Posts Tagged ‘Family’
Wednesday, March 27th, 2024

In the last episode featuring Andrew Leland, I mentioned a segment of our conversation that focused on what exactly makes something disabled art. What defines someone as a disability artist or part of disability culture?
In this continuing self-portrait, we’ll get into that, identity, ableism and more.
Reflecting on the topics, I recall a story from an experience with my family. So my daughters, Riana and Raven join me for this episode. Which automatically makes it one of my favorites to produce!
#DaddyDaughterDay is back!
Listen
RMM Radio Family Spotlight
Transcript
Show the transcript
TR in Conversation with Riana & Raven:
What is your politics around disability?
Raven:
I think most people who have disabilities should be put on an island.
Riana:
Silly Laughter
Raven:
Away from us normal people! (Laughs)
Riana:
Girl! I agree. (Laughter continues….)
TR in Conversation with Riana & Raven:
Ok, this is the way I’m going to open the show.
Raven:
)Loud laughter)
TR in Conversation with Riana & Raven:
Nobody’s gonna know you’re playing.
Riana:
My sister’s opinions do not …
TR in Conversation with Riana & Raven:
(Loud Laughter)
Raven:
Hey! I thought we were in this together.
(Group laughing fades out!)
TR:
Maybe not an island.
But let’s say Andrew Leland’s country of the Blind were indeed a real place, what would be the requirements for citizenship?
Is it based solely on acuity or must you have additional qualifications?
What would be some of those qualifications?
What actually makes you Blind?
Visual Accuity?
Orientation and mobility skills?
What if you have multiple disabilities?
These questions, well sort of, have been on my mind ever since my conversation with Andrew, featured in the last episode. the actual questions I’ve been thinking about are more related to topics like ableism, and what categorizes something as disability art or a part of disability culture.
Today, continuing with my self portrait, I’ll see where these topics take me. That is, with the help of those two you heard at the top of this episode.
Riana:
My name is Riana Reid. I’m a 26 year old woman. I’m brown skin. I wear rectangular glasses. I currently have my hair and a pineapple meaning My curls are on the top of my head and like a ponytail. I have a bright smile. And high cheekbones, kinda. (giggles)
People tell me I look like my mommy. (Giggles)
TR in Conversation with Riana & Raven:
You look like your father.
Riana:
(Giggles) Okay!
Raven:
Riana’s pronouns are she her hers.
Hi, everyone. My name is Raven. I’m a 20 year old woman. I have dark skin and big curly fluffy hair with almond shaped eyes and big smile and my pronouns are she her hers.
TR:
I’m Thomas Reid. If this by chance is your first time listening, I’m the host and producer of this here podcast. And more importantly, I’m the father of these two young ladies.
That’s right, Daddy Daughter Day in full effect! Let’s go!
— Reid My Mind Radio Intro
TR:
During my conversation with Andrew, we got into a discussion about what categorizes something disability culture. What makes someone a disabled artist.
TR in Conversation with Andrew: 56:24
If they’re in the mainstream, I don’t consider that disability culture. That’s just me.
Are they making the art from a disability perspective? I think that’s the way I draw that line.
Andrew: 56:57
My book is a mainstream book, it’s with a commercial publisher.
I don’t want to put you on the spot. But like, does that mean that what I’m doing is not from a disability perspective?
TR in Conversation with Andrew: 57:08
No.
When you mentioned the blind music artists, like, everybody knows Stevie.
to me, it’s a little different.
Andrew: 57:28
It’s interesting, he has like an album called Talking Book.
He’s not singing about blindness in every song.
It’s kind of a bigger question about identity.
Does your work fall under the category of the identity just by virtue of your having the identity?
Or does the work have to be about the identity for it to be included?
I think it’s kind of a spectrum.
TR:
Before we get to the question of what categorizes something as disability art specifically, let’s talk about identity.
A few years ago, I submitted Reid My Mind Radio to a Black podcast collective. They were looking for Black podcasts to amplify. Based on the fact that I never received a response, I assumed my podcast wasn’t Black enough for them.
But I’m Black!
TR In Conversation with Riana & Raven:
How do you define black?
Raven:
From African descent?
TR In Conversation with Riana & Raven:
Okay.
Riana:
There are some people who have some African descent and are not Black. Clarence Thomas, I guess he black technically? Well, he probably (Said in a deep mimicking voice ) “I’m not black I’m dark complexion. I’m the same race as my wife.”
Raven:
We had a speaker in this club that I was in. And I just remember her saying that she doesn’t use the term black anymore because someone found it offensive and she’s African American. And I don’t know if I lost my mind in the moment. But every time I think about it, I lose my mind. Black people are all around the world. And I think whoever said she was offended by the term Black has her own personal issue.
Riana:
At the friggin schools, they’re always like Black or African American. I’m like this school district is blessed with such a beautiful black diaspora. Half these kids do not identify as African American, but they definitely black.
Raven:
I’ve had friends before be like, Oh, I’m not black then because I’m not African American. I’m like girl.
TR In Conversation with Riana & Raven:
Cause they’re from the Caribbean…
Raven:
That’s what they’re taught.
TR:
Could I have been rejected from that Black podcast network because I’m Blind?
Stevie’s Blind, Ray was Blind and they’re Black!
— Do the Right Thing on He’s Black but he’s not Black!
Mookie (Spike Lee):
Can I talk to you for a second?
Pino: ():
What?
Mookie:
Pino, who’s your favorite basketball player?
Pino:
Magic Johnson.
Who’s your favorite movie star?
Pino:
Eddie Murphy.
… Magic, Eddie Murphy, Prince, there not Black. I mean….
Let me explain myself. They’re not really Black, I mean they’re Black but they’re not really Black. They’re more than Black. It’s different.
Mookie:
It’s different?
Pino:
Yeh, to me it’s different.
End of Clip
TR:
When I listen back to this podcast, I think it sounds Black. Not just because I’m on it, not because of the music beds or the references throughout that I know those who know, know. It’s a vibe that is in everything I do.
Police see me as Black.
My teachers and authority figures saw me as Black.
But then again, if your perception of Black is based in stereotypes then ok, maybe my podcast and I don’t fit.
But, I’m Blac!
— Song “I’m Black” from the Parody film CB4
Andrew: 58:30
So there’s a writer named Jim Knipfel who wrote the first book about blindness I ever read, which is a RP memoir called slack jaw that came out in the 90s. He and I have become friends. He’s sort of like a blind writing mentor for me. One day, he paid me a really big compliment, he was like, Andrew, be a writer, don’t be a blind writer, you’re too good of a writer to be a blind writer.
And it was a compliment, but it was also like I’m kind of psyched to be a blind writer.
TR:
Without knowing the exact intent behind that message, it reminds me of someone telling me I don’t look or act Blind. Which is actually less about me and more about someone’s perception of Blind.
Andrew:
John Lee Clark, the deaf blind poet, he had an interview in Word Gathering, the disability arts journal, where he kind of said the opposite. He was like, don’t hide it. That’s a perspective that is going to set your work apart. It’s a perspective to really draw from, I want to write everything from a deafblind perspective.
I kind of feel the tug of both of those approaches to being an artist.
TR:
Could it be more about who is doing the defining?
Andrew:
I was getting a ride from a friend of mine, honestly at the end of the ride, I was like, why are you a friend of mine?
He said to me, in no uncertain terms, so now that you’ve written this book, you got to know your audience, people really respond to hearing the story of you losing your vision, that’s what you need to write now. Just stay in your lane basically.
Write another book that’s about losing more vision. I was like you knew about my career that I had before I wrote this book now all you can see is blindness and like this kind of emotional aspect of vision loss that you see as the moneymaker.
I think that’s what Jim meant by being a blind writer, as opposed to just being a writer. People could only understand you through this experience. And so to me, that’s the pitfall. That’s, that’s where I agree with Jim. But then the next book, I want to write, it doesn’t even have to be about vision loss, but it can be sort of, from a blind perspective. And using blindness in that way that I find really positive.
TR in Conversation with Andrew: 1:00:45
Yeah, I totally get it. It’s how you’re being perceived as one way, and how you present yourself.
Sometimes it doesn’t seem to even matter, you’re being pigeon holed, which is not your goal.
When I started podcasts, I had this whole thing, I don’t have to do everything about blindness.
That wasn’t my intention. But along the way, I was like, wow, there’s nothing wrong with me doing things about blindness and then it broadened out to disability in general, I like this. And I can talk about everything and anything within the disability community or from a disability perspective.
I’m making that decision, it’s not someone putting that on me. But at the same time, when someone wants to limit me and say, This is the only thing you can do, that’s what I have a problem with. Because I can do whatever the hell I want to do!
Andrew: 1:02:37
That’s the question that I’ve been wrestling with really through the whole process of writing the book and figuring out my own identity as a blind person.
Is it supposed to be central? Or is it supposed to be incidental? When is it Central? When is it incidental?
Raven:
You know what blows my mind.
TR In Conversation with Riana & Raven:
What?
Raven:
When I don’t mention that you’re blind? And it’s like, (Mimicking voice)”Oh my God, how did I not know? Why didn’t you tell me, oh my we’ve been friends for so long, you didn’t tell me.”
(Laughter)
What’s it gonna come up for?
“Yeah, my Dad didn’t see today!”
(Laughter)
What the hell do you want me to talk about?
(Laughter)
I don’t know!
Riana:
it’s the same thing with me. They’re always like, shocked that I didn’t share and I said why would I
TR In Conversation with Riana & Raven:
I mean you can understand why people would find that….
Raven:
Not really.
Riana:
No! They think it’s like me sharing like a like a trauma
Raven:
exactly! That’s what it feels like.
Riana:
(Mimicking) “Why didn’t you tell me?”
And that’s weird.
TR In Conversation with Riana & Raven:
If you go back everything that you learn about disability in the in the world and how it’s perceived and all of that stuff, it makes sense that people will respond like that.
Raven:
Yeah but it’s stupid!
TR In Conversation with Riana & Raven:
It is stupid. (Laughs)
Riana:
And I also don’t like it sometimes because especially older generations if I tell someone that my father is blind, probably because it contributed to a conversation. They’re like, Oh, I’m so sorry.
Raven:
You knock his eyes out?
TR:
When it comes to being Black or Blind, I never had a choice.
I’m totally Blind. No eyes Blind! Like, I can win a Blind contest
— Timpani Drum roll “And the winner is”
TR:
Years ago my intention was to bridge this gap between the Blind community and others. It feels like a natural thing to consider especially as someone becoming Blind as an adult.
Today, considering all of my identities, I’m just not interested in trying to convince others to se my humanity.
I want to live a life with others who choose to recognize and appreciate people as they are in full.
I want to be seen with all of my identities not just those we happen to share. I want to do the same for others.
On the question of what makes something a part of disability culture, I think it’s about intention.
Who is the art made for?
I think disabled artist create for disabled people. Of course, others can appreciate, find inspiration in and interpret based on their own lived experiences, it’s art. But, in my mind and my interpretation, it was made for us.
— “Hold Up!” (Nate Dogg Sample)
Music begins: A crescendo leads into a bouncy up tempo beat!
TR:
Hey y’all! Quick update.
Shout out to all of the R double M Radio family out there who continue to put in that work.
Justice Shorter, who joined us during our Young Gifted Black and Disabled2022 season, along with SeededGround, recently launched the Disaster Justice Guide Book
“This guidebook is a collection of disaster-oriented lessons, lived experiences and learned expertise concerning people of color with disabilities. Based on six interviews conducted during the summer of 2023, each section is curated using the contributions of profoundly insightful individuals of color who are all well-versed in their respective areas of focus.”
You can find the downloadable guidebook along with accompanying interviews at JusticeShorter.com.
Big shout out to Ajani AJ Murray who launched his podcast Acting Up with AJ & Crew.
The podcast focuses on disability and pop culture. From movie analysis and reviews to some of the latest media happenings in the disability community, AJ’s got you covered.
I’ll link to both of these in this episode’s blog post over at ReidMyMind.com.
And now, back to the episode!
TR in Conversation with Riana & Raven:
What is ableism?
Raven:
Ableism
TR in Conversation with Riana & Raven:
(Laughs)
Raven:
(Spelling out the word) A B L… (Laughs)
Riana:
ableism to me is pretty much society today where it’s just it’s set up for able bodied people with the lack of acknowledgement for people with disabilities,
I guess that’s discrimination.
Raven:
I feel like a lot of the isms and all of that come from just the belief that there’s a normal like boy and girl that and if you stripped from that in any way you need to be fixed. In terms of disabilities to I think that’s what the feeling bad comes from because they’re not living the normal life that we deemed as a society as good and easy. Even though you can live happily with whatever cards you’re dealt.
Riana:
Yeah, we just need to adjust society
Raven:
Yeah!
Riana:
… to be more inclusive.
TR:
I can’t recall hearing the word ableism prior to becoming Blind.
In fact, it wasn’t until I eventually began reading about disability in general that I came across this word and concept.
That is, the discrimination of and social prejudice against people with disabilities based on the belief that
typical abilities are superior.
It defines people by their disability and is applicable both to an individual and system.
Like my girls said, society views disability as something requiring fixing.
It’s evident throughout our culture. Art, politics, religion.
Andrew: 52:10
The refrain that the poem says over and over again, is fall to your knees. And thank God for your eyesight.
TR:
This poem Andrew refers to in his book, was read during a service in a synagogue.
Andrew:
You just sort of have to sit there with your family, as a whole room of people just sort of appreciates that they aren’t blind.
It was kind of wild to me that Lily was offended or found it annoying and it wasn’t just me.
— Theme from Love boat!
TR:
My family and I were on a cruise taking in one of the family friendly comedy shows held in one of the ship’s smaller theaters. It’s still amazing how incredibly large these ships are. But they still get tossed around during stormy weather.
When attending any sort of comedy show, I specifically do not sit in the front row. I don’t want to be visible to the comedian. I’m there to be entertained, not part of the entertainment.
— Music begins: A dark, menacing violin repeats over a mid tempo beat.
We weren’t in the front row but it wasn’t a large theater and I was sitting in the aisle seat.
There was this one “comedian”, I say that in quotes because there wasn’t much about his comedy at all that was funny.
I could tell he was pacing from one side of the stage to the other.
He then stopped in front of the aisle that I was sitting in. He took a few moments and then walked back off to the right side of the stage.
I could just feel it, a Blind joke was coming.
It did. And it sucked!
He was struggling to make something up on the fly. It was some corny, basic joke that involved Stevie, probably the most famous Blind person on the planet. In fact, I didn’t even tell you which Stevie and you know who I’m talking about.
TR in Conversation with Riana and Raven:
Anyway, do y’all remember that? Do you have any recollection of that?
Raven:
I have about 10% recollection. And I am afraid that 9% of it is because you’ve told me the story three times this week.
TR in Conversation with Riana and Raven:
(Laughs)
Riana:
Literally the only thing I remember is daddy’s story. I don’t remember that happening at all.
TR in Conversation with Riana and Raven:
Really, y’all don’t remember that?
Raven:
Kind of?
Riana:
You’re saying that he saw you in the audience. And then he made a joke because he made the assumption you were blind.
TR in Conversation with Riana and Raven:
I’m telling you. It was like there was an energy thing something was going on. But it was like, it was as though we were making eye contact.
Raven:
Maybe you had a dream.
TR in Conversation with Riana and Raven:
Oh my god! )Said incredulously)
Raven:
(Laughs)
TR in Conversation with Riana and Raven:
It’s like, you know when you just go somewhere and you just want to be. You know what I’m saying? You just kind of want to just do your thing. You don’t necessarily need to interact. You just want to be there.
Riana:
definitely every day. I can see what Daddy is saying. When we go out, he has his cane or if you’re holding on to somebody’s arm people are going to look especially when Daddy had his eyepatch. Everybody was staring there was no just being like blending in the crowd. We stood out for sure.
TR In Conversation with Riana & Raven:
Sometimes as a family we don’t necessarily always get that and that was one of those times for me that we don’t get to just be
Raven:
(Sympathetically) Augh!
Riana:
Does mommy remember that?
TR In Conversation with Riana & Raven:
She did. She remembers it like I remember it she just says it was a different cruise which I don’t care that’s fine. And it was just it was a weird thing
Raven:
I remember a comedian saying a Blind joke and it not being funny on a cruise.
TR In Conversation with Riana & Raven:
This was that guy! (Mumbling incredulously)
Laughter
Raven:
But I don’t know what you want me to tell you.
TR In Conversation with Riana & Raven:
Did it make you feel any sort of way?
Raven:
I was probably very upset, annoyed.
But you have similar experiences that are all the same thing.
TR In Conversation with Riana & Raven:
Again, we talked about it goes into that just being, okay, we’re just hear we just want to have a good time like everybody and then all of a sudden, boop! Spotlight! You see what I’m saying. And not the good spotlight where you know I’m rocking the crowd “hey what’s going on” (finger snaps… “Uh, Uh!” as if dancing)
(Silence….)
Hello?
Riana:
Laughs….
Raven:
That makes me sad.
TR In Conversation with Riana & Raven:
Why does it make you sad?
Raven:
Because I don’t want you to think that it’s like, hard to go out and be a family, with your family?
TR In Conversation with Riana & Raven:
No, no, no, I’m not I’m not saying that. I’m saying it’s nothing that we do wrong, it’s not our fault. My thing is that I want to know how it impacts you or do you all recognize that and I know you do now, Riana has come a long way in terms of it doesn’t you know, she knows what it is, it doesn’t bother her. So I really feel like she’s gonna be better for that. She’s a better person…
Raven:
What? (Giggles) I thought you meant better than me.
TR In Conversation with Riana & Raven:
No, no, no! (Laughs)
I’m just saying like, she’s gonna be better for that. And I think the same is true for you. At the end of the day, we’re just goin’ do are thing!
Raven:.
That’s always been my thing.
TR:
And that’s exactly what we were doing during that trip and in that theater.
The rest of the audience around me, I could sense was aware of my presence, they seem to be looking for my reaction.
— Music stops.
In this case, there was none. Because I didn’t find it funny.
I don’t think they did either.
Although I’ll never know if that’s because they are aware of me being there or if as in this case, the joke just isn’t funny.
But, that uncomfort felt by the non Blind folks, a reluctance to laugh as they await my reaction as though if I find it funny absolves them of the “sin” of laughing at a blind joke…
— (An evil, menacing laugh….) “That actually is, (coughing) pretty funny!”, The Joker.
TR:
I was extremely aware of racial discrimination at a very young age.
But, I knew nothing about ableism.
I know I didn’t harbor any sort of hatred toward disabled people. I didn’t have an ableist bone in my body! (Sarcastic giggle)
TR in Conversation with Riana & Raven:
Do you ever notice any of your own internal ableism?
Raven:
Yeah,
Riana:
For sure.
TR in Conversation with Riana & Raven:
I know, Raven should be really good.
(They all laugh)
Raven’s like, “And, what’s the problem!” (Laughs)
Raven:
I think I noticed more of internal ableism with more intellectual disabilities because I’ve been exposed to it less.
TR in Conversation with Riana & Raven:
that affects you in a certain way? Is that what you’re saying?
Raven:
Yeah.(Pause)
Riana didn’t give any…
TR in Conversation with Riana & Raven:
I’m going back. This was all about an intervention for you. (Laughs)
Raven:
That’s what it feels like. (Laughing)
TR in Conversation with Riana & Raven:
I remember growing up, it felt like when you saw someone with a disability, you were supposed to feel bad. And sorry, and sad. Right.
The tel-a -thons. Y’all don’t know about the tel-a-thons.
Riana:
I don’t feel bad at all.
Raven:
We do know about the tel-a-thons.
TR in Conversation with Riana & Raven:
Oh, ok! That was a thing.
Raven:
Did you hear Riana?
TR in Conversation with Riana & Raven:
What she say.
Raven:
(Overly sarcastic and in vocal fry) “I don’t feel bad at all”
(They all laugh)
Riana:
I don’t. The only time I do is if like, if they’re not being accommodated.
Raven:
Yeh, yeh!
TR in Conversation with Riana & Raven:
Riana, , what about you anything around the internal ableism?
Raven:
Yeh, anything for you? (Laughs)
Riana:
Right now I see like ableism in the way that like I approach, neurodevelopmental disabilities or disorders. Sometimes I need to remind myself that we don’t need to, like, fix it. But especially with like a kid with like ADHD, because you get into this mindset, especially at the school, and I’m definitely not going to name drop that school, but they’re very ableist, in the sense of every behavior needs to be addressed. And they have to display the behavior in a certain way. And that’s where I see myself, making sure that I step back and be like, we don’t need to change this child. The curriculum needs to be adapted towards it. And school psych is pushing towards that message anyway. But I see myself being like, (Mocking voice that sounds a lot like Elvis Presley impression, LOL)
oh, yeah, we gotta do this and check in check out, behavioral modification…
(TR and Raven laugh hysterically)
Riana:
For real, I see it. Or like a kid with autism, we were just doing like, trying to figure out an intervention for them. And I just had to sit back and be like, Okay, we’re not trying to fix this child. We’re not going to try to change this child.
TR:
Another message around disability was, inspiration. As in, “Damn, if they can do it what’s my problem?”
— “We interrupt this broadcast to bring you this special news bulletin.”
That’s not inspiration. That’s just looking at someone as less than yourself.
No one ever gave me reason to question that way of thinking.
In my episode with Andrew, we talked about an early experience he had at a NFB chapter meeting.
That really brought back some memories for me, both as someone new to that environment and as someone who used to chair meetings of a local blindness organization.
In the latter, I had many opportunities to observe the uncomfort of those attending a meeting for the first time. These folks assumed we were a support group even though everything advertised about us was clear that we were a community advocacy organization working to increase access and opportunities for people with vision loss. That was literally what I’d say to not mention the word Blind because it scared folks away.
But when those unfamiliar with disability read “people with vision loss or blind”, I think their interpretation is, “Of course it’s a support group? What else do those people need?”
During these meetings, we’re talking about the business of advocacy. Meanwhile, those new to blindness are there in search of resources, maybe comfort, encouragement?
I don’t care if you’re personally impacted or a family member or friend, there’s something quite shocking when first encountering white canes, telescopic lenses and anything else associated with blindness.
Of course, there’s nothing shocking about these things, but when you are in this position where you’re facing a new normal; it’s a lot to take in.
Over time, I could recognize those who would return and those who were outta there.
Occasionally I think about them. the ones who ran away. I hope they found what they were looking for.
I’m not necessarily saying it was internal ableism that stopped them from connecting with our group. I just know that my internal ableism could have stopped me from connecting with people who truly made a difference in my life.
TR in Conversation with Riana & Raven:
Have you ever witnessed ableism, in the real world …
Raven:
Are you kidding me?
TR in Conversation with Riana & Raven:
… that’s outside of anything to do with your father?
Raven:
Oh my god. Yeah.
Riana:
Girl, yes! (Laughs) What?
Raven:
Are you joking? (Laughs)
Riana:
Yeh, everyday.
Raven:
Number one, Villanova. That place man…
Riana:
Yeh, Villanova.
Raven:
Not the place but
Riana:
No the actual place is not accessible.
Raven:
(Ugh!) Ok, hold on. So the first thing I’m going to say is that a lot of the places on the campus, obviously they make accommodations but a lot of the places on the campus have like the disability stalls but there’s only stairs to get in it.
Another thing that drives me nuts is the people who think that they are so woke .
I was telling a story once something about going into the big stall somewhere and they were like, (In a British accent for some reason. LOL)”Oh I don’t use those stalls cause I realize those stalls are not for me”
TR in Conversation with Riana & Raven:
(Laughing)
Raven:
And I’m like… (laughs) it pisses me off because I’m like, (yelling) “How are they gonna get inside of the place if that’s what you’re talking about.” It pisses me off because it’s this one dimensional viewpoint here it’s like don’t say a slur to someone but it’s so much more than that.
Riana:
I’ve been around people with disabilities for a while so I see it, institutional heavily like Raven was mentioning. Daily conversations. I’m thinking of things in like recreational therapy too.
The Rec therapist is coming in and trying to make something accessible. So you’re seeing how it’s not accessible for everybody. Just a lot of times you go into a space, and they’re like, Oh, this is what you can use. And it’s like, well, we’re going to need contractors because the people are not going to even be able to come in. If you take two seconds and put yourself in somebody else’s shoes. Even like a YMCA we went to and it wasn’t accessible. Every day living, we just had to create things, at least in my experience. And maybe that was just because we were students. So they weren’t really taking us seriously, but you had to be very creative. It puts you in a mindset of like, wow, people who are just not included. You have to be so creative, just to make sure that you’re able to do what you need to do.
In school psych. It’s always like, wow, my child looks normal, they seem normal.
And I’m like, you know who’s not normal? You
Raven:
I think also in a casual way, I notice it more. I think as a society we’re starting to work on our language
Riana:
Yeh!
Raven:
But I notice that it’s a little less with ability language.
TR in Conversation with Riana & Raven:
Hmm! Riana let me ask you this. What’s the language that’s used when it comes to disability in your line of work?
Riana:
In School Psychology?
TR in Conversation with Riana & Raven:
Yeh! Do they used differently abled, special needs, do they use disability?
Riana:
No, we say disability. That’s my huge argument over semantics. Everybody’s like don’t get caught up with semantics but that’s extremely important. If you describe a disability in a certain way it can put a picture in a parent’s brain and sometimes you just have to let that parent or teacher or whoever is uncomfortable, be uncomfortable because it is what that child is period.
TR in Conversation with Riana & Raven:
It sounds like you’re in the camp of no we’re gonna use the word disability, we’re not gonna change the language we’re gonna use those words.
Riana:
No!
Riana:
I’m not making you comfortable with anything, especially when I’m making you comfortable within ignorance. I’m not doing that. I’m gonna tell you your child has Autism cause there’s nothing wrong with Autism.
The DSM 5 says what it is and it is what it is.
Raven:
I just noticed this thing because I’m taking Psycho Pathology and I’ve noticed a lot of the names of things have changed.
Riana:
Yeh, like Sociopath is anti social personality.
Raven:
There’s like a lot that I realized have changed.
Riana:
Yeh! And that’s because of culture though. The way that semantics comes into play and the way they become derogatory and then we have to be sensitive. And that makes perfect sense, you know what I mean.
Raven:
Yeh!
Riana:
The “R” word. It makes perfect sense, I’m not going to use it.There’s some things though like obviously school psych’s aren’t going to test if a child has “gender dysphoria”, but I wouldn’t approach a situation where a child says they’re non conforming . I’m not going to say you have gender dysphoria. Like, that’s so stupid. That’s something that’s becoming a little derogatory too. That’s when I might change my wording, but that’s because of a cultural aspect.
— From George Carlin Stand Up Comedy:
“Sometime toilet paper became bathroom tissue. Sneakers became running shoes. Information became directory assistance. Car crashes became automobile accidents. Used cars became previously owned transportation.” (Audience laughter.) “Room service became guest room dining. And constipation became occasional irregularity.” (Audience laughter fades out)
— Music begins: A very bright, fun mid tempo beat.
TR:
Now, thinking about the requirements for citizenship in the country of the Blind, the truth is I don’t know that we have an immigration issue at all.
I don’t know anyone lining up trying to get in.
The country of the blind, just like this podcast, has fully open borders.
That being said, it is an opportunity to examine and challenge the way we move through the world to really figure out what blindness is and isn’t. What disability is and isn’t.
Even more of an opportunity if you have people in your life who you love and love you back to share in the experience.
Yes, these conversations can produce a range of emotions, but if you’re lucky, it can just lead to strengthening those bonds as opposed to breaking them.
(Sounds of laughter and conversation between Raven, Riana and Daddy!)
Blindness, disability is all a normal part of the human experience. Which I think works better when we’re all in it together!
Raven, Riana and Daddy:
(The conversation continues and leads into a hysterical laugh from the three!)
Big shout out to Andrew Leland, author of The Country of the Blind, remember, available on the NLS BARD for digital download and Book share as well as all the other places you can purchase books.
Riana and Raven, AKA, Daddy’s babies!
Hanging out with them, is one of the biggest blessings of my life.
Daddy loves you!
Reid My Mind Radio, daddy loves you too! (Silly laughter)
Reid My Mind Radio is available wherever you get podcasts.
Transcripts and more are at ReidMyMind.com.
The only way to get there is by spelling it right!
Riana and Raven:
R to the E I D!
— Sample: “D! And that’s me in the place to be.” Slick Rick
TR, Riana and Raven:
Like my last name.
— Reid My Mind Radio Outro
Peace!
Riana:
Can we do shout outs!
Raven:
Can we say bye?
TR in Conversation with Riana & Raven:
You just said bye!
Raven:
Not really.
TR in Conversation with Riana & Raven:
Go ahead, say bye!
Raven:
Bye, guys! Thank you for having us on Reid My Mind Radioooooo! Peace!
Riana:
Peace! (In a deep voice)
(In her television announcer voice)
Thank you everybody for listening to Reid My Mind Radio. I’m Riana Reid with my co-host Raven Reid, taking over for this episode. Please follow us on Instagram. Mine is @RianaGeorgette. Raven what’s yours?
Raven:
I’m @Raven22 .
Riana:
We love you, thanks for listening, see you next week.
Raven:
I liked it, that was awesome!
Raven (at about 5 years old)
Woh! Heavy breathing. That was awesome, that was awesome!d
Hide the transcript
Tags: Ableism, Accessibility, Advocacy, African American, Art, Autism, Black, Blind, Comedy, Cruise, Culture, Daddy, Daughter, Disability, Family, Identity, Internal Ableism, Psychology, School Posted in Audio, General | Comments Off on The Art of Adjustment – We’re In This Together
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Wednesday, March 13th, 2024
 Credit Gregory Halpern
Whether you’re Blind, disabled or in anyway identify as someone in a marginilized group, chances are you thought about what life would be like in a place where you are accepted and your needs are centered. Maybe even just considered?
Andrew Leland’s first book, The Country of the Blind, isn’t about a fictional place, rather it’s about something much more real.
Note: The link above goes to the National Library for the Blind in the US. If you’re Blind and live in the states, make sure you sign up!
In this episode we cover;
Writing – its importance and impact on his adjustment
Internal Ableism
His vote for President of the Country of the Blind and more!
Listen
Transcript
Show the transcript
TR in Conversation with Andrew
sort of a silly question. But I guess you know, you could go somewhere with this. If blindness were really a country, who are you voting for President.
Andrew
You’ve got my vote Thomas.
TR in Conversation with Andrew
Oh, no, I don’t want that.
TR
That’s the last time I ask a silly question. My guest today is Andrew Leland.
Andrew
Writer, Editor, Producer, Teacher, my pronouns are he him, I am a white guy with glasses, short brown hair, wearing a sweatshirt.
There’s certainly people who I think would nominate themselves. You want me to name like a particular human being?
TR in Conversation with Andrew
You don’t have to if you don’t want to. What are the qualifications that you would think would make a good president of The Country of the Blind.
Andrew
the people that I’m drawn to, generally speaking, these are people who probably don’t want to be politicians, and wouldn’t take the job. But, you know, I really love blind people who are creative and who aren’t rejecting their blindness, but they’re also not really defined by it. And they’re sort of using it as this sort of creative aspect of themselves. So it’s sort of like, not for it, not against it. But like with it.
I can pick out a number of people who I write about in the book too.
TR
Well, you’re going to have to read the book, The Country of the Blind, to find out who else can get Andrew’s vote.
I’m Thomas Reid, this is Reid My Mind Radio, and I approve this message.
— Reid My Mind Radio Intro
TR
Whether you’re blind or disabled, or in any way, identify as someone in a marginalized group, chances are you thought about what life would be like in a place where you are accepted, and your needs are centered. Maybe even just considered?
Andrew Leland’s first book, The Country of the Blind isn’t a fictional place, but rather, it’s about something much more real.
Andrew
I have a degenerative retinal condition called RP, retinitis pigmentosa. I knew that I was going blind since I was a teenager. But for a really long time, it felt abstract, distant and not worth thinking about. Another way to say not worth thinking about might be like I was sort of in denial, as I think a lot of people are with our P is very easy to be in denial about it, because it’s like, well, sure, I might be going blind. But I’m like driving a car and scoring the winning goal over here. There’s no blindness anywhere near here. And then it caught up with me.
TR
Over the years of doing this podcast, and even prior, I’ve spoken to a lot of people experiencing blindness, low vision, vision loss, no matter what you call it.
or , the reason for the loss, denial is commonplace. And so too, is the fact that it will catch up.
Andrew
I’m about to turn 43 And I would say was about 8, 10 years ago that I really started noticing blindness, intruding into my life, into my day to day in a way that I couldn’t ignore. It was around that time that I started using a white cane full time in public. As soon as I started using the white cane in front of my partner, in front of colleagues, walking down the street in front of strangers, It made me blind in the eyes of other people. It forced me to think of myself as blind. And that was really the beginning of the writing process for me.
TR
He began first exploring blindness as a journalist
— Audio clips of Andrew hosting or reporting from The Organist” and “Radio Lab” respectively.
TR in Conversation with Andrew
Can you talk about the art of writing in general, and maybe how important it is and has been in your life?
Andrew
It’s one of the most important things in my life. There’s this phrase that I think about sometimes, which we usually think about in terms of like technology, which is a word processor. Microsoft word is a word processor, the computer is helping you process words, there’s something in that idea that you’re processing and kind of a lot of different ways when you’re writing emotional processing. I use the word metabolizing a lot too. There’s something that happens like an experience and the experience is a little bit just like this meal that you just swallow down but like, you’ve got to digest it. For me like writing is such a crucial part of that process of metabolizing what it is that I’m feeling and experiencing in the world.
TR:
This probably sounds familiar to those who journal and not only gives you an opportunity to purge all of the things running through your mind But literally, it enables you to process those thoughts and emotions.
Andrew
I had some ideas about what blindness meant to me. But now that I’ve written the book, I’ve kind of given myself a little bit of a map to my own feelings and my own thoughts about it that I would never have arrived at without the work of writing.
TR in Conversation with Andrew
To be a good writer, you have to be a reader. And I’m assuming you’re a big reader.
Andrew
Yes, I love reading. So when I started writing the book in 2019, I still was kind of hanging tough with print, I couldn’t even imagine a life after print is such a deep part of my life. And I was very, very unwilling to let go of it. The tricky thing about RP is it’s not like you just wake up one day, you can’t read print anymore. It’s the kind of thing where literally, it will happen over the course of a decade. And at a certain point, you have to just sort of decide like, Okay, this is actually more trouble than it’s worth
TR:
a decision, each individual has to make for themselves. Yet, there are some real world things to consider as a guideline,
Andrew
I had a Kindle, and I just like kept on cranking size up and up and up, had started to meet enough blind people and talk to enough blind people, the writing was on the wall. They were like, text-to-speech, man, it’s where it’s at. You’ve just got to listen. I just sort of went all in and kind of made it like a project for myself. Like I’m going to learn how to read text to speech. It took me a while until I found Voice Dream Reader. That app was a game changer for me. And Bookshare, which is a online library for blind and print disabled folks, which has millions of titles, those two tools in unison. That’s the power combo for me. Over the course of the last three years, while I was writing the book, I was also kind of training myself to be a blind reader.
TR in Conversation with Andrew
What about Braille? You mentioned that in the book you were headed that direction?
Andrew
Yep. Yeah, I’m holding tough with Braille. I mean, it’s incredibly frustrating to be so slow, after so many years, I think I started in 2020, maybe, or 2019. Even. It’s been a journey.
TR:
In the book, Andrew discusses first learning Braille with a sighted instructor, then a season Braille reader gave him some strong advice,
Andrew
that guy’s teaching you bad habits, like get rid of him. And I was like, Oh, right. Blind people know how to read Braille, like that guy was sighted. And I don’t think he knew what he was doing. And then I found the Hadley Institute, amazing service. It’s a free mail order correspondence course, for Braille. If you hang with it, do everything they tell you to do, you’ll come out the other side with Braille. I’m still super slow. I tried to touch Braille at least once a day just to like, keep it in circulation. Last night, I tried to read a book to my kid, my father’s Dragon is a great kids book that we’ve read before. I’ve read that book a bunch of times with him already. So I sort of know the sentences, but still, I just sound like, (reading very slowly)then… he… said, hey… guys…, how long can I expect my son who’s 11 Now to like, roll with me on that. And he’s sort of like patient because he knows I’m like trying to get better. But it’s a struggle.
TR:
Every aspect of our lives are affected by disability. Jobs or our careers. Our real concern, is the way we make money, feel a sense of purpose. For many, it’s how we identify, it’s often the first thing we ask when meeting someone new, “So what do you do? ”
Prior to reading The Country of the Blind, I assumed a writer experiencing blindness would have an easier time moving forward in their career, magnification of screen reading software, along with word processes and access to the internet, chances are they can perform the work. But actually being able to perform the work is only part of the struggle
Andrew
for the kind of writing that I like to do most, which is going out into the world hanging out with people that I want to write about taking notes, and then doing research, reading articles, and so on. The heart of it is that reporting process where you’re out on the scene, long form narrative nonfiction, you gather facts, but you also gather sensory data, like any creative writer has to have sensory impressions. If you think about literature, or the novel, it’s all about these visual descriptions of people. And those are sort of these windows into their character. And so I think about that a lot, both on the level of like, just being an artist and having artful sensory descriptions that convey this kind of mood that I want, but also as a journalist, am I going to be reporting somewhere and miss the story because I can’t see it.
TR:
That’s understandable, especially if you’re new to disability and unfamiliar with an adaptive way of thinking or creating accommodations, but this is 2024. And there are lessons to be learned from those who blazed trails before we ever set foot on a new path. Andrew tells us about one such example.
Andrew
Ved Mehta, who moved to the United States from India when he was a kid. He ended up becoming a staff writer at The New Yorker, which is one of the premier places to publish that kind of narrative nonfiction. He was there during the celebrated William Sean era, writing nonfiction was one of the greatest nonfiction editors of all time.
TR:
Mehta, who was totally blind and on staff still had to deal with questioning around aspects of his Writing,
Andrew
he would write these dispatches from different places where he would talk about his subjects twinkling wintry eyes set against the mahogany Brown of his study and so on. He would have an assistant often with him, met who was doing the interview and, and he was doing the writing, but he might say to the assistant, describe his eyes for me, and use that.
TR:
precede just about any occupation with the word blind. And I’m pretty sure a version of this conversation exists, questioning the blind person’s accommodation, blind accountant, blind programmer, blind orientation and mobility instructor, blind, audio description Narrator or writer. Hmm,
Andrew
maybe if I’m using the Be My Eyes, virtual volunteer five years from now, if I’m reporting and I use that to gather some details about somebody’s pronounced cheekbones or their tousled hair, I think that that’s a totally legitimate way to report, you can look at that as an accommodation. Ved Mehta needs an assistant in some context to fully do the reporting he needs where I might need Be My Eyes to finish the job. People look at that as like almost a disqualification. You didn’t run the race unassisted, you had this help.
TR:
The unfairness, the hypocrisy, makes my blood boil.
Andrew
But, I think if you take a step back and you look at technology, or even just like tools, in general, we’re all getting assistance all the time, from each other from other people and from technology. disability might mean you need different kinds of tool, different kinds of technology, different kinds of personal assistance, but it’s not categorically different. If you think about any journalist, any writer, if they’re sighted, don’t need assistance in gathering visual details. But they certainly are reporting things that they haven’t seen with their own eyes, almost any piece of nonfiction writing will have a reconstruction. If I’m writing a story, and I want to talk about when you first became a podcaster, I might interview you and say, okay, describe the scene for me, where were you? What was the day like, what were you wearing? Tell me all of it. And then I write that scene as though I were there even though it was 20 years ago, and I was 100 miles away.
TR:
The same people questioning accommodations, go gaga for AI.
Ableism is real.
Ableism isn’t just an external thing done to those who are disabled. In The Country of the Blind. Andrew bravely shares an experience where he attends a local chapter meeting of the NFB in Missouri. Here’s an excerpt from the book with Andrew narrating.
— Andrew as Narrator
I had noticed the blind woman in a wheelchair using a strange device that looked like it somehow converted the text on a laptop screen into metallic Braille. I had noticed the other people with multiple disabilities and the modest scale at which the group was operating, arguing over how to spend their tiny publicity budget. If I had gone to the meeting to find other blind people whom I might commiserate with, or learn from or befriend, the first impression was more off putting than I had expected. Part of it was surely just geographical culture shock, but a greater part was a different kind of culture shock, or discomfort with disability.
TR in Conversation with Andrew
What do you think your experience would be like? Now knowing what you know and feeling how you feel? If you went to that meeting for the first time? How do you think it would be different?
Andrew
Just to preface, it’s me being super open about the, I guess you could call it internalized ableism that I felt where I’m just looking at this group of blind people, like, what do I have in common with any of these people, like, get me out of here,
TR
Andrew receive some real criticism from blind people about this part of the book.
Andrew:
Today, in retrospect, going to that meeting now, like I know, Gary wonder was there. He’s the editor of the Braille monitor, somebody who is more engaged with blind intellectual life, which is something I’m deeply interested in, then like, most people in the in the world, that guy alone is somebody I should have, like, grabbed and had a long conversation with, but at the time, all I could see was a group of disabled people who felt very different from my image of myself. So having the patience to spend longer than I did spend at that meetup, having the courage to actually like, talk to people as people rather than just look at them through this sort of other engaged the way I do
TR in Conversation with Andrew
I get it. For folks to get mad at that, I don’t think they realize what’s really going on like you being honest about that, is that process of checking your own ableism. You can’t get to a point without doing that work.
Andrew
Totally
TR in Conversation with Andrew
putting that in the book is inviting other people to do that, too.
Andrew
Thank you for pointing that out. Plenty of blind people said to me, just what you’ve said, where they’re like, that was me. And these are people, some folks who have been blind their whole lives. It’s not like it’s only somebody who’s like, has this site privilege or somebody coming at it from the outside. I think any blind person can have that perspective, and many of them do. And I’m with you that it felt important to take that risk of making myself seem like a real jerk in order to expose some of that ableism that a lot of us carry around.
TR in Conversation with Andrew
That’s the other thing too, that you, you included your wife? Did you talk to her before you include? Because I was like, oh, yeah, I don’t know if I could do that.
Andrew
I think she’s within earshot listening to me talk to you right now. So you know, you might hear the door burst open. And you know, she might
TR in Conversation with Andrew
Come on in.
Andrew:
She might jump on the mic. But, uh, yeah, I mean, like, there were definitely moments where I was like, I want to write an interesting book. But I also want to be married for the rest of my life. And I don’t want to jeopardize that. So there were a lot of tough conversations that we had. A journalist should never give their source a copy of the text to change. You can fact check it by saying like, is this true or not. But with Lily, it was a very different situation. Like, we just sat down with the book in front of us multiple times, like and did sort of a find, for her name. And then just like, read every sentence of what do you remember about this, and a lot changed in those conversations.
TR
You can’t overstate the importance of good communication. having these conversations, no matter how uncomfortable is so important to a relationship.
Andrew
It was like a way for us to talk through some of those issues. Even though a lot of that stuff was difficult. And like, I’m sure she would have been happy to see all of her name just like completely scrubbed from the book. I think to her credit, like she recognized the importance of including for the same reason you just said about the picnic scene. I don’t think I had read a book that was really honest in that way about how difficult the partners journey can be to and the trickiness around the way that your partner is entering blindness at the same time you are, it was worth the difficulty and the risk in order to start that conversation, not just in my own family, but maybe in others as well. Then
TR:
there’s the ableism we experienced through our society. In The Country of the Blind. Andrew writes about a poem read during a service at a synagogue.
Andrew
The refrain that the poem says over and over again, is fall to your knees and thank God for your eyesight. You just sort of have to sit there with your family, as like a whole room of people just sort of appreciates that they aren’t blind. I certainly still encounter it. I think one thing that’s changed is that that moment marked the kind of beginning I think for not just me, but for my family to sort of have a politics around it. It was kind of wild to me that Lily found it annoying. And then it wasn’t just me.
TR:
Everyone in the family is adjusting to disability. The question is, will that be done alone, or together?
Andrew
My son, I feel like I’ve sort of trained him to be a critical thinker about it. I will be watching something and he’ll sort of perk up when there’s like a disability reference that seems off. He’s in fifth grade. And at the beginning of the year, they were doing this exercise about guidelines for how to be a good community for each other. And one of them was like, be respectful. Even if the person has a disability. The line that caught his ear was even if they have a disability. He raised his hand and was kind of like I don’t know about like, even and the teacher was like, oh, yeah, that’s good. Like something was bothering me about that. But I couldn’t quite put my finger on it. To me that shows that he is really internalizing some of these critical disability thinking that I’ve sort of come to that makes me feel really proud and excited.
TR in Conversation with Andrew
What’s your son’s name?
Andrew
Oscar.
TR in Conversation with Andrew
Is that like a head nod to your grandfather?
Andrew
It is. It is.
TR in Conversation with Andrew
Oh, very cool. (Laughing)
Andrew
He was a playwright. His name was Neil Simon, one of his best known plays that got turned into a TV show and a movie was “The Odd Couple”.
— Music begins Theme song from The Odd Couple
— Narration from the opening of the Odd Couple
On November 13, Felix Unger was asked to remove himself from his place of residence. That request came from his wife.
Andrew
my wife, Lily, when we were trying to think of baby names. She said, Well, what about Felix? My first thought was the odd couple because Felix is the sort of more fastidious neurotic member of the odd couple. I was like, No, it can’t be Felix. Oscar, that’s who you want to name a baby after.
TR in Conversation with Andrew
A hearty laugh!
Andrew
. She wasn’t even thinking of “The Odd Couple”.
TR in Conversation with Andrew
I hope he’s not like Oscar though. He’s not pulling out sandwiches from the bed?
Andrew
He’s got a little bit of both, I would say.
— The Odd Couple theme music comes to an end.
— Music begins A funky baseline opens to a smooth mid tempo R&B groove.
TR in Conversation with Andrew
What was your experience, if any, with disability arts prior to 10 years ago, when you opened up your cane?
Andrew
Hmm. That’s a good question. I think I’d encountered it in the art world. When I first learned about the work of Christine Sun Kim. She’s a Deaf artist who does really interesting work around like sound or like representations of sound, interesting stuff with captions. That would have been on that level, or certainly, like mainstream blind musicians, that would have hit me on that mainstream level. That movie, like I think Sound of Metal, but really, it was not on my radar.
TR in Conversation with Andrew
If they’re in the mainstream, I don’t consider that disability culture. That’s just me. Are they making the art from a disability perspective? I think that’s the way I draw that line.
Andrew
My book is a mainstream book, you know, like it’s with a commercial publisher? Does that mean that like what I’m doing is not from a disability perspective, it’s kind of a bigger question about identity. Does your work fall under the category of the identity just by virtue of your having the identity? Or does the work have to like, be about the identity for it to be included? I think it’s kind of a spectrum.
TR
What qualifies something as disability art? disability culture? What makes someone a disability artist. Questions really worth exploring. I’ll do some of that in the ongoing self portrait episode.
Andrew
That’s the question that I’ve been wrestling with really like through the whole process of writing the book and figuring out my own identity as a blind person is like, is it supposed to be central? Or is it supposed to be incidental? When is it Central? When is it incidental? I read an interview with this bio ethicist who was blind named Adrian ash who died a couple years ago, she was very adamant that blindness was totally incidental. Her friends joke that she was 20, before she realized she was blind, because she just was like, it doesn’t really affect my life. But then when she applied for a job, and it was pretty obvious that she didn’t get the job because she was blind, because the person was basically explicitly like, I don’t know how we would hire a blind person, that’s when she became blind. That’s when it became a central part of her identity, that kind of politicizes it in a way that I don’t totally track with. If we’re talking about disability arts, I do want to center blindness as a writer, in some ways. There’s other times when, when I want it to be totally off to the side.
— Music comes to a close.
TR in Conversation with Andrew
What has the response been like today? And I’m wondering if there’s any difference between blind and non blind readers?
Andrew
Yeah, it’s been great. I’ve gotten some criticism. But over my overwhelming experience has been one of people really responding positively to the book, it seemed safe to assume that like people whose experience was close to mine, would be like, oh, yeah, I recognize that like the first time I used a cane, stopping driving. But one of the things I learned in writing the book is that blindness is such a diverse experience, not only in the ways that people experience blindness, but also all kinds of other life experiences intersectionality’s that can inform one’s relationship with disability. The cool thing for me, after the book has come out has been just seeing folks whose experience is very different from mine, also resonated with a book that makes me feel like I captured something about blind culture Blind politics in 2023. The experience that extends beyond my narrow experience of it,
TR:
the response Andrew hears the most from those who are not blind?
Andrew
“I learned a lot.”
It’s shocking sometimes how little people really stopped to consider the experience of blindness. And so I think one thing that book has done is really just like cracked that world open a lot more for a lot more people
TR in Conversation with Andrew
What was some of the criticism you mentioned that you receive.
Andrew
One of the things I really tried to do in the book is like not just have it be a memoir. I think the parts that people respond to the most are like me writing about my relationship with my son or with my wife are very emotional, personal moments. And I understand that, I think it’s important to include those, but I also get pretty nerdy. And talking about history of audio description, or the history of Braille history of the organized blind movement and NFB versus ACB versus AFB. Plenty of readers who didn’t know anything about blindness pointed out that it’s wild that there’s like these ancient beefs between blind people. Why are blind people fighting? Are they supposed to be in solidarity with each other fighting the fight to raise Blind people up. there are certain readers who are like, dude, enough of the alphabet soup? I don’t care, let’s move on.
That’s one criticism.
TR
You should judge for yourself. Get the book.
Andrew
The book is on Bookshare. It’s on barred I read the audio book myself. Every blind person who hears the audiobook is like how the hell did you do that? The short answer is Rp. 5% of my visual field still hanging in there.
TR in Conversation with Andrew
You did a great job reading that book. Part of that I’m sure was from your podcast experience and narration and stuff.
Andrew
Totally. Yeah.
TR
You can learn more about Andrew, his work and find him on social media by visiting his website AndrewLeland.org.
There really is something for everyone in this book. But here on Reid My Mind Radio, we’re especially interested in those adjusting to disability. while Andrews experience is specifically about blindness. I want to strongly encourage those new to disability to read The Country of the Blind, you’ll see yourself, your family, you’ll hopefully confront your own feelings about what it means to be disabled. And don’t worry, the final say is always up to you.
TR in Conversation with Andrew
So what’s your current citizenship status for the country of the Blind? Are you a citizen? Are you just visiting? What are we doing?
Andrew
I’ve applied for a green card. It’s been approved and now I’m just like waiting in the mail for it. So I’m like technically a citizen but I don’t have like the full papers yet.
TR in Conversation with Andrew
I can’t give you those papers, but I can tell you that you are an official member of the Reid My Mind Radio family sir.
Andrew
That’s much better news. That makes, that makes my day. And I have to say, you know, I didn’t want to I didn’t want to like mess things up by flattering you too much, but, you know, if we’re really talking about blind President? It’, you got my vote, it’s all you Thomas.
TR in Conversation with Andrew
(Laughing) Well, I appreciate that, but I am not running.
Andrew
Alright, well, I’m still gonna write you in. Gonna get my slate and stylus and braille you right on to the ballot.
TR in Conversation with Andrew
There you go. All right. Well, if I get enough, I’ll think about it.
TR
You know, I really do appreciate Andrew’s vote. But even more than that, I appreciate all the effort put into the book, sharing his experiences and time with the Reid My Mind Radio family. Sharing the art of adjustment.
I’m very hopeful that Andrew will come back and share some of his experiences around audio description. We of course, had a little conversation about that, but I think a future episode on what we were specifically talking about would be nice. That’s all I’ll say for now. Well on that topic at least.
— Music begins Hail to the Chief.
— Tap on microphone
TR
— Over exaggerated clearing of throat.
(In a presidential style speech )
. My fellow citizens, as we move forward together united as one, no matter where we land on the spectrum called blindness. We should ask, not what the blindness has done to us. But rather, what is it that we will do with our blindness?
We should also remind ourselves… to rock with Reid My Mind Radio wherever you get podcasts. Transcripts and more are at ReidMyMind.com.
Just remember, that’s R to the E, I, D!
— Sample (“D! And that’s me in the place to be.” Slick Rick)
Like my last name!
— Reid My Mind Radio outro
Peace!
TR in presidential mode
And may God Bless Humanity!
Hide the transcript
Tags: Ableism, Art, Blind, Bookshare, Braille, Culture, Disability, Family, Hadley School, Odd Couple, President, Text to Speech, Writing Posted in Audio, General | Comments Off on The Art of Adjustment – Welcome to the Country of the Blind
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Wednesday, April 27th, 2022

We reached the final episode of the season where we salute and recognize individuals who are pursuing their interests and goals not in spite of their disability but rather with it. The difference may seem minor to some, but if you’re someone who wants to see disability normalized in society then you probably recognize this vast gap.

Question, a young Producer & Rapper from Atlanta, Blind from birth is one such example. He’s been into music ever since he can remember. Like the early Hip Hop producers he admires, Question started making music with the tools he had available to him.
A student of Hip Hop, he recognized the power of a squad, a team and along with his friends and fellow artists Damasta and Migo Traffic began curating the collective of fellow Blind rappers and producers known as Blind & Famous!
What a perfect way to conclude this inaugural season of 2022; Doing Your Thing With Disability.
Plus, the winner of the Reid My Mind Radio Twitter Giveaway… @SandraManwiller… Congratulations!!!
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Resources
Transcript
Show the transcript
TR:
–at low volume
It’s time to get hype
–Clip from Yao from Mulan: I’m gonna hit you so hard, it’ll make your ancestors dizzy.
–Rhythmic electronic music fades in and becomes louder.
We’re back on the scene, crispy and clean and if you’re Hip Hop and from my generation especially, then you know what I mean!
My name is Thomas Reid and I’m the host and producer of this here podcast.
–“Reid My Mind Radio” echoes
I’m feeling good. Feeling accomplished as we wrap up this season: Doing Your Thing With Disability.
If you’ve been rockin’ with Reid My Mind Radio, you’re very familiar with our commitment to those adjusting to blindness.
We often talk about the power of people in that adjustment.
The value of their stories and experiences which include the direct lessons as well as how it expands our own beliefs of what is possible.
Today, I hope you all will recognize the additional value and power in individuals who have a shared identity, experience, goals, working together in support of one another.
Not letting you rest on your strengths alone, but encouraging you to go beyond with all that you have.
Today, I’m in my Hip Hop mode so we’re gonna call it what it is, your crew, your squad!
Family, let’s get ’em!
Audio: Reid My Mind Theme Music
Question:
Yo, this is Question man! Artist and producer coming out of East Point, primarily a hip hop, r&b EDM.
I am a biracial kid with dreadlocks wearing a long sleeve blue shirt and some sweatpants right now. Chillin in my home studio just vibing out.
Question:
I’ve been blind all my life. I was born with optic nerve hypoplasia. I don’t have any vision in my right eye. And I have like, a little bit of vision in my left eye so I read Braille. And I use a lot of accessible and adaptive technology.
TR in Conversation with Question:
Did you go to mainstream school?
Question:
I did both. I went to mainstream school really up until eighth grade. And then I went to Georgia Academy for the Blind until I graduated.
I feel like if you go to a blind school, your whole life or a school for the blind, you’re gonna be a little bit sheltered to certain cultural aspects.
TR:
The concern that I’m sure many people have in enrolling a Blind child in a mainstream school is what Question found helpful.
Question:
It’s a little bit easier to kind of duck off, find your own crowd. It’d be a whole lot going on, you know, games and homecoming, and like different organizations, different things where you’d be staying after school clubs and all type of that. They had that on a minimal scale at a Blind school because they want everybody to be included.
But it’s just different so you know you do be a little bit sheltered if you don’t make a point to step outside of that school for the blind.
TR:
Inclusion is great, but we also need a chance to find out who we are as an individual. Becoming our true selves. Music was a part of that discovery for Question. In fact, it’s his interest in different genres that inspired his name.
–Sample: So you’re a philosopher?
TR in conversation with Question:
Question. What’s the name about?
Question:
I study a lot of different things. I just really look at myself as a student and as a fan of a lot of different genres.
Hip Hop people like Logic, people like The Roots, De La, Tribe, even Kanye, to a degree have just like a certain aura to the music and to what’s going on. So that’s definitely one of the aesthetics that I have as a part of my material.
TR in Conversation with Question:
I think I read you kind of referred to yourself as a hippie.
Question:
Yeah, for sure
TR:
Less 1960 or early 70’s hippie, and more like a Tribe Called Quest, De La Soul style!
TR in Conversation with Question:
Tell me a little bit about your introduction to music and then specifically rap. I don’t know if rap was first.
Question:
Yeah, I think rap was first. So to break it all the way down, my mom is white, my dad is black. I was with my mom a lot of the time. You know, she a single parent. I know my dad, everything cool.
My mom is a crazy Hip Hop head. She really the one that put me on a lot of the first music I was listening to.
So she raised me up going to concerts. She went to see Goodie Ma, when she was pregnant.
She was listening to like The Roots and Biggie, and just people in that era. Jay Z, Bahamadia, Helter Skelter.
She was just like, around a lot of artists that was in ciphers. She was just like, connected to that culture. She wasn’t in music herself but she just always knew that was a vibe. So it low key like curated that energy in me, like right from jump.
TR in Conversation with Question:
Helter Skelter? Okay. That’s a name I don’t hear being dropped that often.
Question:
She definitely deep into it. She my manager.
Because of that she’s now grown in her understanding of the industry. Five years ago, it was nothing but just like being a fan, being just appreciative of everything. But now, because of just the way things move, it’s become like a professional thing.
TR:
It began however with a natural interest and love for the music.
At three years old he was copying melodies and beats heard on the radio using toy keyboards. Always asking those he was with to turn on the radio, play a CD, he wanted music.
He learned drums and percussions, taught himself keyboard.
After hearing a song by Ludacris and Trina that featured a violin, he wanted to join the orchestra but was dissuaded from pursuing the instrument.
Question:
“Nah you can’t do it because the string part is too hard for people to read. And if you try to read the Braille, like, you can’t read it and play it at the same time.”
And then they was like, “you could do the drums.”
And it was like, I already do the drums. Like, I had been playing drums from young to I have like, Jim Bayes and congas. I got a drum set in my house.
I was kind of like, nah, I wanted to do strings. I wanted to do violin. So they didn’t let me do it. It’s kind of weird.
TR:
Fortunately, that didn’t stop Question from pursuing music. He continued to be inspired from those things within his reach.
Question:
I used to remember, like, listening to CDs in a stereo of Rick Ross, Wayne, Jay Z, whatever. And then I could like, burn my beats to a CD and just go play it in that same stereo. And it’s like, I’m on a CD. It didn’t really matter how good it was because it was me. And I had done this and I had brought something that was in my head into a form that everybody else could interact with, whether they liked it or they don’t. It’s like, now it’s here. And it wasn’t before. And that’s like a crazy thing. To me to this day.
TR:
Whether you’re a kid or not, sometimes, the things we think about or aspire to seem mysterious or out of reach. Remove the veil, and we begin to realize that it is attainable.
That can definitely provide the fuel needed to work on the craft.
–Soft Rock&Roll starts to play
TR in Conversation with Question:
Talk to me about some of that work. You’re spending a lot of time in your room, you got some equipment you’re producing, talk to me about some of your early stuff, and how you’ve seen that change over the years.
Question:
I was in about middle school when I started really producing and getting into recording myself and exploring effects and making beats and all that type of thing.
That’s when I really got my first computer and really just got competent using a screen reader just navigating the internet and doing things independently.
TR:
You see how this young brother just dropped that on y’all?
That’s the work I refer to. I don’t care what work, art or hobby you’re trying to do, if you’re someone who is Blind or Low Vision and you haven’t adapted to your technology, you’re limiting yourself.
Question:
I made my first beats on a sound recorder program. In Windows, I just took my iPod and hooked it up to my computer and then I play songs that had some drums at the beginning and I take like the hi hat from one of them to clap from another one, take the kick, and then like make a pattern.
I take Beethoven sample out in a folder on our own XP computer and just make a beat, paste the sample in a different way. Take little parts of it, chop it over the drums, and then I record over it. But I was just making little freestyles and the quality was crazy bad because it was just sound recorder.
TR:
Hearing that difference didn’t discourage him. Rather, it drove him to improve his sound.
Question:
I started hearing a difference between what I was making and what my inspirations was making. Like, at that time I was a kid. Soulja boy was out going crazy. So I had like his albums. His was one of the ones that I was like taking the drums from. So I would listen to what I made and be like “why it dont sound like the same thing? I just got the drums from right here so what’s going on?”
You know what I’m saying? So like I started figuring out like, Okay, if I get a better program, if I learn what different things mean, I started learning about like compression, and just like being around people.
I would get around my friends. And they might say something, say a term like, oh, did you use a compressor on this? And I might be like “yeah,” knowing damn well I don’t know nothing about no compressor.
Then I go look, and I see what the compressor is, in the program I’m using and I started messing with it, figuring out the difference. What does it do? What does it change? Then I figure out how to incorporate it.
TR in Conversation with Question:
What were you using in the beginning? I know that’s not in sound recorder.
–both laugh
Question:
I went from Sound Recorder up to Sony Sound Forge eight.
TR:
Ok, not everyone geeks out on audio production, like me!
What you need to know is that there were, let’s say better tools for the job. But, those tools weren’t accessible to Question.
It’s as though he was making a smoothie by hand while others had their sophisticated electric blender.
Question:
If you want to do something bad enough, you’re gonna find a way to do it. It’s not the clippers, It’s the barber.
You can always find a way to make it happen.
TR:
When you’re passionate about something, you don’t think about time.
Question:
I got lost in it.
I started making music, whole music out of one sound. Like take a sine wave, which is just like a tone. It’s like the tone that they use to bleep somebody out on TV. I take like a long version of that, and figure out how to make drums out of it and make a base out of it and make melodies out of it and chords and everything just in Sound Forge. Not even like a keyboard.
Learning how to basically match my peers and people who are making beats with just Sound Forge. And eventually, what I figured out is that process that I was using in Sound Forge just took too long to beat build. So I switched to Reaper.
TR:
Upping his game to Reaper, a multi track digital audio workstation, improves the time it takes to produce, increases his access to plugins and effects, but his studio is far from optimal.
Question:
I’m gonna be so real bro. We’re not selling beats like that yet. All of that is coming, you know what I’m saying. I’m gonna get to that. But right now, we just doing what we got to do.
TR in Conversation with Question:
Yo, I love that you said that. Because, you know there’s a lot of people who are like, “when I get”, fill in the blank, “when I get my technology,” “when I get that piece of software,” you know, some people would have been like, “oh, I can’t mess with this whole Sound Recorder” but nah you starting and you work on what you have. What’s that all about?
Question:
I do believe in saying when, but only in certain circumstances, like I believe in when over if, you know what I’m saying. It definitely is when instead of if. You’re going to get there, but you have to work to make yourself get there.
I believe in a lot of manifestation and I believe a lot in practicing what you need to do to get to where you’re trying to go. So you have to kind of learn what you want, you have to figure out where it is that you want to end up what you’re trying to head for. And then just make sure that you take the steps that you can take and reason every day to put your life on that path and move in that direction.
When I was young, I didn’t even really know that. But I just wanted it so bad. Like I just knew, because it was something that I was good at. It was something that I naturally was winning in. And so I just knew I wanted to push further. Because like, why would I give up on that? It made me feel good.
TR:
Question’s art includes beat making, production, and rapping. He began freestyling at 5 years old.
For the uninformed, freestyling is the rapper form of improvisation. Making up rhymes off the top of your dome. (Your head).
–Question’s rhymes play on the background
Question:
I see a whole lot of divisiveness amongst us, but I have to address obvious problems and address inequality.
I identify as a black man. There’s still a lot of work that we have to do on a lot of fronts. But right now, there‘s a lot of people paying attention. So I do appreciate that.
TR in Conversation with Question:
Do you talk about anything like that in your music?
Question:
Yeah, I’m honestly getting into that more.
I’m a young kid still. You could be 25. And you can be like, stressed, and then there tired of the world. And, like, know so much from your life experience, that you feel like you’re 40. Or you can be 25 and you can just be like, having the best time like, party and every day, just like enjoying them having fun feeling like you 18. I feel like I’m both depending on the day. I’m trying to put more of that in my music. And as I evolve, you know, the music evolves too.
I’m a very energy based person. So I like to be in the energy of whatever I’m making. And so for me, like stepping away from something is like tough.
If it’s good enough I feel like that energy will be there waiting for you.
— Question’s music fades back in then fades back to the background
TR in Conversation with Question:
Performances? Do you perform on stage?
Question:
I love performing. I recently just got to perform with a live band up in New York. The homies June and the Pushas. We did like and hour set freestyling and with some original jams in mind, and it was just sick to see a band like reinterpret my jams and like real professional musicians, drummer going dumb, you know the guitar, it’s like shredding.
Crazy on the joint. It’s like an out of body experience. I’m just able to go nuts.
TR:
That opportunity to make music and then share that creation with an appreciative audience, giving you immediate feedback, must be exhilarating. But like anything in life, there’s real pros and cons.
Question:
Honestly, a lot of times, there are many cons to get to many more pros.
There’s a lot of rejection, there’s a lot of people who tell you yes, and they play the waiting game with you.
It’s a lot of like, going through situations, and waiting on certain outcomes and having to just like, adapt and adjust on the fly.
There is a lot of like paperwork.
As a producer, you do a lot of cataloging, you get things in order. If you have your beats organized in a certain folder by like what tempo they at, you know, how fast they are, what key they are, what VOD they are, what artists they’re for, you can literally like, send your catalogue to certain labels and to certain artists while you sleep and make money residually.
TR:
Of course , there’s all sorts of pros and cons no matter the career. Question offers some words that apply to us all.
Question:
You have to be very grounded in a sense that you got to take time for yourself, and remember who you are, you got to remember what you love, who has helped you.
For me, it’s a lot about just spending time in nostalgia. If you know your history, then you remember like, why you’re doing it.
TR:
Question understands the value of having a team. That includes his mom, also known as manager during business hours.
Question:
The artist’s job is to focus a lot on creation and creativity, and figuring out the next moves and how to steer the ship.
But at the same time, I think it is important for artists and all creatives to know the business and to be involved in the business and to be fluent in what’s happening because that is a major part of what you’re doing. And that controls a lot of what you’re able to do or not able to do.
That can get real deep and that can play a big role in anxiety.
If you’re trying to create, if you are trying to focus on sending a message and an album, celebration or you know, whatever it is that you’re focused on, but you have like, the possibility of not being able to release this music looming over your head, and you’re dealing with, like, numbers and figures and different things, it can make you question what you’re doing.
Stress too much. But it’s a necessary part of what you go through.
So you got to find a way to compartmentalize it or balance it. If you go through that, that’s forward motion. Nobody who is nobody has these problems.
TR:
The concept of having a team goes beyond managing his own career. For Question, it’s about…
TR in conversation with Question:
Blind and Famous! What’s that all about?
Question:
Yo gang gang! Man, that’s the movement. That’s the mob, that’s the team. That’s my family.
Honestly, I always knew that that was something I had to do something I wanted to do something that for me, was important to what was going on. The greats that I study, everybody, they reach back, and they help out and they show love.
BIG, he got Junior mafia, if you look at Pac, he got the outlaws. TI, he got Grand Hustle. If you look at Ye, he got Good Music.
All of these people, they start with family, people that they came up with recording with and then obviously it branches out and are able to find talent from around the world and to curate people that they haven’t known, which is the same way that it started with Blind and Famous.
–rhythmic pop music begins
TR:
Are you socially ReidSponsible
–sample: “I don’t even know what that means.” “No one knows what it means!”
It’s true, no one knows what it means. Not even me. I just think it sounds cool.
That’s right, it’s time to announce the winner of the March Twitter Giveaway.
–mouths drumroll
@SandraManwille, you, are socially ReidSponsible and will be receiving your very own Reid My Mind Radio coffee/tea, man or any beverage you want to put in it, mug!
Thanks to all those who participated. And a big shoutout and thanks to Annie who by the way is ok!
Now back to the episode…
–Music ends with a bouncing base…
TR:
There’s a point in any conversation when you realize what is really meaningful to a person. You can hear the excitement in their voice, you can feel their energy shift. Raising the topic of Blind and Famous with Question, it was definitely time for him to turn up!
Question:
Me and my boy, DaMasta and my boy Migo Traffic.
We all went to school down here at GaB in Georgia. And we used to just freestyle.
We will be just like in a dorms, recording on laptops. Literally on laptop mic. You can hear a fan in the background. But all the kids, they’ll be playing the music around school and we’ll perform and people knew us and we knew we was going up from that minute.
It wasn’t even Blind and Famous back then.
TR:
They each continued working on their art. Even after graduation they remained close.
One day, Question and DaMasta were serving as engineers on a song for Migo Traffic, who used the phrase Blind and famous.
Question:
And I said, bro, we need to take that, like that’s the title. That’s it. And we just turned it into a movement, started putting out mixtapes. We had a lot of blind supporters and fans and they started letting people know what it was and it was like, Yo, what’s this movement? What’s going on?
–sample of a song: “What goes on? Well…”
TR:
Allow me to present Blind & Famous.
Of course, you already met my man, Question…
Question:
Coming out of Atlanta, the hippie, kid, man, artist and producer, curator of Blind and Famous, but one equal participant of this collective. I’m gonna pass it to my brother, my slime, DaMasta.
–rap song from B&F plays in the background
Da Masta:
I’m originally from Washington County, a little country town in Georgia. I’m the second curator of B&F.
Question:
And he is an artist. He’s hella melodic. He really on his own wave. He’s unique, I always credit him with saying that he has his own sound that’s not like anybody else I really know.
Da Masta:
I’m also an upcoming producer as well.
TR:
Next up!
–rap song begins and fades to the background
MattMac:
Yo, what’s happening? My name is Matt Mac.
I am a music producer and recording artist based out of Garden Hill First Nation up in Canada.
I’m First Nation born. I make music full time for sure.
Question:
You can go stream all his projects right now on Spotify. He’s going nuts.
— “Play the Hero Remix” MattMac Featuring Question & Label “Blind & Famous Volume 5
Label:
Label, born and raised in Jersey, I am a radio show host, podcaster. I also sing, rap. And I’m getting back into the producing side of things.
Question:
J Mouse, out of Arizona but he travels internationally. With a couple bands actually.
J Mouse:
Been a part of this collective for like two years. I do a lot of stuff in the music industry.
Question
He is a producer, primarily R&B, drill, hip hop, trap. He’s a musician.
J Mouse:
I play guitar, piano, bass, I’m a drummer, harmonica. I used to play saxophone too. I’m an engineer so I master, I do a lot of mixing. Pretty much everything, mostly within the music industry.
Question:
J mouse is like a genius, he crazy.
TR:
Let’s jump across the pond to the latest member of the crew.
P Dex:
I’m P Dex in the lab, aka the laziest producer in the world, all the way in the UK from Liverpool. Learning to do engineering and all that stuff. Mainly just doing a lot of producing.
Question:
The drill genre has been taken a lot of places by storm over the past few years. UK drill, New York drill, Australian drill. And the UK, really is who kind of innovated and advanced it.
And Dex brings us a lot of knowledge and know how, and just like, really being in that scene and connect. Shows us what’s really going on.
— Gold Fingers Sample
GoldFingas:
What’s going on? This is GF, GoldFingas.
I’m a producer. I’m also a musician. I play keys, drums. I’m a mix engineer as well. I do mixing and mastering and all that stuff. So between all of us we got everything pretty much we need in house.
I’m down here in Virginia. I’m on that Missy, Timberland type vibe. You know that boom bap stuff.
I’m the oldest member of the group. I’m in my 40s.
I’ve known question, man, since he was like 14?
Question:
No cap.
GoldFingas:
Something like that.
Me and him used to mess around in Sound Board and he showed me a few things. Ever since then I knew that this kid was gonna do something.
TR in Conversation with BNF:
And this is the whole squad, right? Is anybody missing?
Question:
Yeah, Migo traffic is missing.
TR:
I love that name! I assume he has a friendly flow or perhaps his style makes other rappers slow down or stay in their lane.
Unfortunately, the brother who first dropped Blind and Famous in a verse couldn’t join the cipher.
Alright, it wasn’t really a cipher, there was no exchange of bars or raps, but honestly, if this were in person, it would have been on. And I’m telling you right now I keep a hot 16 ready to go, just in case!
Exchanging beats, rhymes, hooks, song concepts, that’s what they do! Together, making music, remotely.
Question:
We use something like this, like a conferencing app, but the one we use is called TeamTalk. It’s real common in the blind community. We basically just go in there, and we’ll send the audio from our computer through so that if we make a beat, if we playing beats, everybody that’s using that program can hear what we’re doing.
So we’ll just bounce ideas back and forth.
We got a group text too! It’s real family oriented.
We talk a lot, through the day, people just put beats in there, put songs in there.
And then it’s like, okay, I want to get a feature on this, I want to collab on this.
TR:
The magic of collaborating is that each person brings their own creativity and idea to the track.
Label explains more about the process.
Label:
If a beat is sent, it’s open to anybody. Kind of a first come first serve type of deal. And then we all kind of come together and say “alright I think these people will sound good on it.”
It’s a thing of pushing each other. And then we use an online platform like Dropbox, and we just drop sessions back and forth to each other.
The use of technology has been absolutely beautiful to be able to get a lot of these things done.
GoldFingas:
Because we know each other so well, we know what type of tracks each other likes. As far as like if he you know, if I wanted Question to feature on something, I know, what type of stuff you know that he’s into.
And then we also kind of branch out like, we’ll try something, he’ll try something different. The creative process is organized, but it’s all over the place at the same time. So many moving parts going at once, but it’s organized chaos. I love it, though.
–laughs
Question:
We all have like hella projects going at one time. We’ll have like a few different ideas. We start making songs. And then like, we might have, Matt got a project that’s ‘bout to come out under his management. So it’s like, alright, everybody, let’s sit down, let’s write for Matt. Let’s produce for Matt, let’s make sure Matt got everything that he need. Let’s make sure that he feels good about where he’s at.
Because the thing that we always want to do is make sure that each person is getting their fair shake and getting, you know, the love from everybody as far as like, collaboration, promotion, appreciation, it’s that real reciprocal type of thing.
TR in Conversation with BNF:
That’s fire, man.
— Continues talking underneath Voice Over…
TR:
I had to ask the squad to take me through an example of the process using an actual production.
Question:
Matt, what about Run It?
–drill/rap song begins
MattMac:
That beat was produced by P Dex and the J Mouse over here.
P Dex:
Originally, me and Johnny were having a session. We were just chillin. And then I had an idea, which is the main melody that runs through the whole track. And then I said, “this is a real nice drill beat.” So I started it off and then I sent it to Johnny.
J Mouse:
When I heard PDex’s idea, I sat down, started coming up with some ideas and just kind of happened. This particular beat I do like so much and it just came out so smoothly.
P Dex:
And then he did his magic on it and as we were doing it, Matt Mac came and he heard it. And we were like “you should do something with it.” But he was, you know, hesitant because he’s never done anything in that genre.
Question:
He passed it to me.
P Dex:
Yup
Matt Mac:
Question.
Question:
Matt and I work closely on a lot of verses and on a lot of songs. So me having done a lot of drill jams in the past, he just got with me in a session and kind of let me know how he wanted to attack and where he was coming from.
I think he had the idea for the hook already. And then we just filled it in, you know, with some words and he kind of let me know what he wanted to say, where he wanted to come from.
Every time I work with any artists on the song, as a songwriter or a producer, I always want to embody their energy and their complete message. So you always getting a lot of MattMac.
Label:
Now the song is playing on Canada radio. I mean it just blows my mind how one simple thing where an artist in this collective was hesitant to do it, ends up being a song on terrestrial radio.
Matt Mac:
It’s also been played on Sirius XM too, which is fire.
P Dex:
It’s funny because it originally started all the way over here in Liverpool. Then went to Johnny in Phoenix, and then went to Question in Atlanta, and then went to Matt Mac in Canada.
Matt Mac
I reached out to my management and I was like, “we have this fire song, bro, and it only has one verse.”
And “Okay, this is pretty fire. I think I might have someone in mind.”
He got me connected to K Jones. He’s not a part of the collective. He’s actually someone who’s doing his thing here in his city, specifically, Winnipeg. It’s where most of my music videos are shot right now. Big shout out to Winnipeg. He got on the second verse and he’s been doing some fire numbers.
Label:
40 thousand views on YouTube.
Question:
You can go listen to it on Spotify too. It’s doing the same type of crazy joint on Spotify too!
Matt Mac:
That particular song was a whole team effort. This is so fire, being able to work with these guys.
TR in Conversation with Question:
When it comes to the collective thing, B&F…
Question:
Gang.
TR in Conversation with Question:
Talk to me about some of the pros and cons of working with a collective.
Question:
Yeah, man. Working with a collective helps in a lot of ways,
I believe that when you have a project, it’s always a good idea to get more than a couple perspectives on it, because the more people that you allow in that have a bit of an accomplished ear, they can let you know things that a listener is going to let you know.
If you can work on a project with a team, it allows you to really focus on your strengths, and people can highlight things that you might not know. You can point out things, and you get a lot of versatility because people bring ideas from all sides of the world.
TR:
There’s the added bonus of learning from one another. That could be new genres, styles, process and more. DaMasta mentioned he decided to begin doing more production.
DaMasta:
Man it is phenomenal. I feel like I’ve been listening to these guys a lot. It helps like with different sound selection and stuff. I get influenced in the producing side and also the audio engineering.
Question:
He picks it up quick. People go through this trash phase, like I talked about a lot, when you first start out making beats or doing anything, you’re trash. But he kind of was able to get the ear for the sound selection a lot faster than a lot of people.
GoldFingas:
It set him up for success.
Question:
Personally knowing Q the longest, I’ve always wanted to see him make beats because he always had dope suggestions. When I was making beats, he’d be like ay put this in there, add this. And it’s like, bro, like.
GoldFingas:
He be doing the most. He over here back seat driving.
TR in Conversation with BNF:
Take the wheel, take the wheel.
DaMasta:
It’s truly a blessing, man. I really enjoy it. It helps with a lot like stress or anything. Like I could just make a beat or make a song, and I just feel better.
TR:
Team, family with any sort of group, you’re going to have disagreements.
While, there’s no hierarchical structure to B & F, I asked GoldFingas as the the person with the most life experience in the squad, if he had a specific approach to problem solving.
GoldFingas:
You really got to exercise a lot of diplomacy. Instead of putting somebody down for what they can’t do, take what they can do and try to strengthen that.
TR:
Bars!
Question:
The cons, really like, it can be hard to organize sometimes. Being virtual, we don’t really have the time to get in the studio and just like chill or have a meal or just chop it up the way that I like to build with a lot of artists.
TR:
Spending time with one another in person helps build the relationships. This increases trust which can help that creativity flow.
Question is hoping there will be opportunities for the squad to build and create under one roof. He’s made music in person with DaMasta and Migo Traffic of course. Prior to Matt Mac traveling out to Atlanta, the two used the NFB national conference as a way of connecting to make music.
The technology for making music now so portable, a hotel room can be a decent substitute for the studio.
GF, AKA GoldFingas, not only uses his knowledge and experience as a producer and musician to create, he’s teaching as well.
GoldFingas:
I actually am an instructor for a company called IC music, based out of Chicago.
Shout out to Byron Harden and the crew over at IC music making things happen.
We educate blind individuals. And I think we’re actually about to start taking everybody sighted, blind, it doesn’t matter. We train them on music technology.
We teach you everything from how to use your Mac computer, all the way up to mixing and mastering, we teach you about the business.
TR:
Today there are so many more options for working with audio. both on the Mac and PC side. In fact, you even have some pretty good options on your iPhone or Ipad.
My personal choice continues to be Reaper on the PC.
Label:
It’s Label. I also want to give credit to a lot of people in the blind community from all over the world, who take time out to create accessible scripts, and add ons for screen readers that do specific things, and read screens that we otherwise wouldn’t have been able to read.
To be able to make these little scripts and add ons for us to use stuff like Reaper and get the full functionality. As if we were in a real studio working off of desks with Pro Tools, I mean, it’s just beautiful and amazing.
GoldFingas:
ProTools is also accessible.
TR:
And yes of course, today Pro Tools is accessible on the Mac, so that’s an option for many.
Even just within the past five years or so, more companies specializing in music hardware and software like virtual instruments and plugins are getting on board with accessibility. Here’s GF.
GoldFingas:
So we have people like
Native Instruments, Arturia, Ableton, these companies are approaching us and actually listening to us, listening to our needs.
And working through it and making these things accessible.
You’re absolutely right, five years ago, I wouldn’t have been able to even touch Machine and make beats and stuff.
Nowadays I could, that’s primarily what I use to make beats is Machine from Native Instruments.
Question:
Very slowly, the standard is becoming accessibility out of the box. Seamless accessibility. VoiceOver on the iPhone is a great example.
I think in another decade, people are going to be taking disability culture that much more seriously.
TR:
Often the conversation of access is about our consumption. But we’re makers too!
Access to the tools gives more of us the chance to creatively tell our stories, share our experiences and contribute to culture.
Culture can resonate through society. Influencing things like policy which can enable even more inclusion and affect more change.
Question joined up with another Reid My Mind Radio Alumni, Lachi, to even further expand his influence and that of all musicians with disabilities. The organization is called RAMPD, that’s R A M P D or
Recording Artists and Music Professionals with Disabilities
–TR voice fades into Question saying the organization’s name.
Question:
Recording artists and music professionals with disabilities.
I’m one of the founding members.
We basically trying to make sure that everybody is paying attention and taking heed to what people with disabilities need.
And we’re also trying to be a resource for people with disabilities so that they have somewhere that they can feel appreciated, accepted and find ways to tap in with the industry and get professional opportunities and places to work.
It’s a lot of professionals down with us. People that are already down with the Grammys and with the Recording Academy.
Accomplished musicians they got music out. It’s nothing to sneeze at. Make sure y’all pay attention to RAMPD and follow us @RAMPDUP_
Show love. We showing love back.
TR:
That love extends out in the form of advice to even younger artists developing their craft right now, in middle and high school.
Question:
The best thing I can say is like, have fun and try to really go to your limits. Push your limits a little bit.
Influence each other, big each other up, support each other.
Make sure everybody eating. Make sure everybody got a way to express what it is they’re doing. Because even if somebody is not an artist, they might know how to promote, they might know how to be a camera man.
Some people have low vision. Like Migo Traffic he’s one of the best that we know at promoting and just on social media because he’s real good with the graphics. He’s real good at knowing what people want to see , knowing how things are gonna come across. So there can be a different spot for all the homies.
If somebody’s gonna be there doing something, make sure they’re doing some don’t let people be around just like not contributing to nothing.
We are all influenced by the people we keep around us.
TR in Conversation with Question:
That’s dope..
You might have some aspiring rappers/musicians who are blind listening, like, damn, yo, I want to be down! How do you curate people into B & F?
Question:
We look for people that’s real hungry.
It’s just a matter of like, having some music that we can hear or having a way for us to hear your talent.
If we feel like you got a dope energy and something that’s really, really raw, you know what I’m saying, really ill, then we definitely gonna rock with you. Even if it’s not a thing where we can rock with you all the time in the collective, we collaborate with a lot of different people.
Everybody doesn’t fit the aesthetic of the collective. Or they might not want to be down with the collective, they may have their own movement. I ain’t trying to force nobody in or nothing.
Right now, people don’t have no paper sign, we might do a deal at some point for an album just to make sure everybody get the right type of income. I never wanted to feel like nobody can’t go off and get their own money. I always respect people’s own hustle.
TR:
The squad has been putting out EP’s every December and is currently up to BNF 5.
Question:
On our YouTube channel, Blind and Famous.
You can check the whole playlist, listen to the jams.
TR:
In addition to working on more music collectively as well as on their own, they’re hopeful for the day they can get out on the road for live performances.
Question:
We are a collective, We aren’t really a music group or a band.
We got a lot of jams together. But like, there’s room for everybody to shine individually. But that collective and that that full body is still very important. I would love to do you know, a whole showcase or a tour or something, you know, where everybody has a set and where we can feature each other and kind of everybody gets to direct what’s going on within their own space.
TR:
For those in my generation, the collective concept probably brings to mind Native Tongue. You know, Tribe Called Quest, De La, the JB’s. For younger listeners perhaps Internet Money.
MattMac:
They have like, a whole bunch of like producers on their team and they have like whole bunch of like artists on their team. And that’s like what we are. And I could definitely, like see a lot of similarities to us because Internet Money, like works with each other a lot. And they go back and forth with like loops, and beat collabs. And like with us, they’re an internet collective meaning. They were doing all that online.
TR:
Look I can’t lie y’all, I really enjoyed the energy of talking to the B&F squad.
This was one of those times where, I’m telling you, I wish the interviews were taking place in person.
I’m thinking it would have been a full blown cipher. Just freestylin over some beats… hmm!
— Beat starts…
TR in rap mode:
Yeah, gotta do it.
If you’ve been here before maybe it’s your first time
A little something special from Reid My Mind
Contact information, mic 1 2 check
Shout out Blind and Famous, ‘nuff Respect!
if the people want to find you, where do they go
Tell ‘em DaMasta
DaMasta:
I got you bro.
Y’all can find me on YouTube @Damasta1901 That’s D A M A S T A 1901
Twitter is @Q_DaMasta1000 And Instagram is @QDaMasta all together.
TR in rap mode:
First Nation born, my man is reppin that
Up next?
MattMac:
My name is MattMac
You can find me on youtube Matt Mac M A T T M A C. You can follow me on Instagram at MattMac online
TR in rap mode:
Producer and a rapper with much more to share
Ayo Label where you at?
Label:
@RomeroOnAir
TR in Conversation with BNF: 58:05
Where are you on the air bro?
Label:
I do two morning shows. I do a morning show for a online classic hit station. It’s actually a big powerhouse for the live 365 platform. It’s called eagle online radio and then I also do a top 40 Morning Show for a station out in Gainesville Florida. 105.7 Play FM.
So follow me @RomeroOnAir on all social media platforms Twitter, Tik Tok, Instagram @RomeroOnAIr. r o m e r o on air.
TR in rap mode:
GF from V A, with the gangsta lean
— Sample: “Gold Finger”
Nahmean!
GoldFingas:
I’m working on opening up a commercial studio here in the area.
It’s a studio and a rehearsal space. As well as a multipurpose venue.
When everybody gets big BNF has a place to record so we good.
TR in rap mode:
Here’s how you spell it, no need to guess.
GoldFingas:
G O L D…
TR in rap mode:
F I N G A S
GoldFingas:
On Instagram it’s the same thing @GoldFIngas1976
TR in Rap Mode:
Now, one had to leave , before we were done
J Mouse, my man’s always on the run
he’s a touring musician travels near and far
On twitter, @JCSteelGuitar
Across the pond, where the connection failed
He’s in Liverpool so he got to prevail
They call elevators, lifts. The vacs a jab
What’s your name, bruv?
P Dex:
Im PDex in the Lab
TR in rap mode:
The vibe is chill, no fret no fuss
Find them on Twitter @BlindFamous
The squad’s real, never artificial
–Young Hippie…
Sample from Scarface: “Who put this thing together?”
Question:
On YouTube @QuestionOfficial.
I got three EPS coming.
The first one on a hip hop vibe. The second one on the Drill vibe. The third one on like that melodic rage vibe. So y’all stay tuned, tap in with the kid.
I’m on Twitter, Instagram @QuestionATL
TR:
Question, Damasta, Migo Traffic, Matt Mac, Label, GoldFingas, J Mouse, and PDex in the Lab AKA
Blind and Famous.
You are all official, members of the Reid My Mind Radio family!
— Airhorn
What a perfect way to close out this season, Doing Your Thing With Disability!
Like adjusting to blindness, disability in general, it’s not something we actually do on our own.
When you have a squad, a team a family that you can call on to lift you up when necessary.
Doesn’t that sound like a better experience?
I’m inspired by these young cats doing their thing. It doesn’t appear to be dictated by anyone but them, together. I can’t wait to hear more from all of them as they continue on their journey.
So look, this is family now y’all, join me in sending positive energy their way.
As mentioned, this is the last episode of the Doing Your Thing with Disability season.
We will be back in June with the next season.
In the meantime, if you’re not subscribed, you should really ask yourself what you’re doing with your life.
All you have to do is hit the button that says subscribe or follow in your favorite podcast app.
Tell a friend and tell them to tell another friend to do the same!
We have transcripts and more on ReidMyMind.com.
Alright, now if you’re family, I need you to stop what you’re doing right now. I’m dead serious.
If you family, I need you to stop what you’re doing right now and say it with me…
That’s R to the E I D…
— Sample: (“D!” And that’s me in the place to be!)
Like my last name.
— Reid My Mind Outro
Peace!
Question:
Gang, Gang!
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Tags: Artist, Blind, Blind & Famous, Family, Hip-Hop, Melody, Music, pro Tools, Production, R&B, Rap, Reaper, Squad, Team Posted in Blindness | Comments Off on Doing Your Thing With Disability: Question Living Blind & Famous
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Wednesday, May 26th, 2021
To conclude this first season of the podcast which fully focused on those adjusting to blindness, I share a few thoughts from guests featured so far in 2021. Some of these comments were not included in the original episodes.
This episode also includes some of what’s in store for the next season beginning in July. Plus, I too am personally headed into a new season of my life.
Please rate & review Reid My Mind Radio on Apple Podcast. It helps more people learn what we’re doing over here!
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Transcript
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TR:
Greetings! My name is Thomas Reid, host and producer of this here podcast called Reid My Mind Radio.
We’re just about half way through the year. And this year has been full of emotions. I’m realizing now that 2021may be the start of a new season in my life.
Later this year, I’m sort of joining that category of parents known as empty nesters.
Both of my baby girls are moving on in their education in pursuit of what I hope is their passions. my oldest is headed to grad school. Shout out to Temple University and just a few miles away, her little sister will be at Villanova. Proud Dad in full effect.
Things are really going to be different around here.
— Audio – Knock on the door
TR:
Uh, come in.
Marlett:
I need you to come wash these dishes please!
TR:
Okay, I’ll be right there.
Maybe not that different after all.
I’ll be right back y’all!
Audio: Reid My Mind Theme Music
TR:
Creating content for people adjusting to blindness and disability has some inherent obstacles to overcome.
For example, much of my targeted audience may not even be online. After all, they need to learn how to use the Access Technology assuming they were familiar and comfortable using computers prior to their loss of sight. If they were not, well that could be a very frustrating challenge that not everyone is willing to take.
Then there are those who don’t even want to see themselves as Blind and definitely not disabled so why in the world am I including that in my description. Compelling people impacted by all degrees of blindness and disability?
I’m sure some may not even think that’s possible. “What’s compelling about a person with a disability?”
In this first part of 2021 I really wanted to highlight exactly that. I wanted to really make sure this podcast is being a resource for all those new to blindness. When I say a resource, I don’t mean providing steps 1 through 10 on completing a specific task. I mean the sort of resource that stimulates that confidence and belief in the idea that it’s possible. not by me shouting at you and telling you you are a winner and coming up with a cool slogan but rather, introducing you to the cool people who are either doing it or have done it already.
One great example of what’s possible when we change our perspective is my friend Cathy Kudlick. Among many things, she discuses the important role history played in her moving from denial to where she is today.
Cathy:
I direct the Longmore Institute, it’s a cultural center that tries to put disability at the center of all culture and academics. It celebrates scholar activism, and tries to get people to think about disability as a creative, generative force for change, and to really revolutionize social views around disability.
We believe in a world where everyone thinks that disabled people, they get better, and that the world is better because of disabled people. And that’s a very radical idea, but we do it through the film festival, we do it through lot of online programming over the past year with different cultural groups and trying to look at intersections and look at convergences and all of these ways that di sability is not just pity and tragedy and trauma and terror and all of those, but to really see it as a creative force.
TR:
Where we get to in our thinking about disability is going to be based on a variety of factors.
Like how we process information and our ability to be self-aware.
Pramit Bhargava, founder of the Louie app, was so generous with his sharing. He admitted he never considered disability because he was caught up in his own climb up the corporate ladder.
He also realized how he wasn’t putting in the work that he needed to do which included learning how to use a screen reader as well as other blindness skills.
Pramit:
In fact, If I can Thomas add to that, sometimes what happens We process somebody as low vision, or no vision as saying, oh, he cannot see. But I think important thing is what is going on in that person’s mind. Right, and how do we process it? How do we deal with that condition? I think that’s the bottom line.
TR:
In this season of Reid My Mind Radio, I really wanted to bring you a different idea of what many people often consider when they think of blindness and disability.
Disability impacts across race, gender, sexuality. However, so often in the media we only see a specific white cis gender privilege experience.
Similarly, we often see a very specific version of success. Usually that is based on financial statements, awards and recognition.
Well, either I’m going to be a part of the problem or I’m going to set out to actively do something about that.
In March I was really happy to bring you an episode featuring Lachi. She’s a musician, producer and just someone who does whatever she wants to do and of course I say that with the ut most respect.
During our conversation she shared a bit on success and it’s definitely something I can rock with!
Lachi:
And when I say success, I mean, right now people would consider me successful just because, you know, I’ve been doing international songs and touring and I’m all over the place and do a lot of great things with a lot of spins. And being on the Grammy panels, but honestly, my success started when I was just able to come out of my shell and showcase to everybody that I’m really good.
TR:
Similarly when I met young brother Envizion who in his own words said he owns everything about his blindness. We saw how he made a clear decision based on what was important to him immediately after losing his sight. That continues as he pursues his passion. To me, that’s an important level of success that needs to be recognized.
Embracing every part of yourself and staying focused on your goal.
Envizion:
I have this tag where I say (singing…) I don’t see nobody.
It’s a hater blocking term. Yeah, really. I’m blind. It’s all of that. And when you’re on your way to the top two, you don’t want to be focused on everybody.
— Applause …
— “We interrupt this program for a special news bulletin!” (Classic News Announcer)
— Applause continues… “Can you feel it?” (The Jacksons, Live in Concert)
TR:
That’s the message that we’re sharing!
— Applause continues… “Can you feel it?” (The Jacksons, Live in Concert)
TR:
I’m talking about this podcast!
— Music begins, Cool up tempo Hip Hop beat
TR:
For whatever reason, rating and reviewing the podcast on Apple Podcast actually helps.
Right now, we have a 5 star rating. That means if this was food being cooked up twice a month, it’s considered delicious.
Then there’s the actual reviews. Check out what people are saying:
Pioneer 94 says: Love the AJ episode it’s so well produced. Can’t wait to listen for more.
Angel Sweetheart says: Download and start listening now!
This podcast is very well put together. A strong activist in our community. Face with heart shaped eyes, grinning face
Grinning face with starry eyes, hands with medium dark skin tone raised in celebration, thumbs up with medium dark skin tone, flex bicep with dark skin tone
Thank you so much and I love the emoji’s.
shnupperdoodlez says; Great podcast
Engaging light hearted and fun, even when talking about the tough stuf. I enjoy popping in to learn more. your voice is needed out here
Hey Shnuppledoodlez, I appreciate you, but I’m going to need a bit more commitment from you. You are family so I’d expect you to be here on a regular basis. I miss you when you’re gone too long!
Blind Widow says This man knows his topic
I highly recommend this podcast to help people learn about disability and blindness and become comfortable with it and in all aspects of it.
It affects every aspect of our lives.
Ffor me a woman who is blind, acceptance in the arena of online dating as an older adult, the more normal people see us the better it is for everyone.
Blind Widow, I see you as super intelligent, powerful and go ahead with your bad self in the online dating arena. You’re a Gladiator, but don’t hurt them out there too badly love.
I hope I’ll be able to see more 5 star ratings and even more cool reviews. And go ahead and feel free to throw those emoji’s up there. You know that fire, raised fists, hearts and all that.
— Music ends abruptly.
— Now we return back to our show (Classic News Announcer)
TR:
Success is getting to know yourself and being comfortable with that person. Acquiring a disability later in life can feel as though you have to do this all over again.
It goes beyond the emotional. Catarina Rivera aka Blindish Latina recognized a real need to consider her blindness when moving through life.
Catarina:
I just started to see disability as something that I would incorporate into my life decisions, but not let it dictate my life.
When I was in college, the first thing that was happening to me with night blindness, and I had some issues with peripheral vision, as well. And I remember that I decided not to drink alcohol, because I didn’t want to impair myself any further, I saw that people were really cutting loose and partying. I remember thinking to myself is it’s every person for themselves here, I’m not gonna, I’m not gonna get caught unaware, because, you know, I was a freshman.
My friends would help me navigate parties, I would dance, I would focus more on dancing, because I couldn’t hear people when the music was loud, and I love to dance. It didn’t stop me from having a good time. And making friendships and living life.
TR:
Whether disabled or not, chances are we experience something in life that changes our course. Most people I know had different plans for their lives. Yet, looking deeper, you may realize that your life contains the things that you were actually seeking. Love, friendships, opportunity
These episode make up the first season of 2021. All focused on that adjustment experience.
Lawyer and fellow podcaster Qudsiya Naqui beautifully wrapped up her episode and the season with some thoughts that can only come from someone who has been through their own adjustment experience.
Qudsiya:
Everyone has their own journey and their own experience and their own way of going through those stages of grief and getting to the other side, or whatever the other side looks like, and that’s okay. And you have to be kind to yourself, but know that there’s a community waiting for you. And there’s a lot of possibility and that you are a whole person. And your blindness is a part of that. And it is a really beautiful part of that. That’s something that you should honor about yourself.
TR:
Honor about yourself. I really like that.
Do you ever consider the decisions that we make that actually dishonor ourselves? It could be decisions based on money alone, how we spend our time or how we perceive our own value.
Honoring ourselves, that’s what this podcast is all about!
If you missed any of the episodes this year, I truly encourage you to take a listen.
Going forward in 2021 , we’re touching on topics. We’ll start with Audio Description. Now, at first you may think, wait, what more can we talk about with AD?
Well, I guess you’re going to have to wait and see. You know, it’s right there, but in order to really get into it, you have to Flip the Script.
I’m taking the month of June off. The podcast will be back in July
To make sure you don’t miss anything, my suggestion is that you follow the podcast on your favorite platform. Apple, Spotify, Google, whatever man!
You can also find it at ReidMyMind.com where we have all the transcripts and other resources too.
Now all that’s left is for you to properly spell that. Let me help you… it’s R to the E I D
(“D! And that’s me in the place to be!” Slick Rick)
Like my last name.
Audio: Reid My Mind Outro
Peace!
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Tags: Adjustment, Blind, Change, Disability, Family, Honor, Podcast, Season Posted in Audio, Blindness, Family, Fatherhood, General | Comments Off on A Season for Honoring Ourselves
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Wednesday, February 13th, 2019
This past January marked the anniversary of my becoming Blind. For most, this doesn’t sound like something to celebrate. I disagree. And in this episode I invited the three most important people in my life to reflect on the past 15 years.

It’s not just a personal reflection. Rather something I think can be of use to anyone in the early stage of vision loss. Take a listen and hear how much there is to celebrate.
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Transcript
Show the transcript
TR:
Welcome back to another episode of Reid My Mind Radio. I’m your host and producer T.Reid. In addition to bringing you profiles of interesting people impacted by blindness, low vision, disability, I also use this space to share my own experience with vision loss.
January 2019 made 15 years of being blind. I thought about this on the day that marked the event, the anniversary of my surgery. After reflecting for some time I decided it should be a celebration. So I invited three of the most special people in my life to join me.
And it wouldn’t be a true celebration without you.
That’s up next on Reid My Mind Radio.
Audio: Reid My Mind Radio Theme Music!
Audio: “It’s Our Anniversary”, Tony Toni Tone (Instrumental)
TR:
Today, I’m celebrating a gift of 15 years.
I know celebrating blindness seems strange to some so let’s make this clear right now, I’m not celebrating loss.
Audio: “Do you know what today is…” ” Anniversary!” from “It’s Our Anniversary”, Tony Toni Tone
TR:
Interesting fact, most marriages where a partner experiences a disability, end in divorce.
I know a little bit about marriage and disability, but I invited a special guest to help me think about this subject.
Audio: “The Baddest Chick”, Trina
[TR in conversation with Marlett:]
Can you please just state your name for the record?
Marlett:
Marlett Reid
[TR in conversation with Marlett:]
And who are you?
Marlett:
I’m the baddest chick!
Audio: As the music gets louder …
Marlett:
I’m your wife!
TR:
First, I asked Marlett to talk about what she felt were the main challenges to relationships impacted by blindness.
Marlett:
One of the challenges would be communicating. Which is considerably hard if that’s not something you normally do. And even between us we needed to be a little bit more gentle with each other’s feelings so that the other person can hear and then once that takes place then I think both parties would be able to work together. I think that was a huge challenge for us. Being able to work together or to hear each other because of not fully understanding how to communicate.
TR:
Poor communication impacts any relationship. Now take away the most relied upon method of communicating among sighted folks. That just enhances any existing problem.
Then there’s external forces.
Marlett:
People can be really rude!
They look at us as being different and their just curious. I remember it was our anniversary and we went to Atlantic City and we were online and waiting to get into the restaurant or it was a comedy club. I leaned in to tell you something and you bent down and the two women behind us leaned in as well. Laughs!… to hear what it was I was telling you or to see if they could read lips. And then I started telling that they’re leaning in… laughs… they’re leaning in to hear what I’m trying to say to you. This is what I was whispering to you.
[TR in conversation with Marlett:]
TR:
Laughing.. And what did I say…cause I know I probably said something stupid!
Marlett:
I know you were fascinated by it. You were like “seriously!”
[TR in conversation with Marlett:]
Yeh, I didn’t know!
Marlett:
Right. But that wasn’t like the first time which is why I told you. it was way more than once…
Or, we’re walking down the street and especially if it was men. They weren’t rude or anything, they would get out of our way . They were respectful in that regard. Not trying to mess with us or anything but they would just stare at you. I would look at them and then they would acknowledge me.
They would just stare at you!
[TR in conversation with Marlett:]
… long pause
So wait are you saying women don’t stare at me?
Marlett:
Laughs… Yeh, they stare at you too sweetheart.
[TR in conversation with Marlett:]
Ah, thank you Hun!
Marlett:
There was the time the woman tried to give you her number. You thought I didn’t know.
[TR in conversation with Marlett:]
You making this up… Long pause…
Did that really happen?
Marlett:
Such an idiot!
[TR in conversation with Marlett:]
(Regarding the men staring)
What do you think that’s about?
Marlett:
You look like them. Yet you don’t.
And the fact that you look like them kind of bother’s them. They’re fascinated like how are you able to do this and that. There’s many things that are probably going through their mind, but they’re still freaking rude.
[TR in conversation with Marlett:]
Yeh! Now the ladies they stare for different reasons!
Marlett:
Because they think you’re hot. mm hmm!
[TR in conversation with Marlett:]
Thank you sweetheart.
Marlett:
You’re welcome!
[TR in conversation with Marlett:]
I appreciate that. Do you want to share what we came up with because I always thought that was a great response to those types of situations. On how to handle it when people are leaning in to our conversations. You want to share what we came up with ?
Marlett:
It’s G, G rated! (Referring to the podcast.)
TR:
Putting my begging for compliments and attention aside, did you notice that. Listen again!
Marlett:
They look at us as being different.
TR:
She could have said they look at you as being different, but she didn’t. She said us. Just an observation.
[TR in conversation with Marlett:]
We know that relationships are tested during times of all types of hardships. We had a lot of things going on at the time that people say are the most difficult things to deal with;
We bought a house, you were pregnant, my brother passed away and then we found out I was going to be Blind.
Marlett:
Yeh!
[TR in conversation with Marlett:]
If you could kind of go back to any point in these 15 years, is there anything that you would tell yourself then that you think might be helpful based on what you know now?
Marlett:
I think I would tell myself to know the imp0ortance of total acceptance.
[TR in conversation with Marlett:]
Acceptance of what, what does that mean?
Marlett:
Finding out that you were going to be blind just to accept that. Understand that is the way it’s going to be. He’s going to be blind. So go from there, what are you going to do now? Not try to find a cure. What are you going to do? How are you going to live your life? That’s the important thing.
[TR in conversation with Marlett:]
You’re saying you sent time trying to find a cure?
Marlett:
I would say probably about three months or maybe a little bit more. I would go downstairs in the basement that’s where we had our computer at the time
[TR in conversation with Marlett:]
Heh! And it was cold down there too!
Marlett:
agrees)
It was really cold and I had contacted a lot of Doctors. I got responses back. If they didn’t tell me what I wanted to hear I’d continue.
[TR in conversation with Marlett: ]
Wow!
Marlett:
You see some of these people and they saw their wives for the first time. They have the glasses they put on and they
[TR in conversation with Marlett: ]
They had that back then?
They were working on it back then and I knew about that. I would see if you were a candidate.
I would tell my story . I got a lot of responses.
[TR in conversation with Marlett:]
What did they say?
Marlett:
One Doctor I think he realized that I was contacting almost everybody. He said to me.. let me explain something.
They would need the Optic nerve and you didn’t have the Optic nerve on the left or on the right. There was absolutely nothing they were going to be able to do. He was trying to let me know I could stop writing everybody and (laughing ) I guess stop annoying them. Although he didn’t say that. He really went into detail and I think that was my last one I got and then I stopped.
[TR in conversation with Marlett:]
So if you’re doing this and somebody’s telling you to accept it, I don’t think that would have done anything for you. Just the words, like what would have made you…
Marlett:
No, that would have done it and I’ll tell you why. No one was telling me anything. They would tell me… “Oh I’m so sorry!” “Oh you poor thing” I didn’t want to hear all that. If someone sat me down and said you’re trying to find this cure that’s not there when your husband’s there you just need to accept him. If it’s meant to be, if there’s going to be something you know you’ll come along and you’ll find it. But not to sit down here and spend hours and hours because I had no one to talk to. No one understood. I was just annoyed when they did say something which was usually something stupid.
TR:
15 years later, I can see the value in celebrating all aspects of My adjustment.
Remembering the good and bad.
All of the thoughts following the realization that I would never see again. The things I naturally thought I’d miss. The inability to see a future.
After a while though, there were breaks between consecutive days of feeling that way. Bridged by small successes along the way. Days that included accomplishments, random laughs and even short glimpses of hope.
A bit more confidence returning every day. Even if I didn’t realize it at the time. Like the realization that the things I thought I’d miss weren’t as important as the things I still had.
Like my baby girls!
A 6 year old.
[TR in conversation with Riana:]
Please state your name.
Riana:
My name is Riana. (Sounding tired or sad…)
[TR in conversation with Riana:]
Ah, what’s the matter Riana… (baby talking voice…)
Riana:
Laughs… shut up!
[TR in conversation with Riana:]
laughs… For the record, how old are you?
Riana:
21.
[TR in conversation with Riana:]
What happened to 21 Honey!
Riana
No, it was 20 Honey! And 21 is 21, 21, 21 cause that’s what 21 Savage says. Duh!
TR:
And that little baby who was born just prior to me losing my sight.
Audio: “Hi my name is Raven!”
TR:
Well, that was her at about 3… here she is now.
Raven:
Hi, I’m … (laughs)!my voice cracked! Hi, I’m Raven!
TR:
Two baby girls and two separate experiences of my blindness. Well, maybe some overlaps.
The differences seem expected. One knew a father with sight the other never really did.
Let’s start with Riana.
I asked both of my daughters to give some advice to a little girl who is experiencing what they did as a child of a parent who becomes blind.
[TR in conversation with Riana:]
She’s dealing with issues that you did deal with . People who stare.
Riana:
Mmmm!
[TR in conversation with Riana:]
What would you say to her in terms of dealing with those types of things.
Riana:
I’d say first off, I completely understand what you are going through, because I deal with it all the time! (Expressed forcefully)
[TR in conversation with Riana:]
What is it that you deal with?
Riana:
People staring at my father. People staring for too long. That’s what the problem is…
I feel like… (exhales in frustration) I’m trying to get my words together because my temper’s coming up! I don’t want people to view me as such!
[TR in conversation with Riana:]
Ah, so you get angry.
Riana:
I don’t get angry. I get annoyed.
[TR in conversation with Riana:]
About?
Riana:
About people. I’ll be blunt. People just don’t know stuff. Their trying to learn because they’ve never seen it before. I don’t even mean a Blind person. It can be anything. I stare at things some times. You might stare at things.
[TR in conversation with Riana:]
Laughing… No I don’t …
Riana:
I get it. I’m talking to that little girl.
[TR in conversation with Riana:]
Oh, ok!
Riana:
Saying that like she might stare at things too. Everybody stares
[TR in conversation with Riana:]
What do you think the difference is between a normal stare and a stare that becomes intrusive?
Riana:
When you stare too long! When you’re staring at people just doing regular Things. Let’s say your father has a guide dog. You’re looking at the guide do and you’re like ok this is interesting this is new, well maybe I’ll Google this and then you stop staring. But when you’re just staring a person if you literally turn the table clearly that would make you uncomfortable. Stop doing that!
I’m trying to do like the four principle things and one of them is don’t take things personally but when people are in your personal space I’m going to take it personally!
TR:
Riana’s passionate about this subject.
She’s referring to the book by don Miguel Ruiz, called The Four Agreements.
Riana:
You have every right to take it personally, but don’t let it hurt you because you have to understand that it’s all on the person and not your father or mother who lost their sight. And I know for a fact that I knew that when I was younger but I did not know how to communicate that to you Daddy because sometimes I thought that, you did say that, that I was embarrassed by you but I wasn’t . I was just annoyed by people. That’s literally been me since day one. I don’t like when people are r nosy. When we go to all white places like the diner and I would get mad that people stare. People were not staring because you were Blind people were staring because we were Black and that makes me mad.
[TR in conversation with Riana:]
Laughs.
Riana:
But I’m not embarrassed. I’m serious, I’m not embarrassed to be Black.
[TR in conversation with Riana:]
No doubt!
Riana:
You know what I mean. That gets on my nerves when people are so intrusive. I can be quiet and shy, but I do have a very strong opinion about almost everything in life so I sometimes want to communicate that opinion to these people. Stop looking. You want to learn more, YouTube. There’s literally the whole entire internet for you to learn. Or if you want to learn more come talk to him. Like ask him some questions that are not offensive you know what I mean, think before you say. So that’s what I would tell to the girl. If you really truly have a problem and they’re really staring you can go up there and talk to them and say like hey if you have some questions you can come up and talk to my father or my mother. But if you’re not going to ask the question stop staring, cause you got a phone!
[TR in conversation with Riana:]
Got a phone as in you can Google it!
Riana:
There’s computers. If you don’t have a phone or a computer there’s a local library. Like come on! There’s so much knowledge you can get! (Said very intensely!)
[TR in conversation with Riana:]
Ok, alright, alright! Easy easy, woosa!
Riana:
Woosa!
The two laugh…
Riana:
Daddy I’m rocking back and forth…
The two laughing!
It just gets on my nerves some times.
[TR in conversation with Riana:]
Ok, so now what would you say to the parent. Because you said something interesting that I assumed you were embarrassed.
Riana:
You did. All the time!
[TR in conversation with Riana:]
Laughs…
Riana:
I’m serious you did.
[TR in conversation with Riana:]
I don’t know about all the time but, but ok, ok! Part of that is because you were too young like you said to communicate back.
Riana:
Communicate how I felt!
[TR in conversation with Riana:]
So what would you say to a parent?
Riana:
That sometimes kids don’t know how to communicate how they feel. Sometimes the other person doesn’t know the words to say about the situation.
TR:
Good advice and the whole idea that the problem is with the person staring and not taking it personally… I love that.
For Raven, who was born right before I became Blind there’s no change, nothing to really adapt to. Having a Blind Dad, well that’s just…
Raven:
Just like having a Dad but he can’t drive me places. Laughs… Like that’s it. That’s the only difference.
TR:
Normal
Raven:
I thought everyone had a parent that was blind.
[TR in conversation with Raven:]
Laughs…I don’t know why that makes me laugh.
Raven:
I don’t know either.
[TR in conversation with Raven:]
It’s cute and it’s also… I think my child needs help.
Raven:
I really did.
[TR in conversation with Raven:]
No, I’m just joking!
Raven:
I have cousins. I did not process this thought.
[TR in conversation with Raven:]
No, but that’s cool though!
TR:
Laughs…Normal is in the eyes of the beholder!
Now look! Don’t let her calm approach fool you.
[TR in conversation with Raven:]
What were the questions that you got from school?
Raven:
I remember getting annoyed at certain questions because people would ask really stupid things.
Like “How does he eat?”
Like with a fork!
If someone asks like how you lost your sight, I’d be like oh cancer. I would be fine answering those types of questions. But yeah, they either ask stupid questions or it would just be like how did he loose it.
[TR in conversation with Raven:]
Nobody was like you know, teasing or nothing like that?
Raven:
I would have punched them!
[TR in conversation with Raven:]
Ok, I raised you right!
Raven:
Laughs!
TR:
Raven’s advice for that young girl who’s parent is newly Blind is a little different.
Raven:
Well, I’d tell the child that their hearing is advanced so you can’t get away with anything. So don’t try it!
[TR in conversation with Raven:]
Laughing… Oh my goodness.
Raven:
No that’s an actual thing. You lose your sight other sights (senses) get hire.
[TR in conversation with Raven:]
I pay attention. No, no it’s not!
Raven:
It’s a thing. I learn that every single year in Science.
[TR in conversation with Raven:]
They are incorrect!
Raven:
It’s like if you’re trying to listen to a conversation and there’s a bunch of conversations going on around you and you’re listening to that one conversation and you’re focused on that one.
[TR in conversation with Raven:]
You’re focused. Nothing increases.
So for example. If you have a radio in here, right. That radio only goes up to a certain volume.
Raven:
But if you plug a speaker in…laughs…
[TR in conversation with Raven:]
Laughing… No but , just because that speaker loses a button doesn’t give you an extra speaker.
The two laugh together.
Wow, my own daughter has that false belief.
Raven:
I was told that every single year of my life.
[TR in conversation with Raven:]
By who?
Raven:
My science teachers. I’d tell you the stories back in the day how like every time we’d talk about …
[TR in conversation with Raven:]
Senses?
Raven:
Senses! I’d be like hey guys my Dad only has four… laughing…
But we’d always talk about the senses and they’d be like if you lose one of your sense the other ones are increased.
[TR in conversation with Raven:]
No, it’s false!
Raven:
Did you feel that punch!
[TR in conversation with Raven:]
Yes.
Raven:
Exactly, you would not have felt it if you could see!
The two laugh…
TR:
Not only is there false information and stereotypes, but if you think about the way the word blind is used and it’s understandable why people can have a hard time accepting blindness.
More often used to describe everything other than the loss of sight.
Audio: Mix of songs featuring metaphors for blind…
“I’d rather go Blind” Etta James
“When a Blind Man Cries” Deep purple
“Channel Zero” Public Enemy begins with “You’re blind baby, you’re blind from the fax cause you’re watching that garbage!
TR:
Pair blind with other disabilities and oh boy!
As in you’re deaf, dumb and blind.
It’s no wonder that For many adjusting, blind becomes a word to run away from. I don’t think I ever had that choice.
Avoiding the word Blind was the equivalent of trying to pretend I was sighted. I just wasn’t going to be able to get away with that so why even bother.
the word that I did have some feelings about was disabled. I felt as though it ruled out all of my possibilities. Where blind was specific to my eyes, disabled seem to imply that there was nothing about me that worked. A disabled car sits on the side of the road until taken away and or repaired. Athletes on the disabled list don’t even get to suit up for a game. Once again restricted to the sidelines.
But, adjustment is ongoing. You learn new ways of thinking about it, new philosophies.
Like choosing how you view disability.
Do you see it from a medical perspective? As in we need to heal or cure it in order to fix all of the related issues.
If we cure that blindness you won’t need a screen reader. Just fix those legs and who needs curb cuts for wheelchairs. You don’t need wheelchairs.
What about an alternative perspective?
Like the problems with disability stem from the lack of access and societies negative perceptions and expectations.
I also became familiar with person first language as in a person with a disability versus identity first as in Disabled person, Blind person.
This is recognizing Blind as an additional characteristic.
Riana:
If somebody asked me what my father is, you know I might say he is Blind. He’s Black. He’s bald. My father’s probably why I’m this. Or he taught me this or he’s my best friend, I might say that!
[TR in conversation with Riana:]
Ah, thank you sweetheart.
Riana:
I might leave the baldness out but I’d say he’s Black and Blind.
[TR in conversation with Riana]
You changed my Netflix profile to say that!
Riana:
Laughs.. Yeh, baldy!
The two laugh…
TR:
But, isn’t blindness and disability something I’m supposed to overcome?
Audio examples from news segments bridged by static signal…
“He overcame the odds and conquered his disability in the most incredible way”
“Made his disability anything but a disability”
“Doesn’t use her crutches as a crutch”
TR:
We hear things like ” You do that so well I forget you’re blind Based on the common belief around disability, around blindness well, I know I’m guilty of thinking it was a compliment. But it’s not!
More than likely, it’s not said with bad intent. No, they believe this based on their image of blindness. To them not seeing it says something good about you and them. Similar to the false idea that being color blind is helpful to race relations.
I want you to see my blindness. I really want you to know what it actually means and get rid of the nonsense we’ve been fed.
[TR in conversation with Marlett:]
Do you think you look at blindness differently after 15 years?
Marlett:
Yes.
[TR in conversation with Marlett:]
Tell me.
Marlett:
Blindness affects your eyes and that’s it. Not your mind. Not anything else. You just got to do things differently.
TR:
My blindness is now a real part of me. Like other aspects of who I am it’s reflected in the things I do.
My blindness is in the way I walk down the street. And yes, my blindness still has a bop to it!
My blindness is in how I raise my kids. The way my family and I travel. It’s right here in the way I produce audio.
I once thought my podcast shouldn’t be limited to my blindness.
I thought certain topics were blindness related and then there was everything else…
One in 5 people have a disability. Blind people participate in every aspect of life.
Politics, Art, culture, sex.
Me producing and hosting means I can bring a blindness perspective. It doesn’t mean I have to, but there’s no real reason I can’t or shouldn’t.
It’s a part of me and therefore a part of the things I do.
It’s not all of me but a part. I mean, I’ve been blind now for 30 percent of my life.
The name may not reflect it out right, but this is a disability podcast. It’s a blind podcast. It’s everything that I am. It’s Black, it’s Hip-Hop! Those who know can hear it.
It just is because it’s me and it’s my thing!
Audio: It’s My Thing, EPMD mixed into 7 Minutes of Funk…
I don’t consciously recognize my anniversary every year. If it makes itself present, cool! I acknowledge it and personally reflect. Would I like a cake and full celebration? Who wouldn’t like cake?
But I want this celebration to not be mine alone.
I’m thinking of those going through something similar.
For many, the idea of becoming blind is worse than death. That’s not hyperbole.
Different polls have shown this to be true for many.
I’m alive and kicking so I guess I can’t truly make the comparison.
I know not everyone consider celebrating 15 years of being Blind…
Marlett:
If I had to be honest, that’s not how I looked at it. Although I tell you, I remember the prayer that I had. I don’t care what happens, just don’t take him from me. I’m going to start crying. Just don’t take him from me.
[TR in conversation with Marlett:]
Mmm! That’s cool… that’s cool!
Marlett:
I just remembered that in that moment. It came back to me.
[TR in conversation with Marlett:]
Thank you baby, I appreciate that! Nice job!
Marlett:
Thank you!
TR:
This is a celebration of adjustments, acceptance , love and life!
[TR in conversation with Marlett:]
Instead of being in the cold basement researching. If 2003, 2004 there were a podcast called Reid My Mind Radio and you had a fly dude kicking’ the ballistics… laughs… No seriously, if there were a podcast for you to listen to would you have liked to hear from other people on a podcast?
Marlett:
Absolutely! I was, I was hungry…
[TR in conversation with Marlett:]
I think that was too, that’s too sexy Marlett. You can’t …
Marlett:
I didn’t try to be sexy…
[TR in conversation with Marlett:]
I know but you can’t say hungry. there’s no way I can put that on the air like that. You got to explain it again.
Marlett:
I was looking for something, anything…
[TR in conversation with Marlett:]
Mmm! There you go again. You see, you’re making it sexy. Stop . Just say it without being sexy.
Marlett:
I was looking for answers and there were none. There was no one there to… I felt like to guide me through this journey.
[TR in conversation with Marlett:]
Long pause…
I’ma guide you through this journey! Laughs… fade out.
TR:
Hollaback…
We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343
I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.
I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.
Another way to show your love if you like what you hear…
Subscribe!
Apple Podcast, Spotify, Google Podcast Sound Cloud, Stitcher, Tune In Radio or wherever you get podcasts.
Visit www.ReidMyMind.com
So there’s no confusion,
… TR in unison with Marlett:
that’s R to the E I D like my last name!
Peace!
Hide the transcript
Tags: Adjustment, Celebration, Disability, Empowerment, Family Posted in Advocacy, African American, Audio, Blindness, Family, Fatherhood, PWD | Comments Off on Celebrating Loving & Living Blind
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