Posts Tagged ‘Piano’

Lachi: Building Bigger Plans for Going Blind

Wednesday, March 24th, 2021

Recording Artist Lachi standing with white cane.
Lachi is a Recording Artist, Writer, producer … someone who grew up with Low Vision and now is going Blind. You may have expectations as to how someone would react to such news… You’re wrong!

Hear how the power of music and people helped Lachi expand her confidence and develop her own view of blindness and disability. And of course, there’s the music and much more!

Listen

Resources

LachiMusic.com
The Off Beat

Transcript

Show the transcript

TR:

What’s up Reid My Mind Radio Family.

I hope you all are doing well.
Feeling good. feeling like things are going your way.

Me? I’m good! I’m here with y’all!

Sometimes, we know, things change up.
That’s one reason for this podcast.
Where we feature compelling people impacted by all degrees of blindness and disability.

What we learn from the experiences of others can help us draw up our own plan

Because when things seem to fall apart you don’t just scrap your plan… nah, you just go out and make yourself some bigger plans!

Check this out!
Audio: Reid My Mind Theme Music

— “Not the One” Lachi, Michael Herrick

TR:

You’re listening to Not the One by Lachi and Michael Herrick. Lachi is an award nominated recording artist, writer, producer…

Lachi:

film producer, published author. I dabble in acting, I dabble in modeling. I am part of the Recording Academy advocacy Committee, which I’m very proud of. And I am also a speaker on the respectability National Women’s speaker’s bureau. I am trying to also be a YouTube star. And also do everything under the sun that anyone will allow me to do.

TR:

Allow?

As far as I can tell, I don’t think she’s waiting for anyone’s permission. Nor should she!

Lachi:

If I can give myself a really quick image description. I am an African American female. I have long hair, most of its mine, not all of it. That is curly and goes down my back with highlights. And I have big crazy, bodacious smile.

TR:

You can hear that smile when you get into a conversation with her. Even when the topic is something that most people wouldn’t smile about. Going Blind.

Lachi:

I was born legally blind. Always had to use adaptive technology. I’ve always had to sort of struggle with meeting other people that would be able to relate to me and things like that.

More recently, I did receive yet another diagnosis that is putting me on a path from low vision to no vision in a matter of years.

TR:

Her response to those who expect a different sort of reaction to the news.

Lachi:
I’ve been blind, so going from slightly blind to fully blind isn’t as traumatic for me as perhaps it might be. Or maybe I just haven’t really swallowed the pill fully. But I just been on that path already. So getting that diagnosis while it was quite a bit of a shocker. I wasn’t sitting here going, Oh my gosh, I’m gonna have to change my whole life around I mean, I already got the cane. I already got the large print, I already have sort of things that I would need to access the things I need. So the transition isn’t going to be as hard. But I will say it is a different beast. So I will acknowledge that going from low to No, is definitely a big step. And I just maybe I’m just not ready yet. Maybe I haven’t accepted it yet. And that’s where I’m at.

— Music begins and rises to a smooth beat. —

TR:

That’s where she is now.

We learn from our past, so let’s go back.

[TR in conversation with Lachi:]

Where did you grow up?

Lachi:

I tell people I grew up in the widest parts of upstate New York, the black is parts of Philly, and I Southern belt it down in North Carolina. So I’ve been all over the place. And I got all types of attitudes inside me depending on which me you get at what time and so people say, Well, you don’t have a New York accent or southern accent. I’m like, I have them all balled into one.

As much as I wish I had like childhood friends from kindergarten and this and that. I do appreciate the fact that I moved around a lot. But I have spent the last nine or so years here in New York, okay.

I’m New York to the heart but I got love for all!

TR:

Growing up with Low Vision, Lachi was the sixth of seven children.

Lachi:
The four older ones were girls. And the three younger ones were me and my two brothers. So I was really one of the boys.

We’d run around and play, we get hurt, we do whatever.

I was put into public school, I was not necessarily treated as a child with a visual impairment. Yes, we did have social workers and things like that. But I didn’t actually have the opportunity to get to know too many other people in my situation, whether it be blindness, whether it be other forms of disability.

TR:

Lachi received accommodations like extended test taking and adaptive technology such as magnifiers, CCTV’s and a monocular to see the board.

Lachi:
Because I held things really close, instead of thinking that I couldn’t see, they thought that I had maybe some other sort of other social issues or psychological issues.

It gave me sort of a complex of always trying to prove that I knew what I was doing. I was trying to prove that I was intellectually sound.

I was always sort of a creative kid. But there was never too many outlets for me to hang out with other kids and create with other kids and collaborate with other kids just because I was super shy and this and that. But I did spend a lot of time on my own just kind of drawing, writing and cultivating my musical skills really.

TR:

Being one of the youngest children in the family, Lachi benefited when her older sister lost interest in music. With access to a keyboard, Lachi found a passion.

Lachi:
I’d have all these little dolls and stuffed animals and I’d line them up, and I would make them sing all the songs I wrote. And I’d be like come on Alto section, now y’all know y’all messing up.

But they were very good listeners.

I’ve been writing and playing the piano ever since I was just, I can’t remember.

TR in Conversation with Lachi: 22:03

black families don’t necessarily always promote creativity in the arts. When I meet people who started off and seem to get that support from their family, I’m always interested in that, because back in the day, it was really like, Nah, you know, you got to go get a job And this is not going to pay…

Lachi:
You know, I mean, I did kind of glaze over a lot of that. You are, I’ll tell you right now, you are not being old school. That is definitely a real thing. Not only a black family, but most certainly in immigrant families, I identify as an immigrant family, because my parents both came over from Nigeria, in sort of the 70s 80s. And all of my older brothers and sisters are all nurses, doctors (says with over exaggeration and laughs) so I did get that as well. Part of the being blind, part of the being visually impaired, and being the only one with this visual impairment in my family did give me a little bit of leeway as the black sheep like, oh, okay, maybe she can be a little piano virtuoso, but at the same time, I was also very good at math. So I know that while my mother was very encouraging, of me just kind of doing whatever. My father was very much like, we need to cultivate this math thing you got going on, you better be you an accountant, you better be you some kind of financial, whatever.

TR:

She tried majoring in business in college for a bit.

Lachi:

I even dabbled in biology until I realized I was not going to dissect nothing. Sorry. Not with these nails.

TR:

Those nails and the artist they’re attached to had other plans – which became clear while at the University of North Carolina.

Lachi:

Every Saturday I would go down and play the piano in the dorm. And it was funny, because that began to blow up into people just always coming through Saturday evenings waiting for the piano girl to come and play the piano. It started turning into frat boys coming back from parties, or people going on dates kind of just hanging in lounging in the common area listening to me play the piano, and it really blew up in a major way.

It really did start out with me just playing. And then a friend or two would be like, hey, do you know that one song? Or do you know this and that, and then just got to a point where people are just yelling out Freebird.

TR in Conversation with Lachi:
Now now you just said which dorm you were in by the way. (

— Lachi and TR share a hearty laugh!

TR:

These Saturday night dorm performances helped increased more than Lachi’s popularity.

I started becoming more confident. Because I was sharing my talent with other people and people were going, Wow, you’re good at something. And I was like, Oh, look, I am and other people are telling me I am. I started getting that outside validation. I went to a counselor, and I was like I really want to pursue music. What do I do? And he was just like, moved to New York. You supposed to tell me to take like music theory classes or something. So I did!

TR:

Move to New York that is!

Arriving on bus in the big city, you know, sky scrapers and everythang! Her first stop.

Lachi:

I went to NYU and that’s where I started to meet some great guys out in things like Scoring for film, and things like that.

So I did get to meet a bunch of really great people. But when I say I really got into collaborating, was when I decided, look, I want to put a band together, I want to put some songwriters together. And so I really did just go out there and just start meeting people. Like it was amazing how much I just opened up as soon as I moved to the city, and would just be able to go up to people and go, hey, let’s you and me work together. And, and things began to kind of blossom.

TR in Conversation with Lachi: 17:05

You started off earlier, though, by saying you were shy. What’s the relationship between being shy? And then that creative spirit? Like, was that just that strong? Or was there a process? Because I think that, people adjusting to blindness, that could make somebody shy.

Lachi:

Yeah!

Whether you are born visually impaired, or whether you lose it later in life. And you don’t know other people in your space, you don’t know other people in your situation, you feel different, you feel misunderstood, you kind of feel alone

, you feel like you can’t really relate to others,

no matter how good people are trying to be to you, no matter how inclusive and everything, if they’re not really similar to your story,

the first place you go is well, you don’t really get it. And so you kind of coop up. And so that’s kind of where I was, like I did have friends, I did have a lot of support at home. And people you know, I was bullied, like everybody’s bullied. And I have some pretty crazy bully stories. But I can’t just sit here and complain too much. I did have some love. And regardless I was still putting myself in a shell. And that shell just could not stick when it came to me creating music. No matter how hard I tried to box it in, it brought me out

I was playing the piano in college for myself.

TR:

It’s so important to have something we enjoy doing. We’ll do it more and therefore, we get better. The result, confidence!

Now add the power that comes from meeting other people with disabilities.

I’m especially talking about those you can relate to. Those who share your interests.

For Lachi, it started with Visions.
Visions Center on Blindness that is…

Lachi:

It’s a camp. So you do all sorts of different activities, not just learning technology. I got to meet a bunch of people. Myself, being a musician, it was great to meet other musicians with blindness. And a lot came out of that.

TR:

Like the chance to create.

Lachi:

He played guitar. We were collaborating so much together. We decided we were just going to go to South by Southwest.

TR:

That’s the annual music , film and cultural festival that serves as a way of really introducing new artists to both fans and executives.

Lachi:

Right before we left, I ended up writing to a bunch of labels to be like, Hey, we’re going to South by Southwest, you should check out our show. Don’t ask how I got your email just come through. (Laughing…) And of course, I got no responses. But we went to South by Southwest, we played a few bars, it was a lot of fun. And funnily enough, at one of the shows we did, some guy came up to me and was like, I really loved what you guys just did, even though it was just vocals and guitar. Here’s my card. Call me when you get back to New York.

It turns out he was an A & R for a label under EMI. And it was just amazing. We had our meetings, we had another meeting, we had a third meeting, and then we eventually got signed.

TR:

In addition to being an artist, Lachi’s a producer with her own studio.

Lachi:

I am a Pro Tools girl. I use sort of a bunch of Antares plugins. I am a girl that has my computer, right at the edge of that desk, and I am two inches away from my screen. And it’s so funny because people will come in of all sorts. I mean, people have high celebrity to just independent artists will come into my studio, and the first thing they think is, uh, okay, let’s see how this goes.

— “Go”, Lachi
Lachi:

Couple years ago, when I first started really opening up my studio to other people, they would come in and then they would be a little alarmed.

I did get to a point where I did preface it with people. As soon as they came to my studio, I’d be like look I’m just going to tell you right now, I’m visually impaired and legally blind. But you came here because you heard my samples.

I will be all up in the screen, but I do use all shortcuts. Everything is shortcuts shortcut shortcut shortcut.

TR:

She makes it work for her. It’s not about the process, rather, it’s all about the art she’s making.

Lachi:

Ever since 2016, you’re going to get EDM, you’re going to get dance, you’re going to get trance, you’re going to get pop dance, you’re going to get things of that nature. But if you start listening to some of my older music, you’re going to get sort of more general pop, or pop rock.

As I got more confident, my music gets more confident, my messages get more confident. I don’t know, I really started to enjoy the whole, like, badass female sort of perspective. And I started to identify that way. And so my music kind of takes that journey.

TR:

I was curious if Lachi had ideas on how she would adapt to non visually making music. Yet, I was hesitant to ask because when she first brought up her diagnosis, she admitted that she wasn’t giving it too much thought. She later added that the gradual nature of the loss may also be a factor.

Lachi:

I don’t even notice it until I, you know, go into my doctor every six months, and he’s like, dang, girl, you really can’t see the big E.

TR:

The actual sight loss is gradual. Some other things become apparent when it’s gone.

Lachi:

it’s not really something that has hit my, my inner realm. I can’t necessarily tell you why. But I am sitting here trying to, you know, trying to psychologically figure that out myself, I actually think that that’s a very interesting thing about myself that I’m not freaking out about it. But I’m looking at it from a business perspective, instead of from a personal perspective.

TR in Conversation with Lachi:

And you know, you can do both.

All I guess I really want to tell you is that you know, you do your thing. But I want you to know that you have lots of options.

Right? That’s what I want you to know. You have lots of options.

You gone be fine!

TR:

Honestly, I think Lachi already knows that. Meeting a variety of people with all different degrees of blindness and disability ever since attending the camp in upstate New York.

But some things are relatively new.

Lachi:

I decided to incorporate my vision loss and my need for accessibility into my career path.

TR:

That includes her work with the Recording Academy advocacy committee.

Lachi:

I am putting together a number of inclusion and accessibility talks with the Grammys.

Anytime I’m in front of anybody from the board membership or anybody from any of these committees, I am talking about inclusion, I am talking about accessibility, and my voice is getting heard.

We’re talking a lot about Hollywood inclusion, we’re not really talking enough about music inclusion. And so I’m getting in front of these boards and talking. And they are coming to me and going, you know what, let’s go ahead and have you do some panels Lachi, you’re the expert on this.

TR:

Be on the lookout for some panel discussions around accessibility and inclusion in the music industry.

Lachi:
another thing that I wanted to mention, my manager Ben price of harbor side management, got an amazing grant from the UK Arts Council to do a huge sort of study slash article on music and its future when it comes to disabilities.

He’s out there having some great conversations with people when it comes to not just showcasing artists with disabilities, but also, with the accessibility of venues.

When we start opening up the city, when we start opening up the nation in the world. This is something we need if we’re starting from ground zero. If you’re just reopening, why don’t you add that ramp, add that handle, add that bar, do what you got to do to make your space accessible, because guess what? 2021 and 2022 is going to be Lachi out here calling you out!

TR:

She’s currently building a platform that could provide the space to amplify these issues and more. It’s on YouTube and it’s called The Off Beat.

— The Off Beat promo

Lachi:

I am a quirky little offbeat musician and I’m also just an offbeat person.

it’s going to be a series that Chronicles me, a black girl going blind, just trying to keep up with the sort of fabulous lifestyle.

Everything from, makeup, skincare and wardrobe, to Little things like learning how to fold a shirt to just getting my taxes right to even trying to figure out how to make a YouTube series like let’s be real meta and learn that together.

TR:

She’s partnering up with brands who want to support her message.

Lachi:

I’m also really interested in speaking with influencers and top folks in not only the blind space, but in the disability space in general. And even other margins like transgender, LGBTQ non binary. Just kind of calling on names in that space, to ask them how they handle different transitions as well.

I’m excited to share it with you, and anyone who will listen, that we are going on this journey, and that we are doing it from my perspective of I think it’s important for me to mention that is from the perspective of a black woman losing her vision and not just have a woman losing her vision.
— “We’re Not Done… Check this Out” From “You Must Learn” Boogie Down productions
— “Bigger Plans”, Lachi

TR:

And just when you thought it was over, you learn about her “Bigger Plans” …

Lachi:

That is actually the song where we are putting out our AD version of the music video that we put together. And so we’re very excited about that.

TR:

In the meantime…

Lachi:

We put this music video together with that song. We ended up getting backed by a company that does diversity styling, and
we shot the video and the company’s called diversity styling. We ended up shooting it in a space called positive exposure, which is a gallery that only showcases art from underrepresented groups. In the video, they had a bunch of pictures hanging from students with different disabilities. And the song as you can see, was written by a woman with a disability and the video was produced and directed by myself. And the diversity stylings woman, and then the star of the video is Zazell, gosh, she’s good!

She ended up sort of dancing in the video, and she starts out with a cane. And she’s unsure then she throws the cane away, and she starts dancing, and it’s so empowering. But by the end of the video, she actually picks the cane back up and continues to dance with it. Because that’s that’s her whole her.

The whole video from top to bottom is just made by folks with disabilities. And we’ve been entering it into all sorts of contests and all sorts of things.

We just literally won Best Music Video at the International Film forum New York. New York, Neil gallery.

TR:

We all need some wins every now and then, don’t we?

Lachi:

I’m always doing these little radio interviews, whatever, this little thing here, this little thing there. This is probably one of my favorites. Look we’re sitting here talking man. I’m not being rushed. We’re not trying to hurry up and plug something. I don’t have like, you know, my show notes. Like, let me make sure I hit this. I can tell that we are having an A and B conversation. It’s not just you reading a quick question and then just kind of scrolling through something while I’m trying to insert it.

TR in Conversation with Lachi:

Yeah. Definitely.

Lachi:

I really appreciate your perspective. I really love this show. When Ben sent me the link. I was like, Oh, God, I gotta get on this show. As I really love it, and everything that you come through and say up in the club is always just so insightful. So I just did want to throw that out to you as well.

TR:

Nah, it’s still Covid out here. Lachi and I haven’t popped bottles in the club just yet! She’s talking about Club House.

The audio only social gathering space.

I’m an Admin with the 15 percent Club, which is all about disability – as in 15 percent of the world’s population has a disability.

Lachi moderates a room on Thursday’s called The Blind Side. It’s poppin! All sorts of conversations around blindness. My personal favorite so far was the room highlighting Blind women. There were plenty of proud Blind women who know they are all that! That’s something I support!

TR in Conversation with Lachi:
I appreciate that. But this is about you. This is all about you. So you need to understand that once you come on Reid My Mind Radio. I need to tell you Lachi you are now an official member of the Reid My Mind Radio family.

— Official
— Airhorns!

Lachi:

Oh my god
I love it!

TR:

You can find Lachi on all social media at LachiMusic. If you’re on Club House don’t forget to check her out on Thursday’s. I might be working the door, but if I’m not let her know you’re part of the Reid My Mind
radio Family and I’m sure you’ll get the VIP treatment!

(Visually Impaired Player!)

Of course, go on over and follow Lachi’s YouTube series, The Off Beat and show your love!

If you like what you hear, please follow this podcast where ever you like to listen. We outchere!

Don’t forget we have transcripts and links over at ReidMyMind.com. If you’ve been rocking with me, you know how this goes, but some don’t… I’m gonna do it real slow!
that’s R to the E I D…
(“D, and that’s me in the place to be!” Slick Rick)

Like my last name.

— Reid My Mind Radio Outro

Peace!

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Adjusting to Vision Loss – A Creative Approach with Victoria Clare

Wednesday, February 19th, 2020

Victoria Clare with sculpture
Living a creative life for Victoria Clare is more than a way to express herself. It serves as a way to help her own adjustment to vision loss

Hear her story from denial and rebellion to acceptance and putting her in a position to support others.

Victoria Clare is a Sculptor, Musician, Entrepreneur… and she’s working on becoming a Scratch DJ! For real though!

Listen

Resources

Transcript

Show the transcript

TR:

What’s up Reid My Mind Radio Family? I missed you all for real!

Happy 2020 to you all!

A bit of a slow start, but you know, you can’t hold a brother back!

So much of what’s going on in the world today makes it more challenging to find that hope and optimism.
Audio: There’s no need to fear…”

Reid My Mind Radio is here!

Let’s get this poppin

Audio: Reid My Mind Theme Music

VC:
“Creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.”

TR:
Getting to know who you really are is a big part of our early lives especially from our teenage years and on through college. For Victoria Clare, an artist specializing in sculpture, vision loss added to the process.

VC:

I just passed my driving test. I never had a lesson at night ever. Not any reason to that its was just my lessons were never booked for that time. When I passed my driving test I jumped in my car very elated wanted to go tell my boyfriend at the time that I passed my test.
Pulled out of my mom and Dad’s driveway and all of a sudden it became very very apparent to me that I really shouldn’t be driving. I just could not see enough to be driving.

TR:

On that ride to her boyfriend’s house, she clipped another vehicle and lost her driver’s side mirror. Fortunately, no one was hurt. It was enough to prompt her to see an Ophthalmologist

VC:

That’s when I found out I was going to go Blind.

TR:
The diagnosis was Retinitis Pigmentosa.

VC:
My particular Retinitis Pigmentosa is one of the recessive types so therefore we have no people in the family that have had it. So I’m literally the start of the chain if you will.
So finding that out as well kind of made me feel like wow what a responsibility. For me to get married and have children later in life would be a big choice for meat some point in my life which I was very aware of. However, I went back to college.

TR:

College in the UK refers to where many students go for two years after completing compulsory schooling at 16 in order to prepare for
exams to get into university. You can also take
vocational courses
at college.
While studying graphic design with plans to move on to University to continue in this field, Victoria just happened to come across a book about sculpture.

VC:

I knew when it was time for me to go to University that graphic design wasn’t for me. Sculpture was going to be my future
It was an amazing course. It only had 28 places in the whole of Europe. I was lucky enough to get one of those places.
I didn’t really consider that perhaps, hold on a second I may not be able to do this, I just carried on.

TR:

For some that may sound like optimism, positive thinking. But others who have been down this road would probably advise differently.

[TR in conversation with VC:]
Did you have contact with anyone else who was experiencing Vision Loss, anyone whose Blind?

VC:

No. No I had no contact with anyone like that.

TR:

Blind mentors can often help provide guidance, resources, and lend an understanding ear when dealing with all the additional loss that more than often accompanies the vision loss.

VC:

I had a lot of people kind of walk out of my life or just feel very awkward around me and didn’t know how to handle it.
My boyfriend I was with at the time, we got engaged, and he kind of was really struggling with the sight loss diagnosis and he actually saw it as too much for him so the relationship broke down.

[TR in conversation with VC:]

His loss! Hmm. We don’t like him.

VC:

Yeh!

TR:
Victoria soon learned that carrying on would require skills that she didn’t have. Living independently in a new town, navigating both in and outdoors.

VC:

I didn’t realize how simple everyday things would become so difficult for me. I had a hard time at Uny for a very short time, I mean literally I wasn’t there for very long before I decided that I can’t do this. It’s too hard. I left.

My lecturers said to me that I was welcome to come back at any time. Which was really really gracious of them considering it was such a prestigious course.

I had a conversation with my parents, they were incredibly supportive. They came and collected me.

TR:

Back at home Victoria says she isolated herself from the world.

VC:

And I started drinking. Initially it was about trying to numb the pain. I just felt like my whole world had shattered into a thousand pieces. I didn’t know how I was going to go forward. I didn’t see a future for myself .
And then something happened.

TR:

To put it simply, Victoria was introduced to possibility. It came in the form of a rehabilitation specialist.
A really lovely lady. She had a work cut out, to be really fair, with me. I was really super rebellious so I didn’t want help from anybody. You know, don’t treat me like a Blind person bla, bla, bla you know a typical kid.
TR:

Soon after meeting, the rehab specialist realized Victoria wasn’t going to use a white cane.

VC:

I just was not going to use one. I wanted to learn every trick in the trade so I could get away without using one.
She started to teach me other things like echo location, which is still really useful to me. trailing, just small things like that, that was getting me by.

TR:

Sometimes it’s the smallest suggestions that have the greatest results.
She was the one that suggested that maybe I should try some sculpture just for therapeutic reasons.
I went out in my Dad’s shed, I got a big old’ block of wood, stole some of his chisels, used his mallet and started creating. It was amazing. I turned my world around because it made me realize alright, I’ve been diagnosed with this sight loss but nobody’s taken away the skills that I’ve always had. They’re still there.

TR

Remember the skills that she began sharpening in University?

VC:

The background and the love was the figurative work so I created a kind of table top size maybe like two feet tall female figure. I called it “Her Spirit”. that was put into a local gallery and sold. I then kind of returned and created another figurative female figure which was also sold. My work has changed a lot over the years but most certainly it was more figurative work back then.
[TR in conversation with VC:]

Did it represent something in your life at that time or what was that all about?

VC:

I would say for me it was more to do with the fact that the course that I had to leave in Uny was a figurative sculpture course. So of course I was kind of making that connection of wanting to keep the figurative sculpture part of me going even though if I had to walk away from the University

[TR in conversation with VC:]

How much of an influence is blindness. The subject of blindness not necessarily your adaptations if there are some but how much does that play into sculpting specifically.

VC:

Now a huge part because I get inspired by it. For example only two years ago that I put on the first sculpture exhibition that was completely in a pitch black gallery. everybody had to use their other senses to discover what the pieces actually were.

TR:

This particular exhibition enabled Victoria to express herself in three different ways.

VC:

It was to share my personal acceptance of my journey with sight loss. It was to also kind of share sight loss with the general public so that they would have an experience and an understanding of what it feels like. And three it was a very strong message to visual arts because they really , really need to up their game when it comes to accessible art in galleries. Most certainly for visually impaired people . When you walk into a gallery how do we navigate and involve ourselves in our environment? By feeling. To be told that you can’t touch a piece of sculpture a piece of art you’re immediately excluded from enjoying it.

TR:

The exhibit, a first of its kind received national media coverage and all of the pieces were sold.
the result opened new opportunities for Victoria including serving as a retina UK Ambassador

VC:

Raising money to create research and pioneer research for Retinal Dystrophies. public speaking started to grow from there really. I get to speak at conferences and various events. I’m speaking at the World 2020 Vision, that’s in Dublin and also chairing a panel.

TR:

The latter is a chance to meet others impacted by vision loss.

VC:

There’s a connection there. It’s something very special.

TR:

A big part of her personal journey is creative expression. Something Victoria believes can be of help to others adjusting to their own vision loss.

VC:

I would recommend anything that will lift somebody’s mood that will connect them to who they are and make them feel that they are enough and give them self-confidence and self-worth. From sculpture to painting, from dance to music and anything in between. I would just say creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.

TR:

Her own creative expression goes beyond sculpture.
There’s music which began around the same time as vision loss. Specifically, she began learning guitar from a friend.

VC:

Probably one of the things that helped me as I rewind going back to those dark days because I would sit when I was alone and if I was feeling down would just play my guitar. Just compose. I did find that a little comfort at the time.

TR:

About 13 years ago now, she discovered piano.

VC:

I used to be working in a school and this piano was sitting in the hall never being used and I’d be the only person working up a tinkle you know. Slowly but surely I started thinking you know what this is great, I love it and I ended up buying that piano off of the school and it’s sitting in my spare room now. (Laughs)

TR:

And you’re recording your music?

VC:

I Literally just come out of the studio.
Audio:
“Know you Matter”, Victoria Clare

TR:

Singing and performing in bands since she was 23 years old, “Know You Matter” is Victoria’s most recent production. It’s a message to all those that have self-doubt and serves as a personal affirmation to remind her that she matters. She hopes it will resonate with others.

Know You Matter is available on ITunes, Apple Music, Spotify and just about wherever you listen to music.

Next up creatively…

[TR in conversation with VC:]

And you’re rapping too?
Laughs!

VC:

Laughs! Working on it. I want to get into a bit of scratching, you know Tom. Laughs…

TR:

She’s serious! She’s a Hip Hop fan.

Dela 1

VC:

I like a lot of Hip Hop, Dance music, but then I like a lot of singer song writer stuff.

[TR in conversation with VC:]

Since you said Hip Hop, who did you like?

VC:

I absolutely love Dela Soul. Yeah they were definitely my favorite.

TR:
The more I think about her art, it makes sense. She takes an existing piece of wood and crafts that into a whole new thing. That’s Hip Hop.

This past Christmas Santa brought her a DJ controller or the modern day DJ turntables so who knows what she’ll create.

I know what you’re thinking, does this woman ever get bored? Well, she has the answer for boredom.

VC:

Board sports! (Laughs…)
[TR in conversation with VC:]

Yeh, I guess which is really another form of expression I would say.

VC:

When I was 23 a big life change happened for me because I decided to go backpacking with my best friends around the world. Probably the best thing I ever did. I was being faced with beautiful beaches and all the surf community and I was sitting there watching all these guys and girls just riding those waves and I just longed to do it but in my head the voice was saying you’ll never get to do that you’re going Blind you can’t do that.

TR:

If this were a movie, we’d queue up the dramatic music, the camera would pan out to the others easily riding the waves, maybe one falling off the board. The scene would move to Victoria slowly looking at a surf board next her and then back out toward the ocean. Seated on the san, she’d confidently straighten her back, stand, grab that board and sprint toward the water. Her friends would cheer her on as she paddled out to catch a wave…
But this ain’t no movie!
She privately held on to that desire like so many of us do.

VC:

It wasn’t until 2014 that I was actually doing my first solo exhibition. it was a really big14 piece collection exhibition. It was quite stressful at that time trying to do everything for it.
TR:

That’s when her husband had an idea.

VC:

Let me teach you how to surf . And that was it, I was hooked.

TR:

Once upon a time, she was adamant about not using the white cane. Today, Victoria puts that long white cane to good use.

VC:

Skateboarding!

TR:

that’s her way to expel that board energy when she can’t hit the waves.

And of course, where does Victoria go from here.

[TR in conversation with VC:]

You have a line of skateboards?

VC:

Yep, I’ve got the…

[TR in conversation with VC:]

Geez, you make me tired. (Laughs)
I got to up my life! I’m not doing enough.
(Laughs)

VC:

they’re called Blinded Soul and they’re bespoke solid deck skateboard.
When we started surfing we also taught my nephew to surf and then I took that one step further, I made him a surf board. I did the same for skateboards. I was just so amazed how smooth a ride they are. They’re built like in a retro style. They’re not built for tricks, but they’re definitely built for long distance really, cruising.

[TR in conversation with VC:]

The other day when I was reading your blog I was like man I think I want to do this. (Laughs…). Like, I want to try skateboarding Now it’s been years. I skateboarded as a kid.

Audio: from “It’s A thin Line between Love & Hate”
“Here I am laying in the hospital, bandaged from feet to head

TR:

Ok, all jokes aside, I’m going to give that a try.
My personal creativity and expression for a few years now has been less about sports and physical activity today compared to my past.

For anyone experiencing vision loss, finding a creative outlet is worth exploring. It’s hard because the reality is for most these endeavors just don’t help pay the rent.
But that’s not a reason to not pursue a passion or interest. there’s levels to this stuff. find your level and enjoy. The benefits are real.
Victoria’s pursuit of her own interest in music proved fruitful in ways she probably never expected.

[TR in conversation with VC:]

You mentioned your husband. Did your husband know about your vision loss initially?

VC:

Yes, yes. We met through a band that I was in. I was the singer he was the drummer. he had the same kind of silly sense of humor I guess that I’ve got. We’d just have good fun. He would drive me home after rehearsals and stuff. probably only took a couple of months for me to realize that a. how much I liked him and b, I had to tell him.
I sat in the car with him one night, we were just outside the flat where I was living at the time. And I had to take a very very deep breath and I told him. He just hugged me. And I said to him if this changes things you know it’s ok. And he was like no way. I just couldn’t imagine it changing anything between us.
He’s a very, very positive person. Very optimistic. He supports me in everything I do.

[TR in conversation with VC:]

And what’s this fine gentlemen’s name?

VC:

Ah, this fine gentlemen’s name is Adam.

TR:

you just never know where the pursuit of your interests may lead.
Victoria talks about all of her endeavors over at her blog Beyond Vision.

VC:

I want to reach as many people as I can. I want to support as many people as I can but along the way I want to share my vulnerability as much as my successes. I think it’s all very well to sit an talking about all the wonderful things that you get to do with your life but I think it’s more important to share also the vulnerable side of you too because it makes you more relatable. I really do get quite honest with my blogs. They really do tell a story within themselves. They’re raw, they’re authentic.

TR:
T
Encouraged to write her own story in the form of a book, first reluctant, Victoria eventually had an idea to help make the task more attainable.

VC:

What if I started thinking like the book is an extended blog?
So I got in touch with an editor, Molly Somerfield Smith, lovely lady she’s actually a ghost writer. When I first wrote to her I was kind of talking in a way that I wanted her to write it but she was the person that said to me you’ve got to write this yourself. This is your story this can’t come from me, this has got to come from you.
here I am a year later and she’s now got the version that I put together and she’s editing.

[TR in conversation with VC:]

First of all, I see that you’re doing audio blogs. So it’s not enough that you’re doing all the other stuff now you gotta come on into audio? Come on Victoria let some other people keep the audio… (laughs…)

VC:

You know what tom, it’s purely for selfish reasons.

TR:

For the record, I actually welcome and promote more of our voices in the space.
By now you probably can tell Victoria is all about productivity. She’s voice recording what she would have once written for the blog.

To check out her work and more…

VC:

I’ve got my professional website which is for the sculpture and that is www. VictoriaClareSculpture.com And then I got my advocacy website, VictoriaClare-BeyondVision.com. Where there’s all sorts of crazy stuff going on and it’s also got a lot of resources , support and that kind of stuff. And that’s where the blogs are as well.

TR:
Victoria’s working on moving her sculpture website to a more accessible platform.
You can also find her on Insta Gram at VictoriaClareSculpture. That’s Victoria Clare (spelled out)
Don’t forget to go on over to ITunes or wherever you get your music and get her latest single Know You Matter.

Audio: Break of Dawn, DeLa Soul

Shout out to Victoria Clare for sharing her journey. And shout out to Steph McCoy for making the connect!

I’m always hopeful that somehow this podcast finds those who are in the place where many of us once were.
That’s losing their sight, receiving a diagnosis they never expected, maybe fighting against the idea of using a white cane.

It’s easy to focus on what is being lost but as we heard today, the pursuit of those things that bring joy can really help you find what you’re seeking. It’s just right around the corner.

Audio: Lyrics… “Break of Dawn”

If you like what you heard today, subscribe wherever you get podcasts. Why not tell one or two people about what’s taking place here.
Let’s get this information into the ear holes of those who need it the most. In fact, you know we’re about that access here so it’s available for finger tips and eyes too in the form of transcripts available on ReidMyMind.com

That’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

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