Posts Tagged ‘Adjustment’
Wednesday, November 23rd, 2022

As we close out the 2022 season of #YGBD, I’m passing the mic to my sisters!
Boston based Disability Advocate Heather Watkins and Lisa Bryant, a Philadelphia freelance journalist join me to discuss just some of the challenges affecting disabled Black women.
We’re talking career, relationships, parenting, healthcare and more.
Plus, don’t forget to check out the ACB Audio Description Awards Gala hosted by yours truly along with one of our RMM Radio sisters, Nefertiti Matos Olivares.
While this is the official last episode of 2022, be sure to subscribe or follow Reid My Mind Radio wherever you get podcasts. You never know when I might get in the mood to drop a special holiday episode.
Listen
Transcript
Show the transcript
TR: 00:00
Greetings, family, and welcome back to the podcast. That’s right, I got candy in my mouth. Should I take it out? Or should I just do the whole podcast like this? (Mumbles unintelligibly… ) You know? I’m not recording am I?
— Tape rewinds
— Music begins: Snare hits increasing in volume into a smooth R&B instrumental…
Welcome back to the podcast featuring compelling people impacted by all degrees of blindness and disability in general. My name is Thomas Reid, I’m your host and producer. We’ve reached the last episode of the YGBD 2022 Season, you know, that’s Young, Gifted, Black, and Disabled. Some people ask me, Thomas, why Young Gifted Black and Disabled? My first reaction? Why not? Then I’m like, Nah, that’s not polite. Am I lying.
Now, if you just caught what I threw down and responded, either in your mind or out loud, “No, you’re quite right,” you and I share something that has nothing to do with blindness. However, that thing we share could also make our experience of blindness different from others. In this particular case, my reference was to an early rap song by Doug E Fresh called “The Show”. Just one of many Hip Hop references you will find in the history of this podcast. While Hip Hop isn’t necessarily an identity, one can make a good argument for being one. I personally will always identify as being hip hop. Black is definitely an identity. That intersection between Black and disabled has its own unique experiences that need to be discussed, even for the sole purpose of centering the experience of Black disabled people in the disability conversation. That’s of real value to me.
Then there are the additional levels of identity. Last year. We closed out YGBD discussing masculinity. We went places I didn’t know we were going, but I’m glad we did.
— Music stops
So this year… (repeats in an echo effect)
— DJ scratch
— Music begins: Snare hits increasing in volume into a smooth R&B track.
R&B crooner sings, “Ladies… Beautiful Ladies!”…
– “Ladies” Lee Field and the Expressions
— Reid My Mind Radio Theme Music
TR:
allow me to introduce you first to Boston based advocate, Heather Watkins…
Heather: 02:20
I self identify as a Black disabled woman, born with a form of Muscular Dystrophy, who didn’t always use mobility aids like I do now. I’ve been using them for the past 15 years including a cane and on occasion a manual wheelchair and also a ventilator to assist compromised respiratory muscles. I am a mother, blogger, author and I serve on a handful of disability related boards and projects including as a former chairperson for the Boston Mayor’s Commission, for Persons with Disabilities Advisory Board, the Disability Policy Consortium, the National Research Center for Parents with Disabilities and Open Door Arts. My pronouns are she her hers.
TR: 03:06
Also joining me today co host of the white stick Connect podcast from Philadelphia, PA, Lisa Bryant
Lisa: 03:12
I’m a Black female, dark skin with locs. And I’m currently a freelance journalist. And I’ve written for few local platforms but also looking to expand my reach, looking at some national opportunities. I was just recently appointed to the board of the Pennsylvania Assistive Technology Foundation
TR: 03:35
Two Black women with different disabilities, each bringing a unique experience of disability.
Lisa: 03:41
In terms of identifying my disability, I struggle with using the white cane but I’ve had to do that a little more of late. I went most of my life without having any difficulty. I was still driving. Then along came 2011 things took a turn and I had to stop driving and adjust to being legally blind.
— Music begins: A piano melody leads into a slow, dramatic groove.
TR: 03:59
If I asked you what does it mean to be a woman? Perhaps you have a list of things that come to mind. Maybe you even strike up with images that represent that. What does it mean to be a Black woman? What comes to mind now?
TR in conversation with Heather & Lisa:
I want to start here with what did you learn about being a Black woman as a child? What were the lessons that you were getting, whether they be from adults in your life, even from the media, like what was sort of the things that you were learning about being a Black woman, Heather you want to start it off?
Heather: 04:30
I grew up in the city of Boston, we lived in a section called Dorchester, which is one of the predominantly Black areas. Roxbury Dorchester Mattapan.
It was definitely a matriarch. My grandmother lived on the second floor. Aunties lived on the third floor. There was always family around. I was surrounded by strong women and bringing that up from the Greenwood Mississippi. All that wisdom sort of poured into me from my grandmother having grown up in the Jim Crow south. She laughed and joked, but she did not play. We didn’t have everything afforded to us. You kind of get inventive? I learned, if it’s not there, we’ll figure it out
TR: 05:11
pretty valuable skill, especially necessary as a disabled woman
Heather: 05:15
in terms of disability an being a Black disabled woman, Across the media landscape, I didn’t see that reflected back in ways that I found meaningful. Flip through beauty magazines, I didn’t see Black disabled women openly identified that way. That message was like, Where are we? Why is that hidden? What I didn’t see in the media I saw within my family.
TR in conversation with Heather & Lisa:
Lisa, same question.
Lisa: 05:41
My family images were very strong women. But I definitely remember as a very young girl, being more influenced by media and even classmates, when I was growing up, dark skin was not necessarily appreciated. We were teased about being dark. I didn’t like being teased. I was an only child, my imagination sometimes got very creative. I had an imaginary friend and she was exactly opposite of me. She was lighter skin, long, long hair. That was just what I did. And that was just how I imagined. I guess the way I sort of internalized that I just accepted that as No, that’s kind of the way it is. I don’t know that I remember even having meaningful conversations with my parents about that. I think I probably just kind of tuck that away. Later on. I thought, wow, how about that kind of self hate.
TR: 06:44
I really admire and appreciate Lisa for being so honest, and sharing that with us. It’s hard being vulnerable, that something only really strong people can do. That hate doesn’t start from inside us. It’s just another tool of white supremacy. A systematic approach to establishing power, by convincing Black people in others of color to feel inferior. It’s anti-Blackness at its finest.
Internalizing negative beliefs. That’s not just about race or color.
Lisa: 07:12
Fast forward to becoming legally blind, like Heather said, When did you see, on the cover of a magazine, someone very proudly, in a wheelchair, or proudly using a white cane?
I had absolutely no one else to relate to until becoming a member of the local NFB chapter. And even those that I did see some of the elderly people like in my church who vision was failing, I was so much younger, and I still had usable vision. So that was just a whole different world, the age I think, alone being like the big kind of barrier. So then it’s becoming a matter of, well, let’s see how we can fake this without making this announcement about my disability. It’s funny how much you just kind of internalize and live through things, and accepted as normal, even though it’s really not.
— Music ends.
TR: 08:13
Actually, I think these reactions are quite normal. I don’t think anyone wants to feel less than, unfortunately, what has been normalized is the idea that beauty is one thing. Disabled anything means inferior.
We can keep on with other things like age, gender…
TR in conversation with Heather & Lisa:
I’m wondering whether your experience with disability, how did it impact the definition of Black womanhood? Can you talk a little bit about that?
Heather: 08:38
Sure. I think it definitely evolved. So when we talked about disability, what back then we would say, quote unquote, handicapped, your handicap, but your healthy. So it was spoken about like that. The exposure that I got, regarding disability at that time was through MDA camps, Muscular Dystrophy Association camps, and like clinics. But still, I wasn’t seeing all the Black disabled kids. I saw maybe one during summer camps.
TR: 09:09
Every summer for about a week, Heather, as a child would stay at these camps for children with muscular dystrophy in the New England area, a chance to get away from the city environment.
Heather: 09:18
It was just like one, or maybe another person who was of color, or certainly only like one Black kid. And the messaging there too, was like, I have to go outside of my community to see other kids with visible disabilities. It was hard to really connect and have that kind of support system where you can connect with other kids in peers, who are disabled to talk about your life experience, but also to talk about frustrations because that’s important to getting tips and resources. Those weren’t things I discovered until much later in advocacy circles, so important in terms of building your own self awareness and even sharpening your advocacy skills.
TR:10:04
As a child Heather never really had the chance to form any sort of relationships with other Black disabled children.
This reminds me of the time in 2020 when clubhouse was new, and the 15 Percent Club was rockin. We hosted an event to discuss Black disability experiences. There had to be 30 people or more predominantly Black. Read my mind radio alum and CO producer of the first YGBD episode, AJ Murray famously remarked that it was his first time being in the presence of that many Black disabled people. There were several others who acknowledged it being their first time as well.
Lisa: 10:40
I had a similar experience when I went to a national convention. So this was 2019. I knew of other Black people in the Federation who were blind, but I had never been in the same circle with them. That was the first time and it was like, wow, I went a long time without really having anyone else who got me not just being female, not just being Black, but being visually impaired female or Black, or at least two of the three. It was a long, long, long, long time.
Heather: 11:15
What if we were exposed to cultural icons in grade school, who had disabilities? How that might have shaped and impacted our awareness? I’m talking about like Fannie Lou Hamer, and Harriet Tubman, Brad Lomax Sojourner Truth, all of them had disabilities, and it also impacted their life, how they govern their lives. Imagine learning that at such a young age or even being newly disabled, how that would shape your awareness and your concept of disability.
We get so many messages that downplay or erase disability because people generally assume that it’s synonymous with negativity. It has a much wider lens, it’s actually very comprehensive.
TR in Conversation with Heather & Lisa: 12:01
Heather’s describing what we mean when we talk about disability isn’t what you think it is.
Consider how disability is talked about. Often from the perspective of a diagnosis. It’s used as a metaphor, often to indicate negativity:
— Music begins, melodic, dramatic strings…
TR in a mimicking over dramatic voice
“, she was blind to what was going on around her.”
TR in a “Financial commentator” voice
“That will cripple the economy.”
Heather: 12:20
Who would I be, without having a disability and the evolutions and the twists and the turns and all of the folks that I’ve met in advocacy circles, especially diverse advocacy circles, who really has been a mirror for me, in validating that and raising that ceiling, where I was often capping my own potential.
So I often like to say I’m a woman in need of care, a caregiver and a community builder, all at once. But if you redact any part of that bio, then you reduce my community contribution, and visibility. It impacts every aspect of your lived experience in determining key quality of life areas. housing, health care, education, employment, how you live, how you shop, dine, socialize,
— Music fades out.
— Sounds of a woman walking down busy city street.
TR: 13:15
let’s get into these lived experiences, beginning with relationships.
Lisa: 13:19
I was walking down the street with my cane, and I just kind of had an image of myself. And I just had a thought, Well, I wonder what attention I don’t get now because of this cane.
TR in Conversation with Heather & Lisa: 13:33
So you walking down the street looking cute. You got the white cane? I don’t know what your status is dating, married, not sure of your status. But how has it affected that part of your life?
Lisa: 13:45
I have not been actively dating. So I’m not on any kind of dating website or anything like that. There’s certain places where I’m very familiar with my surroundings, and I may not have it right out. The sort of compliments or whatever I make it. I don’t think I had the cane.
TR in Conversation with Heather & Lisa: 14:05
So they try to holla when you don’t have the cane?
Lisa: 14:08
Yeah.
Sometimes I hear people say, well, blindness doesn’t define you. I know what they mean by that sentiment in terms of, they don’t want it to define you in a negative way. But at the end of the day, it is a part of you. It’s just as much a part of you as anything else about you your name your hair color. So let’s not sort of suppress that. There’s got to be a way to embrace it, put it out there, but in a way that just lets you know, people know like, this is who Lisa is, in fact, it’s an integral part of me because it does define my world. I navigate my world as a visually impaired Black woman. People probably see the ladder first.
Then there’s the cane.
TR: 14:49
The cane we know serves multiple purposes. First, an aid to orientation and mobility.
Lisa: 14:57
It’s just as much for me and my safety. but it’s also an identifier. It’s a way of saying to the world, you may think I see you, but I may not. Or I may only see you til you’re right up on me. I need to accept that it may sort of reduce some dating opportunities. But then, at the end of the day, are those really people I’d want to date anyway. Maybe one day, it’ll actually attract the right guy.
TR in Conversation with Heather & Lisa: 15:25
Heather, what do you think
Heather: 15:27
I was so ambivalent, for a while to use a cane 15 years ago, because I was thinking I was quote, unquote, giving in to my disability, it’s gonna make me appear weak and old. Then it dawned on me that this is a mobility a that is quite liberating. It’s helping me get from point A to point B, giving the nod that yeah, I’m in charge of my life here. I’m not sitting idly by, I’m actually moving and grooving. Those are the kinds of epiphanies and internal dialogue that I had to have, in rooting out that internalized ableism. So much of our gaze comes from a non disabled viewpoint. You’re not even conscious of it until you are and then you’re like, oh, wow, I’m comparing myself to all the non disabled peers and counterparts. And it’s just so self injurious.
TR: 16:23
It’s not only canes and adaptive equipment we use in public.
Heather: 16:27
I especially felt that when I started using the ventilator, and it looks like scuba gear. And I’m like, how sexy is that? Because it feels like a robo breather. I’m like, what partner’s gonna see that as sexy. I had to really think about all of those kinds of things in terms of dating and being attractive to the opposite sex and what that means for me, in terms of acceptance, it goes back to not having those kinds of images across the media landscape where the storylines are informed by disability, from a comprehensive viewpoint, where the person is a love interest, maybe they’re running a business, maybe they are parents, maybe they’re out and about moving around in the world, making really critical decisions. We are starting to see more of those images now. And the first thing I think of is on Queen Sugar. It’s informed by Ava DuVernay because she has lupus. And so Aunt Vy has lupus and is a matriarch, she’s married. She’s a business owner, community builder. When you have those kinds of storylines, mirrored in that meaningful way, you can best believe those get absorbed by people. And then we have new ideas and people can conceptualize disability in a much grander way. I’m thankful for shows like that. Echoing all of those thoughts and the ideas of what beauty is. Sex, sexuality, pleasure, kink? How often do we hear that all juggled in the same sentence with disability? There are quite a few Disabled Parents, including myself. And guess what, those kids, you know, were conceived the old fashioned way.
TR in conversation with Heather & Lisa:
(Interrupts)
Not immaculate conception!
TR, Heather & Lisa chuckle!
Heather:
So we exist.
TR in Conversation with Heather & Lisa: 18:22
So let’s go there.
— Music begins: A slow vibrato synth, leads to snare hand claps and a driving confident Hip Hop beat
You said that being disabled really has informed your parenting? Talk to me about that?
Heather: 18:29
Sure. I had to leave my job due to progression of disability. And that was probably when my daughter was like around nine or 10. I was so nervous about the fact that what does this mean for me? What’s the next step? So I really had to contemplate the trajectory of my life. It was doubly scary for me because I had these little eyes watching you, right? And they absorb everything around them had to get real clear. Take that internal deep dive and figure out, what would you like to do next. And I said to myself, you know, you need to provide a blueprint, an example for how it would be for your daughter, and not that she needs to be at home, but be more empowered to make her own decisions and choices. I just moved very slowly and methodically. I started thinking about what I was passionate about. I was thinking about disability advocacy. I ended up taking a class that the State offers. It’s called the Massachusetts office on disabilities, Cam training class, Community Access Monitor. Little steps I was taking to figure out where I wanted to go next and how I wanted to impact the world. I didn’t just want to instruct her. I want to give you an example. What to do when how to be a person that contributes to your own community. Disability impacted my parenting by being more mindful and intentional about all of my life’s choices.
TR in Conversation with Heather & Lisa: 20:03
How old is she today?
Heather:
She’s 28.
TR in conversation with Heather & Lisa:
Okay, what’s the impact on her life?
Heather: 20:08
She is a very strong willed empowered out and proud member of the LGBTQ community, her seeing her mother be involved in, in advocacy circles. It made her more open to just being herself in a very big and loud, authentic way.
TR in Conversation with Heather & Lisa: 20:30
There’s sort of like an “outness”, about disability.
Heather:
Yeah.
TR in conversation with Heather & Lisa:
I dig it!
TR:
What about the impact disability has on a person’s career?
Lisa: 20:38
That is a very important question. And in my case, it’s just starting to turn around. Before my vision became more complicated. And before I even knew all of the resources, assistive technology, I was a senior development officer at a local nonprofit and doing very well in that. But it just got harder and harder to see my work got harder to see on the computer, I couldn’t drive at night. And some of these one on one donor opportunities would be in the evening outside of the city, which meant small streets, maybe dimly lit, and I just couldn’t do that. I actually ended up mutually separating from that position. And it was a long time before I could really figure out okay, what can I do?
TR in Conversation with Heather & Lisa: 21:34
I have this thing about that question. What can I do? I mean, I know a specific,
Lisa: 21:39
What can I do on a computer? What could I do where I wouldn’t have to drive and I could just get easily to places on public transportation?
TR in Conversation with Heather & Lisa: 21:45
It’s very practical. But there’s a larger question.
Lisa: 21:48
I remember the day when I thought, what do I want to do? I want to do something a little more creative. During the pandemic, I went to school for journalism. This has just birthed , well, maybe rebirth, something altogether new in me. I just think that that writing bug was there for a long time. But just dormant.
TR in Conversation with Heather & Lisa: 22:10
Journalism was a real interest of leases in her college years.
Lisa: 22:14
I just kind of tabled it all those years ago. Although I really did love journalism. I didn’t like the career paths that were available then. So I just went in all kinds of different directions. Now. I can work remotely, I can do human interest stories. I don’t have to cover murders and fires and burglaries. There’s so much more out there. I can cover the nonprofit sector I can write about in justices. I absolutely love it. And I love that I can do something that’s mentally challenging. Sometimes it’s nerve wracking, but I get to talk to people the same way I did when I was in development, because that’s all about cultivating relationships, you have to know how to communicate to all different types of people. So I think I’ve found my fit. However, I have yet economically to be at that level.
— From ABC News broadcast: 23:07
Today marks the day, the average Black woman working full time must work into 2021 to catch up with what an average white non Hispanic man earned in 2020.
Let me Repeat that. Today, August 3, 214 days into the year is when an average Black woman worker will have to catch up to her white male counterparts. 2020 pay. According to the National Women’s Law Center, Black women are paid 63 cents for every dollar made by white men across industries.
— Music ends
TR:
Yet!
Lisa: 23:39
I’m much more fulfilled than I had been in a long time since 2011, when I was declared legally blind.
TR in Conversation with Heather & Lisa: 23:47
I’m just curious, do you see that as an opportunity that was presented by disability?
Lisa: 23:54
I guess the disability has kind of opened that because it’s allowed me to do it on my terms. I could do it from my computer and I could use 12 time magnification if I need to. And nobody has to know you know, I could have my screen reader on nobody has to know. So yeah, yeah, I suppose it has.
TR in Conversation with Heather & Lisa: 24:16
Okay, good. Good.
Heather: 24:18
How many similarities? Wow, I’m a Mass Comm major. My daughter was very young when I graduated. So I was going to go to school full time, be a mother full time, but I couldn’t, you know, add on the internship part of it. So when I left college, I started working for a health insurance company. It wasn’t until years later that I got involved in writing and blogging and doing freelance work like that. Disability definitely impacted that sort of rebirth and rebranding you were talking about being online and using the internet. Hasn’t that been such a great equalizer in that way for so many disabled persons? I’m not only talking about obviously a parent, but not a parent in chronic illness, folks who, for one reason or another may not be able to get to a brick and mortar location for being online, they have access to remote work or flexible hours and balancing work life.
TR in Conversation with Heather & Lisa: 25:15
Meanwhile, there are real benefits for hiring and retaining disabled employees.
Heather: 25:20
So many of us have higher sensitivity levels. Have adaptive and analytical skills, logistical skills like nobody’s business, we know workarounds, contingency plans, so many of us are out of the box thinkers. I tell people all the time, you want disabled folks in your employ, in your planning committees, event committees, your communities, your corporations, because there’s a lens and a lived experience that you’re not tapping into that that asset to your organization.
TR in Conversation with Heather & Lisa: 25:53
Do you see any sort of examples that say, okay, yeah, I see some of this taking place now?
Heather: 25:58
The pandemic, really put that into overdrive, right? So many people were saying, Oh, no, we can’t accommodate you in this way, for remote work and being able to access even entertainment and theater, then all of a sudden, voila, overnight. Everyone has access. So it wasn’t a question of why it couldn’t be done. It just couldn’t be done for y’all!
TR: 26:21
One of several things revealed during the pandemic is the inequity in health care,
Lisa: 26:26
I was thinking of an Article I just wrote on Black women in breast cancer, the death rate is much, much higher for Black women. Nationally, it’s close to 40%, which is ridiculous. So there’s that in general disparity of health care for Black women. But then you add this other layer of having a disability. Now I am in the two worlds.
TR in Conversation with Heather & Lisa: 26:53
That second world, if you will, is this ability.
Heather: 26:56
It’s been 32 years, since the Americans with Disabilities Act signing, we’re still having to advocate so much for the smallest of rights, it really is daunting and exhausting. nearly 62 million in this country identify as having some form of disability, one out of four people 25% of the population, nearly 1 billion globally, it’s a sleeping giant of a demographic that needs a much better marketing plan.
TR in Conversation with Heather & Lisa: 27:28
So when someone who is blind, for example, walks into a medical establishment,
Lisa: 27:32
I generally am carrying my white cane. And it’s amazing to me how they’ll see the white cane and still give me a clipboard. People just don’t get it. They only know this is what I do. I’m the receptionist, this is what I do. You come in you tell me your name, I give you a clipboard. Look, I can’t fill out your little iPad. I know it’s cute. And it’s like the way to go here. But that’s not going to work for me. And there have been times when they’ve been helpful. And there have been times when I’ve been dismissed. Some of the same challenges can be addressed if there were more sensitivity and people to help. Because it’s not only vision, it’s not only physical, their language barriers, there’s not being tech savvy,
Heather: 28:19
lack of cultural competence regarding disability, gender, and race, especially when you have providers who are not very knowledgeable about disability, but also, maybe the hospital or healthcare setting is not outfitted for receiving you in a very physical and literal way. Maybe the doorways aren’t wide enough, maybe you can’t access the bathroom because it’s inaccessible. Or if you’re someone like myself, who had difficulty getting on the exam table, because you needed a hydraulic one. And so you had to forego your GYN exam, because you couldn’t access the table that resulted in me filing a complaint with the patient advocacy department. So the next time my follow up visit, that hydraulic exam table was there because along with that complaint form, I included a copy of the part of the Americans with Disabilities Act. That said I had a right to accessible medical care.
TR in Conversation with Heather & Lisa: 29:16
So you have to advocate just for you to go to the doctor and give them money.
Heather: 29:22
Had to do it more than once to a different providers office. You’re not always believed, so many stories of pain management, managing the variety of disabilities, whether they’re a parent, not a parent or include chronic illness, we should all have the right to have medically accessible care that is done with culturally competent providers.
TR in Conversation with Heather & Lisa: 29:43
That’s medical providers that are not only familiar with the differences, but also value them. That’s reflected in process policy and services.
Heather: 29:52
When I was younger, I was only considering apparent disability and our families. How many of us have died At heart disease, I have died from complications of diabetes. My father, he ended up dying of kidney disease. I took care of him for the last 11 years of his life in our home, just an interdependent relationship, because he’s helping me physically. And I’m helping manage his entire health care, all while raising a daughter. And then also having my nephew come into my home through a DCF kinship placement, Department of Children Family Services placement as a older teenager who had intellectual disabilities.
So many of us live interdependent lives. And when juggling so many responsibilities, we are practicing those kinds of advocacy skills in real time. That’s the real commentary for a lot of Black disabled women.
TR: 30:47
All you have to do is follow disabled Black women on social media. And you’ll know that we’re just touching the surface of the many challenges they encounter on a daily basis. And yet, they see hope.
Lisa: 30:59
The small things can mean a lot. I have had to say that I’m visually impaired I use assistive technology. I’ve got well, how can we accommodate? Do you need us to send you things in some other file? I went through a seven month long Fellows Program for journalists, and they were absolutely wonderful. Like they just insisted that like, look, we don’t want this to stress you out. It’s not as off putting, as it used to be.
I said earlier, I had to leave my job. Because they just didn’t know what to do with me. It’s really changing for the better. I mean, you have media platforms that are exclusively devoted to people with disabilities. Are we there? Absolutely not. But there is hope.
TR in conversation with Heather & Lisa:
Cool.
Heather: 31:45
I love it when I’m able to connect with more Black women with disabilities, whether it’s a parent non apparent or includes chronic illness, if their parents, whether they’re into the creative arts, I love being able to connect with them and just learn more about their lived experience and how that evolved over time. Because I always feel like I learned every day, that helps me, in my own self awareness, become a better advocate
— Music begins: A melodic synth piano opens to a inspiring mid temp heavy kick Hip Hop beat.
TR: 32:15
today, passing those lessons on to others.
Heather: 32:19
It wasn’t until I got heavily involved with repeat exposure that I began to deliver how vast and wide that disability is, there comes a culture of political movement, history constituency, there wasn’t an indictment. It’s an identity marker. And even the word itself, disability, the di s prefix is not only not an option, but has a Latin and Greek derivative, meaning dual into so hence another way of doing and being in the world, and so much easier to adopt that first person language and say, Black disabled woman. This is why there will be no ambiguity in that meaning, because I’m not shying away from any of those things. You know who I am is the amalgamation of all my choices. And that doesn’t mean that I’m glossing over any frustrating aspects of disability because for sure, they are there to give a full bodied expression in meaning of what it means to live with a disability to have a disability or to be disabled. It is a very comprehensive, layered experience.
TR in Conversation with Heather & Lisa: 33:33
Full bodied expression. That’s what I’m talking about. Can you handle all of this greatness? Now I need you all to check out and support our sisters. That’s my fellow Libra. The new addition to the Reid My Mind Radio family from Boston. You see how I did that? New Edition, Boston.
— “Cool it Now” New Edition
Heather: 33:56
My website’s SlowWalkersSeeMore.com. So that’s like my condition and my personal mantra.
TR:
Facebook, Twitter and IG.
Heather:
at h Watkins nine to seven.
TR in Conversation with Heather & Lisa: 34:10
You can find Philly’s finest Lisa Bryant on Twitter and LinkedIn.
Lisa:
@ByLisaBryant
TR in conversation with Heather & Lisa:
Appreciate y’all for coming here and sharing your experiences. And you know, that makes you official, members of the Reid My Mind Radio family. So salute y’all, I appreciate you.
Lisa: 34:28
Thank you, Thomas. This is great.
TR: 34:31
Big shout out to all our sisters out there doing your thing. In fact, that’s how we began 2022 doing your thing with disability. We then had to flip the script on audio description. You know how we do it. And by the way, don’t forget to check out this year’s ACB Audio Description Awards Gala, hosted by yours truly. This year. I’m happy to say I have a co-host one of our Reid my Mind Radio family sisters and alumni, Nefertiti Matos Olivares, who is also providing audio description. We had some fun filming and I hope you all check it out. No spoilers. It drops on November 29 2022 On Pluto TV and of course ACBADAwardsGala.org.Check the site for times and official information.
So this is the last episode of The Year y’all but I feel like spreading some holiday cheer this year. So make sure to keep a watch out for a special episode. The best way to do that is to make sure you subscribe or follow wherever you get podcast. And we have transcripts and more at ReidMyMind.com.
All you got to do is remember it’s R to the E I… D!
Sample: “D and that’s me in the place to be!” Slick Rick
NS be in a place to be
TR:
like my last name!
— Reid My Mind Radio Outro
TR:
peace
Hide the transcript
Tags: Accessibility, Adjustment, Advocacy, Black, Blind, Career, Dating, Disabled, Healthcare, Intersectionality, Journalism, Low Vision, Muscular Dystrophy, Relationships, Women Posted in African American | Comments Off on Young Gifted Black & Disabled: Supporting Our Sisters
Add this post to Del.icio.us - Digg
Wednesday, October 12th, 2022

This final season of Reid My Mind Radio 2022 is once again focusing on #YGBD – Young Gifted Black & Disabled. Ever since producing the episode in 2020 under that same name with Ajani AJ Murray, I wanted to make it a seasonal theme.
This opening episode was inspired by my dive into the speculative fiction of Octavia Butler along with real concerns around environmental, social and political upheaval. I wondered how these things could impact the disability community specifically.
I reached out to Justice Shorter; a Disability Justice advocate and Black Disabled Lives Matter amplifier. She is a national expert on disability inclusive disaster protections, emergency management and humanitarian crises/conflicts. And she’s just pretty dope and just someone who we all should be aware of.
Listen
Resources
Transcript
Show the transcript
Music begins – A bouncy synth opens a driving Hip Hop beat.
TR:
[megaphone sound effect]
Greetings Reid My Mind Radio family. Welcome back! to the first episode in this final season of 2022. I’m talking about Young, Gifted, Black…
[in the background]
say the word
[yells]
And disabled!
If you don’t know it all began with an episode I produced in 2020 with my man, brother, Ajani AJ Murray. If you haven’t listened to that original episode, I strongly suggest that you do.
I like to begin the episode with some sort of an intro, you know, an update, a skit, a few words loosely tied to the episode or its theme. Well, today’s guest has so much greatness to share that I want to honor that and leave most of this episode to her and the topic at hand. But here, we always kick things off with the drum.
Reid My Mind Radio Intro Music
A collage of different crisis from news reports: 01:07
“We have stormed the Capitol!” A rioter yells!
“To Washington and the high stakes hearings on the January 6 attack on the Capitol.” – News anchor.
“A rally organized to protest COVID restrictions, with members of the state’s militia groups openly taking part” – News Reporter.
“Longer fire seasons, stronger hurricanes, more intense heat waves and floods. Across the world climate events are getting more extreme” – News anchor
“If it feels to you like there are more weather related natural disasters. That’s not just a feeling.” – News reporter
TR:
All of these things are taking place around us today and are increasing in occurrence. And my recent dive into the speculative fiction of Octavia Butler, and it really got me thinking how prepared are we people with disabilities for major disaster? Then I recall meeting someone on Clubhouse who can really speak to this in a way that truly takes this all into account.
— Music begins, Triumphant horns blow as a symbol crescendos into a mid tempo Hip Hop beat lead by a driving kick drum.
Justice Shorter
Justice:
I am a black blind lesbian woman. I hail from the Midwest Region born and raised in Milwaukee, Wisconsin, but I currently reside in Washington DC.
I am the granddaughter of Leola Daniels Carter and Fanny Jahari. I’m the daughter of Lily Mae Carter and Michael Demetrius Shorter. It’s always top of mind for me to link and give honor to the lineages in terms of the work that I do, the spaces that we occupy.
I describe myself as a curator, as a creative, a coordinator of sorts. I am a disability justice advocate a Black Disabled Lives matter amplifier, a international trainer and speaker.
I do a lot of work that heavily focuses on disaster, justice, disability justice, racial justice, gender justice work, because they are inextricably linked, you cannot have one without having the other.
A lot of my work kind of centers around those primary issues. Iadjusted and adapted as I continue learning and growing and evolving because quite frankly, there is no other way for me to move and maneuver in this world.
TR:
A part of that learning, growing, evolving is in regards to her blindness. This began with glaucoma around the age of five or six.
Justice:
That actually first started out with a retinal detachment which took all of the vision in my right eye. Then glaucoma slowly started to take the vision and my left eye. From very early ages, it has informed my life. So it would be categorized as a developmental disability for sure. Given how it has informed my developmental years, my early developing years.
My relationship to disability, though, is one that has come with the progression of time as well. I have always been deeply steeped in my blackness. But coming into a closeness and intimacy with disability has been something that has happened over time.
TR:
I’m sure there are a lot of people with intersecting identities who are adjusting to disability that can relate.
BIPOC, or a ter that better encapsulates this group, people of the global majority, who may have spent years learning how to deal with overt racism, microaggressions and all sorts of injustice, while trying to develop a strong and positive self identity. Only to have to now be faced with internal and external ableism.
Justice:
It wasn’t until I started to delve more deeply into the work of quite frankly, people of color with disabilities, that I started to see myself more clearly and I started to smile and rejoice of what that was reflected back to me.
To see yourself mirrored and the experiences of other people who have similar journeys as you do, really helps you to getting a better understanding of how you can position yourself in this community and in this space.
So it wasn’t until I started reading folks like Mia Mingus, Leah Lakshmi Piepzna-Samarasinha, Patty Burns, Stacy Park Milburn folks who, again, are luminaries in the space of Disability Justice articulators and architects of what we now know as disability justice. That I was really able to grab hold to it in a way that was so deeply personal, and that encompassed such a profound sense of pride.
TR:
We’re talking about the power of people and our stories, enabling us to fully see ourselves and explore all of those things that make up who we are.
Justice:
I had already realized quite early on that standing in my truth was a means of survival. It was a means of me utilizing my own story, as opposed to having others use it for themselves. What does my story mean, not only to myself, but other young women like me, other Black lives, LGBTQIA, folks just like myself, other people of color, like myself with disabilities, it wasn’t until I started to think about that a bit more that I was far more inclined to start working on disability as an area of practice.
TR:
Part of that process can literally require finding the right location, a place that presents opportunities for justice, and then moving to Washington, DC.
Justice
I came out to DC, the doors kept opening and they were all related to disability. There were a lot of internships and practicum opportunities and all of that stuff. And all of them were like disability oriented opportunities. And I’m like, well, here we go, I’m not gonna turn down this internship I’ve been dreaming up or this post grad school job that I’ve been dreaming of, because it’s in the disability space, and I didn’t want to be held in a box. I was very scared for quite some time that disability would cage me. I say that with purpose. I say that with intention. So many of us are caged because of our disability.
TR:
Cages are more than physical, a boundary that limits our movement. Well, that can be in our thinking about our lives and possibility.
Justice:
Considering how many people of color, how many black people are imprisoned in this country, and how many of them have some sort of disability, mental health consideration, or access or functional issues.
I think about trying to do this work in the different layers of discrimination that happens when you say that you have a disability and you’re trying to find a job, I did not want to be pushed aside, I did not want to be pushed out of the different sectors that I wanted to pursue professionally. The opposite happened. The very thing that you think will cage you can sometimes be the thing that frees you. It became the thing that allowed me to see myself more clearly, allowed me to grow wings, in a sense of flying in all of these different directions and with all of these other phenomenal people who are also doing dope stuff being completely embodied in their truth, and that should just excited me to know him.
TR:
When I first began making audio even before this podcast, I thought about working in radio and reading mainstream stories. I recall thinking,
[faintly]
I’m more than just disability.
[back to normal speech]
When I hear Justice say…
Justice
The very thing that you think will cage you can sometimes be the thing that frees you.
TR:
… Learning more about disability culture and challenging my own ableism has brought me to a place where I realized the opportunity and value in telling stories from a disability lens. In no way am I settling for something less rather, I’m fully aware of his greatness and possibility.
Justice:
A lot of folks have distanced themselves from the word disability as a means of survival. That history is the interlocking ways that people have been discriminated against all of those forms of compounded discrimination has caused many folks to distance themselves, whether it be locking you out of the school systems, locking you out of the employment system, locking you out of the type of medical care that you need, locking you out of the type of housing that you need, actually locking you into nursing homes, psychiatric facilities, group homes, settings that you don’t wish to be in. People with disabilities have an acute awareness of these things. It has caused folks to quite honestly try to be very fearful about the proximity of disability, kind of getting too close to that word, or getting too close to those issues. That should not be the reality that we all live in.
TR:
You know this isn’t about the word disabled, right? Many prefer to use terms like “special needs” or “differently abled,” but that doesn’t change the impact of systemic ableism.
Justice:
And that is why it’s so deeply important that we change those structural inequities that people have to deal with on a day to day basis, so that people can, people of color with disabilities, young and old, of any age range, any type of disability can hear that word and understand that it is inseparable with freedom. It is inseparable from joy. It is inseparable from laughter, and levity and friendship and fellowship, all of the things that allows your soul to breathe. That’s kind of what I try to center my work on as much as I can.
TR:
Building bridges for us. Our wellbeing physical, emotional, spiritual. We’re talking about our safety and you know, that goes beyond natural threats.
Justice10:00
There’s also human-caused crises that we have to contend with: the Flint water crisis, things that are happening with the nuclear power plants, factories that pollute water, you think about environmental injustice, which also, of course leads you to the Environmental Justice Movement, which was founded by people of color. A lot of times that history gets pushed aside or buried, when we talk about environmental justice.
TR: 10:24
Whether man made or natural, these threats to our safety don’t always just spring up on us.
Justice10:30
Dealing with structural violence on a day to day basis. Also, it creates what people in the social work and psychology world call the sandpaper versus baseball effects. The baseball effect is when something hits you over the head, it’s kind of very hard. It’s a hard hitting issue that evokes this trauma. But then there’s also the sandpaper effect, which is trauma that things that grate on you over time, it kind of wears you down wears on you over time, things like poverty, not being fully represented, not only in terms of your politics, but also in terms of these social environments that you navigate within things like medicalized ableism. And discrimination, all of these things wear on you, over time, all of these things are structurally violent, it is the difference between your potential reality and your actual conditions.
TR:
Too often individuals are held up as an example to model “he overcame the poverty,” “she broke through the glass ceiling.” Whether we’re talking about racism, sexism, ableism, we hear it all the time, “she was able to do it, why can’t the rest of you?” But focusing on individuals does nothing to address the systemic problem.
Justice:
We as people of color with disabilities, we have the potential certainly to pursue whatever aspirations that we want to pursue in terms of professional or academic or spiritual. And yet, so many of us are kept out of those areas of those sectors for all sorts of reasons, but many of them tie back to racism, ableism, sexism, ageism, so on and so forth. All of those things are structurally violent, because it keeps you from living the life that you could live.
Toni Morrison tells us that racism itself is just a distraction. It keeps you from living the life that you truly wish to live. It keeps you from doing the things that you truly wish to do, because you are in a perpetual space of having to explain your very existence to people who quite frankly, may or may not even give a damn at the end of the day.
TR: 12:31
That’s fighting for employment that enables you to earn a living wage in order to afford housing where you don’t have to worry about your children getting lead poisoning, or access to good schools or even clean drinking water. And then there’s something we really need to consider in regards to the often suggested advice around disaster preparedness.
Justice 12:50
So many individuals who are impacted by disaster or who live in disaster prone areas are told to simply prepare, to pack up as much stuff as you can pack up, hoard as much stuff as you can hoard. Have you a to-go bag that’s filled with all of these things that you can afford to put in it. But if you cannot afford these things during times that are not embodied by crisis, then you certainly can’t afford them enough to stock up on them prior to a crisis. Are we sculpting solutions and recommendations based on the conditions that only a select few can meet? Or are we creating solutions and ideologies, remedies and practices that are going to be applicable for the people who need them the most.
TR: 13:36
As Justice simply put it, preparation comes with privilege. If you do have that privilege, by all means, consider checking out various suggestions on what to include in an emergency to go kit. Ready.gov has a number of suggestions. As people with disabilities you also want to consider your access needs like white or mobility canes, assistive technology, and other technology that may be required for you to gather information or communicate with others. However, it’s important to note that the onus shouldn’t always be placed on the individual.
Justice:
It’s kind of the wave in the finger in the face response.” Why didn’t you prepare better, we can’t always save everybody!”
People deserve to survive irrespective of what their class status is. My thinking around this has shifted. I go more towards how are we building community and connection. Whereas I may only be able to buy a flashlight, my neighbor up the street may be able to buy a couple of extra cases of water. My other neighbor down the road may have a generator. My other neighbor down the street may have a couple of more cans of food. Can we create community in this way? Disability Justice teaches us that we are each other’s survival strategy.
Music begins – a smooth slow jazzy Hip Hop groove.
TR: 14:46
This feels like the antithesis of our society’s norm contrary to the idea of independent making sure you have your own solely relying on yourself. This is interdependence. We spoken about this here before and up approach that encourages collaborative work.
Justice 15:02
coming back to center around community, how can we help each other survive? What I can’t carry, maybe you can. What you can’t do, maybe I can? How can we support each other?
TR: 15:14
Another term for this way of acting and thinking is mutual aid.
Justice 15:18
It’s looking at this in a way that says, even if you cannot contribute in these ways that kind of meet other material needs, your life is still worth saving.
How can we support in that way? That could be any of us at any time, that is also a means of planning for the future. I don’t have this disability today, I may have it in two months, or if something hits me in a certain way, I could have that mobility disability.
So us planning around how we’re going to support these folks in our community, now, it’s important for all of our collective survival.
TR:
Perhaps this goes beyond the physical.
Justice:
Cole Arthur Reilly, who has this wonderful book called This Year Flesh. In that book, Cole says, What if God did not just want to use you? What if he also wanted to be with you? I think about that, in terms of people having inherent worth and recognizing wholeness, which is one of those disability justice principles. We recognize the wholeness of people, we understand that there doesn’t have to be a utility. In order for people to survive catastrophe. We could just inherently care about the presence and the value of each other as people. And that could be enough to make us think about preparedness in a more expansive way. That recognizes that all of us deserve the opportunity to survive.
TR: 16:31
With that said, what exactly are some examples of mutual aid that exists today?
Justice 16:36
Mask Oakland, because they have done extraordinary work to help protect people with disabilities during wildfire seasons by making sure that people had masks to help themselves to breathe during the wildfires of California. These are people with disabilities helping other people with disabilities by supplying them with masks.
They also had a very targeted approach in terms of helping people who were houseless because they were the folks who were the most exposed. People who can go indoors and shut the windows and use central air units to stay cool and protect themselves from the air.
TR: 17:06
How often do we hear the narrative of people with disabilities as recipients of aid? Rarely do we hear of us as providers, especially when it goes beyond the disability community. But check out who stepped up when the pandemic hit and the rush on masks resulted in a shortage.
Justice 17:23
Oakland had masks that they were trying to distribute at the very least when supplies were running low.
Providing people with information on what types of masks to get and what type of masks did what, and making sure that people were willing to know. So that informational awareness was key.
This is also something that a lot of folks are doing online, in terms of telling people different ways to stay safe. And all of these different COVID protocols, people sharing knowledge on how to save themselves.
This is also happening in kind of non-crisis wave people with disabilities creating hashtags and creating websites around disability at home. What are some of the hacks that people are making? I think that’s actually the site’s name, “disability at home.”
TR: 18:00
Disabilityathome dot ORG, a catalog, if you will, of ideas and inexpensive hacks that enable people to create low cost solutions for mobility aids In Home Solutions for creating safe, accessible spaces in bathrooms, and for completing daily chores at home. As Justice noted, the same things that keep you safe on a daily basis are needed during disasters. So providing information is a component of disaster justice, to activism and advocacy, a real and important function that just so happens to be accessible for those with disabilities.
Justice 18:36
Sometimes when we talk about activism, we try to only act as if that can happen in ways that are very physical, being in the street, going up against police officers going out there and directly helping someone evacuate carrying them on your back out of the flaming building, right?
When we think about that, as forms of support, or activism, or things that would kind of constitute this framing around who is a responder or who is someone we can call in a crisis related event. But there is also a ton of work that’s happening in virtual spaces and online. And that’s really key, especially for many of us who can’t physically go out and beat the streets by way of protesting or going door to door to advocate for the things that people need.
TR: 19:24
We’re talking about all sorts of things here from crises like that in Flint, Michigan, or Jackson, Mississippi, that deprive people of clean drinking water, health care, access to physical and online spaces. A lot of that’s happening through hashtags, some of these online Twitter spaces and Facebook groups.
Justice 19:43
This is important because that’s how knowledge is passed. So many of us are learning through the lessons of others and through the lives of others. And when you share that information, it positions people with disabilities as experts of their own narratives, but also of their own survival. And I think that’s really important.
TR: 20:01
When talking about survival, Justice stresses that it goes beyond the high profile weather events.
Justice 20:07
What you might not consider to be a crisis, I would! The fact that there are people who might be doing construction in your building, and they don’t tell the blind folks what’s happening, it’s not a crisis for anybody else moving around that building, except if I hit that ladder.
People with disabilities have additional considerations that we’re thinking about on a day to day basis, it may not be a crisis as someone else, oh, I just have a scratch. But for me, it could take me out for days, or it could take me out for much longer than that. I think about that and I affirm those experiences for people.
TR: 20:37
Okay, now check out this example of mutual aid, Justice knows neighbors, and they know her. Even more than that, they look out for one another. So when Justice isn’t around, a neighbor will say something to a construction worker, like…
Justice 20:50
“You cannot leave that ladder here, you can, you cannot leave all of these tools in the middle of the floor because the cane may not catch it.”
TR: 20:58
Then I think it’s solely about themselves, but rather, each other, community, like a time a man with a knife tried to enter the building.
Justice21:06
The neighbors came together and supported one another and they made sure he did not get in here.
I had another neighbor who was locked outside of our building, the door knob literally came off, so we couldn’t get out. And he could not get in. What was my solution? My first solution was not to call the police because all of us were black. Two of them were black men. And there’s some additional considerations that you have to take into account in that way. The first thing that I thought of though was to go grab this neighbor of the black men, he came down, he literally undid all of the joints to get that thing undone so that we could all get out of the building. And so this guy could get in.
TR: 21:39
Together, they took action that would prevent such a crisis in the future.
Justice 21:43
We advocated that a new door be put on to the building, we advocated that the construction crew close the windows at night, so that different people didn’t have access into the building, which created another safety concern.
TR: 21:54
The lesson here, any conversation about disaster preparedness must be about advocacy.
Justice 21:59
I encourage you to start talking to the people around you making community with the people around you. I encourage you to start looking around you and assessing kind of what are the things that you can do if you are spending your time at a workplace and eight hours out of your life, every single day, Monday through Friday. And then okay, I think we need an evacuation chair, where is it because how am I going to get out and it’s not just acceptable that everybody else can leave except me. That’s not cool. I’m not okay that that is our plan, or that our plan is this only one person knows how to use the evacuation chair, and nobody else knows how to use it. So if Rob is not at work today, then it’s just too bad for me if a crisis happens on that day,
TR: 22:36
Justice recommends thinking about all of the places you spend time, community centers, public parks and malls for all sorts of crises. In 2022, the reality includes acts of insurrection homegrown terrorism, thinking about mass shootings, do you have an escape route, or no have a way to shelter in place? These are just some of the questions we should be asking ourselves.
Justice 22:58
How can we use things like vocational rehabilitation services, assistive technology organizations that say, Hey, I think I need this piece of assistive tech because it’s going to help me in a crisis. I’m going to use it for dual purposes. I’m going to use it on my day to day but it’s certainly going to be useful as something to support me during a crisis as well.
TR: 23:14
How does geography play into preparation? Specifically, I’m thinking about those living in rural environments far from their nearest neighbor.
Justice 23:22
I think sometimes that gives you the illusion that there’s no community because people aren’t close. And that’s an untruth. Many of them have way more survival techniques that any of us would even understand because they have had to live on their own. And because they haven’t had easy access to just go down the street and get to someone.
Listen, when the cold snap happened down in Mississippi, it was 2020 or 2021. All the years are running together. When the cold snap came into those areas. A lot of black folks who lived in very rural areas mentioned how “Listen, we didn’t have any running water,” “our generator started to go out,” “there was no one around us for miles, we had to figure out how we were going to get from point A to point B.”
What ended up happening, you still have people who ended up driving in, you still had people who ended up starting to bring people over to their homes so that they can have baths. You had people who were doing carpools that make sure that people had access to food and water. People showed up for one another.
TR: 24:19
Of course, this doesn’t apply to everyone. Justice encourages organizations to really think about this, especially when making new purchases.
Justice 24:27
If we’re getting new vans, if we’re getting new buses, are they wheelchair accessible? Those very same church buses, vans, these things are also becoming evacuation vehicles in a crisis. Are they equipped with a wheelchair lift? If they not, we have a problem. We’re not planning for everybody. You’re saying that everybody else can get on this bus that we have repurposed to be you know, an evacuation, but we’re gonna go up this road and we’re gonna get everybody who want to come. Wonderful. What if I want to come and I can’t because there’s no way for me to get on this bus with my power chair. You can’t just put me on there and then I have no means of moving around once I get to my location.
TR in Conversation with Justice: 25:03
Yeah, absolutely.
Justice 25:05
When I first started to lose my sight, and I started taking courses that were related to activities of daily living, my instructor was also a blind woman. And she said that the difference between a problem and a crisis is time.
TR: 25:14
Remember that situation where the door to Justice’s building couldn’t open. That was a problem. But when you add fire and smoke, it becomes a crisis, the tenants working together that makes that building a community. Churches, social organizations, and even chapters of consumer organizations are all opportunities for mutual aid organizing.
Justice 25:35
I would also beg the leadership of those entities to consider how they are thinking of their whole community, how they’re thinking of people with disabilities, because like I said, we will make investments in certain things. But are those things accessible from the onset? Is it something that we have to complain about or somebody gets hurt or somebody gets left out, then we start to consider it. “Oh, wow, we had to leave Miss Jenkins at home, hope she’s okay when the waters was rising, because nobody had a vehicle that could get her out.” But this is our community, we love it. But yet we didn’t plan for Miss Jenkins.
TR: 26:06
For those who may think they don’t have any access to community, that online access can prove to be helpful in various ways.
Justice 26:13
Even by listening to a podcast like this is cultivating a connection with different streams of thought from other people. That also helps to decrease isolation, and also helps you kind of just learn different patterns and different practices that might be helpful for you.
I could get on these types of platforms and talk from sunup to sundown, and I still wouldn’t be able to give you a fraction of all that goes into doing disaster justice and Disability Justice work.
What we could do is build together and create a relationship so that we can stretch out as much as we can in terms of helping people to understand what will be the most useful for them. What is necessary for me as a blind woman is not going to be the same for somebody with a different type of mobility disability, we have to individualize our responses a bit more, as opposed to just saying people with disabilities need to do a better job of packing a bag and going.
TR: 27:08
This episode began with the idea of becoming more prepared in the event of an emergency, it evolved into a broader understanding of a more holistic approach to mitigating disasters. That is disaster justice.
Justice 27:21
Thinking about all of the different ways that people are impacted by disasters across a disaster cycle. So it’s not just during response, but it’s also during the preparedness stage. It is during the mitigation phase, it is during response, during recovery. It’s long term recovery. Recovery does not end when the cameras school, when
Are we thinking about this in terms of people who are the most directly impacted, also having lines of impact in terms of decision making authorities? Or do we only ask the people who are the most impacted? What are their thoughts in kind of a town hall setting and then we go back into our private conference rooms and people who don’t live in these areas make all the decisions, or people who live in these areas, but don’t necessarily represent the priorities that the people have go forth and make those decisions. Are people of color with disabilities being disproportionately impacted by such decisions?
I encourage folks to read the work of Alessandra Jerolleman who has a wonderful text out there about disasters through the lens of justice. She has kind of these four principles around what constitutes a just recovery. But you can apply that to nearly every phase of a disaster cycle, and really gain some in depth understanding. So what it means to do this work in a way that is far more equitable, but also far more effective in terms of centering the groups on the ground, who are directly impacted by these crises on a day to day.
Music begins – a synth and sounds of nature that opens into an uplifting Hip Hop groove.
TR: 28:48
Examining disaster through a justice centered lens requires an understanding of disability justice. Unfortunately, I see it used as a broad term that disregards his origin. Disability Justice is specific to the 10 principles articulated by Patty Burns and Sins Invalid. I’ll link to these principles on this episode’s blog post at ReidMyMind.com and encourage you all to read further.
Among the various resources Justice shared with us today, I’d like to make sure you point your browser to JusticeShorter.com. Here you can access some of her past speeches, as well as getting in contact with her. These conversations about disaster preparation can be heavy. So I had to find out how justice unwinds and takes care of herself.
Justice 29:29
I’m happy that you brought up this question because I think people need to have their own resilience rituals. And listen, that word resilience has really thrown a lot of people off because people in power tend to use that as a way of not giving people the type of support and material things that they need to meet their critical needs.
Oh, you’re just so resilient. We’re resilient because we have to be it’s out of necessity. It’s because you have refused to direct funding towards this neighborhood. When I talk about resilience rituals, I mean, the things that keep me getting up and going, and don’t get me wrong, there’s some times that you need to stay down, because rest is essential.
I have learned over the years what I need to pour into me in order to get greatness out of me, and that is not something that can be predefined by anybody else except me. I had to learn that because sometimes people will look to their supervisors or look to mentors, what do I need to do? What do I need to do?
TR: 30:25
Sounds like what we’ve been talking about, an extension of the conversation around safety, who really knows more about what’s best for you than you. For Justice it’s about gospel music, walks on her treadmill, family and
Justice30:39
Just hang out with my girlfriend and have a good dinner. We travel, we do all types of dates that are fun and spunky. And you already know, I love reading, there’s always a book that’s queued up for me that I’m excited to get into. Every time I travel to do a speech or to do things that are related to my job, I try to bake in some time for living life and going and exploring that city and seeing what communities of color are doing there. What are they eating? What are they listening to? How are they having a good time? I try to at least embed myself in the city or in the culture just a little bit while I’m gone.
TR: 31:13
This was a true honor to have justice on the podcast. And you all should know there’s only one way to make that clear.
TR in Conversation with Justice:
It’s a very simple way and it’s by letting you know that you, Justice Shorter are an official member of the Reid My Mind Radio family. So I appreciate you.
Justice 31:27
I appreciate you. Thank you so much. It was a joy.
TR: 31:30
There’s so much in this episode. I honestly think this is one to hold on to, refer back to. It’s a resource for real. A resource that will be right here for you. Wherever you get your podcasts.
Remember transcripts and more are at ReidMyMind.com.
And now, in case of an emergency, I need to make sure you know that’s R to the E, I, D!
— Sample: “D! And that’s me in the place to be!” Slick Rick
TR:
Like my last name.
— Reid My Mind Radio Outro
TR:
Peace
Hide the transcript
Wednesday, March 9th, 2022

Can I kick it? (Yes you can!)
Welcome to the kick off episode for the first season of 2022; Doing Your Thing with Disability!
In this series, we’re not talking about overcoming blindness, getting passed our disability, no, we’re going to hear from some awesome people who do the things they love to do and they’re doing it with their disability. That’s a whole different energy.
We begin with a Reid My Mind Radio alumni, Marguerite Woods, who’s all about energy. She was last on the podcast during the 2021 Flipping the Script on Audio Description season.
I just knew during that first conversation, I had to have her back on to discuss more of her experiences as an advocate, philosophy as it pertains to blindness and disability. Plus I wanted to hear more about her trip to India and all that meant to her.
In this episode we get into self-reflection, a kinder gentler advocacy, love of self and skin bleaching? You’re going to have to listen in…
Listen
Transcript
Show the transcript
TR:
— Theme from Welcome back Kotter
— A hip hop drum loop…
Greetings, Reid My Mind Radio Family.
— from song, “Welcome Back!”
I feel like I’m home. Well, I am.
You know what I mean right?
That familiar place where you’re comfortable, your needs are being met and you feel loved and appreciated. That’s what I want you to feel when you rock with Reid My Mind Radio!
Let’s start this off right!
Can I kick it?
— “Yes you can”
Can I kick it?
— “Yes you can”
I’m excited to kick off this first season. If you caught the Black History Month bonus episode, you already know, this season is called Doing Your Thing with Disability. Now I know some of y’all may say that a bit differently as in Doing’ Your Thang with Disability! You should know, that indeed is the feeling behind the season. I chose not to formally name it that way because not everyone gets that energy right when saying it. If you do appreciate and respect that vibe, by all means feel free. If you do not or if you question whether you’re qualified to do so, well, don’t it’s cool, say it phonetically. Doing your thing with disability.
What I hope to deliver during this season are 4 episodes with varying examples of people pursuing different goals in their lives for a variety of reasons. We’re touching on Accessibility, entrepreneurship, music expression, self-discovery and more.
I encourage you to listen between the words.
(Filtered Voice:) Is that a thing?
Sort of like reading between the lines?
Throughout each episode, the energy is not about getting passed or overcoming, nah, that’s what they talk about over there…
The way we get down, right here, we’re doing it with disability – and to me that’s something to celebrate.
— Reid My Mind Theme Music
TR in Conversation with Marguerite:
This first season of Reid My Mind Radio in 2022 is all about doing your thing with disability. And I want to know, what does that mean to you?
Marguerite:
Wow. It to me, it means being my authentic self. And disability is just a part of my shell. And it’s a part of the filter that I’m experiencing this physical life through. And so I can’t escape that. So it’s a part of who I am. It’s just not all of who I am.
— Music begins, a mid tempo smooth jazzy Hip Hop beat.
TR:
Who she is? Well, this is Marguerite Woods.
Marguerite:
I am a woman, a black woman with many interests, and mainly, I am having an experience as a spiritual being in my humanity, and so the roles that come up for me are absolutely a mom, family member friend, a community person.
She, her are my pronouns. And I have on a suit jacket, I think it’s black and white, I have one little flower under it with little fringe around the top yoke.
I normally wear earrings, because I like them, I’m a little artsy, and they usually feel really creative to me. And I have on, dark shades.
I am black. I am bald. I am beautiful. And I am bold.
TR:
It’s been a while now that I’ve been incorporating image descriptions as part of the podcast.
I know there are some who may wonder why, it is a podcast after all.
A big part of that is identity for me. I want you to know as much about the people I’m presenting here on the podcast.
Truth is, sighted folks still get the opportunity to access this information via a nonvisual medium, because podcasts require an image to accompany the audio file.
But there’s more than identity in what we hear in an image description.
TR in Conversation with Marguerite:
Your outfit today, is there any particular reason that you wore what you wore?
Marguerite:
I decided deliberately to wear what I’m wearing. It feels comfortable. I think it looks good. And we talked about possibly video at the end. I wanted to project a certain image. I wanted to feel a certain way while doing the video. I feel very feminine. My outfit helps me to feel like that.
And the earrings are just an added touch that I really like, because I’m bald, I think that it highlights my frame.
TR:
Being intentional, goes beyond her wardrobe choices. Marguerite is thoughtful with her words. It’s one of the things that really stands out when first meeting her. It’s evident in the way she approaches each of the questions posed to her. Like…
TR in Conversation with Marguerite:
How do you identify with disability?
Marguerite 04:
Wow Thomas, that’s a loaded question, how do I identify with disabilities?
It’s been a progression of things and when where I am today is because of that progression.
So I don’t want this to sound flat or linear. I arrived here.
I’ve been toying with how do I talk about what we’ve been calling disabilities. And as I think about them my blindness and and others with a variety of different things. What I keep coming up with is this whole idea of diversity. We have diverse abilities.
my relationship is that whatever I’m dealing with, and in my case, it’s blindness, it’s given me an opportunity to explore the life that I’m living from a very different perspective, than I started out exploring life. living life, because I think of each of us as an explorer, or pioneer in our particular part of life.
TR:
That exploration can take her to foreign places, but much of it is within herself. In fact, she sees it as selfish.
Marguerite:
Everything that I experience, think about relate to is totally through my filters. And that in itself is selfish. But not in the way that I grew up thinking about the word selfish.
There’s no way to relate to life and be neutral, because I’m relating to it through my filters. And every other person is as well. And the best I can do with that is expand my filters, and expand the understanding, from having experiences with other folks.
TR:
If you prefer your ideas presented in a more concrete form, Marguerite offers a bit of a disability toolkit.
Marguerite:
in a practical way, the way I relate to disabilities is understanding that each one of us has to have an ideal of what we’d like to be able to do, where we find ourselves how we’d like to be able to manage whatever it is we’re trying to move through. And so, philosophy, some skills, some technology and some techniques, and absolutely some guidance in any way that you can find it to help you better do what it is you’re trying to do.
TR:
One of those skills that Marguerite has built over the years is advocacy. It goes back to her childhood growing up in Baltimore City, the area Marguerite describes as being designated for African Americans.
Marguerite:
There was a lot of feelings of just being done wrong, not being treated well. There was an energy of distrust, anger. But in the middle of all of that, I enjoyed the connection with family members and community members. And this sense of looking out for each other, a desire to move forward in a positive way, enjoying whatever life had to offer. And I felt that the elders in my community, were very interested in assuring that their children, and the younger people in the community were able to enjoy the things they felt they had not been able to.
— Music ends
And so the whole advocacy around that felt noble and it felt right to me.
TR:
That relationship with the community equipped Marguerite with a strong solid foundation.
Marguerite:
I grew up through the elementary and high school years, with all black teachers in the black community. And I could feel the desire for them to give us their best. And they wanted us to be sent into a world with our best doing our best.
I ended up in senior high school going to a predominantly white school on the other side of town. I deliberately chose that because I wanted to know what it felt like to have that experience. I was curious and interested,
When I did get to that senior high school, I felt like I was very well equipped, even though I began to hear stories that said we were marginalized, and that we were lacking.
TR:
Stories meant to weaken that foundation or penetrate her spirit.
Advocacy became more than a way to impact her community, it helped her realize things about herself.
Marguerite:
For me advocacy was about fighting for the underdog. And so it felt aggressive. And I thought it was very necessary and that there was a certain way that you had to go about it in order to gain the results that you were asking for.
It didn’t feel good in my spirit.
That anger and their venom and using it to ask for what you wanted. While it seemed to be effective, it was not a good space for me.
TR:
Over time, Marguerite came to realize that in the way she and
so many of us view advocacy, trained her to only consider what
was not working.
Marguerite:
it started to make sense to me that if that’s what you’re pointing out all the time, that’s all you’re setting yourself up to see. And so when things are coming, that are, what you do want, how will you recognize if all you’re focused on are the things that don’t work?
Sometimes the things that I’m wanting to experience, they reveal themselves in small ways.
The more that I’m open to understanding and realizing those smaller things, the momentum can pick up, but if I don’t recognize it, then how will I be able to enjoy it becoming larger in my space, in my experience for myself and for my community.
TR:
Yet only focusing on the things you want or those things that feel good can prove to be quite unfulfilling.
Marguerite:
I’ve got to own how I feel, and accept that as where I am. And recognize that I want to be in a space, that feels a lot better. But that causes me to have to identify, what is it that I’m asking for? And I’m telling you that that’s not been the easiest thing to do. Because even when I’m talking to people that I asked, What do you want, we even talk about what we want in the negative. I know most people can easily tell you what we don’t want, but ask them what they do want. It’s a very different conversation. And so that was not just a conversation for others. That was a conversation for myself, as well.
— Music begins, piano keys leading into a mid tempo smooth bouncy Hip Hop beat.
TR:
This really seems about knowing yourself. And there’s some real value in that.
Marguerite:
I’m getting to the space in the place where I have an opinion, I have a thought and it’s authentic.
You have a thought and an opinion and it is yours, no matter what I think about it, it is yours.
I do have the right to my opinions and my thoughts. And I want to be respected. So if I’m going to respect myself, I’ve got to respect you. Even if I don’t agree with you. I’ve got to respect that you have it. But that does not stop me from asking for what I want. That’s how you see it. And you can be very right. And I’m not telling you that you’re wrong. But I’m asking for what I want and what I need, which is a very different space.
I need to articulate and be really clear about what I’m asking for. So I have to keep asking, and keep defining and keep gaining the clarity.
I’m not recommending this as a way for anybody to go, I’m just merely trying to tell you what’s happening with me.
TR:
She really is on an exploration.
Her advocacy continues to have practical applications.
As the president of the At Large Chapter of the National Federation of the Blind in Maryland, she’s ready when necessary to respond to issues of particular concern to her community.
Marguerite:
We discovered that the state of Maryland was planning to discontinue bus transportation from Baltimore City. To the surrounding counties, for the most part, and they quietly were holding community meetings.
I was thinking about my community that I actually live in not just the blind community, but the community of Baltimore City, which is being affected. And I knew about a group that I been in connection with for many years, I would go there and talk to them.
TR:
The organization is called BDS healthy aging networks. Marguerite built a relationship with them over the years where she along with a group of members from her chapter would speak to the organization as a way to allow people to see into the community.
Marguerite:
I knew that they had gone virtual, I got in touch with the woman who runs it, Betsy Simon, and told her what I’d like to do. So she invited me to the call to share with the partners that met with her and the partners were different community agencies, city and state agencies, as well as community organizations and community leaders. And ask them to participate in the testimonies as well.
Well, I’m not exactly sure what happened. But that idea of dropping the bus service was discontinued.
TR:
There’s real power in organizing with those who share a mutual interest.
Marguerite continued attending the meetings of the network – which extends out to many different agencies and organizations. Their main mandate is advocating for older adults in the city.
They recently showed their ability to organize and get things done after the city made a failed attempt to help vaccinate older adults for Covid 19.
Marguerite:
One of the ladies in our group had been writing directly to the CVS is in the Walgreens saying, Look, we in Baltimore City want vaccinations and our officials are not helping us. Can you help us get vaccinated? So they were ignoring her letters and Walgreens somehow had these extra vaccinations, like 850 of them. They went to the Baltimore City Health Department and said, Listen, we’ve got these vaccinations. We can show up on Saturday with the pharmacists. You get the people.
This was on a Tuesday, the Health Department told them no, there’s no way we can do that. It’s not enough time.
They remembered the woman in our group who had been writing to them. They did shout it out to her. And she got in touch with Betsy Simon. And she sent a call out to everybody on her list. Can we do this? And so we said, yes.
TR:
With Some quick planning and putting people into action, they got it done.
Marguerite:
Advocacy, asking for what you want. And that’s what that woman did. She kept asking for what she wanted, in the midst of them saying, No, we can’t. And the health department did not help us, they said that they couldn’t do it. And after we did it, it showed that we could.
TR:
She continues showing up to Zoom calls. Reminding organizations to make sure their materials and information is getting to the low vision and blind community. She’s actually seeing progress in this area.
Again, the advocacy work teaches her things about herself and how that can benefit others.
Marguerite:
I think that the key for me is to take what I’ve been able to get in terms of training, philosophy and skills and so forth. And just come right back into my community and be a person in the community teaching from my example.
— Music Ends
If it helps the blind community, it’s helping the rest of the community as well. Those things are created and envisioned by the blind. And so we are contributors to what the society is and what it can become.
Music begins, a bouncy upbeat Hip Hop track.
TR:
Are you socially Reidsponsible?
— Sample from Blades of Glory:
“I don’t even know what that means.
No one knows what it means. But it’s provocative.”
TR:
It’s true, no one knows what it means, not even me, I just think it sounds cool!
Cool, like the Reid My Mind Radio Giveaway happening right now on Twitter.
We started in January on Facebook. Then moved to Instagram and during the month of March we’re focusing on the final platform, Twitter.
All you have to do to be entered into the drawing is like and retweet any of the posts I tweet out related to the Reid My Mind Radio Giveaway during the month of March.
So go on over and follow @tsreid and again, like and retweet any of the posts related to the giveaway.
Our social media manager, Annie, will gather all the names at the end of the month and we will draw a winner, which we’ll announce in April.
During the next episode in March, we’ll announce the winner of the Instagram contest.
Make sure you follow ReidMyMindRadio on Facebook and Instagram
Oh, wait, that’s being socially Reidsponsible!
Now, let’s get back to the episode!
— Music ends with a bouncing base drum echoing into silence.
TR in Conversation with Marguerite:
So during your first time on the podcast, you suddenly and quite nonchalantly dropped this thing about spending some time in India?
Can you share the story of how that came about? And what you actually did in India?
Marguerite:
I went to something in Baltimore called Blind industries and services in Maryland, which is a training facility for adults and older adults who want to gain skills and be able to manage blindness.
When I finished there, the director at the time sent me an email and in the subject, it said, only two days left.
TR:
She actually discovered and read the email the next day.
That’s when she found out she had one day left to apply to the International Institute for Social Entrepreneurs. It’s in Trivandrum, which is in the southernmost part of India.
Marguerite:
I got these thrill bumps all over me when I was reading it. It just filled me up.
You had to have it in, I think that day. I’m amazed at myself that I was able to do all that and I was able to submit it. And you know, they sent back and asked for some more information, I sent it to them.
And later on, they sent me a letter and told me that I was accepted and I was going to get a full scholarship to come there.
— Music begins, a dramatic introduction that feels like an eastern vibe that opens to a rhythmic electronic dance track.
TR:
Marguerite didn’t tell anyone about applying to the program.
That is until she received her acceptance letter.
p
Coincidentally, that good news arrived near her birthday. So when her family asked what she wanted to do, she was prepared.
Marguerite:
I want to go to an Indian restaurant.
When we sat down, we were talking and eating. And When they got to wishing me a happy birthday, I told them that I wanted to share something with them and told them that I would be going to India, and they were all shocked. They were like, Who are you going with? Who are these people? Bla bla bla.
Mind you, I’m totally blind at that point. I’m going alone , I don’t know the people, whether they met them online. And so they were like, oh, no, this, this, you’re not doing that. And they had all these what ifs, and no, they were really afraid for me. But something that I learned a while back and was able to practice is when you get an idea about something that you want to do, and, and you’re trusting that it feels good inside of you. That is not the time to share it. Because you’ve heard of dream killers. And they don’t even mean to be they were very good intentioned, but they will kill your dream before it gets off the ground.
TR:
Many of us have fallen victim to or have been a Dream Killer.
Perhaps one or two bodies.
Maybe you know some real serial killers. You know, those who just throw daggers at anyone with an idea or a plan to step out and try something new.
Chances are, they don’t mean to discourage. It’s more about a fear or lack of information on they’re part.
The point is, we need to protect our dreams, like they’re our babies.
Marguerite:
You can’t share it when it’s in it’s infancy, you got to let it mature. And so that’s what I did. And when it felt solid in me, and I’d worked out my own kinks about it and realize I had no fear and no reservations. So when they came with all that they had, it didn’t sway me because I had already worked it through, and I was solid and how I felt and so I let them go through what they needed to, as I continue to get myself prepared to go.
TR:
She received the news in July and left for India in January.
Marguerite:
I stayed there for a year came back in December. It was quite an experience.
I got to work with NGO’s, Non-Government Organizations. They’re sort of like our charitable organizations.
We worked with gay and lesbian organization.
In India, as you might imagine being a, quote unquote, third world country.
homosexuality is not something that is readily accepted.
With all of the challenges that we have here in the United States, the magnitude of it there is beyond the scope of what we can expect. It’s so dangerous. But these people are so adamant about being able to live their lives out loud, that they’re risking their lives for even just saying that they belong to an organization like that.
TR:
Wherever you go in the world, marginalized groups exist. The language and faces may appear to be different but underneath it all things look familiar.
Marguerite:
In India, lots of people wanted to bleach their skin.
— Music ends with a crescendo cymbal crash
TR in Conversation with Marguerite:
For the folks who haven’t seen, they may not necessarily know that the complexion of Indians are black.
I mean, some of them might not. Right?
Marguerite:
Yes. Yes, yes. Yes. And some of them are very dark in their complexion, and they want to be they want to be white. They want to be fair skin, it’s important to them, and so they do bleaching creams. I’ve heard of people who families would make these potions, so when the woman was pregnant, she would drink these potions that would help to ensure that her child would be fair when it was born.
TR in Conversation with Marguerite:
Oh, my goodness. Drinking it? Man, woof!
TR:
To get a sense of how much of an issue this is, Marguerite shares some description of a commercial on Indian television.
Marguerite:
It was a woman in a park, she’s walking with her boyfriend. She was darker complexion. And he was fair. And he sees a, another girl in the park. And she’s fair skinned. And so he drops the arm of his darker skin girlfriend. And he dances off with this fair skinned girlfriend. The darker girl is hurt and upset.
So she gets this cream, and she uses it for a prescribed period of time. And he sees her again, and she’s fair skinned now.
So he drops the other person, and now they’re happily ever after.
TR in Conversation with Marguerite:
This was a commercial?
Marguerite:
Yeah.
TR in Conversation with Marguerite:
On regular TV?
Marguerite 46:21
Yeah, yeah.
The idea was to go and fight against the companies that were making creams. And my thing was, well, before you can fight against the company that’s making the creams. I think we need to educate the people, let’s start with the children, because they were doing it with kids as well. And they were doing it with the boys as well as the girls. And so we went into the schools, and we were talking to them about melanin and for the schools that we went to none of them knew about melanin.
TR in Conversation with Marguerite:
Do you want to break that down a little bit? It’s well, just power of melanin.
Marguerite 47:21
Melanin is such a protective coating and that a lot of things can’t even happen without a melanin protection.
I remember, way back when I was much younger, hearing and reading about first the spaceships using the idea of melanin as a protective coating on some of their vessels.
Even here in this United States, even though we have it, there’s not a whole lot of talk about melanin and how powerful it is, and how wonderful it is.
TR:
You can tell people about Melanin, about a rich history where people who look like them weren’t colonized, robbed of their resources, but ultimately, it’s about self-love.
Marguerite:
My idea. And the group that I worked with, we felt like, it was just as important for individuals to decide that they wanted to embrace who they are, right where they are, and fall in love with that before, you can start telling a company not to sell bleaching creams.
Until people are educated and can find a way to feel good about themselves. It to me is a moot point. I don’t think you can do one without the other.
TR:
This problem isn’t at all unique to India. It was a bigger thing here in the states, several islands in the Caribbean including Jamaica and the Dominican Republic.
( FILTERED VOICE:) White supremacy is a hell of a drug!
— Music begins, an inspiring ambient track that grows as it progresses.
Marguerite:
We’re not supposed to be the same. And because one group is one way and another group is a different way, does not at all indicate that you are better than or less than the next group, although we use that as our vehicle to control and manipulate and because it has worked so well. It continues to happen that way. But we can’t just throw our hands up, we have to I think, continue to help people understand that it’s okay to embrace yourself where you are.
TR:
Embracing yourself as in the color of your skin whether you’re in India, Africa, the Caribbean or here in the states. The texture of your hair, your sexuality and yes your disability.
It’s what makes adjusting to disability so challenging for many. You may not even realize how you felt about disability and that can then impact how you feel about yourself.
Marguerite:
When I became blind, I realized that I had some very negative thoughts and feelings about blind individuals that I did not realize I had. I realized that when I saw a blind person, I felt something that I didn’t bother to identify. But what I did recognize was that I was glad it was not me. And that was with any disability, or anything that wasn’t held up as a beautiful thing, by the society norms, and that even meant, the color of my skin, the texture of my hair, all of that was a part of it. And those were feelings that were held inside in secret, depending on what company I was in. And so blindness exposed me not just to the blindness, but to the other beliefs that I was holding. And what I also discovered was that I could not really know what I was holding on to, unless I had an experience that brought it out. Because I tended to think that I was who I wanted to be not able to see who I actually was being.
As an adult, I had to find my way to that. I remember having to make a decision, a literal decision, that I wanted to live as a person with blindness. It was very different from living as a person with low vision. Total blindness was a totally different experience for me! And so I had to make a decision for me!
TR:
You know this isn’t about which level of visual acuity is more challenging, right?
it’s not a competition between disabilities, in fact, it has less to do with any external factor at all.
Not confronting the question was the source of anxiety.
Marguerite:
I just remember saying to myself, I have got to make a decision about how I want to be because
the anxiety was because I did not want to be blind. But I’m blind.
I really did know that the question for me to answer was, do you want to live as a blind person, and I realized I had not made up my mind, which also contributed to the panic attacks that I was having. I was scared to know what I really thought.
that was a very traumatic time for me. And I went through that solo, because I couldn’t talk to anybody about it. And I had tried to find a counselor at one point, but I couldn’t find counselors that knew blindness from the experience. And so I didn’t trust them enough to share that.
I had done enough spiritual practices during my life, that I use the tools that I gained. And I made a decision that I did want to live. So here I am.
TR in Conversation with Marguerite:
Here you are! (Chuckles)
Marguerite:
Here I am… Yes…. (chuckles)
— Music ends into momentary silence
— Music begins, a lively up beat R & B drum opening to a happy groove.
TR in Conversation with Marguerite:
That’s right, that’s right!
Marguerite:
Yeh! (Reflectively says) Here I am!
TR in Conversation with Marguerite:
Marguerite, because of all the things you do, to advocate, coming on a podcast to share and help others, doing your thing with disability. You Ms. Marguerite are an official member of the Reid My Mind Radio family.
You was already official but I don’t know, should I make more levels of officiality?
The two share in a silly laugh.
TR:
I truly respect and appreciate Marguerite for her honesty and sharing her wisdom and insight that I just know, will be of real value to many.
In fact, check out how generous she wanted to be when I asked her to share contact information.
Marguerite:
So you can call me you can call my mobile number which is 443-271-1668
TR in Conversation with Marguerite:
Marguerite! This is on the internet. Are you sure you want to put your number out there? Laughing…
Marguerite:
Oh no, no, I guess I don’t, I guess I don’t…
They can go to the NFB page NFBMD.org.
TR:
Orr go ahead and email her and tell her how much you appreciate her valuable perspective!
Marguerite:
MWoods719 at Gmail.
TR:
I don’t think there’s anyone I’d rather have kicked off this season with more than Ms. Marguerite Woods.
Did you listen between the words?
(Filtered Voice:) Dude, I really don’t think that’s a term.
She shared valuable ideas. Some were very practical like;
suggesting we create our toolkit to manage aspects of our lives.
And others were more philosophical like;
– exploring life through blindness and other identities…
– Choosing to think about and speak in terms of what we want.
That to me is so Powerful and honestly feels important for me where I am in my life right now.
You know, let me put that into practice right now.
I want you to share this episode with at least one other person. And let them know they can follow or subscribe to the podcast, just as you did, to make sure they don’t miss any episodes.
I want you to tell them, they can do that wherever they get podcasts.
Let them know they can find transcripts and more over at ReidMyMind.com.
And of course, make sure they know , that’s R to the E I D…
— (D! And that’s me in the place to be!, Slick Rick)
Marguerite:
Like his last name!
TR in conversation with Marguerite:
Ouu! I like that!
(The two laugh)
Audio: Reid My Mind Outro
Peace!
Hide the transcript
Tags: Adjustment, Advocacy, African American, Black, Blind, Colorism, Community, India, Maryland, NFB, Philosophy, Racism, Self-Discovery, Spirituality Posted in Advocacy, African American, General | Comments Off on Doing Your Thing With Disability: Marguerite Woods – Here I Am
Add this post to Del.icio.us - Digg
Wednesday, December 15th, 2021

I first learned of Artist, Rapper, EMMY Award Winning Toni Hickman a few years ago when I did an episode on Krip Hop. I wanted to reach out and invite her onto the podcast back then, but things sometimes slip off my radar. When I learned she was a part of the song Rising Phoenix for the documentary of the same name I knew I wanted to speak with her. While in conversation with Reid My Mind Radio Alumni & Family member Cheryl Green, I wasn’t surprised to learn that the two of them were connected. Cheryl put us in touch and then, well, a lot of stuff in between, but we finally ended up in conversation
In this episode we talk about;
Toni’s history in the rap game. from her days at Suave House as Slim Goodie, her encounter with Suge Knight to her current collaboration with longtime friend Big Yo in their new group Thakur (pronounced The Cure).
We discuss her experience with disability as a Black woman, the impact on her career, winning an EMMY and so much more. Of course, we pay special attention to the valuable lessons that are applicable to anyone adjusting to disability.
This conversation took a while to actually make happen, but it’s right on time!
Show Your Support – Shop Our Store
Check it out y’all! Reid My Mind Radio now has merch! T-shirts and more on sale now! Show your support for the Flipping the Script series directly or show some love for the podcast with an Official Reid My Mind Radio t-shirt, hoodie, cap or more.
Shop now!
Getting to Know You!
We’re ready to take this podcast to the next level, but we need your help.
Please, take just a few minutes to fill out this survey.
Become Socially Reidsponsible
Reid My Mind Radio now on:
* Facebook
* Insta Gram
* tsreid on Twitter
Show some love and give us a follow!
Want to listen to this podcasts via your smart speaker?
just ask it to play the podcast Reid My Mind Radio by T.Reid on your default podcast player.
Holla Back
If you have any comments regarding this episode or any others for that matter, remember you can;
* Leave a voice mail at 570-798-7343
* Email ReidMyMindRadio at Gmail
Listen
Resources
Transcript
Show the transcript
— Music begins, a piano chord with a vibes roll leads into a upbeat groove.
TR in Conversation with Toni:
Hey, Toni, can you hear me?
Toni:
Yes!
TR in Conversation with Toni:
How you doing?
Toni:
I’m good how are you?
TR in Conversation with Toni:
I’m good
Toni:
we finally got to do the interview.
TR in Conversation with Toni:
yeah yeah I’m scared to say that, I’m gonna wait till it’s done (Laughs)
Toni:
I was just I had something else that came…
TR in Conversation with Toni:
Uh oh!I’m losing your connection I don’t know if you can hear me but I can’t hear you Can hear me but I can’t hear you.
Okay it says you’re unmuted, it says your video is on, try turning off your video and let’s see if that saves some bandwidth
Toni:
Thomas
TR in Conversation with Toni:
There you go.
TR:
Things happen when there supposed to
For example, maybe this is your first time listening to the podcast.
I don’t know what brought you here, but I’m glad you made it.
My name is Thomas Reid and I’m the host and producer of this podcast.
We’re in the midst of the Young Gifted Black & Disabled series.
This was inspired by an episode of the same name I produced last year with my brother AJ Murray.
I really encourage y’all to check that out.
While that episode along with close to 150 others are in the past, they’re not old or stale.
We add a bit of seasoning for flavor, but there’s no preservatives.
The dishes we serve up here are always fresh and good for your mind and body.
So you see, you’re right on time!
Audio: Reid My Mind Theme Music
Let’s get it!
Toni:
My name is Tony Hickman. I am a tall slim, melanin dominant black girl with long dreadlocks and yeah I am excited about this interview.
TR in Conversation with Toni:
So now I usually don’t start with this question, but where were you born Tony?
Toni:
I was born in New York City.
TR in Conversation with Toni:
Can you be specific?
Toni:
I was born in the Bronx,
TR in Conversation with Toni:
Yeh! say that one more time for me…
Toni:
I was born in the Boogie Down Bronx. Morisanna Hospital. I was raised in New Orleans Louisiana.
TR in Conversation with Toni:
No doubt you can’t hide that.
TR:
Over the year’s, Toni’s been known under some other names.
Toni:
when I was on Suave House, which is a record label where I have done gold and platinum musical performances, my rap name used to be Slim Goodie.
Everybody in the industry that knows me they still call me Slim like everybody call me Slim so it’s crazy if I would have got fat right they’ll still call me Slim.
TR:
That really does sort of make you think about the importance of a name. It can be really about who you are at one particular moment in time.
Yet, it can also be about who you are meant to be.
Toni:
A lot of people like in the conscious community call me Alika. Some people in the conscious community come up with other names for themselves and I think that’s okay too because sometimes we have to define who we want to be in this world and When we’re given our government names it’s not always where we are you know, so I get it but yeah, Alika is actually my real middle name.
My dad gave me Tony and my mom gave me Alika.
Alika means beautiful warrior.
TR:
On social she’s known as the Real Ms. Toni Hickman. Perhaps there is an impostor out there, but I’m thinking it’s more like representing her ability to share her truth. Keeping it real! Namean!
An early sign of that is in her poetry which she began at 9 years old.
Toni:
I had went through a lot of things with my mom and my father’s splitting up and so I would write this poetry to help me. It was philosophy, even at a young age.
It was like, I wish I was a bird so that I could fly away, but I am just a child, so therefore, I have to stay.
TR:
When her school put on a talent show, Toni teamed up with some friends and started rapping.
Toni:
We was the Bally Trooper Adidas group, and we had a beatboxer and my home girl and me. And we won the talent show. And from there, I was just like, Oh, yeah, this is what I’m supposed to be doing right here.
TR:
That first performance was not really indicative of how Toni wanted to rap.
Her partner wrote the rhyme. Which was about Now & Laters.
Toni:
I was just like, Okay, I need to be doing this all the time. But I can write my own raps. And from there, I always wrote my own lyrics.
MC Lyte, Salt N Peppa. That was like my big influences at that time as far as female hip hop. But honestly, my reality was a little bit different.
I grew up kind of, like, always looking out for myself. I’ve been on my own since I was 15. I’ve been doing music professionally since 16.
TR:
Writers of any sort are encouraged to write about what they know. Toni wrote about her environment.
Toni:
My environment was watching people die, like right in front of my face, people getting shot and killed.
And so I started rapping on the negative side of that, like, I was T Capone, I was Al Capone’s daughter.
I was the gangsta hip hop. And I gradually started going into stories of like, why this wasn’t a good choice, or why even being in that environment can get you stuck.
TR:
With a rap name like T Capone, well you’d assume not all of the stories were positive.
Toni:
It wasn’t just about killing. I can only remember one song I did that and they went platinum, but it was about killing. And that didn’t sit well with me. Like, during the process, it was dope, the song was called armed robbery. But then afterwards, when I listened to it, like my soul was just like, no, Toni , this is not your path, you have to correct and that’s something that happens in life, like, you know, we don’t come in this world knowing exactly what we need to do or what direction we need to go. And it’s only from these harsh lessons, that we get to learn our true purpose.
TR:
Telling stories with messages, was her thing.
Toni:
Like Scarface or Tupac. They used to actually call me a female Tupac because that’s really kind of how I related to the world.
And then even after that, I started going into Slim Goody.
Slim Goodie had messages in her music and that was very important for me Even then, even though I didn’t even know my whole way. I just knew that it had to have something that somebody could learn from.
TR in Conversation with Toni:
Being compared to like a Tupac and Scarface, where do you think you got that? Were you reading as well as writing at a young age?
Toni:
My mother raised me as a reader. She was putting books in my face, like, As a Man Thinketh”, “Back to Eden”.
My mother was like this person who everybody would come to if they were sick or had an issue, and my mother would be the one to give them a solution. Like, she was known as the medicine woman in the church.
Now I do that as well.
TR:
During the time she was rapping under the name Slim Goodie,
Suave House moved Toni from New Orleans to Atlanta.
The record label however was experiencing their own change as their premiere artists 8 Ball and MJG were leaving the label.
Toni:
When you put your project in somebody else’s hands, and it’s no fault of anyone, but if you put your project in somebody else’s hands, you have to wait on their hand and move right. So if something happens with their hand, their hand get cut off or something like that thing, you’re stuck because you’ve put your dreams in somebody else’s hands. That situation happened to me. And so I eventually got out of the label legally, and started doing my own thing and started working with big artists like Jagged Edge, Petey Pablo
TR:
That got the attention of the infamous Suge Knight.
— Audio from the 1995 Source Awards…
“Any artist out there want to be an artist, want to stay a star, don’t want to have to worry about the Executive Producer trying to be all in the videos, all on a record, dancing, come to Death Row.” Suge Knight
TR:
Yes, that Suge Knight, from Death Row Records.
He liked what he heard and reached out to Toni.
Of course she was aware of his reputation which includes
allegedly hanging rapper Vanilla Ice off a balcony during let’s say contract negotiations.
Toni:
He called my phone personally right That was still huge for me that I was on the phone with him.
He was like yeah, I want to fly you out to Cali and you know we’re gonna do this because I love this song. This is a dope song.
Then three days later, I had my first brain aneurysm.
When I look back at it now its like, you definitely was not supposed to go out there.
TR:
Toni recovered from that aneurysm and moved on with her career.
About a year later, while celebrating the release of a new project back home in New Orleans, she felt ill.
It was another aneurysm.
Toni:
But this one actually burst in my head. Most people die when that happens. But they rushed me to the hospital. I had to wait for my mother to come from Atlanta and give them permission to operate on me. They told her I had a 5050 chance of living or dying.
When she gave them permission, they went in my head and started operating. But while they were in my head, I had a stroke on the table because my body went into shock, and it pushed my pressure up.
When I came to, which was a minute, I think I was out for a couple of days. But when I came to I couldn’t speak. And I couldn’t spell water. I couldn’t say water. But I noticed what I wanted.
TR:
She wanted to live! Even if she didn’t realize it at that time.
Eventually she was moved to a rehab facility in Louisiana.
Toni:
I had this song playing in my head, (Toni sings …)feels like I’m hopeless.
And every time I was thinking in my head, I just burst out crying because that’s what I felt. I just felt hopeless. Like, I had no hope. And I have been doing music all my life. And so I was like, What am I doing now?
Okay, now, the industry definitely is not focused on people with disabilities. And so, like, What am I supposed to do?
— Music begins, an eerie menacing slow Hip Hopbeat
One of my nurses came in and she said, Well, what you need to ask is, how did you have two brain aneurysms and a stroke and you’re still alive?
So that’s the real question you need to ask yourself. That stuck with me for the rest of my life.
TR:
Toni describes herself as very stubborn during this period.
Toni:
I had this energy on me that was like, I’ll be damned, that’s the only way I can describe it.
I just never gave up on myself. I had to either be hopeless, or I’ll be damned. And I chose the I’ll be damned.
I just had this energy where I was like, this cannot be my reality, I have so much more in me, this can’t be it.
I have so much more in me, like, just can’t be it.
TR:
She made her own rules.
Like refusing to remain in bed even when she couldn’t walk.
Eventually she began walking with a cane and was transferred to the Shepperd Center in Atlanta.
A rehabilitation facility that helps young people with brain injury.
Toni:
There were people in there and they were just like giver uppers, and I hate that that can happen. But some people when they fall or something has happened seemed to defeat them, they travel in that energy, they choose to stay in that energy of just being defeated, instead of fighting. And for me, I just didn’t see the being defeated, being my option, I wanted to fight for my life.
TR:
The physical, that was just part of her fight.
Toni:
I had to deal with the outside world and walking differently and not being able to wear heels or being self conscious about what I look like, and being judged by what I look like.
Before I was this six foot model type looking girl.
— Music Begins, a bouncy up-tempo, high energy Hip Hop beat!
“I got a little a, a little something I want to lay on y’all.” !”
TR:
Hey did you know; Reid My Mind Radio, is on Facebook and Insta Gram. We’re going to do some things on these platforms so stay tuned. You can find us on both FB and IG @ReidMyMindRadio.
On Twitter I’m at tsreid
Don’t forget you can also ask your smart device to play Reid My MindRadio by T.Reid on your preferred podcast provider.
Make sure you say that full statement including, T.Reid.
— A hint of “This Christmas” by Donny Hathaway
The holidays are among us. If you’re looking for a way to give yourself a present while supporting what I’m hoping is your favorite podcast… one of your favorites? A podcast you’re kinda diggin’?
Anyway, go on over to ReidMyMind.com and hit that link that says Shop.
Purchase a shirt, hoodie or any item to show your rockin’ with Reid My Mind Radio! Or maybe you want to show your support for Flipping the Script on Audio Description. or of course, Young Gifted Black & Disabled.
All support is truly appreciated.
You can find Reid My Mind Radio wherever you get your podcasts. That’s the perfect place to follow or subscribe so you don’t miss an episode.
Tell a friend to do the same. Let them also know that we have transcripts and more at ReidMyMind.com. Just make sure you tell them; That’s R to the E I D
“D” and that’s me in the place to be. Slick Rick) Like my last name.
Now back to the episode. ———-
— DJ Scratch leads into
— Crippled Pretty, by Toni Hickman
Lyrics:
I was kind of wishing I was dead
They shaved off all my hair to do surgery on my head
And then my eyes turned dark and my world got black
I never thought my life would take a turn like that
My world is Cripple Pretty
I’ve seen the sun and…
I’ve seen the rain and…
Life is beautiful
I can’t complain, man
… song continues under the conversation.
TR:
Toni didn’t want to be seen in public
Toni:
A friend of mine, he was just like you done lost your confidence What happened? And then I was like, I didn’t lose anything. I’m telling him that but he was right. I hated that he was able to identify that with me that pissed me off. I’m supposed to hide it.
— Music begins, a melancholy ambient piano melody
I had to get all my hair shaved off during this process.
I went and got braids in my hair so I can just feel beautiful.
One day I was in the mirror and I was taking the braids out. And I had this energy that came over me, and it was just like, I love you. And so I’m looking in the mirror, and I’m crying to myself. And I’m just I love you, I love you just how you are like, I love you. And even to think about it. Now it’s bringing tears to my eyes, because that was the moment when I decided that I had to love myself internally. Before I can really reflect that in the world. You know?
TR:
Yeh, I do.
In fact, I think a lot of us do.
What I think could be helpful is figuring out how to access that energy.
Toni:
I think it’s in all of us, but we have to tap into it.
When I was in the mirror, and I was crying to myself, and I had to tell myself, I love myself. That was definitely God energy. And that was definitely learning what self love really means. Because everybody talks about you got to do the self care and the self love, but self love really comes in when you are down at your bottom. And you can’t even figure your way out and you have to find your way of understanding what self love means. That was my turning point.
TR:
She took the braids out.
Toni:
I put my two palm palms in my head naturally. And I was like, Look, this is me, you gonna have to accept me as is. I started going to the gym, the local YMCA in Atlanta. And I was working on myself so hard that they put me on the wall is like just being so determined to grow and succeed.
I don’t care what your issue is. You feeling like you need to go Get your nails and your toes done, whatever makes you feel beautiful. It’s okay to, to go in that energy because that inspires the same energy that makes you feel that self care and this self love.
I do it because it makes me feel better not for anybody else. I do it for me.
TR:
While she says her gate is off, Toni became strong enough where she no longer needed a cane and was able to return to the studio.
Unrelated to disability, today she chooses to record from home.
Yet we know, disability can introduce some change into our lives.
Toni:
Oh everything changes. As a melanin dominant person, or black person in our world, there have been so many ways to see how, as black people, we have been discriminated against, but disability takes it to a whole other level.
I’m not saying that it takes away from discrimination as black because if you’re black and disabled, like that’s a double whammy.
What I realized is this community of people with disabilities First off, is so strong, like there’s so many strong spirits , disabled activists.
I was kind of just trying to figure out my way, and Krip Hop came to me.
TR:
The Krip Hop Nation was started by Leroy Moore and Keith Jones in 2007.
It’s a worldwide association of artists with disabilities campaigning for equality through concerts, tours, workshops and much more.
Leroy reached out to Toni on the early social media app, My Space.
Toni:
When Leroy came to me, I was just like, yes. I have spoken at different events with Leroy. We’ve just done a lot of great things.
TR in Conversation with Toni:
There are many people within the world of hip hop who have a disability, but they don’t all identify it as such. So I’m sure Leroy has approached some people. And their reaction was probably not like yours, right? Like, no, I’m not disabled, you know what I’m saying? So what is it? How did you come to identify as disabled?
Toni:
I’m not gonna hide it. That was one of the things of like, self love. I can’t hide what has happened. I didn’t feel like I needed to, like, I felt like I needed to speak for this community versus hide.
I know rappers in the industry right now. They’ve never shine light on it, because they know how the industry looks at that. And it’s unfortunate, because this is something that needs the light. The disability community needs inclusion.
TR in Conversation with Toni:
Do you think that can change within hip hop, specifically?
Toni:’
I’m not sure.
At first, my goal was to be a part of the industry without being like, an activist.
I just wanted to be that slim girl that was rapping. But now my goal is not to be a part of them, my goal is to be a part of change. And even if my voice can redirect, to change them in some kind of way, then I’ve still fulfilled my purpose. Because at the end of the day, all Hip Hop artists have some form of duty.
I told you, I started with the poetry. And it’s always been philosophical. So we’re channeled,
Nipsey Hussle talks about this too. We get this energy that comes through us, we don’t know where these lyrics come from. They come through us and that is how we express. Those that channeling for negative, that is not helping our environment, but if we choose to channel and help our environment, then we are really being what we’re supposed to be on this earth.
TR:
There’s real purpose in sharing stories about disability and our experiences through
lyrics, musicianship, dance, art!
So it’s really great to se Toni and fellow Krip Hop artists
George Tragic and co-founder Keith Jones, receive recognition for their work
in the Netflix documentary Rising Phoenix.
Toni:
The documentary is about the Paralympics, and all of these amazing people who have stories.
it is a story of just pure, I’ll be damned. I’m gonna do this.
TR:
Daniel Pemberton, the music director for the film wanted to make sure the project included disabled musicians.
That first just meant hiring disabled orchestral instrumentalist.
Toni:
Then he decided that he wants to have like, a hip hop song attached. And so they got in touch with Leroy, who is the founder of crip, hop, and Leroy got in touch with us. And they kind of wanted me to add the energy of the singing into it, because they had listened to our projects.
I speak from the heart always, and I work on people always being able to feel that emotion that I have and so they wanted me to add the energy of the song.
I had more than what was there. And then the director came back, he’s like, Well, you know, maybe we take this off and just use this. And that’s how we ended up with the hook.
I’m a Rising Phoenix, I’ll rise above you.
— Song mixes in with the lyrics…
Toni:
And that is pretty much the story of what you have to do when you have a disability, you have to gain this, I’ll be damned attitude, and fight for your equality.
TR:
Not only is Toni singing the hook, but she drops a verse as well.
Toni:
I was just happy to be a part of the movie because just that alone was so powerful.
We had no idea that it was gonna win an EMMY.
I was just floored.
— News footage…
“A lot of people online are criticizing the award show with the hash tag #EMMYsSoWhite, trending on Twitter. No Black actors won big awards despite a record number being nominated. 49 by the way.”
Toni:
This goes back to that inclusion thing. This song was so amazing that it won an EMMY.
That’s the statement that I want to make because, I’m Black.
TR in conversation with Toni:
Mm! Yeh!
Toni:
We won because of this song so don’t say that we were not include it you need to think about us you need to understand that we are included
TR in conversation with Toni:
Yeh, that’s that “well they’re not Black they’re disabled.”
Toni:
That’s what i’m talking about!
TR:
Sometimes y’all, when you’re Black and disabled, It feels like well, am I not Black enough for ya!
— Sample from Billy Paul “Am I Black Enough”
TR:
Despite all that, Toni has an EMMY. And naturally, it’s in her studio.
Toni:
it’s beautiful. It’s absolutely beautiful.
TR:
Toni’s working on a new project right now!
Thakur>
Toni:
Thakur is definitely a project that I must confess is confrontational. But it is focused on I guess, bringing in the deep thinkers and, and also helping people understand that, like, in the process of us looking outside of ourselves, for someone to save us, we also have to look internally and tap into our God’s self and work on saving ourselves.
TR in Conversation with Toni:
What’s the controversy though?
Toni:
Well, the controversy, I mean, even in Christianity, we’ve been taught to pray to a white God, and look for white gods to save us.
And so in that process, we have given away all of our power. For us to access who we truly need to be, we have to redirect how we look at God.
God is everywhere. God is in the trees, the grass. God is energy. But we also manifest that energy. And so we have to also just see how looking at a white God, who has also been the same image as our slave master has damaged our psyche.
TR:
The Cure , spelled T H A K U R is Toni’s new group.
Toni:
It’s just me and my homeboy.
I was doing a lot of big things before I went in the hospital. And he was one of the people that just kind of came in and was there before and after. He’s a really dope artist, he’s a dope producer. But also a person that has just been influencing me to just keep going regardless of the standards that the music industry tries to put on artists, like age, disability or whatever. He was one of those people that just was always in my corner and encouraging me to you know, live my greatest life.
He’s Big Yo!
TR in Conversation with Toni:
When we’re talking about disability. I love to hear about the friends in the family who really were holding people down, before and after. I always feel like they deserve a real special shout out. So shout out Big Yo, for real!
Toni:
Yes, shout out to Big Yo!
TR:
You can check out Thakur’s first release titled Telepathy right now on YouTube.
By the time this episode is released, their second single Daylight should be available and an album soon to follow.
Toni:
it’s just really to enlighten and that’s what my whole journey has been about. Understanding my own truth while I can relay My message to others.
TR:
Krip Hop and rap in general is just one vehicle Toni uses to improve her environment through positive change.
Toni:
I started speaking for the American Heart Association, and this other organization called young stroke. And young stroke focuses on people with brain injury, aneurisms, that happen at a young age.
TR:
She writes books.
Toni:
The doctors told me to keep chemicals out of my hair for at least two years. And so when I researched why I found that you know, a lot of these chemicals can lead to cancer, aneurysms, all kinds of things and we don’t even think about it because as melanin dominant people, for so long we have just tried to fit into the status quo of what America or the world in society portrays as beauty and so we’ve been putting these perms and stuff on our hair and that understanding that our roots are definitely supposed to be out and that’s what we’re supposed to wear. I wrote a book called Chemical Suicide.
TR:
She has another titled ” A Man’s Cry for Health”.
It’s a response to a lack of information and attention placed on men’s health.
Toni:
It’s hard for them to focus or even bring attention to their health issues because society makes it look like they are less than a man if you have issues or you’re weaker or something and that shouldn’t be the case we need to pay attention to our men as well.
It doesn’t just help men because it talks about all ailments that us humans have but we’ve even raised our boys to think like you never cry you’re never supposed to cry you’re never supposed to shed tears and the reality is yeah you know one of my spiritual teachers he’s like you know if we weren’t supposed to cry we wouldn’t have tear ducts.
You don’t dwell in that energy but it’s okay for men to cry. It’s okay for you to let out that emotion.
TR:
She’s even working on the story of her journey. Toni:
I started on it. And then I stopped and I started again.
It’s my book. Just everything that I have been through and going through the changes of loving myself
My goal is to eventually get it turned into a movie or a series.
TR:
I’ll spare you all my audio description lecture and my selfless pitch to narrate.
Music, poetry, writing, Toni’s about creating.
Toni:
I paint, I’m constantly working on stuff just trying to see where I’m supposed to be. You know my purpose.
TR:
It’s why she shares the lessons she continues to learn throughout her journey. What she calls Alika Lessons.
Toni:
The Alika lessons can vary.
I don’t really think about direction. I just get on there with lessons that I constantly learn to help me grow. And I understand that whatever can help me grow is probably going to help somebody else.
TR:
The content she shares on Facebook, Instagram and YouTube isn’t tailored to any specific identity.
However, I think it does center the experiences of women.
And fellas, you may want to listen to learn a thing or two.
Toni:
The importance of loving yourself, but also the importance of understanding that it is okay for you to be properly pleasured.
This is not a disabled thing. Women have a tendency to kind of Like fake an orgasm because they are not truly being pleased because their spiritual connection is not there with their partner.
They’ve just bypassed that to please their partner instead of focusing on pleasing themselves.
TR:
Pleas ing oneself begins with seeing that inner beauty.
Being comfortable and loving that person in the mirror.
That first poem she wrote as a child;
choosing to be true to herself and write meaningful honest lyrics;
healing on her terms;
embracing her disability;
All of these things, on her time.
You should take some of your time to check out Toni’s music, purchase her books and art; Visit
ToniHickman.com
Toni:
that’s T O N I H I C K M A N.com
My social media is the real Tony Hickman except for Twitter on Twitter, I’m just Tony Hickman
TR:
Oh, no, she’s never [emphasis on just ]just Toni Hickman!
She is the real Toni Hickman, which happens to be the name of her YouTube channel.
TR in Conversation with Toni:
So since I got the real Tony Hickman online not that fake imposter running around out there you know say we got no time for that fake one so since I got the real one on that I just want to let you know that because you were so open and you shared everything and when folks do that right here with the family, with the Reid My Mind Radio family we let you know that you miss real Tony Hickman are now an official member of the Reid My MindRadio family
— Airhorn!
Toni:
Happy to be a member
TR in Conversation with Toni:
I really do appreciate you and you know I’ve been looking forward to this for a while and I’m glad we finally did it Tony we got this done Congratulations, to us!
TR:
Yes, congratulations to us as we celebrate… Young Gifted Black & Disabled
Audio: Reid My Mind Outro
Peace
Hide the transcript
Tags: Adjustment, Artist, Brain Injury, Disability, Documentary, EMMY Awards, Hip-Hop, Krip-Hop, Music, Rap, Rising Phoenix, Thakur, Writing Posted in African American, Audio, General | Comments Off on Young Gifted Black & Disabled – Right On Time with Toni Hickman
Add this post to Del.icio.us - Digg
Wednesday, November 10th, 2021
Jeanetta Price is an advocate, writer, spoken word artist and the CEO of Blind Girl Magic. She’s using her talents and experience to reach out to women adjusting to vision loss.

I can’t think of a better way to kick-off this final season of 2021 than with a bit of magic! Not that hocus pocus stuff. Rather the kind of magic that we all possess somewhere inside
In this episode, we’re taken on a magical journey that includes some familiar experiences, unexpected turns, and some passionate spoken word poetry.
I’m not a magician, but today, please allow me to show you one of my hidden talents; I can Reid your mind!
Show Your Support – Shop Our Store
Check it out y’all! Reid My Mind Radio now has merch!
T-shirts and more on sale now!
Show your support for the Flipping the Script series directly or show some love for the podcast with an Official Reid My Mind Radio t-shirt, hoodie, cap or more.
Shop now!
Getting to Know You!
We’re ready to take this podcast to the next level, but we need your help.
Please, take just a few minutes to fill out this survey.
Become Socially Reidsponsible
Reid My Mind Radio now on:
* Facebook
* Insta Gram
* sreid on Twitter
Show some love and give us a follow!
Want to listen to this podcasts via your smart speaker?
just ask it to play the podcast Reid My Mind Radio by T.Reid on your default podcast player.
Holla Back
If you have any comments regarding this episode or any others for that matter, remember you can;
* Leave a voice mail at 570-798-7343
* Email ReidMyMindRadio at Gmail
Listen
Resources
Visit Blind Girl Magic on:
Transcript
Show the transcript
TR:
Greetings Reid My Mind Radio Family!
Welcome back to the final series of 2021. We call this one: Young, Gifted, Black and Disabled.
Shout out to my brother AJ Murray who co-hosted and produced an episode with me last year with that same title. It is the inspiration for this series.
Young: Well, that’s relative. It’s up to each of us to define how we feel.
My maturity level has probably never passed 5 years old. I’m extremely silly, y’all!
I’ve been working on the gifted part since the other areas are undeniable. I’d like to share with you today and let you judge my progress.
I’ve been enhancing my own ability to read minds. I know, it makes sense right, Reid my mind. Now, I’ll attempt to read yours.
But first, I need your full attention.
If you’re walking on a treadmill, don’t stop, I don’t want to be your excuse. Just listen carefully and follow along.
Choose a number between 1 and 10.
Now multiply that number by 2. I’ll wait! Come on y’all I shouldn’t have to wait this long.
Again, choose a number between 1 and 10 and then multiply it by 2.
Ok, add 8 to that number. That’s right, 8.
Now, I need you to divide that number by 2.
Ok, you with me?
Subtract your original number from that number.
Ok, Braille users should get this part quickly, take the corresponding letter from the alphabet where A is equal to 1. B is 2 and so on.
Now think of a country that starts with that letter.
Now take the next letter in that country and think of an animal that starts with that letter. What color is that animal?
Now just say, out loud, “Reid My Mind Radio is my favorite podcast!”
Got it, You are thinking of a gray elephant!
If I got it right, well you need to show a brother some love. Head on over to ReidMyMind.com and hit that link that says survey. It only takes a few minutes. Or hit that link that says Shop and get yourself some of our cool Reid My Mind Radio inspired merch.
Or give us a shout out on social media. @tsreid on Twitter and check us out on InstaGram at ReidMyMindRadio.
Ladies and gentlemen, my name is Thomas Reid. I’m your host and producer and I’m really not a magician. But we are about to hit you with some magic!
AbraCadabra baby!
— Reid My Mind Radio Theme Music —
Jeanetta:
I am Jeanetta Mary Alice Price, founder and CEO of Blind Girl Magic.
I am a chocolate voluptuous sister with a big ol curly Chaka Khan looking black wig that really compliments my outfit, which is a black dress.
It’s a little, but I guess we don’t need to know that. It goes down to my knees.
TR in Conversation with Jeanetta:
Alright! That was a very nice image description. That Chaka Khan’ thing, that paints an image for somebody who knows what Chaka Khan look like.
— “Chaka Khan… From “I Feel for You”–
TR:
Chaka Khan represents a strong, confident, proud Black woman. In fact, she said she’s every woman, and it’s all in her.
— “Woh, woh!” Chaka Khan, “I’m Every Woman” —
Confidence we know can be tested. Blindness, disability that’s like a graduate level exam.
Jeanetta: 02:02
At the age of 25, I began to lose sight due to aggressive glaucoma and also Cornea disease.
After the cornea transplant, the glaucoma became uncontrollable. So glaucoma is the primary cause of me losing sight.
TR:
The causes of blindness are unique to everyone, but there are some common reactions: like isolation.
Jeanetta:
When you isolate yourself, then, you know you allow the negative thoughts. A lot of the misconceptions just begin to take over.
I lost my fiance, but finding out losing him was a game. So that was because he was not my husband. But we was engaged and this is what I said.
I was having my procedures back to back. And I was like, Oh, I’m going down the aisle as no Blind woman, who does that? That’s how naive I was about blindness.
We bought our home. And I just kept pushing away and back cuz I was like, No, I can’t do this. But it took for me to really walk away from this situation to begin the healing process.
TR in Conversation with Jeanetta:
Did you have any sort of experience with blindness and disability?
Jeanetta:
You never know when you’re looking at your destiny. When I was younger, like say, junior high school. There was a blind man in my community. I used to see him walking with his white cane.
I recall being on a school bus, sometimes just staring at this man. He was independent. But when it came to younger, blind women, I’m 25 I felt like I was at the prime of my life. I didn’t see that. I’m from a small community, Beaumont, Texas about an hour and a half away from Houston, Texas.
TR:
Of course blind skills training is crucial, but one of the most important aspects of adjusting to blindness is meeting the people like you or those you can relate to who have similar experiences.
Jeanetta:
One of my professors introduced me to the Federation. And I went out for a scholarship. I did not receive the scholarship. But I did gain a community. And I knew I wasn’t alone. So that was the game changer.
I was using my resources with division of blind services locally but to be able to begin to network and build sisterhood with other blind sisters. That was priceless for me. Because I knew if they can do it, then I can do it as well.
TR in Conversation with Jeanetta:
How’d you find them? Other blind sisters?
Jeanetta:
I went to my first national convention, with the National Federation of the Blind. It was in Texas at the time in 2012.
I never seen that many blind people in my life.
I don’t do dogs. I’d just never seen blind people, and they moved so fast. And they was a little rude too. They would run you over! I’d tell anybody, it’ll make you gain blind skills, because you have to protect yourself.
I begin to just go to the different seminars. They had a talent show. And I was like, I don’t do talent shows, but they asked me to do a poem, and I did.
Once I became open, then I began to meet other blind people
I believe in networking, and the Federation allowed me to meet other blind people my age and people that I could connect with as well.
I love networking with my blind brothers and sisters. I believe it’s priceless. Because if there’s something I don’t know, then I can tap into one of my resources, and they can definitely help me out.
TR:
When we talk about adjusting to blindness and other disabilities, so much of the conversation focuses on learning to accept help. It can take some time to recognize the other side of that coin. That is, you too, as a person with a disability, have a lot to offer others.
But after all, it’s called an adjustment process, because it takes time.
Jeanetta:
From 25 to 29, I suffered with severe depression.
Everything that I’ve always associated blindness with, like losing my job, just not able to drive, everything was negative. I didn’t want anything to do with blindness.
Long as you’re in denial, your healing cannot start.
I’m a writer, I didn’t write from 25 to 29. I didn’t pick up a pen. I didn’t do anything. I was angry. I was bitter. I was non productive.
TR:
That desire to write and create seems to be a part of Jeanetta’s identity.
Jeanetta: 17:14
My fifth grade teacher actually told me I had a gift from God. She placed me in theater arts when I was in sixth grade.
Everybody in class, they used to say she don’t really read, she reads! (Strong emphasis on the latter “reads”)
When it comes to expressing myself, I’ve always been very vocal, very bold.
Ever since then, not only did my school embrace me, my church, my family, everybody embraced my gift.
TR:
An obvious challenge for a writer new to blindness is access.
Jeanetta:
I use all tools.
I’m on my computer if the spirit Hits me, two or three o’clock in the morning, I’m on my phone, I do voice audio.
Sometimes I get up real early, in the morning that’s a time where I love to write and I just pull up my laptop. Sometimes my Victor Reader Stream, you know, it’s whatever I have my hands on at that time will serve as my tool of writing.
I tell people, whatever your style of writing is, just embrace it. Before I became knowledgeable of different tools I used to just get a sharpie. But even though I really couldn’t see, I was still releasing what I was feeling. That was my way out.
As I begin to just really grow in my blindness, then here come the poetry, where now I can write from a healing place.
TR:
Notice how for Jeanetta the act of writing soon after blindness wasn’t really about editing her own words as much as it was an opportunity to purge some heavy emotions.
Her passion for writing was obviously strong enough where she wasn’t deterred from finding new ways. Proving when it comes to the art it’s just never really about the tool.
Jeanetta:
I was always a paper queen. I wrote everything. It was definitely hard. But once you accept what you’re going through, then you start finding ways.
I was like, Okay, well, I can’t do this. But what can I do? So I stopped focusing on the I can’t and the I can’ts became my best friend. I never forget that same fifth grade teacher. Miss Maduro, we used to call her Miss Mad when we worked her nerve. She said she gave us those 10 two letter words if it is to be it is up to me.
As I began to lose sight, I thought about my fifth grade teacher so much. And how she really changed my life because she helped me find my purpose.
TR:
That ability to accept what you’re going through is so important to really understand the challenge. A very common experience is to blame blindness. Therefore it’s natural to reject any association with it.
Jeanetta:
I don’t know if they thought it was a compliment. And maybe they’ve done this to you before.
“Are you blind? You don’t look blind!” Okay, what does blindness look like?
So when people would tell me, Are you blind, like, No, I’m not blind. But then, when I began to embrace my blindness, I begin to just walk in my purpose in my truth, and I knew all the time that blindness is a mindset.
TR:
I think we should really hear Jeanetta express how she feels, in her way.
Jeanetta:
Are you blind?
That’s the question at hand. Before they even shake my hand. The only thing that they see for sure is not me, of course, is my b l i n d. Standing bold and beautiful as I tap across the room shoreline and with a burst of confidence.
Excuse me, ma’am. You don’t look blind? Well, could you please explain to me how blindness look? See, blindness is not the presenting problem. The lack of knowledge and misconceptions of blindness serve as society blindfolds. Low expectations, create social barriers that prevent us from reaching our goals.
Excuse me, ma’am? Why do you walk with that stick? That is the question. Correction. This is not nor would it ever be a stick. It’s my cane. And in the Blind community, we name our cane. So please, show some love for my bestie. She never leave my side. And a matter of fact, she’s my eyes. I walk with faith into a world of possibilities. Believing that I can tap into my vision. Faith that detects roadblocks allowing me to overcome life obstacles, change direction and discover the impossible.
Excuse me, ma’am. Are you blind? That is the question at hand before they even shake my hand. Are you blind? Yes. Once I finally said it with no shame I took back my name is Jeanetta Price and I am blind. That’s when I realized that the question all this time was not for me. But for you who have sight but no vision. Are you blind?
— Music begins – an energetic, upbeat bouncy Hip Hop beat–
— Sample: “: Now wait a minute” “Shout”, The Isley Brothers–
TR:
Hey did you know;
Reid My Mind Radio, is now on Facebook and InstaGram.
We’re going to do some things on these platforms so stay tuned.
You can find us on each platform @ReidMyMindRadio.
Don’t forget you can also ask your smart device to play
ReidMyMindRadio by T.Reid on your
preferred podcast provider.
Make sure you say that full statement including, T.Reid.
Finally, you know we’re on most podcast platforms so why not just follow or subscribe there.
That way, you’ll never miss an episode.
Tell a friend to do the same. Let them also know that we have transcripts and more at ReidMyMind.com. Now you’re already family so you know, that’s R to the E I D!
(“D” and that’s me in the place to be. Slick Rick)
Like my last name.
Now back to the episode.
— Music comes to a slow end.–
TR in Conversation with Jeanetta:
So tell me what is Blind girl magic?
Jeanetta:
Oh, I thought you’d never ask? (Spoken in an ultra innocent tone with a Southern twang!)
TR in Conversation with Jeanetta:
(A very hearty laugh in recognition of her surprised response!)
TR:
That right there is a part of Blind Girl Magic. It’s subtle, but not really!
Like her eye catching fashionable t-shirts.
Jeanetta:
My last shirt was in May, my mother’s day edition. It said “I got it from my mama”
It’s A beautiful teal turquoise shirt with a shimmery I. The M, one of the legs was the white cane. And the letters were shimmery and purple. And it was like Mama was big. I sold over 200 shirts all over the world.
Blind Girl magic is for everybody. Not only do I rock Blind Girl Magic, my niece’s, my co-workers. It’s not just a blind thing, it’s a movement.
TR:
A movement that’s about starting conversations.
Jeanetta:
Many people tell me how when they out and about in the community and they rock in Blind Girl Magic it’s an eye catcher, because the shirts are beautiful. We are beautiful.
We don’t have to force feed people when we want to share about blindness. But if we rockin’ Blind Girl Magic gear, and they looking at all this like is that a white cane?Yeah, my cane is symbolic for independence and blindness. We can have those conversations and we don’t have to feel alone. I felt alone in my community.
TR:
Starting conversations not only through random encounters, but
by partnering with peers and hosting events within our community that embrace and highlight blindness.
Like one titled I Am Black History.
Jeanetta:
It was a total of 20 blind and sighted Individuals which did monologues. Each monologues were like five minutes. And each person was able to pick somebody in the past or present in history. At the end of that monologue, they flipped it. And they began to say, I am black history and began to share about themselves. We are history makers as well.
So many times we don’t acknowledge I know, I’m bad at it, you know, people like, “Jeanetta, I didn’t even know you had a master’s in counseling, or I didn’t know you did, you know. So many times, we don’t really acknowledge our greatness.
TR:
Part of Jeanetta’s greatness is using her talents and experience to help those who as she mentioned earlier feel alone as a result of blindness.
Blind Girl Magic offers workshops that provide an opportunity to explore the inner emotions through words. It’s called the Write to Heal.
Jeanetta:
That’s W R I T E.
I believe in the power of writing. God poured in me that there’s healing in your words, not just for you, but for others as well.
What we have is a line up of poets. So I’ll have some of my poetic Blind sisters with me. We’ll perform, we’ll share our truth. And because we want to be vulnerable, so people can feel comfortable and share their truth.
People think, Oh, she got this “S” on her chest. And they don’t even have a clue of some of the things that I went through. I’ve been there. And every day is healing for me.
TR:
After performances and Q&A, participants are encouraged to take about 30 minutes to write.
Jeanetta:
Maybe 20 minutes to write and I’m gonna put a little heat on them. I don’t want them to think about it. I want them to write about it. Because if you have too much time to think then you might try to change some things and just allow it to flow. And so, afterwards, if those who participated, they want to recite the spoken word they can, but sometimes it’s personal. I respect that too.
We can also encourage them and then you know that you’re not alone.
TR:
These workshops aren’t just for those experiencing blindness.
Jeanetta:
I’ve worked as a behavior specialist for like, four years. My Master’s is in clinical mental health counseling. Writing was a way that I was able to help my students to express themselves without using profanity and end up being suspended from school.
I used to do the Write to Heal seminars. I made them write. They say, “Miss Price we write more here than we write in English.”
One of my most recent was for a school in New Jersey. I did the Write to Heal seminar for the administrators and the teachers.
If I have a teacher that’s real with me and just sharing, you know, not afraid to be open as well then they respect that as well. You know, so more of your kids are coming to talk to you.
TR:
Jeanetta says student’s can feel when authority figures are authentic and encourages teachers and staff to recognize that.
Getting them to be vulnerable is part of accessing their authentic selves. Jeanetta was kind enough to share some of that vulnerability with the Reid My Mind Radio Family. She calls this one: My Left Eye.
Jeanetta:
My left eye left me long time ago.
My left eye is lazy. It drives me crazy, baby.
My left eye, always causing problems.
Attention seeker.
Stop sighted people in their tracks stare at the glare of my left eye.
I wish I was invisible like air.
Can you feel me?
My left eye just refuse to be a right eye.
Never following procedure, failed attempts after failed attempts.
See my left eye is clouded with insecurities.
My left eye sings the Blues clueless of the melody rocking and rolling.
My left eye has no rhythm, grove to his own beat.
My left eye left me numb to the pain of the spoken words in the curiosity of the unknown.
I should have known not to write this poem about my left eye.
As I recite I want to punch the lights out my left eye!
See, I’m not mad that you left, but it’s how you left.
No warning signs or trace of evidence in sight.
I swear my left eye left me in the darkest place, spiritually blind, my left eye.
Trust me, I tried to resuscitate my left eye performance, see people realize that I am hiding behind my designers.
Blinded by the bling, my left eye is a shady queen.
I’m taking back my crown.
My left eye do not define me.
I am a queen perfectly designed by the King.
See, my left eye is beautifully created.
Ocean blue scenery mixed with the clouds of joy.
My left eye is my testimony.
How I gained vision on my journey of losing sight.
See, my left eye is the center of attention.
Did I mention?
Today starts the shades off movement.
This is not just about me.
Let’s take our shades off together on three.
You will no longer have power over me, two.
I am perfectly designed by the King, one.
Today I removed the shades of self hate, doubt, and negative self talk.
Remove it!
Generational curses, addiction, physical and mental abuse.
Remove it!
Dream snatchers, haters, envy, jealousy.
Remove it!
Remove the mental mass and join the movement by setting yourself free and share with the world boldly, your beauty.
So that’s what you’ll get at the Write to Heal.
TR in Conversation with Jeanetta:
Wow. (in awe)
TR:
Blind Girl Magic is the fashionable gear, the workshops and events, the healing. Ultimately though, it’s about that movement or journey.
Jeanetta:
At the age of 21, I had a brain aneurysm. I don’t know if I shared that with you.
They told my mom that I wasn’t gonna live. If I did, I’d be a vegetable and I wouldn’t be able to walk or talk and you know. And you know I aint stop talking now, right.
TR:
So by 25, when the vision loss occurred, Jeanetta was once again really just finding her stride.
Jeanetta:
I took it pretty hard. And I remember just for days not getting out of bed not wanting to live. I was too afraid due to my Christian background to take my life but I will wake up and ask him Why did you still give me life? I used to sleep a lot because I actually just wanted to just leave this place. I just thank God for not listening to me right? Because I was blinded by my blindness. I had no clue that I could live my best life out of sight.
TR:
We don’t often talk about these feelings when it comes to adjusting to disability. Here or elsewhere.
I’m guilty of wanting to promote positivity and optimism.
But I want to also be honest and these feelings are real.
If you find yourself struggling with these thoughts, call this number;
1-800-273-8255. There’s no shame.
Things get better. And our feelings change. This is Blind Girl Magic!
— From
Jeanetta:
Blind girl magic is the type of magic that struts in a row with her white cane extended.
Her hips shift like the motion of the eyes of the sighted.
Who would have guessed that this blind girl possessed magic.
Abracadabra.
Now you’re convinced that I have some magical superpowers with a supernatural S on my chest
Well, that will be yes for success.
As I leap over obstacles in life, dodge negativity, slam misconception of society, slap our kids in the face when I did that is a fact that blind girl magic goes back to Helen Keller.
Way back to Harriet Tubman, born into slavery escaped the freedom but she did not stop. She went back and back and back to leave us the freedom.
Blind girl magic is built off the shoulders of phenomenal women.
Blind girl magic is the independent movement that is leading our blind sisters to freedom of depression, low self esteem, lack of confidence, anger, bitterness, rejection, Abracadabra, You are set free, blind girl magic lives within me.
TR:
Sometimes I think I should stop and give you a bit of audio description of what was taking place during the conversation. Hmm, I’ll call it Audio ReidScription”
— Rewind —
— Portion of Jeanetta’s poetry begins and is lowered as “Audio ReidScription” begins. —
Jeanetta’s audio:
Way back to Harriet Tubman, born into slavery escaped to freedom but she did not stop. She went back and back and back to lead us to freedom.
Audio ReidScription over Jeanetta’s audio:
All of a sudden, as if driving with a diamond in the back, sun roof top…, Thomas leans back in his chair with a big toothy grin.
Jeanetta’s audio:
…that is leading our blind sisters to freedom of depression, low self esteem, lack of confidence, anger, bitterness, rejection,
In a comic strip thought bubble hovering over his head, text appears : Go head Sis!
Jeanetta:
I recall when you couldn’t say “Jeanetta” and “Blind” in the same breath, now I have the nerve to own a company, Blind Girl Magic. I took back the power.
In my blind journey, I accomplished much more as a blind woman than I ever did as a sighted woman. I went back to school and received my bachelor’s, my masters have my own company.
I always tell people it took for me to lose sight to gain vision and once I gained vision God allowed me to see better.
But then I knew it wasn’t just about blindness.
TR:
At first I thought that was poetic or a metaphorical way of seeing her blindness.
For years, Jeanetta was in and out of surgeries and eye procedures. Her doctor offered different specialized contact lenses. They did nothing to provide more sight. In fact, the left eye only offered a bit of light perception, but the doctor determined there was more available in the right eye. Jeanetta just didn’t want to experience the eye pain.
Jeanetta:
Doc I have blind skills. Leave me alone.
But my doctor knows I’m a little feisty or whatever. But he knows that I trust him and I follow his lead.
TR:
The doctor wanted to try a new contact lens
Jeanetta:
They say the older you get, and people of color, our glaucoma begins to simmer down.
My doctor, he was just like, you still have something there and your Glaucoma is stable at this time. So he was super excited about it.
It was a challenge getting the contact in. Because my eyes were pointed, it was just a struggle, and I was crying, and everything.
My doctor said, Now look at your face. I haven’t seen my face in over 15 years.
So the doctors expected me to see better. But they did not expect me to see 2040.
I receive a special contact collar square lens that I put in, insert every day and take out every night. But sometimes, I don’t use my contact lens. I don’t ever want to lose, is my blind skills.
TR:
I’m sure there were all sorts of thoughts and feelings taking place, plus Jeanetta had to learn how to use vision once again.
Jeanetta:
I had to train myself not to trust my eyes, because I always had enough sight to get me in trouble if I ended up falling off the curb and stuff like that.
TR in Conversation with Jeanetta:
That’s a really interesting sort of twist, but I think that says a lot because you could have bounced, you could bounce you could be like, I’m out of here. (Chuckles)
Jeanetta:
I’m gonna be honest with you.
I know a young lady, we had the exact same condition, she received that contact, and we have not heard from her in the Blind community at all.
Everybody wasn’t happy for me. Sighted or blind.
So now it’s like, oh, you’re not blind enough to be a part anymore. It was bittersweet.
God had to remind me like who I am, and I have to walk in my purpose.
I’m going to continue on my journey of where he want me to be. Yeah, I could have bounced. But I’ll never, never this, this is who I am. And just like He gave it to me, He could take it away. And if you take it away today or tomorrow, I know, I’m okay.
My thing is this, I know that I can do it without sight. Because that’s what I did for years.
TR in Conversation with Jeanetta: 52:00
Okay, I believe you, and you reppin, that Blind Girl Magic. You rocking it. You can’t get away from it. You don’t want to get away.
TR:
I’m really not sure how one could just give up what has become a strong part of their identity. Especially, when you can see the impact it has on those you care about. For Jeanetta, working as a school Behavioral Specialist, those were her students.
Jeanetta:
Our kids were victims of their environment, a lot of violence, crime, everything. However, for my kids, to see me tap into this school as a blind woman. And then to see me to be able to drive to school as a blind woman that’s been gifted an opportunity to see better again, that gave them hope that it’s not over.
As the behavior specialist at the school, I worked with all the kids at risk. I really was having a hard time, cuz, I see the greatness up on my kids and I see some of my kids drop out and just give up. My story, my testimony. It gave them hope. They like for them to witness that was priceless.
TR:
Jeanetta’s whole story is poetic.
Meaning it’s a chance for all of us to interpret for ourselves.
This was sort of a challenge for me.
Not on a personal level but rather as someone who is thinking of the listener who’s possibly in the early phase of their adjustment.
I hope you didn’t in any way check out.
I need you to know that I know hearing this can spark all sorts of feelings that don’t necessarily equate to jealousy of another person, but maybe questioning your own worth or value.
For me, the hope in Jeanetta’s story isn’t really about her getting access to some vision. That’s another tool. Similar to the way I wouldn’t be jealous of someone who has a fancy powerful computer or gadget nicer car. What it really comes down to is, whatcha gonna do with it!
Jeanetta’s continuing to find ways of spreading her magic to help heal.
She was a finalist in the 2021 Holman PrizeContest. This conversation was recorded prior to the announcement of the winners.
Unfortunately, she wasn’t selected. But don’t get it twisted, she definitely won!
Jeanetta:
When I made it to the final list, that opened my eyes that being real with you and sharing your truth. People will respect that.
There’s so many times that we, especially as an African American woman, we’re frowned upon. You’re too loud, or you’re too big, or you’re too this.
It’s okay to be you.
It took me a while to get here to be unapologetically Jeanetta Price and to have people to just really embrace me and appreciate my truth.
TR:
Understanding and accepting that what makes us different should be appreciated, well yeah, that’s priceless.
Jeanetta
I am a bold, black, voluptuous, advocate not only for the blind, but for beyond. I stand in my truth.
I am healed from insecurities and I am healed from negative self-talk.
Every time I get in front of the audience, I have that white cane. I’m tapping and making room for the next Jeanetta .
Everybody else that come behind me that you don’t look like the norm. We all have a purpose on this earth. It’s okay to be you.
TR:
You all can reach out to Jeanetta Price as she rocks that Blind Girl Magic and serves her purpose.
Jeanetta:
Facebook and Instagram and also Club House Jeanetta Price, Blind Girl Magic either one, it’ll pull up.
TR in Conversation with Jeanetta: 1:01:39
Jeanetta Price. Let me tell you right now, you are definitely now an official member of the Reid My Mind Radio family!
Jeanetta:
(Giggles)
TR:
Not only did she share her journey with us, but she even gave a little something extra, check this out
Jeanetta:
It’s called I’m From.
I’m from double dutch to hopscotch.
From what your mama gave you a hoola hoop?
I’m from what cartoon said yabba dabba do not. Screw you.
I’m from pressing combs to Jheri curls from skipping just for me.
Graduating straight to Super TCB.
I’m from 123, red light, Duck Duck goose, hide-n-go-seek what?
I’m from mayonnaise sandwiches and syrup sandwiches and peanut butter, Mama where is my jelly at sandwich.
I’m from grandfather hustle selling 25 cent cool cups.
I’m from when grown folks talk children shut up.
I’m from when your mama made you go to church every Sunday, Monday, Tuesday, Wednesday, Thursday, Friday, Saturday.
You was there too.
I’m from what a church folks did the holy dance and now they TikToking.
Well, chicken thunder, that reminds me I’m from a family of big mouths that cause big fights and Big Mama stepping and everybody got right.
I’m from God first family next in line come on down to the price is right even when we wrong. I’m from box fans in the windows of the projects .
I’m from my sister sitting on the front porch doing my crochet braids drinking Thunderbird mixed with a pack of cherry Kool Aid.
I’m from finders keepers losers weepers.
I’m from one size fit all but not all this.
I’m from when stripper poles hung our clean clothes.
I’m from stop, everybody get down, it’s a stick up. Psych. That’s just my cam folks running from the popo. My brother on the dice with his pocket swole. Baby daddy in jail, sister on the corner selling fruit cocktails.
I’m from telling on big sister and hiding behind big brother.
I’m from begging my siblings to please take me to the playground because that’s where all the kids hung around.
Question: when the last time you seen some children at the playground?
I’m from when it ain’t gonna cost you a dime to stay out of mines?
I’m from ain’t no ones where we come from and adversity don’t want none.
I’m from losing sight to gaining vision. Rewind I’m from losing sight to gaining vision.
I’m from where my brother reid My Mind and my sisters feel my words.
It’s not about the sight loss but the vision gain.
I’m from when we get up, dress up, and show up.
I’m from backstroking in the river of faith.
I’m from what a blind is the new vision.
I’m from living my best life out of sight, let the truth be told I am chosen.
TR in Conversation with Jeanetta:
Huh! See, that’s how you do it! That’s how you do it right there. Appreciate that, look at that, look Ma. I made it, I made it.
Jeanetta:
You so crazy!
TR:
Holman Prize, y’all missed out! From my humble perspective, you had two dynamite opportunities. One with Ms. Jeanetta Price and another with Reid My Mind Radio alumni Dena Lambert.
Her ambition, archive the experiences of the remaining Black & Blind men and women who grew up in segregated Blind schools. Here, in the United States.
That to me sounds like an exploration that is truly worth supporting.
Coming out of 2020 when it was fashionable and safe to say Black Lives Matter. I guess in 2021 it’s back to playing attention.
I didn’t grow up Blind, but I do know that those who were Blind before me gave me the opportunity to have what I do. They were Young Gifted Black and Disabled and to them, I dedicate this episode.
Audio: Reid My Mind Outro
Peace!
Hide the transcript
|
|