Archive for the ‘Advocacy’ Category

Let’s Stop Sleeping On Sleep

Wednesday, July 3rd, 2019

In this episode, I’m considering how we look at sleep and the impact that the lack of it can have on the adjustment process.

TReid sleeping on a large rock during a bright sunny day while in the background the Niagara Falls flows.

Courtesy of Raven Reid

I share some of my own experience with Non 24 Hour Sleep Wake Disorder and how that can impact the adjustment process and subsequently a person’s independence. Find out how The Dave Chappelle Show relates to all of this.

Just in time for an independence celebration!

Listen

Transcript

Show the transcript

TR:

What’s up Reid My Mind Radio Family?
It’s your brother T.Reid here bringing you another episode of the podcast. You know the one that brings you stories or profiles of compelling people impacted by blindness, low vision, disability.

Today’s episode is one of the occasional times when I share my own experience adjusting to blindness.

It’s one of those things I think many people who are blind deal with but for those of us who become blind as an adult, we really notice the difference. Well at least that’s my experience.

That’s up next!
Let’s go!

Audio: Reid My Mind Radio Theme

TR:

When we talk about the loss of access to things that impact a person’s quality of life following vision loss, transportation, information and career opportunities come to mind.

Here’s one we don’t often consider

Audio: “No Sleep” from “No Sleep til Brooklyn”, Beastie Boys

TR:

Sleep!

Audio: “Last Night, I didn’t Get to Sleep At All”, The Fifth Dimension

TR:

In 2004not too long after becoming Blind, I began having problems sleeping. Real problems. Not falling asleep but rather staying asleep at night. The consequence was I had problems staying awake during the day.

Usually late morning around 11 AM, my body would let me know it was preparing to go to sleep and there would be nothing I could do to stop it. I’d feel my temperature suddenly drop often to the point that I’d shake with chills. I’d struggle to make it to my bed where I’d often fall across rather than in.

It wasn’t just that I was too tired to get into the bed, but I didn’t plan to sleep for long.

Getting into the bed in the middle of the day well I thought that would make me be considered lazy and unproductive.

Prior to 2004 one of my motto’s was I’ll sleep when I’m dead!

Yeh, I was that guy!

Following years of my body being deprived of sleep, I honestly believed the lack of sleep would eventually kill me. I stopped going to sleep as often in the middle of the day. Not because I didn’t feel the need, nah, I had to stay awake when I returned to work.

Working from home, honestly, I could have rigged away to make sleep during the day possible. Occasionally I’d find myself waking up 20 – 30 minutes after putting my head down on my desk for what I thought was a few seconds.

This pattern continued for years.

Even though I was working from home, for me, my body’s need for sleep felt like laziness because I was uninformed.

Fortunately today we have a name for this; Non 24 Hour Sleep Wake Disorder or Non24 for short.

Basically… we all have a master body clock that gets reset every day by environmental light that’s detected by the eye and signals the brain There’s an access issue. For those who are totally Blind, the method to get the reset signal to the brain no longer exists.

Rather than getting into specific details of Non24, my purpose today is to share my experience specifically for those impacted. That’s the person who is now blind as well as their family members or those they live with who will inevitably be effected by the mood swings, the difficulty concentrating and the almost narcoleptic like sleep attacks.

I’m here for those who are constantly falling asleep during family get togethers, trips to the movies or even worse intimate conversations.

Someone who loses their sight for whatever reason, chances are they’re dealing with reduced independence, , possibly loss of a job and often even friends and loved ones who may no longer come around.

Audio: “Sweet Dreams” The Eurhythmics

TR:

I looked forward to sleep in the early days of my vision loss.

My dreams gave me access. I could freely walk without a cane or guide, easily finding people and things without a need for assistance and even regaining the anonymity I no longer seemed to have in public spaces during my time awake.

Sleep wasn’t about escaping my reality, rather it was a way to help process all of the things running through my mind. Waking up after a full night’s sleep is what helped me eventually realize I didn’t lose as much as I thought I did.

I’m no scientist, but I’d bet there’s a relationship between good sleep, hope, possibility and optimism.

I had several opportunities to talk with others about their experience with Non24. Those who were either congenitally Blind or Blind from a young age often just assumed their experience was the norm.

Several people who grew up attending schools for the Blind shared the experience of being chastise by teachers for falling asleep in class.

Others recalled how some of their most productive time growing up was during the night when they should have been asleep. These are probably some of the same people who today as adults feel their productivity is increased because they make good use of their time awake in the middle of the night while others are asleep.

I’ll never forget a young lady’s story of working at a call center where she would sometimes uncontrollably fall asleep only to have her supervisor whack her on the hand with a ruler or some object. She desperately wanted to keep her job, but her sleep cycle was off more than it was on during any given month.

It’s more than sleep!

Audio: “The lion Sleeps tonight”, Ladysmith Black Mombasa & The Mint Julips

I know people in my circle at times felt I had a bad attitude and probably attributed that to just me now being Blind and angry.

Yes, I was moody! I wasn’t getting the rest that my body desperately needed.

Blind people have been dealing with this for lifetimes.

I dealt with it for about 8 years and reached a point where I just knew I couldn’t take it anymore. I was literally losing time. Meaning I’d fall asleep and have no idea I fell asleep.

I wonder about that stereotype of the angry Blind guy. He just may be the sleepy Blind guy!

I’m not making any excuses for moodiness or bad behavior. We all have to be responsible, but for those going through it, Non 24 or any significant consistent sleep deprivation for any reason can feel like you no longer have any control.

Audio: Comedy Central Promo for Dave Chappelle Show

TR:
One night, I wanted to watch the Dave Chappelle show on Comedy Central. It was about 10:25 and the show aired at 10:30.

I sat on the edge of the bed in front of the television in a very awkward position. I knew if I laid in the bed and tried to wait for it I’d fall asleep with less than 5 minutes before the start of the show.

Audio: The Dave Chappelle Intro Music

TR:

Finally it was 10:29 and the Comedy Central voice over announced the show was up next.

Yes!

With only about 20 seconds left before the start of the show I thought, I made it.

There was no way I’d fall asleep during the show because I knew I’d be thoroughly entertained. As I sat in this awkward position I decided to stretch my back and quickly laid back on the bed during what I figured was the final commercial before the start of the show.

Audio: The Dave Chappelle Show begins in normal speed and is sped up.

TR:

I fell asleep in probably less than 20 seconds and remained knocked out for a half hour.
– Applause
– Dave Chappelle Show Closing…

TR:

The next thing I knew, I heard the closing of the show.

– No, No, No! TReid….

Audio: The Dave Chappelle Show closing harmonica!

TR:

Eventually, I’d come to find this story funny.

At the time though it really hurt because I realized I truly had no control over my sleep.

If it was just about missing a television show that wouldn’t bother me much but I was noticing small gaps in my memory. I was struggling to create and focus. The mood swings were impacting my family.

Finally, in 2012 I joined the Sleep Study that lead to the release of a drug to help those with Non24.

This episode isn’t about promoting the drug to help those with Non24.

However, my business manager says we are open to endorsement deals and a name and number can be inserted for future episodes if interested.

The business manager can be reached at reidmymindradio@gmail.com.

You may wonder what exactly prompted me to talk about this now. I you caught the timeline, I began experiencing Non24 in 2004 and said it was 8 years later when I reached that rock bottom.

Some changes in insurance this year and some good old fashioned bureaucracy left me without a way to manage my body’s Arcadian Rhythm.

I found myself once again experiencing some of the same problems. Yes, a bit of moodiness, drifting to sleep and some real brain fog that makes concentrating a real chore. I’m still finding my way out of that fog. Once again, I’m dreaming.

Audio: “Dream”, Pharaoh Monch

TR:

Finally,, let me wish all of you a very Happy Independence Day.

I’m not really talking about celebrating the Fourth of July and the signing of the Declaration of Independence. I’m talking about those who have experienced severe vision loss at any time. Those who experienced an acquired disability.

Those who find that they now have to do things differently, no matter whether that means using a form of technology, a technique or personal assistance.

I’m speaking to those who may have been born Blind or disabled and continue to assert their independence or work towards gaining more.

or came to a realization that their individual independence was reduced and decided to do something to gain or regain as much as possible.

Independence is defined by the individual. I can’t tell someone what should make them an independent person.

Whatever it is, sleep deprivation can negatively impact any activity and therefore can reduce a person’s independence.

If you find yourself dealing with this, I guess I just want you to know you are not alone. I know I felt that way at 1, 2 or 3 AM sitting up while it felt as though the rest of the world was asleep.

I’m not telling you what to do. Some people find over the counter remedies like Melatonin help them. Others alter their lifestyle and say it works for them. I have what works for me and I just hope you too can find something to work for you.

Again, I’m not recommending anything, but I am open to having a conversation that would include my specific recommendation or at least me sharing the name of what works for me. At least this is what my business manager recommends.

If you deal with Non24 or some other sleep disorder and have a specific method that works for you I’d love to hear about it. Let me tell you how to contact me… but before that a brief reminder there’s only one way to make sure you don’t miss an episode…

**

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I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

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Floating Above the Lane with Prince Bri M of Power Not Pity

Wednesday, June 19th, 2019

Prince Bri M. A Black, disabled, nonbinary alien prince looks somberly at the camera. Ze is wearing a purple jacket and a cheetah print shirt along with a multicolored choker. Ze is also wearing bright purple lipstick and round earrings.
Prince Bri M is the producer and host of Power Not Pity. A podcast that
aims to amplify the lived experiences and perspectives of disabled people of color everywhere.

We talk about Bri’s experience;

  • Being Black, non-binary and disabled.,
  • Accessibility & Disability Justice
  • Getting started in podcasting

PlusBri hails from the Bronx, so you know this episode is set between some BX Love on the intro and outro!

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Transcript

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TR:

Audio: South Bronx, Boogie Down productions

Yo, what’s up Reid My Mind Radio? I’m your host and producer, T. Reid bringing you another episode of what I hope is your favorite podcast. I don’t know if that’s really the case but I’m going to say if you’re a person adjusting to Blindness, adjusting to Low Vision or disability in general this is definitely a podcast with you in mind.

If you’re new hear welcome! Just about every two weeks or so we bring you a profile of a compelling person impacted by disability most often blindness or low vision. Sometimes I bring you a story from my own experience as someone becoming blind as an adult.

Chances are if you’re new here, you’re like wow, this doesn’t sound like we’re about to talk about disability. Well, that’s how we do it here.
Disability doesn’t look one way. It doesn’t act one way. It definitely doesn’t sound one way.
In every episode, we hope to challenge your beliefs around blindness and disability. even if you think you are already quite familiar. Today’s episode is no different.

By the way, you’re listening to a track by Boogie Down Productions called South Bronx! A personal favorite of mine and in my opinion the official unofficial anthem of the borough.

Since we’re all about challenging beliefs…
I can’t tell you how many times throughout my life when I proudly declare my birthplace only to have people either look at me just a little differently or outright say something offensive or judgmental. Showing their familiarity with the borough is probably based on the images of the 1970’s. The burning buildings and the poverty and crime. They don’t see the beauty in the diversity, the culture and the people.

Today, my guest also hails from the BX so it just seemed appropriate. Truth is I’ll take advantage of any opportunity to include Boogie Down Productions in the podcast and let you know where we come from…

Audio: “South Bronx…” from Boogie Down Productions

TR:

BX, let’s go

Audio: Reid My Mind Radio Theme

Bri M.

“I want to float above the lane. That’s my state of existence.”

TR:

Meet my guest, Bri M.

Bri M.

I’m a podcaster and I like to be an agitator because I like to interject disability justice in the conversations I have . I’m politically minded about what it means to be a disabled person of color in America today. My podcast is called Power not Pity and it’s about the lives of disabled people of color. I try to preserve and amplify the voices and lived experiences of disabled people of color through the show. We talk about our experiences. We talk about what we’re going through and how we can dismantle ableism with every episode.

## TR

Managing all production aspects of the podcast including interviewing and editing, Bri is also host. That’s the Bronx spirit yawl… it’s how we do!

I’ll try to go easy on the Bronx love but the truth is I try to find that common thread between me and all of my guests. It just so happens Bri and I share several experiences. But it’s the differences which makes the conversation even better.

Beginning our interview, I wanted to be fully sure about all aspects of Bri’s identity as noted in the following bio:

Bio:
Bri M is a Black, Jamaican-American,
queer, non-binary, disabled alien-prince from The Bronx.
Ze’s pronouns are ze/zir.

[TR in conversation with Bri M.:]

…So what does all that mean?

Bri M.
What does all that mean?

[TR in conversation with Bri M.:]
I know the Jamaican American part (laughs…)

Bri M.

I think all of the other things I say they all intersect into creating the person that I am.

I think what I wanted to express by saying all of the different parts of me is to really display that disabled people are a myriad of things. Especially when we’re racialized in society as Black people as Black disabled people. We face such hardship that white disabled people don’t even understand.

I want to name who I am because I think representation matters.

So I say that I’m a non binary person to because if we don’t go out there and speak about who we are we won’t be known as human beings. I put myself out there as non binary because I want to combat the idea that non binary people are usually seen as white you know the typical image. When you go into a Google image search for something and you search for non-binary what you’ll get in images is usually white people. I want people to make sure that people know that black non-binary people exist. Black disabled non binary people exist.

[TR in conversation with Bri M.:]

No doubt.

Audio: Free Your Mind & Good Thoughts Bad Thoughts by Parliament Funkadelic

[TR in conversation with Bri M.:]
What’s the Alien Prince because when I hear that I’m like ok is this Alien Prince on some George Clinton …

Bri M.

Yes, yes definitely. I’m very influenced by that. I really do think that as a Black person in society today like this apocalyptic society that we’re living in I really do feel like I’m not from here. I’m not from where we are on this plane of existence. I really do think that Black people are not from here. I’m really on that Sun Ra tip like space is a place you know.

Because I identify as an Alien Prince I want people to know that I’m a part from mainstream society because I can see… I live on the margins of society right, as all of the things I named who I am so I can see how society works because I’m on the outside of it. I want to name that. By saying that I am Alien, I’m strange, I’m Black and apart from mainstream society because that’s just how we have been oppressed and forced into being so I want to highlight that and I also say that I’m a Prince because I think I deserve to be seen as royal and I deserve to be… to accept the part of who I am that wants to be valued.

Because I’m an only child , growing up I was always called a Princess and I used to hate it, I hated it I wanted to be known as a Prince instead because that felt way more true to my identity as a non-binary person. A young binary person and I really didn’t understand what it meant to question my gender identity but as I’m coming into my understanding of who I am especially as a disabled non-binary person I realize that you know I got to celebrate the parts of who I am and celebrating the parts of who I am that means naming myself as a Prince.
[TR in conversation with Bri M.:]
Ok, I like it! It’s all about being your authentic self. When you have that that’s like a sense of freedom. And when you can show it and just hold your head up nobody can take that down so shout out to you for that!

Bri M.

Thank you, thank you Thomas.

[TR in conversation with Bri M.:]
I’m going to blame it on my screen reader so you correct me… the pronouns… Ze Zer Z …

Bri M.
Ok, so let’s break it down

[TR in conversation with Bri M.:]
Yeh!

Bri M.

So you know she, her, hers, herself right? What I want to do with my pronouns is to say Ze as in she. zer (pronounced zear) as in her, zers (pronounced zears) as in hers and zerself (pronounced zearself) as in herself.

So when people see me they automatically assume that I am a woman because I present in some ways as a woman just for safety reasons.
[TR in conversation with Bri M.:]
Mm!

Bri M.

In my chosen family people refer to me as Ze Zer because they know those are my pronouns. Those are really important to me because again they highlight the fact that I want to be set apart from society because you know I want to reclaim the fact that I live on the margins. Being known as Ze Zer is also part of feeling like the Alien Prince that I am

TR:

Bri’s identities intersect with so many marginalized groups. And then 5 years ago ze added disability to the mix.

Bri M.

I have Multiple Sclerosis. I wake up in the morning and never know what might happen to my body or how much pain I might be in . I walk with a cane so I’m visibly physically disabled. So my relationship to disability is that it’s very much in the forefront of my mind all of the time . I’m constantly having to engage with unsafe spaces because I don’t feel like I can move in the same way other people can but at the same time coming into my own understanding of disability justice has been really freeing because I’ve come into a whole new community of really accepting wonderful brilliant people. Brilliant disabled people of color, brilliant white disabled people and it just feels really good to know that I’m not alone and that at the same time people consider me to be unique and vital to the different conversations that we’re having around access and around what it means to be an ally.

[TR in conversation with Bri M.:]

What were you doing before you were diagnosed with MS?

Bri M.

Oh wow!

Well I was actually working in the music industry and I don’t know if you know anything about like working in that industry but it’s very much like very able bodies. you have to be on like 110 percent all the time. You have to be there you have to show up you have to make connections with people and often times these were connections I was making with white straight Cisgendered people who didn’t understand who I was as like a Black non-binary person and it was hard but I loved doing the work that I was doing. I remember I was doing grunt work for this one venue called the Music Hall of Williamsburg – it’s pretty famous . It’s been a while for a long time. I was one of those people who would shop for a band and set up the green room and you know if you know anything about that it’s very active work. I was also facilitating a lot of workshops around social justice and racial justice.

[TR in conversation with Bri M.:]
Ok, so you were already there doing the justice work That was already a part of who you were.

Bri M.

Yeh! I did quite a bit of that in college. I did a lot of radio. At one point I had three radio shows in college. It was really good for me. Getting through college was really difficult.

[TR in conversation with Bri M.:]

What college and tell me about the radio show?

Bri M.

I actually went to three colleges …

[TR in conversation with Bri M.:]
Same here

Bri M.

I started at Colgate University…and then I transferred because it was so hard to be a Black Queer person up there.. so difficult. People were like actually throwing slurs at me when I would walk around on campus. Honestly the stress of it all of being there… I remember feeling these weird symptoms on the left side of my face like a permanent tick on the left side of my face I remember feeling that and looking back on it now I think that’s when my symptoms of MS started.

[TR in conversation with Bri M.:]
Wow!

Bri M.

Then I transferred to the University of San Francisco. I did a lot of thesis work there because there’s a big body modification movement out there. And then it got to be way too expensive Thomas, so I came back to New York and finished my degree in Sociology at the City College of New York. City! What, what!

[TR in conversation with Bri M.:]

I’m Baruch… throw it up!

You did a radio show where…at all three?

Bri M.

All three but mostly at Colgate.

it was pretty much straight music. I was a bigger metal head when I was in like in my 20’s but I’m still very much a metal head now.

There was one show that I did that was “World Music” I don’t know what that means but a lot of Reggae and another one I did with Metal pretty much all Metal music, Hard rock. My third one was a mash up of Hip Hop, Pop and R&B.

It’s just funny, I’m thinking back on all of the things I’ve done so far before I became disabled and decided to do this podcast , it’s funny how they all link together.

[TR in conversation with Bri M.:]
Exactly.

Bri M.

I was already doing radio, I was already interviewing people like yo it just makes sense!

TR:

Looking back allows us to view our experiences as preparation. Individual events that are in no way related come together to make something new.

In Bri’s case, the result is Power Not Pity.

Bri M.

I’d say for like a year in a half I was pretty much bed bound and didn’t leave my apartment very much . Listening to a lot of podcasts. Listening to these voices of white Cis hetero people who just weren’t on my wave length.

I decided I don’t see anything for disabled people of color out here . We exist and we’re fully human beings and we deserve to be heard and seen as human, full unique genuine authentic human beings and I didn’t see that so I was like yo I’m going to make it.

TR:

Bri started by taking a course at BRIC or what was originally an acronym for Brooklyn Information & Culture. In addition to presenting free cultural programming they present and incubate work by artists
and media-makers who reflect the diversity that is Brooklyn New York.

Audio: Where Brooklyn At, Notorious B.I.G

Bri M.

They advocate for doing media studies for the people.

I took an intro to podcasting course there and then from there I just started to edit episodes , started to interview people. I just tried to immerse myself in podcasting and the podcasting world and disability justice that world too. Trying to put the world together along with all of my other identities. I started there and something that really validated me was actually being a part of this cohort that I just finished, this certificate program from Made in New York Media Center. They’re out of the Mayor’s Office of Media and entertainment. So whenever you see a film that’s been made in New York it’s got a little Made in NEw York patch attached to it and whenever you see media that’s been created in New York the Mayor[‘s Office on Media and Entertainment usually is behind that as well.

So this podcast certificate program was like a really big deal for me. When I got accepted I was just so happy about it because I felt like I’m on a different level now and I feel so much more confident in my skills as an editor and as a producer and I just want to keep going.

TR:

That movement is essential.

Like any creative project, it’s going to continue to change over time. In addition to the college radio and interviewing experience, Bri is in some ways ahead of the game.

Not only does Bri have a natural cool relaxed voice that kind of draws you in and makes you comfortable, but there’s also a good understanding of the target audience.

Bri M.

I’m talking to all those people who feel like they have never been seen in mass media in major society. I’m talking to all of those disabled people of color specifically for us by us. I want you to know that I’m here and I’m saying that I see you and that I want your voice to be heard and uplifted because it matters

In highlighting our voice and me saying that I want to uplift disabled people of color it’s like something that doesn’t happen often enough. That’s my audience.

# Compare

TR:

Disability impacts every aspects of society. Some experiences are common across different demographics.

[TR in conversation with Bri M.:]

I know a lot of my audience are basically people experiencing Blindness and vision loss to whatever degree , but I think there are so many similarities …

What are some of the access issues that you experience on a daily?

Bri M.
Mm, mm… Well living in New York City, it’s the most inaccessible city, I think.

[TR in conversation with Bri M.:]

See that’s so funny… that’s from your perspective, but from other people’s perspective it’s like New York is accessible. It always bugs me out…

Bri M.

What? … Are those Able bodies people saying that?

[TR in conversation with Bri M.:]
If a person is Blind or visually impaired, having that access in a city compared to where I live… I live in the Poconos so I don’t have access to jack! There’s nothing ok! But in the city you know if you don’t have an issue where you need to climb steps , then it’s not going to be a thing for you but most of the train stations aren’t wheel chair accessible or they only have steps It’s such an incredible difference how within the same community people view that differently.

tell me about it from your perspective.

Bri M.

Everybody has different access needs… for me personally the things that are difficult for me have to do with my physical needs right. I don’t want to say I’m the access notes police because I am not trying to align myself with the police but I’m constantly finding myself as a person to say ok where are the access notes where is the information about the accessibility of the building at so and so event.

[TR in conversation with Bri M.:]
What about in terms of interacting with society, because your disability is visual right, meaning people can see that you have a disability you are disabled. That is similar to blindness because they recognize that off the jump. How do people respond to you.

Bri M.

I live in Brooklyn and everybody’s like super rushing around really fast and so they look at me , they perceive me as a young person but they don’t look down and see that I’m using a cane. They just gloss over me and so a lot of people don’t even realize that I use a cane until I’m in their immediate space and so I think I throw a lot of people off just by being . There’s a saying out there in the disability justice world to exist is to resist. I really do feel like when I’m in able bodied spaces like yo I’m the only black physically disabled Queer person non binary person there. I know I already stick out like a sore thumb but the cane makes me stick out even more and people … because I walk slowly to people just pass me by and treat me like an obstacle.

I’m a person too and I’m valid.

I really truly believe that if we had disability justice in our high schools and our middle schools things would be so different. This world would be so much less ablest. This world would be a more just place because people would know like you don’t pass someone with a cane .. don’t pass them on the right side, their cane hand side because that destabilizes them. That’s just a little thing that people don’t even realize you know. The way I move is different from you but that doesn’t necessarily mean it’s wrong or it’s bad.

[TR in conversation with Bri M.:]
What about the actual face to face conversation interaction? Are there any differences there?

Bri M.

Well yeh I’ve definitely noticed differences over time. People will say oh well you look good now maybe you don’t need to use that cane anymore. How long are you going to use that cane for… I have people who I live with in my building , my neighbors , you know I say hello because we’re all out here living and struggling to survive so I say hello because I want to say yo I see you and I want you to know I’m your neighbor too but my neighbors will be hella rude and say like yo when are you going to stop using that cane? I get a lot of that and I think it’s because I’m young, I’m about to turn 30 and disabled and people expect me to be on all the time when that’s just not my lif eThomas.For half the time I’m out here living I’m in bed. I’m working from bed so a lot of the conversations I have are just not nuanced. Their very ignorant and I constantly feel like I have to educate people which is so tiring, but I do it anyway because I think it matters so much to me. I want people to know that there are other ways of viewing disabled people of color. There are other ways to regard us besides thinking that we’re something to be pitied. That’s why I name the show Power not Pity.

TR:

While people from different walks of life and different disabilities have common experiences; others can be quite unique.

Bri M.

I decided to create this thing because I wanted d to find more community around me because that’s so desperately what I wanted so

I made the show Power not Pity and decided to focus on disabled people of color because we are the ones who are most marginalized. We deserve to be seen first and heard first because we are the ones who are brutalized by the police. Half of all cases of police brutality are enacted on black disabled people.
Audio: Multiple news clips about police brutality cases against Black people with disabilities. ends with the actual recording of police realizing a driver was Deaf after they pulled him out of the car…

Bri M.

It’s not a game. It’s not something to just be swept under the table. We need to talk about this, get conversations going around why black disabled people are dying out here and nobody’s talking about it.

TR:

Well Power Not Pity is now a space for such conversations and more.

Bri M.

I love storytelling. I love listening to stories. From a very early age I was a book worm. I always enjoy the art of getting to know someone through an interview and I think one thing that I really do love about podcasting is it still feels very much like DIY. A lot of people say that right now is the wild , wild west of media and content creation because there’s a lot of possibility in podcasting.

I think people are starting to realize that there are voices out there that are underrepresented that need to be heard, that need to be expressed fully because podcasting is so homogenous, so white so Cisgendered , so hetero and so male oriented. I counter act that just by being there. I counteract the idea that podcasting is only this one way. Podcasting is a myriad of things. If you have a mic and you have the desire then you got it you can go. It’s one of the more accessible ways of reaching people and connecting on a deeper level.

[TR in conversation with Bri M.:]
I look at the podcast hing and anything, life is about finding your lane. Finding that lane where you fit in and kind of riding there and if you want to venture out go into another lane ok, you can do that but you always got somewhere to come back to where you got your people and all that . So what do you think is your podcast lane?

Bri M.

Mm my podcast lane! You know what being a non binary person I just feel like I don’t want to be in any lane . I want to float above the lane because that’s how I feel is my state of existence is just floating behind everything because I want to be able to see how things are constructed.
Everything we do in life, it’s all made up it’s all built upon all of these different made up notions of being. That’s the way society works . Ok so maybe I’m trying to drop some truth on you right now…

[TR in conversation with Bri M.:]
Drop it, drop it!

Bri M.

None of it is real.

[TR in conversation with Bri M.:]
Explain that

Bri M.

For example, the idea that you as a person, body hair is something that’s really interesting about society and how things are made up because like say you have short hair. I’ve been mistaken for men in the past because my hair is short. You know it’s like why do we assign short hair to maleness and why do we assign longer hair to femaleness because it’s just hair. At the end of the day … laughs…
Other societies don’t function in that way. That’s what I mean when I say it’s all made up right. We create these systems that are now enacting violence and oppression us. One thing I want to do with the podcast is highlight that. Highlight the fact that we are in a serious time right now. We are in some serious dire straits and things need to change and part of that change is putting yourself out there and saying hey no you’re not going to silence me I know that these systems are here to silence me and to put me into institutions of oppression and I just want to make it more known for people understand and come away with the idea that yo things can change and I can do something to change this just by rearranging my actions and rearranging my thoughts around what disability looks like and what it means or feels like.

[TR in conversation with Bri M.:]
No doubt, droppin’ it! I already know what the title of this episode is because it’s hot… “Floating Above the Lanes with Bry! That’s so hot! Laughs…

Bri M.

Laughs… Yes! I love it!

TR:

Floating, but not aimlessly.

Power Not Pity is about representation.

Bri M.
The ways we move in society , the ways we adapt to things like the different ways we connect to each other that we try to cultivate access with each other is revolutionary because society tells us that no it’s about you. You have to be the one to pull yourself up by your boot straps . It’s all about the individual and the ways that the individual can overcome their hardship…and rise up as assimilated person in society. When it’s really not that way. Realistically no one can live that way . I think disabled people of color know that we don’t do it alone we move together. We are all valid.

[TR in conversation with Bri M.:]

What do you like to do when you’re not fighting ableism?

Bri M.

Oh my gosh! When am I not fighting ableism?

Honestly, part of the editing process is sometimes how I unwind actually. That helps me feel less stressed to. When I get into that mode , that editing mode . I don’t know if that makes me like a really big podcasting nerd?

[TR in conversation with Bri M.:]
Oh absolutely!

TR:

And podcast nerds is where it’s at baby!

Big shout out to Bri M!

And I know what you’re asking yourself right now…

Where can we find Power Not Pity…

[TR in conversation with Bri M.:]
And where can we find Bri M?

Bri M.
Laughing…

Ok, well you can find Power Not Pity everywhere you find social media. I’m on Facebook at Power Not Pity, I’m on Twitter and Instagram @PowerNotPity.

You can go to my website PowerNotPity.com. All the episodes are there, the transcripts are there. I’m on Linked In if you want to look me up professionally.

[TR in conversation with Bri M.:]
Thank you so much Bri, that was really really dope!

Bri M.

You’re welcome. Thank you Thomas this was great!

[TR in conversation with Bri M.:]
Cool I appreciate it!

Audio: Uptown

# Close

TR:

I hope you too appreciate this conversation.

how you lived your life prior to disability will impact how you live your life after disability. If you were motivated and driven, open to new experiences then chances are you’ll continue that way. If you were closed minded and stuck in your ways well you’ll probably be the same way with a disability.

Becoming disabled as an adult can impact a person’s career path. It doesn’t have to. But it’s also an opportunity to take reassess and make use of other skills and interests.

If you’re fortunate, the result could be at the least a new career and at most a mission.

Now, if you choose to accept, I have a mission for you.

Subscribe!
Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio or wherever you get podcasts.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

TR:

And in case I forgot to mention where I’m from…

Uptown baby, for the crown baby, we get down baby!

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

E

Walking the Walk with Day Al-Mohamed

Wednesday, May 8th, 2019

Day Al-Mohamed and guide dog Gamma
Today is the right day to shine the spotlight on Day Al-mohamed. We’re focusing on her creative endeavors such as writing books, short stories, comic books and scripts. now she adds Film director and Producer to her list of credits. Hear how she began writing, learned to produce a documentary on the virtually unknown disabled Civil War soldiers known as the “Invalid Corps” and provided yours truly with some early inspiration in my adjustment to Blindness process.

Plus, she shares a story and piece of American and disability history that I guarantee you haven’t heard.

Listen

Resources

Transcript

Show the transcript

Audio: Radio turning through different FM stations.

TR:
Rise and shine beautiful people.

Audio: Lovely Day, Bill Withers

You’re listening to WRMM better known as Reid My Mind Radio. I’m your host T.Reid.

If you just stumbled across this station while turning the dial on your virtual radio, welcome!
This is the place where you’ll find stories and profiles of compelling people impacted by blindness and disability. When I’m in the mood or have something of interest to share about my own experience I’ll serve that up to you with a bit of my sofrito if you will. My combination of spices!

Today’s episode is long overdue and that’s my bad.

But, as it turns out, it’s just the right Day to tell you a story!

Let’s go!

Audio: Reid My Mind Radio Theme Music

Day:

“I’m a big advocate for doing whatever interests you because to be honest if you have a disability , disability is going to come into it whether you want it to or not.”

TR:

That’s Day Al Mohamed. She encompasses all of those things and more. An Advocate, someone pursuing her interests and a person with a disability.

Specifically on that last point, she’s a visually impaired guide dog user.

We’ll discuss her advocacy work of course, but there’s just something I find so cool about people pursuing their passion. for Day, that’s writing.

And just as she said, disability comes up!

Some of you may be familiar with Day from her time at the American Council of the Blind. But here’s something you may not know.

Day:

I think most people don’t realize even with a last name like Al-Mohamed they assume I’m American. I don’t have an accent when I speak English or anything like that. However, I was born and raised overseas in the Middle East in Bahrain. A small island just off the coast of Saudi Arabia. It’s like 15 miles across, it’s that small. I didn’t come to the US until I was 17.
[

It’s one of those things that people are like wow you’re actually a foreigner. Then I have to reveal the small cheat that my mother is American so … And then they go wow that must have been really rough for her because she’s an American and she went to this whole conservative like Middle Eastern country. And I’m like my mom was from Missouri so she went from conservative Mid West to conservative Mid-East. It was not that big of a change.

[TR in conversation with Day:]
Laughs… So did you go back to Missouri when you came back to the states?

Day:
I actually went to college there at the University of Missouri and stayed on there for law school as well. I think that’s kind of where I got my start with legislative issues and policy issues were actually there in the state.

TR:

Day was presented with An opportunity.

Following a discussion about sponsoring a bill around disability employment, a Missouri State Legislator decided:

Day:

“I should put my money where my mouth is, I should get a disabled intern. You know that’s what I should do just get a disabled intern.”

And so he just put out this call for a random disabled intern and I kind of randomly got it. When I showed up at his office he was like can you answer the phone can you talk to people. So he had no idea about the capacity of people with disabilities at all.

I think that’s kind of always stuck with me and I look for other people who kind of have that same walk the walk.

TR:

That sort of attitude can really pay off; for all involved.

Day:

And by the time I’m done he’s like “Hey I need you to write this up as an amendment for the floor Go, go, go

TR:

Ever since then, Day’s been moving.

Day:

you know when you get a job it kind of starts you down a path.
I ended up actually doing an internship at the US Senate in Ron Wyden’s office and so I ended up doing more policy work there.

Next I did law school and then I actually did some stuff with the Preparatory Commission for the International Criminal Court
before there ever was an ICC over at the Haig in Europe. They were trying to design an build it over at the UN up in New York and so I got a chance to spend a good part of summer there working with folks who were on the commission and it was amazing .

TR:

Then Day learned that the American Council of the Blind was looking for a Director of Advocacy and Legislative Affairs. This gabe her the chance to go to D.C and work on national policy.

Throughout her career, she’s worked on a wide range of topics.

Day:

social welfare, employment, technology, education.

I actually worked on Missouri’s conceal carry.

I kind of ended up falling into doing more disability but in general I’m a big advocate for doing whatever interests you because to be honest if you have a disability , disability is going to come into it whether you want it to or not.

I was with the American Psychological Association and for them I did do disability policy but I also did racial and ethnic minorities indigenous populations, some of there international development work. It was a nice mix in broad areas and I wanted to help them get started on creating an immigration portfolio because we were seeing a lot more activities in that rhelm and I think we had something to say.

[TR in conversation with Day:]
Do you have a special area that is very close to your heart?

Day:

It’s hard to say because I tend to fall in love with all sorts of different things. Which I guess in many ways means I’m a Lobbyist at heart. That word gets such a bad rap but honestly all it is is an advocate who gets paid.

You learn how Congress works and then you find people who are the experts or you find people with stories to tell and then basically you are connecting those pieces

TR:

Yes, the pieces are connecting! This advocate, is a storyteller.

[TR in conversation with Day:]

You can definiely talk that policy butI do want to get into the creative side.

I was looking on your website, DayAlMohamed.com, and you have a page that has different versions of your bio. What I thought was interesting was the policy stuff doesn’t come until the very end. The last two versions, the long version, but the other versions are really focused in on the creative endeavors, your writing. Am I reading into that too much? Is that your focus, do you really like to focus in that area?

Day:

I think part of it is (ahem!) I need to redo my website. Laughs!

[TR in conversation with Day:]
Laughs!

Day:

For anybody looking at DayAlMohamed.com I’m trying to get it to split. One is Day in Washinton which is where I cover all of my policy work and that’s where you’ll find some policy analysis and disability related stuff.
One of the things I’ve been doing , it’s almost 10 years now is writing fiction and in the last couple of years I’ve been doing more and more writing . I write fantasy and science fiction so we have books, short stories, a couple of comic book scripts, although it’s not fantasy and science fiction I recently put out a 30 minute film and I have 4 or 5 other short films as well. And so there’s been a lot more of the creative stuff.

It started out as something to do when I first came to Washington DC. My wife actually stayed back in Missouri to finish her degree and so if you’re away from your spouse for along period of time it gets kind of boring but it also gets kind of lonely so I signed up for a writing group. and started meeting with them.

I cannot laud enough the benefit of joining a group. You have other people who are striving for the same thing you’re doing. You have people who can kind of act as a sounding board for ideas, folks to critique. Having that kind of ability to have people to do that it only makes your writing better. I would say no good writing ever came out of a cave.

[TR in conversation with Day:]
So let me anticipate a question that someone would have when they hear that. Someone new adjusting to blindness would say well what about the fact that I’m blind and I’m assuming that wasn’t a blind writing group

Day:

It was not.

[TR in conversation with Day:]

How did that play. And you know, obviously this is something you’ve been doing for a long time but did that play into it in anyway?

Day:

Not as much as I thought it would. Really,..

[TR in conversation with Day:]
How did you think it would . And I’m sorry to cut you off but I want to get that…

Day:

No, no I think it’s a good one.

I think I worried that I wouldn’t be seen as a serious writer, which never happened. Or that they would question my capacity which also never happend. The group always made a point of meeting somehwere that was metro accessible. And we’re in the DC area so they were like well yeh not everybody drives and although at that time everybody else did drive they continued to make a point to only choose metro accessible areas. Even though I know that for a couple of metings it got very tough trying to find a location.

TR:

The benefits go beyond access.

Day:

There was one member who was a copy editing guru and oh my god the number of times she yelled at me about misplaced commas which you know with a screen reader is not necessarily the easiest thing to find when you put them in wrong and to go back and read to figure out where you got it. She was nice about it but she certainly still expected me to make sure I followed through on that .

That I had a strong story arc, character development. All the same kind of things. So realistically it end up with there not being any real difference blind or sighted.

[TR in conversation with Day:]
Nice, nice!

TR:

It was a nice experience for Day.

Unfortunately, she did mention how some people with disabilities reported negative experiences in other writing groups. That however, shouldn’t deter you.

Day:

I would encourage anybody, if you want to write go find a group and do it. Make a point of talking to other people about their ideas or ask them about their ideas. You can also find out about how other people have built things.

Find a group that meets regularly and a lot of things are like anything else they tel you. What you put into it is what you get out of it.

TR:

Ocasionally you may find the support going beyond notes on character development or punctuation. Llike the time day was feeling less than confident about her work.

Day:

“Oh my God I’m the biggest hack on the planet. I never want to write another word again.”
And she’s like we’re going to go out and drink some wine.

[TR in conversation with Day:]
That’s cool. That’s a nice supportive group.

I think for folks who are adjusting and new to it, it’s refreshing in a sense to know that it’s ok to have that doubt in the beginning. So you still were concerned about it but you went through with it. That’s a really important thing I think for people to grasp.

Day:

I think even if it’s a recent loss and it’s kind of tough and you’re struggling it’s a good excuse to get out . It’s a good excuse to start thinking of things you can do. What does it requirewell one is reading books so you can get an idea of what is out there and the second is trying to put your own thoughts down and whether that is personal journaling that you share with no one. Essays about your own transition or putting together fiction it’s all that same process.

I find it therapeutic but at the same time I look at it more professionally.

The more you do it the more you start finding other people like you.

TR:

Specifically other people like author of The Duff, Kody Keplinger, who’s book was made into a movie. She by the way is Blind.

Day:

Recently I had an essay that was published with one of the big Science Fiction magazines and the editor is Deaf Blind. I was like hey there’s more of us out there than you know once you start looking

TR:

Yet, it’s still a pretty big challenge to find us in the pages of books, screen plays and scripts.

Day:

I think one of the reasons I like science fiction is because it tends to be more future looking. A lot of it is very political. Things people don’t want to deal with today they’ll look at in Science Fiction.

One of the biggest problems with science fiction in general though is it
does not usually portray disability. If it does it portrays it very poorly. So basically, we don’t exist in the future. I have a huge pet peeve with that.

TR:

What would you expect then from a self described Lobbyist at heart – who uses stories to help advocate for those things that she’s passionate about.

Day:

So part of me is like I want to write it. You know we’re there. Not everything gets cured. That’s not how it works, that’s not how people work.

[TR in conversation with Day:]

Talk to me about any Sci-Fi films or books that reflect a positive image of disability. Are there any?

Day:

Ooh

There’s one book it’s actually book 2 in a series.

I think the first book is called The Hundred Thousand Kingdoms. The second book is called The Broken Kingdom. It’s by N.K. Jemisin. The protagonist is actually blind.

It’s a fantasy setting. Most of the time when you think fantasy people think like Game of Thrones. They think swords and wizards, it’s very Eurocentric

what Jemesen did is she does this in a lot of her things
she actually builds fantasy that is not. Culturally a lot of it is more African than anything else. And I love that. I love it. I’m seeing parts of the world reflected and cultures you don’t normally see reflected, that you don’t normally think of as fantasy.

I think this last year Jemesen won the Hugo Award think about it as Science Fiction’s Oscars. She won it for the third year in a row. Nobody has ever won it three times.

TR:

Day’s love of writing goes beyond genre and form.

Day:

When I started writing I actually didn’t want to write novels I wanted to do film scripts. It requires a team so I wasn’t sure I could do that as a Blind person so I kind of slid in to doing the novels and the other writing.

I had built up enough cache that I felt secure in my writing and so I actually went to a couple of local film groups. DC Film Makers and I also visited Womens Film and Video. They meet every month and they do … we’re gonna doa movie. Who wants to do different roles. It was a chance to try and experiment a little bit.

I originally came out going I’m just going to be the writer. Guess what I can do writing, no big deal. So I started meeting some other folks doing that.

[TR in conversation with Day:]
Ok, so now, when you started that you said something so I think it revealed a little bit more…

(laughs)

Day:

Laughs…

]

[TR in conversation with Day:]
I’m peeling back some stuff here.

Day:

Here wwe go!

[TR in conversation with Day:]

You said that originally the intention there was to go for film.

Day:

Yes.

[TR in conversation with Day:]

Ok, so when you were younger was that the thing you kind of wanted to do?

Day:

As a kid, nah, I think it was still novels that were my thing. But when I first started writing in DC and I found that writing group the first stuff I submitted to them were scripts.

[TR in conversation with Day:]

Ok, I gotcha!

So when did the interest in film come into play?

Day:

I don’t know! I may have to think about that because I don’t know!

[TR in conversation with Day:]

And probably the reason that I’m asking, well number one, I’m interested.

I’m in this process now of kind of going back into events from my past sort of thing right, and then seeing where these interestsstarted and its just been interesting to me. So i ask everybody right now (laughing) I’m like do you know where your thing started from. (Fading out)

(Fading in) It’s a really cool thing because it’s like oh wait, I’m supposed to be doing this because I’ve always been interested in it. And that’s what that process kind of unveiled for me. I think it’s probably the same for a lot of people. I’m just letting you know, there’s something there. Which is great. Which means you’re doing what you’re supposed to be doing.

Day:

I tend to like a lot of the writing so film, I like the short stories I really like doing the novella length work and I had a good time working on the two comics that I did. It was a lot of fun.

[TR in conversation with Day:]

Visual, it’s comics, but you wrote it.

[
Day:

I wrote it. I was partnered with some really good artists and the nice thing is generally in comics the decisions of what the art images are supposed to be is usually left to the artist.

TR:
Quick recap.

Day decided to pursue her interest; writing. Ultimately she was interested in writing for film, but she was uncertain how she could go about that being Blind.

Then she found her “in”. It’s specific to her, but the idea is universal.

She found a bridge or a means of getting her to her destination. In this case, writing films.

There can be multiple ways to create such a bridge. Sometimes it’s having someone close to you to share in the experience.

Day:

As the fun couple thing, my wife and I usually take turns a couple of times a year. We pick out something we want to do. She picked ballroom dancing one fall so a few years ago I said I want to do a film class and I want you to do it with me because I don’t think I can do it. There’s that as a Blind person I don’t know how it would work. I’m totally secure in writing one and I’ve been meeting with these other film groups so I have an idea how it works but I don’t know if I can actually do it. Getting cameras and all these other thingngs working well , so she said sure.

We signed up for a film classwith Adel Schmidt, who’s with Docs in progress – which is a documentary organization in Silver Springs. I’m just going to call her out by name because she was awesome. She’s like yeh, I’m not sure if you can either but let’s just go with it and see if we can figure it out.

[TR in conversation with Day:]
Nice!

Day:

She says you always start with the story.

It was like a 6 to 8 week class. You should have a one or two minute either short film or clip or trailer.

So you write out the narrative about what you want to say. You need to make sure it has a good narrative arc , it has rising tension and a climax. All the things you want in good writing. Then you record the whole thing.

Audibly reading the script. That helps give you the timing.

Then figuring out what images you want to slotin at what time.

So I know at 1 minute and 10 seconds where I say this I probably want an image of this. And being able to kind of almost wriggle this grid of what the film would look like.

And then you can go to either finding a way to record the film or finding images that already match that.

[TR in conversation with Day:]
So is that storyboarding?

Day:

Right, I guess you could say it kind of was storyboarding out the whole thing.

We figured out that would be a way that I could control what was happening when making the film. It’s not somebody else making it and then me going here are the images that I think and then if we did or didn’t get those what would be the next alternative. Let me see if that works Maybe I need to change the language and then slot in the images. We talked about would there be good transitions and how to do those. I’ll admit the transitions I had to rely on somebody else to figure out whether it looked really great or not. And then adding a layer of sound effects and then a layer of music on top of that. When I got done that’s what the trailer to The Invalid Corps is. And I used that for my Kickstarter video to fund making the 30 minute documentary.

At least now I know I have a way to make videos that this will work where I can say I control it. It’s mine because there was always that little bit of doubt that if I did it with somebody else oh yeh the the person who is sighted really made the film. With this one there was no question who made it.

Audio: Civil War Marching Drums…

TR:

The Civil War, is the setting for The story of the Invalid Corps.

Day:

My wife is the Archivist at the University of Maryland , University College she does all sorts of historical research and she often heard about them because there was this song and it ended up being real popular in the 1880’s but it really made fun of them. I’m like what is this Invalid Corps. So I started playing around on the internet and finding out more and a little bit more and then I’m like wait a minute, there’s a lot more to this.

Audio: The Invalid Corps (Song)

Day:

We hhear about how many amputations there were and how many injuries and how many deaths, but nobody ever stopped to ask what happened to those guys after they were injured or after they lost a limb.

TR:

Low on man power, rather than discharging injured soldiers, an all disabled regiment was created.

They did things like;

guard supply stations, trains and other property
Work in hospitals and prisons

Day:

They created 24 separate regiments.

[TR in conversation with Day:]
Confederate?

Day:

Union.

[TR in conversation with Day:]
Ok, good! Laughs.

Day:

They did a lot more than people give them credit
for.

It’s a pretty awesome story.

Audio: Snare drum: colonial marching…
So the year is 1684. The war has been going on for three years now. General Grant’s making his final push through Petersberg and on to Richmond to take them down at the end.

He pulls every soldier, every able bodied soldier out of the North and basically their all marching on to Richmond.

So he’s putting a lot of pressure on Robert E Lee. They can’t get out they can’t get supplies. In this kind of desperate attempt to break that siege Robert E Lee sends General Jubal Early, this Confederate General, he sends him North…”Cause as much trouble as you can”

Here’s the issue, because Grant had pulled everybody out there wasn’t really anybody to stop Early . So Early heads North through Virginia and rather than crossing at Harpers Fall he goes up and around through Maryland and then he comes down South towards DC — think of a reverse question mark.

Because there’s nobody there to stop him, he makes it all the way to Fort Stevens which is about 4 miles North of the Capital.

There’s nobody there except some clerks, some government officials, and this Invalid Corps.

You got these Invalid soldiers on the wallsof Fort Stevens and in front of the fort basically having to hold out against like 15,000 Confederate soldiers.

Until Grant suddenly realizes “Oh my God we’re about to lose the Capital! puts the entire Civs Corps on boats and sends them up river going as fast as they can to get to Washington before Early does.

These guys hold out for 24 hours until reinforcements arrive.

The thing is Abraham Lincoln was on the Ramparts of the Fort that day and they even took pot shots at him. They ended up shooting a soldier who was a few feet away from him. They could have taken down the Union or at least taken out the Presidency.

[TR in conversation with ES:]
Wow! That’s an awesome story!

Day:

I know!

History that’s kind of gotten lost and there’s some amazing things. One of the soldiers, he was assigned to the Provost Marshall’s Office, so people knew of him as a Provost Marshall soldier but He’d actually had a disability and was with the Invalid Corps and they just decided to put him there. He was one of the guys doing the detective work to figure out who assassinated Lincoln. So he helped with the hunt for John Wilkes Booth. So he’s like I know where he is. He was doing the tracking, but he was called back to Washington so if was a different unit that got the prestige of saying they caught him. Well, basically he died!

The soldiers who were supposed to guard the conspirators, all of them were Invalid Corps.

The only soldiers who were allowed to carry Lincoln’s caufinalso was that unit.

[TR in conversation with Day:]

Wow!

Day:

I know!

This piece of history, basically disability history that nobody has really researched or talked about.

TR:

A significant amount of research time went into creating this documentary. It’s not as though there are books available on the topic.

According to Day, there are a couple of people currently working on writing them now.

In the meantime, the documentary is done and ready for the festival circuit.

Day:

I want to give it a year where I’m sending to festivals and trying to look for places to screen it and after that I’ll look at finding ways that people purchase it.

It has both captioning and audio description.

The film was crowd funded Shout out to all of the amazing people who helped fund that.

As a part of supporting disability creativity sort of thing, I think there are maybe one or 2 exceptions and this is out of a couple of dozen.

Every single person who has worked on that film either has a disability or is a veteran.

It’s not like I asked flat out going do you have a disability because the 2 I don’t know about I didn’t really ask.

I wanted to make that a part of the way the film was made.

TR:

I get the sense that “walking that walk” and pursuing one’s intrests, aren’t just personal practices for Day. It appears to be a message she spreads.

I want a talk about your bucket list.

Number 1 that is so cool and scary at the same time. I said Oh my gosh. I don’t know if I would want to put out my bucket list because it kind of keeps you accountable because people are going to be watching it.

Day:

Right!

[TR in conversation with Day:]
Which is a great idea. And then I saw that you challenge people to put their own bucket list . I started reading that and I was like awh damn!

Day:
It’s accountability but it also gives a picture of who you are to other people and it encourages other people to go yeh, what do I want and where do I want to go.

You’re doing this thinking where you going back and looking where you started. I think a natural out growth of that is a bucket list looking forward.

[TR in conversation with Day:]

I never really considered doing one. I never really did, that’s something I’m going to take away and start thinking about.

Two things from your bucket list I found kind of interesting.

How are you doing with the guitar? You have an electric and an acoustic now?

Day:
Yeah, I do. I still only know like 6 chords.

[TR in conversation with Day:]
That’s not bad

Day:

It’s not bad but I still need to work a little bit more on it.It’s actually one of the very few things I do that I can say is just for me and only me. And one of the only things I find relaxing. I have a hard time whinding down.

[TR in conversation with Day:]

The reason I ask you that is I got me a guitar a couple of years ago also an electric. My daughter has an acoustic and I kind of took that and started playing and now I like the acoustic better. It’s more forgiving than the electric.
Similarly I find it very relaxing. I have to get back into it because I had a little carpel tunnel…

I do want to someday be able to play with some other folks. I think that would be cool.

Day:

Right!

[TR in conversation with Day:]
That might be on my bucket list.

Day:

You know when the best time to have and use a guitar, Christmas. If I could do 5 Christmas songs. they aren’t usually that complicated. Everybody knows a Christmas song. I have a whole year to come up with 5 songs. That means I need to learn one every other month.
I could do that that’s not terrible.

[TR in conversation with Day:]

I’m gonna have to checkup see how you’re doing. Laughs

Day:

Laughs I’m gonna be in so much trouble come Christmas.

[TR in conversation with Day:]

Now you have one on there number 5 and it says something about being a mentor /inspiration. I don’t think I told you that in 2006, that was my first PCB Conference.

Day:

Was it really?

[TR in conversation with Day:]

Pennsylvania Council of the Blind . That was the first time you were there.

Day:

I do not believe that man, when you rolled in with so much swagger. Come one. Seriously.

[TR in conversation with Day:]
Yeah, That’s just that New York thing!

Basically two years after losing my sight.We were a new chapter and I was one of the folks who started the chapter out here in this county. I just learned so much that week. You were a big , big part of that learning. You did a keynote at that banquet and it was all about whose in your audience.

Day:

Yeah!

[TR in conversation with Day:]
I know, I remember this. And so I really took a lot away from that.

Then later on in 2007, was my first time going to the ACB Legislative Seminar and once again there you were. You were talking about Eugenics and disability. And againI’m very new to disability at that point. So you truly opened my mind and inspired me to kind of dig deeper into what disability means and what it doesn’t mean. I think you should reconsider number 5

I think that this interview has been long overdue. You know I get a little nervous too. I look at certain people as inspiration and I usually don’t like to use the word but in this case it does apply.

Day:

Well thank you . That totally makes my night. Actually it totally makes my year. That’s kind of awesome!

[TR in conversation with Day:]
Laughs.

That’s along overdue thing I should have told you.

TR:

I truly mean that. It’s not only long over do that I share that story with her, but to also share Day’s story with the RMM Radio Family.

Thinking about it, this actually is the perfect time. This episode is a great follow up to the last; Disability Representation in Media

Day is telling stories including disability whether in the subject matter like the Invalid Corps, the inclusion of characters and of course making it all accessible.

And she’s continuing to inspire yours truly, this time not as much from a far.

Day:

So I got to ask, what are you thinking about writing?

[TR in conversation with Day]

(Breathes in deeply!) Laughs!

Day:

You hinted at it, you hinted at it! I’m not letting it go.

[TR in conversation with Day:]

Wow! You know what I always wanted to do. And this would be something that’s on my bucket list. That’s why I was interested in the documentary. I love documentaries. Like I love that.

I’m really just trying to figure out what that specific topic is what that story is that I want to tell. I do love stories, period.

Day:

Well awesome. You should totally do it.

TR:

Big shout out to Day Al-Mohamed.

[TR in conversation with Day:]

Day, I truly, truly appreciate this. Thank you so much it was a pleasure speaking with you.

Day:

Well, I am so glad you invited me to be on your show. I kind of love listening to it so I’m like look, look I’m on the podcast!

[TR in conversation with Day:]

Laughs!

TR:

How cool is that?

Does that make you want to pursue that thing you always wanted to do?

You too can find a way to take you from where you are today to where you want to be tomorrow. It may not be a direct connection, but remember, it’s not necessarily about the destination it’s all in the journey.

I hope this podcast can serve as a bridge for those adjusting to blindness and disability. Connecting this group of people with cool blind and disabled people. Exposing them to new ways of thinking about disability.

Since this conversation I’ve already been doing a lot more thinking about creating a documentary. I believe it’s something I could really do!

I’ll have to add that to my bucket list.

You can check out Day’s bucket list with over 150 items. Plus so much more about policy, writing and more.

Day:

My websites:
DayInWashington or DayAlMohamed.com
If you ran a search on Amazon you can find all my books and writings.
I still have a lot of fun on Twitter That’s my name @DayAlMohamed

TR:

Remember, if there’s a guest or a topic that you want to hear from or about let me know. Chances are if you’re interested so are others. Here’s how you can get in touch, but first, stay in the know, don’t miss a show.

Subscribe!
Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio or wherever you get podcasts.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

Hide the transcript

Disability Representation – Same Goal Different Strategy

Wednesday, April 24th, 2019

Titled Disability Representation, this collage includes scenes from ; Forrest Gump, Rain Man, Ray, Wait Until Dark and The Rear Window; All movies with a disabled character played by a non disabled actor.
If you think about portrayals of people with disabilities on the screen, movies and television, chances are extremely high that the actor was not disabled. At least two recent projects have sparked this conversation including “The Upside” and “In the Dark”.

The latter series on the CW Network caused the National Federation of the Blind to launch their #LetUsPlayUs Campaign.

In this episode we learn why representation matters from:

Plus, “Blind Face” is that really a thing? I had to speak on it.

Consider this the beginning of RMM Radio’s exploration of Disability Representation in Media.

Listen

Resources

Transcript

Show the transcript

TR:

What’s up RMMRadio Family?
It’s me, T.Reid, host and producer of this here podcast.
This is your place to hear stories and profiles of compelling people impacted by all degrees of vision loss and disability. And yes, occasionally I throw some of my own experiences in there pairing those words and music and sound design.

Today, I want to jump right into it. We have a lot to cover.
So…

Audio: Reid My Mind Radio Theme Music

Audio:
* Rain Man – Dustin Hoffman

TR:

Each of these clips, are from movies featuring a main protagonist with a disability.

Audio:
* Forrest Gump – Tom Hanks

Yet, each starring actor does not have a disability.

Audio:
* Ray – Jamie Foxx

TR:

It’s not a new issue

* Audio: The Rear Window

A scene from The Rear Window with Jimmy Stewart, in 1954

* Audio: Wait Until Dark

And Audrey Hepburn portraying a Blind woman in 1967’s Wait Until Dark.

Audio: “The Upside” trailer

TR:

Most recently, Kevin Hart and Brian Cranston star in The Upside.

Cranston, known most for his lead role in “Breaking Bad plays a wealthy quadriplegic who hires a former criminal, played by Hart, to be his caregiver.

With fewer than 2 percent of characters in movies being a person with a disability, well it’s understandable that the disability community took to social media to express their disapproval.

Cranston’s reply?

According to a BBC report he said;
“If I, as a straight, older person, and I’m wealthy, I’m very fortunate, does that mean I can’t play a person who is not wealthy? Does that
mean I can’t play a homosexual?”

In fairness, he does agree that there should be “more opportunities” for actors with disabilities.

I guess just not those that he’s slated to play

Audio: “In the Dark” trailer

TR:

In the Dark is the new television show on the CW Network that stars Perry Mattfeld as a blind woman who is the only witness to her friend’s murder.

Perry herself is not Blind.

The NFB, National Federation of the Blind, believes this is not acceptable. The organization which says they have 50 thousand members in all 50 states including DC and Puerto Rico, began a campaign called #LetUsPlayUs.

I reached out to NFB’s Director of Public Relations, Chris Danielsen, to learn a bit more on what sparked the protest.

CD:

We’ve been concerned for some time that there are not opportunities for and roles for Blind actors. I know we passed a resolution at our National Convention in 2018 on this topic and I think we had passed one even before that.

Fast forward a little bit to early 2019 and the CW Network began heavily promoting its new series “In the Dark”. CW was asked why a Blind actress was not cast in this role and they really made excuses for not casting a Blind actor in the lead role of Murphy in their show.

TR:

According to TheWarp.com:
Nicky Weinstock, an executive producer for the show said:
“We went about searching for a blind actor immediately, and looked allover”

That included 29 different organizations for the blind where he said they were hoping to find the lead actor.

NFB’s Chris Danielsen had this to say about that.

CD:

We were not one of those organizations by the way.
And then they kind of said but we do have a blind writer, and a Blind Consultant and we do have a another Blind actress in a supporting role

They made those sound like compensations for not having cast a Blind person in the lead role.

TR:

You have to wonder, what do they really know about what it really means to be Blind.
Especially when you hear that same CW Executive Nicky Weinstock describe Mattfield as accurately portraying a blind person based on the committment she demonstrated after acquiring a cane and using it around her apartment for weeks.

CD:

This could be really tone deaf publicity on their part, but it’s pretty typical of the behavior that we see from the entertainment industry. There have been literally dozens of films and television shows about Blind people and in none of them that we’ve been able to find, was a Blind person actually cast in a lead or recurring role.
CD:

We felt that this is the right time to really respond to what the CW has said and done but also to this type of behavior that is just recurrent in the entertainment industry. And for that reason we launched our Let Us Play Us Campaign.

[TR in conversation with CD:]

Tell me what is exactly the objective of #LetUsPlayUs?

CD:

The immediate objective is to have the CW reconsider its decision to cast a sighted person in the lead role.

Given that they have really sought in a very discouraging way to justify their decision not to cast a Blind actor in the role, we feel like the only way they can really make it right at this point is to simply re-cast and re-think the show.

TR:

The showed debuted on Thursday April 4, 2019.

It doesn’t look as though this demand is going to be met.

There is time however, to expand the conversation about representation.

CD:

We have found over the years that a lot of the portrayals of Blind people are very inaccurate and often even offensive.

We want to engage in a dialog with the entertainment industry and talk about why it is that Blind actors are not cast. Why there are such low expectations for Blind actors and performers. And how we can work together; the entertainment industry and the National Federation of the Blind to actually identify Blind actors, to develop their talent and to actually see them included in the future projects so that those projects have an authentic perspective on blindness.

TR:

Disability representation in media can be categorized in four groups of characters according to a white paper recently published by the Ford Foundation.

Disability Activist and Senior Fellow at the Ford Foundation, Judith E. Heumannn authored the paper titled; Road Map
for Inclusion Changing the Face of Disability in Media.

The four stereotypes:
* THE SUPER CRIP – think Daredevil
* THE VILLAIN -The James Bond Franchise is known for many.
* THE VICTIM
* The Innocent Fool

I’ll link to the report on this episode’s post over at ReidMyMind.com.

The show’s trailer, gives the initial impression that “In the Dark” may not be too interested in changing the paradigm.

Murphy, the main character is shown trying to hide under a glass table.

Audio: The above scene from the “In the Dark” trailer
In case you’re new here, Blind people know glass is transparent and they know how it feels.

And probably even more concerning, the trailer includes what appears to be the ol’ feel the face!
You know that all too popular scene in just about any movie or television show featuring someone who’s blind where the brilliant idea comes to the sighted person to have the Blind person feel their face so they could know what you look like.

Audio: “Hello”, Lionel Richie Music Video
— From the video, Music plays and a telephone rings…”Hello” says the Blind woman in the video.

TR:

Hey how are you doing? This is T.Reid from Reid My Mind Radio. May I speak to the creator of this music video please?

— From video: Lionel Richie sings “Hello”

TR:

Lionel?
Was this video your idea?

— From video: Lionel Richie sings “Hello Is it me you’re looking for?

TR:
Well yes, if you’re the creator of the video.

— From video: Lionel Richie sings “Cause I wonder where you are”

TR:

My brother, I’m in the future.

— From video: Lionel Richie sings “And I wonder what you do”

TR:
Well, I host a podcast, it’s sort of…

— From video: Lionel Richie sings “Are you somewhere feeling lonely”

TR:

Well now that you ask?

— From video: Lionel Richie sings “Is someone loving you”

TR

Hey bruh, that’s personal.

— From video: Lionel Richie sings as echo and fades out “Tell me…”
— Music continues…

TR:

Look man, on behalf of Blind people around the world who have been asked to feel somebodies face.
You know, that thing in your Hello video.

It’s 2019 I think we can end this stereotype.

It’s 2019 & the results are in, we’re over it!

— From video: Door shuts!

Blind woman says: ” I’ve wanted you to see it so many times, but I finally think it’s done.”

TR:

At least I guess we can be happy that in the actual scene from In the Dark, Murphy was resisting and even protested saying that’s something Blind people don’t do, but her friend insisted.

We later see it was needed to advance the plot. This was how she identified her friends body.

I personally would have suggested something like Microsoft Seeing AI which allows you to take a picture of someone and it will recognize them in future pics. But maybe that doesn’t work for the rest of the show.

But that’s just me. Everyone is different.

Not all Blind people use technology.

Like any other marginalized group, we don’t all act one way, we don’t think the same and we all have our own voices.

In fact, I tried to get some individuals with opposing opinions to share them on this episode but I didn’t get a response.

Not everyone believes this issue should garner as much attention from the NFB.

Some believe, the hiring of a Blind writer, consultant and additional cast member are steps in the right direction.
Therefore, demanding the network pull the show well that’s not a way to open a dialog.

Most of the discussion I thought was valuable, focused on strategy.
That’s always going to be a source of contention.

TR:

On April 2, 2019, the NFB protested outside of the CBS offices, owners of the CW Network, in New York City. .

CD:

We had well over 100 Blind people from five different states, at least, participating in the protest. We protested for two hours

We told the CW Executives who bothered to look out the window or listen, we don’t know for sure that any did. We told them that Blind face is just as unacceptable as Black face for example.

TR:

In addition to the protesting outside of CBS, NFB and others have taken to social media including Facebook and Twitter.

[TR in conversation with CD:]

So Chris let’s talk about something because I was going to go one way but now I have to switch it up. The social media campaign, and I’m gathering that the future consists of continuing with the hashtag… (#LetUsPlayUs). One of the things that tends to happen around this topic is that comparison to people of color. I’ve seen things where people are saying “Oh you don’t want white people playing other nationalities, ethnicities etc. Even though that happens and it still happens today.

CD:

Sure, sure.

[TR in conversation with CD:]

I think that’s almost like, defeating the purpose, but then also the one you just mentioned which was the comparison of Blind face to Black face. What is the NFB’s position on that because in social media I notice that the official NFB account kind of stayed away from that. And I was wondering if that was on purpose or if that was just a coincidence.

CD:

Well to be fair that comparison came up in the protest. It wasn’t intended so much as a comparison as kind of a play on words I think when it was originated.

We are a diverse organization. We have a makeup of membership that is racially diverse, ethnically diverse different sexual orientations and all of that. We respect all of that, all of that diversity. That said, we’re not focused so much on trying to make that comparison. That said we do see some commonality in the idea that we don’t, we don’t allow people anymore to sort of appropriate and sort of pose as others. It does still happen, but there are areas where it doesn’t happen anymore and doesn’t happen as much as it used to . But so far disability isn’t one of those areas.

There wouldn’t even be a thought at this point of having, really seriously, of having a man play a woman. Back in Shakespeare’s time it was common for woman to be played by men, typically young boys. You did have situations where it was considered appropriate to put on black makeup. So why are those things largely gone and why is it still appropriate and considered the norm in fact to have non-disabled people play the role of people with disabilities. It’s the norm and it’s rewarded . Think about how often we’ve seen Oscars awarded to people for doing this; Dustin Hoffman, Al Pacino Daniel Day Lewis.

Audio: “And the winner is…” followed by each of the above winning Oscars.

TR:

Chris is right about that last part. Let’s take a look at some others who won in roles of someone with a disability.

Jack Nicholson, John Voight, Tom hanks, Ann Bancroft and Patty Duke both won for the Miracle Worker playing Annie Sullivan and Hellen Keller respectively.

And oh yes, my bad…
Audio: Jamie Foxx winning for Ray.

Does anything stand out to you about that list?
I’ll give you a second.

Audio: Jeopardy music

All but 1 are white.

Which brings me back to this idea of Blind Face.

That’s a made up term, it doesn’t have the history that is tied to how Black face was systematically used to dehumanize an entire race of people.

And it’s not gone.
.
Audio: Multiple news segments regarding Virginia Governor Ralph Northam & Black Face.

TR:
Even outside of medical schools in the 80’s.

Audio for below Two college girls suspended for Black Face
College campus frat parties still have it… sometimes they use different names but it’s the same. Parties where they dress like rappers. There was even a so called Gangster Halloween costume. And don’t get me started on other examples of appropriation.

Audio: About Redskins

Does it mean that those who used the term Blind face have the same intent?
I don’t believe that.

But what can we expect when this history isn’t taught, when people prefer to be color blind and refuse to have these conversations. Especially in this world of social media and the re-tweet.

There are valid and strong feelings in all marginalized groups. Something we all need to take into consideration.

CD:

We’re not Oscar bait. We’re people with real lives. We don’t exist so that actors can play us and feel good about themselves because they’ve supposedly experienced what we experience. Which of course they haven’t. That’s what’s really offensive.

I’m interested in your perspective too because you know we don’t want to make an offensive comparison. We want to be careful about that and at the same time the point that we’re trying to make is that there are situations where it’s no longer appropriate and the industry seems to understand that it’s inappropriate to have certain kinds of portrayals. Why is blindness and disability the exception to that.

[TR in conversation with CD:]

That’s where the difference of opinion definitely comes into play and I think the perspectives where you say that the industry understands that; I don’t think most people of color would say that the industry reflects their real lives.

CD:

Sure.

TR:

Remember those 4 stereotypes of disability in media?
* THE SUPER CRIP
* THE VILLAIN
* THE VICTIM
* The Innocent Fool

Black stereotypes have existed and continue to make up what we see in film today. Slightly modified versions of, well take your pick:
Sambo or the lazy happy go lucky Negro
Mandingo – the over sexed, big Black man
Mammy, subservient Black woman who’s nurturing ways usually focus on the white children
Jessabelle – over sexualized Black woman

So many films and television shows to this very day still have some version of these stereotypes.

In fact, as the years went by new stereotypes came into existence. The Welfare Queen, the criminal or thug and of course some of your favorite movies might star the magical Negro. who’s there to mysteriously make the white persons dreams come true.

Stereotypes also exist for Latinex, Asians and just think about the context of when you’d see a Native American on the screen.

So for those of us who are aware of this history in culture, hearing what can sound like an implication it no longer exists, well that can feel like all of that struggle and history is being erased.

With that said, let me make it as clear as I can, disability experiences deserve to be on the screen as much as any other human experience.

[TR in conversation with CD:]

You don’t have to make these comparisons.

CD:
Mm , hmm!

[TR in conversation with CD:]

There are comparisons that can be made. And the thing that I like to say is we can compare apples and oranges, they are both fruit…

CD:

Yeh, yeh, yeh. (In agreement)

[TR in conversation with CD:]
… but they are so different.

CD:

Yeh, certainly the intent is different. I would say that some portrayals of blindness have been specifically meant to put Blind people down, but some haven’t. There just profoundly mis-informed. So I totally agree with you, then in that sense it’s not an appropriate comparison. I think that’s why we have stayed away from the comparison on social media. We definitely don’t want to minimize the real pain that, that has caused, but sometimes the paper trail of disability does cause pain as well. Not the same kind, but the misconceptions out there are harmful to people with disabilities and they do trickle through.

TR:

Now we’re getting there!

Probably the strongest argument for increasing representation and the one that lots of people with disabilities feel on a regular basis.

Kristen Lopez:

There is so much mis-information out there about disability. Films are a gateway for us to learn about people and cultures different from ourselves.

TR:

This is Film Critic Kristen Lopez. She also writes reviews on new and classic films.
She has a much cooler way of saying it though.

Kristen Lopez:

Freelance Pop Culture Essayist, who writes a lot about representation in cinema, specifically gender and disability.

I’ve had so many embarrassing encounters with people. Unbreakable being a great example.

People who’ve seen the movie and they feel like that’s some sort of gateway into relating to me and it’s completely wrong.

TR:

Unbreakable, is the film starring Bruce Willis and Samuel Jackson whose character is a wheel chair user and has Brittle Bone Disorder, as does Kristen.

Kristen Lopez:

I refused to watch it because I didn’t think it was actually going to be a movie that represented me. And for a year solid when people heard I had Brittle Bone Disorder they were like oh have you seen Unbreakable? it’s great, you’d love it. And I was like, why would I love it. And they’re like because it’s about you.

I’m not a super hero or super villain

I was very indignant; no that’s not me. I actually never saw Unbreakable until two years ago and I thought it was fine. It didn’t offend me.

TR:

Dr. Adam Pottle, is an author and screenwriter in Saskatoon, Canada with
4 published books and two produced plays.

He himself is deaf.

He’s experienced firsthand how misperceptions and stereotypes find their way into common belief. Like this idea that Deaf people carry on conversations by reading lips.

As he explained to me via email.

(Note the change in sound when I am reading Adam’s words.)

Adam Pottle:

It’s not enough. Reading lips is fucking exhausting, and we don’t always get things right. We need visual confirmation, whether through Sign language or captioning.

I was bullied in school about my ability to read lips. Older kids would point to their lips and mouth out, “Hey deaf boy. Can you read this? Fuck you.”

TR:

The argument for representation is less about personal offense and more about the impact images have on society.

Kristen Lopez:

Movies have sold disability as this grand mystery. We are this enigma that unless the audience knows how to handle us their not going to be able to interact with us and I think that that’s very wrong.

It’s just important to get rid of the little things. We’re talking now about a time where politically people are talking about who’s entitled to what and who needs what. Do we need healthcare? Do we need the ADA at all?

I think a lot of that has to do with movies which fuel the dialectic, fuel the culture and presented disabled people which is entitled, spoiled and massively wealthy and doomed to die relatively young. The movies have sold us as a burden on society.

TR:

Interestingly enough, I read a review of The Kevin Hart and Brian Cranston film, The Upside titled;
“The Upside” is a good representation of life with disabilities.

I don’t know if this writer is disabled. It wasn’t mentioned.
But disability isn’t one size fits all. We can’t forget the intersections;
Gender, sexuality, …

And as Film Critic Kristen Lopez explains, it’s complicated.

Kristen Lopez:

As an adult, I’ve slowly grown to be like I do identify as white, but that’s only because my skin pigment is white. So I know most people, I tell them my last name is Lopez and they look at me and they’re like what the hell are you talking about. I don’t identify as Hispanic, but I do identify as Latino just because my father is.

Now as an adult as I’ve seen how white disabled narratives are it does bother me on that level as well because you know there are no movies with disabled people of color. There’s barely any movies about disabled women but disabled people of color is completely absent in these movies. That doesn’t even factor into people’s discussion of disability because they’ve never seen it.

TR:

Representation is more than who is on screen. It’s about who is producing directing, writing and in general influencing the overall message and feel of
the project.

Adam wants to add his voice to the conversation. Currently trying to make his way into the business. He’s an aspiring screenwriter with three horror scripts under his belt. He has a PhD in English literature, for which he studied how Deafness and disability are represented in Canadian literature.

Adam Pottle:

Because my scripts all feature Deaf and disabled characters in lead and supporting roles, it’s a bit difficult to get them produced, even if they’re well-received. I have one script, a horror story, that’s been selected by six different festivals that I hope to have made one day.

TR:

When it comes to inclusion of any form, the first reasons also known as excuses is often we can’t find “them”.

The CW, couldn’t find a Blind lead. Silicon Valley can’t find people of color in STEM, Corporations can’t find women executives.

Well, I have less than 600 Twitter followers and A Blind Black Man in the Poconos, Pennsylvania found a deaf white writer in Saskatoon, Canada.

(Laughing…)

So in the words of Mr. Biz Markie:
Audio: “C’mon, don’t give me that” from “Just A Friend”, BizMarkie

Adam Pottle:

The problem is systemic. The film industry is ableist to its core. It prefer stereotypical narratives. It doesn’t understand that Deaf and disabled people have rich lives with their own stories to tell. It prefers to look at us with pity and scorn. Recent examples include Me Before You, The Upside, Stronger, The Theory of Everything…

Notice these films all feature white actors, too. We don’t see Deaf and disabled Black characters, or Indigenous characters, or Asian characters. We don’t see LGBTQ2+ disabled characters.

Deaf and disabled people must be allowed to tell their own stories, from the ground up, as writers, directors, editors, photographers, producers, costume designers, and of course actors.

TR:

So #LetUsPlayUs, I’m with that. But can we let disability drive the conversation. Call out the many valuable reasons for representation and inclusion and rather than using the history of others as catch phrases use the lessons and honor those who paved the way.

I think we can agree the more marginalized you are in the society the lower your chances of seeing a real representation of yourself. Go ahead and think about the various marginalized communities. As you filter and each segment appears to have less and less representation not only in society but also on screen.

Just imagine if rather than re-booting movies and shows from the past, Hollywood start out by seeking multi marginalized Non Cisgender women of color with a story to tell.

As Adam Pottle points out.

Adam Pottle:

the first producer or major studio to truly recognize the potential of disabled filmmakers and disabled actors will experience a tremendous cultural and financial windfall. There are over a billion disabled people worldwide. We want to see ourselves onscreen. When we do that, disabled people will come out in droves, leading to changes in theatre spaces and screening options. In short, disabled people will change the way the world watches movies.

TR:

We’ve literally already started that process; Caption and Audio Description have already begun seeping into the mainstream.

So let’s continue.

By the way, the reviews of “In the Dark” are in & mixed. I started watching the premiere via the app but there’s no Audio Description. I don’t believe it’s offered by the network. One review had this to say:

“One thing In the Dark does get right is that the blind characters are completely in control. There’s a murder mystery at the center of it, but the real thrill is watching Murphy live such an imperfect, independent life. She goes out; she smokes cigarettes; she has sex—these are things we rarely see blind
characters do onscreen.

TR:

Seriously? Yawl need to go to a convention!

Apparently 80 percent of the writing staff is made up of women and several LGBTQ+ and blind writers and led by a female
showrunner.

And Calle Walton, the young lady who is Blind and part of the cast, said:

“When I lost my sight, I was devastated. I had to throw my acting dreams away. I thought there was no way I could become an actress now that I was blind. This experience has just been amazing:
getting me back on my feet, getting me back into my love for acting. I hope this really opens up the field and it makes it so blind people are getting looked at as characters that can play roles, instead of sighted people playing roles as blind people.”

Same goal, different strategy!

Shout out to :
Chris Danielsen , Director of Public Relations for the National Federation of the Blind.
You can find out more about them at NFB.org. And #LetUsPlayUs on social media including Twitter and Facebook.

Freelance Pop Culture Essayist, Kristen Lopez. You can find her work on line where she’s written for Rotten Tomatoes, Forbes.com and other outlets.
She has two podcasts;
Ticklish Business – all about classic movies before 1970
Citizen Dame – she’s joined by three other female film critics talking all about the latest entertainment news from a feminist lens
You can find Kristen on Twitter
@Journeys_Film

Dr. Adam Pottle is @AddyPottle on Twitter (Also spelled out)
His website is www.adampottle.com
He has a new book out now title Voice.
Where he explores the crucial role deafness has played in the growth of his imagination, and in doing so presents a unique perspective on
a writer’s development.

I think it’s clear that there’s a lot tied up in this topic of representation.

Consider this episode as just the opening of this discussion here on Reid My Mind Radio.

I hope to bring you more in the future which will include highlighting those behind the scenes as well as in front. I got my eye on some talented peeps.

You know there’s only one way to be sure you don’t miss an episode…

Subscribe!
Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio or wherever you get podcasts.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

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The Accidental Activist – Alice Wong

Wednesday, April 10th, 2019

Alice Wong, and Asian American woman in a wheelchair. She is wearing a black jacket with a black patterned scarf. She is wearing a mask over her nose with a tube for her Bi-Pap machine. Behind her is a wall full of colorful street art
Founder and Director of the Disability Visibility Project, Alice Wong shares her story of becoming a Disability Activist out of necessity. Her love for stories, people and natural curiosity eventually lead to the Disability Visibility Podcast.

In this episode we talk:

  • Disability, it’s not a one size fit all
  • The origin of DVP & Story Corps
  • What is an Activist anyway
  • Importance of people of color in disability & social Justice movements
  • Why we podcast

Finally, press play and here how Twitter helped Alice and I become friends!

Listen

Resources

Transcript

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TR:

What’s good Reid My Mind Radio Family.

back with another episode and this one right here is a goodie! Before we drop that intro music and make this episode official, I want to take the time to welcome any new listeners. Come on in and make yourself comfortable. Mi podcast es su podcast!

If you are new here and I haven’t scared you away yet,, my name is T.Reid producer and host of this here series of audio files transmitted over the interwebs right to your earholes! And since we’re about that accessibility here, we send it via transcript to your Braille embosser, oh and your eyeballs too.

Specifically, I’m talking about stories and profiles of compelling people often impacted by some degree of blindness, low vision or disability. Every now and then I share my own experiences of adjusting to becoming Blind as an adult.

I’m excited about this episode and you should be too.

We have a true well respected superstar disability activist who joined me virtually on the Reid Compound, that’s home of the RMM Laboratory, where you can find me with my audio microscopes, beakers and chemicals mixing up some new concoction.

Honestly, you’d enjoy this one uncut and raw. It’s her work and output that make her dope.

But I’m in the lab, therefore I have to add a drop of this and that because it’s what I do. It’s my way to be sure it gets through the veins a bit faster and right to that brain. This one hopefully will also touch your soul.

Let’s get it!

Audio: Reid My Mind Radio Theme Music

AW:

Hi, my name is Alice Wong. I’m the founder and Director of the Disability Visibility Project. I’m a Disabled person living in San Francisco, California.

TR:

If you’re on Twitter and especially tapped into the #Disability neighborhood, you heard of Alice Wong, @SFDirewolf.

Founder and Director of the Disability Visibility project which means she’s tapped into much of the latest disability related information as it relates to politics, justice and culture. She’s all about amplifying the voices of people of color with disabilities. We’ll get into all that but first I wanted to get to know her a bit more.

AW:

My parents immigrated to the United States in the 1970’s. I was their first kid in America in a new land.

Shortly after they had me my mom noticed other babies my age were crawling. She noticed that I wasn’t crawling the way other kids were.

I was diagnosed with a neuro muscular disability similar to Spinal Muscular Atrophy.

I guess I would also say that because my disability is progressive meaning that my body has changed a lot during my life. I used to walk. Then I used a walker then a wheelchair. And for people who are listening my voice sounds a little funny because I’m wearing a mask over my nose and it’s attached to a ventilator and that’s to get me support when I breathe.

I think this idea of adaptation and constantly trying to adjust and make the most of what I have I think that’s the relationship I have with disability.

TR:
If you’re familiar with Reid My Mind Radio then you should know how I feel about adaptations. In my opinion, it’s just one of the ways that I think non-disabled people could learn from people with disabilities.

It’s the mistake I think the able bodied world makes every day in overlooking a community of problem solvers and creative thinkers.

AW:

Disability isn’t static.

Whether you acquire it during your life or whether you have a chronic illness progressive disability like mine, all of us are evolving, we’re changing and society is changing. We’re entering and exiting different environments . How our disability interacts with those environments, with attitudes with institutions that’s always going to be a variable.

I think that’s kind of exciting in a sense, that we’re constantly learning. It’s not a very simplistic linear experience. For example, blind not blind, disabled not disabled. It’s a lot more complicated
than that.

TR:

Complicated indeed. Just ask someone with Low Vision.

To the casual onlooker, they appear (awh dang, I’m going to say it!) normal). So when they put their face close to an item on a shelf or pull out their handy dandy magnifier they’re faced with the questions. Or they struggle to ask for assistance. Of course there are those with the unseen disabilities who experience similar struggles.
Complicated from both internal and external effect of ableism.

Managing her own disability proved to be an early lesson to Alice’s activism later in life.

AW:

Sometimes it starts with being able to speak for yourself and fight for what you need. That was kind of my experience in junior high and then High School.

Getting angry at things that were happening to me to realize that I had to push back, I had to speak up and fight for myself.

I didn’t think of that as activism. As I got more connected with the disability community in my 20’s. I moved out of Indiana where I grew up to San Francisco and I really found people and culture that really welcomed me. That really opened my mind to like the variety of the disability community and learning more about the history of disability rights and activism. That’s when I really started to realize that being an advocate for yourself is all well and good, but it’s really about changing the system. It’s only through changing systems and cultures that you really make an impact. I definitely feel I’ve been an accidental activist.

TR:

Well what exactly is an activist anyway?

According to Merriem Webster:
a person who uses or supports strong actions in support of or opposition to one side of a controversial issue

The example used is that of a public protest. But who gets to say one version of activism is superior.

AW:

There are people who definitely look at online activism, social media as second rate, not as real that you’re not as hard because your bodies are not on the line.

Audio: Multiple news clips of disability rights protesters over sounds of protesters chanting.

AW:

There’s that very narrow idea of what it means to be an activist.

AW:

I really do take to social media a lot I do realize my own usage is a real privilege.

There are people for various reasons who find social media incredibly inaccessible and overwhelming and I totally get that.

I have privilege in terms of not really having a lot of access barriers the way some people do depending on what platform you’re using. I have access to a laptop and an internet service. All of these things cost money and there’s a certain amount of skills. So those are my privileges that I readily acknowledge.

TR:

Get in where you fit in!

There’s room for all types of activism.

AW:

There are some people who lets say they’re not able to leave their beds and they are just as bad ass organizers and activist than somebody who goes and locks themselves at a sit-in. But I think there’s all kinds of methods and each one of them are valuable.

TR:

Valuable, like the work taking place at the Disability Visibility Project.

Before DVP was known as an online community dedicated to creating, sharing and amplifying disability media culture, it was a means to collect and archive oral histories of people with disabilities.

AW:

It was 2014 and this is the year before the 25th anniversary of the American’s with Disabilities Act in July 2015. I remember around this time all sorts of people, all sorts of disability organizations they were all kind of gearing up for this big event. It was a major milestone.

Back then I didn’t work for any nonprofits, I wasn’t part of a group or anything and I really thought what could I do as an individual. How can I contribute to this? I went to a Story Corps event in San Francisco and they talked about community partnerships that they have in the San Francisco area

##TR

Story Corps’ mission is to preserve and share humanity’s stories in order to build connections between people and create a more just and compassionate world.

They began collecting stories in 2003 at a story booth in Grand Central Terminal in New York City.

After hearing about the various partnerships in San Francisco, Alice went right up to them and was like:

AW:

“Oh do you have any with the Disability community and they said no we don’t”. I thought ok this could be my little way of doing something.

##TR
Little way? Maybe in the beginning but check out the progression.

AW:

I spoke to them about the possibility of forming a partnership with them.

So originally the DVP was going to be a one year campaign to encourage people with disabilities to tell their stories.

Not only are our stories not told they’re not considered as part of the larger American story. You have Civil rights, all the different movements, people with disabilities have been part of those movements.

We’ve also been part of our own movements. That to me is what really motivated me because we all know about Helen Keller and FDR. What about the history of now. What are everyday people doing? What are their lives about? What do they care about. I think that’s what a lot of us don’t realize is that every day we’re making history and the idea of recording a few oral histories and having them archived at the Library of Congress because that’s what Story Corps does, this to me was really exciting because it’s really a gift for future generations.

TR:

By the end of 2018, about 140 oral histories have been recorded as part of the DVP archives.

There was a natural progression from gathering oral histories that lead to other outlets including a blog and podcast.

AW:

I love talking to people. I guess I’m just really curious. I’m always interested in what other people are doing.

the idea of podcasting is like a radio show that’s topical, that’s current that’s really exciting. I was thinking about doing one a few years ago but it seemed really daunting. I wasn’t sure what’s involved, how much will it cost and just whether I would be able to figure it out.

TR:

Well she definitely did that.

She offers some good steps that I wish I thought more about early on.

AW:

Planning, budgeting. I really took my time to have a clear idea of what the podcast would be.

TR:

Since 2017, consistently podcasting publishing episodes every two weeks, The Disability Visibility Podcast is a great resource for conversations about politics, culture and media from a disabled lens.

AW:

Each episode is roughly 30 minutes. It’s divided into 15 minute segments or maybe just a longer extended conversation. I’ve also had episodes where I’ve had a group conversation with two interviewees. Those are fun too. Basically conversations by disabled people about a whole range of topics.

[TR in conversation with AW:]
And it’s cross disability, correct?

AW:

I’m also very open about what I don’t know and my own kind of implicit biases. I want this to be an opportunity to highlight and really just give space to all kinds of disabled people. And also just to not have me dominate or drive the conversation but to really have them being the ones who drive the conversation.

[TR in conversation with AW:]
I think that’s something that you and I share, that curiosity about things.

I don’t know a lot about a whole lot, (laughs) but I know I want to know and the idea of being able to talk to people and just do that and present it in a way. That’s just really cool.
AW:

Yeh! We think of the guests as the experts. I think of the guest as the expert. I want them to shine. My role is to pick the subject and really do the prep work and hopefully ask good questions. That’s what really gives me joy. When I’m in conversation with somebody and you feel the energy when two or three people are in a room and we’re kind of like Jazz, just riffing , improvising and just vibing off one another. That’s what’s so exciting about disability culture it is a shared experience. Whether we are exactly the same or not, but very often just the lived experience. Sometimes there’s a lot of common themes and when we see that reflected upon one another no matter how different we are it just makes us feel more empowered I think.

[TR in conversation with AW:]
Absolutely!

There’s so many different topics and you’re broadening the scope of disability for many people, including myself. I was happy to see you had just recently, the B-HEARD Project and Talia Lewis talking about the prison industrial complex and how that affects people with disabilities. That was a really good episode.

AW:

Yeh, that was kind of a part two of another episode I did earlier, the year before on police violence because I believe they go hand in hand.

There’s the school to prison pipeline which we all know disproportionately impacts Black and Brown kids, but also Black and Brown disabled kids in particular.

There’s mass incarceration, the whole prison industrial complex and the way it really does capture so many people with disabilities. And then there’s the other aspect too. In terms of the everyday violence that happens to people with disabilities but at the hands of law enforcement. There’s a lot of layers I feel like these are issues that sometimes we within the community don’t talk about. We really need to continue flushing that out in as many ways as possible. And to make it as personal as possible so that people can really get a sense , a visual sense of the cost at the heart and the impact.

TR:

In 2018, Alice expanded that storytelling to include the self-published Resistance and Hope anthology.

AW:

the truth during the 2016 presidential election I think I panicked, I freaked out like a lot of people when we realized Trump is our president.

Audio: Clips of 45th POTUS (TR does not say that name.) on disabilities. Includes comments on Paralympics “hard to watch”, comment on Senator McCain being captured and mocking disabled reporter.

Audio: Prophets of Rage, Public Enemy

AW:

I thought to myself ok, what can I do.

We’re going to be entering some really dangerous times under this administration and we know, marginalized folks always knew what the consequences of this president.

What are some of the wisdom and the knowledge and expertise by disabled people who have always been resisting.
This didn’t just happen two years ago.

Audio:
“46,000 year old skeleton of a Neanderthal man, who had significant Cerebral Palsy. Other Skeletons have been found with missing limbs”

AW:

Disabled people have been surviving and thriving and resisting for centuries. Since time began.

Audio: Multiple clips on disability history:
* Aristotle has been said to have been an advocate for Eugenics and the killing of disabled children… let there be a law that no disabled child shall live”
* “Romans mutilated deformed people and just through them into the Tiber River”
* :”Just this past century we had Eugenics and freak shows… that planned to eliminate or denigrate such individuals respectively. Mental disabilities and Dwarfism in Medieval Europe were considered the produce of possession and sin and were often treated as such. With their only opportunities to survive in society as court jesters and fools.”

AW:

The idea for this anthology was really a chance to ask people that I personally admire, that I learn a lot from . people like TL Lewis, Leroy Moore, like Vilissa Thompson, like so many people

It’s an E-Book featuring 16 essays by 17 disabled people.

[
I would say that pretty much
]
All but one person is a disabled person of color. So that to me was also a really intentional thing that I really wanted to center to the voice of disabled people of color.
I really think that there aren’t enough representation and enough attention paid to disabled people of color.

[TR in conversation with AW:]
Why is that important to you. What does that lend to the overall disability movement.

AW:

While I’m thankful for the people who were part of the first, male movement, the independent living movement in the 60’s and 70’s but it was a predominantly white experience. These folks became leaders, formed organizations. They’re the ones that are often noted in history. They’re the ones who are seen as Icons.
I know this in my bones that there were disabled people of color and other marginalized folks that were not given their due. I think that has always been part of the problem of who gets to tell the stories?

It’s always about power. It’s about privilege. As somebody who is proud to be Asian American disabled woman I’m cognizant of the sexism, racism that’s a part of our community. I think that’s something we don’t talk about enough. That we have to like step out be as we have to always hide those parts of our experiences in order to get along. It’s prettier to homogenize our experience and we’re so different, we’re so diverse. Those who enjoyed some privilege in terms of representing our community have really missed out in terms of what we could all learn from each other. I always kind of known that my own experience was very much situated within my culture, where I’m located in terms of growing up in the Mid-West. being a product of immigration. I’m going to see various issues very different from others. I think there’s so much in terms of living with all of these different intersections that give really valuable perspectives. Let’s face it those that set the agenda aren’t really the ones who are the most kind of at the margins. So their idea of what disability rights is may not be what disability rights is for somebody else. So that to me is why I’m very intentionally try to widen the center. Rather it just be white, physically disabled experience.

# Community

TR:

That’s the other aspect of the Divisibility Visibility Project, building community.

AW:

I grew up disabled in the 70’s and 80’s pre internet. It was a pretty lonely experience. I didn’t feel comfortable or confident until much later. I think not only because I didn’t have people like me whether in person or online but I also never saw myself reflected in the media. So that’s another huge reason why right now this time we’re living in is kind of amazing because people are using online tools like Twitter YouTube, Tumbler. We are all creating our own content.

I think it’s a really exciting time to be alive in 2019.

TR:

Through the use of online tools like Twitter and their hashtags DVP coordinates and hosts regular Twitter chats. These are conversations in the form of structured Q&A’s where the community is asked to answer questions on a specified subject.

The beauty of these online public discussions is that others can easily be brought into the conversation or discover them. Plus their archived.

Information about past & future chats are published on the VVP website and shared via the Twitter account @DisVisibility

As far as the future for DVP is concerned,

AW:

The Affordable Care Act, Medicaid, Medicare, food stamps, housing , transportation, education. Almost every one of these areas there have been a real attempt at going backwards in terms of advancements for civil rights and disability rights.

Overall I think it’s been a war against the poor, immigrants, people of color, against the LGBT community and against women – you know reproductive rights.

There’s a lot to look out for.
[TR in conversation with AW:]
This is probably one of the hardest questions Alice. With 45’s (Note – TR does not say that Trump name) and all that, what do you see in the future that’s hopeful?

AW:

Delay – ooh!

[TR in conversation with AW:]

Laughing . Unfortunately that’s a hard question, right? More laughs.

AW:

Yeh!

You know I do find, it is really hopeful to see so many people engaged and politicized in ways they may not have been before. That to me gives me hope that people realize oh shit, we all are in this together.

My friends, my neighbors, they are all going to be hurt. It’s up to all of us to speak against hate, bigotry, and to call it out.

That to me is hopeful to see people not give a fuck anymore. Put aside this whole idea of respectability politics. Oh we gotta be civil, we gotta be polite, we gotta work within the system. Well you know what, sometimes you can’t do that. Sometimes the situation calls for direct action, it calls for people to be angry and to really show that anger. There’s some hope in that. People are hopefully coming to terms with our relationship to what kind of world do we want to live in. What kind of leadership do we want and deserve. Last fall the wave of women and people of color elected for the first time. That’s kind of exciting. People are galvanized. People want to do something. There’s a lot of potential with that.

Audio: “Well you’re quite hostile!” from “Prophets of Rage” Public Enemy

[TR in conversation with AW:]
What is that you like to do when you’re not fighting Ableism Alice?

AW:

Oh so many things Thomas.

I love coffee, I love good desserts with coffee, I love going to bakeries cafe’s, I have a love affair with fried chicken and French fries, I love really really good southern food but also just watching TV, watching cat videos, Netflix. We all need to find things that give us joy. Talking to my friends, being lazy, love to sleep in lay around. Those are things that keep me going.

##TR

Lazy? Do not get it twisted. Let’s take a look at what Alice and DVP turned out in 2018.

Hit me!
Audio: I Go to Work” Kool Moe Dee

I’m going to need the right vibe for this one.

She’s written article for multiple publications on topics including;

the California wildfires
plastic straw bans and accessibility
an essay on the visibility of Senator Tammy Duckworth as a disabled mother of color
HR 620 and disability rights
representation of disabled people in entertainment
for Teen Vogue.

– Published 5 oral histories of some movers and shakers in the disability community in partnership with Story Corps. 

Lots of blog posts including guests posts, Q&A’s

Produced and hosted 26 episodes of the
Disability Visibility podcast
with her team:
co-audio producers Cheryl Green, Geraldine Ah-Sue, and Sarika Mehta.

Multiple media appearances including:
United Shades of America with W. Kamau Bell
on CNN
– Featured in the
Bitch 50,
(I didn’t name it!)

a list recognizing the most impactful creators, artists, and activists in pop culture influential feminists by Bitch Media and
Colorline’s 20 X 20,

Multiple presentations and talks:
the 2018 Longmore lecture at the
Paul K. Longmore Institute on Disability
– Co-presented a workshop on reproductive justice and disabled people

Co- hosted a couple dozen Twitter Chats
for DVP and several other organizations and groups.

Don’t forget she Published and edited
Resistance and Hope: Essays by Disabled People
available on Amazon
and free in multiple formats

To find out more about that and how you can share your disability story and have it archived with Story Corps visit the DVP at DisabilityVisibilityProject.com
Follow them on Twitter @DisVisibility
And definitely make sure you follow Alice if you want to be in the know about disability issues and culture at SFDirewolf.

All these links will be on this episodes show page at ReidMyMind.com.

[TR in conversation with AW:]
Alice Wong yawl!

Salute to you Alice. I think you do some wonderful things and I know I’m learning from you. So I appreciate you.

AW:

Well I am learning from you. And I’m so happy that, again it’s through Twitter that brought us together.

[TR in conversation with AW:]
Yeh!

AW:

That’s what’s really awesome We may have never come across each other in real life but thanks to the internet I could call you a friend.

[TR in conversation with AW:]

Absolutely, absolutely! I truly appreciate that. I truly appreciate you and the fact that you just called me a friend I’m very happy about that! Because I hope to continue this. I honestly do learn a lot and I appreciate that because this is part of my growth and you know finding where I fit in with disability and how this all works and I appreciate it.

AW:

Me too you know It’s all part of the journey, and you’re part of it.

TR:

Tell me who wouldn’t want to be on a journey with cool people, bad asses getting things done and doing it from a good place. I guess could be summed up by a hashtag from another project of Alice and two other disability champions Mia Mingus and Sandy Ho.
#AccessIsLove.

Audio: Music… “It Just Makes Me Happy”, DJ Quad (No Copyright Music)

One thing disability has taught me that applies to just about everything; there’s no normal. There’s the way we’ve been used to doing something and if anybody tells you it’s easy to just change that, they haven’t been through anything.

But we can adapt. We can find a new way and sometimes that new way, even though it’s not the one you would choose, it may be the one you needed and may prove to bring you where you’re supposed to be.

A few things I want to highlight before we get out of here.

No one gave Alice permission to start Disability Visibility Project. She didn’t need a board of directors, she didn’t need a large organization behind her. She made the decision to make it happen.

We can all do that. And if you have to change it up cool!
If you don’t enjoy it that’s cool too. Just start it if you’re thinking about it.

psst… I’m talking to you!

Like if you’re thinking about subscribing to this here podcast, I suggest you follow through with that feeling!

Subscribe!
Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio or wherever you get podcasts.

You can always send me feedback or recommend a guest or topic all you have to do is hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

You can always visit www.ReidMyMind.com, that’s R to the E I D like my last name!

Audio: Reid My Mind Radio Outro

Peace!

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