Archive for the ‘Blindness’ Category

Sparking Success After Vision Loss

Wednesday, September 11th, 2019

Blindness, Low Vision any degree of significant vision loss occurs for different reasons. It impacts people from all walks of life at various ages.
My guest today, Susan Lichtenfels, President of the Pennsylvania Council of the Blind (PCB) says; “None of our experiences are ever the same, but they’re similar.”

Looking at people adjusting to vision loss, it’s apparent there are also similarities in making that a success.

Hear all about SPARK Saturday, an event sponsored by the Pennsylvania Council of the Blind to light the fire in anyone impacted by vision loss. Plus a look at how PCB can help you attend.

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Transcript

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TR:

Welcome back to another episode of Reid My Mind Radio. My name is Thomas Reid. Not only am I producer & host of this podcast, but I’m the target audience, a person adjusting to becoming Blind as an adult.

While I’m no longer new to blindness, I do think I would have appreciated having a podcast like this one during those early years.

In some ways I did. I was fortunate to have other people with all degrees of vision loss in my life. People who are Blind, living productive lives on their terms.

We’re going to get into a bit of that and how it can be of help to you or someone you know right now adjusting to vision loss from low vision to total blindness.

First let me drop this on you like…

Audio from opening music (Wow!)

Audio: Reid My Mind Radio Intro Music

TR:

Early on in my adjustment I became involved in advocacy. It began locally and grew to state and national after helping to form a chapter of the Pennsylvania Council of the Blind or PCB in my county.

Attending my very first PCB state Conference & convention made a big impact on my life. It gave me the chance to meet people who both indirectly and directly taught me a lot about blindness. It was extremely important to my personal adjustment.

Today we’re going to take a look at some of what PCB has to offer those adjusting to, experiencing or impacted by blindness or vision loss; including an event that many of you may want to attend. Plus opportunities to help you do that.

Allow me to present a friend of mine to help guide you on this tour.

SL:

My name is Sue Lichtenfels and I am currently the President of PCB. But when I’m not wearing that hat I am a wife, I am an Advocate and I am a person with a disability, actually 2 disabilities. I am a mother of a soon to be 8 year old.

[TR in conversation with SL:]

8 years old already. Wow, I’ve known you for a while Sue.

Sl:

We started on the board at the same time. In 2007 we were elected and we started serving in 2008.

[TR in conversation with SL:]
And how long were you in PCB ?

Sl:

I only joined in 2005. We really are like right around the same… (laughs)

[TR in conversation with SL:]
Yeh! So was your first conference 2006 or 2005?

Sl:

My first conference as a member was 06.

[TR in conversation with SL:]
Yen, same with me!

TR:

We’re going to start with advocacy, but let me first be an advocate for this podcast.

Sue has agreed to come back on the podcast to share more of her story.

SL:

We’ll sit down and do another interview.

TR:

I’m just saying! It’s on the record now!

Self-advocacy is often a gateway to becoming an advocate for other. For Sue, it started in college.

SL:

No one’s there anymore to kind of be a buffer between you and your professors or the learning center that’s helping to adapt your materials in the format you can use.

#Goal Ball

TR:

While at the University of Pittsburg, Sue was introduced to the sport of Goal Ball which truly made an impression on her.

SL:

It’s a sport with three players on each team played on an indoor court and you kind of roll a ball the size of a basketball. It’s got bells in it and you roll it in a bowling motion and then you slide and use your body to block the ball from going beyond your team into the goal.

TR:

It may sound like just a game, but Sue grew up loving sports and always wanting to play and compete.

SL:

I was never allowed to. So when I found this sport, Goal Ball, I really , really loved it.

TR:

Sue became really good at the game. In fact, she played for the USA team in the World Championship in Canada.

SL:

And then I was in this car accident and lost the use of my legs.

TR:

This appears to be what really activated that inner advocate.

SL:

I had this opportunity to finally find a sport, find something I could be athletic and involved in so I wanted to do work and do advocacy get other kids that are mainstreamed the opportunity to be more involved in physical education and recreation.

TR:

Sue applied for and received a fellowship which enabled her to start a nonprofit.

SL:

Called Sports Vision, to create opportunities for children. I went out and spoke to Physical Education Teachers, IU teachers to advocate on behalf of getting children more involved in physical education.

[TR in conversation with SL:]
When you said that you weren’t allowed to was that a parental thing or was that a school thing where you weren’t allowed to participate in sports?

Sl:

I wasn’t allowed to participate in sports for fear that I would get hurt.

TR:

Children attending schools for the Blind had adaptive sports and recreational activities. Unfortunately, fear often caused children like Sue who were mainstreamed to be kept on the sidelines and excused from physical education and sports.

SL:

Fear was on the side of the parent who was afraid that their child was going to get hurt. The fear is also on the side of the district that doesn’t want to take a chance in getting sued because a child did get hurt.

[TR in conversation with SL:]
I got you, so it’s not like you had an advocate at school or at home kind of saying hey she wants to play sports, let her do it. So then you became that advocate in Sports Vision.

Sl:

Correct.

[TR in conversation with SL:]
Cool!

TR:

Also cool was when Sue brought her talent and persistence to the Pennsylvania Council of the Blind. Already familiar with running her own nonprofit and filling multiple roles, she took on many within the organization before her election to PCB President.

SL:

Fundraising, membership, awards, conference program and planning I’ve pretty much served on every committee or team within the organization.

Since 2010 I’ve been Editor of the PCB Advocate which is our quarterly newsletter. In 2007 I was elected to the board of PCB and been serving as a member of the board ever since.

# Challenges of Leading Membership Org.

Currently Sue is winding down the last months of her second and final term serving as PCB president.

Just the right time to ask her about the challenges of leading a member based advocacy organization.

First, challenges of the membership model itself.

SL:

Engagement.

When you’re a member based organization there is a micro way of thinking. You tend to gear your work towards the people that are in your organization. And we spend a lot of time offering ways to try and get our members more active when the reality of the situation is that our mission is to promote independence and opportunity for all who are Blind or visually impaired.

TR:

Second, advocacy

SL:

I think when many people hear the term advocacy they automatically associate it with legislative, policy those types of issues. They don’t recognize it for all the rest of the issues that need to be addressed that maybe aren’t necessarily achieved through writing a Legislator.

[TR in conversation with SL:]
Such as?

Sl:

Educating the public about the abilities of people that are Blind or visually impaired. The peer support that is necessary to take someone from not having any idea about what their own capabilities are and providing them with the ability to listen and offer them guidance.

That’s advocacy too.

TR:

So, how exactly does PCB offer support?

Here’s three ways.

Audio: One!

SL:

Peer discussion calls – these are organized usually around a specific topic. We have a conversation around issues such as travel when you’re Blind or visually impaired. We talk about our own experience , we share our stories and we provide a forum where we all learn from one another.

Audio: “Two!”

SL:

Peer Mentors – A lot of times the best way to cope with losing vision is to talk to someone who’s been there. None of our experiences are ever the same, but they’re similar.

TR:

Through their network which includes people who span all degrees of vision loss, from low vision to total blindness, PCB has something else to can offer…

SL:
Someone to talk to them on a one on one basis and provide them with guidance and advice and support.

Audio: “Three”

SL:
Local chapters – throughout the state we do have chapters who usually meet on a once a month basis and these are people who are blind or visually impaired who are more than willing and ready to welcome those who are new to vision loss and to really provide that connection and that one on one in person peer support.

TR:

While the local chapters are obviously specific to the state of Pennsylvania, “One and two” the discussion calls and peer mentors are all open to anyone experiencing vision loss.

SL:

Some of the specific advocacy discussions might be Pennsylvania specific but there’s a lot of information that we share that’s blindness and support related that isn’t geographically specific.

If you or someone you know is an individual who has vision loss and who’s vision loss has occurred within the last five years, I encourage you to apply for our Adjustment to Blindness First Timer Conference Scholarship.

TR:

This is a full scholarship! It covers your attendance for the weekend. That includes your registration, conference meals and activities, hotel…

SL:

And it will also cover ground transportation to and from the conference. To learn more about the scholarship, contact the PCB Office at 877617 – 7407 or send an email to Leadership@pcb1.org.

TR:

But that’s not it!

Maybe you’re thinking, Thomas, I’ve been Blind for more than 5 years and like you I believe the adjustment process is an ongoing thing and I really would love to attend. Are there any opportunities to help me get there!

Well, yes! PCB has some additional scholarships that you can check out on their web page at pcb1.org/conference

And then there’s also a $500 merit award available this year, specifically for those who are Blind or Visually Impaired and currently enrolled in a vocational or academic program.

SL:

Or some type of professional licensure.

We’re actually going to award three individuals stipends to attend the PCB Conference. So the top three finalists for the Merit Award will receive stipends to attend which will include the hotel, travel, conference registration and meals. Once folks get to the conference, those three individuals, we will announce who will win the grand prize of the $500 Merit Award.

TR:

That’s a great opportunity! I’d love to see it go to someone in the Reid My Mind Radio family.

Whether you, a family member or friend is adjusting to blindness or low vision; the PCB conference truly can be the experience that you need in your life right now.

SL:
But if you can’t make the entire weekend, and you can only pick one day to come and join us, I really encourage you not to miss our Saturday morning presentations. It’s going to be amazing!

TR:

It’s going to be hot!

It’s called SPARK Saturday because we’re bringing that heat!

[TR in conversation with SL:]

What about you? How has your involvement with PCB impacted you personally?

SL:

You know I’ve been involved at the leadership level and involved in the work of the organization for so long, I’ve gained so many skills. So I mean I’m a much more well-rounded person with regards to blindness skills but also skills that are work and project related.

TR:

The result of actually doing the work?

Sl:

I have a lot more confidence now in my abilities than I used to.

TR:

That confidence extends way pass the work.

Last year Sue decided to write and direct a play for PCB’s post banquet entertainment.

She cast it with her PCB peers.

SL:

It’s just such a fun time to rehearse with people. Really get to know people in that way where everyone is just kind of dropping their guard and letting you see the silliness, the fun. In the whole process of it such peer support we exchanged. I never would have had the confidence to do that. To write it and actually put it out there for people to kind of judge it. I wouldn’t have had the confidence to do that if I wasn’t a part of this organization.

TR:

Now, if you don’t mind, I’m going to get a bit nostalgic!

Audio: Can’t Stop Won’t Stop PCB

You see, for several years, I served as PCB Conference Coordinator. I used to circulate conference information via audio. It was called “The Blast”. One of the things I did was conclude with the conference details… it went something like;

The 2019 PCB Conference will take place in Harrisburg, PA at the Crown Plaza located on South Second Street – just two blocks from the Amtrak and Greyhound station. (I told you it’s going to be accessible!)

The PCB room rate is;
94 dollars per night which is for a room with a king size bed.

(For the aristocrats among us!)

102 dollars for a room with two queen size beds.

(For the money savers or the very friendly!)

The festivities begin on October 17 and last through October 20, 2019.

For all the details visit pcb1.org/conference
Or you can pop over to this episode’s blog post at ReidMyMind.com for all the links.

If you want to reach out to Sue, well she’s not on Twitter, yet! She is however on Facebook if you can spell her name correctly, Susan Lichtenfels.

Every time I speak with Sue it leaves me with such a warm fuzzy feeling! She’s always so kind and patient especially with me as I often ask things at least twice.

TR:

What’s the qualifications for that again?

SL:

Oh my God, you’re gonna get kicked in the face, I swear to God!

TR:

Laughs… I want you to just say it!
SL:

My legs may not work but I might just give you a kick in the face!
(The two laugh together!)

Audio: Can’t stop, won’t stop PCB Conference!…

Audio: Explosion … Blast!

Audio: Reid My Mind Radio Outro

TR:
Peace!

Hide the transcript

Audio Description: More than Movies Television and Theater

Wednesday, August 28th, 2019

Most people familiar with Audio Description or Descriptive Video have probably experienced the art access through movies, television or live theater. Today we hear about other applications where the art form provides access.

Headshot of Kat Germain
Kat Germain, a Describer from Toronto Canada tells us about providing description during conferences, sporting events and more. Plus we hear how she is training future describers on more than narration and post production.

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Transcript

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TR:

What’s up family. Reid My Mind Radio family!

You know, we’re growing. That means, our message is spreading to more people. Slowly we’re changing what people think about blindness. With every episode we’re challenging the perceptions of what it means to be blind.

Unfortunately, some people think it means life is over. They no longer see the life as being filled with opportunity. I get it, remember I’ve been there and felt that. But today I can definitely tell you there’s lots of opportunity if you’re willing to see them as such.

If you’re listening that means you are. And I got you.

If you want to assist in getting this message out especially to those newly impacted by blindness, low vision disability; tell a friend, to tell a friend…

Audio: Reid My Mind Radio Intro Music

TR:
today, we’re continuing with our look at the opportunities available through Audio Description. Both from the consumer perspective as in additional applications and production.

To do this, we’re going North.

KG:

My name is Kat Germain and I am an Audio Describer based in Toronto Canada.

[TR in conversation with KG:]
So let’s start with the definition of Audio Description as described on your website KatGermain.com. You mentioned talking pictorially.

KG:

We’re trying to use dynamic language. language that is descriptive , multi textured and vibrant. Painting a picture with words and filling in information in ways that is not going to distract from that which we’re describing but is going to add to it and help the understanding of the listener.

TR:

A multi textured vibrant painting with words.

That’s a cool definition of Audio Description or AD. If you’re a regular here you’re probably already familiar with AD.

I’m pretty confident however that you’re less familiar with description in the settings Kat tends to apply her artistic skills.

Like conferences and workshops.

KG:

If there’s a presenter they’ve got a Power point presentation, video clips associated with that, they’ve got photographs, whatever it is and my job is to describe those things to the listener. There’s also often a lot of signage around, people places, the size of the room, where the washrooms are all of those things to help the listener be as A., independent as they choose to be and then B., to give them information.

TR:

I know what you’re thinking. Wow, Canada. First health care and now this. Well it’s not yet as common as you may think.

KG:

I have sort of two or three people who are from the Blind partially sighted and low vision community and when they go to conferences they specifically ask for the accommodation of Audio Description and so I’m called for that. I have a close relationship with those people and so I know the kinds of things that they want and I also adjust it to what their needs are.

[ and so for example a lot of them are going to conferences where there’s a large number of people who are disability identified or parts of the conference are specifically geared towards or celebrating people with lived experience of disability or people who are working with those communities. And so they often want to know what people look like. If the person who is speaking about a lived experience actually potentially has a lived experience. And those kinds of questions are potentially a little bit politically incorrect. I wouldn’t announce that over a system with a large number of listeners but if it’s one person I’m always very happy to answer a question. And likewise even if it’s a lot of people after the show or the event or whatever it is if they want to ask me a question about perceived cultural background of a character or a person I’m happy to do that as well.
]

[TR in conversation with KG:]

So can you describe how it actually works because if you’re there for one person I’m sort of imagining that you’re sitting right next to the person but my understanding is that’s not the way you do it.

KG:

That’s not the way I do it but it is a possibility. Generally speaking I am a little further back and away from the crowd and mostly that has to do with so other people are not distracted by me speaking because while I’m trying not to speak on top of the words of the person whose presenting as best as I can because it’s going to be improvised, it still can be a little distracting for people that are around. So I separate myself from the group and I speak through a little microphone and then the person has a receiver that’s about the size of a fold up wallet and they listen through a single ear piece.

[TR in conversation with KG:]
So then in that case it’s a one way communication?

KG:

Correct.

[TR in conversation with KG:]

Ok. So those questions they would ask you later on. They wouldn’t necessarily get the opportunity to ask you right there unless they’re texting you.

KG:

Which as happened as well. Yes.

[TR in conversation with KG:]

Ah, ok!

TR:

While these accommodations are often for individuals, Kat requests that the service is advertised so others can also benefit. Just in case, she’s prepared with multiple receivers.

So is this available here in the states?

KG:

I’m not familiar with anybody who does conferences in the states but I am familiar with lots of Describers down there.

[TR in conversation with KG:]
Ok, so for our purposes if you do want it you have to call Kat Germain. How about that! Laughs…

KG:

Laughs… Yes that is exactly the rule.

TR:

I mean it makes sense! Not only does she have the experience, but there’s a knowledge of best practices for the describer. And, she also has great suggestions for presenters.

KG:

Accessibility doesn’t have to always be on the describer. We can be a little bit more interdependent and a little bit more inclusive. For example the presenters can talk a little bit about their video themselves. They can introduce themselves and what they’re wearing that day.

TR:

And what about group or panel discussions where multiple people are contributing.

Whether you are participating in the discussion or in the audience, from a blindness perspective, it can get tricky.

KG:

Often people who rely on visual cues can tell that somebody has sat back in their chair, they put their hands down and are looking around , there’s a visual cue that they’ve stopped speaking. But if you’re not accessing things visually, if you’re not accessing them in the same way visually then you don’t have that cue and so the person if they say that’s the end of my thought then the person knows ok maybe I can put up my hand now , I can say something, I can interject without interrupting them etc.

TR:

What are some of the other applications for Audio Description that you may have not experienced or considered.

KG:

I love my theater, I love my conferences, I love my Descriptive Video, but sports.

Audio: Play by Play from the NBA 2019 Championship … Toronto Raptors Win!

TR:

Yes, there’s the play by play, but have you ever wondered what you’re missing especially when attending a live game? Like when Kat described a game of Wheelchair Basketball.

KG:

I worked with a colleague and he has the sports commentary background and I have the Audio Description background. And we worked in tandem. The way that we presented what we were doing is a little bit more of a hybrid. We did do the straight up description, but then also we did a little bit more commentating as well; what does team Canada need to do to catch up? How is so and so playing in this game? We made that decision to do it that way and the people who listened enjoyed it.

TR:

I think what makes this exciting is how the description goes beyond the action on the court.

KG:

In more detail than you would hear for example on a radio broadcast. Additionally though, I was describing what was happening in the stadium. I was talking about the antics of the mascot and where the t-shirt cannon was pointing. What the half time dancers were doing and what the logos look like that were all around the stadium. What was happening on the Video-Tron because they had a bunch of gag things. A kiss camera where they put a heart around you and filmed you when you were about to kiss. A bongo camera where they super impost bongos in front of a person who was on screen and they had to move their hands up and down as if they were playing the bongos.

TR:

Now, I’m not the biggest sports fan, but I do enjoy the energy of a live game. So I was immediately interested when Kat mentioned that they’re looking into describing a baseball game.

KG:

I’m really hopeful we’re going to sometime in the near future get a baseball game. We’d ask the arena to offer us a box and then invite folks in the community to come and we’d do the description in the box with them there. I promise to invite you.

[TR in conversation with KG:]
Oh yeh, please do!

TR:

Just when you thought you knew what to expect from Audio Description. Someone pushes the boundary a bit further because they believe in access.

KG:

I’m doing a sketch show right now because I have a comedy background. I did the Second City Conservatory. I love comedy and want very, very much to support it and for the audience to get the jokes and hopefully get the jokes as close as possible to the same time as the rest of the audience.

TR:

AD in this particular application gives Kat a bit more room to use techniques that she would otherwise forgo.

KG:

I do feel to support the work and to support the people listening presumably who are there at the show because they want to laugh with everybody else that I felt like it was a little bit of nudge was needed for a couple of spaces. Not throughout the whole thing. For example there’s a witch scene. A witch does a spell and the lights and flicker. And there’s another one… flash and flicker and the third one, she does her spell and, …. nothing. So I can do a little bit of that inflection. A little bit of pause so it’s that comedic timing within the Audio Description itself without being comedic myself.

TR:

A sense of humor is important in live events, you never know what you may have to describe.

KG:

One of the men gets completely naked we had a long description of what the average size of a man’s…

Audio: Ahem, Ahem, Got Damn! “Let Me Clear My Throat”, DJ Cool

TR:

With such vast experience, Kat’s recently started her latest role in Audio Description; training future describers.

KG:

I’ve trained ten people to be Descriptive Video Specialists. It was a three day workshop and there is another one planned for the very near future

TR:

Kat couldn’t devote time to teaching voice work, so she sought students with a background in either acting or voice over. Additionally she wanted those interested in writing description.

KG:

Post production as well. Editing the voice recording, getting it all up to spec, mixing it etc. Sending it off to the broadcasters.

TR:

Creating AD is more than technical.

KG:

Identity is a huge topic here, particularly in Toronto. It’s my understanding that we have the most diverse city in the entire world. We have the most number of languages spoken here, the most number of countries represented here. It’s a thing!

TR:

It’s a thing that finally we’re talking more about.

Respecting cultural differences through inclusion and representation. From all perspectives including the consumer, and creators.

KG:

It’s a pretty challenging balance. What would fly in Toronto is not necessarily going to fly in a teeny tiny town on the northern east coast. [of Canada]

TR:

Similar to the U.S. Canada is trying to figure this out. Currently there aren’t any rules just some generic guidelines recommended by Accessible Media Inc.

KG:

Describing a person’s race or ethnicity or disability is not necessary unless its perceived to be relevant to a plot or character development.

To me the question is who’s doing the perceiving.

The majority of describers in Canada are generally speaking white people, probably sis gender. There is not a huge ton of diversity with the describers and I don’t think that matters in and of itself but I think it would be fantastic if we had a little bit more diversity. And certainly with my Descriptive Video students I actively went and sought out actors of color that I knew and thought might be interested.

TR:

While she follows the guidelines, she does have a particular point of view when it comes to diversity.

KG:

I feel that it’s always relevant who is and who is not represented on a stage or a screen. I work in inner city schools with a huge group of diverse kids and I want those kids to see themselves reflected on stages or screens. Or again, know that currently they are not. I want my students to have heroes and people to look up to and if they don’t know there’s a Blind person on a stage or a person who’s Japanese on stage then to me I feel it’s not doing them or the play a service.

TR:

During a recent live theater performance, one of the actors was Blind. In no way was this relevant to the role.

KG:

I had the chance to speak with the actor himself and he said yes he would like them to know that he’s on the stage and he’s Blind.

[TR in conversation with KG:]

how did you get into Audio Description from the jump? What made you interested in it?

KG:

Representation and equity and access has basically been a part of my life’s work. It started when I was two years old and I went with my Nana to the Canadian National Institute for the Blind. They had a residence there. We would go shopping, grocery shopping for the residence. That was the environment I grew up in with a grandmother who’s very interested in volunteerism and working to support communities who are traditionally marginalized. Growing up in downtown Toronto we got all kinds of beautiful skin colors and hair textures and heights and shapes and everything. My friends and my family were not being represented on stages or screens in this extremely diverse city.

Which put a bee in my bonnet.

TR:

My apologies for that rough language!
[
Too often when we hear the term diversity, it doesn’t always include all marginalized groups.

KG:

Cultural heritage, physical, neuro, gender fluidity, so diversity in its full spectrum.

TR:
]
Eventually Kat began working with Picasso Pro. An organization providing training and workshops to artists with disabilities who were not being represented on stage.

KG:

They were the ones who applied for funding and got a grant to bring a woman up from California, Deb Lewis. She was the one person who essentially seeded Canada with Audio Description. She taught the group on the west coast in Vancouver, 8 of us in Toronto, and then there’s also Stratford Ontario and they have the Stratford Festival. Since then Steph, who is the woman on the west coast trained some other people around the country but it’s still only like four or five groups of us in Canada.

TR:

I asked Kat to identify some opportunities for Blind and Low Vision people to participate in the creation of Audio Description. She’s actually seeking funding to develop such a practice.

KG:

The easiest one would be straight up the narration part of Audio Description. I also feel that there is room for people if they are interested in doing the post production for Audio Description as well. They would edit the sound files and mix it and make sure it’s up to broadcast specs. Leading teams who are providing the service in sort of management positions as well.

TR:

Of course, there’s quality control consultants. Not only do they provide feedback on the actual description

KG:

Every time I’m hired to do a workshop I always bring a community consultant with me. I don’t feel like it’s appropriate for me to be teaching any skills about community when there’s no body from the community there. They’re going to know better what their needs are.

TR:

Not everyone involved with AD is familiar with people who are Blind and Low Vision. There’s a lot of power in personal interaction.

KG:

I also think probably it makes everything more immediate and more meaningful for the learners as well.

Kind of the concept of nothing about us without us.

TR:

That’s the perfect way to wrap up these last two episodes around Audio description

I challenge those in the business of AD and in fact, I’ll take this even further, any business that serves the disability community, if the community isn’t participating in that business in a non-consumer role, it’s time you ask yourself why. And it’s crucial you question any response that ultimately keeps a member of the community from doing so.

A big shout out to Kat Germain

[TR in conversation with KG:]

Now where can folks learn more about Kat Germain and what you do, your trainings and possibly contact you to get you to describe a conference?

KG:

Hint, hint! Or sports!

My website is www. KatGermain.com. That’s (spelled out) Kat Germain.com. There’s no E on the end of Germain.

TR:

She can be reached by email as well

KG:

At Kat @KatGermain.com

You can also contact me in Toronto as well. My area code is 647-292-3359.

TR:

Instagram and Twitter?

KG:

Kat_Germain

TR:

You can find links to Kat, transcripts to each episode and more on ReidMyMind.com

There’s only one way to make sure you don’t miss an episode…

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I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

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Let’s Stop Sleeping On Sleep

Wednesday, July 3rd, 2019

In this episode, I’m considering how we look at sleep and the impact that the lack of it can have on the adjustment process.

TReid sleeping on a large rock during a bright sunny day while in the background the Niagara Falls flows.

Courtesy of Raven Reid

I share some of my own experience with Non 24 Hour Sleep Wake Disorder and how that can impact the adjustment process and subsequently a person’s independence. Find out how The Dave Chappelle Show relates to all of this.

Just in time for an independence celebration!

Listen

Transcript

Show the transcript

TR:

What’s up Reid My Mind Radio Family?
It’s your brother T.Reid here bringing you another episode of the podcast. You know the one that brings you stories or profiles of compelling people impacted by blindness, low vision, disability.

Today’s episode is one of the occasional times when I share my own experience adjusting to blindness.

It’s one of those things I think many people who are blind deal with but for those of us who become blind as an adult, we really notice the difference. Well at least that’s my experience.

That’s up next!
Let’s go!

Audio: Reid My Mind Radio Theme

TR:

When we talk about the loss of access to things that impact a person’s quality of life following vision loss, transportation, information and career opportunities come to mind.

Here’s one we don’t often consider

Audio: “No Sleep” from “No Sleep til Brooklyn”, Beastie Boys

TR:

Sleep!

Audio: “Last Night, I didn’t Get to Sleep At All”, The Fifth Dimension

TR:

In 2004not too long after becoming Blind, I began having problems sleeping. Real problems. Not falling asleep but rather staying asleep at night. The consequence was I had problems staying awake during the day.

Usually late morning around 11 AM, my body would let me know it was preparing to go to sleep and there would be nothing I could do to stop it. I’d feel my temperature suddenly drop often to the point that I’d shake with chills. I’d struggle to make it to my bed where I’d often fall across rather than in.

It wasn’t just that I was too tired to get into the bed, but I didn’t plan to sleep for long.

Getting into the bed in the middle of the day well I thought that would make me be considered lazy and unproductive.

Prior to 2004 one of my motto’s was I’ll sleep when I’m dead!

Yeh, I was that guy!

Following years of my body being deprived of sleep, I honestly believed the lack of sleep would eventually kill me. I stopped going to sleep as often in the middle of the day. Not because I didn’t feel the need, nah, I had to stay awake when I returned to work.

Working from home, honestly, I could have rigged away to make sleep during the day possible. Occasionally I’d find myself waking up 20 – 30 minutes after putting my head down on my desk for what I thought was a few seconds.

This pattern continued for years.

Even though I was working from home, for me, my body’s need for sleep felt like laziness because I was uninformed.

Fortunately today we have a name for this; Non 24 Hour Sleep Wake Disorder or Non24 for short.

Basically… we all have a master body clock that gets reset every day by environmental light that’s detected by the eye and signals the brain There’s an access issue. For those who are totally Blind, the method to get the reset signal to the brain no longer exists.

Rather than getting into specific details of Non24, my purpose today is to share my experience specifically for those impacted. That’s the person who is now blind as well as their family members or those they live with who will inevitably be effected by the mood swings, the difficulty concentrating and the almost narcoleptic like sleep attacks.

I’m here for those who are constantly falling asleep during family get togethers, trips to the movies or even worse intimate conversations.

Someone who loses their sight for whatever reason, chances are they’re dealing with reduced independence, , possibly loss of a job and often even friends and loved ones who may no longer come around.

Audio: “Sweet Dreams” The Eurhythmics

TR:

I looked forward to sleep in the early days of my vision loss.

My dreams gave me access. I could freely walk without a cane or guide, easily finding people and things without a need for assistance and even regaining the anonymity I no longer seemed to have in public spaces during my time awake.

Sleep wasn’t about escaping my reality, rather it was a way to help process all of the things running through my mind. Waking up after a full night’s sleep is what helped me eventually realize I didn’t lose as much as I thought I did.

I’m no scientist, but I’d bet there’s a relationship between good sleep, hope, possibility and optimism.

I had several opportunities to talk with others about their experience with Non24. Those who were either congenitally Blind or Blind from a young age often just assumed their experience was the norm.

Several people who grew up attending schools for the Blind shared the experience of being chastise by teachers for falling asleep in class.

Others recalled how some of their most productive time growing up was during the night when they should have been asleep. These are probably some of the same people who today as adults feel their productivity is increased because they make good use of their time awake in the middle of the night while others are asleep.

I’ll never forget a young lady’s story of working at a call center where she would sometimes uncontrollably fall asleep only to have her supervisor whack her on the hand with a ruler or some object. She desperately wanted to keep her job, but her sleep cycle was off more than it was on during any given month.

It’s more than sleep!

Audio: “The lion Sleeps tonight”, Ladysmith Black Mombasa & The Mint Julips

I know people in my circle at times felt I had a bad attitude and probably attributed that to just me now being Blind and angry.

Yes, I was moody! I wasn’t getting the rest that my body desperately needed.

Blind people have been dealing with this for lifetimes.

I dealt with it for about 8 years and reached a point where I just knew I couldn’t take it anymore. I was literally losing time. Meaning I’d fall asleep and have no idea I fell asleep.

I wonder about that stereotype of the angry Blind guy. He just may be the sleepy Blind guy!

I’m not making any excuses for moodiness or bad behavior. We all have to be responsible, but for those going through it, Non 24 or any significant consistent sleep deprivation for any reason can feel like you no longer have any control.

Audio: Comedy Central Promo for Dave Chappelle Show

TR:
One night, I wanted to watch the Dave Chappelle show on Comedy Central. It was about 10:25 and the show aired at 10:30.

I sat on the edge of the bed in front of the television in a very awkward position. I knew if I laid in the bed and tried to wait for it I’d fall asleep with less than 5 minutes before the start of the show.

Audio: The Dave Chappelle Intro Music

TR:

Finally it was 10:29 and the Comedy Central voice over announced the show was up next.

Yes!

With only about 20 seconds left before the start of the show I thought, I made it.

There was no way I’d fall asleep during the show because I knew I’d be thoroughly entertained. As I sat in this awkward position I decided to stretch my back and quickly laid back on the bed during what I figured was the final commercial before the start of the show.

Audio: The Dave Chappelle Show begins in normal speed and is sped up.

TR:

I fell asleep in probably less than 20 seconds and remained knocked out for a half hour.
– Applause
– Dave Chappelle Show Closing…

TR:

The next thing I knew, I heard the closing of the show.

– No, No, No! TReid….

Audio: The Dave Chappelle Show closing harmonica!

TR:

Eventually, I’d come to find this story funny.

At the time though it really hurt because I realized I truly had no control over my sleep.

If it was just about missing a television show that wouldn’t bother me much but I was noticing small gaps in my memory. I was struggling to create and focus. The mood swings were impacting my family.

Finally, in 2012 I joined the Sleep Study that lead to the release of a drug to help those with Non24.

This episode isn’t about promoting the drug to help those with Non24.

However, my business manager says we are open to endorsement deals and a name and number can be inserted for future episodes if interested.

The business manager can be reached at reidmymindradio@gmail.com.

You may wonder what exactly prompted me to talk about this now. I you caught the timeline, I began experiencing Non24 in 2004 and said it was 8 years later when I reached that rock bottom.

Some changes in insurance this year and some good old fashioned bureaucracy left me without a way to manage my body’s Arcadian Rhythm.

I found myself once again experiencing some of the same problems. Yes, a bit of moodiness, drifting to sleep and some real brain fog that makes concentrating a real chore. I’m still finding my way out of that fog. Once again, I’m dreaming.

Audio: “Dream”, Pharaoh Monch

TR:

Finally,, let me wish all of you a very Happy Independence Day.

I’m not really talking about celebrating the Fourth of July and the signing of the Declaration of Independence. I’m talking about those who have experienced severe vision loss at any time. Those who experienced an acquired disability.

Those who find that they now have to do things differently, no matter whether that means using a form of technology, a technique or personal assistance.

I’m speaking to those who may have been born Blind or disabled and continue to assert their independence or work towards gaining more.

or came to a realization that their individual independence was reduced and decided to do something to gain or regain as much as possible.

Independence is defined by the individual. I can’t tell someone what should make them an independent person.

Whatever it is, sleep deprivation can negatively impact any activity and therefore can reduce a person’s independence.

If you find yourself dealing with this, I guess I just want you to know you are not alone. I know I felt that way at 1, 2 or 3 AM sitting up while it felt as though the rest of the world was asleep.

I’m not telling you what to do. Some people find over the counter remedies like Melatonin help them. Others alter their lifestyle and say it works for them. I have what works for me and I just hope you too can find something to work for you.

Again, I’m not recommending anything, but I am open to having a conversation that would include my specific recommendation or at least me sharing the name of what works for me. At least this is what my business manager recommends.

If you deal with Non24 or some other sleep disorder and have a specific method that works for you I’d love to hear about it. Let me tell you how to contact me… but before that a brief reminder there’s only one way to make sure you don’t miss an episode…

**

Subscribe!
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You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

eTitle:A Love of Language With Elizabeth Sammons

Wednesday, May 22nd, 2019

A headshot of Elizabeth Sammons & Cover of The Lyra & the Cross
Meet Elizabeth Sammons! Hear how her love of languages has taken her to Switzerland, Russia, the Peace Corps and helped her become a published author.

Her journey illustrates how we can find ways to include our passions in our career and throughout our lives.

Listen

###Resources
The Lyra and the Cross

Transcript

Show the transcript

TR:

Welcome back to another episode of Reid My Mind Radio. I’m your host and producer T.Reid. Just about every two weeks or so, I bring you someone who has been impacted by Blindness, low Vision or Disability in general. These are people I find compelling.
People I believe have a story to share. The goal is to reach those of you adjusting to vision loss.

There’s a real power in learning what it really does mean to live with disability as opposed to what we either indirectly or directly learned or
absorbed throughout our lives. I know this because I too have experienced vision loss and early on decided to challenge my own biases. Occasionally I bring you stories from my own experience as a man who became Blind as an adult.

Up next on today’s episode; we see an example of someone setting their own course through life.
while being sure to find ways to fulfill their passion.

Audio: Reid My Mind Radio Theme Music

TR:

Allow me to introduce you to Elizabeth Sammons. She’s retired from the Vocational Rehabilitation and
international relations fields.

Currently, she and her husband are traveling the country in an RV while she continues in her new career as a writer. She’s been an exchange student, volunteered in the Peace Corps and lived and worked in Russia. We’ll get to that but as you’ll see, her early years really set the pace for how she lives her life.

ES:

I was raised in Central Ohio, small town which is a blessing.
Went to a school for the Blind for two years, learned Braille. Went on and long story short I was mainstreamed in the public school in fifth grade.

TR:

Let’s say Elizabeth’s high school experience left much to be desired socially.

ES:

I told my parents and I told the school I was willing to do anything if I could get out in three years rather than four. And I did that and I was only 16 when I graduated

[TR in conversation with ES:]
What was it that said, go ahead I’m going to go and finish early. Now I get it that you said you weren’t having a good time, I guess some bullying or whatever the case may be, but to say I’m just going to rush through it as opposed to the way I think most stories that involved bullying, sort of like the hiding from it, you weren’t hiding you said I have to get out of this situation.

ES:

I didn’t hide I ran

Laughs…

[TR in conversation with ES:]
And that doesn’t seem like a typical response. What was that about?

ES:

Well I think it was realistic. I said What am I going to do to get away from this and hiding didn’t work for seven years. And I figured the best thing I can do, and I know I’m capable of it, is to work really hard and get out of at least a year.

I haven’t thought about that. you’re right . I actually think it was as healthy a response as I could have given at that point.

[TR in conversation with ES:]
Especially because you knew you could. You had a good sense of yourself at that age.

TR:
Elizabeth credits her parents for their early advocacy and support. for example, check out their decision following her early high school graduation.

ES:

My parents rightly said, you’re too young to go to college, you’re socially too young and so I had the opportunity to do an exchange year and I went to Switzerland for a year .

Studied for a year there in a French school and lived with a host family and that was not always easy but a really neat experience. The more I look back on it the more I realize how much it influenced me really.

[TR in conversation with ES:]

So your parents said you’re too young to go to college but they sent you to Switzerland. (Laughs…)

ES:

I never thought about that. (Laughs) That is a little… (Laughs)
I think what they meant was I was already a year ahead of my peers . I would have been almost two years ahead at that point. There’s a big difference as most of our listeners are going to know between someone who is 16 and someone 18. Plus my high school years had not been happy years and I think that they wanted me to just have another year to kind of de press from that. As it ended up my Switzerland experience, I was pretty well accepted by my peers there and I had some great experiences that it proved to me that Elizabeth was ok and that I could kind of set out a new like and not have the bad experiences with negative social experiences like I had before that. So it really worked out well. And I was happy to do it. I was an adventurer of different cultures and different people and so it was a great thing.

TR:

Elizabeth’s love of culture and languages began early.

ES:
I actually remember when I was about 10 years old turning our local television stations and there was a movie in French and I literally remember sitting and crying saying this is such a beautiful language I wish I knew it. So the first chance I did have which was high school to take a language and they offered Spanish, French and Latin. I decided on French because I was interested in Europe and I decided that would be the most widely spoken language next to English. I just took to it like a duck to water.

TR:

Returning home from Switzerland, Elizabeth enrolled in college. Majoring in both French and Communications she decided to complete college in three years. She then went on to complete her Masters in Journalism.

ES:

When I was at Ohio University studying Journalism I had a few extra credits, we had to take some electives and I decided my electives would be starting to learn Russian because I’d always been interested in Russia and Russian culture but had not had the opportunity to study it. So
I began to study it . Made friends with one of the Russians who worked in our language lab and she really helped me privately just because she wanted to. She saw I was interested. I started volunteering . At that time there were a lot of refugees coming in from Russian primarily Jewish refugees but also some active Christian refugees, also Baptist and other Christian groups . Most of them came adults with kids but some of the adults with kids would also bring their parents and so you would have people 60, 70, 80 even older who would be coming in for many reasons would not be able to learn English or very little English. I volunteered to say hey if you’ll speak to me in Russian I can do things like make telephone calls for you , help you read your mail, help you correspond, maybe talk with your landlord for you with you, interpret for you as I learn better Russian and people needed that and wanted that . So I was able to give to that community and they were able to give to me as my Russian developed and it was a really great kind of exchange.

TR:
Although Elizabeth’s Master’s Degree ultimately was in Journalism, her real interest was creative writing.

ES:

I was writing stories ever since I was 4 years old. I love to read I love to write. Storytelling and also fact gathering, I love both of those things. I wanted to get my masters in creative writing and my mother who was alive then said, anyone who knows you knows you can write well but if you have on your graduate certificate Journalism, then you’re a lot more likely to get a job then you are in creative writing. And I’m so glad number one she said that and number two I listened. She was truly right about that and the creative writing sort I don’t want to say came of itself but it was something I knew I could do. Journalism so strengthened my writing .

[TR in conversation with ES:]
The fact gathering methods must have been a challenge in getting a Journalism degree. What was that like? Now we have the internet …

ES:

You’re so right on the questions you’re asking me . You’re right because I was studying in the 80’s . There was no internet. I did rely on readers . I did rely on asking the right questions. I did rely on cooperation with fellow students and I realize after having been midway in my degree year, coming closer to finishing it that I was not going to be a kind of Journalist that could get a 3 AM call on a three bell fire alarm and get there and do an adequate story most likely. so what interested me more was storytelling journalism of that type that travel magazines and other less time sensitive periodicals but none the less periodicals that need good journalism and need good fact finders and reporters would do.

ES:
I should also mention that especially my Master’s program where I needed to read so much I had a number of volunteer readers who were from other countries that I said hey if you’ll read for me I’ll help you with your pronunciation. If there are words you don’t know I’ll take time to explain those to you and when it comes down time for you to write your thesis or write papers I’ll help you edit. So again I would really encourage anybody who has abilities to find that means of exchange. Not what can you do for me but what can we do for each other.

TR:

Doing for each other or finding a way that everyone can benefit is one of the motivators prompting Elizabeth to join the Peace Corps.

Hoping to put her knowledge of Russian to work, she wanted to land an assignment in Russia or Poland.

ES:

Well they decided to send me to the one Eastern European country that spoke a totally different language, Hungary. I think they said well if she could learn French and Russian she can learn Hungarian too, which I did study it as soon as I found out that they were inviting me to go there as an English teacher.

TR:

Unfortunately, Elizabeth’s time in Hungary was cut short due to some health problems.

She did however get the opportunity to immerse herself in the Russian language and culture during her almost decade stay in the 90’s.

ES:

I had worked a bit in Russia before that with a government exhibit that traveled through Russia and I think I’d been the first person with a disability that they knew of that did that and it had been going on for about 40 years as kind of a citizens exchange. I was interested in going back to Russia , I had met a young gentlemen there so I went back and I heard from someone about a disability related kind of a program going on in that city so I contacted the American organizers and said hey guess what I’m living here I would love to serve if you have a position and they happened to have something . So it was kind of one of those right place right time situations where I jumped in as soon as I heard about it . They interviewed me . They gave me a job and also the fact of living in Russia and being bilingual and English is my native language there were so few of us that there were lots of teachers and interpreters and advertisers who really needed that skill of a native speaker so I was really able to get an American , small but albeit, American salary and American bank account at home and able to moon light and do my other things and make enough money on the economy there to live alright. And I got married too I forgot to say and I got married to this gentlemen.

[TR in conversation with ES:]
That sounds like what got you out there, the guy. Laughs…

ES:

It is, yes it is. The guy got me out there.

TR:

In 1996 Elizabeth returned to the states to give birth to her daughter. She went back to Russia about a year later and following a break up she and her daughter came back to the states in 2000.

ES:

Back to Ohio. I looked for a job. I used Vocational Rehab to help me and although it wasn’t the job I wanted. I knew a bird in the hand was better than two in the bush so I took a job with Social Security. I worked there for about 5 years as a Claims Rep and doing some PR for them.

And then I moved on in 2005 to our Ohio Vocational Rehabilitation system and Defacto I became kind of like the Public Relations person and community relations down at the state house with our legislators. Always kind of reaching out using that Journalism , using that research using the ability to gather facts and make recommendations and explain to people why we could or couldn’t do something or needed to do something. That was a lot of what I did.

[TR in conversation with ES:]
How about the languages? How were you incorporating those types of things?

ES:

It’s so funny that you ask that because in my interview for Social Security job I told them that I spoke Russian. And you know they kind of gave a token nod that’s cool. The first they I got there they said do you really speak Russian ? I said well yeh I told you I speak Russian. They said well, we’re having this Administrative law judge hearing with someone who’s Russian and doesn’t speak English today. Would you be willing to go be the interpreter. My first husband had been a doctor and I heard all kinds of medical terms and different things and I didn’t blink an eye well sure I’d be happy to save you the money for hiring an interpreter, why shouldn’t I do that. And I think they were kind of shocked and picked themselves off the floor. I had to be very careful explaining to the lawyer and the Russian speaking client that I do receive my salary from Social Security but in this hearing I am your interpreter. I am not taking any sides with Social Security. You know I’m not taking your side either . My job is to make sure you’re heard.

There were some cultural ways that this gentleman answered that didn’t make sense. I knew what he meant and I said the true sense of what he meant to the judge and after the gentleman left with his lawyer the judge said Ms. Sammons would you stay here for a moment. I thought oh boy an I in trouble. And he said I’ve been a law judge for 20 years this is one of the very few times if ever that I felt I truly spoke with the claimant. I just kind of smiled and said well you can tell Social Security that too. I don’t say that to brag I simply say it because knowing the culture as well as knowing the language is really important when you’re an interpreter. Anyone who is out there and you have a visual impairment and you know two languages your interpreting shouldn’t be effected in any way by your vision. Something you can readily do as long as you know the languages and understand what’s behind the culture so I’d encourage you to think about that.

TR:

Elizabeth had additional opportunities to interpret in the Social Security Administration, as part of Vocational Rehab and as a volunteer in the community.

Notice how Elizabeth is putting her interests into action in and out of her career.

[TR in conversation with ES:]
What about the writing?

ES:

(Sighs!)

I kind of put the writing on a back burner for a while. Not that I didn’t write at all but I certainly did lots of writing for my job, but in terms of creative writing . I started up with a group a writing group which meets twice a month and we’d go over one another’s manuscripts and give comments.

TR:

Elizabeth suggests avoiding the writers groups where author’s read their work and group members critique on the spot. Understandably, such a process isn’t going to produce quality feedback.

She began by sharing one of her already completed short stories.

ES:

They liked it, but they didn’t like it as much as I did. I really felt for 4 years that it wasn’t the best I’ve ever wrote, but it was the thing that I wrote that I loved the most and it was just sort of crying out to me, you’ve done this little bitty sketch, you need to turn this sketch into a big portrait.

TR:

At the same time, tragedy in Elizabeth’s life served as even more inspiration. This included the loss of two friends, one of which was to Cancer.

ES:
This death experience and the broken relationship experience really made me think a lot about what makes a friendship work or not work and what happens when people are so different that they can’t live together, they can’t get along.

TR:

Taking two characters from the Bible, Steven or the first Christian martyr…

ES:

and some people may know who Paul or Saul was – a Jew who then began to believe in Jesus but before he did he wrote lots of letters in the New Testament like the first and second Corrinthians and Romans and Ephesians and other writings.

He first comes into the Bible when Stephen is being stoned. It says a young man named Saul stood by and held the garments for those who stoned Stephen. Being that Paul/Saul was such a huge figure in the Bible later I thought that’s not a real positive light to come in. (Laughs) If you want to come in you might think of a different door to come in, but not that he wrote that.

The Greek tradition, and Stephen was Greek holds believe it or not that Saul and Steven were relatives. And this puts an entirely different light on Stevens martyrdom and what Western folks reading the Bible see… oh yeh, Saul was thee when Steven was martyred. So I held this together historically, respecting the tradition may or may not be true, but let’s say they were at least people who knew each other well. I portrayed Steven and Saul as best friends at the beginning of this book. Really close, grew up in childhood , helped each other and gradually through the book as Jesus Christ comes on to the scene living and later crucified and Steven makes the choice to believe in him as the Messiah and Saul very strongly holds to the traditions in the honor of those traditions and how the friendship breaks.

I describe the events of that through different points of views so there’s some chapters that witness of Steven and some are witness of Saul some are witness of other characters that I invented or other historical characters that see this change in the friendship and of course ultimately the martyrdom.

Many scholars do believe that Saul had a disability. And I did in my book give him a disability which also influenced a little bit his take on this whole situation and his feelings and his reactions because he was never quite the one . He was always a little bit of the odd man out too. And deal as well with the loss of his friendship with Steven.

TR:

Elizabeth’s first novel, The Lyra and the Cross is currently available in both print and E-Book on Amazon.com.

ES:

I am working on getting an audio copy ready and when that does come out I will definitely let you know that’s out.

TR:

Even before The Lyra and the Cross, Elizabeth wrote a manuscript for a book set in the 1990’s. It’s about a family who’s patriarch dies

ES:

They find out some secrets that expose them to realizing they have some very serious genetic threats in the family and they have some very serious other issues in the family that they never knew about.

And the name of that book which I hope to get published hopefully by next year is With Best Intent because all the characters except for one all are doing things believing they’re doing the right thing but unfortunately some of the consequences live on for decades and decades and mark people not in a good way.

TR:

Inspired by a story she created for a presentation, Elizabeth is finishing up a Children’s book on advocacy.

ES:
Told from the view of a family who brings in a homeless cat and this cat has to find its place in the home , make itself loved by the family when things go wrong let the family know. It’s the Advo Cat.

I’m working with a professional illustrator right now and she’s working on getting it visually pleasing to 10, 11, 12 year olds. I meaning it for pre-teens.

It’s not advocacy related to any particular disability or politics or religion it’s just good advocacy principles.

It’s called Omar Advo because in the beginning you don’t know he’s a cat.

I describe him but I don’t use the word cat at all and people are thinking he’s a human and then you see the picture and you realize he isn’t . The first lesson is sometimes someone isn’t who you think he is. That’s the first lesson of advocacy.

[TR in conversation with ES:]
Isn’t that the first lesson of life! Laughs…

ES:

Amen to that. laughs…

[TR in conversation with ES:]
Say the title one more time.

ES:

Omar Advo

TR:

It’s pretty apparent, Elizabeth knows how to adapt to new environments. Always finding ways to incorporate her interests and passions throughout her career and no matter where she calls home.

ES:

My husband Jeff retired two years ago and struggled and cajoled and finally convinced me that it was ok to retire young . So I did early resign from my Vocational Rehab job last August.

We are currently for the most part living in an RV and traveling around. Right now I’m talking to you from Texas. We plan to continue a lot of our travel .

TR:

Elizabeth’s not interested in writing about her travels. She prefers to pursue her creative writing.

ES:

I feel extremely blessed even though it’s not always easy but to be able to live as an artist right now and be able to really travel and see so many great things and meet some amazing wonderful people . My life right now is sort of on the road and as much on the pen as I can be. Exploring our country and hopefully exploring our world a little bit just enjoying and trying to be there for people.

TR:

While she’s not active on social media Elizabeth says if you’re interested in reaching out with any questions she’ll be happy to answer. Therefore feel free to send questions to ReidMyMindRadio at gmail.com and I’ll forward them to her.

Once again, The Lyra and the Cross is currently available in both E-Book and hard copy from Amazon with an audio book version on the way.

You can find some additional writings from Elizabeth including posts on her international experience over on her blog WindowsOfThought.WordPress.com. She hasn’t written much in this space for a couple of years but like me I think you can find something you may enjoy.

A big shout out to Empish Thomas for recommending and introducing me to Elizabeth.

Empish is a freelance writer and one of the bloggers along with Elizabeth on Vision Aware .com.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
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Walking the Walk with Day Al-Mohamed

Wednesday, May 8th, 2019

Day Al-Mohamed and guide dog Gamma
Today is the right day to shine the spotlight on Day Al-mohamed. We’re focusing on her creative endeavors such as writing books, short stories, comic books and scripts. now she adds Film director and Producer to her list of credits. Hear how she began writing, learned to produce a documentary on the virtually unknown disabled Civil War soldiers known as the “Invalid Corps” and provided yours truly with some early inspiration in my adjustment to Blindness process.

Plus, she shares a story and piece of American and disability history that I guarantee you haven’t heard.

Listen

Resources

Transcript

Show the transcript

Audio: Radio turning through different FM stations.

TR:
Rise and shine beautiful people.

Audio: Lovely Day, Bill Withers

You’re listening to WRMM better known as Reid My Mind Radio. I’m your host T.Reid.

If you just stumbled across this station while turning the dial on your virtual radio, welcome!
This is the place where you’ll find stories and profiles of compelling people impacted by blindness and disability. When I’m in the mood or have something of interest to share about my own experience I’ll serve that up to you with a bit of my sofrito if you will. My combination of spices!

Today’s episode is long overdue and that’s my bad.

But, as it turns out, it’s just the right Day to tell you a story!

Let’s go!

Audio: Reid My Mind Radio Theme Music

Day:

“I’m a big advocate for doing whatever interests you because to be honest if you have a disability , disability is going to come into it whether you want it to or not.”

TR:

That’s Day Al Mohamed. She encompasses all of those things and more. An Advocate, someone pursuing her interests and a person with a disability.

Specifically on that last point, she’s a visually impaired guide dog user.

We’ll discuss her advocacy work of course, but there’s just something I find so cool about people pursuing their passion. for Day, that’s writing.

And just as she said, disability comes up!

Some of you may be familiar with Day from her time at the American Council of the Blind. But here’s something you may not know.

Day:

I think most people don’t realize even with a last name like Al-Mohamed they assume I’m American. I don’t have an accent when I speak English or anything like that. However, I was born and raised overseas in the Middle East in Bahrain. A small island just off the coast of Saudi Arabia. It’s like 15 miles across, it’s that small. I didn’t come to the US until I was 17.
[

It’s one of those things that people are like wow you’re actually a foreigner. Then I have to reveal the small cheat that my mother is American so … And then they go wow that must have been really rough for her because she’s an American and she went to this whole conservative like Middle Eastern country. And I’m like my mom was from Missouri so she went from conservative Mid West to conservative Mid-East. It was not that big of a change.

[TR in conversation with Day:]
Laughs… So did you go back to Missouri when you came back to the states?

Day:
I actually went to college there at the University of Missouri and stayed on there for law school as well. I think that’s kind of where I got my start with legislative issues and policy issues were actually there in the state.

TR:

Day was presented with An opportunity.

Following a discussion about sponsoring a bill around disability employment, a Missouri State Legislator decided:

Day:

“I should put my money where my mouth is, I should get a disabled intern. You know that’s what I should do just get a disabled intern.”

And so he just put out this call for a random disabled intern and I kind of randomly got it. When I showed up at his office he was like can you answer the phone can you talk to people. So he had no idea about the capacity of people with disabilities at all.

I think that’s kind of always stuck with me and I look for other people who kind of have that same walk the walk.

TR:

That sort of attitude can really pay off; for all involved.

Day:

And by the time I’m done he’s like “Hey I need you to write this up as an amendment for the floor Go, go, go

TR:

Ever since then, Day’s been moving.

Day:

you know when you get a job it kind of starts you down a path.
I ended up actually doing an internship at the US Senate in Ron Wyden’s office and so I ended up doing more policy work there.

Next I did law school and then I actually did some stuff with the Preparatory Commission for the International Criminal Court
before there ever was an ICC over at the Haig in Europe. They were trying to design an build it over at the UN up in New York and so I got a chance to spend a good part of summer there working with folks who were on the commission and it was amazing .

TR:

Then Day learned that the American Council of the Blind was looking for a Director of Advocacy and Legislative Affairs. This gabe her the chance to go to D.C and work on national policy.

Throughout her career, she’s worked on a wide range of topics.

Day:

social welfare, employment, technology, education.

I actually worked on Missouri’s conceal carry.

I kind of ended up falling into doing more disability but in general I’m a big advocate for doing whatever interests you because to be honest if you have a disability , disability is going to come into it whether you want it to or not.

I was with the American Psychological Association and for them I did do disability policy but I also did racial and ethnic minorities indigenous populations, some of there international development work. It was a nice mix in broad areas and I wanted to help them get started on creating an immigration portfolio because we were seeing a lot more activities in that rhelm and I think we had something to say.

[TR in conversation with Day:]
Do you have a special area that is very close to your heart?

Day:

It’s hard to say because I tend to fall in love with all sorts of different things. Which I guess in many ways means I’m a Lobbyist at heart. That word gets such a bad rap but honestly all it is is an advocate who gets paid.

You learn how Congress works and then you find people who are the experts or you find people with stories to tell and then basically you are connecting those pieces

TR:

Yes, the pieces are connecting! This advocate, is a storyteller.

[TR in conversation with Day:]

You can definiely talk that policy butI do want to get into the creative side.

I was looking on your website, DayAlMohamed.com, and you have a page that has different versions of your bio. What I thought was interesting was the policy stuff doesn’t come until the very end. The last two versions, the long version, but the other versions are really focused in on the creative endeavors, your writing. Am I reading into that too much? Is that your focus, do you really like to focus in that area?

Day:

I think part of it is (ahem!) I need to redo my website. Laughs!

[TR in conversation with Day:]
Laughs!

Day:

For anybody looking at DayAlMohamed.com I’m trying to get it to split. One is Day in Washinton which is where I cover all of my policy work and that’s where you’ll find some policy analysis and disability related stuff.
One of the things I’ve been doing , it’s almost 10 years now is writing fiction and in the last couple of years I’ve been doing more and more writing . I write fantasy and science fiction so we have books, short stories, a couple of comic book scripts, although it’s not fantasy and science fiction I recently put out a 30 minute film and I have 4 or 5 other short films as well. And so there’s been a lot more of the creative stuff.

It started out as something to do when I first came to Washington DC. My wife actually stayed back in Missouri to finish her degree and so if you’re away from your spouse for along period of time it gets kind of boring but it also gets kind of lonely so I signed up for a writing group. and started meeting with them.

I cannot laud enough the benefit of joining a group. You have other people who are striving for the same thing you’re doing. You have people who can kind of act as a sounding board for ideas, folks to critique. Having that kind of ability to have people to do that it only makes your writing better. I would say no good writing ever came out of a cave.

[TR in conversation with Day:]
So let me anticipate a question that someone would have when they hear that. Someone new adjusting to blindness would say well what about the fact that I’m blind and I’m assuming that wasn’t a blind writing group

Day:

It was not.

[TR in conversation with Day:]

How did that play. And you know, obviously this is something you’ve been doing for a long time but did that play into it in anyway?

Day:

Not as much as I thought it would. Really,..

[TR in conversation with Day:]
How did you think it would . And I’m sorry to cut you off but I want to get that…

Day:

No, no I think it’s a good one.

I think I worried that I wouldn’t be seen as a serious writer, which never happened. Or that they would question my capacity which also never happend. The group always made a point of meeting somehwere that was metro accessible. And we’re in the DC area so they were like well yeh not everybody drives and although at that time everybody else did drive they continued to make a point to only choose metro accessible areas. Even though I know that for a couple of metings it got very tough trying to find a location.

TR:

The benefits go beyond access.

Day:

There was one member who was a copy editing guru and oh my god the number of times she yelled at me about misplaced commas which you know with a screen reader is not necessarily the easiest thing to find when you put them in wrong and to go back and read to figure out where you got it. She was nice about it but she certainly still expected me to make sure I followed through on that .

That I had a strong story arc, character development. All the same kind of things. So realistically it end up with there not being any real difference blind or sighted.

[TR in conversation with Day:]
Nice, nice!

TR:

It was a nice experience for Day.

Unfortunately, she did mention how some people with disabilities reported negative experiences in other writing groups. That however, shouldn’t deter you.

Day:

I would encourage anybody, if you want to write go find a group and do it. Make a point of talking to other people about their ideas or ask them about their ideas. You can also find out about how other people have built things.

Find a group that meets regularly and a lot of things are like anything else they tel you. What you put into it is what you get out of it.

TR:

Ocasionally you may find the support going beyond notes on character development or punctuation. Llike the time day was feeling less than confident about her work.

Day:

“Oh my God I’m the biggest hack on the planet. I never want to write another word again.”
And she’s like we’re going to go out and drink some wine.

[TR in conversation with Day:]
That’s cool. That’s a nice supportive group.

I think for folks who are adjusting and new to it, it’s refreshing in a sense to know that it’s ok to have that doubt in the beginning. So you still were concerned about it but you went through with it. That’s a really important thing I think for people to grasp.

Day:

I think even if it’s a recent loss and it’s kind of tough and you’re struggling it’s a good excuse to get out . It’s a good excuse to start thinking of things you can do. What does it requirewell one is reading books so you can get an idea of what is out there and the second is trying to put your own thoughts down and whether that is personal journaling that you share with no one. Essays about your own transition or putting together fiction it’s all that same process.

I find it therapeutic but at the same time I look at it more professionally.

The more you do it the more you start finding other people like you.

TR:

Specifically other people like author of The Duff, Kody Keplinger, who’s book was made into a movie. She by the way is Blind.

Day:

Recently I had an essay that was published with one of the big Science Fiction magazines and the editor is Deaf Blind. I was like hey there’s more of us out there than you know once you start looking

TR:

Yet, it’s still a pretty big challenge to find us in the pages of books, screen plays and scripts.

Day:

I think one of the reasons I like science fiction is because it tends to be more future looking. A lot of it is very political. Things people don’t want to deal with today they’ll look at in Science Fiction.

One of the biggest problems with science fiction in general though is it
does not usually portray disability. If it does it portrays it very poorly. So basically, we don’t exist in the future. I have a huge pet peeve with that.

TR:

What would you expect then from a self described Lobbyist at heart – who uses stories to help advocate for those things that she’s passionate about.

Day:

So part of me is like I want to write it. You know we’re there. Not everything gets cured. That’s not how it works, that’s not how people work.

[TR in conversation with Day:]

Talk to me about any Sci-Fi films or books that reflect a positive image of disability. Are there any?

Day:

Ooh

There’s one book it’s actually book 2 in a series.

I think the first book is called The Hundred Thousand Kingdoms. The second book is called The Broken Kingdom. It’s by N.K. Jemisin. The protagonist is actually blind.

It’s a fantasy setting. Most of the time when you think fantasy people think like Game of Thrones. They think swords and wizards, it’s very Eurocentric

what Jemesen did is she does this in a lot of her things
she actually builds fantasy that is not. Culturally a lot of it is more African than anything else. And I love that. I love it. I’m seeing parts of the world reflected and cultures you don’t normally see reflected, that you don’t normally think of as fantasy.

I think this last year Jemesen won the Hugo Award think about it as Science Fiction’s Oscars. She won it for the third year in a row. Nobody has ever won it three times.

TR:

Day’s love of writing goes beyond genre and form.

Day:

When I started writing I actually didn’t want to write novels I wanted to do film scripts. It requires a team so I wasn’t sure I could do that as a Blind person so I kind of slid in to doing the novels and the other writing.

I had built up enough cache that I felt secure in my writing and so I actually went to a couple of local film groups. DC Film Makers and I also visited Womens Film and Video. They meet every month and they do … we’re gonna doa movie. Who wants to do different roles. It was a chance to try and experiment a little bit.

I originally came out going I’m just going to be the writer. Guess what I can do writing, no big deal. So I started meeting some other folks doing that.

[TR in conversation with Day:]
Ok, so now, when you started that you said something so I think it revealed a little bit more…

(laughs)

Day:

Laughs…

]

[TR in conversation with Day:]
I’m peeling back some stuff here.

Day:

Here wwe go!

[TR in conversation with Day:]

You said that originally the intention there was to go for film.

Day:

Yes.

[TR in conversation with Day:]

Ok, so when you were younger was that the thing you kind of wanted to do?

Day:

As a kid, nah, I think it was still novels that were my thing. But when I first started writing in DC and I found that writing group the first stuff I submitted to them were scripts.

[TR in conversation with Day:]

Ok, I gotcha!

So when did the interest in film come into play?

Day:

I don’t know! I may have to think about that because I don’t know!

[TR in conversation with Day:]

And probably the reason that I’m asking, well number one, I’m interested.

I’m in this process now of kind of going back into events from my past sort of thing right, and then seeing where these interestsstarted and its just been interesting to me. So i ask everybody right now (laughing) I’m like do you know where your thing started from. (Fading out)

(Fading in) It’s a really cool thing because it’s like oh wait, I’m supposed to be doing this because I’ve always been interested in it. And that’s what that process kind of unveiled for me. I think it’s probably the same for a lot of people. I’m just letting you know, there’s something there. Which is great. Which means you’re doing what you’re supposed to be doing.

Day:

I tend to like a lot of the writing so film, I like the short stories I really like doing the novella length work and I had a good time working on the two comics that I did. It was a lot of fun.

[TR in conversation with Day:]

Visual, it’s comics, but you wrote it.

[
Day:

I wrote it. I was partnered with some really good artists and the nice thing is generally in comics the decisions of what the art images are supposed to be is usually left to the artist.

TR:
Quick recap.

Day decided to pursue her interest; writing. Ultimately she was interested in writing for film, but she was uncertain how she could go about that being Blind.

Then she found her “in”. It’s specific to her, but the idea is universal.

She found a bridge or a means of getting her to her destination. In this case, writing films.

There can be multiple ways to create such a bridge. Sometimes it’s having someone close to you to share in the experience.

Day:

As the fun couple thing, my wife and I usually take turns a couple of times a year. We pick out something we want to do. She picked ballroom dancing one fall so a few years ago I said I want to do a film class and I want you to do it with me because I don’t think I can do it. There’s that as a Blind person I don’t know how it would work. I’m totally secure in writing one and I’ve been meeting with these other film groups so I have an idea how it works but I don’t know if I can actually do it. Getting cameras and all these other thingngs working well , so she said sure.

We signed up for a film classwith Adel Schmidt, who’s with Docs in progress – which is a documentary organization in Silver Springs. I’m just going to call her out by name because she was awesome. She’s like yeh, I’m not sure if you can either but let’s just go with it and see if we can figure it out.

[TR in conversation with Day:]
Nice!

Day:

She says you always start with the story.

It was like a 6 to 8 week class. You should have a one or two minute either short film or clip or trailer.

So you write out the narrative about what you want to say. You need to make sure it has a good narrative arc , it has rising tension and a climax. All the things you want in good writing. Then you record the whole thing.

Audibly reading the script. That helps give you the timing.

Then figuring out what images you want to slotin at what time.

So I know at 1 minute and 10 seconds where I say this I probably want an image of this. And being able to kind of almost wriggle this grid of what the film would look like.

And then you can go to either finding a way to record the film or finding images that already match that.

[TR in conversation with Day:]
So is that storyboarding?

Day:

Right, I guess you could say it kind of was storyboarding out the whole thing.

We figured out that would be a way that I could control what was happening when making the film. It’s not somebody else making it and then me going here are the images that I think and then if we did or didn’t get those what would be the next alternative. Let me see if that works Maybe I need to change the language and then slot in the images. We talked about would there be good transitions and how to do those. I’ll admit the transitions I had to rely on somebody else to figure out whether it looked really great or not. And then adding a layer of sound effects and then a layer of music on top of that. When I got done that’s what the trailer to The Invalid Corps is. And I used that for my Kickstarter video to fund making the 30 minute documentary.

At least now I know I have a way to make videos that this will work where I can say I control it. It’s mine because there was always that little bit of doubt that if I did it with somebody else oh yeh the the person who is sighted really made the film. With this one there was no question who made it.

Audio: Civil War Marching Drums…

TR:

The Civil War, is the setting for The story of the Invalid Corps.

Day:

My wife is the Archivist at the University of Maryland , University College she does all sorts of historical research and she often heard about them because there was this song and it ended up being real popular in the 1880’s but it really made fun of them. I’m like what is this Invalid Corps. So I started playing around on the internet and finding out more and a little bit more and then I’m like wait a minute, there’s a lot more to this.

Audio: The Invalid Corps (Song)

Day:

We hhear about how many amputations there were and how many injuries and how many deaths, but nobody ever stopped to ask what happened to those guys after they were injured or after they lost a limb.

TR:

Low on man power, rather than discharging injured soldiers, an all disabled regiment was created.

They did things like;

guard supply stations, trains and other property
Work in hospitals and prisons

Day:

They created 24 separate regiments.

[TR in conversation with Day:]
Confederate?

Day:

Union.

[TR in conversation with Day:]
Ok, good! Laughs.

Day:

They did a lot more than people give them credit
for.

It’s a pretty awesome story.

Audio: Snare drum: colonial marching…
So the year is 1684. The war has been going on for three years now. General Grant’s making his final push through Petersberg and on to Richmond to take them down at the end.

He pulls every soldier, every able bodied soldier out of the North and basically their all marching on to Richmond.

So he’s putting a lot of pressure on Robert E Lee. They can’t get out they can’t get supplies. In this kind of desperate attempt to break that siege Robert E Lee sends General Jubal Early, this Confederate General, he sends him North…”Cause as much trouble as you can”

Here’s the issue, because Grant had pulled everybody out there wasn’t really anybody to stop Early . So Early heads North through Virginia and rather than crossing at Harpers Fall he goes up and around through Maryland and then he comes down South towards DC — think of a reverse question mark.

Because there’s nobody there to stop him, he makes it all the way to Fort Stevens which is about 4 miles North of the Capital.

There’s nobody there except some clerks, some government officials, and this Invalid Corps.

You got these Invalid soldiers on the wallsof Fort Stevens and in front of the fort basically having to hold out against like 15,000 Confederate soldiers.

Until Grant suddenly realizes “Oh my God we’re about to lose the Capital! puts the entire Civs Corps on boats and sends them up river going as fast as they can to get to Washington before Early does.

These guys hold out for 24 hours until reinforcements arrive.

The thing is Abraham Lincoln was on the Ramparts of the Fort that day and they even took pot shots at him. They ended up shooting a soldier who was a few feet away from him. They could have taken down the Union or at least taken out the Presidency.

[TR in conversation with ES:]
Wow! That’s an awesome story!

Day:

I know!

History that’s kind of gotten lost and there’s some amazing things. One of the soldiers, he was assigned to the Provost Marshall’s Office, so people knew of him as a Provost Marshall soldier but He’d actually had a disability and was with the Invalid Corps and they just decided to put him there. He was one of the guys doing the detective work to figure out who assassinated Lincoln. So he helped with the hunt for John Wilkes Booth. So he’s like I know where he is. He was doing the tracking, but he was called back to Washington so if was a different unit that got the prestige of saying they caught him. Well, basically he died!

The soldiers who were supposed to guard the conspirators, all of them were Invalid Corps.

The only soldiers who were allowed to carry Lincoln’s caufinalso was that unit.

[TR in conversation with Day:]

Wow!

Day:

I know!

This piece of history, basically disability history that nobody has really researched or talked about.

TR:

A significant amount of research time went into creating this documentary. It’s not as though there are books available on the topic.

According to Day, there are a couple of people currently working on writing them now.

In the meantime, the documentary is done and ready for the festival circuit.

Day:

I want to give it a year where I’m sending to festivals and trying to look for places to screen it and after that I’ll look at finding ways that people purchase it.

It has both captioning and audio description.

The film was crowd funded Shout out to all of the amazing people who helped fund that.

As a part of supporting disability creativity sort of thing, I think there are maybe one or 2 exceptions and this is out of a couple of dozen.

Every single person who has worked on that film either has a disability or is a veteran.

It’s not like I asked flat out going do you have a disability because the 2 I don’t know about I didn’t really ask.

I wanted to make that a part of the way the film was made.

TR:

I get the sense that “walking that walk” and pursuing one’s intrests, aren’t just personal practices for Day. It appears to be a message she spreads.

I want a talk about your bucket list.

Number 1 that is so cool and scary at the same time. I said Oh my gosh. I don’t know if I would want to put out my bucket list because it kind of keeps you accountable because people are going to be watching it.

Day:

Right!

[TR in conversation with Day:]
Which is a great idea. And then I saw that you challenge people to put their own bucket list . I started reading that and I was like awh damn!

Day:
It’s accountability but it also gives a picture of who you are to other people and it encourages other people to go yeh, what do I want and where do I want to go.

You’re doing this thinking where you going back and looking where you started. I think a natural out growth of that is a bucket list looking forward.

[TR in conversation with Day:]

I never really considered doing one. I never really did, that’s something I’m going to take away and start thinking about.

Two things from your bucket list I found kind of interesting.

How are you doing with the guitar? You have an electric and an acoustic now?

Day:
Yeah, I do. I still only know like 6 chords.

[TR in conversation with Day:]
That’s not bad

Day:

It’s not bad but I still need to work a little bit more on it.It’s actually one of the very few things I do that I can say is just for me and only me. And one of the only things I find relaxing. I have a hard time whinding down.

[TR in conversation with Day:]

The reason I ask you that is I got me a guitar a couple of years ago also an electric. My daughter has an acoustic and I kind of took that and started playing and now I like the acoustic better. It’s more forgiving than the electric.
Similarly I find it very relaxing. I have to get back into it because I had a little carpel tunnel…

I do want to someday be able to play with some other folks. I think that would be cool.

Day:

Right!

[TR in conversation with Day:]
That might be on my bucket list.

Day:

You know when the best time to have and use a guitar, Christmas. If I could do 5 Christmas songs. they aren’t usually that complicated. Everybody knows a Christmas song. I have a whole year to come up with 5 songs. That means I need to learn one every other month.
I could do that that’s not terrible.

[TR in conversation with Day:]

I’m gonna have to checkup see how you’re doing. Laughs

Day:

Laughs I’m gonna be in so much trouble come Christmas.

[TR in conversation with Day:]

Now you have one on there number 5 and it says something about being a mentor /inspiration. I don’t think I told you that in 2006, that was my first PCB Conference.

Day:

Was it really?

[TR in conversation with Day:]

Pennsylvania Council of the Blind . That was the first time you were there.

Day:

I do not believe that man, when you rolled in with so much swagger. Come one. Seriously.

[TR in conversation with Day:]
Yeah, That’s just that New York thing!

Basically two years after losing my sight.We were a new chapter and I was one of the folks who started the chapter out here in this county. I just learned so much that week. You were a big , big part of that learning. You did a keynote at that banquet and it was all about whose in your audience.

Day:

Yeah!

[TR in conversation with Day:]
I know, I remember this. And so I really took a lot away from that.

Then later on in 2007, was my first time going to the ACB Legislative Seminar and once again there you were. You were talking about Eugenics and disability. And againI’m very new to disability at that point. So you truly opened my mind and inspired me to kind of dig deeper into what disability means and what it doesn’t mean. I think you should reconsider number 5

I think that this interview has been long overdue. You know I get a little nervous too. I look at certain people as inspiration and I usually don’t like to use the word but in this case it does apply.

Day:

Well thank you . That totally makes my night. Actually it totally makes my year. That’s kind of awesome!

[TR in conversation with Day:]
Laughs.

That’s along overdue thing I should have told you.

TR:

I truly mean that. It’s not only long over do that I share that story with her, but to also share Day’s story with the RMM Radio Family.

Thinking about it, this actually is the perfect time. This episode is a great follow up to the last; Disability Representation in Media

Day is telling stories including disability whether in the subject matter like the Invalid Corps, the inclusion of characters and of course making it all accessible.

And she’s continuing to inspire yours truly, this time not as much from a far.

Day:

So I got to ask, what are you thinking about writing?

[TR in conversation with Day]

(Breathes in deeply!) Laughs!

Day:

You hinted at it, you hinted at it! I’m not letting it go.

[TR in conversation with Day:]

Wow! You know what I always wanted to do. And this would be something that’s on my bucket list. That’s why I was interested in the documentary. I love documentaries. Like I love that.

I’m really just trying to figure out what that specific topic is what that story is that I want to tell. I do love stories, period.

Day:

Well awesome. You should totally do it.

TR:

Big shout out to Day Al-Mohamed.

[TR in conversation with Day:]

Day, I truly, truly appreciate this. Thank you so much it was a pleasure speaking with you.

Day:

Well, I am so glad you invited me to be on your show. I kind of love listening to it so I’m like look, look I’m on the podcast!

[TR in conversation with Day:]

Laughs!

TR:

How cool is that?

Does that make you want to pursue that thing you always wanted to do?

You too can find a way to take you from where you are today to where you want to be tomorrow. It may not be a direct connection, but remember, it’s not necessarily about the destination it’s all in the journey.

I hope this podcast can serve as a bridge for those adjusting to blindness and disability. Connecting this group of people with cool blind and disabled people. Exposing them to new ways of thinking about disability.

Since this conversation I’ve already been doing a lot more thinking about creating a documentary. I believe it’s something I could really do!

I’ll have to add that to my bucket list.

You can check out Day’s bucket list with over 150 items. Plus so much more about policy, writing and more.

Day:

My websites:
DayInWashington or DayAlMohamed.com
If you ran a search on Amazon you can find all my books and writings.
I still have a lot of fun on Twitter That’s my name @DayAlMohamed

TR:

Remember, if there’s a guest or a topic that you want to hear from or about let me know. Chances are if you’re interested so are others. Here’s how you can get in touch, but first, stay in the know, don’t miss a show.

Subscribe!
Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio or wherever you get podcasts.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

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