Archive for the ‘Visually Impaired’ Category
Wednesday, July 28th, 2021

Alyscia Cunningham is an author, photographer and film maker. Her latest book and documentary “I Am More Than My Hair” explores women’s hairloss. One of the subjects of the book and documentary is Marguerite Woods. Through this relationship, Alyscia became aware of the lack of access to the arts among Blind and Disabled people. It changed her approach to producing and thinking about art.
Yet, she couldn’t do it alone. It takes more than one…
In this latest FTS episode, we explore the power of one persons ability to spark an interest in access, help shape how we think about it and even create it. Once again, proving Audio Description is about so much more than entertainment!
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Resources
Transcript
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TR:
Your listening to Reid My Mind Radio.
Chances are, you know that already because you pressed play!
Duh!
This is where we examine this art form that in its basic essence, is making visual content accessible to those of us who are blind or have low vision.
But in actuality it goes way beyond that.
Today, we look at the power of one.
I know it’s the loneliest number and all, but really that’s only when it chooses to stay by itself.
This experience directly led her to her second book of photographs titled, “I AM More Than My Hair”.
It tells the stories of women who are bald.
Yet, according to Alyscia, the most common cause is stress.
And that can occur earlier than we may expect.
As part of both a marketing and fundraising effort, Alyscia recorded footage of some of the women included in the book.
She applied to Docs in progress – a nonprofit organization that fosters a creative and supportive community for documentary filmmakers.
— Music begins, a slow jazzy piano Hip Hop groove
That required her to contact some of the women featured in the book and arrange to capture their stories on camera.
I am bald, My skin is Mocha. leaning towards chocolate, and about five, seven. I normally wear certain shades. And I love interesting earrings. And so I normally have those on as well. I’ve got on a black dress. It’s sleeveless.
Her first experience began with Bustin’ Loose,
A film starring Richard Pryor and Cicely Tyson.
The description Marguerite says was horrible.
— Richard Pryor saying…
so it kind of took a backseat for me for a while. But the thing that really got me with audio description was I like to go to plays and conferences and music shows and that kind of thing.
TR:
We didn’t get into that for the purposes of this particular discussion, but that to me sounds like a case of a lack of cultural competence.
— Music ends
What is more of a part of this discussion is her response.
When Alyscia was looking for women who were bald to participate in her book,
she put the word out and heard back from a friend who told her about Marguerite.
Marguerite wanted Alyscia to understand that while she herself is blind she doesn’t represent everyone.
I’m always encouraging people to go to places where there are lots of other people that may look like me, because we’re multifaceted. We’re not all the same, just like sighted people we’re not all the same we are of all manner of variables and we’re diverse and in so many things so don’t just think you really understand what’s going on with blind people cause you’ve met me.
About two months following that meeting, Alyscia premiered her documentary at a theater.
Marguerite was there.
She realized the impact of the visuals based on the audience response…
Check out the Reid My Mind Radio family connection y’all!
That documentarian was none other than 2019 Reid My Mind Radio alumni Day Al-Mohammed.
— Music Begins – an up tempo energetic, inspirational Hip Hop beat
That’s my good friend and another 2019 Reid My Mind Radio alumni,
Cheryl Green, Captioner and Audio Description Writer and Narrator extraordinaire.
It’ goes beyond Audio Description and captions in the documentary.
Alyscia created an accessible exhibit on display at Sandy Spring Museum in Maryland.
My hope for this was having the exhibit and also having a panel discussion with Cheryl and marguerite, Judy and three other women was that this will be an example of how museums and artists can incorporate accessibility in their work and into their venues.
One of the main challenges from the perspective of the museums and venues is often funding.
Unfortunately, we know that sometimes museums and other venues and businesses want to see a return on investment.
But it’s not as simple as build it and they will come.
this can’t be a onetime thing.
it’s like now that you know How could you not do anything about it because now you’re aware of it. It’s in your space.
Did you get any feedback from non-disabled people?
— Music ends.
I’m sorry y’all, but sometimes I really do just have to laugh.
Spending time and energy advocating for something can be challenging.
I was more interested in her getting a sense of, of blind people, and that we are asking for opportunities to be able to relate to our world, just like sighted people are, and that she as an artist and a creative person would do whatever she would do with it. And that would be good enough.
Marguerite: 26:36
Just interact ting on different levels, and asking people to recognize, I’m here in this space, and I want to participate.
And sometimes, because people don’t know, you got to be in there, in their mix to get your conversation in there.
Marguerite herself is an artist. She is quite thoughtful and makes some deep connections between the More than My Hair project and well,
life for example.
Marguerite: 30:51
People tend to want to treat you like you’re less then because you don’t have the same access to vision that other people had. But
As an African American?
Most of us realize that we’ve grown up in a country that has not been kind or fair to any of us. And even if we don’t have the words to speak about, it’s a heavy burden, to exist and grow in this society. And when you know that the majority of the power structure is literally walking around with disdain for us, because of the color of our skin. You can put on a happy face and move around. And that’s fine. But I think that it’s deeper than a happy face, I think that there are some natural laws of the universe, that are, are at work all the time. And it would be beneficial to get in touch with what they are, and try to work your life from there. Because if you go with the laws that this country is offering, it’s telling a story, and I’m just given a message that’s not healthy. And it’s not about wellbeing, especially for my community and for me.
Totally unrelated to that project, she’s also working on a new project in the horror genre and says she’s making sure to build in the space for Audio Description.
She’s continuing to give panel discussions on how to make art accessible based on her experience.
Whether you’re a consumer who can help someone learn about access,
a creator who can make your content inclusive or
you’re someone who can provide the funding,
we all play a part.
— “One” Sample from Public Enemy Number One, Public Enemy
— Music begins, an upbeat bright Hip Hop funk groove
The I’m More than My Hair, accessible exhibit will be on display through September 5, 2021. Unfortunately, Covid restrictions have probably been a factor in the lack of feedback from the Disabled community, but Alyscia is hopeful that the restrictions being lifted will help bring out more people.
She’s currently seeking distribution for I Am More Than My Hair the documentary,
which at some point will stream online.
This is just one example of what we know to be true.
When creators learn that their content is not accessible to an audience, chances are pretty high that they will want to do something about that.
Well at least the cool ones!
— Sample – “What the hell are you waiting for” from “Encore” by Jay Z
— Sample (“D! And that’s me in the place to be” Slick Rick)
— Reid My Mind Radio Outro
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Tags: Alopecia, Art, Audio Description, Author, Bald, Black, Blind, Disability, Documentary, Film Maker, Gallery, Hair Loss, Maryland, Photography Posted in Advocacy, African American, Audio, Blindness, Descriptive Movies, Descriptive Television, Media, PWD, Visually Impaired | Comments Off on Flipping the Script on Audio Description – More Than One
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Wednesday, May 12th, 2021
The vision loss experience is different for everyone. Our responses to circumstances determines our outlook. Then again, our outlook on life can signal how we handle the tough situations.

Qudsiya Naqui, founder and host of the podcast Down to the Struts, shares several transformative moments throughout her blindness journey.
She discusses going from someone who hides their white cane to a proud Blind person who chooses to advocate on behalf of all people with disabilities.
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Down to the Struts
WOC World
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— Ambient music begins…
TR:
Greetings Reid My Mind Radio Family!
Welcome back to the podcast bringing you compelling people impacted by all degrees of blindness and disability.
You know, we’ve been here since 2014 so make sure you take a look in the archive if you’re new in these parts.
My name is Thomas Reid and I get to serve as host and producer.
I like to consider each of these individual episodes as a part of a larger collective story.
If you know anyone new to blindness or disability in general, please go ahead and let them know what’s happening here.
I’m confident that they would find a lot of value in the lived experiences stored in these audio file (and transcripts).
All just waiting for the right person.
Today’s episode is the latest addition to this growing archive that will not disappoint.
So let’s get down to it!
Audio: Reid My Mind Theme Music
Qudsiya:
My story of blindness is, to take a page out of Michelle Obama’s words, it’s a story of becoming.
My name is Qudsiya Naqui. And I am a lawyer and I’m based in Washington DC. I use she her hers pronouns.
I am a South Asian woman. I’m quite petite. I’m about five one. Right now I have sort of long, dark brown black hair that’s very long because of the pandemic and I haven’t been able to cut it and have kind of medium brown skin and brown eyes.
TR:
Qudsiya is the host of Down to the Struts, a podcast that explores the inner workings of
disability design and it’s various intersections.
Today, she shares some of the transformational experiences along her journey that helped shaped her view of blindness.
At 2 years old, Qudsiya was diagnosed with a congenital degenerative condition.
By the time she began reading, standard print was sufficient.
qudsiya:
But I had trouble in dark and dim places.
We were blessed and fortunate to be able to live in homes that worked for me. That had lots of sunlight, and we had lots of extra lighting. So that was the way that we kind of help make the environment accessible for me.
My mom was proactive and had me in sort of rehabilitation services with the state agency.
— Melancholy Ambient Music begins
TR:
That’s the New Jersey State Commission for the Blind, where she received mobility training and other blindness skills as a child
Qudsiya:
My usable vision was so good when I was young that I wasn’t quite understanding sometimes, like, why I had to use a mobility cane because
oftentimes, the trainer would come during the day, and I could see really well during the day.
When I reflect on it, I’m like, why didn’t they train me with the cane? At night? When I actually couldn’t see and then I would understand the benefit of it.
I had a hard time explaining to people what my situation was also because I present as sighted I don’t fit the sort of stereotypical appearance of what a blind person looks like. And so I sort of passed for lack of a better word because I didn’t have a vocabulary to talk about my disability, I didn’t even use the word disability, disability wasn’t even in my lexicon when I was a child and a teenager and even a young adult. I really struggled.
TR:
As a child, struggling with bullying and making friends.
Qudsiya:
I do think it shaped a lot of my identity. I was quite introverted, I love to read. It definitely did shape who I was when I was younger in slightly more negative ways, I felt like it was something I had to hide and that I had some degree of shame about. That really affected my willingness and desire to engage socially and to make friends and to put myself out there.
TR:
There are two main perspectives in viewing disability.
Whether you’re familiar with them or not, you may recognize your own way of thinking.
The medical model. This approach sees the problem as the illness, disease or injury. The focus is on fixing the person.
Qudsiya:
I started losing vision really quite rapidly kind of at the end of college when I was 22. At that same time, there was a experimental gene therapy. That became available and my parents really were encouraging me. They had very good intentions, and they love me very much. They wanted me to feel good about myself and be successful. And their pathway towards that was, you know, to have this therapy that would help me either gain vision back or halt the degeneration.
I did enroll in the clinical trial. I really believe that people should have choices about how they want to live, I have a little bit more healthy skepticism about that, because so much of it is rooted in ableism, which is a term that I use a lot now, but was really unaware of at that time.
— Ambient music ends
TR:
That’s the discrimination of and social prejudice against people with disabilities based on the belief that typical abilities are superior.
It assumes that disabled people require ‘fixing’ and
defines people by their disability.
Qudsiya says she’s unsure if the therapy has helped reduce the degeneration but notes she didn’t regain any vision.
She did however slowly begin inching toward that alternative way of viewing disability, but first, she had to go through some things.
Qudsiya:
I went through a really dark time in my 20s, just trying to like sort of, quote, fix myself,
When I was young they told me that my vision would be stable, you know that I had nothing to like, quote, worry about, and it would just be the same as it was. And that was pretty doable.
TR:
While preparing to enter Law School at Temple University, Qudsiya began seeing a new doctor who explained that her vision loss was degenerative.
Qudsiya:
That really explained what I was experiencing in the two or three years prior, reading was starting to become really difficult.
Law school, is very difficult for a whole host of reasons. And it’s a difficult environment, it’s just a lot of work. It’s very hard. And there’s a lot of reading, like hundreds and hundreds and hundreds of pages of reading a week.
TR:
Since grade school, Qudsiya prided herself on her ability to study hard and have the grades to reflect that effort.
Her vision and grades both deteriorating she considered dropping out.
Qudsiya:
And somehow, I didn’t, I had a couple of really amazing professors. And then I got a really cool internship at the ACLU of Pennsylvania, the summer after my first year, because I happened to meet the Legal Director at a career fair. And we just totally hit it off. And she was an incredibly supportive person. And between her and a couple of my professors, I just, I stayed and I didn’t quit, and I didn’t give up. I started to explore text to voice software and the different kinds of technologies that were emerging. Blind people have been using it for years.
I kind of taught myself to learn by listening because I’d always been a visual learner. And I had to completely transform the way my brain worked. And I was able, it took me a long time. And it was hard, but I did it.
TR:
The grades improved, her self confidence returned and she was making strides in her blindness journey.
Qudsiya:
Oftentimes, a lot of sighted techniques are foisted on you. Like there’s always the imperative for you to use your eyes. But that was the first time I started to realize you know what, like, it’s not about like forcing me to use my eyes if my eyes aren’t the most efficient way to get something done. And so I started to like embrace like new Non sighted ways of doing things which made me a lot more efficient and made things easier for me.
The day that I said, I need to use jaws 100% of the time, like changed my life.
TR:
But what about accepting that white cane?
Qudsiya:
There was so much stigma for me associated with it. Shame.
I got myself into real difficulty. There was one time I was in Penn Station, and I fell on the train tracks.
TR:
Thankfully, the train wasn’t moving and someone quickly pulled her up.
Although already familiar with proper cane technique, Qudsiya wasn’t a practicing user. Living in New York City at the time, she
reached out to the New York Commission for the Blind and got herself an Orientation and Mobility instructor.
Qudsiya:
I said, I need you to force me to use it in front of you until I get to a point where I’m okay with it in myself.
We worked every day a couple times a week for like an hour and little by little after a while, I started to just feel comfortable with the cane.
I went from someone who would carry the cane folded up in their purse, never even think about it, to a person who now uses a cane pretty much all day all the time and never is without it and has a very healthy relationship with it. That took a long time. And it took a lot of struggle and a lot of moving past my own stereotypes and my own ableism
TR:
Qudsiya offers some additional thoughts on what could be helpful in decreasing the stigma associated with blindness and disability.
Qudsiya:
There’s such a lack of education in a young age to a culture eight children to the concept of disability and like these disability positive messages.
I just remember in high school I never learned about the ADA, I never learned about the Rehab Act, I never learned about disability rights history.
I feel like if I had existed in an environment that was giving me all these positive messages and welcoming messages and accessible messages about who I was, and the fact that my disability was okay. I think my outlook would have been quite different. But I was in an environment where my disability was sort of invisiblized. I see that changing now for young people. But I think we have a long way to go.
TR:
Another transitional moment for Qudsiya along her blindness journey came when she experienced job discrimination.
Qudsiya:
That was the first time in my life, I had been exposed to disability rights and Disability Law and the civil protections that are available to people to prevent against discrimination. And I didn’t really understand that I had been repeatedly discriminated against in various work settings until I had this experience that became so extreme that I had to get an advocate to help me.
TR:
She credits that person with changing her life.
Helping her become clear about the problem and to see things from a different perspective.
Qudsiya:
Okay, it’s not me, that’s the problem here. It’s the system. That’s the problem. And it’s a system that is not designed to give me access, and I need to fight for that access.
— Music begins – a bright melody that moves to a driving beat…
TR:
The social model of disability.
This views disability as a part of life and not the problem.
Rather recognizing that society erects barriers in various ways that can limit opportunities.
Qudsiya not only learned how to advocate for herself, , she found a community of people who also had a positive outlook on their own blindness and disability.
Moving to Washington DC from New York City, she was introduced to another Blind Lawyer.
Qudsiya:
She and I actually connected over something completely unrelated to blindness. We connected over the fact that we were both athletes. She was a cyclist and runner, and I was a runner also.
She was starting up this sports group in DC called the Metro Washington Association of Blind Athletes. And she kept encouraging me to come and try out tandem cycling.
I hadn’t been on a bike since I was a little kid.
I didn’t know anything about tandem. I was like, this is gonna be a disaster.
Finally she pushed me and I went and I got really into it, I just fell in love with it.
TR:
That led to other sports and activities like adaptive rock climbing,
guided running and most importantly friendships with other Blind people.
Qudsiya:
That was really transformative, mostly because I never had Blind friends in my life. And so I suddenly had this massive, wonderful, supportive, fantastic community of other Blind people that were doing all sorts of things had all sorts of professions came from all different types of backgrounds. And we just had fun together. And we support each other.
TR:
That support is invaluable. From the practical to the emotional, helping you become your best self.
Qudsiya:
I’m like a b minus blind person, and I’m trying to get to an A plus.
TR:
I think she’s being tough on herself.
Even if we’re not being graded, a community of people to learn and share with along any journey is important.
Qudsiya:
I started on that journey kind of later in life, as opposed to some of my peers who were born blind or lost their vision when they’re really young. They really became resources to me, and I just started to see the world really differently.
I’m also part of another new group that just started last summer. It’s called WOC World. W O C. It’s a group for blind women of color – a virtual community of blind women to support blind women of color.
TR in Conversation with Qudsiya: 39:15
I always like to highlight the importance of meeting people. Because I think it plays a big role. I always bring it back to the podcast, because that’s what this podcast is all about. Not everyone is in an area where they can actually have access to all of these people. And so that that transition process that I think really is impacted by meeting people may take even longer because you have no sort of model of what blindness can actually be.
— Music ends with an ambient fade out
TR:
Qudsiya is a fellow podcaster. She’s the founder and host of Down to the Struts.
Qudsiya:
A strut is like an engineering device that you’d use to hold stuff together.
It’s sort of evokes this idea of like, what are the building blocks? What holds the world together? And how do we change structures and systems.
I wanted to make non disabled people see why they need to think about things from a disability lens and why that’s important and why we should care about it.
TR:
While she was being pushed to write and publish law review articles she found her heart just wasn’t in it.
Already a consumer of audio content including books and podcasts,
she recognized the opportunity to explore some of her interests and expertise.
Qudsiya:
The article I was working on was about disability, specifically disability in the US. And its intersection with immigration, which is one of my areas of expertise as a lawyer.
I really care about disability and its intersections with other types of things like race or other types of policy issues like disability, unemployment, disability and health care.
And I am a person who has experience with like policy and research and these sorts of things.
I really care about this area of work. And I love audio content. And it’s a pandemic, and I’m sitting at home and I got nowhere to go and nothing to do. And I was like, You know what, I’m gonna do it. That’s how Down to the Struts was born.
— Music begins a Hip Hop beat opening with hi hats…
TR:
Occasionally, I’m asked about starting a podcast. My advice closely aligns with the steps Qudsiya lays out.
Qudsiya:
I decided I wanted to do an interview style show and bring a mix of sort of people with lived experience, people who are experts in their fields to talk about sort of very broadly speaking, disability design and intersectionality.
I got a team of people together.
I don’t know how to design a website, I don’t know how to audio edit, I got a lot of brains together. And at first it was just for advice. But then a couple of friends of mine, really like wanted to be involved and wanted to work on it. And I was so touched by their desire to be supportive, they just loved the idea of the project.
I had a focus group of a whole bunch of friends that helped me vote on the title.
We launched our first season in October of 2020. And there’s six episodes, and we’ve just launched season two.
TR:
She narrowed her subject, figured out what aspects best fit her skills and interests.
Assembled others for advice and ended up with a team.
She’s also using a seasonal approach which I highly recommend.
It takes away some of the stress in producing regular content.
And of course, she got feedback on her podcast name. Did I mention she has herself a team?
Qudsiya:
I went to Barnard College, which is part of the women’s college that’s part of Columbia University. So I went looking for a student who was interested in audio editing. That’s how I came across Anna Wu, who is a junior at Barnard.
She brought along her friend Adrian Kahn, who does our transcripts.
I have two other friends. Ilana Nevins is our audio editor and my friend Adriana pole who is fabulous social media coordinator and manages all my Twitter and Facebook and Instagram so I don’t have to. (Laughs )
I’m scared of social media!
TR:
Yes, I’ll admit it, I am a bit envious of her team.
A lot of thought and planning went into the creation of Down to the Struts. Ultimately, it’s figuring out what you want. I get the sense that this is how Qudsiya operates.
Qudsiya:
I realized very, very quickly, that I did not want to be a practicing attorney, I think I probably even knew that before law school, but I knew I was interested in immigration, and I knew I was interested in kind of policy.
A lot of the policy people were like, Well, you can’t really fix the system if you don’t understand the experience of people who are going through it.
So I did practice immigration law, representing asylum seekers and survivors of domestic violence.
And then I went to a different organization where I was managing the program that was delivering services to unaccompanied children who were in federal custody, on the border and in other parts of the country.
TR:
She continued doing that work for a different organization while expanding into disaster recovery and other areas.
— Music ends…
Qudsiya:
now most recently, I’m at a big research like policy institution working on civil court reform work. Making this civil court system for like people who experience evictions and debt collection lawsuits and have to deal with child support cases and things like that to making the system more accessible especially for people who don’t have lawyers, and I bring a lot of my disability kind of focus in there too, because, especially with all the technology and courts, like a big concern is like making sure everything’s accessible.
I feel like, it all kind of bleeds together.
TR in Conversation with Qudsiya:
What do you want people to sort of take away from your podcast?
Qudsiya:
For disabled people, I want them to leave the podcast feeling like their issues are being addressed, that I’m exposing and uncovering the barriers they face and providing positive solutions and proactive solutions to how we can break down those barriers and fix those problems. And for
For the non disabled people I want their eyes to be opened to how the systems and structures that we live inside, whether that’s the immigration system, whether that’s the education system, whether that’s health care, how, they affect disabled people, and how ableism plays a role in that. So that they can walk away and know, there’s solutions to solve them. And I want that information to get out to the people who are the decision makers and the stakeholders in the system so that they can start to make change.
TR:
Think about the importance of all the transitional moments Qudsiya experienced.
From her battle with the white cane to experiencing discrimination on the job
which led to her meeting people who would come to positively influence her life.
Combine these experiences with her own positive attitude and drive and consider her advice for those new to vision loss.
Qudsiya:
Everyone has their own journey and their own experience and their own way of going through those stages of grief and getting to the other side, or whatever the other side looks like, and that’s okay. And you have to be kind to yourself, but know that there’s a community waiting for you. And there’s a lot of possibility and that you are a whole person. And your blindness is a part of that. And it is a really beautiful part of that. That’s something that you should honor about yourself.
— Music begins, a bright inspiring Hip Hop beat
TR in Conversation with Qudsiya:
Qudsiya, you know that you are now an official, and I want to say it twice, an official member of the Reid, My MindRadio family now that you’ve been on the podcast, you know that right?
Qudsiya:
Oh, that’s awesome. Thank you. Thank you for welcoming me into the family.
(TR & Qudsiya laugh…)
TR:
To get in contact with Qudsiya and or where to find the podcast;
Qudsiya:
You can email us at down to the struts@gmail.com. You can find our website which is www got down to the struts.com. We’re also on Facebook, Twitter and Instagram at down to the struts. And you can subscribe rate review the podcast on Apple podcast, Spotify, Stitcher, or wherever you love to listen, so definitely check it out.
TR in Conversation with Qudsiya: 1:00:19
Spoken like a true podcaster.
(TR & Qudsiya Laugh)
TR:
I really liked the way Qudsiya identifies and appreciates the different moments throughout her journey for the value they helped bring to her life.
Once again shout out to Qudsiya, I really enjoyed our conversation.
If you too enjoyed it well you can always feel free to let me know that or any other comments you may have by emailing me at ReidMyMindRadio@gmail.com.
Tell others about the podcast so they can listen for themselves. All I want to do here is to reach as many people experiencing vision loss as early as possible.
You know we have transcripts and more over at ReidMyMind.com right?
And I know you know, that I know you know, it’s R to the E I D
(“D, and that’s me in the place to be! Slick Rick)
)
Like my last name.
Audio: Reid My Mind Outro
Peace!
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Tags: Adjustment, Blind, Bullying, Employment Discrimination, Friends, Lawyer, Low Vision, Podcast, Sports, Tandem Cycling, Temple University Visually Impaired, Women of Color Posted in Accessibility, Advocacy, Audio, Blindness, PWD, Sports, Visually Impaired | Comments Off on Qudsiya Naqui – Becoming an A+ Blind Person
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Wednesday, March 24th, 2021

Lachi is a Recording Artist, Writer, producer … someone who grew up with Low Vision and now is going Blind. You may have expectations as to how someone would react to such news… You’re wrong!
Hear how the power of music and people helped Lachi expand her confidence and develop her own view of blindness and disability. And of course, there’s the music and much more!
Listen
Resources
LachiMusic.com
The Off Beat
Transcript
Show the transcript
TR:
What’s up Reid My Mind Radio Family.
I hope you all are doing well.
Feeling good. feeling like things are going your way.
Me? I’m good! I’m here with y’all!
Sometimes, we know, things change up.
That’s one reason for this podcast.
Where we feature compelling people impacted by all degrees of blindness and disability.
What we learn from the experiences of others can help us draw up our own plan
Because when things seem to fall apart you don’t just scrap your plan… nah, you just go out and make yourself some bigger plans!
Check this out!
Audio: Reid My Mind Theme Music
— “Not the One” Lachi, Michael Herrick
TR:
You’re listening to Not the One by Lachi and Michael Herrick. Lachi is an award nominated recording artist, writer, producer…
Lachi:
film producer, published author. I dabble in acting, I dabble in modeling. I am part of the Recording Academy advocacy Committee, which I’m very proud of. And I am also a speaker on the respectability National Women’s speaker’s bureau. I am trying to also be a YouTube star. And also do everything under the sun that anyone will allow me to do.
TR:
Allow?
As far as I can tell, I don’t think she’s waiting for anyone’s permission. Nor should she!
Lachi:
If I can give myself a really quick image description. I am an African American female. I have long hair, most of its mine, not all of it. That is curly and goes down my back with highlights. And I have big crazy, bodacious smile.
TR:
You can hear that smile when you get into a conversation with her. Even when the topic is something that most people wouldn’t smile about. Going Blind.
Lachi:
I was born legally blind. Always had to use adaptive technology. I’ve always had to sort of struggle with meeting other people that would be able to relate to me and things like that.
More recently, I did receive yet another diagnosis that is putting me on a path from low vision to no vision in a matter of years.
TR:
Her response to those who expect a different sort of reaction to the news.
Lachi:
I’ve been blind, so going from slightly blind to fully blind isn’t as traumatic for me as perhaps it might be. Or maybe I just haven’t really swallowed the pill fully. But I just been on that path already. So getting that diagnosis while it was quite a bit of a shocker. I wasn’t sitting here going, Oh my gosh, I’m gonna have to change my whole life around I mean, I already got the cane. I already got the large print, I already have sort of things that I would need to access the things I need. So the transition isn’t going to be as hard. But I will say it is a different beast. So I will acknowledge that going from low to No, is definitely a big step. And I just maybe I’m just not ready yet. Maybe I haven’t accepted it yet. And that’s where I’m at.
— Music begins and rises to a smooth beat. —
TR:
That’s where she is now.
We learn from our past, so let’s go back.
[TR in conversation with Lachi:]
Where did you grow up?
Lachi:
I tell people I grew up in the widest parts of upstate New York, the black is parts of Philly, and I Southern belt it down in North Carolina. So I’ve been all over the place. And I got all types of attitudes inside me depending on which me you get at what time and so people say, Well, you don’t have a New York accent or southern accent. I’m like, I have them all balled into one.
As much as I wish I had like childhood friends from kindergarten and this and that. I do appreciate the fact that I moved around a lot. But I have spent the last nine or so years here in New York, okay.
I’m New York to the heart but I got love for all!
TR:
Growing up with Low Vision, Lachi was the sixth of seven children.
Lachi:
The four older ones were girls. And the three younger ones were me and my two brothers. So I was really one of the boys.
We’d run around and play, we get hurt, we do whatever.
I was put into public school, I was not necessarily treated as a child with a visual impairment. Yes, we did have social workers and things like that. But I didn’t actually have the opportunity to get to know too many other people in my situation, whether it be blindness, whether it be other forms of disability.
TR:
Lachi received accommodations like extended test taking and adaptive technology such as magnifiers, CCTV’s and a monocular to see the board.
Lachi:
Because I held things really close, instead of thinking that I couldn’t see, they thought that I had maybe some other sort of other social issues or psychological issues.
It gave me sort of a complex of always trying to prove that I knew what I was doing. I was trying to prove that I was intellectually sound.
I was always sort of a creative kid. But there was never too many outlets for me to hang out with other kids and create with other kids and collaborate with other kids just because I was super shy and this and that. But I did spend a lot of time on my own just kind of drawing, writing and cultivating my musical skills really.
TR:
Being one of the youngest children in the family, Lachi benefited when her older sister lost interest in music. With access to a keyboard, Lachi found a passion.
Lachi:
I’d have all these little dolls and stuffed animals and I’d line them up, and I would make them sing all the songs I wrote. And I’d be like come on Alto section, now y’all know y’all messing up.
But they were very good listeners.
I’ve been writing and playing the piano ever since I was just, I can’t remember.
TR in Conversation with Lachi: 22:03
black families don’t necessarily always promote creativity in the arts. When I meet people who started off and seem to get that support from their family, I’m always interested in that, because back in the day, it was really like, Nah, you know, you got to go get a job And this is not going to pay…
Lachi:
You know, I mean, I did kind of glaze over a lot of that. You are, I’ll tell you right now, you are not being old school. That is definitely a real thing. Not only a black family, but most certainly in immigrant families, I identify as an immigrant family, because my parents both came over from Nigeria, in sort of the 70s 80s. And all of my older brothers and sisters are all nurses, doctors (says with over exaggeration and laughs) so I did get that as well. Part of the being blind, part of the being visually impaired, and being the only one with this visual impairment in my family did give me a little bit of leeway as the black sheep like, oh, okay, maybe she can be a little piano virtuoso, but at the same time, I was also very good at math. So I know that while my mother was very encouraging, of me just kind of doing whatever. My father was very much like, we need to cultivate this math thing you got going on, you better be you an accountant, you better be you some kind of financial, whatever.
TR:
She tried majoring in business in college for a bit.
Lachi:
I even dabbled in biology until I realized I was not going to dissect nothing. Sorry. Not with these nails.
TR:
Those nails and the artist they’re attached to had other plans – which became clear while at the University of North Carolina.
Lachi:
Every Saturday I would go down and play the piano in the dorm. And it was funny, because that began to blow up into people just always coming through Saturday evenings waiting for the piano girl to come and play the piano. It started turning into frat boys coming back from parties, or people going on dates kind of just hanging in lounging in the common area listening to me play the piano, and it really blew up in a major way.
It really did start out with me just playing. And then a friend or two would be like, hey, do you know that one song? Or do you know this and that, and then just got to a point where people are just yelling out Freebird.
TR in Conversation with Lachi:
Now now you just said which dorm you were in by the way. (
— Lachi and TR share a hearty laugh!
TR:
These Saturday night dorm performances helped increased more than Lachi’s popularity.
I started becoming more confident. Because I was sharing my talent with other people and people were going, Wow, you’re good at something. And I was like, Oh, look, I am and other people are telling me I am. I started getting that outside validation. I went to a counselor, and I was like I really want to pursue music. What do I do? And he was just like, moved to New York. You supposed to tell me to take like music theory classes or something. So I did!
TR:
Move to New York that is!
Arriving on bus in the big city, you know, sky scrapers and everythang! Her first stop.
Lachi:
I went to NYU and that’s where I started to meet some great guys out in things like Scoring for film, and things like that.
So I did get to meet a bunch of really great people. But when I say I really got into collaborating, was when I decided, look, I want to put a band together, I want to put some songwriters together. And so I really did just go out there and just start meeting people. Like it was amazing how much I just opened up as soon as I moved to the city, and would just be able to go up to people and go, hey, let’s you and me work together. And, and things began to kind of blossom.
TR in Conversation with Lachi: 17:05
You started off earlier, though, by saying you were shy. What’s the relationship between being shy? And then that creative spirit? Like, was that just that strong? Or was there a process? Because I think that, people adjusting to blindness, that could make somebody shy.
Lachi:
Yeah!
Whether you are born visually impaired, or whether you lose it later in life. And you don’t know other people in your space, you don’t know other people in your situation, you feel different, you feel misunderstood, you kind of feel alone
, you feel like you can’t really relate to others,
no matter how good people are trying to be to you, no matter how inclusive and everything, if they’re not really similar to your story,
the first place you go is well, you don’t really get it. And so you kind of coop up. And so that’s kind of where I was, like I did have friends, I did have a lot of support at home. And people you know, I was bullied, like everybody’s bullied. And I have some pretty crazy bully stories. But I can’t just sit here and complain too much. I did have some love. And regardless I was still putting myself in a shell. And that shell just could not stick when it came to me creating music. No matter how hard I tried to box it in, it brought me out
I was playing the piano in college for myself.
TR:
It’s so important to have something we enjoy doing. We’ll do it more and therefore, we get better. The result, confidence!
Now add the power that comes from meeting other people with disabilities.
I’m especially talking about those you can relate to. Those who share your interests.
For Lachi, it started with Visions.
Visions Center on Blindness that is…
Lachi:
It’s a camp. So you do all sorts of different activities, not just learning technology. I got to meet a bunch of people. Myself, being a musician, it was great to meet other musicians with blindness. And a lot came out of that.
TR:
Like the chance to create.
Lachi:
He played guitar. We were collaborating so much together. We decided we were just going to go to South by Southwest.
TR:
That’s the annual music , film and cultural festival that serves as a way of really introducing new artists to both fans and executives.
Lachi:
Right before we left, I ended up writing to a bunch of labels to be like, Hey, we’re going to South by Southwest, you should check out our show. Don’t ask how I got your email just come through. (Laughing…) And of course, I got no responses. But we went to South by Southwest, we played a few bars, it was a lot of fun. And funnily enough, at one of the shows we did, some guy came up to me and was like, I really loved what you guys just did, even though it was just vocals and guitar. Here’s my card. Call me when you get back to New York.
It turns out he was an A & R for a label under EMI. And it was just amazing. We had our meetings, we had another meeting, we had a third meeting, and then we eventually got signed.
TR:
In addition to being an artist, Lachi’s a producer with her own studio.
Lachi:
I am a Pro Tools girl. I use sort of a bunch of Antares plugins. I am a girl that has my computer, right at the edge of that desk, and I am two inches away from my screen. And it’s so funny because people will come in of all sorts. I mean, people have high celebrity to just independent artists will come into my studio, and the first thing they think is, uh, okay, let’s see how this goes.
— “Go”, Lachi
Lachi:
Couple years ago, when I first started really opening up my studio to other people, they would come in and then they would be a little alarmed.
I did get to a point where I did preface it with people. As soon as they came to my studio, I’d be like look I’m just going to tell you right now, I’m visually impaired and legally blind. But you came here because you heard my samples.
I will be all up in the screen, but I do use all shortcuts. Everything is shortcuts shortcut shortcut shortcut.
TR:
She makes it work for her. It’s not about the process, rather, it’s all about the art she’s making.
Lachi:
Ever since 2016, you’re going to get EDM, you’re going to get dance, you’re going to get trance, you’re going to get pop dance, you’re going to get things of that nature. But if you start listening to some of my older music, you’re going to get sort of more general pop, or pop rock.
As I got more confident, my music gets more confident, my messages get more confident. I don’t know, I really started to enjoy the whole, like, badass female sort of perspective. And I started to identify that way. And so my music kind of takes that journey.
TR:
I was curious if Lachi had ideas on how she would adapt to non visually making music. Yet, I was hesitant to ask because when she first brought up her diagnosis, she admitted that she wasn’t giving it too much thought. She later added that the gradual nature of the loss may also be a factor.
Lachi:
I don’t even notice it until I, you know, go into my doctor every six months, and he’s like, dang, girl, you really can’t see the big E.
TR:
The actual sight loss is gradual. Some other things become apparent when it’s gone.
Lachi:
it’s not really something that has hit my, my inner realm. I can’t necessarily tell you why. But I am sitting here trying to, you know, trying to psychologically figure that out myself, I actually think that that’s a very interesting thing about myself that I’m not freaking out about it. But I’m looking at it from a business perspective, instead of from a personal perspective.
TR in Conversation with Lachi:
And you know, you can do both.
All I guess I really want to tell you is that you know, you do your thing. But I want you to know that you have lots of options.
Right? That’s what I want you to know. You have lots of options.
You gone be fine!
TR:
Honestly, I think Lachi already knows that. Meeting a variety of people with all different degrees of blindness and disability ever since attending the camp in upstate New York.
But some things are relatively new.
Lachi:
I decided to incorporate my vision loss and my need for accessibility into my career path.
TR:
That includes her work with the Recording Academy advocacy committee.
Lachi:
I am putting together a number of inclusion and accessibility talks with the Grammys.
Anytime I’m in front of anybody from the board membership or anybody from any of these committees, I am talking about inclusion, I am talking about accessibility, and my voice is getting heard.
We’re talking a lot about Hollywood inclusion, we’re not really talking enough about music inclusion. And so I’m getting in front of these boards and talking. And they are coming to me and going, you know what, let’s go ahead and have you do some panels Lachi, you’re the expert on this.
TR:
Be on the lookout for some panel discussions around accessibility and inclusion in the music industry.
Lachi:
another thing that I wanted to mention, my manager Ben price of harbor side management, got an amazing grant from the UK Arts Council to do a huge sort of study slash article on music and its future when it comes to disabilities.
He’s out there having some great conversations with people when it comes to not just showcasing artists with disabilities, but also, with the accessibility of venues.
When we start opening up the city, when we start opening up the nation in the world. This is something we need if we’re starting from ground zero. If you’re just reopening, why don’t you add that ramp, add that handle, add that bar, do what you got to do to make your space accessible, because guess what? 2021 and 2022 is going to be Lachi out here calling you out!
TR:
She’s currently building a platform that could provide the space to amplify these issues and more. It’s on YouTube and it’s called The Off Beat.
— The Off Beat promo
Lachi:
I am a quirky little offbeat musician and I’m also just an offbeat person.
it’s going to be a series that Chronicles me, a black girl going blind, just trying to keep up with the sort of fabulous lifestyle.
Everything from, makeup, skincare and wardrobe, to Little things like learning how to fold a shirt to just getting my taxes right to even trying to figure out how to make a YouTube series like let’s be real meta and learn that together.
TR:
She’s partnering up with brands who want to support her message.
Lachi:
I’m also really interested in speaking with influencers and top folks in not only the blind space, but in the disability space in general. And even other margins like transgender, LGBTQ non binary. Just kind of calling on names in that space, to ask them how they handle different transitions as well.
I’m excited to share it with you, and anyone who will listen, that we are going on this journey, and that we are doing it from my perspective of I think it’s important for me to mention that is from the perspective of a black woman losing her vision and not just have a woman losing her vision.
— “We’re Not Done… Check this Out” From “You Must Learn” Boogie Down productions
— “Bigger Plans”, Lachi
TR:
And just when you thought it was over, you learn about her “Bigger Plans” …
Lachi:
That is actually the song where we are putting out our AD version of the music video that we put together. And so we’re very excited about that.
TR:
In the meantime…
Lachi:
We put this music video together with that song. We ended up getting backed by a company that does diversity styling, and
we shot the video and the company’s called diversity styling. We ended up shooting it in a space called positive exposure, which is a gallery that only showcases art from underrepresented groups. In the video, they had a bunch of pictures hanging from students with different disabilities. And the song as you can see, was written by a woman with a disability and the video was produced and directed by myself. And the diversity stylings woman, and then the star of the video is Zazell, gosh, she’s good!
She ended up sort of dancing in the video, and she starts out with a cane. And she’s unsure then she throws the cane away, and she starts dancing, and it’s so empowering. But by the end of the video, she actually picks the cane back up and continues to dance with it. Because that’s that’s her whole her.
The whole video from top to bottom is just made by folks with disabilities. And we’ve been entering it into all sorts of contests and all sorts of things.
We just literally won Best Music Video at the International Film forum New York. New York, Neil gallery.
TR:
We all need some wins every now and then, don’t we?
Lachi:
I’m always doing these little radio interviews, whatever, this little thing here, this little thing there. This is probably one of my favorites. Look we’re sitting here talking man. I’m not being rushed. We’re not trying to hurry up and plug something. I don’t have like, you know, my show notes. Like, let me make sure I hit this. I can tell that we are having an A and B conversation. It’s not just you reading a quick question and then just kind of scrolling through something while I’m trying to insert it.
TR in Conversation with Lachi:
Yeah. Definitely.
Lachi:
I really appreciate your perspective. I really love this show. When Ben sent me the link. I was like, Oh, God, I gotta get on this show. As I really love it, and everything that you come through and say up in the club is always just so insightful. So I just did want to throw that out to you as well.
TR:
Nah, it’s still Covid out here. Lachi and I haven’t popped bottles in the club just yet! She’s talking about Club House.
The audio only social gathering space.
I’m an Admin with the 15 percent Club, which is all about disability – as in 15 percent of the world’s population has a disability.
Lachi moderates a room on Thursday’s called The Blind Side. It’s poppin! All sorts of conversations around blindness. My personal favorite so far was the room highlighting Blind women. There were plenty of proud Blind women who know they are all that! That’s something I support!
TR in Conversation with Lachi:
I appreciate that. But this is about you. This is all about you. So you need to understand that once you come on Reid My Mind Radio. I need to tell you Lachi you are now an official member of the Reid My Mind Radio family.
— Official
— Airhorns!
Lachi:
Oh my god
I love it!
TR:
You can find Lachi on all social media at LachiMusic. If you’re on Club House don’t forget to check her out on Thursday’s. I might be working the door, but if I’m not let her know you’re part of the Reid My Mind
radio Family and I’m sure you’ll get the VIP treatment!
(Visually Impaired Player!)
Of course, go on over and follow Lachi’s YouTube series, The Off Beat and show your love!
If you like what you hear, please follow this podcast where ever you like to listen. We outchere!
Don’t forget we have transcripts and links over at ReidMyMind.com. If you’ve been rocking with me, you know how this goes, but some don’t… I’m gonna do it real slow!
that’s R to the E I D…
(“D, and that’s me in the place to be!” Slick Rick)
Like my last name.
— Reid My Mind Radio Outro
Peace!
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Tags: Blind, College, Confidence, Low Vision, Music, Nigeria, Piano, pro Tools, Production, SxSW, YouTube Posted in Access Technology, Accessibility, Advocacy, African American, Audio, Blind Tech, Blindness, Family, Media, PWD, Visually Impaired | Comments Off on Lachi: Building Bigger Plans for Going Blind
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Wednesday, January 27th, 2021

Happy New Year!
We’re starting the year off with centering the main goal of this podcast – providing that peer to peer support and information for those adjusting to blindness & disability.
To kick it off, I’m excited to have Cathy Kudlick back on the podcast. Last time we talked all things Superfest Disability Film Festival. This time she’s sharing Valuable experiences from her life that helped her move away from denying her blindness to using her interests and abilities to become Director of the Paul K. Longmore Institute on Disability.
She’s dropping gems for those who are currently struggling with their loss. Some really valuable lessons learned from her own experience. You’re going to want to hear what she has to say, so let’s go!
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TR:
Happy New Year Reid My Mind Radio Family!
My name is Thomas Reid, host & producer of this here podcast! Bringing you compelling people impacted by all degrees of blindness & disability.
Why you may ask?
Opening Mercy Mercy Mercy, Cannonball Adderley
— Applause
“You know, sometimes we’re not prepared for adversity. When it happens, sometimes we’re caught short. We don’t know exactly how to handle it when it comes up. Sometimes we don’t know just what to do when adversity takes over. And I have advice for all of us.”
TR:
Who better to get that advice from then those who have traveled that similar journey!
There’s no time to waste so let’s get it pushin’! Hit me with the huh!
Audio: Reid My Mind Theme Music
Cathy:
I’m Kathy Kudlick, and I’m director of the Paul k Longmore Institute on Disability at San Francisco State University. And I am also a practicing historian, which means I got a PhD in history.
TR:
I told you she’d be back!
Cathy was on the podcast with her colleague Emily Beitikss in September of 2020 talking all about The Superfest Disability Film Festival.
I knew I had to get her on when she mentioned her own experience with vision loss. Today, we’re focusing more on her story!
Cathy:
I was born totally blind with cataracts, at a time when they couldn’t really fix them very well. And so my parents in the first like, nine months of my life, basically, you know, kind of realized they were going to be bringing up a blind daughter, but they still didn’t give up.
TR:
Cathy describes her early experience with blindness as a Salmon swimming upstream, you know going in the opposite direction or against the current.
Cathy:
Yeah, it’s like I was going sighted instead of going blind.
At one point, I was seated on a chair, and my dad was taking a picture of me, and I reacted to flash. And so they said, Whoa, wait, there’s something that’s happening.
TR:
She was developing vision!
A family friend helped connect them with a prominent doctor who said he could help.
Cathy:
And he did.
When I was nine months old, they removed the cataract, my vision afterwards was still pretty darn crappy, as doctors would subsequently say, but you know, it was better than nothing at all, they said. And so I went through most of my life up until my teenage years with this pretty darn crappy vision
TR:
Additional surgeries gave Cathy more vision, but as we know, vision is complicated.
Cathy:
My brain didn’t learn when I was young enough to make the association. I can stare at something for quite some time. A lot of people will make that connection in five milliseconds, and I’ll be sitting there Okay. Is that a dog or house? Eventually, I’ll get enough input and enough clues and say yeah , it’s a house. Then I’ll fill in all the rest.
In the process of all this, I have Nystagmus, which is a muscle thing where the eyes basically jump all over the place. If I could just hold them still, I’d probably have pretty decent vision, but I can’t.
They say that Nystagmus later in life, it’s a lot, lot harder. And in my case, it’s all I’ve ever known.
— Music begins – calm melodic beat —
TR:
We often think it’s a natural process to adjust as a child, but some things require more attention.
Cathy:
I inherited my condition from my mother.
But society being what it is and prejudice being what it is, and denial being what it is. My mother did not want to admit this to me.
One of my big journeys in life is kind of reconciling well, who I was, who my mom was, and being able to talk to her about it. And even pretty late in life. She was starting to come around, but it wasn’t easy. It was really hard for her. She grew up in a different time, a different place.
— Music begins –
TR:
A time & place where disability identity wasn’t a thing.
Cathy’s specific experience with blindness is unique to her but what we all share is finding our path to acceptance. And that’s not often easy for those adjusting to becoming blind. In order to see how Cathy went from denial to Director of a disability Cultural Center we have to go back to her early experience with vision loss.
Cathy:
Growing up, it was just denial city,
It kind of reminds me of the cat that I have that hides under the bed, but its tail is sticking out.
They think they’re hiding, but everybody else is like, whatever, you know, go ahead and hide all you want.
The world really is set up for that kind of denial. I mean, you get all these enablers to help you do it because it’s so much easier for everybody.
TR:
Meanwhile, the person experiencing the loss, continues to struggle.
Cathy:
I loved my history classes. And I would just bury myself in a corner with regular print books, and a magnifier, but I didn’t want anybody to see me reading with a magnifier, if I can help it. I know I shook my head a lot to Read. I’d bob it back and forth, because of Nystagmus. I was ashamed of reading. it was like I had an accident or wet my pants or something to be caught reading in front of other people. It was so humiliating for me.
TR:
That pain goes beyond the emotional.
Cathy:
I remember getting my first cane and putting it in the closet, and it felt like it was just irradiating out from it, like, Oh my god, there’s a cane in there, you know, like, it was like a beast that I put inside.
— Ambient radiating sound begins …
— Music fades out —
I injured myself pretty significantly a few times by not wanting to use the cane because I could technically get by and if I use the cane and didn’t trip for three weeks, or three months or whatever, and I tripped the fourth week, Well, look, I got three weeks as a sighted person.
TR:
These experiences are not unique to Cathy. In fact, it’s more of a reflection on our society. A society that pairs strength with over coming and fails to see value or strength in difference.
Cathy:
They never bothered to teach me Braille.
And if I had learned Braille as a kid, when I was starting out, even if I turned out to be like a total 20/20 person, wouldn’t it be cool to know how to read Braille?
But, there’s so much stigma, things like, Oh, you don’t want to do that.
It’s so ridiculous. You realize how you’re tied up in little knots by society, by other people.
I could have been a more social person earlier on, I could have been a different person earlier on if I had not tried to pretend so hard that I was seeing like, everybody else.
TR:
We all travel at a different pace. Perhaps longer journeys accumulate valuable lessons.
Cathy:
Everybody makes it in their own way. There’s no right way to do it. Once you break that barrier, everything opens up, it gets a lot easier, but you got to get to that barrier. And however you can do it, if you even have a hint of how to do it. Go there early and go there often to get to this other place because it’s a lot better once you’re not in denial anymore, not trying to pass. Not trying to pretend you’re somebody else. That just frees you up, big time!
TR:
That’s a place that’s important and meaningful to you.
— Music begins –
Things you enjoy – not what some so called expert designates as appropriate for “someone with your condition”.
Cathy:
I started using those tools of being a historian to studying blind people. And that was really, really an important moment too, because you realize, one, you’re not alone. And to there is a history there.
I think knowing that there’s people like you that came before you, no matter who you are, and what identity you’re wrestling with, is so powerful, and so liberating, because it means you’re not the only one. You’re part of a tradition, you’re part of a process for a society. It’s not just us selfishly trying not to be treated badly.
TR:
That experience of discrimination or being treated badly, well that can ignite a fire. .
Cathy:
I’m mentioning the name, not to punish them, but just to show these were different times, and I’m not trying to make it up or cover anything over.
I had my first academic job at Barnard College.
I was starting to open up about my vision impairment and sort of being honest with people because I felt comfortable enough to do that.
but it came back to me that they did not want to keep me on, or they didn’t want to really consider me for another longer term job there because of my vision impairment.
They asked me to teach a large lecture class in front of a bunch of people just to see how I would do.
and something when they asked me to do that made me realize, like are you asking other people to do this.
So I said, No, I wouldn’t do it unless they were making all the candidates do it. Needless to say, that job application didn’t go much further.
TR:
That experience helped form a new way of thinking.
Cathy:
If I got kicked out of a job and didn’t get a job, because of my blindness, maybe there’s a flip side to this where I could say this is an identity and get people to think about identity differently.
This was before I knew much about disability studies, this field was kind of just taking off, there was no real disability history at that point.
TR:
So Cathy used her tools!
Cathy:
I started doing research in the French archives, where I did history of medicine, research, and I hooked up with researchers there Talk, talk to them. And it turns out, there’s a really great person that I have coauthored with Zina Weygand.
She introduced me around about scholarship and people and suddenly I was off to the races. It used a lot of talent that I already had in terms of this history research. I was basically off, off and running.
TR:
Her curiosity led to the discovery of a history of Blind people that I’m sure many are unfamiliar with. It began with a pamphlet.
Cathy:
It was called reflections, the life and writing of a young blind woman in post-revolutionary France, and it was handwritten and stuff. And I, I had a lot of trouble reading it. I sat in this archive, by myself. I had this one librarian that would read to me and helped me a lot. I ended up transcribing it and talking a lot with Zina , she was like, Madame history of the blind in France.
TR:
The booklet, written in the 1820’s, authored by Adele Husson, who wrote about her experience as a Blind woman growing up in France.
Cathy:
Nobody had ever written anything about that. We figured out she probably dictated it to different people because the spelling was different in different parts. And the handwriting was different in different parts.
TR:
Cathy and Zina were able to put together the author’s backstory through arduous research
Husson was concerned with being a burden to her family. In her quest to become a writer, she traveled on her own from provincial France to Paris. Her motives for writing weren’t just creative.
— Music ends
Cathy:
She wanted to ingratiate herself so she could get a residency in this place in Paris where Blind people could live if they did the right song and dance to get in. So she wrote this document, and they ultimately refused her.
Call to Action
— Music Begins
TR:
Are you enjoying this podcast? I can’t hear you.
“Can you dig it!” (Crowd roars in cheer!) – Warriors
TR:
One of the best ways to show your support for what we’re trying to do is to just share the show!
Tell a friend to tell a friend.
That way we’re more likely to get this into the earholes of those who need to hear it. And that’s the important part.
You could also give us a review on Apple podcast. The more reviews and 5 star ratings the more likely people will discover us.
Do you have a topic you want to recommend? reach out!
Email ReidMyMindRadio@gmail.com or call 570-798-7343 and leave a voice mail.
And of course Subscribe, wherever you get podcasts!
Thanks family!! And now back to the show!
— Music ends! —
TR:
Adele’s writing, let’s say left much to be desired, but she did achieve her goal.
Cathy:
We figured out at one point that she published more books than George Saund, who was a pretty famous writer at the time.
One of the things that was interesting, we found a book that had a preface, the story was really similar to her story, but it had a different name and the preface.
And it turned out that despite the fact that she said, Blind girl should never marry because if they marry a sighted guy, he’s just going to take advantage of them. And if they marry a blind guy, their prospects are totally bleak. They’ll die in a fire or something terrible will happen to them.
TR:
The research indicated Adele did marry…, a Blind man!
Cathy:
She died in a fire just like she predicted.
TR:
It’s unknown if her two children also died in the fire. Her husband, however, survived and went on to become well known in the Blind community.
Cathy:
He made this invention that you could use to communicate between sighted people and blind people with writing and translating.
He married a sighted woman and lived until he was about 70.
TR:
Cathy’s researched uncovered a community of Blind musicians and literary people in the 1820’s and 30’s.
Cathy:
Eventually, Louis Braille was part of that world, too. He knew Adele’s husband, we think.
[TR in conversation with Cathy:]
When you say a community at that time, I’m thinking, is this an actual community physically? Because how were people actually communicating if they weren’t in the same location?
Cathy:
Good question.
So there are two kind of physical possibilities for them.
One of them was a, the residents that she was trying to get into, and there were a lot of blind people that live there. And they had all sorts of rules about who could live there.
There were the schools that they all went to. National School of blind youth, if you were Blind, anybody in France, you went to this, you went to Paris and went to this one school. I think there was also one in Bordeaux, another large city in France.
In general, you knew people from being in the schools together.
TR:
There’s even some evidence of more social activity.
Cathy:
There was actually a place in Paris called Café des Aveugles, the Blind people’s cafe. It was kind of a seedy establishment in the seedy part of the city, but they would go and hold concerts there, met and exchanged ideas. We don’t know the details so much, it could be as much as like four out of the 40 people that were there were blind but you know, four blind people really make a stir. (Chuckles)
[TR in conversation with Cathy:]
Laughs!
Cathy:
You see these little glimmers of blind culture that are out there, but we don’t know until people really dive in to research it. With access to these archives now, kind of really hard and not organized and not funded. It’s, it’s a little bit harder, but I think the time will come eventually.
TR:
The value is in how these stories are interpreted and put to use.
Cathy:
Once I kind of made that connection, then I could frame a lot of my research as disability as a cultural identity, or as formed in history and as being part of history as opposed to just some weird, random medical condition that affects a few people that nobody cares about.
TR:
We’re talking about a significant shift in perspective. Moving away from a very mainstream view and offering something more empowering.
Cathy:
Don’t just try to fix me, let’s, let’s look at me and what I’ve learned as an expert, because I have a lot of talent and a lot of craft and perspective. I don’t mean me, Kathy, I mean the global we, people with disabilities who have perfected through studying, not just scholarly ways, but just kind of observing, you have to observe society pretty carefully to know how things work.
TR:
If you’re someone who has been running away from your vision loss, I need you to hear this.
— Music Ends
Cathy:
Passing, people disparage it all the time, but boy talk about being a really careful study or of society and knowing how the rules work. If you view passing as the first part of a two part exercise, then passing is a really set of useful skills to have.
TR:
You have to really know how things work in order to fit in. But it doesn’t have to be about passing.
Cathy:
You use those skills for something else and you stop passing and you say, okay , let’s pull it apart. Why do people cross the street that way? or Why do people think that this is important and not this?
Any question is fair game. Disability is so central in things that people have never thought to ask about in a cultural and social and emotional way before it’s always non-disabled people that are framing those questions, and when you put us center, us ask the question, it’s a different thing.
TR:
Centering people with disabilities, the results can be extraordinary!
— Music begins – something upbeat and in the spirit of conquering or coming to terms…
[TR in conversation with Cathy:]
At the time that you started to pursue disability studies, would you say you were still sort of passing? It sounds like you were on your way to…
Cathy:
I was on my way, I was on my way. And I remember going to my first society for disability studies, meeting and feeling like I sat at the bar at Star Wars. It’s like, there’s all these different creatures around and I was like, Okay, these are sort of my people, but some of them not all of them.
TR:
That’s honest. And I know I appreciate that because, I too was there.
But it ain’t where you’re from… it’s where you’re at!
Cathy:
I used to be terrified of other disabled people, I didn’t want to be associated with them at all, are you kidding?
That’s scary. Those people are way more disabled than me, they need more help than me and what’s wrong with me that I would identify with that when I could be in the mainstream, non-disabled society.
TR:
But then you start meeting the people and your opinion and feelings change. You realize well of course we’re not all the same, but some of these people I really do identify with. And for Cathy, that brought her to a realization.
Cathy:
I think I fit more with the people that are the disabled people than the non-disabled people.
In society, there are very few positive settings, where people with disabilities get to be a majority. And that’s what’s so great about our film festival when it happens in person. Superfest is like 4050 60% people with disabilities in a positive way, where people are having a good time, they’re teasing each other, they’re laughing together at the same jokes.
Suddenly, you’re in an environment where there’s more of you than there are less of you. It’s like Whoa. You kind of get a bounce in your step, or your wheels or whatever. And suddenly, you get to be a person that’s in a majority culture, in a way that’s very exciting and validating and powerful.
TR:
History helped establish this identity, meeting other Blind people helped it grow.
Cathy:
I did a training at the Colorado Center for the Blind about 20 years ago. It’s run by and for blind people. they make you do everything they’re blindfolded, wearing sleep shades. You learn travel, cooking. It’s really extreme, you go downhill skiing, rock climbing, all these things.
You learn not to be so afraid.
TR:
Afraid of what is often described as the never ending darkness! (Yuck!)
But fear, well, that’s just an acronym for False Evidence Appearing Real!
Cathy:
You’re taught travel, and everything by blind or low vision instructors. And you know, a lot of sighted people freak out about that. They’re like, Oh, my God, how are you going to be safe or whatever. And I’m thinking, if I’ve got to learn to travel and be safe somewhere, I don’t want that to come from a sighted person, I want to know that a blind person has figured out how to do it, and they’re going to show me.
TR:
Once again we see the role fellow Blind people can play in our adjustment.
Cathy:
Wow, there’s people that really do cool stuff and I can learn from this.
Sight isn’t everything in the entire world. It’s something to value, but it’s not the end all and be all there’s a lot of people that don’t rely on it and can’t rely on it. And they have lots of really interesting and fun and great ways to deal with it.
people focus on that light and the dark and all of that stuff and they don’t give you a place to really meet other people that have figured some stuff out. And I think that’s where your podcasts kind of great to be, you know, you meet all these people that are engaged and, you know, vital and fascinating and fascinated and, you know, wow. Once you crack that nut, I feel like things get a lot easier.
TR:
And if all that wasn’t helpful enough, Cathy offers another piece of advice for those adjusting.
Cathy:
I did a lot of therapy. Anybody that’s afraid of therapy, get over it. Find a good therapist. Get somebody that’s going to push you about this stuff.
I remember I had a therapist who didn’t know a ton about disability stuff, but he was still open, and he listened.
He kind of pushed me. At one point, he said, Would you rather be an incompetent sighted person? Or a competent blind one?
I sat with that question forever, because if I had known, that’s the choice that I was making, I think I would have freed myself up sooner.
[TR in conversation with Cathy:]
Do you think there’s anything about that journey that you actually had to go through in order to be where you are today?
Cathy:
Oh, wow, that’s a great question. (Pause)
Probably
I mean, I am who I am. And it’s all this, like, kind of jumble of what’s me.
TR:
She’s Cathy Kudlick…
[TR in conversation with Cathy:]
So Kathy, you already know you are…
— Audio: “Official”
member of the Reid My Mind Radio Family.
Cathy:
Yay! (Laughing) I was waiting, I was living to hear it. I was living to hear it!
(Cathy & Thomas laughing together fades out)
TR:
Cathy Kudlick, I so appreciate you and you taking the time to share your journey with the family.
And family is supposed to look out for one another. Sharing our journey’s because we know how that can impact another person experiencing blindness – whatever the degree.
You can find Reflections which contains the translation of Adele Husson’s original booklet along with thoughts from Cathy and Zina Weygand on Bookshare.org.
For that link, more of Cathy’s writing, transcripts & more head on over to ReidMyMind.com. And yes, that’s R to the E I D
(Audio: “D and that’s me in the place to be” Slick Rick)
Like my last name.
Peace!
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Tags: Ableism, Acceptance, Adjustment, Blind, Braille, Denial, Disability, History, Identity, Nystagmus, Perspective, Sight Loss, Vision Loss Posted in Accessibility, Advocacy, Audio, Blindness, Visually Impaired | Comments Off on Cathy Kudlick: From Denial to Director
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Wednesday, November 25th, 2020
I’ve had conversations where people have said, Blind users don’t want to know about race, they want it to be completely neutral.
– >Elaine Lillian Joseph
Today we’re going beyond the US border to hear from two international describers. Rebecca Singh of Superior Description Services in Canada. 
And if that’s not international enough for you here in the states we have Elaine Lillian Joseph from the United Kingdom.
We hear a bit about their AD origin story or how they came to description, the importance of centering Blind people in the process and more on guidelines for describing race, color or ethnicity.
And by the way, who in the world is neutral? Just US? Hmm!
Maybe not the final episode in the Flipping the Script series, but it is the last of 2020!
Listen
Transcript
Show the transcript
Music Begins – A smooth, funky mid tempo Hip Hop beat
TR:
What’s good Reid My Mind Radio Family!
It’s me, your brother Thomas Reid. I hope you’re doing well.
Me? Why thank you for asking. I am doing well.
Today, we’re bringing you part three of the Flipping the Script on Audio Description series.
You know, this was never actually supposed to be a series. I originally planned for one episode but it was quickly evident that several people had something to share on the subject.
It got me thinking about Audio Description in two categories.
First, mainstream.
These are the writers and narrators creating AD for major television and film projects.
Then you have the independents – these consist of a varying degree of theater, live performance, museum and other sorts of description work.
Flipping the Script is all about promoting different voices, alternative views and Audio Description topics that are often overlooked.
As we’ve seen, this applies to both mainstream and independent.
I can’t say for sure this is the end of the Flipping the Script series but I can say it’s the last for 2020.
You know, just when I think I’m done with the topic…
Audio: “… they keep pulling me back in” Al Pacino in Godfather Part 3
Audio: “And here we go!” Slick Rick, A Children’s Story
Audio: Reid My Mind Radio Intro
Rebecca:
My name is Rebecca Singh I am an Audio Describer also a performer. I’m the owner of Superior Description Services which is an Audio Description service which consults with the Blind and partially sighted community one hundred percent of the time. I am a cisgender woman of color and I live in Toronto Canada with my young family.
[TR in conversation with Rebecca:]
How’d you get involved with Audio Description?
Rebecca:
I got involved with Audio Description through the theater actually. I have been a performer for a very long time and just over ten years ago I saw an audition posting for this thing I’d never really heard about, Audio Description and it was a class that I had to audition to get into. I got the part. Started training, that led to something of a building up of the industry here in Toronto.
— Music Begins – A dance track with a driving beat!
TR:
That’s right Y’all, in this third part of Flipping the Script on Audio Description we’re going international!
What’s that? Canada’s right there to the north? Ok, let’s cross the Atlantic.
Audio: Airplane in flight.
Elaine:
My name is Elaine Lillian Joseph. I’m from a city called Birmingham which is the second biggest city in the U.K. I’m a proud Birmie! I’m a Black woman. I’ve just got my hair done. I’ve got long light brown extensions with cane row on top. I’m wearing a floral long just below the knee length dress. I’m sitting in my friend’s bedroom because I’m currently quarantining with my friend’s family. I’ve been doing AD for just under two years. I work for ITV which is our second biggest channel after the BBC. I’m also a freelance Subtitler so I do subtitles for Hard of Hearing as well. A lot of accessibility going on.
TR:
Subtitling or what we know here in the states as Captioning was Elaine’s gateway to Audio Description.
A fan of film and television, she studied English and German in college — oh my bad, University
Elaine:
It always seemed like a natural thing to want to go into media. Finding out that there was this whole kind of world of accessibility and it’s not just, it’s not just transcription I guess. Not that there’s anything wrong with transcription but that you can be a bit creative with it. Doing subtitles for Hard of Hearing for example, doing a Horror film and working out how to describe the sound of of an alien creature and what words am I going to use to do that. It seemed like a natural transition from that to also thinking about how to describe things in general.
TR:
Prior to working at ITV, Elaine was Subtitling at another firm, BTI. it just so happened to be the employer of an influential colleague.,
Elaine:
Veronica Hicks, who kind of really kick started AD in the U.K., certainly. She used to sit directly behind me and she has this velvety plummy (chuckles) voice. I was sitting subtitling and thinking what is it that she does because it sounds fascinating.
TR:
Elaine asked around and learned more about Audio Description. Eventually she left BTI.
Elaine:
Everybody at my company knew that I really really wanted to do it. A position came up; they kind of said go for it! I tested and I got the job and I’ve been very very happy ever since.
TR:
Such an important thing to keep in mind — let people know you’re interested.
Today, Elaine has written AD for projects including a remake of Roswell. She’s been trained on narration so we can expect to hear her post pandemic. She also narrates live performances.
Elaine:
I usually do kind of Queer Cabaret events. There’s like dance, spoken word, lip syncing and things like that.
— Music ends with a drum solo
[TR in conversation with Rebecca:]
I’m wondering what was the experience from your other work that you brought to Audio Description?
Rebecca:
I liked my drama class in junior high and I decided this is the best thing ever. I made my way to a performing arts high school and got bitten by the performing bug and was doing at first some film and television. As it goes as a performer, the work opportunities change.
Instead of just sitting by the phone as they say, I shifted over to doing more theater work, clowning.
[TR in conversation with Rebecca:]
The whole get up, the makeup and everything? Or is that something different? (Chuckles)
Rebecca:
I think that’s a certain kind of clown. I was living in Montreal, like the city of Circ De’ Sole. It was a little bit more movement, physical theater based kind of stuff. The acrobatic storytelling with the body. I went to dance school for a while. So it was really more about expressing myself through the body.
[TR in conversation with Rebecca:]
Okay, so you’re not jumping out of cars with like fifty other clowns. (Laughs)
Rebecca:
No!
TR:
She’s a creative person who found herself doing more arts administration. After moving to Toronto she moved back into the performance space gaining even more of the experience she needed for Audio Description. That physical performance for example prepared her for her first AD assignment describing physical comedy. And the administration work was quite valuable as it gave her a community of people to talk to or a network.
Rebecca:
There were people that had already worked with me in a different context and so I understood their concerns, what their fears were as producers. Everything from being afraid of touch tours because you’re potentially bringing a service animal onto a stage before the show. Rehearsal schedules, the time and space actors need. The types of conversations that are appropriate to have with directors if you’re having discussions. When is a good time to approach a designer if you have some questions? All of those things really help to mitigate any hesitancy that producers had in terms of adding something new to their palette.
TR:
Elaine’s love of reading & creative writing adds value to her description. But that merging of creativity with Audio Description has it’s challenges.
Elaine:
It’s a service and I think it’s important to remember it’s a service. There can be ego (Chuckles) in any industry and sometimes I think people forget the user and what’s most important to the user.
TR:
Rebecca has her own way of assuring Blind consumers are always centered throughout her process.
Rebecca:
Paid Blind and partially sighted consultants. I get two different kinds of feedback. I learned a long time ago it’s definitely not a one size fits all in terms of description. I have a roster of consultants with different interests as well. I also try to match the interests of the consultant. Some people like Opera, some people like dance. All of their different expertise filters into my descriptions. And they ask those really deep and probing questions that I have to find answers to.
[TR in conversation with Rebecca:]
What kind of differences do you find between the Blind and partially sighted feedback that you get?
Rebecca:
One of the most striking differences is things like when I’m describing a set. With people who are partially sighted some people need to sit really really far up close and they want a different type of perspective in terms of what the set looks like. they may not be sitting in the same place. If they have a service animal they may be sitting further back in the theater. Maybe they’re closer to a speaker where that might cause some sound level things that need to be worked out. Sometimes light matters in a production, sometimes it doesn’t. Sometimes I’ll get feedback from Blind consultants saying things like I really appreciated the fact that you called this thing almond shape because I know what an almond feels like. I really developed a sense of what words work better and what words are more inclusive over time working with both Blind and partially sighted consultants especially if they’re working together with me on the same show.
That’s the other benefit of having multiple consultants is that they can learn from one another and I always have a chance to bring in somebody new and widen my pool.
TR:
Inclusive language reflects all sorts of identities.
Elaine:
I’ve had conversations with people before about things like race. It’s wonderful that we’re kind of having a moment where we’re really grappling with that. And I’ve had conversations where people have said, Blind users don’t want to know about race, they want it to be completely neutral. I find that a really interesting argument because I’m like what does neutral actually mean and who are we assuming is neutral?
[TR in conversation with Elaine:]
How do those conversations come up when writing description?
Elaine:
When I first started I remember asking questions like should I describe color? Should I describe that this rose is red or that this car is blue or whatever? And then moving from that I guess to should I describe race and the color of somebody’s skin?
So I’ll talk specifically about race rather than diversity I guess because there are other things that we can describe.
The industry standard was to not describe race unless it’s important to the plot.
TR:
By now, if you’ve been following this ongoing conversation on the podcast, you should be pretty familiar with this AD guideline.
As an example of the guideline, Elaine refers to a production of Hamlet
Elaine:
And Hamlet is Black. Then I should mention it. But that doesn’t mean I should mention the race of anybody else. We can assume that everybody else is white. I took that on board and then I kind of ignored it a little bit. (Laughs)
[TR in conversation with Elaine:]
(Laughs…)
Elaine:
Because I just found it really difficult. I was like, but why? (Laughs)
I found that I was working on shows where I just wanted to describe like the color of somebody’s skin.
[TR in conversation with Elaine:]
Why?
Elaine:
Why!
Because I thought, what’s it mean for it to be relevant to the plot. If there’s a conversation happening between sighted users and they’re saying oh did you notice how the policeman in whatever show it is is Black? I just kind of feel that means that as a Blind user you can’t be part of that conversation because someone’s decided that that Black policeman isn’t relevant to the plot so we’re not going to mention them. Also personally I know Blind users who I’m friend’s with who definitely wanted that information to be included because they’ve definitely felt like there are conversations that they can’t be part of because people are making these decisions.
TR:
Decisions being made on behalf of Blind people without our input. How does that make you feel?
Elaine:
Initially I wasn’t bold enough to say the Black man. I would describe the texture of his hair. So I would say the man with black afro textured hair. (Laughs) I think it should be fairly clear, but I still felt like I was kind of skirting around it.
[TR in conversation with Elaine:]
Would you get any pushback?
Elaine:
We definitely didn’t receive any pushback. When my manager kind of reached out to a community of Blind users then it was an overwhelming yes! (Chuckles) Please do include that.
[TR in conversation with Elaine:]
Okay. So you never got pushback from management.
Elaine:
No. My immediate manager was like a resounding yes! When I went into the kind of wider Audio Describer community that’s where I definitely felt pushback.
TR:
Like the time Elaine attended a conference where for the first time she heard a discussion of race and Audio Description included in the conversation.
Elaine:
There was a lot of why do we need to do this? What terms do we use? People not feeling comfortable saying the Black man – will the terms change. We might offend somebody, so it’s better if we don’t use any terms at all and just kind of ignore race. It felt uncomfortable for me being the only Black person in the room.
TR:
That’s uncomfort when people are either looking to you for the answer. Or one that I know I’ve experienced, giving the impression that you’re doing something wrong by raising the issue. (Oh well!)
Elaine:
Maybe it’s my British politeness kicking in but I found it very difficult to sit and listen to kind of put in my two pence. Imagine if a user is Black, maybe they do want to know about race (laughs… You never know!
[TR in conversation with Elaine:]
Yeh, absolutely
It’s just as important for a Blind consumer who is not Black to know that there are Black people on the screen y’all, like this is real.
Elaine:
Definitely.
[TR in conversation with Elaine:]
I’m wondering if there’s an age gap here too. Is this the old guard that we’re talking about here?
Elaine:
I guess so, yes.
I have much respect for them. I feel like I need to put that disclaimer out . (Chuckling)
I really do and I felt like almost a young usurper at that conference and in some of these conversations I’ve had. I get that they’ve been trained in a specific way. If we look at the breakdown of describers in the U.K. it’s white middle age women.
Audio: “To be or not to be. That is the question” From Hamlet, Royal Shakespeare Company
Music ends with beat in reverse!
Rebecca:
I feel like I owe it to the listener and the listener is not necessarily a middle class cisgender white female or a male and sometimes I feel like from some of the teaching and reading and some of the history from what I’ve seen of Audio Description and words, it’s really taking one particular perspective. That is exclusionary and also not fair to people who are Black and Indigenous or people of color.
TR:
In general, no matter what country, fairness, access, equity that should be the goal.
Rebecca, who thinks quite critically on this subject of inclusion presented at a conference in Europe.
Rebecca:
The Advanced Research Seminar on Audio Description.
I, over the last, I would say five years or so, have been really been honing in on the idea of creating the Canadian accent for Audio Description. We here have had a lot of influences from England and also from the states. We haven’t had our own Audio Description culture in Canada. So I went and was the first person to present from Canada and I talked about creating the Canadian accent and describing race gender, class and recognizing our bias.
[TR in conversation with Rebecca:]
And how was that received?
Rebecca:
people were very interested. I think that there’s not a practice of using consultants quite as much as we do here in North America and specifically what I do. The other thing that was really well received was the fact that I presented it in a way that did not require any description. I described all of the images. I tried to make the entire experience inclusive to a point where the person who was operating the CART, the real time captioning, didn’t have anything to write. That was all just part of the example of how we can be more inclusive.
TR:
The responsibility of making media inclusive and accessible includes the role of Audio Description.
Rebecca:
Everybody deserves the opportunity to see themselves in a story. We as people who are helping to tell a story have a responsibility to do everything that we can to not exclude people from seeing themselves.
TR:
So what exactly does that responsibility include?
Rebecca:
even as Describers we need to understand what our own bias is. I live in a very progressive city. And I live in a arts bubble inside that city. I try and check myself against that as well. I don’t want to use language that is so open that only a very small amount of people with very specific references will understand.
We need to have more conversations with consultants and also understanding what the history is and what the perspective is of people who are heavy users of Audio Description. We need to talk about it.
TR:
She’s talking about multiple conversations from all perspectives. Some times that just means raising the issue.
Rebecca:
It’s all of those little tiny actions that every person can do just to point out when things could be better perhaps or when things could be more inclusive.
Just being self-reflective about how we’re receiving information. I think many voices is much better as opposed to a government mandate or something like that.
Sometimes words aren’t enough.
TR:
But the words can inspire actions that lead to real change. Like getting film makers and broadcasters to include a bit more space to allow for Audio Description.
Ultimately, the change happens when our thought process becomes more inclusive.
Rebecca:
If the creator of the material no matter what it is, has the Blind and partially sighted community in mind as part of their audience from the beginning.
TR:
Having Blind people in mind translates to our access not being an afterthought. When it comes to Audio Description?, we need to be centered.
[TR in conversation with Rebecca:]
So the idea that there are sighted people enjoying Audio Description?, that’s cool, that’s really cool and I get it because hopefully that means there will be more of it, right?
Rebecca:
Yeh!
[TR in conversation with Rebecca:]
Do you see the potential for that to be a problem?
Rebecca:
I’m really in favor of Audio Description guidelines and standards being created for the needs and wants of the Blind and partially sighted community. Anyone who is putting something forward that they call Audio Description is aware of these guidelines and is providing something that is standardized. That said I think it’s also okay to create things that are not necessarily Audio Description?, but use techniques of Audio Description and as long as they’re not called Audio Description. I think more is better and so as long as it’s not called Audio Description when it doesn’t meet the standard, go for it!
TR:
From my understanding, there are conversations happening today exploring these guidelines.
I’m not sure what will end up being decided, but I do know that if these conversations do not include people of color in a real way, including decision makers, then we have to ask the question, why? Is it just fashionable right now to appear as though we’re addressing issues of diversity?
It’s a similar question I asked of all those in the Flipping the Script series;
[TR in conversation with Elaine:]
It’s a simple question, so feel free to answer (laughs) because I’m asking it!
Elaine:
(Laughs) I see I have no choice. (Laughs) Okay!
[TR in conversation with Elaine:]
(Laughing )No, but answer it anyway you want.
My question is why, why AD?
Elaine:
Oh! That’s a lovely question.
AD has brought me into contact with people that I probably would have never have met. In terms of the Queer drag community that I’m now part of and speaking to Blind users and Blind performers as well. I think that’s enriched my life and I hope that the descriptions I give in turn enrich their experience.
Last year I remember telling someone another sighted person, that I did AD. They just laughed and were like Blind people don’t watch TV. That was just like a whole education let’s just say for that person. (Chuckles)
I think it’s a really, really beautiful service and I think that it’s having a bit of a moment over here where people are certainly from the describer point of view, people are starting to think about how we can change it and engage even further with the community who uses it and that’s really, really exciting to be part of honestly. It’s so so fun! I honestly want to keep on doing this and developing my skills and my confidence and listening to people.
— Music begins – a chill piano leads into a smooth jazz chill Hip Hop beat
Rebecca:
I am a storyteller, I was born that way (chuckles). I think it’s really important to be able to tell your story in a way that everyone can hear it, receive it. I don’t think we have any excuses to ignore that anymore. We have technology to help us out. I want to see the amazing wonderful gifts that actually like Blind and partially sighted creators present having had access to some of this more popular culture. Some kind of performance art. So I think it’s important for everybody to have those opportunities. and I really feel like access to art is as important as access to sport. I think it’s part of what makes us human. And so everybody should have this access.
I just think it’s fair!
TR:
That’s Rebecca Singh, you can call her CEO of SDS or Superior Description Services where she centers Audio Description.
Rebecca:
Also known as described Video here. I do live description, image description, I produce podcasts with the Blind and partially sighted community in mind. Consultation to help with Universal Design. My Twitter handle is @SDSDescriptions.. I’m also on Face Book Superior Description and you can always check me out at SuperiorDescription.com.
TR:
Elaine Lillian Joseph is on Twitter @@elaineLJoseph.
I’d like to thank Elaine for putting up with my attempt to include the London slang in our conversation.
[TR in conversation with Elaine:]
Init! (Hysterical laugh)
Elaine:
(Laughs) Oh my days, you really love Top Boy don’t you?
[TR in conversation with Elaine:]
I do!
I get in to the whole street shows and all that type of thing so, I’m sorry! it’s Hip Hop I’m going to be in there!
Elaine:
Ah, that makes you (possibly says me) really happy! I love it, I love it!
[TR in conversation with Elaine:]
Yeh! (Laughs)
TR:
Big shout out to Rebecca and Elaine for all they do and for openly sharing their experience and opinions for the improvement of AD for all.
So let me welcome you to the Reid My Mind Radio Family!
Audio: Air horn!
I’m hoping you’ll hear them back on the podcast in the future.
While this is the last official episode of 2020, you know I usually do something for the holiday season. Right now at the time of this recording, I have no idea what that is, but I’m pretty sure I’ll put something together to wrap up this incredibly challenging year.
To be sure you get that episode;
Subscribe wherever you get podcasts!
Transcripts & more are over at ReidMyMind.com. And let me do a bit of Audio Description for you. That’s R to the E I D
(Audio: “D and that’s me in the place to be” Slick Rick)
— Music Ends
Like my last name.
Audio: Reid My Mind Outro
Peace!
Hide the transcript
Tags: Access, African American, Audio Description, Black, Blind, Canada, Captions, Consultant, Narration, POC, Subtitles, Theater, United Kingdom, WOC Posted in Accessibility, Advocacy, Audio, Blindness, Descriptive Movies, Descriptive Television, Media, Visually Impaired | Comments Off on Flipping the Script on Audio Description Part Three – Moving Beyond Just US
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