Posts Tagged ‘Travel’

The Adventures of Penny Baking Blind

Wednesday, November 7th, 2018

Penny in the kitchen rolling dough!
Now that we finished meeting the 2018 Holman Prize winners, it’s a perfect time to check in with our 2017 winners.

Leading off the trio is host of Baking Blind, Penny Melville Brown. Her Holman Prize took her to 6 continents where she did a lot more than cooking.

Hit that play button below and then travel down a bit further and subscribe to the podcast. You want to make sure you get what’s in store. Then go do the same over at Baking Blind on YouTube.

Listen

Transcript

Show the transcript

Audio: Guess Who’s Back-Once Again… A T.Reid Re-Mix!

TR:
Incredible indeed!
I’m referring both to our last three episodes featuring the 2018 Holman Prize winners. And today, we go back…
Audio: Chuck D says Back!

back to catch up with the 2017 Holman Prize trio.

I’m T.Reid. Allow me to welcome you to the podcast.

Reid My Mind Radio is simply my space to share stories that you may not get anywhere else. Well, at least from my perspective and told in the way I like to tell them. Occasionally I share stories around my own experience of blindness.

Maybe you wonder why? Well, why not! Everyone has a story to tell. It’s up to you to find the relevance, the meaning. It’s up to me to find the focus, keep it moving and hopefully make it sound cool.

There’s a few ingredients to doing that, the first is my theme music!

Audio: Reid My Mind Radio Theme Music

TR:

Listening to podcasts can be an intimate experience. Just think about it, if you’re wearing earbuds or headphones especially, the person speaking is right there. As a listener I know I have come to feel as though I know the person on the other side of the recording.

As a producer, not only do I get to interact with the guest during our conversation and email exchanges, I’m editing their words. By the time you hear the end result I listened to what they had to say for hours.

Add in the fact that my guests are often impacted by disability so we have a shared experience.

Well I’m not ashamed to say that I often become very fond of guests. Not in a creepy way, rather I become a fan, a cheerleader on the sideline routing for their success.

The three 2017 Holman Prize winners are a great example of this. Each having a specific aspect of their life in common with mine. So watching them from a far fulfill their Holman Ambition was exciting and in some way I felt emotionally invested.

In the next three episodes I’m bringing you an update directly from Ojok Simon, Ahmet Ustenel and we begin with Penny Melville Brown.

PMB:
Is that you?

[TR in conversation with PMB:]
That is me! (Laughs…)

PMB:
Helloooo!

[TR in conversation with PMB:]
Hello Penny, how are you?

TR:

Yes, she was expecting my call, but who wouldn’t like such a kind greeting. Plus, I love the British sayings….

PMB:
I actually had it in my hand so I wasn’t going to make a big breakfast of it.

[TR in conversation with PMB:]
Laughs!

TR:

Remember Penny Melville Brown? She’s the 2017 Holman Prize winner and host of Baking Blind where she cooks up new recipes each episode giving viewers an empowering taste of blindness and disability.

Here she is from our original 2017 episode

PMB:

My first career was in the Royal Navy.

[TR in conversation with PMB]
Why did you want to enlist in the Royal Navy in the first place?

PMB:
I needed a complete change of life.

[TR in conversation with PMB:]
What were you doing prior to that?

PMB:

Well I was at university so I completed my degree. I done a postgraduate qualification. I was due to get married the following year and my fiancé was killed in a car accident so I decided that I needed a complete change.

[TR in conversation with PMB]
Oh, I’m so sorry!

TR:

When I spoke with Penny and the other Holman Prize winners, it was shortly before they actually received their prize at the San Francisco Lighthouse.

[TR in conversation with PMB:]

So what I thought we could do was kind of go back and revisit when you were in San Francisco. Just tell me a little about what that was like getting your award and meeting your other Holman prize recipients.

PMB:
San Francisco was really exciting and I was introduced to this delightful facility called Lighthouse. They have lots of functions and facilities on three floors to support visually impaired and blind people. And lots of very positive people who understand the sort of challenges we face and have got lots of answers for it. That was really positive.

TR:
The Lighthouse had a week of activities scheduled for the inaugural prize winners.

PMB:
I did some cooking in their training kitchen. I did cooking in a really super restaurant called One Market. Lots of good experiences even going on the beach to be near the Pacific Ocean which I hadn’t done before. And that was great!

TR:

After the week long Holman festivities Penny was slated to kick-off her Baking Blind global adventure.

Among the many destinations that would take her to six continents, China Live , in San Francisco’s Chinatown was her first stop.

PMB:

Where I was cooking with this absolutely exceptional top chef called Louis.

TR:

San Francisco has lots of flavor!

PMB:

A place called Brown Sugar. Cajun Creole cooking and they were showing me how to make southern fried chicken and waffles and shrimp and grits.

The Cheeseball Collective – they make lots of Sourdough breads and they’re famous for their pizza.

Audio: Airplane taking off!
TR:

In Virginia Beach, alongside another Naval Commander, Penny cooked lunch for about 20 people.

PMB:

And that’s where we celebrated The 100 years Centenary Celebration of the Women’s Royal Naval Service.

Then I came back to the UK for a week to catch my breath.

Audio: Airplane taking off!
Then I was in Chongqing in China. That is the biggest city in the whole world!
It is amazing, vibrant, inspirational, colorful, friendly, buzzing…

There I cooked with professional chefs in the hotel, but also with home cooks.

We also supported a couple of local blind women who really get no training on cooking at all. When the professional Chinese chefs took them onboard it was quite heart stopping.
The empathy between them, the care with which they were showing these young women how to cook probably for the first time in their lives. I just stepped back and let them get on with it.
One of the most important touching events of being there.

Audio: Airplane taking off!

TR:

Then we head down under to Australia. I’ll let Penny

PMB:

A place called Kiama! I think that’s how you say it.

We cooked with some local home cooks, but also with an Aboriginal chef. And that was really amazing.

TR:
During the trip, Toby, Penny’s nephew and camera man along with a friend were swimming in the sea and got caught in a undercurrent.

PMB:
So we had 4 police cars, 2 paramedic units 2 helicopters doing an air sea rescue for them.

Another 5 ten minutes at least one of them would have been gone.

## TR:

Fortunately, everyone turned out ok.

After cooking with some other blind cooks in Sydney and doing more in Perth, Penny was off to Malawi.

PMB:
In Africa. We flew into the capital LiLongwe. and we stayed at a really unusual hotel called the Latitude Hotel.

They use a lot of recycled items in their decor.

TR:

Getting out and cooking in the community was always one of Penny’s top priorities. In Malawi, she had the chance to observe a celebration for a village leader and meet with members of the Albino community.

PMB:

They face huge problems in various parts of Africa.

Because they don’t have pigmentation in their skin, they are very prone to skin cancer.

They have significant problems getting employment , being socially integrated. The propensity for Albinism out there is quite high.

In the past a lot of them have been attacked because their bones are considered to have ritual magic properties. So Albinos will be killed. Their bones will be dug up and exported for ritual magic.

They’re an incredibly vulnerable group.

TR:

Being with the people further expanded her concept of how cooking is done around the world.

PMB:
A couple of bricks on the ground. Some fire between the bricks and a pot stuck on top of it.

The chicken arrived live and had to be taken away and head cut off, plucked. It produced eggs during this process which were dually cooked. It was breath taking stuff.

It was a real privilege to spend some time with them.

Audio: Air Plane

And then I came home. And I was over in France just before Christmas looking out for some new cooking opportunities when I had this big accident.

Audio: Sad music & ambience

I don’t really remember the accident

TR:
That’s the car accident in France that left Penny in a coma for 6 weeks. Intensive care for 2 months followed by a lot of physical therapy in a rehabilitation hospital.

PMB:

Because I’d broken my C2 Vertebrae. To be honest, I very nearly died.

I broke all the ribs down my left side, my sternum, another vertebrae lower in my organs got a bit bashed up too. I was in this sort of corset for gosh, nearly three months I think where they had to support my head and stop me moving because everything was so vulnerable because it was all this broken bone waffling around my spinal cord. Being Blind I didn’t understand what was going on all over my face so they had to tie me up so I couldn’t pull the tubes out. because if I had they wouldn’t been able to put them back and I would have died. All that time in bed meant that I had huge muscle wastage. Regrettably I didn’t lose any other weight, but I lost a lot of muscle. Then it took me about three months to learn to walk again and to build the strength just to sit up, just to stand up to walk.

So now I’m going through ongoing physio therapy, a bit of speech therapy because it affect my voice just a bit, I got a bit of PTSD… o gosh it’s all stuff and I’m getting through it.

[TR in conversation with PMB:]

Wow!

First of all I’m so happy that you are on the phone and you sound well. It sounds like you’re getting well?

PMB:
I am. I’m full of beans.

[TR in conversation with PMB:]
Laughs…

The reference to beans and being full of them would have a whole different connotation in the states. Laughs…

PMB:
Laughs…

Perhaps if you think of jumping beans. How’s that?

[TR in conversation with PMB:]

Ok, ok, yeah, I know… it sounds, it sounds lovely!

TR:

But really, I’m just glad she’s recovering.

In addition to focusing on her rehab, Penny’s publishing the videos, recipes and blog posts documenting her journey.

PMB:

Oh I didn’t tell you about Costa Rica where we got caught in storm Nate.

TR:

For that full story, videos and more you’re going to have to go over to Baking Blind.com or visit her YouTube channel by the same name.

PMB:

Which I hope all your listeners will go “Like” and comment and particularly subscribe to.

TR:

Observing the Holman Prize winners from a far, you may not stop to consider the amount of planning and project management that goes into fulfilling these ambitions. Think of the details.

So of course I wanted to know what lessons were learned along this journey.

PMB:

I learned some French in hospital! Laughs…

TR:

Talk about making the best of a bad situation.
But she has more.

PMB:

I learned to try and pace myself which I don’t.

Life should be an adventure. You should go out and meet the challenges and not be frightened.

[TR in conversation with PMB:]
Based on the experience that you had, I’m sure that there are people who would say you see that’s why I don’t go anywhere, that’s why I don’t do anything because this could happen. You’re not saying that. You’re saying don’t be frightened. How can you say that after all that you’ve been through?

PMB:
Well, I think being organized is really important. You know what you’re going to do where you going to do it. You have it all accessible to you. In audio or whatever you want to do. You have it all mapped out but then you play a bit of it freestyle. Otherwise life would be very dull.

TR:
Dull is not how I would describe Penny or her Baking Blind global experience.

Her final lesson sounds pretty consistent with this podcast.

PMB:

Enjoy people

It was always the people that were most important. Recipes were ancillary the cooking was ancillary. Always it was the people.

[TR in conversation with PMB:]
What are you going to do after this year is over?

PMB:

I would just like to show there’s a different way of living if you’re willing to go and take the chance.

I would love somebody to say come and do Baking Blind with us.

I am perhaps going to manage a book out of it, but I could do with a publisher. Anybody knows of a publisher get in touch. But otherwise suppose I’ll just putter back to my kitchen and do humble cooking again. No, I don’t think that’s me at all do you?

[TR in conversation with PMB:]
No! Laughs…

PMB:
Laughs…

I’ll be looking for new adventures.

[TR in conversation with PMB:]

Good!

TR:

Like the end of a good movie, this is The Adventures of Penny & Baking Blind part one.

Whatever the next adventure is I hope she will share it here with the Reid My Mind Radio family.

Make sure you all go and subscribe to her YouTube channel and check out Baking Blind.com for more on her adventures.

Next time, we’re going to hear from the Captain, Ahmet Ustenel who was kayaking the Bosporus Strait from Europe to Asia, solo!

Don’t miss that episode or any other. Subscribe to the podcast.
We’re available from Apple Podcast, Google Podcast, Stitcher, Tune In Radio, Sound Cloud and your favorite podcast app. You can always slide on over to Reid My Mind.com. Say it with me…
R E to the I D! Spelled like my last name.

And now, I’m off to cook up a 5 course meal…

PMB:
Hearty Laugh.

TR:

Hey, I really am!

PMB:
Hearty Laugh.

TR:

Yeah, you’re right!

Peace!

Hide the transcript

Blind Travel Network – A Holman Prize Win for You Too

Wednesday, October 10th, 2018

Stacy Cervenka
In part 2 of the 2018 Holman Prize series, we meet Stacy Cervenka. Stacy’s creating the Blind Travel Network – a website specifically tailored to people who are blind or low vision. The BTN’s mission is to enable blind and low vision people to share accessibility information about all aspects of travel. From local venues to foreign destinations. This Holman Prize is the first that can benefit all blind people around the world – even you too! And since I mentioned you too, hear Stacy’s story about her encounter with U2’s Bono.

Don’t miss the rest of the 2018 Holman prize series or any other episode of the podcast…subscribe now!

Listen

Transcript

Show the transcript

Music…

Stacy Cervenka (SC):

I actually did get kissed by Bono. It’s really exciting. He was in our office to talk about Third World debt relief and Aids in Africa and he had just gotten out of a meeting with my boss and all the staff members came in to say hello

I reached out my hand to shake his hand and he just said “Ahhh, come here and give me a kiss” and gave me a giant smooch on my ear

Somebody thankfully caught it on camera so it’s a moment that I’ll be able to show my kids. (Laughs)

TR:

Greetings to you, the fabulous listener. Allow me to welcome you back.

Music continues…

That’s Stacey Cervenka, our latest Holman prize winner. In a few moments you’ll learn more about her and her ambition.
And yes, she was talking about that Bono, the activist rock star from the group U2.

If this is your first time here, welcome!

You joined us midway through this Reid My Mind Radio presentation of the 2018 Holman prize winners. I know we’re not supposed to make assumptions but I’m going on a limb. When you finish listening to this episode not only are you going to want to go back and hear the first in this 2018 series featuring the three Holman winners, but you’re also going to want to go back and listen to the 2017 prize winners.

Really, you should just stop right now and subscribe to the podcast. I’m pretty certain you’re going to like it.

I mean, you’ve been searching through the podcast directories looking for that podcast to fill a special void and you still haven’t found what you’ve been looking for!

Audio: “Still Haven’t FoundWhat I’ve Been Looking For”, U2

While I drop this intro music, you go and hit the subscribe button

Audio: Reid My Mind Intro

TR:

Born in 1786 James Holman a veteran of the British Royal Navy became blind at 25 years old after an illness.

Soon after he studied medicine and literature and then became an adventurer, author and social observer who circumnavigated the globe. Undertaking a series of solo journeys that were unprecedented visiting all inhabited continents.

In this second in a series of three 2018 Holman Prize winners, Stacy Cervenka has the ambition of creating the Blind Travel Network – hoping to make travel more accessible to blind people, by blind people.

SC:

What I would really like to develop is an online website similar to yelp or trip Advisor or Cruise Critic where people are blind or have low vision can go to post reviews of places they’ve been. Ask and answer questions of other blind people and then also have feature blogs and video blogs and advice columns from seasoned blind travels maybe blind travel agents some travel agents who have worked with many blind people. Blind cane travel instructors. So basically it could just be a website where people can learn about not only various places they can travel but also techniques they can use to navigate in airports or monitor their kids safely at a water park or navigate Disney World as a blind person.

TR:
There’s the comparison to other crowd source travel sites, but Stacy is in no way in competition with them.

SC:

I don’t want to take the place of any of those message boards and I certainly encourage people who are blind or have low vision to be active in the typical message boards because they offer so much great information.

In order to decide what cruise or what resort or what Disney hotel is right for you, you have to do a lot of research. this will only be one piece of that, that can give you information that some other places can’t about what places are most blind friendly sort of speak.

TR:
Stacy has a significant amount of travel experience, both personal and work related.

She became intrigued by politics during college after attending a NFB Seminar in Washington DC where she met with legislators to discuss blindness related issues. She went on to intern with Senator Brownback from Kansas.

SC:

When I graduated they had a job opening and I applied and ended up working there full time for 5 years.

The electricity and the atmosphere in DC is unlike any other place I lived and it’s full of people who come there to work for public officials or for the headquarters of national nonprofits or for think tanks or government agencies. So it’s filled with people who are passionate about what they do and almost everyone who comes to DC is really, you know there very knowledgeable about what they do. They’re very passionate about what they do. They really care about what they do. So it’s just a mix of people who are excited about making the world better, whatever that means to them. So it’s just a really fun place to be in your 20’s.

TR:

As part of her job with the Senator, Stacy traveled to some interesting destinations. Like North Korea.

SC:
When I was there for a Congressional staff delegation we went to the demilitarized zone which is the border of North and South Korea. Most of the border of North and South Korea is about 4 kilometers of land mines except for at the demilitarized zone where the South Korean and North Korean soldiers actually face staring at each other all day and it’s really just like a blue line on the concrete and that is the border.

There are blue UN security sheds that straddle the border. We went into the UN Security shed s so we’re technically in North Korea when we’re on that side of the building and the soldiers were right there. I actually had to give up my cane, they wouldn’t let me take my cane because the North Korean soldiers could have thought that it was a weapon and shot. They wouldn’t have asked me questions. they wouldn’t have been like excuse me Miss what is that? We weren’t allowed to point we weren’t allowed to laugh , we weren’t allowed to smile . We had all of these things because we had to make sure that the North Korean soldiers didn’t see us as any sort of threat.

It was probably the most intense experience I’d ever had. You were very aware. I mean they would tell you right there, you see that building, there’s a sniper , there’s a North Korean sniper right on it. We can’t see him but we know he’s got his gun focused on us.

TR:
See, we all just gained some insight into traveling to north Korea as a blind person.
I’m betting that the majority of her travel experience is more relatable.

After working in DC Stacy went on to become the Executive Officer of the California State Rehabilitation Council.

SC:

Currently I’m mostly staying home with my two kids, but I’m also working part time as the Grant Administrator for the Nebraska Commission for the Blind. I also am the Chair of the National Federation of the Blind’s Blind parent Group

TR:

As a blind parent, Stacy’s accumulated lots of techniques that she wants to share with others.

SC:

Traveling can be something you do for a day with your kids in some ways. You go to a local amusement park or you go to a local hiking trail or a local state park. A lot of the techniques that you would use to monitor your kids at a park or at an amusement park in your home town are the same ones that you would use at Disney World.

TR:
The tips and techniques go beyond managing children.

SC:
If you were to say I like going to Broadway shows here is how I enjoy doing it as a blind person. In a way it doesn’t even matter if I’m going to a show in New York or Chicago or San Francisco or Denver or whatever. I can still probably use some of the techniques that you used or look at some of the resources that you looked at.

TR:

Stacy is planning to produce some of these techniques in the form of both written and video blogs. However, she’s looking for input from other sources as well.

SC:

Right now when people write a review it is kind of like writing a review for Yelp. You’re submitting it just as a user to the site.
I do plan on having featured bloggers, featured video bloggers. Probably going to choose about 5 or 6. Two or three blind people who travel a lot who have Different preferences, different ideas of what they like.

TR:

That’s a recognition of the diversity among blind people when it comes to preferred types of travel.

Traveling to an all-inclusive resort to lay on a beach where some prefer visiting amusement parks, camp grounds versus those who prefer actively participating in the culture of a city or foreign destination.

SC:

There might be another blind person who says you know my family is on a budget , we don’t have a lot of income, how can I arrange a vacation for my family that is as cost effective as possible and maybe that’s their number one concern

. I want to have several bloggers to have a variety of different perspectives . Maybe some people who travel with long white canes. Others who travel with guide dogs.

I would also like to have a blog from a blind orientation and mobility instructor who can feature not so much destinations they visit but techniques they use. Such as here’s some techniques for traveling through an airport. Here’s some techniques for monitoring your kid when you’re at an amusement park or when you’re at any park at all.

TR:

One stipulation that comes with the $25,000 Holman Prize is that winners cannot pay themselves. While she believes in paying for content, she’ll be seeking volunteer contributors in the early phases of the site until funds can be generated.

Here’s Stacy with more about her project plan and budget.

SC:

We get the funding in October and that’s when we’ll begin working with the website developer and business analyst to actually develop the site.

SC:

The actual development of a high quality website that you can find on Google and allows people to create user names and passwords and has many message boards and has a lot of functionality costs about $16,000 to create.

SC:

Right now we’re kind of doing some focus groups talking to different blindness organizations. Finding out what the blind community wants and needs out of the website. Functionality and features they want it to have.

We’re hoping to have the site completed by the end of December and then starting at the beginning of next year we’ll really be doing outreach and trying to get the blind public interested in using this site because if people don’t post on the website then it won’t be anything. Like I tell people Napster wasn’t one guy’s CD collection. Yelp isn’t one person’s blog. It’s only a good resource if a lot of people post on it.

TR:

It’s important to remember that local travel, such as visiting a restaurant, museum or venue in your home town is just as important to the site as visiting a resort in the Caribbean.

SC:

If you go somewhere in New York City a concert, a restaurant, see a show or skydiving bowling whatever and you write a review then hey when I go to New York City I can say ok let me log onto the New York City board and see what blind people have done in New York City.

What did they find accessible? What did they find welcoming? How can I go enjoy the Statue of Liberty as a blind person? How can I go enjoy a Broadway show best has a blind person?

I think it will only be a good resource if everyone contributes to it.

TR:

So much of the project’s sustainability and success is relying on community adoption. It’s therefore vital to assure the site’s user interface is easily accessible. Not only for accessing the information but for contributions from the community in the form of reviews and ratings.

SC:

That’s kind of the biggest challenge. We only have $25,000.

More people will find a website but people will use an app more often. I think an app is easier to use.

I went to eat at a restaurant now I’m in the cab or the Uber on the ride home let me quickly get out my phone and open the app and leave a quick review and just let people know. There’s Braille menus but they hassled me about my guide dog or whatever. I think it’s easier for people to do that on an app. The problem is if you have a smart phone you can still use a website on Safari or another browser, but if you only have a computer you can’t necessarily use an app. And so we want it to be accessible to the greatest number of people.

If I could have my way I would love to develop an app, but they are more expensive and I don’t know that we have the funds to do that, but that is something I’d love to look into for the future..)

[TR in conversation with SC]
Well that could be phase 2 but the first part is yes a website because they would need to talk to each other and that’s the basic infrastructure for that, but let’s put that out there because you know there’s no reason someone might want to fund your app.

SC:
Exactly, if anybody wants a great idea for an app or wants to help on some app development definitely contact me I would love that. But definitely want to make the website so that it works very well with Voice Over and Safari and Android so. We’ll make the website with the understanding that a lot of people will be accessing it on their phones.

TR:

Lots of blind or low vision people can appreciate the need for such an app. It comes out of shared experiences.

When living in DC, Greg, Stacy’s husband planned a date for them.

SC:

When we were dating, so this was about 10 years ago, my husband had setup a private horseback riding lesson for us at a stable in Washington DC. We were so excited. It was a surprise it was going to be a fun romantic date and it was like all lovey dovey. Then we got there and they weren’t going to let us ride because we were blind. They didn’t let us on the horses and then they told us to come back the next day and they led our horses around like we were in pre-school.

TR:
Greg grew up horseback riding. Stacy too was more than familiar with stables and horses. Not only taking a class in college she had other experiences.

SC:

While I was growing up I also attended a horsemanship camp that focused on sort of more technique and learning to actually ride and how to saddle and bride a horse, basic dress size. Saddling and bridling a horse is easy to do non visually probably as it is visually. It’s just like getting dressed or dressing someone else or simply putting on equipment on an animal. Blind guide dog users do it all the time with a harness. It’s a bigger animal and it’s different equipment but if you can put a harness on your guide dog you can put a saddle and bridal on a horse.

I grew up riding horses for fun with family on trips and stuff that were usually just trail rides where you sat on the horse and you hold on and the horse just instinctively follows the horse in front of it and the person on the horse in front of me would just call out if there’s a tree branch or there was a need to duck. So that’s not too challenging.

Actually riding in a ring often I would use environmental queues. Like if there was a radio playing somewhere to orient myself, if the instructor was standing in a part of the ring….using the sun as a queue in outdoor arenas – the sun is on my left side right now… so I can orient myself to the ring.
In college I did it similar .

I certainly never competed or did anything like that but I have probably more experience than your average sighted person.

TR:
Following a negative experience like Stacy’s, for a person with a disability turning to mainstream sites like Yelp risks bringing out ;
trolls or antagonizers,
defenders or explainers of the offenders actions.

SC:

I probably would have gotten a bunch of people saying “Aww well, you know they were just trying to be safe and they didn’t know better.” I’m not going to bother posting this just to get all of these invalidating responses.

we wish that we could have had a place that we could have looked in advance to find a stable that was welcoming that other blind people perhaps rode at or had experiences at.

I didn’t want to be afraid every time Greg and I decided to go somewhere.

TR:
mainstream sites with little to no experience with disability can leave you open to lots of generalizations and advice.

Like the time Stacy was searching for information about accessibility of ports of call on a planned cruise.

SC:

When I would ask questions about disability stuff I would get well we went on a cruise last year with my 92 year old mother and she uses a scooter and here’s what worked for her.

My needs are totally different. Our physical abilities and disabilities are one hundred percent different than an elderly person who uses a scooter.

They might really enjoy a bus tour. That might be a great shore excursion for them. They can take a bus tour, see a lot of sights in the city and not need to walk far. Where for a blind person unless you have additional disabilities walking isn’t a challenge, but you don’t want to sit on a bus and look at stuff out the window because you’re not interacting with it. You’re not experiencing it. You’re not hearing the sounds of the city. You’re not tasting street food. Our needs were just totally different.

I wanted to find a place where blind people could go and get advice from people who understood what our access needs were.

TR:

Whether it’s a guide dog handler getting turned away at a restaurant or taxi or a cane traveler being grabbed under the guise of assistance, negative experiences while traveling are bound to happen.

Maybe if something like the Blind Travel Network were available, Stacy and Greg’s experience at the horse stable would have been different.

Stacy brought in a local chapter of the NFB to work with the horse riding stable to help them improve their policy.

SC:

we didn’t come there to educate people. It was humiliating and frustrating and just awful. That wasn’t what we wanted.

TR:
Simply put.

SC:
It sucked!

[TR in conversation with SC]
I almost see your site as becoming a real vehicle for advocacy.

SC:
Absolutely. What I would hope is that resort companies and cruise lines and tour operators such as Disney will see that ok look there is this site with hundreds or perhaps thousands of blind people on it who want to travel. Who have the money and time to travel. Who have the interest to travel. We need to market to them. We need to be accessible to them. They are a target audience. It’s not charitable to be accessible, it’s just good business sense. Here are people who would like to go somewhere on vacation and we want their money so we need to be accessible and we need to be welcoming and we need to be nondiscriminatory. I think hopefully just by having all of us in one place will hopefully help the travel industry see that we are a market.

TR:

The Blind Travel Network is not only a means to improve access but it’s also a resource for training and a potential source of motivation or encouragement for those new to vision loss.

SC:

A lot of it is just getting rid of the idea that like you can never get lost. That everyone else knows exactly where they’re going. A lot of it is just comfort, travel in public too.

TR:

To find out more or stay in touch with Stacy’s progress

SC:

You can find me on Twitter @Stacy.Cervenka. You can email me at Stacy.Ceervenka@gmail.com…

TR:

For some, aspiring towards an ambition similar to those of the Holman Prize contest can be daunting. It’s an exclusive prize awarded to those who can first dream up an idea or concept that challenges their own personal boundaries. Which I believe is one of the goals of the contest.

The ambitions are the exclusive property of the entrants and winners. Everyone else is invited to observe from afar and be inspired to channel their own inner explorer.

Stacy’, through the Blind Travel Network, is offering blind and low vision people a chance to be a part of her ambition. A chance to create a global network that is for us and by us. In fact, it’s early success is dependent on that.

Congratulations to Stacy Cervenka for winning the Holman prize. I’d say an honorable mention goes to blind and low vision people around the world for the win as well.

Stacy is prepared to do her part in developing the site and creating the content. Hopefully many in the community are prepared to roll up their sleeves and participate in the form of reviews, ratings, the sharing of tips and techniques and of course the site itself within their own network of people who are blind or low vision. After all, the community reaps the benefits. The improved access to spaces like, athletic and performance venues, restaurants and museums increases the visibility of blind and low vision people in the public. These more frequent interactions with the general public can help to eliminate the odd reactions and discrimination like that which Stacy and Greg experienced at the horse riding stable.

So I guess the question I pose to you is will the success of the Blind Travel Network happen, with or without you?

Audio: “With or Without You” U2

Next time I’ll bring you the second of three 2018 Holman prize winners. Then we’re going to reach back out to our 2017 winners and Reid My Mind Radio alumni…

Penny Melville Brown of Baking Blind

Ahmet Ustenel AKA The Blind Captain

Ojok Simon, The Bee Keeper & Honey Farmer!

We’ll hear about what worked with their plans and what sort of adjustments were required. And of course lessons learned.

If there’s one lesson I want Reid My Mind Radio listeners to learn; that would be , how to subscribe to this podcast.

Apple Podcast, Google Play, Sound Cloud, Stitcher or Tune In Radio. Of course, whatever podcast app you use, you can find it there by search for Reid My Mind Radio. Just remember, that’s R to the E I D!

Each episode lives on the blog, ReidMyMind.com where I include links to any resources and a transcript.

We’re just about done meeting all of the 2018 Holman Prize winners. Only one more left to go. I’m sure you’re looking forward to the next one but that being the last, I know how that makes you feel.

SC:
“It Sucked”

Audio: Reid My Mind Radio outro Music
Peace.

Hide the transcript

No Half Stepping with Loud Steps Indoor Navigation

Wednesday, September 12th, 2018

Loud Steps Logo
If you ever made use of indoor navigation, then you probably are like me and want to see a wider adoption. Boni Loud Steps, an Indoor Navigation company based in Turkey has recently completed a permanent installation at a Chicago hotel.

Hopefully, this is just one step in the direction where we see many more permanent installations in all sorts of venues.

Listen to this conversation with Boni’s Director of Business Development, Paul Colgan. We talk about their approach to development, securing a permanent installation and other exciting pilot programs such as one currently underway in New York City.

Listen

Transcript

Show the transcript

TR:
What’s up everyone, I hope you’re doing well.
I thank you for being here. Salutes to you if you are a subscribing listener.

If you’re a first timer, welcome!
Maybe you could do me a quick favor?
How did you find your way here to the podcast?

Twitter? Facebook? Did someone send you the link or tell you about the show?

Let me know. Contact me via the social media platform where you learned about the podcast or email me at reidmy mindradio@gmail.com.

I think these stories deserve to be heard so I’m trying to figure what works to get the podcast in more ears.

I’d really love the feedback.

However you found your way here, I appreciate you and hope you stay.

Now let me guide you on over to today’s episode…
right after the theme music!

Audio: Reid My Mind Theme Music

TR:
Indoor Navigation uses combinations of smart phones, floor plans , Wi-Fi and electronic beacons to help provide navigational information about a venue such as a mall, hotel, convention center and more.

Smart phones equipped with a screen reader such as voice over on the Apple iPhone, allows people who are blind or low vision to take advantage of this information and independently find their way from point a to b within a facility.

Ever since first experiencing indoor navigation I’ve been waiting for the chance to take advantage of this technology in the wild. By that I mean, make use of the system outside of a promoter blindness related event.

For the most part, applications have been installed at conventions of both ACB and NFB. While I heard there are installations in a few major airports I have not yet travelled through there in order to make use on my own.

Earlier this year I learned of a company named Boni. They’re the creators of the Loud Steps indoor navigation application permanently installed in the Doubletree by Hilton Hotel Chicago, North Shore Conference Center in Skokie, Ill..

Excited to learn more about the app and how this installation came to be I spoke with Paul Colgan.
PC:
I am the Director of Business Development and Corporate Strategy for Boni Loud Steps. We’re based here in Chicago, Illinois. We’re a Turkish-American company. There’s a development team in Turkey and then there’s myself and an engineer here in Chicago.

[TR in conversation with PC]
Why don’t you start off by telling us a little bit about Loud Steps.

PC:
Well Boni Loud Steps is an Indoor Navigation a;; for an iPhone with special features for the Blind and Visually Impaired. It also can assist Hearing Impaired people as well. It uses the sensors in the phone along with the Wi-Fi signals in a property to locate you in the property.

TR:

The app assures blind and low vision users can access the step by step on screen instructions navigating a person to their chosen destination.

PC:
The accuracy can be as good as a meter in a hotel where there’s a lot of Wi-Fi. It’s a little bit more than that in a mall or airport where the bigger spaces it’s harder to get the good accuracy.

TR:

Audio: Stepping Out, Joe Jackson

In order to explain how the application works, picture the following.
Let’s suppose I’ve been invited to speak at a conference in Chicago. It’s taking place at the Doubletree. Aware that the hotel is equipped with Loud Steps I download the app in advance. However, if I weren’t, when checking into the hotel, a receptionist would inform me of the app and even assist in downloading.

By using a QR code – which is sort of like the codes scanned in the supermarket – but when your smart phone recognizes this code it loads the address to download the application.

PC:
The app itself has a little tutorial in it for first time users. So that first time user gets a quick introduction to the app and then they can begin using it immediately.

TR:

Now that I’m checked in and have my room number, located on the third floor, I key that information into the app.

PC:

The app can then walk you to the elevator, the stairs, the escalator whatever it may be, and instruct you how to go that elevator. And then you can choose the third floor and when you get off the elevator it can tell you to turn right or left, down the hallway and direct you to your destination.

[TR in conversation with PC]
I’m familiar with other Indoor Navigation applications, so does this work similar. So you guys have to install the beacons?

PC:
No, we do not use beacons.

TR:

Beacons are small electronic devices that send a signal using blue tooth. The transmitted signal contains information about the location which can be received by the smart phone in this case.

But beacons cost to install and maintain. While not as expensive, it also introduces a point of potential failure.

PC:
We’re using the radio signal from the Wi-Fi access points to act as our beacon.

When we go into a building we survey all those Wi-Fi signals and we overlay that information – we call it finger printing the Wi-Fi signals every meter.

We put the points of interest on the maps . We label the offices, the rest rooms, the ATM. Then that information we can utilize very quickly to move you around, locate you, draw you a route then to walk you through that route just by using Wi-Fi signals.

TR:

If you’ve never used such an app, you can imagine how
This could reduce or remove the stress involved in spontaneously finding a point of interest in a facility like a hotel.

The technology isn’t new, it just hasn’t been permanently available in many facilities. But Loud Steps, is permanently installed at the Doubletree…

PC:
We went through a world leading innovation hub in Chicago called Elm Spring. One of the investors in Elm Spring was a company that owns the Doubletree. They allowed us access to the Doubletree to test our app and then of course make a permanent installation there.

TR:
Working directly with consumer groups generated feedback to help improve the app.

Implementing Loud Steps at the Doubletree was more like a partnership than an average B to B transaction.

PC:
Their staff and their people have provided us with a lot of feedback in terms of what is necessary to achieve the best service level – quality we need to do because it’s very important to them as a brand to make sure that they had the best possible service.

So they actually pushed us to do a high level job. And it really improved the app overall.

[TR in conversation with PC]
TR:
So when can we get something, you know, in other places, I’m dying for this type of thing.

Let me tell you I experienced this in a couple of places, but the one last year was actually in Pittsburg and I believe that’s a Doubletree property. Just the experience of being able to navigate from one place just seamlessly, just really seamlessly. Once you experience it’s like huh!
(PC laughs!)

And I go to a new hotel and it’s like oh it’s not here I wish I had there here. I want it everywhere! (Laughs…)

PC:
Well, I need that message repeated over and over. So the more you can repeat that message the better because it is a challenge when you go into a facility and they say well why should we do this, shouldn’t we wait until it’s mandated? We try to make the case to them that this is an opportunity to get ahead of the curve. This is an opportunity to provide a benefit to their guests. If they know there are potential customers out there they may not otherwise have then we start to get their attention. And that’s very important

TR:
If we’re only looking at people who are blind or visually impaired, well we know in comparison to the overall population we’re talking about 3 percent.

However, that could be significant.

PC:
When you go to an airport and you say, you have a million passengers coming through. That means there’s 30,000 potential passengers that may or may not becoming through your airport because they don’t know how to discover it. Or, if they come in they request or need an escort. In many of our users don’t want that. They want to have the independence, they want to have the confidence to do it themselves independently.

[TR in conversation with PC]
Is the intent at some point to market this outside of the Blind and Visually Impaired community? I’m assuming there’s other benefits for the general population.

PC:
Oh, there is, exactly. You hit on a key point and this is something that’s been emphasized to us by Mike May who’s with Sendero. Mike makes a very strong point. He says, “I don’t want a single purpose app. Even though they’re beneficial, I want an app that’s available for everyone that has special features so I can use it.”

That’s the way our app is designed and frankly we designed it that way from the ground up. But it was only later that we got confirmation of that from people like Mike May that we were headed in the right direction.

TR:
People with disabilities aren’t the only group who need to find their way around in unfamiliar environments. In addition to navigation, Paul offers a few possibilities that go beyond serving those with disabilities.

PC:
We have the ability to direct you to where the nearest exit is. If there’s an emergency whether it be an incident or fire or you have to vacate the building, we can direct you to the nearest exit. Let’s say there’s a medical emergency. If you suffer a medical event and you need to have a first responder get to you quickly we can communicate it directly to the first responders exactly where you are located in the building so that they can go right to you. If we know that there’s a problem in the east wing we direct you out the west wing.

[TR in conversation with PC]
What about the business side? For example, in malls to be able to serve people ads like when they’re near a Starbuck’s and they’re going to offer you ten percent off a Latte or something like that. Is that part of the plan?

PC:

Yes, So we are doing that now in the malls in Turkey. So we have the capability of providing push notification that’s called. Where yeh, you come by the Starbucks, you come by Kohl’s or whatever the store is that’s in the mall and using your proximity it gets you some information. It could be a coupon it could be well if you come in for the next hour we’ll give you ten percent off. Something like that is really what the retailers want to offer. We now have some capability on our staff to do more precise mapping. What we’re experiencing in Turkey has found that the better maps, the more precise maps, the more up to date maps we have allow the mall operators and the stores in the mall to do a better job of marketing and therefore they get a better response from the users . And so it’s turned into a win-win situation.

[TR in conversation with PC]
I’ve been saying this for years…
if it’s all about marketing to the general public that’s great because that’s the way we’ll get a wider adoption. It’s a bigger audience, it makes sense.

PC:
People want to do the right thing, but they still have budgets to meet. If you can come back to them and say, here’s what I can do for you. Here’s how it can benefit your facility and it now gets their attention. They want the investment because they can see the benefit of it. So that’s part of our sales pitch. Sounds like I should be talking to you about what are you doing on the side business.

PC & TR Laugh…

You’re a good salesmen. You anticipate my needs and my questions already.

[TR in conversation with PC]

The applications for it, to me seem endless. You just have to really be creative with the way you use the system and as long as there’s functionality there. I’ll give you this one or maybe you have it already. There’s was the whole, what was the game?

PC:
Pokémon?

[TR in conversation with PC]
Pokémon, exactly!

A mall, for kids? Come on that’s a no brainer. Building these types of things in there. The kids can have fun using that type of thing.The adults, I mean you can gamify shopping and people will probably buy more, but then at the same time a person with a visual impairment can get to the mall and independently navigate, that’s, that’s huge.

PC:
Yes, That is the goal I mean you’ve outlined the goal very well. That is where we want to be. We want to be an app that can serve a very broad audience, but again have those special features for the visually impaired, the hearing impaired, other people who need a little bit of assistance and do it in such a way its mainstream.

TR:

Boni, based in Turkey, has multiple installations throughout that country.

PC:
There are several locations in Turkey where we have the application installed. Now understand, we used to be a beacon company as well so most of the installations in Turkey are beacon installations but here in the United States I’m trying to do the rollout with just Wi-Fi. In Turkey we do have an airport; Antalya Airport, that’s where we tested it for the airport users. There in conversations with other airports there in Turkey and Europe.

##TR:
In addition to securing other Doubletree locations, Loud Steps looks to go beyond just hotels.

PC:
We’re beginning a test out at O’Hare. We’re not yet at a public level yet but we’re doing some testing there. I’m also talking to some other hotels and other lighthouses around the country. And other facilities that serve the needs of the blind and low vision community about installing some applications at their facilities so they can become training grounds for people to learn how to use the app. And then of course we hope to get it into the community.

TR:
For those in the New York City area , Boni is currently working with the city’s transportation department on a pilot program that will expand the reach of Loud Steps.

PC:
An outdoors application that can inform users at a traffic intersection of when the lights change. It will tell you what direction the traffic is It can tell you where the bus stops are, subways from you location. But more importantly, there’s a bike path there. It’s a very busy intersection in New York City and although it has the APS, Audible Pedestrian Signals system there, they’re looking for a way we can use the app to communicate to the user this information. So again a blind or low vision person can get the kind of information they need when they come upon an intersection. So if they learn quickly what obstacles they’re going to have to deal with in order to cross the street.

TR:
So using this app, a blind or low vision pedestrian would gain real time information including, traffic flow, orientation and surrounding points of interest, traffic light changes, plus…

PC:
We can tell you when you’re deviating from the crosswalk. We may even put in a countdown in there to help you know how long you have to cross the street.

TR:
This attention to detail goes back to Boni’s approach to design.

PC:
We have a design philosophy of solve for accessibility first. Meaning that we have looked at solving the accessibility problems as our primary job and then we built the application from there. As a result we have a I think a better application, a simpler application call it more elegant. It works very well. Easy to learn. By solving for the accessibility issues first, not just an add on, we’ve done a much better job building a great app for people.

TR:
To contact Loud Steps…

PC:
www.loudsteps.com

If you want more information and want to suggest a facility. If you have a hotel, a mall an airport or anything near you you’d like us to talk to the owners, I’ll be happy to do it. My email is paul@boni.meI’ll follow up with you. I’ll send you information about the app and I’ll be happy to follow up with any facility you recommend that I need to talk to.

[TR in conversation with PC]
In terms of the community advocating for this type of installation, outside of contacting you and saying hey, you should put this in my mall (laughs) what else should folks be doing?

PC:
I think that whenever and wherever that they can support the idea of Indoor Navigation for the visually impaired, they should voice it.

Although we are in business to promote our app, but the reality is we work with a lot of other people. We are collaborating on many different levels to try and bring the whole concept of the industry to the wider audience out there and one of the things we’re doing through Sendero for example, is trying to build a database of facilities that have the indoor navigation applications available to them. And in most cases right now it’s beacon based.

So we’re building a database of all the beacons and where they’re located. So whether you’re using my app or somebody else’s app that you have the beacon information and you can go into that facility and use an app. So the idea here is that we want to make it easier for the blind community, the low vision community to find access to this. So anything the community can do to advocate and support the idea of indoor navigation. To tell they’re local government official, we’re talking to universities different places, airports wherever malls… this is a benefit and the number of people out there who may not be visiting your mall because they don’t know how to discover their way through your mall that mall owner is missing an opportunity for a sale. I think the more the community can articulate that, the better it is not only for us but other providers.

Audio: “Ain’t No Half Stepping'”, Big Daddy Kane

TR:

I was very glad to hear Paul say this. I think I told him during the conversation that I tried multiple applications and I am not tied to anyone. I’m a fan of the broad technology and what it provides.

My only issue really with multiple solutions is the extra responsibility to learn and become comfortable with each app.

Personally, I don’t really see this as too much of a problem. As long as the interface is accessible the main components are where am I right now, where do I want to go and how is this app going to help navigate me there.

But that’s me, I like and understand the technology. I would hope to see some standards built in to help those who may find it more challenging to learn the app.

On that same note, I know there are many people who might say, hey I have the skills to independently explore a new location. I go to a mall without the aid of an application and I do just fine. So can you.

Let me speak directly to you… come here, lean in nice and close.

Congratulations, that’s your business.

Lots of times I think people should be able to grasp something because, well I get it therefore I think anyone should.

But that’s really not how the world works.

We all have different strengths and weaknesses. What may be simple for me could really challenge another person.

Technology is about increasing options.

This technology isn’t replacing the need to learn real orientation and mobility skills. It’s just another option to gain access to information that is otherwise inaccessible.

Options are good!

Like you the listener has the option to subscribe to this podcast. You could choose to use Apple Podcast, Google Play, Sound Cloud, Stitcher, Tune In or straight at Reid My Mind.com

Hopefully you make the right choice to subscribe! And either way, if you like the show maybe you would consider giving the podcast a 5 star rating.

I know what you’re thinking …

‘PC:
Why should we do this? Shouldn’t we wait until its mandated?

## TR
Well, first of all, while that would be really helpful I haven’t convinced any of my representatives to introduce this bill, just yet!

But really, all of this helps others discover the show.

And..

PC
This is an opportunity to get ahead of the curve.

TR:
He knows what he’s talking about!

Peace!

Hide the transcript

Reid My Mind Radio – Tony the Traveller

Wednesday, April 18th, 2018

Yes, I spelled travel with two l’s – he’s British.
Tony at the top of Marble Street, Ephasus, Turkey, September 2009

Salto Hacha waterfall, Canaima National Park, Venezuela, November 2012

OLYMPUS DIGITAL CAMERA

Tony in a small local boat, floating market in Banjarmasin, capital of South Kalimantan, Indonesiam 2015
Tony Giles, the author of two books capturing his journeys, has visited 7 continents and continues to travel to cities and countries around the world – independently. As a person who is blind and has severe hearing loss, we learn how he began traveling alone, how his early education paved the way for his exploration along with several valuable take aways for anyone!

Resources

Transcript

Show the transcript

TR:

Whats good RMM Radio.
I know you all are busy and I appreciate you taking the time to listen.

Reid My Mind Radio is actually a good companion on any journey so just take us along with you wherever you go.

I know it helps me along my journey.

So as my little girl used to say in our early recording days…

[Audio of my little girl Raven at 3 years old:]
“Let’s start the show. 1, 2, 3 4”

[Reid My Mind Radio Theme Music]

TR:

Tony Giles is the author of two books on traveling;
Seeing the World My Way…
and Seeing the America’s.

From South West England, Tony at 39 years old has visited all seven continents.

If your image of a travel writer consists of
fancy hotels, spas and restaurants, well allow me to present you with a new vision. Tony Giles travels with a back pack and sleeps in hostels But there’s more that sets him apart from the others.

TG:
I’m totally blind and severly deaf in both ears. I use a long cane and I wear digital hearing aids and I travel the world independently.

TR:

Tony was diagnosed with a rare eye condition at the age of 1. With extreme sensitivity to any light (in or out doors), it wasn’t until he was given dark glasses that he was able to play outside.

TG:

We lived in a coldesac so I always knew which way traffic was coming . I’d play with my friends, play football (soccer) run rode around on a big three wheeler bicycle and sort of crashed into walls and lamp posts.

TR:

At 5 years old, Tony began attending a school for children with disabilities located about 30 miles away from his home. In a way, you could say this was the precursor to his traveling life style.

TG:
I used to go there by taxi. I could read and write with very big black letters on white paper maybe 4 inches tall until about the age of 6 or 7. Then I began using something called a CC TV to try and make print bigger. Then it was realized that my sensitivity was lessening and I would stop looking for objects and wasn’t able to read and write.

TR:
By age 10 and a half Tony was enrolled in a specialized boarding school over 300 miles away from home.

TG:
And that’s sort of where my travels began. I wanted to see my family as much as possible. So beyond the age of 13 or 14 I was learning to catch buses, cross roads, catch trains (we tend to use the train to get everywhere in the UK).

[TR in conversation with TG]
Were your parents at all hesitant about you traveling?

TG:
I think they were but my Mom and my step Dad came up at parents evening so they knew what my mobility skills were like. I don’t think they were too worried.

How confident were you with your Orientation and Mobilityskills?

TG:
Supremely confident!

By the age of 16 or 17 I had fantastic mobility training. We start off with learning how to use a cane when I was 11 years old. I walked up and down this corridor for months with me teacher behind me yelling everytime I made a mistake.

TR:

Having the confidence to head out on his own, it was the opportunity to study in the United States that sparked Tony’s adventurous spirit.

TG:
I went to South Carolina, Myrtle Beach. In 2000. I said how are we going to study if you send us to a beach town. I spent 4 months there and spring break my friends decided they were going to Florida to see Mickey Mouse. They’re not going to let me drink or party and stuff so I go, I’ll go to New Orleans.

I got the teachers and staff to help me book a hostel and book a flight. I’ve been hosteling for about 5 or 6 years by then. I got to New Orleans and took a taxi to the hostel and then asked for directions and one of the staff in the hostel said you go down the steps turn left, walk two blocks and find the tram and go downtown. I walked down the steps and it was really hot and humid , about I don’t know 95 degrees and 98 percent humidity and I just froze. I’m in a foreign city in a foreign country by myself how am I going to find this tram. I don’t know what I’m doing.I took a few deep breaths and said well this is what you want Tony. If you don’t want it go back in the hostel and go home. So I turned left and walked down the street found the tram and I’ve been traveling for the last 20 years.
[TR in conversation with TG]
Do you recall what you considered to be the barrier there?

TG:
Just butterflies really.Insecurity in my own abilities really. Maybe just the culmination of the heat as well.

[TR in conversation with TG]
Laughs! The heat will do it to you.

TR:
That successful solo trip to New Orleans set the course for becoming a true world traveler.
Tony captures his experiences in his two books. The first of which is titled Seeing the World My Way.

[TR in conversation with TG]
In chapter 12 you wrote: “Towards the end of that trip recognition and self awareness began to dawn on me. I was beginning to realize my blindness was not a burden which stop me from accomplishing things, but an attribute which opened even more doors thanit closed.”

Can you talk a little bit about how was this actually so and what doors are you really referring to?

TG:
I began to realize by the end of that chapter thhat people liked me because of who I was not because I was disabled. So it wasn’t like “Oh we want to be with you to help you because we feel sorry for you. I was more like we like you as you are Tony and I also began to realize my blindness rather than stopping me from going somehwere or doing something it was actually an advantage. It meant I could jump lines or queues at airports I could alot of the time not have to pay for some things or pay less for things. later I discovered or I could go into national parks for free. It made somethings easier. Particularly airports because I could tget assistances and jump all the queues. The same on buses.

[TR in conversation with TG]
How important do you think is the attitude?

TG:
Once you sort of come to terms with your disability or realize your disability is there to stay it’s part of you . You can’t really don’t anything about that. If you can sort of embrace it and look at it positively, that will make life a lot easier both in terms of traveling, working or studying or whatever you want to do and also relationships. Then you can sort of put down that baggage and that apprehension or anger in my case and it makes things become a little less frustrating. Where its all about attitude and positive mindset.I meet so many sighted people and non disabled people on the street and their attitudes are negative or their lack of confidence is startling. For instance, when I was at University in the states, I think Imentioned this in me book, I was really surprised that my fellow students lacked confidence. The AAmericans I saw were all sort of noisey and confident and very brash, but the younger people my age, 19, 21, 22 they weren’t quite as confident. They were sort of afraid in class to ask questions and answer questions. Because I’ve been answering and asking questions ever since I was 10, 11 12 at school because obviously I couldn’t read the white board so that was my only option. But I think it’s an inner confidence that I have . I was given the mobility trainin. The teachers told me I would do things, I would go to these places, I would cross roads.

TR:

That confidence is a big part of Tony becoming known as the blind independent traveler.

TG:
Independence for me is being able to do things by oneself but it doesn’t mean doing it alone. Whether you’re blind or not, if you’re traveling you need help. Being independent means I’m in control of it I suppose.
TR:

Ocasionally circumstances that are out of his control may
require Tony to make adjustments, but he moves forward.

TG:
My hearing is more like someone losing their sight cause it can change all the time.If I get a cold or if it’s too windy that can affect my hearing. Too much traffic.

[TR in conversation with TG]
Does that impede your travel?

TG:
It can restrict it. Sometimes the hearing aids are dameged.

[TR in conversation with TG]
Out of all the places you visited, what’s the most inaccessible?

TG:
Georgia Armenia in terms of sort of language barrier, I don’t speak any Russian so places like that are difficult. In terms of infrastructure or lack of infrastructure parts of Africa, Burkina Faso, somewhere like that which is this third world country very ppor. Parts of Thailand, Bankok there’s open sewers and open drains so you could fall into a hole quite easily. Try and cross a road in Vietna. Five thousand bicycles all moving at once. Some times you get people that will try and stop you from doing things like I was in Barona with my girlfriend who is also blind. We wanted to visit this famous house, Romeo and Juliet house and one of the staff members wouldn’t let us go up the steps. They were worried about us going up steps, which is quite ridiculous. And in Sydney they wouldn’t let me climb the Sydney Bridge because they said well health and safety but really they thought I’d slow the other people down. But things like that… you get discriminated against.

[TR in conversation with TG]
Yeh, how do you deal with that?

TG:
Well you can try and state your case. Say I travel around the world, I’m completely independent I can do this this is not a problem, but some times if they’re really adament about sort of not letting you go like the Sydney Bridge I just well stop it. it’s their loss of money.

TR:
For some, the idea of a blind person traveling to different cities and countries doesn’t make sense.

[TR in conversation with TG]
What would you say to encourage those who feel that there’s no longer a benefit to traveling the world like you’ve you did. How can you convince them that traveling is more than “sight seeing” and I’m being literal with that word sight seeing.

TG:
Yeh! Well acountry is not just about seeing it with your eyes. It’s about experienceing with all your senses. You don’t go eat different foods with you eyes you go and taste it with you taste buds and smell it with your nose. When you’re walking down the steet or up a hill or walking through a forrest ok so you can be looking at that with your eyes … but really you should be taking it in with all your senses. The textyures under your feet, the changes in gradients when you’re walking up and down a hill. Gravel soil mud sand the texture of trees and plants. The space the change in atmosphere in a forrest or all these things sighted people probably only briefly notice and that gives us the blind person a more interesting picture I think.You’re not just going to a foreign country to look at the vistas really you’re going to meet the people. You don’t need to see to meet and talk to people. That’s what its really about. Without people there’s no traveling, there’s no point.

TR:

Reading his first book, Seeing the World My Way, it’s apparent Tony really is interested in getting to know the locals.
And the local bar was the perfect place to make friends.
Tony wasn’t shy about sharing his adventures.

[TR in conversation with TG]
The things that jumped out at me were you know, the brotherls. I was like woh!

TG:
Yeh, I was very frank. It was never my idea to write a book. I’ve been traveling 6 or 7 years by then. It was kind of like going to see a therapist but without paying. I’m able to sort of express myself on paper where I couldn’t express myself verbally to anyone. That’s just the way I’ve been brought up and stuff. I mean you should see the stuff that didn’t get put in the book. I felt at liberty to sort of be fairly open. And that’s the person I am, open and frank.

[TR in conversation with TG]
It goes hand in hand to me with your whole philosphy on travel… your freedom.

TG:
Yeh, and also it would help sell the book!

[TR in conversation with TG]
Laughs!

I want to talk about your choice in accomodations Tony. Reading your book I never really considered my self Bourgeois, (using slang version pronounced Boo- zhee) but I don’t know if I would stay at a hostel. {Laughs} The dormitory style. No, I would stay at the ones with the room. Ok, I would have a room but you stayed at some that are like dormitory style. Like you just grab a bunk? {Exhale as in huh!}

TG:
Just grab a bunk and even on one trip I was up in Minneapolis and I stayed with a friend and I had to catch a bus super early in the morning so I was thinking there’s no hostels near the bus station so someone said go over to this hostel across the street and it was literally just a matress on the floor.

[TR in conversation with TG]
Oh my gosh!

Are you sure that was a hostel or was that a homeless shelter.

TG:

{Laughs…}

Well, I don’t know what it’s like losing your sight as an older person. You might worry more about wwhat you can’t see but when you’re sort of young you don’t worry about it so much. You’re just meeting people. You talk to people that’s the key I think.

[TR in conversation with TG]
Yeh, Tony I’m not worried about that. If I had my sight I don’t think I would stay in the hostels, in the dormitory style… {Both TR and TG laugh…}]

TG:
Ah, then it’s just you then.

TR:
Again, I would get a room, I would do a hostel with a room, a nice clean room with a bed not just a mattress. Some blankets, nice pillows – fluffy pillows. {laughs}

TG:
Oh dear, you sound llike my girlfriend.

[TR in conversation with TG]

So how has that affected you in terms of traveling with your girlfriend? Are you still staying at the hostels?

TG:
We stay at hostels but we get a private room so we can be romantic and stuff. Yeh, she did have a couple of hostel experiences. We shared a dorm and luckily it was two other women so it wasn’t too bad.

TR:
Seeing the Americas, Tony’s second book is based on a trip he took in 2004.
He says it’s quite different from the first.

TG:
I started in Brazil and sort of wandered around South America for about three months and then worked my way across the middle of the states well down the east coast to start with and then crossed New Mexico and Texas and down into Mexico and Cuba and then back up through the states and eventually across Canada and Alaska. And that books a more sober reflection. I stopped drinking and I was dealing with sort of more emotional issues with relationships and stuff.

[TR in conversation with TG]
Outside of not sleeping in dormitory style hostels, how has traveling with your girlfriend changed or has it changed anything in terms of traveling?

TG:
We travel a little slower. We have to sort of plan things a bit more. Where as I can rush around and spend one night here and one night there my girlfriend doesn’t want to do that. She wants to spend 2 or 3 days in each place. I never unpack, she sort of moves in.
When I’m traveling with her I have responsibilities with someone else to worry about. When I’m by myself I don’t worry about anything at all. But it’s good though you have someone to share the experiences with and stuff. But the ultimate travel for me is when I’m by myself . You just meet more people when you’re by yourself. It’s good because there’s countries she doesn’t want to go to like Africa. She doesn’t like mosquitos and the heat and stuff so it works for the most part. I sort of have to promise I will Skype every day when I can let her know I’m safe. I get told if I haven’t emailed for three days. Where are you what are you doing who are you sleeping with…It was rough in the beginning because she didn’t sort of trust me. Relationships are about trust. Traveling is about trust. As a disabled person it’s about trust. You have to trust people to get money out of ATM machines when you’re traveling, trust that someones not going to get you run over when crossing the street and things like that. It’s easier for me because I learned to do that when i was young. That’s one of the hardest thigns for people losing their sight especially in older age is to trust people.

[TR in conversation with TG]
Yeh, expecially when you learned the opposite.

Let me ask you these final questions here and let you get on your way.

TG:
No worries, we can talk all night.

[TR in conversation with TG]
What have your travels taught you about humanity?

TG:

In general, most people are trying to survive, make ends meet, put a meal on the table for their family, roof over their head. Most people are kind and helpful if you take the time to interact with them. You’ll always get some people who are just out to gain something for nothing. The generosity and kindness that has been shown to me around the world is staggering. You couldn’t put a price on it. Sure I’ve been robbed had things stolen but that’s life it could happen anywhere. The positive outweigh the negatives ten to one. I’m totally blind I’m severly deaf and I should be vulnerable to every kind of negative thing that could happen to someone yet I never been shot or knifed or mugged. I met one guy who was shot. He was in a hotel in Mexico and just came down to reception to buy a drink or something and they were robbing the place and he got shot in the leg. I met one guy in Brazil, this was weird, they stole his back pack but left all the contents.

[TR in conversation with TG]
Must have had a lot of crap!

TG:
You go to Africa and you realize what life is really about. You think about something like water. We just turn the tap on and oh water, we don’t think about where it comes from. In villages in Africa, they walk 2 or 3 miles to collect water and bring it back and they can’t drop any. Things like that make you more humble and realize how lucky I am to live in a country with free health care etc.

[TR in conversation with TG]
Have you encountered other people with disabilities and what it’s like in various places.

TG:
Yeh a few. I met a young boy in Venezuela which is a very poor country.His parents had gotten him a little stick. He’s about 5 or 6 years old. They couldn’t believe it when they met me It just gives people hope. With a documentary which has been made by the BBC, more people say to me oh yeh my son’s got RP and reading your story and seeing you documentary makes me smileand they say yeh my kid can do whatever they want to. I met a lad in Kenya who 2 or 3 years old and his bones are deformed. And he met me, he doesn’t really like smiling at people. When he met me he just kept squeezingly me fondly and they said yeh, you’re making him smile.A guy in Brazil emailed me and asked me questions about traveling to Sweeden and italy… I said yeh come on you can do it. My aim is to inspire people to get off their bum and do what they want achieve their goal, lift their dreams. It can be done. It’s just fear that holds them back, lack of confidence. If you have the right planning, research and a little bit of help here and there then you can do anything you want. I’m not saying you have to travel around the world like I’ve done – that’s crazy. Maybe just walking down their own street or making a cup of tea. If you can achieve that by reading my book or listening that’s great. That’s my role in life done.

[TR in conversation with TG]
What has traveling taught you about yourself?
I’m a better person than I often think I am. Not so much now than I used to. I’m funny, I’m fairly kind for the most part. I’m inpatient… I’m still working on that.

[TR in conversation with TG]
Reallly? See I thought that goes hand in hand. Like patience, that’s one of the things that I think to be successful, you have to be patient. You obviously seem like you’ve been successful so… why do you say you’re impatient.

TG:
Well I think I’ve learned to be patient waiting for buses and planes, but I still find myself impatient with people some times. People let you down they don’t do things you think they’re going to do. I suppose I just want to do things and go places… I’m still in a rush. I have slowed down a lot an awful lot

TR:
Slow down? Maybe…

Tony’s working on securing the appropriate documentation for
a trip to Lebanon & Iraq.
In fact, while editing this story Tony and his girlfriend are
preparing for their trip to Russia.

TG:
European Russia so Saatchi (where they heldthe Winter Olympics)… eventually over to Moscow and St. Petersburg.
We’ll do that for a month and that will be fun that will be a challenge. No English, long train journeys cold weather . My theory is we just take bottles of Vodka and we’ll make friends easily.
TR:
Both of Tony’s books, Seeing the World My Way and
Seeing the Americas are available in EBook format from
various distributors and in Braille from the RNIB.

He’s interested in having the book recorded by the National Library for
the Blind here in the states.

For more on Tony Giles

TG:
My website blog is Tony the Traveller.com with two l’s in traveller.My Facebook page is Tony the Traveller and I have my own YouTube page. Or you can just search for my name, Tony Giles. And you can the BBC travel show.

TR:
If this topic of travel and exploration interests you as much as it does me,
let me suggest a couple of past episodes of Reid My Mind Radio.

The Blind Nomad – which profiles
Jim Paradiso and how he ended up living
in Ecuador after he lost his sight and almost his life.

Of course you have the Holman Prize winners series and specifically
my man Ahmet the Blind captain who is preparing to kayak
the Bosphorous Straits from Europe to Asia.

Like Tony mentioned, you don’t have to go to
extremes to find adventure.

may I selfishly recommend listening to this podcast?
Ok, that’s not a bad start but there’s probably other things we can do.

Notice I said we, I’m not being my most adventurous self.
I have a few ideas for some adventures but I’ll keep those close to me for now.

When I do move forward on any, you can be sure of a few things;
I’m taking my microphone and recorder and will bring you along for the trip.
and
[TR in conversation with TG]

Again, I would get a room, I would do a hostel with a room, a nice clean room with a bed not just a mattress. Some blankets, nice pillows – fluffy pillows. {laughs}

Make sure you subscribe to the podcast whether you use Apple Podcast, Google Play, Sound Cloud Stitcher, Tune In… or of course you can come over to Reid My Mind.com to listen,
read the show notes and access any links mentioned in the show or even the transcript.

However you listen, make sure you stay subscribed and tell a friend.
There are so many benefits to doing so;

TG:
That will make life a lot easier both in terms of traveling, working or studying or whatever you want to do and also relationships.

[Reid My Mind Theme Outro]

TR:
Peace!

Hide the transcript

Reid My MindRadio – Fears of a Blind Nomad

Wednesday, June 7th, 2017

Jim Paradiso at the Inca Ruins
When I heard about Jim Paradiso, I had to find out more. He’s a Blind Nomad… I had to hear his story. Turns out it’s so much more than that… he’s forcing you to challenge what you think is possible. That is, if you believe!

Take a listen and let me know; do you believe?

Resources

Transcript

Show the transcript

TR:
What’s good fine people.

I have a lot to say about this episode so I’m just going to get right into it.

Well of course after the intro…

The best way to kick this one off…
[Audio: Been Around the World, Notorious BIG]
[Audio: RMMRadio Theme]

JP:
By the way what I’m about to tell you is true and I don’t give a damn if you believe it or not!

TR:
Any story that begins like that, well, you know it has to be good. whether it’s true or not, that’s for you to decide.

That voice you just heard is Jim Paradiso.
you can call Jim, a nomad!

A modern day nomad refers to people; often those with an online virtual business, where one’s income isn’t tied to a brick and mortar location.
Earning 60K for example and living outside of the US on various continents can really stretch that dollar.

That’s not exactly Jim’s situation. He’s been living a version of this lifestyle for over a year now and is currently in Loja, Ecuador.

According to Jim;

JP:
The adventure is the journey

TR:
With that said, let’s begin with the journey that lead Jim to Loha Ecuador.

JP:

I was talking to a friend, he was moving to Vilcabamba and I’d never heard of Vilcabamba and I said it sounds like a good name so I left to go to Vilcabamba. Which is a fifteen hour ride on a bus from. Manta to Vilcabamba. So it took me four weeks to get there.

I get into Cuenca and of course with me now I’m traveling alone for the first time. And I’m up in this Hostel, I said well OK, so I posted on FB { I’m in Cuenca, what’s there to do for a blind man traveling on his own?

TR:
Ok, , the fact that Jim is blind for most people probably makes the idea of him living a life as a nomad and traveling in unknown places, is maybe;
Very frightening?
Unbelievable?

Well, then let’s pause on the journey through Ecuador for a moment and hear what some may think is an unbelievable adventure of Jim’s vision loss
and the series of preceding events .

JP:
I had an aneurism Thirteen years ago on my left eye. And they tried to fix it and they screwed up the eye entirely. Then three years ago I woke up one morning and I had an aneurism in the other I. And I went through ocular injections and everything else that went with it and I had a bad reaction to the ocular injections which caused me to have a stroke.

so I was living with a girlfriend who decided she didn’t want to be with a blind man.

I ended up homeless. I was a month from being blind enough to qualify for Social Security. I was unemployed and Basically I was living on the couch of a motor home
that belong to a friend of mine who was in a retirement community.

So I get a phone call from my brother who was living in Ecuador and he said Well Linda is looking for a manager for a B&B would you like the job? I said, well what’s the pay. Room and board and fifty dollars a week.

Ok, I could be homeless in a motorhome in Florida or I could be homeless on a beach in Ecuador?
kind of a no brainer to me.

TR in conversation with JP:
and I’m sure fifty dollars is different in Ecuador than in Florida.

JP:
It doesn’t make any difference as long as you got food and shelter who cares about the rest of it. I live very inexpensively because that money doesn’t mean anything to me anymore.

I went for a pedicure because I couldn’t see my toe nails and I was catching them on my socks and when she cut the calluses off the bottom my feet so when I went for a walk on the beach I ended up getting third degree burns on the bottom of my feet.

I picked up a flesh eating bacteria and I had to be medivac the act from Ecuador to the United States after two operations down here and five days in the hospital.
The flesh eating bacteria that I picked up is usually fatal within seventy two hours and the only cure for it is amputation; actually they call it debridement which really is amputation. They have to remove all of the bacterial growth because it doubles in size every nine minutes.
Once I got back into the United States they put me in the teaching hospital in Shands of which this was the second case they had in fifty years of this particular virus. They amputated two toes and debride most of my foot and then they had to regrow it in an oxygen rich environment.

This took ten weeks and then they put me in a nursing home for a month. Rehab they call it but it actually was a nursing home.

While I was there I had an abscess on the back of my head so I went to the doctors when I had my foot looked at and they slants the abscess and said this isn’t right so they sent me to a Dermatologist.
Well when they slants it they gave me MRSA – which is another flesh eating bacteria. While I was at the doctor’s they said oh I don’t like these moles on your back let me have them biopsied. Well as it turned out I had skin cancer. They had to operate on my back and removed the skin cancer. Which I thought we were just going to remove a mole but they ended up doing 19 stitches on each side and trenched both sides of my back. Then they had to put me on different antibiotics in order to kill the MRSA they gave me and then when they removed that they discovered it was a tumor. Then they had to remove that. And that was in six months.

At that point I was afraid of dying.

When I finally got settled with Social Security Disability, I Flew back to Ecuador.

TR in conversation with JP:
Why?

JP:
Because my kids wanted to put me in a retirement villa.

TR in conversation with JP:
How many kids do you have?

JP:

Again that’s an odd story…

I have four kids but they’re not mine.
TR in conversation with JP:
Oh Ok!

JP:
My ex-wife’s two kids from her previous marriage.
And I have her ex-husband’s two kids from his previous marriage.

TR in conversation with JP:
OK that’s a new situation!

You have her ex-husband’s kids? (laughing!)

JP:
They all consider me dad and I was always there for them.

By the way, have you ever heard a story this ridiculous?

TR in conversation with JP:
so many people stories that I have heard of do have like one thing on top of the other you know but this flesh eating viruses and tumors, yeah… you’re winning!
– laughs!

TR:
Now, returning to Ecuador Jim met up with a friend.

JP:
He didn’t have any money and I said OK I need someone to travel with because blind people can’t travel alone!

Well I spent three weeks in the Andes and then two weeks in the Galapagos. Then we came back and we went up to Colombia – we spent three months in Colombia. Then we took a cruise and went from Cartagena through Panama, Costa Rica, Jamaica and Grand Cayman. And then circled around back and then went hiking in the mountains and Colombia

TR:
That friend Jim was traveling with was 42 and at the time Jim was 60.
Plus he was still recovering from flesh eating diseases,
multiple cancer surgeries and newly adjusting to blindness.

He learned a valuable lesson.

JP:

There are some things that are worse than traveling alone and that’s traveling with somebody else!

So at Christmas I flew back to Manta.
TR in conversation with JP:
So Jim can I ask you… you just
shared all of that … I mean you talked about a cruise and
flying to the Galapagos and stuff so you’re financing that on the Social Security?

JP:
Yeah!

TR in conversation with JP:
OK! And at this point you’re not paying rent or anything like that just traveling so you’re a Nomad.

JP:
Right, I’m a Nomad, I’m homeless.
I’m doing this on $1,127 a month.

So anyways when I got back to Manta I had infected my foot again and I had to stay off it for six weeks which drove me nuts.

So I was talking to a friend he was moving to Vilcabamba and I’d never heard of….

TR:
That brings us back to Jim’s journey.

When we left off, he was on his way to Vilcabamba
and stopped in a Hostel in Cuenca
where he posted the question

JP:
In Cuenca, what’s there to do for a blind man traveling on his own?

One guy suggested why don’t you head up to Ingaperka which is a Aztec ruin in the Andes which would be Eastern Ecuador.

TR:
So off he went to Ingaperka to find the ancient Inca Ruins.

Now if you’re thinking Jim is probably fluent in Spanish
or of course everyone speaks English,
well you’re wrong.
In fact, most people in the town of Ingaperka speak a dialect of the Incas.

JP:
The bus let me off in the middle of this town. I have no clue where I am I finally find somebody that speaks about four words of English.
And she asked me what I was doing and I say I was looking for the ruins. And she says ruins Cinco. I said Cinco kilometers. She says no Cinco minutos. I said where and she say aqui and pointed me to a road and so I walk up the road. I walk into this beautiful state park.

TR:
After receiving a tour of the ruins
well, it’s time for Jim to begin making his way to Vilcabamba.
He catches one bus to Cuenca and another to Loja.
Which is where he of course posts to Facebook:

JP:
What’s there to do for a blind man travelling alone through Loja?

Well this woman posts back well I have these two. English students who
are blind and would like to meet you. They’re sisters. So I meet them for coffee they come in on the arm of somebody crab walking because they don’t travel alone they’re in their thirty’s and they’ve been blind all their life.

They sit down and we’re talking and one of them looks at me and says who are you traveling with? I said nobody.

She Says Do you speak Spanish? I said no she said you can’t do that! I said yeah, I can!

TR:
By now you probably get the impression that the response, yes I can,
that’s something Jim is quite used to saying!

JP:
I’m here!
She takes me over to the elementary school which I’ll tell you is like a prison. Two meter high concrete walls surrounding it with broken bottles over the top of it and they’re all concrete bunkers and it’s just… it’s got mold it’s just… it’s a horrible place.

TR in conversation with JP:
Is that specifically just for blind children or is that…

JP:
Yes, it’s specifically for blind children. And there are residents there and there are day people that come from the city and this is the only blind school for elementary school children in the area. And she tells me that they don’t teach mobility there because they had to cut they cut their budget and the person they cut from the budget was the mobility trainer.

Now my experience with mobility training is I am blind
and I am mobile. There are my qualifications for the position… so now I’m the mobility trainer.

TR:
See what I mean by saying yes…
Jim not only said yes to teaching others who are blind to use the
white cane and more, but he has a pretty packed schedule.

JP:
I’m working four days a week from eleven to one at the elementary school. I work five days a week teaching conversational English at a college and I work two nights a week teaching mobility and technology at the high school.
I’m starting a nonprofit… We’ve got a doctor. Who is volunteering his time services to do prosthetic eyes on the kids that have missing eyes plus I have the Go Fund Me going…other than that I’m not really that busy!

TR:
That Go Fund me is a campaign to raise money to purchase white canes,
iPhones or iPads to provide children with GPS capabilities
in order to improve their mobility.

You can find more at:
http://GoFundMe.com/3noxfco

If you’re wondering what are the living conditions for a blind nomad
in Ecuador
Jim says his apartment in Ecuador
would probably rent for several thousand in New York City.

JP:
It’s the studio penthouse with a balcony view of the mountains. Glass all the way around its fully furnished. It has a hot tub, a walk in shower. The bathroom is ten by twenty and I pay $350 a month for it including utilities.

TR:
Jim’s a volunteer! He’s not paid for any of his work.
Well not in the traditional sense!

JP:
What I get from a kid who comes up and hugged me. You know – I’ve got children that actually… they don’t speak the language that I speak and they cannot express themselves on how much they really appreciate me.

I get people hugging me all the time. That’s what I get paid in!

While I still have work to do here I’m not leaving. It’s just different it’s a different lifestyle I found a place where they need me so I’m staying. When they don’t need me any more I’ll go somewhere else.
TR in conversation with JP:
How do you feel today about everything that happened? That whole crazy story you told me.

JP:
I will tell you something that you will very seldom hear from a blind person.

Going blind was the greatest opportunity of my life! Without that none of this would have happened. And that’s how I look at it.

TR:
And isn’t that what it boils down too!
How we choose to look at it!

Jim is actually looking for an assistant volunteer
to join him in Ecuador.
He needs help with some of those things he’s doing like
teaching mobility and technology.

He can provide room and board, but
the candidate needs to pay for their own travel.
Oh, yes, and the candidate must be blind.

Jim can be contacted directly through his Facebook page titled:
Blind Jim Can’t do That!
(Yeh, I can!)

I’m Thomas Reid
for Gatewave Radio,
[JP: I don’t give a damn if you Believe it or not ]
Audio for Independent Living.

TR:
I have never described myself as a journalist.
In fact, I make sure to say, I’m not.
I am a self-described Advocate who uses audio to make a point.
I don’t hide my opinion,
I choose the stories I want to tell and have a real solid perspective.
The idea of a journalist is that they supposedly don’t have that bias.
I don’t believe that at all!
However, A journalist would have done some real fact checking of Jim’s story.

They would have contacted various sources to try and confirm
his account of the events.

I am a New Yorker,
I instinctively don’t believe you!
It’s something I am really trying to rid myself of but it’s so ingrained in my being it’s really hard to separate.

I know there are some who will listen to this and not believe him.

Some will assume he has some residual vision – and say
that’s the reason he can do it.

Jim does have a bit of light perception which allows him
to see shadows out of a part of one eye.

Some will think it’s his nature.
Well, it’s probably fair to say Jim is something of an adventurer.
Before losing his sight he was a professional scuba diver diving throughout
the US and Caribbean.

That included salvage work for insurance companies, body recovery,
owning his own diving school and treasure diving in the Caribbean.

So here’s the thing…

I do believe Jim.

Jim is 100 percent telling the truth about the fears of a blind traveler.

Those fears are not just contained within the person who is blind.

You know that because as you were listening you felt uncomfortable.

You know you did.

I don’t care if you are sighted or
any degree of blind, you felt it!

I felt it! And feeling that way upset me.

I travel alone to different states but I had a fully planned itinerary.

Jim’s story made me challenge how I look at the world
and what I really believe is possible.

During our conversation a woman interrupted Jim and I asked him to explain what happened.

JP:
some woman just walked up to me and said You’re an inspiration to the people down here. I overheard your conversation.

I have people walking up to me on the street constantly doing that.

TR in conversation with JP:
How does that feel?

JP:
I don’t think I’m anything special.

I think everybody has it within themselves just that I choose to do that my question to people is Why don’t you choose to do it.

There are so many people out there that don’t want to leave their house and it bothers me.

TR in conversation with JP:
Why?

JP:
I’ve met so many blind people in my. Limited time being blind. And most of them tell me that they have limitations on everything they do.

You know they tell me it’s OK that you can do this but I can’t and then they give me a list of reasons why they can’t.

TR in conversation with JP:
What are some of those reasons?

JP:
Oh I could get hurt I could fall down. I could get lost.

So what’s the big deal you don’t think I get lost you don’t think I fall down you don’t think I get hurt?

TR:
I think it’s fair to acknowledge that the emotions behind these thoughts are real. But Fear you may have heard
is an acronym for False evidence appearing real.

You know what else is real!

Our perspective!
And we can actually control that!

JP:
I survived cancer. I’m blind. I survived the flesh eating bacteria What are you going to do to me that God hasn’t done already? It’s true! What fear do I have now. They told me I was going to die on three different occasions.

TR in conversation with JP:
you know you’re going to go at some point.

JP:
Right, we’re all gonna go some time!
I’d rather go out swinging then go out crying.

There is nothing holding you back but yourself.
I was at a Blind I Can meeting I can do is what they call it…

And they were talking about having an outing and they were talking about going out to lunch.

I mean, what is going to lunch proof for a blind person. Everybody eats!

They asked me what my idea of a good outing was…

There’s a place in Florida in Orlando called Machine Gun America. It’s automatic weapons… what the hell could possibly go wrong!

TR in conversation with JP:
Laughing!… I love it!

JP:

Make yourself feel alive.

You’re dead, nobody’s told you!

TR:
Jim, like many who lose their vision later in life, especially over the age of 55, never even had real mobility training.

JP:
My mobility training consisted of twenty minutes.

I learned everything on the internet and by myself reading books so when
they finally picked up my paperwork they put me through … they put me in front of a mobility trainer who told me that in familiar surroundings I was Ok, but I needed work in unfamiliar surroundings.

So I was hiking staying at an Echo lodge called Ukuku in Columbia it’s outside of Ibagué.

It’s a two kilometer hike up a mountain across three rivers. To get to this and the last river you crossed There’s a log and you got to balance on a log to cross the river.

Now do you know the proper caning technique for crossing a log bridge?

TR in conversation with JP:
Laughing… No I do not!

I think mine would be to straddle the log and then slowly go across. That would be my technique.
But that’s just me!

JP:

So I had to call back to the person who was in charge of the mobility training and I said, hey Tom what’s the proper caning techniques for crossing a log bridge?

TR in conversation with JP: To the avenue.
Oh my gosh! Did they have any advice for you?

JP:
Oh hell no.

TR:
But don’t get it twisted,
Jim isn’t some sort of blind Evel Knievel.
(If you’re younger than 40 Google him!

Jim is practical about his travel.

JP:
I have a theory. It’s really simple when I get to a town if I check into a Hostel I get the business card of the Hostel, put it in my wallet.

If I get really lost I take the business card and I give it to a cab driver and I ask the cab driver donde esta aqui… where is this? And he takes me there.

TR:
That practical advice goes beyond travel…

JP:
I’m trying to convince people that just because you have a problem doesn’t mean you can’t get your ass out and do something.

I listen to people tell me they can’t get a job. Well, go volunteer and get some experience!

TR:
I’m hoping to speak with Jim again.

And who knows maybe that will be in person, in Ecuador.

There are links on Reid My Mind.com to both the Go Fund Me and his Facebook page if you want to communicate directly with Jim.

I usually close with my reminder for you to subscribe to the podcast…

well today, I’m closing out with part of a favorite quote taken from Jim’s Facebook page.

Maybe someone will find it helpful… I think Jim may have.

Falling down is a part of life, getting back up is living.”

Peace

Hide the transcript