Posts Tagged ‘Disability’

Flipping the Script on Audio Description

Wednesday, September 16th, 2020

When it comes to Audio Description, are we listening between the lines? There’s so much more to AD than what we hear. So, today on the podcast, we’re going to expand who we actually hear from on the topic. There are the “experts” but there are plenty more with something really valuable to contribute. Like, Alejandra Ospina, Liz Thomson & Chanelle Carson who share their expertise on the subject.
Sometimes you just have to Flip the Script to hear what’s on the other side!

Plus I’ll introduce you to someone from the other side who I’ve been turning to when I need a bit of help! Or maybe I really do just need some help!

Listen

Resources

Alejandra Ospina
Disability Visibility: First Person Stories From the 21st Century

Transcript

Show the transcript


Sound of Vocal booth closing.

TR:

Geez, this idea of trying to open the podcast with something different or catchy is just starting to get to be too much.

If only I had help. If only I had help, If only I …

Sound of Dream Harp!

The Great Kazoo:

(Yawning!) You called?

TR in dream sequence:

Yes, oh great Kazoo. Didn’t you hear me calling you?

The Great Kazoo:

When? Of course not I’ve been sleeping.

TR:

Bruh! Isn’t that your job. To be there to look out for a brother.

The Great Kazoo:

My dear fellow, I’m not only undependable, but I’m a bit of a Kook… That’s why I’m hear remember I’m being punished.

TR:

Really, punished? You act like I call you that often. It’s been a minute since I actually needed your help Bruh. Plus I looked out for you that last time. I sent a very nice email to your supervisor.

The Great Kazoo:

Why don’t you try counting on yourself.

TR:

Oh, it’s like that son? Aight, forget you. I’ll just do the regular intro myself with you, nahmean!

Drop the beat!

Music begins with a Hip Hop Kick drum & bass.

What’s up Reid My Mind Radio Family! My name is Thomas Reid. I’m the host and producer of this podcast featuring compelling people impacted by all degrees of blindness and disability. I should clarify that a bit because I think it may get lost. People impacted by all degrees of blindness and disability? This includes all those experiencing disability directly. A person new to blindness for example. But it also includes their family members and friends. The teachers of the visually impaired, O&M & Rehab instructors who teach the white cane for example or other daily living skills. There are also those in supporting industries from technology, accessibility & of course Audio Description. I consider all of this to be summarized by impacted by all degrees of blindness and disability. For the record, I think our entire society is all impacted by disability, but we don’t all happen to realize that or even feel that way. But don’t worry y’all eventually they’ll catch up with us. That’s on them. So let us just keep doing our thing!

The Great Kazoo:

(Yawning) Oh look, I don’t wish to stay here forever. And since I am supposed to serve you I will try. But take heed, don’t ask for more than you can handle, you may get it.

Sound of reversing Dream Harp…

TR:

Maybe I don’t need help. I think I have an idea after all.

The Great Kazoo:

(Yawning…) Well, see you tomorrow. Maybe. Laughs. Sound effects signaling his disappearance.)

Audio: Reid My Mind Theme Music

TR:

Today I’m bringing you excerpts of some conversations I had over the past few months with multiple Audio Describers. Specifically writers and narrators, each bringing their own perspective and background.

AD is still new. There’s no one “right” way. With there being so much more to Audio Description than what we hear, it’s past time we hear from a more inclusive set of people involved in the process.

So, this is the first in a series I’m calling Flipping the Script on Audio Description. You know, sometimes you just need to hear from another side.

Now let me introduce you to my guests.

Alejandra:
My name is Alejandra (American English accented) or Alejandra Ospina depending on your audience.

TR:

That’s what I’m saying! The Reid My Mind Radio Family like our world is diverse. And that’s how we roll!

(Music begins)

Alejandra:

My business cards have a long list of things, but I like to consolidate it into what I’m calling a Media Accessibility Provider. I do Close Captioning and I do transcription and I do translation and Audio Description and so I like to imagine the things I’m doing all sort of promote access to content. I don’t consider myself as often a content creator but I like to facilitate people getting to see or hear or know what they’re watching.

TR:

That makes me think Alejandra’s introduction to media access is personal.

Alejandra:

Having close friends and chosen family members that are visually impaired and I’ve spent a lot of time describing things for them so it sort of was a natural progression.

Related sort of anecdotally growing up as the primary English speaker in a Spanish speaking family I spent a lot of time explaining things to so the concept of explaining comes naturally to me.

TR:

That sort of hits home for me. My mom played that role for much of her family. One thing I know is that can be a great way to develop an advocate’s spirit.

Alejandra:

I was one of those folks that got on my high horse which isn’t very high, about having people on social media describe images and photos that they post. So I spent a lot of time in the last five years gently shaming or encouraging people to describe the things they post on social media and over time that has caught the attention of folks in disability community and communities of people that are doing this kind of work. And it was sort of a natural progression.

TR:

Next, one of the first Describers to provide a visual description of themselves. This prompted me to not only begin asking other describers to do the same but really to think about incorporating that going forward with all interviews.

Here’s Liz Thomson, who is currently pursuing a Doctorate degree in Disability Studies.

Liz:

(Spelling her name)
Liz Thomson. I would visually describe myself as a dark skin 5 foot 2 person with black eyes and black rimmed glasses. Currently I have a mostly shaved head with a band of 2 inch short black hair. I identify as someone who is disabled, also bisexual and queer. A Vietnamese adoptee. Mostly grown up and worked in the mid-west. I use they, them they’re pronouns.

TR:

you can say Liz had a fast tracked introduction to AD. Learning of it and experience it all in the same evening.

Liz:

One of my good friends who is Low Vision, he invited me to go to a Disability Cultural Program. At the very beginning of the program they ask if anyone needed headsets for Audio Description. He’s used to that and I think he typically takes advantage of that accommodation, but I had never heard of that. And so I was like hey you know I’ll try it out. So I got my headset. I believe this was kind of like an open mic performance.

TR:

It included things like poetry, dance or movement and other artistic expression. probably not the most traditional first experience with Audio Description.

Liz:

So that really got me hooked!

Chanelle:

My name is Chanelle Carson. I am a Freelance Audio Describer out of Las Vegas, Nevada. I’m also the Senior Audio Describer at the Smith Center for the Performing Arts in downtown Las Vegas.

I’ve been working with the Smith Center for actually 8 years now. About 4, 5 years ago actually, during one of our pre shifts they just asked if anyone was interested in learning how to do Audio Description.

At the time I was 22 just out of college. I had been studying film with a focus on screen writing, I was thinking oh, this sounds like it’s right up my alley. I’m a writer and at the time I was very interested in learning how to do voice acting.

Didn’t hear anything for a few months then they sent me and another woman off to get trained at Joel Snyder’s Audio Description seminar.

[TR in conversation with Chanelle:]

Was it kind of hard to take what you learned and go right into the live stuff?

Chanelle:

Oh yeh! It was extremely difficult going from the training to doing live theater because the training was so heavily focused on TV and film that sure the basic stuff like;
Don’t talk over the dialog, Blind people aren’t idiots – don’t worry about being too tender or politically correct with your description. What you see you describe.

Of course with TV and film when you’re doing description for that you have the lovely pause button. You don’t necessarily have that for live theater.

(Music ends!)

You can’t go hey guys I screwed up can we go back. (Laughs along with TR) So it’s very much having to learn how to do things on the fly.

TR:

Like Chanelle, Liz too completed the ACB AD Training. Similarly, the application was less about TV and film.

Liz:

I’ve done photography ever since I was in middle school. I did photo journalism at my high school newspaper, in college. As a photo journalist I was realizing I wasn’t adding Alt Text. I wasn’t adding description in my captions to make it kind of more integrated. I would add a caption but I wouldn’t add that photo description.

TR:
Today, Liz can take up to 25 minutes crafting an image description when preparing to upload.

Liz:

Sometimes people are like how can you do that? Do the in their eyes the extra time and labor to do the Audio Description. My response now is how can you afford to not.

TR:

Even if you put aside making the world a more accessible place for all (boring!) there are some real benefits:

Liz:

It makes me look at my images more closely. It makes me reflect a lot more on images that I shot.

TR:

That reflection could lead to a better understanding beyond the pixels. Photography biases for example.
Liz:

Not taking images of people with disabilities. Taking more images of cisgender men.

TR:

It’s not just about description – Liz is thoughtful about phrasing.

Liz:

Language is also fluid and socially constructed and also has different meanings over generations and time. Like modern and traditional. Well that means something very different now than it did in 1940.

My first draft will be one way and then I’ll look at it later on in the day and then I’ll change it. If I say something like traditional, then I have to ask myself well what do I mean and also what did I really see.

It’s about writing and saying what you saw.

(Music begins)

Alejandra:

In addition to learning the sort of standard ways that one is meant to do Audio Description for video for things like Netflix and Amazon, I’ve also been thrown into the world of how do you break that open and describe differently in ways that are actually respecting the culture, respecting the art. becoming part of the art and not just being tacked on after the fact because somebody does not want to get in trouble for not providing access.

TR:

I find it very empowering to see a lot of that pushing of the boundaries around Audio Description coming from the disability community.

It’s no surprise that Alejandra has worked with Alice Sheppard and laurel Lawson who we featured here on the podcast. All sharing this way of looking at Audio Description as more than an access accommodation.

Alejandra:

I don’t have a specific background in writing, but I have a specific background in wanting to be right!
[TR in conversation with Alejandra:]

Hmm , hmmm! I like that. (Laughs)

Alejandra:

Laughs…

Given that I have a personal investment with my community and the people that I care about

TR:

That’s the Disability community. When you’re connected like that it’s more than a job.

For the record, there’s absolutely nothing wrong with it being a job that you perform professionally.

Alejandra:

I have AD on for almost everything that I watch as well as captions. And there have been so many times where I’m like you know that’s not right, I don’t like that.

TR:

Word selection, maybe failure to fully describe what was on screen…

Alejandra:

We both know that a lot of it is in the timing. And again it’s because AD is added on after the fact. There’s some really interesting things that I’ve been able to consult with

I did a live Audio Description for a panel sponsored by the New York University Center for Disability Studies. it featured the short films of a film maker named Jordan Lord. They create autobiographical films but the AD is baked into the narration. It’s written in sort of a prose style and the shots sort of follow as it’s written. So it’s not something that you have to add on after the fact. The filming is informed by what the film maker has written. And it’s very interesting. I think more films should be made that way.

(Music slowly fades to silence.)

[TR in conversation with Liz:]

have you always identified as disabled?

Liz:

No, I haven’t. Four or five years ago I was in the Disability Studies program, another student was talking about her letter of accommodation and her relationship to disability and her own disability identity. She also had mental health issues and mental health things and I was like oh my God like I’m also part of this community and I didn’t even know.

[TR in conversation with Liz:]

How do those identities impact how you write description.

Liz:

I don’t think people are talking about this, the identity of the describer or the person who does the voice, who writes it. They’ve made a huge impact on how I think about Audio Description and describe.

TR:

While working on an art gallery project, Liz and a colleague each drafted what they refer to as positionality statements. This included their bio’s and a statement about how they became involved in description.

Liz:

If you’re going to read a book, you might want to know a little bit about the author. You don’t have to.

We are not in a post racial world. I think it’s very important and necessary to know if you’re in an art gallery or theater you definitely need to know who’s writing that book or that script or who’s doing the painting, where they’re coming from.

TR:

Liz who completed the ACB Audio Description project training, refers to one of the lessons taught.

Liz:

In Snyder’s training even in his book, I don’t know about other people’s training and workshops but there’s about two sentences about race and that’s about it.

Basically, just to kind of paraphrase it says to describe race if it’s important.

TR:

The guideline refers to importance in regards to the movie’s plot. But like Liz says:
Liz:

I would offer that it’s always important.

TR:

It’s especially important to those who are marginalized . those who have been under or misrepresented on and behind the camera. Important to those who care about equity & justice. Important to those who want to see the real world which includes so much more than just white men. (My words, not Liz)

Important is subjective. So who should make the determination when it comes to consuming content?

I propose the consumer. In order to do that, Blind consumers need that information.

Liz:

If you are describing race you need to do it for all the people or all the characters not just the people of color because otherwise it centers whiteness. So I agree with that. What I’ve experienced though, race is not described. Even in for example, Black Panther or in some movies or TV shows that is predominantly people of color.

Chanelle:

Traveling Broadway shows, they are so white. (Laughs) I’ll be the first to admit and I am about as white as you can get. Thank God more recently we have had a lot more diversity in shows.

(DJ Scratch… Music begins)

Hamilton is like the perfect example of this. Also Hades Town more recently.

I will absolutely go out of my way to make sure to point out that there are Black actors, Hispanic actors, Asian actors in a show just because I really want to celebrate the diversity of these shows going forward. I’ll do the same thing when I’m doing Circe Sol as well. The audience will always be very diverse as well so it’s great for someone who may not be sighted or may be Low Vision to be able to imagine themselves within that person in the show.

TR:

And if we’re going to change the way we think about race & privilege it’s just as important that non people of color also see and acknowledge & respect this diversity.

Like the saying goes, things are rarely black and white. There’s lots of shade in between. Those shades are important and often reveal other stories.

Liz:

If I do distinguish between someone who might be light or medium or dark skin, is that perpetuating colorism? I don’t want to perpetuate colorism. On the other side, probably when people in TV or film make casting decisions they are making decisions like that. Unfortunately!

TR:

Colorism or the practice of favoritism towards those with lighter skin has its roots in slavery and white supremacy. It’s not exclusive to the US or to African Americans but rather throughout communities of color.

Acknowledging a person’s color as description does not perpetuate colorism. A Blind viewer Wanting descriptive information about a person doesn’t make them a racist. Including editorial such as the prettier or menacing followed by color or racial identification, well that’s another story. It’s going beyond what’s required for Audio Description and providing opinion or analysis – which is the responsibility of the consumer alone.

Alejandra brings up an interesting point around identity.

Alejandra:

I’m Hispanic, but I have a lot of experience code switching and ultimately being very white passing, both in my physical appearance and in my voice. And whether or not I realize it or admit it in different situations that’s opened different doors for me.

TR:

And yet…

Alejandra:

The two things are very separate, AD script writing and AD Voicing, but I’ve done some AD script writing for some Netflix shows as a contractor. Not particularly things that I found super exciting but they needed somebody to write a script and then I didn’t get to voice those things because AD Voice work is like any kind of performance and acting work, they sort of have to want you for the part.

I think it’s important for the voicing of Audio Description to match the tone and the content and the intention of the work. And I don’t see that happening. Not very often anyway.

TR:

And then, there’s physical access for the creation of accessible digital content

(Music ends)

Alejandra:
At a practical level, places that are doing audio production, voice recording and audio books, even our local library that handles recording for the NLS, booths are tight. Wheel chairs are not. This is not an experience that these places generally have. They’re not generally expecting a wheelchair user to come in to record and it’s unfortunately like everywhere else I’ve had to have this discussion. Yes, I use a wheelchair, yes we’re going to have to make adjustments to booths so I can get inside, you can just barely squeeze into the booth and you need space to do these things.

And I’m also very interested in Spanish language content AD as well because there’s not as much of it.

TR:

This raises the question of non-English access in general. Something I fail to personally remember on my own when thinking about access.

Chanelle:
Each studio sometimes has their own rules of stuff that you can or cannot say. You can’t say that they point a weapon at someone. You can’t refer to anatomy in certain cases like you can’t say chest you can’t say butt!

TR:

I’ve heard this about Disney. At first, you may think well, Disney produces a lot of content for children. So they’re being sensitive to the viewer. But remember, it’s on screen. And it’s not just Disney.

It’s not just the censorship that annoys me, but even in terms of researching this, we’d need sighted help.

Liz:

If we as describers similar to people who do interpretation with like ASL, if someone swears, the interpreter should interpret that. I think the captioner should caption that. Because that’s what the person said. So similar to Audio Description, I think we also have that obligation.

TR:

Whatever the medium, television & film, live theater, video games, museums, art galleries and yes, you too right now uploading your images and videos to social media – getting all of these content creators to know and think about Audio Description needs to be a goal.

The benefits of AD extend further than the consumer. We all win!

Chanelle:

Regardless of what I’m watching now if it’s a TV show if it’s a movie if it’s another stage show, I find myself kind of mentally describing it like I would do it for an actual performance. So it’s very much changed my view point of media in general.

TR:

I know I’ve heard some conversation around what qualifies someone as an AD professional. A specific number of training hours? Certification perhaps?

(Music begins)

Alejandra:

Here’s the thing.

There are many folks who do this work because they have particular kinds of voices. Because they can crank it out because they’re smooth and more power to them.

I just am not that kind of describer because I have a very particular investment in my community and in the work that I am producing and that doesn’t mean that other folks aren’t doing high quality work. It’s just that what is informing their work is very different.

TR:

For an example of what’s informing her work, you can hear Alejandra narrating Alice Wong’s Disability Visibility: First Person Stories From the 21st Century right now on Audible. The book is available on Amazon and other outlets and it’s Alice y’all so it’s in a variety of formats because Access is love!

Alejandra does a great job narrating and I highly recommend the audio book.

Shout out to all of my guests for taking the time to speak with me;
Alejandra Ospina (Spanish accented pronunciation)
Available at SuperAleja.org that’s S U P E R A L E J A. O R G
The site Includes links to all social media.

Liz Thomson and Chanelle Carson.

You can find both on Facebook especially in the Audio description discussion group

Sound of News Breaking Segment…

This just in, it’s official! You are all a part of the Reid My Mind Radio Family!

I have a couple more episodes that I’m including in this Flipping the Script on Audio Description series. I’m not publishing them back to back so if you’re interested in the subject and want to make sure you don’t miss the next installment, please allow me to make a suggestion.

Subscribe wherever you get podcasts!
Transcripts & more are over at ReidMyMind.com. And yes, that’s R to the E I D
(Audio: “D and that’s me in the place to be” Slick Rick)

Like my last name.

Audio from The Flintstones:

Barney Rubble:

Do you think he’ll be back?

Fred Flintstone:

I don’t know Barn. Might be better if he wasn’t. Look at all the trouble he caused us.

Audio: Reid My Mind Outro

Peace!

Flintstones continues…
Barney Rubble:

He caused us or we’ve caused us? I wonder which it really is. Augh, I think he’ll be back.

Fred Flintstone:

Ah, looks that way. Goodnight, Barn.

Barney Rubble:

Goodnight Fred.

Hide the transcript

Superfest Disability Film festival: Going Above & Beyond

Wednesday, September 2nd, 2020

Superfest Disability Film Festival Logo

When the Covid 19 Pandemic forced a shutdown, some people and organizations were in the position to really step up in different ways. Cathy Kudlick & Emily Beitiks from the Paul K. Longmore Institute on Disability home to The Superfest Film Festival are among this group.

In this episode we’re discussing the history of Superfest and more including:
* Providing online content for an underserved community during the Pandemic
* Defining 101 vs. 201 Disability Films
* Creating a template for Accessible Film Festivals
And of course More on what you can expect from Superfest 2020 on October 17 & 18, 2020. Plus, join me on a quick journey “Back in the Day “through my own movie experience over the years.

Listen

Resources

Transcript

Show the transcript

Audio: Record player static… “Back in the Day” Instrumental, Ahmad

TR:

Every now and then I like to tell my kids about my experience growing up. It puts things into a perspective. At least that’s my intent. They usually just make fun of me.

I tell them how as a young child growing up in the 70’s we used to get dressed up to go to the movies. I mean actually put on our good clothes. For me that meant dress pants which more than likely was polyester. Hard bottom shoes and dress shirts or sweaters.

(“Yuk”)

Movies were an experience.

Over the years that experience changed. By the early 80’s, I didn’t get dressed up and go downtown with my family, we now had a local theater. I could go with my friends, choose my own clothes. At first that was during the day time, but then as I got a bit older and a new multiplex theater was built in the borough, we all traveled there on Friday and Saturday nights.

Audio: Krush Groove Movie Trailer…

RIP, to the Whitestone Theater in the Bronx!

The experience continued to change. I changed as well. I began to prefer going to the movies during the day again. Eventually with my own family.

For a few years, I stopped going to the movies altogether. That was when I could no longer see the screen. I didn’t return until a theater about 30 minutes away from my home began offering Audio Description. That process wasn’t very smooth at first, but it did get better.

Now I’m back to my family trying to tell me what to wear.

Today, Covid 19 has obviously made adaptation a requirement for just about everything in our society. As we’ve seen, these adaptations paired with accessibility can equal opportunity. It’s not permanent, we know experiences evolve. When it’s inclusive, well I think that’s a good thing!

By the way, there’s nothing wrong with my sweat-shirts!

I’m Thomas Reid, your host and producer!
You’re rockin’ with Reid My Mind Radio!

Audio: Reid My Mind Theme Music

Cathy:

My name is Cathy kudlick and I’m Director of the Paul K. Longmore Institute on Disability at San Francisco State University. I should spell out Longmore because so many people here it as lawn mower, but it’s Longmore. It’s a disability cultural center. We try to kind of get people to think about disability in new and creative and innovative ways.

I’m a History professor in addition to my role as Director at the Longmore Institute and I teach Disability History among other things and I come at this largely as somebody who grew up with a serious vision impairment and was in complete denial through much of my life trying to pass and pretend and all of those things and then a random encounter with somebody and then started to read more about blindness tuff and disability stuff and all of that led to kind of start to say hey there’s nothing to be ashamed of here so why not embrace what’s really cool about this and think about it in new ways.

TR:

Thinking about disability in new ways. We’re going to come back to that.

If you’ve been riding with Reid My Mind Radio, you’re probably thinking we’re about to dive into Cathy’s journey. It’s obvious, Cathy’s story falls in line with this podcast’s mission. Well, for now that’s not the case. She has however, agreed to come back to share her story on a future episode.

Today’s episode is all about the…

(Audio: “Super, Super Super, from Super Rhymes by Jimmy Spicer)

Superfest Disability Film Festival.

Also here to take us through the festival is Emily Beitiks the Associate Director at the Longmore Institute on Disability.

Emily:

I’m the Coordinator of Superfest. I work with the film makers each year to help them audio describe their films and work with the audience each year as we kind of learn from them what works what doesn’t work and bring Superfest into other arenas to kind of broaden the reach of where our films are seen and introducing people to audio description for the first time when I do school assemblies or go to libraries or not your traditional Superfest audience. I’m a non-Disabled accomplice in this world. My mom had a disability since before I was born so I’ve been really passionate about bringing my own experiences kind of straddling both worlds experiencing disability discrimination and also participating in it as being a non-disabled person.

TR:

Let’s start with a bit of history.

Emily:

Superfest was started in Southern California in Los Angeles in 1970. It switched hands to various organizations over the years and migrated up to the Bay area where it was run for many years by Culture Disability Talent. It was a really well loved grass roots effort volunteer lead.

TR:
Running an event like this solely with volunteers can be a challenge. In 2012, Superfest found a new home with The Paul K Longmore Institute on Disabilities and The San Francisco Lighthouse.

Emily:

It was just kind of a very exciting match because the Longmore Institute was just getting started in a new sort of way as our founder Paul Longmore had passed away and Cathy had come on as Director and Lighthouse was a really established organization but focusing more on direct services and was interested to kind of push their boundaries by doing some more cultural programming.

We partnered up and ran Superfest for the past seven years.

TR:

The festival, which originally was not an annual event, is now headed into its 34th year. This will be the first time it’s solely run by the Longmore Institute, as the Lighthouse leadership decided to focus on other programming.

Emily:

We were really lucky to have that partnership with Lighthouse for many years because they just had a sort of organizational structure for like getting the bills paid and the reservations booked that moved a lot faster than we were capable of when we were just getting started. We’re really lucky that they waited and gave us a lot of warning because now we’ve been up and running for some time and we’re ready to run the ship by ourselves.

Cathy:

The other thing that kind of got thrown into this that makes it less hard to measure what the big change is you know with Covid how much of this is ultimately going to be online anyway. We’re still trying to decide. We don’t quite know if the venues we want to have it at in mid-October are going to be open and ready and all that. So it’s hard to measure exactly what a new Superfest without Lighthouse is going to be like.

TR:

Fortunately, Superfest in October won’t be their first go at managing events online.

Emily:

For the last few years, we do an annual event called the Longmore Lecture in Disability Studies and we had started to experiment with using Zoom to live stream that event to be able to bring it to people that by nature of their disabilities they couldn’t come or geographically they couldn’t come in person. When shelter in place hit and we’re here in San Francisco which is one of the first places in the country that got the official lockdown, we kind of saw it as a real opportunity, we’re like oh, we can do online programming. We’ve had experience with this and we could figure out how to bring it to a festival environment.

TR:
The challenge in presenting films online is the threat of pirating.

Audio: Scene from Pirates of the Caribbean”

“You are without doubt, the worse Pirate I’ve ever heard of.”

Jack Sparrow: “But you have heard of me”

Emily:

But I knew I’d worked with enough film makers over the years who I could reach out to that their primary mission was just for people to see their films. So the risk of possibly somebody making an illegal recording was just not as big of a concern. The more people that see this film the better.

TR:

Some of the films included work from Reid My Mind Radio family members Cheryl Green & Day Al-Mohammed.

Emily:

People really need this right now. People are cut off from their community and at the same moment that there’s so much hurtful and ablest rhetoric circulating around disability. And so to be able to spend an evening or an afternoon watching some disability films it also really brings people together and celebrate disability and get at the nuances of life with a disability that certainly the mainstream media doesn’t always get, just felt like a really important possibility.

TR:

My initial interest in featuring Superfest here on the podcast began with access. I was really impressed with the way they just for me at least, appeared to come out of nowhere and start providing content for the disability community. The way they do access; not only did I feel included, but knowing others were also able to participate just felt like something I should share with the Reid My Mind Radio family.

I wasn’t the only one reacting.

Emily:

One person was like I’ve never been able to participate in any sort of film festival in my life because I spend most of my time in the bed. They said this was just incredible to get to be part of this. Another one that stood out was a guy who stayed up super late to watch in Kenya with a group of friends and was like that was absolutely worth staying up for. Now I have a group of friends and we’re going to watch all your programs. And he certainly has.

So just being able to bring this program to people that don’t have what we have in the Bay area has been really exciting.

Cathy:

Emily thought to do another really cool one which was Superfest Kids which was kind of a nice home schooling moment I guess, with disability awareness and it was all geared towards kids. How many people did we have on that one? Do you remember?

Emily:

We had about 150. A number of people were like my kids are supposed to be on a Zoom call with their class right now but this is a more important lesson.

TR:

A lesson that more of us need no matter our age.

For the unfamiliar, the idea of a disability film is something like;

Cathy:

Oh Disabled people are people too and isn’t it great that they’re there and this is a positive happy uplifting story. It’s not a depressing one whatever. Those are fine, but we highlight what we think is disability 201 – films that share the creativity and the ingenuity or the unexpectedness or the intersections of disability with other kinds of identities.

TR:

Identities like race, gender, sexuality

Considering the idea of Disability 101 versus 201, you may think those new to disability should begin sequentially. Cathy however doesn’t see it that way.

Cathy:

I would say go to Superfest right away because if you’ve even thought about disability for five seconds or anybody around you has thought about it, chances are they’ve seen some version. It’s usually some films by a family member or friend that just thinks wow you know it’s really great that so and so with fill in the disability and then fill in what they did. They either traveled somewhere or they climbed a mountain or they went to school.

TR:

The 101 or 201 classification isn’t about good or bad. The distinguishing factor between the two is 101 films aren’t often made with disabled people in mind.

Cathy:

We want people to sort of think about disability as experimental and as interesting and as passionate and not just as yet another feel good story about somebody climbing a mountain because they started to be more comfortable with their disability or they needed to prove themselves. We want to ask them to think about well what happens when that person comes down from the mountain. What’s their life like after that?

TR:

That’s another difference. The 101 films feature a single disability experience.

Cathy:
But the 201 version would have them speaking to other disabled people and kind of bonding. There would be some sort of connection and some sort of excitement and engagement. It’s not just like one person being show cased all by themselves.

It might be that they have a quirky view on things and they change the thinking of other disabled people or they changed the thinking of people around them to give an unexpected perspective on the world around them.

TR:

The 201 films like Superfest, really center disabled people. And at the end of the day, as Emily explains, the goal is pretty simple.

Emily:

We’re just trying to not have them be bored. Even if you are new to finding your disability identity, typically a 201 film can just go a lot farther with pushing people’s buttons and thinking like wow, there’s this whole world of thinking about disability that I haven’t seen before.

A few years back we came up with a list that we kind of think of 10 things that define disability 201 and what Superfest is all about. Things you’re going to find at Superfest that you’re not going to find anywhere else.

TR:

These are things like;
People with disabilities as the main characters
Intersectionality – people with disabilities aren’t just white men as often portrayed in movies. So at Superfest, you’ll see representation from Black, Latinex, and LGBT people with disabilities.

I’ll include a link to these ten categories on this episodes blog post at ReidMyMind.com.

At Superfest, all screenings include open Audio Description. So unlike when you attend a film at your local theater and you request the headset and receiver to privately stream the audio description, these films have the description streaming with the main audio. As Cathy notes, this does require some introduction for an audience unfamiliar with AD.

Cathy:

You’re going to hear this and you’re not used to it. Think about it as a new way of watching films. I’ve often thought of it as in that context of when they introduced talking to silent films. It’s another layer that people weren’t ready for and then suddenly like woh this is very new. The problem with that though is it can be sensory overload for people that have processing or cognitive stuff going on

TR:

A challenge of producing a film festival like Superfest is the idea that creating access for one group of people may unintentionally exclude another group.

For example, Emily talked about a film called To Be or not To Be. It featured a young man with Cerebral Palsy in Kazakhstan. The film which was in Russian, required translation. For sighted users, printed sub titles along the bottom portion of the screen will do the trick. Blind viewers require over dubbing.

Emily:

The focus of the film is really his incredible acting abilities. In making it accessible to the Blind we were then losing hearing this actor with CP and his own voice telling his own life story. So it was a really tough example of like a competing accommodation of wanting to bring access to the Blind but not wanting to lose this man’s voice.

TR:

This particular film worked out because it had enough quiet space that the description and dubbing was staggered to allow the actors voice to be heard. For this very reason, Superfest now determines which films are better suited for open description but offers closed description for others.

Emily:

So much of our work is working with these film makers to teach them, think about the problem and have tough conversations as we do it so that hopefully people are thinking about it in advance of making their films.
[TR in conversation with Emily:]

So what is that process like, of teaching the film makers?

Emily:

Well, when they apply to participate in Superfest, there’s a requirement box that they have to check that says that they’ll get their films captioned and audio described.

TR:

Most of those who apply are in agreement with this philosophy. In some cases especially for independent film makers, the cost of captioning and describing, while small in comparison to other production costs, can present a challenge.

Emily:

A lot of our film makers are able to get it done. Other times we have to work and get creative about finding funds ourselves to be able to cover those expenses or find funders that are willing to do it for them. With each film kind of think it through with the film makers and sort of talk through the strategies.

TR:

Funding is just one of the challenges. Some films may just be packed with dialog and visuals leaving little space or no space for description. Emily and Cathy explain how one such instance was managed and how the result can be a win for all involved.

Emily:

And so we were like we’re going to just have to add pauses to the film to do this right and get some of that Audio Description in. There were going to be visuals that like everyone in the crowd who was sighted was going to laugh at that and we didn’t want to risk that people would not get to experience those jokes. And so we built in those pauses and I think this film maker was super up for it.

Cathy:

You know when audio description’s done badly it’s horrible, it’s like suffocating on something that’s beautiful and something that’s not. But when it’s done well it kind of coaxes out some great stuff that’s already in there and enhances it. So she got somebody to audio describe the film that had the same snarky tone that the images did. So it totally enhanced the images for everybody.

Emily:

We’re introducing it to them for the first time but we’re also really trying to empower them to be advocates for what the final product is and be like you know your film best. You know if that visual right there matters or if that was just some B roll you needed to fill the shot. The more active that they can be in the audio description process if they do outsource, the better the results have been.

Cathy:

To me that’s the dream of a Superfest audio description experience where the film maker says woh this made my film better!

TR:

Currently, English and American Sign Language (ASL) are the only supported languages. However, an online festival offering multiple links for various languages would simplify the process in comparison to a live physical audience.

Getting that audience whether in person or not takes work.

Emily:

Shout out to our wonderful student assistants. Every time we have an event they get an email from me like okay, here’s the audience for this one, think of everybody you can and send them this email. We have like a big list of disability organizations all across the country, but then with each one we’re like who can we reach that would not have any interest in attending a disability film festival but because of this new sort of twist on it right, might be interested.

TR:

Selecting the students, or Longmore fellows, as Cathy refers to them is not about finding interns to get the job done.

Cathy:

We try to hire as many students with disabilities and put them in the majority as our kind of student workers but also we’re educating them and bringing them into community with each other about new ideas around disability.

TR:

The students are experiencing the mission of Superfest, advocacy, education and community building. All done through the phase one judging of the films.

Cathy:

It’s almost like a class but we get paid internships for students with disabilities to come and basically watch like 190 – 200 films and have to Weddle it down to like 10 or 15. And we teach them and they teach each other and they become advocates and learn about representation of disability and all these things by working together.

TR:

Both Cathy and Emily lead the interns in discussions about the films. With each of the students coming to disability from different angles as you can imagine, the conversations are rich and engaging.

For more on Superfest jurors, check out episode 76 of Alice Wong’s Disability Visibility Podcast. I’ll hook you up with that link on ReidMyMind.com.

While much of the world got caught flat footed during the pandemic, we see how the team at Superfest was in a position to quickly respond.

Emily:

We have always evolved with new twists and turns each year.

Emily & Cathy:
There’s always something!

Cathy:

The BART Station right by the venue was down. We created a bus bridge to another BART station. We found out like that morning at the festival.

Emily:

One year we arrived at one of our venues and the night before they had painted a wall like right outside the entrance to our auditorium. So the fumes were going to be a serious problem for anyone with chemical sensitivity. We’re like, alright great let’s figure it out. We’re going to get some fans in here. We’re going to reroute and everyone’s going to enter through the back.

We’ve been giving advice to some of the other film festivals not just disability film festivals but film festivals period with how to do online programming. I think that’s a great example of like when you’re in the disability community you’re used to things not being made for you because of ableism. That gives you this adaptability and flexibility and like our festival has that spirit.

TR:

The Superfest Film Festival will take place on October 17 & 18, 2020.

With 15 films all falling within the range that Superfest aims to include.

Emily:

Different disabilities featured, a mixture of documentaries that look at some of the honest hardships of life with a disability and others that are light and hilarious and really get at some of the funniest moments insider humor inside the disability community. A lot of really incredible artistic films that explore the beauty that comes with disabled bodies and disabled dance movement.

TR:

This year’s set of films consist of 14 short and 1 feature film.

Emily:

Called God Given Talent that explores a local Oakland based artist who’s Black and Blind. Really looking forward to sharing that more local story.

TR:

And yes, you are going to hear more about that particular artist in an upcoming episode right here on the podcast.
*

For more on the films included in this year’s Superfest lineup visit SuperfestFilm.com.
You can learn more about the Paul K. Longmore Institute on Disability at LongmoreInstitute.sfsu.edu
They’re on Twitter @LongmoreInst and Facebook Facebook.com/SFSUDisability.
Or, just check out this episodes blog post at ReidMyMind.com for all the links.

Superfest sounds like much more than a film festival. In fact, I see it as a resource for those adjusting to blindness.

Chances are those new to blindness or disability in general haven’t spent much time critically thinking about disability. Being new to the experience is an opportunity to examine all that’s been accumulating in the sub conscious over the years. The films featured in Superfest encourage us to move our thinking about disability to a conscious level.

Take a look at the list of 10 things defining the 201 films and Superfest. They resemble some of what I’ve been learning along this journey of adjusting to blindness. Like;
* Recognizing the various ways disability intersects with other identities
* Exploring disability as a political and social issue, not just medical
* Seeing ourselves throughout all aspects of society and finding friendships within the community.

In fact, now that I think about it, Superfest sort of reminds me of how I feel about this podcast.

Cathy:

People need to know about this. it’s just such a great opportunity and it’s kind of great that it’s gone under the radar for so many people for so many years but on the other hand it just would be so great to have it be really, really well known. It’s so beloved and people are so excited about it and every year people come and they’re just like woh, we never thought of this. This is so amazing.

TR:

I’m just sayin’!

While I’m looking forward to Superfest being online this year because I personally get to attend, I know there’s no replacement for that in person experience. I look forward to one day being able to participate in person. I get the sense that it could be a similar experience to my first blindness conference. That sense of belonging or community.

Audio: It’s Official…

Cathy Kudlick…
Emily Beitiks…
And Superfest…

Its official! You know you’re part of the Reid My Mind Radio family!

Come hang out with yours truly and the rest of the cool kids watching some fun, interesting and thought provoking films. Head over to SuperfestFilm.com to check out the lineup and grab your ticket. Don’t forget the snacks and drinks. (You gotta have the snacks and drinks.)

Subscribe wherever you get podcasts!
Transcripts & more are over at ReidMyMind.com. And yes, that’s R to the E I D
(Audio: “D and that’s me in the place to be” Slick Rick)

Like my last name.

Audio: Reid My Mind Outro

Peace!

Hide the transcript

A Peak at Finding A New Normal

Wednesday, May 20th, 2020

Today, everyone is talking about a new normal. Those adjusting to blindness or disability in general, have a lot of experience in this way of thinking.

Thomas & Marlett seated under a green tree with a blue sky and scattered white clouds hovering above.
As disability impacts the entire family unit or team, I invited my wife Marlett on the podcast to discuss the topic. The result? Advice on managing those inevitable uncomfortable public encounters, accepting change and even how Tick Tock can help during this pandemic. Well, sort of…

Our discussion is actually a sneak peak into an upcoming episode with Dr. Mona Minkara and her production team from Planes Trains & Canes.

Take a listen to this episode and then check out the documentary series before you meet them all here on the podcast.

Listen

Transcript

Show the transcript

Audio: Sounds of microphones being touched…

Marlett:

I am not touching the microphone or the stand.

[TR in conversation with Marlett:]

Do you see me touching the microphone?

(Long Pause)

And I’m a professional! (Laughs…)

Marlett:

You heard my feet.

[TR in conversation with Marlett:]

What?

Marlett:

you heard my feet, I did this…

[TR in conversation with Marlett:]

Oh, don’t do that.

Marlett:

Ok!

TR:

What’s up Reid My Mind Radio Family! My name is Thomas Reid. I’m the producer and host of this podcast, bringing you compelling people impacted by all degrees of vision loss from low vision to total blindness.

Every now and then, when inspired, I bring you stories from my own experience as a man adjusting to becoming Blind as an adult.

If you are newly impacted by blindness and you found the podcast, first of all welcome. Secondly, I think you’re going to like it here.

Today’s episode does include my wife Marlett. Ever since the last episode titled Celebrating 15 years of being Blind, I received some feedback from people who enjoyed hearing from her. I made the mistake of letting her know that. As you’ll see here today, it may have went to her head.
Despite that, I asked her on because, well, I’m a great husband.

That’s my story and I’m sticking to it!

Audio: Reid My Mind Radio Intro

TR:

Let me start this off with a warm virtual hug for you all. It feels like every day the idea of normal is pushed further and further. What we would have expected and accepted seems to be a continuous slide in the wrong direction. Specifically,
putting kids in cages, the death of 80 thousand people in two months or racists shooting an innocent young Black man.

Our responsibility, is not to accept it. not to simply act like it is normal.

On this podcast, I don’t often go into politics or current affairs except when I feel it relates to the process of adjusting to blindness. These connections are from my perspective. It’s called Reid My Mind Radio after all.

So when is a good time to accept a new normal?

Right now, just about everyone on this planet is dealing with a new normal. Although we’re all experiencing this pandemic differently, we’re doing it together.

There’s a similar feeling around acquiring a Disability. Now, I’m referring to all of those impacted; parent, child or spouse for example.

Similar feelings but there are some real differences between what is being felt during the pandemic and the experience of disability. For one, the entire world isn’t analyzing it on every news channel. There aren’t easy ways to gain multiple perspectives. It’s more likely something the family goes through alone. Hopefully it’s a real opportunity for that family to become a unit a real team.

I’m on this journey with you so I get it. And so does my wife, Marlett. I invited her on the show to get that team perspective from someone impacted by blindness.

[TR in conversation with Marlett:]

What I noticed from the last time is that if I ask you to introduce yourself you have a big production necessary for the intro and I don’t think I’m going to do that this time. Laughing…

Marlett:

Ok!

Audio: Intro from Celebrating …

Audio: “The Baddest Chick”, Trina

[TR in conversation with Marlett:]

Can you please just state your name for the record?

Marlett:
Marlett Reid

[TR in conversation with Marlett:]

And who are you?

Marlett:
I’m the baddest chick!

Audio: As the music gets louder …

Marlett:
I’m your wife!

The music continues.

Now back in the present.

[TR in conversation with Marlett:]

Laughing… You want to introduce yourself anyway?

Marlett:

My name is Marlett Reid, currently writing a book so it’s going to be M.E. Reid.

[TR in conversation with Marlett:]
Laughing… you’re here to promote your book? Laughing…

Marlett:

Laughing…

TR:

Ok, when my wife does publish her book, I’m not only buying a bunch for the RMM Radio family, but she’s definitely coming on the podcast. And that I tell you right now, will be the best episode I ever produce!

It’s not always the case, but Marlett and I shared some perspective around this idea of finding the new normal.

[TR in conversation with Marlett:]

When your life is uprooted because that’s what everybody kind of is really saying…

Marlett:

Right, right.

[TR in conversation with Marlett:]

And then now you have to start to see what is going to be the new normal. And I’m saying that we’ve …

Marlett:

Yeh, we’ve been there.

[TR in conversation with Marlett:]

The difference to me is that while we were doing that everyone was still living their normal. It felt like we were the only ones doing that because it was just impacting us and our family. Do you see any parallels between what we’ve been through and what’s going on right now?

Marlett:

Nothing new to us. Trying to figure out what to do coming up with new ideas of entertaining the family. Picnics in the living room or family night movies.

Social distancing, that’s funny to me because no one really came around We understood about social distancing people were doing that to us for quite some time. Distancing themselves from us.

[TR in conversation with Marlett:]

Damn!

Marlett:

Well it’s true.

[TR in conversation with Marlett:]

Mm Hmm… (In agreement)

Marlett:

They were distancing themselves. If we went to a party they did social distancing there too.

[TR in conversation with Marlett:]

Laughs…

Marlett:

We would be in a corner or we’d be in one side and they’d be on another side. They just didn’t have a mask.

TR:

At least not one that was visible.

Audio: Plane taking off…

At the time of this conversation, I was in the process of producing what will be the next episode of the podcast featuring Mona Minkara and her Planes Trains and Canes production team.

The documentary series which can be found on YouTube follows Mona who is Blind, on a journey to 5 different cities around the world where she travels alone using public transportation.

I’m encouraging you to check out the series which I’ll link to on ReidMyMind.com.

I was curious to see what if any parallels Marlett would draw after an explanation of the documentary’s concept.

That is the resulting encounters a Blind woman receives as she’s recorded on video while traveling through an airport or subway.

Marlett’s perspective wasn’t what I expected, but it’s definitely understandable how she got there.
Marlett:

It made me think of African Americans, really. When they try to navigate or go through life, how people treat them.

[TR in conversation with Marlett:]
Them? Are you Black?

Marlett:

How people treat us!

[TR in conversation with Marlett:]

Laughs…

Marlett:

Walking into a bank or walking into a store or walking in a neighborhood.

Audio: YouTube…

“No Justice No Peace!” (Repeats while clips from a news reporter plays…)

“Arrests in the shooting death of a jogger in a Brunswick neighborhood for killing Amaud Aubry. The charges; murder and aggravated assault”

TR:

Perspective matters!

This conversation was on the heels of this latest senseless racist murder of Amaud Aubrey.

(Pause)

When it comes to adjusting to blindness, Marlett and my family are O.G’s in this game!

Marlett:

We have our thing down. We already know what’s going on like I know people talk to me instead of you and I know how I handle that.

[TR in conversation with Marlett:]

Alright so give me an example of that.

Marlett:

If we go, anywhere you have to do something, they’ll talk to me.

[TR in conversation with Marlett:]

If somebody asked you for an example of that, is there any specific one that you would give. I’m curious to see if it’s the same one.

Marlett:

We went to go vote.

[TR in conversation with Marlett:]

Oh my gosh!

Marlett:

The woman said you can bring him over here or something, you can correct me if I’m wrong but something to that affect. You spoke up. You said whatever it is that you wanted to say.

[TR in conversation with Marlett:]

I don’t know if I said something or whatever? I probably said something…

Like oh you could talk to me. That’s probably what I said. So it wasn’t until after I got out …

Marlett:

And she said, I shouldn’t have done that. I liked her apology and it was to you. I don’t think she ever did that again.
[TR in conversation with Marlett:]

You’re right so we’re good. Like we’re real good. Like I say hello she says hello and it’s cool. It’s all good. That was a nice interaction because it came out where she got it like immediately.
Do you remember the first time. You might have not noticed it even happened the first time.

Marlett:

Maybe like the first time it happened I didn’t really think about it. Maybe about the third or fourth time I probably thought about it more. I think you and I spoke about it. You knew it was taking place and so you would just speak up real quick but then I think after we talked about it and I was like well I’m not going to say anything , you can just take your time in answering not just jump in there.

TR:

Y’all hear my wife’s way of trying to tell me to chill. That’s cute right! I know it’s because she doesn’t want me to be upset, but ignoring it doesn’t make it go away.

I know I shouldn’t take things personally, but having someone talk around me while I’m standing right there? Remember, I said there are things we should never accept as normal, this is one of them. My recommendation?

Marlett:

You would speak on it or be vocal about how it made you feel, but not like it caused tension between us.

I never answer for you. I won’t answer for you. I will walk away or I’ll turn and look at you for you to respond or I will look at my phone.

TR:

Marlett is so great with these situations now that Every time this happens , I almost feel sorry for the perpetrator. I can feel their confusion. If I am feeling let’s just say a bit feisty, I’ll let them hold onto their confusion and embarrassment for a little while. You brought it out, you hold it! It works, they get it.

It’s a cool play that Marlett and I execute well together.

Marlett:
We still have hiccups.

In the beginning it was a lot of hiccups there because you were used to taking the bags and just going. Boom!

What works best for us when we travel is if we discuss it beforehand. When we freestyle we generally tend to have some hiccups.

TR:

Now first of all did you notice how Marlett made it sound like I was the cause – as in, you were used to taking the bags and going.

Marlett:

Boom!

TR:

She’s right! But truthfully we were both used to that.

She’s also right in the need for us to all be on the same page. Communicate the plan before trying to execute.

On this team, we each have to play our role at any given time.

Our roster includes two more players – our girls.

Marlett:

When they were little that was a little harder. Usually they walked in front of us Riana would hold her sister’s hand and they would walk in front of us. Sometimes behind us and I would glance back occasionally just to make sure they were still with us.

[TR in conversation with Marlett:]

I remember that was a thing because I would always ask you where the girls? (_Laughs…)

Marlett:

Yeh!

TR:

They’re 16 & 22 now. Amazingly, Marlett is still hovering around 32.

Traveling with them today?

Marlett:

The girls leave us!

They’ll make sure that we don’t have anything to hold us up. All we have to do is to get where we have to go. They’re more intoned to what works to get us to where we need to go. Like when we went on the cruise, they took the bags.

[TR in conversation with Marlett:]

I had a bag.

Marlett:

You wouldn’t give up your bag.

[TR in conversation with Marlett:]

I know, yeh, I’m not giving up my bag.

Marlett:

You’re not going to give up your bag that easily. You still got that machismo.

[TR in conversation with Marlett:]

Oh, wait we’re gonna go there? You think that’s machismo? That’s alright, I don’t have to go into that because you’re wrong and I don’t want them to be all like oh my goodness Marlett we don’t like her anymore.

Marlett:

Some weird laugh that basically translates to whatever! Ok!

TR:

Ok, despite my lovely wife’s incorrect assessment that I have even an ounce of machismo, her lessons here can be helpful no matter who makes up your team.

For example, producing Planes Trains and Canes requires a real team effort. You can hear all about that in the next episode of this podcast.

Before that episode drops on June 2, go check out Planes Trains & Canes. It’s not necessarily a pre-requisite but we do dance around some specific scenes from the documentary series.

I’m also curious to see if we see similar parallels between the show and adjusting to blindness.

Marlett:

I feel like if you’re traveling with someone who is Blind , you two should have a conversation. What makes each one comfortable?

In the beginning when this all happened I was I think in my feelings. I don’t think I really thought about you or me but more so how everybody else was looking at us. Once I got over that part, which I’m not fully over it, but for the most part I am; we work better!

TR:

Adjusting to blindness is not really a place you arrive but rather an ongoing journey. You either decide to take it or find yourself well not really going anywhere.

[TR in conversation with Marlett:]

What would you say goes into being able to accept a new normal?

Marlett:

Understanding you can’t change anything so you got to make it work for you. You know the pandemic came around, there’s nothing we can do about it, there’s no cure. The only thing at this point is you got to stay away from people so that is going to be our new normal. Handle it! Things always change that’s life. Nothing ever stays the same, you got to change with the times.

[TR in conversation with Marlett:]

… That’s real talk!

It doesn’t sound like you’re very compassionate about it . Like I thought you might be a little more compassionate.

Marlett:

I am being compassionate. I’m telling you the truth. I’m trying to get you to get over it quickly. Pull off the Band-Aid. It is what it is. I could hold your hand and we can go through it but…

[TR in conversation with Marlett:]

See I don’t understand why you can do that but when I do that you’re like (mockingly) Tommy! (Laughs) ]

I’m just going to put this out there because I try to tell everyone I’m the compassionate one in the family.

Marlett:

Exhales… Uh Lord!

[TR in conversation with Marlett:]

And I think I just got proof of that. It’s definitely evidence.

Marlett:

I realized one thing about this pandemic, this whole thing with the Tick Tock.

[TR in conversation with Marlett:]

Oh God! Laughing…

Marlett:

But wait a minute. This whole thing with the Tick Tock!
[TR in conversation with Marlett:]

Hold up, hold up, hold up! I don’t know if everybody knows Tick Tock.

Marlett:

Well Tick Tock is this app where the older generations are dominating this app. I think a lot of people know about Tick Tock. But the great thing about Tick Tock is that…

Audio: Marlett continues with volume lowered….

TR:

Reid My Mind Radio Family, I need your help. I think my wife has an addiction to Tick Tock. If you don’t know, it’s a pretty popular app now that was pre-pandemic considered for the kids. It enables quick short videos often consisting of lip singing or short dance routines.

I’m going to spare you as she tries to rationalize her obsession with claims of this app building bridges.

I’m not saying it’s not true, because honestly, I don’t really use the app. the majority of the content that I’ve come across is predominantly visual and audio description is not an option.

Even the killer content I made with my youngest Raven, a highly sophisticated and intricate dance routine, had no way of including description.

[TR in conversation with Marlett:]

Yo whose the Tick Tock Killa?

Marlett:

That would be you Thomas. (Said very sarcastically!)

[TR in conversation with Marlett:]

That’s me, the Tick Tock Killa!

I think you only like Tick Tock because you like to say Tick Tock. I think that’s why this app is actually doing so well because people like to say Tick Tock.

Marlett:

Tick, Tock!

[TR in conversation with Marlett:]

I should have named my podcast Tick Tock and I probably have a whole lot more people listening and subscribing, you know what I’m saying?

Marlett:

I don’t know maybe you’re right. I do like Tick Tock. Yeah!

[TR in conversation with Marlett:]

I ask people to subscribe…

Marlett:

It’s the way you ask people… (she fades her own voice out)

It’s the way you do it! You have to ask…

[TR in conversation with Marlett:]

Wait up, first of all how do I do it? That it’s the way I do it.

Marlett:

I don’t know how you do it, but it’s not the right way. I’m just saying it’s probably not the right way.

[TR in conversation with Marlett:]

How can you say it’s the wrong way. Oh my God! (Laughing hysterically)

Marlett:

So I’m going to ask everybody to subscribe. And leave me a little heart emoji or a smile or say hi Marlett. (Spelled out)

[TR in conversation with Marlett:]

Where are they going to do that?

Marlett:

At ReidMyMind.
my content

[TR in conversation with Marlett:]

Dot com you’re talking about? You want them to subscribe and leave a comment on the episode page?

Marlett:

Yeh!… Yeh!

[TR in conversation with Marlett:]

Now I’m gonna tell you right now…

Marlett:

Yeh! I would like everybody to say hi. I would love it. I feel that energy it would just make me so happy. Just, just tell me hi!

[TR in conversation with Marlett:]

Long pause…

Do you know how many times I ask people to subscribe, to reach out?

Marlett:

And Subscribe…

[TR in conversation with Marlett:]

I give the phone number. I get some people, but you think you’re going to get…. (Laughs…)

Marlett:

What’s so funny?

My energy and their energy. They’re feeling my energy and they’re going to go and subscribe and they’re going to say hi Marlett.

[TR in conversation with Marlett:]

So what’s the matter with my energy?

Marlett:

Hi Marlett. (Name spelled out)

[TR in conversation with Marlett:]

What’s the matter with my energy?

Marlett:

And I’m going to say hi right back. And I’m going to send emoji’s and everything. Yeh!

[TR in conversation with Marlett:]

Ok!

Marlett:

Cause I have an awesome energy.

[TR in conversation with Marlett:]

Ok, I hope you’re right

Marlett:

I’m right!

[TR in conversation with Marlett:]

Exhale….

Marlett:

I’m right!

[TR in conversation with Marlett:]

On the real, I’d be jealous. I’m not going to lie. I’d be a little jealous. I’m not going to hate though. I don’t think they’re going to do it anyway.

Marlett:

Laughing… Alright!

[TR in conversation with Marlett:]

Cause I know you’re only doing this because you lost the Tick Tock battle, because you never did it because I won the Tick Tock battle.

Marlett:

Exhales….

I didn’t do the Tick Tock because I didn’t want to hurt your feelings.

[TR in conversation with Marlett:]

I killed that joint! If I have an audio described Tick Tock, Bee, I’m killing the game! Put some audio description on my Tick Tock, and then everybody be like Yo! Tick Tock Killa, T.Reid… Tick tock Killa!

Marlett:

You know, speaking of audio description…

[TR in conversation with Marlett:]

Alright, thank you babe!

you’re trying to take over the podcast now I can tell.

Marlett:

I’m not done.

[TR in conversation with Marlett:]

Excuse me!

Marlett:

I’m not done.

[TR in conversation with Marlett:]

Laughing… what? Laughing…

Marlett:

Why are you trying to kick me off . You know what it is right?

[TR in conversation with Marlett:]

What?

Marlett:

He’s jealous. (Long pause)

Because the shows I’m on do so well. Mm hmm. Because I’m on it.

[TR in conversation with Marlett:]

Laughs…

Marlett:

It’s that energy.

[TR in conversation with Marlett:]

Laughing…
The energy that’s going to get people to do what?

Marlett:

They’re going to go and they’re going to subscribe

[TR in conversation with Marlett:]

Umm hmm And how are you going to know they did that?

Marlett:

Because they’re going to leave me a little note and it’s going to say Hi Marlett! (Named spelled out again)

[TR in conversation with Marlett:]

You know you got that spelling thing from me right?

Marlett:

I think you got it from me. Yep!

[TR in conversation with Marlett:]

Laughing…

Marlett:

So make sure you go, Reid My Mind Radio!

[TR in conversation with Marlett:]

Where can they go to subscribe?

Marlett:

Anywhere that has podcasts.

[TR in conversation with Marlett:]

And then what’s the website?

Marlett:

ReidMyMind.com

R to the E I D

(Audio: “D and that’s me in the place to be!” Slick Rick)

Marlett:

Like MY last name!

[TR in conversation with Marlett:]

Laughing… That was good!

Audio: Reid My Mind Radio Outro

Marlett:

Peace

[TR in conversation with Marlett:]

Laughing… There it is. alright, Nice!

You’re trying to get your own podcast. Whatever Bee. I didn’t press record.

Marlett:

That’s not even funny!

Hide the transcript

CoronaVirus – So Many Parts

Tuesday, April 21st, 2020

Corona – So Many Parts

Covid 19 and CoronaVirus is the most immediate & serious thing we as a human race have dealt with at the same time. Simultaneously, we’re all a part – as in a community. Yet, we see so many all over the world trying to tear apart any form of cooperation between nations and people – apart as in separate.

It’s been hard to focus on something other than this pandemic, but there is a connection to blindness, to disability… take a listen, I got something to say!

Listen

Resources

Transcript

Show the transcript

Audio: Sir Joe Quarterman- (I Got) So Much Trouble In My Mind

Women yelling…
“I got something to say” (Fades out )
“I got something to say” (Fades out)
“I got something to say” (Prolonged yell fades out)

Ice Cube, NWA: “Yo Dre!”
Dr. Dre, NWA: “What up”
Ice Cube, NWA: “I got something to say”
Dr. Dre, NWA: Scratches on turntable

Lyric from instrumental mixes in… “I Got) So Much Trouble In My Mind”

Audio Sample: “You have got what appears to be a dynamite sound”

Instrumental music…

TR:

Greetings Family!

I’m hoping everyone is healthy, safe, comfortable and optimistic

I’m just trying to find the right words now. Well the right words for the opening I know are …

I’m Thomas Reid, host and producer. of this here podcast known as Reid My Mind Radio.
Bringing you compelling people impacted by all degrees of vision loss and disability.

Every now and then I share my own thoughts and experiences as a man adjusting to becoming Blind as an adult.

Finding the right words to express how I feel about all that is going on today isn’t so easy. The introspection though, can be helpful. It forces me to step back and get perspective. That search for the right words can even inspire a bit of creativity.

Audio sample: “Don’t toot your own horn honey, you’re not that good!”

TR:
I guess you can be the judge of that!

Audio sample: Woman yelling, “I got something to say” (Fades out )

Audio: reid My Mind Radio intro

Audio: Sir Joe Quarterman- (I Got) So Much Trouble In My Mind(continues from intro)
– Musical loop

Audio: Covid19 related News montage

– “It’s been another painful weekend in the CoronaVirus pandemic. The death toll is now more than…” (Fades out …)
– “More than 20,000 people have died from Covid and more than… ” (fading out …)”
– ” “More than 100,000 Covid cases in New York City. There’s also a serious shortage of swabs used to test for the CoronaVirus. That’s according to the city’s health department, which is now telling medical providers only test hospitalized patients.” (fading out…)
– “Perhaps because of The New York Times story, last night saying Republicans were trying to get the President to talk less every day, today’s White House briefing went on for over two hours. The president said some of the coverage is fake news. He said today flatly, everyone has the ventilators they need. He said we’re in great shape in every way.” (Fading out…)
– “Obviously, if we had right from the very beginning shut everything down, it may have been a little bit different. But there was a lot of push back about shutting things down” – Dr. Fauci

TR:

During my intro to the last episode, I purposely kept my thoughts about Covid19 and the CoronaVirus to a minimum.

It’s not as though I didn’t have anything to say, but I like to let my thoughts form fully before getting into a rant or ramble that I may end up regretting.

Today, I hope it’s okay that I share some of these feelings and thoughts I’ve been having, all triggered by Corona!
(stutter effect on corona_

Yeh, that’s right, this Corona has me stuttering. I’m shook!
I’m in no way making light of the situation. There’s just so much about what’s happening that is so ironic.

it’s the most immediate & serious thing we as a human race have dealt with at the same time. We are all a part – as in a community.

Meanwhile, so many all over the world trying to tear apart any form of cooperation between nations and people – apart as in separate.

That got me thinking…
Audio: Music stops… echo…
If this isn’t your first time listening to this podcast, you know that I tend to think about and focus on the process of adjusting to blindness.

Part of that adjustment includes things like employment, technology, orientation and mobility and just learning how to do the practical things.

From my own experience and conversations I’ve had with others, I know a very challenging aspect of adjusting is how we view ourselves after Blindness. Our self-image. It’s why many of those newly blind don’t’ want to refer to themselves that way. blind.

When your only substantive exposure to Blind people isn’t positive, well, why would you want to be a part of that group.

So chances are you wouldn’t see yourself as part of the disabled community either. I get it, I was there too.

There’s the titles we assign to ourselves and then there’s how we’re identified by others.

Growing up, I’d often be asked, what are you Black or Puerto Rican? My self-identification doesn’t separate the two. Those with an understanding of the history feel me right here… Look up Arthur Schaumburg and you’ll see where I’m coming from.

Society has assigned me a label that often dictates how many choose to interact with me.

When I was stopped by the police, .
Ran out of neighborhoods while being called names,
Followed in stores…

I was never asked, what are you Black or Puerto Rican?

However you decide to self-identify, if your vision loss or disability is visible or recognized , society sees you as Blind. Society sees you as disabled.

I’m not here to tell you how to self-identify .

I want this podcast, at the very least to stimulate some thought around adjusting and all that comes with it.

Personally, my belief is that when you get a better understanding of the people the history, expand your understanding of what disability is and isn’t, defining yourself may be an easier process.

With all of that said, there’s a connection between blindness, disability and this pandemic. Even if you don’t see yourself as disabled, it’s worth knowing how this pandemic is impacting the community.

I’d encourage you to go check out RMMRadio alumni Alice Wong’s Disability Visibility project podcast and website for more perspective.

The pandemic’s impact on us all is different. Disability, economics, location, housing… so many factors that play into how this pandemic impacts us.

Audio: Instrumental “Quiet Storm” Mobb Deep

Audio: Covid19 related News montage

– “The Pandemic seems to be disproportionally affecting people of color”
– “African Americans have been hardest hit by the virus. Despite accounting for 14 percent of Michigan’s population they represent 41 percent of it’s Covid victims. And in Detroit where the majority Black population, more than a third of them poor it’s even more stark.”
– “There are many reasons why Black communities are disproportionately being impacted by CoronaVirus according to a range of experts I spoke to. Historic disparities between access to healthcare, education, information and government resources in Black communities compared to predominantly white communities. throughout American history there’s been great tension between Black communities and the healthcare industry. Tuskegee Syphilis experiment. Ongoing studies that show that black women particularly those who are pregnant, are less likely to be listened to by their doctors and healthcare providers.”
– “African Americans are being hit disproportionately hard. We broke down some of the reasons. Medically why do you think that is. (Second speaker-Doctor) People of color are generally more susceptible to diseases and we know that they have those pre-existing conditions; the Diabetes, the heart disease, the asthma that makes them more likely to suffer consequences because of the CoronaVirus.”
– “Can you describe the make-up of the people in your waiting room right now. (Second speaker- Doctor) We’re noticing more Black and brown and immigrant patients that are seeking care. A lot of these patients are essential workers. A lot of them are service workers.”

“The Real” Mobb Deep

TR:

Salutes to all of those men and women right now doing the work that will get us through this awful situation. I’m talking about the medical professionals, staff including technicians, receptionists, janitors, food workers and others. So many of these people have been doing this work for years and have been unseen even looked down upon. Now in the midst of a pandemic, it helps us see the value in their work.

Corona has revealed some truths about society that people have been trying to either hide or not think about.

We need each other!

We all have something to contribute.

Can I share a story?
(Well, I’m going to anyway, because it’s my podcast!)

My wife and I went to this party. this was post blindness. It wasn’t my first time attending a party Blind so I was familiar with the challenges:
Some are physical;
learning new spaces
dealing with the crowds in those space

Others are more emotional, philosophical;
Should I use my cane?
How can I meet or start and interaction with new people
Where’s the bar? (It’s a party, right!)

Although I knew the challenges, I had not yet figured out my method of dealing with them. By this time, I think I was intent on not letting avoidance be my answer.

There was nothing about the party that was overly memorable except how it felt like we were shown to a section of the space and sort of left there. We only knew a few people outside of the person who invited us. My wife and I both felt the tension.

I remember thinking about how the experience would have been so different before vision loss. Those who did know me would have called my name when we walked in, maybe we would have made eye contact during the evening, we would have been introduced to others. Instead, we didn’t feel welcomed. We were there, but not a part of that party.

Ultimately we came to the decision it was in our best interest to leave that physical space as it was crowding our emotional space.

Sitting there at the edge of this party, feeling as though we were on display, I wanted to be included. I wanted a role and not that of a bystander.

This pandemic triggered those same feelings. Chances are, it’s not just me.

Doing anything right now that doesn’t relate to Corona, just doesn’t feel right. I like other people want to be helpful. In some way.

Despite what seems like the world coming to a halt because of the virus, life is still happening. With or without this pandemic there are lots of people new to vision loss. Some of them are former nurses, doctors, EMS workers. Similar to how I felt at that party, these men and women I can imagine aren’t satisfied with being bystanders. Are there opportunities for these men and women to contribute if they so desire? Are there people with disabilities on the frontline.

This reminds me of the documentary produced by RMM Radio alumni Day Al-Mohamed, called Invalid Corps. It features the story of a virtually unrecognized troop of soldiers who served in the civil war. All were soldiers with disabilities.

Shout out to Day and let me encourage you to check out that episode.

Do I actually believe a Blind nurse or doctor can somehow be effective?

If you’re asking that question this must be your first time here! Welcome!

Am I proposing these newly Blind men and women are sent to the ER?

I’m not a doctor and I haven’t played one on TV. Even though I do have lots of experience watching medical dramas on television I don’t think I can make that determination. However, I don’t think the answer is a quick no like so many people would assume.

As people with disabilities We’re so used to being dismissed and hearing things like;
Well, it’s just not accessible…
It has to be done a certain way, we can’t just change how we do things.
Change can’t take place overnight.

Inaccessibility is somehow treated as if it’s natural.
The majority of inaccessibility is manmade. Physical access like getting into a building. Software constraints that keep many of us from either participating on the web or employment and then process restrictions that mandate how a job is performed.

And then, all of a sudden!

Audio: Gazoo (from The Flintstones)

Have you noticed all of the corporations now accommodating their employees with work from home access?
The online conferences and entertainment now available.
Everything getting done online.

If inaccessibility is manmade then maybe man can fix it,
Audio: “That’s right!” from Harry Belafonte’s “Man is Smart Woman is Smarter”

TR:

Huh!

Audio: “That’s right!” from Harry Belafonte’s “Man is Smart Woman is Smarter”

Audio: Bill Withers Lean on Me Instrumental

TR:

Right now, I guess my role in this pandemic is staying home. It’s continuing to do this podcast. In thinking about how I can do more, I sure don’t want to do less so I’ll try to do what I can. I’m going to remain optimistic and not get caught up in conspiracies, although they can be very entertaining.

Eventually, this too shall pass. I just hope we will move forward and be honest about how we got here. I’m talking about the impact of years of all the isms, racism, sexism, ableism…
the neglect, , the poverty, the gaps between the have and have nots.

None of these things are new. They’ve been here way before any of us were here. Corona just highlighted those on the margins, the party goers who have always been apart, never actually partying.

I know many people are calling for a return to normal, but that doesn’t seem like what we should be striving for.

I hope you don’t mind that I shared this with you. I just needed to put my two cents out in the world in my own way.

I have some non-Corona episodes in the lineup. I can’t promise I’ll be silent on this topic, but at least I’ll try to make it sound cool and make you smile along the way.

I hope when you listen to this podcast you feel a part of this community, my Reid My Mind Radio Family!

Last month’s episode titled Live Inspiration Porn – I Got Duped, attracted some new potential listeners to the web page over at ReidMyMind.com.

According to Google, a bunch of people in search of the term porn, were served the episode’s web page. I can only imagine the disappointment they had for google when they saw this particular episode in their results.

But wait, according to Google, several actually clicked on the page.

I don’t necessarily consider myself a good writer but I’m sort of proud of this one! I mean wow, shout out to me for what must have been a fantastically written blog post to redirect that person away from they’re original search.

I’d love to know if someone actually ended up listening to the episode based on that discovery term. And man if you actually came back… email me at ReidMyMindRadio at Gmail.com because that would be the best testimonial ever!

Don’t worry, no judgement here! Get your freak on!

If you like what you heard here today, tell a friend to check it out…

Let them know it’s available wherever they get their podcasts. Of course you can take a ride on the information super highway and get off on the ReidMyMind.com exit. That’s R to the E I D. (Audio: “D, and that’s me in the place to be” Slick Rick)

Like my last name!

Audio: Reid My Mind Outro

Peace!

Hide the transcript

Live Inspiration Porn – I Got Duped

Wednesday, March 18th, 2020

Podcasting as a passion project takes some real perseverance. There’s always some excuse lurking around the corner just waiting for you to take
hold.

In this episode I’m working through one which has been nagging me for a while. Giving it some real consideration led me to recall a story from my own adjustment experience. A time when I got duped into being a part of a live performance of inspiration porn. Well, sort of. Let’s just say I wasn’t there for the same reasons as those running the event.

Like most episodes, I believe this one can give those new to blindness and disability some things to consider. In fact, like all episodes I don’t think it’s restricted but that’s not really up to me. I’ll leave it right here for whoever wants to partake.

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TR:

What’s up Reid My Mind Radio Family?

Yo soy Tomaso, Thomas Reid, host and producer of this podcast – Reid My Mind Radio.

Welcome to those of you who are new here.

This podcast introduces you to compelling people impacted by all degrees of blindness and disability.

every now and then, like today’s episode, I share some of my own thoughts and experiences as a man adjusting to becoming Blind as an adult. And yes, I say adjusting, I don’t think I’ll ever really use the ed suffix on adjust. That’s not to mean there’s no progress. It’s just a continuous journey. Once you get to the understanding that it’s not one to be feared or even think negatively about, it gets better. But It’s like life, there’s always going to be change, and vision loss or any disability is now a part of that.

If that’s part of your reality, a family member or friend or maybe people you work with, well you’re definitely in the right place. If you yourself are going through some other sort of life change or you just like podcasts. There’s something here for you too, if you are opened to that.

Everyone is truly welcomed here with the exception of those with real hate in your heart. Energy works in mysterious ways and I don’t want that negativity being passed along to me or any of the family.

So let’s get this poppin!

Audio: Reid My Mind Radio theme

# Intro

Today I’m sharing some thoughts about this podcast. These are not stream of consciousness. No way I wouldn’t do that to you. My mind can be a scary place when I’m trying to figure things out.

Audio: Sound of chaos!

Chances are as I navigate these thoughts they will prove to be applicable to more than this podcast and hopefully useful to others. That’s exactly how I feel about every episode. I focus on those adjusting to blindness , but lots of others can relate and enjoy.

Audio: Typing sounds….

Since I began this podcast and maybe even prior, I have been very specific about saying I don’t see myself as a journalist. I’m an advocate, straight up! If you listen to the podcast, you know there’s a certain message about blindness and disability. My opinion or feelings in most cases are evident. The overall message is one of empowerment. I’m not impartial.

Audio: Possibly use old episodes here

As if journalism is really impartial.

There are times though when I need to make all sorts of journalistic decisions. It could be the way I edit or the specific questions I ask, even the overall feel of the show, the sound design. It’s intentional. My approach is different from your standard so called impartial reporter.

I’m connected to most people who are guests on the podcast. Usually, the connection isn’t personal. Rather it’s through blindness and disability Sometimes it could be race or we have something else in common.

I feel a responsibility to both my guests and listeners.

I want my guests to feel what I hear when they tell me their story. I want them to know I respect them and their experience.

I want listeners to find the multiple ways they relate to my guests. Yes, there’s the disability experience, but maybe they share a similar motivation, desire or goal.

That’s what I want, it doesn’t mean I can always make it happen.

every listener brings their own past, prejudices, preconceptions and experiences to the podcast.

That makes sense, it’s like anything else. Two people hear the same song , see the same film or read the same book and have drastically different interpretations.

Some people see a reflection of their own lives and goals while others never see themselves in a podcast where blindness and disability is so prevalent.

It’s probably not one or the other. I think there are some who have a bit of both. Either way, I can’t control that.

Which leads me to this statement…

“You should always remember, there are people worse off than you.”

Audio:

“No matter how you’re sad and blue, there’s always someone who has it worse than you”, Shaggy

YouTube Videos
* ” If you’re having a bad day, just consider the day ….”

* “Bare in mind, there’s always someone worse off than you”

Song sung by Little Richard at a MS Telathon.

“… As I look around, so many people who cannot walk, not talk nor see, I thank God for the health and strength that I have, for there’s someone worse off than I am.”
TR:

First things first…

I’m pretty sure I said this same thing at some point in my life. it’s a common statement and an accepted way of thinking.

But, what does it really mean?

How can you compare someone’s life and happiness without all the information??

Is this really pity?

As a content producer, I cringe when I hear it now especially in relation to my podcast.

There’s never been a guest on Reid My Mind Radio that’s in need of someone’s pity.

I then question the choices made for that episode

Did I present this person in a way that says they should be pitied?

I don’t think I focus on the illness side of things. I do include or mention mainly because;
Others with the same diagnosis can relate.
It can also serve as a way to normalize illness and disability. They are a part of life and not a mysterious thing that happened to one person.

AudioFx: Ambiance head in skull
Am I creating inspiration porn?

Most of you are probably familiar with that term. It’s the
idea of presenting people with disabilities as inspirational solely or in part on the basis of their disability.

This idea that this person’s story which often you don’t even get, well it should inspire you or just give you that warm fuzzy feeling reminding you that most of the world is so considerate.

Watch how the rest of the high school students cheered on as the coach let the intellectually disabled kid in the game for the last 20 seconds.

News Report Audio:
Crowd cheering.Coach: He comes to ppractice everyday, he shoots with them, he cheers them on…”

TR:

Or…

News Reports:
Reporter 1: A very special student indeed…
Reporter 2: All thanks to the compassion of one of his classmates….
Reporter 3: But the emotion of this night involved a student who cannot take the field, but is universally admired for his determination…
Reporter 4: A special needs student with Williams Syndrome. He’s a fixture on the sidelineduring football games always rooting on the team. But hi fives are one thing senior prom is something different.
Student: She could have picked anybody to go to prom with.. her.

TR:

I just don’t want to put that sort of thing out in the world.

Does it sound like I’m making a big deal out of this? Maybe because I’ve seen inspiration porn live and in full effect. In fact, I unknowingly was recruited to be a part of the performance.

Audio: Dream Harp

Many years ago when I was still very new to blindness, I was asked by a local organization serving those with vision loss, to give a access technology demo during an event.

I took to the technology pretty quickly and they thought I could be helpful sharing that information.

There was no money involved of course, but they’d provide my transportation and I think there was going to be a lunch. Whatever, I was down to help the cause for sure.

I was setup y’all!

Arriving at the center, I was shown to the main room where the event was taking place.

There were three or four individuals with vision loss seated up in the front of the room. The rest of the group was seated around a large conference table.

I was shown to a table in the front of the room off to the side where I setup my laptop.

Shortly after, the host of the event, the director of the center, welcomed the guests and kicked off the agenda.

Each of the men and women seated in the front of the room were asked to share the story of their vision loss.

Here’s how I recall that event;
Audio: Trap Beat!

each individual told their story while the event host accentuated the misery.

Storyteller:
” Before I went blind, I used to take long walks in the park
Now, I can’t see anything, my whole world is dark!”

Host: “Pitch black, the world is dark, too dangerous for you in the park.

TR:

Laughs! I said, that’s how I recall it today, but that’s not exactly what happened. But I do recall the questions and comments from the host were obviously selected to highlight the negative.
She was playing to the fear of the guests seated around the conference table.
these were potential donors.
All who probably already had beliefs about blindness;
“it’s probably the worst thing that could happen to you and if we don’t help these poor people they won’t be able to do anything. They can’t do for themselves.”

I was setup to be a part of a dog and pony show to help fundraise for the organization.

the fact that it was a fundraiser isn’t the problem for me. I would have still agreed to attend.
However, I would not have participated if I was aware of the approach being used to raise that money.

My so called presentation was probably less than 5 minutes. The host asked some specific questions and then made it seem like it was my technology background that enabled me to grasp the tools and less about the technology as a tool for independence.

Then they pulled out the glasses.

Audio: Glasses clinking and sliding down a bar!

No, not drinks. I don’t even think that would have helped. . No, it was the blindness simulation glasses. These are created to help sighted people understand what it supposedly looks like when you have certain diseases like, macular degeneration, RP, glaucoma and others.

At first thought, you may think ok, that’s probably helpful. It helps people understand and therefore empathize? Sympathize?

Well, in this particular case, while the dog and ponies sat up in front and this one off to the side a bit, the sighted donors were led into their temporary world of vision loss.

Reluctantly at first, one after the other each slowly began trying on the glasses.

“Oh my”…. “wow”
“where did you go Jeanie?”

And then the real fun began as they exchanged glasses with one another. Laughing as they realized how little they could actually see. Unable to find things they placed on the conference table. The host joking as she moved their cups of coffee.

Meanwhile, the dogs and ponies sat up front. While the jackasses continued with their disability experiment.

Empathy, I didn’t see that. But a check was written.

I don’t remember how the event finally ended, but I do know that was it for me. I checked out. There may have been some additional conversation but I doubt I had much to say to anyone after bearing witness to that display of ableism. I vowed to never be a part of anything even remotely like that.

I could easily imagine each of the donors around the table going home fulfilled and thinking “I should really count my blessings, because there’s always someone worse off in the world.”

As far as I could tell, I was alone in my review of the event. I believe some of the others continued to participate. I pretty much severed ties and ended up having a sort of reputation, so I was never asked again. perfect!

All of this leads to my final question.

How are we telling our own stories?

I highly doubt any of the people sharing their story were given instructions on how to tell it. Chances are, the director simply knew these individuals would supply what she wanted for the audience.

Some may say the ends justify the means. The center received the money and therefore can do good things for the clientele. I don’t agree. I believe several of those in the room were employers in positions to someday hire a blind person. I doubt they would. But that’s a subject for another day.

What thought do you put into telling your own story?

In most instances, we’re doing the telling of our own story. We don’t have a videographer, podcaster, journalist.

We’re probably not standing in front of an audience equipped with a PowerPoint presentation. We’re simply talking to people. Most often one on one.

Crazy thing, I tell other people’s stories but not my own. I can do it in a presentation, no doubt, but one on one not so much. I feel strange.

Audio: Cameo Strange! moves into “Children’s Story” Instrumental Slick Rick

I should tell my story as if I’m giving a presentation. it’s mine, it’s a good one. It’s worth telling. It can be helpful.

And it’s the only one I have.

And in the event someone hears it and their thought is
“Wow, I’m so grateful because I’m not like Thomas!”

My response, Bruh, you should be so lucky!

I’m not flexing’ or being conceited or anything like that. But this is my life why shouldn’t I be proud of what I do, when I do it and how I do it.

the same decisions I make for my guests and you all the listener, shouldn’t I put that much time and thought into my own story?

If you say yes, then maybe you too should do the same.

I told you this wouldn’t just be related to podcasting. In fact, it’s not just related to disability.

Or is it?

“Here we go!” Slick Rick, Childrens Story

You can find Reid My Mind Radio wherever you get podcasts. And if for some reason that isn’t the case, like teddy said, come on over to my place… ReidMyMind.com. That’s R to the E I D

Slick Rick “D, and that’s me in the place to be”

Like my last name.

Audio: Reid My Mind Radio outro

Peace

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