Archive for the ‘Access Technology’ Category
Wednesday, March 23rd, 2022

Ever since her first experience with Technology, Adriana Mallozzi knew it was the key to her independence.
Empathy along with advocacy and leadership skills are the right components qualifying her to start Puffin Innovations. An Assistive Technology company – creating hands free access to consumer electronics for individuals with limited mobility in their upper extremities.
Literally, Adriana is creating the technology enabling more people to do their thing with their disability!
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Resources
Puffin Innovations
The 15 Percent Club on Club House
Transcript
Show the transcript
TR:
Greetings Family! Welcome back to the second episode of the first season of 2022, Doing Your Thing with Disability.
— Music begins – A drum solo that loops, stops DJ scratch into a cymbal crash.
My name is Thomas Reid, host and producer of Reid My Mind Radio, the podcast bringing you compelling people impacted by all degrees of blindness and disability.
I’m excited to bring you today’s episode so I’m not going to say much in this introduction.
However, I know you’re going to dig what we’re about to get into so I’d like to encourage you right now to just go ahead and follow or subscribe to the podcast.
Seriously, what are you waiting for! Whatever app you’re using to listen right now, there’s something that says, follow or perhaps subscribe.
Hit that to make sure you don’t miss an episode.
I’ll take it from there!
— Reid My Mind Theme Music
Adriana:
Hi, I’m Adriana Mallozzi, founder and CEO of Puffin Innovations, we are creating hands free access to consumer electronics for individuals with limited mobility in their upper extremities. My pronouns are she and her. I am a Caucasian woman with a round face, ear length dark hair, and wearing a black T shirt with the words not impossible written across the chest in white and I am in a power wheelchair
TR in Conversation with Adriana :
Why did you wear that shirt today?
Adriana:
It really represents I think my attitude with regards to what I want to do in life.
I’ve never been the type of person to take no for an answer. I’m realistic. I’m not a surgeon because I can’t use my hands.
It just really resonates with me and my attitude. And what it means to be a proud, disabled person showing that nothing can really stop you from doing whatever it is you want to do.
TR in Conversation with Adriana :
Can you just summarize your experience with disability?
Adriana:
Sure. During the birthing process, I stopped breathing. So the lack of oxygen caused brain damage, hence, I have cerebral palsy. I’m a spastic quad and I use a power wheelchair.
CP varies so much. It manifests in so many different ways that you would never know from one person to another, that they have the same diagnosis.
TR:
The diagnosis is what it is, but the person is who they were in their past, who they are in the moment and who they become in the future.
In each of those periods of time, there are things that impact a persons way of thinking.
Two things stand out about Adriana’s past that influence her belief of what is possible.
Adriana:
I am a child of immigrants. So I grew up going to Italy, to visit family, I still have first cousins there. Growing up, we would go spend the summers to see my grandparents. So travel was a big part of my life.
TR:
Adriana’s mom worked as a real estate agent and travel agent.
Adriana:
Just because it gave her the flexibility, she needed having a young family, especially for me as a child with a disability. She’d always be running around, having to take me to PT or OT or whatever.
She would win a trip for to, and then she would add my sister and I and we get to travel.
We went on cruises, and we got to go to Bermuda.
— Sound of an airplane taking off.
— Music begins – melodic horns slowly blow as a woman vocalist sings “higher” leading into a kick dram and a mid-tempo hip hop beat.
So I think it was just very inherent, it was in our blood. Traveling is just something that we love. My sister has made it into a job where she gets to travel around the world and experience a different culture
TR:
That’s her little sister, Mikaela. Professional dancer and four time EMMY Award winning host of her own travel show, Bare feet with Mickela Mallozzi.
I guess traveling without shoes is dangerous. (I don’t think that’s what’s she’s doing.)
Traveling as a power wheel chair user comes with some specific challenges.
Adriana:
When I travel, especially overseas, I don’t bring my power chair, just because it’s not as accessible in other countries. And it’s just easier to have a manual chair, when most of the countries are not wheelchair accessible, especially my own family’s home, my grandparents, its hundreds of years old, it belonged to my great, great grandparents and you know, it’s just not accessible. So I would travel with my manual chair, and when I’m in my chair, I literally can’t do anything myself.
TR:
Contrast this with her first experience taking her power chair overseas.
Adriana:
Also, the first time I flew overseas without a family member, I brought my PCA and I had to figure out all the logistics on my own.
That was the first time that I had ever done that in my life and it was amazing.
They really put a lot of thought into design with accessibility in mind.
You know how here, the elevator buttons are all literally at the door. If you use a wheelchair, you really can’t reach those buttons by the door because your foot rests are in the way and you can’t get close enough. Well, in Germany, all the buttons are on the side, on the wall. So you can easily reach them.
They also have not only a button to call the elevator at the door itself, but they also have free standing posts. So you can angle your chair in any direction and hit it however you can hit it. They did the same thing with automatic door openers, as well. And so I was so independent in there that I literally dreamt about being back there when I got back home.
TR:
Aware of the problems that power chair travelers experience, Adriana had a plan.
Adriana:
We bring a big roll of that wrap. How they wrap pallets? you know that plastic.
As soon as I get out of my chair, we put anything that are external to the seat of my chair, we put it in the seat of my chair, and then literally wrap my chair.
And so that has worked.
TR:
On the way to Germany at least.
On the return trip, as soon as they finished wrapping the chair,
Adriana and her PCA were told to unwrap because the chair needed to be tested.
It was taken but no one would speak with Adriana or her PCA.
Nervous about missing their flight and subsequent connection, they finally learned of the problem.
Adriana:
They’re like, Yeah, your chair tested positive for explosive.
We had to wait for the police to come. And then they were like, You need to take the battery. I was like, you can’t take the battery out, you don’t take the battery out.
They literally tried to tear out the battery. Like Luckily, they couldn’t figure out how to open anything. But they had snapped pieces. So there were broken pieces in the seat of my chair because it was like they were clawing to get to the internal electronics of my chair. I think it would have been worse if it wasn’t wrapped.
TR:
The dream of independence for people with disabilities often includes some nightmares.
Adriana:
They put my chair on the lift from the gait of the plane to load it down below.
and a person who was loading bags, he was literally throwing in like chucking things on top of my chair. And I was having a heart attack. I could see it through the window and I’m like, oh my god. We definitely took pictures and videos and my chair was a little broke like it wasn’t working properly and you know these chairs are 500 pounds so it’s not like it’s easy to push it.
TR:
joy and pain of traveling as a disabled person!
— Music Ends
The second influential component effecting Adriana’s belief of what is possible? Early exposure to technology.
Technology>
Adriana:
I began, PT and OT, or physical therapy and occupational therapy for those that don’t know what PT and OT stands for. at a really young age, I was diagnosed shortly after I turned a year old around 12 months or so. And soon after, we were sent to Easter Seals.
It was my OT who introduced me to a piece of technology that allowed me to use the computer, for the first time to do anything for the first time independently.
This was back in about83 or 84. I was about maybe seven, eight years old.
All I did was type, I type my name, and maybe some numbers. But just being able to do that, and be able to do something by myself for the very first time ever in my life.
It really hit me at that moment. I was like, wow, technology is going to be the key to my independence. Technology will be the way I will be able to do everything I ever wanted to be able to do.
TR:
And then there’s the DIY, Do it yourself attitude.
Adriana:
my father was in construction, he was a carpenter. I would always see him build. I think I got that problem solving. sort of mentality. Most people with disabilities, we have to adapt on the fly all the time. We have to figure out ways of doing things that the average person does not. And we always have to be at least two to three steps ahead. There has to be a Plan B, C, D, in case, X Y and Z goes wrong.
TR:
And when they go wrong, understanding the need to advocate for yourself.
Adriana:
My parents really had to struggle financially to get me what I needed, like the basic things that insurance considered luxuries like a bathing chair.
I can’t sit up by myself. So until I got that chair, I had to lay at the bottom of the tub. And I would be really creative and like, Yeah, I’m cool. toys like, I left pillows or floaties, or whatever, just to make me comfortable. So I wasn’t banging against the sides of the tub or hurting myself on the tub?
Of course, insurance? To be able to bathe safely and comfortably was a luxury.
My power chair I got when I was about eight years old. Me being able to be independent and move on my own was a luxury, according to the insurance company. So luckily, I think part of it was covered.
They just had to find ways to provide to get what I needed. And I’m really grateful that I had parents that did that.
TR in Conversation with Adriana :
Is that still, the situation with insurance with they treat those things like, luxury?
Adriana:
there are places still in the United States where people have to still fight for it. And yes, they still consider a luxury. But I’m lucky to be in the state of Massachusetts, and have the benefits and have not had to struggle as much as an adult in a different state to get the equipment that I need, but there are people in this country that that still have to fight, but still get subpar equipment, simply because insurance won’t cover the actual equipment that would be more suitable for that person.
I just don’t understand how people can be okay with that. I don’t understand how people that work in the insurance companies can have policies that allow that to happen. These are human beings and to treat human beings in that way, I just don’t understand.
— Music begins, a funky electronic dance track with lots of digital processing sounds and a funky groove.
TR:
The more you know how much it benefit’s a person, the more difficult it is to accept that it happens.
Adriana:
when I was older, let’s say my mid 20s was the first time that I had technology that I was able to turn on the lights to change channel on the TV, to open my door to my apartment. That was huge.
For the average person, it just sounds so basic. And these things excited me and I was so lucky. And I was in my mid-20s. And that was the first time I was able to do any of that by myself.
TR:
It doesn’t sound basic to me.
Adriana and I met as a result of inaccessibility.
It was December 2020 and I was trying to make sense of the social audio app Club House.
I accidentally hit a button that started up a room.
Honestly I freaked out, I had no idea who was going to join.
While searching how to quickly close the room someone popped in.
Shout out to Daniel from Singapore. We got to talking and then Adriana came into the room.
Adriana:
I joined clubhouse December of 2020, when everyone was locked down.
Initially, I was just checking out all the tech rooms and getting a feel for what was on there.
TR:
December 2020 was still considered early in Club House time.
There were a fair number of people using the app even though officially it was in Beta.
There was a lot of everything, good conversations to scammers, and definitely inaccessibility.
While in a room with some discussion taking place about disability Adriana didn’t like what she was hearing.
Adriana:
Special needs, and differently abled and Handi capable and all those god awful euphemisms instead of the actual word disability. And we’re like, Okay, this has to stop. Let’s do a room about disability and about language. And that’s how it started.
TR:
That room led to the creation of a club.
Adriana:
I was trying to come up with something clever, for a club name.
I read, 15% of the world’s population has a disability. And I was like, Oh, my God, we’re going to call it the 15. Then it sounds really exclusive. And cool, it’s Wow. And people will be like, Oh, what is this 15%, right, like, I want to be part of the 15.
TR:
There were some really great conversations throughout the rooms, from those hosted by the club to those from other members.
We as a club along with some cool allies (shout out to Glenn with two n’s) played a big role in advocating for improved access to that app,
making certain to voice concerns from the perspective of all users with disabilities.
Literally, all we wanted was to be included in the conversation.
Music ends.
TR:
Hey y’all, I’m cutting into the flow of the episode.
It’s time to announce the winner of the
February Socially ReidSponsible Instagram Giveaway.
Last time,
I told y’all about Annie.
A friend of the family who wanted to come on board and
help manage the Reid My Mind Radio Facebook and Instagram pages.
Last time Annie was under the weather…
while I knew the sun would come out…
I was hoping to get her on the podcast and ask…
Annie are you ok? Are you ok. Are you ok Annie!
Ok, I’ll stop before Annie decides to get her gun…
The winner of the February Reid My Mind Radio Instagram giveaway is…
Congratulations @Malic_acid,
Enjoy your very own Reid My Mind Radio
coffee or tea mug.
Now back to the episode…
Music ends with a bouncing base…
TR in Conversation with Adriana :
What was your first experience with having to advocate for yourself?
Adriana:
I liked pushing boundaries. But I was also very shy. Growing up, my teachers didn’t even know I could speak because I was so shy.
I started opening up more when I was in middle school and high school.
It was freshman English, and I had to write a paper. I decided to write about how, as someone with a disability, who took all honors classes, I had a one to one aid to help me turn pages or write notes for me who didn’t understand English.
TR:
Adriana literally would have to spell out things she wanted the assistant to write.
Meanwhile, the teacher is moving on with the rest of the class.
Could you imagine how frustrating that would be for a 14 year old?
She decided to write about it.
Adriana:
I knew once the essay was handed in, and I would go down the halls, I knew all the teachers knew, I knew the administrators. did and they were all talking about and I think that was my first like, official. My self-advocating for myself.
TR in Conversation with Adriana :
What lessons did you take away from that?
Adriana:
It felt good, actually, to cause a ruckus.
It was really obvious that they underestimated me. Even though I was in honors courses. I think it was really clear that because I was shy, because I never really spoke loudly or did anything like that all of a sudden, I wrote this paper. They had an insight to what was really going on inside my mind and how I was really feeling about the situation.
TR:
After being assigned a new aide, she knew her words could make a difference.
In her senior year in high school, Adriana wanted to work on the year book.
She knew she could, everything was computerized at this point.
But she was told she couldn’t.
Adriana:
Because it’s on the third floor and the elevator doesn’t go there. After four years of being in high school, I had no idea that there was even another floor that I had no access to.
Someone that I knew that was on the school paper, decided to interview me about it. A year or so later, they fix that.
TR:
Years later, Adriana found herself working as the editor of a newsletter at the Massachusetts rehabilitation commission.
Adriana:
it was called the consumers voice. Up until when I took it over, it was mostly just a regurgitation of what was on the DOJ website and not really the voice of the people.
I said, we’re changing that.
Music begins –
They allowed me to assemble a group of individuals who were involved or who were consumers of Voc Rehab. And people were also allowed to submit their own stories if they wanted to share an experience, both negative or positive.
TR:
At least that was what she thought.
It wasn’t until one consumer sent in a not so nice letter about their experience that tested the policy.
It landed her on a call with the Executive Office of Health and Human Services defending the consumer.
Adriana:
I said, Excuse me, but this is called the consumers voice. It is a factual story. No one is being called out by name in this story.
We went back and forth a little bit, and it got published.
TR in Conversation with Adriana :
Why was the idea of having the voice of the consumer being heard? Why was that so important to you?
Adriana:
It would be an injustice, if it was called the consumers voice and not having no voice of those people in that publication. It was wrong. It was so wrong on so many levels when you didn’t actually broadcast those voices and those stories and so it was really important to me to be true to what the name stood for.
TR:
In her job at a Day Rehab Center in charge of coordinating wheel chair evaluations, She found herself often advocating on behalf of others.
Sometimes that just means informing people of the process and their rights.
Adriana:
So most people don’t know this. But when you’re wheelchair shopping, it is your right, to test drive multiple chairs, it’s just like buying a car.
You spend most of your time in this thing. And it needs to be right for you.
TR:
Advocating on behalf of another person can be tricky.
Especially when you sometimes share medical professionals.
Like the time an OT didn’t provide a consumer with the chance to test multiple chairs.
Adriana:
So I knew this person, both professionally as well as someone who had helped me in the past to get equipment. And so I called her and said, hey, you know, I really think that he should buy this other kind of chair. I think he would benefit from it.
And she says,
— Music ends.
Well, you know, I didn’t think He needed to try anything, because he has a cognitive disability. And I was thinking at that moment, God, you are so lucky that his mother did not just hear you say that. And you’re also so lucky that I could not reach through this phone and rattle you.
TR:
I’m a big fan of this part of Adriana’s personality!
But fortunately for all involved, she has a really good head on her shoulders.
Adriana:
We spoke for a while and convinced her that we should have another wheel chair eval. We did it at the clinic not on site.
TR:
Mind you, this wasn’t in an official capacity. She took off to attend the eval in order to make sure this person received the appropriate service.
Adriana:
Prior to using this chair, he would crash into things all the time.
In this chair, he drove like a pro. It was also a standing chair. So he was able to stand and read, his mom was in tears. And it was just the most amazing and I was so happy that he was able to get what he actually needed and what best suited him. And then the OT came over after and apologized to me afterwards.
— A bit of silence…
“I’ve always been that type of person where I want to try to figure out how to make things better. How to make things easier for other people, not just myself.” – Adriana
TR in Conversation with Adriana :
Let’s go to another form of your advocacy. It’s what I think is sort of your natural interest in technology, combined with your empathy for others. I see all of that combined to make the beginning of Puffin innovations.
Adriana:
I’ve always been the type of person to have ideas and want to improve upon existing tech. And right after I graduated college I was sending out two different kinds of resumes. One was the typical resume that you would send to a company. And then I had a resume called assistive tech resume. And I would list all the things that I was experienced in using and New England. And I would apply to all these companies that I had used their equipment and I looked up to and it was a dream of mine, to work for a company.
TR:
Adriana had no entrepreneurial ambitions.
She just wanted to work for an Assistive Technology company that was serving people with disabilities.
That was until she receive word about an event.
]
Adriana:
MIT was looking for people living with disabilities, who had an idea, a solution to a problem that they themselves are experiencing. I was like, oh my god, this is like a dream come true. I get to go to a hackathon. At that point, I had never been.
I was just on cloud nine because I was like, oh my god, I have this opportunity to go to MIT, hang out with all these geeky people and geek out together and just be around all day. So I submitted my solution, it didn’t have a name, but it was the Puffin.
TR:
She along with about 15 other applicants were selected to participate in the hackathon.
Prior to the event, a dinner was held to give the co designers, that is the MIT coders and those with the ideas a chance to meet and connect with one another.
Adriana:
It’s kind of like speed dating.
The students will go around and meet each of the designers, and find more out about what it is that you want to do. This group of students came to me and they never left.
Literally, they had laptops, we were looking at parts, like we were already figuring out what we needed to make this happen.
TR:
Each team had an opportunity to request parts and technology prior to the hackathon.
Adriana:
Luckily, there was this person who he is now a puffin advisor, he had this big chest of parts. And if it weren’t for him, we wouldn’t have been able to build it at all. because we didn’t get any of the parts that we had ordered.
The students were amazing, because they really listened to what I had to say. I think that’s what made our team so successful. We were willing, and able to take each other things, and put that together, and put it in a way that works. We never dismissed anyone’s idea or anything.
We ended up making a working version, I think that’s why we won first place.
We got so much press. We were even in the New York Times, which was amazing.
TR:
Already motivated to get this product out to others who wanted more independence,
Adriana began receiving emails from people around the world asking that very question.
She was thinking about patents and funding while the student’s went on to complete their course work.
Adriana:
A good friend of mine who happened to be writing her thesis. She was getting an MBA back in 2016. And she was writing a thesis on hackathons.
She said, you had a successful hackathon, so I want to interview you.
When we were done, she was like, Well, what’s stopping you from doing that from making it into a real thing.
That was really her and I taking the time to just look up applications, learn what was out there and then apply to all these funding opportunities.
TR:
The idea that began after receiving an email in 2015 started to look more like it was turning into a real business.
Adriana:
It just all fell into place in 2017. And we got a $200,000 grant from the VA. It was April Fool’s Day. I kept looking at the email. I’m just like, This is real, right?
It was just surreal, like the most surreal experience, because we’ve never done anything like this before.
It really worked out because then we got into mass challenge. And that really propelled us forward because we didn’t have space, we didn’t have anywhere to go to work on this.
TR:
The Mass Challenge is a business accelerator program in Massachusetts.
In addition to funding and networking opportunities, they provide access to production space and other resources including equipment and people.
Adriana:
The people that would walk in and out of there were just people in the high tech industry that you would never otherwise ever meet in your life. And it was just an amazing experience. We also, as a result, something that happens here in Boston called inbound, that HubSpot runs. And we happen to have been part of that challenge. We got free tickets to HubSpot, HubSpot, or to endow and that year Michelle Obama was the keynote speaker. We got to go and it was just the most amazing thing ever.
TR:
Just when things are going really well, (Pandemic! )Covid 19.
Unlike other tech companies that were able to thrive during the pandemic, Puffin is a little different.
Adriana:
It’s a physical product.
* testing this here *
Our device is actually a mouth operated wireless input device. It’s just a fancy way of saying it acts as a mouse. So for people like myself, who can’t use their hands, they could pair our device with any Bluetooth enabled devices, so like your computer, or your cell phone, or your tablet, and then have full access to that device.
I know several people who don’t even have mobile devices, especially back when I started. That’s because they physically can’t interact with the touchscreen. That is why this was so important.
We also have an app that goes with the product, but it interacts with the device.
It’s really a hard thing to get parts that are not from overseas. And that’s where a lot of our components are coming from. We were down for a good supply chain. But now we’re ramping back up again.
TR:
Helping to build up some of that momentum is winning the ServiceNow digital workforce challenge along with acceptance into the Verizon for good Accelerator program.
Adriana:
Which is super exciting, because you get to work with these tech experts, from Verizon.
A big part of our device is the portability, the connectivity of it, wireless. And so having this opportunity to work with a communication giant, like Verizon, and leader in wireless technology, which then we will be able to incorporate in our device is going to be pretty amazing and really bring it to the next level.
TR:
Adriana says Similar products on the market haven’t seem much in the way of innovation because there’s little competition.
Adriana:
they have no reason to actually change it. So we’re changing it!
TR:
By incorporating artificial intelligence or machine learning.
Adriana:
I wanted this device to recognize, hey, this person is having a little more difficulty in doing this or that, or is struggling with moving in certain ways. So let me adjust the sensitivity, or let me adjust the pressure that is needed to go in this direction, but not in this direction.
TR:
By the end of the program with Verizon,
Adriana would like Puffin to have a product ready for sale in a beta phase in order to generate user feedback.
By the way, the name Puffin is like a shout out to the bird of the same name.
The devices mouth piece resembled the bird’s beak.
That beak you can say, is a form of assistive technology.
It enables them to carry food to their baby back at the nest.
Doing her thing with disability, is what separates Puffin from other solutions.
Adriana not only understands the value for herself, but seems just as excited for what that access brings to others.
Adriana:
I don’t know what I do Without accessing my cell phone. I can control everything with my phone, now. I can control the TV, I can control the lights with my phone, I can do my banking, I can do my shopping, I can read a book, right? I can, whatever, make phone calls, etc. You can literally do everything with a mobile device. So for people with disabilities, if you have access to your mobile device, you literally have access to the world. And that’s what’s really important to us. It’s giving people that opportunity to have access to things that they otherwise would not have access to.
TR in Conversation with Adriana:
Ok, How do I say this? Because of all the things that you do, your willingness to share, and help others the way you do your thing with disability. You Adriana Mallozzi are an official member of the Reid my Mind Radio family welcome to the family, Adriana.
Adriana:
Thank you! I’m honored to be a member.
TR in Conversation with Adriana:
So how can people learn more about the Puffin, about you? All of that.
Adriana:
So you can find more about Puffin at Puffininno.com So that’s Puffin like the bird and inno.com. Or @Puffininno on all social media platform. That is our handle. If you are on Club House come and join the 15% Club.
For me it’s just AdrianaMallozzi is my handle on on all social media platforms.
TR:
I started to give credit to the lack of access within the early version of the Club House app for my chance to meet and get to know Adriana.
It’s like giving credit to inaccessibility, poor treatment and service for the strong advocacy,
problem solving or management skills you’ll find among people with disabilities.
No! I’m not crediting the negative.
The energy we each give off works to bring people in and out of our lives.
Adriana and I were both on the Club House app, simultaneously trying to figure some of the same things out.
In fact, some of the same access issues that impact her were impacting me as a Voice Over user.
It wasn’t disability specific.
Perhaps that’s something I needed to hear.
I may have been seeking that without even knowing.
Maybe you listening here today needed to hear the words on Adriana’s shirt; “Not Impossible”. That’s really an energy that I personally want for anyone listening, the energy I want for myself.
Yes, we can dream big.
I just want to hear more from those achieving without having to compromise any part of themselves.
I’m tired of conversations about overcoming CP, blindness or disability in general.
I’m here when you want to talk about society overcoming it’s need to put up barriers,
it’s inaccessible websites and technology or
unwillingness to hire, give opportunities to or in any way include the disabled community.
I’m here for conversation with people like Adriana who want to talk about pursuing goals, making dope enabling technology.
I’m here when you want to talk about Doing Your Thing With Disability!
And you know where to find me right?
That’s wherever you get podcasts. If you’re on Facebook and Instagram, that’s @ReidMyMindRadio on Twitter @tsreid.
Or slide on over to ReidMyMind.com and you can find transcripts for our episodes.
Just make sure you remember, that’s R to the E I D!
— Sample (“D!”) And that’s me in the place too be! Slick Rick
Adriana:
Like his last name!
Audio: Reid My Mind Outro
Peace!
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Wednesday, August 25th, 2021
“I came to this country to start leading the project and start putting all the technicalities together to start doing captions and audio description in Spanish, serving the Latino community.”

Maria Victoria Diaz PhD, an Electrical Engineer left Colombia to help “Flip the Script” not only on Audio Description but access in general for native Spanish speaking people.
President of Dicapta & Chair of Dicapta Foundation, her efforts continue to prove that creating access for one group can benefit others as well. In this episode hear about ;
* The struggle for Spanish AD
* Access 4 All – Dicapta Foundation’s solution assuring Audio Description can be shared across platforms.
* Go CC – providing access for the Deaf Blind to content and emergency information
… and more.
It’s fitting that I open this episode with my own Spanish translation.
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Transcript
TR:
Reid My Mind Radio Family! Before we get into this latest episode, I need your help.
I want to take Reid My Mind Radio to the next level, that’s making it a sustainable venture.
But I need to know more about you, the listener. I’d really appreciate if you could take a few moments to fill out
a quick survey. Just go to ReidMyMind.com and hit the link that says , hmm, what should I call it?… Survey!
— Music Begins A mid-tempo Reggaeton Hip Hop influenced groove.
TR:
Greetings, my beautiful brothers and sisters.
Welcome back to another episode of Reid My Mind Radio.
You know, the podcast featuring compelling people impacted by all degrees of
blindness and disability
TR in Spanish:
Saludos, mis hermosos hermanos y hermanas.
Bienvenido a otro episodio de Reid My Mind Radio.
Ya sabes, el podcast que presenta
a personas atractivas
afectadas por todos
los grados de ceguera y discapacidad.
TR:
We’re continuing with our Flipping the Script on Audio Description series.
TR in Spanish:
Continuamos con nuestra serie Flipping the Script en Audio Description.
TR:
By now, you should have an idea of where we’re going in this episode. If not, give me a moment for my theme music, and then I’ll introduce you to my new friend and she’ll make it clear.
TR in Spanish:
A estas alturas, debería tener una idea de hacia dónde vamos en este episodio.
Si no, dame un momento para mi tema musical, y luego te presentaré a mi nueva amiga y ella te lo dejará claro.
— Reid My Mind Theme Music
MV Diaz:
“I came to this country to start leading the project and start putting all the technicalities together to start doing captions and audio description in Spanish, serving the Latino community.”
TR:
That’s Maria Victoria Diaz.
MV Diaz:
I used to be Maria Victoria and now I’m just Maria, in this country.
TR:
I like people to feel at home around me.
And she said I can call her Vicky.
— Music begins –
MV Diaz:
I’m from Colombia. I’m Latina. I have tan skin and brown eyes, my hair is over my shoulders usually is how I wear my hair.
I’m the President of the Dicapta and the director of the board of the Dicapta Foundation.
I’m an electronic engineer. I’m hard of hearing.
My pronouns, she/hers.
TR in Conversation with MV Diaz:
Tell me a little bit about you. And let’s start with how you became interested in audio description.
MV Diaz:
I started working as an engineer in a television company in my country.
The first time that I saw captions in my country was working in television, and I was like, What is that for?
I started to be interested in captions.
Specifically being hard of hearing, that was like natural to be interested in that kind of service.
Then I started working, specifically researching about accessibility features, specifically, to make television accessible.
That’s where I started like, 20 years ago, trying to push in my country for some policy or regulations for captions to be included.
TR in Conversation with MV Diaz:
How successful was that?
MV Diaz:
It was just good luck.
At that time, I had friends in the television industry, some of my colleagues from school, were the technical director of different television stations there.
TR:
Actually, that wasn’t the so called good luck. Those friends in high places didn’t make it happen. At least not until the government got involved.
MV Diaz:
So they came to me suddenly, one day, like, oh, there’s this new regulation that we need to comply, then help us please.
I think that one person, the government had a child who was deaf, and then that’s how they became interested. Sadly, that’s the reason most of the time.
And so I started doing captions for every single television station in the country and training.
TR:
What began as a two person team in 15 days grew to 20 people.
MV Diaz:
We needed to cover all the regulation that came at that time.
We help them to install the technical facilities for captioning
So the sad part of the story is that that regulation came at still the same 20 years after just like, two hours per week one newscast in the per channel.
TR:
Soon after that work began with captions, she met a guy who was Blind. He had a question.
MV Diaz:
Have you consider doing something for me?
And I was like, what kind of service Do you need, or how I can serve your needs?
And so he was telling me about Kurosawa’s “Dream” movie. And
he was describing for me every single scene of that movie, and I was like, how you can tell me those details about that movie If you don’t see. So I was so interested in his specific process.
TR:
That movie, Dreams, a 1990 film by acclaimed film maker
Akira Kurosawa was subtitled.
MV Diaz:
It was like a team effort, in a way with friends from his university.
I started researching how I can be involved in that field. It was like 20 years ago.
It was aligned with my interest in I wanted to be a musician, when I finished my high school, and I couldn’t because according to my doctors, being hard of hearing, it was not a good idea to be a musician.
I was like, Okay, I have to fight to do something else to overcome barriers.
TR:
At this point Dicapta, Vicky’s team of 20, was working on caption and Audio Description
when she was approached by one of the 2 private Colombian broadcast company’s.
They wanted to buy her out and control the market. Her response?
MV Diaz:
No, I’m not interested.
I started looking for options to serve to in Spanish in other places. And I found out that in the United States, services in Spanish were like really nothing available, not for captions, not for description at that time. So I decided to write an email to the Department of Ed asking how I can participate in your initiatives. And they told me, no, you have to talk to the television stations or to the channels. And you have to ask them. We’re not the right source for business.
TR:
Vicky’s response set her on a path and in my opinion says a lot about her motivation.
MV Diaz:
I’m not looking for business, I want to know how I can contribute in the discussion.
So they just mentioned it to me that they have a television Access Program. I’m talking about 15 years ago, 16 years ago.
TR:
It’s government, so that means lots of paperwork.
MV Diaz:
I can tell you that I was in Colombia, in my office preparing a proposal for the Department of Ed,
I had no idea how to do business in the United States… the right words to use or how to fill these forms. And I just started reading the forms , filling them up giving my ideas there.
I guess that it was a really good proposal, because we just got funded,
TR:
Come on, you know it can’t be that easy.
MV Diaz:
They call me but you can’t run a project, serving the Latino community from your country, you have to be here. And I was like, okay!
TR:
In about two weeks, she gathers her belongings, leaves Colombia and is in
the states.
MV Diaz:
I just really thank the Department of Ed gave us the opportunity to just try to add value, and to discuss and to tell what we think.
It’s wonderful for me that I every single time that I try to do it, sometimes I have to work a little bit more. I can talk with whoever I wanted to. And I can, I can just at least try. Most of the times the answer is no, we’re not interested. But it is okay. Just to have the opportunity to share what you think.
TR:
Thankful for that opportunity, Vicky uses her voice to continue her mission.
MV Diaz:
I came to this country to start leading the project and start putting all the technicalities together to start doing captions and audio description in Spanish, serving the Latino community.
TR:
While Dicapta is a for profit company, most of the work being done has been through the nonprofit Dicapta Foundation.
MV Diaz:
We really have some new partnerships doing dubbing in Spanish but most of the work that we do in audio description and captions is funded by the Department of Ed.
TR in Conversation with MV Diaz:
So accessing audio description for television, and cable here in the States requires the sap the secondary audio programming.
And it just happens to be that that’s the same channel that delivers Spanish translations in for shows in English. So does this mean that it’s impossible for a person who speaks Spanish to be blind? Hashtag sarcasm?
MV Diaz:
(Laughs)
Kind of…
Spanish language television, They don’t have a Spanish in their SAP, they don’t have anything in the sap.
So we’re not competing with the Spanish translation in the Spanish television, we’re competing with the Spanish translation in the English television.
The big problem here is that the CVA didn’t include Spanish.
So the first thing is audio description in Spanish has to be mandated.
What I have learned is that the FCC is following the mandate from the Congress. So how to push for Spanish to be included? I don’t know Tom
TR:
Remember, the CVAA or the 21st Century Telecommunications Accessibility Act
requires local TV station affiliates of ABC, CBS,
Fox, and NBC located in the top 60 TV markets
to provide 87.5 hours per calendar quarter.
How’s this for a regulation; AD on everything!)
MV Diaz:
Telemundo Okay, they are part of NBC. NBC is under the regulation, why? Telemundo is not under regulation?
TR:
Hmm good question. But, bad answer.
MV Diaz:
No, because it is not. Period.
But why, if they are under regulation and Telemundo is part of NBC? No,
I became part of the disability Advisory Committee of the FCC, and I was like, I’m ready. This is exactly the place where we’re gonna change the story.
No, no, no, no,. (Said slowly with lots of frustration)
TR:
When it comes to advocating for Spanish AD, it often comes down to priorities.
MV Diaz:
We have different problems in our community, bigger than the accessibility, I have to say that.
We are in a different place in history right now. Our concern is more, jobs, education and immigration. We are trying to fight different fights. We don’t have Latino consumers as organize. The Blind Latino consumers that we have been working with, it is not enough.
I don’t know, my grandma said something, but I can’t translate. How is your Spanish Tomas?
TR in Conversation with MV Diaz:
Well!
— Sample Price is Right loser tone!
MV Diaz:
My grandma used to say just one little bird is not able to call winter.
TR:
There’s power in numbers.
MV Diaz:
The consumer organizations, they know that that’s a problem.
If you have to go to the Congress, or if you have to go to the FCC, asking for specific questions, is going to be like priority number 10, maybe or, let’s say, five to be more generous.
, but is never going to be their first priority. I kind of understand now
TR in Conversation with MV Diaz:
I think that can be said about a lot of communities.
There are definitely people who say, oh, why are you talking about audio description all the time, we need jobs. I get that. I also see a relationship between jobs and audio description, education and audio description.
TR:
Couldn’t these lower priority issues serve as vehicles to elevate those considered higher priority. Especially when putting into context?
That’s what I mean when I say, “Audio Description is about much more than entertainment.
MV Diaz:
Our a Latino community communicates in Spanish. We are trying to have that. In here. We are trying to find our space and our beliefs, our roots, our culture alive.
It is incredible. The amount of kids that are Spanish speakers coming from different countries don’t speak English yet need access and they don’t have the access that they need.
We are working with the DCMP and they are doing a really great job. And we are trying to include some educational titles there. But in entertainment we are really, really far
TR in Conversation with MV Diaz:
I’m thinking about the streaming companies, they’re not obligated under the CVAA. But they do decide to go ahead and stream audio description, Univision, Telemundo, none of them are interested in doing it at all? Have you not been able to talk to them?
MV Diaz:
Yeah, I have talked to them. I don’t know. They think that I’m just a girl trying again.
But no, the thing is that, for example, Telemundo at the beginning, what they told me like three years ago, they didn’t have SAP in the whole network.
So they didn’t want to provide the service for this kind of part of the audience and not to others
We have been working with funds from the department of Ed.
TR:
Those fund enabled Vicky to have one request.
MV Diaz:
We’re gonna provide you with the description. You just have to put it on there.
Even that is really hard tom.
We included audio description but the cable companies. Don’t pass it.
For example, Channel 22. They are an international television channel. They are in DirecTV, they are in
we provided Audio Description. we created all the audio track.
Okay, DirecTV, No audio description. Spectrum, no audio description.
TR:
Cable companies, you had one job!
But regulations do really go a long way.
MV Diaz:
Caption is not that bad. I can tell you because of the regulations. The FCC regulation includes Spanish captions. So we are safe there.
Just because the regulation is there, they just know what it is. They know what it’s about.
TR:
In the rare event that the cable company does pass the AD, you better catch it that first time being aired because it probably won’t happen again. Whether on that same channel or another.
The problem, many of us have experienced.
we know a show or film has AD,
maybe we saw it on one channel or on a DVD,
but another broadcaster or streaming network doesn’t pass it.
MV Diaz:
Let’s try to do it ourselves. And that’s why we started working in a different direction creating technology and creating Access 4 All.
TR:
Access 4 All is a central repository for any accessibility asset.
That’s the actual digital caption, audio description and ASL files for example.
No matter the language! They’re all stored in one location.
Access 4 All serves as a clearinghouse.
MV Diaz:
Dicapta is a really small organization. We need influential organization or powerful organization to believe in the value of a clearinghouse the importance of sharing the resource that we have.
That’s why we are creating like a membership model under the foundation. The idea is for people to come and say, okay, I created this audio description and no matter if you are in Mexico or if you are in London or if you are in Italy, that specific program is going to be accessible.
So that’s the big dream.
TR in Conversation with MV Diaz:
When you say a membership, so for example, Netflix would come in as a member, the BBC would come in as a member, Argentina television would come in.
so they would have a membership. And they would upload all of their audio description tracks to this repository.
MV Diaz:D
So who’s member of this repository right now?
New Day films, some movies from PBS POV and the Spanish content that we are creating with funds from the Department of Ed.
TR:
Plus, it empowers us as users to access the assets ourselves.
MV Diaz:
You just download the app. You just can watch the program with audio description, you can read captions, or you can do the ASL version of the program if it’s available.
TR:
The app developed with funds from the Department of Education, is free!
Check it out!
download the app…
Start the film, while your app is open… And voila!
TR:
Right now Dicapta is working on creating a searchable catalog. Already, they have over 300 hours of content.
— Dicapta audio icon
TR:
That little tune or audio icon was created by consumers of audio description and members of the Dicapta advisory committee.
It’s formed by the notes D, C, A, and G.
D for Description, C for Collaboration, and
A Accessibility.
The sequence finishes with a G major chord that stands for Go!
It includes a graphical element as well.
It’s formed by two purple triangularly shaped capital letters “A”.
The letters are thick and slanted toward each other so that
the adjacent sides are in a vertical position.
A blue number 4 sits over the letter A on the left.
The horizontal bar that goes from left to right on the number 4 matches the horizontal bar that goes from left to right on the letter A and also covers a small portion of the letter A on the right.
MV Diaz:
What we are proposing is to add that icon at the beginning of the program or during our in them guide, just to show that is in the repository.
I have tried to talk to the big players in the industry. But it is not an easy conversation.
my invitation is this Okay, so that if you don’t have a solution, we have one maybe you can use these one or you can start trying it and see if it if it works and if not someone come with a better one, right? But today we don’t have any solution. We are not sharing, we are creating the same track twice instead of Sharing the one that is already created.
— Sesame Street Cookie Monster shares with Elmo
Elmo:
Oh, Cookie Monster would share his cookie?
Cookie Monster:
Yep, it’s against my primal instinct, but you share with me, and me share with you.
TR:
There are some who understand.
MV Diaz:
Nickelodeon. Latin America, we launched a project with them using “Access 4 All” and they did audio description for some shows. And then they are promoting the show.
Maybe that’s kind of the support that we would need.
TR:
There’s more to be hopeful about.
MV Diaz:
the world is changing. And I see a better scenario for accessibility now that the one that I found when I came 15 years ago, the conversation is different. More people knows about accessibility and about the descriptions. So I think that consumers are more aware of that. Okay. Maybe it’s possible. I just have to say, Tom, I really thank Netflix. They are, they are they’re showing different ways. To support accessibility, and they are including Spanish, they are asking for audio description in Spanish to be included.
Hopefully, if they are showing that the assets are going to be there, or maybe somebody is going to decide to share.
TR:
It’s probably worth mentioning that Apple too offers access in Spanish.
I know there are decision makers or at least some who have the ear of decision makers
who listen to the Flipping the Script series, and
hopefully the podcast in general.
I believe many of them are sincerely about providing access because they see it as fair and just.
If you are an independent content creator, I encourage you to talk to Vicky and get your captions, audio description and any access assets on to Access 4 All.
MV Diaz:
it’s supposed to be a membership.
For now Dicapta Foundation, we’re not charging anything to independent producers.
We have a basic agreement saying that you are donating for the Clearinghouse and you’re not charging the user to use. And in case that someone else is interested in having that, that specific accessibility, they’re going to contact the owner to say like, Okay, I’m interested in this audio description to be downloaded to put it somewhere else
I think that we Dicapta, we’re going to concentrate our effort in educational programming and in independent filmmakers.
TR in Conversation with MV Diaz:
Let’s talk about the work that you’ve been doing with a community that’s often overlooked, and that’s the deafblind community. Tell me how Dicapta is serving that community?
MV Diaz:
I invited the daughter of a friend of mine who is Deaf Blind to one of our advisory meetings. We were talking about television and about movies and about access. We were trying one app. We asked her for her opinion, oh, my goodness. She was like… Are you serious?
We don’t have access to television. I haven’t watched television in my whole entire life, how you think that I’m going to go to the movies. And it was really a bad moment in that room.
TR:
Come on, we know by now, Vicky turns these sorts of situations into good.
She reached out to more consumers for input.
MV Diaz:
And so we started trying to, to bring captions to braille displays in a in a way that that they can have some kind of access, those of them that are Braille readers. So that is a minority among the minority and the minority. But given access to the caption streams through braille displays, was the general idea to start working with. So it was like four or five years ago that we started working with that project, and we got funds from the Department of Health. And we were able to produce the solution but then again, the problems came and the industry and the practices
TR:
Of course they did!
Technically, captions on Braille displays is easy. The problem is when your captions don’t include the name of the person speaking. So it’s just an endless stream of words without context.
MV Diaz:
We try to push again, like, changing best practices just include identification of the speaker in the captions or streams just to serve the deafblind community. And so we produce documents and we spread the word in the industry in the caption providers to whoever is creating captions just provide identification for the speakers to make sure that no matter what technology is coming, captions are gonna serve the Deaf Blind community.
[
TR:
The service is called Go CC and provides even more for this community.
MV Diaz:
We work with FEMA to provide emergency alert information.
we work with the Helen Keller National Center. And that’s the reason why the product is as good as it is because we work with the consumers and they created what they needed.
It was not our invention, we just did what they asked us to do.
Next step in that is just to find a foundation or an organization that has all the capacity to share that into the community in a way that we can’t do.
TR:
Dicapta’s expertise is in solving problems and creating access.
MV Diaz:
We put together captions and audio description in stream text to make sure that the deafblind communities serve. So we’re doing that through Access 4 All. So if you use access for all you can use it from your Braille display too. And you can read captions, read the descriptions. And it is done. It is already there.
TR:
The challenge is the speed of that stream of information in relation to the actual film. It could be difficult to stay in sync.
Yes, someone could read the transcript and avoid the movie all together, if watching alone.
MV Diaz:
I don’t want you to go by yourself to the movies, I want to go with you.
Same thing with television, coming from our culture, we don’t do things alone, we do things with families all the time. So it is the idea is to have sync it with the movie, just to make sure that you can be part of a group of people watching the movie.
it is the experience of being with someone else. What is different,
TR:
Family. Friends. Community!
Sharing… y’all feel what’s happening here. It’s about more than access for Vicky.
That young lady who never had access to television, they’re on Vicky’s advisory team.
MV Diaz:
$
I’m here to show you that maybe I apologize. But we do we do better now and then try to do better things.
TR in Conversation with MV Diaz:
Congratulations. I believe you got a television access award. Is that what it was? Tell us about it.
MV Diaz:
Yeah. It is wonderful.
I have to tell that that the Department of Education hasn’t been recognized enough for their support to access. So those who have been working with them, we know that they have spent I don’t know how many millions of dollars supporting captions at the beginning before that, the regulation of captions and then audio description for years too.
But it was really not clear if they had plans to continue supporting description, especially after audio description is already mandated by the FCC.
The educational part of it is not as regulated for the network’s.
So that’s why the Department of Ed decided to continue the program.
We got one of the television access awards. We are so happy.
TR:
We should all be happy!
At least those of us who say we care about access.
MV Diaz:
We’re going to make sure that Access 4 All is a reality. Not just for our community, we’re working with English language content two. So every single hour of audio description or captioning that we create is going to be shareable in our clearing house, and is going to be accessible, no matter if you are watching it in one television station, or in any other is going to be accessible using their app
It’s gonna be five years collecting audio description, collecting captions, and asking others to join this effort.
So at least for the educational programming, I think that we’re going to have very good news to report at the end of these five years.
TR in Conversation with MV Diaz:
Okay, so this is a hard question. What are you doing? When you’re not creating all this accessibility?
MV Diaz:
Laughing…
Oh, I’m playing my flute. I’m learning piano. Okay. They pandemia show me my piano in the middle of the living room.
My daughter’s used to play piano because mom wanted them to be the biggest artists. They decided that they don’t like to play.
TR in Conversation with MV Diaz:
they said that was you Mom, not us.
MV Diaz:
Yeah. So I had this big coffee table in the middle of the living room. Coffee Table.
(Hearty laugh along with TR.)
So I have to decide I have two choices. The first one is just giving my piano to someone that is going to use it. Or taking some piano lessons. Yeah.
And I love the music that you play.
I think that we would go to the same party.
TR:
If you’re throwing a party and
you want to invite a strong advocate and someone who is dedicated to access or
if you want to learn more about the great work taking place at Dicapta, open your favorite browser and point it to;
Tags: Access, ASL, Audio Description, Captions, CVAA, DCMP, Deaf Blind, Latino, Latinx, Spanish, Translation Posted in Access Technology, Accessibility, Advocacy, Audio, Blind Tech, Blindness, Descriptive Movies, Descriptive Television, General, Media, Screen Readers | Comments Off on Flipping the Script on Audio Description – Access 4 All
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Wednesday, April 28th, 2021

Catarina Rivera grew up Deaf. By the time she was comfortable not only using hearing aids but with herself as well, she received a diagnosis; she was going Blind. She just so happened to be getting ready to leave home for college.
Today, she has a Master’s in Public Health and is using her platform, Blindish Latina, to advocate and spread awareness. Hear more about her journey and how you too can be a “Stigma Smasher!”
Listen
Resources
Catarina Rivera.com
Blindish Latina
Transcript
Show the transcript
TR:
Greetings Reid My Mind Radio Family!
It’s so very nice to be back here with you.
If this is your first time here allow me to welcome you and introduce myself.
My name is Thomas and I’m serving as the host and producer of this here podcast which features compelling people impacted by all degrees of blindness and disability.
Every now and then I bring you stories from my own experience as a man adjusting to becoming Blind as an adult.
In case I haven’t mentioned it for a while, my focus here is on those adjusting to becoming Blind. Honestly though, the more I learn and consider the adjustment process, I think the specific disability isn’t as important. Yes, of course, it matters, especially when trying to resolve specific challenges or learn technique, but there can be so much insight to gain no matter the disability.
I tend to highlight those things that I think are especially important for someone new to blindness, but we all hear differently – meaning you may resonate strongly with something said where I may not. I’d love to know if that is the case so, please remember you can always reach out and share that with me by emailing ReidMyMindRadio@gmail.com.
Now, let’s get this Poppin’!
Audio: Reid My Mind Theme Music
Catarina:
I’m Katerina Rivera, the founder of Blindish Latina. I am a light skinned Latina woman with long dark brown wavy hair. And I’m currently wearing blue glasses.
— Music Begins – A smooth chill Hip Hop beat…
When I was about three or four years old, that’s when my parents first started noticing that I had trouble hearing, I think I was walking away from them and then not responding when they would call me.
We found out that I had hearing loss and I was fitted with hearing aids, I went to one year of special education, and then I was mainstream. I still received speech therapy on a regular basis, I had an IEP continuously throughout my education. And for the most part, though, I was mainstreamed.
TR:
Catarina and her family had no explanation for her hearing loss until she was 17 years old.
Catarina:
I was diagnosed with Usher syndrome, which is a combination of progressive vision loss due to retinitis pigmentosa. And hearing loss depends on which type of Ushers you have
TR:
There are three major types of Usher syndrome, known as type 1, 2 and 3. They’re distinguished by the severity of hearing loss, the presence or absence of balance problems, and the age at which signs and symptoms appear.
By 17 years old, Catarina, adjusted to her hearing loss, fully accepted wearing hearing aids and was comfortable in her own skin.
She was on her way to Duke University on a scholarship when diagnosed with vision loss.
Catarina:
When I first got diagnosed, I felt like it was a huge tragedy in my life. It was upsetting, surprising. And it felt like a very big loss. I think that I had to go through the stages of grief in some way. When I was reacting to this, when my parents heard about it, they were very upset. And I felt pain for them. So, I felt like I had to be strong for them.
TR:
Presenting that strength doesn’t give much opportunity to deal with the emotions. Even sharing with friends who often don’t know how to respond doesn’t feel right.
Catarina:
I felt like I was dropping a bomb. I felt really heavy. I don’t tell people, hey, I’m going blind, I find that when I would do that, it would really evoke a sense of pity. People feel sorry for me. And I was feeling bad. At the time, I was feeling bad about it. But as I progressed, in my journey, that language doesn’t resonate with me anymore. It’s not the way that I tell my story. It’s not, it doesn’t feel like a tragedy anymore, but I can definitely empathize with myself at that time.
TR in Conversation with Catarina: 10:05
You never said anything about even exploring the idea of postponing school where I’ve heard from other people, and it would be sort of understandable where someone might, hey, I gotta take some time. It sounds like you still went straight to college.
— Music Ends…
Was there ever any sort of, thing about Oh, okay, maybe I should postpone this because of the vision loss?
Catarina:
That’s a very interesting question. I have not heard that before. And I mean, I get it, it makes sense, every person is going to have their own response to something like that.
I never felt like I needed time away from school.
TR:
Retinitis Pigmentosa is progressive so the early diagnosis didn’t impact her studies as much as the hearing loss.
With an accommodation allowing her to register early, Catarina avoided the large classes in auditoriums and opted instead for smaller classes making it easier for her to hear the lectures.
There was more of an impact on her social life.
And she wisely considered her vision loss in her decision-making process.
Catarina:
I decided not to drink alcohol, because I didn’t want to impair myself any further, I saw that people were really cutting loose, you know, and partying. And I remember thinking to myself is it’s every person for themselves here.
I would focus more on dancing, because I couldn’t hear people when the music was loud, and I love to dance. So, I never stopped myself from having a good time.
TR:
All of this considered, it’s not surprising, Catarina didn’t feel a part of the blind community. For a while she could still drive and wasn’t using a white cane.
It wasn’t until she moved to New York City after graduation and began seeking out community.
Catarina:
When I moved to New York, I didn’t have a job, I had decided to go into the field of education. And I was very motivated to make a difference for the Latino community, for my people. I had applied to a program called Teach for America, where you commit to working in a low-income classroom for two years. And I was very lucky, because not only could I move to New York, to access great public transit, I also was able to go even further than what I had hoped.
I basically got a job as an elementary school teacher teaching third grade, and bilingual education and I was working with students who had Spanish as their first language. It was exactly what I wanted to do, it felt meaningful. I taught at that school; it was in the Bronx.
— Music Begins, a strong, dramatic intro to a driving Hip Hop beat
TR in Conversation with Catarina:
(Laughing) I can just imagine the people who have their preconceived notions, not only about disability, whether it be the hearing loss and the blindness, but then you know, you threw in my beloved bx borrow, okay, you know. And so, then they’re like, oh my she’s, she’s, she’s deaf and blind and she teaching in the Bronx, you say?
Tell me a little bit about how you did your job.
Catarina:
Sure. Yeah. So, I was really happy to be in the Bronx, my fathers from the South Bronx, he’s Puerto Rican. I felt like, Okay, this is like a full circle moment, where I can kind of be in a space that my father grew up in and give back. So, it felt amazing to me.
Now, as far as just some of the logistics, I purposely chose where I was going to live based on the commute to work, I ended up living in Washington Heights, which was just across the river. And I took a bus every day, to my school, I basically only had to walk five to 10 minutes to catch the bus in Manhattan. And I, the bus stop was directly across from the school. So, the only issue that I would have is when I would fall asleep, because it was really early in the morning, and miss my stop in the Bronx and have to walk back. (Laughs)
I also had a really great teacher who also worked at the school who would drive in from Jersey. And so, if I was ready early enough, I would be able to meet her, and she would just pick me up from 100 81st Street and just take me to work as well.
I think people who have preconceived notions of any place need to check that and not make assumptions.
TR:
Word!
There were, however, real challenges of the job that she never actually considered.
Catarina:
One thing that was difficult was knowing who was bothering who, when you have a lot of children sitting there and I’m in the front. It’s very hard, like I don’t have that peripheral vision. So I’m not able to see like filano was poking filano.
Filano is a term for like anybody, like whoever. So that’s how we use it.
TR:
It’s not just behavioral. When young children have questions or want to participate, it’s important that they’re recognized.
Catarina:
That’s something I did do with them. I would let them know and it’s simple, hey I can’t see well. If you have your hand up, I might not see you. So, wave it around. I put it up high, I’m going to scan. I would feel so bad if the kid had their hand up and wanted to talk and I really didn’t see them. That’s demoralizing. So, I would try to make sure They were aware of what was going on with me and I’d give recommendations for what they could do.
TR:
In classroom is challenging enough, but what about field trips?
Catarina:
Generally, on a field trip, the teachers in the front, you got to lead the way, you got to set up the access to the subway present the form to the conductor. That was so stressful for me, because I do well in environments that I know.
TR:
And then there’s dealing with parents.
Catarina:
Phone calls were also hard to the parents being able to hear well, on the phone, I didn’t know about any of the programs that were out there and that I had been able to use now that has somebody transcribing the phone call while you’re on it or use AI for that. I didn’t have any of that. So anytime I called home, it would be maybe a different voice that I had never heard before. I would let them know that I don’t hear well, repeat yourself. And then a lot of times, you know, it’s like parents are speaking in Spanish. So, I really worked on my Spanish as well during that time.
TR:
After three years Catarina left that job and worked for a charter school in Harlem for about a year.
— Music Ends
Catarina:
I realized that in education the way to move up was to move out of the classroom, to become an administrator. And that wasn’t really the way that I wanted to go, I didn’t want my daily life to be about that. So, when I started to become interested in food, and seeing the food that my kids were eating in the classroom and starting to question why they are eating so many bags of chips and candy in the morning.
TR:
Actually, that’s a great question especially coming from the person responsible for educating these young minds.
— Music Ends…
And we should know, proper nutrition impacts your ability to focus and learn.
So, she began researching.
Catarina:
I remember going to Western beef, the supermarket and looking at all the products, the corner store and seeing, hey, the waters all the way at the bottom of the refrigerated case why?
The first part of my journey with food was approaching it from an education lens. I had this idea that people needed to be educated.
I started a community health program in my neighborhood where I started teaching families about health, including fitness and nutrition.
TR:
In addition to the research mentioned, Catarina also has a master’s degree in Public Health and certification in holistic health.
Catarina:
I realized that the system was also a huge force in people’s ability to eat well. And if I focus just on education, I was really missing the mark.
The great thing about working in the nonprofit space is that I did work with kids in the beginning, I was working on an after-school program. But once I transitioned into Program Administration, I realized how much less stress I had in my life, sitting at a desk and working in a different way. Working on partnerships.
TR in Conversation with Catarina:
So, is that the work that you do today?
Catarina:
So, I’m still in the nonprofit space working in food insecurity. And I’m so glad that I’ve had the opportunity to get training and public health, and learn about food justice, and food sovereignty, which are really important ways for approaching the issues with food and what we can do about it. And as part of that, I’ve been able to involve myself in community organizing. And I founded an organization in Washington Heights called the Washington Heights, Inwood food Council. So, it’s in both neighborhoods, Washington Heights, and Inwood. And this group is pursuing food justice in the community, they’re gardening, they’re working with people in the neighborhood of all backgrounds. And the group now exists without me that I’ve transitioned myself out there completely sustainable and continuing to do very good work.
— Transition
— Audio of Catarina from InstaGram:
“Heres a two minute inclusion tip from Blindish Latina. Caption all of your videos…”
Voice Over from IPhone: “Video by Blindish latina”
Catarina from video: “Happy International Women’s Day! I want to tell you about a women I really admite. And, it’s my mom!”
— Music Begins, A Latin influenced Hip Hop groove.
TR in Conversation with Catarina:
Talk to me about Blindish Latina. First of all, explain the name blind ish.
Catarina:
The name blindish Latina means a lot to me, I wanted to showcase my intersectionality the multiple identities that I have, especially because we don’t see a lot of representation of people of color, of Latinidad that within disability. So that’s why I chose a Latina. And the reason I put blindish is because I wanted to give a hint of the fact that blindness is a spectrum. And I know that so many people don’t know this. They think that when somebody is blind, they don’t see anything at all. They don’t have any space in their mind or any concept in their mind of someone like me, who can see really well in such a small window. But I still retain vision.
TR:
The mission of Blindish Latina?
Catarina:
To smash disability stigmas through storytelling, through training and through advocacy.
TR:
Right now, all of this takes place on Instagram.
Catarina:
I talk about my own disability journey. And frequently share stories even about things that might seem small to me. And like something that nobody else would be interested in, for example, I did a video about swimming with hearing aids. And just talking about the fact that I have to be concerned about where I put my hearing aids, when I go swimming, and that I get really scared about somebody stealing them off the beach. So, I might leave them at home, and then not here for hours. But I got so much response on this post that other people feel the same way.
TR:
It’s not always specific to the Deaf or Blind community.
Catarina:
I also share about disability awareness in general, for example, self-identification.
TR:
For example, the debate over using identity first language versus person first language. Identifying as a Blind person as compared to a person who is Blind.
If you gather the right people, this could be a full podcast episode, but Catarina’s point is that it’s up to that individual how they choose to identify.
In addition, she’s sharing best practices and awareness of all sorts of advocacy issues.
TR in Conversation with Catarina: 49:45
What is it that made you become more interested now, in sort of connecting with the cross-disability community?
Catarina:
One thing that made me interested was the documentary Crip camp on Netflix about the disability rights movement, and the story of this camp that brought people with all different kinds of disabilities together in the 70s.
People of all different kinds of disabilities coming together to take these actions. And it really occurred to me that I had not been in a space like that. It’s something that has been inspiring.
TR:
Catarina’s been involved in some of the digital communities, but it’s not as personal.
Right now, she’s focusing on taking Blindish Latina beyond IG.
Catarina:
So, one of the things that I’m doing with Blindish Latina, is public speaking, and offering workshops, and speeches. It’s very important to me to grow my impact and be able to talk to corporations and institutions about disability awareness, why they should care about disability and accessibility, and the actions they can take to create an inclusive workplace and implement best practices. So, this is a major component of Blindish Latina and where it’s headed.
— Music ends
TR:
Catarina is hopeful that corporations will be receptive to her message. Especially considering the attention being given to diversity equity and inclusion initiatives.
This is where that smashing comes in.
— audible smashing sound
Catarina:
I think for me smashing stigmas, or being a stigma smasher was exciting, because it was action oriented.
I’m all about actually creating change. I’m not on Instagram just to talk or post photos of myself or get likes, I’m on there to share best practices to activate allies to move people along this continuum, where they are now going to operate differently and make an impact on their sphere of influence wherever they live.
TR:
Check out some specific advice for allies or accomplices who want to work with the community in smashing stigmas, straight from Blindish Latina.
Catarina:
People have this idea that being an ally is a huge undertaking.
I’ve broken it down into three simple steps. One, you have to care. You have to believe that it is important to be aware of accessibility to do better.
Second educate yourself. You can learn without putting the burden on people with disabilities to teach you, there are so many people producing content, you can engage with them, follow them, this podcast is a perfect example. Books, websites and trainings and presentation. So, you can do a lot of self-education.
— Music Begins, a triumphant smooth Hip Hop groove
TR:
The final step doesn’t actually require a lot of expertise or going far beyond your comfort zone.
— Smash sound —
Catarina:
Wherever you exist. Whatever community you’re a part of you can take action. For example, if you’re part of a church community that’s going to have their masses on zoom, you can advocate for a platform that has closed captions, and speak up and say, Hey, we should consider this other option.
If you are managing your staff, and you’re going to have a meeting off site, you can create a registration form for people to RSVP. And you can have a question in there that says, what accommodations Do you need, and it can be anonymous. And you can create a space that is welcoming. That’s taking an action that’s being an ally.
4TR in Conversation with Catarina:
You see what you did there? You still teach Academy.
— Catarina and Thomas share in a laugh.
TR:
That’s the value of experience. The ability to apply what we learn throughout our lives in different areas. That’s wisdom.
Showing the world who you are. All aspects.
Catarina:
One of the reasons that I started Blindish Latina was to show that I am here, that I am a professional, disabled, Latina woman and I exist. I don’t think there’s a lot of representation of all of those dimensions of people who are disabled and are not white, of people that are disabled and are in the workforce, especially for people with blindness. I feel like there’s a lot of assumptions that blind people cannot work. And there are many of us in the workforce. So that’s why I use that term professional. Look, I’m here educated. I have two graduate degrees. I was Valedictorian of my mph, like, Come at me.
TR:
Better come correct!
You can check out all of the content including best practices, informative videos with captions, images with alt text and more on Insta Gram @BlindishLatina. You can also connect with her via Linked In by searching by name, that’s Catarina Rivera (spelled out)
Catarina:
And I have a website as well. CatarinaRivera.com
TR in Conversation with Catarina:
So, I don’t know if you know, but the fact that you are on the Reid My Mind Radio podcast. That means you are now officially part of the Reid My Mind Radio family.
You perfectly aligned with what we are doing. And so, if I could borrow your turn because we’re trying’ to smash it up too.
(Laughs…)
— Smashing sound…
Catarina:
Love it!
TR:
Some great take aways in this one y’all!
Like using our experience, talents and interests to create impact.
Shout out to Catarina! We’re rocking with you Sis!
Continue to follow what’s happening here on Reid My Mind Radio wherever you consume your favorite podcasts. I hope we can one day make your list.
In the meantime, tell somebody you love or at least like a lot or even if you have no real feelings for this individual, let them know you are part of the Reid My Mind Radio Family. Let them know we have transcripts and more at ReidMyMind.com. Now this can be a challenge for some so be patient and no matter how long it may take, explain that it’s R to the E I D…
(“D and that’s me in the place to be” Slick Rick)
Like my last name!
— Music ends into the outro
Audi o: Reid My Mind Radio outro
Peace
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Tags: Blind, College, Deaf, Disability, Education, Food Justice, Hard of Hearing, Intersectionality, Latinex, Retinitis Pigmentosa, Stigma Smasher, Teacher, The Bronx, Usher Syndrome Posted in Accessibility, Advocacy, Audio, Blindness, General, Media, PWD, Screen Readers | Comments Off on Smashing Disability Stigma with Blindish Latina, Catarina Rivera
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Wednesday, April 14th, 2021
Whether you’re someone adjusting to blindness or a creative person with a specific vision, sometimes being blind to those trying to alter your goals is what’s required.

Musician and artist Isaiah “Envizion” Woods became Blind while in his second semester in college. By the next semester he was back on campus, despite the advice from his counselors.
Hear what helped this young Musician/R & B Artist/Rapper walk his own path in the pursuit of his goals.
Plus, do you know about that Go-Go?
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Resources
Transcript
Show the transcript
TR:
Whats up Reid My Mind Radio family!
Back again and right on time!
FYI:
Some thought we should have been here last week, but this podcast is being published on the second and FOURTH TUESDAY of the month.
In most cases, I’ll let you know if I’m taking a break because we family and that’s what good families do — communicate!
So `wlet’s start the conversation!
Audio: Reid My Mind Theme Music
Envizion:
My name is Izaiah Woods, I go by RoZae in the gogo world. My stage name is also envision that’s an r&b title. I’m from the DMV, from Maryland to be specific.
TR in Conversation with Envizion: 57:49
Your spelling of envision, do you want to break that down? Because I’m seeing Zion in there.
Envizion:
SO, it’s just basically the Z cuz my name is Zay. And I always do that. And to be honest, InVision wasn’t my initial name. It was Vizion. But somebody had that name. I was like, What can I go with? Because I still want that. And I was like, Envizion. It just came out and stuck. Like a magnet to a refrigerator.
TR:
Envizzionn appears conscious about the type of energy he himself puts out in the world.
Envizion:
I’m an enthusiast for inspiration. I love to spread love and light. And I like to be an inspiration to those who are struggling with putting their best foot forward and beginning on a journey that they have a lot of passion for
TR:
Let’s begin with a glimpse into Envizion’s journey. Including aspirations and interests like sports…
Envizion:
I enjoyed driving. Love dogs, German Shepards to be specific. I had a few of those.
I played the piano and the drums. Not just the traditional drum set, but also the Timbales, a Latin percussion instrument as well as the Congas.
— from later in section —
I began when I was probably 12 or 13. My mom signed me up for drum lessons. And then my dad surprised me with a drum set. And from then on, I was just like, yeah, I want to play.
TR:
He’s about more than playing.
Envizion:
Really family oriented, went to church and always been a strong believer in the Lord.
I aspired to go to school, college after school.
— Ambient music
TR in Conversation with Envizion:
Tell me a little bit about how you lost your sight. Now, let me tell you, you share as much as you’re comfortable. I don’t make these types of pieces fully about the vision loss. Sometimes it’s irrelevant. SO, share as much as you want.
Envizion:
Oh, no doubt. I’m pretty transparent about that. Because I tell people all the time, like my story is mine, you get it? I don’t have any shame in or about what happened. Because at the end of the day, what ended up happening? happened and I’m still here.
I was a second semester freshmen at Boise State University. And I came home one weekend in April of 2011, to get my brother situated for his prom that weekend. We were coming from the barber shop and we stopped at the gas station across the street, to get something to eat and ran into somebody that I had issues with.
TR:
In addition to being a musician and singer, Envizion has bars… he’s a rapper.
He shared this verse with me taken from a performance he did with a friend on a Gospeltrack. It summarized the events that followed.
I want to be mindful of anyone who may be triggered by violence. If this is SO, please just fast forward about 50 seconds.
Envizion:
Lord, now if it wasn’t for you, I’d be sorry behind bars or locked away in a tomb
See, for a while I was doing whatever, they say birds of a feather flock together. That’s when the devil has room
But see me, huh, I could have been dead and gone. Came home one weekend to get my brother ready for prom.
We stopped at the store to eat and seeing somebody we dislike took across the street and we was prepared for a fistfight.
We started walking towards him, but he had a gun in his hand. I blacked out he shot once, my brother’s turned back and ran
16 that he popped up was 15 that he missed. Everybody thought Zay was dead and he would surely be missed.
He shot me right in my dome in the front of my home with a nine millimeter Chrome. But now my vision is gone.
And my father kneeled and told me son pray to the Lord.
And I said, Jesus, Jesus, Jesus, I need you.
And that pretty much sums it all up.
TR:
It sums up the cause of his blindness, but let’s be clear, it doesn’t sum up the man.
Envizion:
What’s so good about God is the fact that I didn’t lose my mind and the way that your senses operate. Yeah, everything that I could hear literally provided a picture for me.
TR:
And he had his family.
Envizion:
My next memory was me laying on the chest of my mother, she was just kind of cradling me.
And it hit me that I had been shot. And it also hit me that I was still living. And I cried so hard, thanking God, that I did not die. I never felt such a strong sense of gratefulness, like, I was so grateful to be alive. I don’t think anybody could really understand that feeling until they’ve gone through something where they could have lost their life. The gratitude was just through the roof.
TR:
One way of showing that gratitude is to resume life.
And that’s exactly what he did. The shooting occured in the spring and Envizion was back in school for the fall semester.
— Music begins – Bright calm melodic beat…
Envizion:
And I was ready to go. However, they set me up with a DORS counselor.
TR in Conversation with Envizion:
What is the DORS? You said DORS?
Envizion:
Yeah, yeah. Division of rehabilitative services.
Everything with blindness has that …
TR in Conversation with Envizion: 20:30
Yeah. some
acronym. (TR and Envizion say simultaneously and chuckle…) YOU gotta get familiar with all of them.
Envizion:
All of them!
TR:
Those acronyms are just part of the process of educating yourself with the available services.
TR in Conversation with Envizion: 21:08
How did you know? How did that happen? Who knew to do that?
Envizion:
I will say my dad, he is my largest advocate. My mom is too. But you know, she works and does more like, you know, office work. She’s occupied. But my dad, he goes hard for me, man. And he will always be calling and trying to find out information, just to get me help so that I can learn how I can help myself.
TR:
Shout out to Dad for that!
And to Envizion for that understanding that he would have to help himself.
Envizion:
No matter how much somebody is saying that they’re going to work on your behalf, you have to be able to advocate for yourself.
Self advocacy is the biggest thing, like when it comes to someone with a disability or not does anyone technically but when you have a situation where you’re dependent on someone, you have to have it within yourself, because they will begin to try to dictate your future based upon their education. And the most difficult thing for a sighted person to do is be blind, because they don’t know how to be. So as much as they empathize with you, you gotta have it within yourself to say, Hey, this is what I want to do. And this is the way that I want to get it done.
TR:
For Envizion that meant going back to school. Meanwhile the counselor suggested he postpone school and get independence training first. But Envizion had his reasons.
Envizion:
I’m in school with my peers, people that I graduated high school with, like, I want to do that, like that camaraderie, and just the whole image of in feeling of being around people that are similar in age to me and stuff like that, like, that’s what I want to be a part of. And she did not want that for me at all. SO, I did what I wanted. And I went to school.
TR:
Beginning with DORS in June, by the time the fall semester came around, Envizion didn’t have much in the way of computer training.
Envizion:
It was scary. But I was ready.
I went up to the school and talk to the people with disability support services. They assigned me a note taker. And everything just happens to work out just the way that it needed to. God is so good. And he’s all the time.
My first note taker was a girl named unique that I actually knew of.
TR:
They sort of met the summer before his Freshman year in a PRE-COLLEGE program.
Envizion:
I introduced myself to her because she was cute. I introduced myself to her when we were in that summer program, but nothing came up. And I was familiar with her.
We hit it off phenomenally. And that’s my friend to this day.
— Music ends…
TR:
In addition to his friend Unique serving as his scribe, Envizion received assistance in completing course work and getting around campus.
Envizion:
it got better and better each year, because I got more and more confident and more independent.
Self advocacy is a big thing.
I’m gonna tell you what I need. And I’m gonna tell you what I don’t.
I would always have to set the parameters for the relationships between my teachers and I or my professors and I, because one thing is that you’re not going to try to pacify me, baby me. But then another thing is you’re not going to treat me like a slave.
I definitely will advocate for myself and I will go back to the guidelines. The contract that you signed.
TR:
He’s talking about the agreement to have access to note takers, extra time for assignments or test taking etc.
Contracts are one THING BUT speaking with Envizion highlighted another part of self advocacy that we don’t often speak about.
Personality.
Envizion:
My upbringing was always to speak up, and not in a disrespectful way.
My mom has always been just a huge influence on me as far as being articulate, being attentive, and speaking to where I don’t waste my words, say what you mean. And mean what you say
TR:
For example, one of Envizion’s professors who gave him a hard time.
Envizion:
ACTUALLY, two of them. I ended up becoming one of they’re favorite
TR:
The issue with one in particular.
Envizion:
He just thought that I was an angry person. Because I got shot. And now I’m blind.
You can’t project how you would take this on me. I’m living and I’m here to get an education. You got to help me get that. Me breaking that down to him and him seeing my work ethic, seeing my test score and seeing how I complete my assignments
TR:
The other side of that is actually being personable. For Envizion, he uses his sense of humor to charm.
Like the time in class after the professor projected an image on to the screen and asked “Can everyone see the image?”
Envizion:
I’m like, Can you can you brighten it up and enlarge it a little bit? I’m nearsighted.
He didn’t know that I could take light. You know, he didn’t know that. He didn’t know that at all. SO, him becoming aware of that. It made him happy. It made him really happy.
He almost cried one day talking to me because he appreciated the joy that he didn’t know that I had then.
— Triumphant Hip Bewat begins….
TR in Conversation with Envizion
You graduated?
Envizion:
Yes, sir. In 2016, Cum Laude. Three point five cumulative GPA, I was excited, I had to FIGHT FOR that one.
TR in Conversation with Envizion
Salute! Nice!
Envizion:
Yes, Sir!
TR:
Envizion has no regrets on the choices he’s made.
Envizion
I feel like I made the right choice by going to school first, because I grew a lot and I met a lot of people that I still have to this day.
I wouldn’t have been able to come in contact with a guy named Jeff Gittens. He was the assistive technologist for the disability support services. He actually passed away a couple of years ago.
I wouldn’t have had the opportunity to meet him. It was a lot that I went through that I needed to go through.
It may not have all been perfect, but you know, the hardships that will really make you
TR:
Young Mr. Woods had the chance to share some of that knowledge with others also experiencing blindness.
Envizion:
I went to blind industries and services of Maryland, which is a company that helps blind people just get reintegrated back into society as far as independence is concerned. SO, I moved to downtown Baltimore.
I got through the program learning how to travel through the city, by bus or Uber or Mark train or light rail. They call it the trolley. I finished the program, but I did great.
after I successfully completed my training program, I got really close with one of the managers there, named Melissa Lomax. And she was the youth coordinator. And she would tell me all the time, yeah, I work with these students. And I tell them a lot about you. They can’t wait to meet you. Would you like to work on one of our workshops one weekend?
TR:
He said yes! And that weekend, turned into a month.
Envizion:
I went to the workshop and basically explained to them what it was that I’ve done and how I made it through the program, what I like, like fashion and how I like music. And those kids, they gravitated towards me.
I had two students that live with me in a dorm or it was like an apartment. I taught them how to cook, safety techniques. And there’s a lot that we went through and they kind of like little brothers to me.
TR:
And then, there are other ways to influence people.
— Music ends…
Envizion:
My goal is to inspire people. My goal is to bring back meaning to music.
People used to make music and a music video will be so telling. Or when you heard music, you could create your own visual, like, while you’re listening.
TR:
As a drummer and percussionist, the lyrical writing process for Envizion all stems from the same place.
Envizion:
It’s a feeling. I hear the beat. I just get inspired by whatever it is the beat gives. A good beat a lot of times it’ll produce a melody. And that melody will come with the words like you know, the energy of the song.
TR in Conversation with Envizion: 53:24
how prevalent is blindness within your music?
Envizion:
I featured in this song called “Money on the Line. (Laughs…) And I said a little cleveer thing now… I have this tag where I say (singing…) I don’t see nobody.
I don’t know why. I mean, its trueI’m Blind you know what I’m saying? It’s me.
(TR laughing…)
TR:
But we know it’s also a play on words.
Envizion:
It’s a hater blocking term. Yeah, really. I’m blind. It’s all of that. And when you’re on your way to the top two, you don’t want to be focused on everybody.
TR:
There’s all types of distractions.
Envizion:
(Singing…)”Girls on my line. I said I’m not wasting a dime. She said boo, can’t you see I love you? No baby. I’m blind.”
TR:
We’re so used to NON-BLIND people using blindness as a metaphor in ways that conjur negative feelings
Envizion is using the term to empower. Saying I’m not paying attention to anyone trying to take me off my path. In fact, being Blind to you meaning, empowering myself.
While he has his tag line, he doesn’t play on the blindness much.
Envizion:
I really own my blindness. I really feel as though my blindness has granted me the ability to really envision true beauty. I’m able to see people’s hearts, I’m able to really test and know who you are from the inside.
I’m just a realist.
When it comes to music, I don’t force anything.
I don’t want to tell you how to feel when you listen to my stuff. I just rather give my perspective. And then you take and do with it what you will.
TR:
We know he RAPS; we heard his bars earlier. He sings R & B,
TR in Conversation with Envizion:
Do me a favor, talk a little about Go Go. I know a lot of folks don’t know about Go Go.
Envizion:
Go Go is dc, dc, Maryland and Virginia. originated by Chuck Brown. Inspired by like African, tribal music and feel like a little bit of gospel and blues and jazz. SO, it’s like a swing starts from a pocket beat.
Prime example. Jill Scott song. Do you want it on your rice and gravy?
— Insert song…
She got that from gogo.
But then it breaks down. There’s sub genres. You have the crank circuit, which more so sticks to the traditional side of gogo. And then you have bounce beat, which is like like what I do is for the younger generation, originated by the late Polo, rest in peace to him.
Go Go music, it really like is the heartbeat of DC.
TR:
Go Go found it’s way into the mainstream through songs like Doin’ Da Butt by EU and multiple hits from Salt n peppa…
Envizion:
I play for a GO-GO band, ABM, all about money.
and We also go by The M, which is a much more mature way of presenting ourselves.
We also take current songs and popular songs or old songs. And we just mix it to a GO-GO Beat.
TR:
Like Hello by Adel, remixed to a Go Go beat by Backyard.
— Music “Hehllo” by Adel covered BY BACK Yard
Envizion:
Nice song that kind of helps people to get warmed up into what it is because sometimes it can be a little aggressive.
Like, how rock and roll is to some people that don’t understand it.
TR:
That’s something I think many of us can relate to.
TR in Conversation with Envizion: 43:01
Before you were blind, what do you see, if any, any differences in the way you are perceived? And how people deal with you, how they approach you, how they interact with you?
Envizion:
I feel like I exude a different type of confidence. Now. I don’t feel like I’ve had more I don’t feel like I was more confident when I when I had sight. Although I was confident. I just walk WITH; I just work with more purpose now than I did before.
I had a lot of insecurities. As a sighted person that I used to hide them.
I just walk and talk different now.
I’m pretty easy going.
However, there was a lot of people that were intimidated by me when I was sighted. Why I never got it. But once I went blind, let me tell you… so now you think I’m weak and vulnerable. Now you think I’m easy pickings.
There are some people that try to get a feel for me. They’re trying to feel me out. They’re kind of close but kind of far.
Certain people really try to figure me out. And I’d be like, I see you looking like I just feel it. Like I know. What’s up. Nice to meet you. I’m still people, you know, I just can’t see. I’m blind. That’s it. Don’t get it twisted.
TR:
That’s an attitude we all can use. Even if you are more than just Blind, be confident in whatever you bring to the table.
You can check out Envizion’s music on Apple, Spotify, Tidal…
Envizion:
Better yet go to my Instagram. The Real Envision envision it has two ends with T H E R E A L E N V I Z I O N N.
In my bio, I have a link to my link tree and all of the links of music that I put out there.
my most recent single is call everlasting. We’ll be shooting the video soon is actually going to be my first video.
TR:
You can also find Envizion on Twitter, except it’s with one N at the end.
TR in Conversation with Envizion:
Envizion brother, you know I got this thing that I say, you know once you come on Reid My Mind Radio you become official part of the Reid My Mind Radio Family so Salutes brother, welcome!
Envizion:
Thank YOU, BRO, thank you. I’m …
TR in Conversation with Envizion:
Absolutely!
Envizion:
Glad to be a part, glad to be a part. Shout out to you I appreciate you for the opportunity.
TR:
Isn’t that all any of us really want? Opportunity? But before it arrives, we have to make sure we’re ready for it.
Brother Izaiah, had that drive following vision loss.
I’m not just talking about the will to live as in breath and remain on earth. Rather, self determination to follow his own path. Pursuing those things that he loves and appreciates.
I respect and admire that. Especially considering all of the self doubt that can accompany blindness.
If you feel the same, go ahead and let him know. You can also reach out here via ReidMyMindRadio@gmail.com. Tell a friend, a loved one a co-worker, co passenger or even your Uber driver to check out the podcast. Let them know they can find it WHEREVER they consume podcasts and there’s transcripts and more on ReidMyMind.com. Now the tricky part is you have to let them know, it’s R to the E I D
(“D! And that’s me in the place to be!” Slick Rick
Like my last name.
Audio: Reid My Mind Outro
Envizion” Baby I’m Blind… I don’t see nobody!”
TR:
Peace!
Hide the transcript
Tags: Baltimore, BISM, College, Drums, Go-Go Music, Percussions, R&B, Rap, Singer Posted in Accessibility, Advocacy, African American, Audio, Blindness, Family, JAWS | Comments Off on Envizion – I Don’t See Nobody!
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Wednesday, March 24th, 2021

Lachi is a Recording Artist, Writer, producer … someone who grew up with Low Vision and now is going Blind. You may have expectations as to how someone would react to such news… You’re wrong!
Hear how the power of music and people helped Lachi expand her confidence and develop her own view of blindness and disability. And of course, there’s the music and much more!
Listen
Resources
LachiMusic.com
The Off Beat
Transcript
Show the transcript
TR:
What’s up Reid My Mind Radio Family.
I hope you all are doing well.
Feeling good. feeling like things are going your way.
Me? I’m good! I’m here with y’all!
Sometimes, we know, things change up.
That’s one reason for this podcast.
Where we feature compelling people impacted by all degrees of blindness and disability.
What we learn from the experiences of others can help us draw up our own plan
Because when things seem to fall apart you don’t just scrap your plan… nah, you just go out and make yourself some bigger plans!
Check this out!
Audio: Reid My Mind Theme Music
— “Not the One” Lachi, Michael Herrick
TR:
You’re listening to Not the One by Lachi and Michael Herrick. Lachi is an award nominated recording artist, writer, producer…
Lachi:
film producer, published author. I dabble in acting, I dabble in modeling. I am part of the Recording Academy advocacy Committee, which I’m very proud of. And I am also a speaker on the respectability National Women’s speaker’s bureau. I am trying to also be a YouTube star. And also do everything under the sun that anyone will allow me to do.
TR:
Allow?
As far as I can tell, I don’t think she’s waiting for anyone’s permission. Nor should she!
Lachi:
If I can give myself a really quick image description. I am an African American female. I have long hair, most of its mine, not all of it. That is curly and goes down my back with highlights. And I have big crazy, bodacious smile.
TR:
You can hear that smile when you get into a conversation with her. Even when the topic is something that most people wouldn’t smile about. Going Blind.
Lachi:
I was born legally blind. Always had to use adaptive technology. I’ve always had to sort of struggle with meeting other people that would be able to relate to me and things like that.
More recently, I did receive yet another diagnosis that is putting me on a path from low vision to no vision in a matter of years.
TR:
Her response to those who expect a different sort of reaction to the news.
Lachi:
I’ve been blind, so going from slightly blind to fully blind isn’t as traumatic for me as perhaps it might be. Or maybe I just haven’t really swallowed the pill fully. But I just been on that path already. So getting that diagnosis while it was quite a bit of a shocker. I wasn’t sitting here going, Oh my gosh, I’m gonna have to change my whole life around I mean, I already got the cane. I already got the large print, I already have sort of things that I would need to access the things I need. So the transition isn’t going to be as hard. But I will say it is a different beast. So I will acknowledge that going from low to No, is definitely a big step. And I just maybe I’m just not ready yet. Maybe I haven’t accepted it yet. And that’s where I’m at.
— Music begins and rises to a smooth beat. —
TR:
That’s where she is now.
We learn from our past, so let’s go back.
[TR in conversation with Lachi:]
Where did you grow up?
Lachi:
I tell people I grew up in the widest parts of upstate New York, the black is parts of Philly, and I Southern belt it down in North Carolina. So I’ve been all over the place. And I got all types of attitudes inside me depending on which me you get at what time and so people say, Well, you don’t have a New York accent or southern accent. I’m like, I have them all balled into one.
As much as I wish I had like childhood friends from kindergarten and this and that. I do appreciate the fact that I moved around a lot. But I have spent the last nine or so years here in New York, okay.
I’m New York to the heart but I got love for all!
TR:
Growing up with Low Vision, Lachi was the sixth of seven children.
Lachi:
The four older ones were girls. And the three younger ones were me and my two brothers. So I was really one of the boys.
We’d run around and play, we get hurt, we do whatever.
I was put into public school, I was not necessarily treated as a child with a visual impairment. Yes, we did have social workers and things like that. But I didn’t actually have the opportunity to get to know too many other people in my situation, whether it be blindness, whether it be other forms of disability.
TR:
Lachi received accommodations like extended test taking and adaptive technology such as magnifiers, CCTV’s and a monocular to see the board.
Lachi:
Because I held things really close, instead of thinking that I couldn’t see, they thought that I had maybe some other sort of other social issues or psychological issues.
It gave me sort of a complex of always trying to prove that I knew what I was doing. I was trying to prove that I was intellectually sound.
I was always sort of a creative kid. But there was never too many outlets for me to hang out with other kids and create with other kids and collaborate with other kids just because I was super shy and this and that. But I did spend a lot of time on my own just kind of drawing, writing and cultivating my musical skills really.
TR:
Being one of the youngest children in the family, Lachi benefited when her older sister lost interest in music. With access to a keyboard, Lachi found a passion.
Lachi:
I’d have all these little dolls and stuffed animals and I’d line them up, and I would make them sing all the songs I wrote. And I’d be like come on Alto section, now y’all know y’all messing up.
But they were very good listeners.
I’ve been writing and playing the piano ever since I was just, I can’t remember.
TR in Conversation with Lachi: 22:03
black families don’t necessarily always promote creativity in the arts. When I meet people who started off and seem to get that support from their family, I’m always interested in that, because back in the day, it was really like, Nah, you know, you got to go get a job And this is not going to pay…
Lachi:
You know, I mean, I did kind of glaze over a lot of that. You are, I’ll tell you right now, you are not being old school. That is definitely a real thing. Not only a black family, but most certainly in immigrant families, I identify as an immigrant family, because my parents both came over from Nigeria, in sort of the 70s 80s. And all of my older brothers and sisters are all nurses, doctors (says with over exaggeration and laughs) so I did get that as well. Part of the being blind, part of the being visually impaired, and being the only one with this visual impairment in my family did give me a little bit of leeway as the black sheep like, oh, okay, maybe she can be a little piano virtuoso, but at the same time, I was also very good at math. So I know that while my mother was very encouraging, of me just kind of doing whatever. My father was very much like, we need to cultivate this math thing you got going on, you better be you an accountant, you better be you some kind of financial, whatever.
TR:
She tried majoring in business in college for a bit.
Lachi:
I even dabbled in biology until I realized I was not going to dissect nothing. Sorry. Not with these nails.
TR:
Those nails and the artist they’re attached to had other plans – which became clear while at the University of North Carolina.
Lachi:
Every Saturday I would go down and play the piano in the dorm. And it was funny, because that began to blow up into people just always coming through Saturday evenings waiting for the piano girl to come and play the piano. It started turning into frat boys coming back from parties, or people going on dates kind of just hanging in lounging in the common area listening to me play the piano, and it really blew up in a major way.
It really did start out with me just playing. And then a friend or two would be like, hey, do you know that one song? Or do you know this and that, and then just got to a point where people are just yelling out Freebird.
TR in Conversation with Lachi:
Now now you just said which dorm you were in by the way. (
— Lachi and TR share a hearty laugh!
TR:
These Saturday night dorm performances helped increased more than Lachi’s popularity.
I started becoming more confident. Because I was sharing my talent with other people and people were going, Wow, you’re good at something. And I was like, Oh, look, I am and other people are telling me I am. I started getting that outside validation. I went to a counselor, and I was like I really want to pursue music. What do I do? And he was just like, moved to New York. You supposed to tell me to take like music theory classes or something. So I did!
TR:
Move to New York that is!
Arriving on bus in the big city, you know, sky scrapers and everythang! Her first stop.
Lachi:
I went to NYU and that’s where I started to meet some great guys out in things like Scoring for film, and things like that.
So I did get to meet a bunch of really great people. But when I say I really got into collaborating, was when I decided, look, I want to put a band together, I want to put some songwriters together. And so I really did just go out there and just start meeting people. Like it was amazing how much I just opened up as soon as I moved to the city, and would just be able to go up to people and go, hey, let’s you and me work together. And, and things began to kind of blossom.
TR in Conversation with Lachi: 17:05
You started off earlier, though, by saying you were shy. What’s the relationship between being shy? And then that creative spirit? Like, was that just that strong? Or was there a process? Because I think that, people adjusting to blindness, that could make somebody shy.
Lachi:
Yeah!
Whether you are born visually impaired, or whether you lose it later in life. And you don’t know other people in your space, you don’t know other people in your situation, you feel different, you feel misunderstood, you kind of feel alone
, you feel like you can’t really relate to others,
no matter how good people are trying to be to you, no matter how inclusive and everything, if they’re not really similar to your story,
the first place you go is well, you don’t really get it. And so you kind of coop up. And so that’s kind of where I was, like I did have friends, I did have a lot of support at home. And people you know, I was bullied, like everybody’s bullied. And I have some pretty crazy bully stories. But I can’t just sit here and complain too much. I did have some love. And regardless I was still putting myself in a shell. And that shell just could not stick when it came to me creating music. No matter how hard I tried to box it in, it brought me out
I was playing the piano in college for myself.
TR:
It’s so important to have something we enjoy doing. We’ll do it more and therefore, we get better. The result, confidence!
Now add the power that comes from meeting other people with disabilities.
I’m especially talking about those you can relate to. Those who share your interests.
For Lachi, it started with Visions.
Visions Center on Blindness that is…
Lachi:
It’s a camp. So you do all sorts of different activities, not just learning technology. I got to meet a bunch of people. Myself, being a musician, it was great to meet other musicians with blindness. And a lot came out of that.
TR:
Like the chance to create.
Lachi:
He played guitar. We were collaborating so much together. We decided we were just going to go to South by Southwest.
TR:
That’s the annual music , film and cultural festival that serves as a way of really introducing new artists to both fans and executives.
Lachi:
Right before we left, I ended up writing to a bunch of labels to be like, Hey, we’re going to South by Southwest, you should check out our show. Don’t ask how I got your email just come through. (Laughing…) And of course, I got no responses. But we went to South by Southwest, we played a few bars, it was a lot of fun. And funnily enough, at one of the shows we did, some guy came up to me and was like, I really loved what you guys just did, even though it was just vocals and guitar. Here’s my card. Call me when you get back to New York.
It turns out he was an A & R for a label under EMI. And it was just amazing. We had our meetings, we had another meeting, we had a third meeting, and then we eventually got signed.
TR:
In addition to being an artist, Lachi’s a producer with her own studio.
Lachi:
I am a Pro Tools girl. I use sort of a bunch of Antares plugins. I am a girl that has my computer, right at the edge of that desk, and I am two inches away from my screen. And it’s so funny because people will come in of all sorts. I mean, people have high celebrity to just independent artists will come into my studio, and the first thing they think is, uh, okay, let’s see how this goes.
— “Go”, Lachi
Lachi:
Couple years ago, when I first started really opening up my studio to other people, they would come in and then they would be a little alarmed.
I did get to a point where I did preface it with people. As soon as they came to my studio, I’d be like look I’m just going to tell you right now, I’m visually impaired and legally blind. But you came here because you heard my samples.
I will be all up in the screen, but I do use all shortcuts. Everything is shortcuts shortcut shortcut shortcut.
TR:
She makes it work for her. It’s not about the process, rather, it’s all about the art she’s making.
Lachi:
Ever since 2016, you’re going to get EDM, you’re going to get dance, you’re going to get trance, you’re going to get pop dance, you’re going to get things of that nature. But if you start listening to some of my older music, you’re going to get sort of more general pop, or pop rock.
As I got more confident, my music gets more confident, my messages get more confident. I don’t know, I really started to enjoy the whole, like, badass female sort of perspective. And I started to identify that way. And so my music kind of takes that journey.
TR:
I was curious if Lachi had ideas on how she would adapt to non visually making music. Yet, I was hesitant to ask because when she first brought up her diagnosis, she admitted that she wasn’t giving it too much thought. She later added that the gradual nature of the loss may also be a factor.
Lachi:
I don’t even notice it until I, you know, go into my doctor every six months, and he’s like, dang, girl, you really can’t see the big E.
TR:
The actual sight loss is gradual. Some other things become apparent when it’s gone.
Lachi:
it’s not really something that has hit my, my inner realm. I can’t necessarily tell you why. But I am sitting here trying to, you know, trying to psychologically figure that out myself, I actually think that that’s a very interesting thing about myself that I’m not freaking out about it. But I’m looking at it from a business perspective, instead of from a personal perspective.
TR in Conversation with Lachi:
And you know, you can do both.
All I guess I really want to tell you is that you know, you do your thing. But I want you to know that you have lots of options.
Right? That’s what I want you to know. You have lots of options.
You gone be fine!
TR:
Honestly, I think Lachi already knows that. Meeting a variety of people with all different degrees of blindness and disability ever since attending the camp in upstate New York.
But some things are relatively new.
Lachi:
I decided to incorporate my vision loss and my need for accessibility into my career path.
TR:
That includes her work with the Recording Academy advocacy committee.
Lachi:
I am putting together a number of inclusion and accessibility talks with the Grammys.
Anytime I’m in front of anybody from the board membership or anybody from any of these committees, I am talking about inclusion, I am talking about accessibility, and my voice is getting heard.
We’re talking a lot about Hollywood inclusion, we’re not really talking enough about music inclusion. And so I’m getting in front of these boards and talking. And they are coming to me and going, you know what, let’s go ahead and have you do some panels Lachi, you’re the expert on this.
TR:
Be on the lookout for some panel discussions around accessibility and inclusion in the music industry.
Lachi:
another thing that I wanted to mention, my manager Ben price of harbor side management, got an amazing grant from the UK Arts Council to do a huge sort of study slash article on music and its future when it comes to disabilities.
He’s out there having some great conversations with people when it comes to not just showcasing artists with disabilities, but also, with the accessibility of venues.
When we start opening up the city, when we start opening up the nation in the world. This is something we need if we’re starting from ground zero. If you’re just reopening, why don’t you add that ramp, add that handle, add that bar, do what you got to do to make your space accessible, because guess what? 2021 and 2022 is going to be Lachi out here calling you out!
TR:
She’s currently building a platform that could provide the space to amplify these issues and more. It’s on YouTube and it’s called The Off Beat.
— The Off Beat promo
Lachi:
I am a quirky little offbeat musician and I’m also just an offbeat person.
it’s going to be a series that Chronicles me, a black girl going blind, just trying to keep up with the sort of fabulous lifestyle.
Everything from, makeup, skincare and wardrobe, to Little things like learning how to fold a shirt to just getting my taxes right to even trying to figure out how to make a YouTube series like let’s be real meta and learn that together.
TR:
She’s partnering up with brands who want to support her message.
Lachi:
I’m also really interested in speaking with influencers and top folks in not only the blind space, but in the disability space in general. And even other margins like transgender, LGBTQ non binary. Just kind of calling on names in that space, to ask them how they handle different transitions as well.
I’m excited to share it with you, and anyone who will listen, that we are going on this journey, and that we are doing it from my perspective of I think it’s important for me to mention that is from the perspective of a black woman losing her vision and not just have a woman losing her vision.
— “We’re Not Done… Check this Out” From “You Must Learn” Boogie Down productions
— “Bigger Plans”, Lachi
TR:
And just when you thought it was over, you learn about her “Bigger Plans” …
Lachi:
That is actually the song where we are putting out our AD version of the music video that we put together. And so we’re very excited about that.
TR:
In the meantime…
Lachi:
We put this music video together with that song. We ended up getting backed by a company that does diversity styling, and
we shot the video and the company’s called diversity styling. We ended up shooting it in a space called positive exposure, which is a gallery that only showcases art from underrepresented groups. In the video, they had a bunch of pictures hanging from students with different disabilities. And the song as you can see, was written by a woman with a disability and the video was produced and directed by myself. And the diversity stylings woman, and then the star of the video is Zazell, gosh, she’s good!
She ended up sort of dancing in the video, and she starts out with a cane. And she’s unsure then she throws the cane away, and she starts dancing, and it’s so empowering. But by the end of the video, she actually picks the cane back up and continues to dance with it. Because that’s that’s her whole her.
The whole video from top to bottom is just made by folks with disabilities. And we’ve been entering it into all sorts of contests and all sorts of things.
We just literally won Best Music Video at the International Film forum New York. New York, Neil gallery.
TR:
We all need some wins every now and then, don’t we?
Lachi:
I’m always doing these little radio interviews, whatever, this little thing here, this little thing there. This is probably one of my favorites. Look we’re sitting here talking man. I’m not being rushed. We’re not trying to hurry up and plug something. I don’t have like, you know, my show notes. Like, let me make sure I hit this. I can tell that we are having an A and B conversation. It’s not just you reading a quick question and then just kind of scrolling through something while I’m trying to insert it.
TR in Conversation with Lachi:
Yeah. Definitely.
Lachi:
I really appreciate your perspective. I really love this show. When Ben sent me the link. I was like, Oh, God, I gotta get on this show. As I really love it, and everything that you come through and say up in the club is always just so insightful. So I just did want to throw that out to you as well.
TR:
Nah, it’s still Covid out here. Lachi and I haven’t popped bottles in the club just yet! She’s talking about Club House.
The audio only social gathering space.
I’m an Admin with the 15 percent Club, which is all about disability – as in 15 percent of the world’s population has a disability.
Lachi moderates a room on Thursday’s called The Blind Side. It’s poppin! All sorts of conversations around blindness. My personal favorite so far was the room highlighting Blind women. There were plenty of proud Blind women who know they are all that! That’s something I support!
TR in Conversation with Lachi:
I appreciate that. But this is about you. This is all about you. So you need to understand that once you come on Reid My Mind Radio. I need to tell you Lachi you are now an official member of the Reid My Mind Radio family.
— Official
— Airhorns!
Lachi:
Oh my god
I love it!
TR:
You can find Lachi on all social media at LachiMusic. If you’re on Club House don’t forget to check her out on Thursday’s. I might be working the door, but if I’m not let her know you’re part of the Reid My Mind
radio Family and I’m sure you’ll get the VIP treatment!
(Visually Impaired Player!)
Of course, go on over and follow Lachi’s YouTube series, The Off Beat and show your love!
If you like what you hear, please follow this podcast where ever you like to listen. We outchere!
Don’t forget we have transcripts and links over at ReidMyMind.com. If you’ve been rocking with me, you know how this goes, but some don’t… I’m gonna do it real slow!
that’s R to the E I D…
(“D, and that’s me in the place to be!” Slick Rick)
Like my last name.
— Reid My Mind Radio Outro
Peace!
Hide the transcript
Tags: Blind, College, Confidence, Low Vision, Music, Nigeria, Piano, pro Tools, Production, SxSW, YouTube Posted in Access Technology, Accessibility, Advocacy, African American, Audio, Blind Tech, Blindness, Family, Media, PWD, Visually Impaired | Comments Off on Lachi: Building Bigger Plans for Going Blind
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