Posts Tagged ‘Advocacy’

Audio Description with IDC: Good Enough is Not Good Enough!

Wednesday, August 19th, 2020

IDC LogoWhen it comes to Audio Description, “Good enough, isn’t good enough”, says Eric Wickstrom, Director of Audio Description at International Digital center or IDC. As AD Advocates, this has to be our message.

In this episode we feature Eric & IDC’s Head Audio Description Writer Liz Gutman. We learn about their process, the industry and more all through the lens of consumers advocating for #AudioDescription. Plus if you believe Blind people should be involved in the creation of AD, you’ll want to hear what IDC is doing about this.

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TR:

Welcome to another episode of Reid My Mind Radio.
This podcast brings you compelling people impacted by all degrees of blindness and disability.

I’m Thomas Reid, your host and producer. Occasionally, I feature stories from my own experience as a man adjusting to becoming Blind as an adult. Today, we’re continuing with our ongoing look at Audio Description.

Reid My Mind Radio has several episodes exploring the topic. They range from consumer perspective discussions and opinions to profiles of those in the field. In fact, you can go back to when ReidMyMind was solely a blog; I’ve been writing & thinking about the topic for a minute y’all.

Today we’re bringing you a conversation with some Audio Description professionals, through the lends of consumers as advocates. What can we learn from their process and experience about AD that can help improve our advocacy efforts?

The answers and more are up next.

Audio: Reid My Mind Theme Music

Eric:

My name is Eric Wickstrom. I am the Director of Audio Description for International Digital Center otherwise known as IDC, based out of New York City.

I run everything from the initial order through the delivery of AD projects.

TR:

Eric got his start in AD about 10 years ago while working at the USA Network. this was shortly after President Obama signed the 21st Century Telecommunications Accessibility Act now known as the CVAA. This mandates that major broadcast companies including some cable stations like USA, are required to provide a minimum number of hours of described programming each quarter. Over time, this number increases with a goal of 100 percent.

Eric:

I stepped up at that point and kind of offered to help spearhead the charge. Working with the heads of my department we were able to figure it out pretty quickly and get started building a library, got in compliance with the FCC. I did that for about 4 to 5 years. By the time I left we had the biggest library on broadcast television in North America.

TR:

About four years ago, Eric left USA and began working for IDC.

Eric:

We do everything from editorial stuff, color correction, quality control, media processing conversions audio mixing sub titling and all sorts of localizations. We have a full service dubbing department now that will do English to foreign language dubbing or the reverse. Pretty much A to Z anything you need we do

TR:

I wanted to speak with Eric to learn a bit more about their process specifically as it relates to us as consumers who are advocates.

We start with identifying some barriers to Audio Description which fall into two categories; quantity & quality.

First, budgets.

Audio: Music…

Eric:
It’s a very, very small part. Depending on the size of the production I mean there are cable networks that spend 12 to 15 million dollars an episode on productions and I can tell you in those cases your AD budget would be a percentage of one percent. The cost of producing a good , I’m talking about a good AD track; hiring the right people and getting it done the right way, your average AD track’s going to cost you less than like the Kraft’s service table does for a production of a T.V show.

Audio: Sound of a Adding Machine

TR:

We’re talking about a few thousand dollars.

Definitely not an amount to consider as a burden on the production of a television or film project.

So let’s not even call budget a challenge to AD.

Eric:

I just generally believe a lot of people don’t know what it is. My father and step mother were asking me three weeks ago about what AD is and I’ve been doing this for 10 years. If they don’t know by now…

[TR in conversation with Eric:]

Well, that’s just parents! Laughs…

Eric:

You know!

TR:

Truth is its much more than parents. I’m sure we’ve all encounter someone who has no idea about Audio Description. And like the good advocates we are, we explain it and probably encourage them to give it a try. The more awareness the better. But really, we need those in positions of power to be aware.

[TR in conversation with Eric:]

How is it that, production companies aren’t that aware of Audio Description at this time in 2020?

Eric:

A lot of production companies are aware of it now, the bigger production companies. They work with the bigger networks, the ones that would be mandated based on rating. Smaller production companies that traditionally work for like an HGTV or History Channel it wouldn’t surprise me that a year and a half ago when they were finally mandated to provide it, people looked at each other and said what is this. It wouldn’t shock me. If you haven’t been exposed to it you wouldn’t know about it.

TR:

It’s true, most major films are released with Audio Description. However, what about the older content that seems to remain undescribed?

Eric:

Well that’s changing. I know that like Paramount I believe did a big push two years back for AD to get it included on all the DVD releases. That back filled a lot of content that hadn’t been previously described.

Audio: Music ends in reverse.

TR:

Who watches on DVD anymore? We’re streaming.

Eric:

The problem with the streaming services is not all of them require AD. At least not for everything they air.

TR:

The issue is licensing. Streaming companies pay movie studios and television networks fees for the right to run these films and shows.

Eric:

They only have the rights for a year or two and then it goes away.

TR:

So if streaming network X pays to add AD, when it moves to streaming network Y…

Eric:

That service would have to commission their own AD track.

I think the answer there would be if every streaming service required AD, across the board then these companies that are selling the rights for these things would have to commission a track and then the track would follow that piece of material from service to service.

TR:

There’s different reasons for content not beings described. As advocates, an understanding of these can help direct our energy. In general when we find content has no description at all.

Eric:

You’d want to reach out directly to the studio itself. As far as television programming goes that would be a conversation for the network. If it became an issue about quality, it might be a conversation with the network, but then that conversation would have to happen with the production company that provided the show in the first place.

TR:

The push for quantity doesn’t automatically lead to improve quality.

Eric:

A lot of AD is mandated by the Federal government and a lot of networks look upon it as they have to do as opposed to something they want to do. That’s unfortunate because I think that’s where you lose a lot of opportunity for quality or conversations about the best way to do it.

TR:

As consumers, we want both; quality and quantity.

Eric:

It’s like anything. If I give you a gig bowl of frost bitten ice cream, yeah, it’s a bowl of ice cream but… a giant bowl of Ben & Jerry’s or Haggen Daaz that’s the difference. As more and more networks are pressured into providing the service, I’m hoping that they take a moment and say hey let’s give them ben & Jerry’s.

TR:

Shout out to Ben & Jerry’s!

Doing it right consists of three components;
The script (Audio: “Word”)
Narration (Audio: “Aw Yeh”)
And the mix (Audio: “In the Mix”) or making sure you can comfortably hear both the film’s dialog and AD narration.

Eric:

It’s all about the writing in my opinion. Without a great script you’re never going to create a great track of Audio Description. I don’t care if you get a James Earl Jones or Morgan Freeman to come in and read the thing.

If I were going to make a pie chart, the scripting would be about 80 to 85 percent. That’s how important the script is.

Audio: Music

TR:

Breaking it down further, here are the ingredients for a good Audio Description script.

Audio: Sounds of typing. ” What are you doing? “I’m writing.” – From Finding Forrester

Eric:

It has to identify the right things, it has to keep the character names right, not over explain things. You don’t need to write he shoots the guy, you hear a gunshot you know what happened. That’s a big failure with Audio Description is the overwriting of scripts and the over explaining of things.

TR:

Developing a staff of writers for Eric comes down to deciding whether to recruit or train?

Eric:

I have found over the years and this is just my experience, this goes back to my years coaching youth basketball 20 years ago, I coached young kids, 4th and 5th graders who never picked up a basketball in their lives and I so much prefer coaching those kids because it’s so much easier to teach somebody from the ground up than to break them out of bad habits they already developed.

TR:

Eric has seen a lot of bad habits from writers with years of experience.

Eric:

There’s too much good enough is good enough. For us and our standards at IDC, no we’re not striving for good we’re striving for great!

TR:

I agree the script is that important. So I spoke with head Audio Description Writer at IDC, Liz Gutman.

She first heard about Audio Description from a podcast. No, it wasn’t this one that would have made for a fantastic segue. The podcast is called 20,000 Hertz.

Audio: Music ends in reverse.

Liz:

It’s a great podcast. There was an interview with a woman named Colleen Connor who runs a training retreat in North Carolina. She is blind. She has theater training; she’s a performer and a creative person herself. She and this other woman Jan Vulgaropulos, who’s been a describer for a number of years, run this training retreat. I had never heard of Audio Description before, I didn’t know what it was and hearing Colleen talk about it, explain what it was and the purpose it served and what’s good Audio Description and what’s not good Audio Description. My mind was completely blown.

TR:

It wasn’t just Audio Description that blew her mind open.

Liz:

I’m a non-disabled sighted white lady and I have never really had to examine my own biases, my own assumptions, the way I move through the world. The way I perceive others to move through the world. I’d never really had to challenge that from a nondisabled point of view before that weekend. It was a profound experience.

[TR in conversation with Liz:]

That really does fall right in line with what we do at Reid My Mind Radio. I mean it’s all about adjusting and examining our misperceptions. Can you tell me what that was like?

Liz:

Yeh, absolutely. At the risk of sounding like a total jerk I was terrified. I didn’t know what to expect. I didn’t know what was okay to say or ask… Should I offer to help or not. Is it okay to say Blind? All this stuff that now seems very 101 to me, I was lucky to be amongst a group of very kind open people who encouraged me to ask questions and were very open about answering them

TR:

Ready for more, Liz completed the AD Retreat and attended ACB’s Audio description project training. There she was paired with a Blind Mentor.

Liz:

Her name is Myra. She’s great! I’ve gotten to go on described museum tours with her. She took me to see a described performance of Waiting for Gadot. That was excellent. She’s also taught me a lot about experiencing culture in different ways and that helps me become a better describer. Understanding what goes in to theater description and what goes into museums and art description. All of those things inform each other, I think in real important ways.

TR:

Soon after attending her trainings, Liz began freelancing with an Audio Description provider.

Liz:

Not too long after that I really lucked out and was referred by a guy who’s now a friend who I met at ACB who worked at this company IDC who was hiring a full time writer. I went in and chatted with them and as they say the rest was history. I’ve been at IDC since August of 2018.

Audio: Music

[TR in conversation with Liz:]

So you’ve only been doing Audio Description for two years?

Liz:

Yeh… (Laughs)

[TR in conversation with Liz:]

Laughs… Oh boy! Wow! Aw man.

Liz:

I know, it’s wild. I have a lot of impostor syndrome to get over.

[TR in conversation with Liz:]

Laughs…, Yeh, Well, you’re definitely not an impostor, c’mon!

Liz:

Laughing… Oh, thank you!

At the risk of sounding big headed I do think I’m good at my job. I would not consider myself an expert by any means, but I am very curious and I do love, I love, love love this work. I sort of intensively been reading and talking to people, watching stuff with Audio Description and kind of immersing myself as much as possible. Which has just been so rewarding. Not just because I love the work, but this community is just unbelievable. Describers and consumers of Audio Description alike. I’m just like floored and grateful always to be doing this.

TR:

It’s said it takes about 10,000 hours of practice to become an expert in any given field. But what about the related skills that comes from prior experience? That has to account for something, right?

Liz:

My first job out of college was watching T.v. and writing trivia questions about it that would then be linked to product placement. So basically gathering marketing information to sell to advertisers.

(Laughs…) I’ll just put it this way; I couldn’t watch any T.V. or movies without noticing products. (Laughs along with TR)

That brands of cars, that brand of soda (laughs) Oh he’s wearing that brand of that t-shirt. I couldn’t unsee it.

TR:

That attention to detail serves a purpose today. Add a minor in creative writing in college, publishing a cook book, writing for a well-known food blog and running her own business for 10 years, Liz has a wealth of experience and knowledge to draw from. She wrote about chocolate for goodness sake!

I’m not sure how many ways you can describe mm delicious!

Audio: Music ends

That’s quality AD – language that succinctly evokes an image.

At IDC, writers are selected for a project based on their specialties or specific interest.

Liz:

One guy just sort of tends to usually do a lot of the fantasy actiony stuff. Someone else does a lot of reality stuff.

Our department head will kind of weigh all of those things between scheduling and who might be best suited to write it and assign it to the writer.

TR:

Just because there are specializations, doesn’t mean you’re working alone.

Liz:

What I love about working at IDC is that it’s really collaborative and we all ask each other questions. We get the best of everybody. If you get stuck on a phrase or can’t decide how to deal with a certain thing and you want to describe all of the stuff but you only have time for one thing or help prioritize.
A lot of what we’ll do is take a poll. Do you guys know what this word means? If more than half of us do then we’ll use it!

[TR in conversation with Liz:]

I’m wondering when instances of cultural competence come into play, how that works through in the writer’s room. So what does your writer’s room look like and how does that play? Can you talk a little bit about that?

Liz:

Yeh, absolutely. And that’s a really important question and one that we’re constantly considering and making sure we take into account. We’ve had conversations about the finer points of a person in a wheel chair, person using a wheel chair, and why the phrase wheel chair bound is not okay. All the finer points of describing someone who is different from you in any way.

TR:

Differences like race or skin tone. Yet, the AD guidelines specifically call for excluding race or color.

Liz:

Unless it’s crucial to understanding the plot. And if so, everyone’s race, ethnicity needs to be called out and mentioned specifically.

I do think representation is super important and I do think it’s important to mention it just so that a Blind Asian kid or a Blind Black kid so they can know oh cool, just in all the ways that representation matters right?

[TR in conversation with Liz:]

Yeh, 100 percent. I think it’s important for a Blind white kid to know that too. To say hey these people are in this movie.

Liz:

Right, and to not make the assumption.

[TR in conversation with Liz:]

Absolutely.

Liz:

If you say like oh, a tall woman and a short woman and a Black woman then you’re making the assumption that everyone else is white and white becomes the default.

TR:

As advocates believing in inclusion for one group, I’d hope that means inclusion for all.

If so, we should absolutely promote diverse writer’s rooms. That diversity should include the widest range of identities; race, ethnicity, gender, disability and LGBTQ plus representation.

Audio Description is all about providing access to information that isn’t conveyed audibly. Sighted people have this access and process it individually. Some may choose to question the casting choices and others may find them empowering. No matter how one chooses to use that information, Blind people deserve that same level of access.

Liz:

We also struggle with as describers, having enough time to include any of this stuff. Sometimes you don’t get to add any description to somebody before they’re named or even after they’re named if it’s something really dialogue heavy.

TR:

This lack of time is extremely important. This has to be a part of our awareness conversation. It’s not enough that networks and studios have to provide AD. We need them to understand the value and make it an equitable experience. Creating the space for AD in their projects makes that possible.

I’ve been ranting for years about making use of pre-show AD.

Liz, who in addition to writing also narrates and directs AD sessions at IDC, agrees, it just makes sense. Especially in the fantasy genre where the imagery is unlike anything people would be familiar with.

Liz:

When a creator builds this entire world from scratch for the audience and I only have the spaces between the dialogue to describe it, I do my best, but there’s no way I can do justice to the scope of that. So I’d love to have an extra 15 to 20 minutes to just talk about the world; each village, each type of character and all of that stuff because it’s so integral to really enjoying the series.

Eric:

That’s the writing and from there you talk about voicing.

TR:

Eric’s referring to narration – the second of three components required in Audio Description.

Eric:

When I say the writing is 85 percent of it, that’s not to imply that the voicing is not important. The voicing is extremely important. You can certainly ruin a great AD track with a bad voice. We’ve seen it happen.

Audio: “Do you hear the words coming out of my mouth?” Chris Tucker in Rush hour

Eric:

Finding the right voice for the track itself to try to match the story to the VO (Voice Over) as much as possible. But also just you want to make sure you get the right tone. Some places use a one size fits all approach to voicing where the same voice person will do a wide array of projects. Nothing wrong with that it’s a creative decision, a creative approach. We try to really fine tune every choice of voice with the script. That’s usually a conversation between me and the writers as they get into a project, maybe half way through I’ll have a conversation with that writer and say hey who do you think. That’s a benefit of having a team that’s been together for years. They sometimes have an idea before I even do about who’s going to voice something.

The last part of the process which again, very important and generally overlooked is the mix.

Audio: “As you hear it, pump up the volume!” Eric B & Rakim, I Know You Got Soul.

Eric:

A lot of times you hear AD tracks and you hear a really jarring shift in volume? That’s because the company’s feeding through an automated program. It’s a cost cutting move. It doesn’t save that much money. It really hurts the quality. I don’t like it. We won’t use it. Period!

Eric:

The last part of our process is a full QC pass.

TR:

QC or Quality Control. Checking the final production for all sorts of inaccuracies.

Eric:

If we’re misidentifying a character and this happens often. You’re writing thousands of words, it’s easy to type Bob instead of Mark. Bob enters the room. Bob leaves. Well maybe that was Mark.

TR:

Additionally there’s checking the levels of the mix, listening for mouth clicks and pronunciations.

Eric:

When that track leaves our facility it’s gone through quite a production line of work.
[TR in conversation with Eric:]

Would you employ Blind folks for the quality control part of it?

Eric:

You know that’s something we definitely discussed. We would. As far as the quality of the mix, the overall experience of the AD, yes!

TR:

IDC already holds regular focus groups bringing their writers together with AD consumers.

Eric:

That’s a very important part of what we do. We’re not making unilateral decisions about what the Blind community likes. All of our decisions are informed by the Blind community.

TR:

Audio Description advocacy needs to include creating opportunities for Blind people in as many possible paid positions throughout the production process.

By possible, I don’t mean based on the current process. There are many ways to get something done.

Eric:

Covid especially added another level of stress because everybody was scattered. We were used to writing as a team in a room together. Like a regular writer’s room in any television show we’d sit there and bounce ideas off each other. That’s taken on the form of daily Zoom.

As far as the Voice Over people goes, a lot of our VO people work in New York City. We use a very diverse roster of people. I had to figure out how dozens of people were going to be able to record VO. Some of them are already actors and Voice actors that have their own setup, but many of them didn’t

TR:

The pandemic demanded job accommodations and a new workflow which can be beneficial to the disabled community.

Eric:

One of the things we said this year at IDC we wanted to do, we wanted to get some Blind people involved directly with the narration of Audio Description tracks. The challenge of that was that we didn’t do a lot of remote recording. We weren’t setup for it.

TR:

. Since this interview IDC has made some progress on that goal. I reached out to Eric for an update on his progress.

Eric:

I can tell you it’s going very well. You could speak from personal experience. You were nice enough to be the first person to jump in with us and help develop some workflows. I was very happy with how the quality of the track turned out. The feedback we received through social media and through the clients at Netflix., they were very happy as well. We’ve already launched our second project on Netflix with a Blind Narrator. The third one’s in the works. We’ve onboarded two other Blind Narrators and I have three more on deck.

TR:

I’m excited for the opportunities this presents for all Blind and disabled people intrested in AD Narration.

Eric:

Kelly McDonald who we used on the second project that just launched, Sam Jay’s Three in the Morning on Netflix. He’s a radio host up in Canada. In fact, his co-host Romnea was onboarded as well. They have a unique ability because they’ve done radio for so long and I think Thomas you said you have this ability as well from podcasting all these years to be able to actually hear a track in their ear and repeat it in real time. At the same pace, same inflection. Originally we thought using Blind Narrators is going to be something that’s gonna be easy to do with reality shows like the one you worked on SkinDecision. Stand up specials like the one Kelly worked on.

TR:

It’s a matter of being vocal about our abilities.

Eric:

We’re not the first studio using Blind Narrators. That’s not accurate if people are thinking that. There’s plenty of narrators out there that have been working for years doing narration and podcasting, radio broadcasting. So the talent is out there.

TR:

With that said, if you’re interested and have the ability to record professional sounding audio, stay tuned and I’ll let you know how to contact Eric.

Eric:

We’re putting our best foot forward as a company in trying to be inclusive and accessible using as many talented people as we can.

There’s no excuse based on what we’ve discovered over the last few months, every studio creating Audio Description should be using Blind Narrators to voice the material they’re putting out. And in addition to that we’ve onboarded some Blind people from the community to work in our QC process as well.

TR:

These conversations with Eric & Liz helped shed light on the challenges to AD right now and the future.

Company’s cutting costs by automating the mix and employing synthetic speech are underbidding for jobs. Multiple people in the business have said how this has directly impacted the fees other AD production companies are able to charge. How soon before other companies are forced to cut corners in order to stay afloat?

It’s imperative that as consumers and advocates we demand quality – not that cheap sort of accessibility that gets slapped on at the end in order to comply with a federal mandate.

Eric:

That has to be the push of the community to develop universal standards. There’s no approved vendor list per se like universally, everybody’s kind of left on their own. It doesn’t take much more effort to do it right.

TR:

AD unfortunately, is viewed as an expense and not one that generates revenue.

Eric:

And that’s wrong. There’s 6 to 8 million visually impaired people in America at the last estimate. Every year as people live longer that number goes up. Those 6 to 8 million people are part of families. Families are using Audio Description so everybody in the household can enjoy watching television together. Especially now in this time.

That track is made for 6 to 8 million people but its impacting tens of millions of more people.

TR:

Remember, the AD budget is a few thousand dollars. Your annual streaming network subscription will set a family back over $150.

Eric:

. If that encourages a family of four to subscribe to your streaming service or pay extra for cable it’s more than paying for itself. You really don’t have to draw that many families to break even and then to turn a profit it’s just a few more.
just left on their own. It doesn’t take much more effort to do it right.

TR:

Making sure AD is done right inevitably comes down to the Blind community.

Eric:

If you hear a track either on a streaming service and you like what we did or you didn’t like what we did, reach out and let us know. I’m always open to feedback.

Audio: Music

TR:

Feedback should be a gift, so make it constructive.

Eric:

Don’t just say hey you suck!

Well, thanks, that doesn’t really help!

We’re trying to provide a service. We love this we want to make sure we’re doing it right. I always say if I want positive I would just ask my mother what she thinks.

TR:

Do you have a project that would be a lot better with Audio Description?

Are you interested in getting involved with AD as a narrator and have the ability to produce a high quality recording?
Do you have some comments on a specific project with IDC produced AD?

Reach out…

Eric:

I’m always happy to talk about AD. It’s a passion for us. It doesn’t have to just be business inquiries. Anything you have to say feedback otherwise … you can find us at IDCDigital.com. You can search for Audio Description, fill out the form and it will get to me.

TR:

You can also get to both Eric and Liz on Twitter:
@IDC_Eric
@ Liz_IDC

TR:

I hope this episode contributes to moving the conversation around Audio Description advocacy to be more about good & bad Audio Description, the ways it could be improved and the inclusion of more Blind people at every point in the workflow.

We know why AD is important to us as consumers. It goes beyond watching movies, television and theater. It’s relationships that come from these shared experiences. It’s opportunities for conversation, education, entertainment, imagination building and more.

What about the perspective of those producing AD?

[TR in conversation with Liz:]

When you speak about it you’re very passionate about Audio Description. Why?

Liz:

That’s a really good question. (Long Pause) Selfishly, it plays to my skill sets really well. It requires a large vocabulary, I’ve been a bookworm my entire life, but it also has really strict parameters. Audio Description provides that framework I find challenging in a really stimulating way. And on top of that it provides a service. That creates meaning for me.I go to work every day and I get to write, think hard about the best way, the most vivid and concise way to convey something that’s on screen. So that someone’s who’s listening to it will get the same feeling that I have watching it. And to help bring us all in to the same level. Especially since I have become more familiar with the Disabled and Blind and Low vision community. I have friends in that community now. I care about their experience.

Audio: Stay Golden

TR:

Eric expressed a very similar sentiment and noted that he really appreciates the feedback from the community. He shares his wish about AD in the future.

Eric:

I look forward to the day where I don’t get as much appreciation. Because it just becomes the norm. I look forward to the day where Blind consumers become pretty complacent about it. Oh yeh it’s got AD, great! It shouldn’t be something special and quality shouldn’t be something that’s special.

TR:

A big Shout out to Eric Wickstrom, Liz Gutman and the entire Audio Description team over at IDC. It’s official; you all are now part of the Reid My Mind Radio family!

Eric was a really kind coach. After submitting my first draft he shared his comments which were incredibly helpful and I think go beyond AD narration.

Eric:

You suck!

TR:

That really isn’t helpful!

You know this isn’t the last you will hear on this topic. In fact, I have some more coming up soon so stay tuned. In order to do that may I suggest you subscribe wherever you get podcasts!
Remember transcripts & more are over at ReidMyMind.com. And yes, tell them that’s R to the E ID
(Audio: “D and that’s me in the place to be” Slick Rick)

Like my last name.

Audio: Reid My Mind Outro

Peace!

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Let Me Hear You Say Black Lives Matter

Wednesday, June 17th, 2020

In gold lettering on top of a red, black & green background appears "Reid My Mind Radio."

the title says it all! It’s the place we have to start if we are really going to make change in this country & world. I’m talking about individuals as well as society. And included among that group are the blindness consumer advocacy organizations; ACB and NFB. While there are differences in the founding philosophies of each, at the core both of these groups strive for Blind people to have the same rights as our sighted peers. Do they really mean all Blind people? I want to believe they do, but I guess I’m going to need to hear them say it; Black Lives Matter!

I’m trying to remain optimistic but right now, it really takes a lot of effort to be hopeful. I was reminded of a story from the Reid My Mind Radio archive that in a way illustrates some of what needs to happen in order to really move forward.

Listen

Transcript

Show the transcript


Audio: Music… “Mission Start”

TR:

Welcome to or back to the podcast! My name is Thomas Reid and I’m the host and producer of Reid My Mind Radio – the podcast bringing you compelling people impacted by all degrees of blindness and disability. Sometimes I share experiences of my own as a man adjusting to becoming Blind as an adult.

today, well, it’s right there in the title. That is, the place we have to start if we are really going to make change. I’m talking about individuals, society and yes blindness & disability advocacy organizations.

If you’re part of the Reid My Mind Radio family, you know I’m pretty optimistic. It takes a lot of effort right now, but I’m trying y’all, trying to remain hopeful.
Audio: News commentator announcing global protests in London, Australia, Japan, Korea & Germany. All mixed with the chants of Black Lives matter!

TR:
That solidarity & declaration that I’m hearing from around the world, feels good, but I
need to hear it from voices much closer to home.

Audio: Montage of voices saying Black Lives matter. Each panned along the stereo spectrum.

TR:
Let’s go!

Audio: The final voice says;
“Yo, Black Lives matter!” The voice of Siri from the IPhone says” Send”

Audio: Reid My Mind Radio Theme Music

Audio: Sounds of dinner table/kitchen conversation from the Reid family household.

TR:

Like a lot of families meals are a time to come together. Not only to prepare and enjoy the food but also to check in with one another.
In the Reid household, we established some rules years ago around what was acceptable during meals. Like we don’t answer phone calls, we don’t look at our devices but rather we stay in the moment while we are eating together.

Audio: News commentator on the killing of George Floyd and protests.

TR:

Unfortunately, no matter how much I would like the rule to be in effect, just while we’re eating, there are times we can’t really afford to keep them. The most recent murders of Ahmaud Aubrey and George Floyd, the protests and of course, the self-described nationalist in the White House have caused us to rescind the rules. Both of my kids need to discuss all of this.

Riana who will be 23 soon is extremely passionate when it comes to issues around social justice. She needs to be active and she’s figuring out the best ways for her to do that. For example, donating to protester bail funds, continuing to educate herself through reading and research and sharing resources with her network.

Raven is younger, more internal and is really figuring out how to articulate her thoughts. Her friend groups are very diverse and she recognizes the differences and really appreciates them. Recently, she had to deal with the outing of a classmate, one in particular which has garnered a lot of national attention. This young 17 year old made very public awful racist comments. Listen to the statement from a young girl from Generation Z. Some thought this would be the post racial generation free from racism. Notice how deliberately she shares her revelation.

If you are triggered by little racists using the N word, skip ahead about 34 seconds.

17 Year Old Racist:

So, I’ve been seeing this video going around about why Brown people should be able to say the N word. So I’m here to tell you why white people should be able to say the N word. Because we made it up and none of you guys would be able to say that word if my ancestors didn’t decide to call you Black people Niggers all the way back in those old days. And so what do you guys do to try and show your appreciation, for coming up with your best word to call your best friend Nigga as you pass each other in the hall? You do what all good Black people do, you stole it. So all I’m doing here is trying to take back what’s already ours.

Audio: Ambient music

TR:

If it was shocking to you because you never heard this sort of language, it’s time to acknowledge your privilege. It’s not a time to pat yourself on the back because you raised your children to be color blind. It’s not a time to feel the need to share how you cried when Dr. King was assassinated or even you know someone who is Black. That doesn’t work towards a solution which makes you part of the problem.

Not even the four walls of our comfortable home can keep my family protected from the reality of violence against Black men, women and children. Like trying to explain to my kids how Travon Martin’s murderer was not going to face prison. Michael Brown’s killer would just walk free.

Riana has goals of moving out on her own. Meanwhile Breonna Taylor a 26 year old Emergency Medical Technician gets shot 8 times in her own home by police after wrongfully busting in her house in search of a suspect already in custody.

Audio: Two young children saying “Black Lives Matter”

Raven right now is learning to drive and I have to think of Sandra Bland and the others who have ultimately have fatal encounters with police because their driving while Black.

A word of caution:
What you’re about to hear is an example of the trauma and fear associated with police brutality. If the threat of violence is triggering, please skip ahead about 2 minutes.

Audio: Woman passionately trying to help a young Black man while he is being surrounded by police. We find out her boyfriend was also killed by police. The audio ends with her sobbing for them to simply put their guns away while begging the young man not to move.

TR:

Y’all know this isn’t about my privileged dinner time, right?

for Black people, it’s not only the threat of violence and interactions with police, but not dealing with the feelings around these murders is like allowing a virus to infect our bodies. We can wash our hands regularly, sanitize every package that comes into our homes, eat organic food but how do we protect ourselves from feeling as though we don’t matter.

Audio: A woman saying Black Lives Matter.

TR:

Being totally Blind doesn’t stop the images of these horrible killings from being engrained in my mind. I don’t need to see video of Michael Brown’s body left on the street after being murdered, I don’t need to see Ahmaud Aubrey being shot down or this deranged so called officer kneeling on George Floyd’s neck to understand what that looks like. In fact, these images involuntarily flash in my mind without ever having seen them.

Recently I tweeted that I was waiting to hear a show of solidarity from the blindness organizations. I soon read one from NFB and then specifically questioned if ACB was going to show their support. They did. They also directed a tweet to me that they were waiting on a review before posting.

My response was that I was happy to see them done but the real statement will be seen in their actions like representation on their boards and leadership position and outreach.

Both statements were weak. In general, any solidarity statement at this point in time that does not include the simple phrase acknowledging that Black Lives Matter, it doesn’t have much weight in my opinion.

Audio: fire engine racing towards a burning building.

If a house was burning on a block of 10, should the fire department show equal attention to each house. Wouldn’t it be fair to first put the one fire out? Save the family in the house. Apparently some would prefer the fire department drive right past the burning house in order to make it clear that all the houses on the block are important. Meanwhile, do you all smell that smoke, the other homes on the block are beginning to burn.

Audio: Young man says Black Lives Matter

TR:

If a solidarity statement had to be generated by the Black or multi-cultural segment of the organization, it’s starting from the wrong place. Is that because some blind people like to think their blindness makes them immune to racism? Funny thing is most Blind people have had sight at some point. In fact, most Blind people aren’t even totally Blind. You’re not being honest with yourselves if you think racism doesn’t affect you. As if you don’t benefit from white supremacy.

Audio: Do Blind People See Race…

From Tommy Edison YouTube Channel:
“Martin Luther King always talked about don’t judge a man by he color of his skin but by the content of his character. And I have to be honest with you I think people like myself and other Blind people are the best at that because we don’t see the color of their skin.”

From YouTube, “Can Blind People See Race” Freedom is mine official.
“Can Blind people see race? Given that we identify a person’s race primarily by their appearance, what elements do the visually impaired use to perceive race. Several studies have been done into this area and the conclusion is definitely yes, visually impaired people can perceive race.”

TR:

History has shown when it comes to so called racial issues, America is all about weak statements.

America doesn’t want to examine their role. You know what, let me say that again to not sugar coat it …

Audio: Music…

TR:
White America doesn’t want to do the work to fix racial injustice.

I see the same right now from blindness organizations. Asking Black people to lead this effort isn’t the fix. Rather, once again for Black people, our dinner time with our families are being interrupted.

Why not start with a real self-evaluation. Have a conversation among the organization’s leadership and board about race. Whether personal but more specifically as it relates to the organization. Look back, how many members are even in the organization? How often does the leadership interact with them and what have those interactions been about? How often do we hear from Black people at our meetings and conferences. have we ever truly done any outreach or did we wait for those Black people in the organization to recruit others?

This is a problem that existed in this country for 400 years and won’t be fixed with one statement. it won’t be fixed in our lifetimes. It requires a lot of work that starts with honest self-examination.

To be clear, I think it’s time for these organizations to truly look at the intersections between disability and other identities. The majority of police brutality cases impact Black people with disabilities. Women with disabilities experience an overwhelming number of sexual attacks, LGBTQ and Trans communities have a significant population of people with disabilities. And Black Trans gender men & women need our support. Honestly, if you have a problem with that then you need to ask yourself if you’re really about justice.

All the organizations that are either of or for the blind want the same thing; independence, security opportunity for all Blind people. Who does this really include? For some, blindness skills training isn’t going to be enough to have an opportunity to reach that goal.

For me personally to believe these organizations and others are really about independence for all, I’m going to have to see them lead the way. That leadership needs to come from those in power right now.

I’m going to need to hear them simply say it; “Black Lives Matter”

Audio Montage of individuals saying “Black Lives Matter!” Concludes with all simultaneously saying it.

TR:

In producing this podcast, I’m always searching for the right mix of education, resource sharing and entertainment. As I usually believe our stories have more to offer outside of those adjusting to blindness, I recalled this travel story from the Reid My Mind Radio archive.

Audio from “Traveling Zen”

Audio: Biggie Story to tell

TR:
Just this past Thursday I was traveling to Mobile Alabama –
Yes, Mobile Alabama…
Why?
Well that’s not really for this discussion.

In fact, let’s go revisit the day…

Audio: Car pulling to curb

TR:

Exiting the chauffeur driven Suburban I’m met by one of the Allentown Airport staff responsible for
Assisting travelers through the airport. I refer to them as the Meet and greet staff.
Normally, I have to get to the check in counter in order to request this, but luck
Just had it a very nice gentlemen by the name of Tom was waiting on the curb for someone who needed assistance.

Audio: SoundOfAirport – Check-in/Security

Smoothly clearing the check in process and
Security, Tom informs me that my flight is delayed just as we reach the gate.
It was close to 12 PM. And my flight was originally scheduled to leave at 1 O’clock and
Arrive in Atlanta at 3 PM for a connecting flight To Mobile at 5:15 PM.

Ok, no worries a departure at 2 is fine, I’ll get to Atlanta by 4. No problem, even though Atlanta’s airport
Is huge, I’d still have time to make my flight. And I’d rather wait in Allentown airport which is way smaller and comfortable.

At 2 O’clock I’m told we’re now Departing at 2:30.
Now this is a potential problem! With a connecting flight at 5:15…
There’s a good chance I’ll miss my flight.

I go over to the ticket agent to see what I can do about this potential dilemma.
Rosita, the ticket agent schedules me for the later flight Which leaves Atlanta at 9:15,
In the event I missed the 5:15 flight.

Requiring the assistance of a meet and greet means I’m one of the last people off the flight. This Adds to the probability that I
May miss my connection. On the flip side, I’m one of the first on the plane!

I’m pretty relaxed already, but now I decide it’s time for me to go into a Zen state of mind. One thing about adjusting to blindness, it means
Becoming accustomed to waiting.

The ticket agent announces over the PA that it’s time to board.

I grab my coat, bag and cane and proceed to the counter. I board with one of the ticket agents.
I ask her if she could somehow call ahead and make sure a meet and greet is there
When we arrive so I can exit the plane quickly and make my connection. She takes my boarding pass and says she would do that.

Sitting in the window seat, I strike up a conversation with my seatmate when he arrives on board Delta Flight 5387. I tell him about
My connection issue. He seems to think I have a strong chance of making the flight.
We chat a little more, I put my headphones on, and open my Audible app to read my book. I’m good, I’m pretty relaxed and calm… I accept what I can’t control!

At around a little after 4, the pilot announces that we’re about to descend and
We’re scheduled to arrive on time 4:40. My seatmate, nudges me,
I think you’re gonna make it, he says. Knowing what I know about the wait for a meet and greet
I tell him, “Meh, we’ll see! I’ll still have to wait for assistance…”

At 4:45 we’re on the ground taxiing to the gateway
I take out my phone and check the Delta app to determine the status of my next flight. There’s significant bad weather so I’m hoping
My next flight would be slightly delayed. Nothing…
The pilot announces we’re going to terminal C gate 33. By 5 PM we’re still on the tar waiting to be directed into our new gate, D 33.
My seatmate is excitedly telling me I can make that flight.
“Just run out of here you can make it he says. I’m thinking did he not hear me when I said I need to wait for assistance.

I check the app again, it now says my next flight is boarding and scheduled to leave on time.
At gate D29. I tell my seatmate… Aww you can do it! He says as
he stands up to retrieve his bags from the overhead. I ask him to pass me my back pack and folded up cane.
Is this yours too, he asks
A folded up white cane, I ask… Yes! Now, He sounds confused… I think it sinks in…

My man, I say… do you think you can help me Get to d29… it has to be right near this gate.
I didn’t think it would be a bother, he wasn’t connecting to another flight. Yeah! He exclaims
I say to him… “get in front of me and let
Me hold onto your right elbow.” He complies…
I grab my bag and we take off.

Audio: Victory music

My seatmate now ripping through the narrow aisle. And my shoulders knocking into chairs and walls
He apologizes… Bro, I can take a hit let’s do this… turn it up. Yeah, he exclaims again now even more determined to accomplish his goal…
We zoom past the flight attendants who say something about An assistant… I don’t bother responding, no time for that
My seatmate and I are now a team and we’re on a mission.
“He’s my blocker “I think to myself and we’re gonna score this touch down…

We can do this, I hear him say as we rip past the ticket agent at gate 33… As we’re quickly and purposefully walking, in search of gate D29-
I hear my name. … Paging Mr. Reid, Thomas Reid… That’s me I tell him.
“He’s here, he’s here” yells my Blocker… He’s here, he’s here…says the ticket agent at D29 into a telephone…

We get to the podium at gate 29… Touchdown!!!

As if rehearsed, We do a two hand high five, chest bump, all While the ticket agent and bystanders applaud….

Ok, that would have been the movie version celebration.

Instead, the ticket agent asked for my boarding pass… I retrieve my boarding pass
Thank my team mate and I’m hurried onto my next flight.

I didn’t get his name or even had the chance to Shake his hand, but man I appreciated him.

Sitting on my final flight to Alabama considering how through that entire process
I felt quite comfortable and calm with just going with the flow. I thought about the first part of that very well known
Serenity prayer: God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.

This experience reinforces what I believe is the power of team work. I thought about how this pertains to lessons
for those adjusting to blindness or for that matter adjusting to any sort of change.

I’ve always been one to think of that very broad definition of independent as doing something by myself.

Could I have done this by myself… Some may quickly say no, others may argue yes with the right circumstance as in accessible information…
like a good indoor navigation app. But honestly,…,…., it was way more fun with a team!!

Audio Bumper bringing us back to the present.
Audio: Music starts…

TR:

My seat mate and ultimately my team mate for a few minutes at least, was as far as I can tell a white guy. We worked together. I was in a position where I needed him to be out in front if I wanted to make my flight. It wasn’t my only option, but missing that flight would have meant a really long and possibly very uncomfortable delay. Not for him, but rather, just me.

Reid My Mind Radio will be back on August 4th. I have some really good episodes planned for the second half of the year but right now, I need to do a little recharging. If you’re new to the podcast, feel free to check out the archive. We have over 100 episodes and they don’t expire.

You can get that just by subscribing to Reid My Mind Radio wherever you get your podcasts. None of my stuff is behind a pay wall because I really do want it to be an accessible resource for those adjusting to blindness.
Transcripts, resources and more are over at ReidMyMind.com. And yes, that’s R to the E I D (Audio: “D, and that’s me in the place to be!” Slick Rick)

Like my last name

Audio: Reid My Mind Radio Outro

Peace! And I really mean that!
Audio: Headphones dropping on table.

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Live Inspiration Porn – I Got Duped

Wednesday, March 18th, 2020

Podcasting as a passion project takes some real perseverance. There’s always some excuse lurking around the corner just waiting for you to take
hold.

In this episode I’m working through one which has been nagging me for a while. Giving it some real consideration led me to recall a story from my own adjustment experience. A time when I got duped into being a part of a live performance of inspiration porn. Well, sort of. Let’s just say I wasn’t there for the same reasons as those running the event.

Like most episodes, I believe this one can give those new to blindness and disability some things to consider. In fact, like all episodes I don’t think it’s restricted but that’s not really up to me. I’ll leave it right here for whoever wants to partake.

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TR:

What’s up Reid My Mind Radio Family?

Yo soy Tomaso, Thomas Reid, host and producer of this podcast – Reid My Mind Radio.

Welcome to those of you who are new here.

This podcast introduces you to compelling people impacted by all degrees of blindness and disability.

every now and then, like today’s episode, I share some of my own thoughts and experiences as a man adjusting to becoming Blind as an adult. And yes, I say adjusting, I don’t think I’ll ever really use the ed suffix on adjust. That’s not to mean there’s no progress. It’s just a continuous journey. Once you get to the understanding that it’s not one to be feared or even think negatively about, it gets better. But It’s like life, there’s always going to be change, and vision loss or any disability is now a part of that.

If that’s part of your reality, a family member or friend or maybe people you work with, well you’re definitely in the right place. If you yourself are going through some other sort of life change or you just like podcasts. There’s something here for you too, if you are opened to that.

Everyone is truly welcomed here with the exception of those with real hate in your heart. Energy works in mysterious ways and I don’t want that negativity being passed along to me or any of the family.

So let’s get this poppin!

Audio: Reid My Mind Radio theme

# Intro

Today I’m sharing some thoughts about this podcast. These are not stream of consciousness. No way I wouldn’t do that to you. My mind can be a scary place when I’m trying to figure things out.

Audio: Sound of chaos!

Chances are as I navigate these thoughts they will prove to be applicable to more than this podcast and hopefully useful to others. That’s exactly how I feel about every episode. I focus on those adjusting to blindness , but lots of others can relate and enjoy.

Audio: Typing sounds….

Since I began this podcast and maybe even prior, I have been very specific about saying I don’t see myself as a journalist. I’m an advocate, straight up! If you listen to the podcast, you know there’s a certain message about blindness and disability. My opinion or feelings in most cases are evident. The overall message is one of empowerment. I’m not impartial.

Audio: Possibly use old episodes here

As if journalism is really impartial.

There are times though when I need to make all sorts of journalistic decisions. It could be the way I edit or the specific questions I ask, even the overall feel of the show, the sound design. It’s intentional. My approach is different from your standard so called impartial reporter.

I’m connected to most people who are guests on the podcast. Usually, the connection isn’t personal. Rather it’s through blindness and disability Sometimes it could be race or we have something else in common.

I feel a responsibility to both my guests and listeners.

I want my guests to feel what I hear when they tell me their story. I want them to know I respect them and their experience.

I want listeners to find the multiple ways they relate to my guests. Yes, there’s the disability experience, but maybe they share a similar motivation, desire or goal.

That’s what I want, it doesn’t mean I can always make it happen.

every listener brings their own past, prejudices, preconceptions and experiences to the podcast.

That makes sense, it’s like anything else. Two people hear the same song , see the same film or read the same book and have drastically different interpretations.

Some people see a reflection of their own lives and goals while others never see themselves in a podcast where blindness and disability is so prevalent.

It’s probably not one or the other. I think there are some who have a bit of both. Either way, I can’t control that.

Which leads me to this statement…

“You should always remember, there are people worse off than you.”

Audio:

“No matter how you’re sad and blue, there’s always someone who has it worse than you”, Shaggy

YouTube Videos
* ” If you’re having a bad day, just consider the day ….”

* “Bare in mind, there’s always someone worse off than you”

Song sung by Little Richard at a MS Telathon.

“… As I look around, so many people who cannot walk, not talk nor see, I thank God for the health and strength that I have, for there’s someone worse off than I am.”
TR:

First things first…

I’m pretty sure I said this same thing at some point in my life. it’s a common statement and an accepted way of thinking.

But, what does it really mean?

How can you compare someone’s life and happiness without all the information??

Is this really pity?

As a content producer, I cringe when I hear it now especially in relation to my podcast.

There’s never been a guest on Reid My Mind Radio that’s in need of someone’s pity.

I then question the choices made for that episode

Did I present this person in a way that says they should be pitied?

I don’t think I focus on the illness side of things. I do include or mention mainly because;
Others with the same diagnosis can relate.
It can also serve as a way to normalize illness and disability. They are a part of life and not a mysterious thing that happened to one person.

AudioFx: Ambiance head in skull
Am I creating inspiration porn?

Most of you are probably familiar with that term. It’s the
idea of presenting people with disabilities as inspirational solely or in part on the basis of their disability.

This idea that this person’s story which often you don’t even get, well it should inspire you or just give you that warm fuzzy feeling reminding you that most of the world is so considerate.

Watch how the rest of the high school students cheered on as the coach let the intellectually disabled kid in the game for the last 20 seconds.

News Report Audio:
Crowd cheering.Coach: He comes to ppractice everyday, he shoots with them, he cheers them on…”

TR:

Or…

News Reports:
Reporter 1: A very special student indeed…
Reporter 2: All thanks to the compassion of one of his classmates….
Reporter 3: But the emotion of this night involved a student who cannot take the field, but is universally admired for his determination…
Reporter 4: A special needs student with Williams Syndrome. He’s a fixture on the sidelineduring football games always rooting on the team. But hi fives are one thing senior prom is something different.
Student: She could have picked anybody to go to prom with.. her.

TR:

I just don’t want to put that sort of thing out in the world.

Does it sound like I’m making a big deal out of this? Maybe because I’ve seen inspiration porn live and in full effect. In fact, I unknowingly was recruited to be a part of the performance.

Audio: Dream Harp

Many years ago when I was still very new to blindness, I was asked by a local organization serving those with vision loss, to give a access technology demo during an event.

I took to the technology pretty quickly and they thought I could be helpful sharing that information.

There was no money involved of course, but they’d provide my transportation and I think there was going to be a lunch. Whatever, I was down to help the cause for sure.

I was setup y’all!

Arriving at the center, I was shown to the main room where the event was taking place.

There were three or four individuals with vision loss seated up in the front of the room. The rest of the group was seated around a large conference table.

I was shown to a table in the front of the room off to the side where I setup my laptop.

Shortly after, the host of the event, the director of the center, welcomed the guests and kicked off the agenda.

Each of the men and women seated in the front of the room were asked to share the story of their vision loss.

Here’s how I recall that event;
Audio: Trap Beat!

each individual told their story while the event host accentuated the misery.

Storyteller:
” Before I went blind, I used to take long walks in the park
Now, I can’t see anything, my whole world is dark!”

Host: “Pitch black, the world is dark, too dangerous for you in the park.

TR:

Laughs! I said, that’s how I recall it today, but that’s not exactly what happened. But I do recall the questions and comments from the host were obviously selected to highlight the negative.
She was playing to the fear of the guests seated around the conference table.
these were potential donors.
All who probably already had beliefs about blindness;
“it’s probably the worst thing that could happen to you and if we don’t help these poor people they won’t be able to do anything. They can’t do for themselves.”

I was setup to be a part of a dog and pony show to help fundraise for the organization.

the fact that it was a fundraiser isn’t the problem for me. I would have still agreed to attend.
However, I would not have participated if I was aware of the approach being used to raise that money.

My so called presentation was probably less than 5 minutes. The host asked some specific questions and then made it seem like it was my technology background that enabled me to grasp the tools and less about the technology as a tool for independence.

Then they pulled out the glasses.

Audio: Glasses clinking and sliding down a bar!

No, not drinks. I don’t even think that would have helped. . No, it was the blindness simulation glasses. These are created to help sighted people understand what it supposedly looks like when you have certain diseases like, macular degeneration, RP, glaucoma and others.

At first thought, you may think ok, that’s probably helpful. It helps people understand and therefore empathize? Sympathize?

Well, in this particular case, while the dog and ponies sat up in front and this one off to the side a bit, the sighted donors were led into their temporary world of vision loss.

Reluctantly at first, one after the other each slowly began trying on the glasses.

“Oh my”…. “wow”
“where did you go Jeanie?”

And then the real fun began as they exchanged glasses with one another. Laughing as they realized how little they could actually see. Unable to find things they placed on the conference table. The host joking as she moved their cups of coffee.

Meanwhile, the dogs and ponies sat up front. While the jackasses continued with their disability experiment.

Empathy, I didn’t see that. But a check was written.

I don’t remember how the event finally ended, but I do know that was it for me. I checked out. There may have been some additional conversation but I doubt I had much to say to anyone after bearing witness to that display of ableism. I vowed to never be a part of anything even remotely like that.

I could easily imagine each of the donors around the table going home fulfilled and thinking “I should really count my blessings, because there’s always someone worse off in the world.”

As far as I could tell, I was alone in my review of the event. I believe some of the others continued to participate. I pretty much severed ties and ended up having a sort of reputation, so I was never asked again. perfect!

All of this leads to my final question.

How are we telling our own stories?

I highly doubt any of the people sharing their story were given instructions on how to tell it. Chances are, the director simply knew these individuals would supply what she wanted for the audience.

Some may say the ends justify the means. The center received the money and therefore can do good things for the clientele. I don’t agree. I believe several of those in the room were employers in positions to someday hire a blind person. I doubt they would. But that’s a subject for another day.

What thought do you put into telling your own story?

In most instances, we’re doing the telling of our own story. We don’t have a videographer, podcaster, journalist.

We’re probably not standing in front of an audience equipped with a PowerPoint presentation. We’re simply talking to people. Most often one on one.

Crazy thing, I tell other people’s stories but not my own. I can do it in a presentation, no doubt, but one on one not so much. I feel strange.

Audio: Cameo Strange! moves into “Children’s Story” Instrumental Slick Rick

I should tell my story as if I’m giving a presentation. it’s mine, it’s a good one. It’s worth telling. It can be helpful.

And it’s the only one I have.

And in the event someone hears it and their thought is
“Wow, I’m so grateful because I’m not like Thomas!”

My response, Bruh, you should be so lucky!

I’m not flexing’ or being conceited or anything like that. But this is my life why shouldn’t I be proud of what I do, when I do it and how I do it.

the same decisions I make for my guests and you all the listener, shouldn’t I put that much time and thought into my own story?

If you say yes, then maybe you too should do the same.

I told you this wouldn’t just be related to podcasting. In fact, it’s not just related to disability.

Or is it?

“Here we go!” Slick Rick, Childrens Story

You can find Reid My Mind Radio wherever you get podcasts. And if for some reason that isn’t the case, like teddy said, come on over to my place… ReidMyMind.com. That’s R to the E I D

Slick Rick “D, and that’s me in the place to be”

Like my last name.

Audio: Reid My Mind Radio outro

Peace

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Because We Are Captivating

Wednesday, October 9th, 2019

A professional headshot of Stephanae's smashing asymmetrical hairstyle with burgundy highlights. The muted Coral Cutie lipstick topped with a peach colored gloss provides a nice contrast against the gray backdrop. She is wearing a black dress and black tuxedo jacket trimmed in faux leather, silver statement necklace, and silver drop earrings.
Third time on the podcast, Stephanae McCoy is the co-founder of Captivating, an online magazine. Hear her journey from once believeing there was no future to empowering women with vision loss to see their Bold, Blind Beauty Captivating selves!
How did she start the magazine? What helped her find her purpose? And what’s her advice for others adjusting to vision loss? Plus Steph is a part of SPARK Saturday. #SparkSaturdayPCB)

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Transcript

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TR:

Welcome back to Reid My Mind Radio!

With each episode, I’m hopeful that we’re reaching someone new to vision loss. I know they are out there and I have a pretty good idea of what they’re experieencing. Mainly because I myself became Blind as an adult.

My name is Thomas Reid and I am host and producer of this hear podcast – which is all about sharing the stories of compelling people who themselves have some degree of blindness. From low vision to totally blind, like me!

In sharing our stories we begin to shatter the false beliefs and information about what it means to live with low vision, blindness or disability. Beliefs we may have never even realized we held. Notice I said we? Meaning you and I both. No one is immune.

For those interested in a different way of thinking,let’s go!

Audio: Reid My Mind Radio Intro

[TR in conversation with SM:]

Yeah so you know how this works, this is your third time! (Laughs) Trifecta!

SM:

Laughing

My name is Stephanae McCoy and I am the founder of Bold Blind Beauty and online community with the purpose of empowering Blind and Visually Impaired women while connecting sighted and non sighted people. And I’m also the Co-Founder of Captivating.

TR:

That’s right, Steph is back on the podcast. I encourage you to check out her first and second episodes which I’ll link to from this episodes blog post over at ReidMyMind.com.

Today, let’s start with her most recent venture.

SM:

Captivating!

TR:

An online digital lifestyle magazine gearred to people with disabilities.

After witnessing the results of a friend and fellow Blind blogger’s make over, Steph reached out to the image consultant who performed the transformation.

SM:

Her name is Chelsea Nguyen. our first telephone conversation actually lasted three hours, the first time I met her. And we were just going on and on about the things we had in common.

TR:

But there are also differences.

SM:

Chelsea is not Blind. Chelsea does not have a disability, but Chelsea has a heart for people who do. And she specifically has a heart for people who are Blind and Visually Impaired. Being that she has had that experience working with Blind people she developed strategies to help Blind and visually Impaired people use non-visual techniques for applying makeup, taking care of their appearance and everything. She developped these things. I’m like we really gotta do something together.

TR:

Eventually the ideas turned into Captivating.

SM:

We were thinking about how people with disabilities are viewed broadly, especially if you have a visible disability. People stare at us a lot when we’re out here living our lives when we have a white cane or wheelchair or whatever.

TR:

Maybe that’s the gaze of seeing something unfamiliar, possibly fear or even ableism.

Whatever it is, Steph’s flipping it!

SM:

We think that when people are looking at us when we’re out here with our devices, that they’re looking at us because we are captivating.

TR:

That’s not her initial reaction to her vision loss in 2005. This attitude has it’s beginnings in 2009.

SM:

That’s when I was diagnosed legally Blind and had to look at some adaptations for work and life.

[TR in conversation with SM:]

Let’s say we’re back in 2009. Ok, so I remember how I felt in terms of my career and my future. Do you remember that time for you?

SM:

Oh my God yeah!

I had these plans. I had just gotten married like a year or so before. We had bought a house. I had just gotten a promotion at work and I just had all of these grand plans and it’s like now I’m legally Blind and now what

[TR in conversation with SM:]

Hmm.

SM:

You know?

[TR in conversation with SM:]
Yeah!

SM:

Before I connected with other organizations and other Blind people I just sort of thought that I had no future. I thought it was over.

TR:

TR:

That’s despair. An unforgettable emotion. She didn’t know it at the time, but she did have a way to take her from no future to Bold Blind Beauty to straight up Captivating?

SM:

even in the worst set of circumstances I would always think, there is always a way.

I didn’t know what that was going to look like but I knew there was going to be away that I could progress through this and I could adapt to it and grow with it. I didn’t think so at the time.

TR:

In the midst of pain, its hard to see how it can provide opportunity.

SM:

It wasn’t until I think I lost my sight and had to advocate on behalf of myself that it became clear to me what my real purpose was.

TR:

Steph’s earliest advocacy was as a mom.

SM:

My middle son had ADHD, Attention Deficit Hyperactivity Disorder. When he was going to school because his behavior was so over the top, it was just very, very challenging trying to manage him especially being a single parent with two other children. I had to become my sons advocate. I didn’t even consider myself an advocate before he got diagnosed.

TR:

All set to discuss her son’s Individual Education Planwith a teacher and principal, Steph quickly realized she was unprepared when the attendees included several faculty and specialists.

SM:

That never happened again because after that I educated myself and I found out everything I need to know to be able to help my son and to be his advocate. Every time they would try to do something that I felt wasn’t Kosher, we would have to sit down and have a conversation. It was almost like a full time job.

TR:

Then there was advocacy from her perspective as a daughter.

SM:

My mother developed a disability in her later years. Her entire body was pulled to the left side so her head was almost touching the floor because of her Dystonia. She had reached a point where she was denied Social Security Disability three times. When you’re applying for Disability it’s a difficult process, but its made even more difficult once you’re denied the third time.

TR:

First step!

SM:

I got really angry, but on my way home I thought about it, I gotta sit back, think this through, do some research and then I started writing.

TR:

Writing a letter detailing her mothers situation including pictures and an invitation to visit. Addressed to the Social Security Administration.

SM:

I CC’d all of my representatives, her doctor and her attorney. Arland Spector’s office got involved and within six weeks my mother was getting the benefits that she rightly deserved.

TR:

The strength to move through challenges can come from all of our individual experiences.

Sparking Success After Vision Loss

Wednesday, September 11th, 2019

Blindness, Low Vision any degree of significant vision loss occurs for different reasons. It impacts people from all walks of life at various ages.
My guest today, Susan Lichtenfels, President of the Pennsylvania Council of the Blind (PCB) says; “None of our experiences are ever the same, but they’re similar.”

Looking at people adjusting to vision loss, it’s apparent there are also similarities in making that a success.

Hear all about SPARK Saturday, an event sponsored by the Pennsylvania Council of the Blind to light the fire in anyone impacted by vision loss. Plus a look at how PCB can help you attend.

Listen

Resources

Transcript

Show the transcript

TR:

Welcome back to another episode of Reid My Mind Radio. My name is Thomas Reid. Not only am I producer & host of this podcast, but I’m the target audience, a person adjusting to becoming Blind as an adult.

While I’m no longer new to blindness, I do think I would have appreciated having a podcast like this one during those early years.

In some ways I did. I was fortunate to have other people with all degrees of vision loss in my life. People who are Blind, living productive lives on their terms.

We’re going to get into a bit of that and how it can be of help to you or someone you know right now adjusting to vision loss from low vision to total blindness.

First let me drop this on you like…

Audio from opening music (Wow!)

Audio: Reid My Mind Radio Intro Music

TR:

Early on in my adjustment I became involved in advocacy. It began locally and grew to state and national after helping to form a chapter of the Pennsylvania Council of the Blind or PCB in my county.

Attending my very first PCB state Conference & convention made a big impact on my life. It gave me the chance to meet people who both indirectly and directly taught me a lot about blindness. It was extremely important to my personal adjustment.

Today we’re going to take a look at some of what PCB has to offer those adjusting to, experiencing or impacted by blindness or vision loss; including an event that many of you may want to attend. Plus opportunities to help you do that.

Allow me to present a friend of mine to help guide you on this tour.

SL:

My name is Sue Lichtenfels and I am currently the President of PCB. But when I’m not wearing that hat I am a wife, I am an Advocate and I am a person with a disability, actually 2 disabilities. I am a mother of a soon to be 8 year old.

[TR in conversation with SL:]

8 years old already. Wow, I’ve known you for a while Sue.

Sl:

We started on the board at the same time. In 2007 we were elected and we started serving in 2008.

[TR in conversation with SL:]
And how long were you in PCB ?

Sl:

I only joined in 2005. We really are like right around the same… (laughs)

[TR in conversation with SL:]
Yeh! So was your first conference 2006 or 2005?

Sl:

My first conference as a member was 06.

[TR in conversation with SL:]
Yen, same with me!

TR:

We’re going to start with advocacy, but let me first be an advocate for this podcast.

Sue has agreed to come back on the podcast to share more of her story.

SL:

We’ll sit down and do another interview.

TR:

I’m just saying! It’s on the record now!

Self-advocacy is often a gateway to becoming an advocate for other. For Sue, it started in college.

SL:

No one’s there anymore to kind of be a buffer between you and your professors or the learning center that’s helping to adapt your materials in the format you can use.

#Goal Ball

TR:

While at the University of Pittsburg, Sue was introduced to the sport of Goal Ball which truly made an impression on her.

SL:

It’s a sport with three players on each team played on an indoor court and you kind of roll a ball the size of a basketball. It’s got bells in it and you roll it in a bowling motion and then you slide and use your body to block the ball from going beyond your team into the goal.

TR:

It may sound like just a game, but Sue grew up loving sports and always wanting to play and compete.

SL:

I was never allowed to. So when I found this sport, Goal Ball, I really , really loved it.

TR:

Sue became really good at the game. In fact, she played for the USA team in the World Championship in Canada.

SL:

And then I was in this car accident and lost the use of my legs.

TR:

This appears to be what really activated that inner advocate.

SL:

I had this opportunity to finally find a sport, find something I could be athletic and involved in so I wanted to do work and do advocacy get other kids that are mainstreamed the opportunity to be more involved in physical education and recreation.

TR:

Sue applied for and received a fellowship which enabled her to start a nonprofit.

SL:

Called Sports Vision, to create opportunities for children. I went out and spoke to Physical Education Teachers, IU teachers to advocate on behalf of getting children more involved in physical education.

[TR in conversation with SL:]
When you said that you weren’t allowed to was that a parental thing or was that a school thing where you weren’t allowed to participate in sports?

Sl:

I wasn’t allowed to participate in sports for fear that I would get hurt.

TR:

Children attending schools for the Blind had adaptive sports and recreational activities. Unfortunately, fear often caused children like Sue who were mainstreamed to be kept on the sidelines and excused from physical education and sports.

SL:

Fear was on the side of the parent who was afraid that their child was going to get hurt. The fear is also on the side of the district that doesn’t want to take a chance in getting sued because a child did get hurt.

[TR in conversation with SL:]
I got you, so it’s not like you had an advocate at school or at home kind of saying hey she wants to play sports, let her do it. So then you became that advocate in Sports Vision.

Sl:

Correct.

[TR in conversation with SL:]
Cool!

TR:

Also cool was when Sue brought her talent and persistence to the Pennsylvania Council of the Blind. Already familiar with running her own nonprofit and filling multiple roles, she took on many within the organization before her election to PCB President.

SL:

Fundraising, membership, awards, conference program and planning I’ve pretty much served on every committee or team within the organization.

Since 2010 I’ve been Editor of the PCB Advocate which is our quarterly newsletter. In 2007 I was elected to the board of PCB and been serving as a member of the board ever since.

# Challenges of Leading Membership Org.

Currently Sue is winding down the last months of her second and final term serving as PCB president.

Just the right time to ask her about the challenges of leading a member based advocacy organization.

First, challenges of the membership model itself.

SL:

Engagement.

When you’re a member based organization there is a micro way of thinking. You tend to gear your work towards the people that are in your organization. And we spend a lot of time offering ways to try and get our members more active when the reality of the situation is that our mission is to promote independence and opportunity for all who are Blind or visually impaired.

TR:

Second, advocacy

SL:

I think when many people hear the term advocacy they automatically associate it with legislative, policy those types of issues. They don’t recognize it for all the rest of the issues that need to be addressed that maybe aren’t necessarily achieved through writing a Legislator.

[TR in conversation with SL:]
Such as?

Sl:

Educating the public about the abilities of people that are Blind or visually impaired. The peer support that is necessary to take someone from not having any idea about what their own capabilities are and providing them with the ability to listen and offer them guidance.

That’s advocacy too.

TR:

So, how exactly does PCB offer support?

Here’s three ways.

Audio: One!

SL:

Peer discussion calls – these are organized usually around a specific topic. We have a conversation around issues such as travel when you’re Blind or visually impaired. We talk about our own experience , we share our stories and we provide a forum where we all learn from one another.

Audio: “Two!”

SL:

Peer Mentors – A lot of times the best way to cope with losing vision is to talk to someone who’s been there. None of our experiences are ever the same, but they’re similar.

TR:

Through their network which includes people who span all degrees of vision loss, from low vision to total blindness, PCB has something else to can offer…

SL:
Someone to talk to them on a one on one basis and provide them with guidance and advice and support.

Audio: “Three”

SL:
Local chapters – throughout the state we do have chapters who usually meet on a once a month basis and these are people who are blind or visually impaired who are more than willing and ready to welcome those who are new to vision loss and to really provide that connection and that one on one in person peer support.

TR:

While the local chapters are obviously specific to the state of Pennsylvania, “One and two” the discussion calls and peer mentors are all open to anyone experiencing vision loss.

SL:

Some of the specific advocacy discussions might be Pennsylvania specific but there’s a lot of information that we share that’s blindness and support related that isn’t geographically specific.

If you or someone you know is an individual who has vision loss and who’s vision loss has occurred within the last five years, I encourage you to apply for our Adjustment to Blindness First Timer Conference Scholarship.

TR:

This is a full scholarship! It covers your attendance for the weekend. That includes your registration, conference meals and activities, hotel…

SL:

And it will also cover ground transportation to and from the conference. To learn more about the scholarship, contact the PCB Office at 877617 – 7407 or send an email to Leadership@pcb1.org.

TR:

But that’s not it!

Maybe you’re thinking, Thomas, I’ve been Blind for more than 5 years and like you I believe the adjustment process is an ongoing thing and I really would love to attend. Are there any opportunities to help me get there!

Well, yes! PCB has some additional scholarships that you can check out on their web page at pcb1.org/conference

And then there’s also a $500 merit award available this year, specifically for those who are Blind or Visually Impaired and currently enrolled in a vocational or academic program.

SL:

Or some type of professional licensure.

We’re actually going to award three individuals stipends to attend the PCB Conference. So the top three finalists for the Merit Award will receive stipends to attend which will include the hotel, travel, conference registration and meals. Once folks get to the conference, those three individuals, we will announce who will win the grand prize of the $500 Merit Award.

TR:

That’s a great opportunity! I’d love to see it go to someone in the Reid My Mind Radio family.

Whether you, a family member or friend is adjusting to blindness or low vision; the PCB conference truly can be the experience that you need in your life right now.

SL:
But if you can’t make the entire weekend, and you can only pick one day to come and join us, I really encourage you not to miss our Saturday morning presentations. It’s going to be amazing!

TR:

It’s going to be hot!

It’s called SPARK Saturday because we’re bringing that heat!

[TR in conversation with SL:]

What about you? How has your involvement with PCB impacted you personally?

SL:

You know I’ve been involved at the leadership level and involved in the work of the organization for so long, I’ve gained so many skills. So I mean I’m a much more well-rounded person with regards to blindness skills but also skills that are work and project related.

TR:

The result of actually doing the work?

Sl:

I have a lot more confidence now in my abilities than I used to.

TR:

That confidence extends way pass the work.

Last year Sue decided to write and direct a play for PCB’s post banquet entertainment.

She cast it with her PCB peers.

SL:

It’s just such a fun time to rehearse with people. Really get to know people in that way where everyone is just kind of dropping their guard and letting you see the silliness, the fun. In the whole process of it such peer support we exchanged. I never would have had the confidence to do that. To write it and actually put it out there for people to kind of judge it. I wouldn’t have had the confidence to do that if I wasn’t a part of this organization.

TR:

Now, if you don’t mind, I’m going to get a bit nostalgic!

Audio: Can’t Stop Won’t Stop PCB

You see, for several years, I served as PCB Conference Coordinator. I used to circulate conference information via audio. It was called “The Blast”. One of the things I did was conclude with the conference details… it went something like;

The 2019 PCB Conference will take place in Harrisburg, PA at the Crown Plaza located on South Second Street – just two blocks from the Amtrak and Greyhound station. (I told you it’s going to be accessible!)

The PCB room rate is;
94 dollars per night which is for a room with a king size bed.

(For the aristocrats among us!)

102 dollars for a room with two queen size beds.

(For the money savers or the very friendly!)

The festivities begin on October 17 and last through October 20, 2019.

For all the details visit pcb1.org/conference
Or you can pop over to this episode’s blog post at ReidMyMind.com for all the links.

If you want to reach out to Sue, well she’s not on Twitter, yet! She is however on Facebook if you can spell her name correctly, Susan Lichtenfels.

Every time I speak with Sue it leaves me with such a warm fuzzy feeling! She’s always so kind and patient especially with me as I often ask things at least twice.

TR:

What’s the qualifications for that again?

SL:

Oh my God, you’re gonna get kicked in the face, I swear to God!

TR:

Laughs… I want you to just say it!
SL:

My legs may not work but I might just give you a kick in the face!
(The two laugh together!)

Audio: Can’t stop, won’t stop PCB Conference!…

Audio: Explosion … Blast!

Audio: Reid My Mind Radio Outro

TR:
Peace!

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