Here’s What I’ve Been Up To

It’s quite obvious that I haven’t been making the most of my personal blog lately. But what may not be as obvious is I have been turning out content. Most of that content has been on behalf of the Pennsylvania Council of the Blind. The content that has been the most fun for me is producing two very different audio projects.

First, there’s Talking Advocacy & Government or as we like to refer to it, TAG. This mostly quarterly podcast focuses on explaining various advocacy issues and appealing to listeners to take specific action   often to advance an issue or piece of legislation.

The second is a more lighthearted marketing tool known as the Convention Blast. These monthly pieces alternate between the written format and audio. The most fun of course is producing the audio extended commercials advertising the PCB State Convention & Conference, for which I am currently the Coordinator. These give me the chance to interview guest speakers or facilitators about their scheduled presentations. Sometimes I even have the chance to just get a little silly and have fun with the piece and include some musical productions.

This year, I was given the opportunity to speak publicly about my experience with Non 24 Hour Sleep Wake Disorder and the use of the drug Hetlioz. For those unaware of Non24, here’s a description from their website:

“People with Non-24 who are totally blind lack the light perception necessary to synchronize the circadian clock with the 24-hour day-night cycle.”

This caused me to experience extremely erratic sleep patterns for years – making it incredibly difficult for me to concentrate and remain awake during the day.

At some point I hope to share more of my experience, but for now I recommend learning more on Non 24 and Hetlioz. I would really appreciate anyone reading this to go on over to the PCB links mentioned above and take a listen to some of the available episodes. Help us spread the word about the current advocacy topics like HR4040-All about improving education for blind children, HR3749 – Legislation to enable people with low vision to access devices that will enable them to live independent lives or just get more on the upcoming PCB State Convention & Conference. I really had a fun time with the latest episode which features the Students Seminar being held during our convention to aid students with vision loss throughout their college years. If you by chance happen to be a “Hip Hop Head” check out how I put my own spin on “Impeach the President.” Oh no he didn’t! Truly, I did!

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