Archive for the ‘Blindness’ Category

Live Inspiration Porn – I Got Duped

Wednesday, March 18th, 2020

Podcasting as a passion project takes some real perseverance. There’s always some excuse lurking around the corner just waiting for you to take
hold.

In this episode I’m working through one which has been nagging me for a while. Giving it some real consideration led me to recall a story from my own adjustment experience. A time when I got duped into being a part of a live performance of inspiration porn. Well, sort of. Let’s just say I wasn’t there for the same reasons as those running the event.

Like most episodes, I believe this one can give those new to blindness and disability some things to consider. In fact, like all episodes I don’t think it’s restricted but that’s not really up to me. I’ll leave it right here for whoever wants to partake.

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TR:

What’s up Reid My Mind Radio Family?

Yo soy Tomaso, Thomas Reid, host and producer of this podcast – Reid My Mind Radio.

Welcome to those of you who are new here.

This podcast introduces you to compelling people impacted by all degrees of blindness and disability.

every now and then, like today’s episode, I share some of my own thoughts and experiences as a man adjusting to becoming Blind as an adult. And yes, I say adjusting, I don’t think I’ll ever really use the ed suffix on adjust. That’s not to mean there’s no progress. It’s just a continuous journey. Once you get to the understanding that it’s not one to be feared or even think negatively about, it gets better. But It’s like life, there’s always going to be change, and vision loss or any disability is now a part of that.

If that’s part of your reality, a family member or friend or maybe people you work with, well you’re definitely in the right place. If you yourself are going through some other sort of life change or you just like podcasts. There’s something here for you too, if you are opened to that.

Everyone is truly welcomed here with the exception of those with real hate in your heart. Energy works in mysterious ways and I don’t want that negativity being passed along to me or any of the family.

So let’s get this poppin!

Audio: Reid My Mind Radio theme

# Intro

Today I’m sharing some thoughts about this podcast. These are not stream of consciousness. No way I wouldn’t do that to you. My mind can be a scary place when I’m trying to figure things out.

Audio: Sound of chaos!

Chances are as I navigate these thoughts they will prove to be applicable to more than this podcast and hopefully useful to others. That’s exactly how I feel about every episode. I focus on those adjusting to blindness , but lots of others can relate and enjoy.

Audio: Typing sounds….

Since I began this podcast and maybe even prior, I have been very specific about saying I don’t see myself as a journalist. I’m an advocate, straight up! If you listen to the podcast, you know there’s a certain message about blindness and disability. My opinion or feelings in most cases are evident. The overall message is one of empowerment. I’m not impartial.

Audio: Possibly use old episodes here

As if journalism is really impartial.

There are times though when I need to make all sorts of journalistic decisions. It could be the way I edit or the specific questions I ask, even the overall feel of the show, the sound design. It’s intentional. My approach is different from your standard so called impartial reporter.

I’m connected to most people who are guests on the podcast. Usually, the connection isn’t personal. Rather it’s through blindness and disability Sometimes it could be race or we have something else in common.

I feel a responsibility to both my guests and listeners.

I want my guests to feel what I hear when they tell me their story. I want them to know I respect them and their experience.

I want listeners to find the multiple ways they relate to my guests. Yes, there’s the disability experience, but maybe they share a similar motivation, desire or goal.

That’s what I want, it doesn’t mean I can always make it happen.

every listener brings their own past, prejudices, preconceptions and experiences to the podcast.

That makes sense, it’s like anything else. Two people hear the same song , see the same film or read the same book and have drastically different interpretations.

Some people see a reflection of their own lives and goals while others never see themselves in a podcast where blindness and disability is so prevalent.

It’s probably not one or the other. I think there are some who have a bit of both. Either way, I can’t control that.

Which leads me to this statement…

“You should always remember, there are people worse off than you.”

Audio:

“No matter how you’re sad and blue, there’s always someone who has it worse than you”, Shaggy

YouTube Videos
* ” If you’re having a bad day, just consider the day ….”

* “Bare in mind, there’s always someone worse off than you”

Song sung by Little Richard at a MS Telathon.

“… As I look around, so many people who cannot walk, not talk nor see, I thank God for the health and strength that I have, for there’s someone worse off than I am.”
TR:

First things first…

I’m pretty sure I said this same thing at some point in my life. it’s a common statement and an accepted way of thinking.

But, what does it really mean?

How can you compare someone’s life and happiness without all the information??

Is this really pity?

As a content producer, I cringe when I hear it now especially in relation to my podcast.

There’s never been a guest on Reid My Mind Radio that’s in need of someone’s pity.

I then question the choices made for that episode

Did I present this person in a way that says they should be pitied?

I don’t think I focus on the illness side of things. I do include or mention mainly because;
Others with the same diagnosis can relate.
It can also serve as a way to normalize illness and disability. They are a part of life and not a mysterious thing that happened to one person.

AudioFx: Ambiance head in skull
Am I creating inspiration porn?

Most of you are probably familiar with that term. It’s the
idea of presenting people with disabilities as inspirational solely or in part on the basis of their disability.

This idea that this person’s story which often you don’t even get, well it should inspire you or just give you that warm fuzzy feeling reminding you that most of the world is so considerate.

Watch how the rest of the high school students cheered on as the coach let the intellectually disabled kid in the game for the last 20 seconds.

News Report Audio:
Crowd cheering.Coach: He comes to ppractice everyday, he shoots with them, he cheers them on…”

TR:

Or…

News Reports:
Reporter 1: A very special student indeed…
Reporter 2: All thanks to the compassion of one of his classmates….
Reporter 3: But the emotion of this night involved a student who cannot take the field, but is universally admired for his determination…
Reporter 4: A special needs student with Williams Syndrome. He’s a fixture on the sidelineduring football games always rooting on the team. But hi fives are one thing senior prom is something different.
Student: She could have picked anybody to go to prom with.. her.

TR:

I just don’t want to put that sort of thing out in the world.

Does it sound like I’m making a big deal out of this? Maybe because I’ve seen inspiration porn live and in full effect. In fact, I unknowingly was recruited to be a part of the performance.

Audio: Dream Harp

Many years ago when I was still very new to blindness, I was asked by a local organization serving those with vision loss, to give a access technology demo during an event.

I took to the technology pretty quickly and they thought I could be helpful sharing that information.

There was no money involved of course, but they’d provide my transportation and I think there was going to be a lunch. Whatever, I was down to help the cause for sure.

I was setup y’all!

Arriving at the center, I was shown to the main room where the event was taking place.

There were three or four individuals with vision loss seated up in the front of the room. The rest of the group was seated around a large conference table.

I was shown to a table in the front of the room off to the side where I setup my laptop.

Shortly after, the host of the event, the director of the center, welcomed the guests and kicked off the agenda.

Each of the men and women seated in the front of the room were asked to share the story of their vision loss.

Here’s how I recall that event;
Audio: Trap Beat!

each individual told their story while the event host accentuated the misery.

Storyteller:
” Before I went blind, I used to take long walks in the park
Now, I can’t see anything, my whole world is dark!”

Host: “Pitch black, the world is dark, too dangerous for you in the park.

TR:

Laughs! I said, that’s how I recall it today, but that’s not exactly what happened. But I do recall the questions and comments from the host were obviously selected to highlight the negative.
She was playing to the fear of the guests seated around the conference table.
these were potential donors.
All who probably already had beliefs about blindness;
“it’s probably the worst thing that could happen to you and if we don’t help these poor people they won’t be able to do anything. They can’t do for themselves.”

I was setup to be a part of a dog and pony show to help fundraise for the organization.

the fact that it was a fundraiser isn’t the problem for me. I would have still agreed to attend.
However, I would not have participated if I was aware of the approach being used to raise that money.

My so called presentation was probably less than 5 minutes. The host asked some specific questions and then made it seem like it was my technology background that enabled me to grasp the tools and less about the technology as a tool for independence.

Then they pulled out the glasses.

Audio: Glasses clinking and sliding down a bar!

No, not drinks. I don’t even think that would have helped. . No, it was the blindness simulation glasses. These are created to help sighted people understand what it supposedly looks like when you have certain diseases like, macular degeneration, RP, glaucoma and others.

At first thought, you may think ok, that’s probably helpful. It helps people understand and therefore empathize? Sympathize?

Well, in this particular case, while the dog and ponies sat up in front and this one off to the side a bit, the sighted donors were led into their temporary world of vision loss.

Reluctantly at first, one after the other each slowly began trying on the glasses.

“Oh my”…. “wow”
“where did you go Jeanie?”

And then the real fun began as they exchanged glasses with one another. Laughing as they realized how little they could actually see. Unable to find things they placed on the conference table. The host joking as she moved their cups of coffee.

Meanwhile, the dogs and ponies sat up front. While the jackasses continued with their disability experiment.

Empathy, I didn’t see that. But a check was written.

I don’t remember how the event finally ended, but I do know that was it for me. I checked out. There may have been some additional conversation but I doubt I had much to say to anyone after bearing witness to that display of ableism. I vowed to never be a part of anything even remotely like that.

I could easily imagine each of the donors around the table going home fulfilled and thinking “I should really count my blessings, because there’s always someone worse off in the world.”

As far as I could tell, I was alone in my review of the event. I believe some of the others continued to participate. I pretty much severed ties and ended up having a sort of reputation, so I was never asked again. perfect!

All of this leads to my final question.

How are we telling our own stories?

I highly doubt any of the people sharing their story were given instructions on how to tell it. Chances are, the director simply knew these individuals would supply what she wanted for the audience.

Some may say the ends justify the means. The center received the money and therefore can do good things for the clientele. I don’t agree. I believe several of those in the room were employers in positions to someday hire a blind person. I doubt they would. But that’s a subject for another day.

What thought do you put into telling your own story?

In most instances, we’re doing the telling of our own story. We don’t have a videographer, podcaster, journalist.

We’re probably not standing in front of an audience equipped with a PowerPoint presentation. We’re simply talking to people. Most often one on one.

Crazy thing, I tell other people’s stories but not my own. I can do it in a presentation, no doubt, but one on one not so much. I feel strange.

Audio: Cameo Strange! moves into “Children’s Story” Instrumental Slick Rick

I should tell my story as if I’m giving a presentation. it’s mine, it’s a good one. It’s worth telling. It can be helpful.

And it’s the only one I have.

And in the event someone hears it and their thought is
“Wow, I’m so grateful because I’m not like Thomas!”

My response, Bruh, you should be so lucky!

I’m not flexing’ or being conceited or anything like that. But this is my life why shouldn’t I be proud of what I do, when I do it and how I do it.

the same decisions I make for my guests and you all the listener, shouldn’t I put that much time and thought into my own story?

If you say yes, then maybe you too should do the same.

I told you this wouldn’t just be related to podcasting. In fact, it’s not just related to disability.

Or is it?

“Here we go!” Slick Rick, Childrens Story

You can find Reid My Mind Radio wherever you get podcasts. And if for some reason that isn’t the case, like teddy said, come on over to my place… ReidMyMind.com. That’s R to the E I D

Slick Rick “D, and that’s me in the place to be”

Like my last name.

Audio: Reid My Mind Radio outro

Peace

Hide the transcript

Ajani AJ Murray – Starting with Imagination

Wednesday, March 4th, 2020

AJani AJ Murray , a Black male with short haircut & facial hair seated in a wheelchair. He wears black & white print baggie pants with a blue long sleeve hoodie with words printed in black: "Young, gifted, black and disabled."

Pursuing your passion can take you down a road filled with all sorts of obstacles. Ajani “AJ” Murray knew from an early age that he wanted to act. his first school was television which he studied intently.

His latest role is in Best Summer Ever, screening at SxSW later this month

Hear how television and movies provided much more than entertainment for him and his family. His methods for navigating the obstacles along his journey and how he’s making his own place in an industry that isn’t always welcoming. In each case, imagination was at the start.

Listen

Resources

Transcript

Show the transcript


Ajani AJ Murray:

Our friend that we have in common, Cheryl green, told me about you and I’ve been listening to your podcast and I love it! It’s so dope and fresh. I’m kind of a Geek so I watch like a lot of PBS and I listen to NPR and so it reminds me of like radio documentaries. I particularly enjoyed when you were talking to Leroy about the Black History especially from the disabled perspective. I did something like that on my Insta Gram and some of my friends were like keep it coming AJ. So now you’re a resource.

Ajani Jerard Murray, a lot of people call me AJ.

TR:

And me, I’m Thomas Reid
producer and host of this podcast.

I usually reserve the opening of the episode for me to
tell you a bit about what this podcast is all about,
but as you’ll see in a minute, AJ is a media connoisseur,
so I was like man, everyone needs to hear his review.

I like to let new listeners know that here,
we bring you compelling people impacted by all degrees of blindness and disability,
told in a way that sounds

Audio: AJ “Dope” “Fresh”

And I do always hope Reid My Mind Radio can be a

Audio: AJ, “Resource”

For anyone especially those adjusting to vision loss.

And with that said, let’s do this!

Audio: Reid My Mind Radio Theme

Audio: Tom Joyner show…

AJ:
I became a big fan of radio because of Tom Joyner. We went to one of his Sky shows in Atlanta and it was at Greenbrier Mall. It was the whole cast and we listened to the S.O.S Ban. From that point for about 2 or 3 years I did a mock radio show.

TR:

A youngster at the time, AJ study the format of the now retired
Tom Joyner, host of the number 1 nationally syndicated urban
(that’s code for Black) morning radio Show.
AJ created his own show which he put on for his family.

AJ:

To make a long story short as I told you earlier I can really talk and go on long.

[TR in conversation with AJ:]
Laughing…

AJ:

I kind of sort of gave up on going into radio because I realized that in mainstream FM radio you don’t really program your own shows. You’re basically playing the same music and also to get to where I really wanted to be and the kind of radio that I would do is something that you have to be in the game for years and years for, like a Tom Joyner.

TR:

AJ knew his true passion.

AJ:

I’m a huge, huge fan of the screen big and small. From the time I was a very little kid I was always just enamored by the screen . I grew up on three camera sitcoms; Cosby Show, A Different World, Facts of Life, Different Strokes. As I got older there was the Fresh Prince era, the TGIF era, the Martin era, the WB era. My love for television in the very beginning was the sitcom.

TR:

Of course, there’s the big screen.

AJ:

My mom loves film. When it came to film she wasn’t really restrictive on what we could watch. Now we couldn’t watch everything, there were certain films I couldn’t watch but like it was 1989 I remember actually going to see Do the Right Thing. I had to of course cover up my eyes during the Mookie ice scene.

[TR in conversation with AJ:]
Laughs…

AJ:

TR:

Shout out to Rosie Perez!
If you don’t know the scene let’s just say Ice cubes are for more than chilling your lemonade on a hot summer day.

AJ:

I appreciated that several years later.

TR:

Now, I’m from the era where parents let you ride in the front seat with no seatbelts,
where you were encouraged to leave the house and explore so
I cannot judge.
[TR in conversation with AJ:]

You know the movie Death Wish? Charles Bronson. I saw that at 6 and nobody cared (laughs) and nobody cared.

Audio: Scene from Death Wish: Knock at door and unsuspecting woman says she’ll anser it. She asks who is at the door and the intruder replies he’s delivering her groceries…

TR:

Don’t open it! He’s lying!

(exhale)

Fortunately, there’s a lot of good that can come from family movie outings.

AJ:

That’s one of the ways we connected as a family.

[TR in conversation with AJ:]
Very cool. So it was the whole family going?

AJ:
My mom and my two sisters. In my house it’s three women and me.

We’re all very very close. That’s one of the ways we bonded. Sometimes we’d listen to classical music or something really peaceful because I grew up in a very peaceful household.

TR:

Television & movies can also initiate conversations about all sorts of topics and
even ways to explore culture.

Just be careful about that last one there, we know Hollywood doesn’t always get culture right. (Ahem!)

AJ:

I always had this dream of being an actor. It was something that was always looming in the back of my mind. It was always in my spirit, but I didn’t know how to physically make the connection. I couldn’t necessarily afford acting classes at the time and I wasn’t in high school at the time to be a part of an acting club.

TR:

Financial accessibility, we don’t often talk about that in our conversations around access.

AJ, made use of what was in his reach.

AJ:

The screen was my classroom! Anything I could get my hands on or watch or any old interview s. I really appreciate actors that do interviews like I stay stuck on the Biography channel, on Actor’s Studio. Any time there was a documentary series about behind the scenes I’m all over it!

TR:

Screens bring their own access challenges.

AJ:

when I watched re-runs of television in the 50’s and 60’s even like 20 years ago, 30 years ago, they always had like a voice over guy read everything. One of the things I always laughed at is like watching re-runs of the old Andy Griffith show. the announcer says it’s the Andy Griffin Show, starring Andy Griffin and I always laughed because I’m like didn’t he just say it’s the Andy Griffin Show.

But I realize he said that because he was reading the opening credits. Everything was announced. it really helps me as a visually impaired person.

[TR in conversation with AJ:]

People think Blindness is an on or off, so you see everything or you don’t. I know that there are real specific challenges for people with low vision when it comes to that.

AJ:

I’m glad you brought that up. There could be things that I can see one day and the very next day I won’t be able to see. I look like I can see and so people they start laughing or they think you’re lying or they think you’re not looking hard enough. I’m like I can’t see this.

Even when I’m in my power chair I would rather like walk behind someone so it could be like a human guide.

TR:

AJ’s vision loss is related to his Cerebral Palsy or CP.
It impacts all four limbs so as he described to me, he needs physical assistance with most things.

Most things physical that is…

AJ:

If I was watching Happy Days or Laverne and Shirley or Three’s Company or All in the Family I would create a character, none of it is written down because I’m not able to physically write.

If I was watching Three’s Company, if Jack and Larry were going down to the Regal Beagle well I was too. If I was watching Law and order , no I couldn’t be a detective but I could help Jack McCoy as one of his assistant DA’s. I just made myself a part of the cast.

TR:

AJ’s imagination was open.

His opportunity to hit the stage came in high school.

AJ:

I had such a ball in high school. It was such an atmosphere of like were going to support you and you’re a part of us. My favorite drama teacher his name was Dr. McMichen. I was thanking him for making sure the stages had ramps and I was included in on all the trips.
He let me know, you are a part of this club and a part of these plays and it’s because you are good not because you are in a chair. And that made me feel so good.

TR:

following high school he continued working on his craft by attending workshops and finding a community of other actors.

AJ:

I would say over the last three and a half years I’ve gotten the opportunity to be on screen.

the first thing I booked when I got my agent was, we did an episode of Drunk History. And that comes on Comedy Central. That episode was actually about 504Act. That’s kind of the precursor to the ADA.

Then I was able to do an episode of ABC’s Speechless. I played a character named Charlie.

I was able to do an independent film called Bardo Blues. It’s an interesting very nonlinear artsy film that talks about depression and bipolar. I play the neighbor to the lead.

Audio clip from film…

TR:

His latest role is Best Summer Ever, A Musical.
It takes place in a high school.

AJ:

It’s a romantic story and all kinds of teenage angst ensues. I play the older brother so I’m not involved in the teenage angst but I do sing in the film.

TR:

The film consists of a cast of over
60 disabled actors as well as those without disabilities.
It’s being screened at South by South West on March 14.

You can also see AJ in Becoming bulletproof.
Every year, actors with and without disabilities meet at
Zeno Mountain Farm to write, produce, and star in original short films.

Audio clip from film…

AJ is the focal point of the doc.

AJ:

I also did a documentary, it’s called Take A Look At This heart. So I talk about my experience around my sexuality and dating. So it’s an ensemble so It’s not just me. I believe that’s now streaming on Amazon.

TR:

AJ’s getting some roles and definitely
making a name for himself by judging film festivals, hosting events yet
he found himself in a dark place.

AJ:
Heavy dark! Like I was really, really down.

I was on a walk with my mom. I was in California at the time and it was a beautiful sunny day. It came to me, instead of being down about not getting auditions or you know nobody’s calling or you’re having a hard time with employment; why don’t you write what you want to see?

TR:

By now you can tell AJ puts a lot of thought into what is on the screen,
big or little. So of course he would do the same for his script.

AJ:

A lot of characters that we see it’s either one person with a disability and I’m not saying you don’t ever see it, typically they don’t have any friends. To my experience I have a bunch of friends with disabilities. Not just CP, but all kinds of disabilities.

I just want to lend my voice to reflect that on screen.

TR:

Think Living Single, Friends or the Big Chill…

AJ:

These group of friends, People with disabilities in a more adult context. All with different types of disabilities like CP, like me. He also works. Then you have another character who has CP they walk with a gate. Another character she has a traumatic brain injury and she’s very athletic…

[TR in conversation with AJ:]
And may I lobby for a Blind guy who likes audio and…

AJ:

If we get picked up brother I’ll write you in a couple of episodes.
[TR in conversation with AJ:]
There you go man, there you go!

TR:

Alright, fine, it’s not about me.

In order to physically write his words, thoughts and ideas AJ has a very special writing partner.

AJ:
My mom helps me a lot with a lot of stuff behind the scenes. We’re actually working on a book and that’s going to be out sometime soon and we do public speaking.

TR:

The latter is done under the name, I Push You Talk. What a powerful statement.

Pursuing your passion can really be hard.
There are always reasons to throw in the towel or change course.
Legitimate reasons that wouldn’t in anyway classify someone as a quitter.

For example…

AJ:

Just because you perform in school, that doesn’t mean that it’s going to translate to the screen or you’re going to have this career.

TR:

There’s also the physical pain that comes with his CP.

AJ:

I’ve been in pain since my early teens to pre-teens. As I’ve gotten older sciatic pain and nerve pain over the years have like sort of advanced to like more of a chronic level as far as nerve pain.

My love for everything that I experience and everything that I’m going to and want to experience has to be bigger than my pain.

[TR in conversation with AJ:]

You don’t probably see people with disabilities in many of these films that you are watching.

AJ:

That’s a hundred percent accurate.

[TR in conversation with AJ:]

So it doesn’t sound like that dissuades you.

AJ:

I didn’t necessarily have this as a child but with the combination of my mother speaking to me and my imagination, I just had this sense that it was put inside of me so I’m supposed to be doing what I’m doing.

There’s people of faith in my family so I do have spiritual background. With all those things combined because of my atmosphere, I’m the man you’re interviewing today.

Audio: AJ Scratch… Ladies singing “AJ” while beat rides under…

TR:

That’s Mr. Ajani Jerard Murray.
Actor, Writer, Speaker, Consultant and soon to be Author Producer &…


AJ:
Things sort of have this way of coming back around full circle. I’ve gotten into podcasts and I want to start a podcast and I want to do it with a group of people like a morning radio show. Sometimes my dreams are very big and lofty, but I have a lot of faith and I believe it could happen.

TR:

It really does all start with imagination.
And it continues with that determination, persistence and faith.

AJ, brother, thank you for letting me share your story!
And you know what’s up, you are officially a member of the Reid My Mind Radio Family.

You can reach AJ via social media at:
Twitter – @GotNextAJ
Instagram: @AjaniAJMurray
Ajani Murray on Facebook

You can catch both
Becoming Bulletproof and Take a Look at this Heart
streaming on Amazon.
For those with that prime membership it’s included.
Unfortunately they don’t have Audio Description, however Becoming Bulletproof does at it included on the DVD.

Best Summer Ever is screening at South By South West so if you’re hanging out there go check it out.

I’ll have links over at Reid My Mind.com to AJ’s social media and more including a web series on YouTube.

I hope you enjoyed getting to know AJ as much as I have. I look forward to continuing our conversations and I have a feeling based on his thoughtful insight that you’re going to hear from him again in this space.

If you agree that what we’re planting here on the podcast can provide some nourishment or maybe a sweet treat, please share it with others.

Ya dig!

If you want to help it grow a bit, you can even go on over to Apple podcast and leave a rating (5 stars, a review would be pretty cool too!

Please, , do not apply water to the podcast, that will not help it grow at all!

Reid My Mind Radio is available wherever you get your particular flavor of podcasts. Remember links and Transcripts are at ReidMyMind.com.
That’s R to the E I D
Audio: Slick Rick, “D, and that’s me in the place to be!”

TR:
Llike my last name.

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

Adjusting to Vision Loss – A Creative Approach with Victoria Clare

Wednesday, February 19th, 2020

Victoria Clare with sculpture
Living a creative life for Victoria Clare is more than a way to express herself. It serves as a way to help her own adjustment to vision loss

Hear her story from denial and rebellion to acceptance and putting her in a position to support others.

Victoria Clare is a Sculptor, Musician, Entrepreneur… and she’s working on becoming a Scratch DJ! For real though!

Listen

Resources

Transcript

Show the transcript

TR:

What’s up Reid My Mind Radio Family? I missed you all for real!

Happy 2020 to you all!

A bit of a slow start, but you know, you can’t hold a brother back!

So much of what’s going on in the world today makes it more challenging to find that hope and optimism.
Audio: There’s no need to fear…”

Reid My Mind Radio is here!

Let’s get this poppin

Audio: Reid My Mind Theme Music

VC:
“Creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.”

TR:
Getting to know who you really are is a big part of our early lives especially from our teenage years and on through college. For Victoria Clare, an artist specializing in sculpture, vision loss added to the process.

VC:

I just passed my driving test. I never had a lesson at night ever. Not any reason to that its was just my lessons were never booked for that time. When I passed my driving test I jumped in my car very elated wanted to go tell my boyfriend at the time that I passed my test.
Pulled out of my mom and Dad’s driveway and all of a sudden it became very very apparent to me that I really shouldn’t be driving. I just could not see enough to be driving.

TR:

On that ride to her boyfriend’s house, she clipped another vehicle and lost her driver’s side mirror. Fortunately, no one was hurt. It was enough to prompt her to see an Ophthalmologist

VC:

That’s when I found out I was going to go Blind.

TR:
The diagnosis was Retinitis Pigmentosa.

VC:
My particular Retinitis Pigmentosa is one of the recessive types so therefore we have no people in the family that have had it. So I’m literally the start of the chain if you will.
So finding that out as well kind of made me feel like wow what a responsibility. For me to get married and have children later in life would be a big choice for meat some point in my life which I was very aware of. However, I went back to college.

TR:

College in the UK refers to where many students go for two years after completing compulsory schooling at 16 in order to prepare for
exams to get into university. You can also take
vocational courses
at college.
While studying graphic design with plans to move on to University to continue in this field, Victoria just happened to come across a book about sculpture.

VC:

I knew when it was time for me to go to University that graphic design wasn’t for me. Sculpture was going to be my future
It was an amazing course. It only had 28 places in the whole of Europe. I was lucky enough to get one of those places.
I didn’t really consider that perhaps, hold on a second I may not be able to do this, I just carried on.

TR:

For some that may sound like optimism, positive thinking. But others who have been down this road would probably advise differently.

[TR in conversation with VC:]
Did you have contact with anyone else who was experiencing Vision Loss, anyone whose Blind?

VC:

No. No I had no contact with anyone like that.

TR:

Blind mentors can often help provide guidance, resources, and lend an understanding ear when dealing with all the additional loss that more than often accompanies the vision loss.

VC:

I had a lot of people kind of walk out of my life or just feel very awkward around me and didn’t know how to handle it.
My boyfriend I was with at the time, we got engaged, and he kind of was really struggling with the sight loss diagnosis and he actually saw it as too much for him so the relationship broke down.

[TR in conversation with VC:]

His loss! Hmm. We don’t like him.

VC:

Yeh!

TR:
Victoria soon learned that carrying on would require skills that she didn’t have. Living independently in a new town, navigating both in and outdoors.

VC:

I didn’t realize how simple everyday things would become so difficult for me. I had a hard time at Uny for a very short time, I mean literally I wasn’t there for very long before I decided that I can’t do this. It’s too hard. I left.

My lecturers said to me that I was welcome to come back at any time. Which was really really gracious of them considering it was such a prestigious course.

I had a conversation with my parents, they were incredibly supportive. They came and collected me.

TR:

Back at home Victoria says she isolated herself from the world.

VC:

And I started drinking. Initially it was about trying to numb the pain. I just felt like my whole world had shattered into a thousand pieces. I didn’t know how I was going to go forward. I didn’t see a future for myself .
And then something happened.

TR:

To put it simply, Victoria was introduced to possibility. It came in the form of a rehabilitation specialist.
A really lovely lady. She had a work cut out, to be really fair, with me. I was really super rebellious so I didn’t want help from anybody. You know, don’t treat me like a Blind person bla, bla, bla you know a typical kid.
TR:

Soon after meeting, the rehab specialist realized Victoria wasn’t going to use a white cane.

VC:

I just was not going to use one. I wanted to learn every trick in the trade so I could get away without using one.
She started to teach me other things like echo location, which is still really useful to me. trailing, just small things like that, that was getting me by.

TR:

Sometimes it’s the smallest suggestions that have the greatest results.
She was the one that suggested that maybe I should try some sculpture just for therapeutic reasons.
I went out in my Dad’s shed, I got a big old’ block of wood, stole some of his chisels, used his mallet and started creating. It was amazing. I turned my world around because it made me realize alright, I’ve been diagnosed with this sight loss but nobody’s taken away the skills that I’ve always had. They’re still there.

TR

Remember the skills that she began sharpening in University?

VC:

The background and the love was the figurative work so I created a kind of table top size maybe like two feet tall female figure. I called it “Her Spirit”. that was put into a local gallery and sold. I then kind of returned and created another figurative female figure which was also sold. My work has changed a lot over the years but most certainly it was more figurative work back then.
[TR in conversation with VC:]

Did it represent something in your life at that time or what was that all about?

VC:

I would say for me it was more to do with the fact that the course that I had to leave in Uny was a figurative sculpture course. So of course I was kind of making that connection of wanting to keep the figurative sculpture part of me going even though if I had to walk away from the University

[TR in conversation with VC:]

How much of an influence is blindness. The subject of blindness not necessarily your adaptations if there are some but how much does that play into sculpting specifically.

VC:

Now a huge part because I get inspired by it. For example only two years ago that I put on the first sculpture exhibition that was completely in a pitch black gallery. everybody had to use their other senses to discover what the pieces actually were.

TR:

This particular exhibition enabled Victoria to express herself in three different ways.

VC:

It was to share my personal acceptance of my journey with sight loss. It was to also kind of share sight loss with the general public so that they would have an experience and an understanding of what it feels like. And three it was a very strong message to visual arts because they really , really need to up their game when it comes to accessible art in galleries. Most certainly for visually impaired people . When you walk into a gallery how do we navigate and involve ourselves in our environment? By feeling. To be told that you can’t touch a piece of sculpture a piece of art you’re immediately excluded from enjoying it.

TR:

The exhibit, a first of its kind received national media coverage and all of the pieces were sold.
the result opened new opportunities for Victoria including serving as a retina UK Ambassador

VC:

Raising money to create research and pioneer research for Retinal Dystrophies. public speaking started to grow from there really. I get to speak at conferences and various events. I’m speaking at the World 2020 Vision, that’s in Dublin and also chairing a panel.

TR:

The latter is a chance to meet others impacted by vision loss.

VC:

There’s a connection there. It’s something very special.

TR:

A big part of her personal journey is creative expression. Something Victoria believes can be of help to others adjusting to their own vision loss.

VC:

I would recommend anything that will lift somebody’s mood that will connect them to who they are and make them feel that they are enough and give them self-confidence and self-worth. From sculpture to painting, from dance to music and anything in between. I would just say creativity is one of the most powerful, healing, it’s one of the most connective things that you could ever do to get to know who you really are.

TR:

Her own creative expression goes beyond sculpture.
There’s music which began around the same time as vision loss. Specifically, she began learning guitar from a friend.

VC:

Probably one of the things that helped me as I rewind going back to those dark days because I would sit when I was alone and if I was feeling down would just play my guitar. Just compose. I did find that a little comfort at the time.

TR:

About 13 years ago now, she discovered piano.

VC:

I used to be working in a school and this piano was sitting in the hall never being used and I’d be the only person working up a tinkle you know. Slowly but surely I started thinking you know what this is great, I love it and I ended up buying that piano off of the school and it’s sitting in my spare room now. (Laughs)

TR:

And you’re recording your music?

VC:

I Literally just come out of the studio.
Audio:
“Know you Matter”, Victoria Clare

TR:

Singing and performing in bands since she was 23 years old, “Know You Matter” is Victoria’s most recent production. It’s a message to all those that have self-doubt and serves as a personal affirmation to remind her that she matters. She hopes it will resonate with others.

Know You Matter is available on ITunes, Apple Music, Spotify and just about wherever you listen to music.

Next up creatively…

[TR in conversation with VC:]

And you’re rapping too?
Laughs!

VC:

Laughs! Working on it. I want to get into a bit of scratching, you know Tom. Laughs…

TR:

She’s serious! She’s a Hip Hop fan.

Dela 1

VC:

I like a lot of Hip Hop, Dance music, but then I like a lot of singer song writer stuff.

[TR in conversation with VC:]

Since you said Hip Hop, who did you like?

VC:

I absolutely love Dela Soul. Yeah they were definitely my favorite.

TR:
The more I think about her art, it makes sense. She takes an existing piece of wood and crafts that into a whole new thing. That’s Hip Hop.

This past Christmas Santa brought her a DJ controller or the modern day DJ turntables so who knows what she’ll create.

I know what you’re thinking, does this woman ever get bored? Well, she has the answer for boredom.

VC:

Board sports! (Laughs…)
[TR in conversation with VC:]

Yeh, I guess which is really another form of expression I would say.

VC:

When I was 23 a big life change happened for me because I decided to go backpacking with my best friends around the world. Probably the best thing I ever did. I was being faced with beautiful beaches and all the surf community and I was sitting there watching all these guys and girls just riding those waves and I just longed to do it but in my head the voice was saying you’ll never get to do that you’re going Blind you can’t do that.

TR:

If this were a movie, we’d queue up the dramatic music, the camera would pan out to the others easily riding the waves, maybe one falling off the board. The scene would move to Victoria slowly looking at a surf board next her and then back out toward the ocean. Seated on the san, she’d confidently straighten her back, stand, grab that board and sprint toward the water. Her friends would cheer her on as she paddled out to catch a wave…
But this ain’t no movie!
She privately held on to that desire like so many of us do.

VC:

It wasn’t until 2014 that I was actually doing my first solo exhibition. it was a really big14 piece collection exhibition. It was quite stressful at that time trying to do everything for it.
TR:

That’s when her husband had an idea.

VC:

Let me teach you how to surf . And that was it, I was hooked.

TR:

Once upon a time, she was adamant about not using the white cane. Today, Victoria puts that long white cane to good use.

VC:

Skateboarding!

TR:

that’s her way to expel that board energy when she can’t hit the waves.

And of course, where does Victoria go from here.

[TR in conversation with VC:]

You have a line of skateboards?

VC:

Yep, I’ve got the…

[TR in conversation with VC:]

Geez, you make me tired. (Laughs)
I got to up my life! I’m not doing enough.
(Laughs)

VC:

they’re called Blinded Soul and they’re bespoke solid deck skateboard.
When we started surfing we also taught my nephew to surf and then I took that one step further, I made him a surf board. I did the same for skateboards. I was just so amazed how smooth a ride they are. They’re built like in a retro style. They’re not built for tricks, but they’re definitely built for long distance really, cruising.

[TR in conversation with VC:]

The other day when I was reading your blog I was like man I think I want to do this. (Laughs…). Like, I want to try skateboarding Now it’s been years. I skateboarded as a kid.

Audio: from “It’s A thin Line between Love & Hate”
“Here I am laying in the hospital, bandaged from feet to head

TR:

Ok, all jokes aside, I’m going to give that a try.
My personal creativity and expression for a few years now has been less about sports and physical activity today compared to my past.

For anyone experiencing vision loss, finding a creative outlet is worth exploring. It’s hard because the reality is for most these endeavors just don’t help pay the rent.
But that’s not a reason to not pursue a passion or interest. there’s levels to this stuff. find your level and enjoy. The benefits are real.
Victoria’s pursuit of her own interest in music proved fruitful in ways she probably never expected.

[TR in conversation with VC:]

You mentioned your husband. Did your husband know about your vision loss initially?

VC:

Yes, yes. We met through a band that I was in. I was the singer he was the drummer. he had the same kind of silly sense of humor I guess that I’ve got. We’d just have good fun. He would drive me home after rehearsals and stuff. probably only took a couple of months for me to realize that a. how much I liked him and b, I had to tell him.
I sat in the car with him one night, we were just outside the flat where I was living at the time. And I had to take a very very deep breath and I told him. He just hugged me. And I said to him if this changes things you know it’s ok. And he was like no way. I just couldn’t imagine it changing anything between us.
He’s a very, very positive person. Very optimistic. He supports me in everything I do.

[TR in conversation with VC:]

And what’s this fine gentlemen’s name?

VC:

Ah, this fine gentlemen’s name is Adam.

TR:

you just never know where the pursuit of your interests may lead.
Victoria talks about all of her endeavors over at her blog Beyond Vision.

VC:

I want to reach as many people as I can. I want to support as many people as I can but along the way I want to share my vulnerability as much as my successes. I think it’s all very well to sit an talking about all the wonderful things that you get to do with your life but I think it’s more important to share also the vulnerable side of you too because it makes you more relatable. I really do get quite honest with my blogs. They really do tell a story within themselves. They’re raw, they’re authentic.

TR:
T
Encouraged to write her own story in the form of a book, first reluctant, Victoria eventually had an idea to help make the task more attainable.

VC:

What if I started thinking like the book is an extended blog?
So I got in touch with an editor, Molly Somerfield Smith, lovely lady she’s actually a ghost writer. When I first wrote to her I was kind of talking in a way that I wanted her to write it but she was the person that said to me you’ve got to write this yourself. This is your story this can’t come from me, this has got to come from you.
here I am a year later and she’s now got the version that I put together and she’s editing.

[TR in conversation with VC:]

First of all, I see that you’re doing audio blogs. So it’s not enough that you’re doing all the other stuff now you gotta come on into audio? Come on Victoria let some other people keep the audio… (laughs…)

VC:

You know what tom, it’s purely for selfish reasons.

TR:

For the record, I actually welcome and promote more of our voices in the space.
By now you probably can tell Victoria is all about productivity. She’s voice recording what she would have once written for the blog.

To check out her work and more…

VC:

I’ve got my professional website which is for the sculpture and that is www. VictoriaClareSculpture.com And then I got my advocacy website, VictoriaClare-BeyondVision.com. Where there’s all sorts of crazy stuff going on and it’s also got a lot of resources , support and that kind of stuff. And that’s where the blogs are as well.

TR:
Victoria’s working on moving her sculpture website to a more accessible platform.
You can also find her on Insta Gram at VictoriaClareSculpture. That’s Victoria Clare (spelled out)
Don’t forget to go on over to ITunes or wherever you get your music and get her latest single Know You Matter.

Audio: Break of Dawn, DeLa Soul

Shout out to Victoria Clare for sharing her journey. And shout out to Steph McCoy for making the connect!

I’m always hopeful that somehow this podcast finds those who are in the place where many of us once were.
That’s losing their sight, receiving a diagnosis they never expected, maybe fighting against the idea of using a white cane.

It’s easy to focus on what is being lost but as we heard today, the pursuit of those things that bring joy can really help you find what you’re seeking. It’s just right around the corner.

Audio: Lyrics… “Break of Dawn”

If you like what you heard today, subscribe wherever you get podcasts. Why not tell one or two people about what’s taking place here.
Let’s get this information into the ear holes of those who need it the most. In fact, you know we’re about that access here so it’s available for finger tips and eyes too in the form of transcripts available on ReidMyMind.com

That’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

The 2019 Rap Up… Yes, Rap Up!

Wednesday, December 18th, 2019

A brief update about what’s been going on with the podcast as well as some thoughts on the future. I’d really appreciate feedback!

I was inspired to take a look back at this year’s episodes and create an “original” production I’m calling the RMM Radio 2019 Rap Up. It features my daughter Raven Reid along with yours truly spittin’ that fire!

Shout out to DJ Pain 1 for this free beat on YouTube that just inspired the hook!

“It’s 2019|And it’s the end of the year| Here’s some episodes, that you should really hear| 2020’s on the way| We don’t have long to go| Do the right thing, subscribe| Reid My Mind Radio”

Happy Holidays!

Listen

The 2019 Rap Up Video

Ok, maybe I was just having way too much fun… I decided to make a video of the Rap Up song.

The video simply contains mainly still images of those episodes featured in the song. Since it features my baby girl Raven, I decided to take some footage from a video of her when she was much younger, maybe 3 or 4 years old!

Transcript

Show the transcript

TR:
Happy Holidays Family!

Ok, so this is the actual last episode of the year. Although I consider these sort of extra. To me the real nourishment, the value are the people you meet every two weeks. Those are the people you should know. Me, I’m just the guy who enjoys bringing them to you.

Oh, if you’re new here, please be sure to check out the meat and potatoes, those other episodes I referred to. And allow me to introduce myself to you I’m Thomas Reid host producer and the extra garnishment on the plate and I guess I’m the Chef who serves it all up! I’m also the pro at running the heck out of a metaphor.

Audio: Reid My Mind Theme Music

TR:

In 2018, I started thinking about taking this podcast to what I considered a next step. That’s moving from a passion project, aka a total personal expense to a sustainable venture; at the very least having the expenses covered.

At the most, I’d expand the podcast in scope and frequency. That would include multiple producers and other talent. Specifically, blind or low vision producers and those with disabilities.

That shot was with the Google PRX Podcast Creators Program.

When Google announced they were getting into the podcast business, they also decided to team up with PRX, the Public Radio Exchange to help find and train podcasters that were creating for diverse or marginalized communities.

I figured, I meet these qualifications! I applied.

I made it to the semifinals but ended up not making it all the way. I was encouraged to try again during the second round of the program this year. I did.

Out of something like 10,000 entries, I’m happy to report that Reid My Mind Radio made it to the finals. We didn’t win, but we sure enough didn’t lose!

The PRX team invited two other runner up teams and myself to join the 6 winning teams in Boston for a podcast training boot camp. It was very cool. I met some great podcasters from around the world including Brazil, Columbia, India, Lebanon and Spain. And then some much closer including the only winning team from the US in New York/New Jersey and the other two runner ups from Boston and Oakland.

A big shout out to all of the teams including the PRX training team. It was cool to be among other podcast creators.

Audio: “What’s Your Name?”

One of the things that I’ve been thinking about is the name of this podcast. I know it doesn’t exactly communicate the goal of the show. Obviously, there are better names that I could come up with that would make for better Search Engine Optimization especially for those searching Apple Podcast based on a topic like; adjusting to Blindness or disability.

On the last day of the Google PRX Podcast Creators Program Training Boot Camp, each team had to present their show to a panel of podcast industry experts.

Audio: Mark Intro…RMMRadio

That was my intro, you know I got hype right?

Anyway, some of the feedback I expected was around the name. A lot of people actually were interested in hearing more about the personal experiences. That’s something I’ve been told on several occasions, but have resisted for various reasons.

If I do eventually decide to re-brand what we do here, I will definitely keep Reid My Mind Radio and maybe start to share more of my personal experiences and maybe comment more about blindness and disability related events and issues.

What do you think about me changing the name of the show going forward? Maybe re-branding and repurposing Reid My Mind Radio?

let me know if you would be interested in listening to this type of thing. ReidMyMindRadio@gmail.com or 570.798.7343.

All in all, it was a good year for the podcast.

This is where I should insert flashbacks from this year’s episodes. You know a wrap up.

Then, as I was sleeping I had a thought or maybe it was a dream. Maybe

Audio: Dream harp

Audio: Reid My Mind Radio 2019 Rap Up

Music begins…

TR Talking:

So I figured this year 2019 we should do like a wrap up. It’s Christmas time right? Well not a wrap. Really it’s an rap.

“Coo Caw” Bird wings flapping…

I did bring somebody to help me out. Close out the year, you know, in a special way

Music Crescendo….

My baby girl, Raven Reid, get ’em, hah!

Chorus Raven Reid sings…
It’s Twenty Nineteen
And it’s the end of the year
Here’s some episodes
that you should really hear
2020’s on the way
We don’t have long to go
Do the right thing, Subscribe
Reid My Mind Radio

Verse – TR:
First ep in 2019, I was talking opportunity
Just feeling positive for you and me
Next was the first of more to come
The topic, Audio Description ,
“Read by Roy Samuelson” (Audio from Audio Description)

Episode 3 was right on time
Yes, celebrating 15 years of being blind

Black Disabled History was episode 4
Straight from Krip Hop called my man Leroy Moore
(Audio: Leroy Moore says “Krip Hop!)

Now William Greer, he was referred to me
He’s from the film fest, cinema touching disability

Access is Art, you should know what I mean
If not check Episode 6 with my friend Cheryl Green
(Audio: Cheryl says, “It’s about equity!”)

Shout out Alice Wong amplifying
(Audio: Alice says “Disabled voices of color”)
That’s why Disability Visibility.com is like no other

We say Representation matters, they say what’s the fuss
I’ll remember in the dark, hashtag LetUsPlayUs?

Chorus Raven Reid sings…
It’s Twenty Nineteen
And it’s the end of the year
Here’s some episodes
that you should really hear
2020’s on the way
We don’t have long to go
Do the right thing, Subscribe
Reid My Mind Radio

Verse 2 – TR:
Day Al Mohammed produced and directed the Invalid Corps
She does policy, writes books and a whole lot more
(Audio: Day says: “Invalid Corps”)
Elizabeth Sammons is an author touring the country in an RV
At least that’s where she was when she spoke with me!

I Always rep the BX, New York City
Shout out to Prince Bri, Power Not Pity
(Audio: Power not Pity opening music…)
Is there room for the blind on the AD scene
Ask blind consultant, her name’s Colleen

Audio Description there’s more to the game
like describing Sports, Conferences, right Kat Germaine
(Audio: Kat Germain says “Yes”)
Next 3 eps feature the spark event
Sue talked about it and she’ll be back again!
(Audio: Sue says” We’ll sit down for another one”)
Mom and author Kristin Smedley was there live
She says It’s not just her kids but we can all thrive.

She started Captivating, Bold Blind Beauty Oh Boy!
Third time on the podcast, what’s up Steph McCoy
(Audio: Steph laughs…)
Chorus:

TR: “Take it to the bridge”

Bridge Raven Reid Spoken Word…

Since 2014 when this podcast was kicked off
It was geared to anyone feeling vision loss

See, those newly adjusting, it’s their own abilities they question
Reid My Mind Radio is changing perceptions

If you haven’t done so yet, hurry, act fast
Subscribe at ReidMyMind.com or wherever you get podcasts!

Make sure you spell Reid, R E I D
The podcast making blindness funky!

Verse 3:

Question, are Leaders made or are they born
The answer comes from AFB’s Megan Aragon

Landing your dream job is more strategy than luck
Coach Nancy gives some game plus she gives a duck
(Audio: “Quack, Quack”)

Audio description & physically integrated dance
Alice Sheppard, Laurel Lawson, Audimance

Man, this year flew by, like 1 2 3
Closing it out, my Bro Joe Strechay,
(Audio: Apple TV Plus)
See!

TR: “Daddy Daughter let’s go!”

Chorus – Raven Reid & T.Reid: (Repeats)
It’s Twenty Nineteen
And it’s the end of the year
Here’s some episodes
that you should really hear
2020’s on the way
We don’t have long to go
Do the right thing, Subscribe
Reid My Mind Radio

TR:
That was fun!

Merry Christmas, Happy Chanukah, Happy Kwanza Happy Three Kings Day whatever you celebrate or don’t.

All the best to you, Reid My Mind Radio Family from the entire Reid family.

And of course, so there’s no confusion, that’s R to the E I D, like my last name!

Audio: Reid My Mind Radio outro

Peace

Hide the transcript


The 2019 Rap Up… Yes, Rap Up!

Joe Strechay: When Preparation Meets Opportunity

Wednesday, December 4th, 2019
A picture of Joe Strechay with his cane in hand, standing in conversation on the set of See.

Image Courtesy of Apple

An RMM Radio O.G (Original Guest) is back! Joe Strechay, former Director of the Bureau Blindness & Visual Services of Pennsylvania and Blindness Consultant tells us all about his work on the new series See from Apple TV Plus. Yes, he found himself hanging out with See cast members like stars Jason Momoa and the legendary Alfre Woodard, but the job required some real sacrifices.

Jason Momoa as Baba Voss stares out past the camera. His eyes are white, face is scarred. See from Apple TV Plus

Image Courtesy of Apple

We dive in to see exactly how the events from his past lead him to being the right man for the job. Let’s just say he has a particular set of skills!

But his adjustment to blindness wasn’t all glitter.

Listen

Resources

Transcript

Show the transcript

TR:

What’s up Reid My Mind Radio Family!

Welcome bac to the podcast.

First time here? Cool. Allow me to introduce myself. I’m Thomas Reid host and producer of this podcast. This is the place to be if you want to hear from compelling people impacted by all degrees of blindness or disability in general. They all share one thing in common; their dope!

Not because they’re doing anything magical. No, their human. In fact, many of them have been where you may find yourself right now.

If you’re uncomfortable with those words, blind, disability, that’s ok for now. But take a listen to how comfortable my guests are with these words at their current place in their life journey.

Your journey will be different, but you’re definitely on one. And the R double M Radio family and I are here for you.

I think there’s only one way to bring on this one; lights, camera, action!

Audio: Reid My Mind Radio Intro

Scene from See…

TR:

This is a scene from the premiere episode of the new series called See available on Apple TV Plus.

Audio: Scene includes Audio Description Narration

TR:

yes, there’s audio description.

Here’s the synopsis from the opening scene

Audio Describer: Following the outbreak of a deadly virus in the 21st Century, the Earth’s human population was reduced to less than 2 million humans who survived all emerged Blind. Now centuries later the idea of vision exists only as a myth. To even speak of it is considered heresy.

TR:

Well RMM Radio you should be proud because in a six, well three, degrees of separation sort of way you are each connected to this new series. No, not because you yourself may be blind, but because one of our family members are let’s say, associated with the production of the show.

JS:

I’m Joe Strechay, I’m a Blindness Consultant for Apple TV Plus’s See, which is a streaming television show. And I’m also a Blindness Consultant out in the world outside of that working with organizations around blindness.

TR:

That’s right, our brother is back! He’s and O.G. in the R double M R Family.

Audio: Air horn

I couldn’t let 2019 end without discussing See and the role Joe played in its production. And even more in tune with this podcast is looking at his life path and how embracing his blindness helped his journey.

[TR in conversation with JS:]

Why don’t you catch up the family, because you’re part of the Reid My Mind Radio family big time!

JS:.

Definitely!

My favorite podcast around blindness! You heard that, favorite one!

Audio: Joe singing “Radio”

Last time you heard from me I was the Director of Blindness & Visual Services for the Commonwealth of Pennsylvania, overseeing the services for people who are Blind or Low Vision. I’d been working in the entertainment field part time over the last years.

TR:

That includes working with writers of the shows like Royal Pains, The OA on Netflix and of course Marvel’s Daredevil.

Audio: Clip from Daredevil episode.

While working as the Director of BBVS Joe was presented with an opportunity.

JS:

Apple TV Plus’s See Production in their infancy days reached out to me to see about working on the show. I had an interview first with the creator of the show Steven Knight and Jenno Topping who’s the president of Chernin Entertainment one of the studios involved. I think one of the Executive Producers involved was on the line as well. And then I had to do a Skype interview with Francis Lawrence who’s an Executive producer and the Director for episodes one through three. Once I cleared Francis I was able to land the position. We kind of talked about it and I talked to the production staff and it sounded like it was full time. And I’m like I’m going to have to leave my place of employment.

TR:/

His responsibilities first began with part time work. Consulting on scripts and exchanging ideas via a secured platform and conference calls in the evenings.

A day or two after his final day at the Bureau

JS:
I flew to British Columbia to officially start my full time job.

TR:

So what exactly does a Blindness Consultant do in the making of a series like See?
Audio: available on Apple TV Plus.

There’s the pre-production work like reviewing scripts and providing input…

JS:

We prep’ d for almost two months in person. We worked with a movement director like a choreographer type person and a team of choreographers.

I have lists of these little aspects of blindness that most people don’t know about. You’ll see more and more of that in the scripts I would say four through eight and maybe most people won’t notice them, but they’re in there.

Walking through some of the set pieces and saying oh, I think I would do this. Meeting with the set dressing department who puts out the objects that are set out in the space. Where I would put stuff, how I organize things.

Ideas for props. Even the weight of the props. How they might use that prop. Kind of help create the world with this amazing creative team.

TR:

A world, Joe points out is not of blindness.

JS:

It’s a Science fiction world probably somewhere between now and 100 or 200 years from now somewhere in there, a viral apocalypse happens. Kills off the majority of the population of earth. There are just a few million people left on earth and then those individuals emerge blind. Our show takes place centuries after that where civilizations have built out different environments.

It’s not a world of blindness, it’s a world of See really.

TR:

Definitely not a real world and therefore not a true depiction of how Blind people live. But representation matters. You know, sometimes you just have to take a stand!

JS:

There were definitely times. We did a lot of exploration around these people and making them different, each group different. Even differentiating the posture of people for their environment and like how they do things. There were times when I was yeh, I don’t think we’re gonna do that!.

TR:

Yet the science fiction format is known for exploring social and cultural issues.

JS

Our show battles with Ableism purposely at times.

TR:

Specifically, exploring, what happens when a set of twins are born with the ability to see in a world where everyone is blind

JS:

What people with vision might think versus people who are Blind. In a world where everyone else is Blind. Seeing that battle, seeing where people who are Blind are better at some things and people with vision are less than. I love that aspect. Everyone has different skills.

TR:

Multiple members of the cast are actually Blind or Low Vision. Again, representation matters.

JS:

One of the things I was really proud of in our background and some of our actors had other disabilities. We have background who are Deaf or Hard of hearing, a gentleman with Cerebral Palsy, all kinds of different disabilities. Our show embraces that. We want to make sure people have opportunities. These were talented interesting people that we could include in our show. There are people with other disabilities that you’ll never know that are within the show and even behind the scenes in production. It’s not because of their disability, it’s because they’re talented individuals.

TR:

As the majority of See’s characters are Blind, Joe is working closely with each. This includes the show’s lead, Jason Momoa.

Audio: Scene from see featuring Baba Voss played by Jason Momoa.

JS:

He’s super nice. He has a big heart and he brings so much consideration, energy, enthusiasm ideas. I’ve never met someone so creative. He sees things in the scenes. Most actors they see their role and their part in the scene, but he sees the whole scene at many times like where other actors are and what kind of story you can show with the angle. He’s directed.

TR:

Directed, co-wrote and starred in Road to Paloma a 2014 Drama thriller.

Also starring in the series is the 4 time Emmy Award Winning Alfre Woodard.

Audio: Scene from See featuring Paris, played by Alfre Woodard.

JS:

She taught me so much and continues to. Brings so much to our show and just as a person is an amazing friend as well.

That’s the thing I didn’t just make professional relationships it’s like so much bonding. We spent like six weeks at least in remote areas if not like 10.

TR:

That’s Joe with the cast of See

Audio: available on Apple TV Plus.

JS:

So Nesta Cooper, Archie (Madekwe), Mojean Aria, Hera Hilmar and all of them became my friends.

We spent time in an isolated area in British Columbia which is in Vancouver Island. There was a pub at our hotel and pretty much was the only place you could eat or drink! We’d have like an hour and forty five minute ride to set and back each day, so long days. You’d go to the pub and hangout.

[TR in conversation with JS:]

Now you’re there full time so you’re living there while you’re working. Were you the only Blind person there?

JS:

Yeh, at first I was the representative of Blindness originally, working through the setup of the show in person. I was there for 9 months originally and then another month for re-shoots. I became part of the Blindness community in Vancouver in British Columbia. The community really invited me in. I started going to audio described theater in the area. There was an international Goal Ball tournament I went to. I went to this organization’s Blind Beginnings events. Met with CNIB, the Canadian National Institute for the Blind and the Blind Sports Association of British Columbia and Canada. They were fantastic. Going to fundraisers for different groups and going to see the Blind Hockey team practice. They actually started becoming part of our background in our show.

TR:

Away from home for about 10 months, eventually Joe moved into an apartment after spending about three months in a hotel.

JS:

Right next door they had one of the best breakfast or lunch places . I met a couple of people out at this Ramen shop in the neighborhood who work there. I was eating Ramen and having a beer and we just started chatting. We became really good friends. Charlotte and Sebastian. My wife hung out with her too when we came in. I met so many people in the community. I was definitely in the community doing things. Going snow shoeing with friends.

[TR in conversation with JS:]

Laughing…

Ok, so I kind of want to move this to your career. And what you just talked about I think is probably an important aspect, especially from what I know about you. Networking, but really I don’t want to just call it networking because I feel like you’re a relationship guy. How important has that been in your career? Like that aspect of your personality.

JS:
You know throughout my career I moved up and down the East Coast to places where I didn’t know anyone at all.

I literally make an effort to go out places and sometimes it’s tiring you know, you worked all day, but that’s how you meet people. That’s how you become part of the community. That Ramen shop I went to a lot, I love that Ramen shop. they know me by name there(laughing). I also stick out, I have long hair, a beard and white cane so…

[TR in conversation with JS:]

Laughing…

JS:

But it has been important. I’m careful to ask people about what they do, their life, what they want to do. The same stuff we do in career counseling. That’s a great thing about blindness, I don’t judge a book by its cover. I just met someone and I talk to them . For the better or worse and typically for the better. Once in a while I get screamed at from some random person for no reason but you know everyone’s dealing with something.

TR:

Whether it’s moving to Florida for his Master’s degree or West Virginia where he ended up meeting his wife;

JS:

I meet people, I get to know them, maybe exchange information. If we click as friends or if I can help them I’m always willing to help people and connect people.

Yeh, I’m a relationship guy for sure!

TR:

Looking back, we can see signs of Joe’s interest and early preparation for a career in the entertainment industry.

JS:

I love television and movies. In high school I worked my four years at a video store, a VHS store.

TR:

For those too young to recall, A video store is like having a bunch of Netflix’s oh wait my bad, Apple TV Plus, in stores in every community. Rather than opening an app and making your selection, you’d have to leave your house and get to the store. You’d search the shelves for the movie that you wanted. If it’s there cool, take it to the front desk and pay to borrow that for a day. Now hurry home and watch it but don’t forget to bring it back the next day or you’ll have to pay additional fees.

Whew! Hooray for technology!

JS:

In college I never thought about working in film really, but I took a film and literature class. I enjoyed it.

TR:

His studies included the portrayal of minority characters as well as gender roles in film.

After receiving his Communications and Public Relations degree hhe went out into the world.
JS:

Worked in Public Relations right after school but I didn’t fall in love with the product side of it. I’m mission oriented I want to see things succeed.

TR:

Joe even came pretty close to landing the coveted job of a NBC Page.

JS:

I made it out of they said 10,000 or so. Six people on a panel interview with four people interviewing us. And it was like Valedictorian of Howard University, Valedictorian of another or a guy who worked on 20/20 already. Legally Blind since 19 and I had that opportunity to be part of that six.

I didn’t have all the skills I should have had to be successful at that point. I learned from it too.

TR:

Audio: I have a certain set of skills…Scene from “Taken”.

Joe’s particular set of skills include his Master’s degree in Orientation & Mobility.

But skills are only a part of what it takes.

JS:

When I had the opportunity to work with entertainment programs a little bit at American Foundation for the Blind and then more so with Netflix’s Marvel’s Daredevil which I did outside of my work at AFB. I had to complete all of my duties plus all my work so I was travelling all over the country, using New York City as my home base. There’s a lot of sacrifice.

TR:

Sacrifice is leaving a comfortable position and putting yourself out there for possible disappointment.

JS:

I’ve been offered other entertainment opportunities for movies. They want you to leave and be full time for like 2, 3 months at the most. To leave a full time position to go do that is a gamble. It was a big decision. My wife Jen and I discussed it and weighed the options. I sought advice from friends I worked with on other productions. When it came down to it, it just seemed like a unique opportunity. A game changer to impact the world but also they were committed to hiring actors that were Blind and Low Vision as well and wanted me to help with that. Making sure that there was accessibility and figuring out what that was. I never had that opportunity. I worked on other shows but it always just involved the portrayal of blindness, scripts some set advising and props s but this was a full time doing all that and so much more. We were figuring out what my role was as we went. It just kept expanding.

[TR in conversation with JS:]
How important was Apple? Was that a big factor in you making the decision to leave BBVS and go there?

JS:

It was a huge factor. When you throw the name Apple out in our community, the blindness community the disability community, it is like the gold standard.

Since 2009 and the third generation iPhone and even right before that with the Nano iPod where it had Voice Over embedded into it. It changed the game in accessibility. I have multiple Apple TV’s in my home, my Apple keyboard on the table here, Air Pods, iPhone 11 pro here and a iPod Touch over there so when Apple was connected to it I’m like this is going to be something!

TR:

When it comes to Joe’s real motivation, I think it’s pretty clear to see!

JS:

I’m very passionate about the portrayal of blindness in entertainment. I wrote an article about how disability is portrayed for AFB Access World years ago even before my time on Marvel’s Daredevil

Our show shows people as heroes, villains, good guys, bad guys, warriors, lovers. Things that you don’t typically see people who are Blind doing. Living their lives in a community cooking, building all kinds of things like that. That means something to me.

TR:

Did you catch that?

Audio: Rewinding Tape Deck

JS: “Things that you don’t see Blind people typically doing”

[TR in conversation with JS:]
Now you’re on set, working side by side with the Director? That’s pretty cool man! Explain that.

JS:

We had been talking and meeting a little bit. I gave him some ideas and suggestions. He wanted to make sure the world brought some reality of blindness as well and there’s interesting ideas that most people wouldn’t notice. And he’s like I want you next to me at every shot! It was unreal. I learned so much from all the directors, Francis, Lucas and Steven and Fred and Sally and all these amazing directors. They’re all so different and preparing in different ways and how they manage the set and each shot is different. So I learned a lot about how they setup things and their process and how to give input.

As the season goes on there were scenes that have no individuals who are Blind in it that I have input on that made it into the show. It wasn’t just the blindness that I was helping with.

[TR in conversation with JS:]
Are you interested in directing? (Laughs) You’re standing right next to the director man, like you’re already getting all this info.

JS:

You know I could see co-directing with someone.

[TR in conversation with JS:]
Now I know you have your YouTube channel so is this your preparation for being in front of the camera? (Laughs…)
Are we going to see you in See? (Laughs…)

JS:

I had a cameo or two . It hit the editing room floor – some of the scenes got cut. And it wasn’t because of my work. Who knows maybe in season 2.

TR:

Do you hear that optimism? That belief in anything is possible? Don’t get it twisted, that’s a process. Joe wasn’t always feeling that way. Like when he was 19 and diagnosed legally blind.

[TR in conversation with JS:]

If you could go back to some of that initial reaction. What would you tell yourself, your 19 year old self now?

JS:

When I first lost my vision I went through depression and I got counseling. They helped me guide through and understand that blindness and disability is not to end my life or anything. It changes and it changed how I viewed life. I would say embrace all of it.

It would be introducing myself to successful people who are Blind or Low Vision. Go someplace and learn how to use a white cane and learn the skills of independence as a person who is Blind.

People are always going to tell you what you can and can’t do as a person with a disability as a person who is Blind. They like to say no or you can’t do this. Don’t let them say no. During our show most of the things that you see people who are Blind do, I did as well. To figure out or feel. Climbing cliffs, hiking through different areas all kinds of different things that you see , I’ve done.

My buddy Dan Shotz, the show runner will tell you like early on people were like uh, I don’t think he should be doing that. I’m like, are the characters who are Blind doing this, then I’m going to do it. They embraced it. Dan pushed it and really allowed me to put myself out there and show them how we can do things. And if I didn’t have the expertise you know Erik Weihenmayer sent videos about climbing that I shared with Jason Momoa. I reached out to people such as T.Reid, Thomas Reid to share about their life and that was shared with all of our casts and production. Every couple of weeks I shared videos about people who were successful who were Blind or Low Vision from various types of work, backgrounds, life experiences.

[TR in conversation with JS:]
Hold on you’re telling me that Alfre Woodard saw that video?

JS:

Oh yeh, Alfre Woodard saw your video.

[TR in conversation with JS:]

Alfre Woodard saw me? Laughs…

JS:

It’s true, it’s true. Yup!

[TR in conversation with JS:]

Ahh, that’s cool!

Joe Stretch! Dude I told you that I think your story in terms of your hustle and what you’re doing is just so cool and inspiring to folks and to me personally. I definitely salute you, what you’re doing and keep doing it Bro. You’re doing your thing! I’m happy for you.

JS:

Thank you brother. You know how I feel about you and your podcast.

[TR in conversation with JS:]
Yes Sir… laughs…

JS:

Can I say it again?

[TR in conversation with JS:]
You can say it again!

JS:

My favorite podcast!

[TR in conversation with JS:]
Your what?

JS:

My favorite podcast around blindness is Reid My Mind… (Singing) Radio!

[TR in conversation with JS:]

Laughs…Yeh, there it is!

JS:

Woo!

TR:

See

Audio: available on Apple TV Plus.

was released with 3 episodes and subsequent episodes dropping weekly.

Creating See as a premier show for the launch of their network (Apple TV Plus) could be viewed as a risky move.

First, Apple has such a positive reputation with the Blind community. I’m sure they wouldn’t want to risk offending or having negative press like what we saw earlier this year when the CW launched “In the Dark” and the NFB responded with #LetUsPlayUs.

Yes, it’s Sci-Fi but blindness is real. Anyone who understands the power of media knows that it does impact how people view others.

but it appears they made every attempt to get it right.
Apple’s influence on accessibility goes beyond their own products.
When a clear leader of design and innovation makes such an open commitment to access, well it’s clear that others follow suit.

Leading off the launch of their streaming service, Apple TV Plus,
With a show built around a world where
blindness is the norm,
in an actual world where the thought of being blind is so feared.
I don’t know, that to me sounds like Apple once again being bold and let’s hope setting some trends.

This episode sort of made me want to look at whether I’m challenging my comfort level, putting myself out there enough, taking risks. As
people adjusting to blindness, disability I think we should be doing that.

It doesn’t have to be climbing mountains and what not. Those days are done for me. My back just hurts thinking about it. But there are definitely other ways. Who’s with me!

Joe’s experience is a great example of what’s possible.

I know there are some who hear Joe’s story and say he’s lucky. Well, I’ll agree with you. If you’re working with the same definition of luck. That’s when preparation meets opportunity. Because that’s when things happen.

[TR in conversation with JS:]
The coolest thing about watching the first episode was that right when it’s over and then ran the credits and I hear my man,
Audio: “Associate producer, Joe Strechay”, Audio Describer from See.

TR:
Dude I’m on the treadmill and I’m like yeh Joe, yeh! Laughs!

TR:

You can check out See (Available on Apple TV Plus) right now. Just open that TV app and you can get right on it. You can even get the first episode for free.

You can check out Joe on YouTube, his channel is called Joe Strechay. And he’s also on Twitter and Instagram under that same name.
That’s S T R E C H A Y!

TR:
I think this is a perfect way to officially close out the 2019 season.

I may drop an extra holiday episode, but you know there’s only one way to make sure you get that… Subscribe on Apple Podcasts, Spotify, Google Podcasts or where ever you like to get yours.

The podcast will be back in 2020 in time to help make things clear for anyone adjusting to blindness.

In the meantime please help spread the word. I hate to think of another young 19 year old who doesn’t get that help and have the same opportunities to reach their potential

Feel free to reach out and say hello. I love hearing from listeners.

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

TR:

Peace!

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