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2018 Holman Prize : Blind Empowerment in Mexico

Wednesday, September 26th, 2018

2018 Holman Prize winner Maria Conchita Hernandez smiling at the camera

Once again, I had the pleasure of speaking with all of the three 2018 Holman Prize winners.

Beginning today, I’ll introduce you to each of the winners. You’ll get to know a bit about them and their plans for the $25K Holman Prize.

We’re then going to go back and catch up with the 2017 winners and hear about their progress and more.

First up, Maria Conchita Hernandez. Having had access to opportunity and information that helped her form a positive view of blindness and disability, she wants to pay it forward.

Remember, links mentioned in this episode are below as well as a transcript.

If you like what you hear, please subscribe to the podcast using your choice of podcast ap including Apple Podcast, Google Podcast, Sound Cloud, Stitcher, Tune In Radio. Feel free to leave a review/rating if you’re an Apple Podcast listener.

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Resources

Transcript

Show the transcript


TR:

Audio: “More Peas”, The J.B’s

Greetings all and welcome to another episode of Reid My Mind Radio.

I’m your host, T.Reid

If you’re a regular listener, glad to have you back. You know where everything is so come on in and get comfortable. Allow me a moment to greet those who are here for the first time.

Ladies, Gentlemen.

Reid My Mind Radio is my space to bring you interviews with people with interesting stories to share more often about blindness or low vision. It’s also a place for me to share my own experiences with blindness as I move along this journey. As I continue to learn and grow I suspect you’ll see some of that reflected here both in the topics and in how they’re presented.

If you’ve been riding with me for at least the past year, you may recall that in 2017 I brought you interviews with the Holman Prize winners.

Not familiar with the Holman Prize? We’re about to get into that.
First, I encourage you to go back and listen to each of the 2017 episodes.

Today though, it’s all about the 2018 winners. I’ll bring you each of the three in a separate episode. So let’s get started with the first…right after my intro music.

Audio: Reid My Mind Radio Intro Theme

TR:

The San Francisco Lighthouse for the second year in a row, awarded a $25,000 Holman Prize to each of three individuals who in their own way demonstrate the adventurous spirit of James Holman.

All applicants had to create a 90 second video describing their ambition and how they would use the money.
A team of judges all of whom are blind reviewed each video and eventually selected three winners.

Born in 1786 James Holman a veteran of the British Royal Navy became blind at 25 years old after an illness.

After studying medicine and literature he became an adventurer, author and social observer who circumnavigated the globe.

Undertaking a series of solo journeys that were unprecedented visiting all inhabited continents.

Our first 2018 Holman Prize recipient is Maria Conchita Hernandez.

Conchita:
When I was five years old my family decided to move to the United States. It was only supposed to be a temporary thing… go check it out.
I think my mom really saw the difference between kind of what we had available to us in terms of education but also medically wise. So we ended up staying and we became undocumented at that time when we decided to overstay our visa.

TR:
One of 5 children, both Conchita and her brother were eventually diagnosed with Optic Atrophy.

Conchita:
but I don’t think that’s actually what I have. I went to an Ophthalmologist like two years ago and he’s like yeh I don’t think that’s what you have.

I’m color blind, I do very bad with light, I don’t have depth perception so I definitely should have had a cane way before I did.

TR:

That awareness of her lack of blindness skills as a child Conchita would eventually come to understand. After not accepting large print, dealing with headaches resulting from reading standard print, she still graduated with a 3.4 GPA.

Conchita:
That’s why people were like you don’t need help You’re doing fine. The thing is I was struggling but because I was smart I could figure stuff out and I feel like that’s the same in college.

TR:

For many the time spent in college are considered formidable years shaping political views often for a lifetime.

Growing up in California, Conchita had an early start in activism.

Conchita:

So I went to public school. I grew up in California and I ended up graduating high school and going on to college.

I’ve always been into Civil Rights and advocacy. People are like oh what were you doing in high school I was organizing walk outs (laughs…) for immigration. That’s what I was doing, but I never really learned anything about disability or blindness or anything and I didn’t consider myself blind because there’s such a negative idea around it. My teachers never told me I was or anything, they were like oh you are visually impaired you can’t see very well. It was always like a focus on kind of seeing it as this deficit as opposed to something positive.

TR:
During her senior year at Saint Mary’s, a small liberal arts school in California, Conchita took a political science course.

Conchita:
My Professor was Blind. He was like oh ok so you are Blind and I was like no don’t confuse me with those people.

(Laughs along with TR)
He said you should really go to this conference and I was like no, I’m good. So one day he took me to his office and was like you’re going to go to this conference, I’m going to call them and they’re going to pay for you to go. And so he calls like the President of the NFB in California and was like there’s this young lady here and you’re going to pay for her to go. Get her everything and I was like alright I guess I have to go and I don’t even know who these people are. And so my first introduction to blindness in a positive light and to really the disability community was when in my senior year I went to a national NFB conference. And that is where I was just kind of blown away.

TR:

With such negative stereotypes around blindness, it’s common for those with residual sight to choose not to identify as blind. Often even encouraged.

Conchita:

My teachers always told me you know you’re so lucky cause at least you can see something. You know I had these very Ablest ideas what blindness was and disability and when I met all of these blind people I realized people that were totally blind were doing more stuff than what I was doing because I didn’t have the skills . I didn’t know how to travel independently. Up until that point I never went anywhere by myself. I traveled the world, I went abroad, but I was always with someone. I had this fear of going by myself because I wasn’t sure what I would do. In my mind what was wrong was that I couldn’t see not that I didn’t have the skills because I didn’t even know that was a thing.

TR:
That thing? A strong, positive view of what it means to be blind, to be disabled; not only would that become her thing, but it became the foundation for her Holman Ambition.

First, she enrolled in a blindness training program. She learned how to properly use the white cane, Braille, access technology

She knew then she wanted to give other blind children access to the information she didn’t receive.

Conchita:

I didn’t have good teachers of the blind who really should have showed me all of these things No one showed me Assistive Technology. Nobody showed me Braille because I saw too much, but yet I couldn’t function like everybody else.

I ended up going to this Master’s Program at Louisiana Tech and I got my Masters in teaching Blind students.

TR:

After working as a Rehab Counselor in Nebraska, Conchita moved to Washington DC where’s she’s been teaching blind students for over 6 years. She’s currently pursuing a doctorate in special education.

Conchita:

I also run a nonprofit on the side which is kind of where the Holman comes in. I started it three years ago with several friends who are also professionals in the blindness field.

TR:

That organization is called METAS. An acronym for Mentoring, Engaging and Teaching All Students.

The organization was formed after founding member Garrick Scott received an invitation to serve as a mentor at a school for blind children in Guadalajara. Not being a Spanish speaker, he invited his friend Conchita to join him.

Conchita:

I was like alright if we’re going we’re going to have a curriculum. We’re going to have workshops we’re going to set it up organized , we’re not just going to randomly go on a trip. So we ended up building a curriculum, building these classes.

TR:

Two other colleagues; Sachin Pavithran and Richie Flores joined Conchita and Garrick to form the organization.

Conchita:
We’re training the teachers on how to work with blind students because there is no certification for teachers. It’s mostly physical therapists, or occupational therapists or just people who were like I just wanted to help people. So they don’t really have a background in education of blind students.

Conchita:
after we went to Mexico we decided we need to be a nonprofit so that we can ask for money and we can make this something sustainable. So three years ago we did this and we’re all blind, we’re all professionals in the blindness field we’re all people of color and we’re all really passionate about what we do

Audio Conchita Holman Prize Submission

TR:

Continuing to build on that passion, Conchita submitted her proposal to create a conference in Mexico providing training and informational workshops for people impacted by blindness.

Conchita:

Anybody who is blind, parents of blind children and professionals in the field.

The goal is to bring people together and organize. . I believe organizing people together and having them advocate for their rights and advocating for what they want makes the world of difference. And that’s what changed in the United States. The reason we have the laws we have, we’re not special, we’re not more advanced than any other country even though people think we are. We’re not smarter. It just so happened that the right people were in the right places at the right time .

I think organizing the Blind in Mexico so that they can see this positive idea of blindness and having parents see this positive idea is going to really transform them being able to advocate for themselves

We’re going to be providing workshops from Orientation and Mobility, to Braille to Advocacy to parents of Blind children. Recognizing the situation is different in Mexico than it is in the United States, But power of people together in one place advocating for their rights can be a really powerful thing.

TR:
In Mexico, poverty and policy are some reasons that account for the differences in the lack of education among children who are blind. Conchita once described a blind child’s options as a choice between a beggar or living with their family for the duration of their lives.

Conchita:

60 percent of the kids who are blind or low vision have zero education. That’s not even to the 6th grade.

In the United States we have IDEA which says public school has to take you and has to provide accommodations . You have a right to a free and appropriate public education. That doesn’t exist in Mexico. A public school can tell you I’m sorry but we don’t know how to help you we don’t know how to educate you.

So you don’t have access to public education.

The only state run school for the blind is in Mexico City and the others are privately run which means they charge some type of tuition. The school we work at in Guadalajara, they go up to 6th grade. It’s kind of like a boarding school or kids can go there just for the day.

The thing is there’s nothing after 6th grade.

you can go up until free public education in 12th grade but you have to buy your books in all public schools even kindergarten, you have to buy your uniforms, you have to buy your lunch. So parents make the choice well do we have enough to pay for that or should you start working. So it ends up being are we going to pay for 6 more years of books uniforms or lunches really any school supply or are you going to go to work. Many times the kids decide on their own , I’m going to go to work because I’m going to support my family.

The good thing is there’s a lot of family support. But it ends up being the family taking care of them as opposed to them living independently. The people who live independently are few and far in between.

[TR in conversation with Conchita]

Wow!

I inherently believe that people should have access to information, access to resources no matter where they live.

TR:

Conchita and her METAS team have already seen examples of the success their curriculum can have.

Conchita:

We hosted this workshop in McAllen Texas which is in the Rio Grande Valley where we worked with 16 blind adults and their families who are Spanish speakers. And so they learned, many of them for the first time, how to use a cane, how to do Braille, technology and daily living skills. And then we had workshops for the families. We had an activity where we asked them what are your fears and expectations and dreams for your family member. And it was a lot of fears and kind of what are they going to do when we’re not here and how are they going to be able to do such and such. By the end of the workshop it was just amazing to see how excited they were. They were saying now we want to know how we can support them in being independent and how can we help them reach their goals. We know they’re going to be fine because we met these great blind people.

TR:
Some things to consider when planning this conference? Organizing from outside of the country’s borders is just one.

[TR in conversation with Conchita]
Are there going to be some challenges to kind of get everyone in one room? Just financial challenges?

Conchita:

Yeh definitely. I think that’s going to be the biggest barrier.

So with Part of the money we’re offering scholarships to people so they can travel there.

We’re trying to make connections with organizations that can serve as sponsors that can also provide financing for people in their state. Different states have different policy. So for example The state is Jalisco and the city is Guadalajara, they have an Office of Disability that’s a state level position. So they have money and grants that we’re planning on applying to also help pay for this. But also having the blind people from the different places apply to those grants and in those entities and also try to get companies to sponsor in order to make that feasible. That is going to be the biggest challenge.

the goal is 200 people .

[TR in conversation with Conchita]
Are you familiar with the political structure there in Mexico?

Conchita:
There’s so many layers. Mexico just had a presidential election and the left wing government won. That can be a positive for disability. In Latin America historically the more left leaning countries have done disability laws.

TR:

While the Holman Prize is specifically to assist with bringing this project to fruition, the real goal with any sort of movement is sustainability.

Conchita:

So I see this as being the beginning of something annual and having it be whatever the people there want it to be. Having them have the buy in that they will be the ones to do most of the organizing for the next time and they will be the ones who are like this is what we need and this is how we want to do it. So definitely having it be an annual thing but being run more locally as opposed to me who is in a different country.

Even though I am Mexican, even though I understand the situation, that is not my reality and so being very careful about not telling people what to do but rather giving them the resources and information and letting them decide what they want to do , I think that’s really important.

TR:

The conference will be held in Guadalajara Mexico tentatively scheduled for July 26 through the 29th 2019.

Conchita is also a founding member of the Coalition of Latinx’s with Disabilities. This advocacy organization consists of individuals with disabilities from throughout the Latino diaspora. They work on issues including immigration.

Conchita:

There was a guy who was Deaf who was in a detention center being held by ICE and so we did a lot of advocacy on his behalf. He didn’t have an interpreter. He knew home sign, that his family invented. He didn’t have formal sign language from the states or from the country he was coming from. So he had no way of communicating with anybody except his sister and that was denied to him while he was in detention. So we really advocated for his release and for him getting accommodations. So he was eventually released.

I think more than anything it’s just disability is a whole different world in the Latin X community. There’s a lot of stereotype and it’s just a different history. So just finding a group of individuals who kind of are proud of being disabled and who also have Latinx backgrounds who can share this and advocate for each other.

A lot of people ask me this. They say do you think Latinx’s have a more negative idea of disability? And what I say is we just don’t have access to information. So the fact that I had to go to college to find out about this is an injustice because the majority of people who are big disability rights advocates are white, wealthy, college educated.

and so there was a hash tag, I don’t know if that was a couple of years ago, that was disability too white.

[TR in conversation with Conchita]
too white, yeh, yeh!
Conchita:
If you come from a working poor background you’re not going to go to college panels about disability.

When we talk about the history of the disability rights movement in the United States we leave out all of the people of color who were there and they never get highlighted

When the disability rights movement was happening in California and they were organizing and protesting at the capital, The Black panthers were the ones providing food and there were a lot of disability rights advocates who were teaching the Black panthers how to organize. There was just so much collaboration and that really gets left out of the conversation about the ADA and how it came about and you see a lot of white faces. I think a reason why the ADA was passed under the Republican leadership was because they painted it as a white issue . The people signing were white. I mean those people are also really amazing people and I’m friends with some of them. There really amazing but we always leave out the people of color that were just as much doing as much work as anybody else, but we don’t hear about them as much.

[TR in conversation with Conchita]

Why should disability be different from the rest of society, right? (Laughs…)

Conchita:
Yeh, exactly! (Laugh)

TR:

It’s pretty clear to see that Conchita is an educator at heart. Her own experiences are guiding her desire to share the knowledge about blindness and disability that she wishes she could have gained earlier in life.

She can’t change when she received the information, but she’s doing everything possible to pass along her message.

Conchita:

blindness doesn’t have to be as detrimental as we make it out to be. What tools can you use as a blind person to do x, y and z. As a parent of a blind child what kind of expectations should you be setting for your child and it’s something as easy as make your blind child do chores, don’t let them sit back while everybody else does. There’s ways to have them do it. Have them do the same things their siblings do. Something so simple can really make a huge difference.

TR:
Congratulations to Conchita and METAS. Looking forward to hearing good things about your efforts in Mexico and other projects in the future.

If you want to follow their progress or learn more you can visit www.MetasInternational.org. The site contains a link to their Facebook page which Conchita says is more frequently updated.

You can find the National Coalition for Latinxs with Disabilities
www.latinxdisabilitycoalition.com/

Of course we’ll have links on Reid My Mind.com.

TR: Gatewave
This is Thomas Reid for Gatewave Radio. Audio for independent living.

TR: Close

It’s probably no coincidence that James Holman’s adventures began after his education. That curiosity pushing him to seek out more real life experiences.

Our first 2018 Holman Prize winner featured today has a similar sequence. However, her mission is pretty specific. Empower other blind people who have little opportunities to improve their own lives by organizing with others who are blind.

Next time I’ll bring you the second of three 2018 Holman prize winners. Then we’re going to reach back out to our 2017 winners and Reid My Mind Radio alumni…

Penny Melville Brown of Baking Blind

Ahmet Ustenel AKA The Blind Captain

Ojok Simon, The Bee Keeper & Honey Farmer!

We’ll hear about what worked with their plans and what sort of adjustments were required. And of course lessons learned.

If there’s one lesson I want Reid My Mind Radio listeners to learn; that would be , how to subscribe to this podcast.

Apple Podcast, Google Podcast, Sound Cloud, Stitcher or Tune In Radio. Of course, whatever podcast app you use, you can find it there by search for Reid My Mind Radio. Just remember, that’s R to the E I D!

Each episode lives on the blog, ReidMyMind.com where I include links to any resources and a transcript.

Conchita:

Being very careful about not telling people what to do but rather giving them the resources and information and letting them decide what they want to do.

Audio: Reid My Mind Radio Outro

TR:

Peace!

Hide the transcript

No Half Stepping with Loud Steps Indoor Navigation

Wednesday, September 12th, 2018

Loud Steps Logo
If you ever made use of indoor navigation, then you probably are like me and want to see a wider adoption. Boni Loud Steps, an Indoor Navigation company based in Turkey has recently completed a permanent installation at a Chicago hotel.

Hopefully, this is just one step in the direction where we see many more permanent installations in all sorts of venues.

Listen to this conversation with Boni’s Director of Business Development, Paul Colgan. We talk about their approach to development, securing a permanent installation and other exciting pilot programs such as one currently underway in New York City.

Listen

Transcript

Show the transcript

TR:
What’s up everyone, I hope you’re doing well.
I thank you for being here. Salutes to you if you are a subscribing listener.

If you’re a first timer, welcome!
Maybe you could do me a quick favor?
How did you find your way here to the podcast?

Twitter? Facebook? Did someone send you the link or tell you about the show?

Let me know. Contact me via the social media platform where you learned about the podcast or email me at reidmy mindradio@gmail.com.

I think these stories deserve to be heard so I’m trying to figure what works to get the podcast in more ears.

I’d really love the feedback.

However you found your way here, I appreciate you and hope you stay.

Now let me guide you on over to today’s episode…
right after the theme music!

Audio: Reid My Mind Theme Music

TR:
Indoor Navigation uses combinations of smart phones, floor plans , Wi-Fi and electronic beacons to help provide navigational information about a venue such as a mall, hotel, convention center and more.

Smart phones equipped with a screen reader such as voice over on the Apple iPhone, allows people who are blind or low vision to take advantage of this information and independently find their way from point a to b within a facility.

Ever since first experiencing indoor navigation I’ve been waiting for the chance to take advantage of this technology in the wild. By that I mean, make use of the system outside of a promoter blindness related event.

For the most part, applications have been installed at conventions of both ACB and NFB. While I heard there are installations in a few major airports I have not yet travelled through there in order to make use on my own.

Earlier this year I learned of a company named Boni. They’re the creators of the Loud Steps indoor navigation application permanently installed in the Doubletree by Hilton Hotel Chicago, North Shore Conference Center in Skokie, Ill..

Excited to learn more about the app and how this installation came to be I spoke with Paul Colgan.
PC:
I am the Director of Business Development and Corporate Strategy for Boni Loud Steps. We’re based here in Chicago, Illinois. We’re a Turkish-American company. There’s a development team in Turkey and then there’s myself and an engineer here in Chicago.

[TR in conversation with PC]
Why don’t you start off by telling us a little bit about Loud Steps.

PC:
Well Boni Loud Steps is an Indoor Navigation a;; for an iPhone with special features for the Blind and Visually Impaired. It also can assist Hearing Impaired people as well. It uses the sensors in the phone along with the Wi-Fi signals in a property to locate you in the property.

TR:

The app assures blind and low vision users can access the step by step on screen instructions navigating a person to their chosen destination.

PC:
The accuracy can be as good as a meter in a hotel where there’s a lot of Wi-Fi. It’s a little bit more than that in a mall or airport where the bigger spaces it’s harder to get the good accuracy.

TR:

Audio: Stepping Out, Joe Jackson

In order to explain how the application works, picture the following.
Let’s suppose I’ve been invited to speak at a conference in Chicago. It’s taking place at the Doubletree. Aware that the hotel is equipped with Loud Steps I download the app in advance. However, if I weren’t, when checking into the hotel, a receptionist would inform me of the app and even assist in downloading.

By using a QR code – which is sort of like the codes scanned in the supermarket – but when your smart phone recognizes this code it loads the address to download the application.

PC:
The app itself has a little tutorial in it for first time users. So that first time user gets a quick introduction to the app and then they can begin using it immediately.

TR:

Now that I’m checked in and have my room number, located on the third floor, I key that information into the app.

PC:

The app can then walk you to the elevator, the stairs, the escalator whatever it may be, and instruct you how to go that elevator. And then you can choose the third floor and when you get off the elevator it can tell you to turn right or left, down the hallway and direct you to your destination.

[TR in conversation with PC]
I’m familiar with other Indoor Navigation applications, so does this work similar. So you guys have to install the beacons?

PC:
No, we do not use beacons.

TR:

Beacons are small electronic devices that send a signal using blue tooth. The transmitted signal contains information about the location which can be received by the smart phone in this case.

But beacons cost to install and maintain. While not as expensive, it also introduces a point of potential failure.

PC:
We’re using the radio signal from the Wi-Fi access points to act as our beacon.

When we go into a building we survey all those Wi-Fi signals and we overlay that information – we call it finger printing the Wi-Fi signals every meter.

We put the points of interest on the maps . We label the offices, the rest rooms, the ATM. Then that information we can utilize very quickly to move you around, locate you, draw you a route then to walk you through that route just by using Wi-Fi signals.

TR:

If you’ve never used such an app, you can imagine how
This could reduce or remove the stress involved in spontaneously finding a point of interest in a facility like a hotel.

The technology isn’t new, it just hasn’t been permanently available in many facilities. But Loud Steps, is permanently installed at the Doubletree…

PC:
We went through a world leading innovation hub in Chicago called Elm Spring. One of the investors in Elm Spring was a company that owns the Doubletree. They allowed us access to the Doubletree to test our app and then of course make a permanent installation there.

TR:
Working directly with consumer groups generated feedback to help improve the app.

Implementing Loud Steps at the Doubletree was more like a partnership than an average B to B transaction.

PC:
Their staff and their people have provided us with a lot of feedback in terms of what is necessary to achieve the best service level – quality we need to do because it’s very important to them as a brand to make sure that they had the best possible service.

So they actually pushed us to do a high level job. And it really improved the app overall.

[TR in conversation with PC]
TR:
So when can we get something, you know, in other places, I’m dying for this type of thing.

Let me tell you I experienced this in a couple of places, but the one last year was actually in Pittsburg and I believe that’s a Doubletree property. Just the experience of being able to navigate from one place just seamlessly, just really seamlessly. Once you experience it’s like huh!
(PC laughs!)

And I go to a new hotel and it’s like oh it’s not here I wish I had there here. I want it everywhere! (Laughs…)

PC:
Well, I need that message repeated over and over. So the more you can repeat that message the better because it is a challenge when you go into a facility and they say well why should we do this, shouldn’t we wait until it’s mandated? We try to make the case to them that this is an opportunity to get ahead of the curve. This is an opportunity to provide a benefit to their guests. If they know there are potential customers out there they may not otherwise have then we start to get their attention. And that’s very important

TR:
If we’re only looking at people who are blind or visually impaired, well we know in comparison to the overall population we’re talking about 3 percent.

However, that could be significant.

PC:
When you go to an airport and you say, you have a million passengers coming through. That means there’s 30,000 potential passengers that may or may not becoming through your airport because they don’t know how to discover it. Or, if they come in they request or need an escort. In many of our users don’t want that. They want to have the independence, they want to have the confidence to do it themselves independently.

[TR in conversation with PC]
Is the intent at some point to market this outside of the Blind and Visually Impaired community? I’m assuming there’s other benefits for the general population.

PC:
Oh, there is, exactly. You hit on a key point and this is something that’s been emphasized to us by Mike May who’s with Sendero. Mike makes a very strong point. He says, “I don’t want a single purpose app. Even though they’re beneficial, I want an app that’s available for everyone that has special features so I can use it.”

That’s the way our app is designed and frankly we designed it that way from the ground up. But it was only later that we got confirmation of that from people like Mike May that we were headed in the right direction.

TR:
People with disabilities aren’t the only group who need to find their way around in unfamiliar environments. In addition to navigation, Paul offers a few possibilities that go beyond serving those with disabilities.

PC:
We have the ability to direct you to where the nearest exit is. If there’s an emergency whether it be an incident or fire or you have to vacate the building, we can direct you to the nearest exit. Let’s say there’s a medical emergency. If you suffer a medical event and you need to have a first responder get to you quickly we can communicate it directly to the first responders exactly where you are located in the building so that they can go right to you. If we know that there’s a problem in the east wing we direct you out the west wing.

[TR in conversation with PC]
What about the business side? For example, in malls to be able to serve people ads like when they’re near a Starbuck’s and they’re going to offer you ten percent off a Latte or something like that. Is that part of the plan?

PC:

Yes, So we are doing that now in the malls in Turkey. So we have the capability of providing push notification that’s called. Where yeh, you come by the Starbucks, you come by Kohl’s or whatever the store is that’s in the mall and using your proximity it gets you some information. It could be a coupon it could be well if you come in for the next hour we’ll give you ten percent off. Something like that is really what the retailers want to offer. We now have some capability on our staff to do more precise mapping. What we’re experiencing in Turkey has found that the better maps, the more precise maps, the more up to date maps we have allow the mall operators and the stores in the mall to do a better job of marketing and therefore they get a better response from the users . And so it’s turned into a win-win situation.

[TR in conversation with PC]
I’ve been saying this for years…
if it’s all about marketing to the general public that’s great because that’s the way we’ll get a wider adoption. It’s a bigger audience, it makes sense.

PC:
People want to do the right thing, but they still have budgets to meet. If you can come back to them and say, here’s what I can do for you. Here’s how it can benefit your facility and it now gets their attention. They want the investment because they can see the benefit of it. So that’s part of our sales pitch. Sounds like I should be talking to you about what are you doing on the side business.

PC & TR Laugh…

You’re a good salesmen. You anticipate my needs and my questions already.

[TR in conversation with PC]

The applications for it, to me seem endless. You just have to really be creative with the way you use the system and as long as there’s functionality there. I’ll give you this one or maybe you have it already. There’s was the whole, what was the game?

PC:
Pokémon?

[TR in conversation with PC]
Pokémon, exactly!

A mall, for kids? Come on that’s a no brainer. Building these types of things in there. The kids can have fun using that type of thing.The adults, I mean you can gamify shopping and people will probably buy more, but then at the same time a person with a visual impairment can get to the mall and independently navigate, that’s, that’s huge.

PC:
Yes, That is the goal I mean you’ve outlined the goal very well. That is where we want to be. We want to be an app that can serve a very broad audience, but again have those special features for the visually impaired, the hearing impaired, other people who need a little bit of assistance and do it in such a way its mainstream.

TR:

Boni, based in Turkey, has multiple installations throughout that country.

PC:
There are several locations in Turkey where we have the application installed. Now understand, we used to be a beacon company as well so most of the installations in Turkey are beacon installations but here in the United States I’m trying to do the rollout with just Wi-Fi. In Turkey we do have an airport; Antalya Airport, that’s where we tested it for the airport users. There in conversations with other airports there in Turkey and Europe.

##TR:
In addition to securing other Doubletree locations, Loud Steps looks to go beyond just hotels.

PC:
We’re beginning a test out at O’Hare. We’re not yet at a public level yet but we’re doing some testing there. I’m also talking to some other hotels and other lighthouses around the country. And other facilities that serve the needs of the blind and low vision community about installing some applications at their facilities so they can become training grounds for people to learn how to use the app. And then of course we hope to get it into the community.

TR:
For those in the New York City area , Boni is currently working with the city’s transportation department on a pilot program that will expand the reach of Loud Steps.

PC:
An outdoors application that can inform users at a traffic intersection of when the lights change. It will tell you what direction the traffic is It can tell you where the bus stops are, subways from you location. But more importantly, there’s a bike path there. It’s a very busy intersection in New York City and although it has the APS, Audible Pedestrian Signals system there, they’re looking for a way we can use the app to communicate to the user this information. So again a blind or low vision person can get the kind of information they need when they come upon an intersection. So if they learn quickly what obstacles they’re going to have to deal with in order to cross the street.

TR:
So using this app, a blind or low vision pedestrian would gain real time information including, traffic flow, orientation and surrounding points of interest, traffic light changes, plus…

PC:
We can tell you when you’re deviating from the crosswalk. We may even put in a countdown in there to help you know how long you have to cross the street.

TR:
This attention to detail goes back to Boni’s approach to design.

PC:
We have a design philosophy of solve for accessibility first. Meaning that we have looked at solving the accessibility problems as our primary job and then we built the application from there. As a result we have a I think a better application, a simpler application call it more elegant. It works very well. Easy to learn. By solving for the accessibility issues first, not just an add on, we’ve done a much better job building a great app for people.

TR:
To contact Loud Steps…

PC:
www.loudsteps.com

If you want more information and want to suggest a facility. If you have a hotel, a mall an airport or anything near you you’d like us to talk to the owners, I’ll be happy to do it. My email is paul@boni.meI’ll follow up with you. I’ll send you information about the app and I’ll be happy to follow up with any facility you recommend that I need to talk to.

[TR in conversation with PC]
In terms of the community advocating for this type of installation, outside of contacting you and saying hey, you should put this in my mall (laughs) what else should folks be doing?

PC:
I think that whenever and wherever that they can support the idea of Indoor Navigation for the visually impaired, they should voice it.

Although we are in business to promote our app, but the reality is we work with a lot of other people. We are collaborating on many different levels to try and bring the whole concept of the industry to the wider audience out there and one of the things we’re doing through Sendero for example, is trying to build a database of facilities that have the indoor navigation applications available to them. And in most cases right now it’s beacon based.

So we’re building a database of all the beacons and where they’re located. So whether you’re using my app or somebody else’s app that you have the beacon information and you can go into that facility and use an app. So the idea here is that we want to make it easier for the blind community, the low vision community to find access to this. So anything the community can do to advocate and support the idea of indoor navigation. To tell they’re local government official, we’re talking to universities different places, airports wherever malls… this is a benefit and the number of people out there who may not be visiting your mall because they don’t know how to discover their way through your mall that mall owner is missing an opportunity for a sale. I think the more the community can articulate that, the better it is not only for us but other providers.

Audio: “Ain’t No Half Stepping'”, Big Daddy Kane

TR:

I was very glad to hear Paul say this. I think I told him during the conversation that I tried multiple applications and I am not tied to anyone. I’m a fan of the broad technology and what it provides.

My only issue really with multiple solutions is the extra responsibility to learn and become comfortable with each app.

Personally, I don’t really see this as too much of a problem. As long as the interface is accessible the main components are where am I right now, where do I want to go and how is this app going to help navigate me there.

But that’s me, I like and understand the technology. I would hope to see some standards built in to help those who may find it more challenging to learn the app.

On that same note, I know there are many people who might say, hey I have the skills to independently explore a new location. I go to a mall without the aid of an application and I do just fine. So can you.

Let me speak directly to you… come here, lean in nice and close.

Congratulations, that’s your business.

Lots of times I think people should be able to grasp something because, well I get it therefore I think anyone should.

But that’s really not how the world works.

We all have different strengths and weaknesses. What may be simple for me could really challenge another person.

Technology is about increasing options.

This technology isn’t replacing the need to learn real orientation and mobility skills. It’s just another option to gain access to information that is otherwise inaccessible.

Options are good!

Like you the listener has the option to subscribe to this podcast. You could choose to use Apple Podcast, Google Play, Sound Cloud, Stitcher, Tune In or straight at Reid My Mind.com

Hopefully you make the right choice to subscribe! And either way, if you like the show maybe you would consider giving the podcast a 5 star rating.

I know what you’re thinking …

‘PC:
Why should we do this? Shouldn’t we wait until its mandated?

## TR
Well, first of all, while that would be really helpful I haven’t convinced any of my representatives to introduce this bill, just yet!

But really, all of this helps others discover the show.

And..

PC
This is an opportunity to get ahead of the curve.

TR:
He knows what he’s talking about!

Peace!

Hide the transcript

Reid My Mind Radio: Black on Audio Description

Wednesday, August 15th, 2018

Earlier this year I posted an episode discussing my thoughts on Audio Description. While I’ve been consuming and thinking about description for some time, it was Marvel’s Black panther that sparked me to share some thoughts and ideas.

I decided to continue a discussion on the topic. This time it’s really a conversation. I called a listener who sent me feedback regarding the episodes question. Why didn’t Black Panther have a Black person narrating the description?

And as a bonus, the listener just happens to be someone I’d like to interview for RMM Radio!

So yes, we’re back on that subject or better yet, we’re Black on Audio Description. Let’s get it!

Listen

Transcript

Show the transcript

TR:
What’s up Reid My Mind Radio family? For anyone new to the podcast, my name is T.Reid.

This podcast more than often focuses on issues of adaptation and adjustment through interviews with people who have been impacted by vision loss – from low vision to blindness. I should say severe low vision because personally I’m tired of people telling me how blind they are without their glasses.

You Sir/Madam are more then welcomed here, but if you can put on your corrective lenses and get into your vehicle and drive off – you are not impacted by vision loss.

The people mainly profiled here are indirectly challenging stereotypes about what it means to be blind.

I’m always hopeful that listeners learn something new. Maybe it’s an unfamiliar subject or a new way of looking at or solving a problem.

Occasionally , I share my own experiences around becoming blind as an adult. These are influenced by all aspects of identity – including
gender, socioeconomic status, age, demographic location and of course so called race.
I mean, this is America!

A few episodes ago I discussed an aspect of blindness that can intersect with race.
Audio description!

Audio: “What” – From “Jay Z “Jigga what, Jigga Who.”

Well that could be two whats…

Audio: “What, What” – From “Jay Z “Jigga what, Jigga Who.”

Don’t be nervous! Let’s get into it…
After the intro…!

Audio: Reid My Mind Radio Theme

## TR:

Back to the questions.
What is audio description & what does race have to do with it?

If you don’t know audio description, let me really welcome you to the podcast. Audio description or AD is the additional narration distributed with a movie or television show that describes scenes without dialogue,
enabling a person to non visually follow or access the content.

That other what?
What does being black have to do with audio description?

On the technological level , nothing! But as we know, race is complex. It’s ingrained into the fabric of this country. The complexity though, isn’t tied to the tech, rather its the subtle aspects of language, decisions about what is relevant and the voice of the narrator that impact some viewers experience

In the earlier episode on audio description, I was specifically referring to the Marvel hit movie and what many Black people looked forward to as a cultural event; Black Panther.

Following that piece I received a bit of feedback.
If you go to the episode blog post at ReidMyMind.com you can see one commenter’s response and I encourage you to follow the link to her blog
where she shares more. She is a person who herself is involved in the description process. Self described as a white lady she was appreciative of the issues and questions raised and thought they deserved to be discussed. Shout out to you for the link love and being in the accessibility field. I think sometimes we forget that AD is accessibility.

I also received an email from a young lady – who closely identified with the issues raised in the episode.

She was pleased to know that she was not the only one who felt that the description included with Black Panther, well sucked! My words, not hers.

No shots to the gentlemen who described the film, you sound like you’re probably a very nice person and quite honestly, I’d love to speak with you. In fact, I reached out to Deluxe, the company who created the description for Black panther but I never heard back. I really wanted to begin a dialogue.

It seems fair that a consumer would have something to say about a product or service.
And personally I think it could be helpful to have a bit of input from those who consume your product or service. And well that’s today’s focus.

Audio: James Brown: Black & I’m Proud – Instrumental

That email expressing agreement with my opinions, was from a young lady named Denna Lambert. Like me she experiences blindness as an African American.

She black yawl!

I don’t often get the chance to meet new people who are blind and who are people of color. So I’m not gonna lie, I was looking forward to the conversation. I had questions.

So, let’s get black on Audio Description.

Audio: James Brown: “Say it loud, I’m Black & I’m Proud”

TR in conversation with DL:
You heard the podcast, what was it that jumped out to you to write the email and say “Hey I feel this too, I get it!”

DL:
Well being blind, sometimes just getting audio description feels like a luxury and your happy that somebody did it and it came out at the same time as everything else and I can just shut up and be happy. But at the same time with you being really thoughtful in what you were saying like “hey this was a mismatch” And I was like “Oh, you voiced what I was thinking!” Just knowing that I’m a consumer of a service and we should have a voice in how that service is implemented. If it’s missing a mark we can help take it to the next level. Yes people have fought and probably sued some theaters to make sure the equipment is functional and that is there from day one. But let’s take it to the next level to make sure that it is culturally confident. And it was like Oh Snap I got to support this too. I think that is why I reached out because I was thankful for being silently dissatisfied at some level. I felt like I didn’t get the full Wakanda experience.
TR in conversation with DL:
I’m still lacking some Wakanda experience myself. [laughs]

TR:

That Wakanda experience was what drove millions of Black people to get excited about the movie.

Some indeed were fans of the Marvel franchise, some may have even been fans of the comic book. But many were simply looking forward to a movie with strong diverse images of Black people on screen.
I talked a bit more about that in the original episode of the podcast on this subject.

Denna herself was anticipating the movie just as much as many others and got a bit more into it than I did.
DL:
I was in the hype just like everyone else when the trailer first dropped which didn’t even have audio description. I called my mamma and said let me get my dashiki so I got my dashiki and I was ready and had my headdress. When i heard voices of Andrea Bassett i was like “Yes!” So I went and thankfully the movie theater I went to they had the audio description devices ready and they were fully operational. From the first introduction where they were talking about how Wakanda was created with the different tribes and the describes voice coming up I was like “Who?! Who is this?!” But I’m still excited. So it was kind of a mismatch from everybody who was in the theater. Some people brought their gymbays and people had their dashikis and you know just black power. And you can hear the describer’s voice and not to say you can sum up a movie by their voice but it was like “huh.” The descriptions were definitely okay but that’s the piece as a blind viewer. But there was so much content for any viewer whether they were sighted or blind. I have to wonder what did i miss. Could there have been different words used that would have more aligned with the culture and the theme of the movie.
I started using AIRA and now i started seeing more AIRA agents of color. Im seeing Antonio and Annika and all them. And I’m like “Okay I’m going to need yall and come and describe some movies for me.”

TR in conversation with DL:
MMM you just made me think about something hold on one second. That takes that whole idea of description out of the movie theater because that’s the whole purpose of AIRA and then cultural inclinations about various things that you are doing.

DL:
Yeah. I’ve seen Black Panther abot 3-4 times just because anybody who wanted to go I wanted to go with them. There’s probably so much mystery and thoughtfulness that was put into it. SO like the scene where T’Challa and Nakia were in the club and they were trying to go after the main guy and they were in their attire. I don’t think the person described the attire, he described her movements but i was watching a video from one of the directors and he intentionally used the colors; green, black, and red to symbolize their african pride. And that’s something that just one little sentence could have brought that out. While I was very happy and thankful that the description was available since day one because that certainly was not the case 10-15 years ago that i could just show up whenever i wanted to. But i think there is some growth that could happen with this area of accessibility.

Tr in conversation with DL:
SO went you went a bunch of times with different people, did you go with anyone that was blind or no?

DL:
No actually no it was just with different sighted friends who just wanted to go.

Tr in conversation with DL:
Did you compare notes with them or anything at all?
DL:
A little bit because I went with some friends that were black and then I went with some friends that were white. And you know they were asking me what was this and what was that and i was like well I don’t know. [Laughs]

Tr in conversation with DL:
“I don’t live in Wakanda!” [laughs]

TR:

There are definitely some overlaps in this conversation around audio description that transcend cultural Competence.

Feeling as though audio description is a privilege, I’m sure is something many blind people have felt.

Going to a theater and the device doesn’t work, well you may not want to trouble the person you’re with to quickly exchange the device. That means missing part of the movie and chances are you don’t want someone to have to do that.

Shout out to ActiView and their audio description solution that puts more of the power in the consumers hands. You can check out the Reid My Mind Radio archives for that interview on that service that I personally hope begins to get more movies in their app.

Audio: Public Enemy: Party for Your Right to Fight

Privilege or a right?

If audio description is access to content, then I believe it’s a right. Like everyone else who has the right to pay money to watch a film or television show, people with disabilities have the right to audio description, captions and physically accessible theaters.

What makes our lack of excitement about Black panther’s audio description
so confusing is the lack of consistency between the big and small screens.

Watching the Marvel franchise on Netflix with audio description is vastly different from Black panther.

For the sake of comparison, I asked Denna about her thoughts on Marvel’s Luke Cage.

Luke Cage is the black superhero who calls Harlem home. He can’t be hurt. Bullets bounce off and knives can’t penetrate his skin.

The person describing Luke Cage, who by my account sounds like a white man, describes the other shows in the series, Daredevil, Jessica Jones, The Punisher and more.

DL:
He’s been consistent through the marvel comic series as netflix has been rolling it out. So it was almost embedded in brain that this was the dude that’s going to bring it. There was definitely some awareness in hearing when they would say things like “he’s wearing a fedora.,” or “he’s swaggering down the sidewalk” or “he did a dab” or the hair. And I don’t know if just anybody can point these things out.
With Luke Cage there was nothing apologetic about how this is the blackest comic that you are going to get. What I really loved is that the describer, I don’t know if it was apparent to the visually to whomever was viewing it, but I love that they reference the specific artists as they came up in the Paradise Lounge.
So to me that was showing respect and it gave me the experience of thinking “okay let me go look for some of these people.”
Tr in conversation with DL:
It’s not only the ones who are actually performing, they also are good at including people who are just around and even in other scenes.

DL:
Yeah so even like the picture of Biggie, he described his expression, his crown and how it was kind of laid to the side. To me that, I don’t know, it just seems…

Tr in conversation with DL:
Just culturally confident.

DL:
And I think with you were saying earlier, it wasn’t like two different scripts. It felt like there was one different script with the description being apart of the verbalizations too.

Tr in conversation with DL:
I almost don’t even think of the description as description while watching netflix.

DL:
Right!

TR:

That term truly encapsulates what should be a part of the audio description checklist.

Is the description culturally competent – meaning are we informing the blind viewers about the subtle references that will make sense to them? This would probably require input from the films creator if there’s no one in the know involved in the process.

This idea is already relevant to the movie or television show’s dialog and choices made regarding character development.

It’s one thing being black and looking for true representation in Hollywood. What about as a woman? As a black woman with a disability.
Tr in conversation with DL:
What do you think about the role of the black woman in Luke Cage.

DL:
Oh now that was pretty sweet! I was really proud that Luke Cage he’s like the strong Black man. Hes caring. I was really glad to see his girlfriend, Claire. And she was holding on to that no this behavior of holding on to your anger, she grew up with that and she was not going to tolerate it.
I loved Missy. I loved that she was this strong woman who was feminine. She
Didn’t lose not just her sexuality bit sensuality.
There was so many different aspects of black women in this. You had Mariah.
Tr in conversation with DL:
[laughs] She was crazy.

DL:
She was great! She played that! I loved seeing Luke’s father.

Tr in conversation with DL:
I didn’t realize that he passed, I totally forgot he passed away.

DL:
Yeah! Because he was in House of Cards and I was so happy to see he was in there. SO there were so many examples, a whole spectrum of what blackness in. You know you don’t have to be the thug or the jessabella. There were so many different examples of black women in there that i was really impressed.
I love how Missy called out all of her coworkers cause they were staring at her prosthetics. SHe was like “let’s just get a look at it, im here, im not going away, this happened.” And i was just glad that she called it out. That was a way of handling disability, it became a part of who she was. She even described on when she was using her prosthetic arm or robotic arm and when she wasn’t. Which I don’t know if that was so important for me to know but the describer pointed that out.

Tr in conversation with DL:
I think the whole idea was that shes statint to use it more and it’s even more of a part of her, she’s getting accustomed to it. And so I’m wondering if she’s going to get her own thing.

DL:
Yeah you know what, she was doing some things that were like humanly impossible so I was wondering if she’s going to get some superpowers.

Tr in conversation with DL:
Yeah because isnt that a Stark arm?

DL:
Yeah yeah.
I loved the complexity of them having different territories; the choinese, the russians. They pulled in references for Katrina and showing that there can be disagreement. Like the judge who said “i had a family in louisiana who lost everything, don’t use this as an example for your shadiness. I don’t know I loved it I felt it was pretty cool. The ending ended with I think he changed the picture from Biggie to Mohammed Ali. But that’s the thing! I think the way that the description was, we noticed those things but we don’t know what we missed in Black Panther.

Tr in conversation with DL:
What i liked about it was how they would say it because the director meant for it to be. For example when Mariah and Shades were standing in front of the picture and the crown aligned to Mariah’s head to show she was the queen.

TR:

As we see with Luke Cage it doesn’t specifically mean the narrator has to be black. Or does it?

TR in conversation with DL:
What would you think about a woman describing that? A black woman doing the description in Luke Cage.

DL:
Ohh. Oh.

Tr in conversation with DL:
You think it could work?

DL:
It would have to be the right voice because I’ve seen on Netflix the Unbreakable Kimmy Schmidt because it wasn’t really for me. But the person’s voice on there, I don’t’ know if she’s’ white or not, but no she could not do Luke Cage. [Both laughs] We don’t want her! She can do some other shows but she can not do this.
If Octavia Spencer or, why am I forgetting her name.

Tr in conversation with DL:
I know who you’re talking about you’re talking about the woman from How to Get Away with Murder.
DL:
Yes!

Tr in conversation with DL:
Yeah she has a great voice.

DL:
Yeah if she wanted to describe it, then yes.

TR:
For those who are fans of How to get away with murder… my apologies. The star of that show is the incredible Academy award winning Viola Davis.

Whether the description is voiced by a man or woman, Denna says:

DL:
It has to be somebody who follows that it was Harlem so you have to have somebody who has that Harlem… I don’t know.

Tr in conversation with DL:
That texture in their voice, I know what you’re saying.

DL:
It cannot be a very thin voice it’d have to be a full bodied voice.

Tr in conversation with DL:
I think it could work. That is if they don’t give me the job because I’ve put it out there before that I wanted that job. Although I like the guy who does it, I’m fine with him but if he’s going im going to jump in there because that’s Harlem. I’m not from Harlem, Im from the Bronx but I can take Harlem.

DL:
Yes! You could do it. [Both laughs]

TR:
Hey, there’s nothing wrong with trying to speak things into existence. But come on, , how cool would it be to have a person who is actually blind, from New York… born just a few miles away from Harlem, my Daddy’s from Harlem. And I’m blind. Universe, do you hear me talking.

#NetflixCallTReid

There’s much more to this discussion. Hopefully like the original episode, this will attract some feedback. I’d love to hear from others on this subject. Maybe you are a person of color and have some other examples of both disappointing and enjoyable audio description experiences. let me know. In fact, if you’re not a person of color and
was disappointed in the Black Panther description I’d like to hear from you.

When it comes to movies and television, Ultimately, , I think we all want the same thing; the right to enjoy the experience.

I’m interested in all experiences of blindness and disability in general, but I would really like to hear more from other people of color. I know there are some compelling stories out there .

For instance, corresponding with Denna prompted me to be even more nterested in her experience.
Let me show you what I mean.

Audio: Screen reader reading Denna’s email signature…
TR:
If you don’t speak screen reader, that was her email signature. Denna is a project manager at NASA.

Now, this wouldn’t be Reid My Mind Radio if we didn’t find out more about her journey. We’re going to get into that next time on the podcast.

So, if you’re new or if you haven’t just yet, may I encourage you to subscribe to the podcast. Reid My Mind Radio is available on
Apple Podcast, Google Play, Sound Cloud, Stitcher, Tune In Radio. If you’re using a podcast app you can find it there.
Go on over to ReidMyMind.com for links to subscribe as well as a transcript of the show.

Remember that’s R E I D like my last name.

If this was your first time here I know what you’re thinking…
It happens all the time…

DL:
happens all the time…

TR:
Wait until you hear what more is coming up!

Audio: Reid My Mind Outro

Peace

Hide the transcript

Reid My Mind Radio – Master Chef Christine Ha

Wednesday, August 1st, 2018

A picture of 2012 Master Chef, Christine Ha
Christine Ha, winner of Fox’s Master Chef in 2012 never set out to be a cook. In fact, as a young girl she had no interest in cooking at all.

Hear all about how becoming Master Chef changed her life. Including launching her latest venture; The Blind Goat. A restaurant or Chef Station in a new Houston Texas Food Hall.

Christine’s story shows us how advocacy takes various forms. Plus lots of valuable information for anyone adapting to a life change.

Listen

Resources

Transcript

Show the transcript

TR:

Whats up Reid My Mind Radio family, glad to be with you again.

If you are new here, my name is T.Reid.
This podcast is my space to share interviews and profile compelling people usually
impacted by blindness or low vision.
Occasionally I include stories about my personal experiences with vision loss.

Coming up today, I had the privilege of speaking with a young lady who took the subject of vision loss prime time.

That’s right after we get a taste of some of this delicious theme music!

Audio: Reid My Mind Radio Intro

Audio: Christine Ha winning Master Chef
TR:

In 2012 Christine Ha was studying creative writing in graduate school.
Following her husband’s encouragement, she tried out for the third season
of the Fox series Master Chef.

If you’re not familiar with the show,
amateur home cooks audition for the chance to put their culinary skills
up against their peers.
They’re given the task to design and prepare all sorts of dishes
from desserts to main courses.
Well known Chef Judges crown one contestant as Master Chef –
giving the winner a chance to publish their own cookbook as well as a cash prize.
CH:
As a writer, as an artist, you are always trying to experience everything you can in life. And so I thought well there are auditions are coming to a nearby town like why not if anything I have some interesting stories to write about. I went just going for the experience not thinking that I would get as far as I did.

TR:
She won!
Along with the prizes she became synonymous with the title The Blind Cook.
CH:
I lost my vision because of an autoimmune condition called Neuromyelitis Optica or NMO for short. It’s similar to multiple sclerosis so my immune system attacks minor logical system primarily the optic nerves in the spinal cord. There were many times when I had an NMO attacks that involved paralysis. I would lose feeling in my feet or my hands I’ve had a time when my attack on my spinal cord was very bad where I was completely paralyzed from the neck down for several weeks and at the same time I was also experiencing optic nerve inflammation so I was also losing my vision couldn’t see anything, couldn’t move, couldn’t sit up by myself, couldn’t feed myself, couldn’t grip my tooth brush, hold my glass of water, lots of things. So that was a big challenge in my life and that was around the time when I was in my early twenties. Fortunately, I’ve been able to recover quite well from a lot of the spinal cord inflammation.

TR:
Christine describes her resulting vision following the NMO
CH:
As though one were to come out of a very hot shower and looked into a steamy mirror, that’s what I see. So, washed out colors some shapes some shadows very blurry vision I would say in both of my eyes. I still managed to go back to school and get my master’s degree in creative writing after I lost my vision.

TR:

Christine was never planning on becoming a Master Chef.
In fact, she didn’t begin cooking until
moving out of the dorm in college.
CH:
I realized that I had to learn to cook in order to feed myself because I couldn’t afford to always eat out. I decided to buy a cookbook and read the recipes and then just buy some cheap kitchen equipment and teach myself. And I just read the recipes word for word and experimented in the kitchen. Also the fact that I missed a lot of the food that I grew up eating, Vietnamese food, since I’m being amused by heritage my mom was a very good cook but she never taught me how to cook. She was actually very overprotective mom and wouldn’t let me near the knives or the hot stove and I really wasn’t that interested in cooking as a child. And I just thought that everyone ate good food and I took my mom’s home cooking for granted and she actually passed away when I was fourteen and I think when I was older in college I realized what I had missed out on learning to cook from her. So I started reading a lot of Vietnamese cookbooks and trying to reproduce a lot of the dishes that I recall eating growing up in her home. Knowing that I was able to create something with raw ingredients and be able to keep the people around me that I cared about and have them enjoy something that I actually created with my own two hands, that kind of ignited my enjoyment and passion for cooking. And so it was that moment on that I wanted to learn everything I could about food in cooking so I read tons of cookbooks practice a lot of different things in the kitchen just tried my hand at. All kinds of cuisines and it just kind of grew from there and it was interesting Lee end up the same time that I started losing my vision because of the enemy so I was slowly losing my vision at the same time that I was excelling at cooking it always felt like I had to really learn how to cook like every few months or every couple years I would have to really learn how to do things with less vision in the kitchen.

TR in conversation CH:
Did you ever deal with any fear as the vision was gradually decreasing? Did you ever set to say “hey now I’m a little nervous about this?”

CH:
It always felt like I had to start over every time my vision decreased so I felt defeated quite a bit throughout these years.

TR in conversation with CH:
What made you keep on going?

CH:
I think part of it was eventually I realised I just couldn’t allow myself a short time to grieve the loss of my vision and feel sorry for myself and just kind of well in self-pity. But I didn’t want to drop out of life I just wanted to live it in the best way that I can

TR:
Living life in the best way possible doesn’t mean problem free.
Challenging circumstances are inevitable.
Christine identifies some real benefits of going through adversity.
CH:
I think it’s a reminder always when I have challenges today whatever they may be to remember that oh well I’ve survived some tough things in my life so I know that if I’ve been able to survive that I’ll eventually survive this. But when you’re in the moment I think it’s hard to have that attitude. Over time your brain sort of learns that we’re much more resilient than I think we give ourselves credit for, it isn’t until we go through these obstacles or challenges and then overcome them that we realize that “hey we can do this, we can survive, we can succeed in spite of things.” It’s important to celebrate the small victories because I think often times we always focus on our failures. Yes failures are disappointing but they teach you to find new creative solutions to things and I think they help you realise that you know when you do work hard in attaining your goals there’s that much more special

TR:
Special indeed!
You can say life changing.
TR in conversation with CH:
How did it feel when you won?

CH:
My life I feel changed completely. I am grateful that I went through it as a more mature adult. I feel like just that amount of publicity I think suddenly happening in your life if you don’t have a sense of yourself a strong sense of self in a certain level of maturity I think it’s very hard to deal with. The negative part was that I was not used to being recognised and that felt really strange and especially someone who is visually impaired being out and about and having strangers come up to you suddenly and I don’t know people are approaching me and all of a sudden there’s people calling my name and I’m like “is it someone I know is it someone that watch me on T.V.?”
That was kind of a bizarre experience at the beginning and it took me a while to get used to that but the upside was I’ve had so many opportunities since winning Master Chef that have been amazing. I’ve been able to travel around the world and and do work with the U.S. embassy in culinary exchange programs, advocate for entrepreneurship women’s rights and the rights of those with vision impairment and people with disabilities, do things with Asian American focus groups so all of these things have been really amazing in just the experiences I’ve been able to have like judging Master Chef Vietnam or you know having my own cooking show geared towards the visually impaired called 4 Senses in Canada. All these things would not have happened if I wasn’t on Master Chef. I’m really excited because finally this follow opening I very first restaurant in Houston and that’s been a dream of mine and it’s finally coming true as well.
It’s called the Blind Goat it’s coming into a newly built hall that’s very chef driven in Houston so the food hall craze is finally coming to Houston I know it’s you know a thing in New York it’s a thing in L.A. and thing in San Francisco.

TR:
A Food Hall is typically a mix of local artisan restaurants, butcher shops and other food-oriented boutiques under one roof.

A food hall is not the same as food courts found in malls as that consists of fast food chains.
CH:
It’s called the Blind Goat because obviously I am vision impaired and goat is my zodiac sign in Vietnamese astrology so I’m born the year of the goat. So I thought that was kind of a cute and fun name and the cuisine that we’re going to be serving there will be largely southeast of Vietnamese style. And it’s kind of like small plates, I would call it a Vietnamese gastropod so kind of shareable small plates that consist of food that you would want to eat and share with friends over a beer or over a glass of wine. Communal eating is kind of the theme and this is something that I’ve always believed in and the food and ingredients that so I’m very excited to be opening up the place and sharing it with the world.

TR in conversation with CH:
Are you familiar with the acronym the goat?

CH:
I didn’t know but then someone said does that stand for greatest of all time and I was like that is really funny I never heard of that before but now I will have to use that. But do you have another acronym?

TR in conversation with CH:
No that was it the greatest of all time L.L. Cool J. had his whole album he refers to himself as that as the goat and some people when you talk about your top five well you know that type of thing a top five artist you say oh this was the goat.

CH:
Im totally going to have to put that in my tagline or something. [laughs]

TR in conversation with CH:
There you go, run with it [laughs].

TR:

In addition to publishing her cook book;
Recipes from My Home Kitchen – Asian and American Comfort Food,
Christine co-hosted a cooking show produced by Accessible Media Inc in Canada.
CH:
They wanted to do some original programming and of course I was the natural fit because I can cook and I’m vision impaired.
I co-hosted it with Carl Heinrich who won Top Chef Canada and he’s a fully sighted chef professional chef and I’m sort of the amateur home cook that’s vision impaired and we co-hosted the show. It’s a show that geared towards not only vision impaired cooks but also novice cooks or just anyone who wants to get back in the kitchen and learn about cooking. But of course it really was heavily year towards people who have lost their vision and want to learn to cook again or who just want to be getting learning how to cook our show had audio description embedded within the program so we were very descriptive it was almost like you could listen to radio while you were watching our show. We wouldn’t use things like “oh you put this in there” you would say you’re putting the salt inside the pot that contained the chili and of course the recipes were available online in an accessible format.

TR:

Four Senses ran for 4 seasons and is still available online.

Christine’s working on a new cookbook right now.
CH:
When I first learned to cook I would follow a recipe to a tee and if it said to put you know something in the oven for forty five minutes I would do it even if like everything was smoking and it was obviously over cooking and burning. I think that’s kind of the wrong approach to cooking, everyone’s equipment’s different ingredients or different elevation that you’re cooking and that affects like how things cook so I want to write a cookbook that helps people hone in on their own intuition and cook using all of our availale senses.

TR in conversation with CH:
I’m more of a crockpot cooker. [laughs]

CH:
Oh yeah there’s nothing wrong with that at all. It’s very convenient to just dump everything into the pot and walk away and then you’ll have a good smelling meal later.

TR:
If you’re imagining that Christine’s kitchen is full of high tech gadgetry , you may be surprised.

In addition to raised dots on the oven and microwave,
it’s really more about organization.
CH:
I have a baking bin so that will whole my baking soda, baking powder vanilla extract, vanilla pods, sugar. And then I’ll have another bin that’s my coffee bin so that will hold the coffee beans, like the Arrow press, the coffee filters. My spices are organized. I have everything in my pantry actually on a list using the our groceries app on my iPhone I can just read down the list using voiceover and know everything I have in the kitchen so I can meal plan that way. When we run out of milk or something I can move that to the grocery list and then we know when we go shopping I share the list with my husband and he can see on a list we need milk so he can grab the milk. So that’s kind of you know the adaptations I had in the kitchen. I have an Amazon echo which I love to set timers for different things I’m cooking, to do quick conversions standard measurements to metric, and of course I love listening to music while I cook.

TR in conversation with CH:
What’s the music you listen to while you’re cooking.

CH:
I actually listen to all sorts of stuff. So I listen to a lot of classic rock I grew up listening to The Beatles because my parents love the Beatles so I listen to classic rock, I listen to a lot of indie rock, alternative rock. You know I’m a child of the eighty’s and ninety’s so I do like some new wave and some eighty’s pop, British pop, ninety’s of course like the grunge rock alternative rock from that and then there’s also like ninety’s hip hop I grew up listening to quite a broad spectrum of things. Jazz to me is relaxing so I’ll put on just jazz music maybe more of the mainstream country but not like a lot of the country music and not a lot of the heavy metal stuff.

TR:

Not mad at her at all.

Continuing to Master her craft while revealing other talents;
Christine’s not only a cook, author, television host, entrepreneur and public speaker
but through her work she’s an advocate.

Using both her words and actions she’s changing some of the
half baked stereotypes about what it means to be blind.
Non apolegetically walking through life with her white cane in hand striving towards her goals.
At the same time educating society about the many issues of importance to those who are blind and
visually impaired and in general people with disabilities.

Like she does through her TEDx talks which you can see online.
TED is an acronym for technology, engineering and design.

In one such talk she was clear to inform the audience about making sure they
consider how people who are blind or visually impaired access information, websites and more.

We discussed one of her TED x Talk titled
Lets Cook By Eatting First.

In this presentation, Christine offers 4 key points to
becoming a better eatter and subsequently better cook.
1. Try everything
2. Try everything twice
3. Always be in the moment when you eat – get rid of distractions
4. Travel – opens your mind
TR in conversation with CH:

CH:
I think that’s a really good point you have there Thomas I think that I originally wrote those points for cooking but they’re definitely applicable to many other things in life. For example try everything and try everything twice. I think that’s important because you really don’t know what you like or what you prefer or what your talent could be if you don’t try everything. I had a huge fear of public speaking but I had a lot of opportunities to public speaking after Master Chef so I decided why not I should conquer that fear because you never know what it could lead to and I did. I kept doing public speaking even though at the beginning I was sweating and my voice was shaking and I was extremely nervous but I just kept doing more and more and more until it became more comfortable. And the good that’s come out of it is that my story has touched a lot of people inspired people experience life that goes hand in hand with traveling I think a lot of times especially as Americans because our continent is so large we don’t travel far. We’re fortunate that we can get so many things here within our country you know. I live in Houston which is now the most diverse city in America so I can get Mexican authentic Mexican street tacos I can get Ethiopian food, I can get the VIetnamese, Chinese food French food, whatever. All those things are available pretty much within my city so I’m fortunate in that way. But I think sometimes we’re so comfortable that we don’t want to leave our comfort zone so we choose not to travel and learn about other cultures and when I do travel and I meet other people and I learn about their culture whether it’s through their food, how they interact with others, how they live their lives, the news that they receive, way that they dress, the things that they like to do to pass their time. I learn a lot about another culture and then it teaches me that I’m quite small very insignificant dot on this earth and that you know I’m just part of this bigger world with so many other people equally as important special as I am. I think it helps you keep an open mind as well we get so hung up on our politics and our way of lives here in America that I think it’s important to remember that you know our way is not always the only way.

TR:
Beginning this fall, if you’re near Houston Texas make sure you check out the Blind Goat.
That’s her new restaurant or chef station at the Bravery Chef Hall,
a Food Hall currently being built.

In the meantime you can find 4 seasons worth of
her cooking show 4 Senses online at ami.ca .
Her cookbook Recipes from My Home Kitchen is available from Amazon in print and EBook Kindle edition.
And you can always visit her online at TheBlindCook.com where you’ll find links to her social media and her latest blog posts.

I’m Thomas Reid
For Gatewave Radio

CH:
I went just going for the experience not thinking I would get as far as I did.

Audio for Independent Living

TR:

Did you notice that when I mentioned I was a crock pot cooker, Christine didn’t make fun of me.
She showed no signs at all of putting me down or superiority.

I’ve experienced this in the past as if cooking in a crock pot made sense simply because I am blind. Christine showed no signs of that. She was cool!

I cook on a stove. Both before and after vision loss.

When it comes to cooking, I’m
pretty strict regarding my environment.
I obviously need to know where everything is and need things labeled properly.
I like it very organized and clutter free.
I also like being alone.
I don’t want to be watched unless I’m doing a cooking show.
I don’t want people budding in telling me where things are, or
I should check this or stir that.
My response will most likely be to let them have at it.
Call me when it’s ready!

As made clear from Christine’s story;
cooking is a learning process.
When learning anything you’re going to have some failures or setbacks.

Cooking as a metaphor actually illustrates this very easily.

Christine mentioned how when learning to cook in college, she threw away a lot of meals.
This Master Chef made things that weren’t edible during her early days.

What are you currently in the process of learning?
An instrument, a new function on the job?
Whatever it is you are going to cook up some meals that you are not going to want to serve to your friends and family.
You have to, its part of the early process.

This same advice applies to vision loss and the process of learning to adapt.

You are going to have setbacks at times but stay with it.
As long as you’re cooking you’re headed in the right direction.
Are you in the kitchen?

Here’s a recipe for a quick meal that is sure to satisfy.
It’s called Reid My Mind Radio Gumbo.
Just find Reid My Mind Radio wherever you listen to podcasts like
Apple Podcast, Google Play, Sound Cloud, Stitcher or Tune In Radio.
Then just hit the button that says “Subscribe”.
That’s it. The dish is served up every two weeks and I personally think they are scrumptious!
Perfect for any meal or snack.
You can even serve to others. I’m just sayin!

You smell that… somethings burning! I think I overcooked that metaphor.

Talk to you next time!

Audio: Reid My Mind Radio Outro

TR:
Peace!

Hide the transcript

Reid My Mind Radio – Let’s Play Ball… Beep Baseball!

Wednesday, July 18th, 2018

A collage including the cover of the book Beep: Inside the world... plus photos of a Beep player hitting & another photo of someone catching a ground ball.
For many, the idea of people who are blind or visually impaired playing baseball seems farfetched.

Today, we take a look at the adapted sport through a new book on the subject; Beep Baseball: Inside the Unseen World of Baseball for the Blind. I speak with the author David Wanczyk, some players and learn about the National Beep Baseball Association World Series coming up later this month.

If you like what you hear, help spread the word about Beep and RMM Radio by sharing this episode and subscribing to the podcast.

Listen

Resources

Transcript

Show the transcript

TR:

Whats up Reid My Mind Radio family.

I hope your summer is going well.

Summer seems like the best time to make great memories. I know I have many that involve swimming pools, beaches, boardwalks.

If this is your first time listening to Reid My Mind Radio welcome. I’m your host TReid.
If you’re a returning listener welcome back.

Usually I bring you a story or an interview or profile of someone impacted by vision loss or disability or sometimes it’s just one of my personal experiences hopefully told in an interesting way.

Today’s piece is summer related… baseball. You know hot dogs, cracker jacks, beer oh my!

But first, hit me with the intro music!

Reid My Mind Radio Theme Music

Beep baseball sound

Chances are most people wouldn’t associate the sport of baseball
with people who are blind or visually impaired.

Since 1976, the National Beep Baseball Association (NBBA) has been working hard to change this.

The new book titled Beep: Inside the Unseen World of Baseball for the Blind is contributing to the effort.

I spoke with the author David Wanczyk about the game, his reason for writing the book and more.

There’s lots for those familiar with baseball to recognize when watching Beep Baseball for the first time.

This adapted version of baseball also called Beep Ball or sometimes just beep is similarly played on a grassy field set in a diamond shape. While we’re used to three bases in addition to home plate…

DW:
There is no second base.

TR:
That’s author David Wanczyk telling us more about the game.

The bases positioned at first and third are blue , about 5 feet tall .

They’re equipped with foam interior with the electronics that cause it to buzz serving as a beacon for the batters.

When a pitch is thrown, an umpire flips a switch which activates one of the bases. If the ball is hit the batter needs to run to the buzzing base before the ball is fielded in order to score a run.

DW:
There’s no, like, outfield fence. In most tournaments there’s an 170 foot line. You know, where like a softball fence would be. If you hit it beyond that line it’s a home run. I have never seen a homerun so it’s a very heavy ball. It’s pretty hard to make really really great contact because you got to be really insync with the pitcher in order to do that. And you know in the time that I was paying attention to beep ball I think there was one home run.

TR:

You may have caught one of the other big differences between the two versions of baseball…
In Beep, the pitcher and batter work closely together. In fact there on the same team.
The pitcher who is usually sighted, is trying to release and position the ball where the batter will make contact.
The better synchronization between the two teammates, the more likely the ball is hit.

DW:
There are also two sighted people on the field helping the fielders. What they can do is once the balls hit they can shout “four” and that means it’s coming to the left side of the field. The quickness of that call combined with the strength of the fielder’s ear is what kind of makes the fielding possible.
If the team is really advanced, so for instance Boston Renegades they finished second a couple years ago and they’re very organized team. One of their spotters, will call out something like *exaggerated* “threeeee,” right? And the idea that I can say one word but if I can say it in a long gated way I’m giving a little bit more information to my fielder. “It’s really a short ball it’s in the number three zone but it’s short so charge it!” Or you know *short* “four,” right, in that you hear the abruptness and that means it’s a line drive it’s coming right at you you better cover your face, right, there or cover your most sensitive parts. And that happens that happens for everyone talks about it so. I actually got hit in the nose when I was playing, luckily, it didn’t have too much injury and made the play.
On that note it is a dangerous and pretty exciting game and there are measures for safety, of course. People feel a lot of excitement playing and they should, you know, there’s a lot of diving, a lot of sprinting. A lot of players told me it was among their first chances to feel that kind of energized exercise.
Depending on your exercise regime kind of off the field maybe you’re jogging maybe you have a stationary bike whatever it is that they’re feeling like this there’s a freedom. And the people feel that a lot of a lot of the players don’t have otherwise and that was it was good to us to learn about.

TR:

That’s just one reason both men and women from
different communities with varying degrees of vision loss enjoy the sport.

Like Tanner Gers Executive Director of the accessibility non profit My Blind Spot.

Gers lost his sight after being impaled by a tree during an auto accident.

He recalls first learning about Beep.

TG:
I was just going about my life you know just doing the best I can to create something of meaning something I could be proud of. And I was going to school full time and working full time.

TR:
Returning home at the end of the night following a day of both school and work Tanner caught the end of the sports segment of his local nightly news.

TG:
The reporter comes on and says “now here’s a team who doesn’t let anything come between them and the game they love to play” I’ll never forget. It went out the very next week and I started playing and the rest is history.
TR:

Prior to losing his sight , Tanner had been An athlete all of his life,
and just assumed he would never have that opportunity again.

In 2008, four years after the accident, he began playing in the NBBA.

Currently living in Arizona, he’s playing on his third team, the Indy Edge out of Indianapolis Indiana.

TG:
When I lost my sight and I began meeting blind people and becoming introduced to the resources I realized that I can still do something with myself. I already had my motivational pilot light lit but beep baseball just threw like gas, gasoline, right on top of it.
Because of my success in beep baseball a local adaptive sports coach you know introduced into the Paralympics and I didn’t know what that was either. Very fortunate to have represented Team USA in a three big international events.
Being in that community opened up my mind to all different types of disabilities and people who were crushing in their lives both in sports and outside of it. And then it just introduced me to a lot of leaders in the blindness community. That led me to speaking professionally and to the career that I’m in now.

TR:

For some involved in the sport, it’s more about the game itself. Like the NBBA league secretary, captain of the Minnesota Millers and owner and operator of Guerra Access Technology Training, Stephen Guerra.

Currently living in Rochester Minnesota, Guerra is originally from Long Island New York where he grew up listening to Yankee games.

During a surgery to remove congenital cataracts when he was about 5 years old, Stephen was left totally blind resulting from what he describes as …
SG:
I’ll use the legal term of deviation of standard procedure. I grew up knowing nothing about sight I learned by sound, I learned by tactile. I’m a long time baseball fan. I remember growing up and listen to the New York Yankee games I created a baseball field as of Lego. So I took a Lego sheet and I created what I thought a baseball diamond would look like. There was first, second base, there was a pitcher’s mound, home plate and of course the outfield wall because that’s where all the home runs went. So I taught myself how to play baseball how I saw it. Which was really not far off the way the game of baseball went and that’s just what I did to pass time you know as a six, seven year old kid. My parents did everything they could to get me a electronic games of those days like ColecoVision Head to Head Baseball. I mean it’s a it’s a totally visual game but they they saw where it was something that I could do without sight.

In 1988 Stephen began playing the sport. In the mid 90’s he wanted to elevate his own game.
SG:
I went and spoke to a couple friends, I created with them the Long Island Bombers. We played together for a couple of years and we went to the World Series for the first time in 2002 as a team.
TR:

Jamie Simpson, Supervisor of Admissions and Counseling at the Chris Cole Rehabilitation Center in Austin Texas was Active in sports like Goal Ball & track as a teen.

Introduced to the game by her boyfriend, now husband, Wayne Simpson a fellow member of the Austin BlackHawks featured in the book, Jamie recalls her initial reaction to Beep Baseball.

JS:
I was ready to go I love sports I love being outside. I have Retinitis Pigmentosa which is degenerative eye disease. So I had some useable vision up until I was about twelve. So you know when you’re out like P.E. you’re just playing with kids. We would play schoolyard baseball or whatever and I could maybe run the bases but I could never see the ball and so playing in some form of baseball, softball was something that you know I’d always really wanted to do. To be able to find a sport that allowed that, even being slightly modified it’s still a very competitive game it’s still the same concept. And I think that’s why when I saw it actually being played for the first time I was like “oh yeah I could do this.”
TR:
That’s right, women and men play this sport side by side.

Taking a break from Beep during the early 2000’s to raise her children, Jamie is back in the game and working to make sure other women are informed about the sport.
JS:
I’m a member of the NBBA Board and I’m also a member of the WOOL, Women of Our League, committee. Kind of like the governing committee of women of our league we just try to make sure that we’re getting information out to any of the women who are interested in playing with us. Trying to grow the sport for women that’s kind of our big mission right now is to really get women involved and promoting beep baseball at the same time. Basically the women of our league it’s one game that we play at the World Series that consists of obviously nothing but women and we have the Southwest bombshells which I’m a player on the team and then there’s a north east dynamic divas. We play one game this year it’s going to be held on Wednesday at the World Series. In hopes that we can get more people to come out and support here on and be spectators. We have a new T. shirt that was just designed. So we’re hoping to sell some T. shirts to raise money. Just to help us with growing more and being able to buy our own balls for practice and that sort of thing and contribute a little to NBBA in whatever way that we can.

TR:
Whatever the reason for getting involved in the sport,
Author David Wanczyk says it’s about fun.
DW:
The fun’s different for different people. Some people are taking it extremely seriously. For some people it’s a reunion and for a lot it’s in between. I want to win this game hard but I’m going to also reconnect with all these all these friends from all over the country and everything.

TR:
Beep Baseball is a sport. Players and spectators alike should expect what comes along with that.

Like Competition

DW:
Tempers get high sometimes, yeah. It can get heated but I think for the most part for the love of the game.

TR:
And you can’t really have a team without the good old fashioned pranks.

DW:
What’s a kind word I can say on the radio? Give and take, I guess?

TR in conversation with DW:
[Laughs] You can say whatever you want to say.

DW:
[Laughs] Yeah, some ballbusting I guess I could say. I love to see that too. When you grow up playing baseball that’s obviously part of the heart of the game whether it’s your you know your teammate giving you a cup check or. You know pranks or nicknames or whatever that’s all there. You know especially with the Austin Blackhawks. So they are one of the strongest teams that won a number of championships in recent years.

TR:
A member of the BlackHawks, Jamie Simpson tells us first hand about her experience.
JS:
We were in the World Series tournament in ‘99. I probably in my mind a little bit thought it wouldn’t happen to me just because I was married to Wayne and he was team captain and all that right. So of course he goes out to go to a room where all the guys are gathering and I’m like well I’m going to hang back for a minute and get everything settled when of course the phone rings and these bulls had already put toothpaste on the phone receiver. [Laughs] So you put the phone to your ear and you get an ear full of toothpaste. So I’m like OK you guys suck and you know I hang up and I’m like you know cussing them and whatever. I’m cleaning up or whatever and then the stupid phone rings again so I’m thinking I’m being smart and I’m going to go for the other phone that’s in the room because the one’s already full with toothpaste and they had put toothpaste on the other damn phone too!

TR:
Some aspects of Beep may not be recognizable to those that are accustomed to being a part of the majority.

DW:
One player told me it’s the one chance that we get to be in the majority. You know there are four hundred people in the hotel and if you go to the bar at night it’s predominantly this group. One of the things I said, and I’m not sure I’m right about this and I did my best to be kind of humble about any sort of you know judgment I was offering, but it occurred to me that in most situations there was probably a kind of brotherhood of blindness in this case it was like “well we’re all blind, let’s fight” or “let’s be competitive!” And we can kind of we can kind of do this on a level playing field here and have a good time with it.

TR in conversation with DW:
Yeah, I think you see that sort of comradery in other activities. I’ve been
Involved in some blind avocadcy stuff. You know, similar thing, you have about 150 people at an hotel and we kind of take over and it’s kind of cool. It’s the one weekend where everything is really accesible because we make it that way.

TR :
Beep: Inside the Unseen World of Baseball for the Blind like the sport itself is about the people who participate. The men and women who were either born with some degree of vision loss or for various reasons lost the ability to see later in life.

It’s also full of the drama that is competitive sports.

DW:
There was an international rivalry that I thought was incredible and it was this Taiwan home run team versus the Austin Blackhawks. Austin had taught the Taiwanese team how to play about fifteen years prior and over the course of that time Taiwan had become kind of a juggernaut. And so there was this like brotherly relationship that was you know sometimes you just want to kick your brother in the shins, right?
So I thought wow here’s teams that got very different personalities, they’ve got very different backgrounds. This seems like a story that I want to tell. You know it’s about on one side it’s kind of a balls to the wall approach, pranking approach. On the other side, Taiwan, there’s a seriousness, great sense of humor over there too, but a seriousness and a kind of mental preparation. These cultures could meet on the field and we saw what happened and hopefully people will hear what happened in the book.

TR in conversation with DW:
So why were you interested in writing this book? Do you have any relationships to blindness?

DW:
Great question. So I was in writing school for a long time. Kind of writing various things and got out and graduated in 2010. And kind of decided that for a while I was going to write about sports. I wrote about something called 24 hour bike racing, something called Wife Carrying and realize…

TR in conversation with DW:
Wait wait wait wait wait… Wife Carrying? [Laughs]

DW:
Yeah so there’s a there’s a sport where you know you throw a throw your wife over your shoulder and with the Estonian carry, you hold by the ankles, And the woman is kind of behind you and you have to do an obstacle course. I finished thirty eighth in the nationals and I believe in 2011. I fell twice one one embarrassing right at the very end but I did finish it.
The idea was you know maybe participate in some of the sports people haven’t really heard of trying to see what the culture is. February 2012 or so there was a magazine article about beep ball but it wasn’t really about beep ball it just listed the rules and I realized it listed the rules straight from the website. It was like, you know, almost like “hey look at this” sort of “isn’t this odd” or “isn’t this kind of curious” sort of thing. Rather than, “hey, you know, what might this actually be about?” “Who are the people who who are involved in this?”
So I went out to the World Series that year and wrote an article. And then about a year later I had a daughter, my first daughter and my first child. And you know I had been busy and hadn’t been writing and kind of had a moment where I thought “I love writing, I want to want to write a story, I want to be involved in telling a story.” I kind of had a moment where I thought “I think I think that’s the story I’m invested in. I love baseball.”
I don’t have a connection to blindness personally but it’s something that I did feel like I could become very invested in. So for the next from 2013, ‘14, and into ‘15 I would spend a good part of every day usually try to do about a half an hour at least either interviewing someone or trying to compose a book. And got there it was just kind of one look and then realizing this is an intense sport and you know I can know more about this.

TR:

Fortunately, Wanczyk clearly didn’t see this project as a novelty.
There’s evidence in the small details included in the book that reveal a respect for the game and more importantly for the people who participate.

TR in conversation with DW:
Since this was your introduction to blindness, give me a couple of things you took away from it, what did you learn?

DW:
Of course I’m reluctant to make kind of blanket statements. But what I would say is, at least among this group, that I got to know there was like a bravado that I would maybe not have expected. You know that’s different from bravery I mean even reluctant to say bravery because I think sometimes when sighted people say that it might have a little bit of condescension. You know, I read one book that said you know, “I’m not brave I get up and I live my life just like you.”
And so but bravado I think is right, that this kind of storytelling panache among a lot of the players and the kind of joking spirit, the suspicion of sympathy because you know I accept your compassion and your help but I also don’t want to be limited by what you think of me. And that was instrumental to see.
The teamwork is really something to watch in beep ball. I can’t get out of my mind this image from 2012 where a diving play was made and then the third baseman and the left fielder high five and then their high five kind of turn into a “we’ve got to get back in position.”
Another image would be the kind of train onto the field not all teams do this but quite a few teams will line up and and be a six player train out on the field.
A lot of partying. And if I had asked myself “hey do blind guys party?” before I started. I’d say “well, of course they party.” But it’s different to then kind of be in the party and kind of feel what that’s all about. And yeah I had some of my best times with some of these guys to tell you the truth and kind of some of my wilder times.

TR in conversation with DW:
SO you’ve been to the bar with them? [Laughs]

DW:
[Laughs] I’ve been to the bar! Yes, oh lord I have.

TR:

Beginning July 29 through August 5, the National Beep Baseball Association will hold the World Series of Beep Baseball in Eau Claire, Wisconsin.

NBBA Secretary Stephen Guerra tells us more.

SG:
The World Series is held each year in a different city and it’s a coming together of all the teams. And at this point for 2018 we have twenty three teams coming to this year’s World Series. And we have teams coming from Taiwan, the Taiwan Lightning. We have a team coming from Canada the Toronto blind jays and then twenty one other teams from around the United States. The most teams we’ve had was twenty four which was in Rochester New York 2015. The last couple years we’ve hovered between twenty and twenty four teams and we only anticipate that we are going to get bigger.
TR:
The NBBA continues to expand the sport around the world. All of those I spoke with are looking forward to more international representation during future World Series events.

Several people mentioned a desire to see beep as a part of the Paralympics.

Finally, Tanner Gers has this to say about how listeners can be a part of the game.
TG:
There’s a way for you to support somebody playing beep baseball. Whether through donations or you showing up and volunteering your time. Please come and see a VERY MUCH higher action game then you could ever imagine when you think of baseball. Because when blind people play baseball things get wild.

TR in conversation with TG:
Is that the tag line for the association [Laughs].

TG:
[Laughs]

TR:
For more information about Beep Baseball checkout the NBBA website at NBBA.org.

And of course don’t forget to pick up the book:
Beep: Inside the Unseen World of Baseball for the Blind from Amazon.com.
It’s available in print, EBook and as an audiobook from Audible.com

I’m Thomas Reid
For Gatewave Radio

DW:
Well we’re all blind, let’s fight! Or let’s be competitive. We can kind of do this on a level playing field here and have a good time with it.

Audio for Independent Living

TR:

That’s really just an introduction to the sport of Beep Baseball.
The game sounds pretty intense. Understand this, line drives are being hit and fielded.
There was an incident captured in the book where a young lady from Taiwan was pitching to a batter, who happened to be her boyfriend, and he hit a line drive right back at her face. Fortunately, she was okay. I’m pretty certain that was probably the end of their relationship.
Seriously, share this Podcast and spread Beep Baseball. Lets do what we can to help spread Beep Baseball. I truly need to get out give it a shot.

I hear there is a league in the Dominican Republic. If anyone out there hears this please feel free to fly me out for an event. Let’s say anytime in January or February. I’ll stay as long as required… like the winter?

Ok, it’s summer right now, no need to think about Winter. So much to look forward to right here right now. Like subscribing to this podcast.
You can do that on just about any podcast app. We’re on Apple Podcast, Google Play, Soundcloud, Stitcher and Tune In Radio. Of course you can go over to Reid My Mind.com. Remember that’s REID like my last name.

Feel free to follow me on Twitter @tsreid and don’t forget to check out the other podcast I do with Doctor Dre – the one from Yo MTV Raps. It’s called 2BlindMics. If you are remotely interested in Rap music or Hip Hop culture, we have some goodies over there. Like interviews with some legendary DJ’s including Red Alert, Kid Capri, DJ Scratch and DJ Chuck Chillout. It’s a podcast but to me they sound like mini documentaries. It’s not just Hip Hop so check it out, there may be something there for you.

Now lets get back to summer…

peace!

Reid My Mind Radio Outro

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