Archive for the ‘African American’ Category

A Peak at Finding A New Normal

Wednesday, May 20th, 2020

Today, everyone is talking about a new normal. Those adjusting to blindness or disability in general, have a lot of experience in this way of thinking.

Thomas & Marlett seated under a green tree with a blue sky and scattered white clouds hovering above.
As disability impacts the entire family unit or team, I invited my wife Marlett on the podcast to discuss the topic. The result? Advice on managing those inevitable uncomfortable public encounters, accepting change and even how Tick Tock can help during this pandemic. Well, sort of…

Our discussion is actually a sneak peak into an upcoming episode with Dr. Mona Minkara and her production team from Planes Trains & Canes.

Take a listen to this episode and then check out the documentary series before you meet them all here on the podcast.

Listen

Transcript

Show the transcript

Audio: Sounds of microphones being touched…

Marlett:

I am not touching the microphone or the stand.

[TR in conversation with Marlett:]

Do you see me touching the microphone?

(Long Pause)

And I’m a professional! (Laughs…)

Marlett:

You heard my feet.

[TR in conversation with Marlett:]

What?

Marlett:

you heard my feet, I did this…

[TR in conversation with Marlett:]

Oh, don’t do that.

Marlett:

Ok!

TR:

What’s up Reid My Mind Radio Family! My name is Thomas Reid. I’m the producer and host of this podcast, bringing you compelling people impacted by all degrees of vision loss from low vision to total blindness.

Every now and then, when inspired, I bring you stories from my own experience as a man adjusting to becoming Blind as an adult.

If you are newly impacted by blindness and you found the podcast, first of all welcome. Secondly, I think you’re going to like it here.

Today’s episode does include my wife Marlett. Ever since the last episode titled Celebrating 15 years of being Blind, I received some feedback from people who enjoyed hearing from her. I made the mistake of letting her know that. As you’ll see here today, it may have went to her head.
Despite that, I asked her on because, well, I’m a great husband.

That’s my story and I’m sticking to it!

Audio: Reid My Mind Radio Intro

TR:

Let me start this off with a warm virtual hug for you all. It feels like every day the idea of normal is pushed further and further. What we would have expected and accepted seems to be a continuous slide in the wrong direction. Specifically,
putting kids in cages, the death of 80 thousand people in two months or racists shooting an innocent young Black man.

Our responsibility, is not to accept it. not to simply act like it is normal.

On this podcast, I don’t often go into politics or current affairs except when I feel it relates to the process of adjusting to blindness. These connections are from my perspective. It’s called Reid My Mind Radio after all.

So when is a good time to accept a new normal?

Right now, just about everyone on this planet is dealing with a new normal. Although we’re all experiencing this pandemic differently, we’re doing it together.

There’s a similar feeling around acquiring a Disability. Now, I’m referring to all of those impacted; parent, child or spouse for example.

Similar feelings but there are some real differences between what is being felt during the pandemic and the experience of disability. For one, the entire world isn’t analyzing it on every news channel. There aren’t easy ways to gain multiple perspectives. It’s more likely something the family goes through alone. Hopefully it’s a real opportunity for that family to become a unit a real team.

I’m on this journey with you so I get it. And so does my wife, Marlett. I invited her on the show to get that team perspective from someone impacted by blindness.

[TR in conversation with Marlett:]

What I noticed from the last time is that if I ask you to introduce yourself you have a big production necessary for the intro and I don’t think I’m going to do that this time. Laughing…

Marlett:

Ok!

Audio: Intro from Celebrating …

Audio: “The Baddest Chick”, Trina

[TR in conversation with Marlett:]

Can you please just state your name for the record?

Marlett:
Marlett Reid

[TR in conversation with Marlett:]

And who are you?

Marlett:
I’m the baddest chick!

Audio: As the music gets louder …

Marlett:
I’m your wife!

The music continues.

Now back in the present.

[TR in conversation with Marlett:]

Laughing… You want to introduce yourself anyway?

Marlett:

My name is Marlett Reid, currently writing a book so it’s going to be M.E. Reid.

[TR in conversation with Marlett:]
Laughing… you’re here to promote your book? Laughing…

Marlett:

Laughing…

TR:

Ok, when my wife does publish her book, I’m not only buying a bunch for the RMM Radio family, but she’s definitely coming on the podcast. And that I tell you right now, will be the best episode I ever produce!

It’s not always the case, but Marlett and I shared some perspective around this idea of finding the new normal.

[TR in conversation with Marlett:]

When your life is uprooted because that’s what everybody kind of is really saying…

Marlett:

Right, right.

[TR in conversation with Marlett:]

And then now you have to start to see what is going to be the new normal. And I’m saying that we’ve …

Marlett:

Yeh, we’ve been there.

[TR in conversation with Marlett:]

The difference to me is that while we were doing that everyone was still living their normal. It felt like we were the only ones doing that because it was just impacting us and our family. Do you see any parallels between what we’ve been through and what’s going on right now?

Marlett:

Nothing new to us. Trying to figure out what to do coming up with new ideas of entertaining the family. Picnics in the living room or family night movies.

Social distancing, that’s funny to me because no one really came around We understood about social distancing people were doing that to us for quite some time. Distancing themselves from us.

[TR in conversation with Marlett:]

Damn!

Marlett:

Well it’s true.

[TR in conversation with Marlett:]

Mm Hmm… (In agreement)

Marlett:

They were distancing themselves. If we went to a party they did social distancing there too.

[TR in conversation with Marlett:]

Laughs…

Marlett:

We would be in a corner or we’d be in one side and they’d be on another side. They just didn’t have a mask.

TR:

At least not one that was visible.

Audio: Plane taking off…

At the time of this conversation, I was in the process of producing what will be the next episode of the podcast featuring Mona Minkara and her Planes Trains and Canes production team.

The documentary series which can be found on YouTube follows Mona who is Blind, on a journey to 5 different cities around the world where she travels alone using public transportation.

I’m encouraging you to check out the series which I’ll link to on ReidMyMind.com.

I was curious to see what if any parallels Marlett would draw after an explanation of the documentary’s concept.

That is the resulting encounters a Blind woman receives as she’s recorded on video while traveling through an airport or subway.

Marlett’s perspective wasn’t what I expected, but it’s definitely understandable how she got there.
Marlett:

It made me think of African Americans, really. When they try to navigate or go through life, how people treat them.

[TR in conversation with Marlett:]
Them? Are you Black?

Marlett:

How people treat us!

[TR in conversation with Marlett:]

Laughs…

Marlett:

Walking into a bank or walking into a store or walking in a neighborhood.

Audio: YouTube…

“No Justice No Peace!” (Repeats while clips from a news reporter plays…)

“Arrests in the shooting death of a jogger in a Brunswick neighborhood for killing Amaud Aubry. The charges; murder and aggravated assault”

TR:

Perspective matters!

This conversation was on the heels of this latest senseless racist murder of Amaud Aubrey.

(Pause)

When it comes to adjusting to blindness, Marlett and my family are O.G’s in this game!

Marlett:

We have our thing down. We already know what’s going on like I know people talk to me instead of you and I know how I handle that.

[TR in conversation with Marlett:]

Alright so give me an example of that.

Marlett:

If we go, anywhere you have to do something, they’ll talk to me.

[TR in conversation with Marlett:]

If somebody asked you for an example of that, is there any specific one that you would give. I’m curious to see if it’s the same one.

Marlett:

We went to go vote.

[TR in conversation with Marlett:]

Oh my gosh!

Marlett:

The woman said you can bring him over here or something, you can correct me if I’m wrong but something to that affect. You spoke up. You said whatever it is that you wanted to say.

[TR in conversation with Marlett:]

I don’t know if I said something or whatever? I probably said something…

Like oh you could talk to me. That’s probably what I said. So it wasn’t until after I got out …

Marlett:

And she said, I shouldn’t have done that. I liked her apology and it was to you. I don’t think she ever did that again.
[TR in conversation with Marlett:]

You’re right so we’re good. Like we’re real good. Like I say hello she says hello and it’s cool. It’s all good. That was a nice interaction because it came out where she got it like immediately.
Do you remember the first time. You might have not noticed it even happened the first time.

Marlett:

Maybe like the first time it happened I didn’t really think about it. Maybe about the third or fourth time I probably thought about it more. I think you and I spoke about it. You knew it was taking place and so you would just speak up real quick but then I think after we talked about it and I was like well I’m not going to say anything , you can just take your time in answering not just jump in there.

TR:

Y’all hear my wife’s way of trying to tell me to chill. That’s cute right! I know it’s because she doesn’t want me to be upset, but ignoring it doesn’t make it go away.

I know I shouldn’t take things personally, but having someone talk around me while I’m standing right there? Remember, I said there are things we should never accept as normal, this is one of them. My recommendation?

Marlett:

You would speak on it or be vocal about how it made you feel, but not like it caused tension between us.

I never answer for you. I won’t answer for you. I will walk away or I’ll turn and look at you for you to respond or I will look at my phone.

TR:

Marlett is so great with these situations now that Every time this happens , I almost feel sorry for the perpetrator. I can feel their confusion. If I am feeling let’s just say a bit feisty, I’ll let them hold onto their confusion and embarrassment for a little while. You brought it out, you hold it! It works, they get it.

It’s a cool play that Marlett and I execute well together.

Marlett:
We still have hiccups.

In the beginning it was a lot of hiccups there because you were used to taking the bags and just going. Boom!

What works best for us when we travel is if we discuss it beforehand. When we freestyle we generally tend to have some hiccups.

TR:

Now first of all did you notice how Marlett made it sound like I was the cause – as in, you were used to taking the bags and going.

Marlett:

Boom!

TR:

She’s right! But truthfully we were both used to that.

She’s also right in the need for us to all be on the same page. Communicate the plan before trying to execute.

On this team, we each have to play our role at any given time.

Our roster includes two more players – our girls.

Marlett:

When they were little that was a little harder. Usually they walked in front of us Riana would hold her sister’s hand and they would walk in front of us. Sometimes behind us and I would glance back occasionally just to make sure they were still with us.

[TR in conversation with Marlett:]

I remember that was a thing because I would always ask you where the girls? (_Laughs…)

Marlett:

Yeh!

TR:

They’re 16 & 22 now. Amazingly, Marlett is still hovering around 32.

Traveling with them today?

Marlett:

The girls leave us!

They’ll make sure that we don’t have anything to hold us up. All we have to do is to get where we have to go. They’re more intoned to what works to get us to where we need to go. Like when we went on the cruise, they took the bags.

[TR in conversation with Marlett:]

I had a bag.

Marlett:

You wouldn’t give up your bag.

[TR in conversation with Marlett:]

I know, yeh, I’m not giving up my bag.

Marlett:

You’re not going to give up your bag that easily. You still got that machismo.

[TR in conversation with Marlett:]

Oh, wait we’re gonna go there? You think that’s machismo? That’s alright, I don’t have to go into that because you’re wrong and I don’t want them to be all like oh my goodness Marlett we don’t like her anymore.

Marlett:

Some weird laugh that basically translates to whatever! Ok!

TR:

Ok, despite my lovely wife’s incorrect assessment that I have even an ounce of machismo, her lessons here can be helpful no matter who makes up your team.

For example, producing Planes Trains and Canes requires a real team effort. You can hear all about that in the next episode of this podcast.

Before that episode drops on June 2, go check out Planes Trains & Canes. It’s not necessarily a pre-requisite but we do dance around some specific scenes from the documentary series.

I’m also curious to see if we see similar parallels between the show and adjusting to blindness.

Marlett:

I feel like if you’re traveling with someone who is Blind , you two should have a conversation. What makes each one comfortable?

In the beginning when this all happened I was I think in my feelings. I don’t think I really thought about you or me but more so how everybody else was looking at us. Once I got over that part, which I’m not fully over it, but for the most part I am; we work better!

TR:

Adjusting to blindness is not really a place you arrive but rather an ongoing journey. You either decide to take it or find yourself well not really going anywhere.

[TR in conversation with Marlett:]

What would you say goes into being able to accept a new normal?

Marlett:

Understanding you can’t change anything so you got to make it work for you. You know the pandemic came around, there’s nothing we can do about it, there’s no cure. The only thing at this point is you got to stay away from people so that is going to be our new normal. Handle it! Things always change that’s life. Nothing ever stays the same, you got to change with the times.

[TR in conversation with Marlett:]

… That’s real talk!

It doesn’t sound like you’re very compassionate about it . Like I thought you might be a little more compassionate.

Marlett:

I am being compassionate. I’m telling you the truth. I’m trying to get you to get over it quickly. Pull off the Band-Aid. It is what it is. I could hold your hand and we can go through it but…

[TR in conversation with Marlett:]

See I don’t understand why you can do that but when I do that you’re like (mockingly) Tommy! (Laughs) ]

I’m just going to put this out there because I try to tell everyone I’m the compassionate one in the family.

Marlett:

Exhales… Uh Lord!

[TR in conversation with Marlett:]

And I think I just got proof of that. It’s definitely evidence.

Marlett:

I realized one thing about this pandemic, this whole thing with the Tick Tock.

[TR in conversation with Marlett:]

Oh God! Laughing…

Marlett:

But wait a minute. This whole thing with the Tick Tock!
[TR in conversation with Marlett:]

Hold up, hold up, hold up! I don’t know if everybody knows Tick Tock.

Marlett:

Well Tick Tock is this app where the older generations are dominating this app. I think a lot of people know about Tick Tock. But the great thing about Tick Tock is that…

Audio: Marlett continues with volume lowered….

TR:

Reid My Mind Radio Family, I need your help. I think my wife has an addiction to Tick Tock. If you don’t know, it’s a pretty popular app now that was pre-pandemic considered for the kids. It enables quick short videos often consisting of lip singing or short dance routines.

I’m going to spare you as she tries to rationalize her obsession with claims of this app building bridges.

I’m not saying it’s not true, because honestly, I don’t really use the app. the majority of the content that I’ve come across is predominantly visual and audio description is not an option.

Even the killer content I made with my youngest Raven, a highly sophisticated and intricate dance routine, had no way of including description.

[TR in conversation with Marlett:]

Yo whose the Tick Tock Killa?

Marlett:

That would be you Thomas. (Said very sarcastically!)

[TR in conversation with Marlett:]

That’s me, the Tick Tock Killa!

I think you only like Tick Tock because you like to say Tick Tock. I think that’s why this app is actually doing so well because people like to say Tick Tock.

Marlett:

Tick, Tock!

[TR in conversation with Marlett:]

I should have named my podcast Tick Tock and I probably have a whole lot more people listening and subscribing, you know what I’m saying?

Marlett:

I don’t know maybe you’re right. I do like Tick Tock. Yeah!

[TR in conversation with Marlett:]

I ask people to subscribe…

Marlett:

It’s the way you ask people… (she fades her own voice out)

It’s the way you do it! You have to ask…

[TR in conversation with Marlett:]

Wait up, first of all how do I do it? That it’s the way I do it.

Marlett:

I don’t know how you do it, but it’s not the right way. I’m just saying it’s probably not the right way.

[TR in conversation with Marlett:]

How can you say it’s the wrong way. Oh my God! (Laughing hysterically)

Marlett:

So I’m going to ask everybody to subscribe. And leave me a little heart emoji or a smile or say hi Marlett. (Spelled out)

[TR in conversation with Marlett:]

Where are they going to do that?

Marlett:

At ReidMyMind.
my content

[TR in conversation with Marlett:]

Dot com you’re talking about? You want them to subscribe and leave a comment on the episode page?

Marlett:

Yeh!… Yeh!

[TR in conversation with Marlett:]

Now I’m gonna tell you right now…

Marlett:

Yeh! I would like everybody to say hi. I would love it. I feel that energy it would just make me so happy. Just, just tell me hi!

[TR in conversation with Marlett:]

Long pause…

Do you know how many times I ask people to subscribe, to reach out?

Marlett:

And Subscribe…

[TR in conversation with Marlett:]

I give the phone number. I get some people, but you think you’re going to get…. (Laughs…)

Marlett:

What’s so funny?

My energy and their energy. They’re feeling my energy and they’re going to go and subscribe and they’re going to say hi Marlett.

[TR in conversation with Marlett:]

So what’s the matter with my energy?

Marlett:

Hi Marlett. (Name spelled out)

[TR in conversation with Marlett:]

What’s the matter with my energy?

Marlett:

And I’m going to say hi right back. And I’m going to send emoji’s and everything. Yeh!

[TR in conversation with Marlett:]

Ok!

Marlett:

Cause I have an awesome energy.

[TR in conversation with Marlett:]

Ok, I hope you’re right

Marlett:

I’m right!

[TR in conversation with Marlett:]

Exhale….

Marlett:

I’m right!

[TR in conversation with Marlett:]

On the real, I’d be jealous. I’m not going to lie. I’d be a little jealous. I’m not going to hate though. I don’t think they’re going to do it anyway.

Marlett:

Laughing… Alright!

[TR in conversation with Marlett:]

Cause I know you’re only doing this because you lost the Tick Tock battle, because you never did it because I won the Tick Tock battle.

Marlett:

Exhales….

I didn’t do the Tick Tock because I didn’t want to hurt your feelings.

[TR in conversation with Marlett:]

I killed that joint! If I have an audio described Tick Tock, Bee, I’m killing the game! Put some audio description on my Tick Tock, and then everybody be like Yo! Tick Tock Killa, T.Reid… Tick tock Killa!

Marlett:

You know, speaking of audio description…

[TR in conversation with Marlett:]

Alright, thank you babe!

you’re trying to take over the podcast now I can tell.

Marlett:

I’m not done.

[TR in conversation with Marlett:]

Excuse me!

Marlett:

I’m not done.

[TR in conversation with Marlett:]

Laughing… what? Laughing…

Marlett:

Why are you trying to kick me off . You know what it is right?

[TR in conversation with Marlett:]

What?

Marlett:

He’s jealous. (Long pause)

Because the shows I’m on do so well. Mm hmm. Because I’m on it.

[TR in conversation with Marlett:]

Laughs…

Marlett:

It’s that energy.

[TR in conversation with Marlett:]

Laughing…
The energy that’s going to get people to do what?

Marlett:

They’re going to go and they’re going to subscribe

[TR in conversation with Marlett:]

Umm hmm And how are you going to know they did that?

Marlett:

Because they’re going to leave me a little note and it’s going to say Hi Marlett! (Named spelled out again)

[TR in conversation with Marlett:]

You know you got that spelling thing from me right?

Marlett:

I think you got it from me. Yep!

[TR in conversation with Marlett:]

Laughing…

Marlett:

So make sure you go, Reid My Mind Radio!

[TR in conversation with Marlett:]

Where can they go to subscribe?

Marlett:

Anywhere that has podcasts.

[TR in conversation with Marlett:]

And then what’s the website?

Marlett:

ReidMyMind.com

R to the E I D

(Audio: “D and that’s me in the place to be!” Slick Rick)

Marlett:

Like MY last name!

[TR in conversation with Marlett:]

Laughing… That was good!

Audio: Reid My Mind Radio Outro

Marlett:

Peace

[TR in conversation with Marlett:]

Laughing… There it is. alright, Nice!

You’re trying to get your own podcast. Whatever Bee. I didn’t press record.

Marlett:

That’s not even funny!

Hide the transcript

CoronaVirus – So Many Parts

Tuesday, April 21st, 2020

Corona – So Many Parts

Covid 19 and CoronaVirus is the most immediate & serious thing we as a human race have dealt with at the same time. Simultaneously, we’re all a part – as in a community. Yet, we see so many all over the world trying to tear apart any form of cooperation between nations and people – apart as in separate.

It’s been hard to focus on something other than this pandemic, but there is a connection to blindness, to disability… take a listen, I got something to say!

Listen

Resources

Transcript

Show the transcript

Audio: Sir Joe Quarterman- (I Got) So Much Trouble In My Mind

Women yelling…
“I got something to say” (Fades out )
“I got something to say” (Fades out)
“I got something to say” (Prolonged yell fades out)

Ice Cube, NWA: “Yo Dre!”
Dr. Dre, NWA: “What up”
Ice Cube, NWA: “I got something to say”
Dr. Dre, NWA: Scratches on turntable

Lyric from instrumental mixes in… “I Got) So Much Trouble In My Mind”

Audio Sample: “You have got what appears to be a dynamite sound”

Instrumental music…

TR:

Greetings Family!

I’m hoping everyone is healthy, safe, comfortable and optimistic

I’m just trying to find the right words now. Well the right words for the opening I know are …

I’m Thomas Reid, host and producer. of this here podcast known as Reid My Mind Radio.
Bringing you compelling people impacted by all degrees of vision loss and disability.

Every now and then I share my own thoughts and experiences as a man adjusting to becoming Blind as an adult.

Finding the right words to express how I feel about all that is going on today isn’t so easy. The introspection though, can be helpful. It forces me to step back and get perspective. That search for the right words can even inspire a bit of creativity.

Audio sample: “Don’t toot your own horn honey, you’re not that good!”

TR:
I guess you can be the judge of that!

Audio sample: Woman yelling, “I got something to say” (Fades out )

Audio: reid My Mind Radio intro

Audio: Sir Joe Quarterman- (I Got) So Much Trouble In My Mind(continues from intro)
– Musical loop

Audio: Covid19 related News montage

– “It’s been another painful weekend in the CoronaVirus pandemic. The death toll is now more than…” (Fades out …)
– “More than 20,000 people have died from Covid and more than… ” (fading out …)”
– ” “More than 100,000 Covid cases in New York City. There’s also a serious shortage of swabs used to test for the CoronaVirus. That’s according to the city’s health department, which is now telling medical providers only test hospitalized patients.” (fading out…)
– “Perhaps because of The New York Times story, last night saying Republicans were trying to get the President to talk less every day, today’s White House briefing went on for over two hours. The president said some of the coverage is fake news. He said today flatly, everyone has the ventilators they need. He said we’re in great shape in every way.” (Fading out…)
– “Obviously, if we had right from the very beginning shut everything down, it may have been a little bit different. But there was a lot of push back about shutting things down” – Dr. Fauci

TR:

During my intro to the last episode, I purposely kept my thoughts about Covid19 and the CoronaVirus to a minimum.

It’s not as though I didn’t have anything to say, but I like to let my thoughts form fully before getting into a rant or ramble that I may end up regretting.

Today, I hope it’s okay that I share some of these feelings and thoughts I’ve been having, all triggered by Corona!
(stutter effect on corona_

Yeh, that’s right, this Corona has me stuttering. I’m shook!
I’m in no way making light of the situation. There’s just so much about what’s happening that is so ironic.

it’s the most immediate & serious thing we as a human race have dealt with at the same time. We are all a part – as in a community.

Meanwhile, so many all over the world trying to tear apart any form of cooperation between nations and people – apart as in separate.

That got me thinking…
Audio: Music stops… echo…
If this isn’t your first time listening to this podcast, you know that I tend to think about and focus on the process of adjusting to blindness.

Part of that adjustment includes things like employment, technology, orientation and mobility and just learning how to do the practical things.

From my own experience and conversations I’ve had with others, I know a very challenging aspect of adjusting is how we view ourselves after Blindness. Our self-image. It’s why many of those newly blind don’t’ want to refer to themselves that way. blind.

When your only substantive exposure to Blind people isn’t positive, well, why would you want to be a part of that group.

So chances are you wouldn’t see yourself as part of the disabled community either. I get it, I was there too.

There’s the titles we assign to ourselves and then there’s how we’re identified by others.

Growing up, I’d often be asked, what are you Black or Puerto Rican? My self-identification doesn’t separate the two. Those with an understanding of the history feel me right here… Look up Arthur Schaumburg and you’ll see where I’m coming from.

Society has assigned me a label that often dictates how many choose to interact with me.

When I was stopped by the police, .
Ran out of neighborhoods while being called names,
Followed in stores…

I was never asked, what are you Black or Puerto Rican?

However you decide to self-identify, if your vision loss or disability is visible or recognized , society sees you as Blind. Society sees you as disabled.

I’m not here to tell you how to self-identify .

I want this podcast, at the very least to stimulate some thought around adjusting and all that comes with it.

Personally, my belief is that when you get a better understanding of the people the history, expand your understanding of what disability is and isn’t, defining yourself may be an easier process.

With all of that said, there’s a connection between blindness, disability and this pandemic. Even if you don’t see yourself as disabled, it’s worth knowing how this pandemic is impacting the community.

I’d encourage you to go check out RMMRadio alumni Alice Wong’s Disability Visibility project podcast and website for more perspective.

The pandemic’s impact on us all is different. Disability, economics, location, housing… so many factors that play into how this pandemic impacts us.

Audio: Instrumental “Quiet Storm” Mobb Deep

Audio: Covid19 related News montage

– “The Pandemic seems to be disproportionally affecting people of color”
– “African Americans have been hardest hit by the virus. Despite accounting for 14 percent of Michigan’s population they represent 41 percent of it’s Covid victims. And in Detroit where the majority Black population, more than a third of them poor it’s even more stark.”
– “There are many reasons why Black communities are disproportionately being impacted by CoronaVirus according to a range of experts I spoke to. Historic disparities between access to healthcare, education, information and government resources in Black communities compared to predominantly white communities. throughout American history there’s been great tension between Black communities and the healthcare industry. Tuskegee Syphilis experiment. Ongoing studies that show that black women particularly those who are pregnant, are less likely to be listened to by their doctors and healthcare providers.”
– “African Americans are being hit disproportionately hard. We broke down some of the reasons. Medically why do you think that is. (Second speaker-Doctor) People of color are generally more susceptible to diseases and we know that they have those pre-existing conditions; the Diabetes, the heart disease, the asthma that makes them more likely to suffer consequences because of the CoronaVirus.”
– “Can you describe the make-up of the people in your waiting room right now. (Second speaker- Doctor) We’re noticing more Black and brown and immigrant patients that are seeking care. A lot of these patients are essential workers. A lot of them are service workers.”

“The Real” Mobb Deep

TR:

Salutes to all of those men and women right now doing the work that will get us through this awful situation. I’m talking about the medical professionals, staff including technicians, receptionists, janitors, food workers and others. So many of these people have been doing this work for years and have been unseen even looked down upon. Now in the midst of a pandemic, it helps us see the value in their work.

Corona has revealed some truths about society that people have been trying to either hide or not think about.

We need each other!

We all have something to contribute.

Can I share a story?
(Well, I’m going to anyway, because it’s my podcast!)

My wife and I went to this party. this was post blindness. It wasn’t my first time attending a party Blind so I was familiar with the challenges:
Some are physical;
learning new spaces
dealing with the crowds in those space

Others are more emotional, philosophical;
Should I use my cane?
How can I meet or start and interaction with new people
Where’s the bar? (It’s a party, right!)

Although I knew the challenges, I had not yet figured out my method of dealing with them. By this time, I think I was intent on not letting avoidance be my answer.

There was nothing about the party that was overly memorable except how it felt like we were shown to a section of the space and sort of left there. We only knew a few people outside of the person who invited us. My wife and I both felt the tension.

I remember thinking about how the experience would have been so different before vision loss. Those who did know me would have called my name when we walked in, maybe we would have made eye contact during the evening, we would have been introduced to others. Instead, we didn’t feel welcomed. We were there, but not a part of that party.

Ultimately we came to the decision it was in our best interest to leave that physical space as it was crowding our emotional space.

Sitting there at the edge of this party, feeling as though we were on display, I wanted to be included. I wanted a role and not that of a bystander.

This pandemic triggered those same feelings. Chances are, it’s not just me.

Doing anything right now that doesn’t relate to Corona, just doesn’t feel right. I like other people want to be helpful. In some way.

Despite what seems like the world coming to a halt because of the virus, life is still happening. With or without this pandemic there are lots of people new to vision loss. Some of them are former nurses, doctors, EMS workers. Similar to how I felt at that party, these men and women I can imagine aren’t satisfied with being bystanders. Are there opportunities for these men and women to contribute if they so desire? Are there people with disabilities on the frontline.

This reminds me of the documentary produced by RMM Radio alumni Day Al-Mohamed, called Invalid Corps. It features the story of a virtually unrecognized troop of soldiers who served in the civil war. All were soldiers with disabilities.

Shout out to Day and let me encourage you to check out that episode.

Do I actually believe a Blind nurse or doctor can somehow be effective?

If you’re asking that question this must be your first time here! Welcome!

Am I proposing these newly Blind men and women are sent to the ER?

I’m not a doctor and I haven’t played one on TV. Even though I do have lots of experience watching medical dramas on television I don’t think I can make that determination. However, I don’t think the answer is a quick no like so many people would assume.

As people with disabilities We’re so used to being dismissed and hearing things like;
Well, it’s just not accessible…
It has to be done a certain way, we can’t just change how we do things.
Change can’t take place overnight.

Inaccessibility is somehow treated as if it’s natural.
The majority of inaccessibility is manmade. Physical access like getting into a building. Software constraints that keep many of us from either participating on the web or employment and then process restrictions that mandate how a job is performed.

And then, all of a sudden!

Audio: Gazoo (from The Flintstones)

Have you noticed all of the corporations now accommodating their employees with work from home access?
The online conferences and entertainment now available.
Everything getting done online.

If inaccessibility is manmade then maybe man can fix it,
Audio: “That’s right!” from Harry Belafonte’s “Man is Smart Woman is Smarter”

TR:

Huh!

Audio: “That’s right!” from Harry Belafonte’s “Man is Smart Woman is Smarter”

Audio: Bill Withers Lean on Me Instrumental

TR:

Right now, I guess my role in this pandemic is staying home. It’s continuing to do this podcast. In thinking about how I can do more, I sure don’t want to do less so I’ll try to do what I can. I’m going to remain optimistic and not get caught up in conspiracies, although they can be very entertaining.

Eventually, this too shall pass. I just hope we will move forward and be honest about how we got here. I’m talking about the impact of years of all the isms, racism, sexism, ableism…
the neglect, , the poverty, the gaps between the have and have nots.

None of these things are new. They’ve been here way before any of us were here. Corona just highlighted those on the margins, the party goers who have always been apart, never actually partying.

I know many people are calling for a return to normal, but that doesn’t seem like what we should be striving for.

I hope you don’t mind that I shared this with you. I just needed to put my two cents out in the world in my own way.

I have some non-Corona episodes in the lineup. I can’t promise I’ll be silent on this topic, but at least I’ll try to make it sound cool and make you smile along the way.

I hope when you listen to this podcast you feel a part of this community, my Reid My Mind Radio Family!

Last month’s episode titled Live Inspiration Porn – I Got Duped, attracted some new potential listeners to the web page over at ReidMyMind.com.

According to Google, a bunch of people in search of the term porn, were served the episode’s web page. I can only imagine the disappointment they had for google when they saw this particular episode in their results.

But wait, according to Google, several actually clicked on the page.

I don’t necessarily consider myself a good writer but I’m sort of proud of this one! I mean wow, shout out to me for what must have been a fantastically written blog post to redirect that person away from they’re original search.

I’d love to know if someone actually ended up listening to the episode based on that discovery term. And man if you actually came back… email me at ReidMyMindRadio at Gmail.com because that would be the best testimonial ever!

Don’t worry, no judgement here! Get your freak on!

If you like what you heard here today, tell a friend to check it out…

Let them know it’s available wherever they get their podcasts. Of course you can take a ride on the information super highway and get off on the ReidMyMind.com exit. That’s R to the E I D. (Audio: “D, and that’s me in the place to be” Slick Rick)

Like my last name!

Audio: Reid My Mind Outro

Peace!

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Ajani AJ Murray – Starting with Imagination

Wednesday, March 4th, 2020

AJani AJ Murray , a Black male with short haircut & facial hair seated in a wheelchair. He wears black & white print baggie pants with a blue long sleeve hoodie with words printed in black: "Young, gifted, black and disabled."

Pursuing your passion can take you down a road filled with all sorts of obstacles. Ajani “AJ” Murray knew from an early age that he wanted to act. his first school was television which he studied intently.

His latest role is in Best Summer Ever, screening at SxSW later this month

Hear how television and movies provided much more than entertainment for him and his family. His methods for navigating the obstacles along his journey and how he’s making his own place in an industry that isn’t always welcoming. In each case, imagination was at the start.

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Ajani AJ Murray:

Our friend that we have in common, Cheryl green, told me about you and I’ve been listening to your podcast and I love it! It’s so dope and fresh. I’m kind of a Geek so I watch like a lot of PBS and I listen to NPR and so it reminds me of like radio documentaries. I particularly enjoyed when you were talking to Leroy about the Black History especially from the disabled perspective. I did something like that on my Insta Gram and some of my friends were like keep it coming AJ. So now you’re a resource.

Ajani Jerard Murray, a lot of people call me AJ.

TR:

And me, I’m Thomas Reid
producer and host of this podcast.

I usually reserve the opening of the episode for me to
tell you a bit about what this podcast is all about,
but as you’ll see in a minute, AJ is a media connoisseur,
so I was like man, everyone needs to hear his review.

I like to let new listeners know that here,
we bring you compelling people impacted by all degrees of blindness and disability,
told in a way that sounds

Audio: AJ “Dope” “Fresh”

And I do always hope Reid My Mind Radio can be a

Audio: AJ, “Resource”

For anyone especially those adjusting to vision loss.

And with that said, let’s do this!

Audio: Reid My Mind Radio Theme

Audio: Tom Joyner show…

AJ:
I became a big fan of radio because of Tom Joyner. We went to one of his Sky shows in Atlanta and it was at Greenbrier Mall. It was the whole cast and we listened to the S.O.S Ban. From that point for about 2 or 3 years I did a mock radio show.

TR:

A youngster at the time, AJ study the format of the now retired
Tom Joyner, host of the number 1 nationally syndicated urban
(that’s code for Black) morning radio Show.
AJ created his own show which he put on for his family.

AJ:

To make a long story short as I told you earlier I can really talk and go on long.

[TR in conversation with AJ:]
Laughing…

AJ:

I kind of sort of gave up on going into radio because I realized that in mainstream FM radio you don’t really program your own shows. You’re basically playing the same music and also to get to where I really wanted to be and the kind of radio that I would do is something that you have to be in the game for years and years for, like a Tom Joyner.

TR:

AJ knew his true passion.

AJ:

I’m a huge, huge fan of the screen big and small. From the time I was a very little kid I was always just enamored by the screen . I grew up on three camera sitcoms; Cosby Show, A Different World, Facts of Life, Different Strokes. As I got older there was the Fresh Prince era, the TGIF era, the Martin era, the WB era. My love for television in the very beginning was the sitcom.

TR:

Of course, there’s the big screen.

AJ:

My mom loves film. When it came to film she wasn’t really restrictive on what we could watch. Now we couldn’t watch everything, there were certain films I couldn’t watch but like it was 1989 I remember actually going to see Do the Right Thing. I had to of course cover up my eyes during the Mookie ice scene.

[TR in conversation with AJ:]
Laughs…

AJ:

TR:

Shout out to Rosie Perez!
If you don’t know the scene let’s just say Ice cubes are for more than chilling your lemonade on a hot summer day.

AJ:

I appreciated that several years later.

TR:

Now, I’m from the era where parents let you ride in the front seat with no seatbelts,
where you were encouraged to leave the house and explore so
I cannot judge.
[TR in conversation with AJ:]

You know the movie Death Wish? Charles Bronson. I saw that at 6 and nobody cared (laughs) and nobody cared.

Audio: Scene from Death Wish: Knock at door and unsuspecting woman says she’ll anser it. She asks who is at the door and the intruder replies he’s delivering her groceries…

TR:

Don’t open it! He’s lying!

(exhale)

Fortunately, there’s a lot of good that can come from family movie outings.

AJ:

That’s one of the ways we connected as a family.

[TR in conversation with AJ:]
Very cool. So it was the whole family going?

AJ:
My mom and my two sisters. In my house it’s three women and me.

We’re all very very close. That’s one of the ways we bonded. Sometimes we’d listen to classical music or something really peaceful because I grew up in a very peaceful household.

TR:

Television & movies can also initiate conversations about all sorts of topics and
even ways to explore culture.

Just be careful about that last one there, we know Hollywood doesn’t always get culture right. (Ahem!)

AJ:

I always had this dream of being an actor. It was something that was always looming in the back of my mind. It was always in my spirit, but I didn’t know how to physically make the connection. I couldn’t necessarily afford acting classes at the time and I wasn’t in high school at the time to be a part of an acting club.

TR:

Financial accessibility, we don’t often talk about that in our conversations around access.

AJ, made use of what was in his reach.

AJ:

The screen was my classroom! Anything I could get my hands on or watch or any old interview s. I really appreciate actors that do interviews like I stay stuck on the Biography channel, on Actor’s Studio. Any time there was a documentary series about behind the scenes I’m all over it!

TR:

Screens bring their own access challenges.

AJ:

when I watched re-runs of television in the 50’s and 60’s even like 20 years ago, 30 years ago, they always had like a voice over guy read everything. One of the things I always laughed at is like watching re-runs of the old Andy Griffith show. the announcer says it’s the Andy Griffin Show, starring Andy Griffin and I always laughed because I’m like didn’t he just say it’s the Andy Griffin Show.

But I realize he said that because he was reading the opening credits. Everything was announced. it really helps me as a visually impaired person.

[TR in conversation with AJ:]

People think Blindness is an on or off, so you see everything or you don’t. I know that there are real specific challenges for people with low vision when it comes to that.

AJ:

I’m glad you brought that up. There could be things that I can see one day and the very next day I won’t be able to see. I look like I can see and so people they start laughing or they think you’re lying or they think you’re not looking hard enough. I’m like I can’t see this.

Even when I’m in my power chair I would rather like walk behind someone so it could be like a human guide.

TR:

AJ’s vision loss is related to his Cerebral Palsy or CP.
It impacts all four limbs so as he described to me, he needs physical assistance with most things.

Most things physical that is…

AJ:

If I was watching Happy Days or Laverne and Shirley or Three’s Company or All in the Family I would create a character, none of it is written down because I’m not able to physically write.

If I was watching Three’s Company, if Jack and Larry were going down to the Regal Beagle well I was too. If I was watching Law and order , no I couldn’t be a detective but I could help Jack McCoy as one of his assistant DA’s. I just made myself a part of the cast.

TR:

AJ’s imagination was open.

His opportunity to hit the stage came in high school.

AJ:

I had such a ball in high school. It was such an atmosphere of like were going to support you and you’re a part of us. My favorite drama teacher his name was Dr. McMichen. I was thanking him for making sure the stages had ramps and I was included in on all the trips.
He let me know, you are a part of this club and a part of these plays and it’s because you are good not because you are in a chair. And that made me feel so good.

TR:

following high school he continued working on his craft by attending workshops and finding a community of other actors.

AJ:

I would say over the last three and a half years I’ve gotten the opportunity to be on screen.

the first thing I booked when I got my agent was, we did an episode of Drunk History. And that comes on Comedy Central. That episode was actually about 504Act. That’s kind of the precursor to the ADA.

Then I was able to do an episode of ABC’s Speechless. I played a character named Charlie.

I was able to do an independent film called Bardo Blues. It’s an interesting very nonlinear artsy film that talks about depression and bipolar. I play the neighbor to the lead.

Audio clip from film…

TR:

His latest role is Best Summer Ever, A Musical.
It takes place in a high school.

AJ:

It’s a romantic story and all kinds of teenage angst ensues. I play the older brother so I’m not involved in the teenage angst but I do sing in the film.

TR:

The film consists of a cast of over
60 disabled actors as well as those without disabilities.
It’s being screened at South by South West on March 14.

You can also see AJ in Becoming bulletproof.
Every year, actors with and without disabilities meet at
Zeno Mountain Farm to write, produce, and star in original short films.

Audio clip from film…

AJ is the focal point of the doc.

AJ:

I also did a documentary, it’s called Take A Look At This heart. So I talk about my experience around my sexuality and dating. So it’s an ensemble so It’s not just me. I believe that’s now streaming on Amazon.

TR:

AJ’s getting some roles and definitely
making a name for himself by judging film festivals, hosting events yet
he found himself in a dark place.

AJ:
Heavy dark! Like I was really, really down.

I was on a walk with my mom. I was in California at the time and it was a beautiful sunny day. It came to me, instead of being down about not getting auditions or you know nobody’s calling or you’re having a hard time with employment; why don’t you write what you want to see?

TR:

By now you can tell AJ puts a lot of thought into what is on the screen,
big or little. So of course he would do the same for his script.

AJ:

A lot of characters that we see it’s either one person with a disability and I’m not saying you don’t ever see it, typically they don’t have any friends. To my experience I have a bunch of friends with disabilities. Not just CP, but all kinds of disabilities.

I just want to lend my voice to reflect that on screen.

TR:

Think Living Single, Friends or the Big Chill…

AJ:

These group of friends, People with disabilities in a more adult context. All with different types of disabilities like CP, like me. He also works. Then you have another character who has CP they walk with a gate. Another character she has a traumatic brain injury and she’s very athletic…

[TR in conversation with AJ:]
And may I lobby for a Blind guy who likes audio and…

AJ:

If we get picked up brother I’ll write you in a couple of episodes.
[TR in conversation with AJ:]
There you go man, there you go!

TR:

Alright, fine, it’s not about me.

In order to physically write his words, thoughts and ideas AJ has a very special writing partner.

AJ:
My mom helps me a lot with a lot of stuff behind the scenes. We’re actually working on a book and that’s going to be out sometime soon and we do public speaking.

TR:

The latter is done under the name, I Push You Talk. What a powerful statement.

Pursuing your passion can really be hard.
There are always reasons to throw in the towel or change course.
Legitimate reasons that wouldn’t in anyway classify someone as a quitter.

For example…

AJ:

Just because you perform in school, that doesn’t mean that it’s going to translate to the screen or you’re going to have this career.

TR:

There’s also the physical pain that comes with his CP.

AJ:

I’ve been in pain since my early teens to pre-teens. As I’ve gotten older sciatic pain and nerve pain over the years have like sort of advanced to like more of a chronic level as far as nerve pain.

My love for everything that I experience and everything that I’m going to and want to experience has to be bigger than my pain.

[TR in conversation with AJ:]

You don’t probably see people with disabilities in many of these films that you are watching.

AJ:

That’s a hundred percent accurate.

[TR in conversation with AJ:]

So it doesn’t sound like that dissuades you.

AJ:

I didn’t necessarily have this as a child but with the combination of my mother speaking to me and my imagination, I just had this sense that it was put inside of me so I’m supposed to be doing what I’m doing.

There’s people of faith in my family so I do have spiritual background. With all those things combined because of my atmosphere, I’m the man you’re interviewing today.

Audio: AJ Scratch… Ladies singing “AJ” while beat rides under…

TR:

That’s Mr. Ajani Jerard Murray.
Actor, Writer, Speaker, Consultant and soon to be Author Producer &…


AJ:
Things sort of have this way of coming back around full circle. I’ve gotten into podcasts and I want to start a podcast and I want to do it with a group of people like a morning radio show. Sometimes my dreams are very big and lofty, but I have a lot of faith and I believe it could happen.

TR:

It really does all start with imagination.
And it continues with that determination, persistence and faith.

AJ, brother, thank you for letting me share your story!
And you know what’s up, you are officially a member of the Reid My Mind Radio Family.

You can reach AJ via social media at:
Twitter – @GotNextAJ
Instagram: @AjaniAJMurray
Ajani Murray on Facebook

You can catch both
Becoming Bulletproof and Take a Look at this Heart
streaming on Amazon.
For those with that prime membership it’s included.
Unfortunately they don’t have Audio Description, however Becoming Bulletproof does at it included on the DVD.

Best Summer Ever is screening at South By South West so if you’re hanging out there go check it out.

I’ll have links over at Reid My Mind.com to AJ’s social media and more including a web series on YouTube.

I hope you enjoyed getting to know AJ as much as I have. I look forward to continuing our conversations and I have a feeling based on his thoughtful insight that you’re going to hear from him again in this space.

If you agree that what we’re planting here on the podcast can provide some nourishment or maybe a sweet treat, please share it with others.

Ya dig!

If you want to help it grow a bit, you can even go on over to Apple podcast and leave a rating (5 stars, a review would be pretty cool too!

Please, , do not apply water to the podcast, that will not help it grow at all!

Reid My Mind Radio is available wherever you get your particular flavor of podcasts. Remember links and Transcripts are at ReidMyMind.com.
That’s R to the E I D
Audio: Slick Rick, “D, and that’s me in the place to be!”

TR:
Llike my last name.

Audio: Reid My Mind Radio Outro

Peace!

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Because We Are Captivating

Wednesday, October 9th, 2019

A professional headshot of Stephanae's smashing asymmetrical hairstyle with burgundy highlights. The muted Coral Cutie lipstick topped with a peach colored gloss provides a nice contrast against the gray backdrop. She is wearing a black dress and black tuxedo jacket trimmed in faux leather, silver statement necklace, and silver drop earrings.
Third time on the podcast, Stephanae McCoy is the co-founder of Captivating, an online magazine. Hear her journey from once believeing there was no future to empowering women with vision loss to see their Bold, Blind Beauty Captivating selves!
How did she start the magazine? What helped her find her purpose? And what’s her advice for others adjusting to vision loss? Plus Steph is a part of SPARK Saturday. #SparkSaturdayPCB)

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TR:

Welcome back to Reid My Mind Radio!

With each episode, I’m hopeful that we’re reaching someone new to vision loss. I know they are out there and I have a pretty good idea of what they’re experieencing. Mainly because I myself became Blind as an adult.

My name is Thomas Reid and I am host and producer of this hear podcast – which is all about sharing the stories of compelling people who themselves have some degree of blindness. From low vision to totally blind, like me!

In sharing our stories we begin to shatter the false beliefs and information about what it means to live with low vision, blindness or disability. Beliefs we may have never even realized we held. Notice I said we? Meaning you and I both. No one is immune.

For those interested in a different way of thinking,let’s go!

Audio: Reid My Mind Radio Intro

[TR in conversation with SM:]

Yeah so you know how this works, this is your third time! (Laughs) Trifecta!

SM:

Laughing

My name is Stephanae McCoy and I am the founder of Bold Blind Beauty and online community with the purpose of empowering Blind and Visually Impaired women while connecting sighted and non sighted people. And I’m also the Co-Founder of Captivating.

TR:

That’s right, Steph is back on the podcast. I encourage you to check out her first and second episodes which I’ll link to from this episodes blog post over at ReidMyMind.com.

Today, let’s start with her most recent venture.

SM:

Captivating!

TR:

An online digital lifestyle magazine gearred to people with disabilities.

After witnessing the results of a friend and fellow Blind blogger’s make over, Steph reached out to the image consultant who performed the transformation.

SM:

Her name is Chelsea Nguyen. our first telephone conversation actually lasted three hours, the first time I met her. And we were just going on and on about the things we had in common.

TR:

But there are also differences.

SM:

Chelsea is not Blind. Chelsea does not have a disability, but Chelsea has a heart for people who do. And she specifically has a heart for people who are Blind and Visually Impaired. Being that she has had that experience working with Blind people she developed strategies to help Blind and visually Impaired people use non-visual techniques for applying makeup, taking care of their appearance and everything. She developped these things. I’m like we really gotta do something together.

TR:

Eventually the ideas turned into Captivating.

SM:

We were thinking about how people with disabilities are viewed broadly, especially if you have a visible disability. People stare at us a lot when we’re out here living our lives when we have a white cane or wheelchair or whatever.

TR:

Maybe that’s the gaze of seeing something unfamiliar, possibly fear or even ableism.

Whatever it is, Steph’s flipping it!

SM:

We think that when people are looking at us when we’re out here with our devices, that they’re looking at us because we are captivating.

TR:

That’s not her initial reaction to her vision loss in 2005. This attitude has it’s beginnings in 2009.

SM:

That’s when I was diagnosed legally Blind and had to look at some adaptations for work and life.

[TR in conversation with SM:]

Let’s say we’re back in 2009. Ok, so I remember how I felt in terms of my career and my future. Do you remember that time for you?

SM:

Oh my God yeah!

I had these plans. I had just gotten married like a year or so before. We had bought a house. I had just gotten a promotion at work and I just had all of these grand plans and it’s like now I’m legally Blind and now what

[TR in conversation with SM:]

Hmm.

SM:

You know?

[TR in conversation with SM:]
Yeah!

SM:

Before I connected with other organizations and other Blind people I just sort of thought that I had no future. I thought it was over.

TR:

TR:

That’s despair. An unforgettable emotion. She didn’t know it at the time, but she did have a way to take her from no future to Bold Blind Beauty to straight up Captivating?

SM:

even in the worst set of circumstances I would always think, there is always a way.

I didn’t know what that was going to look like but I knew there was going to be away that I could progress through this and I could adapt to it and grow with it. I didn’t think so at the time.

TR:

In the midst of pain, its hard to see how it can provide opportunity.

SM:

It wasn’t until I think I lost my sight and had to advocate on behalf of myself that it became clear to me what my real purpose was.

TR:

Steph’s earliest advocacy was as a mom.

SM:

My middle son had ADHD, Attention Deficit Hyperactivity Disorder. When he was going to school because his behavior was so over the top, it was just very, very challenging trying to manage him especially being a single parent with two other children. I had to become my sons advocate. I didn’t even consider myself an advocate before he got diagnosed.

TR:

All set to discuss her son’s Individual Education Planwith a teacher and principal, Steph quickly realized she was unprepared when the attendees included several faculty and specialists.

SM:

That never happened again because after that I educated myself and I found out everything I need to know to be able to help my son and to be his advocate. Every time they would try to do something that I felt wasn’t Kosher, we would have to sit down and have a conversation. It was almost like a full time job.

TR:

Then there was advocacy from her perspective as a daughter.

SM:

My mother developed a disability in her later years. Her entire body was pulled to the left side so her head was almost touching the floor because of her Dystonia. She had reached a point where she was denied Social Security Disability three times. When you’re applying for Disability it’s a difficult process, but its made even more difficult once you’re denied the third time.

TR:

First step!

SM:

I got really angry, but on my way home I thought about it, I gotta sit back, think this through, do some research and then I started writing.

TR:

Writing a letter detailing her mothers situation including pictures and an invitation to visit. Addressed to the Social Security Administration.

SM:

I CC’d all of my representatives, her doctor and her attorney. Arland Spector’s office got involved and within six weeks my mother was getting the benefits that she rightly deserved.

TR:

The strength to move through challenges can come from all of our individual experiences.

Floating Above the Lane with Prince Bri M of Power Not Pity

Wednesday, June 19th, 2019

Prince Bri M. A Black, disabled, nonbinary alien prince looks somberly at the camera. Ze is wearing a purple jacket and a cheetah print shirt along with a multicolored choker. Ze is also wearing bright purple lipstick and round earrings.
Prince Bri M is the producer and host of Power Not Pity. A podcast that
aims to amplify the lived experiences and perspectives of disabled people of color everywhere.

We talk about Bri’s experience;

  • Being Black, non-binary and disabled.,
  • Accessibility & Disability Justice
  • Getting started in podcasting

PlusBri hails from the Bronx, so you know this episode is set between some BX Love on the intro and outro!

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Transcript

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TR:

Audio: South Bronx, Boogie Down productions

Yo, what’s up Reid My Mind Radio? I’m your host and producer, T. Reid bringing you another episode of what I hope is your favorite podcast. I don’t know if that’s really the case but I’m going to say if you’re a person adjusting to Blindness, adjusting to Low Vision or disability in general this is definitely a podcast with you in mind.

If you’re new hear welcome! Just about every two weeks or so we bring you a profile of a compelling person impacted by disability most often blindness or low vision. Sometimes I bring you a story from my own experience as someone becoming blind as an adult.

Chances are if you’re new here, you’re like wow, this doesn’t sound like we’re about to talk about disability. Well, that’s how we do it here.
Disability doesn’t look one way. It doesn’t act one way. It definitely doesn’t sound one way.
In every episode, we hope to challenge your beliefs around blindness and disability. even if you think you are already quite familiar. Today’s episode is no different.

By the way, you’re listening to a track by Boogie Down Productions called South Bronx! A personal favorite of mine and in my opinion the official unofficial anthem of the borough.

Since we’re all about challenging beliefs…
I can’t tell you how many times throughout my life when I proudly declare my birthplace only to have people either look at me just a little differently or outright say something offensive or judgmental. Showing their familiarity with the borough is probably based on the images of the 1970’s. The burning buildings and the poverty and crime. They don’t see the beauty in the diversity, the culture and the people.

Today, my guest also hails from the BX so it just seemed appropriate. Truth is I’ll take advantage of any opportunity to include Boogie Down Productions in the podcast and let you know where we come from…

Audio: “South Bronx…” from Boogie Down Productions

TR:

BX, let’s go

Audio: Reid My Mind Radio Theme

Bri M.

“I want to float above the lane. That’s my state of existence.”

TR:

Meet my guest, Bri M.

Bri M.

I’m a podcaster and I like to be an agitator because I like to interject disability justice in the conversations I have . I’m politically minded about what it means to be a disabled person of color in America today. My podcast is called Power not Pity and it’s about the lives of disabled people of color. I try to preserve and amplify the voices and lived experiences of disabled people of color through the show. We talk about our experiences. We talk about what we’re going through and how we can dismantle ableism with every episode.

## TR

Managing all production aspects of the podcast including interviewing and editing, Bri is also host. That’s the Bronx spirit yawl… it’s how we do!

I’ll try to go easy on the Bronx love but the truth is I try to find that common thread between me and all of my guests. It just so happens Bri and I share several experiences. But it’s the differences which makes the conversation even better.

Beginning our interview, I wanted to be fully sure about all aspects of Bri’s identity as noted in the following bio:

Bio:
Bri M is a Black, Jamaican-American,
queer, non-binary, disabled alien-prince from The Bronx.
Ze’s pronouns are ze/zir.

[TR in conversation with Bri M.:]

…So what does all that mean?

Bri M.
What does all that mean?

[TR in conversation with Bri M.:]
I know the Jamaican American part (laughs…)

Bri M.

I think all of the other things I say they all intersect into creating the person that I am.

I think what I wanted to express by saying all of the different parts of me is to really display that disabled people are a myriad of things. Especially when we’re racialized in society as Black people as Black disabled people. We face such hardship that white disabled people don’t even understand.

I want to name who I am because I think representation matters.

So I say that I’m a non binary person to because if we don’t go out there and speak about who we are we won’t be known as human beings. I put myself out there as non binary because I want to combat the idea that non binary people are usually seen as white you know the typical image. When you go into a Google image search for something and you search for non-binary what you’ll get in images is usually white people. I want people to make sure that people know that black non-binary people exist. Black disabled non binary people exist.

[TR in conversation with Bri M.:]

No doubt.

Audio: Free Your Mind & Good Thoughts Bad Thoughts by Parliament Funkadelic

[TR in conversation with Bri M.:]
What’s the Alien Prince because when I hear that I’m like ok is this Alien Prince on some George Clinton …

Bri M.

Yes, yes definitely. I’m very influenced by that. I really do think that as a Black person in society today like this apocalyptic society that we’re living in I really do feel like I’m not from here. I’m not from where we are on this plane of existence. I really do think that Black people are not from here. I’m really on that Sun Ra tip like space is a place you know.

Because I identify as an Alien Prince I want people to know that I’m a part from mainstream society because I can see… I live on the margins of society right, as all of the things I named who I am so I can see how society works because I’m on the outside of it. I want to name that. By saying that I am Alien, I’m strange, I’m Black and apart from mainstream society because that’s just how we have been oppressed and forced into being so I want to highlight that and I also say that I’m a Prince because I think I deserve to be seen as royal and I deserve to be… to accept the part of who I am that wants to be valued.

Because I’m an only child , growing up I was always called a Princess and I used to hate it, I hated it I wanted to be known as a Prince instead because that felt way more true to my identity as a non-binary person. A young binary person and I really didn’t understand what it meant to question my gender identity but as I’m coming into my understanding of who I am especially as a disabled non-binary person I realize that you know I got to celebrate the parts of who I am and celebrating the parts of who I am that means naming myself as a Prince.
[TR in conversation with Bri M.:]
Ok, I like it! It’s all about being your authentic self. When you have that that’s like a sense of freedom. And when you can show it and just hold your head up nobody can take that down so shout out to you for that!

Bri M.

Thank you, thank you Thomas.

[TR in conversation with Bri M.:]
I’m going to blame it on my screen reader so you correct me… the pronouns… Ze Zer Z …

Bri M.
Ok, so let’s break it down

[TR in conversation with Bri M.:]
Yeh!

Bri M.

So you know she, her, hers, herself right? What I want to do with my pronouns is to say Ze as in she. zer (pronounced zear) as in her, zers (pronounced zears) as in hers and zerself (pronounced zearself) as in herself.

So when people see me they automatically assume that I am a woman because I present in some ways as a woman just for safety reasons.
[TR in conversation with Bri M.:]
Mm!

Bri M.

In my chosen family people refer to me as Ze Zer because they know those are my pronouns. Those are really important to me because again they highlight the fact that I want to be set apart from society because you know I want to reclaim the fact that I live on the margins. Being known as Ze Zer is also part of feeling like the Alien Prince that I am

TR:

Bri’s identities intersect with so many marginalized groups. And then 5 years ago ze added disability to the mix.

Bri M.

I have Multiple Sclerosis. I wake up in the morning and never know what might happen to my body or how much pain I might be in . I walk with a cane so I’m visibly physically disabled. So my relationship to disability is that it’s very much in the forefront of my mind all of the time . I’m constantly having to engage with unsafe spaces because I don’t feel like I can move in the same way other people can but at the same time coming into my own understanding of disability justice has been really freeing because I’ve come into a whole new community of really accepting wonderful brilliant people. Brilliant disabled people of color, brilliant white disabled people and it just feels really good to know that I’m not alone and that at the same time people consider me to be unique and vital to the different conversations that we’re having around access and around what it means to be an ally.

[TR in conversation with Bri M.:]

What were you doing before you were diagnosed with MS?

Bri M.

Oh wow!

Well I was actually working in the music industry and I don’t know if you know anything about like working in that industry but it’s very much like very able bodies. you have to be on like 110 percent all the time. You have to be there you have to show up you have to make connections with people and often times these were connections I was making with white straight Cisgendered people who didn’t understand who I was as like a Black non-binary person and it was hard but I loved doing the work that I was doing. I remember I was doing grunt work for this one venue called the Music Hall of Williamsburg – it’s pretty famous . It’s been a while for a long time. I was one of those people who would shop for a band and set up the green room and you know if you know anything about that it’s very active work. I was also facilitating a lot of workshops around social justice and racial justice.

[TR in conversation with Bri M.:]
Ok, so you were already there doing the justice work That was already a part of who you were.

Bri M.

Yeh! I did quite a bit of that in college. I did a lot of radio. At one point I had three radio shows in college. It was really good for me. Getting through college was really difficult.

[TR in conversation with Bri M.:]

What college and tell me about the radio show?

Bri M.

I actually went to three colleges …

[TR in conversation with Bri M.:]
Same here

Bri M.

I started at Colgate University…and then I transferred because it was so hard to be a Black Queer person up there.. so difficult. People were like actually throwing slurs at me when I would walk around on campus. Honestly the stress of it all of being there… I remember feeling these weird symptoms on the left side of my face like a permanent tick on the left side of my face I remember feeling that and looking back on it now I think that’s when my symptoms of MS started.

[TR in conversation with Bri M.:]
Wow!

Bri M.

Then I transferred to the University of San Francisco. I did a lot of thesis work there because there’s a big body modification movement out there. And then it got to be way too expensive Thomas, so I came back to New York and finished my degree in Sociology at the City College of New York. City! What, what!

[TR in conversation with Bri M.:]

I’m Baruch… throw it up!

You did a radio show where…at all three?

Bri M.

All three but mostly at Colgate.

it was pretty much straight music. I was a bigger metal head when I was in like in my 20’s but I’m still very much a metal head now.

There was one show that I did that was “World Music” I don’t know what that means but a lot of Reggae and another one I did with Metal pretty much all Metal music, Hard rock. My third one was a mash up of Hip Hop, Pop and R&B.

It’s just funny, I’m thinking back on all of the things I’ve done so far before I became disabled and decided to do this podcast , it’s funny how they all link together.

[TR in conversation with Bri M.:]
Exactly.

Bri M.

I was already doing radio, I was already interviewing people like yo it just makes sense!

TR:

Looking back allows us to view our experiences as preparation. Individual events that are in no way related come together to make something new.

In Bri’s case, the result is Power Not Pity.

Bri M.

I’d say for like a year in a half I was pretty much bed bound and didn’t leave my apartment very much . Listening to a lot of podcasts. Listening to these voices of white Cis hetero people who just weren’t on my wave length.

I decided I don’t see anything for disabled people of color out here . We exist and we’re fully human beings and we deserve to be heard and seen as human, full unique genuine authentic human beings and I didn’t see that so I was like yo I’m going to make it.

TR:

Bri started by taking a course at BRIC or what was originally an acronym for Brooklyn Information & Culture. In addition to presenting free cultural programming they present and incubate work by artists
and media-makers who reflect the diversity that is Brooklyn New York.

Audio: Where Brooklyn At, Notorious B.I.G

Bri M.

They advocate for doing media studies for the people.

I took an intro to podcasting course there and then from there I just started to edit episodes , started to interview people. I just tried to immerse myself in podcasting and the podcasting world and disability justice that world too. Trying to put the world together along with all of my other identities. I started there and something that really validated me was actually being a part of this cohort that I just finished, this certificate program from Made in New York Media Center. They’re out of the Mayor’s Office of Media and entertainment. So whenever you see a film that’s been made in New York it’s got a little Made in NEw York patch attached to it and whenever you see media that’s been created in New York the Mayor[‘s Office on Media and Entertainment usually is behind that as well.

So this podcast certificate program was like a really big deal for me. When I got accepted I was just so happy about it because I felt like I’m on a different level now and I feel so much more confident in my skills as an editor and as a producer and I just want to keep going.

TR:

That movement is essential.

Like any creative project, it’s going to continue to change over time. In addition to the college radio and interviewing experience, Bri is in some ways ahead of the game.

Not only does Bri have a natural cool relaxed voice that kind of draws you in and makes you comfortable, but there’s also a good understanding of the target audience.

Bri M.

I’m talking to all those people who feel like they have never been seen in mass media in major society. I’m talking to all of those disabled people of color specifically for us by us. I want you to know that I’m here and I’m saying that I see you and that I want your voice to be heard and uplifted because it matters

In highlighting our voice and me saying that I want to uplift disabled people of color it’s like something that doesn’t happen often enough. That’s my audience.

# Compare

TR:

Disability impacts every aspects of society. Some experiences are common across different demographics.

[TR in conversation with Bri M.:]

I know a lot of my audience are basically people experiencing Blindness and vision loss to whatever degree , but I think there are so many similarities …

What are some of the access issues that you experience on a daily?

Bri M.
Mm, mm… Well living in New York City, it’s the most inaccessible city, I think.

[TR in conversation with Bri M.:]

See that’s so funny… that’s from your perspective, but from other people’s perspective it’s like New York is accessible. It always bugs me out…

Bri M.

What? … Are those Able bodies people saying that?

[TR in conversation with Bri M.:]
If a person is Blind or visually impaired, having that access in a city compared to where I live… I live in the Poconos so I don’t have access to jack! There’s nothing ok! But in the city you know if you don’t have an issue where you need to climb steps , then it’s not going to be a thing for you but most of the train stations aren’t wheel chair accessible or they only have steps It’s such an incredible difference how within the same community people view that differently.

tell me about it from your perspective.

Bri M.

Everybody has different access needs… for me personally the things that are difficult for me have to do with my physical needs right. I don’t want to say I’m the access notes police because I am not trying to align myself with the police but I’m constantly finding myself as a person to say ok where are the access notes where is the information about the accessibility of the building at so and so event.

[TR in conversation with Bri M.:]
What about in terms of interacting with society, because your disability is visual right, meaning people can see that you have a disability you are disabled. That is similar to blindness because they recognize that off the jump. How do people respond to you.

Bri M.

I live in Brooklyn and everybody’s like super rushing around really fast and so they look at me , they perceive me as a young person but they don’t look down and see that I’m using a cane. They just gloss over me and so a lot of people don’t even realize that I use a cane until I’m in their immediate space and so I think I throw a lot of people off just by being . There’s a saying out there in the disability justice world to exist is to resist. I really do feel like when I’m in able bodied spaces like yo I’m the only black physically disabled Queer person non binary person there. I know I already stick out like a sore thumb but the cane makes me stick out even more and people … because I walk slowly to people just pass me by and treat me like an obstacle.

I’m a person too and I’m valid.

I really truly believe that if we had disability justice in our high schools and our middle schools things would be so different. This world would be so much less ablest. This world would be a more just place because people would know like you don’t pass someone with a cane .. don’t pass them on the right side, their cane hand side because that destabilizes them. That’s just a little thing that people don’t even realize you know. The way I move is different from you but that doesn’t necessarily mean it’s wrong or it’s bad.

[TR in conversation with Bri M.:]
What about the actual face to face conversation interaction? Are there any differences there?

Bri M.

Well yeh I’ve definitely noticed differences over time. People will say oh well you look good now maybe you don’t need to use that cane anymore. How long are you going to use that cane for… I have people who I live with in my building , my neighbors , you know I say hello because we’re all out here living and struggling to survive so I say hello because I want to say yo I see you and I want you to know I’m your neighbor too but my neighbors will be hella rude and say like yo when are you going to stop using that cane? I get a lot of that and I think it’s because I’m young, I’m about to turn 30 and disabled and people expect me to be on all the time when that’s just not my lif eThomas.For half the time I’m out here living I’m in bed. I’m working from bed so a lot of the conversations I have are just not nuanced. Their very ignorant and I constantly feel like I have to educate people which is so tiring, but I do it anyway because I think it matters so much to me. I want people to know that there are other ways of viewing disabled people of color. There are other ways to regard us besides thinking that we’re something to be pitied. That’s why I name the show Power not Pity.

TR:

While people from different walks of life and different disabilities have common experiences; others can be quite unique.

Bri M.

I decided to create this thing because I wanted d to find more community around me because that’s so desperately what I wanted so

I made the show Power not Pity and decided to focus on disabled people of color because we are the ones who are most marginalized. We deserve to be seen first and heard first because we are the ones who are brutalized by the police. Half of all cases of police brutality are enacted on black disabled people.
Audio: Multiple news clips about police brutality cases against Black people with disabilities. ends with the actual recording of police realizing a driver was Deaf after they pulled him out of the car…

Bri M.

It’s not a game. It’s not something to just be swept under the table. We need to talk about this, get conversations going around why black disabled people are dying out here and nobody’s talking about it.

TR:

Well Power Not Pity is now a space for such conversations and more.

Bri M.

I love storytelling. I love listening to stories. From a very early age I was a book worm. I always enjoy the art of getting to know someone through an interview and I think one thing that I really do love about podcasting is it still feels very much like DIY. A lot of people say that right now is the wild , wild west of media and content creation because there’s a lot of possibility in podcasting.

I think people are starting to realize that there are voices out there that are underrepresented that need to be heard, that need to be expressed fully because podcasting is so homogenous, so white so Cisgendered , so hetero and so male oriented. I counter act that just by being there. I counteract the idea that podcasting is only this one way. Podcasting is a myriad of things. If you have a mic and you have the desire then you got it you can go. It’s one of the more accessible ways of reaching people and connecting on a deeper level.

[TR in conversation with Bri M.:]
I look at the podcast hing and anything, life is about finding your lane. Finding that lane where you fit in and kind of riding there and if you want to venture out go into another lane ok, you can do that but you always got somewhere to come back to where you got your people and all that . So what do you think is your podcast lane?

Bri M.

Mm my podcast lane! You know what being a non binary person I just feel like I don’t want to be in any lane . I want to float above the lane because that’s how I feel is my state of existence is just floating behind everything because I want to be able to see how things are constructed.
Everything we do in life, it’s all made up it’s all built upon all of these different made up notions of being. That’s the way society works . Ok so maybe I’m trying to drop some truth on you right now…

[TR in conversation with Bri M.:]
Drop it, drop it!

Bri M.

None of it is real.

[TR in conversation with Bri M.:]
Explain that

Bri M.

For example, the idea that you as a person, body hair is something that’s really interesting about society and how things are made up because like say you have short hair. I’ve been mistaken for men in the past because my hair is short. You know it’s like why do we assign short hair to maleness and why do we assign longer hair to femaleness because it’s just hair. At the end of the day … laughs…
Other societies don’t function in that way. That’s what I mean when I say it’s all made up right. We create these systems that are now enacting violence and oppression us. One thing I want to do with the podcast is highlight that. Highlight the fact that we are in a serious time right now. We are in some serious dire straits and things need to change and part of that change is putting yourself out there and saying hey no you’re not going to silence me I know that these systems are here to silence me and to put me into institutions of oppression and I just want to make it more known for people understand and come away with the idea that yo things can change and I can do something to change this just by rearranging my actions and rearranging my thoughts around what disability looks like and what it means or feels like.

[TR in conversation with Bri M.:]
No doubt, droppin’ it! I already know what the title of this episode is because it’s hot… “Floating Above the Lanes with Bry! That’s so hot! Laughs…

Bri M.

Laughs… Yes! I love it!

TR:

Floating, but not aimlessly.

Power Not Pity is about representation.

Bri M.
The ways we move in society , the ways we adapt to things like the different ways we connect to each other that we try to cultivate access with each other is revolutionary because society tells us that no it’s about you. You have to be the one to pull yourself up by your boot straps . It’s all about the individual and the ways that the individual can overcome their hardship…and rise up as assimilated person in society. When it’s really not that way. Realistically no one can live that way . I think disabled people of color know that we don’t do it alone we move together. We are all valid.

[TR in conversation with Bri M.:]

What do you like to do when you’re not fighting ableism?

Bri M.

Oh my gosh! When am I not fighting ableism?

Honestly, part of the editing process is sometimes how I unwind actually. That helps me feel less stressed to. When I get into that mode , that editing mode . I don’t know if that makes me like a really big podcasting nerd?

[TR in conversation with Bri M.:]
Oh absolutely!

TR:

And podcast nerds is where it’s at baby!

Big shout out to Bri M!

And I know what you’re asking yourself right now…

Where can we find Power Not Pity…

[TR in conversation with Bri M.:]
And where can we find Bri M?

Bri M.
Laughing…

Ok, well you can find Power Not Pity everywhere you find social media. I’m on Facebook at Power Not Pity, I’m on Twitter and Instagram @PowerNotPity.

You can go to my website PowerNotPity.com. All the episodes are there, the transcripts are there. I’m on Linked In if you want to look me up professionally.

[TR in conversation with Bri M.:]
Thank you so much Bri, that was really really dope!

Bri M.

You’re welcome. Thank you Thomas this was great!

[TR in conversation with Bri M.:]
Cool I appreciate it!

Audio: Uptown

# Close

TR:

I hope you too appreciate this conversation.

how you lived your life prior to disability will impact how you live your life after disability. If you were motivated and driven, open to new experiences then chances are you’ll continue that way. If you were closed minded and stuck in your ways well you’ll probably be the same way with a disability.

Becoming disabled as an adult can impact a person’s career path. It doesn’t have to. But it’s also an opportunity to take reassess and make use of other skills and interests.

If you’re fortunate, the result could be at the least a new career and at most a mission.

Now, if you choose to accept, I have a mission for you.

Subscribe!
Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio or wherever you get podcasts.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

TR:

And in case I forgot to mention where I’m from…

Uptown baby, for the crown baby, we get down baby!

Audio: Reid My Mind Radio Outro

Peace!

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