Posts Tagged ‘Deaf Blind’

Young Gifted Black & Disabled: Deaf Blind Advocacy

Wednesday, November 9th, 2022

Marc Safman, a Smiling light skinned Black DeafBlind man, with short curly black hair, clean shaven, wearing glasses, grey suit , green dress shirt, tie (bright blue  with smaller yellow and white stripes), white/pink flower Boutonniere.
Marc Safman is a Paralegal who worked in anti-money laundering compliance. He’s considered “sighted” Deaf Blind.
Today he joins the podcast to discuss some of the various access challenges he and many others face in employment, social and advocacy circles. Plus, what’s up with the continuous examination of Helen Keller?

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Transcript

Show the transcript


Music begins: A melodic, slightly distorted whistling flute… the melody loops lowering in pitch…

R: 00:02
Greetings Reid my Mind Radio family.

If this is your first time here, allow me to welcome you. My name is Thomas Reid. I’m the host and producer of this here podcast. We’re in the final half of what is our last season of 2022.

We call it Young , Gifted, Black and Disabled.

Music continues: … opening into a mid-tempo groove supporting the melodic flute.

By coincidence, my guest today, like our prior guests, Haben Girma is also deafBlind. As we know, disability falls on a spectrum and is experienced differently by each individual.

Hearing two different Black deafBlind experiences. Well, that’s just going to add more dimension to the conversation. Keep that in mind as we get into it. Let’s get it!

Audio: Reid My Mind Radio Intro theme music

Marc: 01:03
well, my name is Marc Safman. I’m a light skinned Black man with black, gray at the temple hair, and I typically wear my glasses, but I’m not wearing glasses, and a blue t shirt. Got a blue background behind me. I’m considered sighted deafBlind.

TR: 01:20
at 16 years old Marc underwent acoustic neuroma brain surgery. In addition to auditory processing challenges, the surgery left him deaf in his right ear, he began experiencing progressive vision loss about 10 years later, and is now legally blind.

Marc: 01:34
I’m kind of like, okay, I’ve just got to find ways to do that. And enjoy what I’m looking at in the world, what I’m hearing in the world are people who take the time to give me the time to take my phone out.

TR: 01:47
Marc uses Google transcribe the speech to text that enables him to understand exactly what a person is saying. With magnification. He’s even been able to function using pen and paper to interact with others. Yet, as you can imagine, there are some real challenges

Marc: 02:02
a lot of the issues about my disability was kind of like, well, you know, you get older, and you really understand yourself a little bit more. You understand how your disabilities were impacting you, you understand the solution. And then you see the problems that I face; staying employed, interviewing, just trying to socialize with people where you really can’t hear, or you really can’t see someone looking to make eye contact with you.

TR: 02:27
We’ll see just how that difficulty socializing impacts all aspects of a person’s life. marc’s either an optimist or he just has a good sense of humor, to note the benefits?

Marc: 02:38
Some people try to engage me with the point of mugging me. And I’m kinda like “sorry did you say something?” They say something snippet, I’m saying “I’m sorry I don’t hear very well so I have a hard time understanding what you’re saying. “And they walk away.

Audio from “Running Scared”
Mugger: Give me your money.
Potential Victim: “What?”
Mugger: You heard me…

TR in conversation with Marc: : 02:52

(TR & Marc Laughing)

that’s a good defense.

TR: 02:57
In addition to what I’m gonna call the ableist muggers, sometimes those who walk away are potential employers, being deaf can make interviewing a real challenge, especially when the interviews consist of multiple people asking questions, Marcs access accommodation doesn’t always suit potential employers,

Marc: 03:17
I’m a Paralegal and I work in anti-money laundering compliance, Thomas, so I deal with people in financial services typically don’t like to write things down. There’s nothing you can do. And I feel like also I had interviews where, I would have to name them, the National Bank of Pakistan, these kind gentleman took turns sitting next to me, talking in my ear, and writing things out very patiently. Not one of them had a problem. People who make the accommodations, they’ll go out of their way to try and help you while you’re on a job. The people I used to work with were some of the most excellent people on the planet. The technology was not as developed back in 2006 2010. They would all routinely just talk or write things out for me.

Music begins: A piano melody with jazzy horns leads into a melancholy groove.

TR: 04:04
Sure, we all can appreciate those who just seem to automatically get it. They may not know the right thing to say or do but they connect on pure humanity. They’re open to communication and want to succeed with others.

Marc: 04:19
You will learn on the job that there are no laws protecting disabled people, employers, they frequently have a mandatory arbitration clause. Everyone knows that it’s a very formal. You have to go through the EEOC and typically the EEOC will probably reject your case and tell you to go file a lawsuit. And that is very long, lengthy process. New York City Human Rights Commission from my experience has not been very helpful. They have declined to prosecute multiple situations. They have rejected what they consider one off situations. I submitted the same freaking complaint with so many different companies trying to access CART, or the real time captioning open captions at events for various professional or cultural events.

TR: 05:07
CART, or the human generated real time captioning is a must for Marc and others at networking events, conferences, community forums. They can feature multiple speakers often slide deck presentations or references to other visuals. Therefore, context is very important to truly understand what’s being transcribed. It’s not accessible through an apple auto generated captions. Marc says there’s no real help and even convincing organizations that they are indeed supposed to provide this access

Marc: 05:36
The Mayor’s Office on Disabilities here in New York City has one of these useless programs where they will contact an organization and say the accommodations are the law. But if that organization just says, Hey, no, we’re not going to do it. MOPD turns around and says, Well, now you can file a complaint. I have filed complaints and they take multiple years to resolve with simple CART text to speech complaint.

TR: 06:01
Even when he’s been invited to attend specific functions and asks for the accommodations CART is not provided. There are loopholes that basically allow organizers to put the responsibility on others like the event venue, who end up ultimately pointing the finger back at the organizer. Meanwhile, Marc not only request CART Services, he’s prepared with the names and contact information for providers,

Marc: 06:28
all you need to do is contact the vendor. I don’t care if your host doesn’t know what they’re doing. That’s not your host’s obligation. All these organizations will punt, and the law’s so vague, the Division of Human Rights Law hopefully clarify that. I’m not settling out of court with these folks

TR: 06:44
doing so wouldn’t benefit the community.

Music fades out.

TR: 06:51
Marc has enough usable vision where he can often read with the help of magnification. He knows basic Braille and advocates for its wider availability, and points out where once again, the deafblind community is being left behind.

Marc: 07:04
Blind groups have prioritized ballot Marcing machines, or having accessible ballot through screen readers. And screen readers are totally unhelpful if you’re deafBlind.

Synthetic Voice: ” Synthesized speech won’t help someone who is deafBlind!

the blind community that I’ve encountered here in New York has been very reluctant to embrace Braille ballots. I’ve been pulled directly by other advocates that they feel that requesting a Braille ballot would be a negative experience for someone. I don’t see how there would be a pejorative guilt trip or make anyone feel like they’re being singled out. Braille is critical. Braille ballots are critical.

TR: 07:46
While Braille isn’t considered a technology solution, there is a technical component with electronic braille displays, which makes CART also accessible to Braille readers. As we know the true barriers for those with disabilities are human made. Consider the mobility challenges for those who are deafBlind. Yet the CO navigator or support service provider is a program that can greatly impact the community.

Marc: 08:11
There’s a strong preference for Co-Navigator, as the term.

Co-navigator helps the deafblind individual with mobility, running errands, helping the person conducting transactions, shopping or whatever

TR: 08:25
sounds like the benefits could even extend to help reduce some of the challenges like employment, community involvement, and social isolation.

Music begins: A slow, driving haunting groove

Marc: 08:34
It is incredibly offensive that We have a governor and a state legislator that basically doesn’t care. Hearing professionals, nonprofit groups are well aware of the importance of the CO navigator program, they have done absolutely nothing. The National Association of the Deaf has done nothing. ESOD here in New York, their state affiliate, they do nothing ACB, NFB, nothing!

TR: 08:57
I have to say I haven’t verified this.

However, I do know that during my own time spent a bit more involved with blindness organizations. I can’t recall much in the way of advocacy for deafBlind specific issues.

In all fairness, Marc did include the AFB in what I believe is, a call for action.

Marc: 09:18
If they did something well, it’s like, I think we would have a program already.

TR in Conversation with Marc: 09:21
if the blindness organizations and the other organization was to get involved. What exactly is the involvement that’s necessary? We’re talking about more folks advocating for it? Or is there something very specific that they’re not doing that they could do?

Marc: 09:38
Helen Keller National Center cannot advocate because of their federal funding.

TR in Conversation with Marc: 09:42
Okay.

TR:
I think he’s looking for advocacy. And maybe that’s not actually a lot to expect from advocacy organizations, especially considering what happens when many in the deafblind community try to participate in community or political events.

Marc: 09:57
You really have a hard time participating when you can’t get the electeds to make accommodations at their events, they don’t care. There’s a fear of disabled people still, and it’s deep. And it’s one of the reasons why, even within the progressive political community, people won’t touch it. Because they don’t think that there’s votes in the disabled community.

Music ends as if highlighting the next statement.

And they don’t realize the voting bloc power that is growing.

TR: 10:24
that block can be really effective, especially with solidarity, disability, solidarity, that means recognizing that you and your specific disability doesn’t truly win. Unless we all win. Along with recognizing other disabilities. That also means the multiple intersections that we bring, so called race, gender, sexual orientation, etc., etc. With this in mind, I asked Marc, a very specific question around representation.
TR in Conversation with Marc: 10:44

any conversation amongst the deafblind community about Helen Keller, in terms of representation in the media? If there’s anything about deafBlindness, it’s always Helen Keller, and I’m just wondering, do you have any thoughts about that? Is there any sort of discussion about that any feelings?

Marc: 11:10
Some people have concerns about she was from an upper middle class, Southern aristocratic family. However, it does have ties to the Confederacy, I understand that she would have to be from a very well off family in order to have a private tutor. She’s elevated for commodification. It overlooks the fact that Helen Keller was a radical, and very much advocate of workers’ rights, women’s rights. She was not a weak woman. She was a pretty strong willed individual who spoke her mind very clearly. And pissed off a lot of people,

TR: 11:43
the way Helen Keller story is told, often doesn’t present the nuance within her own life. More importantly, that simplification allows us to not consider others who are deafBlind people who are deafBlind.

Marc: 11:54
People just want to latch on and commodify things and oversimplify things so that they don’t have to think.

When people say their disability diversity consultants, they simply don’t actually understand the accommodation, or the needs or interests or concerns of the community, they just talk about these very vague solutions. They do these LinkedIn hashtag strategies, that really doesn’t help inclusion. you’re playing along with a narrative that’s controlled by neoliberal elites, not people. It’s only through challenging the elites, and demanding on meaningful laws, programs and services that respect individuals for their humanity.

CO-navigator services, providing Braille ballots, Braille literacy, eliminating tokenism.

Why don’t we have accommodation Jobs Centers that the government could just basically simplify this for all business efficiency. We have the solutions, you have no excuses for denying opportunities to people just because they need accommodation.

TR: 12:59
As a society, we seem to be okay with accommodations that are easiest for us. And too often the undue burden is put on the disabled person. It’s like we fail to see the value of accessibility,

Marc: 13:12
that allows people to live an independent life without having to rely on family and friends.

Music begins: An upbeat, feel good, inspiring horn melody opens to a fun and cool Hip Hop beat.

TR: 13:21
I’m always reminded that an independent life should be dictated by the individual, what constitutes an independent life, for me, may be quite different for you. And that’s fine. Similarly, this individual approach applies to access.

Marc: 13:37
So even if you have a solution, the solution still needs to be tailored to the individual. And that is the tricky part.

As Andrew Cuomo demonstrated, in his covered briefings when he was refusing to provide in frame ASL, he can’t just assume that just because someone’s deafBlind, doesn’t mean they’re the same type of deafBlind. I don’t need pro tactile. You providing pro tactile interpretation, it’s not going to help me. The CART solution is not going to help another deafBlind individual. So you can’t say, Well, I provided ASL.

Music continues…

TR in Conversation with Marc: 14:12
Tell me a little bit about what you like to do when you’re not doing all of the advocacy.

Marc: 14:19
Well, I like art. I take a lot of photos because, well, it helps me see things. You’ll end up taking like a lot of photos. I don’t necessarily see what I’m looking at until you look at the photos.

I like going to opera, sporting events. I love baseball, hockey, soccer. Well I’m not tall and I’m not a big guy, so I’ve never went out for football and I’ve never tried basketball.

TR in conversation with Marc: 14:38
You used to play baseball?

Marc: 14:41
Oh, yeah.
I used to play shortstop, third base. I’ve been on the all-star team a few years.

TR: 14:45
That’s sort of how I like to think of my guests, all stars, or as I tell them all here on the podcast; official!

That’s right Marc, you’re an official…

— Airhorn

… member of the Reid my Mind Radio family Brother.

If you want to reach out and connect with Marc, you can find him on LinkedIn.

Marc: 15:03
That’s probably the best way to reach me. My name Marc saffman,
(spelled out) M A R C, S like Sam, A like apple, F like Frank, M A N.
TR: 15:15
I met Marc on Twitter. I can tell he’s a persistent guy, just by the way he followed up with me.

He continues to contact and schedule meetings with elected officials from local to federal. He shows up for council meetings and continues to request access. He follows up when the access isn’t granted.

He’s an advocate.

And as we know, there’s all types of ways to advocate and inform…

In fact, I’ll ask you to advocate for this hear podcast. All you need to do is to tell a friend to tell a friend that they can find Reid My Mind Radio wherever they get podcasts.

Transcripts and more are at ReidMyMind.com.

And as all good advocates know,
That’s R, to the E, I,… D!

Sample: “D, and that’s me in the place to be!” Slick Rick.

TR:
Like my last name.

Audio: Reid My Mind Radio Outro

TR:
Peace

Hide the transcript

Flipping the Script on Audio Description – Access 4 All

Wednesday, August 25th, 2021

“I came to this country to start leading the project and start putting all the technicalities together to start doing captions and audio description in Spanish, serving the Latino community.”

Headshot, Maria Victoria Diaz
Maria Victoria Diaz PhD, an Electrical Engineer left Colombia to help “Flip the Script” not only on Audio Description but access in general for native Spanish speaking people.

President of Dicapta & Chair of Dicapta Foundation, her efforts continue to prove that creating access for one group can benefit others as well. In this episode hear about ;
* The struggle for Spanish AD
* Access 4 All – Dicapta Foundation’s solution assuring Audio Description can be shared across platforms.
* Go CC – providing access for the Deaf Blind to content and emergency information
… and more.

It’s fitting that I open this episode with my own Spanish translation.

Getting to Know You!

We’re ready to take this podcast to the next level, but we need your help.
Please, take just a few minutes to fill out this survey.

Want to listen to this podcasts via your smart speaker?

just ask it to play the podcast Reid My Mind Radio by T.Reid on your default podcast player.

Holla Back

If you have any comments regarding this episode or any others for that matter, remember you can;
* Leave a voice mail at 570-798-7343
* Email ReidMyMindRadio at Gmail
* Comment here or @sreid on Twitter

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Resources

Transcript

Show the transcript

Hide the transcript


TR:

Reid My Mind Radio Family! Before we get into this latest episode, I need your help.
I want to take Reid My Mind Radio to the next level, that’s making it a sustainable venture.
But I need to know more about you, the listener. I’d really appreciate if you could take a few moments to fill out
a quick survey. Just go to ReidMyMind.com and hit the link that says , hmm, what should I call it?… Survey!

— Music Begins A mid-tempo Reggaeton Hip Hop influenced groove.

TR:

Greetings, my beautiful brothers and sisters.
Welcome back to another episode of Reid My Mind Radio.
You know, the podcast featuring compelling people impacted by all degrees of
blindness and disability

TR in Spanish:
Saludos, mis hermosos hermanos y hermanas.
Bienvenido a otro episodio de Reid My Mind Radio.
Ya sabes, el podcast que presenta
a personas atractivas
afectadas por todos
los grados de ceguera y discapacidad.

TR:
We’re continuing with our Flipping the Script on Audio Description series.

TR in Spanish:
Continuamos con nuestra serie Flipping the Script en Audio Description.

TR:
By now, you should have an idea of where we’re going in this episode. If not, give me a moment for my theme music, and then I’ll introduce you to my new friend and she’ll make it clear.

TR in Spanish:
A estas alturas, debería tener una idea de hacia dónde vamos en este episodio.
Si no, dame un momento para mi tema musical, y luego te presentaré a mi nueva amiga y ella te lo dejará claro.
— Reid My Mind Theme Music

MV Diaz:
“I came to this country to start leading the project and start putting all the technicalities together to start doing captions and audio description in Spanish, serving the Latino community.”

TR:

That’s Maria Victoria Diaz.

MV Diaz:
I used to be Maria Victoria and now I’m just Maria, in this country.

TR:

I like people to feel at home around me.
And she said I can call her Vicky.

— Music begins –
MV Diaz:
I’m from Colombia. I’m Latina. I have tan skin and brown eyes, my hair is over my shoulders usually is how I wear my hair.

I’m the President of the Dicapta and the director of the board of the Dicapta Foundation.
I’m an electronic engineer. I’m hard of hearing.
My pronouns, she/hers.

TR in Conversation with MV Diaz:
Tell me a little bit about you. And let’s start with how you became interested in audio description.

MV Diaz:
I started working as an engineer in a television company in my country.
The first time that I saw captions in my country was working in television, and I was like, What is that for?

I started to be interested in captions.
Specifically being hard of hearing, that was like natural to be interested in that kind of service.

Then I started working, specifically researching about accessibility features, specifically, to make television accessible.

That’s where I started like, 20 years ago, trying to push in my country for some policy or regulations for captions to be included.

TR in Conversation with MV Diaz:
How successful was that?

MV Diaz:
It was just good luck.

At that time, I had friends in the television industry, some of my colleagues from school, were the technical director of different television stations there.

TR:

Actually, that wasn’t the so called good luck. Those friends in high places didn’t make it happen. At least not until the government got involved.

MV Diaz:

So they came to me suddenly, one day, like, oh, there’s this new regulation that we need to comply, then help us please.
I think that one person, the government had a child who was deaf, and then that’s how they became interested. Sadly, that’s the reason most of the time.

And so I started doing captions for every single television station in the country and training.

TR:

What began as a two person team in 15 days grew to 20 people.

MV Diaz:

We needed to cover all the regulation that came at that time.

We help them to install the technical facilities for captioning

So the sad part of the story is that that regulation came at still the same 20 years after just like, two hours per week one newscast in the per channel.

TR:

Soon after that work began with captions, she met a guy who was Blind. He had a question.

MV Diaz:

Have you consider doing something for me?

And I was like, what kind of service Do you need, or how I can serve your needs?

And so he was telling me about Kurosawa’s “Dream” movie. And
he was describing for me every single scene of that movie, and I was like, how you can tell me those details about that movie If you don’t see. So I was so interested in his specific process.

TR:

That movie, Dreams, a 1990 film by acclaimed film maker
Akira Kurosawa was subtitled.

MV Diaz:

It was like a team effort, in a way with friends from his university.

I started researching how I can be involved in that field. It was like 20 years ago.

It was aligned with my interest in I wanted to be a musician, when I finished my high school, and I couldn’t because according to my doctors, being hard of hearing, it was not a good idea to be a musician.
I was like, Okay, I have to fight to do something else to overcome barriers.

TR:

At this point Dicapta, Vicky’s team of 20, was working on caption and Audio Description
when she was approached by one of the 2 private Colombian broadcast company’s.

They wanted to buy her out and control the market. Her response?

MV Diaz:

No, I’m not interested.

I started looking for options to serve to in Spanish in other places. And I found out that in the United States, services in Spanish were like really nothing available, not for captions, not for description at that time. So I decided to write an email to the Department of Ed asking how I can participate in your initiatives. And they told me, no, you have to talk to the television stations or to the channels. And you have to ask them. We’re not the right source for business.

TR:

Vicky’s response set her on a path and in my opinion says a lot about her motivation.

MV Diaz:

I’m not looking for business, I want to know how I can contribute in the discussion.

So they just mentioned it to me that they have a television Access Program. I’m talking about 15 years ago, 16 years ago.

TR:

It’s government, so that means lots of paperwork.

MV Diaz:

I can tell you that I was in Colombia, in my office preparing a proposal for the Department of Ed,

I had no idea how to do business in the United States… the right words to use or how to fill these forms. And I just started reading the forms , filling them up giving my ideas there.

I guess that it was a really good proposal, because we just got funded,

TR:

Come on, you know it can’t be that easy.

MV Diaz:

They call me but you can’t run a project, serving the Latino community from your country, you have to be here. And I was like, okay!

TR:

In about two weeks, she gathers her belongings, leaves Colombia and is in
the states.

MV Diaz:

I just really thank the Department of Ed gave us the opportunity to just try to add value, and to discuss and to tell what we think.

It’s wonderful for me that I every single time that I try to do it, sometimes I have to work a little bit more. I can talk with whoever I wanted to. And I can, I can just at least try. Most of the times the answer is no, we’re not interested. But it is okay. Just to have the opportunity to share what you think.

TR:
Thankful for that opportunity, Vicky uses her voice to continue her mission.

MV Diaz:

I came to this country to start leading the project and start putting all the technicalities together to start doing captions and audio description in Spanish, serving the Latino community.

TR:
While Dicapta is a for profit company, most of the work being done has been through the nonprofit Dicapta Foundation.

MV Diaz:

We really have some new partnerships doing dubbing in Spanish but most of the work that we do in audio description and captions is funded by the Department of Ed.

TR in Conversation with MV Diaz:
So accessing audio description for television, and cable here in the States requires the sap the secondary audio programming.
And it just happens to be that that’s the same channel that delivers Spanish translations in for shows in English. So does this mean that it’s impossible for a person who speaks Spanish to be blind? Hashtag sarcasm?

MV Diaz:
(Laughs)
Kind of…

Spanish language television, They don’t have a Spanish in their SAP, they don’t have anything in the sap.
So we’re not competing with the Spanish translation in the Spanish television, we’re competing with the Spanish translation in the English television.

The big problem here is that the CVA didn’t include Spanish.

So the first thing is audio description in Spanish has to be mandated.

What I have learned is that the FCC is following the mandate from the Congress. So how to push for Spanish to be included? I don’t know Tom

TR:

Remember, the CVAA or the 21st Century Telecommunications Accessibility Act
requires local TV station affiliates of ABC, CBS,
Fox, and NBC located in the top 60 TV markets
to provide 87.5 hours per calendar quarter.

How’s this for a regulation; AD on everything!)

MV Diaz:

Telemundo Okay, they are part of NBC. NBC is under the regulation, why? Telemundo is not under regulation?

TR:

Hmm good question. But, bad answer.

MV Diaz:

No, because it is not. Period.

But why, if they are under regulation and Telemundo is part of NBC? No,

I became part of the disability Advisory Committee of the FCC, and I was like, I’m ready. This is exactly the place where we’re gonna change the story.

No, no, no, no,. (Said slowly with lots of frustration)

TR:
When it comes to advocating for Spanish AD, it often comes down to priorities.

MV Diaz:

We have different problems in our community, bigger than the accessibility, I have to say that.

We are in a different place in history right now. Our concern is more, jobs, education and immigration. We are trying to fight different fights. We don’t have Latino consumers as organize. The Blind Latino consumers that we have been working with, it is not enough.

I don’t know, my grandma said something, but I can’t translate. How is your Spanish Tomas?

TR in Conversation with MV Diaz:
Well!

— Sample Price is Right loser tone!

MV Diaz:
My grandma used to say just one little bird is not able to call winter.

TR:

There’s power in numbers.

MV Diaz:

The consumer organizations, they know that that’s a problem.

If you have to go to the Congress, or if you have to go to the FCC, asking for specific questions, is going to be like priority number 10, maybe or, let’s say, five to be more generous.

, but is never going to be their first priority. I kind of understand now

TR in Conversation with MV Diaz:

I think that can be said about a lot of communities.

There are definitely people who say, oh, why are you talking about audio description all the time, we need jobs. I get that. I also see a relationship between jobs and audio description, education and audio description.

TR:

Couldn’t these lower priority issues serve as vehicles to elevate those considered higher priority. Especially when putting into context?

That’s what I mean when I say, “Audio Description is about much more than entertainment.

MV Diaz:

Our a Latino community communicates in Spanish. We are trying to have that. In here. We are trying to find our space and our beliefs, our roots, our culture alive.

It is incredible. The amount of kids that are Spanish speakers coming from different countries don’t speak English yet need access and they don’t have the access that they need.

We are working with the DCMP and they are doing a really great job. And we are trying to include some educational titles there. But in entertainment we are really, really far

TR in Conversation with MV Diaz:
I’m thinking about the streaming companies, they’re not obligated under the CVAA. But they do decide to go ahead and stream audio description, Univision, Telemundo, none of them are interested in doing it at all? Have you not been able to talk to them?

MV Diaz:
Yeah, I have talked to them. I don’t know. They think that I’m just a girl trying again.

But no, the thing is that, for example, Telemundo at the beginning, what they told me like three years ago, they didn’t have SAP in the whole network.
So they didn’t want to provide the service for this kind of part of the audience and not to others

We have been working with funds from the department of Ed.

TR:

Those fund enabled Vicky to have one request.

MV Diaz:

We’re gonna provide you with the description. You just have to put it on there.

Even that is really hard tom.

We included audio description but the cable companies. Don’t pass it.

For example, Channel 22. They are an international television channel. They are in DirecTV, they are in

we provided Audio Description. we created all the audio track.

Okay, DirecTV, No audio description. Spectrum, no audio description.

TR:

Cable companies, you had one job!

But regulations do really go a long way.

MV Diaz:

Caption is not that bad. I can tell you because of the regulations. The FCC regulation includes Spanish captions. So we are safe there.
Just because the regulation is there, they just know what it is. They know what it’s about.

TR:
In the rare event that the cable company does pass the AD, you better catch it that first time being aired because it probably won’t happen again. Whether on that same channel or another.
The problem, many of us have experienced.

we know a show or film has AD,
maybe we saw it on one channel or on a DVD,
but another broadcaster or streaming network doesn’t pass it.

MV Diaz:

Let’s try to do it ourselves. And that’s why we started working in a different direction creating technology and creating Access 4 All.

TR:
Access 4 All is a central repository for any accessibility asset.
That’s the actual digital caption, audio description and ASL files for example.
No matter the language! They’re all stored in one location.

Access 4 All serves as a clearinghouse.

MV Diaz:
Dicapta is a really small organization. We need influential organization or powerful organization to believe in the value of a clearinghouse the importance of sharing the resource that we have.

That’s why we are creating like a membership model under the foundation. The idea is for people to come and say, okay, I created this audio description and no matter if you are in Mexico or if you are in London or if you are in Italy, that specific program is going to be accessible.

So that’s the big dream.

TR in Conversation with MV Diaz:
When you say a membership, so for example, Netflix would come in as a member, the BBC would come in as a member, Argentina television would come in.

so they would have a membership. And they would upload all of their audio description tracks to this repository.

MV Diaz:D

So who’s member of this repository right now?
New Day films, some movies from PBS POV and the Spanish content that we are creating with funds from the Department of Ed.

TR:

Plus, it empowers us as users to access the assets ourselves.

MV Diaz:

You just download the app. You just can watch the program with audio description, you can read captions, or you can do the ASL version of the program if it’s available.

TR:

The app developed with funds from the Department of Education, is free!

Check it out!

download the app…

Start the film, while your app is open… And voila!

TR:

Right now Dicapta is working on creating a searchable catalog. Already, they have over 300 hours of content.

— Dicapta audio icon

TR:

That little tune or audio icon was created by consumers of audio description and members of the Dicapta advisory committee.
It’s formed by the notes D, C, A, and G.
D for Description, C for Collaboration, and
A Accessibility.
The sequence finishes with a G major chord that stands for Go!

It includes a graphical element as well.
It’s formed by two purple triangularly shaped capital letters “A”.
The letters are thick and slanted toward each other so that
the adjacent sides are in a vertical position.
A blue number 4 sits over the letter A on the left.
The horizontal bar that goes from left to right on the number 4 matches the horizontal bar that goes from left to right on the letter A and also covers a small portion of the letter A on the right.

MV Diaz:

What we are proposing is to add that icon at the beginning of the program or during our in them guide, just to show that is in the repository.

I have tried to talk to the big players in the industry. But it is not an easy conversation.

my invitation is this Okay, so that if you don’t have a solution, we have one maybe you can use these one or you can start trying it and see if it if it works and if not someone come with a better one, right? But today we don’t have any solution. We are not sharing, we are creating the same track twice instead of Sharing the one that is already created.

— Sesame Street Cookie Monster shares with Elmo

Elmo:
Oh, Cookie Monster would share his cookie?

Cookie Monster:
Yep, it’s against my primal instinct, but you share with me, and me share with you.

TR:

There are some who understand.

MV Diaz:

Nickelodeon. Latin America, we launched a project with them using “Access 4 All” and they did audio description for some shows. And then they are promoting the show.

Maybe that’s kind of the support that we would need.

TR:
There’s more to be hopeful about.

MV Diaz:

the world is changing. And I see a better scenario for accessibility now that the one that I found when I came 15 years ago, the conversation is different. More people knows about accessibility and about the descriptions. So I think that consumers are more aware of that. Okay. Maybe it’s possible. I just have to say, Tom, I really thank Netflix. They are, they are they’re showing different ways. To support accessibility, and they are including Spanish, they are asking for audio description in Spanish to be included.

Hopefully, if they are showing that the assets are going to be there, or maybe somebody is going to decide to share.

TR:
It’s probably worth mentioning that Apple too offers access in Spanish.

I know there are decision makers or at least some who have the ear of decision makers
who listen to the Flipping the Script series, and
hopefully the podcast in general.

I believe many of them are sincerely about providing access because they see it as fair and just.

If you are an independent content creator, I encourage you to talk to Vicky and get your captions, audio description and any access assets on to Access 4 All.

MV Diaz:
it’s supposed to be a membership.

For now Dicapta Foundation, we’re not charging anything to independent producers.

We have a basic agreement saying that you are donating for the Clearinghouse and you’re not charging the user to use. And in case that someone else is interested in having that, that specific accessibility, they’re going to contact the owner to say like, Okay, I’m interested in this audio description to be downloaded to put it somewhere else

I think that we Dicapta, we’re going to concentrate our effort in educational programming and in independent filmmakers.

TR in Conversation with MV Diaz:
Let’s talk about the work that you’ve been doing with a community that’s often overlooked, and that’s the deafblind community. Tell me how Dicapta is serving that community?

MV Diaz:
I invited the daughter of a friend of mine who is Deaf Blind to one of our advisory meetings. We were talking about television and about movies and about access. We were trying one app. We asked her for her opinion, oh, my goodness. She was like… Are you serious?

We don’t have access to television. I haven’t watched television in my whole entire life, how you think that I’m going to go to the movies. And it was really a bad moment in that room.

TR:

Come on, we know by now, Vicky turns these sorts of situations into good.
She reached out to more consumers for input.

MV Diaz:

And so we started trying to, to bring captions to braille displays in a in a way that that they can have some kind of access, those of them that are Braille readers. So that is a minority among the minority and the minority. But given access to the caption streams through braille displays, was the general idea to start working with. So it was like four or five years ago that we started working with that project, and we got funds from the Department of Health. And we were able to produce the solution but then again, the problems came and the industry and the practices

TR:

Of course they did!

Technically, captions on Braille displays is easy. The problem is when your captions don’t include the name of the person speaking. So it’s just an endless stream of words without context.

MV Diaz:

We try to push again, like, changing best practices just include identification of the speaker in the captions or streams just to serve the deafblind community. And so we produce documents and we spread the word in the industry in the caption providers to whoever is creating captions just provide identification for the speakers to make sure that no matter what technology is coming, captions are gonna serve the Deaf Blind community.
[
TR:

The service is called Go CC and provides even more for this community.

MV Diaz:

We work with FEMA to provide emergency alert information.

we work with the Helen Keller National Center. And that’s the reason why the product is as good as it is because we work with the consumers and they created what they needed.
It was not our invention, we just did what they asked us to do.

Next step in that is just to find a foundation or an organization that has all the capacity to share that into the community in a way that we can’t do.

TR:

Dicapta’s expertise is in solving problems and creating access.
MV Diaz:

We put together captions and audio description in stream text to make sure that the deafblind communities serve. So we’re doing that through Access 4 All. So if you use access for all you can use it from your Braille display too. And you can read captions, read the descriptions. And it is done. It is already there.

TR:

The challenge is the speed of that stream of information in relation to the actual film. It could be difficult to stay in sync.

Yes, someone could read the transcript and avoid the movie all together, if watching alone.

MV Diaz:

I don’t want you to go by yourself to the movies, I want to go with you.
Same thing with television, coming from our culture, we don’t do things alone, we do things with families all the time. So it is the idea is to have sync it with the movie, just to make sure that you can be part of a group of people watching the movie.

it is the experience of being with someone else. What is different,

TR:

Family. Friends. Community!
Sharing… y’all feel what’s happening here. It’s about more than access for Vicky.

That young lady who never had access to television, they’re on Vicky’s advisory team.

MV Diaz:

$
I’m here to show you that maybe I apologize. But we do we do better now and then try to do better things.

TR in Conversation with MV Diaz:
Congratulations. I believe you got a television access award. Is that what it was? Tell us about it.

MV Diaz:
Yeah. It is wonderful.

I have to tell that that the Department of Education hasn’t been recognized enough for their support to access. So those who have been working with them, we know that they have spent I don’t know how many millions of dollars supporting captions at the beginning before that, the regulation of captions and then audio description for years too.

But it was really not clear if they had plans to continue supporting description, especially after audio description is already mandated by the FCC.

The educational part of it is not as regulated for the network’s.
So that’s why the Department of Ed decided to continue the program.

We got one of the television access awards. We are so happy.

TR:
We should all be happy!

At least those of us who say we care about access.

MV Diaz:

We’re going to make sure that Access 4 All is a reality. Not just for our community, we’re working with English language content two. So every single hour of audio description or captioning that we create is going to be shareable in our clearing house, and is going to be accessible, no matter if you are watching it in one television station, or in any other is going to be accessible using their app

It’s gonna be five years collecting audio description, collecting captions, and asking others to join this effort.
So at least for the educational programming, I think that we’re going to have very good news to report at the end of these five years.

TR in Conversation with MV Diaz:
Okay, so this is a hard question. What are you doing? When you’re not creating all this accessibility?

MV Diaz:

Laughing…

Oh, I’m playing my flute. I’m learning piano. Okay. They pandemia show me my piano in the middle of the living room.

My daughter’s used to play piano because mom wanted them to be the biggest artists. They decided that they don’t like to play.

TR in Conversation with MV Diaz:
they said that was you Mom, not us.

MV Diaz:
Yeah. So I had this big coffee table in the middle of the living room. Coffee Table.

(Hearty laugh along with TR.)

So I have to decide I have two choices. The first one is just giving my piano to someone that is going to use it. Or taking some piano lessons. Yeah.

And I love the music that you play.

I think that we would go to the same party.

TR:

If you’re throwing a party and
you want to invite a strong advocate and someone who is dedicated to access or
if you want to learn more about the great work taking place at Dicapta, open your favorite browser and point it to;

Reid My Mind Radio: Holy Braille!

Wednesday, June 15th, 2016

The Holy Braille! A mock up of a full tablet sized  Braille Display.

If we take a look at the evolution  of the printed word over the years, it’s clear that technology has made real advancements possible. From desktop publishing to the promise of a paperless society. The advancements in Braille haven’t been as exciting. It’s still not an affordable option for many. And mobile options provide reduced output.

Picture of an 80 cell Electronic Braille Display

In this latest production for Gatewave Radio, learn all about The Holy Braille Project from the University of Michigan’s Haptix Lab. They’re working on an affordable full page Braille display with the potential   of being a  fully functioning tablet with its own  tactile graphic user interface.

Note:
In this episode, I make reference  to the importance of Braille for those who are Deaf-Blind; an often forgotten  segment of the population. Well, the only method for accessing digital information is via electronically Braille displays. A few weeks ago I began thinking of changing my workflow in order to create written transcripts in order to make my content fully accessible. See, by creating a podcast we exclude the entire Deaf community. As someone who believes in access for all, it’s time to step up my own game. So going forward I am going to try my hardest to  make transcripts available. I’ll keep it in the post but have it after the resource notes.

Subscribe to RMM Radio
– Or hit the Play button below!

Resources:
* Haptix Labs
* Statistical Snapshot from the American Foundation for the Blind
*             American Printing House for the Blind 2015 Annual Report

 

Transcription

TR:
In the 1800’s Louis Braille who was blinded as a child, modified the Night writing system developed in Napoleon’s Army.
This tactile  system enabled soldiers to safely communicate with one another under the cover of the night’s sky.

Ever since, the system of multiple cells, each consisting of some combination of 6 raised dots translating into alphabet, numbers, contractions and punctuations, enable literacy for those who are blind.

The challenge of Braille has been, bringing it into the 21st century.
There are digital Braille displays . They’re also bulky and expensive. We’re talking about over 2 thousand dollars. At most 80 braille cells can be displayed at once on a device. And these are the most expensive and bulkiest.

Devices today demand a more compact form factor allowing for greater mobility.

The Holy Braille project developed out of the University of Michigan is creating a more affordable and light weight product that will display a full page of Braille cells.

AR:
My name is Alex Rossomanno. I’m the PhD student working under
Brent Gillespie  and Sile O’Modhrain. I’ve been  on this project for 4 years now. My role is on the kind of technology development and research side.
A tablet like the one we’re trying to build just doesn’t exist right now. there really is a pretty big need for it. It’s almost prohibitively expensive to access any kind of electronic content via Braille. Essentially Blind people are more or less stuck either having to read in hard copy or having to access things via text to speech which as you probably know you know text to speech is great for some things  but…

TR:
…but it doesn’t allow for passively learning the spelling of a word. And certain types of information can be more difficult to understand  and process audibly.

AR:
We’re looking to create a device that is both able to create multiple lines of Braille on a page but then also to be able to render content that would take up more than a single line of Braille so that would include graphs, spreadsheets, maps some kind of tactile images that you can feel.

TR:
As text is visually displayed on a monitor or screen; small pins configured into cells matching the Braille cell are lowered and raised rendering the translated Braille cell.
As the user moves  through the text on the screen, the corresponding text is rendered on the braille display.

AR:
Traditionally, in order to control these bubbles  on a surface you need an electronic control valve or a separate one for each bump you want to control. So if you have a thousand  bubbles on a surface you need a thousand  external control valves. What happens it gets  very bulky if you go about it that way and it gets difficult to manufacture.

TR:
Several components will impact the final price of the product.
The cost of materials are one.
Labor is another and the ease at which a product can be manufactured can greatly reduce the retail price tag.

AR:
The way we’re going about it is actually integrating all that valving and circuitry that’s used to control those bubbles into the same sub straight as the bubbles themselves . And so what you get is a highly manufacturable device that is made similar to how a computer chip is made. I like to draw the comparison that we have computer chips that are essentially made in a chemical process that are kind of built up like 3D printed almost so that when it comes out it’s already fully integrated and you have all the different parts of the computer chip already connected together.  No one’s sitting there piecing it together themselves.

TR:
If you’re not familiar with this concept of 3D printing…
Just imagine a machine that takes all the ingredients; processes them together to automatically build the final product.
For example, you could have machine that has all of the ingredients
to make a cake.
Eggs, water, Flour, sugar and more sugar!
The machine is programmed to use the exact amount of ingredients to create a batter and heat at the exact temperature for just the right amount of time. No longer does someone have to manually crack the eggs, measure the flour and so on.
Yummy!

AR:
It’s the same manufacturing process to create an array of dots that’s maybe a hundred dots than it is to create one that’s a thousand dots. So you have a little bit of a scalability there where it may be more expensive to create just a single device out of this technology but you get these economies of scale when you    create  a very large device. It’s not like the price is scaling linearly or the cost of making the device is scaling linearly.

TR:
The possibilities, are more than a new and more affordable Braille Display.

AR:
Ideally we would have first and foremost something  that’s low cost and that  could render a full page. Upfront that’s our goal.

TR:
And then, there’s the holy Braille!

AR:
Much like sighted people have
a typical Windows or Mac interface; there’s icons you click on. Essentially you’re navigating through this digital information in a pretty seamless  way. That doesn’t necessarily exist right now for Blind people and having a table that’s able to have  a very large array that can change digitally, so can update at a very fast speed, you can imagine some kind of user interface that a blind person could potentially be clicking on icons and feel those icons and be able to navigate around digital content in a similar way that sighted people do using the typical interfaces that we interact with day to day. A portable device you could carry around with you.

TR:
Alex and the rest of the team are hopeful that once this technology is proven and ready for prime time other developers will begin to create on top of their technology.
Similar to other inventions that sparked new development like the development of the iPhone  gave birth to the creation of millions of apps doing everything from playing silly games to potentially detecting cancer.

While it’s too early to determine when such a device will be available on the market
a prototype is not that far away.

The project is currently in the proof of concept phase.
Meaning the first goal is to prove the capabilities of the underlying technology that drives the product.
In July, Alex and the team will be displaying this technology at  the Euro Haptics Conference in London.

According to a 2014 report published by the American Printing House for the Blind;
less than 10 percent of children with vision loss  read Braille. This is on par with adult counterparts.

Research has shown a direct relationship between  Braille and employment. Among those who are blind and employed, over 80 percent are Braille readers.

Now, with almost 35 percent of these school aged children being labeled as nonreaders and
less than 10 percent reading braille, there’s a strong need for increased access and affordability.

And then, an often forgotten segment within the blind community are those who are both deaf and blind. Braille is their access to the digital information.

Improved digital access makes sense.

If you’re interested in learning more about The Holy Braille project or those involved
AR:
Our lab is called the Haptix Lab (H  A P T I X) and if you just Google search “Haptix Lab” we’re the first thing that comes up!
TR:
This is Thomas Reid, for Gatewave Radio.

AR:
“There really is a pretty big need for it… it’s almost prohibitively expensive”

TR:

Audio, for Independent Living!