Posts Tagged ‘Adjusting’

Live Inspiration Porn – I Got Duped

Wednesday, March 18th, 2020

Podcasting as a passion project takes some real perseverance. There’s always some excuse lurking around the corner just waiting for you to take

In this episode I’m working through one which has been nagging me for a while. Giving it some real consideration led me to recall a story from my own adjustment experience. A time when I got duped into being a part of a live performance of inspiration porn. Well, sort of. Let’s just say I wasn’t there for the same reasons as those running the event.

Like most episodes, I believe this one can give those new to blindness and disability some things to consider. In fact, like all episodes I don’t think it’s restricted but that’s not really up to me. I’ll leave it right here for whoever wants to partake.

### Listen

Links/Embed Code for “Live Inspiration porn – I Got Duped”: Liberated Syndication – Libsyn

Preview Player / Get Embed Code
main region
Artwork for Live Inspiration porn – I Got Duped
Play Episode
Pause Episode
Live Inspiration porn – I Got Duped
Seek slider
00:00:00 of 00:16:07
Rewind 30 Seconds
Skip Ahead 30 Seconds
Subscribe to This Show
Download This Episode
Embed This Player
Share This Episode
main region end
Starts At
*** NOTE: This embed code has been automatically adjusted to 90px high in order to avoid unnecessary empty space below the player.


Show the transcript


What’s up Reid My Mind Radio Family?

Yo soy Tomaso, Thomas Reid, host and producer of this podcast – Reid My Mind Radio.

Welcome to those of you who are new here.

This podcast introduces you to compelling people impacted by all degrees of blindness and disability.

every now and then, like today’s episode, I share some of my own thoughts and experiences as a man adjusting to becoming Blind as an adult. And yes, I say adjusting, I don’t think I’ll ever really use the ed suffix on adjust. That’s not to mean there’s no progress. It’s just a continuous journey. Once you get to the understanding that it’s not one to be feared or even think negatively about, it gets better. But It’s like life, there’s always going to be change, and vision loss or any disability is now a part of that.

If that’s part of your reality, a family member or friend or maybe people you work with, well you’re definitely in the right place. If you yourself are going through some other sort of life change or you just like podcasts. There’s something here for you too, if you are opened to that.

Everyone is truly welcomed here with the exception of those with real hate in your heart. Energy works in mysterious ways and I don’t want that negativity being passed along to me or any of the family.

So let’s get this poppin!

Audio: Reid My Mind Radio theme

# Intro

Today I’m sharing some thoughts about this podcast. These are not stream of consciousness. No way I wouldn’t do that to you. My mind can be a scary place when I’m trying to figure things out.

Audio: Sound of chaos!

Chances are as I navigate these thoughts they will prove to be applicable to more than this podcast and hopefully useful to others. That’s exactly how I feel about every episode. I focus on those adjusting to blindness , but lots of others can relate and enjoy.

Audio: Typing sounds….

Since I began this podcast and maybe even prior, I have been very specific about saying I don’t see myself as a journalist. I’m an advocate, straight up! If you listen to the podcast, you know there’s a certain message about blindness and disability. My opinion or feelings in most cases are evident. The overall message is one of empowerment. I’m not impartial.

Audio: Possibly use old episodes here

As if journalism is really impartial.

There are times though when I need to make all sorts of journalistic decisions. It could be the way I edit or the specific questions I ask, even the overall feel of the show, the sound design. It’s intentional. My approach is different from your standard so called impartial reporter.

I’m connected to most people who are guests on the podcast. Usually, the connection isn’t personal. Rather it’s through blindness and disability Sometimes it could be race or we have something else in common.

I feel a responsibility to both my guests and listeners.

I want my guests to feel what I hear when they tell me their story. I want them to know I respect them and their experience.

I want listeners to find the multiple ways they relate to my guests. Yes, there’s the disability experience, but maybe they share a similar motivation, desire or goal.

That’s what I want, it doesn’t mean I can always make it happen.

every listener brings their own past, prejudices, preconceptions and experiences to the podcast.

That makes sense, it’s like anything else. Two people hear the same song , see the same film or read the same book and have drastically different interpretations.

Some people see a reflection of their own lives and goals while others never see themselves in a podcast where blindness and disability is so prevalent.

It’s probably not one or the other. I think there are some who have a bit of both. Either way, I can’t control that.

Which leads me to this statement…

“You should always remember, there are people worse off than you.”


“No matter how you’re sad and blue, there’s always someone who has it worse than you”, Shaggy

YouTube Videos
* ” If you’re having a bad day, just consider the day ….”

* “Bare in mind, there’s always someone worse off than you”

Song sung by Little Richard at a MS Telathon.

“… As I look around, so many people who cannot walk, not talk nor see, I thank God for the health and strength that I have, for there’s someone worse off than I am.”

First things first…

I’m pretty sure I said this same thing at some point in my life. it’s a common statement and an accepted way of thinking.

But, what does it really mean?

How can you compare someone’s life and happiness without all the information??

Is this really pity?

As a content producer, I cringe when I hear it now especially in relation to my podcast.

There’s never been a guest on Reid My Mind Radio that’s in need of someone’s pity.

I then question the choices made for that episode

Did I present this person in a way that says they should be pitied?

I don’t think I focus on the illness side of things. I do include or mention mainly because;
Others with the same diagnosis can relate.
It can also serve as a way to normalize illness and disability. They are a part of life and not a mysterious thing that happened to one person.

AudioFx: Ambiance head in skull
Am I creating inspiration porn?

Most of you are probably familiar with that term. It’s the
idea of presenting people with disabilities as inspirational solely or in part on the basis of their disability.

This idea that this person’s story which often you don’t even get, well it should inspire you or just give you that warm fuzzy feeling reminding you that most of the world is so considerate.

Watch how the rest of the high school students cheered on as the coach let the intellectually disabled kid in the game for the last 20 seconds.

News Report Audio:
Crowd cheering.Coach: He comes to ppractice everyday, he shoots with them, he cheers them on…”



News Reports:
Reporter 1: A very special student indeed…
Reporter 2: All thanks to the compassion of one of his classmates….
Reporter 3: But the emotion of this night involved a student who cannot take the field, but is universally admired for his determination…
Reporter 4: A special needs student with Williams Syndrome. He’s a fixture on the sidelineduring football games always rooting on the team. But hi fives are one thing senior prom is something different.
Student: She could have picked anybody to go to prom with.. her.


I just don’t want to put that sort of thing out in the world.

Does it sound like I’m making a big deal out of this? Maybe because I’ve seen inspiration porn live and in full effect. In fact, I unknowingly was recruited to be a part of the performance.

Audio: Dream Harp

Many years ago when I was still very new to blindness, I was asked by a local organization serving those with vision loss, to give a access technology demo during an event.

I took to the technology pretty quickly and they thought I could be helpful sharing that information.

There was no money involved of course, but they’d provide my transportation and I think there was going to be a lunch. Whatever, I was down to help the cause for sure.

I was setup y’all!

Arriving at the center, I was shown to the main room where the event was taking place.

There were three or four individuals with vision loss seated up in the front of the room. The rest of the group was seated around a large conference table.

I was shown to a table in the front of the room off to the side where I setup my laptop.

Shortly after, the host of the event, the director of the center, welcomed the guests and kicked off the agenda.

Each of the men and women seated in the front of the room were asked to share the story of their vision loss.

Here’s how I recall that event;
Audio: Trap Beat!

each individual told their story while the event host accentuated the misery.

” Before I went blind, I used to take long walks in the park
Now, I can’t see anything, my whole world is dark!”

Host: “Pitch black, the world is dark, too dangerous for you in the park.


Laughs! I said, that’s how I recall it today, but that’s not exactly what happened. But I do recall the questions and comments from the host were obviously selected to highlight the negative.
She was playing to the fear of the guests seated around the conference table.
these were potential donors.
All who probably already had beliefs about blindness;
“it’s probably the worst thing that could happen to you and if we don’t help these poor people they won’t be able to do anything. They can’t do for themselves.”

I was setup to be a part of a dog and pony show to help fundraise for the organization.

the fact that it was a fundraiser isn’t the problem for me. I would have still agreed to attend.
However, I would not have participated if I was aware of the approach being used to raise that money.

My so called presentation was probably less than 5 minutes. The host asked some specific questions and then made it seem like it was my technology background that enabled me to grasp the tools and less about the technology as a tool for independence.

Then they pulled out the glasses.

Audio: Glasses clinking and sliding down a bar!

No, not drinks. I don’t even think that would have helped. . No, it was the blindness simulation glasses. These are created to help sighted people understand what it supposedly looks like when you have certain diseases like, macular degeneration, RP, glaucoma and others.

At first thought, you may think ok, that’s probably helpful. It helps people understand and therefore empathize? Sympathize?

Well, in this particular case, while the dog and ponies sat up in front and this one off to the side a bit, the sighted donors were led into their temporary world of vision loss.

Reluctantly at first, one after the other each slowly began trying on the glasses.

“Oh my”…. “wow”
“where did you go Jeanie?”

And then the real fun began as they exchanged glasses with one another. Laughing as they realized how little they could actually see. Unable to find things they placed on the conference table. The host joking as she moved their cups of coffee.

Meanwhile, the dogs and ponies sat up front. While the jackasses continued with their disability experiment.

Empathy, I didn’t see that. But a check was written.

I don’t remember how the event finally ended, but I do know that was it for me. I checked out. There may have been some additional conversation but I doubt I had much to say to anyone after bearing witness to that display of ableism. I vowed to never be a part of anything even remotely like that.

I could easily imagine each of the donors around the table going home fulfilled and thinking “I should really count my blessings, because there’s always someone worse off in the world.”

As far as I could tell, I was alone in my review of the event. I believe some of the others continued to participate. I pretty much severed ties and ended up having a sort of reputation, so I was never asked again. perfect!

All of this leads to my final question.

How are we telling our own stories?

I highly doubt any of the people sharing their story were given instructions on how to tell it. Chances are, the director simply knew these individuals would supply what she wanted for the audience.

Some may say the ends justify the means. The center received the money and therefore can do good things for the clientele. I don’t agree. I believe several of those in the room were employers in positions to someday hire a blind person. I doubt they would. But that’s a subject for another day.

What thought do you put into telling your own story?

In most instances, we’re doing the telling of our own story. We don’t have a videographer, podcaster, journalist.

We’re probably not standing in front of an audience equipped with a PowerPoint presentation. We’re simply talking to people. Most often one on one.

Crazy thing, I tell other people’s stories but not my own. I can do it in a presentation, no doubt, but one on one not so much. I feel strange.

Audio: Cameo Strange! moves into “Children’s Story” Instrumental Slick Rick

I should tell my story as if I’m giving a presentation. it’s mine, it’s a good one. It’s worth telling. It can be helpful.

And it’s the only one I have.

And in the event someone hears it and their thought is
“Wow, I’m so grateful because I’m not like Thomas!”

My response, Bruh, you should be so lucky!

I’m not flexing’ or being conceited or anything like that. But this is my life why shouldn’t I be proud of what I do, when I do it and how I do it.

the same decisions I make for my guests and you all the listener, shouldn’t I put that much time and thought into my own story?

If you say yes, then maybe you too should do the same.

I told you this wouldn’t just be related to podcasting. In fact, it’s not just related to disability.

Or is it?

“Here we go!” Slick Rick, Childrens Story

You can find Reid My Mind Radio wherever you get podcasts. And if for some reason that isn’t the case, like teddy said, come on over to my place… That’s R to the E I D

Slick Rick “D, and that’s me in the place to be”

Like my last name.

Audio: Reid My Mind Radio outro


Hide the transcript

Adjusting to Vision Loss – A Creative Approach with Victoria Clare

Wednesday, February 19th, 2020

Victoria Clare with sculpture
Living a creative life for Victoria Clare is more than a way to express herself. It serves as a way to help her own adjustment to vision loss

Hear her story from denial and rebellion to acceptance and putting her in a position to support others.

Victoria Clare is a Sculptor, Musician, Entrepreneur… and she’s working on becoming a Scratch DJ! For real though!




Show the transcript


What’s up Reid My Mind Radio Family? I missed you all for real!

Happy 2020 to you all!

A bit of a slow start, but you know, you can’t hold a brother back!

So much of what’s going on in the world today makes it more challenging to find that hope and optimism.
Audio: There’s no need to fear…”

Reid My Mind Radio is here!

Let’s get this poppin

Audio: Reid My Mind Theme Music

“Creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.”

Getting to know who you really are is a big part of our early lives especially from our teenage years and on through college. For Victoria Clare, an artist specializing in sculpture, vision loss added to the process.


I just passed my driving test. I never had a lesson at night ever. Not any reason to that its was just my lessons were never booked for that time. When I passed my driving test I jumped in my car very elated wanted to go tell my boyfriend at the time that I passed my test.
Pulled out of my mom and Dad’s driveway and all of a sudden it became very very apparent to me that I really shouldn’t be driving. I just could not see enough to be driving.


On that ride to her boyfriend’s house, she clipped another vehicle and lost her driver’s side mirror. Fortunately, no one was hurt. It was enough to prompt her to see an Ophthalmologist


That’s when I found out I was going to go Blind.

The diagnosis was Retinitis Pigmentosa.

My particular Retinitis Pigmentosa is one of the recessive types so therefore we have no people in the family that have had it. So I’m literally the start of the chain if you will.
So finding that out as well kind of made me feel like wow what a responsibility. For me to get married and have children later in life would be a big choice for meat some point in my life which I was very aware of. However, I went back to college.


College in the UK refers to where many students go for two years after completing compulsory schooling at 16 in order to prepare for
exams to get into university. You can also take
vocational courses
at college.
While studying graphic design with plans to move on to University to continue in this field, Victoria just happened to come across a book about sculpture.


I knew when it was time for me to go to University that graphic design wasn’t for me. Sculpture was going to be my future
It was an amazing course. It only had 28 places in the whole of Europe. I was lucky enough to get one of those places.
I didn’t really consider that perhaps, hold on a second I may not be able to do this, I just carried on.


For some that may sound like optimism, positive thinking. But others who have been down this road would probably advise differently.

[TR in conversation with VC:]
Did you have contact with anyone else who was experiencing Vision Loss, anyone whose Blind?


No. No I had no contact with anyone like that.


Blind mentors can often help provide guidance, resources, and lend an understanding ear when dealing with all the additional loss that more than often accompanies the vision loss.


I had a lot of people kind of walk out of my life or just feel very awkward around me and didn’t know how to handle it.
My boyfriend I was with at the time, we got engaged, and he kind of was really struggling with the sight loss diagnosis and he actually saw it as too much for him so the relationship broke down.

[TR in conversation with VC:]

His loss! Hmm. We don’t like him.



Victoria soon learned that carrying on would require skills that she didn’t have. Living independently in a new town, navigating both in and outdoors.


I didn’t realize how simple everyday things would become so difficult for me. I had a hard time at Uny for a very short time, I mean literally I wasn’t there for very long before I decided that I can’t do this. It’s too hard. I left.

My lecturers said to me that I was welcome to come back at any time. Which was really really gracious of them considering it was such a prestigious course.

I had a conversation with my parents, they were incredibly supportive. They came and collected me.


Back at home Victoria says she isolated herself from the world.


And I started drinking. Initially it was about trying to numb the pain. I just felt like my whole world had shattered into a thousand pieces. I didn’t know how I was going to go forward. I didn’t see a future for myself .
And then something happened.


To put it simply, Victoria was introduced to possibility. It came in the form of a rehabilitation specialist.
A really lovely lady. She had a work cut out, to be really fair, with me. I was really super rebellious so I didn’t want help from anybody. You know, don’t treat me like a Blind person bla, bla, bla you know a typical kid.

Soon after meeting, the rehab specialist realized Victoria wasn’t going to use a white cane.


I just was not going to use one. I wanted to learn every trick in the trade so I could get away without using one.
She started to teach me other things like echo location, which is still really useful to me. trailing, just small things like that, that was getting me by.


Sometimes it’s the smallest suggestions that have the greatest results.
She was the one that suggested that maybe I should try some sculpture just for therapeutic reasons.
I went out in my Dad’s shed, I got a big old’ block of wood, stole some of his chisels, used his mallet and started creating. It was amazing. I turned my world around because it made me realize alright, I’ve been diagnosed with this sight loss but nobody’s taken away the skills that I’ve always had. They’re still there.


Remember the skills that she began sharpening in University?


The background and the love was the figurative work so I created a kind of table top size maybe like two feet tall female figure. I called it “Her Spirit”. that was put into a local gallery and sold. I then kind of returned and created another figurative female figure which was also sold. My work has changed a lot over the years but most certainly it was more figurative work back then.
[TR in conversation with VC:]

Did it represent something in your life at that time or what was that all about?


I would say for me it was more to do with the fact that the course that I had to leave in Uny was a figurative sculpture course. So of course I was kind of making that connection of wanting to keep the figurative sculpture part of me going even though if I had to walk away from the University

[TR in conversation with VC:]

How much of an influence is blindness. The subject of blindness not necessarily your adaptations if there are some but how much does that play into sculpting specifically.


Now a huge part because I get inspired by it. For example only two years ago that I put on the first sculpture exhibition that was completely in a pitch black gallery. everybody had to use their other senses to discover what the pieces actually were.


This particular exhibition enabled Victoria to express herself in three different ways.


It was to share my personal acceptance of my journey with sight loss. It was to also kind of share sight loss with the general public so that they would have an experience and an understanding of what it feels like. And three it was a very strong message to visual arts because they really , really need to up their game when it comes to accessible art in galleries. Most certainly for visually impaired people . When you walk into a gallery how do we navigate and involve ourselves in our environment? By feeling. To be told that you can’t touch a piece of sculpture a piece of art you’re immediately excluded from enjoying it.


The exhibit, a first of its kind received national media coverage and all of the pieces were sold.
the result opened new opportunities for Victoria including serving as a retina UK Ambassador


Raising money to create research and pioneer research for Retinal Dystrophies. public speaking started to grow from there really. I get to speak at conferences and various events. I’m speaking at the World 2020 Vision, that’s in Dublin and also chairing a panel.


The latter is a chance to meet others impacted by vision loss.


There’s a connection there. It’s something very special.


A big part of her personal journey is creative expression. Something Victoria believes can be of help to others adjusting to their own vision loss.


I would recommend anything that will lift somebody’s mood that will connect them to who they are and make them feel that they are enough and give them self-confidence and self-worth. From sculpture to painting, from dance to music and anything in between. I would just say creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.


Her own creative expression goes beyond sculpture.
There’s music which began around the same time as vision loss. Specifically, she began learning guitar from a friend.


Probably one of the things that helped me as I rewind going back to those dark days because I would sit when I was alone and if I was feeling down would just play my guitar. Just compose. I did find that a little comfort at the time.


About 13 years ago now, she discovered piano.


I used to be working in a school and this piano was sitting in the hall never being used and I’d be the only person working up a tinkle you know. Slowly but surely I started thinking you know what this is great, I love it and I ended up buying that piano off of the school and it’s sitting in my spare room now. (Laughs)


And you’re recording your music?


I Literally just come out of the studio.
“Know you Matter”, Victoria Clare


Singing and performing in bands since she was 23 years old, “Know You Matter” is Victoria’s most recent production. It’s a message to all those that have self-doubt and serves as a personal affirmation to remind her that she matters. She hopes it will resonate with others.

Know You Matter is available on ITunes, Apple Music, Spotify and just about wherever you listen to music.

Next up creatively…

[TR in conversation with VC:]

And you’re rapping too?


Laughs! Working on it. I want to get into a bit of scratching, you know Tom. Laughs…


She’s serious! She’s a Hip Hop fan.

Dela 1


I like a lot of Hip Hop, Dance music, but then I like a lot of singer song writer stuff.

[TR in conversation with VC:]

Since you said Hip Hop, who did you like?


I absolutely love Dela Soul. Yeah they were definitely my favorite.

The more I think about her art, it makes sense. She takes an existing piece of wood and crafts that into a whole new thing. That’s Hip Hop.

This past Christmas Santa brought her a DJ controller or the modern day DJ turntables so who knows what she’ll create.

I know what you’re thinking, does this woman ever get bored? Well, she has the answer for boredom.


Board sports! (Laughs…)
[TR in conversation with VC:]

Yeh, I guess which is really another form of expression I would say.


When I was 23 a big life change happened for me because I decided to go backpacking with my best friends around the world. Probably the best thing I ever did. I was being faced with beautiful beaches and all the surf community and I was sitting there watching all these guys and girls just riding those waves and I just longed to do it but in my head the voice was saying you’ll never get to do that you’re going Blind you can’t do that.


If this were a movie, we’d queue up the dramatic music, the camera would pan out to the others easily riding the waves, maybe one falling off the board. The scene would move to Victoria slowly looking at a surf board next her and then back out toward the ocean. Seated on the san, she’d confidently straighten her back, stand, grab that board and sprint toward the water. Her friends would cheer her on as she paddled out to catch a wave…
But this ain’t no movie!
She privately held on to that desire like so many of us do.


It wasn’t until 2014 that I was actually doing my first solo exhibition. it was a really big14 piece collection exhibition. It was quite stressful at that time trying to do everything for it.

That’s when her husband had an idea.


Let me teach you how to surf . And that was it, I was hooked.


Once upon a time, she was adamant about not using the white cane. Today, Victoria puts that long white cane to good use.




that’s her way to expel that board energy when she can’t hit the waves.

And of course, where does Victoria go from here.

[TR in conversation with VC:]

You have a line of skateboards?


Yep, I’ve got the…

[TR in conversation with VC:]

Geez, you make me tired. (Laughs)
I got to up my life! I’m not doing enough.


they’re called Blinded Soul and they’re bespoke solid deck skateboard.
When we started surfing we also taught my nephew to surf and then I took that one step further, I made him a surf board. I did the same for skateboards. I was just so amazed how smooth a ride they are. They’re built like in a retro style. They’re not built for tricks, but they’re definitely built for long distance really, cruising.

[TR in conversation with VC:]

The other day when I was reading your blog I was like man I think I want to do this. (Laughs…). Like, I want to try skateboarding Now it’s been years. I skateboarded as a kid.

Audio: from “It’s A thin Line between Love & Hate”
“Here I am laying in the hospital, bandaged from feet to head


Ok, all jokes aside, I’m going to give that a try.
My personal creativity and expression for a few years now has been less about sports and physical activity today compared to my past.

For anyone experiencing vision loss, finding a creative outlet is worth exploring. It’s hard because the reality is for most these endeavors just don’t help pay the rent.
But that’s not a reason to not pursue a passion or interest. there’s levels to this stuff. find your level and enjoy. The benefits are real.
Victoria’s pursuit of her own interest in music proved fruitful in ways she probably never expected.

[TR in conversation with VC:]

You mentioned your husband. Did your husband know about your vision loss initially?


Yes, yes. We met through a band that I was in. I was the singer he was the drummer. he had the same kind of silly sense of humor I guess that I’ve got. We’d just have good fun. He would drive me home after rehearsals and stuff. probably only took a couple of months for me to realize that a. how much I liked him and b, I had to tell him.
I sat in the car with him one night, we were just outside the flat where I was living at the time. And I had to take a very very deep breath and I told him. He just hugged me. And I said to him if this changes things you know it’s ok. And he was like no way. I just couldn’t imagine it changing anything between us.
He’s a very, very positive person. Very optimistic. He supports me in everything I do.

[TR in conversation with VC:]

And what’s this fine gentlemen’s name?


Ah, this fine gentlemen’s name is Adam.


you just never know where the pursuit of your interests may lead.
Victoria talks about all of her endeavors over at her blog Beyond Vision.


I want to reach as many people as I can. I want to support as many people as I can but along the way I want to share my vulnerability as much as my successes. I think it’s all very well to sit an talking about all the wonderful things that you get to do with your life but I think it’s more important to share also the vulnerable side of you too because it makes you more relatable. I really do get quite honest with my blogs. They really do tell a story within themselves. They’re raw, they’re authentic.

Encouraged to write her own story in the form of a book, first reluctant, Victoria eventually had an idea to help make the task more attainable.


What if I started thinking like the book is an extended blog?
So I got in touch with an editor, Molly Somerfield Smith, lovely lady she’s actually a ghost writer. When I first wrote to her I was kind of talking in a way that I wanted her to write it but she was the person that said to me you’ve got to write this yourself. This is your story this can’t come from me, this has got to come from you.
here I am a year later and she’s now got the version that I put together and she’s editing.

[TR in conversation with VC:]

First of all, I see that you’re doing audio blogs. So it’s not enough that you’re doing all the other stuff now you gotta come on into audio? Come on Victoria let some other people keep the audio… (laughs…)


You know what tom, it’s purely for selfish reasons.


For the record, I actually welcome and promote more of our voices in the space.
By now you probably can tell Victoria is all about productivity. She’s voice recording what she would have once written for the blog.

To check out her work and more…


I’ve got my professional website which is for the sculpture and that is www. And then I got my advocacy website, Where there’s all sorts of crazy stuff going on and it’s also got a lot of resources , support and that kind of stuff. And that’s where the blogs are as well.

Victoria’s working on moving her sculpture website to a more accessible platform.
You can also find her on Insta Gram at VictoriaClareSculpture. That’s Victoria Clare (spelled out)
Don’t forget to go on over to ITunes or wherever you get your music and get her latest single Know You Matter.

Audio: Break of Dawn, DeLa Soul

Shout out to Victoria Clare for sharing her journey. And shout out to Steph McCoy for making the connect!

I’m always hopeful that somehow this podcast finds those who are in the place where many of us once were.
That’s losing their sight, receiving a diagnosis they never expected, maybe fighting against the idea of using a white cane.

It’s easy to focus on what is being lost but as we heard today, the pursuit of those things that bring joy can really help you find what you’re seeking. It’s just right around the corner.

Audio: Lyrics… “Break of Dawn”

If you like what you heard today, subscribe wherever you get podcasts. Why not tell one or two people about what’s taking place here.
Let’s get this information into the ear holes of those who need it the most. In fact, you know we’re about that access here so it’s available for finger tips and eyes too in the form of transcripts available on

That’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro


Hide the transcript

Sparking Success After Vision Loss

Wednesday, September 11th, 2019

Blindness, Low Vision any degree of significant vision loss occurs for different reasons. It impacts people from all walks of life at various ages.
My guest today, Susan Lichtenfels, President of the Pennsylvania Council of the Blind (PCB) says; “None of our experiences are ever the same, but they’re similar.”

Looking at people adjusting to vision loss, it’s apparent there are also similarities in making that a success.

Hear all about SPARK Saturday, an event sponsored by the Pennsylvania Council of the Blind to light the fire in anyone impacted by vision loss. Plus a look at how PCB can help you attend.




Show the transcript


Welcome back to another episode of Reid My Mind Radio. My name is Thomas Reid. Not only am I producer & host of this podcast, but I’m the target audience, a person adjusting to becoming Blind as an adult.

While I’m no longer new to blindness, I do think I would have appreciated having a podcast like this one during those early years.

In some ways I did. I was fortunate to have other people with all degrees of vision loss in my life. People who are Blind, living productive lives on their terms.

We’re going to get into a bit of that and how it can be of help to you or someone you know right now adjusting to vision loss from low vision to total blindness.

First let me drop this on you like…

Audio from opening music (Wow!)

Audio: Reid My Mind Radio Intro Music


Early on in my adjustment I became involved in advocacy. It began locally and grew to state and national after helping to form a chapter of the Pennsylvania Council of the Blind or PCB in my county.

Attending my very first PCB state Conference & convention made a big impact on my life. It gave me the chance to meet people who both indirectly and directly taught me a lot about blindness. It was extremely important to my personal adjustment.

Today we’re going to take a look at some of what PCB has to offer those adjusting to, experiencing or impacted by blindness or vision loss; including an event that many of you may want to attend. Plus opportunities to help you do that.

Allow me to present a friend of mine to help guide you on this tour.


My name is Sue Lichtenfels and I am currently the President of PCB. But when I’m not wearing that hat I am a wife, I am an Advocate and I am a person with a disability, actually 2 disabilities. I am a mother of a soon to be 8 year old.

[TR in conversation with SL:]

8 years old already. Wow, I’ve known you for a while Sue.


We started on the board at the same time. In 2007 we were elected and we started serving in 2008.

[TR in conversation with SL:]
And how long were you in PCB ?


I only joined in 2005. We really are like right around the same… (laughs)

[TR in conversation with SL:]
Yeh! So was your first conference 2006 or 2005?


My first conference as a member was 06.

[TR in conversation with SL:]
Yen, same with me!


We’re going to start with advocacy, but let me first be an advocate for this podcast.

Sue has agreed to come back on the podcast to share more of her story.


We’ll sit down and do another interview.


I’m just saying! It’s on the record now!

Self-advocacy is often a gateway to becoming an advocate for other. For Sue, it started in college.


No one’s there anymore to kind of be a buffer between you and your professors or the learning center that’s helping to adapt your materials in the format you can use.

#Goal Ball


While at the University of Pittsburg, Sue was introduced to the sport of Goal Ball which truly made an impression on her.


It’s a sport with three players on each team played on an indoor court and you kind of roll a ball the size of a basketball. It’s got bells in it and you roll it in a bowling motion and then you slide and use your body to block the ball from going beyond your team into the goal.


It may sound like just a game, but Sue grew up loving sports and always wanting to play and compete.


I was never allowed to. So when I found this sport, Goal Ball, I really , really loved it.


Sue became really good at the game. In fact, she played for the USA team in the World Championship in Canada.


And then I was in this car accident and lost the use of my legs.


This appears to be what really activated that inner advocate.


I had this opportunity to finally find a sport, find something I could be athletic and involved in so I wanted to do work and do advocacy get other kids that are mainstreamed the opportunity to be more involved in physical education and recreation.


Sue applied for and received a fellowship which enabled her to start a nonprofit.


Called Sports Vision, to create opportunities for children. I went out and spoke to Physical Education Teachers, IU teachers to advocate on behalf of getting children more involved in physical education.

[TR in conversation with SL:]
When you said that you weren’t allowed to was that a parental thing or was that a school thing where you weren’t allowed to participate in sports?


I wasn’t allowed to participate in sports for fear that I would get hurt.


Children attending schools for the Blind had adaptive sports and recreational activities. Unfortunately, fear often caused children like Sue who were mainstreamed to be kept on the sidelines and excused from physical education and sports.


Fear was on the side of the parent who was afraid that their child was going to get hurt. The fear is also on the side of the district that doesn’t want to take a chance in getting sued because a child did get hurt.

[TR in conversation with SL:]
I got you, so it’s not like you had an advocate at school or at home kind of saying hey she wants to play sports, let her do it. So then you became that advocate in Sports Vision.



[TR in conversation with SL:]


Also cool was when Sue brought her talent and persistence to the Pennsylvania Council of the Blind. Already familiar with running her own nonprofit and filling multiple roles, she took on many within the organization before her election to PCB President.


Fundraising, membership, awards, conference program and planning I’ve pretty much served on every committee or team within the organization.

Since 2010 I’ve been Editor of the PCB Advocate which is our quarterly newsletter. In 2007 I was elected to the board of PCB and been serving as a member of the board ever since.

# Challenges of Leading Membership Org.

Currently Sue is winding down the last months of her second and final term serving as PCB president.

Just the right time to ask her about the challenges of leading a member based advocacy organization.

First, challenges of the membership model itself.



When you’re a member based organization there is a micro way of thinking. You tend to gear your work towards the people that are in your organization. And we spend a lot of time offering ways to try and get our members more active when the reality of the situation is that our mission is to promote independence and opportunity for all who are Blind or visually impaired.


Second, advocacy


I think when many people hear the term advocacy they automatically associate it with legislative, policy those types of issues. They don’t recognize it for all the rest of the issues that need to be addressed that maybe aren’t necessarily achieved through writing a Legislator.

[TR in conversation with SL:]
Such as?


Educating the public about the abilities of people that are Blind or visually impaired. The peer support that is necessary to take someone from not having any idea about what their own capabilities are and providing them with the ability to listen and offer them guidance.

That’s advocacy too.


So, how exactly does PCB offer support?

Here’s three ways.

Audio: One!


Peer discussion calls – these are organized usually around a specific topic. We have a conversation around issues such as travel when you’re Blind or visually impaired. We talk about our own experience , we share our stories and we provide a forum where we all learn from one another.

Audio: “Two!”


Peer Mentors – A lot of times the best way to cope with losing vision is to talk to someone who’s been there. None of our experiences are ever the same, but they’re similar.


Through their network which includes people who span all degrees of vision loss, from low vision to total blindness, PCB has something else to can offer…

Someone to talk to them on a one on one basis and provide them with guidance and advice and support.

Audio: “Three”

Local chapters – throughout the state we do have chapters who usually meet on a once a month basis and these are people who are blind or visually impaired who are more than willing and ready to welcome those who are new to vision loss and to really provide that connection and that one on one in person peer support.


While the local chapters are obviously specific to the state of Pennsylvania, “One and two” the discussion calls and peer mentors are all open to anyone experiencing vision loss.


Some of the specific advocacy discussions might be Pennsylvania specific but there’s a lot of information that we share that’s blindness and support related that isn’t geographically specific.

If you or someone you know is an individual who has vision loss and who’s vision loss has occurred within the last five years, I encourage you to apply for our Adjustment to Blindness First Timer Conference Scholarship.


This is a full scholarship! It covers your attendance for the weekend. That includes your registration, conference meals and activities, hotel…


And it will also cover ground transportation to and from the conference. To learn more about the scholarship, contact the PCB Office at 877617 – 7407 or send an email to


But that’s not it!

Maybe you’re thinking, Thomas, I’ve been Blind for more than 5 years and like you I believe the adjustment process is an ongoing thing and I really would love to attend. Are there any opportunities to help me get there!

Well, yes! PCB has some additional scholarships that you can check out on their web page at

And then there’s also a $500 merit award available this year, specifically for those who are Blind or Visually Impaired and currently enrolled in a vocational or academic program.


Or some type of professional licensure.

We’re actually going to award three individuals stipends to attend the PCB Conference. So the top three finalists for the Merit Award will receive stipends to attend which will include the hotel, travel, conference registration and meals. Once folks get to the conference, those three individuals, we will announce who will win the grand prize of the $500 Merit Award.


That’s a great opportunity! I’d love to see it go to someone in the Reid My Mind Radio family.

Whether you, a family member or friend is adjusting to blindness or low vision; the PCB conference truly can be the experience that you need in your life right now.

But if you can’t make the entire weekend, and you can only pick one day to come and join us, I really encourage you not to miss our Saturday morning presentations. It’s going to be amazing!


It’s going to be hot!

It’s called SPARK Saturday because we’re bringing that heat!

[TR in conversation with SL:]

What about you? How has your involvement with PCB impacted you personally?


You know I’ve been involved at the leadership level and involved in the work of the organization for so long, I’ve gained so many skills. So I mean I’m a much more well-rounded person with regards to blindness skills but also skills that are work and project related.


The result of actually doing the work?


I have a lot more confidence now in my abilities than I used to.


That confidence extends way pass the work.

Last year Sue decided to write and direct a play for PCB’s post banquet entertainment.

She cast it with her PCB peers.


It’s just such a fun time to rehearse with people. Really get to know people in that way where everyone is just kind of dropping their guard and letting you see the silliness, the fun. In the whole process of it such peer support we exchanged. I never would have had the confidence to do that. To write it and actually put it out there for people to kind of judge it. I wouldn’t have had the confidence to do that if I wasn’t a part of this organization.


Now, if you don’t mind, I’m going to get a bit nostalgic!

Audio: Can’t Stop Won’t Stop PCB

You see, for several years, I served as PCB Conference Coordinator. I used to circulate conference information via audio. It was called “The Blast”. One of the things I did was conclude with the conference details… it went something like;

The 2019 PCB Conference will take place in Harrisburg, PA at the Crown Plaza located on South Second Street – just two blocks from the Amtrak and Greyhound station. (I told you it’s going to be accessible!)

The PCB room rate is;
94 dollars per night which is for a room with a king size bed.

(For the aristocrats among us!)

102 dollars for a room with two queen size beds.

(For the money savers or the very friendly!)

The festivities begin on October 17 and last through October 20, 2019.

For all the details visit
Or you can pop over to this episode’s blog post at for all the links.

If you want to reach out to Sue, well she’s not on Twitter, yet! She is however on Facebook if you can spell her name correctly, Susan Lichtenfels.

Every time I speak with Sue it leaves me with such a warm fuzzy feeling! She’s always so kind and patient especially with me as I often ask things at least twice.


What’s the qualifications for that again?


Oh my God, you’re gonna get kicked in the face, I swear to God!


Laughs… I want you to just say it!

My legs may not work but I might just give you a kick in the face!
(The two laugh together!)

Audio: Can’t stop, won’t stop PCB Conference!…

Audio: Explosion … Blast!

Audio: Reid My Mind Radio Outro


Hide the transcript

Reid My Mind Radio: Doctor Dre’s The Fight Back

Wednesday, March 15th, 2017

Picture of Doctor Dre, seated with a tan fur jacket with the caption, Doctor Dre The Fight Back!

Doctor Dre of Yo MTV Raps, NYC’s Hot 97 Morning Show, the movie Who’s the Man? And so much more … is launching The Fight Back!

Diagnosed with Type 2 Diabetes and now blind, this fight back is about more than you probably think.

This episode features the piece produced for Gatewave radio followed by more personal conversation with Dre. Plus, you know there’s only one way to intro this podcast… if you were a morning show listener you know I had to do it…it’s the roll call!

So c’mon yawl, listen to Dre…
>scroll down a bit, , to hear the show press play!





Show the transcript

What’s good everybody?
This is a special episode so I’m going to jump right in…
it’s no mystery , the title of the episode says it all.

If you’re in my age group You remember when older folks said rap was a fad and
black radio didn’t play the music!

You remember when MTV played videos and they weren’t black artists let alone rap music.

Yes, this episode is featuring that Doctor Dre from YoMTV Raps and many other things like the Hot 97 morning show.
With that in mind! There’s only one way for me to kick-off the podcast…

Yeah, I’m gonna do it!

[Audio: From The Hot 97 Morning Show with Ed, Lisa & Dre
“What’s up yawl, whatcha got to say, who’s on the phone with Ed, Lisa & Dre?”]

Yo, TReid’s the name, and right now’s the time
Welcome to the podcast called Reid My Mind!


[Reid My Mind Intro]

Significant vision loss can force a person to face real doubts and questions.
Such as;
Why did this happen to me?
What do I do now?

Andre Brown has chosen to answer the last question by launching a fight;
well really a fight back.

It’s more than vision loss.

In  2008 Andre was diagnosed with type 2 Diabetes.

He experienced multiple complications of the disease including Charco – foot Syndrome which he says can cause a collapse of the ankle.

My vision loss came as a progression of that and not taking care of myself properly.

my vision loss was a gradual thing where I  started seeing little things across my vision. Little lines and you know things jumping.

After These lines often called floaters,  multiple surgeries to repair detached retinas,
Andre was left with some light perception.

Diagnosed as Diabetic Retinopathy but  as the Doctor said  to me , he said that’s what’s   blocking your vision, you have scar tissue in the back. He said we can’t do anything about  it until we stop the Diabetes. So once that happens then  we can do a different procedure or two to see if we can make the sight  come back.
I’ve spoken with a lot of different people and everyone has told me that my sight  returning is a very strong possibility, especially with what I am doing now.

What he’s doing now?
Simply put, he’s fighting back!

This fight is just as much for others as it is for himself.

Andre’s in a unique position to take on this job.
You see he’s been working in support of the careers of others for years.

Andre Brown, is better known as Doctor Dre, a pioneer  in Hip Hop culture and entertainment.

Starting out in WBAU, the Adelphi University radio station in Long Island,
Doctor Dre would eventually go on to record music with his group Original Concept.

He D Jayed for the Beastie Boys.

He was involved in getting one of Hip Hop’s most prolific and influential groups, Public Enemy on to Def Jam records.

Most people know him as part of the Ed Lover and Doctor Dre Duo who
hosted “Yo MTV Raps” every weekday
between 1989 and 1995; As well as
extremely successful radio morning shows in New York City between 1993 and 1998.

DJ, musician, actor, author… and now
Doctor Dre is  in a position to bring real attention to two of today’s
very significant health crisis ;
Diabetes & Vision loss.

Well we have the program that’s called Doctor Dre’s The Fight Back.

Taking the situation and being able to talk to other people and say, I can show you through  what I’m going through  that we all can change. We all can grow.

I’m finding other people that have different or similar experiences and being able to share that. So the fight back is
how do we reach out and get so many resources to work with you to try to actually change your situation.

Changing the situation by providing access to information  including;
medical, lifestyle and technology.

I’m doing a lot of Holistic medicine along  with traditional medicine to work with my Diabetes  and just to change my diet. Just putting that under better control

I’m playing the Guinea pig so everyone can  see it.

TR   [In conversation with Dre]
When you say   you’re playing the Guinea pig what does that mean?

Sometimes you have to go out and someone has  to go oh hey does that work, well I’ll try it  let’s see

I’m not bringing guarantees, I’m trying to bring choices.

What we’re doing is trying to bring those choices to the fore front. so there no longer just whispered in a corner or you have to pull this up on the Google thing… know we’re gonna say no, here’s a bunch of things here, find a way to find something that works best for you. Here are some things that are very easily at your beck and call.

And when you have options, there’s so much more you can do.

Real life style changes that affect the way we think about nutrition.

And that’s one of my goals in The Fight Back, is to change bad thinking.  The mother of 4 who works three  jobs with four kids and they have to run to McDonald’s because they  want those Happy Meals; I want to change the Happy Meal to a life meal.

Lifestyle choices are like adjusting to vision loss; it’s personal.

you do what you feel the most comfortable doing  and you work from that position. Everybody’s an individual about it. There’s no one magic thing for one person. There’s a lot of great things out there and I  am discovering those things to help  me accomplish doing other things. I’m very open to learning.

TR [In Conversation]:
What types of things are you discovering?

I have a phone I could talk to and it  speaks and dials  and talks to me.

The technology now is catching up. I believe like Netflix has where they actually have  a program that is designed so when you’re watching a program it describes everything so you get the full affect.
I’m discovering it one at a time but I don’t know the name of everything I just go wow that exists , that’s a good idea, that’s a really good idea.

TR [In Conversation with Dre]:
that’s Audio Description.


TR [In Conversation with Dre]:
Just for full disclosure, I’m blind myself.

Oh, ok!

TR [In Conversation with Dre]:
The experience is unique and different for everyone. So I’m trying to gauge what is your experience and how other people can relate and learn… whatever that is because that’s what experience is all about. There for everyone.

Well with me I understood simply when it was starting to happen  I said don’t panic.
I’ve become a person that reaches for solutions. And rather than falling into , oh my god I can’t believe this is happening  and go into depressed mode I said no  this may happen, this is what you may need to prepare to start doing. And I started preparing myself for it. I said you know what I said you know what  this may be, but darkness  won’t last forever. I said  you have God behind you  and God has already told you  this isn’t forever, this is to slow you down  this is just to make sure  that you can listen and hear what I have to say. And I started listening and hearing what he had to say  more than I started talking.

I embrace it. And in embracing it he has put me on a path  to help other people and to reach out and express myself not  just about the type 2 Diabetes not only about the blindness but  about when something goes on and there’s a struggle sometimes embrace your struggle to find your solutions.
It doesn’t mean it’s a guarantee for a cure or a guarantee to a perfect answer  but what it does is says you know what  I’m more than what’s going on with me.
I can also work with this.

If you have a good relationship with your family, friends and  other people and reaching out. I learn every day from so many different people  and I pay attention and I  try to pass on some of the knowledge of what I get  so that people can help themselves

The Fight Back is a give and take; a collaboration.

TR [In conversation with Dre]:
So what is The Fight Back, what does that look like? in the world. Is that like a  web portal

It’s going to be a website… we’re building as we speak because I didn’t want to just put something out there … like it’s easy to say we’re going to do that  and throw it out there and  people just think that’s it, that’s it… no so I said , first thing we’ll do  is I’ll go out and start talking , build different interviews up and now it’s starting to take different testimonials  from different people  and it’s attached to other situations  also , you know I’m working with  a friend of mind from a company called Rally Wing and they had family who had diabetes and their discussing stuff with me.

Another gentlemen by the name of Marvin Mizell who is Jam Master Jay’s brother  has a company called JMJ Foundation  for the youth. He has Sickle Cell and Diabetes so connecting with his thing. there’s a bunch of people that I have connected with  and I said you know what maybe I should be that focal point to bring people together. and see if we can actually work, not just to a cure and better treatments ,but to better understanding  and better conversations

So going out now and talking to different people and listening to what their saying  how they fought back
that’s what this fight back is all about.

Bring those stories to light.
Bring this action to light!
And be a little educational, be a little entertaining, be informative, and be supportive
That’s where the strength is!

TR [In conversation with Dre]:
Is the reality show still a thing?

We went out there we talked to different places, everyone was excited, yeh we want to do this, yes Dre we love it. And as more we kept talking, my idea disappeared and it became this other thing. It was like that’s not what we’re talking about .

I have a little experience in creating television programs.
We’re creating our own show. Creating our own messaging, making our own venue because the technology allows us to do this.

How do we take all these different instances and work together. Instead of just having a website, a page, you know do this  and get this. No, I want you to come on, I want you to see these different testimonials to be able to reach out to like you and to say hey I want you to talk to him because your experience can help some other people. Your conversation can help someone else who may be feeling down and go hey wow it isn’t as bad as I thought or it could be really bad so we’re going to try and reach out. Go see people shake hands, kiss babies, do whatever needs to be done. We’re going to run the ultimate campaign! The campaign of life of wellness and happiness. That’s a campaign where you just can’t be elected. there is no electoral college for that!

TR [In conversation with Dre]:

I’m sorry! I’m so sorry!

TR [In conversation with Dre]:
Don’t apologize for that. That’s real!

My things are based on love
People want to sit back and talk about this guys this and this one’s that. Hate, hate!
I said, you know what man, hate carries weight! With love you can soar!
And I got nothing but love man!

When the site is completed, you will be able to learn more at Doctor Dre

There’s a quote I like to refer to that’s attributed to a Greek philosopher or motivational speaker depending on who you believe…
It’s not what happens to you, but how you react to it that matters.

Doctor Dre,  reacting with love
to make information more easily available , bring
health choices to the forefront,  create a place where
others can share their experiences, all while
remaining faithful and encouraging;

In this fight, there can be only one winner; nothing but love!

This is Thomas Reid, for Gatewave Radio;

Inserted from DD:
“Bring those stories to light. Bring this action to light! And be a little educational, be a little entertaining.”

Audio for independent living!

[Audio: Dre drop a load on em’, from “You down with MTV”]


Podcasts allow for longer exploration and intimate conversation.
In a way, I hinted to this in the Gatewave story edit.

There’s power in conversation between two people
exchanging knowledge about their shared experience.

Some things you really only feel comfortable talking about with someone who you know gets what you’re saying.
You don’t want to have to explain yourself.

The conversation could just be two people kicking around philosophical ideas.

often it’s , just talking about real practical sharing of information.
Like when Dre mentioned posting to Facebook:

One of my friends growing up he said I saw you on Facebook and I’m going how is he doing this? Isn’t he blind? And he’s like, he’s actually posting and doing this and that… I said, I have somebody doing that. The way I post is my son posts for me. He’ll put stuff up  that I need written or said or whatever we want to put on my Facebook page. So that’s fine. That’s how that works.

TR [In conversation with Dre]
You could do it yourself too you know right?

Please, I’m listening

TR [In conversation with Dre]
Ok so you have the iPhone and the app on the iPhone is , I mean it’s all accessible. It sounds like you mainly probably use Siri, the dictation?

Yes, I use Siri right now.

TR [In conversation with Dre]
So  you don’t use the keyboard at all, you never tried to use the keyboard?

No!  (Surprised!)

TR [In conversation with Dre]
Oh, you can absolutely. Do you have Voice Over turned on?

You know what,  I’ve been trying to go to the Apple store to sit there and have them explain everything that can be done , I do not probably have it turned on, no.

TR [In conversation with Dre]

Sometimes we assume that people are supposed to just know things…
Those who do, need to be more open and welcoming in order to make that information available.
At the same time remain open to receiving new ideas.

Three words that tell me Dre is going to be fine
no matter what the end result of his vision loss turns out to be;

“Please, I’m listening!”

Please, I’m listening!

Dre doesn’t know me.
He’s been around the world and has access to people and privilege.

Having reached out to people like Stevie Wonder.

Now, who am I to challenge something that Stevie says. I only say that because what Stevie means to me.

Adjusting to blindness though, is different from living with blindness all your life.

For example, I grew up only seeing out of one eye.
The challenge to me was different compared to someone who loses an eye
later in life and never had monocular vision.
I could share some information about things they should know,
but prior to blindness I wouldn’t have been able to relate to that loss.
That adjustment is the challenge. Growing up only knowing one thing is a different experience.

Meanwhile, I too could probably benefit from some of their discoveries.

Dre knows there’s so much more to learn and is open to that information for himself and others.

Our conversation though, went deeper.

Like when I wanted  Dre to know about an aspect of blindness
that is experienced and the ramifications that are felt by too many.

TR [In conversation with Dre]

We started the conversation with a little bit about  blindness and with the things people do and do not know, right. There’s all this technology, there’s so much you know going on and one of the big big issues  when it comes down to the blind community . The image of people who are blind in terms of how that’s perceived in society,  there’s a lot of negative connotation when it comes to blindness that I realized that I had and as I met other people  you know, blind at birth or blind afterward, there’s an incredible resource out here that is not being taken advantage of. So within the blindness community and within the disability community, unemployment is 70 percent.

Yes, it is!

So many people don’t even understand that. Even in just in terms of how people can do things and the abilities that are there it’s just not known. In part of what you’re doing you may not have or may have thought about it, you are going to be a representative  of that to some degree. Whether or not you like it or not, right, people are going to look at you and they now look you as he’s blind and therefore when they think of other people who are blind they will think of you. And so the things that you’re doing are going to send a positive message  not only to people who are sighted but also to other people who are blind who may have  bought into that.

I just ask you to ponder that, you know!

I hear what you’re saying. It’s very funny that you say those things. Funny not laughing wise, funny as it’s very interesting how we do that … I now the same way  I was put upon  and told do you believe you can get your sight back, I’m going to ask you those questions to… do you believe you can get your sight back?

Now, I had lots of people say they were hoping and praying I get my sight back, but
No one outside my immediate family has ever directly asked me that question.

I know a lot of people might think that question shouldn’t have been asked.
But it was part of our conversation so in no way was I offended or upset by that. This was a conversation between two people experiencing vision loss.

This isn’t some random person asking me on the street.

My answer and Dre’s response forced me to think about how I look at that question.

My answer… next time on Reid My Mind Radio!


Just playing!

TR [In conversation with Dre]
Nah! My situation is totally different.

Mmm hmmm!

TR [In conversation with Dre]
Number 1 my cancer is a genetic cancer. I was born  with a cancer called Retinoblastoma. I lost my left eye  as a child. The tumor overtook that eye.  I had at that time, this was in 68, well 69, radiat5ion. Thirty five years later that radiation caused another huge tumor  to grow in the back of my right eye and so I had no real choice because it was right on the optic nerve and so when it’s on that optic nerve, the next step is the brain So my choice was do I take that out  and live? Now mind you my wife was pregnant with our second child, we just moved from the Bronx to the Poconos in a house… so my right eye was removed.  There’s no coming back from that.

Ahh, yes.  You can’t get an eye transplant?

No, there’s no such thing as an eye transplant. The amount of nerves  that are in the eye  is unlike any place else. But that’s ok!  I didn’t have a choice and that’s ok, you know because I  my family, I have my little girls you know and so  my thing was like you  stepping back from the industry, my thing was I’m raising my girls you know. I’m a keep working and do whatever I can and be a  you know a help to other people  be a you know, productive member of society  and all of that and I can do that when I’m blind. I like to say the only thing I can’t do is drive.

Well that tells me a funny story that  I thrown out to Stevie Wonder about doing a movie I used to tell when I was doing interviews and I still do but know people go like you’re really going to do that and I said yeah I’m going to do that. I was being interviewed and they said Dre you gonna do any more movies and I said yeah I’m going to do movies. I said right now I’m in conversation with Stevie Wonder , we’re doing this movie called Just Drive the Damn Bus! And everyone fell out. They said for real. I said yeah and in that movie you’re going to see  Stevie and I drive the bus.

Uh huh!

They were like, how are you going to do that?  I said that’s the point, you gotta see the movie. And I was joking about it right?And then I started working with  one of my partners and we started  coming up with a concept of the movie and  it was like, this could work. I said, it’s a movie! I said, but do you understand what would happen and he said  but how are you guys going to act in the movie? I said  the same way other people act  in a movie, you hit your mark, you say your lines you keep moving, that’s not an issue.


Stop making an issue of a non-issue.  And then I told, a matter of fact I told  I was talking to LL Cool j and I told him about it and he  fell out laughing. He said you’re serious. I said I’m dead serious, your gonna do that.
I don’t walk around with dark glasses on. My son says Dad put the glasses on  stop walking around… I said no people need to see my eyes the way they are. So what, it doesn’t matter.
I say this to say this to you. We may not know the technology that will exist to help you gain sight when you need it, but I believe in my heart with what you just told me and what just trinkled through me is you and I our meeting is not coincidental  and I can’t promise this, but I just have this feeling  in my gut you’re gonna get your sight, because you need to see your kids.

TR [In conversation with Dre]

I know you’re saying, how can that be done? I don’t know. I don’t have that answer yet. That answer may come next year, that may come in five years, we don’t know. When I put those goals in front of me  it gives me something to shoot for. Reality or not, that’s why I say  that thing about the movie,  just drive the damn bus… Bill said, you are nuts, you’re outta you… I said no I’m not. I said because we can do anything if you put your mind to it.  Remember seeing Star Trek the Next generation

TR [In conversation with Dre]

yeah, yeah, with Jody…

LaVar Burton! He put on a visor and  he could see. But when he went to do the movies  LaVar didn’t want that visor on his face they pulled it off and put something on his eyes…we don’t know what’s coming!

TR [In conversation with Dre]

Now if I could get in a DeLorean and go sixty years forward and grab it and pull it back  and say here put this on it works

TR [In conversation with Dre]

I don’t know!

TR [In conversation with Dre]

Right, right!

But we’re back to what the Fight Back is all about, choices!

TR [In conversation with Dre]

What you just said  helped me because the obstacles in front of me are not  necessarily just based on sight. And that goes into a really deeper conversation, but when you said  you get something from  that, there’s no way  I would want to take that away from you!

I’m not a dream killer and never want to be that!

Believing in the ability to regain sight doesn’t mean  not believing in the abilities of people who are blind.

Often though, that seems to be the message we hear from different organization in their fight against blindness.

The NY Times a few weeks ago ran an article with the headline;
The Worst that Could Happen? Going Blind, People Say
The article itself discussed some of the fears, and ways to prevent or slow
certain types of eye diseases, but
it did nothing to help ease that fear for
those who are facing  that in their present or future.

That’s not cool!

They only looked at vision loss from the medical perspective  ,
prevent the disease and there’s no longer an issue!

But there’s the society side!

That fear is what leads to people not wanting to in anyway associate themselves with blindness.
That fear and miseducation leads to that 70 percent unemployment.

But Dre’s not saying that.
His approach appears to be inclusive, holistic as in a full picture.

He’s straight up keeping his options open
I can support that!

Let’s do some shout outs!

First of all Doctor Dre,
thank you brother for the conversation,
for the courage and willingness to bring options to the people!
I hope to hear more about the Fight Back in the near future.

These next two shout outs come with a recommendation…
Audio: The Cipher Show theme[]

If you are a hip hop fan and like to hear background stories
from artists, journalists and those on the business side…
you need to check the cipher show.
Host Shawn Satero was kind enough to help make this interview happen.

It’s one of my favorite podcasts.

At least once every episode you will hear a person being interviewed say, Wow, you really did your research!”

you’ll hear it at least once an episode which lets you know it’s a quality show.

Shout out to Shawn and the Cipher show!

Shout out to Bill Adler who helped coordinate this with Dre.
BTW, Sir, please continue producing that Christmas  Mix Tape,
my daughter and I look forward to that Cipher episode each year.
No comments folks, I like the different cultural Christmas music and I ain’t ashamed to say it!

If your listening right now on Sound Cloud hit that follow button.
You can subscribe  via any podcatcher on your phone or tablet,
Apple, Android it doesn’t matter we’re outchere!

We’re on Stitcher and Tune In.

Got feedback?
Hit me at … Remember Reid, is R E I D.

Thanks for listening!


Hide the transcript


Reid My Mind Radio: Meet Young Ant – First Female Rapper… who’s Blind

Wednesday, February 1st, 2017

Now way back in the days when hip-hop began
With Coke LaRock,Kool Herc, and then Bam
B-boys ran to the latest jam…
– “South Bronx”, KRS One, Boogie Down Productions

I’m Old enough to remember when people not of my generation thought rap music was a fad. They never thought it would become what it is today… a worldwide billion dollar, trend setting industry. I’m sure they never thought how this art form could end up being a bridge for a 19 year old young lady adjusting to her vision loss.

Picture of Antynette, "Young Ant" in graduation cap &gown! Split image with left side featuring Young Ant sporting a t-shirt reading "No Sight" followed by a image of an Eye with a slash running through it and beneath "No Fear". The right side image is of Young Ant with the reverse side of t-shirt reading "#Team Ant".

Young Ant, is spittin’ lyrics about her own experience adjusting to blindness. And I have a feeling that’s just the beginning… Come meet the young lady and rapper! Team Ant!!!

Hit Play below and act like you know!


Subscribe & Follow



Show the transcript

What’s good everybody, back this week with another episode of Reid My Mind Radio and I’m very excited to bring you this latest piece produced for Gatewave .

You may think the title says it all, but there’s more…

Take a listen and I’ll be back with some thoughts.
[“Ladies First”, Queen Latifah]
[Reid My Mind Radio Musical Intro]

Young Ant in the building!

Young Ant in the building!

Uh Oh!

So the way I look at this; Antynette is the person, Young Ant is the rapper!

[Laugh!] Yeah, that’s right!

Alright, so first who is Antynette?

Antynette is a young lady who has been through a lot in a little bit over a year and half and is trying to find her through it with adjusting and coping and in different techniques that I’m learning and trying to find different avenues of expressing how I’m feeling.

[Intro to “Count your Blessings” by Young Ant]

I lost my sight about 13 years ago. And so…


Yeh so one of the things that I like to hear from people adjusting to blindness is that they don’t first start with who they are with the fact that they are blind. You said you are a young lady!
Now, tell me who’s Young Ant?

Well Young Ant is a motivational rapper!


Maybe that’s not what you expected to hear from an upcoming rapper.

Or perhaps your image of what it means to be blind
makes it difficult to understand how this young lady
who lost her sight only a little over a year ago can talk about counting her blessings.

Well, we’re about to challenge your perception today of both
what it means to be blind and what it means to be a rap artist.

Antynette Walker, 19 years old, lost her sight in the middle of her senior year in high school.

Antynette was born prematurely and she had eye surgery done on her eyes at the age of 1 to correct her vision. They told me that her eyes will be just perfectly fine; in which they was over the years.

This is Marsell Walker, Antoinette’s mother.

At 11 years old Antynette began losing her vision.
Living in Atlanta at the time Marsell began searching for a reason for her daughter’s vision loss.

We started taking her to different doctors, getting different tests run and no one could tell us a reason why this was happening to her eye. They just kept prescribing different glasses for her eyes and after the years went on we just started coping with her losing vision in her left eye at the age of 11.

In 2015 Antoinette began experiencing complications in her right eye.
Still seeking that diagnosis, the family moved to Minneapolis where she was first being treated at the University of Minnesota.


He really didn’t see any dramatic changes within her vision from when she started seeing him. And she was going in complaining about the blurriness and spottiness and these were the same symptoms and things that she was going through at the age of 11 when she lost her vision in her left eye.

He somewhat tried to make it feel like she was hallucinating and it was all in her head and she knew off hand that it wasn’t so she asked me to get a referral to a newer doctor which is at the Mayo Clinic in Rochester.

Seen by Ophthalmologist’s, Neurologist and other specialists at the Mayo Clinic, doctors had a very different opinion from the original doctor at the University of Minnesota.

That’s when they did notice her vision was changing dramatically. And he couldn’t even figure out why that previous doctor would tell us he seen no changes.

Despite all of the tests that came back negative and the eventual diagnosis of Optic Neuropathy

She woke up not being able to see anything and that point he asked for us to do Steroids with Antynette for about a week… it didn’t work!

That day she woke up blind, was Christmas 2015!

TReid in conversation with Marsell:
I mean, you’re her mom, and you’re watching your daughter lose her sight.


What was that like for you?

It was really, really stressful. I have always been that parent who where if something is wrong with your kids you find a way of fixing it.
Your kids feed off of your energy, so I had to keep being positive. I’ll go in my room I’ll cry, I won’t let her know I was crying. I’ll come back out and as if nothing happened, but you know I didn’t know what to do. I was just numb!

This was her senior year in high school.
Antoinette should have been thinking about the prom, her future.
Now she had to return to school after Christmas break, to a whole new way of life.

TReid in conversation with Young Ant:
What was that first day of school like for you?

Well, it was hard. Everything was much louder, it was just harder to navigate through crowds and different hallways. It was so much anxiety the first day going back because it was just new way of life, new environment, everything was just all brand new.

TReid in conversation with Young Ant:
What was the reaction of your classmates?

Everyone was shocked. Everyone was surprised . People more so didn’t believe it because they were just like last time I saw you you were able to see now you’re blind. More people were stand offish kind of and some people were supportive because some people knew what I was going through and knew that it was gonna happen and because we were that close and we talked about it frequently. But some were rude. I think that was mainly because they didn’t know how to take it and they didn’t know what was a proper reaction.

TReid in conversation with Young Ant:
That’s a mature response from you in terms of how you responded to those people who were being , you know, negative.

There’s going to be some people that you know, they don’t know any better or their parents didn’t teach them any better so there gonna you know make fun or say things that are inappropriate, but you gotta just learn to ignore it. Some people are for you, some people are against you. Not everyone is gonna be on your side.

[Song: “Team Ant”, by Young Ant]

On the same side; like on a team!

Team Ant! That’s the official name of Young Ant’s crew, her support system her family.
working with her throughout this new journey.

Team Ant consist of her Dad,Aldo…

He’s focusing on making her greater. He’s there hands on. It’s her message, but he knows a lot about rap so he has a big input on her delivery.

TReid in conversation with Marsell:
And are you playing the role of manager/marketer? What’s your role?

I am “Momager”

TReid in conversation with Marsell:
, ok! {Laughs}

[Laughs] It’s a new word for me

TReid in conversation with Marsell
I like it!

Hooking up photo shoots and videos hooking up studio time and reaching out to different people to try and get her story out there. And her father is the one that comes and oversee everything and makes sure it sounds right.

The oldest of 4 siblings, setting an example for them is really important to Antynette.
She’s working hard at improving all of her skills. That’s Braille, navigating with her white cane, independent living skills and learning to use a screen reader and computer.

Traditionally, One of the most important aspects of being a rapper is writing your own rhymes.
At least, if you want any true rap Aficionado to take you seriously.

I had to ask…

TReid in conversation with Young Ant:
Are you writing your own rhymes right now?


TReid in conversation with Young Ant:
You’re like yehhhh!


TReid in conversation with Young Ant:
How do you feel about the writing? Does that mean something to you as opposed to having others write your rhymes?

Yeh, Because before I went blind I was a big writer. I wanted to be a novelist. I used to write short stories and poems and different things of that sort. So I feel like you know with me losing my sight it doesn’t mean that have to stop doing what I love doing. Now I have to be more repetitive when I’m writing the stuff so I can remember it.

In any art form, early influences can help develop an artist’s own unique style.

My father is a rapper so I kind of grew up around music and rap music. Growing up around him, listening to him rap. Growing up in Atlanta, Georgia I just grew up listening to it. Artists like Biggie Smalls, Tupac and Run-DMC and you know Snoop Dogg

TReid in conversation with Young Ant:
Very nice!.
See, I made my kids, both of them, they had to learn some early Run-DMC… I’d make them learn the lyrics…


TReid in conversation with Young Ant:
For real! I ain’t joking!

Right, get to the roots!

Based on the artists mentioned I’d say Young Ant has some knowledge of rap music’s pioneers. She likes lyricists, music with a message and showmanship.

I like to call myself a motivational rapper. I’m mainly aiming to inspire, to motivate, to let everyone know that no matter what you’re going through and no matter what happens that doesn’t mean that your life stops just because you’re diagnosed with a certain thing or something traumatic happens in your life. People in society tell you that you can no longer go on. You can be whatever you want to be and you can do whatever you want to do if you set your mind to it. All my music is positive and clean. You know fun, uplifting and motivational.

She’s gearing up for some live performances later this year. Like the South by Southwest festival in Austin Texas and Coast to Coast in Atlanta.

TReid in conversation with Young Ant:
How do you navigate the stage?

Usually, I go on before to get a feel for the stage you know to see how big it is to see what I’m working with. And then you know once I get a feel for how big or small it is , I kind of just you know [exhale!] let loose!

Young Ant is just getting started and open to collaborating with other artists.

I would love to do a song with Stevie Wonder. That’s like the top of my list.

TReid in conversation with Young Ant:
Hold on, you’re a Stevie fan too!


TReid in conversation with Young Ant:
You’ve always been a Stevie fan?
I love Stevie… yeh! Even before…

TReid in conversation with Young Ant:
Now I’m gonna test you. You’re talking to a real Stevie head right now. Tell me what you like. Give me a song.

[Sings Isn’t she lovely, isn’t she wonderful]

TReid in conversation with Young Ant:

I like Superstitious! That’s that’s my jam!

There’s definitely something wonderful about this young lady.
Maybe it’s the inner strength that shines through her words and personality.
The determination that’s helping her adjust to blindness and pursue her goals.
She has the courage to make her way in quite honestly what’s a male and able bodied dominated genre
in the entertainment industry
which by the way, has never been that open to disability.

Young Ant though has a team.

[Song: “Team Ant”, by Young Ant]

A support system that’s lead by the two people who love her most, mom and dad.

[Song: “Count your Blessing” by Young Ant]

That’s an asset whether adjusting to blindness or starting a music career.

To listen to this track called Count your Blessings go to Sound Cloud and follow her on social media.

Let them know Momager!

Young Ant, first blind female rapper. You can find her on YouTube as Young ANT. On Twitter , Sound Cloud, Instagram as YoungAnt1121. Her Facebook page is Team Ant.

I’m Thomas Reid…

[Audio YA: I kind of just you know, let loose!]

For Gatewave Radio, Audio for Independent Living!

[Sound of Record rewind]
This is why I like producing this podcast.

As a father of two incredibly gifted, intelligent and beautiful young ladies I was drawn to this story.

I understand the value of speaking with someone who has walked in your shoes.

Graduating high school is the time when you look to a future hopefully full of opportunity
. For Young Ant and anyone faced with the loss of their sight or any disability for that matter,
it’s natural to think that the opportunity has faded away.

All it takes though, is a glimpse of chance or hope to peek through.

That could be a small success.

Young Ant is only one year into her adjustment process.
Honestly, to some extent I think that process is lifelong. Not like a life sentence, but rather like a commitment.
A commitment to living the best life possible;
seeing happiness not as a destination but a daily process.

Now, you know what’s not a daily process?
subscribing to this podcast, Reid My Mind Radio…
For real though! All it takes is a couple of steps;
go to your podcast app, search for Reid My Mind Radio… that’s R E I D
and then hit subscribe.

Then become a fan!
I ‘m talking about young ant, but feel free to become a fan of the podcast too!

Seriously, I hope you all heard the character, strength and maturity like I did and become a fan of both the young lady, Antynette and of course, the rapper Young Ant!

[Song Roxanne Shante: “Got the party people screaming… “Go on Girl.!”… from “Have a Nice Day”}
Reid My Mind Outro Music



Hide the transcript