Reid My Mind

TR:

— Theme from Welcome back Kotter
— A hip hop drum loop…

Greetings, Reid My Mind Radio Family.

— from song, “Welcome Back!”

I feel like I’m home. Well, I am.

You know what I mean right?

That familiar place where you’re comfortable, your needs are being met and you feel loved and appreciated. That’s what I want you to feel when you rock with Reid My Mind Radio!

Let’s start this off right!
Can I kick it?

— “Yes you can”

Can I kick it?

— “Yes you can”

I’m excited to kick off this first season. If you caught the Black History Month bonus episode, you already know, this season is called Doing Your Thing with Disability. Now I know some of y’all may say that a bit differently as in Doing’ Your Thang with Disability! You should know, that indeed is the feeling behind the season. I chose not to formally name it that way because not everyone gets that energy right when saying it. If you do appreciate and respect that vibe, by all means feel free. If you do not or if you question whether you’re qualified to do so, well, don’t it’s cool, say it phonetically. Doing your thing with disability.

What I hope to deliver during this season are 4 episodes with varying examples of people pursuing different goals in their lives for a variety of reasons. We’re touching on Accessibility, entrepreneurship, music expression, self-discovery and more.

I encourage you to listen between the words.
(Filtered Voice:) Is that a thing?
Sort of like reading between the lines?

Throughout each episode, the energy is not about getting passed or overcoming, nah, that’s what they talk about over there…

The way we get down, right here, we’re doing it with disability – and to me that’s something to celebrate.

— Reid My Mind Theme Music

TR in Conversation with Marguerite:
This first season of Reid My Mind Radio in 2022 is all about doing your thing with disability. And I want to know, what does that mean to you?

Marguerite:
Wow. It to me, it means being my authentic self. And disability is just a part of my shell. And it’s a part of the filter that I’m experiencing this physical life through. And so I can’t escape that. So it’s a part of who I am. It’s just not all of who I am.

— Music begins, a mid tempo smooth jazzy Hip Hop beat.

TR:

Who she is? Well, this is Marguerite Woods.

Marguerite:

I am a woman, a black woman with many interests, and mainly, I am having an experience as a spiritual being in my humanity, and so the roles that come up for me are absolutely a mom, family member friend, a community person.

She, her are my pronouns. And I have on a suit jacket, I think it’s black and white, I have one little flower under it with little fringe around the top yoke.

I normally wear earrings, because I like them, I’m a little artsy, and they usually feel really creative to me. And I have on, dark shades.

I am black. I am bald. I am beautiful. And I am bold.

TR:

It’s been a while now that I’ve been incorporating image descriptions as part of the podcast.
I know there are some who may wonder why, it is a podcast after all.
A big part of that is identity for me. I want you to know as much about the people I’m presenting here on the podcast.
Truth is, sighted folks still get the opportunity to access this information via a nonvisual medium, because podcasts require an image to accompany the audio file.

But there’s more than identity in what we hear in an image description.

TR in Conversation with Marguerite:
Your outfit today, is there any particular reason that you wore what you wore?

Marguerite:
I decided deliberately to wear what I’m wearing. It feels comfortable. I think it looks good. And we talked about possibly video at the end. I wanted to project a certain image. I wanted to feel a certain way while doing the video. I feel very feminine. My outfit helps me to feel like that.

And the earrings are just an added touch that I really like, because I’m bald, I think that it highlights my frame.

TR:

Being intentional, goes beyond her wardrobe choices. Marguerite is thoughtful with her words. It’s one of the things that really stands out when first meeting her. It’s evident in the way she approaches each of the questions posed to her. Like…

TR in Conversation with Marguerite:

How do you identify with disability?

Marguerite 04:

Wow Thomas, that’s a loaded question, how do I identify with disabilities?
It’s been a progression of things and when where I am today is because of that progression.

So I don’t want this to sound flat or linear. I arrived here.
I’ve been toying with how do I talk about what we’ve been calling disabilities. And as I think about them my blindness and and others with a variety of different things. What I keep coming up with is this whole idea of diversity. We have diverse abilities.

my relationship is that whatever I’m dealing with, and in my case, it’s blindness, it’s given me an opportunity to explore the life that I’m living from a very different perspective, than I started out exploring life. living life, because I think of each of us as an explorer, or pioneer in our particular part of life.

TR:

That exploration can take her to foreign places, but much of it is within herself. In fact, she sees it as selfish.

Marguerite:

Everything that I experience, think about relate to is totally through my filters. And that in itself is selfish. But not in the way that I grew up thinking about the word selfish.

There’s no way to relate to life and be neutral, because I’m relating to it through my filters. And every other person is as well. And the best I can do with that is expand my filters, and expand the understanding, from having experiences with other folks.
TR:

If you prefer your ideas presented in a more concrete form, Marguerite offers a bit of a disability toolkit.

Marguerite:

in a practical way, the way I relate to disabilities is understanding that each one of us has to have an ideal of what we’d like to be able to do, where we find ourselves how we’d like to be able to manage whatever it is we’re trying to move through. And so, philosophy, some skills, some technology and some techniques, and absolutely some guidance in any way that you can find it to help you better do what it is you’re trying to do.

TR:

One of those skills that Marguerite has built over the years is advocacy. It goes back to her childhood growing up in Baltimore City, the area Marguerite describes as being designated for African Americans.

Marguerite:
There was a lot of feelings of just being done wrong, not being treated well. There was an energy of distrust, anger. But in the middle of all of that, I enjoyed the connection with family members and community members. And this sense of looking out for each other, a desire to move forward in a positive way, enjoying whatever life had to offer. And I felt that the elders in my community, were very interested in assuring that their children, and the younger people in the community were able to enjoy the things they felt they had not been able to.

— Music ends

And so the whole advocacy around that felt noble and it felt right to me.

TR:

That relationship with the community equipped Marguerite with a strong solid foundation.

Marguerite:

I grew up through the elementary and high school years, with all black teachers in the black community. And I could feel the desire for them to give us their best. And they wanted us to be sent into a world with our best doing our best.

I ended up in senior high school going to a predominantly white school on the other side of town. I deliberately chose that because I wanted to know what it felt like to have that experience. I was curious and interested,

When I did get to that senior high school, I felt like I was very well equipped, even though I began to hear stories that said we were marginalized, and that we were lacking.

TR:

Stories meant to weaken that foundation or penetrate her spirit.

Advocacy became more than a way to impact her community, it helped her realize things about herself.

Marguerite:

For me advocacy was about fighting for the underdog. And so it felt aggressive. And I thought it was very necessary and that there was a certain way that you had to go about it in order to gain the results that you were asking for.

It didn’t feel good in my spirit.

That anger and their venom and using it to ask for what you wanted. While it seemed to be effective, it was not a good space for me.

TR:

Over time, Marguerite came to realize that in the way she and
so many of us view advocacy, trained her to only consider what
was not working.

Marguerite:

it started to make sense to me that if that’s what you’re pointing out all the time, that’s all you’re setting yourself up to see. And so when things are coming, that are, what you do want, how will you recognize if all you’re focused on are the things that don’t work?

Sometimes the things that I’m wanting to experience, they reveal themselves in small ways.

The more that I’m open to understanding and realizing those smaller things, the momentum can pick up, but if I don’t recognize it, then how will I be able to enjoy it becoming larger in my space, in my experience for myself and for my community.

TR:

Yet only focusing on the things you want or those things that feel good can prove to be quite unfulfilling.

Marguerite:

I’ve got to own how I feel, and accept that as where I am. And recognize that I want to be in a space, that feels a lot better. But that causes me to have to identify, what is it that I’m asking for? And I’m telling you that that’s not been the easiest thing to do. Because even when I’m talking to people that I asked, What do you want, we even talk about what we want in the negative. I know most people can easily tell you what we don’t want, but ask them what they do want. It’s a very different conversation. And so that was not just a conversation for others. That was a conversation for myself, as well.

— Music begins, piano keys leading into a mid tempo smooth bouncy Hip Hop beat.

TR:

This really seems about knowing yourself. And there’s some real value in that.

Marguerite:

I’m getting to the space in the place where I have an opinion, I have a thought and it’s authentic.

You have a thought and an opinion and it is yours, no matter what I think about it, it is yours.

I do have the right to my opinions and my thoughts. And I want to be respected. So if I’m going to respect myself, I’ve got to respect you. Even if I don’t agree with you. I’ve got to respect that you have it. But that does not stop me from asking for what I want. That’s how you see it. And you can be very right. And I’m not telling you that you’re wrong. But I’m asking for what I want and what I need, which is a very different space.

I need to articulate and be really clear about what I’m asking for. So I have to keep asking, and keep defining and keep gaining the clarity.

I’m not recommending this as a way for anybody to go, I’m just merely trying to tell you what’s happening with me.

TR:

She really is on an exploration.

Her advocacy continues to have practical applications.
As the president of the At Large Chapter of the National Federation of the Blind in Maryland, she’s ready when necessary to respond to issues of particular concern to her community.

Marguerite:
We discovered that the state of Maryland was planning to discontinue bus transportation from Baltimore City. To the surrounding counties, for the most part, and they quietly were holding community meetings.

I was thinking about my community that I actually live in not just the blind community, but the community of Baltimore City, which is being affected. And I knew about a group that I been in connection with for many years, I would go there and talk to them.

TR:

The organization is called BDS healthy aging networks. Marguerite built a relationship with them over the years where she along with a group of members from her chapter would speak to the organization as a way to allow people to see into the community.

Marguerite:

I knew that they had gone virtual, I got in touch with the woman who runs it, Betsy Simon, and told her what I’d like to do. So she invited me to the call to share with the partners that met with her and the partners were different community agencies, city and state agencies, as well as community organizations and community leaders. And ask them to participate in the testimonies as well.

Well, I’m not exactly sure what happened. But that idea of dropping the bus service was discontinued.

TR:

There’s real power in organizing with those who share a mutual interest.

Marguerite continued attending the meetings of the network – which extends out to many different agencies and organizations. Their main mandate is advocating for older adults in the city.
They recently showed their ability to organize and get things done after the city made a failed attempt to help vaccinate older adults for Covid 19.

Marguerite:

One of the ladies in our group had been writing directly to the CVS is in the Walgreens saying, Look, we in Baltimore City want vaccinations and our officials are not helping us. Can you help us get vaccinated? So they were ignoring her letters and Walgreens somehow had these extra vaccinations, like 850 of them. They went to the Baltimore City Health Department and said, Listen, we’ve got these vaccinations. We can show up on Saturday with the pharmacists. You get the people.

This was on a Tuesday, the Health Department told them no, there’s no way we can do that. It’s not enough time.

They remembered the woman in our group who had been writing to them. They did shout it out to her. And she got in touch with Betsy Simon. And she sent a call out to everybody on her list. Can we do this? And so we said, yes.

TR:

With Some quick planning and putting people into action, they got it done.

Marguerite:

Advocacy, asking for what you want. And that’s what that woman did. She kept asking for what she wanted, in the midst of them saying, No, we can’t. And the health department did not help us, they said that they couldn’t do it. And after we did it, it showed that we could.

TR:

She continues showing up to Zoom calls. Reminding organizations to make sure their materials and information is getting to the low vision and blind community. She’s actually seeing progress in this area.

Again, the advocacy work teaches her things about herself and how that can benefit others.

Marguerite:

I think that the key for me is to take what I’ve been able to get in terms of training, philosophy and skills and so forth. And just come right back into my community and be a person in the community teaching from my example.

— Music Ends

If it helps the blind community, it’s helping the rest of the community as well. Those things are created and envisioned by the blind. And so we are contributors to what the society is and what it can become.

Music begins, a bouncy upbeat Hip Hop track.

TR:

Are you socially Reidsponsible?

— Sample from Blades of Glory:
“I don’t even know what that means.
No one knows what it means. But it’s provocative.”

TR:

It’s true, no one knows what it means, not even me, I just think it sounds cool!

Cool, like the Reid My Mind Radio Giveaway happening right now on Twitter.

We started in January on Facebook. Then moved to Instagram and during the month of March we’re focusing on the final platform, Twitter.
All you have to do to be entered into the drawing is like and retweet any of the posts I tweet out related to the Reid My Mind Radio Giveaway during the month of March.
So go on over and follow @tsreid and again, like and retweet any of the posts related to the giveaway.

Our social media manager, Annie, will gather all the names at the end of the month and we will draw a winner, which we’ll announce in April.

During the next episode in March, we’ll announce the winner of the Instagram contest.

Make sure you follow ReidMyMindRadio on Facebook and Instagram

Oh, wait, that’s being socially Reidsponsible!

Now, let’s get back to the episode!

— Music ends with a bouncing base drum echoing into silence.

TR in Conversation with Marguerite:
So during your first time on the podcast, you suddenly and quite nonchalantly dropped this thing about spending some time in India?

Can you share the story of how that came about? And what you actually did in India?

Marguerite:
I went to something in Baltimore called Blind industries and services in Maryland, which is a training facility for adults and older adults who want to gain skills and be able to manage blindness.

When I finished there, the director at the time sent me an email and in the subject, it said, only two days left.

TR:
She actually discovered and read the email the next day.

That’s when she found out she had one day left to apply to the International Institute for Social Entrepreneurs. It’s in Trivandrum, which is in the southernmost part of India.

Marguerite:

I got these thrill bumps all over me when I was reading it. It just filled me up.

You had to have it in, I think that day. I’m amazed at myself that I was able to do all that and I was able to submit it. And you know, they sent back and asked for some more information, I sent it to them.

And later on, they sent me a letter and told me that I was accepted and I was going to get a full scholarship to come there.

— Music begins, a dramatic introduction that feels like an eastern vibe that opens to a rhythmic electronic dance track.

TR:

Marguerite didn’t tell anyone about applying to the program.
That is until she received her acceptance letter.
p
Coincidentally, that good news arrived near her birthday. So when her family asked what she wanted to do, she was prepared.

Marguerite:

I want to go to an Indian restaurant.

When we sat down, we were talking and eating. And When they got to wishing me a happy birthday, I told them that I wanted to share something with them and told them that I would be going to India, and they were all shocked. They were like, Who are you going with? Who are these people? Bla bla bla.

Mind you, I’m totally blind at that point. I’m going alone , I don’t know the people, whether they met them online. And so they were like, oh, no, this, this, you’re not doing that. And they had all these what ifs, and no, they were really afraid for me. But something that I learned a while back and was able to practice is when you get an idea about something that you want to do, and, and you’re trusting that it feels good inside of you. That is not the time to share it. Because you’ve heard of dream killers. And they don’t even mean to be they were very good intentioned, but they will kill your dream before it gets off the ground.

TR:

Many of us have fallen victim to or have been a Dream Killer.

Perhaps one or two bodies.

Maybe you know some real serial killers. You know, those who just throw daggers at anyone with an idea or a plan to step out and try something new.

Chances are, they don’t mean to discourage. It’s more about a fear or lack of information on they’re part.

The point is, we need to protect our dreams, like they’re our babies.

Marguerite:

You can’t share it when it’s in it’s infancy, you got to let it mature. And so that’s what I did. And when it felt solid in me, and I’d worked out my own kinks about it and realize I had no fear and no reservations. So when they came with all that they had, it didn’t sway me because I had already worked it through, and I was solid and how I felt and so I let them go through what they needed to, as I continue to get myself prepared to go.

TR:

She received the news in July and left for India in January.

Marguerite:

I stayed there for a year came back in December. It was quite an experience.

I got to work with NGO’s, Non-Government Organizations. They’re sort of like our charitable organizations.

We worked with gay and lesbian organization.

In India, as you might imagine being a, quote unquote, third world country.
homosexuality is not something that is readily accepted.

With all of the challenges that we have here in the United States, the magnitude of it there is beyond the scope of what we can expect. It’s so dangerous. But these people are so adamant about being able to live their lives out loud, that they’re risking their lives for even just saying that they belong to an organization like that.

TR:

Wherever you go in the world, marginalized groups exist. The language and faces may appear to be different but underneath it all things look familiar.

Marguerite:
In India, lots of people wanted to bleach their skin.
— Music ends with a crescendo cymbal crash

TR in Conversation with Marguerite:
For the folks who haven’t seen, they may not necessarily know that the complexion of Indians are black.
I mean, some of them might not. Right?

Marguerite:
Yes. Yes, yes. Yes. And some of them are very dark in their complexion, and they want to be they want to be white. They want to be fair skin, it’s important to them, and so they do bleaching creams. I’ve heard of people who families would make these potions, so when the woman was pregnant, she would drink these potions that would help to ensure that her child would be fair when it was born.

TR in Conversation with Marguerite:
Oh, my goodness. Drinking it? Man, woof!

TR:

To get a sense of how much of an issue this is, Marguerite shares some description of a commercial on Indian television.

Marguerite:

It was a woman in a park, she’s walking with her boyfriend. She was darker complexion. And he was fair. And he sees a, another girl in the park. And she’s fair skinned. And so he drops the arm of his darker skin girlfriend. And he dances off with this fair skinned girlfriend. The darker girl is hurt and upset.
So she gets this cream, and she uses it for a prescribed period of time. And he sees her again, and she’s fair skinned now.
So he drops the other person, and now they’re happily ever after.

TR in Conversation with Marguerite:
This was a commercial?

Marguerite:
Yeah.
TR in Conversation with Marguerite:

On regular TV?

Marguerite 46:21

Yeah, yeah.

The idea was to go and fight against the companies that were making creams. And my thing was, well, before you can fight against the company that’s making the creams. I think we need to educate the people, let’s start with the children, because they were doing it with kids as well. And they were doing it with the boys as well as the girls. And so we went into the schools, and we were talking to them about melanin and for the schools that we went to none of them knew about melanin.

TR in Conversation with Marguerite:
Do you want to break that down a little bit? It’s well, just power of melanin.

Marguerite 47:21
Melanin is such a protective coating and that a lot of things can’t even happen without a melanin protection.

I remember, way back when I was much younger, hearing and reading about first the spaceships using the idea of melanin as a protective coating on some of their vessels.

Even here in this United States, even though we have it, there’s not a whole lot of talk about melanin and how powerful it is, and how wonderful it is.

TR:

You can tell people about Melanin, about a rich history where people who look like them weren’t colonized, robbed of their resources, but ultimately, it’s about self-love.

Marguerite:

My idea. And the group that I worked with, we felt like, it was just as important for individuals to decide that they wanted to embrace who they are, right where they are, and fall in love with that before, you can start telling a company not to sell bleaching creams.
Until people are educated and can find a way to feel good about themselves. It to me is a moot point. I don’t think you can do one without the other.

TR:

This problem isn’t at all unique to India. It was a bigger thing here in the states, several islands in the Caribbean including Jamaica and the Dominican Republic.

( FILTERED VOICE:) White supremacy is a hell of a drug!

— Music begins, an inspiring ambient track that grows as it progresses.

Marguerite:
We’re not supposed to be the same. And because one group is one way and another group is a different way, does not at all indicate that you are better than or less than the next group, although we use that as our vehicle to control and manipulate and because it has worked so well. It continues to happen that way. But we can’t just throw our hands up, we have to I think, continue to help people understand that it’s okay to embrace yourself where you are.

TR:

Embracing yourself as in the color of your skin whether you’re in India, Africa, the Caribbean or here in the states. The texture of your hair, your sexuality and yes your disability.

It’s what makes adjusting to disability so challenging for many. You may not even realize how you felt about disability and that can then impact how you feel about yourself.

Marguerite:

When I became blind, I realized that I had some very negative thoughts and feelings about blind individuals that I did not realize I had. I realized that when I saw a blind person, I felt something that I didn’t bother to identify. But what I did recognize was that I was glad it was not me. And that was with any disability, or anything that wasn’t held up as a beautiful thing, by the society norms, and that even meant, the color of my skin, the texture of my hair, all of that was a part of it. And those were feelings that were held inside in secret, depending on what company I was in. And so blindness exposed me not just to the blindness, but to the other beliefs that I was holding. And what I also discovered was that I could not really know what I was holding on to, unless I had an experience that brought it out. Because I tended to think that I was who I wanted to be not able to see who I actually was being.

As an adult, I had to find my way to that. I remember having to make a decision, a literal decision, that I wanted to live as a person with blindness. It was very different from living as a person with low vision. Total blindness was a totally different experience for me! And so I had to make a decision for me!

TR:

You know this isn’t about which level of visual acuity is more challenging, right?
it’s not a competition between disabilities, in fact, it has less to do with any external factor at all.

Not confronting the question was the source of anxiety.

Marguerite:

I just remember saying to myself, I have got to make a decision about how I want to be because
the anxiety was because I did not want to be blind. But I’m blind.

I really did know that the question for me to answer was, do you want to live as a blind person, and I realized I had not made up my mind, which also contributed to the panic attacks that I was having. I was scared to know what I really thought.

that was a very traumatic time for me. And I went through that solo, because I couldn’t talk to anybody about it. And I had tried to find a counselor at one point, but I couldn’t find counselors that knew blindness from the experience. And so I didn’t trust them enough to share that.

I had done enough spiritual practices during my life, that I use the tools that I gained. And I made a decision that I did want to live. So here I am.

TR in Conversation with Marguerite:

Here you are! (Chuckles)

Marguerite:

Here I am… Yes…. (chuckles)

— Music ends into momentary silence

— Music begins, a lively up beat R & B drum opening to a happy groove.

TR in Conversation with Marguerite:

That’s right, that’s right!

Marguerite:

Yeh! (Reflectively says) Here I am!

TR in Conversation with Marguerite:
Marguerite, because of all the things you do, to advocate, coming on a podcast to share and help others, doing your thing with disability. You Ms. Marguerite are an official member of the Reid My Mind Radio family.

You was already official but I don’t know, should I make more levels of officiality?
The two share in a silly laugh.

TR:

I truly respect and appreciate Marguerite for her honesty and sharing her wisdom and insight that I just know, will be of real value to many.

In fact, check out how generous she wanted to be when I asked her to share contact information.

Marguerite:

So you can call me you can call my mobile number which is 443-271-1668

TR in Conversation with Marguerite:
Marguerite! This is on the internet. Are you sure you want to put your number out there? Laughing…

Marguerite:
Oh no, no, I guess I don’t, I guess I don’t…

They can go to the NFB page NFBMD.org.

TR:
Orr go ahead and email her and tell her how much you appreciate her valuable perspective!
Marguerite:

MWoods719 at Gmail.

TR:

I don’t think there’s anyone I’d rather have kicked off this season with more than Ms. Marguerite Woods.

Did you listen between the words?

(Filtered Voice:) Dude, I really don’t think that’s a term.

She shared valuable ideas. Some were very practical like;
suggesting we create our toolkit to manage aspects of our lives.

And others were more philosophical like;
– exploring life through blindness and other identities…
– Choosing to think about and speak in terms of what we want.

That to me is so Powerful and honestly feels important for me where I am in my life right now.
You know, let me put that into practice right now.
I want you to share this episode with at least one other person. And let them know they can follow or subscribe to the podcast, just as you did, to make sure they don’t miss any episodes.
I want you to tell them, they can do that wherever they get podcasts.
Let them know they can find transcripts and more over at ReidMyMind.com.
And of course, make sure they know , that’s R to the E I D…
— (D! And that’s me in the place to be!, Slick Rick)

Marguerite:

Like his last name!

TR in conversation with Marguerite:
Ouu! I like that!
(The two laugh)

Audio: Reid My Mind Outro

Peace!

Hide the transcript

Hide the transcript

– “Recording in progress!” Zoom synthesized voice announcement

— Hip Hop Beat begins…

TR:

Greetings beautiful people!
Welcome back to another episode of the podcast bringing you compelling people impacted by all degrees of blindness and disability.

My name is Thomas Reid and I appreciate you hanging out with me.

Today, as part of the Flipping the Script on Audio Description series, I want to pause for a moment…

— Pause in the music

and discuss some things happening today to advance Audio Description in the mainstream.

For this, I reached out to Roy Samuelson.

Roy:

Hey, I think I’m here.

TR:

Come on Roy, you know I have to kick off the theme music first!

Roy:

Oh, so excited.

— Reid My Mind Radio Intro

TR:

If you watch movies with AD or you’re following the Audio Description space, chances are you know Roy. He’s a Voice Talent & Audio Description Narrator and Advocate.

We’re doing a sort of joint podcast effort here.

Roy:

Being a part of Reid My Mind Radio has been an honor from the first time that I learned about you and was a part of your conversation and in following all of the amazing podcast episodes that you released over the many years that you’ve been doing this. This is really great, I’m so glad that we’re doing this.

TR:

In addition to interviews with some of your favorite people in Audio Description, You can check out the full version of our conversation over at The Audio Description Network Alliance or ADNA.org.

Roy:

Putting a showcase on the voice, not only to celebrate those specific voice, talents, efforts, but also to give a language to people to be able to talk about audio description, quality and excellence, and give them something to anchor in on and starting with voice talents seemed like a great place to start strategically and see how that goes.

And as it grew into including writers, which it now does, as well as the engineers in the quality control specialists, it’s the audio description network Alliance. And so it’it’s become a lot more inclusive, specifically about film and TV at this point.

— Music begins – an upbeat, high energy Hip Hop beat
TR:

When it comes to Audio Description and this podcast, I want to showcase some of the interesting people and things taking place. I want to ask questions, but let me be clear,
I don’t propose to have the answers, nah, but I do have a perspective that I’d like to share. That’s as a consumer and advocate.

Advocacy, we know, takes many forms, like legislative work as in the CVAA or 21st Century Telecommunications Accessibility Act.

Roy:

I’m not speaking for anybody else, but I do feel that that mandate is an absolute necessity that having the FCC demand so many hours of broadcast television to include audio description has been so influential in where we are today. And it’s a necessity to continue being there.

TR:

Every time you inform a broadcaster, streaming provider or AD creator about your experience, you’re advocating and it makes a difference.

Remember, there’s never just one way to advocate.

Roy shares some information about some of what’s been taking place in his wheelhouse.

Roy:

SOVAS , is a society of voice arts and sciences. And they have
basically a awards for voice talents. It has nothing to do with audio description historically, but I was nominated for a SOVASS award for narration category. So it wasn’t audio description, narration, but it was an audio description narration that I was nominated for.

And over the past few years, I’ve been working with SOVASS , and specifically, this year 2021, I’ve been talking with the heads of SOVASS and sharing some of my experiences as a sighted person and what that means and to make sure that blind people are judges for audio description, when the audio description awards were a part of their categories for awards.

It’s just been amazing to see that connection, which is completely outside of the blind organizations, is now recognizing voice talents in this work. And I think that in a good way, it’s going to start bringing more quality.

TR in Conversation with Roy:
So let me just say that I’m not a big fan of awards, award shows in general.

Now, I admit it’s a great business. Move to gather the top celebrities and harness all of that attention. And brand yourself as the gatekeeper. That’s a great business move.

When I think of audio description, one of the first things that I usually apply to everything AD is, how does it impact the experience for blind people?

I realized that it could be direct at times, a one for one exchange, this happens, and then this happens. But sometimes that’s not the case. Sometimes it’s not necessarily obvious. So how does this help blind people?

Roy:

I think when it comes to celebrating the work of audio description, particularly in the SOVASS, they have found a way too, to share the performance in a way that celebrates it. And it is creating a competition in the sense of the people that are voting for the audio description, narrators are going to choose the best if there’s going to be a handful of submissions. Or if there’s going to be hundreds of submissions, they’re going to have to narrow it down and to narrow it down, they’re going to have to choose the best. And by celebrating which are the best that that’s going to impact our audiences.

This will lead to more quality, because people are going to want to have good voice talents to be able to be a part of this award ceremony, which will lead to better audio description. It’s almost a cart before the horse sort of situation.

TR in Conversation with Roy:
What I’m hearing, though, is that it’s still so dependent on for example, who’s judging? That’s a really big question in my mind, because I think the only people who should be judging audio description are the consumers really, I mean, are we the judges?

what is being judged, is it just that performance? We know that a big part of audio description also is The writing.

If we’re looking at just voice talent, well, it’s probably just going to be all the stuff that makes a good voice artist.

Roy:

The conversations that I’ve had with the leadership of SOVASS is that you can’t do this award without having blind judges, I’m assuming that the people who were invited who are blind have responded.
It is my understanding that that was specifically a part of this arrangement. That’s something that we made explicitly clear,
it’s like, because this whole Nothing about us, without us this entire audio description was created by blind people, for blind people, blind people need to be judging it that is absolutely essential.

In the same way that the ADNA started with voice talents, just to help people wrap their head around it, my understanding is that there’s going to be opportunities in the future for awards for writing, or for engineering that we can start to separate this.

When it comes to the attention being placed on the narrator. Yeah, there are narration skills that go into it. But I agree with you, it’s the writing that makes a ton of difference. And the example I like to use is let’s say, a Shakespeare play and you go through the first act, and it’s the intermission, and you’re just moved to tears by the performances that had happened in it, there’s something that really connected viscerally with the engagement of the different characters and how they were interacting with each other. And whatever thing that that story was, was telling you could be just moved to tears and almost be stuck. The same thing can happen at the end of the first act where you’re in tears, because you just want to get out of the theater. It’s the worst performance you’ve ever seen. You’re trying to figure out how to get out of seeing the second act, because it sucks so much. In both examples, the writing was equal. But there was something that happened. And it was most likely the performance.

It could have been the audio glitches that may have been happening if it for example, was in a big auditorium that had the microphones cutting out It could have been all sorts of other things that got in the way of the performance, but the writing was the same.

Audio description has so many different roles that the weakest link can make the whole audio description suck. That’s where everything has to be lifted up. And again, it is for the audience’s experience that by celebrating each of these different roles, we can celebrate audio description, excellence and quality.

TR in Conversation with Roy:

I’m also concerned with the idea that when a lot of attention is placed on to who the narrator is, does that end up becoming something where again, we’re focusing on the narrator. And then we start to bring in, like, for example, celebrities to narrate. And I’ve heard that idea, floating around as though it would be of benefit. again, just taking all of that attention away from the consumer. I’m always thinking that the consumer, Blind folks should be centered in audio description. So anything that moves away from that, yeah, my Spidey senses are going up.

Roy:

I have to use my experience as a voice talent that
, celebrities never used to do commercials. Now that’s very common. Celebrities didn’t used to do animated features. And, you know, we look at Toy Story, which is now what 20 years old and there’s still a voice talents that are still voicing of animation that by having a celebrity involved in this work…

— DJ Scratch leads into “So What the Fuss” Stevie Wonder with AD Narration by Busta Rhymes

Roy:

I mean, as early as Busta Rhymes back in, what, 1520 years ago for the Stevie Wonder video with the fuss and that was the that was exquisite. The first time I heard that I’m like, Oh, this is so good. I can’t help but smile and nod my head. It’s so beautiful. It’s like, there was something that Busta Rhymes the celebrity brought to that, that brought that piece alive. Not every celebrity can do this. And if there are celebrities that do it, I would hope that the focus still remains on the audio description. But you’re right, there’s no way to control that. I don’t know how to address that.

But I do see that the possibility of that kind of exposure can only grow the quality of this.

TR in Conversation with Roy:

No shots to Busta.

— Sample: “Aight, here’s how it going down.” Busta Rhymes from So What the Fuss
— Music begins a countdown like intro to a driving slow ominous Hip Hop beat

TR in Conversation with Roy:

I think the celebrity might make a difference in terms of marketing, audio description. And again, that leads me to the place where it kind of who is this for? Hmm, this is for the blind community. This is not for others, to just come in and check out all Busta Rhymes is doing this. Oh, whoever is doing this? This is cool. Let me check this out.

That’s fine if it happens, but that’s not what audio description is for.

Roy:

What is the cost to the wide audience in the context that you’re talking about? Or maybe it’s the blind talent? I’m not sure.

TR in Conversation with Roy:
Well, there’s both right. So there is the blind talent, because we’re already competing with non-celebrity talent. That’s fine. But there’s also like I said, just the quality, I’m not sure if the quality is naturally going to go up , right? Because folks can make that determination. That’s what happens with celebrity you let folks in there just to draw the name.

Roy:
Hmm.

TR in Conversation with Roy:

And it doesn’t make a difference. It may not make a difference. In some cases,

How often do celebrities want to get attached to something that just feels good, and then use it in their promo of themselves? It just gives me a really bad taste. And I don’t want to see audio description suffer because of that.

Audio description needs to stay about blind people now. You can create something else, right? So for example, when we talk about there are ways that other folks are using audio description, whether they be truck drivers, whether they be kids with autism, for example, and there may be some modifications that are needed. Absolutely. There should be that. But I don’t think it needs to come at the expense of blind people. So there’s room for all of this.

Sometimes I feel like there’s these fake choices that we’re given; Do you want more? If you do, then you’ll take this.

Why do we have to have that choice? That’s not the choice.

— Transitional sound

TR:
I’m interrupting for a public service announcement.

First, I need your help.
I want to take Reid My Mind Radio to the next level, that’s making it a sustainable venture.
But I need to know more about you, the listener.
I’d really appreciate if you could take a few moments to fill out
a quick survey. Just go to ReidMyMind.com and hit the link that says survey.
Secondly, a few people have asked how they can get this podcast on their favorite smart speaker.

In this example, I use Apple podcast as my default player, so the command would be;
“Hey device, play the podcast Reid My Mind Radio by T.Reid on Apple podcast”

Of course, you can still follow or subscribe wherever you get your podcasts.
Transcripts and more are at ReidMyMind.com
That’s R, to the E I D
— Sample: “D! And that’s me in the place to be” Slick Rick

Like my last name

— Transition sound returns to the episode

TR in Conversation with Roy:

We want to see audio description expand. We both agree that we want to see more, and we want to see better quality. Like we’re in total agreement around that. And I think these questions and all of these things as to how do we get there, you know, are great, that they’re absolutely great. Yes. Because we have the same goal, you know, but I just think that we need to kind of think through these things. And even when we try, whatever we try, always come back to the idea of asking that question. Does this center Blind people? are we adding value for our audience? And if we’re not scrap it,

And, what about the Emmys? (Laughs)

Roy:
What about the EMMY’s Thomas? This is great.

(Thomas and Roy’s laughs fade out)

I’ve been a part of the television Academy for maybe 10 or so years. So relatively new and part of my contribution has been as performers, peer group, executive committee member, it’s basically a fancy term for all the different peer groups that represent different roles of television.

So letting them know about audio description, and how that has such an impact on television and how it can have an even greater impact.

And so those conversations have really evolved from the first time that I was approached by my mentor and saying, hey, you should really reach out here and being able to do it in a way that went from almost a dismissive Well,

you know, there’s really nothing that we can do about this, but Roy has a real passion for it. So, you know, keep in mind that whatever Roy talks about, it’s it, it’s probably not gonna happen, take it away Roy, to most recently. This is such a valuable performance, and it’s a skill and it’s an access that brings so much to so many people beyond blind and sighted people. Let’s hear about audio description. And that was the introduction, it was basically 180 degree turnaround time, simply because the culture has changed, as well as the awareness of what audio description is, and through some real advocacy within the television Academy.

The television Academy now recognizes audio description narrators as qualifying television credits to become full-fledged members to be able to vote for the Primetime Emmy Awards. And I think the implications of that are, are few First of all, again, representation, making sure that people understand about audio description, but also, as many blind people work in audio description as voice talents, this is yet another way for them to be included in this television Academy, whereas normally the opportunities might not be there as much. So that feels really huge.

TR:

Whether we’re talking about the SOVASS, the Emmys, in each case it seems to come back to increasing the awareness of Audio Description.

Roy:

Is there an audio description effect that you and I could both agree on when it comes to making sure the value is what it is. In the approach that I’m exploring, the strategy of awareness is an essential part because right now things have been so hidden, that people aren’t even aware of it. And I think as awareness grows, that that can create that very healthy competition of how great the audio description can be.

TR in Conversation with Roy:
Yeah, so I think you’re right with the awareness. But when I look at awareness, I’m looking at awareness from the perspective of blind people, because I know a lot of blind folks who do not know about audio description. I know a lot of blind folks who think that audio description and television and movies are not for them because that’s the way it’s been all their lives. And then so steadily, and hopefully they’re starting to learn More about that. I think that audio description for students and looking at the results of how their learning and their sort of their involvement in the quote unquote mainstream, and their ability to relate to their peers, and those relationships that that happen.

I want to measure it by the relationships that employers and employees begin to have, because there’s more of that conversation. And then blind people are making more advancements, because we know that when you’re in a corporate environment, for example, you learn about new things, because you’re just friendlier with people, you start to trust someone else, and you just like to be around that person. You feel comfortable with that person. And so much of that happens from conversations about Game of Thrones, right? On Monday morning after Sunday.

I want to see blind people who are working as movie critics. Where it’s not just about the audio description, they’re really analyzing this stuff.

Blind people who are doing the work of audio description, blind people who are commissioning others to do that work.

Again, I’m centering Blind people in this.

I still consider myself relatively new to disability. But as far as I know, I have never heard of wheelchair users promoting wheelchairs in malls, because folks can just go ahead and walk there, you know, you get tired, so why not take a load off, just so we can increase the amount of wheelchairs, we can get better wheelchairs because more are using it.

I don’t think when captioning came out, and all the advocacy that they put into it, I don’t think they were talking about the curb cut effect before it happened. It just happened. I’m learning to trust the process, and we see it all the time, it will happen, right? We already know that. Yes, truck drivers are using it. And folks will find a purpose for it. But let it be that it doesn’t have to take away from our community, and it will happen. But let’s just build it up based on our needs. And then when we find something that will Oh, this would work for someone else. Absolutely cool. Bring it in, go do it. Go create it. Because we need to bring everybody in not just some people, we need to bring everybody in.

The technology that is available, and that is growing means we have more options, not less. So let’s not take away. Don’t try to take away my options. Nah, don’t do that! We just need to be included.

Roy:

And with that inclusion, is there a place at the table for blind people to be able to influence those decision makers.

When it comes to that, the impact of inclusion of society that is there not a case to be made, that the existing leaders when it comes specifically to television are a part of the television Academy that access to those decision makers right now specifically blind people to be included in that seems worthwhile.

Forget the awards.

TR in Conversation with Roy:
Okay, I like your kung fu there. (Laughs… fade out)

Yes, we need influence. And I get that. So if a way to get that influence is to be in the room. And if a way to get in the room is through being a part of an award show.

Roy:
I can hear your voice. I can hear the way you said awards talk about intention. You go on. That was great.

(Thomas & Roy Laugh)

TR in Conversation with Roy:

I mean, that part of it absolutely makes sense.

Advocacy takes place in the room. Advocacy takes place on the streets.

Roy:
Hm.

TR in Conversation with Roy:

So there’s room for all of that. And if we’re working together in the suites and the streets (laughs…) if we’re working together, and we’re coordinated and we’re all sort of, again, centering blind people.

That could be really powerful.

— Music begins, a somber piano ballad

Roy:
Thomas, if we could go back to what you said earlier about generosity in the context that you were speaking of generosity was a negative connotation in my mind, in the sense that it’s almost a condescending talking down. It’s it. generosity, and you’re caught in the context of what we were speaking about. It’s an it’s not good. It just it smells bad. I’m not sure how else to put it. What’s the opposite of that? What’s the opposite of that? Negative generosity, that almost looking down and I’m going to be generous to blind people. What’s the opposite of that? I’ve got my own opinion. I’m just curious.

TR in Conversation with Roy:

Yeah. I mean, the first word that comes to my mind when you were saying that is disrespect.

I think about it in the real world, in real life. Think about it when walking into a store. And, or wherever, and just the difference in treatment, what you know, being in a restaurant, and someone asking the person that a blind person is with if they’re sighted, what does he or she want.

As though I can’t communicate to them.

For me, it always comes back to respect because if someone is not looking at me as an equal, wherever we are, then that problem is not necessarily with me. But I do feel it. Because I’m not getting the service, whatever that may be. I’m not getting that equitable treatment. Right. It’s just not happening because of the way they view me. And it’s that that perspective that they have around blindness around disability. That is what I think the awareness that I hope I do. That if I wanted to reach out to folks to non-disabled people, it’s really in hopes that that is the message that they get that and in fact, I mean, that happens with blind people, too. It’s ableism. It’s ableism. It’s, it’s looking at disability in a certain way, as if it is less than as it’s not normal. And it is normal. It’s absolutely normal. And there’s so much that we’re missing out. Because we don’t respect and appreciate the contributions of disabled folks. And specifically, we’re talking about blind and low vision. And so, you know, if we really want to do something about it, hopefully that’s what we’re doing.

Again, that concern comes to me when we say if others become aware of audio description, for example. It’s not really helpful if they’re just looking at it. Oh, isn’t that nice? That’s great. Oh, that’s great. That’s wonderful that they do that for the blind people. That doesn’t help. It doesn’t help at all.

Roy:

Yeah. Yeah. Neck Hmm, makes it worse. Because that respect is disrespect. I get it. Yeah, that’s really, really clear.

— Music ends to brief silence

— “I Dream of Jeanie” Intro Song

TR in Conversation with Roy:

Laughing…

I’m gonna give you a genie!

Roy:

Oh boy, oh boy!

TR in Conversation with Roy:

with one Audio description wish, something that can change something about AD whatever it is good, bad, whatever? What’s your What are you going to ask of that Genie

— Music begins, an uplifting, happy Hip Hop beat.
Roy:
Parity to sighted audiences that when it comes to audio description, the experience of a blind or low vision person is as equal to a sighted person as possible, that they’re laughing at the same time that they’re able to turn it on as easily, as a sighted person, that they’re able to watch it at the same time that it’s released as a sighted person, that they’re able to go from cinema to streaming in the same way that a sighted person does, that they’re able to get the quality and excellence of the performances of the writing of the mix of the quality control that sighted people get with their track. That parody, in the sense of as equal as possible, is a part of audio description that is done. And by the way, by blind experts being paid for their value and their service. That those two things are, in are, those two things are so linked in my head that you can’t have one without the other. You can’t have the other without the one that there is no way that audio description, quality and excellence to be in parody decided audiences can happen without blind professionals being paid for their value. Those.

TR in Conversation with Roy:

Yeah. And you see, what’s cool about that is that I could wish for what I just said about respect. And I think we end up in the same place, because I think if you got your wish, I feel like my wish was granted.

Roy:

Because I don’t think that could happen without respect.

Well, and again, look how that would filter outside of audio description. Because that’s what audio description does, right? It’s not just about the film in the movie, it always applies to something bigger.

Roy:

Yeah. And that’s the model that’s like this little microcosm of audio description and how that can have a ripple effect.

TR in Conversation with Roy:

Yeah, yeah. And it does. Like, we can look at audio description and touch on. Lots of things. Look at how race, gender, all of this stuff about identity come into play.

Roy:

Is it time to as your podcast limited series is called flip the script? Can I flip the script and ask you the same Genie question

TR in Conversation with Roy:

I would really ask the genie to, to solve this problem, this issue that happens also often. And it’s just like, I just want to be rid of it that when my family and I decide just at the spur of the moment, to sit down and watch a movie, that we don’t have to go through about a half an hour because there’s no audio description. It doesn’t fail, it does not fail. And the, the feeling that I get is the same even though I play it cool. You know, and so I’ll just go ahead and watch it. I do it all the time. And they tell me No. And now the girls are older. And so they’re more bold with the way they tell me No. (Laughs…)

I can’t do anything about it anymore. But it still feels the same. And it’s not just me because they get frustrated.

I want the genie to resolve that for us.

— Audience Applause… “America, here is your winner…

TR:

So when it comes down to it…

I’m not just talking about the Reid family or even the Reid My Mind Radio family

— Crowd applause continues “Good luck both of you” America has voted… crowd applause continues in anticipation.

TR:

I don’t know what’s going to happen y’all, but it just has to be us!

– Reid My Mind Radio Outro

Peace!
— Applause fades out.

Hide the transcript

TR:
Your listening to Reid My Mind Radio.
Chances are, you know that already because you pressed play!
Duh!
This is where we examine this art form that in its basic essence, is making visual content accessible to those of us who are blind or have low vision.
But in actuality it goes way beyond that.
Today, we look at the power of one.
I know it’s the loneliest number and all, but really that’s only when it chooses to stay by itself.
This experience directly led her to her second book of photographs titled, “I AM More Than My Hair”.
It tells the stories of women who are bald.
Yet, according to Alyscia, the most common cause is stress.
And that can occur earlier than we may expect.
As part of both a marketing and fundraising effort, Alyscia recorded footage of some of the women included in the book.
She applied to Docs in progress – a nonprofit organization that fosters a creative and supportive community for documentary filmmakers.
— Music begins, a slow jazzy piano Hip Hop groove
That required her to contact some of the women featured in the book and arrange to capture their stories on camera.
I am bald, My skin is Mocha. leaning towards chocolate, and about five, seven. I normally wear certain shades. And I love interesting earrings. And so I normally have those on as well. I’ve got on a black dress. It’s sleeveless.
Her first experience began with Bustin’ Loose,
A film starring Richard Pryor and Cicely Tyson.
The description Marguerite says was horrible.
— Richard Pryor saying…
so it kind of took a backseat for me for a while. But the thing that really got me with audio description was I like to go to plays and conferences and music shows and that kind of thing.
TR:
We didn’t get into that for the purposes of this particular discussion, but that to me sounds like a case of a lack of cultural competence.
— Music ends
What is more of a part of this discussion is her response.
When Alyscia was looking for women who were bald to participate in her book,
she put the word out and heard back from a friend who told her about Marguerite.
Marguerite wanted Alyscia to understand that while she herself is blind she doesn’t represent everyone.
I’m always encouraging people to go to places where there are lots of other people that may look like me, because we’re multifaceted. We’re not all the same, just like sighted people we’re not all the same we are of all manner of variables and we’re diverse and in so many things so don’t just think you really understand what’s going on with blind people cause you’ve met me.
About two months following that meeting, Alyscia premiered her documentary at a theater.
Marguerite was there.
She realized the impact of the visuals based on the audience response…
Check out the Reid My Mind Radio family connection y’all!
That documentarian was none other than 2019 Reid My Mind Radio alumni Day Al-Mohammed.
— Music Begins – an up tempo energetic, inspirational Hip Hop beat
That’s my good friend and another 2019 Reid My Mind Radio alumni,
Cheryl Green, Captioner and Audio Description Writer and Narrator extraordinaire.
It’ goes beyond Audio Description and captions in the documentary.
Alyscia created an accessible exhibit on display at Sandy Spring Museum in Maryland.
My hope for this was having the exhibit and also having a panel discussion with Cheryl and marguerite, Judy and three other women was that this will be an example of how museums and artists can incorporate accessibility in their work and into their venues.
One of the main challenges from the perspective of the museums and venues is often funding.
Unfortunately, we know that sometimes museums and other venues and businesses want to see a return on investment.
But it’s not as simple as build it and they will come.
this can’t be a onetime thing.
it’s like now that you know How could you not do anything about it because now you’re aware of it. It’s in your space.
Did you get any feedback from non-disabled people?
— Music ends.
I’m sorry y’all, but sometimes I really do just have to laugh.
Spending time and energy advocating for something can be challenging.
I was more interested in her getting a sense of, of blind people, and that we are asking for opportunities to be able to relate to our world, just like sighted people are, and that she as an artist and a creative person would do whatever she would do with it. And that would be good enough.
Marguerite: 26:36
Just interact ting on different levels, and asking people to recognize, I’m here in this space, and I want to participate.
And sometimes, because people don’t know, you got to be in there, in their mix to get your conversation in there.
Marguerite herself is an artist. She is quite thoughtful and makes some deep connections between the More than My Hair project and well,
life for example.
Marguerite: 30:51
People tend to want to treat you like you’re less then because you don’t have the same access to vision that other people had. But
As an African American?
Most of us realize that we’ve grown up in a country that has not been kind or fair to any of us. And even if we don’t have the words to speak about, it’s a heavy burden, to exist and grow in this society. And when you know that the majority of the power structure is literally walking around with disdain for us, because of the color of our skin. You can put on a happy face and move around. And that’s fine. But I think that it’s deeper than a happy face, I think that there are some natural laws of the universe, that are, are at work all the time. And it would be beneficial to get in touch with what they are, and try to work your life from there. Because if you go with the laws that this country is offering, it’s telling a story, and I’m just given a message that’s not healthy. And it’s not about wellbeing, especially for my community and for me.
Totally unrelated to that project, she’s also working on a new project in the horror genre and says she’s making sure to build in the space for Audio Description.
She’s continuing to give panel discussions on how to make art accessible based on her experience.
Whether you’re a consumer who can help someone learn about access,
a creator who can make your content inclusive or
you’re someone who can provide the funding,
we all play a part.
— “One” Sample from Public Enemy Number One, Public Enemy
— Music begins, an upbeat bright Hip Hop funk groove
The I’m More than My Hair, accessible exhibit will be on display through September 5, 2021. Unfortunately, Covid restrictions have probably been a factor in the lack of feedback from the Disabled community, but Alyscia is hopeful that the restrictions being lifted will help bring out more people.
She’s currently seeking distribution for I Am More Than My Hair the documentary,
which at some point will stream online.
This is just one example of what we know to be true.
When creators learn that their content is not accessible to an audience, chances are pretty high that they will want to do something about that.
Well at least the cool ones!
— Sample – “What the hell are you waiting for” from “Encore” by Jay Z
— Sample (“D! And that’s me in the place to be” Slick Rick)
— Reid My Mind Radio Outro

Hide the transcript

— Ambient music begins…

TR:

Greetings Reid My Mind Radio Family!
Welcome back to the podcast bringing you compelling people impacted by all degrees of blindness and disability.
You know, we’ve been here since 2014 so make sure you take a look in the archive if you’re new in these parts.

My name is Thomas Reid and I get to serve as host and producer.
I like to consider each of these individual episodes as a part of a larger collective story.
If you know anyone new to blindness or disability in general, please go ahead and let them know what’s happening here.
I’m confident that they would find a lot of value in the lived experiences stored in these audio file (and transcripts).
All just waiting for the right person.

Today’s episode is the latest addition to this growing archive that will not disappoint.
So let’s get down to it!

Audio: Reid My Mind Theme Music

Qudsiya:

My story of blindness is, to take a page out of Michelle Obama’s words, it’s a story of becoming.

My name is Qudsiya Naqui. And I am a lawyer and I’m based in Washington DC. I use she her hers pronouns.

I am a South Asian woman. I’m quite petite. I’m about five one. Right now I have sort of long, dark brown black hair that’s very long because of the pandemic and I haven’t been able to cut it and have kind of medium brown skin and brown eyes.

TR:

Qudsiya is the host of Down to the Struts, a podcast that explores the inner workings of
disability design and it’s various intersections.

Today, she shares some of the transformational experiences along her journey that helped shaped her view of blindness.

At 2 years old, Qudsiya was diagnosed with a congenital degenerative condition.
By the time she began reading, standard print was sufficient.

qudsiya:

But I had trouble in dark and dim places.

We were blessed and fortunate to be able to live in homes that worked for me. That had lots of sunlight, and we had lots of extra lighting. So that was the way that we kind of help make the environment accessible for me.

My mom was proactive and had me in sort of rehabilitation services with the state agency.

— Melancholy Ambient Music begins
TR:

That’s the New Jersey State Commission for the Blind, where she received mobility training and other blindness skills as a child

Qudsiya:

My usable vision was so good when I was young that I wasn’t quite understanding sometimes, like, why I had to use a mobility cane because

oftentimes, the trainer would come during the day, and I could see really well during the day.

When I reflect on it, I’m like, why didn’t they train me with the cane? At night? When I actually couldn’t see and then I would understand the benefit of it.

I had a hard time explaining to people what my situation was also because I present as sighted I don’t fit the sort of stereotypical appearance of what a blind person looks like. And so I sort of passed for lack of a better word because I didn’t have a vocabulary to talk about my disability, I didn’t even use the word disability, disability wasn’t even in my lexicon when I was a child and a teenager and even a young adult. I really struggled.

TR:

As a child, struggling with bullying and making friends.

Qudsiya:

I do think it shaped a lot of my identity. I was quite introverted, I love to read. It definitely did shape who I was when I was younger in slightly more negative ways, I felt like it was something I had to hide and that I had some degree of shame about. That really affected my willingness and desire to engage socially and to make friends and to put myself out there.

TR:

There are two main perspectives in viewing disability.
Whether you’re familiar with them or not, you may recognize your own way of thinking.

The medical model. This approach sees the problem as the illness, disease or injury. The focus is on fixing the person.

Qudsiya:

I started losing vision really quite rapidly kind of at the end of college when I was 22. At that same time, there was a experimental gene therapy. That became available and my parents really were encouraging me. They had very good intentions, and they love me very much. They wanted me to feel good about myself and be successful. And their pathway towards that was, you know, to have this therapy that would help me either gain vision back or halt the degeneration.

I did enroll in the clinical trial. I really believe that people should have choices about how they want to live, I have a little bit more healthy skepticism about that, because so much of it is rooted in ableism, which is a term that I use a lot now, but was really unaware of at that time.

— Ambient music ends

TR:

That’s the discrimination of and social prejudice against people with disabilities based on the belief that typical abilities are superior.
It assumes that disabled people require ‘fixing’ and
defines people by their disability.

Qudsiya says she’s unsure if the therapy has helped reduce the degeneration but notes she didn’t regain any vision.
She did however slowly begin inching toward that alternative way of viewing disability, but first, she had to go through some things.

Qudsiya:

I went through a really dark time in my 20s, just trying to like sort of, quote, fix myself,

When I was young they told me that my vision would be stable, you know that I had nothing to like, quote, worry about, and it would just be the same as it was. And that was pretty doable.

TR:

While preparing to enter Law School at Temple University, Qudsiya began seeing a new doctor who explained that her vision loss was degenerative.

Qudsiya:

That really explained what I was experiencing in the two or three years prior, reading was starting to become really difficult.

Law school, is very difficult for a whole host of reasons. And it’s a difficult environment, it’s just a lot of work. It’s very hard. And there’s a lot of reading, like hundreds and hundreds and hundreds of pages of reading a week.

TR:

Since grade school, Qudsiya prided herself on her ability to study hard and have the grades to reflect that effort.

Her vision and grades both deteriorating she considered dropping out.

Qudsiya:

And somehow, I didn’t, I had a couple of really amazing professors. And then I got a really cool internship at the ACLU of Pennsylvania, the summer after my first year, because I happened to meet the Legal Director at a career fair. And we just totally hit it off. And she was an incredibly supportive person. And between her and a couple of my professors, I just, I stayed and I didn’t quit, and I didn’t give up. I started to explore text to voice software and the different kinds of technologies that were emerging. Blind people have been using it for years.

I kind of taught myself to learn by listening because I’d always been a visual learner. And I had to completely transform the way my brain worked. And I was able, it took me a long time. And it was hard, but I did it.

TR:

The grades improved, her self confidence returned and she was making strides in her blindness journey.

Qudsiya:

Oftentimes, a lot of sighted techniques are foisted on you. Like there’s always the imperative for you to use your eyes. But that was the first time I started to realize you know what, like, it’s not about like forcing me to use my eyes if my eyes aren’t the most efficient way to get something done. And so I started to like embrace like new Non sighted ways of doing things which made me a lot more efficient and made things easier for me.

The day that I said, I need to use jaws 100% of the time, like changed my life.

TR:

But what about accepting that white cane?

Qudsiya:

There was so much stigma for me associated with it. Shame.

I got myself into real difficulty. There was one time I was in Penn Station, and I fell on the train tracks.

TR:

Thankfully, the train wasn’t moving and someone quickly pulled her up.

Although already familiar with proper cane technique, Qudsiya wasn’t a practicing user. Living in New York City at the time, she
reached out to the New York Commission for the Blind and got herself an Orientation and Mobility instructor.

Qudsiya:

I said, I need you to force me to use it in front of you until I get to a point where I’m okay with it in myself.

We worked every day a couple times a week for like an hour and little by little after a while, I started to just feel comfortable with the cane.

I went from someone who would carry the cane folded up in their purse, never even think about it, to a person who now uses a cane pretty much all day all the time and never is without it and has a very healthy relationship with it. That took a long time. And it took a lot of struggle and a lot of moving past my own stereotypes and my own ableism

TR:

Qudsiya offers some additional thoughts on what could be helpful in decreasing the stigma associated with blindness and disability.

Qudsiya:

There’s such a lack of education in a young age to a culture eight children to the concept of disability and like these disability positive messages.

I just remember in high school I never learned about the ADA, I never learned about the Rehab Act, I never learned about disability rights history.

I feel like if I had existed in an environment that was giving me all these positive messages and welcoming messages and accessible messages about who I was, and the fact that my disability was okay. I think my outlook would have been quite different. But I was in an environment where my disability was sort of invisiblized. I see that changing now for young people. But I think we have a long way to go.

TR:

Another transitional moment for Qudsiya along her blindness journey came when she experienced job discrimination.

Qudsiya:

That was the first time in my life, I had been exposed to disability rights and Disability Law and the civil protections that are available to people to prevent against discrimination. And I didn’t really understand that I had been repeatedly discriminated against in various work settings until I had this experience that became so extreme that I had to get an advocate to help me.

TR:

She credits that person with changing her life.
Helping her become clear about the problem and to see things from a different perspective.

Qudsiya:

Okay, it’s not me, that’s the problem here. It’s the system. That’s the problem. And it’s a system that is not designed to give me access, and I need to fight for that access.

— Music begins – a bright melody that moves to a driving beat…

TR:

The social model of disability.

This views disability as a part of life and not the problem.
Rather recognizing that society erects barriers in various ways that can limit opportunities.

Qudsiya not only learned how to advocate for herself, , she found a community of people who also had a positive outlook on their own blindness and disability.

Moving to Washington DC from New York City, she was introduced to another Blind Lawyer.

Qudsiya:

She and I actually connected over something completely unrelated to blindness. We connected over the fact that we were both athletes. She was a cyclist and runner, and I was a runner also.

She was starting up this sports group in DC called the Metro Washington Association of Blind Athletes. And she kept encouraging me to come and try out tandem cycling.

I hadn’t been on a bike since I was a little kid.

I didn’t know anything about tandem. I was like, this is gonna be a disaster.

Finally she pushed me and I went and I got really into it, I just fell in love with it.

TR:

That led to other sports and activities like adaptive rock climbing,
guided running and most importantly friendships with other Blind people.

Qudsiya:

That was really transformative, mostly because I never had Blind friends in my life. And so I suddenly had this massive, wonderful, supportive, fantastic community of other Blind people that were doing all sorts of things had all sorts of professions came from all different types of backgrounds. And we just had fun together. And we support each other.

TR:

That support is invaluable. From the practical to the emotional, helping you become your best self.

Qudsiya:

I’m like a b minus blind person, and I’m trying to get to an A plus.

TR:

I think she’s being tough on herself.

Even if we’re not being graded, a community of people to learn and share with along any journey is important.

Qudsiya:

I started on that journey kind of later in life, as opposed to some of my peers who were born blind or lost their vision when they’re really young. They really became resources to me, and I just started to see the world really differently.

I’m also part of another new group that just started last summer. It’s called WOC World. W O C. It’s a group for blind women of color – a virtual community of blind women to support blind women of color.

TR in Conversation with Qudsiya: 39:15
I always like to highlight the importance of meeting people. Because I think it plays a big role. I always bring it back to the podcast, because that’s what this podcast is all about. Not everyone is in an area where they can actually have access to all of these people. And so that that transition process that I think really is impacted by meeting people may take even longer because you have no sort of model of what blindness can actually be.

— Music ends with an ambient fade out

TR:

Qudsiya is a fellow podcaster. She’s the founder and host of Down to the Struts.

Qudsiya:

A strut is like an engineering device that you’d use to hold stuff together.

It’s sort of evokes this idea of like, what are the building blocks? What holds the world together? And how do we change structures and systems.

I wanted to make non disabled people see why they need to think about things from a disability lens and why that’s important and why we should care about it.

TR:

While she was being pushed to write and publish law review articles she found her heart just wasn’t in it.

Already a consumer of audio content including books and podcasts,
she recognized the opportunity to explore some of her interests and expertise.

Qudsiya:

The article I was working on was about disability, specifically disability in the US. And its intersection with immigration, which is one of my areas of expertise as a lawyer.

I really care about disability and its intersections with other types of things like race or other types of policy issues like disability, unemployment, disability and health care.

And I am a person who has experience with like policy and research and these sorts of things.

I really care about this area of work. And I love audio content. And it’s a pandemic, and I’m sitting at home and I got nowhere to go and nothing to do. And I was like, You know what, I’m gonna do it. That’s how Down to the Struts was born.

— Music begins a Hip Hop beat opening with hi hats…

TR:

Occasionally, I’m asked about starting a podcast. My advice closely aligns with the steps Qudsiya lays out.

Qudsiya:

I decided I wanted to do an interview style show and bring a mix of sort of people with lived experience, people who are experts in their fields to talk about sort of very broadly speaking, disability design and intersectionality.

I got a team of people together.

I don’t know how to design a website, I don’t know how to audio edit, I got a lot of brains together. And at first it was just for advice. But then a couple of friends of mine, really like wanted to be involved and wanted to work on it. And I was so touched by their desire to be supportive, they just loved the idea of the project.

I had a focus group of a whole bunch of friends that helped me vote on the title.

We launched our first season in October of 2020. And there’s six episodes, and we’ve just launched season two.

TR:

She narrowed her subject, figured out what aspects best fit her skills and interests.
Assembled others for advice and ended up with a team.
She’s also using a seasonal approach which I highly recommend.
It takes away some of the stress in producing regular content.
And of course, she got feedback on her podcast name. Did I mention she has herself a team?

Qudsiya:

I went to Barnard College, which is part of the women’s college that’s part of Columbia University. So I went looking for a student who was interested in audio editing. That’s how I came across Anna Wu, who is a junior at Barnard.

She brought along her friend Adrian Kahn, who does our transcripts.

I have two other friends. Ilana Nevins is our audio editor and my friend Adriana pole who is fabulous social media coordinator and manages all my Twitter and Facebook and Instagram so I don’t have to. (Laughs )

I’m scared of social media!

TR:

Yes, I’ll admit it, I am a bit envious of her team.

A lot of thought and planning went into the creation of Down to the Struts. Ultimately, it’s figuring out what you want. I get the sense that this is how Qudsiya operates.

Qudsiya:
I realized very, very quickly, that I did not want to be a practicing attorney, I think I probably even knew that before law school, but I knew I was interested in immigration, and I knew I was interested in kind of policy.

A lot of the policy people were like, Well, you can’t really fix the system if you don’t understand the experience of people who are going through it.

So I did practice immigration law, representing asylum seekers and survivors of domestic violence.

And then I went to a different organization where I was managing the program that was delivering services to unaccompanied children who were in federal custody, on the border and in other parts of the country.

TR:

She continued doing that work for a different organization while expanding into disaster recovery and other areas.

— Music ends…

Qudsiya:

now most recently, I’m at a big research like policy institution working on civil court reform work. Making this civil court system for like people who experience evictions and debt collection lawsuits and have to deal with child support cases and things like that to making the system more accessible especially for people who don’t have lawyers, and I bring a lot of my disability kind of focus in there too, because, especially with all the technology and courts, like a big concern is like making sure everything’s accessible.

I feel like, it all kind of bleeds together.

TR in Conversation with Qudsiya:

What do you want people to sort of take away from your podcast?

Qudsiya:

For disabled people, I want them to leave the podcast feeling like their issues are being addressed, that I’m exposing and uncovering the barriers they face and providing positive solutions and proactive solutions to how we can break down those barriers and fix those problems. And for

For the non disabled people I want their eyes to be opened to how the systems and structures that we live inside, whether that’s the immigration system, whether that’s the education system, whether that’s health care, how, they affect disabled people, and how ableism plays a role in that. So that they can walk away and know, there’s solutions to solve them. And I want that information to get out to the people who are the decision makers and the stakeholders in the system so that they can start to make change.

TR:
Think about the importance of all the transitional moments Qudsiya experienced.
From her battle with the white cane to experiencing discrimination on the job
which led to her meeting people who would come to positively influence her life.
Combine these experiences with her own positive attitude and drive and consider her advice for those new to vision loss.

Qudsiya:

Everyone has their own journey and their own experience and their own way of going through those stages of grief and getting to the other side, or whatever the other side looks like, and that’s okay. And you have to be kind to yourself, but know that there’s a community waiting for you. And there’s a lot of possibility and that you are a whole person. And your blindness is a part of that. And it is a really beautiful part of that. That’s something that you should honor about yourself.

— Music begins, a bright inspiring Hip Hop beat

TR in Conversation with Qudsiya:

Qudsiya, you know that you are now an official, and I want to say it twice, an official member of the Reid, My MindRadio family now that you’ve been on the podcast, you know that right?

Qudsiya:

Oh, that’s awesome. Thank you. Thank you for welcoming me into the family.

(TR & Qudsiya laugh…)

TR:

To get in contact with Qudsiya and or where to find the podcast;

Qudsiya:

You can email us at down to the struts@gmail.com. You can find our website which is www got down to the struts.com. We’re also on Facebook, Twitter and Instagram at down to the struts. And you can subscribe rate review the podcast on Apple podcast, Spotify, Stitcher, or wherever you love to listen, so definitely check it out.

TR in Conversation with Qudsiya: 1:00:19
Spoken like a true podcaster.

(TR & Qudsiya Laugh)

TR:

I really liked the way Qudsiya identifies and appreciates the different moments throughout her journey for the value they helped bring to her life.

Once again shout out to Qudsiya, I really enjoyed our conversation.

If you too enjoyed it well you can always feel free to let me know that or any other comments you may have by emailing me at ReidMyMindRadio@gmail.com.
Tell others about the podcast so they can listen for themselves. All I want to do here is to reach as many people experiencing vision loss as early as possible.

You know we have transcripts and more over at ReidMyMind.com right?

And I know you know, that I know you know, it’s R to the E I D
(“D, and that’s me in the place to be! Slick Rick)
)
Like my last name.

Audio: Reid My Mind Outro

Peace!

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