Posts Tagged ‘NFB’

Doing Your Thing With Disability: Marguerite Woods – Here I Am

Wednesday, March 9th, 2022

A full body shot of marguerite Woods smiling brightly while waiting for a fresh protein drink order.  She is seated sideways on a black & Silver upholstered chaise lounge with her right elbow slightly leaning towards the rolled back of the lounge. Marguerite is dressed in white slacks and a black blouse with white panels along the yolk and sleeves, black sunshades, beaded mecklace, large  silver hoop earrings & bangle accessorizing her outfit and bald head.  Behind & off to her right side is, a small blonde wood bookcase with a painting of Bob Marley on the wall above.
Can I kick it? (Yes you can!)

Welcome to the kick off episode for the first season of 2022; Doing Your Thing with Disability!

In this series, we’re not talking about overcoming blindness, getting passed our disability, no, we’re going to hear from some awesome people who do the things they love to do and they’re doing it with their disability. That’s a whole different energy.

We begin with a Reid My Mind Radio alumni, Marguerite Woods, who’s all about energy. She was last on the podcast during the 2021 Flipping the Script on Audio Description season.

I just knew during that first conversation, I had to have her back on to discuss more of her experiences as an advocate, philosophy as it pertains to blindness and disability. Plus I wanted to hear more about her trip to India and all that meant to her.

In this episode we get into self-reflection, a kinder gentler advocacy, love of self and skin bleaching? You’re going to have to listen in…

Listen

Transcript

Show the transcript

TR:

— Theme from Welcome back Kotter
— A hip hop drum loop…

Greetings, Reid My Mind Radio Family.

— from song, “Welcome Back!”

I feel like I’m home. Well, I am.

You know what I mean right?

That familiar place where you’re comfortable, your needs are being met and you feel loved and appreciated. That’s what I want you to feel when you rock with Reid My Mind Radio!

Let’s start this off right!
Can I kick it?

— “Yes you can”

Can I kick it?

— “Yes you can”

I’m excited to kick off this first season. If you caught the Black History Month bonus episode, you already know, this season is called Doing Your Thing with Disability. Now I know some of y’all may say that a bit differently as in Doing’ Your Thang with Disability! You should know, that indeed is the feeling behind the season. I chose not to formally name it that way because not everyone gets that energy right when saying it. If you do appreciate and respect that vibe, by all means feel free. If you do not or if you question whether you’re qualified to do so, well, don’t it’s cool, say it phonetically. Doing your thing with disability.

What I hope to deliver during this season are 4 episodes with varying examples of people pursuing different goals in their lives for a variety of reasons. We’re touching on Accessibility, entrepreneurship, music expression, self-discovery and more.

I encourage you to listen between the words.
(Filtered Voice:) Is that a thing?
Sort of like reading between the lines?

Throughout each episode, the energy is not about getting passed or overcoming, nah, that’s what they talk about over there…

The way we get down, right here, we’re doing it with disability – and to me that’s something to celebrate.

— Reid My Mind Theme Music

TR in Conversation with Marguerite:
This first season of Reid My Mind Radio in 2022 is all about doing your thing with disability. And I want to know, what does that mean to you?

Marguerite:
Wow. It to me, it means being my authentic self. And disability is just a part of my shell. And it’s a part of the filter that I’m experiencing this physical life through. And so I can’t escape that. So it’s a part of who I am. It’s just not all of who I am.

— Music begins, a mid tempo smooth jazzy Hip Hop beat.

TR:

Who she is? Well, this is Marguerite Woods.

Marguerite:

I am a woman, a black woman with many interests, and mainly, I am having an experience as a spiritual being in my humanity, and so the roles that come up for me are absolutely a mom, family member friend, a community person.

She, her are my pronouns. And I have on a suit jacket, I think it’s black and white, I have one little flower under it with little fringe around the top yoke.

I normally wear earrings, because I like them, I’m a little artsy, and they usually feel really creative to me. And I have on, dark shades.

I am black. I am bald. I am beautiful. And I am bold.

TR:

It’s been a while now that I’ve been incorporating image descriptions as part of the podcast.
I know there are some who may wonder why, it is a podcast after all.
A big part of that is identity for me. I want you to know as much about the people I’m presenting here on the podcast.
Truth is, sighted folks still get the opportunity to access this information via a nonvisual medium, because podcasts require an image to accompany the audio file.

But there’s more than identity in what we hear in an image description.

TR in Conversation with Marguerite:
Your outfit today, is there any particular reason that you wore what you wore?

Marguerite:
I decided deliberately to wear what I’m wearing. It feels comfortable. I think it looks good. And we talked about possibly video at the end. I wanted to project a certain image. I wanted to feel a certain way while doing the video. I feel very feminine. My outfit helps me to feel like that.

And the earrings are just an added touch that I really like, because I’m bald, I think that it highlights my frame.

TR:

Being intentional, goes beyond her wardrobe choices. Marguerite is thoughtful with her words. It’s one of the things that really stands out when first meeting her. It’s evident in the way she approaches each of the questions posed to her. Like…

TR in Conversation with Marguerite:

How do you identify with disability?

Marguerite 04:

Wow Thomas, that’s a loaded question, how do I identify with disabilities?
It’s been a progression of things and when where I am today is because of that progression.

So I don’t want this to sound flat or linear. I arrived here.
I’ve been toying with how do I talk about what we’ve been calling disabilities. And as I think about them my blindness and and others with a variety of different things. What I keep coming up with is this whole idea of diversity. We have diverse abilities.

my relationship is that whatever I’m dealing with, and in my case, it’s blindness, it’s given me an opportunity to explore the life that I’m living from a very different perspective, than I started out exploring life. living life, because I think of each of us as an explorer, or pioneer in our particular part of life.

TR:

That exploration can take her to foreign places, but much of it is within herself. In fact, she sees it as selfish.

Marguerite:

Everything that I experience, think about relate to is totally through my filters. And that in itself is selfish. But not in the way that I grew up thinking about the word selfish.

There’s no way to relate to life and be neutral, because I’m relating to it through my filters. And every other person is as well. And the best I can do with that is expand my filters, and expand the understanding, from having experiences with other folks.
TR:

If you prefer your ideas presented in a more concrete form, Marguerite offers a bit of a disability toolkit.

Marguerite:

in a practical way, the way I relate to disabilities is understanding that each one of us has to have an ideal of what we’d like to be able to do, where we find ourselves how we’d like to be able to manage whatever it is we’re trying to move through. And so, philosophy, some skills, some technology and some techniques, and absolutely some guidance in any way that you can find it to help you better do what it is you’re trying to do.

TR:

One of those skills that Marguerite has built over the years is advocacy. It goes back to her childhood growing up in Baltimore City, the area Marguerite describes as being designated for African Americans.

Marguerite:
There was a lot of feelings of just being done wrong, not being treated well. There was an energy of distrust, anger. But in the middle of all of that, I enjoyed the connection with family members and community members. And this sense of looking out for each other, a desire to move forward in a positive way, enjoying whatever life had to offer. And I felt that the elders in my community, were very interested in assuring that their children, and the younger people in the community were able to enjoy the things they felt they had not been able to.

— Music ends

And so the whole advocacy around that felt noble and it felt right to me.

TR:

That relationship with the community equipped Marguerite with a strong solid foundation.

Marguerite:

I grew up through the elementary and high school years, with all black teachers in the black community. And I could feel the desire for them to give us their best. And they wanted us to be sent into a world with our best doing our best.

I ended up in senior high school going to a predominantly white school on the other side of town. I deliberately chose that because I wanted to know what it felt like to have that experience. I was curious and interested,

When I did get to that senior high school, I felt like I was very well equipped, even though I began to hear stories that said we were marginalized, and that we were lacking.

TR:

Stories meant to weaken that foundation or penetrate her spirit.

Advocacy became more than a way to impact her community, it helped her realize things about herself.

Marguerite:

For me advocacy was about fighting for the underdog. And so it felt aggressive. And I thought it was very necessary and that there was a certain way that you had to go about it in order to gain the results that you were asking for.

It didn’t feel good in my spirit.

That anger and their venom and using it to ask for what you wanted. While it seemed to be effective, it was not a good space for me.

TR:

Over time, Marguerite came to realize that in the way she and
so many of us view advocacy, trained her to only consider what
was not working.

Marguerite:

it started to make sense to me that if that’s what you’re pointing out all the time, that’s all you’re setting yourself up to see. And so when things are coming, that are, what you do want, how will you recognize if all you’re focused on are the things that don’t work?

Sometimes the things that I’m wanting to experience, they reveal themselves in small ways.

The more that I’m open to understanding and realizing those smaller things, the momentum can pick up, but if I don’t recognize it, then how will I be able to enjoy it becoming larger in my space, in my experience for myself and for my community.

TR:

Yet only focusing on the things you want or those things that feel good can prove to be quite unfulfilling.

Marguerite:

I’ve got to own how I feel, and accept that as where I am. And recognize that I want to be in a space, that feels a lot better. But that causes me to have to identify, what is it that I’m asking for? And I’m telling you that that’s not been the easiest thing to do. Because even when I’m talking to people that I asked, What do you want, we even talk about what we want in the negative. I know most people can easily tell you what we don’t want, but ask them what they do want. It’s a very different conversation. And so that was not just a conversation for others. That was a conversation for myself, as well.

— Music begins, piano keys leading into a mid tempo smooth bouncy Hip Hop beat.

TR:

This really seems about knowing yourself. And there’s some real value in that.

Marguerite:

I’m getting to the space in the place where I have an opinion, I have a thought and it’s authentic.

You have a thought and an opinion and it is yours, no matter what I think about it, it is yours.

I do have the right to my opinions and my thoughts. And I want to be respected. So if I’m going to respect myself, I’ve got to respect you. Even if I don’t agree with you. I’ve got to respect that you have it. But that does not stop me from asking for what I want. That’s how you see it. And you can be very right. And I’m not telling you that you’re wrong. But I’m asking for what I want and what I need, which is a very different space.

I need to articulate and be really clear about what I’m asking for. So I have to keep asking, and keep defining and keep gaining the clarity.

I’m not recommending this as a way for anybody to go, I’m just merely trying to tell you what’s happening with me.

TR:

She really is on an exploration.

Her advocacy continues to have practical applications.
As the president of the At Large Chapter of the National Federation of the Blind in Maryland, she’s ready when necessary to respond to issues of particular concern to her community.

Marguerite:
We discovered that the state of Maryland was planning to discontinue bus transportation from Baltimore City. To the surrounding counties, for the most part, and they quietly were holding community meetings.

I was thinking about my community that I actually live in not just the blind community, but the community of Baltimore City, which is being affected. And I knew about a group that I been in connection with for many years, I would go there and talk to them.

TR:

The organization is called BDS healthy aging networks. Marguerite built a relationship with them over the years where she along with a group of members from her chapter would speak to the organization as a way to allow people to see into the community.

Marguerite:

I knew that they had gone virtual, I got in touch with the woman who runs it, Betsy Simon, and told her what I’d like to do. So she invited me to the call to share with the partners that met with her and the partners were different community agencies, city and state agencies, as well as community organizations and community leaders. And ask them to participate in the testimonies as well.

Well, I’m not exactly sure what happened. But that idea of dropping the bus service was discontinued.

TR:

There’s real power in organizing with those who share a mutual interest.

Marguerite continued attending the meetings of the network – which extends out to many different agencies and organizations. Their main mandate is advocating for older adults in the city.
They recently showed their ability to organize and get things done after the city made a failed attempt to help vaccinate older adults for Covid 19.

Marguerite:

One of the ladies in our group had been writing directly to the CVS is in the Walgreens saying, Look, we in Baltimore City want vaccinations and our officials are not helping us. Can you help us get vaccinated? So they were ignoring her letters and Walgreens somehow had these extra vaccinations, like 850 of them. They went to the Baltimore City Health Department and said, Listen, we’ve got these vaccinations. We can show up on Saturday with the pharmacists. You get the people.

This was on a Tuesday, the Health Department told them no, there’s no way we can do that. It’s not enough time.

They remembered the woman in our group who had been writing to them. They did shout it out to her. And she got in touch with Betsy Simon. And she sent a call out to everybody on her list. Can we do this? And so we said, yes.

TR:

With Some quick planning and putting people into action, they got it done.

Marguerite:

Advocacy, asking for what you want. And that’s what that woman did. She kept asking for what she wanted, in the midst of them saying, No, we can’t. And the health department did not help us, they said that they couldn’t do it. And after we did it, it showed that we could.

TR:

She continues showing up to Zoom calls. Reminding organizations to make sure their materials and information is getting to the low vision and blind community. She’s actually seeing progress in this area.

Again, the advocacy work teaches her things about herself and how that can benefit others.

Marguerite:

I think that the key for me is to take what I’ve been able to get in terms of training, philosophy and skills and so forth. And just come right back into my community and be a person in the community teaching from my example.

— Music Ends

If it helps the blind community, it’s helping the rest of the community as well. Those things are created and envisioned by the blind. And so we are contributors to what the society is and what it can become.

Music begins, a bouncy upbeat Hip Hop track.

TR:

Are you socially Reidsponsible?

— Sample from Blades of Glory:
“I don’t even know what that means.
No one knows what it means. But it’s provocative.”

TR:

It’s true, no one knows what it means, not even me, I just think it sounds cool!

Cool, like the Reid My Mind Radio Giveaway happening right now on Twitter.

We started in January on Facebook. Then moved to Instagram and during the month of March we’re focusing on the final platform, Twitter.
All you have to do to be entered into the drawing is like and retweet any of the posts I tweet out related to the Reid My Mind Radio Giveaway during the month of March.
So go on over and follow @tsreid and again, like and retweet any of the posts related to the giveaway.

Our social media manager, Annie, will gather all the names at the end of the month and we will draw a winner, which we’ll announce in April.

During the next episode in March, we’ll announce the winner of the Instagram contest.

Make sure you follow ReidMyMindRadio on Facebook and Instagram

Oh, wait, that’s being socially Reidsponsible!

Now, let’s get back to the episode!

— Music ends with a bouncing base drum echoing into silence.

TR in Conversation with Marguerite:
So during your first time on the podcast, you suddenly and quite nonchalantly dropped this thing about spending some time in India?

Can you share the story of how that came about? And what you actually did in India?

Marguerite:
I went to something in Baltimore called Blind industries and services in Maryland, which is a training facility for adults and older adults who want to gain skills and be able to manage blindness.

When I finished there, the director at the time sent me an email and in the subject, it said, only two days left.

TR:
She actually discovered and read the email the next day.

That’s when she found out she had one day left to apply to the International Institute for Social Entrepreneurs. It’s in Trivandrum, which is in the southernmost part of India.

Marguerite:

I got these thrill bumps all over me when I was reading it. It just filled me up.

You had to have it in, I think that day. I’m amazed at myself that I was able to do all that and I was able to submit it. And you know, they sent back and asked for some more information, I sent it to them.

And later on, they sent me a letter and told me that I was accepted and I was going to get a full scholarship to come there.

— Music begins, a dramatic introduction that feels like an eastern vibe that opens to a rhythmic electronic dance track.

TR:

Marguerite didn’t tell anyone about applying to the program.
That is until she received her acceptance letter.
p
Coincidentally, that good news arrived near her birthday. So when her family asked what she wanted to do, she was prepared.

Marguerite:

I want to go to an Indian restaurant.

When we sat down, we were talking and eating. And When they got to wishing me a happy birthday, I told them that I wanted to share something with them and told them that I would be going to India, and they were all shocked. They were like, Who are you going with? Who are these people? Bla bla bla.

Mind you, I’m totally blind at that point. I’m going alone , I don’t know the people, whether they met them online. And so they were like, oh, no, this, this, you’re not doing that. And they had all these what ifs, and no, they were really afraid for me. But something that I learned a while back and was able to practice is when you get an idea about something that you want to do, and, and you’re trusting that it feels good inside of you. That is not the time to share it. Because you’ve heard of dream killers. And they don’t even mean to be they were very good intentioned, but they will kill your dream before it gets off the ground.

TR:

Many of us have fallen victim to or have been a Dream Killer.

Perhaps one or two bodies.

Maybe you know some real serial killers. You know, those who just throw daggers at anyone with an idea or a plan to step out and try something new.

Chances are, they don’t mean to discourage. It’s more about a fear or lack of information on they’re part.

The point is, we need to protect our dreams, like they’re our babies.

Marguerite:

You can’t share it when it’s in it’s infancy, you got to let it mature. And so that’s what I did. And when it felt solid in me, and I’d worked out my own kinks about it and realize I had no fear and no reservations. So when they came with all that they had, it didn’t sway me because I had already worked it through, and I was solid and how I felt and so I let them go through what they needed to, as I continue to get myself prepared to go.

TR:

She received the news in July and left for India in January.

Marguerite:

I stayed there for a year came back in December. It was quite an experience.

I got to work with NGO’s, Non-Government Organizations. They’re sort of like our charitable organizations.

We worked with gay and lesbian organization.

In India, as you might imagine being a, quote unquote, third world country.
homosexuality is not something that is readily accepted.

With all of the challenges that we have here in the United States, the magnitude of it there is beyond the scope of what we can expect. It’s so dangerous. But these people are so adamant about being able to live their lives out loud, that they’re risking their lives for even just saying that they belong to an organization like that.

TR:

Wherever you go in the world, marginalized groups exist. The language and faces may appear to be different but underneath it all things look familiar.

Marguerite:
In India, lots of people wanted to bleach their skin.
— Music ends with a crescendo cymbal crash

TR in Conversation with Marguerite:
For the folks who haven’t seen, they may not necessarily know that the complexion of Indians are black.
I mean, some of them might not. Right?

Marguerite:
Yes. Yes, yes. Yes. And some of them are very dark in their complexion, and they want to be they want to be white. They want to be fair skin, it’s important to them, and so they do bleaching creams. I’ve heard of people who families would make these potions, so when the woman was pregnant, she would drink these potions that would help to ensure that her child would be fair when it was born.

TR in Conversation with Marguerite:
Oh, my goodness. Drinking it? Man, woof!

TR:

To get a sense of how much of an issue this is, Marguerite shares some description of a commercial on Indian television.

Marguerite:

It was a woman in a park, she’s walking with her boyfriend. She was darker complexion. And he was fair. And he sees a, another girl in the park. And she’s fair skinned. And so he drops the arm of his darker skin girlfriend. And he dances off with this fair skinned girlfriend. The darker girl is hurt and upset.
So she gets this cream, and she uses it for a prescribed period of time. And he sees her again, and she’s fair skinned now.
So he drops the other person, and now they’re happily ever after.

TR in Conversation with Marguerite:
This was a commercial?

Marguerite:
Yeah.
TR in Conversation with Marguerite:

On regular TV?

Marguerite 46:21

Yeah, yeah.

The idea was to go and fight against the companies that were making creams. And my thing was, well, before you can fight against the company that’s making the creams. I think we need to educate the people, let’s start with the children, because they were doing it with kids as well. And they were doing it with the boys as well as the girls. And so we went into the schools, and we were talking to them about melanin and for the schools that we went to none of them knew about melanin.

TR in Conversation with Marguerite:
Do you want to break that down a little bit? It’s well, just power of melanin.

Marguerite 47:21
Melanin is such a protective coating and that a lot of things can’t even happen without a melanin protection.

I remember, way back when I was much younger, hearing and reading about first the spaceships using the idea of melanin as a protective coating on some of their vessels.

Even here in this United States, even though we have it, there’s not a whole lot of talk about melanin and how powerful it is, and how wonderful it is.

TR:

You can tell people about Melanin, about a rich history where people who look like them weren’t colonized, robbed of their resources, but ultimately, it’s about self-love.

Marguerite:

My idea. And the group that I worked with, we felt like, it was just as important for individuals to decide that they wanted to embrace who they are, right where they are, and fall in love with that before, you can start telling a company not to sell bleaching creams.
Until people are educated and can find a way to feel good about themselves. It to me is a moot point. I don’t think you can do one without the other.

TR:

This problem isn’t at all unique to India. It was a bigger thing here in the states, several islands in the Caribbean including Jamaica and the Dominican Republic.

( FILTERED VOICE:) White supremacy is a hell of a drug!

— Music begins, an inspiring ambient track that grows as it progresses.

Marguerite:
We’re not supposed to be the same. And because one group is one way and another group is a different way, does not at all indicate that you are better than or less than the next group, although we use that as our vehicle to control and manipulate and because it has worked so well. It continues to happen that way. But we can’t just throw our hands up, we have to I think, continue to help people understand that it’s okay to embrace yourself where you are.

TR:

Embracing yourself as in the color of your skin whether you’re in India, Africa, the Caribbean or here in the states. The texture of your hair, your sexuality and yes your disability.

It’s what makes adjusting to disability so challenging for many. You may not even realize how you felt about disability and that can then impact how you feel about yourself.

Marguerite:

When I became blind, I realized that I had some very negative thoughts and feelings about blind individuals that I did not realize I had. I realized that when I saw a blind person, I felt something that I didn’t bother to identify. But what I did recognize was that I was glad it was not me. And that was with any disability, or anything that wasn’t held up as a beautiful thing, by the society norms, and that even meant, the color of my skin, the texture of my hair, all of that was a part of it. And those were feelings that were held inside in secret, depending on what company I was in. And so blindness exposed me not just to the blindness, but to the other beliefs that I was holding. And what I also discovered was that I could not really know what I was holding on to, unless I had an experience that brought it out. Because I tended to think that I was who I wanted to be not able to see who I actually was being.

As an adult, I had to find my way to that. I remember having to make a decision, a literal decision, that I wanted to live as a person with blindness. It was very different from living as a person with low vision. Total blindness was a totally different experience for me! And so I had to make a decision for me!

TR:

You know this isn’t about which level of visual acuity is more challenging, right?
it’s not a competition between disabilities, in fact, it has less to do with any external factor at all.

Not confronting the question was the source of anxiety.

Marguerite:

I just remember saying to myself, I have got to make a decision about how I want to be because
the anxiety was because I did not want to be blind. But I’m blind.

I really did know that the question for me to answer was, do you want to live as a blind person, and I realized I had not made up my mind, which also contributed to the panic attacks that I was having. I was scared to know what I really thought.

that was a very traumatic time for me. And I went through that solo, because I couldn’t talk to anybody about it. And I had tried to find a counselor at one point, but I couldn’t find counselors that knew blindness from the experience. And so I didn’t trust them enough to share that.

I had done enough spiritual practices during my life, that I use the tools that I gained. And I made a decision that I did want to live. So here I am.

TR in Conversation with Marguerite:

Here you are! (Chuckles)

Marguerite:

Here I am… Yes…. (chuckles)

— Music ends into momentary silence

— Music begins, a lively up beat R & B drum opening to a happy groove.

TR in Conversation with Marguerite:

That’s right, that’s right!

Marguerite:

Yeh! (Reflectively says) Here I am!

TR in Conversation with Marguerite:
Marguerite, because of all the things you do, to advocate, coming on a podcast to share and help others, doing your thing with disability. You Ms. Marguerite are an official member of the Reid My Mind Radio family.

You was already official but I don’t know, should I make more levels of officiality?
The two share in a silly laugh.

TR:

I truly respect and appreciate Marguerite for her honesty and sharing her wisdom and insight that I just know, will be of real value to many.

In fact, check out how generous she wanted to be when I asked her to share contact information.

Marguerite:

So you can call me you can call my mobile number which is 443-271-1668

TR in Conversation with Marguerite:
Marguerite! This is on the internet. Are you sure you want to put your number out there? Laughing…

Marguerite:
Oh no, no, I guess I don’t, I guess I don’t…

They can go to the NFB page NFBMD.org.

TR:
Orr go ahead and email her and tell her how much you appreciate her valuable perspective!
Marguerite:

MWoods719 at Gmail.

TR:

I don’t think there’s anyone I’d rather have kicked off this season with more than Ms. Marguerite Woods.

Did you listen between the words?

(Filtered Voice:) Dude, I really don’t think that’s a term.

She shared valuable ideas. Some were very practical like;
suggesting we create our toolkit to manage aspects of our lives.

And others were more philosophical like;
– exploring life through blindness and other identities…
– Choosing to think about and speak in terms of what we want.

That to me is so Powerful and honestly feels important for me where I am in my life right now.
You know, let me put that into practice right now.
I want you to share this episode with at least one other person. And let them know they can follow or subscribe to the podcast, just as you did, to make sure they don’t miss any episodes.
I want you to tell them, they can do that wherever they get podcasts.
Let them know they can find transcripts and more over at ReidMyMind.com.
And of course, make sure they know , that’s R to the E I D…
— (D! And that’s me in the place to be!, Slick Rick)

Marguerite:

Like his last name!

TR in conversation with Marguerite:
Ouu! I like that!
(The two laugh)

Audio: Reid My Mind Outro

Peace!

Hide the transcript

Let Me Hear You Say Black Lives Matter

Wednesday, June 17th, 2020

In gold lettering on top of a red, black & green background appears "Reid My Mind Radio."

the title says it all! It’s the place we have to start if we are really going to make change in this country & world. I’m talking about individuals as well as society. And included among that group are the blindness consumer advocacy organizations; ACB and NFB. While there are differences in the founding philosophies of each, at the core both of these groups strive for Blind people to have the same rights as our sighted peers. Do they really mean all Blind people? I want to believe they do, but I guess I’m going to need to hear them say it; Black Lives Matter!

I’m trying to remain optimistic but right now, it really takes a lot of effort to be hopeful. I was reminded of a story from the Reid My Mind Radio archive that in a way illustrates some of what needs to happen in order to really move forward.

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Transcript

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Audio: Music… “Mission Start”

TR:

Welcome to or back to the podcast! My name is Thomas Reid and I’m the host and producer of Reid My Mind Radio – the podcast bringing you compelling people impacted by all degrees of blindness and disability. Sometimes I share experiences of my own as a man adjusting to becoming Blind as an adult.

today, well, it’s right there in the title. That is, the place we have to start if we are really going to make change. I’m talking about individuals, society and yes blindness & disability advocacy organizations.

If you’re part of the Reid My Mind Radio family, you know I’m pretty optimistic. It takes a lot of effort right now, but I’m trying y’all, trying to remain hopeful.
Audio: News commentator announcing global protests in London, Australia, Japan, Korea & Germany. All mixed with the chants of Black Lives matter!

TR:
That solidarity & declaration that I’m hearing from around the world, feels good, but I
need to hear it from voices much closer to home.

Audio: Montage of voices saying Black Lives matter. Each panned along the stereo spectrum.

TR:
Let’s go!

Audio: The final voice says;
“Yo, Black Lives matter!” The voice of Siri from the IPhone says” Send”

Audio: Reid My Mind Radio Theme Music

Audio: Sounds of dinner table/kitchen conversation from the Reid family household.

TR:

Like a lot of families meals are a time to come together. Not only to prepare and enjoy the food but also to check in with one another.
In the Reid household, we established some rules years ago around what was acceptable during meals. Like we don’t answer phone calls, we don’t look at our devices but rather we stay in the moment while we are eating together.

Audio: News commentator on the killing of George Floyd and protests.

TR:

Unfortunately, no matter how much I would like the rule to be in effect, just while we’re eating, there are times we can’t really afford to keep them. The most recent murders of Ahmaud Aubrey and George Floyd, the protests and of course, the self-described nationalist in the White House have caused us to rescind the rules. Both of my kids need to discuss all of this.

Riana who will be 23 soon is extremely passionate when it comes to issues around social justice. She needs to be active and she’s figuring out the best ways for her to do that. For example, donating to protester bail funds, continuing to educate herself through reading and research and sharing resources with her network.

Raven is younger, more internal and is really figuring out how to articulate her thoughts. Her friend groups are very diverse and she recognizes the differences and really appreciates them. Recently, she had to deal with the outing of a classmate, one in particular which has garnered a lot of national attention. This young 17 year old made very public awful racist comments. Listen to the statement from a young girl from Generation Z. Some thought this would be the post racial generation free from racism. Notice how deliberately she shares her revelation.

If you are triggered by little racists using the N word, skip ahead about 34 seconds.

17 Year Old Racist:

So, I’ve been seeing this video going around about why Brown people should be able to say the N word. So I’m here to tell you why white people should be able to say the N word. Because we made it up and none of you guys would be able to say that word if my ancestors didn’t decide to call you Black people Niggers all the way back in those old days. And so what do you guys do to try and show your appreciation, for coming up with your best word to call your best friend Nigga as you pass each other in the hall? You do what all good Black people do, you stole it. So all I’m doing here is trying to take back what’s already ours.

Audio: Ambient music

TR:

If it was shocking to you because you never heard this sort of language, it’s time to acknowledge your privilege. It’s not a time to pat yourself on the back because you raised your children to be color blind. It’s not a time to feel the need to share how you cried when Dr. King was assassinated or even you know someone who is Black. That doesn’t work towards a solution which makes you part of the problem.

Not even the four walls of our comfortable home can keep my family protected from the reality of violence against Black men, women and children. Like trying to explain to my kids how Travon Martin’s murderer was not going to face prison. Michael Brown’s killer would just walk free.

Riana has goals of moving out on her own. Meanwhile Breonna Taylor a 26 year old Emergency Medical Technician gets shot 8 times in her own home by police after wrongfully busting in her house in search of a suspect already in custody.

Audio: Two young children saying “Black Lives Matter”

Raven right now is learning to drive and I have to think of Sandra Bland and the others who have ultimately have fatal encounters with police because their driving while Black.

A word of caution:
What you’re about to hear is an example of the trauma and fear associated with police brutality. If the threat of violence is triggering, please skip ahead about 2 minutes.

Audio: Woman passionately trying to help a young Black man while he is being surrounded by police. We find out her boyfriend was also killed by police. The audio ends with her sobbing for them to simply put their guns away while begging the young man not to move.

TR:

Y’all know this isn’t about my privileged dinner time, right?

for Black people, it’s not only the threat of violence and interactions with police, but not dealing with the feelings around these murders is like allowing a virus to infect our bodies. We can wash our hands regularly, sanitize every package that comes into our homes, eat organic food but how do we protect ourselves from feeling as though we don’t matter.

Audio: A woman saying Black Lives Matter.

TR:

Being totally Blind doesn’t stop the images of these horrible killings from being engrained in my mind. I don’t need to see video of Michael Brown’s body left on the street after being murdered, I don’t need to see Ahmaud Aubrey being shot down or this deranged so called officer kneeling on George Floyd’s neck to understand what that looks like. In fact, these images involuntarily flash in my mind without ever having seen them.

Recently I tweeted that I was waiting to hear a show of solidarity from the blindness organizations. I soon read one from NFB and then specifically questioned if ACB was going to show their support. They did. They also directed a tweet to me that they were waiting on a review before posting.

My response was that I was happy to see them done but the real statement will be seen in their actions like representation on their boards and leadership position and outreach.

Both statements were weak. In general, any solidarity statement at this point in time that does not include the simple phrase acknowledging that Black Lives Matter, it doesn’t have much weight in my opinion.

Audio: fire engine racing towards a burning building.

If a house was burning on a block of 10, should the fire department show equal attention to each house. Wouldn’t it be fair to first put the one fire out? Save the family in the house. Apparently some would prefer the fire department drive right past the burning house in order to make it clear that all the houses on the block are important. Meanwhile, do you all smell that smoke, the other homes on the block are beginning to burn.

Audio: Young man says Black Lives Matter

TR:

If a solidarity statement had to be generated by the Black or multi-cultural segment of the organization, it’s starting from the wrong place. Is that because some blind people like to think their blindness makes them immune to racism? Funny thing is most Blind people have had sight at some point. In fact, most Blind people aren’t even totally Blind. You’re not being honest with yourselves if you think racism doesn’t affect you. As if you don’t benefit from white supremacy.

Audio: Do Blind People See Race…

From Tommy Edison YouTube Channel:
“Martin Luther King always talked about don’t judge a man by he color of his skin but by the content of his character. And I have to be honest with you I think people like myself and other Blind people are the best at that because we don’t see the color of their skin.”

From YouTube, “Can Blind People See Race” Freedom is mine official.
“Can Blind people see race? Given that we identify a person’s race primarily by their appearance, what elements do the visually impaired use to perceive race. Several studies have been done into this area and the conclusion is definitely yes, visually impaired people can perceive race.”

TR:

History has shown when it comes to so called racial issues, America is all about weak statements.

America doesn’t want to examine their role. You know what, let me say that again to not sugar coat it …

Audio: Music…

TR:
White America doesn’t want to do the work to fix racial injustice.

I see the same right now from blindness organizations. Asking Black people to lead this effort isn’t the fix. Rather, once again for Black people, our dinner time with our families are being interrupted.

Why not start with a real self-evaluation. Have a conversation among the organization’s leadership and board about race. Whether personal but more specifically as it relates to the organization. Look back, how many members are even in the organization? How often does the leadership interact with them and what have those interactions been about? How often do we hear from Black people at our meetings and conferences. have we ever truly done any outreach or did we wait for those Black people in the organization to recruit others?

This is a problem that existed in this country for 400 years and won’t be fixed with one statement. it won’t be fixed in our lifetimes. It requires a lot of work that starts with honest self-examination.

To be clear, I think it’s time for these organizations to truly look at the intersections between disability and other identities. The majority of police brutality cases impact Black people with disabilities. Women with disabilities experience an overwhelming number of sexual attacks, LGBTQ and Trans communities have a significant population of people with disabilities. And Black Trans gender men & women need our support. Honestly, if you have a problem with that then you need to ask yourself if you’re really about justice.

All the organizations that are either of or for the blind want the same thing; independence, security opportunity for all Blind people. Who does this really include? For some, blindness skills training isn’t going to be enough to have an opportunity to reach that goal.

For me personally to believe these organizations and others are really about independence for all, I’m going to have to see them lead the way. That leadership needs to come from those in power right now.

I’m going to need to hear them simply say it; “Black Lives Matter”

Audio Montage of individuals saying “Black Lives Matter!” Concludes with all simultaneously saying it.

TR:

In producing this podcast, I’m always searching for the right mix of education, resource sharing and entertainment. As I usually believe our stories have more to offer outside of those adjusting to blindness, I recalled this travel story from the Reid My Mind Radio archive.

Audio from “Traveling Zen”

Audio: Biggie Story to tell

TR:
Just this past Thursday I was traveling to Mobile Alabama –
Yes, Mobile Alabama…
Why?
Well that’s not really for this discussion.

In fact, let’s go revisit the day…

Audio: Car pulling to curb

TR:

Exiting the chauffeur driven Suburban I’m met by one of the Allentown Airport staff responsible for
Assisting travelers through the airport. I refer to them as the Meet and greet staff.
Normally, I have to get to the check in counter in order to request this, but luck
Just had it a very nice gentlemen by the name of Tom was waiting on the curb for someone who needed assistance.

Audio: SoundOfAirport – Check-in/Security

Smoothly clearing the check in process and
Security, Tom informs me that my flight is delayed just as we reach the gate.
It was close to 12 PM. And my flight was originally scheduled to leave at 1 O’clock and
Arrive in Atlanta at 3 PM for a connecting flight To Mobile at 5:15 PM.

Ok, no worries a departure at 2 is fine, I’ll get to Atlanta by 4. No problem, even though Atlanta’s airport
Is huge, I’d still have time to make my flight. And I’d rather wait in Allentown airport which is way smaller and comfortable.

At 2 O’clock I’m told we’re now Departing at 2:30.
Now this is a potential problem! With a connecting flight at 5:15…
There’s a good chance I’ll miss my flight.

I go over to the ticket agent to see what I can do about this potential dilemma.
Rosita, the ticket agent schedules me for the later flight Which leaves Atlanta at 9:15,
In the event I missed the 5:15 flight.

Requiring the assistance of a meet and greet means I’m one of the last people off the flight. This Adds to the probability that I
May miss my connection. On the flip side, I’m one of the first on the plane!

I’m pretty relaxed already, but now I decide it’s time for me to go into a Zen state of mind. One thing about adjusting to blindness, it means
Becoming accustomed to waiting.

The ticket agent announces over the PA that it’s time to board.

I grab my coat, bag and cane and proceed to the counter. I board with one of the ticket agents.
I ask her if she could somehow call ahead and make sure a meet and greet is there
When we arrive so I can exit the plane quickly and make my connection. She takes my boarding pass and says she would do that.

Sitting in the window seat, I strike up a conversation with my seatmate when he arrives on board Delta Flight 5387. I tell him about
My connection issue. He seems to think I have a strong chance of making the flight.
We chat a little more, I put my headphones on, and open my Audible app to read my book. I’m good, I’m pretty relaxed and calm… I accept what I can’t control!

At around a little after 4, the pilot announces that we’re about to descend and
We’re scheduled to arrive on time 4:40. My seatmate, nudges me,
I think you’re gonna make it, he says. Knowing what I know about the wait for a meet and greet
I tell him, “Meh, we’ll see! I’ll still have to wait for assistance…”

At 4:45 we’re on the ground taxiing to the gateway
I take out my phone and check the Delta app to determine the status of my next flight. There’s significant bad weather so I’m hoping
My next flight would be slightly delayed. Nothing…
The pilot announces we’re going to terminal C gate 33. By 5 PM we’re still on the tar waiting to be directed into our new gate, D 33.
My seatmate is excitedly telling me I can make that flight.
“Just run out of here you can make it he says. I’m thinking did he not hear me when I said I need to wait for assistance.

I check the app again, it now says my next flight is boarding and scheduled to leave on time.
At gate D29. I tell my seatmate… Aww you can do it! He says as
he stands up to retrieve his bags from the overhead. I ask him to pass me my back pack and folded up cane.
Is this yours too, he asks
A folded up white cane, I ask… Yes! Now, He sounds confused… I think it sinks in…

My man, I say… do you think you can help me Get to d29… it has to be right near this gate.
I didn’t think it would be a bother, he wasn’t connecting to another flight. Yeah! He exclaims
I say to him… “get in front of me and let
Me hold onto your right elbow.” He complies…
I grab my bag and we take off.

Audio: Victory music

My seatmate now ripping through the narrow aisle. And my shoulders knocking into chairs and walls
He apologizes… Bro, I can take a hit let’s do this… turn it up. Yeah, he exclaims again now even more determined to accomplish his goal…
We zoom past the flight attendants who say something about An assistant… I don’t bother responding, no time for that
My seatmate and I are now a team and we’re on a mission.
“He’s my blocker “I think to myself and we’re gonna score this touch down…

We can do this, I hear him say as we rip past the ticket agent at gate 33… As we’re quickly and purposefully walking, in search of gate D29-
I hear my name. … Paging Mr. Reid, Thomas Reid… That’s me I tell him.
“He’s here, he’s here” yells my Blocker… He’s here, he’s here…says the ticket agent at D29 into a telephone…

We get to the podium at gate 29… Touchdown!!!

As if rehearsed, We do a two hand high five, chest bump, all While the ticket agent and bystanders applaud….

Ok, that would have been the movie version celebration.

Instead, the ticket agent asked for my boarding pass… I retrieve my boarding pass
Thank my team mate and I’m hurried onto my next flight.

I didn’t get his name or even had the chance to Shake his hand, but man I appreciated him.

Sitting on my final flight to Alabama considering how through that entire process
I felt quite comfortable and calm with just going with the flow. I thought about the first part of that very well known
Serenity prayer: God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.

This experience reinforces what I believe is the power of team work. I thought about how this pertains to lessons
for those adjusting to blindness or for that matter adjusting to any sort of change.

I’ve always been one to think of that very broad definition of independent as doing something by myself.

Could I have done this by myself… Some may quickly say no, others may argue yes with the right circumstance as in accessible information…
like a good indoor navigation app. But honestly,…,…., it was way more fun with a team!!

Audio Bumper bringing us back to the present.
Audio: Music starts…

TR:

My seat mate and ultimately my team mate for a few minutes at least, was as far as I can tell a white guy. We worked together. I was in a position where I needed him to be out in front if I wanted to make my flight. It wasn’t my only option, but missing that flight would have meant a really long and possibly very uncomfortable delay. Not for him, but rather, just me.

Reid My Mind Radio will be back on August 4th. I have some really good episodes planned for the second half of the year but right now, I need to do a little recharging. If you’re new to the podcast, feel free to check out the archive. We have over 100 episodes and they don’t expire.

You can get that just by subscribing to Reid My Mind Radio wherever you get your podcasts. None of my stuff is behind a pay wall because I really do want it to be an accessible resource for those adjusting to blindness.
Transcripts, resources and more are over at ReidMyMind.com. And yes, that’s R to the E I D (Audio: “D, and that’s me in the place to be!” Slick Rick)

Like my last name

Audio: Reid My Mind Radio Outro

Peace! And I really mean that!
Audio: Headphones dropping on table.

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Disability Representation – Same Goal Different Strategy

Wednesday, April 24th, 2019

Titled Disability Representation, this collage includes scenes from ; Forrest Gump, Rain Man, Ray, Wait Until Dark and The Rear Window; All movies with a disabled character played by a non disabled actor.
If you think about portrayals of people with disabilities on the screen, movies and television, chances are extremely high that the actor was not disabled. At least two recent projects have sparked this conversation including “The Upside” and “In the Dark”.

The latter series on the CW Network caused the National Federation of the Blind to launch their #LetUsPlayUs Campaign.

In this episode we learn why representation matters from:

Plus, “Blind Face” is that really a thing? I had to speak on it.

Consider this the beginning of RMM Radio’s exploration of Disability Representation in Media.

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Transcript

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TR:

What’s up RMMRadio Family?
It’s me, T.Reid, host and producer of this here podcast.
This is your place to hear stories and profiles of compelling people impacted by all degrees of vision loss and disability. And yes, occasionally I throw some of my own experiences in there pairing those words and music and sound design.

Today, I want to jump right into it. We have a lot to cover.
So…

Audio: Reid My Mind Radio Theme Music

Audio:
* Rain Man – Dustin Hoffman

TR:

Each of these clips, are from movies featuring a main protagonist with a disability.

Audio:
* Forrest Gump – Tom Hanks

Yet, each starring actor does not have a disability.

Audio:
* Ray – Jamie Foxx

TR:

It’s not a new issue

* Audio: The Rear Window

A scene from The Rear Window with Jimmy Stewart, in 1954

* Audio: Wait Until Dark

And Audrey Hepburn portraying a Blind woman in 1967’s Wait Until Dark.

Audio: “The Upside” trailer

TR:

Most recently, Kevin Hart and Brian Cranston star in The Upside.

Cranston, known most for his lead role in “Breaking Bad plays a wealthy quadriplegic who hires a former criminal, played by Hart, to be his caregiver.

With fewer than 2 percent of characters in movies being a person with a disability, well it’s understandable that the disability community took to social media to express their disapproval.

Cranston’s reply?

According to a BBC report he said;
“If I, as a straight, older person, and I’m wealthy, I’m very fortunate, does that mean I can’t play a person who is not wealthy? Does that
mean I can’t play a homosexual?”

In fairness, he does agree that there should be “more opportunities” for actors with disabilities.

I guess just not those that he’s slated to play

Audio: “In the Dark” trailer

TR:

In the Dark is the new television show on the CW Network that stars Perry Mattfeld as a blind woman who is the only witness to her friend’s murder.

Perry herself is not Blind.

The NFB, National Federation of the Blind, believes this is not acceptable. The organization which says they have 50 thousand members in all 50 states including DC and Puerto Rico, began a campaign called #LetUsPlayUs.

I reached out to NFB’s Director of Public Relations, Chris Danielsen, to learn a bit more on what sparked the protest.

CD:

We’ve been concerned for some time that there are not opportunities for and roles for Blind actors. I know we passed a resolution at our National Convention in 2018 on this topic and I think we had passed one even before that.

Fast forward a little bit to early 2019 and the CW Network began heavily promoting its new series “In the Dark”. CW was asked why a Blind actress was not cast in this role and they really made excuses for not casting a Blind actor in the lead role of Murphy in their show.

TR:

According to TheWarp.com:
Nicky Weinstock, an executive producer for the show said:
“We went about searching for a blind actor immediately, and looked allover”

That included 29 different organizations for the blind where he said they were hoping to find the lead actor.

NFB’s Chris Danielsen had this to say about that.

CD:

We were not one of those organizations by the way.
And then they kind of said but we do have a blind writer, and a Blind Consultant and we do have a another Blind actress in a supporting role

They made those sound like compensations for not having cast a Blind person in the lead role.

TR:

You have to wonder, what do they really know about what it really means to be Blind.
Especially when you hear that same CW Executive Nicky Weinstock describe Mattfield as accurately portraying a blind person based on the committment she demonstrated after acquiring a cane and using it around her apartment for weeks.

CD:

This could be really tone deaf publicity on their part, but it’s pretty typical of the behavior that we see from the entertainment industry. There have been literally dozens of films and television shows about Blind people and in none of them that we’ve been able to find, was a Blind person actually cast in a lead or recurring role.
CD:

We felt that this is the right time to really respond to what the CW has said and done but also to this type of behavior that is just recurrent in the entertainment industry. And for that reason we launched our Let Us Play Us Campaign.

[TR in conversation with CD:]

Tell me what is exactly the objective of #LetUsPlayUs?

CD:

The immediate objective is to have the CW reconsider its decision to cast a sighted person in the lead role.

Given that they have really sought in a very discouraging way to justify their decision not to cast a Blind actor in the role, we feel like the only way they can really make it right at this point is to simply re-cast and re-think the show.

TR:

The showed debuted on Thursday April 4, 2019.

It doesn’t look as though this demand is going to be met.

There is time however, to expand the conversation about representation.

CD:

We have found over the years that a lot of the portrayals of Blind people are very inaccurate and often even offensive.

We want to engage in a dialog with the entertainment industry and talk about why it is that Blind actors are not cast. Why there are such low expectations for Blind actors and performers. And how we can work together; the entertainment industry and the National Federation of the Blind to actually identify Blind actors, to develop their talent and to actually see them included in the future projects so that those projects have an authentic perspective on blindness.

TR:

Disability representation in media can be categorized in four groups of characters according to a white paper recently published by the Ford Foundation.

Disability Activist and Senior Fellow at the Ford Foundation, Judith E. Heumannn authored the paper titled; Road Map
for Inclusion Changing the Face of Disability in Media.

The four stereotypes:
* THE SUPER CRIP – think Daredevil
* THE VILLAIN -The James Bond Franchise is known for many.
* THE VICTIM
* The Innocent Fool

I’ll link to the report on this episode’s post over at ReidMyMind.com.

The show’s trailer, gives the initial impression that “In the Dark” may not be too interested in changing the paradigm.

Murphy, the main character is shown trying to hide under a glass table.

Audio: The above scene from the “In the Dark” trailer
In case you’re new here, Blind people know glass is transparent and they know how it feels.

And probably even more concerning, the trailer includes what appears to be the ol’ feel the face!
You know that all too popular scene in just about any movie or television show featuring someone who’s blind where the brilliant idea comes to the sighted person to have the Blind person feel their face so they could know what you look like.

Audio: “Hello”, Lionel Richie Music Video
— From the video, Music plays and a telephone rings…”Hello” says the Blind woman in the video.

TR:

Hey how are you doing? This is T.Reid from Reid My Mind Radio. May I speak to the creator of this music video please?

— From video: Lionel Richie sings “Hello”

TR:

Lionel?
Was this video your idea?

— From video: Lionel Richie sings “Hello Is it me you’re looking for?

TR:
Well yes, if you’re the creator of the video.

— From video: Lionel Richie sings “Cause I wonder where you are”

TR:

My brother, I’m in the future.

— From video: Lionel Richie sings “And I wonder what you do”

TR:
Well, I host a podcast, it’s sort of…

— From video: Lionel Richie sings “Are you somewhere feeling lonely”

TR:

Well now that you ask?

— From video: Lionel Richie sings “Is someone loving you”

TR

Hey bruh, that’s personal.

— From video: Lionel Richie sings as echo and fades out “Tell me…”
— Music continues…

TR:

Look man, on behalf of Blind people around the world who have been asked to feel somebodies face.
You know, that thing in your Hello video.

It’s 2019 I think we can end this stereotype.

It’s 2019 & the results are in, we’re over it!

— From video: Door shuts!

Blind woman says: ” I’ve wanted you to see it so many times, but I finally think it’s done.”

TR:

At least I guess we can be happy that in the actual scene from In the Dark, Murphy was resisting and even protested saying that’s something Blind people don’t do, but her friend insisted.

We later see it was needed to advance the plot. This was how she identified her friends body.

I personally would have suggested something like Microsoft Seeing AI which allows you to take a picture of someone and it will recognize them in future pics. But maybe that doesn’t work for the rest of the show.

But that’s just me. Everyone is different.

Not all Blind people use technology.

Like any other marginalized group, we don’t all act one way, we don’t think the same and we all have our own voices.

In fact, I tried to get some individuals with opposing opinions to share them on this episode but I didn’t get a response.

Not everyone believes this issue should garner as much attention from the NFB.

Some believe, the hiring of a Blind writer, consultant and additional cast member are steps in the right direction.
Therefore, demanding the network pull the show well that’s not a way to open a dialog.

Most of the discussion I thought was valuable, focused on strategy.
That’s always going to be a source of contention.

TR:

On April 2, 2019, the NFB protested outside of the CBS offices, owners of the CW Network, in New York City. .

CD:

We had well over 100 Blind people from five different states, at least, participating in the protest. We protested for two hours

We told the CW Executives who bothered to look out the window or listen, we don’t know for sure that any did. We told them that Blind face is just as unacceptable as Black face for example.

TR:

In addition to the protesting outside of CBS, NFB and others have taken to social media including Facebook and Twitter.

[TR in conversation with CD:]

So Chris let’s talk about something because I was going to go one way but now I have to switch it up. The social media campaign, and I’m gathering that the future consists of continuing with the hashtag… (#LetUsPlayUs). One of the things that tends to happen around this topic is that comparison to people of color. I’ve seen things where people are saying “Oh you don’t want white people playing other nationalities, ethnicities etc. Even though that happens and it still happens today.

CD:

Sure, sure.

[TR in conversation with CD:]

I think that’s almost like, defeating the purpose, but then also the one you just mentioned which was the comparison of Blind face to Black face. What is the NFB’s position on that because in social media I notice that the official NFB account kind of stayed away from that. And I was wondering if that was on purpose or if that was just a coincidence.

CD:

Well to be fair that comparison came up in the protest. It wasn’t intended so much as a comparison as kind of a play on words I think when it was originated.

We are a diverse organization. We have a makeup of membership that is racially diverse, ethnically diverse different sexual orientations and all of that. We respect all of that, all of that diversity. That said, we’re not focused so much on trying to make that comparison. That said we do see some commonality in the idea that we don’t, we don’t allow people anymore to sort of appropriate and sort of pose as others. It does still happen, but there are areas where it doesn’t happen anymore and doesn’t happen as much as it used to . But so far disability isn’t one of those areas.

There wouldn’t even be a thought at this point of having, really seriously, of having a man play a woman. Back in Shakespeare’s time it was common for woman to be played by men, typically young boys. You did have situations where it was considered appropriate to put on black makeup. So why are those things largely gone and why is it still appropriate and considered the norm in fact to have non-disabled people play the role of people with disabilities. It’s the norm and it’s rewarded . Think about how often we’ve seen Oscars awarded to people for doing this; Dustin Hoffman, Al Pacino Daniel Day Lewis.

Audio: “And the winner is…” followed by each of the above winning Oscars.

TR:

Chris is right about that last part. Let’s take a look at some others who won in roles of someone with a disability.

Jack Nicholson, John Voight, Tom hanks, Ann Bancroft and Patty Duke both won for the Miracle Worker playing Annie Sullivan and Hellen Keller respectively.

And oh yes, my bad…
Audio: Jamie Foxx winning for Ray.

Does anything stand out to you about that list?
I’ll give you a second.

Audio: Jeopardy music

All but 1 are white.

Which brings me back to this idea of Blind Face.

That’s a made up term, it doesn’t have the history that is tied to how Black face was systematically used to dehumanize an entire race of people.

And it’s not gone.
.
Audio: Multiple news segments regarding Virginia Governor Ralph Northam & Black Face.

TR:
Even outside of medical schools in the 80’s.

Audio for below Two college girls suspended for Black Face
College campus frat parties still have it… sometimes they use different names but it’s the same. Parties where they dress like rappers. There was even a so called Gangster Halloween costume. And don’t get me started on other examples of appropriation.

Audio: About Redskins

Does it mean that those who used the term Blind face have the same intent?
I don’t believe that.

But what can we expect when this history isn’t taught, when people prefer to be color blind and refuse to have these conversations. Especially in this world of social media and the re-tweet.

There are valid and strong feelings in all marginalized groups. Something we all need to take into consideration.

CD:

We’re not Oscar bait. We’re people with real lives. We don’t exist so that actors can play us and feel good about themselves because they’ve supposedly experienced what we experience. Which of course they haven’t. That’s what’s really offensive.

I’m interested in your perspective too because you know we don’t want to make an offensive comparison. We want to be careful about that and at the same time the point that we’re trying to make is that there are situations where it’s no longer appropriate and the industry seems to understand that it’s inappropriate to have certain kinds of portrayals. Why is blindness and disability the exception to that.

[TR in conversation with CD:]

That’s where the difference of opinion definitely comes into play and I think the perspectives where you say that the industry understands that; I don’t think most people of color would say that the industry reflects their real lives.

CD:

Sure.

TR:

Remember those 4 stereotypes of disability in media?
* THE SUPER CRIP
* THE VILLAIN
* THE VICTIM
* The Innocent Fool

Black stereotypes have existed and continue to make up what we see in film today. Slightly modified versions of, well take your pick:
Sambo or the lazy happy go lucky Negro
Mandingo – the over sexed, big Black man
Mammy, subservient Black woman who’s nurturing ways usually focus on the white children
Jessabelle – over sexualized Black woman

So many films and television shows to this very day still have some version of these stereotypes.

In fact, as the years went by new stereotypes came into existence. The Welfare Queen, the criminal or thug and of course some of your favorite movies might star the magical Negro. who’s there to mysteriously make the white persons dreams come true.

Stereotypes also exist for Latinex, Asians and just think about the context of when you’d see a Native American on the screen.

So for those of us who are aware of this history in culture, hearing what can sound like an implication it no longer exists, well that can feel like all of that struggle and history is being erased.

With that said, let me make it as clear as I can, disability experiences deserve to be on the screen as much as any other human experience.

[TR in conversation with CD:]

You don’t have to make these comparisons.

CD:
Mm , hmm!

[TR in conversation with CD:]

There are comparisons that can be made. And the thing that I like to say is we can compare apples and oranges, they are both fruit…

CD:

Yeh, yeh, yeh. (In agreement)

[TR in conversation with CD:]
… but they are so different.

CD:

Yeh, certainly the intent is different. I would say that some portrayals of blindness have been specifically meant to put Blind people down, but some haven’t. There just profoundly mis-informed. So I totally agree with you, then in that sense it’s not an appropriate comparison. I think that’s why we have stayed away from the comparison on social media. We definitely don’t want to minimize the real pain that, that has caused, but sometimes the paper trail of disability does cause pain as well. Not the same kind, but the misconceptions out there are harmful to people with disabilities and they do trickle through.

TR:

Now we’re getting there!

Probably the strongest argument for increasing representation and the one that lots of people with disabilities feel on a regular basis.

Kristen Lopez:

There is so much mis-information out there about disability. Films are a gateway for us to learn about people and cultures different from ourselves.

TR:

This is Film Critic Kristen Lopez. She also writes reviews on new and classic films.
She has a much cooler way of saying it though.

Kristen Lopez:

Freelance Pop Culture Essayist, who writes a lot about representation in cinema, specifically gender and disability.

I’ve had so many embarrassing encounters with people. Unbreakable being a great example.

People who’ve seen the movie and they feel like that’s some sort of gateway into relating to me and it’s completely wrong.

TR:

Unbreakable, is the film starring Bruce Willis and Samuel Jackson whose character is a wheel chair user and has Brittle Bone Disorder, as does Kristen.

Kristen Lopez:

I refused to watch it because I didn’t think it was actually going to be a movie that represented me. And for a year solid when people heard I had Brittle Bone Disorder they were like oh have you seen Unbreakable? it’s great, you’d love it. And I was like, why would I love it. And they’re like because it’s about you.

I’m not a super hero or super villain

I was very indignant; no that’s not me. I actually never saw Unbreakable until two years ago and I thought it was fine. It didn’t offend me.

TR:

Dr. Adam Pottle, is an author and screenwriter in Saskatoon, Canada with
4 published books and two produced plays.

He himself is deaf.

He’s experienced firsthand how misperceptions and stereotypes find their way into common belief. Like this idea that Deaf people carry on conversations by reading lips.

As he explained to me via email.

(Note the change in sound when I am reading Adam’s words.)

Adam Pottle:

It’s not enough. Reading lips is fucking exhausting, and we don’t always get things right. We need visual confirmation, whether through Sign language or captioning.

I was bullied in school about my ability to read lips. Older kids would point to their lips and mouth out, “Hey deaf boy. Can you read this? Fuck you.”

TR:

The argument for representation is less about personal offense and more about the impact images have on society.

Kristen Lopez:

Movies have sold disability as this grand mystery. We are this enigma that unless the audience knows how to handle us their not going to be able to interact with us and I think that that’s very wrong.

It’s just important to get rid of the little things. We’re talking now about a time where politically people are talking about who’s entitled to what and who needs what. Do we need healthcare? Do we need the ADA at all?

I think a lot of that has to do with movies which fuel the dialectic, fuel the culture and presented disabled people which is entitled, spoiled and massively wealthy and doomed to die relatively young. The movies have sold us as a burden on society.

TR:

Interestingly enough, I read a review of The Kevin Hart and Brian Cranston film, The Upside titled;
“The Upside” is a good representation of life with disabilities.

I don’t know if this writer is disabled. It wasn’t mentioned.
But disability isn’t one size fits all. We can’t forget the intersections;
Gender, sexuality, …

And as Film Critic Kristen Lopez explains, it’s complicated.

Kristen Lopez:

As an adult, I’ve slowly grown to be like I do identify as white, but that’s only because my skin pigment is white. So I know most people, I tell them my last name is Lopez and they look at me and they’re like what the hell are you talking about. I don’t identify as Hispanic, but I do identify as Latino just because my father is.

Now as an adult as I’ve seen how white disabled narratives are it does bother me on that level as well because you know there are no movies with disabled people of color. There’s barely any movies about disabled women but disabled people of color is completely absent in these movies. That doesn’t even factor into people’s discussion of disability because they’ve never seen it.

TR:

Representation is more than who is on screen. It’s about who is producing directing, writing and in general influencing the overall message and feel of
the project.

Adam wants to add his voice to the conversation. Currently trying to make his way into the business. He’s an aspiring screenwriter with three horror scripts under his belt. He has a PhD in English literature, for which he studied how Deafness and disability are represented in Canadian literature.

Adam Pottle:

Because my scripts all feature Deaf and disabled characters in lead and supporting roles, it’s a bit difficult to get them produced, even if they’re well-received. I have one script, a horror story, that’s been selected by six different festivals that I hope to have made one day.

TR:

When it comes to inclusion of any form, the first reasons also known as excuses is often we can’t find “them”.

The CW, couldn’t find a Blind lead. Silicon Valley can’t find people of color in STEM, Corporations can’t find women executives.

Well, I have less than 600 Twitter followers and A Blind Black Man in the Poconos, Pennsylvania found a deaf white writer in Saskatoon, Canada.

(Laughing…)

So in the words of Mr. Biz Markie:
Audio: “C’mon, don’t give me that” from “Just A Friend”, BizMarkie

Adam Pottle:

The problem is systemic. The film industry is ableist to its core. It prefer stereotypical narratives. It doesn’t understand that Deaf and disabled people have rich lives with their own stories to tell. It prefers to look at us with pity and scorn. Recent examples include Me Before You, The Upside, Stronger, The Theory of Everything…

Notice these films all feature white actors, too. We don’t see Deaf and disabled Black characters, or Indigenous characters, or Asian characters. We don’t see LGBTQ2+ disabled characters.

Deaf and disabled people must be allowed to tell their own stories, from the ground up, as writers, directors, editors, photographers, producers, costume designers, and of course actors.

TR:

So #LetUsPlayUs, I’m with that. But can we let disability drive the conversation. Call out the many valuable reasons for representation and inclusion and rather than using the history of others as catch phrases use the lessons and honor those who paved the way.

I think we can agree the more marginalized you are in the society the lower your chances of seeing a real representation of yourself. Go ahead and think about the various marginalized communities. As you filter and each segment appears to have less and less representation not only in society but also on screen.

Just imagine if rather than re-booting movies and shows from the past, Hollywood start out by seeking multi marginalized Non Cisgender women of color with a story to tell.

As Adam Pottle points out.

Adam Pottle:

the first producer or major studio to truly recognize the potential of disabled filmmakers and disabled actors will experience a tremendous cultural and financial windfall. There are over a billion disabled people worldwide. We want to see ourselves onscreen. When we do that, disabled people will come out in droves, leading to changes in theatre spaces and screening options. In short, disabled people will change the way the world watches movies.

TR:

We’ve literally already started that process; Caption and Audio Description have already begun seeping into the mainstream.

So let’s continue.

By the way, the reviews of “In the Dark” are in & mixed. I started watching the premiere via the app but there’s no Audio Description. I don’t believe it’s offered by the network. One review had this to say:

“One thing In the Dark does get right is that the blind characters are completely in control. There’s a murder mystery at the center of it, but the real thrill is watching Murphy live such an imperfect, independent life. She goes out; she smokes cigarettes; she has sex—these are things we rarely see blind
characters do onscreen.

TR:

Seriously? Yawl need to go to a convention!

Apparently 80 percent of the writing staff is made up of women and several LGBTQ+ and blind writers and led by a female
showrunner.

And Calle Walton, the young lady who is Blind and part of the cast, said:

“When I lost my sight, I was devastated. I had to throw my acting dreams away. I thought there was no way I could become an actress now that I was blind. This experience has just been amazing:
getting me back on my feet, getting me back into my love for acting. I hope this really opens up the field and it makes it so blind people are getting looked at as characters that can play roles, instead of sighted people playing roles as blind people.”

Same goal, different strategy!

Shout out to :
Chris Danielsen , Director of Public Relations for the National Federation of the Blind.
You can find out more about them at NFB.org. And #LetUsPlayUs on social media including Twitter and Facebook.

Freelance Pop Culture Essayist, Kristen Lopez. You can find her work on line where she’s written for Rotten Tomatoes, Forbes.com and other outlets.
She has two podcasts;
Ticklish Business – all about classic movies before 1970
Citizen Dame – she’s joined by three other female film critics talking all about the latest entertainment news from a feminist lens
You can find Kristen on Twitter
@Journeys_Film

Dr. Adam Pottle is @AddyPottle on Twitter (Also spelled out)
His website is www.adampottle.com
He has a new book out now title Voice.
Where he explores the crucial role deafness has played in the growth of his imagination, and in doing so presents a unique perspective on
a writer’s development.

I think it’s clear that there’s a lot tied up in this topic of representation.

Consider this episode as just the opening of this discussion here on Reid My Mind Radio.

I hope to bring you more in the future which will include highlighting those behind the scenes as well as in front. I got my eye on some talented peeps.

You know there’s only one way to be sure you don’t miss an episode…

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Audio: Reid My Mind Radio Outro

Peace!

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