona’s voice over narrations that you hear in the series are sort of a means of accentuating specific moments.

Ted:

And it’s also to make it lighthearted.

MM:

I wanted comedy to be a main element. I want people to laugh while watching this because I want my message to really be heard and it’s going to be heard more through a comedic tone than through a lecturing serious tone.

TR:

Lighthearted may be the goal, but come on traveling Blind just like living Blind, you will have some encounters.

Audio: London…

[TR in conversation with MM:]

So you know where I’m going now. We’re going to London! You know the episode. (Laugh fades out) you were told that you had to register.

MM:

Yeh, yeh, yeh! I had no choice.

[TR in conversation with MM:]

So my anxiety woo, went through the roof! Mona, I’m going to tell you, I’m not that good at that situation. I’m from the Bronx Mona, I get a little aggressive. Ok! (Laugh fades out)

MM:

Laughing…

Dude, I’m going to tell you honestly, I held myself together because I didn’t even know if Natalie was videotaping me or not. But just in case she was I was like I need to make this point clear.

TR:

That point is at the core of this project; independence and freedom.

Ted:

I really like London as an example about how we kind of tell that story.

First, Mona getting off the plane into the subway. We foreshadow that Mona likes the choice of being able to ask for assistance or not ask for assistance.

In the second section of London where she’s coming from the airport to the Metro, that’s when we see that whole belief that she has of accepting or not accepting assistance.

TR:

You’re going to have to head on over to YouTube and check out the series to find out more.

Audio: Next time on Planes Trains & Canes…

TR:

Planes Trains & Canes is all about perspective.

It’s filmed from the perspective of a woman who is Blind and enjoys traveling independently and values her choice.

Along the way she interacts with people who may view the world differently.

[TR in conversation with MM:]

Wait up. You said he was nice?

MM:

I’m saying he was nice yes. (Laughing)

[TR in conversation with MM:]

Did you feel that way in the beginning? From the video, I took this guy like he was being condescending.

MM:

Oh, he was totally being condescending. I think it’s just the norm there to kind of treat people with disabilities like we are a bunch of 5 year olds. An underlying patronizing vibe!

TR:

As we each bring our individual perspective to the series, chances are there will be opposing points of view.

MM:

Did you see some of the comments that were on YouTube. Let me tell you. There was this one person who goes by SocietySister she wrote that I was selfish for not accepting help.

TR:

probably the same type of person to find the inclusion of Audio Description as a default in the series videos to be selfish.

MM:

I really wanted to make every video we create accessible to both Blind and Deaf individuals.

TR:

That’s a pretty inclusive approach giving a variety of viewers a chance to benefit from Mona’s experiences.

What did the production team take away from this experience? First, Natalie.

NG:

People are people wherever you go. They’re curious, they’ll probably want to know what’s going on if you walk into a new situation. maybe concerned if they see something new if they see something different. No matter where you go people do want to understand and to and connect. Also, trust and partnership with Mona . Just a profound sense of gratitude for working together for collaborating for trusting me to capture her experience and to be an observer.

TR:

Angela, who edited the first two episodes from Johannesburg, had hours of video to review. This gave her the chance to really see what Mona experiences.

AB:

I had a lot of moments where I went what I can’t, what why I can’t believe someone would do that. I can’t believe someone would say that. Why would someone treat you like that. Mona mentioned that Natalie was able to keep her calm, I’m the kind of person that would be like no what are you doing, you can’t do that. You can’t treat someone like that. Yeh, I’m not someone that would be able to keep her cool. (Laughs)

[TR in conversation with AB:]

Laughs.

TR:

I could see Angela and I teaming up in some bar fights together.

Ted, the editor of the remaining episodes, it should be noted is not only editing, but he’s doing all the Audio description and captioning. As someone making a career as an editor I had to ask him if he’d become a proponent for Audio Description.

[TR in conversation with Ted:]

You’re working with, I don’t know Steven Spielberg. You’re like Steven we got to put some Audio Description on this man… (Laughs)

Ted:

Laughing… Hey Steven! (Said in a serious tone)

Oh yes of course. Right now it’s normalized for me to kind of like say well what are the options for everybody if I’m viewing piece of media. Mona has made it specifically clear that the deadlines are the deadlines for everything. The captioning, the Audio Description. The video, It needs to be accessible to everyone.

TR:

Planes Trains & Canes was Mona’s way to not only highlight the benefits that public transportation affords her, but also show the ingenuity and abilities of those who are Blind.

Mona’s travels reveal lots of valuable lessons for those adjusting to blindness.

MM:

Even though I am 32 years old, I feel like I am more at peace with it then I have ever been. I don’t know if I want to share this with the world but yeh (laughing…)

[TR in conversation with MM:]

Well, let me just say something to you right now Again, it’s totally, totally fine if you don’t want to share.

MM:

Yeh!

[TR in conversation with MM:]

But that right there, again, think about it from the person who’s adjusting.

MM:

Yeh! No, I think it’s good I’ll explain why I say this.

[TR in conversation with MM:]

yeh!

MM:

I thought I was at peace. I used to take comments of you look sighted as compliments. I realize the detriment of that, only until like last year. Why should that be a compliment, you know? And I realized that I had built up all these techniques to almost compensate for blindness as opposed to work with it.

I had internalized this concept of blindness as weakness. I think it’s really important for Blind people to realize, we are inherently better problem solvers because we have to work around a lot of things. Blindness is not weakness. And to truly believe that I don’t know if I’m a hundred percent there.

TR:

I so respect and appreciate that honesty. It’s what I personally believe, adjusting to blindness is a continuous process. And if that’s ok for this Bio Engineer professor, well, I’m just saying, she’s doing something right.

[TR in conversation with MM:]

What have you taken away from this whole experience?

MM:

I think I pushed myself more than I would have for the sake of the videos. I learned that there’s a lot of good out there and there’s a lot of like negatives that we need to fix and that’s ok.

I don’t know how to explain this feeling. it’s almost an internal shift where I want to go to Mongolia, I can go to Mongolia. Where maybe before I’d be like well I really don’t know how I would go to Mongolia. I need to find somebody to go with me or whatever. And now it’s like this state of mind. If I want to go I can go!

[TR in conversation with MM:]

It sounds like, like you’re free.

MM:

Exactly! Exactly I obtained more freedom than I ever thought I could. And I think I have more freedom than the average person gets to mentally experience and what a privilege.

[TR in conversation with MM:]

And it’s attainable. You did it one specific way but that’s not the only way to attain that level of freedom and access.

MM:

Yeh. It’s like I learned it from my travels but I feel like it’s not about the travels, right. You can learn it in your own backyard. it’s about the mindset… you want it, go for it!

[TR in conversation with MM:]

Mona, this was better than I thought it was going to be. I thought it was going to be great, but this was even better. (Laughs…)

MM:

Laughs…

[TR in conversation with MM:]

One hundred percent!

Congratulations! I’m going to keep watching. I want to make sure other people watch. So you got a fan over here ok, I just want you to know that.
MM:

Thank you very much, I’m a fan of yours too!

TR:

Please welcome the latest members of the Reid My Mind Radio Family. Planes Trains & Canes, that’s Natalie Guzi, Angela Becolli , Benjamin Ted Jimenez and leading the way with her white cane in hand;

Audio: Put some respect on my name!

Dr. Mona Minkara!

[TR in conversation with MM:]

where can people check out Planes Trains & Canes and also where can they learn more about you Mona?

MM:

They can go to PlanesTrainsAndCanes.com or go to YouTube and type Planes Trains & Canes or you can go to MonaMinkara.com to learn more about me. If you want to learn about my research check out MinkaraCombineLab.com.

If you’re on Twitter follow @PlaneTrainCane (singular) and @Mona_Minkara

You can subscribe to Reid My Mind Radio wherever you get podcasts.
Transcripts, resources and more are over at ReidMyMind.com. And yes, that’s R to the E I D (Audio: “D, and that’s me in the place to be!” Slick Rick)

Like my last name

Audio: Reid My Mind Radio Outro

Peace!

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Live Inspiration Porn – I Got Duped

Wednesday, March 18th, 2020

Podcasting as a passion project takes some real perseverance. There’s always some excuse lurking around the corner just waiting for you to take
hold.

In this episode I’m working through one which has been nagging me for a while. Giving it some real consideration led me to recall a story from my own adjustment experience. A time when I got duped into being a part of a live performance of inspiration porn. Well, sort of. Let’s just say I wasn’t there for the same reasons as those running the event.

Like most episodes, I believe this one can give those new to blindness and disability some things to consider. In fact, like all episodes I don’t think it’s restricted but that’s not really up to me. I’ll leave it right here for whoever wants to partake.

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TR:

What’s up Reid My Mind Radio Family?

Yo soy Tomaso, Thomas Reid, host and producer of this podcast – Reid My Mind Radio.

Welcome to those of you who are new here.

This podcast introduces you to compelling people impacted by all degrees of blindness and disability.

every now and then, like today’s episode, I share some of my own thoughts and experiences as a man adjusting to becoming Blind as an adult. And yes, I say adjusting, I don’t think I’ll ever really use the ed suffix on adjust. That’s not to mean there’s no progress. It’s just a continuous journey. Once you get to the understanding that it’s not one to be feared or even think negatively about, it gets better. But It’s like life, there’s always going to be change, and vision loss or any disability is now a part of that.

If that’s part of your reality, a family member or friend or maybe people you work with, well you’re definitely in the right place. If you yourself are going through some other sort of life change or you just like podcasts. There’s something here for you too, if you are opened to that.

Everyone is truly welcomed here with the exception of those with real hate in your heart. Energy works in mysterious ways and I don’t want that negativity being passed along to me or any of the family.

So let’s get this poppin!

Audio: Reid My Mind Radio theme

# Intro

Today I’m sharing some thoughts about this podcast. These are not stream of consciousness. No way I wouldn’t do that to you. My mind can be a scary place when I’m trying to figure things out.

Audio: Sound of chaos!

Chances are as I navigate these thoughts they will prove to be applicable to more than this podcast and hopefully useful to others. That’s exactly how I feel about every episode. I focus on those adjusting to blindness , but lots of others can relate and enjoy.

Audio: Typing sounds….

Since I began this podcast and maybe even prior, I have been very specific about saying I don’t see myself as a journalist. I’m an advocate, straight up! If you listen to the podcast, you know there’s a certain message about blindness and disability. My opinion or feelings in most cases are evident. The overall message is one of empowerment. I’m not impartial.

Audio: Possibly use old episodes here

As if journalism is really impartial.

There are times though when I need to make all sorts of journalistic decisions. It could be the way I edit or the specific questions I ask, even the overall feel of the show, the sound design. It’s intentional. My approach is different from your standard so called impartial reporter.

I’m connected to most people who are guests on the podcast. Usually, the connection isn’t personal. Rather it’s through blindness and disability Sometimes it could be race or we have something else in common.

I feel a responsibility to both my guests and listeners.

I want my guests to feel what I hear when they tell me their story. I want them to know I respect them and their experience.

I want listeners to find the multiple ways they relate to my guests. Yes, there’s the disability experience, but maybe they share a similar motivation, desire or goal.

That’s what I want, it doesn’t mean I can always make it happen.

every listener brings their own past, prejudices, preconceptions and experiences to the podcast.

That makes sense, it’s like anything else. Two people hear the same song , see the same film or read the same book and have drastically different interpretations.

Some people see a reflection of their own lives and goals while others never see themselves in a podcast where blindness and disability is so prevalent.

It’s probably not one or the other. I think there are some who have a bit of both. Either way, I can’t control that.

Which leads me to this statement…

“You should always remember, there are people worse off than you.”

Audio:

“No matter how you’re sad and blue, there’s always someone who has it worse than you”, Shaggy

YouTube Videos
* ” If you’re having a bad day, just consider the day ….”

* “Bare in mind, there’s always someone worse off than you”

Song sung by Little Richard at a MS Telathon.

“… As I look around, so many people who cannot walk, not talk nor see, I thank God for the health and strength that I have, for there’s someone worse off than I am.”
TR:

First things first…

I’m pretty sure I said this same thing at some point in my life. it’s a common statement and an accepted way of thinking.

But, what does it really mean?

How can you compare someone’s life and happiness without all the information??

Is this really pity?

As a content producer, I cringe when I hear it now especially in relation to my podcast.

There’s never been a guest on Reid My Mind Radio that’s in need of someone’s pity.

I then question the choices made for that episode

Did I present this person in a way that says they should be pitied?

I don’t think I focus on the illness side of things. I do include or mention mainly because;
Others with the same diagnosis can relate.
It can also serve as a way to normalize illness and disability. They are a part of life and not a mysterious thing that happened to one person.

AudioFx: Ambiance head in skull
Am I creating inspiration porn?

Most of you are probably familiar with that term. It’s the
idea of presenting people with disabilities as inspirational solely or in part on the basis of their disability.

This idea that this person’s story which often you don’t even get, well it should inspire you or just give you that warm fuzzy feeling reminding you that most of the world is so considerate.

Watch how the rest of the high school students cheered on as the coach let the intellectually disabled kid in the game for the last 20 seconds.

News Report Audio:
Crowd cheering.Coach: He comes to ppractice everyday, he shoots with them, he cheers them on…”

TR:

Or…

News Reports:
Reporter 1: A very special student indeed…
Reporter 2: All thanks to the compassion of one of his classmates….
Reporter 3: But the emotion of this night involved a student who cannot take the field, but is universally admired for his determination…
Reporter 4: A special needs student with Williams Syndrome. He’s a fixture on the sidelineduring football games always rooting on the team. But hi fives are one thing senior prom is something different.
Student: She could have picked anybody to go to prom with.. her.

TR:

I just don’t want to put that sort of thing out in the world.

Does it sound like I’m making a big deal out of this? Maybe because I’ve seen inspiration porn live and in full effect. In fact, I unknowingly was recruited to be a part of the performance.

Audio: Dream Harp

Many years ago when I was still very new to blindness, I was asked by a local organization serving those with vision loss, to give a access technology demo during an event.

I took to the technology pretty quickly and they thought I could be helpful sharing that information.

There was no money involved of course, but they’d provide my transportation and I think there was going to be a lunch. Whatever, I was down to help the cause for sure.

I was setup y’all!

Arriving at the center, I was shown to the main room where the event was taking place.

There were three or four individuals with vision loss seated up in the front of the room. The rest of the group was seated around a large conference table.

I was shown to a table in the front of the room off to the side where I setup my laptop.

Shortly after, the host of the event, the director of the center, welcomed the guests and kicked off the agenda.

Each of the men and women seated in the front of the room were asked to share the story of their vision loss.

Here’s how I recall that event;
Audio: Trap Beat!

each individual told their story while the event host accentuated the misery.

Storyteller:
” Before I went blind, I used to take long walks in the park
Now, I can’t see anything, my whole world is dark!”

Host: “Pitch black, the world is dark, too dangerous for you in the park.

TR:

Laughs! I said, that’s how I recall it today, but that’s not exactly what happened. But I do recall the questions and comments from the host were obviously selected to highlight the negative.
She was playing to the fear of the guests seated around the conference table.
these were potential donors.
All who probably already had beliefs about blindness;
“it’s probably the worst thing that could happen to you and if we don’t help these poor people they won’t be able to do anything. They can’t do for themselves.”

I was setup to be a part of a dog and pony show to help fundraise for the organization.

the fact that it was a fundraiser isn’t the problem for me. I would have still agreed to attend.
However, I would not have participated if I was aware of the approach being used to raise that money.

My so called presentation was probably less than 5 minutes. The host asked some specific questions and then made it seem like it was my technology background that enabled me to grasp the tools and less about the technology as a tool for independence.

Then they pulled out the glasses.

Audio: Glasses clinking and sliding down a bar!

No, not drinks. I don’t even think that would have helped. . No, it was the blindness simulation glasses. These are created to help sighted people understand what it supposedly looks like when you have certain diseases like, macular degeneration, RP, glaucoma and others.

At first thought, you may think ok, that’s probably helpful. It helps people understand and therefore empathize? Sympathize?

Well, in this particular case, while the dog and ponies sat up in front and this one off to the side a bit, the sighted donors were led into their temporary world of vision loss.

Reluctantly at first, one after the other each slowly began trying on the glasses.

“Oh my”…. “wow”
“where did you go Jeanie?”

And then the real fun began as they exchanged glasses with one another. Laughing as they realized how little they could actually see. Unable to find things they placed on the conference table. The host joking as she moved their cups of coffee.

Meanwhile, the dogs and ponies sat up front. While the jackasses continued with their disability experiment.

Empathy, I didn’t see that. But a check was written.

I don’t remember how the event finally ended, but I do know that was it for me. I checked out. There may have been some additional conversation but I doubt I had much to say to anyone after bearing witness to that display of ableism. I vowed to never be a part of anything even remotely like that.

I could easily imagine each of the donors around the table going home fulfilled and thinking “I should really count my blessings, because there’s always someone worse off in the world.”

As far as I could tell, I was alone in my review of the event. I believe some of the others continued to participate. I pretty much severed ties and ended up having a sort of reputation, so I was never asked again. perfect!

All of this leads to my final question.

How are we telling our own stories?

I highly doubt any of the people sharing their story were given instructions on how to tell it. Chances are, the director simply knew these individuals would supply what she wanted for the audience.

Some may say the ends justify the means. The center received the money and therefore can do good things for the clientele. I don’t agree. I believe several of those in the room were employers in positions to someday hire a blind person. I doubt they would. But that’s a subject for another day.

What thought do you put into telling your own story?

In most instances, we’re doing the telling of our own story. We don’t have a videographer, podcaster, journalist.

We’re probably not standing in front of an audience equipped with a PowerPoint presentation. We’re simply talking to people. Most often one on one.

Crazy thing, I tell other people’s stories but not my own. I can do it in a presentation, no doubt, but one on one not so much. I feel strange.

Audio: Cameo Strange! moves into “Children’s Story” Instrumental Slick Rick

I should tell my story as if I’m giving a presentation. it’s mine, it’s a good one. It’s worth telling. It can be helpful.

And it’s the only one I have.

And in the event someone hears it and their thought is
“Wow, I’m so grateful because I’m not like Thomas!”

My response, Bruh, you should be so lucky!

I’m not flexing’ or being conceited or anything like that. But this is my life why shouldn’t I be proud of what I do, when I do it and how I do it.

the same decisions I make for my guests and you all the listener, shouldn’t I put that much time and thought into my own story?

If you say yes, then maybe you too should do the same.

I told you this wouldn’t just be related to podcasting. In fact, it’s not just related to disability.

Or is it?

“Here we go!” Slick Rick, Childrens Story

You can find Reid My Mind Radio wherever you get podcasts. And if for some reason that isn’t the case, like teddy said, come on over to my place… ReidMyMind.com. That’s R to the E I D

Slick Rick “D, and that’s me in the place to be”

Like my last name.

Audio: Reid My Mind Radio outro

Peace

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Reid My Mind Radio – A Captain & Her Guide Dog

Wednesday, May 10th, 2017

Yes, guide dogs are cute! They are gentle animals that are trained to help those who are blind or visually impaired travel. Some know they shouldn’t pet these dogs while they are performing their jobs. Then again, some know but still act…
Liz and Bryce Krispy paired at Guide Dog School

In this episode we hear from Liz Oleksa who shares a story about an incident between her, her guide dog Bryce Krispy, a mother and daughter… what could go wrong?
Picture of Guide Dog Bryce Krispy wearing sunglasses!

We also hear from Dr. Andre Watson who shares some insight on this experience and the message it tells us about society and its perceptions of people with disabilities and other marginalized groups outside the dominant culture.

Plus, some great advice for anyone in need of checking your own self-identity after experiencing micro-aggressions. And it’s ok, don’t be scared to listen… I know I mentioned blind and disability, but really, there’s something here for everyone!!

Now, all aboard for another episode! Hit Play & then Subscribe to Reid My Mind Radio!

Transcript

Show the transcript

TR:
What’s good everybody! Welcome to another episode of Reid My Mind Radio!

I thought we could try going a little more in depth with one story.

generally, the stories on Reid My Mind Radio tend to have a positive spin. More than often, these stories and interviews revolve around the broad topic of adjusting to blindness.

Sometimes we need to hear about the problems, the reality.

And then discover the valuable lessons within.

That’s today, but first… you know how we do it

[Audio: Reid My Mind Theme…]


LO
I’m Liz Oleksa. and I live in Macungie with my son Logan who just turned 13 and my guide dog Bryce Krispy.

TR:
Macungie, Pennsylvania.

LO:
Yes Sir!

TR:
How long have you had Bryce Krispy?

LO:
May 21, of this year will be three years that Bryce and I have been together.

TR:
Is that his full name Bryce Krispy or did you put the Krispy?

LO:
Well at the school they called him Bryce Krispy, but on all his paper work it just says Bryce. So I use both. He likes when I call him Bryce Krispy his tail wags a lot faster. He really recognizes that as his name cause he knows he’s super sweet.

[Audio: Sound of rain and city sidewalk]

I was at a doctor’s appointment and I had just finished up . I had scheduled my pickup for 11:30 with my local transportation. It was raining so I waited outside but yet under the overhang. And I’m a people person so you know I hear somebody walking up I’ll say hi. This lady came up and I didn’t know it was a lady at first and I said “Hi how are you today?” She said Fine and there was a little girl; I am assuming it was a little girl with her. Around 5 six at most. She sounded kind of short so I am assuming she was younger. The little girl was really bubbly and they’re both talking and you know the cutie puppy talk; “Oh look at the god, look at the dog.” The little girl said, “We can’t touch the doggie, right? He’s a really pretty doggie, we can’t touch her?” I said, no you can’t touch him honey I’m sorry he’s working. The mom even said no you can’t touch the puppy, but he is really pretty. The girl said again, “We can’t touch the puppy.” And she’s starting to get a little I guess anxious? I said no honey I’m sorry you can’t touch him he’s working. As a handler if you distract him I could get hurt. Well now she starts yelling, “We can’t touch the puppy!” And the lady’s like “No honey we can’t touch the puppy.” And the girl yelled , I could hear her she was starting to jump around… “We can’t touch the puppy!” And I felt Bryce moving a little funny so I reached down and here the woman was petting the dog. Now she herself told her daughter don’t touch the dog, the daughter told her don’t touch the dog, I told her don’t touch the dog. So I said to the lady kind of calm at first but a little stern I said, ” Mam, please don’t touch the dog he’s working. Both your daughter and I and you just told you not to touch the dog. She goes, oh well its ok, I mean I just can’t help it look at his eyes. Now Bryce , I have been told has the most beautiful honey colored eyes. He’s a yellow lab and he has very very unique eyes, but I don’t care how cute his eyes are it’s still not ok. You know but she’s like, Oh itis ok I just can’t help myself. And I stopped and said Mam stop touching my dog. Now the little girl’s screaming she’s crying don’t touch the dog, don’t touch the dog. I’m getting frustrated so I reach down, just like I was taught at school, if somebody is touching your dog and you’ve kindly asked them you have permission to remove their hand from your dog because that do is an extension of you.

I reach down and I took her hand and I wasn’t rough but I took her hand and pushed it away.
She gasped when I took her hand off my dog She backed up and slapped me across the face and said you have some nerve to invade my personal space like that. I just stood there with my mouth kind of hanging open like “Are you serious right now?” And she said let’s go and she and her little girl went off either into the building or they left. I was too shocked at the time as to … oh my goodness you just slapped me across the face., but yet she was the one who invaded my personal space and my boundaries.

TR:
You heard correctly, slapped in the face!

With that in mind I wanted to examine this situation from a professional perspective.

AW:
Hi my name is Dr. Andre Watson. I’m a Clinical Psychologist in the Philadelphia area.

TR:
I had the opportunity to speak with Dr. Watson last year. We talked about some of his experiences growing up blind and the challenges he faced in attaining his doctorate in Psychology. If you haven’t heard that episode, I suggest you go back and give it a listen.

I asked Dr. Watson to unpack some of what took place in the incident you just heard from Liz as well as what he referred to as…
AW:
… what we have to deal with as blind people trying to make it in America.

[TR in conversation with AW]

Make it in the world cause hopefully people outside of America listen to this too. (Laughs!)

AW:

Absolutely!

Personally and professionally I hear about these kind of stories happening all the time with blind people whether it be with a guide dog or with a cane or with freedom. With he right to make a decision for you own self. And I think this was a clear case of disrespect and disregard for Liz as a person. A person with a brain, a person with choice. And so it really upset me to hear this story not because it’s not common, but because it is so common and so many people that are blind who are trying to live an independently life not only have to deal with some natural barriers to independence but also some of the social barriers to independence. SO Liz established like any dog owner, like any parent, you have established a boundary which you need to do, and so somebody else disregarded that . On one hand I would take it personally and on the other hand I wouldn’t. Because a lot of time people that do these kinds of things disregard a lot of people’s boundaries. This could have been a women who has been disrespected herself in her own life and now is doing that to other people. Bullying is a real issue and people that bully look for people that they see as being weaker and vulnerable. Ironically, people that do bully have been bullied. This is all about perception. Blind people being seen as vulnerable, being seen as less capable, less aware.

TR:
Being seen as vulnerable based on someone’s perception,
well no one can really be immune to these types of experiences. even those who can thoroughly recognize them for what they are.

I actually had a similar experience with my guide dog. I sat down on the bus. The dog is under the seat and the woman sitting to my right
tells me oh, the dog’s fine. And I’m thinking she’s saying the dog’s fine because the dog’s not intruding on her space. As I was checking my dog feeling her, make sure she was out of the way, but really what she was saying was she’s fine so that I can pet her. I reach up and I feel this woman’s hand on my dog and I say, oh excuse me please don’t pet my dog.

As much as I would like to think that people are fair and that they want not to take advantage of blindness or each other’s disability, that’s not the case.

People abuse children every day. People take advantage of people that they think they can get over on, all the time. And it might not be a willful planned activity, but it still happens

TR:
In case you’re unfamiliar with the issue when it specifically involves guide dogs and petting them…
That dog has been trained to work and concentrate on the task at hand while in that harness. The only instructions it should follow are from the handler. What may seem like harmless petting can lead to the dog becoming distracted and potentially not relaying important information or responding properly to the handler.

But it goes beyond guide dogs, beyond these specific incidents; as Dr. Watson explained, it’s about how we and others with disabilities are perceived.
Once again!

AW:
…what we have to deal with as blind people trying to make it in America.
How should we deal with these kinds of issues when they happen?
First what you don’t do is that you don’t stop going out. You don’t stop asserting yourself. That’s the hard part right there is to be resilient in the face of some of these obstacles. Secondly is to bring some awareness to these kinds of things to everyone that this is unacceptable. First of all petting the dog from the beginning was unacceptable.

TR:
In no way is this podcast about judging how Liz responded. She has the right to choose what is appropriate for her.

It just so happens, the steps Liz took, were right in line with what would be recommended for anyone in such a situation.

Let’s return to Liz still waiting for her local transportation company immediately after the incident.
And if you have ever waited for a para transit, you know how long that can take.

[And yes, shots fired! Para transit, step your game up!]

LO:
The bus is forty minutes late and I just stood there.

I wasn’t angry with the woman I was more disturbed by her lack of respect for my personal space and for the example she was selling her child. I can’t imagine if this is what I just went through asking her not to do something what the little girl must have to go through. My heart just went out to both of them for mainly the mother’s ignorance.

[TR in conversation with Liz]
Were you in shock?

LO:
I’m not going to lie, I actually had like a smirk on my face. Like Are you… serious, what really just happened here?

I was being friendly and said hello. My dog is doing his job. He’s sitting next to me not bothering anyone. Don’t they teach us in elementary school you hear the word stop or know you stop?

[TR in conversation with Liz]
has that changed you in any way?

LO:
I don’t want people to think that, don’t talk to me. Absolutely you know what, I want people to talk to me. Don’t talk to my dog though. You know talk to me, I’m the person. You have a question about my dog he’s not going to answer you so you don’t need to ask him.

“Oh are you taking good care of your mommy?”

I can answer your questions for you.

[TR in conversation with Liz:]
is that an actual thing that you hear?

LO:
oh my goodness yes!

When I leave places people are like “now you take good care of your mommy.”

“You show mommy how to get home!”

No, no I tell him how to get home. He just follows my commands.

There’s a time and a place for me to fight that battle too. If
I have the extra time I may start up a conversation with a person and be like Hey just so you know talk to me. It’s not about necessarily proving a point. Some people just don’t know!

The whole bus ride home I just was trying to wrap my mind around this. It took about an hour.

I made a post on Facebook about
it to kind of spread awareness. And I laughed at times. And after I posted it I cried. I wasn’t sad for myself I was really just sad for this woman and then I was like if I could see I probably would have slapped her back. But, then again that’s an afterthought and I don’t want to resort to. Ducking to her level?

I got quite a bit of negative feedback.

I had people telling me that my response to the situation was wrong and I should have contacted the police and file a police report

[TR in conversation with Liz]
Were these other guide dog users?

LO:
. Some of them were. Some of them were cane users. Some of them were sighted. I mean just people from all different aspects of my life

AW:
that’s called blaming the victim

TR:
Once again, Dr. Watson.

AW:
We do that a lot because something really terrible happens we can’t accept that it happened. It’s always easy to do Monday morning
quarterbacking and look back and say oh I would have been there so I would have done that. Who would expect to be slapped in the face by anybody? Nobody plans on that. You don’t know when that’s going to happen
[TR in conversation with Dr. Watson]
one of the reasons I wanted to call you Andre was because when we last spoke you mentioned something and I think you referred to it as the identity check. And it was these types of well I guess micro aggressions right that sometimes you have
AW:
yes

[TR in conversation with Dr. Watson]
You get them and then you have to kind of go back and talk to yourself in the mirror Bill yourself back up. What would you say that people who experience these types of things in terms of kind of checking their identity. What advice would you give?

AW:
Definitely you need to be. Talking to somebody who knows you. Who can validate who you are.

You can talk about how this one event doesn’t define you. Whether it’s interpreting it as being vulnerable or weak or being second class; because these little things like this can happen. Like you know that slow drip of micro aggressions can happen and slowly eat away at someone’s
confidence. It’s helpful to be able to be around people that understand you. It’s great to be in a community of other blind people that you can talk to and they can share maybe share some similar experiences. It’s also good to be and situations where you feel like you’re on equal footing with people.

This is not some kind of militant radical idea but it’s good to be with family. By that I mean it’s good to be around people who have shared experiences as you. you don’t have to worry about being slapped. You know have to worry about people petting your dog when they shouldn’t do that. In many ways you have to put on an armor
when you go out so that you can remember who you are but that’s very emotionally taxing. It wears on your mind, from your thoughts to how you think about yourself. How you think about other people. You become angry, bitter, hostile. You could doubt yourself emotionally. You could be down on yourself. In some cases people actually feel it in their bodies. So you’ve got headaches and backaches and if you’re like me you like to have an extra piece of cake.

[TR in conversation with Dr. Watson:]
Laughs!

AW:
It’s good to be aware of these things and how they can affect you. And you make sure that you’re not consumed by it.

I know I’ve heard lots of stories from sighted people. They always say
oh oh I met a blind guy he was just so mean to me or blind woman she was so mean to me. Well these are the things that happen; things that happen to Liz, they happen to me and to you. And then you do get callous. And so when somebody says hi can I pet your dog; No get away from me!

That’s because it’s worn on you.

I think it’s good to find places where you don’t have to worry about that. Where you can be replenished. Where you can get affirmed. You realize that blindness is a part of you. Just like it’s part of somebody being a man or a woman or black or white or Asian. It’s a part of who we are. We don’t have to see it as something negative

Really we’re living in a sighted world so it’s not our issue it’s the sighted world’s issue. And they are the ones that need help with getting it together.

[TR in conversation with Dr. Watson]

Can you talk a little bit more about that because a lot of people might feel like it’s the opposite because it’s like well no it’s your problem you’re the one who is blind. Why do I need to change, you’re gonna just have to deal with that.

AW:

Well that is a reality of it. I mean unfortunately we have to choose our battles so we do have to
be ready to adjust. But it’s not our fault. And we’re in a world that’s very narcissistic. People only see things and I specifically am saying the word see, people
only see things from their perspective. Sighted people only see things from their perspective and so this is not just an exercise in. Blindness versus sighted, but it’s just an exercise of us versus them or me and the other person. People really need to learn how to see things from other people’s perspective whether they be blind or deaf or wheel chair user or from another culture or from another country. I think we all have to share that responsibility but I think it’s
even more important for the dominant culture. To take some responsibility. It’s a pretty liberal perspective but I think the people in power, the people
within the dominant culture need to be able to consider how they’re going to integrate those who are in a subordinate role. Into our society. There are many many people who are very good at doing that. This is not an us against them, but there are some people that need to be informed.

so things are changing for our benefit but still there is so much more that needs to be done.

[TR in conversation with Dr. Watson]
Indeed! Cool! Very good Sir! And hopefully you just did a little more of that.

AW:
I’m glad you brought up this example because I really think it underscores a real issue within our society when it comes to independence and the kinds of obstacles that we
face as blind people. To the point where now it becomes and it could become an actual physical altercation and that’s not just talk about a slap in the face
I see some similar experiences as being out there all the time like when someone grabs me by the arm and decides that oh you’re going to come with me or they take my dogs harness and try to pull the dog where they think I should go. Or when I’m in a coffee shop and I finish putting some Splenda in my tea and somebody comes along and takes the packets without telling me and they put them in the trash.

I think it just begs for us to continue to make our voices heard. To let
people know that we want to be the captains of our own ship.

TR:
As for Liz, who by the way only lost her sight about 4 and a half years ago;
well she’s guiding her ship towards a Bachelor’s degree in Applied Psychology with a minor in Neuro Psychology.

She’s also currently serving as the President of her local Lehigh Valley chapter of the advocacy organization, the Pennsylvania Council of the Blind

She continues to spread awareness through her speaking engagements at local schools and nonprofits like the Boy & girl Scouts.

Big thanks to Liz for sharing her story.
And Dr. Watson for providing some expertise.

telling these types of stories can be really impactful especially to those who aren’t aware. But at the same time I know they can be of help to others adjusting. And Not just to blindness or disability.

Those unfamiliar with disability , tend to have a hard time seeing past their own stereotypes and immediately believe the material isn’t for them.

There could be some real gems, or useful information, included in a story that is applicable to anyone going through an adjustment, but that story is framed around the subject of blindness and well it’s no longer considered applicable.

Oh that’s not for me, that’s for those blind people. And feel free to change blind people to something else, black people, Muslims, women…

But like Dr. Watson said, we all need to do a better job at seeing the perspective of others. We have to stop thinking oh that’s a blind thing, that’s a black thing.

On that note, I’d like to invite you the listener… yes, I’m talking to you specifically…
I would love for you to check out another podcast I have the chance to work on. It’s for a site called TheReImage. The idea is that our stories as people with vision loss have the power to recreate the image and the perception that others have of what it means to live with vision loss.

The approach is to tell our stories from that perspective that unites us all… humanity. Despite what many may think, we have shared experiences.. People with vision loss have families, raise children, hold down jobs, have hobbies… you get the point.

The stories are told without focusing on the blindness but rather on the person. We call that person first storytelling.

There are two episodes up now and one actually features Dr. Watson. I think many of you would like the current episode as well….

Give it a listen and give us some feedback…
Go to TheReImage.net and look for the podcast link.

If you have any feedback on this podcast, please hit me at ReidMyMindradio@gmail.com.

I’m working on some future episodes so you should really go ahead and subscribe to the show. Then you don’t have to worry about remembering. I know that really keeps you up at night!

Anyway, time for me to get back to steering my ship!

Just call me El Capitan of Reid My Mind Radio!
All aboard!
[Audio: Ship Horn]
Peace!
———-

Hide the transcript

Reid My Mind Radio – Certain Victory

Wednesday, March 29th, 2017

Occasionally, I come across a story that I think fits into a specific category. This latest piece for example was supposed to be about Robert Ott, a blind entrepreneur, but it ended up as so much more.

Picture of Robert Ott

Adjusting to blindness, disability  or any significant life change takes real strength, courage and spirit. Hear how Robert fought back from trauma to become a successful entrepreneur in the Business Enterprise Program.

Hit play to start listening, then subscribe to the podcast and tell a friend!

 

 

Resources

Transcript

Show the transcript

TR:
What’s good everyone!

In this episode I’m bringing you another piece produced for Gatewave Radio.
If you don’t know they are the radio reading service  out of New York City.
their purpose is to provide access to printed materials to those who are print impaired.
Meaning blind or visually impaired, or
for other reasons like physical or cognitive disability, they can’t read print.

Yes, many people today have access to technology that eliminates the need for this service, but
there are still a lot of people who either cannot afford or learn the technology.

One of the things I have realized over the last few years is that I really appreciate telling other people’s stories.

I’m also realizing it’s getting time for me to take another step.

To really tell some one’s story you have to spend time getting to see who they really are and what they are all about.

Doing that, takes a budget.
All of my productions are best described as NMO & NMI…
No Money Out & No Money In!
Well definitely NMI…
If you factor time and equipment well there’s a cost.

I’m honestly not sure what the next step is for me.

I guess I am just letting the universe know I am ready … or
at least open to taking a new step in telling people’s stories for a purpose.

Let’s get into this story and then some more immediately following the Gatewave piece.

But first…
[Audio: RMMRadio Theme Music]

&********

RO:
My name is Robert J. Ott. I originally graduated the Business Enterprise Program  in the state of New Jersey. I then became recertified in the state of Washington and moved my life out here and became a blind entrepreneur in this program.

TR:
The Business Enterprise Program  or B E P
is a federally authorized program implemented  by each state and territory in the United States.

they train and license   people who are blind or visually impaired
to establish and operate food service businesses in
public and private facilities.

RO:
That business did the food services for the western regional center of the National Oceanic Atmospheric  Administration. it was about  a thousand people in the complex. I took over the day care center, I fed 52 kids a day, overseeing 48 vending machines. We did all the catering; breakfast, lunch, fancy dinners . We used to get liquor permits from time to time for international meetings that we’d have there. I spent 10 years of my life there.

TR:
During a Washington state meeting of  B EP vendors,
Robert learned about an opportunity to gain a military contract.
Such contracts were never awarded to a blind vendor in the state and
only 35 vendors in the country had ever received such lucrative opportunities.

Feeling as though he reached a peak in his business at that time,
Robert decided he would pursue the contract.

After 2 and a half years of legal battles with the department of defense ,
Robert was awarded the contract.

RO:
I formed a corporation; it was titled Certain Victory Food Services Incorporated. I had 833 employees.

September 1, 2004 I walked into my office on what is now called  Joint Base Lewis McChord. We were providing the labor, proper service; we were taking care of these young men and women for fighting  for freedom and independence.

TR:
Robert success story can be defined by one word; Pilsung.

The definition, is in his story,
beginning with his introduction to the Martial Arts.

Growing up in Southern New Jersey.  Robert was raised by a single mom.

Like most boys who first watched Bruce Lee on the big screen,
Robert immediately began imitating the acrobatic moves.

[Audio: Bruce Lee’s fighting scene]

RO:
I wasn’t sure what I was doing. My brain wasn’t even doing the thinking. My body was simply kicking  and moving, punches and everything else.

TR:
Robert’s mom couldn’t afford to send her son to lessons.

When Robert turned 12, an affordable and convenient opportunity was presented and
he began studying Tae Kwon Do

RO:
I ended up  winning the New Jersey State Championships two years in a row. From there, the Junior Olympics down in Florida, The Fight for Cancer Championships, Northeast Pocono Championships Garden State Championships. I also lost some battles too. What it was really doing on the inside was  building my self-esteem and confidence to look somebody eye to eye and shake their hand with warmth, goodness and my own self security confidence  at the same time.

TR:
Robert continued studying different forms of Martial Arts with
multiple instructors in New Jersey and Pennsylvania.

Each instructor providing something new,
One in particular stood out to Robert.

RO:
I remember opening up Tae Kwon Do Times magazine. In the back was the directory  of instructors and little pictures of their faces. And it was one in Pennsylvania  and I said this is the guy I need to go to. And I remember my girlfriends said what are you talking about. I said, he’s looking at me. And she laughed. I said no he is. There I met Grand Master  Go Chae Teok. I became one of his students. A year following that I became the officer manager and chief  instructor . I began to operate, run and dealt with sales instructing, maintenance, advertising, marketing and the biggest thing that happened during that time is that here I am  standing in front of a group of 60 children with all of the parents up on the second floor loft looking down  and I’m teaching. Or I’m standing in front of all of these adults that are much older than me and here I am their instructor and they’re looking to me for guidance. Here I am in the office when people would come in with challenges they’d have in life and we’d be talking. I began to realize more than anything  else that I  do this from the heart and I’m good at what I do . It’s a passion I had. I was 18 years old.

TR:
By 1990, Robert was running his own school teaching Hapkido.

RO:

Which is a Korean Martial Arts. It translates to art of coordinated power. It was growing. So much was going with my life. A lot of responsibility, my relationship was being challenged, I had a great business but I was still trying to figure out how am I going to get everything to tie in together and make ends meet. I’d just given my mother away at her wedding. She married a beautiful man  and my mother gave birth to a beautiful baby boy. This is when I was 21 years old.

TR:
On October 6, 1990 Robert’s life would change forever.

RO:
It’s funny because all that night, I kept saying to myself over and over again you’re not gonna go out, you’re not gonna go to this bar. I couldn’t shut my mind down I had to do something and I guess going there was that answer at the age of 21.

[Audio: Sounds of bar crowd]

So I went in, I was chit chatting, this and that, it was no more than 10 minutes  later a large group of people came in who were heavily intoxicated. I was talking to a female , we were having a nice conversation and the next thing you know another individual  came between us and was getting involved, he wanted to put his hands on her.

She’s with me, I think you had a little bit too much to drink.

She went towards the back of the bar and I was slowly putting on my jacket  to go back to the end of the bar  to walk away from the situation. I certainly could defend myself  and take care of myself but I also learned in life that when you’re dealing with people in certain situations  they could be 1 inch tall and you may be in the best shape of your life but if they don’t care about life  you’re dealing with a whole other ball game!

As I was walking away he pushed me from behind . I turn around to defend myself. The next thing you know, the manager of the bar  was pushing me out the door . The bouncer was pushing the other guy out the door and it was all just happening.

I remember very little, but the key parts I do remember is my right leg going between his legs and sweeping his feet off the ground. Dropping my knee into his groin and I was on top of him. And then the next thing I remember I was tucking my shirt in with my friend in front of me. The door cracked back open  that went out to the parking lot and the  man while I was looking the other direction put a gun to my head and pulled the trigger.

[Audio: Gunshot, followed by ambulance…]

The bullet entered the left part of my skull  and went through the left temporal lobe of my brain. Caught the nerve to my left eye , destroyed my taste and smell and blew up in my right eye.

They got me over to Cooper Trauma Center which is located in Camden New Jersey. It was a total of 17 hours  that I laid there and it was nothing they could do.

TR:
Robert wasn’t expected to survive.
His mother was told if he did it was almost certain that he would have severe brain damage.

RO:
A nurse by the name of Fran Orth  who worked in the Trauma Center came in on the second shift. She spent time reading my information looking at me, reading information, looking at me,  she began to question why wasn’t my head lifted up. Why was not this done, why was not that  not done. And the Neuro Surgeon said there’s nothing we can do he’s going to be dying. She said but did you call Dr. Luis Servante?

TR:
Dr. Servante received the call and answered.
He went on to perform surgery that gave Robert another chance at life.

Recovery, would take some time.

He had to deal with Meningitis that required another stay in the hospital.

At the time of the shooting, Robert was a fit 185 pounds.
As a result of the fall after being shot
Robert’s jaw was broken and wired shut.
He dropped to about 125 pounds.

RO:
I couldn’t believe this was happening to me. Everything was racing through my mind. I’ve got pictures of me doing dive rolls over large groups of people and doing splits in the air. I used to go running a lot on the beach and hand springs and just all kinds of beautiful great stuff. I was so weak I couldn’t even do a push-up and now I’m blind. I can’t get around, my independence, my confidence, my self-esteem, my balance.

TR:
The recovery wasn’t just physical.

As the owner and operator of a Martial Arts school,
Robert was more than just an instructor to his students.

RO:
My school was still operating. My students were keeping it going for me, but I was embarrassed to go back. I didn’t want the children and people to see me now. I was ashamed of myself. I could have taught you ten different way when someone puts a gun to you. Techniques and things and ways of taking them down and removing the gun from their hands etc. How your body moves and how your eyes are and how you react to it.

I never thought it would really really happen!

TR:
It was Martial Arts that would once again  help Robert find his way.

RO:
Richard Kemon was my very first Martial Arts Instructor. I really looked up to him, respected him so much. He was like a father to me. And he said Bobby you have to put your uniform on, you gotta go back to your school.

TR:
Robert would go on to regain his  self-confidence and seek out new opportunities.

When it was time, he learned of the BEP program.

RO:
I remember this guy came by the house  to bring me a watch, a talking watch from the New Jersey Commission of the Blind. We started talking about the Business Enterprise Program. I decided to investigate it more. It was what I wanted to do, my dream, but I didn’t look at it as my dream. I looked at it as my tool.

TR:
This was just one tool of many.

Robert already had tools he began accumulating  when introduced to the Martial arts.

I’m talking about more than  the
flying kicks or wood shattering punches.

RO:
Working with people with self-control, confidence, peace of mind, communicating properly, sharing your energy and spirit.

TR:
That spirit eventually guided Robert to Washington state.
Fortunately, he didn’t leave his  sense of humor behind.

TR [In conversation with Robert]:
What made you go from Jersey all the way to Seattle?

RO:
Well that’s a lot of times what  happens when you’re blind and get behind the wheel.

TR:
[Laughs…]
Nice!

TR:
In addition to becoming a successful entrepreneur, he began once again teaching Martial Arts and more…

RO:
I started getting involved with working with other individuals who are blind. I put together a women’s self-defense seminar. I spent time with he Wounded Warriors. I got involved with the children at the Elementary School. I wrote a book.

TR:
The name of that book?
Certain Victory, which is also the name of Robert’s company.

Once again, it goes back to the martial arts; it goes back to pilsung!.

RO:
That same magazine that I told you I was reading when I told you I saw the picture of Grand master Goh.

The article I read in that magazine was called Pilsung. It was about a man and he just earned his first degree black belt.

TR:
Soon after, while piloting his own plane, he crashed.

RO:
And he ended up hitting the high tension line; wires. And 90percent of his body was burnt and he survived.

The whole story  was about overcoming this, getting through this, fighting the fight, finding what he called certain victory. In Korean, pilsung means certain victory through strength, courage and indomitable spirit.

TR:
One word, two syllables Pilsung  helped one man strive to reach his potential.

Robert’s book, Certain Victory is available on Bookshare.org.
It’s also available on Amazon.com and his website Certain Victory.com.

This is Thomas Reid
[RO:
There’s one in Pennsylvania and I said this is the guy I need to go to.]

for Gatewave Radio
Audio for Independent Living.

[Audio Bumper]

Some of my favorite conversations here on Reid My Mind Radio are with those who are adjusting to Blindness.
Notice I didn’t say adjusted.
I truly believe the adjustment process is a continuing practice.

If you ever talked to anyone experiencing blindness or disability,
you may have heard stories about body snatchers and mysteriously disappearing people.

Ok, I’m not being literal.

These are the people in our lives who no longer come around or
they just act very differently around us…

Robert says this was one advantage of making the move out west.

RO:
Nobody knew me here from when I could see.
Thomas the other issue I battle with is I was very well known when I could see. And every time I turned around I’d run into somebody in the supermarket or in the store and they were just always saying to me we’re so sorry for what happened Robert. But they were getting together with me anymore. They weren’t the friends they used to be. I was not the same Robert  any more. I was not the same Bobby. I was somebody different.

Out here I was who I was . No more nor less. people know me for who I am right now. It was almost like breaking free.

TR [In conversation with Robert]:

Yeh, a lot of people kind of fade away. They fade away! It is what it is!

RO:
They do!

TR [In conversation with Robert]:

That ability to start fresh really sounds nice!

RO:
Yes, there’s several components Thomas that I think have been  what I have grabbed onto to help recreate and or clarify who and what I am right now. And in so many words I am the same guy I always was. You know when we were younger all we wanted to do was know, know, know. Learn more and learn more  and learn more. And as I’ve gotten older I’m now trying to understand , understand  and understand more more more!

TR:
Those things that we want to know when we are younger and
try to understand more when we’re older
are said to always be inside us.

That idea that Robert talked about, Pilsung or
strength courage and  Indomitable spirit.
These are already inside of us and
we just need to believe that and
find our way of accessing especially
when we experience life changes.
It’s not easy, but hearing from people like Robert and others, it’s worth the effort.

I don’t know my next step in producing this podcast,
stories for Gatewave or any other outlet  or
even other things I tend to focus my energy on…

But I do know as Robert said…

RO:
Hey if it makes a difference  for one person in this world Thomas then we win!

You can win too!

Subscribe to Reid My Mind Radio in your favorite podcast app…
just look for Reid My Mind Radio… remember that is R E I D.

You can also listen via the Stitcher or Tune In Radio app.

Check out ReidMyMind.com for links, all past episodes plus more.

Big thanks to Robert for sharing his story.
Thanks to riley Gibson for recording Robert’s side of the conversation.
Thanks to you for listening!

[Audio: RMMRadio Outro Theme]

Peace!

Hide the transcript

Reid My Mind Radio: At the Intersection of Black and Blind

Wednesday, January 18th, 2017

Many would assume growing up blind in the 1950’s & 60’s had its challenges. What about growing up Black and Blind attending a segregated school for the blind?

Robert Lewis at work at the Radio Reading Network of Maryland

In this latest Reid My Mind Radio you hear from the Executive Director of the Radio Reading Network of Maryland, Robert Lewis.

We talk about;

  • Attending a segregated school for the blind
  • How being blind saved his life
  • Playing music with Stevie Wonder and much more.

Plus in the special podcast edition, we include some of his personal music suggestions for those times when you just need a lift!

 

Subscribe bit.ly/RMMRadioSubscribe

 

Press Play below to Listen now!

 

Transcript

Show the transcript

TR:Happy New Year!

I know some of us are not feeling that happy in 2017 and possibly longer. I don’t know like 4 years!
Well, as long as we’re not six feet under or my personal favorite stuffed into an ern sitting on a mantle… we’re good and we can make things happen.
We can fight…fight the power!
But first a new Gatewave piece I know you’re going to like and some extra immediately following!
Hit me!

[Audio: RMMRadio Theme Music]

 

TR:
Meet Robert Lewis, the Executive Director of the Radio Reading Network of Maryland. With over 35 years in the business, he is more than qualified to run the network. We’ll hear more on that, but it’s his life experiences that are truly compelling and offer a glimpse to what it was like growing up as an African American attending a segregated school for the blind.

 

RL:
I went to the Maryland School for the Blind, here in Baltimore Maryland. It was a wonderful place to go to school. I started there in 1954. It was a nice school but in the very beginning there was one side for the blacks and one side for the whites. And you were not allowed to sleep on the white campus . The two races went together for school but after that we would go our separate ways the first couple of years that I was there. That’s the way they had the whole setup.

Things were done to you or things were done that would not be tolerated today.

In the beginning they wouldn’t  buy Black kids Braille writers and things of that nature until like 50’s or more like in the 60’s. They started doing some things for Black kids that they didn’t do before and they would do them for the white kids.

You would be surprised what we had to deal with  in the 50’s and 60’s in a blind school.

 

TR:
The discrimination, limited social interactions, like at parties.

RL
As soon as we started to dance with one of the  white girls, the party was over. That party was ended!
They weren’t going to have that.

Society makes people prejudice. If they had left us alone it would never had happen, but because the teachers and because of the house parents and so forth  letting you know that you were black, who cared?
The students didn’t care!

The Lion’s Club used to come out and deal with us.
And at one time the Lion’s Club did not deal with Black kids.

 

TR:
the discrimination lead to varying degrees of abuse.

During a school Halloween party, a member of the Lions Club was responsible for guiding Robert to his chair.

 

RL:

He grabbed both my arms and walked me backwards to the chair.
I’m a 6 year old kid and this is a full grown man and he was squeezing my arms as hard as he could to try and make me cry and I said to myself he’s trying to hurt me but I’m not going to let him know that it hurt. So I didn’t and after he got me to the chair he pushed me down with a little bit of force. That was his way of saying well I don’t really like doing this or I don’t like Black people and I don’t like Black kids.

 

TR:
There was the even more abusive punishments dealt out by those charged with protecting and educating blind children.

 

RL:
Some of the Black kids were punished to the point that we had to stand out in the hall at night with no clothes on.
First we didn’t understand it but then we realized that the person that was doing that may have had a little problem on the side.

 

TR:
The discrimination continued as Robert traveled outside of the state competing with the school Wrestling team. He recalls, they couldn’t eat in restaurants.

 

RL:
We went to one restaurant and the lady said you got to eat as fast as you can so we can get you out of here before the owner comes  back because if he saw we had Black people here he would fire me!

 

TR:
In North Carolina, it was more than getting a meal.

 

RL:
Guys jumped out of the car and came over and they were going to beat us
all up.
We had no idea … What is this all about? Is it because we are blind; no, it’s  because you’re black and you’re blind!

 

TR:
Eventually, the segregation came to an end. The children lived together.

At first the parents were very upset about it and they didn’t really want it but  in order for the school to get money from the state, they had to integrate the school.

 

TR:
Remember, Robert described the time he spent at the Maryland School for the Blind as wonderful. Discrimination and racism were just a part of his school life.

We had a lot of terrible things that we dealt with but  we also had good things because we had a lot of white friends that we went to school with that would do anything in the world for us.

Maryland School for the Blind had one of the best wrestling and track teams in the country so we went all over the place.
We learned so much and we had so much fun as far as the students together.
We had a really good soul band good jazz band.
I grew up with the Beatles . I grew up with the platters. I grew up with Elvis Presley.
Some of the kids that were white, we learned their music and they learned ours.
I would come home and my sister would say here comes the little white boy!

 

TR:
In some sense, Robert really does straddle two identities. Not black and white, but rather black and blind.
The intersection of the two present a fully unique experience.

As a young African American growing up in Baltimore Maryland in the 1950’s and 60’s , Robert observed the events taking place in his neighborhood from a different perspective.

 

RL:
I heard one day when the police came out and they sicked the Shepard on the neighborhood and one guy named frank grabbed the dog around his neck and killed him.
You could hear in the wagon, you could hear the beating he was getting.

 

TR:
The wagon he refers to is the police patty wagon used to round up and transport suspects charged with criminal acts.
Robert says that the recent episodes of police brutality in cities like Baltimore aren’t new.

RL:

When they would beat the kids in the wagon, you could hear the wagon going up and down. if they wanted to find out  if you were telling the truth they would take a phone book and put it on top of your head and then hit it with a police stick. And there were no scars. What they would do is open the window.  they’d say you can tell us what we need to know or you can jump out the window. or take the beating.

 

TR:
Once , the additional identity of being blind could have possibly saved his life. As a young boy traveling in the car with his family, he recalls when an officer stopped his father for speeding.

 

RL:
the police was giving my father a ticket and I reached out to touch his gun and the policeman stepped back and drew his gun to shoot me. My father said oh please don’t shoot my son, he’s blind. And the policeman said oh he’s blind? So he took the bullets out of the gun and put it in my hand and let me play with it . He said, I’m not going to give you a ticket I’ll let you go this time. He said, but every day  for the next week I want you to buy your son an ice cream cone and every night for the rest of the week he’d come by the neighborhood and say did your father  buy you an ice cream?

 

TR:
By no means was Robert’s childhood full of violence.
residing on the school campus during the week, he returned home on weekends.

RL:
Man it was fun because I could come home and tell  them what I learned as far as in school, but then I could get on the roller skates and skate up and down the sidewalk and ride my two wheel bike. My grandfather was a mechanic, I had my hands inside automobiles. My mother would take me to the five and dime store and let me buy a toy. She treated me just like she did all of her other kids. My cousin Mack Lewis had a boxing gym in Baltimore. He was a very well-known manager of boxing. He would train Larry Middleton Vincent Pettway… some of the big time boxers. I would go over to the gym and listen to the guys box. I’d go around listening to musicians. I went over to the stable and rode the horses. I could honestly say I felt just like any kid that could see because I really think I had some angels looking out for me. I really enjoyed hearing things and dealing with things that I dealt with  you know in the neighborhood. Friday nights and Saturday nights was a great time because everybody had a good time. They had crab feasts. They’d walk up and down the street.

 

TR:{In conversation with Robert.}
So you were not at all isolated. You were definitely part of the community  it sounds like.

 

RL:
I was part of the community, yes!

 

TR:
Community, in his neighborhood, school and even activities that lead to lifelong passions like music.

 

RL:
I got my start playing marching band music. I played Sousaphone in the band. I played the Base Drum and from there I went to a complete drum kit. Being totally blind and a drummer, drummer’s completely different than other musicians. When you go and tell people you are blind and you play drums … I told one guy and he said I mean, I could see you playing the horn, but ain’t no way in the world I can see you playing the drum set cause you blind. How you gonna find the drums and the cymbals. I play an 18 piece drum kit! I’m a very good drummer.

I played with 15 and 18 piece bands.

I played with Stevie before.

 

TR:
So we’re clear, he’s talking about Stevie Wonder.

 

RL:
He came to the Maryland School for the Blind and we played  together.

 

TR:
Today, Robert is back on the campus of the Maryland School for the blind.
Not with the school, but rather in his job with the Maryland Radio Reading  Network, a radio reading service for the blind and others with print disabilities.

 

RL:
I started as a board operator and I’d go to work and people would whisper and say is he blind? This is a radio reading service but they had no blind people working there. I started as a board operator and moved up the ladder and I became the Executive Director.

 

TR :
Some of his responsibilities?

 

RL:
Fundraising, directing,   , setting up all the program, fire those that need to be fired or hire the people that need to be hired.

 

TR: {In conversation with Robert}
What would you say are the aspects of your specific experience  that have either helped or make your job more challenging?

 

RL:
The hardest thing is proving things to people. Proving what you can do.
If I ask someone for money and they’ll say to me well what do you do at the station? How do you know if you’re on the air or not? Or how do you know what time it is? And after a while, all of these stupid questions just get to you but, you can’t let people know they’re getting to you because they really don’t know. So you have to answer those questions as polite and as nice as you can do it. You have to be nice to people and after a while I wouldn’t say you get tired of being nice, sometimes you get tired of the way people talk down to you

I love my job and I like what I’m doing. If I sit home retired I’ll probably weigh a thousand pounds.  so I’m trying to avoid that  or find something else to do probably go into some music, but right now my whole job is what I do now with the radio station and part-time  stereo sales.

 

TR:
This is Thomas Reid
{James Brown’s “Say it Loud”
“Say it loud, I’m black”
Simultaneously…
RL:
Your Black and Blind…
James Brown’s “… And Proud!
{}

for Gatewave Radio…

Audio for Independent Living!

[Audio from : KRS1 “We’re not done” “We’re not Done”… “Check this out” from “You Must Learn”]

 

TR:The intersection between disability and race, gender and other identities is something I’d like to explore more.

It’s now part of my own life experience and with people with disabilities being the largest minority group, it’s probably an effective way to promote disability related issues.

If any of these apply to you and you have a story to share or know of someone who does, please send me an email…
ReidMyMindRadio@gmail.com.

It was a real pleasure speaking with Mr. Lewis and I hope to do so again. I can just imagine all of the other stories he could share.

In fact, there are more stories that were not included in the Gatewave piece.

Sometimes it’s hard to explain the level of ignorance people display in response to blindness or disability.

Some of the stories can be entertaining, but often they’re confusing. And as I like to say, you can’t make sense from nonsense.

As you heard in the end of the Gatewave  piece, Robert sells stereo equipment part time. After selling some equipment, he called the customer to check in with him two weeks after the sale.

 

RL:
He said, as long as you live please don’t ever call me. I said, don’t ever call you again? He said no, because I have to have eye surgery next week.

TR:
Ohhhhhh!

RL:
… and I know it’s only because I bought that equipment from you.

I said to him, did it rub off?
{laughing!!!}

He said please never, NEVER, never call me again!

I said, OK!

 

TR:

Recently I was reminded about someone who I knew for years, who didn’t say this to me but definitely treated me as if I were contagious!

And like Robert said…

 

RL:
Ok!

 

TR:

I wanted to end the conversation  on a positive note because we all know those haters are going to hate and ignorance is out here!

Plus it would only be right especially profiling someone who has been through all that he has and refers to his experience as wonderful. That’s an optimist folks!

I asked Mr. Lewis to give me some music recommendations. I thought I’d pass them on to the podcast listeners who enjoy a variety of music.

 

RL:
I don’t really listen to a lot of the new stuff.
If you’re a gospel person I consider the older gospel like Aretha Franklin or James Cleveland to be outstanding. If you really want to get into the going back into the world and listening to oldies but goodies and things of that nature think songs like “What’s to become of the broken hearted”. robins had some really good stuff out. “The Masters Call” It talks about a situation that a guy got involved with and was able to find god. When I’m really down if I want to hear something nice I listen to “Palisades Park” by Freddie Boom Boom  Canon which really is a very nice song to give you a little bit of upbeat or some things by gene Pitney  or things like that really will help you, inspire you music wise. Just getting a boost. Even down to Leslie Gore. I don’t mean songs like “It’s my party” but I mean really good songs that she did that were just outstanding; “Love and spoonful”. The Temptations had an unbelievable bunch of songs that really move me. I mean I love music. There’s so much music that that I really really enjoy. When you look at big bands sounds. I think one of the best instrumentals that I ever heard  in my life was Jimmy Smith’s “Mojo”. And only because no one plays an organ like Jimmy Smith. No one can move their hands and feet like he does; God bless the musician! He was unbelievable!
If you listen to that song and you listen to his right hand what he’s doing with his right hand is beyond what a musician can do. I enjoy so much of the old stuff. I mean Mandrill. I like a horn section. I love tower of Power. Ray Charles’ band moved media also have to put Jimi Hendrix in that line up. There’s so much harmony in some of the groups that came out of England. Crosby, Still, Nash &young. To me Cold Blood has an unbelievable band. They have Lydia Pense who sings for them. Oh my God that girl can sing!
James Brown’s band was fantastic. More so than his singing. His band was as tight as they come. But Ten Wheel Drive is also another tight band to listen to. And also Gail McCormick and Smith. They took the version of the Shirelle’s Baby it’s you. They have a horn section there that is fantastic. There’s nothing like 8 or 9 horns playing together like that . Like Tower Power does… My dream someday would be to play a song with Tower of Power or Ten Wheel Drive. These guys are tight!

 

TR:
Now before you go to your choice of music apps and begin listening to some of these suggestions, do yourself a favor and head over to your podcast app and subscribe to Reid My Mind Radio. It’s good for your mind, your body and your soul!

Peace!

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