Posts Tagged ‘Adjusting’

Charles Curtis Blackwell – Words of Meaning Empowerment & Inspiration

Wednesday, October 21st, 2020

A side Head shot of Charles Curtis Blackwell in a dark space leaning forward in thought with his pointer finger placed on his lip and the sunlight cascading across his face

Photo by Liz Moughon


Visual Artist, Writer and Poet Charles Curtis Blackwell, the subject of this year’s #Superfest2020 feature film God Given Talent shares stories of his life. We hear pivotal moments of influence including Jazz and school busing. Loss, Forgiveness, Purpose and of course Art!

His experience and approach to adjusting to vision loss is a must hear for anyone new to blindness. As evident in the episode, I too was inspired and hope this production, may I dare say, is a bit more artistic.

This episode is dedicated to the memory of one of my teachers; Sijo Abu Bakr. May We Remain!

Listen

Resources

Transcript

Show the transcript

TR:

Audio: City soundscape merges into a nightclub atmosphere.

TR as on stage Host:

Greetings & Salutations brothers and sisters!
My name is Thomas Reid.

— Applause

Thank you, thank you very much!

Allow me to welcome you all to the Reid My Mind Lounge.!

— Jazz Music Begins

That’s right; today’s episode deserves an appropriate atmosphere.
I want you to sit back and really feel this one.
This was inspired. And y’all know I don’t use that word lightly.

Mr. Charles Curtis Blackwell is an artist. A visual artist, a writer, poet and definitely a story teller.

Where I come from, what he has to share, we call science or gems. Either way, he’s dropping it!
My hope is that you pick it up!

It all drops after the intro!

Audio: Reid My Mind Radio Theme

TR:

Influence!

Music – Rahsan Roland Kirk, Volunteer Slavery

CC:
Have you ever heard of Rahsaan Roland Kirk?

Jazz horn player. He was more than that. Originally from Columbus but he wound up in Newark. He was totally Blind. He played three saxophones at the same time. He had them hooked together. He influenced a lot of Jazz musicians with this thing called circular breathing. In one nostril and out of the other. Their still blowing. You think they’re holding the note.

I caught him live before I lost my eyesight.

Kind of influenced me years later. I says ok well just do whatever.

Somebody said hey man how you do that? I’ve done some crazy stuff with the poetry. I just said hey man; I’m kind of like Rahsaan Roland Kirk you just got to get crazy on stage. Just go ahead you know get wild, you know (laughs)!

Music Begins… Jazz Track 9 from Charles Curtis Blackwell In Color

I liked Jazz at an early age. They crammed classical down our throats going from 6th grade to 7th grade. It was Mozart, Bach, Beethoven you know, so I got turned off. I tried to flunk the test. Wound up in music anyway. (Laughs) next semester I transferred back to art.

I was doing art before 5th grade. I remember the instructor she pointed out this drawing that I did. It had the whole class’s attention.

maybe because art it just came easy. I didn’t know I was taking it for granted.

Audio: Historic Radio News Broadcast

“the Supreme Court ruled in 1954, that pupils cannot be segregated by law on the basis of race.”

CC:

I was in a busing program. They bused us to this high school from this neighborhood in Sacramento. I was in 9th grade; I think I was around 13 or 14. They didn’t want us there.

The first day we got there, there were white folks with pickets. The end of the school year it turned into a racial riot; 14 people arrested one in the hospital and another one that was supposed to be in the hospital, he was Black, they arrested him instead, they didn’t send him to the hospital. One of the most scary days of my life. I was small man and I was scared man, these cats could fight.

My folks continued to make me go to the school. I didn’t really want to go. And it seemed like it wasn’t a day past some racial remark, I don’t know if you want me to mention those names on here you know. It really messed with me.

There was one incident. They had a policy; you could put the gloves on and have a boxing thing. Oh cool!

This guy kept messing with me. Shoving me into lockers, kicking me, but he always had his buddies with him. His name was Souza. He was a distance runner, He was up for championship.

This went from year to the next year. So I’m from the neighborhood, right. This year we had the same PE class. I told the coach I want to put the gloves on. The first coach his name was McFadden, he was ok. He spoke to me and said ok, we’ll call him in. I trusted McFadden. The other coach, he was a new coach. I didn’t know about him because he wasn’t there the day of the riot. The day of the riot the teachers, they weren’t breaking up the fights, they were yelling you damn Niggers! (Pause) These were teachers. You couldn’t trust nobody.

Coach called him.

Man I’m busy tucking my shirt in, tightening up my tennis shoes, I’m getting ready you know.

They say yegh Charles says that you’ve been harassing him, you did this and you did that.

No, no, no I didn’t!

The new coach he was sitting there, he jumped up and said you a such and such liar I saw you do it. Man, I was knocked off my feet.

They turned to Souza and said what is you ready? He says no, no I don’t want to…

I’m getting teed off. He don’t want to box with me. They say well do you want to apologize to Blackwell (laughs…). I ain’t want no apology. (Laughs…)
The dude apologized, the coach says ok Charles can you accept his apology. I did but I didn’t really want to. (Laughs….)

Audio: Sound of white school busing protests.

All this racism stuff and busing program stuff, I had poor self-esteem.

I was like a D student. My idea was like finish high school, get a job as a janitor and you know bang, that was it. I didn’t have no big aspirations.

I got into reading.

Audio: School bell ringing

We had to write like a newspaper article. And the way I learned how to write was from reading the San Francisco Chronicle. They had real good writers at that time. And so that’s how I kind of picked up on expository writing from reading the newspaper. I wrote an article for this class and you didn’t write this. Someone else wrote it. You know, this is not your style of writing, you didn’t write this. I got a low grade. I said eh whatever. Sometimes they give you a low grade realizing oh wow, what they’re really telling you is you got raw brute talent.

Music transition…

I used to sell the paper it was called the Sacramento Observer, it was a Black newspaper. William Lee, he was over the paper. So I called the paper and spoke to him and I said what if I write a story about these Black students graduating from this busing program. It wasn’t me it was the class ahead of me. They were graduating. He said yeh, write it and get it to us we’ll run it. I said ok. Paper comes out I open up the paper looked inside, looked on the back of the paper I said wow that’s funny they said they were going to run the article. So I called the newspaper, Secretary answered. I said yeh, this is Charles Blackwell, she says yes! I wrote this article they said they were going to run the article in the newspaper, she says yes. I said well I looked inside the paper and I didn’t see then I looked on the back of the paper and I didn’t see it. She said well did you look on the front page? (Laughing) I was knocked off my feet man! I never would have thought they would put the article on the front page. That was poor self-esteem. man I was just flabbergasted, I sold extra copies. I would go door to door selling the paper man, you know. (Laughs…)

Music Transition

I got to college my whole world started changing.

I was an art major. I was trained to do sketches. Funny, I was talking to you earlier about Rahsaan Roland Kirk. So I had a copy of Down Beat Magazine. We had to turn in a final drawing. Kind of like a shadow of the person you know it’s like super imposed, almost like shading. I did it with my 20/20 eyesight just looking at it and doing it. And the instructor said you used the Opaque projector that’s not right. I said no I didn’t use no Opaque projector; I just did it from a magazine. He downgraded me but he was telling me that’s how good my eyesight was.

TR:

Loss!

Audio: Sound of ocean waves continues with van driving…

CC:

I was staying in Santa Cruz for a little while. I was with some friends so we get in the van and go to the ocean. Stop at one place and we’d go further up. The waves were coming in. So they get out and they go down.

I’m in the van, I’m reading this book. A little while later I get out. I go down but I’m going the wrong way. I’m thinking this is the path. I made the mistake of allowing the terrain to half way carry me. There was this big rock, I was going fast and I said well I’ll just go jump and go over the rock. I was assuming it would be a slant. There was a cliff. I didn’t know.

— brief silence

Temporarily paralyzed on one side, concussion, internal bleeding. Broke one small bone. It was my finger. I don’t know how that happened.

Ah man, I just knew I was going to die.

By the grace of God here I am.

I was in the hospital for like a week, seven eight days, something like that. I don’t know man, next thing I know I’m up and going and I returned to my place in Santa Cruz. A few days later I headed back to Sacramento trying to regroup.

I got back in college a few months later.

Finished that semester. Christmas time man, we partied like crazy. I went to every party there was and the next thing you know I met this girl; I was in love man I wanted to get married.

Music – Cymbal crescendo followed by a cymbal crash and flute begins…
Track 6 from Charles Curtis Blackwell, In Color
The unspeakable artist
Yearning, in and out of the room
If we sit in a dark room too long
We will meet the who
In the form of a tormented scream
Examining who we really are

Cymbal crash

CC:

I’m driving, I left college and I’m headed home and I remember I’m at this intersection and the horns are honking behind me and I had to turn. I barely made it.

Audio continues from Track 6 from Charles Curtis Blackwell, In Color

Cymbal crash

And has fearless as we may be to ourselves
Those ghostly cries are all of us laid out in the dark

CC:

They’re doing all these tests, morning to night.
They call it an Edema – it’s where I hit and the fluid went to a state of rest and when it returned back into motion it left my macular pale. Macular Degeneration.

Audio continues from Track 6 from Charles Curtis Blackwell, In Color

But if we stay in a dark room for so long we could see all the colors of the rainbow
Which reside on the other side where tombstones, grave sights pilferage and sorrows dwell.

CC:

They told me there’s nothing we can do. it all comes down to God. That was the end man, I just gave up.

I just dropped out of college. I didn’t go sign out or nothing.

Audio from Track 6 from Charles Curtis Blackwell, In Color.

Magenta unwrapped, indigo unveiled and cobalt for all those chance given up when the soul gave chase to something of an eastern religion.
For residing in a dark room for so long can cause one to worship the form instead of the creator.

CC:

It was like what do we do to carry us through and it’s kind of bad but I was out drinking hook up with some friends get a beer. Somebody else would have some hard liquor. I was doing that too drinking wine.

Audio from Track 6 from Charles Curtis Blackwell, In Color.

Many hales for the blood we fear running through our veins
Flowing upward like the Nile to our heads
In the dark room so sacred yet so cold the skin can’t breathe it

This tranquil rite of passage
Oh woman can you hear me in absence of gender
Nothing but flesh crawling in the dark
Solitary confinement

CC:

The worse thing I think I did, I didn’t know how to be… (Phone connection failing…)
Can you hear me any better? 1, 2, 3… that’s better?
Ok, I’ll turn around then …

I was raised southern family, my folks from Mississippi.

The idea, if you’re going to be with this person you going to be married, you gotta be able to provide. You got to be this man. The male role.

It ain’t about the male role, the macho, the strong…
So that was a big mistake I made trying to push her away, put her at a distance. I was 20. We get taught certain things but we realize that’s not going to help you in terms of dealing with life.

All I remember man was being in the bedroom and crying day in and day out. I would never tell her that’s what I was doing, which was really bad

When life hits in such a manner what do you got to hold onto. Faith and trying to trust God and trying to believe.

Audio Cymbal crash

Might be somebody there that could help you build (hope) and (encourage you to live).
(Each emphasized with echo audio effect…)

Audio: Subway train on tracks

CC:

Wound up at some friends. They were having a pool party at some apartment complex.

Audio: Train comes to screeching stop.
Audio from Track1 Charles Curtis Blackwell, In Color

Pre De Term Mind! Mind! Pre Det term Mind!

CC:

I wound up sleeping at one person’s house, another house.

Had a fight with my Dad, he snatched the phone. I was a psychological mess.

This friend, his name was Ken, we had met on a bus. And we were talking, we discovered we were both born on the same day. He came and visited me while I lost my eye sight. He was from the Santa Cruz area.

It was getting to the point where I really got depressed. I mean real, real serious depressed. And then I just kind of disappeared. Nobody knew where I was. I wound up at the bus station. I went on to Santa Cruz and caught up with ken. I started a fight with the landlord. I was going crazy! I didn’t want to pay no rent. (Laughs) Really wasn’t going to make no sense.

I wound up sleeping on the beach. I got a cheap room at a hotel. Something like six dollars a night. I think I only had a hundred.

I would hang out at this book store and listen to people talking.

I was standing on the corner, people came by and said hey brother, do you know anything about Jesus. I says yeh, God and Jesus I know, what I need right now is food, shelter and clothing. And they said brother we got food, shelter and clothing. I said what? It was a Christian Commune. So I went and stayed with them.

They had me on the laundry detail. They had a second hand store. I was with this other guy, the only other brother and we would go and pickup refrigerators and stoves and other stuff. When I look back on it things moved kind of fast. January I’m losing my sight and going bizerk in the head, the crying and everything. Around August I had disappeared . The early part of September I wound up with this commune. From September til about January I had returned back to my folks in Sacramento.

It got me back into the swing of things not feeling like I’m going to be an invalid for the rest of my life.

Audio from Track1 Charles Curtis Blackwell, In Color

Y’all gonna hear from me… someday!

An older Smokey voice off mic repeats

Y’all gonna hear from me… someday!

But the Blue line escapes all the mental anguish, mental breakdown of knots tied up inside.
(fades out)

Music – Curtis Mayfield Back to the World

CC:

Curtis Mayfield had this song called Back to the World.

I leave the commune and now I’m back in the world. The world is not the same as the commune. People there are kind of helpful and everything. Now I’m back in the world and I didn’t know what to do.

Even though I got back into the swing of things I hadn’t really adjusted all the way.

Signed up with Voc Rehab. They ask if you need a cane. I use a cane now but at first I didn’t. There main thing was trying to make a person productive in terms of society, getting a job, being trained for some kind of work situation. Then they had another part of going to college.

It was the social worker. She was with the welfare department at that time. She was this white lady and her isms started coming out. I made the mistake of when I left town, disappeared, I was 21, I got a beer. I called her of all people, I said I’m not going to be here, I’m gone. Where you going? Well I’m busy drinking a beer. I was dismantled anyway. Some people they don’t understand that because there all emphasis is like get you ready to be productive in society. Well how you going to be productive when inside, you’re a wreck. They don’t comprehend it. She’s saying uh, last time I spoke to Charles he was busy getting drunk on the phone and he was going to do this, this and this. And I was just sitting there , I know it was God. I just sat there and let her run off at the mouth. Huh!

“Words that have meaning” – CC with Ambient effect

Then the guy from Voc Rehab, well you really don’t seem like you know what you want to do in life. And I said oh, ok. I was just agreeing because I was in a different place spiritually. A little time past and I called him and said hey I think I want to go to college.

If you can get me two C’s we’ll fund you to go to college. So I did summer school and got two B’s but I was trying to get two A’s.

They always shifted me, changed, got a different guy for Voc. Rehab. This guy was totally Blind, ok? Man, I go in to meet with the dude and we’re talking. I’m saying oh, this is going to be ok because he’s totally Blind, he can relate to my situation, being partly Blind you know. We’re sitting there talking for over an hour. He’s interviewing me and at the very end of the interview he says ok, boy!

Man he did it in such a manner, I was just shocked.

“Words can help you be empowered!” – CC with Ambient effect

My Dad wasn’t the best communicator. I got back home, I was angry. My Dad was waxing the car. My Dad had a Cadillac (laughs). Picked up a rag, what the heck wax the car, maybe that will help me. I told him what had happened and my Dad, like I said, he wasn’t a real good communicator but this was one time he said something.

He said, he’s testing you.

He’s testing me?

Yeh, he’s testing you.

And that’s all my Dad said.

I milked that counselor like crazy. every time they had something to offer I grabbed it. So we had to bring our grades in, well it looks like you got some A’s here and you got a B and an A and another A . He says well, what kind of help do you need? Well, we got cassette recorders and do you need more reader service, I says oh yeh, oh yeh!

I get out of college and I could have changed counselors but I’m like no I’m gonna stay with this dude because I know what’ he’s like. He was testing me and I’m reading him.

I get out, well congratulations Charles. You can’t go to graduate school, we don’t have no money. We got a training program here.

You could have a cafeteria in a federal building.

I went to Montana, I went to Seattle, Los Angeles trying to get a job. Couldn’t get a job. The reality hit me, being partly Blind, ain’t no opportunities. I signed up!

When almost two weeks or a month we’re sitting at this table. This white dude is sitting next to me. He’s much older than me. He was losing his eyesight. This other guy’s across from me, he was Mexican, fresh out of Soledad prison, but he was in the program too. The guy in charge of the program it was his cafeteria, the guy comes up and says Charlie my boy, you talk back to my employees you can’t remain here you understand that. And I said yes! Just automatically. The white dude sitting next to me said that was F’d up. He was in his 40’s. You know something was wrong. The Mexican fresh out of Soledad said Charles are you ok?

I come back to the world, I’m being all well love one another be real open, be kind to people. This is the racism of America. Even though I may change the world hadn’t changed. I had to deal with it some kind of way. That’s the horror of this country. This is it, this is what’s on the table.

The next day man, I scared the slop out of that man. I threatened that man like crazy man. (laugh) They called a meeting with another state official. The man had me, the guy I had threatened.

Alright Charles, he says he’s scared to be around you. Well just what the F do you want.

“Words that can help you be inspired” – CC with Ambient effect

I came up during the 60’s man. I was involved in the Black student Union, we got 9 out of 10 demands for Black Studies and here this joker gonna do something racist like this.

You know how we learn from people. My mind went back to this brother, his name was Amyl Palmer, he was head of the Black Student Union. The brother could deal, he was way older than me. I leaned back and said what you got to offer?

You want to go to graduate school? I said that sounds workable. (Laughs) So I went to grad school. (Laughs)

CC:

A buddy of mine wrote a poem. I like real conversations.

Real conversations can really help you in life. What is it that helped me, you know, having real conversations like words that have meaning. Words can help you be empowered. Words that can help you be inspired.

Music Begins…

CC:
You gotta deal with the race and then you got to deal with people’s ignorance toward disability even with Black folks.

You think they’re going to relate to your blindness.

You might know, Berkley is where the center for independent living started. They were filing law suits way back in the 70’s. You could be in Berkley it could be a totally different story as opposed to being in Oakland. You get to Oakland, you get people like; Hey, is you blind? (Laughs…) I’ll be waiting for a bus. Hey I’m trying to catch the bus … it’s right there don’t you see the sign? And I’m carrying a cane now. You try to say ok, let it teach me something, try to just grin and bear it, but if you’re trying to hurry up and get somewhere. Let’s say there’s two people at the bus stop. I ask somebody and they say something ridiculous like it’s right there just look at it. I just turn to the next person and say, excuse me can you tell me which bus… and they tell me. And then the other person goes, oh hey I didn’t know you blind. I just walk off and leave them alone. I do them cold but it’s like what can I say to the person?

Every once in a while a person says oh excuse me I’m very sorry. Ok, cool.

I walked in a business before, with a cane, I’m trying to figure out why are they paying so much attention to me but it’s not a friendly attention it’s almost like do they think I’m going to steal something.

One of the worse things I got … I got off a bus one day and the dude said yeh, man, you got that game down, carrying that cane pretending to be Blind. I had some cuss words, I didn’t say them out loud cause it was night time and I ain’t ready for no fight. It’s kind of what they call the Pre Antebellum South the days before Helen Keller. A lot of this society is still like that.

I’m a church going brother. I remember I was at this church a little over a year ago, this friend named Joyce and Leo, hey Charles we’re going to this other church, come on and go, I said ok. I’m sitting there participating in the worship and then the minister calls someone here need to accept Jesus. And this lady is sitting behind me, she ain’t said nothing to me, she hasn’t given me a friendly greeting or nothing. She poked me on my shoulder , you can go up now and accept Jesus. (Laughs) I’ve been sitting there participating in the service and it’s like, no communication she just automatically assumed oh you Blind you need Jesus.

Sometimes there are store front churches and then there’s a good ol’ store front church That kind of backward condemning. maybe the reason you lost your eyesight is because you did something bad. You sinned. God is punishing you. If a person is just losing their eyesight and a person comes along and tells him something like that, oh God man, they’re condemned to hell. It could take them years to get out of that.

I remember this lady, it was Kay Stewart she setup a program for the Blind students at the college. And she was very hip. White lady from Texas. A very, very nice lady. A matter of fact she knew the racist counselor at Voc. Rehab. She wasn’t too fond of him. She was always whatever I can do to help you here at the college, knowing you weren’t going to get all the help you needed from Voc. Rehab. So she would do these cultural programs. When I finished college she got in touch with me and she asked me to go on this outing. She wanted me to talk to this guy, a white guy, he was just losing his eyesight. He was condemning himself, you know, God this and God that. I said hey man that’s not it God is not a condemning God. You got to find out about the love of God.

I had a real good family doctor and he would talk to you. Not like today, they’re running you through like a number. He said you lost your eyesight, take your defect and use it as your asset. Man, that was a strong piece of wisdom. And I passed that on to this other guy.

You find Blind people man, they know the Bible, backwards forward, sideways and down. But do they know how to get out of that condemning. Do they know how to get to that place of being and inspiration to someone else and being inspired and being (forgiving.)
(Emphasized with a slight echo effect)

CC:

I used to listen to Martin Luther King and James Farmer, Fannie Lou Hamer you know.

I’m in college, when I could see good, I’m sitting in front of the library one day reading an article and a dude came up and sat down. It was Souza. And he apologized to me. And I’m looking at him like what. I don’t know whether to listen to him or grab him. He said that he was dating this girl that was Asian and she confronted him. He realized it was his father that instilled all this racism in him. And I was listening and I said wow man!

It was like a Martin Luther King story man.

This time it was real.

Audio Bridge

One of the greatest lessons I learned man, the minister told me, he said, “Never be ashamed to apologize. Be it 8 to 80.”

The lady that I pushed away, it was fourteen years later.

I called her I said, I just want to apologize. She said no you don’t owe me no apology. I says well hey everything in my life is falling apart, I was in a writing project and it collapsed, nothing’s going right and I’m trying to get my life right with God. So I just want to tell you that I’m very sorry I did what I did to you.

I heard her crying on the other end of the phone and I realized I did the right thing.

I realized that I hurt her and I didn’t know I did.

When we apologize it’s like something spiritual takes place on the inside. When we forgive something happens on the inside in a good way.

TR:

Purpose!

CC:

I went to the college with my cousin Anita and I just went over to hang out. So I ran into the friend she used to be a neighbor, her name was Pat. She was much older than me. “Hey Charles, I heard you lost your eyesight.” I says yeh. She was you know very courteous, she knew me. “Come go to class with me.” So I went to a class with her and it was African American Literature. Eugene Redmond was the instructor. He was saying some stuff that caught my attention. I still remember he was presenting this book called “Black Suicides”. I was listening because I was at that point a year before because I had lost my eyesight. By the grace of God it didn’t happen. Black people they say we don’t do this, but here’s a book called “Black Suicides.”. We don’t do it when in fact we do. I says oh wow, this cat is saying something.

“Graduate school!” – CC with Ambient effect

One of the best things I did is sign up , it was an independent study with Eugene Redmond. He was also the editor of the Henry Dumas collection. I don’t know if you heard of Henry Dumas, but Henry Dumas did this poem I still remember;

America!

If an eagle be imprisoned on the back of a coin and that coin is tossed into the sky

That coin may dwindle, that coin may spindle, but that eagle will never fly.

Henry Dumas was shot and killed by a New York subway cop.

Redmond became the editor of the collection. Redmond did a book called Drum Voices. It’s the history and development of African American poets going all the way back to slavery and coming on up to Hakim Muributu, Sonia Sanchez, Amir Baraka. He was always an encouragement and I got an A.

Years later I was having dinner with this brother he was a political person in Sacramento, Grandin Johnson, trying to push for affirmative action years ago. So he had brought Eugene Redmond to the college for a part of Black Studies. I told him yeh, Redmond, I took a class with him and he gave me an A. He looked at me and he said; (pause) Redmond, didn’t give out A’s. If you got an A man you must have been producing some serious work. I kind of hung my head and said well he liked my work. He said I’m telling you he didn’t give out A’s. You had to work to get an A. He really dropped a bomb on me.

I kept in touch with Eugene Redmond, he’s published me about six different times in Drum Voices Review and some other publications too.

Music begins… Slow piano riff moves into a cool Hip Hop groove.

I realized ok, God gave me this talent and with this talent he’s kind of helped raise me up from that bed of poor self-esteem. Lift me up and encouraged me and inspired me. And I have to take care of this talent. I have to nourish it, be kind to it, treat it right and try to use it.

I’m at this place now it’s called Youth Spirit Artworks in Berkley, working with homeless young adults in high school. I try to use stuff like ok, let’s write about the last time someone said to you I love you. The last time you were angry and you felt like you wanted to kill somebody. How you see the situation where the guy is beaten to death on the street and the cop put his knee on his neck. Let’s write about that. Let’s write about mercy. What does it mean for you to be merciful to someone else . And I’m trying to use writing to confront.

I really embrace the Black Live Matter because we fought for the demands for Black Studies apparently somebody was listening.

Audio: Prison door slams and continues with ambient sound of a prison.

I used to do writer’s workshops in prisons and I’d go in and try to be an inspiration and encouragement to those people locked up behind bars with this talent that God gave me.

I did a presentation at Folsom prison and this inmate he wasn’t sitting with his back to the wall. You had to pay attention to that. Other people sitting at the table. It might have been ten people. This one guy when it was over turned out he was a point man in Vietnam and he wiped out a whole family drunk. If it hadn’t been for Vietnam he wouldn’t have did what he did.

He says hey can I ask you a question? I said yeh, go right ahead. He says when you lost your eyesight did you lose your will to live?

Man, I was shocked by that question. I really didn’t want to answer his question, but you deal with inmates they’ll be real with you so it’s best to be real with them. It’ll protect you. I said yeh, I lost my will to live. He says hey brother, he took my hand and said I’m glad you made that decision to live because you’ve really been an inspiration here today. Man, that dude gave me a PhD.(Laughs) He stamped it on my forehead

I got to be like I said, an inspiration, encouragement. Be it if I’m at a prison, at a school, wherever it is try to take this talent, try to inspire, encourage someone to live.

Music ends

TR:

Art!

I started off being trained to do a sketch of you in a minute and a half. Hand and eye.

I can’t do that anymore. I can’t set something in front of me draw it make it look like realism. That’s out!

I had to take a different approach. When I got back into art I was a Sacramento County CETA Artist. CETA program that’s the Comprehensive Employment and Training Act, Jimmy Carter was president.

I was doing stuff that I knew from college because I had been out of art for about seven or eight years.

I did these large carrots, seven foot carrots (laughs). These were paintings. The middle of the carrot had another piece of canvas sewed on it was blue, called “This Carrot Got the Blues.”

I did these large pieces, I took styro foam balls and I stuffed them with Latex paint and then I painted a jet seal over that. It was Braille dots on canvas, it said “Do Not Touch”. And then another one said (laughing) “Read this with left hand only”

I was doing stuff that was workable for my blindness.

Music – Jazz drummer sol – off beat groove Track 9, Charles Curtis Blackwell, In Color

Allen Gordon he was the head of the Art department at one time at Cal State Sacramento. He introduced me to the NCA a group of Black artists from around the country. National Conference of Artists, Margaret Burrows out of Chicago, but even before that time he says oh you’re doing some African art. I says I ain’t took no classes. He said, it’s in you; line, shape, color, rhythm movement. I says oh wow! I’ve been doing more and more of that.

I cover the paper with oil pastels and then I come over it with water down acrylics doing line drawings of African masks on paper. or maybe drummers or jazz musicians on paper. Then I started doing African sculptures playing saxophones or playing a flute, playing a bass. African dancers. Using my blindness and doing abstracts. It might look like a Jazz drummer, a horn player, a dancer with all this abstract stuff you know,

line shape, rhythm color, movement. (Delayed effect on the groove of the beat.)

I’m using my blindness to create the art piece and get to my own originality.

Music ends!

I use my blindness in terms of writing. It’s not what you say, it’s what you don’t say.

Sometime I’m producing art, well I’ll stop and I’ll do some writing. So in a sense the art is influencing the writing.

I produce some writing, well let me set this down and I’ll produce some art. So the writing is influencing the art. Inspiring on the inside- give me some encouragement and inspiration.

I get tired of that well, I’ll go out here and catch a performance, theater play some jazz. I’ll go to an art gallery and see what they’re doing or go catch some poets. I might even sit there and don’t say nothing . I don’t even want to read I just want to you know listen to other people. Right now it ain’t happening. Truthfully I I’ve gotten depressed. Five months I’ve only finished one piece. I started about nine others and finished one. That ain’t saying nothing. I’m usually producing anywhere from one to three pieces a week. So that tells you this thing has hit me in such a manner and all I could do is relate to other people when they’re saying the same thing, feeling uninspired. It’s hard it’s really hard to deal with and I wish I knew some answers. Even I try to get to the spiritual place man I’m blocked on that too. I don’t know maybe you , hey you got some ideas tell me. (Laughs)

The sad part about it is I don’t have a computer and I use visual tech that enlarges print. And I spend a lot of time on that writing. In some ways I wish I had the hook up with the computer but I think I’d be lost.

I don’t take pride in it but I’m computer ignorant and I know I’m ignorant when you get one of these little five or six year olds in here and they know how to hit all the buttons and get everything just right. (Laughs) I know I’m out of the loop.

“Whatever you can do to drum up hope, do it!” – CC with Ambient effect

Music begins.

I never would have dreamed I’d be doing what I’m doing.
I’ve been published, locally nationally and internationally. I’ve had my artwork shown. Some people have my artwork in foreign countries. I’ve had theater plays produced.

Like my Grandmother used to say she said the Lord works in mysterious ways and has wonders to be performed. Maybe that would be my story. I look back on it I’m baffled.

I remember a lady was gonna date me, oh he ain’t got no job, he’s not doing this, he can’t do this. Somebody else said,

Music pauses

apparently you don’t know the brother. ..

My name is Charles Curtis Blackwell!

TR:

Well, it’s a privilege and honor to say Mr. Charles Curtis Blackwell,
It’s official! you Sir are a part of the Reid My Mind Radio family.

Music begins.

While Mr. Blackwell does not have a computer, he does have a Facebook page at Charles Curtis Blackwell. I’ll link to it on this episodes blog post.

I don’t know about you but I’ve been inspired. He said, his art influences his writing and his writing influences his art. That resonates with me. Inspiration from within.

If you’ve been inspired I hope you will let that influence you…

Subscribe wherever you get podcasts!
Transcripts & more are over at ReidMyMind.com. And yes, that’s R to the E I D
(Audio: “D and that’s me in the place to be” Slick Rick)

Like my last name.

Audio: Reid My Mind Outro

CC:
“Laughs, I was knocked off my feet man!”

TR:

Peace!

Hide the transcript

A Peak at Finding A New Normal

Wednesday, May 20th, 2020

Today, everyone is talking about a new normal. Those adjusting to blindness or disability in general, have a lot of experience in this way of thinking.

Thomas & Marlett seated under a green tree with a blue sky and scattered white clouds hovering above.
As disability impacts the entire family unit or team, I invited my wife Marlett on the podcast to discuss the topic. The result? Advice on managing those inevitable uncomfortable public encounters, accepting change and even how Tick Tock can help during this pandemic. Well, sort of…

Our discussion is actually a sneak peak into an upcoming episode with Dr. Mona Minkara and her production team from Planes Trains & Canes.

Take a listen to this episode and then check out the documentary series before you meet them all here on the podcast.

Listen

Transcript

Show the transcript

Audio: Sounds of microphones being touched…

Marlett:

I am not touching the microphone or the stand.

[TR in conversation with Marlett:]

Do you see me touching the microphone?

(Long Pause)

And I’m a professional! (Laughs…)

Marlett:

You heard my feet.

[TR in conversation with Marlett:]

What?

Marlett:

you heard my feet, I did this…

[TR in conversation with Marlett:]

Oh, don’t do that.

Marlett:

Ok!

TR:

What’s up Reid My Mind Radio Family! My name is Thomas Reid. I’m the producer and host of this podcast, bringing you compelling people impacted by all degrees of vision loss from low vision to total blindness.

Every now and then, when inspired, I bring you stories from my own experience as a man adjusting to becoming Blind as an adult.

If you are newly impacted by blindness and you found the podcast, first of all welcome. Secondly, I think you’re going to like it here.

Today’s episode does include my wife Marlett. Ever since the last episode titled Celebrating 15 years of being Blind, I received some feedback from people who enjoyed hearing from her. I made the mistake of letting her know that. As you’ll see here today, it may have went to her head.
Despite that, I asked her on because, well, I’m a great husband.

That’s my story and I’m sticking to it!

Audio: Reid My Mind Radio Intro

TR:

Let me start this off with a warm virtual hug for you all. It feels like every day the idea of normal is pushed further and further. What we would have expected and accepted seems to be a continuous slide in the wrong direction. Specifically,
putting kids in cages, the death of 80 thousand people in two months or racists shooting an innocent young Black man.

Our responsibility, is not to accept it. not to simply act like it is normal.

On this podcast, I don’t often go into politics or current affairs except when I feel it relates to the process of adjusting to blindness. These connections are from my perspective. It’s called Reid My Mind Radio after all.

So when is a good time to accept a new normal?

Right now, just about everyone on this planet is dealing with a new normal. Although we’re all experiencing this pandemic differently, we’re doing it together.

There’s a similar feeling around acquiring a Disability. Now, I’m referring to all of those impacted; parent, child or spouse for example.

Similar feelings but there are some real differences between what is being felt during the pandemic and the experience of disability. For one, the entire world isn’t analyzing it on every news channel. There aren’t easy ways to gain multiple perspectives. It’s more likely something the family goes through alone. Hopefully it’s a real opportunity for that family to become a unit a real team.

I’m on this journey with you so I get it. And so does my wife, Marlett. I invited her on the show to get that team perspective from someone impacted by blindness.

[TR in conversation with Marlett:]

What I noticed from the last time is that if I ask you to introduce yourself you have a big production necessary for the intro and I don’t think I’m going to do that this time. Laughing…

Marlett:

Ok!

Audio: Intro from Celebrating …

Audio: “The Baddest Chick”, Trina

[TR in conversation with Marlett:]

Can you please just state your name for the record?

Marlett:
Marlett Reid

[TR in conversation with Marlett:]

And who are you?

Marlett:
I’m the baddest chick!

Audio: As the music gets louder …

Marlett:
I’m your wife!

The music continues.

Now back in the present.

[TR in conversation with Marlett:]

Laughing… You want to introduce yourself anyway?

Marlett:

My name is Marlett Reid, currently writing a book so it’s going to be M.E. Reid.

[TR in conversation with Marlett:]
Laughing… you’re here to promote your book? Laughing…

Marlett:

Laughing…

TR:

Ok, when my wife does publish her book, I’m not only buying a bunch for the RMM Radio family, but she’s definitely coming on the podcast. And that I tell you right now, will be the best episode I ever produce!

It’s not always the case, but Marlett and I shared some perspective around this idea of finding the new normal.

[TR in conversation with Marlett:]

When your life is uprooted because that’s what everybody kind of is really saying…

Marlett:

Right, right.

[TR in conversation with Marlett:]

And then now you have to start to see what is going to be the new normal. And I’m saying that we’ve …

Marlett:

Yeh, we’ve been there.

[TR in conversation with Marlett:]

The difference to me is that while we were doing that everyone was still living their normal. It felt like we were the only ones doing that because it was just impacting us and our family. Do you see any parallels between what we’ve been through and what’s going on right now?

Marlett:

Nothing new to us. Trying to figure out what to do coming up with new ideas of entertaining the family. Picnics in the living room or family night movies.

Social distancing, that’s funny to me because no one really came around We understood about social distancing people were doing that to us for quite some time. Distancing themselves from us.

[TR in conversation with Marlett:]

Damn!

Marlett:

Well it’s true.

[TR in conversation with Marlett:]

Mm Hmm… (In agreement)

Marlett:

They were distancing themselves. If we went to a party they did social distancing there too.

[TR in conversation with Marlett:]

Laughs…

Marlett:

We would be in a corner or we’d be in one side and they’d be on another side. They just didn’t have a mask.

TR:

At least not one that was visible.

Audio: Plane taking off…

At the time of this conversation, I was in the process of producing what will be the next episode of the podcast featuring Mona Minkara and her Planes Trains and Canes production team.

The documentary series which can be found on YouTube follows Mona who is Blind, on a journey to 5 different cities around the world where she travels alone using public transportation.

I’m encouraging you to check out the series which I’ll link to on ReidMyMind.com.

I was curious to see what if any parallels Marlett would draw after an explanation of the documentary’s concept.

That is the resulting encounters a Blind woman receives as she’s recorded on video while traveling through an airport or subway.

Marlett’s perspective wasn’t what I expected, but it’s definitely understandable how she got there.
Marlett:

It made me think of African Americans, really. When they try to navigate or go through life, how people treat them.

[TR in conversation with Marlett:]
Them? Are you Black?

Marlett:

How people treat us!

[TR in conversation with Marlett:]

Laughs…

Marlett:

Walking into a bank or walking into a store or walking in a neighborhood.

Audio: YouTube…

“No Justice No Peace!” (Repeats while clips from a news reporter plays…)

“Arrests in the shooting death of a jogger in a Brunswick neighborhood for killing Amaud Aubry. The charges; murder and aggravated assault”

TR:

Perspective matters!

This conversation was on the heels of this latest senseless racist murder of Amaud Aubrey.

(Pause)

When it comes to adjusting to blindness, Marlett and my family are O.G’s in this game!

Marlett:

We have our thing down. We already know what’s going on like I know people talk to me instead of you and I know how I handle that.

[TR in conversation with Marlett:]

Alright so give me an example of that.

Marlett:

If we go, anywhere you have to do something, they’ll talk to me.

[TR in conversation with Marlett:]

If somebody asked you for an example of that, is there any specific one that you would give. I’m curious to see if it’s the same one.

Marlett:

We went to go vote.

[TR in conversation with Marlett:]

Oh my gosh!

Marlett:

The woman said you can bring him over here or something, you can correct me if I’m wrong but something to that affect. You spoke up. You said whatever it is that you wanted to say.

[TR in conversation with Marlett:]

I don’t know if I said something or whatever? I probably said something…

Like oh you could talk to me. That’s probably what I said. So it wasn’t until after I got out …

Marlett:

And she said, I shouldn’t have done that. I liked her apology and it was to you. I don’t think she ever did that again.
[TR in conversation with Marlett:]

You’re right so we’re good. Like we’re real good. Like I say hello she says hello and it’s cool. It’s all good. That was a nice interaction because it came out where she got it like immediately.
Do you remember the first time. You might have not noticed it even happened the first time.

Marlett:

Maybe like the first time it happened I didn’t really think about it. Maybe about the third or fourth time I probably thought about it more. I think you and I spoke about it. You knew it was taking place and so you would just speak up real quick but then I think after we talked about it and I was like well I’m not going to say anything , you can just take your time in answering not just jump in there.

TR:

Y’all hear my wife’s way of trying to tell me to chill. That’s cute right! I know it’s because she doesn’t want me to be upset, but ignoring it doesn’t make it go away.

I know I shouldn’t take things personally, but having someone talk around me while I’m standing right there? Remember, I said there are things we should never accept as normal, this is one of them. My recommendation?

Marlett:

You would speak on it or be vocal about how it made you feel, but not like it caused tension between us.

I never answer for you. I won’t answer for you. I will walk away or I’ll turn and look at you for you to respond or I will look at my phone.

TR:

Marlett is so great with these situations now that Every time this happens , I almost feel sorry for the perpetrator. I can feel their confusion. If I am feeling let’s just say a bit feisty, I’ll let them hold onto their confusion and embarrassment for a little while. You brought it out, you hold it! It works, they get it.

It’s a cool play that Marlett and I execute well together.

Marlett:
We still have hiccups.

In the beginning it was a lot of hiccups there because you were used to taking the bags and just going. Boom!

What works best for us when we travel is if we discuss it beforehand. When we freestyle we generally tend to have some hiccups.

TR:

Now first of all did you notice how Marlett made it sound like I was the cause – as in, you were used to taking the bags and going.

Marlett:

Boom!

TR:

She’s right! But truthfully we were both used to that.

She’s also right in the need for us to all be on the same page. Communicate the plan before trying to execute.

On this team, we each have to play our role at any given time.

Our roster includes two more players – our girls.

Marlett:

When they were little that was a little harder. Usually they walked in front of us Riana would hold her sister’s hand and they would walk in front of us. Sometimes behind us and I would glance back occasionally just to make sure they were still with us.

[TR in conversation with Marlett:]

I remember that was a thing because I would always ask you where the girls? (_Laughs…)

Marlett:

Yeh!

TR:

They’re 16 & 22 now. Amazingly, Marlett is still hovering around 32.

Traveling with them today?

Marlett:

The girls leave us!

They’ll make sure that we don’t have anything to hold us up. All we have to do is to get where we have to go. They’re more intoned to what works to get us to where we need to go. Like when we went on the cruise, they took the bags.

[TR in conversation with Marlett:]

I had a bag.

Marlett:

You wouldn’t give up your bag.

[TR in conversation with Marlett:]

I know, yeh, I’m not giving up my bag.

Marlett:

You’re not going to give up your bag that easily. You still got that machismo.

[TR in conversation with Marlett:]

Oh, wait we’re gonna go there? You think that’s machismo? That’s alright, I don’t have to go into that because you’re wrong and I don’t want them to be all like oh my goodness Marlett we don’t like her anymore.

Marlett:

Some weird laugh that basically translates to whatever! Ok!

TR:

Ok, despite my lovely wife’s incorrect assessment that I have even an ounce of machismo, her lessons here can be helpful no matter who makes up your team.

For example, producing Planes Trains and Canes requires a real team effort. You can hear all about that in the next episode of this podcast.

Before that episode drops on June 2, go check out Planes Trains & Canes. It’s not necessarily a pre-requisite but we do dance around some specific scenes from the documentary series.

I’m also curious to see if we see similar parallels between the show and adjusting to blindness.

Marlett:

I feel like if you’re traveling with someone who is Blind , you two should have a conversation. What makes each one comfortable?

In the beginning when this all happened I was I think in my feelings. I don’t think I really thought about you or me but more so how everybody else was looking at us. Once I got over that part, which I’m not fully over it, but for the most part I am; we work better!

TR:

Adjusting to blindness is not really a place you arrive but rather an ongoing journey. You either decide to take it or find yourself well not really going anywhere.

[TR in conversation with Marlett:]

What would you say goes into being able to accept a new normal?

Marlett:

Understanding you can’t change anything so you got to make it work for you. You know the pandemic came around, there’s nothing we can do about it, there’s no cure. The only thing at this point is you got to stay away from people so that is going to be our new normal. Handle it! Things always change that’s life. Nothing ever stays the same, you got to change with the times.

[TR in conversation with Marlett:]

… That’s real talk!

It doesn’t sound like you’re very compassionate about it . Like I thought you might be a little more compassionate.

Marlett:

I am being compassionate. I’m telling you the truth. I’m trying to get you to get over it quickly. Pull off the Band-Aid. It is what it is. I could hold your hand and we can go through it but…

[TR in conversation with Marlett:]

See I don’t understand why you can do that but when I do that you’re like (mockingly) Tommy! (Laughs) ]

I’m just going to put this out there because I try to tell everyone I’m the compassionate one in the family.

Marlett:

Exhales… Uh Lord!

[TR in conversation with Marlett:]

And I think I just got proof of that. It’s definitely evidence.

Marlett:

I realized one thing about this pandemic, this whole thing with the Tick Tock.

[TR in conversation with Marlett:]

Oh God! Laughing…

Marlett:

But wait a minute. This whole thing with the Tick Tock!
[TR in conversation with Marlett:]

Hold up, hold up, hold up! I don’t know if everybody knows Tick Tock.

Marlett:

Well Tick Tock is this app where the older generations are dominating this app. I think a lot of people know about Tick Tock. But the great thing about Tick Tock is that…

Audio: Marlett continues with volume lowered….

TR:

Reid My Mind Radio Family, I need your help. I think my wife has an addiction to Tick Tock. If you don’t know, it’s a pretty popular app now that was pre-pandemic considered for the kids. It enables quick short videos often consisting of lip singing or short dance routines.

I’m going to spare you as she tries to rationalize her obsession with claims of this app building bridges.

I’m not saying it’s not true, because honestly, I don’t really use the app. the majority of the content that I’ve come across is predominantly visual and audio description is not an option.

Even the killer content I made with my youngest Raven, a highly sophisticated and intricate dance routine, had no way of including description.

[TR in conversation with Marlett:]

Yo whose the Tick Tock Killa?

Marlett:

That would be you Thomas. (Said very sarcastically!)

[TR in conversation with Marlett:]

That’s me, the Tick Tock Killa!

I think you only like Tick Tock because you like to say Tick Tock. I think that’s why this app is actually doing so well because people like to say Tick Tock.

Marlett:

Tick, Tock!

[TR in conversation with Marlett:]

I should have named my podcast Tick Tock and I probably have a whole lot more people listening and subscribing, you know what I’m saying?

Marlett:

I don’t know maybe you’re right. I do like Tick Tock. Yeah!

[TR in conversation with Marlett:]

I ask people to subscribe…

Marlett:

It’s the way you ask people… (she fades her own voice out)

It’s the way you do it! You have to ask…

[TR in conversation with Marlett:]

Wait up, first of all how do I do it? That it’s the way I do it.

Marlett:

I don’t know how you do it, but it’s not the right way. I’m just saying it’s probably not the right way.

[TR in conversation with Marlett:]

How can you say it’s the wrong way. Oh my God! (Laughing hysterically)

Marlett:

So I’m going to ask everybody to subscribe. And leave me a little heart emoji or a smile or say hi Marlett. (Spelled out)

[TR in conversation with Marlett:]

Where are they going to do that?

Marlett:

At ReidMyMind.
my content

[TR in conversation with Marlett:]

Dot com you’re talking about? You want them to subscribe and leave a comment on the episode page?

Marlett:

Yeh!… Yeh!

[TR in conversation with Marlett:]

Now I’m gonna tell you right now…

Marlett:

Yeh! I would like everybody to say hi. I would love it. I feel that energy it would just make me so happy. Just, just tell me hi!

[TR in conversation with Marlett:]

Long pause…

Do you know how many times I ask people to subscribe, to reach out?

Marlett:

And Subscribe…

[TR in conversation with Marlett:]

I give the phone number. I get some people, but you think you’re going to get…. (Laughs…)

Marlett:

What’s so funny?

My energy and their energy. They’re feeling my energy and they’re going to go and subscribe and they’re going to say hi Marlett.

[TR in conversation with Marlett:]

So what’s the matter with my energy?

Marlett:

Hi Marlett. (Name spelled out)

[TR in conversation with Marlett:]

What’s the matter with my energy?

Marlett:

And I’m going to say hi right back. And I’m going to send emoji’s and everything. Yeh!

[TR in conversation with Marlett:]

Ok!

Marlett:

Cause I have an awesome energy.

[TR in conversation with Marlett:]

Ok, I hope you’re right

Marlett:

I’m right!

[TR in conversation with Marlett:]

Exhale….

Marlett:

I’m right!

[TR in conversation with Marlett:]

On the real, I’d be jealous. I’m not going to lie. I’d be a little jealous. I’m not going to hate though. I don’t think they’re going to do it anyway.

Marlett:

Laughing… Alright!

[TR in conversation with Marlett:]

Cause I know you’re only doing this because you lost the Tick Tock battle, because you never did it because I won the Tick Tock battle.

Marlett:

Exhales….

I didn’t do the Tick Tock because I didn’t want to hurt your feelings.

[TR in conversation with Marlett:]

I killed that joint! If I have an audio described Tick Tock, Bee, I’m killing the game! Put some audio description on my Tick Tock, and then everybody be like Yo! Tick Tock Killa, T.Reid… Tick tock Killa!

Marlett:

You know, speaking of audio description…

[TR in conversation with Marlett:]

Alright, thank you babe!

you’re trying to take over the podcast now I can tell.

Marlett:

I’m not done.

[TR in conversation with Marlett:]

Excuse me!

Marlett:

I’m not done.

[TR in conversation with Marlett:]

Laughing… what? Laughing…

Marlett:

Why are you trying to kick me off . You know what it is right?

[TR in conversation with Marlett:]

What?

Marlett:

He’s jealous. (Long pause)

Because the shows I’m on do so well. Mm hmm. Because I’m on it.

[TR in conversation with Marlett:]

Laughs…

Marlett:

It’s that energy.

[TR in conversation with Marlett:]

Laughing…
The energy that’s going to get people to do what?

Marlett:

They’re going to go and they’re going to subscribe

[TR in conversation with Marlett:]

Umm hmm And how are you going to know they did that?

Marlett:

Because they’re going to leave me a little note and it’s going to say Hi Marlett! (Named spelled out again)

[TR in conversation with Marlett:]

You know you got that spelling thing from me right?

Marlett:

I think you got it from me. Yep!

[TR in conversation with Marlett:]

Laughing…

Marlett:

So make sure you go, Reid My Mind Radio!

[TR in conversation with Marlett:]

Where can they go to subscribe?

Marlett:

Anywhere that has podcasts.

[TR in conversation with Marlett:]

And then what’s the website?

Marlett:

ReidMyMind.com

R to the E I D

(Audio: “D and that’s me in the place to be!” Slick Rick)

Marlett:

Like MY last name!

[TR in conversation with Marlett:]

Laughing… That was good!

Audio: Reid My Mind Radio Outro

Marlett:

Peace

[TR in conversation with Marlett:]

Laughing… There it is. alright, Nice!

You’re trying to get your own podcast. Whatever Bee. I didn’t press record.

Marlett:

That’s not even funny!

Hide the transcript

Live Inspiration Porn – I Got Duped

Wednesday, March 18th, 2020

Podcasting as a passion project takes some real perseverance. There’s always some excuse lurking around the corner just waiting for you to take
hold.

In this episode I’m working through one which has been nagging me for a while. Giving it some real consideration led me to recall a story from my own adjustment experience. A time when I got duped into being a part of a live performance of inspiration porn. Well, sort of. Let’s just say I wasn’t there for the same reasons as those running the event.

Like most episodes, I believe this one can give those new to blindness and disability some things to consider. In fact, like all episodes I don’t think it’s restricted but that’s not really up to me. I’ll leave it right here for whoever wants to partake.

### Listen

Links/Embed Code for “Live Inspiration porn – I Got Duped”: Liberated Syndication – Libsyn

Preview Player / Get Embed Code
CLOSE
main region
Artwork for Live Inspiration porn – I Got Duped
Play Episode
Pause Episode
REIDMYMINDRADIO
Live Inspiration porn – I Got Duped
Seek slider
00:00:00 of 00:16:07
Rewind 30 Seconds
00:00:00
Skip Ahead 30 Seconds
Subscribe to This Show
Download This Episode
Embed This Player
Share This Episode
main region end
Starts At
 
00:00:00
*** NOTE: This embed code has been automatically adjusted to 90px high in order to avoid unnecessary empty space below the player.

Transcript

Show the transcript


TR:

What’s up Reid My Mind Radio Family?

Yo soy Tomaso, Thomas Reid, host and producer of this podcast – Reid My Mind Radio.

Welcome to those of you who are new here.

This podcast introduces you to compelling people impacted by all degrees of blindness and disability.

every now and then, like today’s episode, I share some of my own thoughts and experiences as a man adjusting to becoming Blind as an adult. And yes, I say adjusting, I don’t think I’ll ever really use the ed suffix on adjust. That’s not to mean there’s no progress. It’s just a continuous journey. Once you get to the understanding that it’s not one to be feared or even think negatively about, it gets better. But It’s like life, there’s always going to be change, and vision loss or any disability is now a part of that.

If that’s part of your reality, a family member or friend or maybe people you work with, well you’re definitely in the right place. If you yourself are going through some other sort of life change or you just like podcasts. There’s something here for you too, if you are opened to that.

Everyone is truly welcomed here with the exception of those with real hate in your heart. Energy works in mysterious ways and I don’t want that negativity being passed along to me or any of the family.

So let’s get this poppin!

Audio: Reid My Mind Radio theme

# Intro

Today I’m sharing some thoughts about this podcast. These are not stream of consciousness. No way I wouldn’t do that to you. My mind can be a scary place when I’m trying to figure things out.

Audio: Sound of chaos!

Chances are as I navigate these thoughts they will prove to be applicable to more than this podcast and hopefully useful to others. That’s exactly how I feel about every episode. I focus on those adjusting to blindness , but lots of others can relate and enjoy.

Audio: Typing sounds….

Since I began this podcast and maybe even prior, I have been very specific about saying I don’t see myself as a journalist. I’m an advocate, straight up! If you listen to the podcast, you know there’s a certain message about blindness and disability. My opinion or feelings in most cases are evident. The overall message is one of empowerment. I’m not impartial.

Audio: Possibly use old episodes here

As if journalism is really impartial.

There are times though when I need to make all sorts of journalistic decisions. It could be the way I edit or the specific questions I ask, even the overall feel of the show, the sound design. It’s intentional. My approach is different from your standard so called impartial reporter.

I’m connected to most people who are guests on the podcast. Usually, the connection isn’t personal. Rather it’s through blindness and disability Sometimes it could be race or we have something else in common.

I feel a responsibility to both my guests and listeners.

I want my guests to feel what I hear when they tell me their story. I want them to know I respect them and their experience.

I want listeners to find the multiple ways they relate to my guests. Yes, there’s the disability experience, but maybe they share a similar motivation, desire or goal.

That’s what I want, it doesn’t mean I can always make it happen.

every listener brings their own past, prejudices, preconceptions and experiences to the podcast.

That makes sense, it’s like anything else. Two people hear the same song , see the same film or read the same book and have drastically different interpretations.

Some people see a reflection of their own lives and goals while others never see themselves in a podcast where blindness and disability is so prevalent.

It’s probably not one or the other. I think there are some who have a bit of both. Either way, I can’t control that.

Which leads me to this statement…

“You should always remember, there are people worse off than you.”

Audio:

“No matter how you’re sad and blue, there’s always someone who has it worse than you”, Shaggy

YouTube Videos
* ” If you’re having a bad day, just consider the day ….”

* “Bare in mind, there’s always someone worse off than you”

Song sung by Little Richard at a MS Telathon.

“… As I look around, so many people who cannot walk, not talk nor see, I thank God for the health and strength that I have, for there’s someone worse off than I am.”
TR:

First things first…

I’m pretty sure I said this same thing at some point in my life. it’s a common statement and an accepted way of thinking.

But, what does it really mean?

How can you compare someone’s life and happiness without all the information??

Is this really pity?

As a content producer, I cringe when I hear it now especially in relation to my podcast.

There’s never been a guest on Reid My Mind Radio that’s in need of someone’s pity.

I then question the choices made for that episode

Did I present this person in a way that says they should be pitied?

I don’t think I focus on the illness side of things. I do include or mention mainly because;
Others with the same diagnosis can relate.
It can also serve as a way to normalize illness and disability. They are a part of life and not a mysterious thing that happened to one person.

AudioFx: Ambiance head in skull
Am I creating inspiration porn?

Most of you are probably familiar with that term. It’s the
idea of presenting people with disabilities as inspirational solely or in part on the basis of their disability.

This idea that this person’s story which often you don’t even get, well it should inspire you or just give you that warm fuzzy feeling reminding you that most of the world is so considerate.

Watch how the rest of the high school students cheered on as the coach let the intellectually disabled kid in the game for the last 20 seconds.

News Report Audio:
Crowd cheering.Coach: He comes to ppractice everyday, he shoots with them, he cheers them on…”

TR:

Or…

News Reports:
Reporter 1: A very special student indeed…
Reporter 2: All thanks to the compassion of one of his classmates….
Reporter 3: But the emotion of this night involved a student who cannot take the field, but is universally admired for his determination…
Reporter 4: A special needs student with Williams Syndrome. He’s a fixture on the sidelineduring football games always rooting on the team. But hi fives are one thing senior prom is something different.
Student: She could have picked anybody to go to prom with.. her.

TR:

I just don’t want to put that sort of thing out in the world.

Does it sound like I’m making a big deal out of this? Maybe because I’ve seen inspiration porn live and in full effect. In fact, I unknowingly was recruited to be a part of the performance.

Audio: Dream Harp

Many years ago when I was still very new to blindness, I was asked by a local organization serving those with vision loss, to give a access technology demo during an event.

I took to the technology pretty quickly and they thought I could be helpful sharing that information.

There was no money involved of course, but they’d provide my transportation and I think there was going to be a lunch. Whatever, I was down to help the cause for sure.

I was setup y’all!

Arriving at the center, I was shown to the main room where the event was taking place.

There were three or four individuals with vision loss seated up in the front of the room. The rest of the group was seated around a large conference table.

I was shown to a table in the front of the room off to the side where I setup my laptop.

Shortly after, the host of the event, the director of the center, welcomed the guests and kicked off the agenda.

Each of the men and women seated in the front of the room were asked to share the story of their vision loss.

Here’s how I recall that event;
Audio: Trap Beat!

each individual told their story while the event host accentuated the misery.

Storyteller:
” Before I went blind, I used to take long walks in the park
Now, I can’t see anything, my whole world is dark!”

Host: “Pitch black, the world is dark, too dangerous for you in the park.

TR:

Laughs! I said, that’s how I recall it today, but that’s not exactly what happened. But I do recall the questions and comments from the host were obviously selected to highlight the negative.
She was playing to the fear of the guests seated around the conference table.
these were potential donors.
All who probably already had beliefs about blindness;
“it’s probably the worst thing that could happen to you and if we don’t help these poor people they won’t be able to do anything. They can’t do for themselves.”

I was setup to be a part of a dog and pony show to help fundraise for the organization.

the fact that it was a fundraiser isn’t the problem for me. I would have still agreed to attend.
However, I would not have participated if I was aware of the approach being used to raise that money.

My so called presentation was probably less than 5 minutes. The host asked some specific questions and then made it seem like it was my technology background that enabled me to grasp the tools and less about the technology as a tool for independence.

Then they pulled out the glasses.

Audio: Glasses clinking and sliding down a bar!

No, not drinks. I don’t even think that would have helped. . No, it was the blindness simulation glasses. These are created to help sighted people understand what it supposedly looks like when you have certain diseases like, macular degeneration, RP, glaucoma and others.

At first thought, you may think ok, that’s probably helpful. It helps people understand and therefore empathize? Sympathize?

Well, in this particular case, while the dog and ponies sat up in front and this one off to the side a bit, the sighted donors were led into their temporary world of vision loss.

Reluctantly at first, one after the other each slowly began trying on the glasses.

“Oh my”…. “wow”
“where did you go Jeanie?”

And then the real fun began as they exchanged glasses with one another. Laughing as they realized how little they could actually see. Unable to find things they placed on the conference table. The host joking as she moved their cups of coffee.

Meanwhile, the dogs and ponies sat up front. While the jackasses continued with their disability experiment.

Empathy, I didn’t see that. But a check was written.

I don’t remember how the event finally ended, but I do know that was it for me. I checked out. There may have been some additional conversation but I doubt I had much to say to anyone after bearing witness to that display of ableism. I vowed to never be a part of anything even remotely like that.

I could easily imagine each of the donors around the table going home fulfilled and thinking “I should really count my blessings, because there’s always someone worse off in the world.”

As far as I could tell, I was alone in my review of the event. I believe some of the others continued to participate. I pretty much severed ties and ended up having a sort of reputation, so I was never asked again. perfect!

All of this leads to my final question.

How are we telling our own stories?

I highly doubt any of the people sharing their story were given instructions on how to tell it. Chances are, the director simply knew these individuals would supply what she wanted for the audience.

Some may say the ends justify the means. The center received the money and therefore can do good things for the clientele. I don’t agree. I believe several of those in the room were employers in positions to someday hire a blind person. I doubt they would. But that’s a subject for another day.

What thought do you put into telling your own story?

In most instances, we’re doing the telling of our own story. We don’t have a videographer, podcaster, journalist.

We’re probably not standing in front of an audience equipped with a PowerPoint presentation. We’re simply talking to people. Most often one on one.

Crazy thing, I tell other people’s stories but not my own. I can do it in a presentation, no doubt, but one on one not so much. I feel strange.

Audio: Cameo Strange! moves into “Children’s Story” Instrumental Slick Rick

I should tell my story as if I’m giving a presentation. it’s mine, it’s a good one. It’s worth telling. It can be helpful.

And it’s the only one I have.

And in the event someone hears it and their thought is
“Wow, I’m so grateful because I’m not like Thomas!”

My response, Bruh, you should be so lucky!

I’m not flexing’ or being conceited or anything like that. But this is my life why shouldn’t I be proud of what I do, when I do it and how I do it.

the same decisions I make for my guests and you all the listener, shouldn’t I put that much time and thought into my own story?

If you say yes, then maybe you too should do the same.

I told you this wouldn’t just be related to podcasting. In fact, it’s not just related to disability.

Or is it?

“Here we go!” Slick Rick, Childrens Story

You can find Reid My Mind Radio wherever you get podcasts. And if for some reason that isn’t the case, like teddy said, come on over to my place… ReidMyMind.com. That’s R to the E I D

Slick Rick “D, and that’s me in the place to be”

Like my last name.

Audio: Reid My Mind Radio outro

Peace

Hide the transcript

Adjusting to Vision Loss – A Creative Approach with Victoria Clare

Wednesday, February 19th, 2020

Victoria Clare with sculpture
Living a creative life for Victoria Clare is more than a way to express herself. It serves as a way to help her own adjustment to vision loss

Hear her story from denial and rebellion to acceptance and putting her in a position to support others.

Victoria Clare is a Sculptor, Musician, Entrepreneur… and she’s working on becoming a Scratch DJ! For real though!

Listen

Resources

Transcript

Show the transcript

TR:

What’s up Reid My Mind Radio Family? I missed you all for real!

Happy 2020 to you all!

A bit of a slow start, but you know, you can’t hold a brother back!

So much of what’s going on in the world today makes it more challenging to find that hope and optimism.
Audio: There’s no need to fear…”

Reid My Mind Radio is here!

Let’s get this poppin

Audio: Reid My Mind Theme Music

VC:
“Creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.”

TR:
Getting to know who you really are is a big part of our early lives especially from our teenage years and on through college. For Victoria Clare, an artist specializing in sculpture, vision loss added to the process.

VC:

I just passed my driving test. I never had a lesson at night ever. Not any reason to that its was just my lessons were never booked for that time. When I passed my driving test I jumped in my car very elated wanted to go tell my boyfriend at the time that I passed my test.
Pulled out of my mom and Dad’s driveway and all of a sudden it became very very apparent to me that I really shouldn’t be driving. I just could not see enough to be driving.

TR:

On that ride to her boyfriend’s house, she clipped another vehicle and lost her driver’s side mirror. Fortunately, no one was hurt. It was enough to prompt her to see an Ophthalmologist

VC:

That’s when I found out I was going to go Blind.

TR:
The diagnosis was Retinitis Pigmentosa.

VC:
My particular Retinitis Pigmentosa is one of the recessive types so therefore we have no people in the family that have had it. So I’m literally the start of the chain if you will.
So finding that out as well kind of made me feel like wow what a responsibility. For me to get married and have children later in life would be a big choice for meat some point in my life which I was very aware of. However, I went back to college.

TR:

College in the UK refers to where many students go for two years after completing compulsory schooling at 16 in order to prepare for
exams to get into university. You can also take
vocational courses
at college.
While studying graphic design with plans to move on to University to continue in this field, Victoria just happened to come across a book about sculpture.

VC:

I knew when it was time for me to go to University that graphic design wasn’t for me. Sculpture was going to be my future
It was an amazing course. It only had 28 places in the whole of Europe. I was lucky enough to get one of those places.
I didn’t really consider that perhaps, hold on a second I may not be able to do this, I just carried on.

TR:

For some that may sound like optimism, positive thinking. But others who have been down this road would probably advise differently.

[TR in conversation with VC:]
Did you have contact with anyone else who was experiencing Vision Loss, anyone whose Blind?

VC:

No. No I had no contact with anyone like that.

TR:

Blind mentors can often help provide guidance, resources, and lend an understanding ear when dealing with all the additional loss that more than often accompanies the vision loss.

VC:

I had a lot of people kind of walk out of my life or just feel very awkward around me and didn’t know how to handle it.
My boyfriend I was with at the time, we got engaged, and he kind of was really struggling with the sight loss diagnosis and he actually saw it as too much for him so the relationship broke down.

[TR in conversation with VC:]

His loss! Hmm. We don’t like him.

VC:

Yeh!

TR:
Victoria soon learned that carrying on would require skills that she didn’t have. Living independently in a new town, navigating both in and outdoors.

VC:

I didn’t realize how simple everyday things would become so difficult for me. I had a hard time at Uny for a very short time, I mean literally I wasn’t there for very long before I decided that I can’t do this. It’s too hard. I left.

My lecturers said to me that I was welcome to come back at any time. Which was really really gracious of them considering it was such a prestigious course.

I had a conversation with my parents, they were incredibly supportive. They came and collected me.

TR:

Back at home Victoria says she isolated herself from the world.

VC:

And I started drinking. Initially it was about trying to numb the pain. I just felt like my whole world had shattered into a thousand pieces. I didn’t know how I was going to go forward. I didn’t see a future for myself .
And then something happened.

TR:

To put it simply, Victoria was introduced to possibility. It came in the form of a rehabilitation specialist.
A really lovely lady. She had a work cut out, to be really fair, with me. I was really super rebellious so I didn’t want help from anybody. You know, don’t treat me like a Blind person bla, bla, bla you know a typical kid.
TR:

Soon after meeting, the rehab specialist realized Victoria wasn’t going to use a white cane.

VC:

I just was not going to use one. I wanted to learn every trick in the trade so I could get away without using one.
She started to teach me other things like echo location, which is still really useful to me. trailing, just small things like that, that was getting me by.

TR:

Sometimes it’s the smallest suggestions that have the greatest results.
She was the one that suggested that maybe I should try some sculpture just for therapeutic reasons.
I went out in my Dad’s shed, I got a big old’ block of wood, stole some of his chisels, used his mallet and started creating. It was amazing. I turned my world around because it made me realize alright, I’ve been diagnosed with this sight loss but nobody’s taken away the skills that I’ve always had. They’re still there.

TR

Remember the skills that she began sharpening in University?

VC:

The background and the love was the figurative work so I created a kind of table top size maybe like two feet tall female figure. I called it “Her Spirit”. that was put into a local gallery and sold. I then kind of returned and created another figurative female figure which was also sold. My work has changed a lot over the years but most certainly it was more figurative work back then.
[TR in conversation with VC:]

Did it represent something in your life at that time or what was that all about?

VC:

I would say for me it was more to do with the fact that the course that I had to leave in Uny was a figurative sculpture course. So of course I was kind of making that connection of wanting to keep the figurative sculpture part of me going even though if I had to walk away from the University

[TR in conversation with VC:]

How much of an influence is blindness. The subject of blindness not necessarily your adaptations if there are some but how much does that play into sculpting specifically.

VC:

Now a huge part because I get inspired by it. For example only two years ago that I put on the first sculpture exhibition that was completely in a pitch black gallery. everybody had to use their other senses to discover what the pieces actually were.

TR:

This particular exhibition enabled Victoria to express herself in three different ways.

VC:

It was to share my personal acceptance of my journey with sight loss. It was to also kind of share sight loss with the general public so that they would have an experience and an understanding of what it feels like. And three it was a very strong message to visual arts because they really , really need to up their game when it comes to accessible art in galleries. Most certainly for visually impaired people . When you walk into a gallery how do we navigate and involve ourselves in our environment? By feeling. To be told that you can’t touch a piece of sculpture a piece of art you’re immediately excluded from enjoying it.

TR:

The exhibit, a first of its kind received national media coverage and all of the pieces were sold.
the result opened new opportunities for Victoria including serving as a retina UK Ambassador

VC:

Raising money to create research and pioneer research for Retinal Dystrophies. public speaking started to grow from there really. I get to speak at conferences and various events. I’m speaking at the World 2020 Vision, that’s in Dublin and also chairing a panel.

TR:

The latter is a chance to meet others impacted by vision loss.

VC:

There’s a connection there. It’s something very special.

TR:

A big part of her personal journey is creative expression. Something Victoria believes can be of help to others adjusting to their own vision loss.

VC:

I would recommend anything that will lift somebody’s mood that will connect them to who they are and make them feel that they are enough and give them self-confidence and self-worth. From sculpture to painting, from dance to music and anything in between. I would just say creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.

TR:

Her own creative expression goes beyond sculpture.
There’s music which began around the same time as vision loss. Specifically, she began learning guitar from a friend.

VC:

Probably one of the things that helped me as I rewind going back to those dark days because I would sit when I was alone and if I was feeling down would just play my guitar. Just compose. I did find that a little comfort at the time.

TR:

About 13 years ago now, she discovered piano.

VC:

I used to be working in a school and this piano was sitting in the hall never being used and I’d be the only person working up a tinkle you know. Slowly but surely I started thinking you know what this is great, I love it and I ended up buying that piano off of the school and it’s sitting in my spare room now. (Laughs)

TR:

And you’re recording your music?

VC:

I Literally just come out of the studio.
Audio:
“Know you Matter”, Victoria Clare

TR:

Singing and performing in bands since she was 23 years old, “Know You Matter” is Victoria’s most recent production. It’s a message to all those that have self-doubt and serves as a personal affirmation to remind her that she matters. She hopes it will resonate with others.

Know You Matter is available on ITunes, Apple Music, Spotify and just about wherever you listen to music.

Next up creatively…

[TR in conversation with VC:]

And you’re rapping too?
Laughs!

VC:

Laughs! Working on it. I want to get into a bit of scratching, you know Tom. Laughs…

TR:

She’s serious! She’s a Hip Hop fan.

Dela 1

VC:

I like a lot of Hip Hop, Dance music, but then I like a lot of singer song writer stuff.

[TR in conversation with VC:]

Since you said Hip Hop, who did you like?

VC:

I absolutely love Dela Soul. Yeah they were definitely my favorite.

TR:
The more I think about her art, it makes sense. She takes an existing piece of wood and crafts that into a whole new thing. That’s Hip Hop.

This past Christmas Santa brought her a DJ controller or the modern day DJ turntables so who knows what she’ll create.

I know what you’re thinking, does this woman ever get bored? Well, she has the answer for boredom.

VC:

Board sports! (Laughs…)
[TR in conversation with VC:]

Yeh, I guess which is really another form of expression I would say.

VC:

When I was 23 a big life change happened for me because I decided to go backpacking with my best friends around the world. Probably the best thing I ever did. I was being faced with beautiful beaches and all the surf community and I was sitting there watching all these guys and girls just riding those waves and I just longed to do it but in my head the voice was saying you’ll never get to do that you’re going Blind you can’t do that.

TR:

If this were a movie, we’d queue up the dramatic music, the camera would pan out to the others easily riding the waves, maybe one falling off the board. The scene would move to Victoria slowly looking at a surf board next her and then back out toward the ocean. Seated on the san, she’d confidently straighten her back, stand, grab that board and sprint toward the water. Her friends would cheer her on as she paddled out to catch a wave…
But this ain’t no movie!
She privately held on to that desire like so many of us do.

VC:

It wasn’t until 2014 that I was actually doing my first solo exhibition. it was a really big14 piece collection exhibition. It was quite stressful at that time trying to do everything for it.
TR:

That’s when her husband had an idea.

VC:

Let me teach you how to surf . And that was it, I was hooked.

TR:

Once upon a time, she was adamant about not using the white cane. Today, Victoria puts that long white cane to good use.

VC:

Skateboarding!

TR:

that’s her way to expel that board energy when she can’t hit the waves.

And of course, where does Victoria go from here.

[TR in conversation with VC:]

You have a line of skateboards?

VC:

Yep, I’ve got the…

[TR in conversation with VC:]

Geez, you make me tired. (Laughs)
I got to up my life! I’m not doing enough.
(Laughs)

VC:

they’re called Blinded Soul and they’re bespoke solid deck skateboard.
When we started surfing we also taught my nephew to surf and then I took that one step further, I made him a surf board. I did the same for skateboards. I was just so amazed how smooth a ride they are. They’re built like in a retro style. They’re not built for tricks, but they’re definitely built for long distance really, cruising.

[TR in conversation with VC:]

The other day when I was reading your blog I was like man I think I want to do this. (Laughs…). Like, I want to try skateboarding Now it’s been years. I skateboarded as a kid.

Audio: from “It’s A thin Line between Love & Hate”
“Here I am laying in the hospital, bandaged from feet to head

TR:

Ok, all jokes aside, I’m going to give that a try.
My personal creativity and expression for a few years now has been less about sports and physical activity today compared to my past.

For anyone experiencing vision loss, finding a creative outlet is worth exploring. It’s hard because the reality is for most these endeavors just don’t help pay the rent.
But that’s not a reason to not pursue a passion or interest. there’s levels to this stuff. find your level and enjoy. The benefits are real.
Victoria’s pursuit of her own interest in music proved fruitful in ways she probably never expected.

[TR in conversation with VC:]

You mentioned your husband. Did your husband know about your vision loss initially?

VC:

Yes, yes. We met through a band that I was in. I was the singer he was the drummer. he had the same kind of silly sense of humor I guess that I’ve got. We’d just have good fun. He would drive me home after rehearsals and stuff. probably only took a couple of months for me to realize that a. how much I liked him and b, I had to tell him.
I sat in the car with him one night, we were just outside the flat where I was living at the time. And I had to take a very very deep breath and I told him. He just hugged me. And I said to him if this changes things you know it’s ok. And he was like no way. I just couldn’t imagine it changing anything between us.
He’s a very, very positive person. Very optimistic. He supports me in everything I do.

[TR in conversation with VC:]

And what’s this fine gentlemen’s name?

VC:

Ah, this fine gentlemen’s name is Adam.

TR:

you just never know where the pursuit of your interests may lead.
Victoria talks about all of her endeavors over at her blog Beyond Vision.

VC:

I want to reach as many people as I can. I want to support as many people as I can but along the way I want to share my vulnerability as much as my successes. I think it’s all very well to sit an talking about all the wonderful things that you get to do with your life but I think it’s more important to share also the vulnerable side of you too because it makes you more relatable. I really do get quite honest with my blogs. They really do tell a story within themselves. They’re raw, they’re authentic.

TR:
T
Encouraged to write her own story in the form of a book, first reluctant, Victoria eventually had an idea to help make the task more attainable.

VC:

What if I started thinking like the book is an extended blog?
So I got in touch with an editor, Molly Somerfield Smith, lovely lady she’s actually a ghost writer. When I first wrote to her I was kind of talking in a way that I wanted her to write it but she was the person that said to me you’ve got to write this yourself. This is your story this can’t come from me, this has got to come from you.
here I am a year later and she’s now got the version that I put together and she’s editing.

[TR in conversation with VC:]

First of all, I see that you’re doing audio blogs. So it’s not enough that you’re doing all the other stuff now you gotta come on into audio? Come on Victoria let some other people keep the audio… (laughs…)

VC:

You know what tom, it’s purely for selfish reasons.

TR:

For the record, I actually welcome and promote more of our voices in the space.
By now you probably can tell Victoria is all about productivity. She’s voice recording what she would have once written for the blog.

To check out her work and more…

VC:

I’ve got my professional website which is for the sculpture and that is www. VictoriaClareSculpture.com And then I got my advocacy website, VictoriaClare-BeyondVision.com. Where there’s all sorts of crazy stuff going on and it’s also got a lot of resources , support and that kind of stuff. And that’s where the blogs are as well.

TR:
Victoria’s working on moving her sculpture website to a more accessible platform.
You can also find her on Insta Gram at VictoriaClareSculpture. That’s Victoria Clare (spelled out)
Don’t forget to go on over to ITunes or wherever you get your music and get her latest single Know You Matter.

Audio: Break of Dawn, DeLa Soul

Shout out to Victoria Clare for sharing her journey. And shout out to Steph McCoy for making the connect!

I’m always hopeful that somehow this podcast finds those who are in the place where many of us once were.
That’s losing their sight, receiving a diagnosis they never expected, maybe fighting against the idea of using a white cane.

It’s easy to focus on what is being lost but as we heard today, the pursuit of those things that bring joy can really help you find what you’re seeking. It’s just right around the corner.

Audio: Lyrics… “Break of Dawn”

If you like what you heard today, subscribe wherever you get podcasts. Why not tell one or two people about what’s taking place here.
Let’s get this information into the ear holes of those who need it the most. In fact, you know we’re about that access here so it’s available for finger tips and eyes too in the form of transcripts available on ReidMyMind.com

That’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

Sparking Success After Vision Loss

Wednesday, September 11th, 2019

Blindness, Low Vision any degree of significant vision loss occurs for different reasons. It impacts people from all walks of life at various ages.
My guest today, Susan Lichtenfels, President of the Pennsylvania Council of the Blind (PCB) says; “None of our experiences are ever the same, but they’re similar.”

Looking at people adjusting to vision loss, it’s apparent there are also similarities in making that a success.

Hear all about SPARK Saturday, an event sponsored by the Pennsylvania Council of the Blind to light the fire in anyone impacted by vision loss. Plus a look at how PCB can help you attend.

Listen

Resources

Transcript

Show the transcript

TR:

Welcome back to another episode of Reid My Mind Radio. My name is Thomas Reid. Not only am I producer & host of this podcast, but I’m the target audience, a person adjusting to becoming Blind as an adult.

While I’m no longer new to blindness, I do think I would have appreciated having a podcast like this one during those early years.

In some ways I did. I was fortunate to have other people with all degrees of vision loss in my life. People who are Blind, living productive lives on their terms.

We’re going to get into a bit of that and how it can be of help to you or someone you know right now adjusting to vision loss from low vision to total blindness.

First let me drop this on you like…

Audio from opening music (Wow!)

Audio: Reid My Mind Radio Intro Music

TR:

Early on in my adjustment I became involved in advocacy. It began locally and grew to state and national after helping to form a chapter of the Pennsylvania Council of the Blind or PCB in my county.

Attending my very first PCB state Conference & convention made a big impact on my life. It gave me the chance to meet people who both indirectly and directly taught me a lot about blindness. It was extremely important to my personal adjustment.

Today we’re going to take a look at some of what PCB has to offer those adjusting to, experiencing or impacted by blindness or vision loss; including an event that many of you may want to attend. Plus opportunities to help you do that.

Allow me to present a friend of mine to help guide you on this tour.

SL:

My name is Sue Lichtenfels and I am currently the President of PCB. But when I’m not wearing that hat I am a wife, I am an Advocate and I am a person with a disability, actually 2 disabilities. I am a mother of a soon to be 8 year old.

[TR in conversation with SL:]

8 years old already. Wow, I’ve known you for a while Sue.

Sl:

We started on the board at the same time. In 2007 we were elected and we started serving in 2008.

[TR in conversation with SL:]
And how long were you in PCB ?

Sl:

I only joined in 2005. We really are like right around the same… (laughs)

[TR in conversation with SL:]
Yeh! So was your first conference 2006 or 2005?

Sl:

My first conference as a member was 06.

[TR in conversation with SL:]
Yen, same with me!

TR:

We’re going to start with advocacy, but let me first be an advocate for this podcast.

Sue has agreed to come back on the podcast to share more of her story.

SL:

We’ll sit down and do another interview.

TR:

I’m just saying! It’s on the record now!

Self-advocacy is often a gateway to becoming an advocate for other. For Sue, it started in college.

SL:

No one’s there anymore to kind of be a buffer between you and your professors or the learning center that’s helping to adapt your materials in the format you can use.

#Goal Ball

TR:

While at the University of Pittsburg, Sue was introduced to the sport of Goal Ball which truly made an impression on her.

SL:

It’s a sport with three players on each team played on an indoor court and you kind of roll a ball the size of a basketball. It’s got bells in it and you roll it in a bowling motion and then you slide and use your body to block the ball from going beyond your team into the goal.

TR:

It may sound like just a game, but Sue grew up loving sports and always wanting to play and compete.

SL:

I was never allowed to. So when I found this sport, Goal Ball, I really , really loved it.

TR:

Sue became really good at the game. In fact, she played for the USA team in the World Championship in Canada.

SL:

And then I was in this car accident and lost the use of my legs.

TR:

This appears to be what really activated that inner advocate.

SL:

I had this opportunity to finally find a sport, find something I could be athletic and involved in so I wanted to do work and do advocacy get other kids that are mainstreamed the opportunity to be more involved in physical education and recreation.

TR:

Sue applied for and received a fellowship which enabled her to start a nonprofit.

SL:

Called Sports Vision, to create opportunities for children. I went out and spoke to Physical Education Teachers, IU teachers to advocate on behalf of getting children more involved in physical education.

[TR in conversation with SL:]
When you said that you weren’t allowed to was that a parental thing or was that a school thing where you weren’t allowed to participate in sports?

Sl:

I wasn’t allowed to participate in sports for fear that I would get hurt.

TR:

Children attending schools for the Blind had adaptive sports and recreational activities. Unfortunately, fear often caused children like Sue who were mainstreamed to be kept on the sidelines and excused from physical education and sports.

SL:

Fear was on the side of the parent who was afraid that their child was going to get hurt. The fear is also on the side of the district that doesn’t want to take a chance in getting sued because a child did get hurt.

[TR in conversation with SL:]
I got you, so it’s not like you had an advocate at school or at home kind of saying hey she wants to play sports, let her do it. So then you became that advocate in Sports Vision.

Sl:

Correct.

[TR in conversation with SL:]
Cool!

TR:

Also cool was when Sue brought her talent and persistence to the Pennsylvania Council of the Blind. Already familiar with running her own nonprofit and filling multiple roles, she took on many within the organization before her election to PCB President.

SL:

Fundraising, membership, awards, conference program and planning I’ve pretty much served on every committee or team within the organization.

Since 2010 I’ve been Editor of the PCB Advocate which is our quarterly newsletter. In 2007 I was elected to the board of PCB and been serving as a member of the board ever since.

# Challenges of Leading Membership Org.

Currently Sue is winding down the last months of her second and final term serving as PCB president.

Just the right time to ask her about the challenges of leading a member based advocacy organization.

First, challenges of the membership model itself.

SL:

Engagement.

When you’re a member based organization there is a micro way of thinking. You tend to gear your work towards the people that are in your organization. And we spend a lot of time offering ways to try and get our members more active when the reality of the situation is that our mission is to promote independence and opportunity for all who are Blind or visually impaired.

TR:

Second, advocacy

SL:

I think when many people hear the term advocacy they automatically associate it with legislative, policy those types of issues. They don’t recognize it for all the rest of the issues that need to be addressed that maybe aren’t necessarily achieved through writing a Legislator.

[TR in conversation with SL:]
Such as?

Sl:

Educating the public about the abilities of people that are Blind or visually impaired. The peer support that is necessary to take someone from not having any idea about what their own capabilities are and providing them with the ability to listen and offer them guidance.

That’s advocacy too.

TR:

So, how exactly does PCB offer support?

Here’s three ways.

Audio: One!

SL:

Peer discussion calls – these are organized usually around a specific topic. We have a conversation around issues such as travel when you’re Blind or visually impaired. We talk about our own experience , we share our stories and we provide a forum where we all learn from one another.

Audio: “Two!”

SL:

Peer Mentors – A lot of times the best way to cope with losing vision is to talk to someone who’s been there. None of our experiences are ever the same, but they’re similar.

TR:

Through their network which includes people who span all degrees of vision loss, from low vision to total blindness, PCB has something else to can offer…

SL:
Someone to talk to them on a one on one basis and provide them with guidance and advice and support.

Audio: “Three”

SL:
Local chapters – throughout the state we do have chapters who usually meet on a once a month basis and these are people who are blind or visually impaired who are more than willing and ready to welcome those who are new to vision loss and to really provide that connection and that one on one in person peer support.

TR:

While the local chapters are obviously specific to the state of Pennsylvania, “One and two” the discussion calls and peer mentors are all open to anyone experiencing vision loss.

SL:

Some of the specific advocacy discussions might be Pennsylvania specific but there’s a lot of information that we share that’s blindness and support related that isn’t geographically specific.

If you or someone you know is an individual who has vision loss and who’s vision loss has occurred within the last five years, I encourage you to apply for our Adjustment to Blindness First Timer Conference Scholarship.

TR:

This is a full scholarship! It covers your attendance for the weekend. That includes your registration, conference meals and activities, hotel…

SL:

And it will also cover ground transportation to and from the conference. To learn more about the scholarship, contact the PCB Office at 877617 – 7407 or send an email to Leadership@pcb1.org.

TR:

But that’s not it!

Maybe you’re thinking, Thomas, I’ve been Blind for more than 5 years and like you I believe the adjustment process is an ongoing thing and I really would love to attend. Are there any opportunities to help me get there!

Well, yes! PCB has some additional scholarships that you can check out on their web page at pcb1.org/conference

And then there’s also a $500 merit award available this year, specifically for those who are Blind or Visually Impaired and currently enrolled in a vocational or academic program.

SL:

Or some type of professional licensure.

We’re actually going to award three individuals stipends to attend the PCB Conference. So the top three finalists for the Merit Award will receive stipends to attend which will include the hotel, travel, conference registration and meals. Once folks get to the conference, those three individuals, we will announce who will win the grand prize of the $500 Merit Award.

TR:

That’s a great opportunity! I’d love to see it go to someone in the Reid My Mind Radio family.

Whether you, a family member or friend is adjusting to blindness or low vision; the PCB conference truly can be the experience that you need in your life right now.

SL:
But if you can’t make the entire weekend, and you can only pick one day to come and join us, I really encourage you not to miss our Saturday morning presentations. It’s going to be amazing!

TR:

It’s going to be hot!

It’s called SPARK Saturday because we’re bringing that heat!

[TR in conversation with SL:]

What about you? How has your involvement with PCB impacted you personally?

SL:

You know I’ve been involved at the leadership level and involved in the work of the organization for so long, I’ve gained so many skills. So I mean I’m a much more well-rounded person with regards to blindness skills but also skills that are work and project related.

TR:

The result of actually doing the work?

Sl:

I have a lot more confidence now in my abilities than I used to.

TR:

That confidence extends way pass the work.

Last year Sue decided to write and direct a play for PCB’s post banquet entertainment.

She cast it with her PCB peers.

SL:

It’s just such a fun time to rehearse with people. Really get to know people in that way where everyone is just kind of dropping their guard and letting you see the silliness, the fun. In the whole process of it such peer support we exchanged. I never would have had the confidence to do that. To write it and actually put it out there for people to kind of judge it. I wouldn’t have had the confidence to do that if I wasn’t a part of this organization.

TR:

Now, if you don’t mind, I’m going to get a bit nostalgic!

Audio: Can’t Stop Won’t Stop PCB

You see, for several years, I served as PCB Conference Coordinator. I used to circulate conference information via audio. It was called “The Blast”. One of the things I did was conclude with the conference details… it went something like;

The 2019 PCB Conference will take place in Harrisburg, PA at the Crown Plaza located on South Second Street – just two blocks from the Amtrak and Greyhound station. (I told you it’s going to be accessible!)

The PCB room rate is;
94 dollars per night which is for a room with a king size bed.

(For the aristocrats among us!)

102 dollars for a room with two queen size beds.

(For the money savers or the very friendly!)

The festivities begin on October 17 and last through October 20, 2019.

For all the details visit pcb1.org/conference
Or you can pop over to this episode’s blog post at ReidMyMind.com for all the links.

If you want to reach out to Sue, well she’s not on Twitter, yet! She is however on Facebook if you can spell her name correctly, Susan Lichtenfels.

Every time I speak with Sue it leaves me with such a warm fuzzy feeling! She’s always so kind and patient especially with me as I often ask things at least twice.

TR:

What’s the qualifications for that again?

SL:

Oh my God, you’re gonna get kicked in the face, I swear to God!

TR:

Laughs… I want you to just say it!
SL:

My legs may not work but I might just give you a kick in the face!
(The two laugh together!)

Audio: Can’t stop, won’t stop PCB Conference!…

Audio: Explosion … Blast!

Audio: Reid My Mind Radio Outro

TR:
Peace!

Hide the transcript