Reid My Mind

Audio: Oprah Winfrey’s 2020 Vision…
Oprah: “OMG! It’s about to happen (Crowd cheers) So of the nine visionaries joining us on the WW presents ah 2020 Vision Tour: Your Life in Focus, there’s only one man,

TR: Yeh, yeh!

Oprah: but when it’s one of the most recognizable,

TR: Mm!

Oprah: big hearted,

TR: that’s real

Oprah: delightful, fun,

TR: Ha, ha!

Oprah: strong

TR: Hey!
people on the planet, he’s all you need. Please welcome Dwayne the Rock Johnson!
Audio: Record Scratch

TR: What the… Fine, who needs them, when I got the Reid My Mind Radio Family!

Audio: Reid My Mind Theme Music

TR:

2020 is Ableist AF!

— Music begins with a bass boom into a bouncing Hip Hop beat —

I’m talking about this idea of perfect vision, used as a metaphor for a flawless; plan or strategy, objective or goal and yes even sight.

Audio Samples…

So much of this is perception, which is subjective. Assigning the label of perfect to something automatically creates a ranking system or hierarchy.

It’s not surprising that so many people in 2019 and earlier, decided that 2020, the number associated with perfect vision, was an indication of a better time to come in their lives. The time to create or invoke that plan. Maybe get into shape, return to school, start that new career. Whatever it was, 2020 began with real optimism.

In my early days of adjusting to becoming Blind, I can recall declaring random days, months and year as my time. The right time to start fresh. To look at the future with real hope seeing only opportunity.

I too kicked off 2020 with this energy for very specific reasons. That includes personal opportunities that were presenting themselves. Nothing grandiose but some that I could eventually see as the early steps in building a solid foundation.

One of the themes of 2020 has to be adjusting. Reid My Mind Radio has been focusing on this for years.
Victoria Clare, an artist in the UK, helped me kick-off the year with her story of adjusting to Blindness or as they like to say, sight loss.

Audio: Bumper
— Audio clip from: “Adjusting to Vision Loss – A Creative Approach with Victoria Clare” begins —
VC:

I went out in my Dad’s shed, I got a big old’ block of wood, stole some of his chisels, used his mallet and started creating. It was amazing. I turned my world around because it made me realize alright, I’ve been diagnosed with this sight loss but nobody’s taken away the skills that I’ve always had. They’re still there.

— Audio clip ends —

Audio: Bumper

TR:

More on her latest artistic endeavor a little later!

February came around and I was feeling pretty good. I was swimming on a regular basis – which truly means a great deal to me. That itself is an access story for another time.

I also got the chance to introduce you to my man, Ajani AJ Murray! In his episode Starting with Imagination, we see that no matter the disability, the idea that begins with our thought or imagination can sometimes be delayed by access. Notice I said delayed, not halted or deferred.

— Audio clip from: “Ajani AJ Murray – Starting with Imagination” begins —

AJ:

I always had this dream of being an actor. It was something that was always looming in the back of my mind. It was always in my spirit, but I didn’t know how to physically make the connection. I couldn’t necessarily afford acting classes at the time and I wasn’t in high school at the time to be a part of an acting club.

That idea of working within your reach continued. In the episode Climbing Accessible Heights with Matthew Shifrin, Matt talked about his work with Lego and the objective of his advocacy to give that access to others.

Audio: Bumper

— Audio clip from: “Climbing Accessible Heights with Matthew Shifrin” begins —

MS:

I just wanted people to have this resource because I’d benefited so much from it. Not all Blind kids have people that could write instructions for them. Everyone deserves to be able to build and to learn from what they’ve build.

— Audio clip ends —

Audio: Bumper

TR:

Sharing our experiences with others is so important. Dr. Mona Minkara from Planes, Trains and Canes used the power of show not tell, to capture the wide range of responses to a Blind person traveling alone. And as we know, those reactions are filled with nuance.

— Audio clip from: “Taking A Ride with Planes Trains and Canes” begins —
[TR in conversation with MM:]

Wait up. You said he was nice?

MM:

I’m saying he was nice yes. (Laughing)

[TR in conversation with MM:]

Did you feel that way in the beginning? From the video, I took this guy like he was being condescending.

MM:

Oh, he was totally being condescending. I think it’s just the norm there to kind of treat people with disabilities like we are a bunch of 5 year olds.
— Audio clip ends —

TR:

Traveling is less about the destination than the journey. In the episode John Samuel: Guided By Angels, we see it’s about who you’re traveling with and what you do once you arrive!

Audio bumper
— Audio clip from “John Samuel: Guided By Angels” begins —

[TR in conversation with JS:]

And you just happen to be standing next to her. There’s such a pattern with you.

JS:

I know man; I can’t make this stuff up. I got angels all over the place.
— Audio clip ends —

TR:

While many people were progressing with their 2020 Vision plans, looming underneath it all was Covid 19. We were advised to take individual precautions; wash your hands, don’t touch your face, use hand sanitizer and somehow that translated to get as much toilet paper as you can!

I invited my wife Marlett on to compare what we experienced as a family adjusting to blindness and what the world was going through in the midst of the pandemic.

— Audio clip from: “A Peak at Finding A New Normal” begins —

Marlett:

Social distancing, that’s funny to me because no one really came around We understood about social distancing people were doing that to us for quite some time. Distancing themselves from us.

[TR in conversation with Marlett:]

Damn!

Marlett:

Well it’s true.
— Audio clip ends —

— Audio clip ends —

— Music ends —
TR:
If 2020’s perfect visual acuity has shown anything, it’s the inequity in our society.
Covid 19 zoomed in on the drastic differences in healthcare.

— Audio clip begins from “Corona – So Many Parts” —
Audio: Instrumental “Quiet Storm” Mobb Deep

Audio: Covid19 related News montage

– “The Pandemic seems to be disproportionally affecting people of color”
– “African Americans have been hardest hit by the virus. Despite accounting for 14 percent of Michigan’s population they represent 41 percent of its Covid victims.
— Audio clip ends —

TR:

In this same episode, Corona: So Many parts, I went on to compare the adaptations made in society in response to the Corona with those people with disabilities have been seeking for years.
— Audio clip from: “Corona – So Many parts” begins ”

All of a sudden!

Audio: Gazoo (from The Flintstones)

Have you noticed all of the corporations now accommodating their employees with work from home access?
The online conferences and entertainment now available.
Everything getting done online.

If inaccessibility is manmade then maybe man can fix it,
Audio: “That’s right!” from Harry Belafonte’s “Man is Smart Woman is Smarter”

TR:

Huh!

Audio: “That’s right!” from Harry Belafonte’s “Man is Smart Woman is Smarter”
— Audio clip ends —

TR:

Swindler, Scam artist, Liar, Snake oil peddler, Divider, yet in this past election, many have and continue to support him and his white house administration.
. Some of those supporters I’m sure have the absolute worst intentions. They are white nationalists. But there are some who have simply been played. And one of the rules that we need to remember is everyone gets got at some point in their lives.

I shared a story where I was duped into being a part of a dog and pony show disguised as a demonstration and discussion about Blindness.

— Audio clip from: “Live Inspiration Porn – I Got Duped” begins —
Well, in this particular case, while the dog and ponies sat up in front and this one off to the side a bit, the sighted donors were led into their temporary world of vision loss.

Reluctantly at first, one after the other each slowly began trying on the glasses.

“Oh my”…. “wow”
“where did you go Jeanie?”

And then the real fun began as they exchanged glasses with one another. Laughing as they realized how little they could actually see. Unable to find things they placed on the conference table. The host joking as she moved their cups of coffee.

Meanwhile, the dogs and ponies sat up front. While the jackasses continued with their disability experiment.

Empathy, I didn’t see that. But a check was written.

I don’t remember how the event finally ended, but I do know that was it for me. I checked out. There may have been some additional conversation but I doubt I had much to say to anyone after bearing witness to that display of ableism. I vowed to never be a part of anything even remotely like that.

I could easily imagine each of the donors around the table going home fulfilled and thinking “I should really count my blessings, because there’s always someone worse off in the world.”
— Audio clip ends —

— Audio clip from: “George W. Bush Fool Me Once” begins —

GWB: there’s an old saying in Tennessee, I know it’s in Texas probably in Tennessee but it says fool me once… (long pause) shame on…, shame on you. (long pause) Fool me can’t get fooled again!
— Audio clip ends —

TR:

You know, learn from your experiences

— Music begins – A bouncy energetic Hip Hop beat —
TR:

Hey! Do you enjoy listening to this podcast?
Do you have a topic you want to recommend?
Reach out.
email ReidMyMindRadio@gmail.com or call 570-798-7343 and leave a voice mail. Like this;

Voice Mail:

I’m calling because I listened to the Reid My Mind and I thought that episode on Charles Blackwell was just fantastic!

TR:
That was actually Mr. Blackwell himself playing a little joke on me. He said I could use it and I would either way because he doesn’t have a computer so he won’t find out!

If you do have a computer or a phone that is online and you want to stay updated to what’s happening here;
Subscribe wherever you get podcasts!
Transcripts & more are over at ReidMyMind.com.
That’s R to the E I D
(Audio: “D and that’s me in the place to be” Slick Rick)
Like my last name.

And now back to the episode
—
Audio Bumper:

“Come on chop chop, the Doctor will see you now!”

TR:

Well not really. But let me break down 20/20 as a fraction signifying normal vision.

The numerator, (the top number in the fraction), , represents – 20 feet. The denominator represents the distance in feet where a “normally” sighted person can see that same thing.

So, someone with 20/20 vision is seeing as expected.

A person with 20/200 can see from 20 feet away what a normally sighted person sees from 200 feet.

When it comes to an awareness of police brutality, Black people been having 20/20 vision. I’d add Indigenous and many people of color as well. I’d even add woke White people somewhere on the spectrum.

But too much of America has been hovering around that 20/200 acuity. They’ve been legally Blind to police brutality forever. There’s no lens to help them see the systematic racism not only in the police departments across this nation, but also throughout our society. At least not long enough to actually do something about it.

The Covid 19 pandemic created the environment enabling the magnification of the brutal killing of George Floyd, the murder of Brionna Taylor and the injustice that followed.

I wanted to be hopeful that the initial attention and outrage would be a catalyst for real change throughout society. I talked about how these events have and continue to impact me and my family. I even talked about it in the realm of Blindness advocacy!

— Audio clip from: “Let Me Hear You Say Black Lives Matter” begins —

TR:

All the organizations that are either of or for the blind want the same thing; independence, security opportunity for all Blind people. Who does this really include? For some, blindness skills training isn’t going to be enough to have an opportunity to reach that goal.

For me personally to believe these organizations and others are really about independence for all, I’m going to have to see them lead the way. That leadership needs to come from those in power right now.

I’m going to need to hear them simply say it; “Black Lives Matter”

Audio Montage of individuals saying “Black Lives Matter!” Concludes with all simultaneously saying it.
— Audio clip ends —

TR:

I’ve been thinking about these intersections and specifically about the experiences of Black disabled people no matter the disability.
So I teamed up with RMM Radio alumni AJ to co-produce and host Young Gifted Black & Disabled! Along with our guests, Rasheera Dobson and D’arcee Charington, we talked about all sorts of issues including the lack of Black disabled images in the media.

— Audio clip from “Young Gifted Black and Disabled” begins —

Rasheera:

I get a little sad. I never saw anyone like me. I never saw a girl with disabilities in Essence magazine. Struggling with low self-esteem growing up I think it had a lot to do with the fact that I was reading Essence magazine, Ebony magazine Jet magazine reading the stories of Toni Morrison and hearing the Black struggle but I never read about the disability struggle.

It Matters, it really does.
— Audio clips ends —

TR:

Yet D’arcee shared how there’s so much to be proud about.

— Audio clip from “Young Gifted Black and Disabled” begins —

D’Arcee:

I was just thinking of the Morpheus quote from The Matrix Reloaded, which I recently saw. When he was in Zion, when he was talking to everyone trying to calm them down and what he said is; what I remember most is after a century of struggle I remember that which matters most.

Audio from Matrix Reloaded: “We are still here!” Crowd roars in applause!

That resonates so deeply with who I am as a person.
— Audio clip ends —

— Audio clip from “Young Gifted Black and Disabled” begins —

AJ:

The full story of the black experience hasn’t been written yet.
There are plenty more chapters yet to be explored.
— Audio clip ends —

TR:

That exploration includes the experiences of people like Artist, Poet, Writer Mr. Charles Curtis Blackwell and his words of hope and inspiration.

— Audio clip from: “Charles Curtis Blackwell – Words of Meaning Empowerment & Inspiration” begins —

CC Blackwell:

I realized ok, God gave me this talent and with this talent he’s kind of helped raise me up from that bed of poor self-esteem. Lift me up and encouraged me and inspired me. And I have to take care of this talent. I have to nourish it, be kind to it, treat it right and try to use it.

— Audio clip ends —

Audio Bumper:
Uplifting music with a beat could work to close out from here.

TR:

With over 250,000 people lost from Covid in the US alone and millions affected, it’s hard to say anything good came out of the pandemic.

I did however have to acknowledge the accessible content coming from the team that brings you the Superfest Film Festival. Director of the Paul K. Longmore Institute on Disability
center Cathy kudlick talked about the types of films featured at Superfest.
— Audio clip begins from : “Superfest Disability Film festival: Going Above & Beyond”

Cathy:

“… we highlight what we think is disability 201 – films that share the creativity and the ingenuity or the unexpectedness or the intersections of disability with other kinds of identities.
— Audio clip ends —

TR:

Associate Director of the Longmore Center and Superfest Coordinator, Emily Beitikss talked about the festival’s commitment to access including Audio Description.

— Audio clip begin from: “Superfest Disability Film festival: Going Above & Beyond”
Emily:

So much of our work is working with these film makers to teach them, think about the problem and have tough conversations as we do it so that hopefully people are thinking about it in advance of making their films.

— Audio clip end —

TR:

Including AD as an ongoing topic of discussion fully aligns with the objective of this podcast. It’s never just about entertainment. Media isn’t just about entertainment. Access isn’t just about entertainment!

This year we featured a bit of a history lesson on Audio Description. Rick Boggs of Audio Eyes took us through the involvement of Blind people in AD from its inception.
— Audio clip from: “Viewing Audio Description History Through Audio Eyes with Rick Boggs” begins —

Rick:

What I’m proud to say about Audio Description is Audio description as created by Blind people. And every innovation and advancement in Audio Description that has really contributed to what it is now was made by Blind people.
— Audio clip ends —

TR:

We continued with IDC’s Director of Audio Description Eric Wickstrom on what makes quality AD
— Audio clip from: “Audio Description with IDC: Good Enough isn’t Good Enough!” begins —

Eric:

There’s too much good enough is good enough. For us and our standards at IDC, no we’re not striving for good we’re striving for great!
— Audio clip ends —

TR:
A big part of that great is in the writing. Head Writer Liz Guttman shared her passion for AD.
Liz
— Audio clip from: “Audio Description with IDC: Good Enough isn’t Good Enough!” begins —

Liz:

I go to work every day and I get to write, think hard about the best way, the most vivid and concise way to convey something that’s on screen. So that someone who’s listening to it will get the same feeling that I have watching it. And to help bring us all in to the same level. Especially since I have become more familiar with the Disabled and Blind and Low vision community. I have friends in that community now. I care about their experience.

— Audio clip ends —

TR:

In Flipping the Script on Audio Description, we expanded the conversation to be a bit more critical and inclusive of those involved in AD from varying perspectives.

Like Media Accessibility Provider, Alejandra Ospina

— Audio clip from: “Flipping the Script on Audio Description” begins —

Alejandra:

I do Close Captioning and I do transcription and I do translation and Audio Description and so I like to imagine the things I’m doing all sort of promote access to content. I don’t consider myself as often a content creator but I like to facilitate people getting to see or hear or know what they’re watching.
— Audio clip ends —

TR:

In the second installment we heard from four Voice Over artists also narrating AD. We talked a bit about the inequities and the importance of authentic voice representation. Inger Tudor well she just broke it down to the very last compound!

— Audio clip from: “Flipping the Script on Audio Description Part Two – Voice matters” begins —

TR:

I know some people hear this and say, why should it matter? Shouldn’t anyone with a suitable clear voice just be able to voice characters or narrate films no matter their race, ethnicity, gender etc.?

Inger:

Hold on a minute. Four hundred years, we haven’t had the opportunity to do a lot of stuff, take a seat for a moment because I guarantee you your seat for a moment will not end up being four hundred years. Then when we get to the place where everybody can do everything that’s fine, but we’re not there yet and we need to catch up so give us a minute, ok?

[TR in conversation with Inger:]

There it is!

— Music ends with a base drop that pulsates and slowly fades out.
— Audio clip ends —

TR:

We went outside of the US in the third installment. No real surprise, the guidelines used in Canada and the UK tend not to include race, color or ethnicity in Audio Description.

Fortunately, there’s people such as Rebecca Singh of Superior Description Services in Toronto who are changing that.

— Audio clip from: “Flipping the Script on Audio Description Part Three – Moving Beyond Just US” begins —

Rebecca:

I feel like I owe it to the listener and the listener is not necessarily a middle class cisgender white female or a male and sometimes I feel like from some of the teaching and reading and some of the history from what I’ve seen of Audio Description and words, it’s really taking one particular perspective. That is exclusionary and also not fair to people who are Black and Indigenous or people of color.
— Audio clip ends —

TR:

2020 doesn’t seem very fair.

The success achieved by other countries in their handling of this virus shows this pandemic, could have just been a thing! way too many lives lost that could have been prevented if we all spent a bit more time adjusting.

If only we learned from our past – you know 2020 hindsight? Oh wait!

Audio: 2020 Hindsight, Dilated peoples

Big shout out to all of the Reid My Mind Radio family. Whether you been rocking with me for just a few episodes or 100 plus!

One of our family members and alumni, Victoria Clare reached out during the pandemic to see if I’d be interested in collaborating with her on a song she was writing. She wanted to include a rap break and thought I could make it work. I said yes!
The song is available just about wherever you buy or stream music. It’s called By Any Means – it’s an upbeat dance track written to empower and inspire women who reach that point when they need to go inward and pull out that strength. I’ll link to the track on this episodes blog post.

If you like what’s been happening here on the podcast please pass it on. I know there’s a lot of people who would benefit from meeting others impacted by all degrees of blindness and disability.

Some have asked if there’s a way to financially contribute to the show.

If you are so inclined, you can donate via PayPal to ReidMyMindRadio@gmail.com.
All funds go to supporting the podcast.

Finally, I want to close this episode a bit differently in memory of someone I lost this year. A teacher of mine who said as a teacher he was there to quench our thirst but would eventually melt away. He was wrong! He ain’t going anywhere!

When we finished our conversations he’d say “May we remain” I think of that now like a little prayer.

Reid My Mind Radio Family, I wish you all a very joyous holiday season and great things in 2021!

May We Remain!!

Audio: Reid My Mind Outro

Peace!

Hide the transcript

TR:

Greetings everyone, from at least 6 feet away!

First and foremost, I hope everyone is doing well, and you each are as comfortable as possible. Most importantly staying safe and keeping each other safe by following the recommended protocol.

for right now, I’m going to keep my Corona Virus thoughts and observations to simply wishing you all the best. And reminding you all to protect yourselves physically but also pay close attention to your mental health.

By the way, my name is Thomas Reid host and producer of this podcast where we bring you compelling people impacted by all degrees of blindness and disability. Occasionally, I share my own experiences as a man adjusting to becoming Blind as an adult. All of this by the way has been brought to you since 2014 from the safe and sanitized studio located in my home. So really, ain’t nothing new here folks! We’ve been riding ahead of this curve for a minute!
Now, only one way to start this episode…

Audio: Water flowing from sink…

TR sings…

“Wash your hands, Wash your hands, Everybody wash your hands.
Wash your hands, Wash your hands, Everybody wash your hands.”

Audio: Reid My Mind Theme Music

MS:
I’m Matthew Shifrin and I’m a Blind Musician and Inventor.

TR:

You may be familiar with Matthew. He’s received a fair amount of press in regards to his work with Lego. Specifically, his work making Lego instructions accessible to Blind children.

It all began when he himself as a five or six year old child followed a very specific instruction given to him by his close family friend.

MS:

Lilya who later created the text based instructions, she and I were driving back from somewhere , she stops the car and yells “Get out.” Ok, I get out. She says pick up this crate. This crate is like half my body weight. And so we manage to muscle this crate into the trunk of her car and she’s like, “C’mon open it.” I open it and this crate is full to the brim with Lego bricks.
And that’s really how my journey with Lego started.

TR:

Matthew began building Lego sets with the help of his parents.

MS:
Because they could read the instructions and I couldn’t.

TR:

Lego instructions are visual. They’re diagrams detailing how to connect the various pieces completing the design.

MS:

We were mainly building bionicals. , which were these action figures that Lego made. They were very formulaic. If I built one of them, then I could build the rest of a certain type on my own. Those were the only types of sets I could build on my own.

TR:

Building the sets required the help of Matthew’s parents.

MS:

So they’d just say okay you need to find such and such piece. I’d go scrounging around the bottom of the box to try and find something and then they’d say okay well here’s where you put it and I’d put it there and we’d go piece by piece. It would just take 4 to 5 hours to build a $20 set that was 200, 300 pieces.

TR:

While appreciative of his parent’s dedication and time, Matthew recognized the difference between his Lego experience and that of his friends.

MS:

They were building sets all the time. They’d come into school and say hey I built a spaceship yesterday and I’d say oh that’s so great. How did you do it? Then there’d be silence and they’d be like well, I looked at the instructions and they told me what to do and I just followed them. I just remember thinking all this time I wish I could do that.

TR:

In case you’re thinking Lego is just a toy.

MS:

When we look at Lego instructions they really provide a lot of insight into how things are made. How things are built. How mechanisms work.

And when I built on my own I really had none of that vocabulary.

TR:

This was evident from the experience his sighted friends had with Lego.

MS

they could build trains that ran, crossbows that shot actual darts because they were familiar with the engineering concepts that made these devices work.

TR:

Working with his parents gave Matthew[emphasis on some] some insight…

MS:

But as the Blind builder I was just following directions. I had no idea where we were going. yes, I knew it was some sort of frame that we were building but I had no idea what it would end up looking like. As opposed to the parents who did. There wasn’t a lot of vocabulary gained even then because I couldn’t see the instructions on my own I couldn’t flip ahead. I couldn’t imagine structures in my head because I had no vocabulary

TR:

Remember Lilya, the family friend who had Matthew lug that first box of Lego bricks into the car? On his 13th birthday, she brought him the next step in his access.

MS:

She gives me this big cardboard box with a big fat binder. And mind you this binder is thick, we’re talking two copies of the yellow Pages thick. In this binder there are these instructions that she’s hand Brailed on a Perkins Braille typewriter. And in the box is this Middle Eastern Lego Palace. This palace was big, 830 – 840 pieces. these instructions she created completely on her own. She invented her own vocabulary to name every type of Lego piece that was in that set.

TR:

That was the vocabulary Matthew longed for.

MS:

Put a flat 6 by 1vertically on the table. Put a flat 2 by 1 on its rear most button over hanging to the right horizontally. Put a flat 4 by 1 vertically to the front.

I got to a point where I was able to read instructions and imagine what it would be like to build a certain model or a certain sub section. That’s just spatial awareness, spatial reasoning, these sighted skills that are developed over many years in sighted children. The fact that I was able to really visualize on my own was a very valuable skill and I would argue an under taught skill when it comes to Blind children.

TR:

Getting access to Lego instructions was just a part of Lilya’s goal.

MS:

Her goal was that I should have the same experiences as other sighted children. And so she brailed board games, she brailed books. She did all of tshe did all of this stuff, but Lego was just the one thing g that she could not figure out how to make accessible for many many years just because the instructions were pictures.

TR:

Once Matthew gained access.

MS:

I just wanted people to have this resource because I’d benefited so much from it. Not all Blind kids have people that could write instructions for them. Everyone deserves to be able to build and to learn from what they’ve build.

TR:

making this information available to other Blind children required some steps.

MS:

We had to create more instructions, build more develop some sort of language. Make sure that this was durable and then we had to get it out to Blind people. I think Lego themselves were always an end goal but Blind people had to come first because we had to be sure that Blind people could engage in this content as much as I could.

TR:

Realizing the instructions could be produced digitally, eventually led to the website.

MS:

LegoForTheBlind.com where all our instructions live. there’s 30, 40 sets there.

Our end goal was always getting it to a larger entity.

[TR in conversation with MS:]

Would you consider yourself an advocate?

MS

Sure. Advocacy is like a blob, you can shape it mold it. One might argue that lilya making those instructions was advocacy. After she made those instructions and we had that website, I’d always wanted to get it through to Lego but I really didn’t know how to go about it. To infiltrate such a massive company you need to know people.

TR:

His first attempt, contacting Lego customer service didn’t yield any results. But sometimes, all you need is to know someone, who knows someone…
MS:

I was interning at the MIT Media Lab. I had a friend who worked there adn there’s a group there called the Lifelong learning Kindergarten Group and they have a very long and fruitful collaboration with Lego themselves. So I went to this friend of mine and said hey I have this project and I told him about the project and he said yeh, I have a friend who just moved to Denmark two weeks ago and he’s working with Lego. I’ll send your story along to him. We’ll see where that gets you. This friend of his emailed back and he said oh yes this is a very interesting story I’ll send it to the head of the new projects division which is like Lego’s version of DARPA, all their secret mysterious projects that no one really knows about until they get released. Then when I got in touch with this guy Olaf Gyllenstenthat was really a pivotal moment

because this guy was in on it. He wanted this to happen as much as I did.

TR:

That’s known as an internal ally. Someone in the organization to help advance your cause.

MS:

Mind you this guy had no connection with Blind people. He had just never thought about Blind children as a possible segment of people who could enjoy Lego and their instructional aspect just as much as sighted children. Just because he never met Blind children. When he realized this impact that this could make on Blind children, he bulldozed his way forward through the ranks of the company. He talked to the head of Lego Niels B. Christiansen who runs the company now and Christiansen was very enthusiastic and when your project goes that high up , it’s going to go somewhere.

TR:

And it did. Lego decided to produce the instructions.

MS:

The Lego Foundation, they’re kind of their charitable we have cool projects arm. They were showing off these instructions and they wrote me an email and said we have a press conference we want you to present. Could you come and we also want to introduce you to all of the people that have been doing this. Could you spend six days in Denmark. (Laughing…) I was like well, I guess I can. It was a conference of Lego fans. They are very committed. They have blogs and websites, YouTube channels. We’re showing the kind of text based instructions and comparing them to the graphical ones and just kind of talking about the thrill of being able to build on your own. Just the response form these people was amazing. They and I are just united by a love of Lego. It was amazing to see how touched these people were by these instructions and by the spreading of this medium to people who previously could not engaged with this medium as your average sighted person could. That was just a really energizing moment.

[TR in conversation with MS:]

Are you still working with the company?

MS

Very much. I do quality assurance. Checking instructions and making them as understandable as possible. We’re hoping to have 25 to 30 accessible instructions out in the next couple of months for sets that are currently out.

TR:

Users will be able to purchase a Lego set from their favorite retailer and download the instructions from the Lego website, LegoAudioInstructions.com.

MS:

Hopefully they’re also going to redesign their packaging so that they can Braille the numbered bags. I don’t know how long that’s going to take but that’s just something they’ve been looking into and hopefully that would happen.

[TR in conversation with MS:]
Wow!

TR:

I really shouldn’t have such a reaction in 2020. Unfortunately, the response from Lego, isn’t the norm. Even companies who make they’re product accessible, packaging, well that’s another story.

MS:

When Lilya and I were making these instructions on our own we really wanted Blind children to have the complete experience of building the set. So we would describe the box art and the advertising from the back of the manual and the art and the little prints on the Lego people because we really wanted the Blind child to engage with the set as much as the sighted child could. And it’s wonderful to see that carry over to Lego’s instructions. They describe the little Lego people and they describe this and that . They really tend to energize the experience. They really guide you through the building process and they complement you once you finish something they’re like congratulations you finished the car. An adult might kind of get annoyed by that but for children this is what they need when they’re fist getting into Lego. It’s really important for them to feel really included in the process and engaged by the process not just I’m stacking pieces but hey I built a thing. Now I can revel in this thing and then can move on to the next part of the build the fact that Lego are really making their instructions so human, I’m very glad that they’re doing that.

[TR in conversation with MS:]

It’s funny because you said adults can get annoyed… I don’t know, I guess because I’m coming from a particular perspective…

TR:

I wasn’t a Blind child. I don’t even recall having any Lego sets growing up.

When I became Blind as an adult, I had small sighted children, but man, I wish I had a Lego set with accessible instructions to actively engage in with my kids.

I did have a set of Braille Uno cards. That was one of the ways I practiced Braille. Unfortunately my daughter only three years old then would beat me constantly and it just wasn’t any fun! And for the record, I didn’t let her win. I’m not that type of parent. She was just a little card shark. I’m still not over that!

Matthew recently found a cool way to pair Lego bricks with a new interest.

MS:

A few months ago I started climbing with a team of disabled rock climbers. I saw that the Blind rock climbers were really struggling because there’s a person at the bottom of the climbing wall who yells directions at you. And that’s great because then you can get up to the top, but you have no opportunity to think ahead and really plan for yourself. As opposed to the sighted climber who’s able to come up to the wall look at it and really strategize as to where they put their various appendages. I thought well wouldn’t it be cool to make a Lego based mapping system for rock climbers.

TR:

Next time he went to the rock climbing gym, HE brought his Lego bricks and figured out a method for mapping the wall.

MS:

Different types of pieces are used for different types of holes. Two by ones are jugs which are large rounded holes and then one by ones are crimps which are smaller holes. Three by ones are legends and one by one flat round pieces are foot holes.

TR:

The map is laid out by working with that sighted person who yells directions.

MS:

They can do it in a matter of minutes. A minute or less. And so this could easily be used in climbing competitions.

[TR in conversation with MS:]
And then the person right before they’re climbing could actually kind of go through it . Now do you retain that information?

MS:

I try to retain but sometimes when someone yells out it’s also useful because you’re able to correct yourself on the fly and you’re able to kind of rethink your process if you’ve taken a slightly different path up than you initially estimated the yelling person is really valuable because they’re able to make you reassess your situation in a very sensible way.

[TR in conversation with MS:]

You’re younger than me man, I don’t retain as much anymore. Laughs…

Has this an impact on your view of advocacy? Do you have intentions on kind of moving forward and doing more of this type of thing?

MS

I have a comic book accessibility project where I’m building a virtual reality headset for Blind people with engineers at MIT. This headset makes you feel different motions by affecting your sense of balance and messing with it.

TR:

It sounds like the lessons learned with Lego are being applied to his latest project.

MS:

I thought about the way comics were made. I found that comic books run on scripts. These scripts are like movie scripts that they’re incredibly detailed and they tell the artist exactly what to draw and how to draw it. I thought this is our way in. What I need to do now is to network with authors and artists and comic book companies and really energize them. I’ve been in talks with Marvel Comics and combining this helmet that we’re working on with their comic books really provide a new dimension to their work via blind or sighted

The total strangers who owe you nothing but who are still incredibly enthusiastic. I go to comic book conventions every year to network with authors and kind of tell them about it engaging aspects of advocacy the project and Blind people and how comics help Blind people learn about the world around them.

These people are really energized by the fact that comics are being interpreted in a new way. I’m a random Blind guy with ideas. When I come up to their table and say I’d like to kind of look into how you write. Are any of your scripts available on your website? Could I figure out how to do this and make this accessible? They don’t owe me anything. They could say, sorry I only sign books goodbye. But no, they’re thrilled that comic books are going beyond the newsstand, beyond the bookshelf even beyond the television screen into new medium. The more success you have with advocacy the more energized you are to go out there and advocate more and make more things accessible to Blind people or disabled people or whoever.

TR:

Matthews latest project is looking at a different sort of access.

MS:

We have practically no Blind people in the mainstream podcasting space. And it’s interesting because podcasting seems to be such a Blind friendly medium, but when you look at places like I don’t know MPR, major broadcasters no one there is Blind. I started a podcast called Blind Guy Travels. First couple of episodes are hopefully going to come out in a month or two. It takes these mundane experiences like going to the movies or gestures or making funny faces from the standpoint of a Blind person. I’m doing it with Radiotopia who are kind of the podcast branch of NPR.

TR:

To me this story of making accessible Lego instructions is not only about the power of individual advocacy, the importance of stimulating a child’s imagination but also one of friendship and commitment.
MS:

When Lilya died she left a couple of instructions for sets that we hadn’t built yet. And it’s interesting now finishing those sets and building them and just kind of keeping the energy alive. Lego will do their own thing but hopefully Lego for the Blind will do its own thing just because Lego are going to start adapting from a certain year. Everything before then will be inaccessible. I have a list of sets that people want made accessible. The goal will be to find instruction writers. I can teach them easily how to do this and the goal will be to find instruction writes and to teach them to craft instructions and to keep the Lego For the Blind website growing and going beyond what Lilya and I have done.

TR:

How many times have we heard; a picture is worth a thousand words.

I don’t think we need a thousand words to describe the benefit of making the images that are the Lego instructions accessible.

MS:

I just remember building that set and feeling completely (exhale…) very free!
TR:

If you’re interested in helping this effort or just want to know more about any of the projects mentioned or more about Matthew including his music, contact him.

MS:

On Lego For the Blind there’s a contact uplink at the bottom and they could find me there. On Twitter @MatShhifrin Mat with one t. And on YouTube I’m Shifrin2002.

TR:

If you liked what you heard hear, all I ask is that you share the podcast. It’s safe, you don’t have to be within six feet of anyone to do so. Just send a text, email, a tweet a post on FB. Let them know you’re listening to something that you find enjoyable and informative.
It’s available wherever you get podcasts. And transcripts and more can be found at ReidMyMind.com. Just make sure you let them know, it’s R to the E I D (Audio: “D, and that’s me in the place to be” Slick Rick)

TR:
Like my last name!

Audio: Reid My Mind Outro

Peace!

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