Reid My Mind

TR:

Music begins, a pulsating ominous synth that opens up to a dramatic mid-tempo beat.

TR:

What’s up Reid My Mind Radio?

We’re in between seasons but I wanted to share some thoughts with the family.

Truth is, I wish I didn’t feel obligated to share these thoughts on this particular subject.
I’m hoping one day it won’t be necessary.

Several years ago now, I produced this episode that has really sort of attached itself to me.
It’s the Black Panther episode.
The episode I almost threw away. I didn’t think anyone would care.
I published it anyway.

People cared!

I think.

I’m just ready to move past it.
Meaning, I would love to see those who say they understand and support the need for Audio description to be more culturally aware and competent, put it into practice.

but, it’s like…
Audio sample: “Just when I thought I was out, they pull me back in.” From The Godfather.

— Reid My Mind Radio Intro Music

Sounds of a thunder and rain storm.

TR:

I don’t believe in conspiracy theories.

— Thunder clap

At least that’s how I felt before the phone call.

A day, I’ll never forget.
It was a Thursday.
Damn, it could’ve been Friday.
Either way… I don’t normally answer calls from unknown numbers.
Yet, this one evening, my cell phone rang and Voice Over told me to answer the phone.
Yo! That freaked me out.

Then, I realized after answering the phone that I heard it wrong.
The caller id really said Ann Sur Fonne. I think it’s French.

Wherever she’s from, she called to tell me a bit about the AD Illuminati.

— Thunder clap!

Well, sort of…

This mysterious phone call came on the same day my daughter Riana and I finally had the chance to sit together and watch Judas and the Black Messiah.

It’s a film that explores the FBI’s murder of Fred Hampton. The 21 year old Chairman of the Illinois Black Panther Party who was in the midst of uniting black and other organizations focusing on advancing rights and opportunities for Black, brown and other marginalized people.

The movie was first released in February 21 both in theaters and on HBOMax. I’m not certain about the theater release, but I do know that HBO Max did not yet provide audio description. My daughter refused to watch the film until it had AD and she could watch with her Dad. That’s me y’all!

It wasn’t until sometime during the summer of 2021 that the film received an audio description track on HBO.

Almost a year since its release, January 1, 2022, Riana and I sat down to watch the film.

As far as the movie goes, the two stars, Daniel Kaluuya and Lakeith Stanfield, playing Chairman Fred Hampton and the sell out under cover Bill O’Neil respectively, were both amazing.

It’s never easy to just watch a movie like this as if it were just a story. It’s not. It’s a reminder of a not so distant history a sobering acknowledgment that those in power won’t hesitate to kill when their way of life is threatened.

History shows, that’s often, when Black people are seeking their freedom, standing up for their rights and when there’s a hint of creating a unified front that challenges the establishment.

In 2018, I published an episode that focused on my response to the audio description in Marvel’s Black panther. If you never heard that, I’ll provide a link and hope you’ll take a listen. In summary, I discuss my reaction to the selected narrator. The episode actually goes into much more, but that’s often what’s recalled. I refer to the narrator as the voice of the colonizer – a British white man.

Unlike Marvel’s Black Panther, Judas and the Black Messiah doesn’t originate or belong to the MCU or the Marvel Comic Universe. This story is real. It belongs to us, this is the Black People’s Black Panthers.

I found it pretty ironic that , once again a film featuring a Black Panther is described by a British sounding white man.

— A mix of movie scenes with a dramatic “No” Including “Back to the Future” and “Independence Day”.

I always feel obligated to say, I have nothing against this person as an individual, he’s probably a nice guy.

Truth is, I really don’t have to. This isn’t about one person. It’s about an entire community of people being overlooked.

Anyone choosing to focus on individuals should really ask themselves if they’re really trying to deflect and avoid the real conversation.

— Cell Phone ringing

Not long after my daughter and I finished our post film review and conversation, my cell phone rang.

Yeah, that’s really the ring tone I use. I guess I’m nostalgic for telephones with actual bells on them.

Voice Over saying Ann Sur Fonne!

So I just had to pick it up.

TR in Conversation Flashback::
Hello? (Says hesitantly)

Ann:
What did you think of the AD?

TR in Conversation Flashback:
Excuse me?

Ann:
What did you think of the AD?

TR in Conversation Flashback:
Who’s this?

Ann:
I’m sorry Thomas, this is Ann Sur Fonne, you don’t know me… (Continues talking but fades down to an unintelligible murmur, with narration taking over)

TR:

She went on to explain she’s been listening, watching and reading the things that I and others have been talking about audio description and the need for more inclusion and proper representation of voices in all films especially those that are culturally specific.

She wouldn’t say exactly what power she had but she said she’s on the inside and wants to see change.

Ann:
Have you heard of the AD Illuminati?

TR in Conversation Flashback:
I have but always just thought that was a joke. I thought it referred to [beep]

Ann:
Thomas, whatever you do you can’t say those names out loud or use on your podcast. Your life is in danger if you do.

TR in Conversation Flashback:
What the heck! It’s audio description.

Ann:
Thomas, you said it before and made a damn t-shirt, it’s about more than entertainment.

TR:
Ann talked a bit more. Each time I tried to get more information or even some hint of why using Black voices in films about Black people is an issue, she’d just talk about how much she likes the podcast.

Ann:
I really like your podcast.

TR in Conversation Flashback:
Oh, thank you! Continues talking but fades out and narration over takes it.

TR:

I really need to work on not being easily distracted.

I did get to ask her if there’s any specific connection to Black Panther? I mean

I can’t tell you is all she’d say. Continue to be aware, pay attention and look beyond what you see. I reminded her I’m Blind. We laughed.

Ann:
But seriously, continue to be observant. There are things happening and people claiming they care and want to see change. But as you know now, the AD Illuminati is real and right now, their goals don’t align with yours.

TR in Conversation Flashback:
What exactly are their goals?

Ann:
Nice try Tomas, but I’m already risking my life calling you. I’ll be in touch when I can. Whenever you hear your phone say Ann Sur Fonne make sure you answer. No matter the time of day or night.
Goodbye.

TR:

And that was it, she was gone.

I didn’t mention this to anyone for a day or so because I was just shook.
I finally decided to tell my wife. She just stared at me. I took my phone out to show her my call history.

There was no record of the call.

“I didn’t dream it! I didn’t dream it!” I muttered to myself as I walked off to be alone.

Classic Radio Announcer:
“We interrupt this program for a special news announcement”

Hi, I’m Cheryl Green
And I’m Thomas Reid

Cheryl: That… wait, you don’t look like Cheryl Green.

Thomas: What do you mean?

Cheryl: Well, I mean Cheryl she’s got hair on her head, kinda curly medium length brown hair and she’s got black framed glasses and olive skin.

Thomas: Ok, now that you say that, you don’t sound like Thomas Reid. I think he’s a brown skin Black man with a shaven head and where’s shades and has a full beard and might be wearing like a Wu Tang Clan t-shirt or something like that.

Cheryl: But, we’re both disabled podcasters.

Thomas: Do you think we should say podcasters with disabilities?
Cheryl: – Oh oh, you know, let’s do a podcast about that.
Thomas: Mm! Good idea!

Cheryl: Actually, Thomas and I are working on a project that’s all about disabled podcasts…
It’s called… Oh wait, well, we don’t actually have a name just yet so we’re calling it… oh wait, we don’t actually have the name yet. What should we call it?

Thomas: We should call it, project, project!

Cheryl: Yeh, I love it! Project, Project or like I don’t know, PODAccess.

Thomas: Ok, we’ll go with PodAccess, for now.
With funding from the Disability Visibility Project we’re creating a space for disabled podcasters or
content creators to
Connect with each other, maybe be discovered by audiences interested in your content or share skills and resources

Cheryl: So we want to hear from you…
Current or former Deaf or Disabled podcasters, Deaf or Disabled people interested in starting a podcast or consumers of content about disability or Deafness.

Thomas: We’ve created a survey, that should only take about 20 minutes to complete and we’d really love your feedback.

Cheryl: You can find the survey at https://bit.ly/PODAccess
On that survey you can sign up to receive more information about
Project Project as it develops.

Thomas: Again, fill out the survey at http://bit.ly/PODAccess

Cheryl: Ah, nice job Cheryl!
Thomas: Ah, , you too Thomas! (Laughs)

Classic Radio Announcer: Now back to our show.

TR:
I needed something light to take my mind off this for a while.

I decided to watch the final season of Insecure also on HBO Max.

— Music begins, an anxious melody that continues of a mid-tempo Hip Hop beat. Hip hop

HBO did not provide description for their shows until 2021.

prior to this final season, Blind folks interested in watching Insecure with audio description would need to find an alternative way of accessing the series. Allegedly available somewhere.

If you’re not familiar with issa rae’s Insecure, according to her the show “examines “the complexities of ‘Blackness’ and the reality that you can’t escape being Black.”

While the show is a “black show” it’s characters and subject is universal and relatable.

Sort of like what people with disabilities like to think about disabled content. But you know many non-disabled hear that word and are like oh, that’s not for me!

Similarly, white disabled can hear black and disabled and say, oh boy that’s not for me.

Anyway! Humanity, right?

Insecure is a well done series. Young black people just living their lives searching and figuring out who they are and where they want to go. From Black law firms to the streets , all sorts of Black.

Well, guess what wasn’t Black?
That’s right! The audio description narrator.

And here’s where it gets tricky for me personally. I like and know the narrator. She’s been on the podcast y’all. That makes her Reid My Mind Radio Family!

Let’s be clear, I’m not trying to put people on blast or shame someone for their decisions. To return to the Godfather for a second…
“It’s not personal Sonny, It’s strictly business.”

That being the case, I won’t drop manes, but feel free to look it up. In fact, go ahead and watch the show, it’s entertaining and I support Black content creators.

I really wanted to call Ann Sur Fonne. I wanted to ask her what could be done about this. Does this at all relate to the AD Illuminati?

No need. I’m sure she’d be vague or even worse tell me how much she likes the podcast to distract me.

I really do need to stop falling for that one.

She did encourage me to continue to speak on it and suggested I do the same for others.

So that’s what I’m doing.

Is there really an AD Illuminati?

Is all of this part of some conspiracy?

I believe that those in charge are doing what they know. I recognize that it’s not malicious or done with bad intentions. Folks have jobs to do and deadlines to meet and all sorts of limited resources.

This has been the way it’s been done for years. It goes back to the early decision makers in audio description. They did great things, but they also bear responsibility for where we are today. They chose to not see color. They chose not to seek out culturally appropriate voices. They taught and some still teach the newbies. Has the curriculum been updated or is it the same ol’ thing. You know, that good Ol’ AD!?

I know for many, this isn’t a big deal, in comparison to other issues of injustice or representation. But I disagree! I think it’s just another one. One that will never grab the attention of the mainstream.
It’s black and disabled.

What they don’t see are the core elements that make up the other injustices;
White supremacy
Systemic racism
Ableism, It’s for the Blind so they’ll be happy with whatever we give them.

Ouch!

Yes, hard to hear? Well, it’s not easy to say.

Music begins, an optimistic, bouncy Hip Hop groove.

I offered some possible solutions in the Black Panther episode from 2018.

One worth repeating is seeing the selection of narrator as a casting choice and therefore a responsibility of the director and production team.

If content creators were more aware and involved in the audio description process, I don’t believe we’d have as many of these issues.

I don’t think Issa Rae is aware of the voice providing audio description narration for her show.

, when asked on the red carpet of an award show who she was rooting for, famously and unapologetically proclaimed;

Issa Rae: “Everybody Black. I am. Betting on Black tonight!”

Here’s another consideration for addressing this issue. Individual responsibility.

It’s not just the narrator, audio description is a team sport. No matter where you fall within the audio description life cycle, you play a role.

As I am aware of the process today, broadcasters who commission the AD track have the majority of the power. They are the true shot callers. They dictate what they want the script to look like and the type of voice they want to hear.

AD Directors, Managers, decision makers in general, it’s time to retire the excuses;
“we don’t have anyone on our team.”
“We had such a tight deadline to produce this track”
“We don’t know where to find qualified talent”
All of these excuses just represent the problem. It’s time for you to expand your network, recruit talent and be aware and prepared.

I’ve seen people find qualified voice talent … open your networks, they’re out here.

AD professionals, you have a choice.
If you’re aware of the inequity and say you want to see the change, well, recognize your power.

Narrators!

I find it really hard to believe that you don’t recognize when you’re not right for the project. Rather than finding a way to personally justify that with yourself, why not use your influence to suggest that someone else is hired for the position? Perhaps it’s someone you know and recommend, but in general, speaking up about the subject, being an ally, well that’s powerful.

— “You will not replace us” Chants of Alt Right Mob.
TR:

Is this call for equitable representation threatening?

When it comes to the voice of the narrator on films that are culturally specific, we’re talking about a small piece of the pie. The total number of films and television shows that are focused on BIPOC stories is still a fraction of the total films made today.

White narrators get plenty of work. I don’t see any reason for them to feel threatened by these comments.

This issue is just one part of a much bigger problem.
It goes beyond films like Black Panther or In the Heights. Shows like Insecure. It goes beyond the voice. It’s about the visibility of Black and other people of color

That’s seeing and acknowledging color on screen and stage. It’s recognizing that Blind and Low Vision includes people of color.

Writers!

If you’re assigned to a project, recognize your limitations and ask for help, seek the proper input or suggest that you’re not right for the job.

We don’t need color blind writers.

No silly, I’m not talking about those who can’t see red green or blue, but rather black and brown.

It’s one thing to see Black and brown people when we’re in the majority. At that point, I guess you can’t help it, right?

What about the other films that have a so called diverse cast and include BIPOC characters. The lack of audio description erases them from the Blind consumers screen; rendering people of color invisible.

For Black people and others of color, striving to be seen, heard and in general represented takes place in all aspects of life. What we experience in audio description isn’t unique, it’s a part of that systemic problem that persists throughout society. We can’t wait for it to be resolved outside of audio description and then trickle down. Why not do what we can to address these underlying issues that we’ve all inherited. At the very least acknowledge their existence and commit to doing better.

That’s what this episode is all about today. Doing better…

Music begins, a dramatic piano riff leads into a strong steady beat.

I reached out to some people who I know feel strongly about this issue. Audio description providers who already commit to this idea fully. The Social Audio Description Team who I featured here on the podcast last year.

Together, we’re drafting a pledge that we will invite everyone to sign. That is, everyone who believes in making audio description a representative, equitable and fair space. Those who want to truly see the world in all of its beautiful identities, shapes, sizes, abilities, ….

Do I think a pledge will resolve this? Not necessarily. Right now, I’m interested in eliminating the excuses. We’re in 2022, if you’re not interested in the proper representation of people of color then be firm in your stance and say that.

Don’t tell the community you’re for something while your actions say otherwise.

If you’re in support, raise your volume. I’m talking to consumers as well as AD professionals.

— From Judas and the Black Messiah:
“The whole neighborhood came out. Pushers, grannies, Crowns”
Fred Hampton:
Anywhere there’s people, there’s power”

TR:

I’m hoping to have this pledge published shortly and plan to report back to you. I’ll definitely link to the pledge from ReidMyMind .com and share on my social media pages; Facebook and Instagram @ReidMyMindRadio and
Twitter that’s @tsreid.

Join me in pledging to make audio description or our little microcosm of the world into an example of what we want this place to be. We can’t wait for the rest of them.

In the meantime, according to Ann Sur Fonne, she’s been putting me in position to meet people who want to see audio description recognized for the art it is. People ready and willing to help make AD better for all. People you’re going to meet in this upcoming season of Flipping the Script on Audio Description.
We’re talking:
AD in the lab; Creative approach or Compliance – do we have to choose?
Blind AD professionals, stand up, ya better recognize!
Get some AD to describe this outfit… Blind people are fly too!
And get ready, I’m bringing you La Professora…

The Flipping the Script on Audio Description season kicks-off Tuesday, June 14, 2022.

Come rock with Reid My Mind Radio wherever you get podcasts.
We have transcripts and more at ReidMyMind.com
Just remember, that’s R to the E I D!
(“D! And that’s me in the place to be.” Slick Rick)
Ann Sur Fonne:
“Oh, like your last name Thomas!”

— Reid My Mind Radio outro
Peace!

Hide the transcript

Sound of Vocal booth closing.

TR:

Geez, this idea of trying to open the podcast with something different or catchy is just starting to get to be too much.

If only I had help. If only I had help, If only I …

Sound of Dream Harp!

The Great Kazoo:

(Yawning!) You called?

TR in dream sequence:

Yes, oh great Kazoo. Didn’t you hear me calling you?

The Great Kazoo:

When? Of course not I’ve been sleeping.

TR:

Bruh! Isn’t that your job. To be there to look out for a brother.

The Great Kazoo:

My dear fellow, I’m not only undependable, but I’m a bit of a Kook… That’s why I’m hear remember I’m being punished.

TR:

Really, punished? You act like I call you that often. It’s been a minute since I actually needed your help Bruh. Plus I looked out for you that last time. I sent a very nice email to your supervisor.

The Great Kazoo:

Why don’t you try counting on yourself.

TR:

Oh, it’s like that son? Aight, forget you. I’ll just do the regular intro myself with you, nahmean!

Drop the beat!

Music begins with a Hip Hop Kick drum & bass.

What’s up Reid My Mind Radio Family! My name is Thomas Reid. I’m the host and producer of this podcast featuring compelling people impacted by all degrees of blindness and disability. I should clarify that a bit because I think it may get lost. People impacted by all degrees of blindness and disability? This includes all those experiencing disability directly. A person new to blindness for example. But it also includes their family members and friends. The teachers of the visually impaired, O&M & Rehab instructors who teach the white cane for example or other daily living skills. There are also those in supporting industries from technology, accessibility & of course Audio Description. I consider all of this to be summarized by impacted by all degrees of blindness and disability. For the record, I think our entire society is all impacted by disability, but we don’t all happen to realize that or even feel that way. But don’t worry y’all eventually they’ll catch up with us. That’s on them. So let us just keep doing our thing!

The Great Kazoo:

(Yawning) Oh look, I don’t wish to stay here forever. And since I am supposed to serve you I will try. But take heed, don’t ask for more than you can handle, you may get it.

Sound of reversing Dream Harp…

TR:

Maybe I don’t need help. I think I have an idea after all.

The Great Kazoo:

(Yawning…) Well, see you tomorrow. Maybe. Laughs. Sound effects signaling his disappearance.)

Audio: Reid My Mind Theme Music

TR:

Today I’m bringing you excerpts of some conversations I had over the past few months with multiple Audio Describers. Specifically writers and narrators, each bringing their own perspective and background.

AD is still new. There’s no one “right” way. With there being so much more to Audio Description than what we hear, it’s past time we hear from a more inclusive set of people involved in the process.

So, this is the first in a series I’m calling Flipping the Script on Audio Description. You know, sometimes you just need to hear from another side.

Now let me introduce you to my guests.

Alejandra:
My name is Alejandra (American English accented) or Alejandra Ospina depending on your audience.

TR:

That’s what I’m saying! The Reid My Mind Radio Family like our world is diverse. And that’s how we roll!

(Music begins)

Alejandra:

My business cards have a long list of things, but I like to consolidate it into what I’m calling a Media Accessibility Provider. I do Close Captioning and I do transcription and I do translation and Audio Description and so I like to imagine the things I’m doing all sort of promote access to content. I don’t consider myself as often a content creator but I like to facilitate people getting to see or hear or know what they’re watching.

TR:

That makes me think Alejandra’s introduction to media access is personal.

Alejandra:

Having close friends and chosen family members that are visually impaired and I’ve spent a lot of time describing things for them so it sort of was a natural progression.

Related sort of anecdotally growing up as the primary English speaker in a Spanish speaking family I spent a lot of time explaining things to so the concept of explaining comes naturally to me.

TR:

That sort of hits home for me. My mom played that role for much of her family. One thing I know is that can be a great way to develop an advocate’s spirit.

Alejandra:

I was one of those folks that got on my high horse which isn’t very high, about having people on social media describe images and photos that they post. So I spent a lot of time in the last five years gently shaming or encouraging people to describe the things they post on social media and over time that has caught the attention of folks in disability community and communities of people that are doing this kind of work. And it was sort of a natural progression.

TR:

Next, one of the first Describers to provide a visual description of themselves. This prompted me to not only begin asking other describers to do the same but really to think about incorporating that going forward with all interviews.

Here’s Liz Thomson, who is currently pursuing a Doctorate degree in Disability Studies.

Liz:

(Spelling her name)
Liz Thomson. I would visually describe myself as a dark skin 5 foot 2 person with black eyes and black rimmed glasses. Currently I have a mostly shaved head with a band of 2 inch short black hair. I identify as someone who is disabled, also bisexual and queer. A Vietnamese adoptee. Mostly grown up and worked in the mid-west. I use they, them they’re pronouns.

TR:

you can say Liz had a fast tracked introduction to AD. Learning of it and experience it all in the same evening.

Liz:

One of my good friends who is Low Vision, he invited me to go to a Disability Cultural Program. At the very beginning of the program they ask if anyone needed headsets for Audio Description. He’s used to that and I think he typically takes advantage of that accommodation, but I had never heard of that. And so I was like hey you know I’ll try it out. So I got my headset. I believe this was kind of like an open mic performance.

TR:

It included things like poetry, dance or movement and other artistic expression. probably not the most traditional first experience with Audio Description.

Liz:

So that really got me hooked!

Chanelle:

My name is Chanelle Carson. I am a Freelance Audio Describer out of Las Vegas, Nevada. I’m also the Senior Audio Describer at the Smith Center for the Performing Arts in downtown Las Vegas.

I’ve been working with the Smith Center for actually 8 years now. About 4, 5 years ago actually, during one of our pre shifts they just asked if anyone was interested in learning how to do Audio Description.

At the time I was 22 just out of college. I had been studying film with a focus on screen writing, I was thinking oh, this sounds like it’s right up my alley. I’m a writer and at the time I was very interested in learning how to do voice acting.

Didn’t hear anything for a few months then they sent me and another woman off to get trained at Joel Snyder’s Audio Description seminar.

[TR in conversation with Chanelle:]

Was it kind of hard to take what you learned and go right into the live stuff?

Chanelle:

Oh yeh! It was extremely difficult going from the training to doing live theater because the training was so heavily focused on TV and film that sure the basic stuff like;
Don’t talk over the dialog, Blind people aren’t idiots – don’t worry about being too tender or politically correct with your description. What you see you describe.

Of course with TV and film when you’re doing description for that you have the lovely pause button. You don’t necessarily have that for live theater.

(Music ends!)

You can’t go hey guys I screwed up can we go back. (Laughs along with TR) So it’s very much having to learn how to do things on the fly.

TR:

Like Chanelle, Liz too completed the ACB AD Training. Similarly, the application was less about TV and film.

Liz:

I’ve done photography ever since I was in middle school. I did photo journalism at my high school newspaper, in college. As a photo journalist I was realizing I wasn’t adding Alt Text. I wasn’t adding description in my captions to make it kind of more integrated. I would add a caption but I wouldn’t add that photo description.

TR:
Today, Liz can take up to 25 minutes crafting an image description when preparing to upload.

Liz:

Sometimes people are like how can you do that? Do the in their eyes the extra time and labor to do the Audio Description. My response now is how can you afford to not.

TR:

Even if you put aside making the world a more accessible place for all (boring!) there are some real benefits:

Liz:

It makes me look at my images more closely. It makes me reflect a lot more on images that I shot.

TR:

That reflection could lead to a better understanding beyond the pixels. Photography biases for example.
Liz:

Not taking images of people with disabilities. Taking more images of cisgender men.

TR:

It’s not just about description – Liz is thoughtful about phrasing.

Liz:

Language is also fluid and socially constructed and also has different meanings over generations and time. Like modern and traditional. Well that means something very different now than it did in 1940.

My first draft will be one way and then I’ll look at it later on in the day and then I’ll change it. If I say something like traditional, then I have to ask myself well what do I mean and also what did I really see.

It’s about writing and saying what you saw.

(Music begins)

Alejandra:

In addition to learning the sort of standard ways that one is meant to do Audio Description for video for things like Netflix and Amazon, I’ve also been thrown into the world of how do you break that open and describe differently in ways that are actually respecting the culture, respecting the art. becoming part of the art and not just being tacked on after the fact because somebody does not want to get in trouble for not providing access.

TR:

I find it very empowering to see a lot of that pushing of the boundaries around Audio Description coming from the disability community.

It’s no surprise that Alejandra has worked with Alice Sheppard and laurel Lawson who we featured here on the podcast. All sharing this way of looking at Audio Description as more than an access accommodation.

Alejandra:

I don’t have a specific background in writing, but I have a specific background in wanting to be right!
[TR in conversation with Alejandra:]

Hmm , hmmm! I like that. (Laughs)

Alejandra:

Laughs…

Given that I have a personal investment with my community and the people that I care about

TR:

That’s the Disability community. When you’re connected like that it’s more than a job.

For the record, there’s absolutely nothing wrong with it being a job that you perform professionally.

Alejandra:

I have AD on for almost everything that I watch as well as captions. And there have been so many times where I’m like you know that’s not right, I don’t like that.

TR:

Word selection, maybe failure to fully describe what was on screen…

Alejandra:

We both know that a lot of it is in the timing. And again it’s because AD is added on after the fact. There’s some really interesting things that I’ve been able to consult with

I did a live Audio Description for a panel sponsored by the New York University Center for Disability Studies. it featured the short films of a film maker named Jordan Lord. They create autobiographical films but the AD is baked into the narration. It’s written in sort of a prose style and the shots sort of follow as it’s written. So it’s not something that you have to add on after the fact. The filming is informed by what the film maker has written. And it’s very interesting. I think more films should be made that way.

(Music slowly fades to silence.)

[TR in conversation with Liz:]

have you always identified as disabled?

Liz:

No, I haven’t. Four or five years ago I was in the Disability Studies program, another student was talking about her letter of accommodation and her relationship to disability and her own disability identity. She also had mental health issues and mental health things and I was like oh my God like I’m also part of this community and I didn’t even know.

[TR in conversation with Liz:]

How do those identities impact how you write description.

Liz:

I don’t think people are talking about this, the identity of the describer or the person who does the voice, who writes it. They’ve made a huge impact on how I think about Audio Description and describe.

TR:

While working on an art gallery project, Liz and a colleague each drafted what they refer to as positionality statements. This included their bio’s and a statement about how they became involved in description.

Liz:

If you’re going to read a book, you might want to know a little bit about the author. You don’t have to.

We are not in a post racial world. I think it’s very important and necessary to know if you’re in an art gallery or theater you definitely need to know who’s writing that book or that script or who’s doing the painting, where they’re coming from.

TR:

Liz who completed the ACB Audio Description project training, refers to one of the lessons taught.

Liz:

In Snyder’s training even in his book, I don’t know about other people’s training and workshops but there’s about two sentences about race and that’s about it.

Basically, just to kind of paraphrase it says to describe race if it’s important.

TR:

The guideline refers to importance in regards to the movie’s plot. But like Liz says:
Liz:

I would offer that it’s always important.

TR:

It’s especially important to those who are marginalized . those who have been under or misrepresented on and behind the camera. Important to those who care about equity & justice. Important to those who want to see the real world which includes so much more than just white men. (My words, not Liz)

Important is subjective. So who should make the determination when it comes to consuming content?

I propose the consumer. In order to do that, Blind consumers need that information.

Liz:

If you are describing race you need to do it for all the people or all the characters not just the people of color because otherwise it centers whiteness. So I agree with that. What I’ve experienced though, race is not described. Even in for example, Black Panther or in some movies or TV shows that is predominantly people of color.

Chanelle:

Traveling Broadway shows, they are so white. (Laughs) I’ll be the first to admit and I am about as white as you can get. Thank God more recently we have had a lot more diversity in shows.

(DJ Scratch… Music begins)

Hamilton is like the perfect example of this. Also Hades Town more recently.

I will absolutely go out of my way to make sure to point out that there are Black actors, Hispanic actors, Asian actors in a show just because I really want to celebrate the diversity of these shows going forward. I’ll do the same thing when I’m doing Circe Sol as well. The audience will always be very diverse as well so it’s great for someone who may not be sighted or may be Low Vision to be able to imagine themselves within that person in the show.

TR:

And if we’re going to change the way we think about race & privilege it’s just as important that non people of color also see and acknowledge & respect this diversity.

Like the saying goes, things are rarely black and white. There’s lots of shade in between. Those shades are important and often reveal other stories.

Liz:

If I do distinguish between someone who might be light or medium or dark skin, is that perpetuating colorism? I don’t want to perpetuate colorism. On the other side, probably when people in TV or film make casting decisions they are making decisions like that. Unfortunately!

TR:

Colorism or the practice of favoritism towards those with lighter skin has its roots in slavery and white supremacy. It’s not exclusive to the US or to African Americans but rather throughout communities of color.

Acknowledging a person’s color as description does not perpetuate colorism. A Blind viewer Wanting descriptive information about a person doesn’t make them a racist. Including editorial such as the prettier or menacing followed by color or racial identification, well that’s another story. It’s going beyond what’s required for Audio Description and providing opinion or analysis – which is the responsibility of the consumer alone.

Alejandra brings up an interesting point around identity.

Alejandra:

I’m Hispanic, but I have a lot of experience code switching and ultimately being very white passing, both in my physical appearance and in my voice. And whether or not I realize it or admit it in different situations that’s opened different doors for me.

TR:

And yet…

Alejandra:

The two things are very separate, AD script writing and AD Voicing, but I’ve done some AD script writing for some Netflix shows as a contractor. Not particularly things that I found super exciting but they needed somebody to write a script and then I didn’t get to voice those things because AD Voice work is like any kind of performance and acting work, they sort of have to want you for the part.

I think it’s important for the voicing of Audio Description to match the tone and the content and the intention of the work. And I don’t see that happening. Not very often anyway.

TR:

And then, there’s physical access for the creation of accessible digital content

(Music ends)

Alejandra:
At a practical level, places that are doing audio production, voice recording and audio books, even our local library that handles recording for the NLS, booths are tight. Wheel chairs are not. This is not an experience that these places generally have. They’re not generally expecting a wheelchair user to come in to record and it’s unfortunately like everywhere else I’ve had to have this discussion. Yes, I use a wheelchair, yes we’re going to have to make adjustments to booths so I can get inside, you can just barely squeeze into the booth and you need space to do these things.

And I’m also very interested in Spanish language content AD as well because there’s not as much of it.

TR:

This raises the question of non-English access in general. Something I fail to personally remember on my own when thinking about access.

Chanelle:
Each studio sometimes has their own rules of stuff that you can or cannot say. You can’t say that they point a weapon at someone. You can’t refer to anatomy in certain cases like you can’t say chest you can’t say butt!

TR:

I’ve heard this about Disney. At first, you may think well, Disney produces a lot of content for children. So they’re being sensitive to the viewer. But remember, it’s on screen. And it’s not just Disney.

It’s not just the censorship that annoys me, but even in terms of researching this, we’d need sighted help.

Liz:

If we as describers similar to people who do interpretation with like ASL, if someone swears, the interpreter should interpret that. I think the captioner should caption that. Because that’s what the person said. So similar to Audio Description, I think we also have that obligation.

TR:

Whatever the medium, television & film, live theater, video games, museums, art galleries and yes, you too right now uploading your images and videos to social media – getting all of these content creators to know and think about Audio Description needs to be a goal.

The benefits of AD extend further than the consumer. We all win!

Chanelle:

Regardless of what I’m watching now if it’s a TV show if it’s a movie if it’s another stage show, I find myself kind of mentally describing it like I would do it for an actual performance. So it’s very much changed my view point of media in general.

TR:

I know I’ve heard some conversation around what qualifies someone as an AD professional. A specific number of training hours? Certification perhaps?

(Music begins)

Alejandra:

Here’s the thing.

There are many folks who do this work because they have particular kinds of voices. Because they can crank it out because they’re smooth and more power to them.

I just am not that kind of describer because I have a very particular investment in my community and in the work that I am producing and that doesn’t mean that other folks aren’t doing high quality work. It’s just that what is informing their work is very different.

TR:

For an example of what’s informing her work, you can hear Alejandra narrating Alice Wong’s Disability Visibility: First Person Stories From the 21st Century right now on Audible. The book is available on Amazon and other outlets and it’s Alice y’all so it’s in a variety of formats because Access is love!

Alejandra does a great job narrating and I highly recommend the audio book.

Shout out to all of my guests for taking the time to speak with me;
Alejandra Ospina (Spanish accented pronunciation)
Available at SuperAleja.org that’s S U P E R A L E J A. O R G
The site Includes links to all social media.

Liz Thomson and Chanelle Carson.

You can find both on Facebook especially in the Audio description discussion group

Sound of News Breaking Segment…

This just in, it’s official! You are all a part of the Reid My Mind Radio Family!

I have a couple more episodes that I’m including in this Flipping the Script on Audio Description series. I’m not publishing them back to back so if you’re interested in the subject and want to make sure you don’t miss the next installment, please allow me to make a suggestion.

Subscribe wherever you get podcasts!
Transcripts & more are over at ReidMyMind.com. And yes, that’s R to the E I D
(Audio: “D and that’s me in the place to be” Slick Rick)

Like my last name.

Audio from The Flintstones:

Barney Rubble:

Do you think he’ll be back?

Fred Flintstone:

I don’t know Barn. Might be better if he wasn’t. Look at all the trouble he caused us.

Audio: Reid My Mind Outro

Peace!

Flintstones continues…
Barney Rubble:

He caused us or we’ve caused us? I wonder which it really is. Augh, I think he’ll be back.

Fred Flintstone:

Ah, looks that way. Goodnight, Barn.

Barney Rubble:

Goodnight Fred.

Hide the transcript

Ajani AJ Murray:

Our friend that we have in common, Cheryl green, told me about you and I’ve been listening to your podcast and I love it! It’s so dope and fresh. I’m kind of a Geek so I watch like a lot of PBS and I listen to NPR and so it reminds me of like radio documentaries. I particularly enjoyed when you were talking to Leroy about the Black History especially from the disabled perspective. I did something like that on my Insta Gram and some of my friends were like keep it coming AJ. So now you’re a resource.

Ajani Jerard Murray, a lot of people call me AJ.

TR:

And me, I’m Thomas Reid
producer and host of this podcast.

I usually reserve the opening of the episode for me to
tell you a bit about what this podcast is all about,
but as you’ll see in a minute, AJ is a media connoisseur,
so I was like man, everyone needs to hear his review.

I like to let new listeners know that here,
we bring you compelling people impacted by all degrees of blindness and disability,
told in a way that sounds

Audio: AJ “Dope” “Fresh”

And I do always hope Reid My Mind Radio can be a

Audio: AJ, “Resource”

For anyone especially those adjusting to vision loss.

And with that said, let’s do this!

Audio: Reid My Mind Radio Theme

Audio: Tom Joyner show…

AJ:
I became a big fan of radio because of Tom Joyner. We went to one of his Sky shows in Atlanta and it was at Greenbrier Mall. It was the whole cast and we listened to the S.O.S Ban. From that point for about 2 or 3 years I did a mock radio show.

TR:

A youngster at the time, AJ study the format of the now retired
Tom Joyner, host of the number 1 nationally syndicated urban
(that’s code for Black) morning radio Show.
AJ created his own show which he put on for his family.

AJ:

To make a long story short as I told you earlier I can really talk and go on long.

[TR in conversation with AJ:]
Laughing…

AJ:

I kind of sort of gave up on going into radio because I realized that in mainstream FM radio you don’t really program your own shows. You’re basically playing the same music and also to get to where I really wanted to be and the kind of radio that I would do is something that you have to be in the game for years and years for, like a Tom Joyner.

TR:

AJ knew his true passion.

AJ:

I’m a huge, huge fan of the screen big and small. From the time I was a very little kid I was always just enamored by the screen . I grew up on three camera sitcoms; Cosby Show, A Different World, Facts of Life, Different Strokes. As I got older there was the Fresh Prince era, the TGIF era, the Martin era, the WB era. My love for television in the very beginning was the sitcom.

TR:

Of course, there’s the big screen.

AJ:

My mom loves film. When it came to film she wasn’t really restrictive on what we could watch. Now we couldn’t watch everything, there were certain films I couldn’t watch but like it was 1989 I remember actually going to see Do the Right Thing. I had to of course cover up my eyes during the Mookie ice scene.

[TR in conversation with AJ:]
Laughs…

AJ:

TR:

Shout out to Rosie Perez!
If you don’t know the scene let’s just say Ice cubes are for more than chilling your lemonade on a hot summer day.

AJ:

I appreciated that several years later.

TR:

Now, I’m from the era where parents let you ride in the front seat with no seatbelts,
where you were encouraged to leave the house and explore so
I cannot judge.
[TR in conversation with AJ:]

You know the movie Death Wish? Charles Bronson. I saw that at 6 and nobody cared (laughs) and nobody cared.

Audio: Scene from Death Wish: Knock at door and unsuspecting woman says she’ll anser it. She asks who is at the door and the intruder replies he’s delivering her groceries…

TR:

Don’t open it! He’s lying!

(exhale)

Fortunately, there’s a lot of good that can come from family movie outings.

AJ:

That’s one of the ways we connected as a family.

[TR in conversation with AJ:]
Very cool. So it was the whole family going?

AJ:
My mom and my two sisters. In my house it’s three women and me.

We’re all very very close. That’s one of the ways we bonded. Sometimes we’d listen to classical music or something really peaceful because I grew up in a very peaceful household.

TR:

Television & movies can also initiate conversations about all sorts of topics and
even ways to explore culture.

Just be careful about that last one there, we know Hollywood doesn’t always get culture right. (Ahem!)

AJ:

I always had this dream of being an actor. It was something that was always looming in the back of my mind. It was always in my spirit, but I didn’t know how to physically make the connection. I couldn’t necessarily afford acting classes at the time and I wasn’t in high school at the time to be a part of an acting club.

TR:

Financial accessibility, we don’t often talk about that in our conversations around access.

AJ, made use of what was in his reach.

AJ:

The screen was my classroom! Anything I could get my hands on or watch or any old interview s. I really appreciate actors that do interviews like I stay stuck on the Biography channel, on Actor’s Studio. Any time there was a documentary series about behind the scenes I’m all over it!

TR:

Screens bring their own access challenges.

AJ:

when I watched re-runs of television in the 50’s and 60’s even like 20 years ago, 30 years ago, they always had like a voice over guy read everything. One of the things I always laughed at is like watching re-runs of the old Andy Griffith show. the announcer says it’s the Andy Griffin Show, starring Andy Griffin and I always laughed because I’m like didn’t he just say it’s the Andy Griffin Show.

But I realize he said that because he was reading the opening credits. Everything was announced. it really helps me as a visually impaired person.

[TR in conversation with AJ:]

People think Blindness is an on or off, so you see everything or you don’t. I know that there are real specific challenges for people with low vision when it comes to that.

AJ:

I’m glad you brought that up. There could be things that I can see one day and the very next day I won’t be able to see. I look like I can see and so people they start laughing or they think you’re lying or they think you’re not looking hard enough. I’m like I can’t see this.

Even when I’m in my power chair I would rather like walk behind someone so it could be like a human guide.

TR:

AJ’s vision loss is related to his Cerebral Palsy or CP.
It impacts all four limbs so as he described to me, he needs physical assistance with most things.

Most things physical that is…

AJ:

If I was watching Happy Days or Laverne and Shirley or Three’s Company or All in the Family I would create a character, none of it is written down because I’m not able to physically write.

If I was watching Three’s Company, if Jack and Larry were going down to the Regal Beagle well I was too. If I was watching Law and order , no I couldn’t be a detective but I could help Jack McCoy as one of his assistant DA’s. I just made myself a part of the cast.

TR:

AJ’s imagination was open.

His opportunity to hit the stage came in high school.

AJ:

I had such a ball in high school. It was such an atmosphere of like were going to support you and you’re a part of us. My favorite drama teacher his name was Dr. McMichen. I was thanking him for making sure the stages had ramps and I was included in on all the trips.
He let me know, you are a part of this club and a part of these plays and it’s because you are good not because you are in a chair. And that made me feel so good.

TR:

following high school he continued working on his craft by attending workshops and finding a community of other actors.

AJ:

I would say over the last three and a half years I’ve gotten the opportunity to be on screen.

the first thing I booked when I got my agent was, we did an episode of Drunk History. And that comes on Comedy Central. That episode was actually about 504Act. That’s kind of the precursor to the ADA.

Then I was able to do an episode of ABC’s Speechless. I played a character named Charlie.

I was able to do an independent film called Bardo Blues. It’s an interesting very nonlinear artsy film that talks about depression and bipolar. I play the neighbor to the lead.

Audio clip from film…

TR:

His latest role is Best Summer Ever, A Musical.
It takes place in a high school.

AJ:

It’s a romantic story and all kinds of teenage angst ensues. I play the older brother so I’m not involved in the teenage angst but I do sing in the film.

TR:

The film consists of a cast of over
60 disabled actors as well as those without disabilities.
It’s being screened at South by South West on March 14.

You can also see AJ in Becoming bulletproof.
Every year, actors with and without disabilities meet at
Zeno Mountain Farm to write, produce, and star in original short films.

Audio clip from film…

AJ is the focal point of the doc.

AJ:

I also did a documentary, it’s called Take A Look At This heart. So I talk about my experience around my sexuality and dating. So it’s an ensemble so It’s not just me. I believe that’s now streaming on Amazon.

TR:

AJ’s getting some roles and definitely
making a name for himself by judging film festivals, hosting events yet
he found himself in a dark place.

AJ:
Heavy dark! Like I was really, really down.

I was on a walk with my mom. I was in California at the time and it was a beautiful sunny day. It came to me, instead of being down about not getting auditions or you know nobody’s calling or you’re having a hard time with employment; why don’t you write what you want to see?

TR:

By now you can tell AJ puts a lot of thought into what is on the screen,
big or little. So of course he would do the same for his script.

AJ:

A lot of characters that we see it’s either one person with a disability and I’m not saying you don’t ever see it, typically they don’t have any friends. To my experience I have a bunch of friends with disabilities. Not just CP, but all kinds of disabilities.

I just want to lend my voice to reflect that on screen.

TR:

Think Living Single, Friends or the Big Chill…

AJ:

These group of friends, People with disabilities in a more adult context. All with different types of disabilities like CP, like me. He also works. Then you have another character who has CP they walk with a gate. Another character she has a traumatic brain injury and she’s very athletic…

[TR in conversation with AJ:]
And may I lobby for a Blind guy who likes audio and…

AJ:

If we get picked up brother I’ll write you in a couple of episodes.
[TR in conversation with AJ:]
There you go man, there you go!

TR:

Alright, fine, it’s not about me.

In order to physically write his words, thoughts and ideas AJ has a very special writing partner.

AJ:
My mom helps me a lot with a lot of stuff behind the scenes. We’re actually working on a book and that’s going to be out sometime soon and we do public speaking.

TR:

The latter is done under the name, I Push You Talk. What a powerful statement.

Pursuing your passion can really be hard.
There are always reasons to throw in the towel or change course.
Legitimate reasons that wouldn’t in anyway classify someone as a quitter.

For example…

AJ:

Just because you perform in school, that doesn’t mean that it’s going to translate to the screen or you’re going to have this career.

TR:

There’s also the physical pain that comes with his CP.

AJ:

I’ve been in pain since my early teens to pre-teens. As I’ve gotten older sciatic pain and nerve pain over the years have like sort of advanced to like more of a chronic level as far as nerve pain.

My love for everything that I experience and everything that I’m going to and want to experience has to be bigger than my pain.

[TR in conversation with AJ:]

You don’t probably see people with disabilities in many of these films that you are watching.

AJ:

That’s a hundred percent accurate.

[TR in conversation with AJ:]

So it doesn’t sound like that dissuades you.

AJ:

I didn’t necessarily have this as a child but with the combination of my mother speaking to me and my imagination, I just had this sense that it was put inside of me so I’m supposed to be doing what I’m doing.

There’s people of faith in my family so I do have spiritual background. With all those things combined because of my atmosphere, I’m the man you’re interviewing today.

Audio: AJ Scratch… Ladies singing “AJ” while beat rides under…

TR:

That’s Mr. Ajani Jerard Murray.
Actor, Writer, Speaker, Consultant and soon to be Author Producer &…

AJ:
Things sort of have this way of coming back around full circle. I’ve gotten into podcasts and I want to start a podcast and I want to do it with a group of people like a morning radio show. Sometimes my dreams are very big and lofty, but I have a lot of faith and I believe it could happen.

TR:

It really does all start with imagination.
And it continues with that determination, persistence and faith.

AJ, brother, thank you for letting me share your story!
And you know what’s up, you are officially a member of the Reid My Mind Radio Family.

You can reach AJ via social media at:
Twitter – @GotNextAJ
Instagram: @AjaniAJMurray
Ajani Murray on Facebook

You can catch both
Becoming Bulletproof and Take a Look at this Heart
streaming on Amazon.
For those with that prime membership it’s included.
Unfortunately they don’t have Audio Description, however Becoming Bulletproof does at it included on the DVD.

Best Summer Ever is screening at South By South West so if you’re hanging out there go check it out.

I’ll have links over at Reid My Mind.com to AJ’s social media and more including a web series on YouTube.

I hope you enjoyed getting to know AJ as much as I have. I look forward to continuing our conversations and I have a feeling based on his thoughtful insight that you’re going to hear from him again in this space.

If you agree that what we’re planting here on the podcast can provide some nourishment or maybe a sweet treat, please share it with others.

Ya dig!

If you want to help it grow a bit, you can even go on over to Apple podcast and leave a rating (5 stars, a review would be pretty cool too!

Please, , do not apply water to the podcast, that will not help it grow at all!

Reid My Mind Radio is available wherever you get your particular flavor of podcasts. Remember links and Transcripts are at ReidMyMind.com.
That’s R to the E I D
Audio: Slick Rick, “D, and that’s me in the place to be!”

TR:
Llike my last name.

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

Audio: Radio turning through different FM stations.

TR:
Rise and shine beautiful people.

Audio: Lovely Day, Bill Withers

You’re listening to WRMM better known as Reid My Mind Radio. I’m your host T.Reid.

If you just stumbled across this station while turning the dial on your virtual radio, welcome!
This is the place where you’ll find stories and profiles of compelling people impacted by blindness and disability. When I’m in the mood or have something of interest to share about my own experience I’ll serve that up to you with a bit of my sofrito if you will. My combination of spices!

Today’s episode is long overdue and that’s my bad.

But, as it turns out, it’s just the right Day to tell you a story!

Let’s go!

Audio: Reid My Mind Radio Theme Music

Day:

“I’m a big advocate for doing whatever interests you because to be honest if you have a disability , disability is going to come into it whether you want it to or not.”

TR:

That’s Day Al Mohamed. She encompasses all of those things and more. An Advocate, someone pursuing her interests and a person with a disability.

Specifically on that last point, she’s a visually impaired guide dog user.

We’ll discuss her advocacy work of course, but there’s just something I find so cool about people pursuing their passion. for Day, that’s writing.

And just as she said, disability comes up!

Some of you may be familiar with Day from her time at the American Council of the Blind. But here’s something you may not know.

Day:

I think most people don’t realize even with a last name like Al-Mohamed they assume I’m American. I don’t have an accent when I speak English or anything like that. However, I was born and raised overseas in the Middle East in Bahrain. A small island just off the coast of Saudi Arabia. It’s like 15 miles across, it’s that small. I didn’t come to the US until I was 17.
[

It’s one of those things that people are like wow you’re actually a foreigner. Then I have to reveal the small cheat that my mother is American so … And then they go wow that must have been really rough for her because she’s an American and she went to this whole conservative like Middle Eastern country. And I’m like my mom was from Missouri so she went from conservative Mid West to conservative Mid-East. It was not that big of a change.

[TR in conversation with Day:]
Laughs… So did you go back to Missouri when you came back to the states?

Day:
I actually went to college there at the University of Missouri and stayed on there for law school as well. I think that’s kind of where I got my start with legislative issues and policy issues were actually there in the state.

TR:

Day was presented with An opportunity.

Following a discussion about sponsoring a bill around disability employment, a Missouri State Legislator decided:

Day:

“I should put my money where my mouth is, I should get a disabled intern. You know that’s what I should do just get a disabled intern.”

And so he just put out this call for a random disabled intern and I kind of randomly got it. When I showed up at his office he was like can you answer the phone can you talk to people. So he had no idea about the capacity of people with disabilities at all.

I think that’s kind of always stuck with me and I look for other people who kind of have that same walk the walk.

TR:

That sort of attitude can really pay off; for all involved.

Day:

And by the time I’m done he’s like “Hey I need you to write this up as an amendment for the floor Go, go, go

TR:

Ever since then, Day’s been moving.

Day:

you know when you get a job it kind of starts you down a path.
I ended up actually doing an internship at the US Senate in Ron Wyden’s office and so I ended up doing more policy work there.

Next I did law school and then I actually did some stuff with the Preparatory Commission for the International Criminal Court
before there ever was an ICC over at the Haig in Europe. They were trying to design an build it over at the UN up in New York and so I got a chance to spend a good part of summer there working with folks who were on the commission and it was amazing .

TR:

Then Day learned that the American Council of the Blind was looking for a Director of Advocacy and Legislative Affairs. This gabe her the chance to go to D.C and work on national policy.

Throughout her career, she’s worked on a wide range of topics.

Day:

social welfare, employment, technology, education.

I actually worked on Missouri’s conceal carry.

I kind of ended up falling into doing more disability but in general I’m a big advocate for doing whatever interests you because to be honest if you have a disability , disability is going to come into it whether you want it to or not.

I was with the American Psychological Association and for them I did do disability policy but I also did racial and ethnic minorities indigenous populations, some of there international development work. It was a nice mix in broad areas and I wanted to help them get started on creating an immigration portfolio because we were seeing a lot more activities in that rhelm and I think we had something to say.

[TR in conversation with Day:]
Do you have a special area that is very close to your heart?

Day:

It’s hard to say because I tend to fall in love with all sorts of different things. Which I guess in many ways means I’m a Lobbyist at heart. That word gets such a bad rap but honestly all it is is an advocate who gets paid.

You learn how Congress works and then you find people who are the experts or you find people with stories to tell and then basically you are connecting those pieces

TR:

Yes, the pieces are connecting! This advocate, is a storyteller.

[TR in conversation with Day:]

You can definiely talk that policy butI do want to get into the creative side.

I was looking on your website, DayAlMohamed.com, and you have a page that has different versions of your bio. What I thought was interesting was the policy stuff doesn’t come until the very end. The last two versions, the long version, but the other versions are really focused in on the creative endeavors, your writing. Am I reading into that too much? Is that your focus, do you really like to focus in that area?

Day:

I think part of it is (ahem!) I need to redo my website. Laughs!

[TR in conversation with Day:]
Laughs!

Day:

For anybody looking at DayAlMohamed.com I’m trying to get it to split. One is Day in Washinton which is where I cover all of my policy work and that’s where you’ll find some policy analysis and disability related stuff.
One of the things I’ve been doing , it’s almost 10 years now is writing fiction and in the last couple of years I’ve been doing more and more writing . I write fantasy and science fiction so we have books, short stories, a couple of comic book scripts, although it’s not fantasy and science fiction I recently put out a 30 minute film and I have 4 or 5 other short films as well. And so there’s been a lot more of the creative stuff.

It started out as something to do when I first came to Washington DC. My wife actually stayed back in Missouri to finish her degree and so if you’re away from your spouse for along period of time it gets kind of boring but it also gets kind of lonely so I signed up for a writing group. and started meeting with them.

I cannot laud enough the benefit of joining a group. You have other people who are striving for the same thing you’re doing. You have people who can kind of act as a sounding board for ideas, folks to critique. Having that kind of ability to have people to do that it only makes your writing better. I would say no good writing ever came out of a cave.

[TR in conversation with Day:]
So let me anticipate a question that someone would have when they hear that. Someone new adjusting to blindness would say well what about the fact that I’m blind and I’m assuming that wasn’t a blind writing group

Day:

It was not.

[TR in conversation with Day:]

How did that play. And you know, obviously this is something you’ve been doing for a long time but did that play into it in anyway?

Day:

Not as much as I thought it would. Really,..

[TR in conversation with Day:]
How did you think it would . And I’m sorry to cut you off but I want to get that…

Day:

No, no I think it’s a good one.

I think I worried that I wouldn’t be seen as a serious writer, which never happened. Or that they would question my capacity which also never happend. The group always made a point of meeting somehwere that was metro accessible. And we’re in the DC area so they were like well yeh not everybody drives and although at that time everybody else did drive they continued to make a point to only choose metro accessible areas. Even though I know that for a couple of metings it got very tough trying to find a location.

TR:

The benefits go beyond access.

Day:

There was one member who was a copy editing guru and oh my god the number of times she yelled at me about misplaced commas which you know with a screen reader is not necessarily the easiest thing to find when you put them in wrong and to go back and read to figure out where you got it. She was nice about it but she certainly still expected me to make sure I followed through on that .

That I had a strong story arc, character development. All the same kind of things. So realistically it end up with there not being any real difference blind or sighted.

[TR in conversation with Day:]
Nice, nice!

TR:

It was a nice experience for Day.

Unfortunately, she did mention how some people with disabilities reported negative experiences in other writing groups. That however, shouldn’t deter you.

Day:

I would encourage anybody, if you want to write go find a group and do it. Make a point of talking to other people about their ideas or ask them about their ideas. You can also find out about how other people have built things.

Find a group that meets regularly and a lot of things are like anything else they tel you. What you put into it is what you get out of it.

TR:

Ocasionally you may find the support going beyond notes on character development or punctuation. Llike the time day was feeling less than confident about her work.

Day:

“Oh my God I’m the biggest hack on the planet. I never want to write another word again.”
And she’s like we’re going to go out and drink some wine.

[TR in conversation with Day:]
That’s cool. That’s a nice supportive group.

I think for folks who are adjusting and new to it, it’s refreshing in a sense to know that it’s ok to have that doubt in the beginning. So you still were concerned about it but you went through with it. That’s a really important thing I think for people to grasp.

Day:

I think even if it’s a recent loss and it’s kind of tough and you’re struggling it’s a good excuse to get out . It’s a good excuse to start thinking of things you can do. What does it requirewell one is reading books so you can get an idea of what is out there and the second is trying to put your own thoughts down and whether that is personal journaling that you share with no one. Essays about your own transition or putting together fiction it’s all that same process.

I find it therapeutic but at the same time I look at it more professionally.

The more you do it the more you start finding other people like you.

TR:

Specifically other people like author of The Duff, Kody Keplinger, who’s book was made into a movie. She by the way is Blind.

Day:

Recently I had an essay that was published with one of the big Science Fiction magazines and the editor is Deaf Blind. I was like hey there’s more of us out there than you know once you start looking

TR:

Yet, it’s still a pretty big challenge to find us in the pages of books, screen plays and scripts.

Day:

I think one of the reasons I like science fiction is because it tends to be more future looking. A lot of it is very political. Things people don’t want to deal with today they’ll look at in Science Fiction.

One of the biggest problems with science fiction in general though is it
does not usually portray disability. If it does it portrays it very poorly. So basically, we don’t exist in the future. I have a huge pet peeve with that.

TR:

What would you expect then from a self described Lobbyist at heart – who uses stories to help advocate for those things that she’s passionate about.

Day:

So part of me is like I want to write it. You know we’re there. Not everything gets cured. That’s not how it works, that’s not how people work.

[TR in conversation with Day:]

Talk to me about any Sci-Fi films or books that reflect a positive image of disability. Are there any?

Day:

Ooh

There’s one book it’s actually book 2 in a series.

I think the first book is called The Hundred Thousand Kingdoms. The second book is called The Broken Kingdom. It’s by N.K. Jemisin. The protagonist is actually blind.

It’s a fantasy setting. Most of the time when you think fantasy people think like Game of Thrones. They think swords and wizards, it’s very Eurocentric

what Jemesen did is she does this in a lot of her things
she actually builds fantasy that is not. Culturally a lot of it is more African than anything else. And I love that. I love it. I’m seeing parts of the world reflected and cultures you don’t normally see reflected, that you don’t normally think of as fantasy.

I think this last year Jemesen won the Hugo Award think about it as Science Fiction’s Oscars. She won it for the third year in a row. Nobody has ever won it three times.

TR:

Day’s love of writing goes beyond genre and form.

Day:

When I started writing I actually didn’t want to write novels I wanted to do film scripts. It requires a team so I wasn’t sure I could do that as a Blind person so I kind of slid in to doing the novels and the other writing.

I had built up enough cache that I felt secure in my writing and so I actually went to a couple of local film groups. DC Film Makers and I also visited Womens Film and Video. They meet every month and they do … we’re gonna doa movie. Who wants to do different roles. It was a chance to try and experiment a little bit.

I originally came out going I’m just going to be the writer. Guess what I can do writing, no big deal. So I started meeting some other folks doing that.

[TR in conversation with Day:]
Ok, so now, when you started that you said something so I think it revealed a little bit more…

(laughs)

Day:

Laughs…

]

[TR in conversation with Day:]
I’m peeling back some stuff here.

Day:

Here wwe go!

[TR in conversation with Day:]

You said that originally the intention there was to go for film.

Day:

Yes.

[TR in conversation with Day:]

Ok, so when you were younger was that the thing you kind of wanted to do?

Day:

As a kid, nah, I think it was still novels that were my thing. But when I first started writing in DC and I found that writing group the first stuff I submitted to them were scripts.

[TR in conversation with Day:]

Ok, I gotcha!

So when did the interest in film come into play?

Day:

I don’t know! I may have to think about that because I don’t know!

[TR in conversation with Day:]

And probably the reason that I’m asking, well number one, I’m interested.

I’m in this process now of kind of going back into events from my past sort of thing right, and then seeing where these interestsstarted and its just been interesting to me. So i ask everybody right now (laughing) I’m like do you know where your thing started from. (Fading out)

(Fading in) It’s a really cool thing because it’s like oh wait, I’m supposed to be doing this because I’ve always been interested in it. And that’s what that process kind of unveiled for me. I think it’s probably the same for a lot of people. I’m just letting you know, there’s something there. Which is great. Which means you’re doing what you’re supposed to be doing.

Day:

I tend to like a lot of the writing so film, I like the short stories I really like doing the novella length work and I had a good time working on the two comics that I did. It was a lot of fun.

[TR in conversation with Day:]

Visual, it’s comics, but you wrote it.

[
Day:

I wrote it. I was partnered with some really good artists and the nice thing is generally in comics the decisions of what the art images are supposed to be is usually left to the artist.

TR:
Quick recap.

Day decided to pursue her interest; writing. Ultimately she was interested in writing for film, but she was uncertain how she could go about that being Blind.

Then she found her “in”. It’s specific to her, but the idea is universal.

She found a bridge or a means of getting her to her destination. In this case, writing films.

There can be multiple ways to create such a bridge. Sometimes it’s having someone close to you to share in the experience.

Day:

As the fun couple thing, my wife and I usually take turns a couple of times a year. We pick out something we want to do. She picked ballroom dancing one fall so a few years ago I said I want to do a film class and I want you to do it with me because I don’t think I can do it. There’s that as a Blind person I don’t know how it would work. I’m totally secure in writing one and I’ve been meeting with these other film groups so I have an idea how it works but I don’t know if I can actually do it. Getting cameras and all these other thingngs working well , so she said sure.

We signed up for a film classwith Adel Schmidt, who’s with Docs in progress – which is a documentary organization in Silver Springs. I’m just going to call her out by name because she was awesome. She’s like yeh, I’m not sure if you can either but let’s just go with it and see if we can figure it out.

[TR in conversation with Day:]
Nice!

Day:

She says you always start with the story.

It was like a 6 to 8 week class. You should have a one or two minute either short film or clip or trailer.

So you write out the narrative about what you want to say. You need to make sure it has a good narrative arc , it has rising tension and a climax. All the things you want in good writing. Then you record the whole thing.

Audibly reading the script. That helps give you the timing.

Then figuring out what images you want to slotin at what time.

So I know at 1 minute and 10 seconds where I say this I probably want an image of this. And being able to kind of almost wriggle this grid of what the film would look like.

And then you can go to either finding a way to record the film or finding images that already match that.

[TR in conversation with Day:]
So is that storyboarding?

Day:

Right, I guess you could say it kind of was storyboarding out the whole thing.

We figured out that would be a way that I could control what was happening when making the film. It’s not somebody else making it and then me going here are the images that I think and then if we did or didn’t get those what would be the next alternative. Let me see if that works Maybe I need to change the language and then slot in the images. We talked about would there be good transitions and how to do those. I’ll admit the transitions I had to rely on somebody else to figure out whether it looked really great or not. And then adding a layer of sound effects and then a layer of music on top of that. When I got done that’s what the trailer to The Invalid Corps is. And I used that for my Kickstarter video to fund making the 30 minute documentary.

At least now I know I have a way to make videos that this will work where I can say I control it. It’s mine because there was always that little bit of doubt that if I did it with somebody else oh yeh the the person who is sighted really made the film. With this one there was no question who made it.

Audio: Civil War Marching Drums…

TR:

The Civil War, is the setting for The story of the Invalid Corps.

Day:

My wife is the Archivist at the University of Maryland , University College she does all sorts of historical research and she often heard about them because there was this song and it ended up being real popular in the 1880’s but it really made fun of them. I’m like what is this Invalid Corps. So I started playing around on the internet and finding out more and a little bit more and then I’m like wait a minute, there’s a lot more to this.

Audio: The Invalid Corps (Song)

Day:

We hhear about how many amputations there were and how many injuries and how many deaths, but nobody ever stopped to ask what happened to those guys after they were injured or after they lost a limb.

TR:

Low on man power, rather than discharging injured soldiers, an all disabled regiment was created.

They did things like;

guard supply stations, trains and other property
Work in hospitals and prisons

Day:

They created 24 separate regiments.

[TR in conversation with Day:]
Confederate?

Day:

Union.

[TR in conversation with Day:]
Ok, good! Laughs.

Day:

They did a lot more than people give them credit
for.

It’s a pretty awesome story.

Audio: Snare drum: colonial marching…
So the year is 1684. The war has been going on for three years now. General Grant’s making his final push through Petersberg and on to Richmond to take them down at the end.

He pulls every soldier, every able bodied soldier out of the North and basically their all marching on to Richmond.

So he’s putting a lot of pressure on Robert E Lee. They can’t get out they can’t get supplies. In this kind of desperate attempt to break that siege Robert E Lee sends General Jubal Early, this Confederate General, he sends him North…”Cause as much trouble as you can”

Here’s the issue, because Grant had pulled everybody out there wasn’t really anybody to stop Early . So Early heads North through Virginia and rather than crossing at Harpers Fall he goes up and around through Maryland and then he comes down South towards DC — think of a reverse question mark.

Because there’s nobody there to stop him, he makes it all the way to Fort Stevens which is about 4 miles North of the Capital.

There’s nobody there except some clerks, some government officials, and this Invalid Corps.

You got these Invalid soldiers on the wallsof Fort Stevens and in front of the fort basically having to hold out against like 15,000 Confederate soldiers.

Until Grant suddenly realizes “Oh my God we’re about to lose the Capital! puts the entire Civs Corps on boats and sends them up river going as fast as they can to get to Washington before Early does.

These guys hold out for 24 hours until reinforcements arrive.

The thing is Abraham Lincoln was on the Ramparts of the Fort that day and they even took pot shots at him. They ended up shooting a soldier who was a few feet away from him. They could have taken down the Union or at least taken out the Presidency.

[TR in conversation with ES:]
Wow! That’s an awesome story!

Day:

I know!

History that’s kind of gotten lost and there’s some amazing things. One of the soldiers, he was assigned to the Provost Marshall’s Office, so people knew of him as a Provost Marshall soldier but He’d actually had a disability and was with the Invalid Corps and they just decided to put him there. He was one of the guys doing the detective work to figure out who assassinated Lincoln. So he helped with the hunt for John Wilkes Booth. So he’s like I know where he is. He was doing the tracking, but he was called back to Washington so if was a different unit that got the prestige of saying they caught him. Well, basically he died!

The soldiers who were supposed to guard the conspirators, all of them were Invalid Corps.

The only soldiers who were allowed to carry Lincoln’s caufinalso was that unit.

[TR in conversation with Day:]

Wow!

Day:

I know!

This piece of history, basically disability history that nobody has really researched or talked about.

TR:

A significant amount of research time went into creating this documentary. It’s not as though there are books available on the topic.

According to Day, there are a couple of people currently working on writing them now.

In the meantime, the documentary is done and ready for the festival circuit.

Day:

I want to give it a year where I’m sending to festivals and trying to look for places to screen it and after that I’ll look at finding ways that people purchase it.

It has both captioning and audio description.

The film was crowd funded Shout out to all of the amazing people who helped fund that.

As a part of supporting disability creativity sort of thing, I think there are maybe one or 2 exceptions and this is out of a couple of dozen.

Every single person who has worked on that film either has a disability or is a veteran.

It’s not like I asked flat out going do you have a disability because the 2 I don’t know about I didn’t really ask.

I wanted to make that a part of the way the film was made.

TR:

I get the sense that “walking that walk” and pursuing one’s intrests, aren’t just personal practices for Day. It appears to be a message she spreads.

I want a talk about your bucket list.

Number 1 that is so cool and scary at the same time. I said Oh my gosh. I don’t know if I would want to put out my bucket list because it kind of keeps you accountable because people are going to be watching it.

Day:

Right!

[TR in conversation with Day:]
Which is a great idea. And then I saw that you challenge people to put their own bucket list . I started reading that and I was like awh damn!

Day:
It’s accountability but it also gives a picture of who you are to other people and it encourages other people to go yeh, what do I want and where do I want to go.

You’re doing this thinking where you going back and looking where you started. I think a natural out growth of that is a bucket list looking forward.

[TR in conversation with Day:]

I never really considered doing one. I never really did, that’s something I’m going to take away and start thinking about.

Two things from your bucket list I found kind of interesting.

How are you doing with the guitar? You have an electric and an acoustic now?

Day:
Yeah, I do. I still only know like 6 chords.

[TR in conversation with Day:]
That’s not bad

Day:

It’s not bad but I still need to work a little bit more on it.It’s actually one of the very few things I do that I can say is just for me and only me. And one of the only things I find relaxing. I have a hard time whinding down.

[TR in conversation with Day:]

The reason I ask you that is I got me a guitar a couple of years ago also an electric. My daughter has an acoustic and I kind of took that and started playing and now I like the acoustic better. It’s more forgiving than the electric.
Similarly I find it very relaxing. I have to get back into it because I had a little carpel tunnel…

I do want to someday be able to play with some other folks. I think that would be cool.

Day:

Right!

[TR in conversation with Day:]
That might be on my bucket list.

Day:

You know when the best time to have and use a guitar, Christmas. If I could do 5 Christmas songs. they aren’t usually that complicated. Everybody knows a Christmas song. I have a whole year to come up with 5 songs. That means I need to learn one every other month.
I could do that that’s not terrible.

[TR in conversation with Day:]

I’m gonna have to checkup see how you’re doing. Laughs

Day:

Laughs I’m gonna be in so much trouble come Christmas.

[TR in conversation with Day:]

Now you have one on there number 5 and it says something about being a mentor /inspiration. I don’t think I told you that in 2006, that was my first PCB Conference.

Day:

Was it really?

[TR in conversation with Day:]

Pennsylvania Council of the Blind . That was the first time you were there.

Day:

I do not believe that man, when you rolled in with so much swagger. Come one. Seriously.

[TR in conversation with Day:]
Yeah, That’s just that New York thing!

Basically two years after losing my sight.We were a new chapter and I was one of the folks who started the chapter out here in this county. I just learned so much that week. You were a big , big part of that learning. You did a keynote at that banquet and it was all about whose in your audience.

Day:

Yeah!

[TR in conversation with Day:]
I know, I remember this. And so I really took a lot away from that.

Then later on in 2007, was my first time going to the ACB Legislative Seminar and once again there you were. You were talking about Eugenics and disability. And againI’m very new to disability at that point. So you truly opened my mind and inspired me to kind of dig deeper into what disability means and what it doesn’t mean. I think you should reconsider number 5

I think that this interview has been long overdue. You know I get a little nervous too. I look at certain people as inspiration and I usually don’t like to use the word but in this case it does apply.

Day:

Well thank you . That totally makes my night. Actually it totally makes my year. That’s kind of awesome!

[TR in conversation with Day:]
Laughs.

That’s along overdue thing I should have told you.

TR:

I truly mean that. It’s not only long over do that I share that story with her, but to also share Day’s story with the RMM Radio Family.

Thinking about it, this actually is the perfect time. This episode is a great follow up to the last; Disability Representation in Media

Day is telling stories including disability whether in the subject matter like the Invalid Corps, the inclusion of characters and of course making it all accessible.

And she’s continuing to inspire yours truly, this time not as much from a far.

Day:

So I got to ask, what are you thinking about writing?

[TR in conversation with Day]

(Breathes in deeply!) Laughs!

Day:

You hinted at it, you hinted at it! I’m not letting it go.

[TR in conversation with Day:]

Wow! You know what I always wanted to do. And this would be something that’s on my bucket list. That’s why I was interested in the documentary. I love documentaries. Like I love that.

I’m really just trying to figure out what that specific topic is what that story is that I want to tell. I do love stories, period.

Day:

Well awesome. You should totally do it.

TR:

Big shout out to Day Al-Mohamed.

[TR in conversation with Day:]

Day, I truly, truly appreciate this. Thank you so much it was a pleasure speaking with you.

Day:

Well, I am so glad you invited me to be on your show. I kind of love listening to it so I’m like look, look I’m on the podcast!

[TR in conversation with Day:]

Laughs!

TR:

How cool is that?

Does that make you want to pursue that thing you always wanted to do?

You too can find a way to take you from where you are today to where you want to be tomorrow. It may not be a direct connection, but remember, it’s not necessarily about the destination it’s all in the journey.

I hope this podcast can serve as a bridge for those adjusting to blindness and disability. Connecting this group of people with cool blind and disabled people. Exposing them to new ways of thinking about disability.

Since this conversation I’ve already been doing a lot more thinking about creating a documentary. I believe it’s something I could really do!

I’ll have to add that to my bucket list.

You can check out Day’s bucket list with over 150 items. Plus so much more about policy, writing and more.

Day:

My websites:
DayInWashington or DayAlMohamed.com
If you ran a search on Amazon you can find all my books and writings.
I still have a lot of fun on Twitter That’s my name @DayAlMohamed

TR:

Remember, if there’s a guest or a topic that you want to hear from or about let me know. Chances are if you’re interested so are others. Here’s how you can get in touch, but first, stay in the know, don’t miss a show.

Subscribe!
Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio or wherever you get podcasts.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

TR:

What’s up RMMRadio Family?
It’s me, T.Reid, host and producer of this here podcast.
This is your place to hear stories and profiles of compelling people impacted by all degrees of vision loss and disability. And yes, occasionally I throw some of my own experiences in there pairing those words and music and sound design.

Today, I want to jump right into it. We have a lot to cover.
So…

Audio: Reid My Mind Radio Theme Music

Audio:
* Rain Man – Dustin Hoffman

TR:

Each of these clips, are from movies featuring a main protagonist with a disability.

Audio:
* Forrest Gump – Tom Hanks

Yet, each starring actor does not have a disability.

Audio:
* Ray – Jamie Foxx

TR:

It’s not a new issue

* Audio: The Rear Window

A scene from The Rear Window with Jimmy Stewart, in 1954

* Audio: Wait Until Dark

And Audrey Hepburn portraying a Blind woman in 1967’s Wait Until Dark.

Audio: “The Upside” trailer

TR:

Most recently, Kevin Hart and Brian Cranston star in The Upside.

Cranston, known most for his lead role in “Breaking Bad plays a wealthy quadriplegic who hires a former criminal, played by Hart, to be his caregiver.

With fewer than 2 percent of characters in movies being a person with a disability, well it’s understandable that the disability community took to social media to express their disapproval.

Cranston’s reply?

According to a BBC report he said;
“If I, as a straight, older person, and I’m wealthy, I’m very fortunate, does that mean I can’t play a person who is not wealthy? Does that
mean I can’t play a homosexual?”

In fairness, he does agree that there should be “more opportunities” for actors with disabilities.

I guess just not those that he’s slated to play

Audio: “In the Dark” trailer

TR:

In the Dark is the new television show on the CW Network that stars Perry Mattfeld as a blind woman who is the only witness to her friend’s murder.

Perry herself is not Blind.

The NFB, National Federation of the Blind, believes this is not acceptable. The organization which says they have 50 thousand members in all 50 states including DC and Puerto Rico, began a campaign called #LetUsPlayUs.

I reached out to NFB’s Director of Public Relations, Chris Danielsen, to learn a bit more on what sparked the protest.

CD:

We’ve been concerned for some time that there are not opportunities for and roles for Blind actors. I know we passed a resolution at our National Convention in 2018 on this topic and I think we had passed one even before that.

Fast forward a little bit to early 2019 and the CW Network began heavily promoting its new series “In the Dark”. CW was asked why a Blind actress was not cast in this role and they really made excuses for not casting a Blind actor in the lead role of Murphy in their show.

TR:

According to TheWarp.com:
Nicky Weinstock, an executive producer for the show said:
“We went about searching for a blind actor immediately, and looked allover”

That included 29 different organizations for the blind where he said they were hoping to find the lead actor.

NFB’s Chris Danielsen had this to say about that.

CD:

We were not one of those organizations by the way.
And then they kind of said but we do have a blind writer, and a Blind Consultant and we do have a another Blind actress in a supporting role

They made those sound like compensations for not having cast a Blind person in the lead role.

TR:

You have to wonder, what do they really know about what it really means to be Blind.
Especially when you hear that same CW Executive Nicky Weinstock describe Mattfield as accurately portraying a blind person based on the committment she demonstrated after acquiring a cane and using it around her apartment for weeks.

CD:

This could be really tone deaf publicity on their part, but it’s pretty typical of the behavior that we see from the entertainment industry. There have been literally dozens of films and television shows about Blind people and in none of them that we’ve been able to find, was a Blind person actually cast in a lead or recurring role.
CD:

We felt that this is the right time to really respond to what the CW has said and done but also to this type of behavior that is just recurrent in the entertainment industry. And for that reason we launched our Let Us Play Us Campaign.

[TR in conversation with CD:]

Tell me what is exactly the objective of #LetUsPlayUs?

CD:

The immediate objective is to have the CW reconsider its decision to cast a sighted person in the lead role.

Given that they have really sought in a very discouraging way to justify their decision not to cast a Blind actor in the role, we feel like the only way they can really make it right at this point is to simply re-cast and re-think the show.

TR:

The showed debuted on Thursday April 4, 2019.

It doesn’t look as though this demand is going to be met.

There is time however, to expand the conversation about representation.

CD:

We have found over the years that a lot of the portrayals of Blind people are very inaccurate and often even offensive.

We want to engage in a dialog with the entertainment industry and talk about why it is that Blind actors are not cast. Why there are such low expectations for Blind actors and performers. And how we can work together; the entertainment industry and the National Federation of the Blind to actually identify Blind actors, to develop their talent and to actually see them included in the future projects so that those projects have an authentic perspective on blindness.

TR:

Disability representation in media can be categorized in four groups of characters according to a white paper recently published by the Ford Foundation.

Disability Activist and Senior Fellow at the Ford Foundation, Judith E. Heumannn authored the paper titled; Road Map
for Inclusion Changing the Face of Disability in Media.

The four stereotypes:
* THE SUPER CRIP – think Daredevil
* THE VILLAIN -The James Bond Franchise is known for many.
* THE VICTIM
* The Innocent Fool

I’ll link to the report on this episode’s post over at ReidMyMind.com.

The show’s trailer, gives the initial impression that “In the Dark” may not be too interested in changing the paradigm.

Murphy, the main character is shown trying to hide under a glass table.

Audio: The above scene from the “In the Dark” trailer
In case you’re new here, Blind people know glass is transparent and they know how it feels.

And probably even more concerning, the trailer includes what appears to be the ol’ feel the face!
You know that all too popular scene in just about any movie or television show featuring someone who’s blind where the brilliant idea comes to the sighted person to have the Blind person feel their face so they could know what you look like.

Audio: “Hello”, Lionel Richie Music Video
— From the video, Music plays and a telephone rings…”Hello” says the Blind woman in the video.

TR:

Hey how are you doing? This is T.Reid from Reid My Mind Radio. May I speak to the creator of this music video please?

— From video: Lionel Richie sings “Hello”

TR:

Lionel?
Was this video your idea?

— From video: Lionel Richie sings “Hello Is it me you’re looking for?

TR:
Well yes, if you’re the creator of the video.

— From video: Lionel Richie sings “Cause I wonder where you are”

TR:

My brother, I’m in the future.

— From video: Lionel Richie sings “And I wonder what you do”

TR:
Well, I host a podcast, it’s sort of…

— From video: Lionel Richie sings “Are you somewhere feeling lonely”

TR:

Well now that you ask?

— From video: Lionel Richie sings “Is someone loving you”

TR

Hey bruh, that’s personal.

— From video: Lionel Richie sings as echo and fades out “Tell me…”
— Music continues…

TR:

Look man, on behalf of Blind people around the world who have been asked to feel somebodies face.
You know, that thing in your Hello video.

It’s 2019 I think we can end this stereotype.

It’s 2019 & the results are in, we’re over it!

— From video: Door shuts!

Blind woman says: ” I’ve wanted you to see it so many times, but I finally think it’s done.”

TR:

At least I guess we can be happy that in the actual scene from In the Dark, Murphy was resisting and even protested saying that’s something Blind people don’t do, but her friend insisted.

We later see it was needed to advance the plot. This was how she identified her friends body.

I personally would have suggested something like Microsoft Seeing AI which allows you to take a picture of someone and it will recognize them in future pics. But maybe that doesn’t work for the rest of the show.

But that’s just me. Everyone is different.

Not all Blind people use technology.

Like any other marginalized group, we don’t all act one way, we don’t think the same and we all have our own voices.

In fact, I tried to get some individuals with opposing opinions to share them on this episode but I didn’t get a response.

Not everyone believes this issue should garner as much attention from the NFB.

Some believe, the hiring of a Blind writer, consultant and additional cast member are steps in the right direction.
Therefore, demanding the network pull the show well that’s not a way to open a dialog.

Most of the discussion I thought was valuable, focused on strategy.
That’s always going to be a source of contention.

TR:

On April 2, 2019, the NFB protested outside of the CBS offices, owners of the CW Network, in New York City. .

CD:

We had well over 100 Blind people from five different states, at least, participating in the protest. We protested for two hours

We told the CW Executives who bothered to look out the window or listen, we don’t know for sure that any did. We told them that Blind face is just as unacceptable as Black face for example.

TR:

In addition to the protesting outside of CBS, NFB and others have taken to social media including Facebook and Twitter.

[TR in conversation with CD:]

So Chris let’s talk about something because I was going to go one way but now I have to switch it up. The social media campaign, and I’m gathering that the future consists of continuing with the hashtag… (#LetUsPlayUs). One of the things that tends to happen around this topic is that comparison to people of color. I’ve seen things where people are saying “Oh you don’t want white people playing other nationalities, ethnicities etc. Even though that happens and it still happens today.

CD:

Sure, sure.

[TR in conversation with CD:]

I think that’s almost like, defeating the purpose, but then also the one you just mentioned which was the comparison of Blind face to Black face. What is the NFB’s position on that because in social media I notice that the official NFB account kind of stayed away from that. And I was wondering if that was on purpose or if that was just a coincidence.

CD:

Well to be fair that comparison came up in the protest. It wasn’t intended so much as a comparison as kind of a play on words I think when it was originated.

We are a diverse organization. We have a makeup of membership that is racially diverse, ethnically diverse different sexual orientations and all of that. We respect all of that, all of that diversity. That said, we’re not focused so much on trying to make that comparison. That said we do see some commonality in the idea that we don’t, we don’t allow people anymore to sort of appropriate and sort of pose as others. It does still happen, but there are areas where it doesn’t happen anymore and doesn’t happen as much as it used to . But so far disability isn’t one of those areas.

There wouldn’t even be a thought at this point of having, really seriously, of having a man play a woman. Back in Shakespeare’s time it was common for woman to be played by men, typically young boys. You did have situations where it was considered appropriate to put on black makeup. So why are those things largely gone and why is it still appropriate and considered the norm in fact to have non-disabled people play the role of people with disabilities. It’s the norm and it’s rewarded . Think about how often we’ve seen Oscars awarded to people for doing this; Dustin Hoffman, Al Pacino Daniel Day Lewis.

Audio: “And the winner is…” followed by each of the above winning Oscars.

TR:

Chris is right about that last part. Let’s take a look at some others who won in roles of someone with a disability.

Jack Nicholson, John Voight, Tom hanks, Ann Bancroft and Patty Duke both won for the Miracle Worker playing Annie Sullivan and Hellen Keller respectively.

And oh yes, my bad…
Audio: Jamie Foxx winning for Ray.

Does anything stand out to you about that list?
I’ll give you a second.

Audio: Jeopardy music

All but 1 are white.

Which brings me back to this idea of Blind Face.

That’s a made up term, it doesn’t have the history that is tied to how Black face was systematically used to dehumanize an entire race of people.

And it’s not gone.
.
Audio: Multiple news segments regarding Virginia Governor Ralph Northam & Black Face.

TR:
Even outside of medical schools in the 80’s.

Audio for below Two college girls suspended for Black Face
College campus frat parties still have it… sometimes they use different names but it’s the same. Parties where they dress like rappers. There was even a so called Gangster Halloween costume. And don’t get me started on other examples of appropriation.

Audio: About Redskins

Does it mean that those who used the term Blind face have the same intent?
I don’t believe that.

But what can we expect when this history isn’t taught, when people prefer to be color blind and refuse to have these conversations. Especially in this world of social media and the re-tweet.

There are valid and strong feelings in all marginalized groups. Something we all need to take into consideration.

CD:

We’re not Oscar bait. We’re people with real lives. We don’t exist so that actors can play us and feel good about themselves because they’ve supposedly experienced what we experience. Which of course they haven’t. That’s what’s really offensive.

I’m interested in your perspective too because you know we don’t want to make an offensive comparison. We want to be careful about that and at the same time the point that we’re trying to make is that there are situations where it’s no longer appropriate and the industry seems to understand that it’s inappropriate to have certain kinds of portrayals. Why is blindness and disability the exception to that.

[TR in conversation with CD:]

That’s where the difference of opinion definitely comes into play and I think the perspectives where you say that the industry understands that; I don’t think most people of color would say that the industry reflects their real lives.

CD:

Sure.

TR:

Remember those 4 stereotypes of disability in media?
* THE SUPER CRIP
* THE VILLAIN
* THE VICTIM
* The Innocent Fool

Black stereotypes have existed and continue to make up what we see in film today. Slightly modified versions of, well take your pick:
Sambo or the lazy happy go lucky Negro
Mandingo – the over sexed, big Black man
Mammy, subservient Black woman who’s nurturing ways usually focus on the white children
Jessabelle – over sexualized Black woman

So many films and television shows to this very day still have some version of these stereotypes.

In fact, as the years went by new stereotypes came into existence. The Welfare Queen, the criminal or thug and of course some of your favorite movies might star the magical Negro. who’s there to mysteriously make the white persons dreams come true.

Stereotypes also exist for Latinex, Asians and just think about the context of when you’d see a Native American on the screen.

So for those of us who are aware of this history in culture, hearing what can sound like an implication it no longer exists, well that can feel like all of that struggle and history is being erased.

With that said, let me make it as clear as I can, disability experiences deserve to be on the screen as much as any other human experience.

[TR in conversation with CD:]

You don’t have to make these comparisons.

CD:
Mm , hmm!

[TR in conversation with CD:]

There are comparisons that can be made. And the thing that I like to say is we can compare apples and oranges, they are both fruit…

CD:

Yeh, yeh, yeh. (In agreement)

[TR in conversation with CD:]
… but they are so different.

CD:

Yeh, certainly the intent is different. I would say that some portrayals of blindness have been specifically meant to put Blind people down, but some haven’t. There just profoundly mis-informed. So I totally agree with you, then in that sense it’s not an appropriate comparison. I think that’s why we have stayed away from the comparison on social media. We definitely don’t want to minimize the real pain that, that has caused, but sometimes the paper trail of disability does cause pain as well. Not the same kind, but the misconceptions out there are harmful to people with disabilities and they do trickle through.

TR:

Now we’re getting there!

Probably the strongest argument for increasing representation and the one that lots of people with disabilities feel on a regular basis.

Kristen Lopez:

There is so much mis-information out there about disability. Films are a gateway for us to learn about people and cultures different from ourselves.

TR:

This is Film Critic Kristen Lopez. She also writes reviews on new and classic films.
She has a much cooler way of saying it though.

Kristen Lopez:

Freelance Pop Culture Essayist, who writes a lot about representation in cinema, specifically gender and disability.

I’ve had so many embarrassing encounters with people. Unbreakable being a great example.

People who’ve seen the movie and they feel like that’s some sort of gateway into relating to me and it’s completely wrong.

TR:

Unbreakable, is the film starring Bruce Willis and Samuel Jackson whose character is a wheel chair user and has Brittle Bone Disorder, as does Kristen.

Kristen Lopez:

I refused to watch it because I didn’t think it was actually going to be a movie that represented me. And for a year solid when people heard I had Brittle Bone Disorder they were like oh have you seen Unbreakable? it’s great, you’d love it. And I was like, why would I love it. And they’re like because it’s about you.

I’m not a super hero or super villain

I was very indignant; no that’s not me. I actually never saw Unbreakable until two years ago and I thought it was fine. It didn’t offend me.

TR:

Dr. Adam Pottle, is an author and screenwriter in Saskatoon, Canada with
4 published books and two produced plays.

He himself is deaf.

He’s experienced firsthand how misperceptions and stereotypes find their way into common belief. Like this idea that Deaf people carry on conversations by reading lips.

As he explained to me via email.

(Note the change in sound when I am reading Adam’s words.)

Adam Pottle:

It’s not enough. Reading lips is fucking exhausting, and we don’t always get things right. We need visual confirmation, whether through Sign language or captioning.

I was bullied in school about my ability to read lips. Older kids would point to their lips and mouth out, “Hey deaf boy. Can you read this? Fuck you.”

TR:

The argument for representation is less about personal offense and more about the impact images have on society.

Kristen Lopez:

Movies have sold disability as this grand mystery. We are this enigma that unless the audience knows how to handle us their not going to be able to interact with us and I think that that’s very wrong.

It’s just important to get rid of the little things. We’re talking now about a time where politically people are talking about who’s entitled to what and who needs what. Do we need healthcare? Do we need the ADA at all?

I think a lot of that has to do with movies which fuel the dialectic, fuel the culture and presented disabled people which is entitled, spoiled and massively wealthy and doomed to die relatively young. The movies have sold us as a burden on society.

TR:

Interestingly enough, I read a review of The Kevin Hart and Brian Cranston film, The Upside titled;
“The Upside” is a good representation of life with disabilities.

I don’t know if this writer is disabled. It wasn’t mentioned.
But disability isn’t one size fits all. We can’t forget the intersections;
Gender, sexuality, …

And as Film Critic Kristen Lopez explains, it’s complicated.

Kristen Lopez:

As an adult, I’ve slowly grown to be like I do identify as white, but that’s only because my skin pigment is white. So I know most people, I tell them my last name is Lopez and they look at me and they’re like what the hell are you talking about. I don’t identify as Hispanic, but I do identify as Latino just because my father is.

Now as an adult as I’ve seen how white disabled narratives are it does bother me on that level as well because you know there are no movies with disabled people of color. There’s barely any movies about disabled women but disabled people of color is completely absent in these movies. That doesn’t even factor into people’s discussion of disability because they’ve never seen it.

TR:

Representation is more than who is on screen. It’s about who is producing directing, writing and in general influencing the overall message and feel of
the project.

Adam wants to add his voice to the conversation. Currently trying to make his way into the business. He’s an aspiring screenwriter with three horror scripts under his belt. He has a PhD in English literature, for which he studied how Deafness and disability are represented in Canadian literature.

Adam Pottle:

Because my scripts all feature Deaf and disabled characters in lead and supporting roles, it’s a bit difficult to get them produced, even if they’re well-received. I have one script, a horror story, that’s been selected by six different festivals that I hope to have made one day.

TR:

When it comes to inclusion of any form, the first reasons also known as excuses is often we can’t find “them”.

The CW, couldn’t find a Blind lead. Silicon Valley can’t find people of color in STEM, Corporations can’t find women executives.

Well, I have less than 600 Twitter followers and A Blind Black Man in the Poconos, Pennsylvania found a deaf white writer in Saskatoon, Canada.

(Laughing…)

So in the words of Mr. Biz Markie:
Audio: “C’mon, don’t give me that” from “Just A Friend”, BizMarkie

Adam Pottle:

The problem is systemic. The film industry is ableist to its core. It prefer stereotypical narratives. It doesn’t understand that Deaf and disabled people have rich lives with their own stories to tell. It prefers to look at us with pity and scorn. Recent examples include Me Before You, The Upside, Stronger, The Theory of Everything…

Notice these films all feature white actors, too. We don’t see Deaf and disabled Black characters, or Indigenous characters, or Asian characters. We don’t see LGBTQ2+ disabled characters.

Deaf and disabled people must be allowed to tell their own stories, from the ground up, as writers, directors, editors, photographers, producers, costume designers, and of course actors.

TR:

So #LetUsPlayUs, I’m with that. But can we let disability drive the conversation. Call out the many valuable reasons for representation and inclusion and rather than using the history of others as catch phrases use the lessons and honor those who paved the way.

I think we can agree the more marginalized you are in the society the lower your chances of seeing a real representation of yourself. Go ahead and think about the various marginalized communities. As you filter and each segment appears to have less and less representation not only in society but also on screen.

Just imagine if rather than re-booting movies and shows from the past, Hollywood start out by seeking multi marginalized Non Cisgender women of color with a story to tell.

As Adam Pottle points out.

Adam Pottle:

the first producer or major studio to truly recognize the potential of disabled filmmakers and disabled actors will experience a tremendous cultural and financial windfall. There are over a billion disabled people worldwide. We want to see ourselves onscreen. When we do that, disabled people will come out in droves, leading to changes in theatre spaces and screening options. In short, disabled people will change the way the world watches movies.

TR:

We’ve literally already started that process; Caption and Audio Description have already begun seeping into the mainstream.

So let’s continue.

By the way, the reviews of “In the Dark” are in & mixed. I started watching the premiere via the app but there’s no Audio Description. I don’t believe it’s offered by the network. One review had this to say:

“One thing In the Dark does get right is that the blind characters are completely in control. There’s a murder mystery at the center of it, but the real thrill is watching Murphy live such an imperfect, independent life. She goes out; she smokes cigarettes; she has sex—these are things we rarely see blind
characters do onscreen.

TR:

Seriously? Yawl need to go to a convention!

Apparently 80 percent of the writing staff is made up of women and several LGBTQ+ and blind writers and led by a female
showrunner.

And Calle Walton, the young lady who is Blind and part of the cast, said:

“When I lost my sight, I was devastated. I had to throw my acting dreams away. I thought there was no way I could become an actress now that I was blind. This experience has just been amazing:
getting me back on my feet, getting me back into my love for acting. I hope this really opens up the field and it makes it so blind people are getting looked at as characters that can play roles, instead of sighted people playing roles as blind people.”

Same goal, different strategy!

Shout out to :
Chris Danielsen , Director of Public Relations for the National Federation of the Blind.
You can find out more about them at NFB.org. And #LetUsPlayUs on social media including Twitter and Facebook.

Freelance Pop Culture Essayist, Kristen Lopez. You can find her work on line where she’s written for Rotten Tomatoes, Forbes.com and other outlets.
She has two podcasts;
Ticklish Business – all about classic movies before 1970
Citizen Dame – she’s joined by three other female film critics talking all about the latest entertainment news from a feminist lens
You can find Kristen on Twitter
@Journeys_Film

Dr. Adam Pottle is @AddyPottle on Twitter (Also spelled out)
His website is www.adampottle.com
He has a new book out now title Voice.
Where he explores the crucial role deafness has played in the growth of his imagination, and in doing so presents a unique perspective on
a writer’s development.

I think it’s clear that there’s a lot tied up in this topic of representation.

Consider this episode as just the opening of this discussion here on Reid My Mind Radio.

I hope to bring you more in the future which will include highlighting those behind the scenes as well as in front. I got my eye on some talented peeps.

You know there’s only one way to be sure you don’t miss an episode…

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Audio: Reid My Mind Radio Outro

Peace!

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