Archive for the ‘Descriptive Movies’ Category

Reid My Mind Radio – Full Access to Movies & Television…

Wednesday, August 16th, 2017

The Actiview  logo appears on screen in a small theater
An episode packed with goodness. First, Alex Koren one of two founders of Actiview, the new startup changing not only the way we consume audio description but the way we think of video accessibility. This episode also includes:
– A slight rant on access to Audio Description in general
– A special sneak peak into a new project I’m excited to work on with one of Hip Hop’s pioneers, Doctor Dre; an original Def Jam artist, Yo MTV Raps and Hot 97 Morning Show host & DJ
– Inspiration struck – thanks to Brooklyn’s own Notorious BIG… and if you don’t know, now you know…!

Now go ahead and hit Play and don’t forget to subscribe!

Resources

Transcript

Show the transcript

TR:
Wasup everyone!
We’re talking audio description this week.
In some sense it’s about the future of description.

In the present as you’ll hear more in the Gatewave piece, getting the audio description device in a theater can be a hit or miss.

Today, a new start up changing the paradigm as it relates to how people ith vision loss and others gain access to video content.

So let’s get it!

[20th Century Fox Theme]
[RMMRadio Theme Music ]

[Audio from John Wyck Chapter 2]

TR:
You’re listening to audio description from the movie John Wyck Chapter 2. Audio Description, well, that’s the additional narration making video accessible to people who are blind or visually impaired.

This extra information describes scenes not containing dialog or other nonverbal information that is relevant to the story.

Alex koren, a 23 year old entrepreneur originally from the New York/New Jersey area is one of two founders of Actiview. They’re a new startup company. Their product, an iPhone app, is putting more control and accessibility in the hands of the consumer.

AK:
I received a grant in two thousand and fourteen called the Theil Fellowship. It’s awarded to twenty young entrepreneurs every year to drop out of college
and pursue entrepreneurial endeavors of their choice. I moved up to San Francisco and kind of had two years to just think about ideas work on different things. Entering into the
last half year of my fellowship I felt compelled to really build something that mattered to people. Build something I probably be connected to and I had this idea for Actiview. How can I make movie theaters more accessible. Make home television more accessible.

There’s two Founders and really three partners on this project as a whole. Myself my co-founder Braun Shedd who’s actually nineteen years old. I worked with him previously on a project or two and I said I’ve got this idea come live with me let’s work on this let’s hack on this and see what we can make out of it.

And the third guy Paul Cichockihe he was at Pixar for about seventeen years. He was the post-production supervisor and he really headed up there initiative to make their audio description as high quality as possible. He was working on captions, audio description
every accessible service under the domain of a lot of things that he did. And he left Pixar and came to join us full time in September of last year.

TR:
While none of the three partners have a direct relationship with vision loss; Alex did spend some considerable time with people who are deaf.

AK:
I really enjoy and find it rewarding to work and be in a field that really helps people with blindness low vision people who are hard of hearing or deaf.

TR:
Actiview an iOS only application right now is bringing a full service accessibility solution to the smart phone.

It offers audio description, closed captions, American Sign Language, sub-titles and language translations.

Alex points out some of the ways earlier apps which tried to bring audio description direct to the consumer. differ from Actiview’s approach.

AK:
all of these had great intentions and were really viable pieces of technology except for a few things.

One we wanted to be access ability first. It was all
about making sure that we provide the best possible experience for the accessible users first. And then expand it out to the general population. And the second one is we recognize that every movie had to be accessible. It couldn’t just be a select few. And so the first piece of technology that we ended up developing was a piece of hardware
that movie theaters could install that made every movie accessible via Wi-Fi. All of the technology that we’d seen had made you download stuff in the
cloud and they had a limited selection of movies. We were trying to work in the realm of making every movie accessible. In developing this technology we spent the
better part of I think over a year reverse engineering a lot of broadcasts systems and projection booths which is really really tough work. We sat in a lot of dark rooms between a lot of you know loud and hot equipment with our computers out trying to figure this out. After we built kind of our first prototypes and demos we sort of realize that theaters unfortunately just aren’t that excited about buying more equipment to make stuff accessible. Which is a really really unfortunate truth. So we sort of started to take a different approach to all this. We said how can we still make every movie accessible
without selling something directly to the theater for them to install and work on. The first thing we did was we moved a mobile app that you could download
the content from the cloud synchronize it with the movie and basically use it anywhere without any hardware. We piloted with cars three in June of this year and everyone could download the audio description track go to see Cars 3 in the movie theater and play the track back. We had some great response. A lot of moms
and dads talking about how their blind or low vision child finally got to go to the movies. It was really really moving for us and exciting for us.

That also works in the home. And so we’re working on also adding content from providers like Netflix and Amazon Video as well as DVDs that you already have, I Tunes video all the services. The download and sync idea the download and sync solution works for you kind of anywhere. So we don’t see where this is only the theatrical only the releases where you go with the family once a year. it’s also I have a spouse who’s not blind or not Deaf who wants to watch Netflix with me and I can personally turn on the audio description in my ear and we can both watch together on the same couch. Because right now you
know Netflix and Amazon have great audio description offerings but you turn on audio description on everyone’s listening when it’s on the captions everyone’s watching them. And to have a kind of personalized experience we imagine a world where the Spanish speaking mom, the blind husband and the Deaf child are all sitting in one room watching together and that’s I think a really really special experience.

And now going forward what we’re doing is we’re taking the software that we still love that was sitting in that box that you can install in the projection booth and we’re actually trying to sell it to the projector manufacturers. so they can take the software install it directly in a projector so instead of us selling new technology to theaters it’s just a software update to projectors. And that’s really the new paradigm
of what we’re trying to solve and do here at Actiview. It’s make every projector capable of making movies accessible.
We’re just getting it from its almost last destination to its destination and that’s really just from the projection booth to your ears.

TR:
The less steps in this last phase of delivery, the better. Both people and technology introduce possible failure points.

Take for instance the current process of listening to audio description in movie theaters today.

[Audio: Movie theater atmosphere]

When purchasing your tickets, a movie goer must first request the device from the box office.

In my experience, there’s often a confusion here.
After requesting the device for the visually impaired I am asked;
[Theater Box Office Attendant]
” do you mean the closed caption?”
[Pause
TR:
“No!”

[Theater Box Office Attendant]
“Do you mean the device that makes it louder?”

[Pause]

TR:
“No!”

If you make it past this first round with the a device in your hands…
When the movie finally begins after about a half hour of previews you didn’t ask to see, you find out the device wasn’t properly configured. Meaning the movie begins and there’s no description streaming from the device through your headphones.

This requires quickly returning to the theater employee or manager to have the device fixed.

Hopefully, this is resolved the first time, but I’ve been to theaters where we had to repeat this process.

Actiview would eliminate these extra steps in the accessibility delivery process.

The Actiview team seems to understand an important fact of accessibility; one size does not fit all.
AK:
People need different levels of access and our app it’s built to be really modular in the way that you can just press buttons to use multiple ones at the same time. You can’t use all of them at the same time because there’s limitations on what the phone can do, but certainly the ones that are applicable you know you know that someone using audio description for instance would never need the sign language track so we don’t allow that combination. But certainly the ones
for low hearing and low vision or low hearing and Deaf. We do allow you to combine those and use them simultaneously.

TR:
All of these accessibility solutions in one app;
should be a reminder to advocates about the power of coalition.

To download the app visit the Apple App store.

AK:
If you download the app, you go through a quick tutorial about how to use the app and just as an head’s up you will need headphones that are wired to your phone
in order to try to go through the tutorial. It’s a requirement we have for security purposes. And once you do that there’s an option to subscribe to push notifications. And if you hit ok on the push notifications you will then be on our list to hear about when new movies get released. And so we’ll be giving constant updates with new movies new content.

[TR in conversation with AK:]

You already said you’re probably working 12, 12 plus hours a day. What help are you guys looking for from the community at this point?

That’s a great question. I think that the first clearly easiest thing is downloads are king. For every download we get we’re tracking the usage of the app and we can go over to Hollywood and say hey guys look how many people want this thing. You know for every person who watch Cars 3 it was one more point in our court. Look how well this once people are really excited about this let’s keep doing it let’s keep this going.
Download some content. Go and see a movie. We hope to have a few more on there in the coming weeks to few months that you can go and see and they might be more applicable to you if you’re not a Cars fan. And that’s the easiest way to get involved.

Second of all we’re are hiring we’re looking for more engineering talent. I
think that We want to hire both low vision blind deaf and hard of hearing people to come work at Actiview. We really want to dedicate ourselves to fully being an accessible company. We’re looking for people to come join us if you’ve got the chops we will absolutely have a look and
take a listen and see if there’s a space to have you on board.

Just being an advocate – telling friends family because downloads are really important, but also coming back to us and saying hey I have an idea or hey this isn’t really working for me I need it this way because at the end of the day Actiview is only as good as the services that it provides to its customers. And if we’re not doing something to the best of our ability and you’re not enjoying the content you’re doing then we’re not doing our job. We think we’re doing a pretty good job in surveying and asking people what they want making sure we’re building their needs but there’s certainly work to be done and we hope that people give us the kind of feedback so we can build the best possible product.

TR:
To get in touch with the Actiview team whether to learn more about the app, give feedback including suggestions or for possible employment;
Contact by:
email: team@actiview.co
Twitter @TeamActiview)
website actiview.co

I’m Thomas Reid for Gatewave Radio,
[Audio from interview: Which is a really really unfortunate truth.]

Audio for independent living!

[Audio: film Slate announcer says ” Take 1″]

Whenever I talk about audio description in the back of my mind I hear the haters.

Those who say this topic isn’t important. It’s just entertainment.

Once again, the haters are wrong, they suck!

Audio description makes information in the video format accessible.

This includes educational videos in the school and workplace.

Think of young children and adults alike who develop friendships and working relationships as a result of talking about their favorite program or movie.

At the core of entertainment is humanity and a message. Why should anyone be denied access to that information.

That descriptive information extends beyond video whether movies or television.

I can’t tell you how annoying it is to see a message in my social media feed, pick anyone! and the text refers to a image file… but there’s no way of getting that information without seeing the picture.
At least that was before the ability to add a description to the image.

Truth is the image description could be included with the post especially with FB. However, Twitter enabled the ability to add way more than 140 characters to describe the image.

Museums, galleries and other places could make their content accessible using headsets and location technology readily available today.

And I know the first thing said when the subject comes up…
Do blind people go to museums or are they on social media.

Not only are we out here, we make media.

We have families who we like to accompany to different experiences and we want to engage independently without their assistance in order for us all to share in an experience.

We might want to just alone.

That question yawl, is bullshit. Don’t accept it… in fact here you go…

simply remind people that they probably benefited from closed caption when at a sports bar.

re-directed themselves toward a ramp as opposed to lifting the functional leg up to step on to the sidewalk.

Man, don’t get me started yawl!

Just the other day I saw a tweet from someone who wished they could watch television while training for a marathon. They just find it gets boring.
I had to holla and let them know audio described movies/television are a real option.
It’s a non visual means of consuming media, that’s it.
The more that use the better for us all.
Try it on a road trip. Truck drivers could really get into it.
Bike riders and other athletes. Those doing work where it allows for active listening but not focusing on a screen.

We still have a long way until accessibility is just a normal part of how we do business.

Lots of room for expansion and growth.
Documentaries!
Many do not include description making them difficult to follow.

Audio description can impact a person’s adjustment to vision loss.

For so many people, the movies are that way to get out and lose themselves for 2 hours.

Earlier this year, I interviewed what I have come to realize is a true movie connoisseur.
In fact, he’s been in some movies himself.
Doctor Dre from Yo MTV Raps and New York’s Hot 97 Morning Show fame…
If you haven’t listened to that episode I truly suggest you do.

In fact, I’ll drop a little teaser of a project he and I are working on together that brings a different perspective and voice to the podcast game.

Here’s a taste of one around Dre’s experience with description.

This project is going to include conversations, interviews and more on lots of different topics and let me tell you right now, they can go anywhere. Dre has a gift for that and the funny thing is they tie into all sorts of subjects some very relevant today and some you may not be used to me talking about.

I hope you will join us when it’s ready but for now, I’ll probably slip some previews into the podcast feed so make sure you are subscribed so you don’t miss out.

If you’re not sure how to subscribe…

your friendly super hero has you covered.

If you have an iPhone

## 10 Subscribe Commandments
Step 1
Take out your phone, do it real fast
open the app, it’s called Podcast

In the bottom right corner, you can find the search tab
i’ll wait to you find it, Got it, Fab!

Now just type this in right on that search line
R E I D M Y, Mind

Tap on that search button, and away you go
there it is.., Reid My Mind Radio

All the episodes , appear on your screen
over 65 to date, Nahmean

a Reid My Mind button on the bottom, not sure which side
Hit it, next page, choose subscribe

Now your official, I’ll call you sis or bro
Or a non gender listener, of RMMRadio

Now , one more thing, I’d love for you to do,
give me a rating and if you could, , write me a review!

They say ratings help listeners find the podcast
It doesn’t take long, it’s pretty quick and fast

One last thing, You don’t need tech to do
Refer the show to a friend or two.

TR:
[Talking over music]
I would really like to get this information and overall message out to those who can really use it.
To me that’s everyone so we have a long way to go!

Shout out to the person who gave me a review, I appreciate you.

While you’re on the review page, hit that related tab and check out what other podcasts those who subscribe are listening to… we’re in some good company including Blind Abilities and Oprah and This American Life.

Hey Oprah, holla!

Peace.

Hide the transcript

Reid My Mind Radio – The Reidwind Episode

Wednesday, April 26th, 2017

Sometimes it’s worth pausing to take a look at your work. Maybe a time to reflect, re-evaluate or maybe just slow down to pick some others up as you continue along the way.

Today we rewind, or rather Reidwind, and take a look back at some of the prior episodes in the past six months.

There’s lots of ways to consume this content… Sound Cloud, Apple Podcast and others, even transcript.

Transcript

Show the transcript

TR:
For more than 2 years I have been producing this podcast.

The last 6 months or so include episodes that exemplify some of the reasons I enjoy doing this.

Today, let’s take a quick look back.

If you’re new here it’s a great way to introduce you to some of what Reid My Mind Radio is all about.

I say some because part of the stress and the joy of doing this is it’s mine… I can do whatever the Bleep I wanna do…

Like right now… I wanna drop my intro music!

[Audio Reid My Mind Theme Music…]

TR:
This podcast is a place for me to share opinions. Like…

After attending the Pennsylvania Council of the Blind conference; where people with vision loss are the main attendees, the environment is made very accessible. Unfortunately, outside of these types of experiences, this rarely occurs.

TR: From [” Are Blind Conferences Fantasy” Posted November 2, 2016](http://reidmymind.com/reid-my-mind-radio-are-blind-conferences-fantasy/)
I recently heard these types of tours and activities or even the conferences themselves  described  as fantasy.
The idea is that this is not and will never be the real world. The real world I guess in the minds of those who believe this is fantasy will always  exclusively
cater only to those with sight and forever exclude people with vision loss.

At various times  throughout my journey with vision loss I came close to believing things can’t change. My struggle with cynicism was only made worse 
with the random encounters with those who remind me that they see me first as a blind man and their definition of that goes beyond my inability to see.
For them it’s the subconscious stereotypes and misperceptions that create their image of who I am. the things I do or don’t do are viewed through a lens
painted with layers of misinformation that so much of society has been lead to believe about blindness and disability.

TR:
Whenever possible, I like to include my daughters in my podcast.
I just enjoy their company,
when we hang out it’s always fun …
we laugh and act silly.
We share our sense of humor so it’s going to be fun.

In early December I tried to convince them
to do their own episode of the podcast as they did a few years ago, but
this time with a special twist.
From [“Join the Coalition” Posted December 31, 2017](http://reidmymind.com/reid-my-mind-radio-join-the-coalition/)

[TReid in conversation with Raven]
Alright, I think we need to bring back Rizzle Razzle this year…

Raven:
I agree!

TReid:
…but

Raven:
Oh no…

TReid:
… you should have a guest…

Raven:
Ooooh, who is this guest?

TReid:
… me, Daddy!

{After several seconds…}

Raven
No!

[Silence]
TReid:
Yeh, I know, you’re probably just as shocked as I am!

After about 30 minutes or so I let it go…

Maybe I went about this the wrong way.
Rizzle is the oldest, she’d be able to influence Razzle.
Even though she’s away at school, we speak everyday…
I’m ready for her call usually in the morning as she’s walking to class.
That’s when I decided, I’ll get her on my side and the show will be a go…

Here’s how that went down…
[Sound of Harp indicating going back in time.]
[Sound of iPhone ringing]
TReid:
You know, why drag it out?

Riana: “No!”

[Jay Z, What more can I say…]

TR:
They came around and we
closed the year with the [Rizzle Razzle episode](http://reidmymind.com/reid-my-mind-radio-rizzle-razzle-year-end-special/)
Even though they sabotage my microphone!

*This episode did not include transcripts as it was very much dependent on the music being discussed.

TR:
Reid My Mind is more than personal …
it’s about telling people’s stories…

People adjusting to blindness like
Robert Ott who drew from his martial arts background to move forward after losing his sight to a gun shot womb.

RO:
I couldn’t believe this was happening to me. Everything was racing through my mind. I’ve got pictures of me doing dive rolls over large groups of people and doing splits in the air. I used to go running a lot on the beach and hand springs and just all kinds of beautiful great stuff. I was so weak I couldn’t even do a push-up and now I’m blind. I can’t get around, my independence, my confidence, my self-esteem, my balance.

TR:
While these stories are specific to adjusting to blindness,
it’s easy to see how everyone has their own way of responding.

Maria Johnson, AKA Girl Gone Blind , decided to share her experiences and challenges on her own blog. …
She spoke very candidly of her adjustment process.
One memorable moment was some of her personal words of encouragement that led to a little creativity …

In [“Who is Girl gone Blind”](http://reidmymind.com/reid-my-mind-radio-who-is-girl-gone-blind/) I included a “song” created using Maria’s words specifically “I got this”.

TR:
I don’t like to use the often referred to idea of
overcoming blindness or disability and accomplishing goals.
I like to think of working with what you have …
making the most out of your situation and counting your blessings…
Like young Ant, the first female blind rapper
From [“Meet Young Ant, First Female Blind Rapper”](http://reidmymind.com/reid-my-mind-radio-meet-young-ant-first-female-rapper-whos-blind/)

TReid:
Young Ant in the building!

YA:
Young Ant in the building!

Treid:
Uh Oh!

So the way I look at this; Antynette is the person, Young Ant is the rapper!

YA:
[Laugh!] Yeah, that’s right!

TReid:
Alright, so first who is Antynette?

YA:
Antynette is a young lady who has been through a lot in a little bit over a year and half and is trying to find her through it with adjusting and coping
and in different techniques that I’m learning and trying to find different avenues of expressing how I’m feeling.

[Intro to “Count your Blessings” by Young Ant]

TReid:
Beautiful!
I lost my sight about 13 years ago. And so…

YA:
Really!

TReid:
Yeh so one of the things that I like to hear from people adjusting to blindness is that they don’t first start with who they are with the fact that they
are blind. You said you are a young lady!
Now, tell me who’s Young Ant?

YA:
Well Young Ant is a motivational rapper!

TR:
And then some like Doctor Dre best known for Yo MTV Raps and more, who’s adjustment process is about Fighting Back…

From[“Doctor Dre’s The Fight Back”](https://t.co/CzpxqDcUXg)

Dre:
I embrace it. And in embracing it he has put me on a path  to help other people and to reach out and express myself not  just about the type 2 Diabetes
not only about the blindness but  about when something goes on and there’s a struggle sometimes embrace your struggle to find your solutions.
It doesn’t mean it’s a guarantee for a cure or a guarantee to a perfect answer  but what it does is says you know what  I’m more than what’s going on with
me.
I can also work with this.

If you have a good relationship with your family, friends and  other people and reaching out. I learn every day from so many different people  and I pay
attention and I  try to pass on some of the knowledge of what I get  so that people can help themselves

TR:
It’s more than the adjustment experience.

We heard from
Robert Lewis sharing his story of
growing up in a segregated school for blind students.

From [“At The Intersection of Black & Blind”](http://reidmymind.com/reid-my-mind-radio-at-the-intersection-of-black-and-blind/)

RL:
We went to one restaurant and the lady said you got to eat as fast as you can so we can get you out of here before the owner comes  back because if he
saw we had Black people here he would fire me!

TR:
In North Carolina, it was more than getting a meal.

RL:
Guys jumped out of the car and came over and they were going to beat us
all up.
We had no idea … What is this all about? Is it because we are blind; no, it’s  because you’re black and you’re blind!

TR:
Naru Kwinah and Leroy Moore, the two gentlemen producing the
documentary of the life of Joe Capers. Played a big role in artists like EnVogue, Tony Tony Tony and MC Hammer

From [“Who is Joe Capers”](http://reidmymind.com/reid-my-mind-radio-who-is-joe-capers/)

Naru:
Listen brother! His studio was called “J-Jams Studio: Joe did everything.  He had his mix board in Braille. He recorded, he engineered he mixed, he produced.
He did everything that you could every possibly do in the studio. And he had the greatest ear I have ever been around and I’ve  been doing music over 40
years of my life. If you had one note or one little thing off he knew and he would call you on it. You know because he was blind you thought you’d  get
away with stuff.

TR:
In that same episode we learn about Krip Hop from founder Leroy moore.

LM:

This year is our 10th Anniversary and we have loose chapters…

TR:
These include countries within Africa, the UK, Germany and Spain.

[Audio: “Tales of the Krip-Hop”, Rob da Noize Temple]

With the network formed by Leroy and co-founder Keith Jones, the two being disabled activists, the focus continues to be on education and advocacy.

LM:
So we saw Krip-Hop as a way to bring awareness around the history of disabled musicians from the Blues to Hip-Hop and really educate and to push the Hip-Hop
arena  around Ableism thinking around disability and to really say that disabled musicians have been here since the Blues.

TR:
That’s just a taste of some of what has appeared here on
Reid My Mind Radio over the past few months.

Subscribe now to make sure you are riding along during
the months to come.

You can subscribe via Apple Podcast or where ever you like to get your podcast content. That includes Stitcher and Tune In Radio.

Go check that out now, there’s lots of good stuff.

If you’re listening on Sound Cloud, hit that follow button.

I’m Thomas Reid
[Audio: Young Ant “Don’t get it wrong, I’m in my zone”]

[Audio: Reid My Mind theme music outro]
Peace

Hide the transcript

Reid My Mind Radio – The Blind Temptations

Wednesday, April 12th, 2017

EVERY NOW AND THEN I SHARE some of THE THINGS THAT CROSS MY MIND.

In this episode , I’m pointing out the fact that things that should help  us can be the same things that do more than distract us from our goals!

TRANSCRIPT

Show the transcript


TR:
The title of this episode, “The Blind Temptations”, may have you thinking I am announcing my new idea of
touring with four other gentlemen who are blind and singing the classics, like My Girl, Papa Was a Rolling Stone, Just My Imagination.

Notice I didn’t include Ain’t too Proud to Beg in that song list.

Maybe you now have images of the famous Motown group doing their dance routines either while holding white canes or guide dogs.

If so, well you’re stupid!.
[Laughs]

No I’m just kidding! you’re probably just silly!

I’m not really talking about those Temptations.

Before I get into that…
[Audio: temptations…. hold up!]
[Audio: rmmradio Theme]

TR:
The Temptations I am referring to are scary to me.

That’s not something I would ever expect to hear myself say out loud and especially here on my podcast, but  it’s true!

Temptations lure a person away from staying on track.

They offer temporary  distraction, a fantasy for something that most likely cannot be attained.

For those going through vision loss or any significant life change; these distractions can be much more tempting.

Think of those who experience sudden job elimination that requires a whole new approach to employment while in mid-career.

Confidence levels are down. Self-identities are challenged.

In such examples, many distractions are accepted in our society or at least they’re understood

Think of the classic I just got fired story.

It’s usually the guy working at the factory for years.  He shows up at the bar after getting the news. He gets a drink on the house first and then his buddies begin buying rounds.

go ahead, get your drink on, you deserve it. the poor guy!

When it comes to adjusting to blindness, there’s a lowering of the bar that takes place. People expect less from the person experiencing the loss. . More than often, it’s those outside of the immediate family. Some times that could include those inside the personal circle or family and friends.

And then let’s not forget that much of the misunderstanding about blindness and what that means for a person could be inside the individual experiencing the loss. They may now limit themselves. Their expectations are impacted and often that means becoming satisfied with less.

“Well, you can’t work so you will now stay home and listen to your radio all day.”

I felt temptations early on after my own loss. When I realized it, it shook me up.

I was in my mid-thirties. I wouldn’t say I was on my way to becoming CEO or even Manager, but I was growing in my career and
reaching some personal and career goals.

My first reaction to vision loss was to push through.

My sight was basically already gone and I had a surgery  scheduled for the end of January, that I knew would leave me permanently blind. Yet, I thought in my mind that I would be back at work by the end of February at the latest.

I find that so funny now!

I didn’t think  about the new things I would have to learn. I didn’t think about issues of accessibility because I simply wasn’t aware of them at that time. My focus was just on continuing where I left off. I didn’t really give that much thought into how would I do things or
even if those things I used to do would still matter to me.

Soon after the temptations began doing the things they do…

[Audio: Temptations, “The Way You Do The Things You Do”]

The first seems almost common today; addiction.

This has always been a fear of mine. ! I have addictive tendencies.
Yes, right now to things like chocolate… I go through binge periods.

I’m not making fun of addiction in any way. I know today addiction to pain killers is looked at quite differently from
let’s say how addictions were viewed when crack was the drug of choice! The substance, shouldn’t matter nor should who the addicts are but that’s another episode topic.

I was given Percoset for the pain following my surgery. I found myself taking them nightly. I soon began noticing a smell after I would ingest the pill.
It didn’t stink nor did it smell good. There was a sweetness to the smell, but
not like candy, cake or chocolate!
Thank goodness because I would be somewhere fiending right now!

It was different.

I began noticing the smell during the day when I didn’t take  the pill. I wasn’t anywhere near the pill.
I’d start thinking about taking the pill and the way it lulled me to sleep. That numb feeling of no pain, worries or problems that seemed of any immediate importance. I soon realized I was taking the pill without even any pain.
it was more about the habit of taking it and the way it carried me away to sleep at night.

It picked me up and placed me on a bed of clouds and off to sleep I went.

When I smelled the scent of the pills during the day I started thinking about  how I now had a pass. Taking the pills to  help relieve me of the nonphysical pain seemed almost acceptable. I began creating  what seemed like reasons that would permit the behavior…

“Well, I’m not working now, I’m alone in the house today.”

“The doctors gave me the pills, I have to use them.”

These were just mental excuses. I was  arguing with myself internally as to why I should take a pill even though I had no physical pain.

“who’s gonna know?”
That was it!  I flushed the rest of the pills and that was the last time I took them.

Temptations come in all forms!

During my first few months of adjusting, I would spend the early part of the day before noon, watching a lot of standup comedy on comedy central.

Stand up is great! It’s mostly accessible as it is usually vocal performances.
It was helpful, it took me out of my own head and made me laugh. That energy release helped me feel a bit more positive.

During that time my television options were limited. I didn’t have much in the way of audio description for television or movies. I didn’t enjoy the movie watching experience unless
I was watching something familiar and
I’m not really the type who likes re-watching a lot  of things.

I think about the access we now have to Netflix and
other options for audio described movies and television.
that could have played into my adjustment.
I could have chosen to spend my time mindlessly watching television or movies all day.

I can hear the excuses in my head now!

“What else am I supposed to do?”

“Watching and analyzing shows or movies gives me some insight into humanity and maybe even my own situation.”

“I’ll watch the movie while I fold the laundry.”

Right now, with shows like Black Mirror on Netflix? I might accept having that bar lowered. Sitting around playing with my iPhone and watching Netflix all day sounds pretty good!

“Don’t do it!”

It’s not just Netflix!

There’s the internet and technology in general too! You know these are real temptations!

At one point it looked like blind people would be barred  from participating in so much of this technology. However, rightfully  so, accessibility improvements are happening. Are they happening fast enough for everyone?
No, but they are happening and we have to acknowledge that.

Even console game makers are thinking inclusively and developing games
that will enable gamers with disabilities including blindness to participate.

I’m not mad at that or any of these “temptations.”

I guess I’m speaking especially to those adjusting to vision loss and who want to make a point of reaching their own goals with their new situation.

The more access we have to things that can improve our opportunities and daily lives the better. It just so happens that these things are potentially the same things that can tempt us into complacency and accepting less of ourselves.

In a way though, isn’t that what accessibility is all about?

Access not only to participate, but to make all of our decisions that affect our lives.

Like choosing to subscribe to this podcast! The show is short in duration! It won’t take you away from  anything. You can fit it in on a quick break or as you’re doing your daily activities; making or eating breakfast, lunch or dinner.  Brushing your teeth. Walking your dog. Whatever it is you do, doing it is better with Reid My Mind Radio!

Subscribe anywhere  you get podcasts.

Shout out to the person who left me a review on iTunes.

I hear that’s the way to help get other people to discover the show. If you can please give me a review as long as it’s good.

No seriously if you are a hater, feel free to hate, but everyone knows haters shouldn’t rate, just discriminate!

I’m good with that!

[Laughs]

Thanks for listening!
[Audio: RMMradio theme]
Peace!

Hide the transcript

Reid My Mind Radio: Doctor Dre’s The Fight Back

Wednesday, March 15th, 2017

Picture of Doctor Dre, seated with a tan fur jacket with the caption, Doctor Dre The Fight Back!

Doctor Dre of Yo MTV Raps, NYC’s Hot 97 Morning Show, the movie Who’s the Man? And so much more … is launching The Fight Back!

Diagnosed with Type 2 Diabetes and now blind, this fight back is about more than you probably think.

This episode features the piece produced for Gatewave radio followed by more personal conversation with Dre. Plus, you know there’s only one way to intro this podcast… if you were a morning show listener you know I had to do it…it’s the roll call!

So c’mon yawl, listen to Dre…
>scroll down a bit, , to hear the show press play!

 

Resources:

 

Transcript

Show the transcript


TR:
What’s good everybody?
This is a special episode so I’m going to jump right in…
it’s no mystery , the title of the episode says it all.

If you’re in my age group You remember when older folks said rap was a fad and
black radio didn’t play the music!

You remember when MTV played videos and they weren’t black artists let alone rap music.

Yes, this episode is featuring that Doctor Dre from YoMTV Raps and many other things like the Hot 97 morning show.
With that in mind! There’s only one way for me to kick-off the podcast…

Yeah, I’m gonna do it!

[Audio: From The Hot 97 Morning Show with Ed, Lisa & Dre
Music…
“What’s up yawl, whatcha got to say, who’s on the phone with Ed, Lisa & Dre?”]

TR:
Yo, TReid’s the name, and right now’s the time
Welcome to the podcast called Reid My Mind!

Cheah!

[Reid My Mind Intro]

TR:
Significant vision loss can force a person to face real doubts and questions.
Such as;
Why did this happen to me?
What do I do now?

Andre Brown has chosen to answer the last question by launching a fight;
well really a fight back.

It’s more than vision loss.

In  2008 Andre was diagnosed with type 2 Diabetes.

He experienced multiple complications of the disease including Charco – foot Syndrome which he says can cause a collapse of the ankle.

DD:
My vision loss came as a progression of that and not taking care of myself properly.

my vision loss was a gradual thing where I  started seeing little things across my vision. Little lines and you know things jumping.

TR:
After These lines often called floaters,  multiple surgeries to repair detached retinas,
Andre was left with some light perception.

DD:
Diagnosed as Diabetic Retinopathy but  as the Doctor said  to me , he said that’s what’s   blocking your vision, you have scar tissue in the back. He said we can’t do anything about  it until we stop the Diabetes. So once that happens then  we can do a different procedure or two to see if we can make the sight  come back.
I’ve spoken with a lot of different people and everyone has told me that my sight  returning is a very strong possibility, especially with what I am doing now.

TR:
What he’s doing now?
Simply put, he’s fighting back!

This fight is just as much for others as it is for himself.

Andre’s in a unique position to take on this job.
You see he’s been working in support of the careers of others for years.

Andre Brown, is better known as Doctor Dre, a pioneer  in Hip Hop culture and entertainment.

Starting out in WBAU, the Adelphi University radio station in Long Island,
Doctor Dre would eventually go on to record music with his group Original Concept.

He D Jayed for the Beastie Boys.

He was involved in getting one of Hip Hop’s most prolific and influential groups, Public Enemy on to Def Jam records.

Most people know him as part of the Ed Lover and Doctor Dre Duo who
hosted “Yo MTV Raps” every weekday
between 1989 and 1995; As well as
extremely successful radio morning shows in New York City between 1993 and 1998.

DJ, musician, actor, author… and now
Doctor Dre is  in a position to bring real attention to two of today’s
very significant health crisis ;
Diabetes & Vision loss.

DD:
Well we have the program that’s called Doctor Dre’s The Fight Back.

Taking the situation and being able to talk to other people and say, I can show you through  what I’m going through  that we all can change. We all can grow.

I’m finding other people that have different or similar experiences and being able to share that. So the fight back is
how do we reach out and get so many resources to work with you to try to actually change your situation.

TR:
Changing the situation by providing access to information  including;
medical, lifestyle and technology.

DD:
I’m doing a lot of Holistic medicine along  with traditional medicine to work with my Diabetes  and just to change my diet. Just putting that under better control

I’m playing the Guinea pig so everyone can  see it.

TR   [In conversation with Dre]
When you say   you’re playing the Guinea pig what does that mean?

DD:
Sometimes you have to go out and someone has  to go oh hey does that work, well I’ll try it  let’s see

I’m not bringing guarantees, I’m trying to bring choices.

What we’re doing is trying to bring those choices to the fore front. so there no longer just whispered in a corner or you have to pull this up on the Google thing… know we’re gonna say no, here’s a bunch of things here, find a way to find something that works best for you. Here are some things that are very easily at your beck and call.

And when you have options, there’s so much more you can do.

TR:
Real life style changes that affect the way we think about nutrition.

DD:
And that’s one of my goals in The Fight Back, is to change bad thinking.  The mother of 4 who works three  jobs with four kids and they have to run to McDonald’s because they  want those Happy Meals; I want to change the Happy Meal to a life meal.

TR:
Lifestyle choices are like adjusting to vision loss; it’s personal.

DD:
you do what you feel the most comfortable doing  and you work from that position. Everybody’s an individual about it. There’s no one magic thing for one person. There’s a lot of great things out there and I  am discovering those things to help  me accomplish doing other things. I’m very open to learning.

TR [In Conversation]:
What types of things are you discovering?

DD:
I have a phone I could talk to and it  speaks and dials  and talks to me.

The technology now is catching up. I believe like Netflix has where they actually have  a program that is designed so when you’re watching a program it describes everything so you get the full affect.
I’m discovering it one at a time but I don’t know the name of everything I just go wow that exists , that’s a good idea, that’s a really good idea.

TR [In Conversation with Dre]:
that’s Audio Description.

DD:
Yes.

TR [In Conversation with Dre]:
Just for full disclosure, I’m blind myself.

DD:
Oh, ok!

TR [In Conversation with Dre]:
The experience is unique and different for everyone. So I’m trying to gauge what is your experience and how other people can relate and learn… whatever that is because that’s what experience is all about. There for everyone.
DD:
Exactly.

Well with me I understood simply when it was starting to happen  I said don’t panic.
I’ve become a person that reaches for solutions. And rather than falling into , oh my god I can’t believe this is happening  and go into depressed mode I said no  this may happen, this is what you may need to prepare to start doing. And I started preparing myself for it. I said you know what I said you know what  this may be, but darkness  won’t last forever. I said  you have God behind you  and God has already told you  this isn’t forever, this is to slow you down  this is just to make sure  that you can listen and hear what I have to say. And I started listening and hearing what he had to say  more than I started talking.

I embrace it. And in embracing it he has put me on a path  to help other people and to reach out and express myself not  just about the type 2 Diabetes not only about the blindness but  about when something goes on and there’s a struggle sometimes embrace your struggle to find your solutions.
It doesn’t mean it’s a guarantee for a cure or a guarantee to a perfect answer  but what it does is says you know what  I’m more than what’s going on with me.
I can also work with this.

If you have a good relationship with your family, friends and  other people and reaching out. I learn every day from so many different people  and I pay attention and I  try to pass on some of the knowledge of what I get  so that people can help themselves

TR:
The Fight Back is a give and take; a collaboration.

TR [In conversation with Dre]:
So what is The Fight Back, what does that look like? in the world. Is that like a  web portal

DD:
It’s going to be a website… we’re building as we speak because I didn’t want to just put something out there … like it’s easy to say we’re going to do that  and throw it out there and  people just think that’s it, that’s it… no so I said , first thing we’ll do  is I’ll go out and start talking , build different interviews up and now it’s starting to take different testimonials  from different people  and it’s attached to other situations  also , you know I’m working with  a friend of mind from a company called Rally Wing and they had family who had diabetes and their discussing stuff with me.

Another gentlemen by the name of Marvin Mizell who is Jam Master Jay’s brother  has a company called JMJ Foundation  for the youth. He has Sickle Cell and Diabetes so connecting with his thing. there’s a bunch of people that I have connected with  and I said you know what maybe I should be that focal point to bring people together. and see if we can actually work, not just to a cure and better treatments ,but to better understanding  and better conversations

So going out now and talking to different people and listening to what their saying  how they fought back
that’s what this fight back is all about.

Bring those stories to light.
Bring this action to light!
And be a little educational, be a little entertaining, be informative, and be supportive
That’s where the strength is!

TR [In conversation with Dre]:
Is the reality show still a thing?

DD:
We went out there we talked to different places, everyone was excited, yeh we want to do this, yes Dre we love it. And as more we kept talking, my idea disappeared and it became this other thing. It was like that’s not what we’re talking about .

I have a little experience in creating television programs.
We’re creating our own show. Creating our own messaging, making our own venue because the technology allows us to do this.

How do we take all these different instances and work together. Instead of just having a website, a page, you know do this  and get this. No, I want you to come on, I want you to see these different testimonials to be able to reach out to like you and to say hey I want you to talk to him because your experience can help some other people. Your conversation can help someone else who may be feeling down and go hey wow it isn’t as bad as I thought or it could be really bad so we’re going to try and reach out. Go see people shake hands, kiss babies, do whatever needs to be done. We’re going to run the ultimate campaign! The campaign of life of wellness and happiness. That’s a campaign where you just can’t be elected. there is no electoral college for that!

TR [In conversation with Dre]:
[Laughing!!]

DD:
I’m sorry! I’m so sorry!

TR [In conversation with Dre]:
Don’t apologize for that. That’s real!
[Laughing!]

DD:
My things are based on love
People want to sit back and talk about this guys this and this one’s that. Hate, hate!
I said, you know what man, hate carries weight! With love you can soar!
And I got nothing but love man!

TR:
When the site is completed, you will be able to learn more at Doctor Dre TFB.com.

There’s a quote I like to refer to that’s attributed to a Greek philosopher or motivational speaker depending on who you believe…
It’s not what happens to you, but how you react to it that matters.

Doctor Dre,  reacting with love
to make information more easily available , bring
health choices to the forefront,  create a place where
others can share their experiences, all while
remaining faithful and encouraging;

In this fight, there can be only one winner; nothing but love!

This is Thomas Reid, for Gatewave Radio;

Inserted from DD:
“Bring those stories to light. Bring this action to light! And be a little educational, be a little entertaining.”

Audio for independent living!

[Audio: Dre drop a load on em’, from “You down with MTV”]

TR:

Podcasts allow for longer exploration and intimate conversation.
In a way, I hinted to this in the Gatewave story edit.

There’s power in conversation between two people
exchanging knowledge about their shared experience.

Some things you really only feel comfortable talking about with someone who you know gets what you’re saying.
You don’t want to have to explain yourself.

The conversation could just be two people kicking around philosophical ideas.

often it’s , just talking about real practical sharing of information.
Like when Dre mentioned posting to Facebook:

DD:
One of my friends growing up he said I saw you on Facebook and I’m going how is he doing this? Isn’t he blind? And he’s like, he’s actually posting and doing this and that… I said, I have somebody doing that. The way I post is my son posts for me. He’ll put stuff up  that I need written or said or whatever we want to put on my Facebook page. So that’s fine. That’s how that works.

TR [In conversation with Dre]
You could do it yourself too you know right?

DD:
Please, I’m listening

TR [In conversation with Dre]
Ok so you have the iPhone and the app on the iPhone is , I mean it’s all accessible. It sounds like you mainly probably use Siri, the dictation?

DD:
Yes, I use Siri right now.

TR [In conversation with Dre]
So  you don’t use the keyboard at all, you never tried to use the keyboard?

DD:
No!  (Surprised!)

TR [In conversation with Dre]
Oh, you can absolutely. Do you have Voice Over turned on?

DD:
You know what,  I’ve been trying to go to the Apple store to sit there and have them explain everything that can be done , I do not probably have it turned on, no.

TR [In conversation with Dre]
Ok!

TR:
Sometimes we assume that people are supposed to just know things…
Those who do, need to be more open and welcoming in order to make that information available.
At the same time remain open to receiving new ideas.

Three words that tell me Dre is going to be fine
no matter what the end result of his vision loss turns out to be;

DD:
“Please, I’m listening!”

TR:
Please, I’m listening!

Dre doesn’t know me.
He’s been around the world and has access to people and privilege.

DD:
Having reached out to people like Stevie Wonder.

TR:
Now, who am I to challenge something that Stevie says. I only say that because what Stevie means to me.

Adjusting to blindness though, is different from living with blindness all your life.

For example, I grew up only seeing out of one eye.
The challenge to me was different compared to someone who loses an eye
later in life and never had monocular vision.
I could share some information about things they should know,
but prior to blindness I wouldn’t have been able to relate to that loss.
That adjustment is the challenge. Growing up only knowing one thing is a different experience.

Meanwhile, I too could probably benefit from some of their discoveries.

Dre knows there’s so much more to learn and is open to that information for himself and others.

Our conversation though, went deeper.

Like when I wanted  Dre to know about an aspect of blindness
that is experienced and the ramifications that are felt by too many.

TR [In conversation with Dre]

We started the conversation with a little bit about  blindness and with the things people do and do not know, right. There’s all this technology, there’s so much you know going on and one of the big big issues  when it comes down to the blind community . The image of people who are blind in terms of how that’s perceived in society,  there’s a lot of negative connotation when it comes to blindness that I realized that I had and as I met other people  you know, blind at birth or blind afterward, there’s an incredible resource out here that is not being taken advantage of. So within the blindness community and within the disability community, unemployment is 70 percent.

DD:
Yes, it is!

TR:
So many people don’t even understand that. Even in just in terms of how people can do things and the abilities that are there it’s just not known. In part of what you’re doing you may not have or may have thought about it, you are going to be a representative  of that to some degree. Whether or not you like it or not, right, people are going to look at you and they now look you as he’s blind and therefore when they think of other people who are blind they will think of you. And so the things that you’re doing are going to send a positive message  not only to people who are sighted but also to other people who are blind who may have  bought into that.

I just ask you to ponder that, you know!

DD:
I hear what you’re saying. It’s very funny that you say those things. Funny not laughing wise, funny as it’s very interesting how we do that … I now the same way  I was put upon  and told do you believe you can get your sight back, I’m going to ask you those questions to… do you believe you can get your sight back?

TR:
Now, I had lots of people say they were hoping and praying I get my sight back, but
No one outside my immediate family has ever directly asked me that question.

I know a lot of people might think that question shouldn’t have been asked.
But it was part of our conversation so in no way was I offended or upset by that. This was a conversation between two people experiencing vision loss.

This isn’t some random person asking me on the street.

My answer and Dre’s response forced me to think about how I look at that question.

My answer… next time on Reid My Mind Radio!

[Laughing….]

Just playing!

TR [In conversation with Dre]
Nah! My situation is totally different.

DD:
Mmm hmmm!

TR [In conversation with Dre]
Number 1 my cancer is a genetic cancer. I was born  with a cancer called Retinoblastoma. I lost my left eye  as a child. The tumor overtook that eye.  I had at that time, this was in 68, well 69, radiat5ion. Thirty five years later that radiation caused another huge tumor  to grow in the back of my right eye and so I had no real choice because it was right on the optic nerve and so when it’s on that optic nerve, the next step is the brain So my choice was do I take that out  and live? Now mind you my wife was pregnant with our second child, we just moved from the Bronx to the Poconos in a house… so my right eye was removed.  There’s no coming back from that.

DD:
Ahh, yes.  You can’t get an eye transplant?

TR:
No, there’s no such thing as an eye transplant. The amount of nerves  that are in the eye  is unlike any place else. But that’s ok!  I didn’t have a choice and that’s ok, you know because I  my family, I have my little girls you know and so  my thing was like you  stepping back from the industry, my thing was I’m raising my girls you know. I’m a keep working and do whatever I can and be a  you know a help to other people  be a you know, productive member of society  and all of that and I can do that when I’m blind. I like to say the only thing I can’t do is drive.

DD:
Well that tells me a funny story that  I thrown out to Stevie Wonder about doing a movie I used to tell when I was doing interviews and I still do but know people go like you’re really going to do that and I said yeah I’m going to do that. I was being interviewed and they said Dre you gonna do any more movies and I said yeah I’m going to do movies. I said right now I’m in conversation with Stevie Wonder , we’re doing this movie called Just Drive the Damn Bus! And everyone fell out. They said for real. I said yeah and in that movie you’re going to see  Stevie and I drive the bus.

TR:
Uh huh!

DD:
They were like, how are you going to do that?  I said that’s the point, you gotta see the movie. And I was joking about it right?And then I started working with  one of my partners and we started  coming up with a concept of the movie and  it was like, this could work. I said, it’s a movie! I said, but do you understand what would happen and he said  but how are you guys going to act in the movie? I said  the same way other people act  in a movie, you hit your mark, you say your lines you keep moving, that’s not an issue.

TR:
Right.

DD:
Stop making an issue of a non-issue.  And then I told, a matter of fact I told  I was talking to LL Cool j and I told him about it and he  fell out laughing. He said you’re serious. I said I’m dead serious, your gonna do that.
I don’t walk around with dark glasses on. My son says Dad put the glasses on  stop walking around… I said no people need to see my eyes the way they are. So what, it doesn’t matter.
I say this to say this to you. We may not know the technology that will exist to help you gain sight when you need it, but I believe in my heart with what you just told me and what just trinkled through me is you and I our meeting is not coincidental  and I can’t promise this, but I just have this feeling  in my gut you’re gonna get your sight, because you need to see your kids.

TR [In conversation with Dre]
[Exhales!]

DD:
I know you’re saying, how can that be done? I don’t know. I don’t have that answer yet. That answer may come next year, that may come in five years, we don’t know. When I put those goals in front of me  it gives me something to shoot for. Reality or not, that’s why I say  that thing about the movie,  just drive the damn bus… Bill said, you are nuts, you’re outta you… I said no I’m not. I said because we can do anything if you put your mind to it.  Remember seeing Star Trek the Next generation

TR [In conversation with Dre]

yeah, yeah, with Jody…

DD:
LaVar Burton! He put on a visor and  he could see. But when he went to do the movies  LaVar didn’t want that visor on his face they pulled it off and put something on his eyes…we don’t know what’s coming!

TR [In conversation with Dre]
Right!

DD
Now if I could get in a DeLorean and go sixty years forward and grab it and pull it back  and say here put this on it works

TR [In conversation with Dre]
[Laughing….]

DD:
I don’t know!

TR [In conversation with Dre]

Right, right!

DD:
But we’re back to what the Fight Back is all about, choices!

TR [In conversation with Dre]

What you just said  helped me because the obstacles in front of me are not  necessarily just based on sight. And that goes into a really deeper conversation, but when you said  you get something from  that, there’s no way  I would want to take that away from you!

TR:
I’m not a dream killer and never want to be that!

Believing in the ability to regain sight doesn’t mean  not believing in the abilities of people who are blind.

Often though, that seems to be the message we hear from different organization in their fight against blindness.

The NY Times a few weeks ago ran an article with the headline;
The Worst that Could Happen? Going Blind, People Say
The article itself discussed some of the fears, and ways to prevent or slow
certain types of eye diseases, but
it did nothing to help ease that fear for
those who are facing  that in their present or future.

That’s not cool!

They only looked at vision loss from the medical perspective  ,
prevent the disease and there’s no longer an issue!

But there’s the society side!

That fear is what leads to people not wanting to in anyway associate themselves with blindness.
That fear and miseducation leads to that 70 percent unemployment.

But Dre’s not saying that.
His approach appears to be inclusive, holistic as in a full picture.

He’s straight up keeping his options open
I can support that!

Let’s do some shout outs!

First of all Doctor Dre,
thank you brother for the conversation,
for the courage and willingness to bring options to the people!
I hope to hear more about the Fight Back in the near future.

These next two shout outs come with a recommendation…
Audio: The Cipher Show theme[]

If you are a hip hop fan and like to hear background stories
from artists, journalists and those on the business side…
you need to check the cipher show.
Host Shawn Satero was kind enough to help make this interview happen.

It’s one of my favorite podcasts.

At least once every episode you will hear a person being interviewed say, Wow, you really did your research!”

you’ll hear it at least once an episode which lets you know it’s a quality show.

Shout out to Shawn and the Cipher show!

Shout out to Bill Adler who helped coordinate this with Dre.
BTW, Sir, please continue producing that Christmas  Mix Tape,
my daughter and I look forward to that Cipher episode each year.
No comments folks, I like the different cultural Christmas music and I ain’t ashamed to say it!

If your listening right now on Sound Cloud hit that follow button.
You can subscribe  via any podcatcher on your phone or tablet,
Apple, Android it doesn’t matter we’re outchere!

We’re on Stitcher and Tune In.

Got feedback?
Hit me at reidmymindradio@gmail.com … Remember Reid, is R E I D.

Thanks for listening!

Peace!

Hide the transcript

 

Reid My Mind Radio: A Note on Notes on Blindness

Tuesday, November 15th, 2016

In this episode of RMM Radio, I take a look at Notes on Blindness, a new film released in the US and premiering in NYC. It’s the story of John Hull who recorded his thoughts, observations and more on audio cassette. This Gatewave story includes a conversation with Co-Director Peter Middleton.

 

Scenes from the movie Notes on Blindness super imposed in the head of John Hull.

It’s pretty hard to watch a movie about someone going blind without thinking of my experience. Checkout some of my own personal recordings included in this episode.

 

If you haven’t yet, make sure you Subscribe to RMM Radio bit.ly/RMMRadioSubscribe
– In the meantime, hit the Play button below!

 

Resources:

 

Transcript

 

TReid:

 

Today I am sharing a recent piece for Gatewave Radio. A first of sorts for me.
A story about a new film being released in the United States on the topic of blindness.

This was a challenge for me, I’ll tell you why after you take a listen.

Let’s Go!

[Sample from Kurtis Blow’s AJ… “1, 2, 3, 4 hit it!]
Music … Reid My Mind Radio Theme

[Notes on Blindness Audio:
John Hull:
This is cassette 1 , track one, um… fades out]

TReid:
This audio is from the movie titled Notes on Blindness, just released in New York City and playing at the Film Forum.

Theologian, John Hull using a cassette recorder, documented his experience and thoughts as his vision faded beginning in 1983.

The film was produced using both actual   tape of John Hull and his family as well as interviews he and his wife Marilyn had with co-directors Peter Middleton and James Spinney.

Actors portray John and his family, but they are lip syncing to the recorded dialog.

I spoke with co-director peter Middleton (PM) via Skype.

PM:
Using film to try and convey the sightless experience is quite an exciting creative challenge for us. So undoubtedly there was that sense of artistic project which first attracted James and myself to John’s story.

TReid in conversation with PM:
Water seems to play a big role; the idea of the rain, the tsunami…

PM:
We can’t take much credit for that. It’s all in John’s account. After losing sight he had these incredible powerful operatic dreams that were, often water was this kind of analogous feature of them…
He would have dreams of water sort of rushing down and sweeping his children away and dragging him to the depths of the ocean. And all this kind of very powerful imagery that was just absolutely kind of laced throughout his account. And of course the connotation of water as the bringer of life.

TReid:
Remember, The original audio used throughout the film was recorded via cassette in the 1980’s. Audio restoration, editing and sound design  are other artistic elements of the film.

It was the inclusion of audio description that gave me access to some of the visual techniques used to tell the story.

Like Shadows, blurred or out of focus fades and sun spots.
Darkness acting like periods, concluding a statement, some times
an exclamation mark or bold emphasis highlighting a turning point in his life.

Peter says audio description served more than giving people with vision loss access.

PM:
Since we’ve been releasing as well we’ve been trying to open this conversation around accessibility and different ways people could approach the film so it has taken on that kind of social angle as well which we’re very  much relishing and very much hoping to push further.
TReid:
In addition to the audio description, a Virtual Reality experience and enhanced audio version were created.

PM:
Which rather than having an external audio narration as you would do in audio description, actually built in  more narration from John and Marilyn, the key subjects of the film, along with sort of sound design and music. We’ve been releasing these audio tracks with a smart phone app that allows audiences to sync that up in cinemas or on TV o\r on DVD or home  or what have you.

TReid:
Director Peter Middleton said John Hull was very specific about assuring that Peter and his Co-director James Spinney understood this was just one experience.

PM:
He was always careful to point out that he didn’t intend to speak for or on behalf of anybody. So we were aware that our kind of knowledge and our experience of blindness is very much refracted through his subjective story and subjective account.

TReid:
Yet a close examination can provide some insight into the shared vision loss experience. Like the strong need to continue.
For some that means continuing an education or a hobby.
In Hull’s case it meant his career.

[Notes on Blindness Audio
John Hull recalling a conversation :
No, look, how do blind people read big books?
They said, they don’t!]

TReid:
Finding new ways for accomplishing a task, well that’s a big part of a person’s adjustment to blindness.

[Notes on Blindness Audio
John Hull:
The first thing I did was build a team of people to record books for me

With ingenuity and a little bit of help there were problems that could be solved.]

TReid:
Resolving some of these basic difficulties offers hope!

Until… the next even more difficult problem arises.

[Notes on Blindness Audio
John Hull:
It wasn’t until The final tiny bit of light sensation slowly disappeared that my mood changed.]

TReid:
Another obstacle in the process of adjusting to blindness, , maintaining or establishing relationships.

Hearing his daughter scream as she plays in the garden,
John tries to quickly get to her aid.

[Notes on Blindness Audio plays in the background.]

When he arrives , Marilyn is comforting her and already has the problem under control.

[Notes on Blindness Audio
John Hull:
That was a frightening moment.]

He struggles with feelings  of inadequacy as a father.

[Notes on Blindness Audio
John Hull:
The discovery that you are useless is not a nice discovery for any father to make.]

Relationships with his wife, parents and even with God are all parts of his own journey.

Notes on Blindness, while a personal portrait of one man’s experience losing vision, is a poetic but practical look at the journey through loss.

Take for example, the role and importance of adaptations.

[notes on Blindness Audio playing in the background.
John his son Thomas saying bye to one another. ]

After Walking his son Thomas to school in the morning,
we watch as the father and son practice their special way of saying goodbye.
It’s the equivalent of both child and parent watching one another move further apart while assuring both the other is just still close
enough if needed.

[Notes on Blindness Audio: Their exchange of goodbyes growing further apart and his son Thomas’ voice fades with each goodbye.
John Hull describing the practice:
Echoing in chorus!]

We witness not only the bonding between father and son, but Hull’s appreciation for these small yet meaningful adaptations in his life.

[Notes on Blindness Audio
John Hull:
“I Love this!”]

Treid:
It’s not a movie for just the audience.

TReid in original conversation with PM:
What have you personally learned about blindness after all of this work?

PM:
Spending so much time with John and being able to listen to his account and researching has lead us to further research on different kind of people’s experiences. It’s been an incredibly fascinating process for us.

TReid:
Vision, often considered as the most feared sense to lose, yet the dialog offered by Hull and the sound design and music have a very calming effect. As if saying, it will all be  alright. Or maybe that’s just my final note on blindness.

The film has been nominated for 6 British Independent Film Awards including:
Best British Independent Film
Best Debut Director
Outstanding Achievement in Craft

You can catch Notes on Blindness beginning November 16  in New York City
at the Film Forum. Other cities are soon to follow. As well as on demand distribution in the future.
Visit BlindnessMovie.com for more on dates and information.
you can find them on Twitter @OnBlindness

I’m Thomas Reid;

[Notes on Blindness Audio
John Hull and son Thomas exchange goodbyes…
John Hull:
Until his voice becomes faint.]

TReid:
For Gatewave Radio

[Notes on Blindness Audio
John Hull and son Thomas exchange goodbyes…]

TReid:
audio for independent living.

[Notes on Blindness Audio
John Hull: “I love this!”]

T.Reid:
When I received an email asking if I were interested in doing a story on a new movie called Notes on Blindness, my first thought was …
“I don’t think you’re going to want me to do that!”

I like to profile people who are doing things that ultimately dispel the misperceptions about blindness.

I’m cynical  when it comes to movies  about blindness and disability.
My experience says they are probably going to be the sappy  oh look at this poor guy or wow, isn’t this person so amazing!

This, was not that!

Naturally I thought of my own experience while watching.
I guess you could say it was a comparison of notes!

The scene when he rushed to his daughter after hearing her scream;
I had my own similar experience and questioned my usefulness in emergencies.
Fortunately, I realized there’s no way I’m useless… as Hull felt at that time.

Again, the experience of blindness is specific to the individual.

One scene, John talks about how he can no longer
conjure up an image of his oldest daughter or his wife…

I never experienced that…
In fact I vividly remember both and
way more.

I don’t think it’s a spoiler so I’ll share that Hull comes to see blindness as a gift.
He’s clear to say it’s not a gift he would want for his children, but he recognizes there’s something there.

I don’t think I ever referred to it as a gift, but I know it’s not a curse.

I found myself very much curious about how John’s vision loss impacted his children. Specifically, his oldest daughter Imogen  who was around the same age as my oldest when I went blind.
She reflects on her relationship  with her father both as a child an as an adult in a short film titled Radio H.

[Audio from Radio H]

Notes on Blindness was focused on Hull’s experience with blindness and
not much time interacting with his kids.
At least not much that showed a playful side.
Like the tapes he made of his children performing and
him telling adventure and spooky stories.

It reminds me of some of the early recordings I did with my kids…

[Audio of Thomas and his children when they were younger.]
I’m a  sucker for Daddy Daughter stories!
For more on Notes on Blindness or Radio H;
see the links in the resource section included with the notes for this episode on Reid My Mind.com.

While you’re there, hit that subscribe button or subscribe to Reid My Mind Radio via iTunes.

Peace!