Archive for the ‘Accessibility’ Category

The Art of Access with Cheryl Green

Wednesday, March 27th, 2019

The camera catches Cheryl & Cynthia from a jaunty angle. Cynthia holds a beautiful plaque for Superfest Disability Justice Award for New Day Films’ Who Am I To Stop It. The plaque has text, Braille, and raised lettering. Cynthia smiles at Cheryl as she burst into excited laughter at the passer-by who shouted “Superfest, whoo!” she holds a bouquet of sunflowers by her face.

Meet Cheryl Green, a filmmaker focusing on disability identity and culture and making media accessible.

She began making films after acquiring disabilities from brain injury. Her media combine personal narrative and activism to create
dynamic tools that critically challenge misconceptions and stereotypes of disability, celebrate pride in disability experiences, and amplify marginalized
voices. Cheryl works to create a platform for people to use the arts to increase connectedness and to promote dialogue and change within the larger community.

Hear why Cheryl views Captions and Audio Description as an artistic part of the film/media and a means of achieving disability justice and equity.

Her latest film Who Am I To Stop it is a documentary on isolation, art, and transformation after brain injury.

She’s a fellow Association of Independence in Radio New Voice Scholar… hit play below and hear how that worked out for yours truly!

Listen

Resources

Transcript

Show the transcript

TR:

Audio: “Fellow Americans, it’s with the utmost pride and sincerity that I present this recording …” PSA, Jay Z (Just Blaze)
— Beat rides underneath…

TR:

Welcome back to another episode of Reid My Mind Radio.

Audio: “Allow me to reintroduce myself, my name is…” PSA, Jay Z

TR:

T.R E I D, Moving podcasts by the GB!

. I’m your host and producer of this podcast.
Bringing you stories and profiles of compelling people impacted by all degrees of vision loss and disability. Plus, I occasionally explore my own experience around becoming blind as an adult. I try to present that in my own way blending my words with audio and sound design.

Before we get into it, you know movin’

Audio: “Moving’ doin’ it you know” Sex machine, James Brown

I want to send a shout out to those of you who subscribe to the podcast. I truly appreciate you. That simple act of hitting that subscribe button especially if you subscribe via Apple Podcast, increases the chances for others to discover the show.

Audio: Music stops…

I don’t know why, that’s just what they do!..

Music re-starts…

One of my main goals of producing this show is to hopefully reach those who are new to the experience of blindness, low vision, vision loss I think the people across the Atlantic refer to it as sight loss. Maybe you are recently experiencing some form of disability. I think there’s something for you here.

It’s a shift in attitude that is not based on changing just to change but it’s based on experience. Experience from people who have been where you are right now and worked their way through it. People who accepted what they were given, people who didn’t feel the need to overcome but rather embrace and continue.

Hmmm!

If you are new to disability let me send you a very warm welcome. A virtual hug going out to you. I’m referring to anyone impacted by disability. Whether you are Blind or Low Vision or maybe you are the spouse, parent or child or even the friend of… we got something for you right chere. And yes, I said right chere!

So with all of that said, I hope you are ready because I want to introduce you to a new friend of mine who brings a different perspective to how we view accessible media content.

I just hyped myself up and I hope you can feel it too!

Let’s go!

Audio: Reid My Mind Radio Intro

# Cheryl Intro

My name is Cheryl Green. I am an independent documentary producer and audio producer.

TR:

She’s also a strong advocate and maker of accessible media content including subtitles, captions and audio description.

As an independent film maker, we see that’s just one of the unique perspectives she brings to her work.

# On Disability

[TR in conversation with CG:]
What is your relationship with disability?

CG:

I like that question. It’s so much nice and more nuanced then what’s your disability and what’s your diagnosis because disability experience is so much more than medical diagnosis.

One of my relationships to disability is political. I’m always looking at cultural and political things from a disability rights and disability justice platform. Another relationship is that almost all of my friends and significant people in my life are disabled people. And then because I like things in three’s; my relationship to disability is that I have multiple invisible disabilities, but I’m not sure that invisible makes sense as a term. Non-apparent or easy to hide. Some of them are acquired and some are stuff that I was born with that has shown up later in life from kind of living as a knucklehead and now it’s coming up. Laughs.

[TR in conversation with CG:]
Laughs…

Oh boy there’s a lot of stories right there. In that one statement, living as a knucklehead. Oh boy!

CG:

Laughing…

But it’s funny because that’s the one that I was born with. It’s a connective tissue disorder and for me it’s very mild , but I have dislocations and I have chronic pain chronic tendonitis, ligaments that are over stretched. I was born with it. The knucklehead part is that I over did it as an athlete through most of my life. So just chronic injuries and stuff but it’s nothing as fun and exciting as you know…what did she do?

[TR in conversation with CG:]
Laughs…

# Captioning

## TR:

Cheryl also experienced a Traumatic Brain Injury that she says is indirectly related to the complications of the connective tissue disorder.

Our conversation however, focused on accessible media content. Beginning first with captioning.

Now I know most of you listening are way smarter than me but I needed a clarification between sub titles and captions.

CG:

Subtitles are just a typed out version of what people are saying. It’s just words on the screen as the words are being spoken. Captions also provide descriptions of the sounds music, whether there’s traffic going by, dogs barking. When possible you can add in a description like whispering or tense voice . There’s all sorts of descriptors you can add in there.
They should identify who’s speaking and when the speaker switches.

The thing about subtitles is that they actually assume that it’s only hearing audiences watching a film that has subtitles because there’s no indication when the speakers change. And if you’re looking at a sunrise and two people are off screen talking and you just see sentence after sentence after sentence there’s actually no way to know who’s talking and when the speaker’s switching. And to me I don’t see how you can follow what’s happening if you don’t know when the different people are talking.

TR:

Maybe you can’t tell yet, but this subject has a special place in her heart. It’s not just about words on the screen.

CG:

I love captioning more than anything else that I do. One thing that I love about captioning is that it is so precise, detailed, tedious and repetitive. That just works for me.

I look at captioning as part of the art. I do not think of it as a piece of accessibility that you have to add or want to add at the end. To me it’s artistic. Translating things. I can’t literally caption every single sound that is in a piece of art. That doesn’t make sense it’s not even possible. So I have to make creative decisions based on what I think it most important from the creator’s perspective and what I think audiences will want to get from something. I don’t want to be like “Speaks slowly, whispers quietly, birds chirp” I want it to be rich and lush especially when the film or the show is rich and lush. I feel like it’s my duty to make the captions as interesting and beautiful and artistic as the film is.

For me captioning is something that I can do in a move towards justice and equity. It is access to information. Whether that’s the news or pure entertainment or something that’s informational or somethings that’s on a social issue. it’s about equity. It’s not just about meeting compliance. I love doing it and I love what it can bring to people and how it can include more people in media and in conversations.

# Audio Description

TR:
Captioning eventually led Cheryl to find an additional way to make media more inclusive and engaging.

CG:

Through one more piece of access that’s very artistic , very subjective and hopefully integrate it into the art itself.

TR:

Maybe that’s not the way you’re used to thinking about or even hearing Audio Description discussed. . but that’s what she’s talking about.

Cheryl recalls first thinking about AD after providing captions for a client and then reading their Facebook post which read;
CG:
“Hey my video has captions now it’s accessible to everyone!”

## TR:

This just wasn’t true!

CG:

You have to be able to read quite well and quite quickly to follow captions. No, captions are not accessible to all people because not everybody can read in whatever given language there in but also I looked at that and thought well these captions are just visible on screen and if you’re not
looking at the captions there not there.

TR:

There’s all sorts of benefits gained from captioning and Audio description. And not just for the consumer.

CG:

I think it takes a lot to acknowledge you know what, I made a great film here but I recognize that not everybody can access it because of the way I made it.

There’s a big piece of acknowledging this film is not complete until more people can come in.

From a capitalistic sense if you have great content and you want an audience why not make your content available to a bigger audience. It just makes sense.

But I hate capitalism so I do also value more of a disability justice and social justice and equity lens to say people need to be participating in civic engagement, arts, culture, entertainment and all of it. And What can I do to make that more accessible and available to more people.

# Film

TR:

She’s answering that question from multiple points of view. That’s a Caption & Audio Description provider and as a film maker.

Following the brain injury which impacted her ability to cook as well as organize she did what anyone would do;

CG:

I made a comedy film about it and it took off.

Audio: “Cooking with Brain Injury”

TR:
Okay, maybe that’s not what everyone does.

That first film was called “Cooking with Brain Injury”

A short film looking at daily struggles of life after traumatic brain injury with dark, honest humor.

CG:

I sold many copies of it. I’ve taken it to state and national speech therapy conferences. I’ve done Continuing Ed. trainings around it and it was totally impairment based. It was a window into my world.

TR:

After other films around brain injury, she decided it was time to close that window.

Audio: window closing

CG:

I realized I need to get out of the spotlight and get behind the camera and do more. Over the years my films have become much less about impairment and much more about disability experience, marginalization, self-empowerment, autonomy and decision making. I do a lot of cross disability work now. It was all brain injuries in the beginning but that didn’t hold my attention because it can be so impairment focused.

TR:

Cheryl’s first film didn’t start out with Captions or Audio Description.

CG:

I didn’t know about access at all when I started, but as soon as I found out I could copy down the spoken words and put them up on the screen; it didn’t look good , but those words were on the screen. And I loved it!
Then I got educated about Captioning software

TR:
She became quite serious about the craft.

CG:

I read up on the FCC guidelines. I love it when the FCC issues new guidelines new recommendations. I’m there with those white papers reading them to make things the best that I can.

I have seen some people criticize the FCC guidelines for example saying, “I don’t care what the guidelines are I want to know what Deaf people want.”

Number one, Captions are not just for Deaf people. There’s a lot of different kind of people who want and need Captions.

Number two, there were Caption users on the committee that wrote the FCC guidelines.

They’re really good guidelines . They make for beautiful Captions They included actual consumers actual Caption users in their creation and that’s another reason I really value them.

[TR in conversation with CG:]

You really are a Caption nerd! Laughs…

CG:

Laughs… I’m such a nerd!

TR:

Deep passion for a given subject. That’s what separates the nerds from the rest.

In this case, the passion is all about inclusion, social justice and equity.

CG:

I have a lot of clients a lot of filmmakers who come to me for captioning and they have a lot of complaints about the way captions look. Or they make requests that I find unreasonable. They’re unreasonable because they are centering that hearing filmmaker who doesn’t actually know what Captions are or can’t really articulate what Captions are for. And I say, your aesthetics around Captions are not what I’m working with. I am working to serve Caption users and I have very explicit reasons why I make the choices that I make. I’ll negotiate with you. I’ll talk with you on the phone but you have to understand that Caption users come firsthand I’m not interested in your aesthetic choices around the Captions.

If you want access you would make captions the most accessible that I know how to make. I get into fights with people all of the time and it’s so much fun!

[TR in conversation with CG:]
Laughs!

TR:

Don’t worry, know one’s out here recklessly out starting fights. This is all about advocating for the user.

CG:

IF content creators always included Caption users and Audio Description users in their minds and their target audience then it wouldn’t be a thing. But it’s specifically because people whether it’s willfully or they just have somehow remained oblivious through their careers, they don’t even consider people who would benefit from the access as part of their target audience. That’s why I harp on it . I would love to get to a place where it’s just we have to do color correction, we have to do sound sweetening, we have to trim off 35 seconds on this, we have to add the Audio Description. Boom, boom,boom boomboom!

When it’s just part of the practice, yeh, I won’t have to be so political and I won’t enjoy fighting with people. But until we’re at that day for whatever reason I enjoy being super fired up and political about it.

[TR in conversation with CG:]

The order in which you laid that out where you said ok, they have to do some color correction, do this and let’s add Audio Description. I want that thought about in the writing because to me the end result would be better. I still think that when it comes to things like Audio Description and Captions, there’s a charity model that starts off the process.. Let’s do this because you know (the following said mockingly) it’s a good thing to do for the people. Let’s give this to them so they can be happy.

If they thought about it has what you said which is it’s going to make our film better Not just because more people are seeing it but it actually may do something better to the film Meaning, if you think about Audio Description at the time of writing it at the time of producing that film chances are you’re going to think of something that’s going to enhance it.

CG:

Oh, hundred percent! Oh my gosh, I just got interviewed yesterday they were like what’s the one take home message that you 3want filmmakers to have.

I say, you put access in your budget in the pre-production phase. You put it in your budget so there’s no “oh we didn’t know”. And then you always consider it. You don’t just get the supplementary footage or the daily footage.

There’s kind of this idea that you find something beautiful you hold the camera on it for at least 10 seconds, get a good shot. You know what? Do it for 40 seconds because then when we’re editing there’s the opportunity to say let’s stretch out this shot a little more because then we can put the Audio Description in.

I am totally with you that if you are considering this stuff from the beginning you’re going to film it differently. You’re going to edit it differently. It is going to be better.

TR:

This is coming from an experienced film maker.

CG:

When I filmed my documentary and I was still new to this, I told my Director of Photography, “Don’t ever do extreme close ups. Ever” I don’t want any extreme close ups. Even with the mouth off to the side because we are going to have captions in every version of this film ever shown. I told the Editor, “I need you to put in spots, stretched out spots where Audio Description can come in.”

Now unfortunately I wasn’t trained in Audio Description back then, and so we didn’t nail that as well. We didn’t have enough stretched out spaces and the Audio Description isn’t as lush as it could be.

We did some re-editing and we added in more space. I re-wrote the script, the original Audio Description script, hired other voices to do it. As you watch my film progress over time the same film different versions Audio Description becomes more lush, more engaging more honest because now I understand Audio Description a little better. So there were things that were a little vague in the description.

TR:

For many such re-writes would feel like a chore.

Like her latest production, “Who AM I to Stop it”, a documentary film on isolation, art, and transformation after brain injury, was selected for Superfest International Disability Film Festival.

The longest running disability film festival in the world – co-hosted by San Francisco’s Lighthouse and the
Longmore Institute on Disability at San Francisco State.

Superfest is one of the few festivals worldwide that is accessible to disabled filmgoers of all kinds.  
CG:

I got an email from the director, hey we love your film it got in, it got an award, but we had to stop during the screening a few times because our Blind jurors felt left out by a joke in the film. It wasn’t described well enough. She said I’m sorry I don’t mean to be negative but are you at all available to re-record.

TR:

I suppose it’s viewing this process as art that produces Cheryl’s response.

CG:

Negative, this is the biggest gift in the world are you kidding me let’s go.

I rewrote several parts but I specifically rewrote the part that people felt left out by. My Blind Audio description teacher helped point out some spots where she still felt a little bit excluded or maybe even confused about what was happening. It’s just more descriptive. That’s how art should be. As you learn and develop your skills it gets more wonderful.

Audio: Basic Able

TR:

Wonderful, like the time she described an improvised dance segment for a video podcast. It featured Antoine Hunter

CG:

He is a really phenomenal person. He’s a dancer, choreographer and healing artist. He teaches dance. He’s marvelous. He’s Deaf and he’s the Artistic Director I think, of the Real Urban Jazz dance Company.

I’ve never done dance before. It was so fun and it was so exciting to try and get the dance moves and match them. And because he’s Deaf he incorporates some sign into the way he dances.

I’m not fluent at all, but I’m familiar with Sign language and I’m familiar with the role that facial expression plays in the grammar and expression of Sign language. So I was able to make references to his hand gestures as being Sign and references to his facial expressions.

I think I said his facial expressions mirror the expansiveness of his bodies motion.

Audio: from podcast if available…

TR:

Hopefully, by now, you too should at least start to see the art. It’s the familiarity with the culture that enables Cheryl to recognize such detail.

CG:

Everything that I do has something about disability or Deaf culture in it. I engage with it seven days a week. Whether I’m making something or reading or watching something. I try to immerse myself in the cultural aspects of Deafness and Disability. That brings a more lush Audio Description

TR:

That level of detail and equity goes as far as seeking input from those being described.

CG:

I sent Antoine the script because it wasn’t going to be in the captions for him to read. He really liked it and he corrected one part that he didn’t like. It didn’t feel fair to him and he gave me words that not only feel more fair to him, but were more beautiful than the words I had chosen. It was so collaborative and so beautiful.

When I’m describing what somebody’s body looks like or how it moves I send them my script. I ask them what they think about how I wrote it. or I tell them I’m going to audio describe this please tell me how you want time to describe what you look like. Sometimes people will send me a description that’s actually not very visual.

[TR in conversation with CG:]
Like what?

CG:

Like when I say how do you want me to describe how you’re moving? And the response is a man with Cerebral Palsy. That doesn’t give me a sense of how you move, but I asked and you answered. And I respect your answer. But it is tricky because the point of audio description is to give people a flavor of the visuals and man with Cerebral Palsy that’s not very visual is it?

[TR in conversation with CG:]
No, not at all.

CG:

If it’s your content and I’m describing you and that’s all you give me ok, that’s what I’ll use.

When it’s my content I’ll use their words as the starting point and expand to make it more descriptive and more visual oriented.

[TR in conversation with CG:]

Give me an idea of the types of things that you would include in a description of someone.

CG:

I try to always describe something that relates to race or ethnicity. If I know how the person identifies then I can use those terms. If I don’t then I might be more descriptive. for instance, I describe myself as a white woman, which is kind of descriptive but not really because my skin tone is darker than any of my white friends. I’m the darkest person I know in my circle of white friends so it’s not super descriptive to say that I’m white. But it wouldn’t be useful to say I’m a brown woman because I’m white. I just have kind of light brown skin. If I don’t know their ethnicity I might say someone with a dark skin tone, someone with a fair skin tone. Sometimes I’ll defer to hair. A woman with bright red hair.. She’s probably white if she has bright red hair. now not necessarily of course.

[TR in conversation with CG:]

(Laughs…) Now-a-days!

CG:
There are different reasons why someone would have red hair regardless of their ethnicity.

[TR in conversation with CG:]

What would make you choose their hair and what would make you include that in the description. I wonder why would they say that? Why did they now tell me that this person is a Black person or whatever. And I’m like hmm, let me see if this is going to be really necessary to the story line.
CG:

Yeh!
[TR in conversation with CG:]

Sometimes it is and sometimes it isn’t. And it leaves me wondering why they made that choice and why they didn’t describe the white person.

CG:

Ok, get ready!

[TR in conversation with CG:]
Yeh, ok! (Laughs.)

CG:

Oh my! I cannot tell you how with you I am. I’m going to describe something if it feels relevant to the story or for political reasons.

Just end my career now if I ever put something out there where I say the black person and the person meaning white. I don’t know if I would ever recover from my remorse.

I don’t do, a wheel chair user and a person. Huh! No! If there’s a wheelchair user and there’s someone else standing. One person sitting in a wheel chair and one person standing. I make political choices If one person’s race or ethnicity or nationality becomes relevant to the story, I am going to make a point to name everybody’s so that I’m not singling one person out as the other or the weirdo or the outsider.

There is no way that someone is ethnic and some other person is not ethnic. I just cannot even wrap my head around … I don’t even know what ethnic food means, what on earth, what? (Said with a lot of annoyance!)

What food doesn’t come from a culture? What? (Said exasperatingly)

No, I will name them all or I will name nobody. And it really depends on the content creator, what they’re going for, how much time there is and yes is it relevant. Is it going to make a difference to the story for me to know something about the ethnicities of the people involved and is there time to get that in there. And if I can’t describe them all then I can’t describe any. or sometimes I will tell somebody, you need to stretch out that first scene because I have got to get that description in there. I have to!

TR:

Movies, television are often a reflection of society. It’s not surprising that the politics of the world impacts the way we think about and create access to content.

There are many who believe the best approach is to ignore race or ethnicity all together. As Cheryl points out, the results don’t lead to equality.

CG:

I think when Audio Describers are shy, oh I don’t’ want to say those words, as an Audio Describer your comfort and discomfort are not supposed to be part of this. You’re censoring it for the viewers.

You know I was really moved by your episodes around Black panther. There’s the access piece, but also one of the ways we white wash is to pretend like white people are neutral and just people. And so whatever we think is important is what’s important. And yeh, they had some cool costumes in Black panther, but ok, cool costumes whatever. That’s not fair. It’s so beyond not fair, it really is a show of white supremacy.

[TR in conversation with CG:]
Mm Hmm! (In agreement)

CG:

To neutralize overt displays of culture that are not white, you erase them, you ignore them. That is white supremacy. And it’s not ok.

If the film maker did not erase culture then the Audio Describer or Captioner really should not erase culture as well.

[TR in conversation with CG:]
Absolutely!

CG:

Some people feel like it’s just the detail, no. We’re talking about humanity and we’re talking about dehumanizing people. Willfully dehumanizing people when we leave stuff out

TR:

Cheryl says the same occurs in captions.

Not only is she creating films, accessible content through subtitles, captions and audio description, Cheryl produces the podcast Pigeonhole.

As described on Apple Podcast:

Pigeonhole challenges the stereotypes that disabled people are all white, straight, middle class people in search of a cure for their bodies and minds
the way mainstream media would make it seem. Made by from disability community, and centering disabled people as audience, Pigeonhole interrogates the
assumptions and biases we hold about disability and embraces all parts of people’s identities. We uplift disability culture, celebrate identity, and break
out of the narrow pigeonholes people attempt to stuff us in.

She’s a fellow recipient of the New Voice Scholarship warded by Association of Independence in Radio.

Receiving that scholarship puts us both in a very exclusive group of some of the best audio makers currently making radio and podcasts.

Audio: Microphone and other equipment collapsing during my conversation with Cheryl.

[TR in conversation with CG:]

We are having operating difficulties, please stand by

TR:

Well, maybe not all of us!

You can find Cheryl online at WhoAmIToStopIt.com She tweets under that same name, which again is her latest production.

Her films are available through New Day Film.com.

Checkout Cheryl’s podcast Pigeonhole – that’s P I G E O N H O L E. I especially like the episode titled “A nap and a bird.” It’s a short well told story that says a lot.

# Close

Audio: “As we proceed”

We’re continuing to advance our ongoing conversation around Audio Description and content access in general.

Considering captions & AD as art? Why shouldn’t it be. It’s the written word that has some pretty strict requirements including the time constraints and a need to quickly convey a message. We’re talking about talented writers and voice actors/narrators.

Let’s spread this way of thinking about accessible content.

Let’s push for content creators like Cheryl whether independent or in the major studios to see it as a tool to improve their storytelling. Then maybe we’ll see it become a part of the pre-production and be more of a reflection of the film’s conceived vision.

Looking at content access through a social justice lens feels like it leads closer to inclusion.

A big shout out to Cheryl Green! I enjoy speaking with her and appreciate her perspective. I guess I’ll go ahead and put this right here… I hope you will hear more from her right here on the podcast in the future.

You know, I still hope to hear more from you the listener. I’m not looking for you to write me long messages about how much you love the show or how funny you think I am or how much you like the production, or how much you think this podcast should be the top podcast on the charts or how it makes your day when a new episode publishes… no who would want to hear any of that!

I just want to know if it made you smile, gave you an idea or maybe encouraged you to do something.

I send myself fake messages about all the other stuff so I have that covered!

Seriously, holla back!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

So make sure you Subscribe!
Apple Podcast, Spotify, Google Podcast Sound Cloud
Audio: Bring the audio to a screech!

## TR:

if you mainly listen to the podcast via Sound Cloud I’m hoping you will continue to listen but I am moving away from that platform. I’ve been tolerating their interface in order to avoid the move to another service.

I may decide to keep one or two episodes available, but the best method for staying caught up is to subscribe via Apple Podcast, Spotify, Google Podcast, Stitcher, Tune In Radio and wherever you get podcasts.

You can always visit www.ReidMyMind.com

So there’s no confusion, that’s R to the E I D like my last name!

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And please, tell a friend to listen. Spread the love, man!

Audio: Reid My Mind Radio Outro

Peace

Hide the transcript

Up and Moving Again

Wednesday, March 13th, 2019

William at the finish line of the Prickly Pear

Meet William Greer, Director of the Cinema Touching Disability Film Festival. Hear his story of finding his passions after Traumatic Brain Injury (TBI) and vision loss.

We discuss TBI, Ultra Marathon running, disability representation in films and that time he ran a certain Boston Marathon with NPR’s Wait Wait Don’t Tell Me Host Peter Sagal.

This episode includes an original piece produced by Tilly Jones.

Listen

Transcript

Show the transcript

TR:

Welcome back to another episode of Reid My Mind Radio.
I’m your host and producer, T. Reid.

Today I’m speaking with William Greer. He’s the Director of the Cinema Touching Disability Film Festival. In this episode we’re talking;
* multiple disabilities,
* disability arts
* marathon running.

That’s next up! On Reid My Mind Radio. Let’s go!

Audio: Reid My Mind Radio Theme Music

WG:

I was riding a bicycle, not wearing a helmet.

TR:

This is William Greer.

WG:

And I went in the middle of the street when I shouldn’t have. Nothing between me and the pavement. My brain was exposed to light air and dirt. I’m told those are the three worst things that could come in touch with the brain.

I was in intensive care for probably three or four weeks. I’m told that there were a couple of times that I was legally dead while I was still in ICU. it took a lot of therapy and patience just to get me out of the hospital and back in school.

TR:

William was only 17 and still in high school at the time of the accident which caused a Traumatic Brain Injury (TBI).
In William’s case, the effects include a reduced ability to understand and learn math, facial paralysis…

WG:

I have poor short term memory, my balance is not as good as it used to be. The most dramatic result is the vision loss.

TR:

In order to return to school, Will would have to adjust.

WG:

Figured out new ways to take notes. Learned that I had to listen to a book rather than visually read it. graduated high school got in to Kenyon College and now I’m working full time.

TR:

In 2003, unable to find full time employment, William was volunteering for the Coalition for Texans with Disabilities when he had an idea.

WG:

Oh, we can raise money and awareness by showing films that have good representation of disability.

TR:

In 2004William produced the first festival known as Cinema Touching Disability. It began as a one day event.

WG:

We would pick out films about people who have disabilities. Sometimes they were documentaries, sometimes it was fiction film.

It started off as one art form and it sort of grown into others.

TR:

Among those included were a disability photography competition and a live re-creation of a piece of art originally produced in the documentary Getting UP.: The TEMPT One Story

Diagnosed with Lou Gehrig’s disease, almost completely paralyzed, a graffiti artist regains his voice through technology that reads
the movement of his eyes and enables him to create art and write once again.

Audio: “Marciac Master” By Tilly Jones

WG:

This year one of the people who entered my competition is someone from Australia with Cerebral Palsy and Asperger’s and a couple of other disabilities.

She plays 5 musical instruments and writes her symphonies. So I asked her to write an introductory piece for our festival. She did that. So we got the funds together and brought her over here. We had her playing music with other musicians and playing music during the intermission.

## TR:

The music you are hearing is the composition William referred to. The young musicians name is Tilly Jones.

As the years progressed the duration of the festival increased from one day to up to five days one year.

The festival like art itself serves multiple purposes that go beyond entertainment. Like representation.

WG:

We need good representation. Non stereotypical representations wherever we can get it. Whether it’s advertisements like commercials on TV. In paper representations; signs or in the ways that people with disabilities are treated in restaurants, libraries or movie theaters. When the community as a whole sees positive representation of disability it can only improve outcome and help people learn more about it.

[TR in conversation with WG:]

Do you have any favorite films about people with disabilities ? Anything that you would recommend?

Audio for each of the movies is included.

WG:

The two best disability films I’ve ever seen are;
The Best Years of Our Lives.” That was made in 1946One of the stars of it, Harold Russel, actually lost both of his hands in a training accident for World War II.

“Duet for One” which is about a music teacher who has I think its Multiple Sclerosis so she has to stop playing the violin.

Now those are the absolute best. No question about it. My favorites include “The Crash Reel” which is about a snowboarder who has Traumatic Brain Injury while trying out for the Olympics. It’s about his recovery and his desire to get back into competitive snowboarding and his family saying please don’t.

There’s “Right Footed” which is about the only armless pilot in the world. There’s lots of others that I really like

[TR in conversation with WG:]
What’s a (laughs) what’s on the bottom of your list?

WG:
There are so many of them. I really hated Memento. I think that that was a horrible representation of brain injury.

Don’t like Forrest Gump obviously.

Oh, Al Pacino was in it…

[TR in conversation with WG:]

Laughs… Scent of a Woman? Laughs…

WG:
Scent of a Woman, . I really hated that film.

Audio: sounds of a runner’s feet hitting the pavement…

TR:

William says he himself isn’t much of an artist. Growing up with horses, she’s definitely more of the outdoors type. He cycled over 30 miles at a time. I figure we can assume he’s athletic?

WG:
Yes.

I’d run when I was younger. I was on the cross country and track team when I was a Freshman in High School but there were lots of things they didn’t teach you like the importance of stretching, good diet and running wound up being incredibly painful . So after my Freshman year I didn’t start running again until 2005.

[TR in conversation with WG:]

And what made you do that?

WG:
Well, just looking for a good way to stay in shape and keep myself entertained.

In terms of sports that you can do as a Visually Impaired person on your own there aren’t really a lot of them and running seems to be like the best way to go.

[TR in conversation with WG:]

A lot of people wouldn’t necessarily think that because you’re talking about outdoor running.

TR:
As we know there are degrees of vision loss. William has some usable vision that enables him to manage independent running under specific circumstances.

WG:

I can run in a straight line and I see well enough to avoid obstacles so as long as I’m going on a familiar path I don’t have a problem running.

When I’m in marathons I prefer to run with a sighted guide just so I don’t take a wrong turn.

TR:

Training with a sighted guide prior to a race is optimal. It allows the two runners to become used to the preferred guiding method.

WG:

The sighted guide enables me to concentrate on running.

TR:

William has the guide run in front providing directions about obstacles and other information like approaching hills and changes in the terrain.

WG:

Even picking up water or Gatorade from the water stops.

Todd, the person who guided me on my first 30 and 50 Ultra Marathon, we ran two or three times together.

And I’m glad we did that because an Ultra is a heck of a lot different from a marathon.

[TR in conversation with WG:]

I thought a marathon was 26 miles. You said a 30 mile and then a 50 mile?

WG:

A marathon is 26.2 miles. An ultra is anything longer than that. Most of them are on trails. the trick with an ultra is a slower pace, you also got to avoid creeks, roots, rocks, holes in the trail. there are times when you have to walk because the hill is too steep or unsafe going either uphill or downhill. It’s not the same as a marathon.

TR:

In your standard marathon runners consume water and energy gels. In an ultra, you have to consume more carbohydrates including food like nuts, bagels, burritos, pretzels and chips. The body loses a lot of salt so that needs to be replenished.

WG:

In an ultra-marathon the runners carry their own water. You’ve got to be hydrating all of the time. You either carry something like a belt that can hold 5 or 6 bottles of water, a backpack that can hold a couple of big bottles of water or something that they call a camelback which is just a pouch that you fill with water and you can drink from the whole time.

In the ultras you can stop refill on water, have a bit of food maybe stretch a little bit if you need to and then go on your way.

[TR in conversation with WG:]

Wow! Fifty and one hundred mile, you’re doing that all in one day? Laughs…

WG:

Laughs… With a hundred mile it is one day!

TR:

William has 20 marathons under his belt. In fact, since he began tracking his runs, he’s logged in over 9,000 miles.

In 2013 Williams ran the Boston Marathon with his guide, NPR’s Wait Wait Don’t Tell Me host Peter Sagal.

Audio: 2013 Boston Marathon Bombing…

WG:

We finished 5 minutes before the first bomb.

That was luck as much as running skill.

## TR:

Such incidents are rare, but there are risks.

Running in his second Austin marathon without a guide, there was a change in the route and William was unaware of a natural depression in the street’s pavement.
WG:

It went down about a foot or so. I wound up going head over heels as a result of that.

It didn’t happen to the other runner because they could see it and avoid it. And that’s just one of those things where it hurts a little bit but you just got to stand up and start moving again.

TR:

Sound advice. For more than running!

If you’ve been considering starting your own personal running program, William has some advice for that too.

WG:

Buy yourself a good pair of shoes. If you can go to a store that specializes in running. You don’t have to spend 200 to 300 on running shoes especially if you’re just starting. If you got the wrong shoes it’s going to be painful. Don’t worry about having to run fast. Just run at the speed that you’re comfortable with and run on a route that you know.

The best piece of advice that I ever heard about running is if it hurts you’re doing it wrong. Just run so that it feels good.

[TR in conversation with WG:]

I think that might be a foreign concept to a lot of people… laughs…

WG:

Laughs…

[TR in conversation with WG:]

The average person who doesn’t run there like probably saying, why? Laughs… Why do you do this man?

WG:

You know that’s … Pause…

Because I can’t imagine not running.

There’s something about it that really feels good. And makes me feel just incredibly good right and centered. It’s a bit like an addiction. And I find that I’m always wanting to increase the distance I’m running or increase the difficulty of the race or find a different kind of challenge to add into it.

The next marathon I’m going to be in I’ll be running a 10K on Saturday and a 50K on Sunday. So yes a 50 K is challenging let’s make it extra challenging by running a 6 mile race the day before it.

Yes you’re soar but it’s a soreness that feels good.

[TR in conversation with WG:]

Have you found anything that can possibly match the feeling that you get from running? Laughing… Yoga? A good movie… laughing…

TR:

William says he gets a lot of fulfillment out of organizing the film festival but nothing compares to running.

In addition to that two day event William is planning on running a marathon in December 2019.; 100 mile Ultra

The next Cinema Touching Disability Film Festival is scheduled for October 25 & 26, 2019 in Austin Texas. For more information you can visit CTDFilmFest.org

It may not sound like it but I used to run years ago and actually enjoyed it. I never did a marathon but I can grasp why someone would find it addicting.

There’s a freedom that comes with running. Especially trails. You’re forced to be present – dodging fallen tree stumps and low hanging branches, jumping creeks and being aware of nature.

Being Blind or visually impaired, so much of the daily grind is about people and aspects of society concentrating on what they think you can’t do.

Running and other such activities can for some remind and reinforce a feeling of independence. Athletics and sports provide the opportunity to excel based on strengths while continuously improving weaknesses. Plus progress is measurable.

Unlike my addiction to chocolate!

Big shout out to Mr. William Greer. A special shout out to Cheryl Green who suggested Will to the podcast.

Cheryl’s a film maker who focuses on disability identity culture and justice. She’s an advocate for accessible media. And you’re going to meet her on an upcoming episode.

You too can be a part of the show; Want to suggest a guest or topic, comment on an episode… hollaback!

We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

if you mainly listen to the podcast via Sound Cloud I’m hoping you will continue to listen but I am moving away from that platform. I’ve been tolerating their interface in order to avoid the move to another service.

I may decide to keep one or two episodes available, but the best method for staying caught up is to
subscribe via Apple Podcast, Spotify and Google Podcast. All other platforms will be updated as well.

I appreciate you listening and if you liked what you heard please rate and even review the show via Apple Podcast. And tell a friend to listen. Help spread the love!

Don’t forget, you can always find me at ReidMyMind.com.

So there’s no confusion, that’s R to the E I D like my last name!

Peace!

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New Year New Opportunity

Wednesday, January 16th, 2019

Happy New Year!

I guess I couldn’t stay away as long as I initially thought! While not a full length episode, this is just a quick update with some thoughts on my employment status, moving forward with this podcast and in general my outlook for 2019.

If you like listening to music on Spotify, you can now also listen and subscribe to this podcast on that platform. Otherwise you can find it on Apple Podcast, Spotify, Google Podcast, Sound Cloud, Stitcher, Tune In Radio or wherever you get podcasts.

Remember, each episode includes a transcript below.

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Transcript

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Audio: New Year’s Countdown… “Happy New Year…

TR:
1,2, 1, 2… Alright, 2019 Reid My Mind Radio is back!

Audio: Reid My Mind Radio Theme Music

TR:

What’s up Reid My Mind Radio family?
Happy 2019!I hope you all had a great holiday season.

If this is your first time checking out the podcast, I’m very happy to have you here.

Since the end of 2014, I’ve been producing episodes featuring interviews with people I believe have an interesting story. I have focused on people with disabilities, most often those who identify as Blind or Low Vision or in some way have been impacted by blindness.
In addition to that I occasionally share stories from my own experience adjusting to blindness.

Audio: from A few of my favorite things episode…]

As I mentioned in the last episode focusing on my favorite things was truly important. I realize there are just some things that require me to be intentional.
I’m not saying I don’t know how to have fun or enjoy myself… actually I can be pretty entertaining at a party. Still, more than often there’s a bunch of serious stuff that’s always in my mind ready to take over and dominate.

I like to think of my mind as a stove top with multiple burners. Sometimes your standard 4 burner stove top (audio: 4 gas stove tops lighting)and at other times one of those fancy 6 to 8 burners.
Of course, those things requiring my immediate attention get place in the front. However, I never turn off the back burners, rather I let them simmer on a low fire cooking as I take care of the other dishes.

As we approached the holidays, I was feeling as though my mind was telling me it was time to turn off the stove all together. I mean who would want to leave the stove on when they’re going away, either physically or figuratively speaking.

Audio: sound of a flame lighting into a large fire…Eddie Murphy “Now that’s a fire!”

So I went away!

Audio: a chill Hip-hop beat grooves underneath…

But turning off the burners isn’t that easy! I guess you can call it an auto pilot that lights up when it wants to. The trick is to just shut it off as quickly as possible. And for me that requires constant work. Yes there were the occasional moments when one of those back burners lit up, but I did remember to turn it off and focus on enjoying time with my family.

In the last episode I eluded to one of the biggest pots cooking away on the back burner; the notice that my job is being eliminated.

Audio: Flintstone, you’re fired! From, The Flintstones

To be clear, my job elimination is exactly that. The company I worked for was purchased. The new company simply is eliminating redundancies. Think of that show called storage wars

Audio: Scenes from the show talking about the price of various items…

pawn shops or antique dealers purchase foreclosed storage rooms. They do so because they know they can sell off individual items the total of which will reap them a good return on their investment.

Well, that’s what happened here. The more they sold off, the less they needed the legacy group.

This leaves me with a serious reality check. Some real considerations;
I’m 50 and companies like young blood
Inaccessibility is a constant threat
most of my technical experience is outdated and
I’ve been comfortably working from home because of some real transportation issues.

Yet with all of that, I believe I’m a real catch for almost any organization. I have a lot to offer, but at this stage in my life I’m feeling like I would have to really find a company that’s worthy. Bold statement? True! But if I don’t believe in my value who will?

I’m doing a lot of thinking about this both as it relates to me and my own career as well as trying to pick out aspects that can be helpful to others.

Like those who are now themselves looking to return to work after an acquired permanent disability.

Maybe others who are coping with job loss and finding that either their specific skills aren’t required or employers prefer a younger staff. the impact here obviously goes beyond blindness or disability.

Maybe this is a full podcast episode, a blog post or just some thoughts I share randomly on Twitter.

If you have a related story to share on returning to work following a disability, are you a midlife career switcher or perhaps you experienced ageism in the work place let me know. email me at ReidMyMindRadio@gmail.com. Maybe we can make a full episode from such a discussion and hopefully give some real advice to others.

Audio: Doe, Rae, Me, Fa , So La, Tea from Sound of Music

On that note, one of the other pots on the burner is this podcast.

I’m always thinking about ways to keep it fresh both for the listener and me as the producer. I know that if I want to improve I have to find new ways to communicate ideas. Some of that will be in the actual words, the production and the approach.

I am particularly interested in more collaboration.

First, I really want to increase interaction with listeners.
We have the comments section on the blog, ReidMyMind.com.
The email; ReidMyMindRadio@gmail.com
The Reid My Mind Radio Feedback Line where you can leave a voice mail: 1 570-798-7343

I would really love voice messages that I can share on the podcast. If you don’t want to call, you can grab your smart phone and record a voice memo and email the finished recording to ReidMyMindRadio@gmail.com.

I’d love to hear and share the voices of those who are listening. If you want to send a message but don’t want it shared just say so and it’s all good.

Then there’s collaboration with other podcasters and audio makers, writers, producers and creatives. I’m not exactly sure what this will turn out to, but I’m feeling like there’s just some real opportunity for some fun, relationship building and mutual growth that comes from working with others. This could be teaming up to work on a project that is published across multiple podcasts, blogs. It could be sharing ideas that are best fitted for different voices. I don’t know the specifics but I know I am open to it. I also strongly believe there are some who themselves may be thinking along these lines so I want to make sure I am clear about my willingness to create with others.

As I continue to expand the scope of this podcast, I’m reminded of why I initially created my blog back in 2006. I just wanted my own little space on the internet where I could share my thoughts and observations as I was beginning my new experience through the world of adjusting to blindness, becoming a person with a disability and all that came along with it. I wanted to meet others with similar experiences.

This podcast continues to be personal. I mean it’s called Reid My Mind Radio after all.

To some extent it’s a reflection of my own adjustment to blindness and even how I think about disability. Both of these being an ongoing process.

One of the things that I found helpful in my early adjustment years was that exchange of information with other Blind and Low Vision people. As I expand and continue to consider the larger disability community as a whole I feel the need to find others in order to exchange ideas and develop my own way of thinking about and living with disability.

I want to challenge myself to do more with this space. I have to admit it, that’s sort of scary to say knowing someone is listening and may call me out on that. But at this stage in my life I’m feeling like it’s scarier not to do it. Plus, I’m from the Bronx baby, we don’t scare that easy!

In 2019 we will continue exploring audio description from different angles. It’s a service and I dare to say art that is for us. The Blind and low vision community. Shouldn’t we have more of a role not only in providing feedback but also as participants in its creation?

There’s some other things that affect the community that deserve more attention. I’m hoping to make them conversations as opposed to me getting on my soapbox.

Speaking of soap boxes; If you enjoyed the 90 plus episodes to date, if you like the sound of where this is headed you need to …

Subscribe!
Apple Podcast, Spotify, Google Podcast Sound Cloud, Stitcher, Tune In Radio or wherever you get podcasts.
Visit www.ReidMyMind.com

So there’s no confusion, that’s R to the E I D like my last name!

Now, it’s a new year, new opportunities and there’s only one way to look at that!

Audio: Flintstones “Yabba Dabba Doo!”

Audio: Reid My Mind outro

Peace!

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A Few of My Favorite Things

Wednesday, December 19th, 2018

It’s the holiday season. A time when we’re all expected to be festive and happy.

But there’s so much going on to make some feel sad. Here’s what I do… ” I simply remember my favorite things and then I don’t feel so bad!”

You probably heard that before , but not exactly like this.

This is the last episode of the year. I’ll be back in late January, but you may want to subscribe because a podcast take over may be happening!

Happy Holidays!

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Transcript

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Audio: This Christmas, Donny Hathaway

## TR:

Season greetings Reid My Mind Radio Family!

If you’re new here, allow me to welcome you and I hope you too will become part of the family.

I’m your host and producer of this podcast, T.Reid.

Reid My Mind Radio is my place to share interviews of people I find compelling. Most often that consists of people who are blind or low vision or in some way have been impacted by vision loss.

I’d like to invite you first timers to go back and check out some of the recent episodes featuring people like, Denna Lambert, a young woman who works for NASA.
Conchita Hernandez empowering blind people in Mexico
Penny Melville Brown who just traveled through 6 continents cooking in the local communities
Ojok Simon training fellow blind people in Uganda to become entrepreneurs through bee keeping.

And there are so many more great people and episodes waiting for you…

Occasionally I like to tell stories from my own experiences.

For this episode, I thought I’d focus on my favorite things.
It’s Christmas after all!

Meet me on the other side of my intro music and we’ll get it started.

Audio: Reid My Mind Intro Music.

Audio:
“Isn’t there anyone who knows what Christmas is all about?” – Charlie Brown from “It’s Christmas Charlie Brown”

TR:

Feeling festive and in the holiday spirit isn’t always easy to do.
Holidays have been a bit of a challenge for me ever since My father first got sick in the late 80’s. Seven years later just a few days before Thanksgiving he passed away.

In 2003 shortly after Thanksgiving I was diagnosed with Cancer. I had a biopsy on Christmas Eve. That was the last time I was ever really able to see.

Audio:
“Sure Charlie Brown I can tell you what Christmas is all about.” Linus from “It’s Christmas Charlie Brown”

Audio: “It’s the Most Wonderful Time of the Year” Andy Williams

TR:
Well, now that I got you in the festive mood! (Laughing)

TR:

Truth is, the challenging times are probably the best time to show gratitude for the good things in our lives.

Don’t get it twisted, this is something I’m learning. It is really difficult, but I know the alternative is sinking into misery and becoming cynical about life. Personally, I don’t like that feeling nor do I want to be around that for too long.

What better way to get into the holiday spirit, than a song that is all about the favorite things.

Audio: My Favorite Things, Tony Bennett

Let’s do this!
Don’t judge me!
I like the Christmas classics… with a little swing!

Shout out to Tony Bennett!

Let’s go!

Go to the movies, there’s audio Description
Santa might bring me that AIRA subscription
Increasing Access makes my heart sing
These are a few of my favorite things.

Guide dogs for some, my white cane is fine
A driverless car someday will be mine
Its Independence that technology brings
These are a few of my favorite things

Shout out to all of my podcast subscribers
Pass me my drink, I’m no designated driver
I got lots of episodes geared to those adjusting
These are a few of my favorite things
High Unemployment
Stereotypes
No access makes me sad
But I simply remember my favorite things,
and then I don’t feel so bad.

(Oh man!)
(It was kind of bad!)
Music interlude…
Vibes!

— talking over instrumental break
What better way to get yourself in the Christmas mood.

These aren’t all my favorite things. Just a few ow. My blind favorite things!

You know you wanna sing it with me. Go ahead, I won’t tell anyone.

Shout out to all of my podcast subscribers
Pass me my drink, I’m no designated driver
I got lots of episodes geared to those adjusting
These are a few of my favorite things
High Unemployment
Stereotypes
No access makes me sad
simply remember my favorite things,
and then I don’t feel so bad.

(That might have been a little bad, but I don’t care!)

End of Song

I know what you’re thinking, Vegas right?
Just wait until I get that residency at the Bellagio. Caesars Palace? The Motel 6?

Audio:
“And they were so afraid and the angel said unto them, fear not and behold I bring you tidings of great joy.” Linus, “It’s Christmas Charlie Brown”

TR:

As 2018 comes to an end, I’m thinking about this idea that in order to receive something new you have to get rid of the old.

For example, literally speaking, many people like to clean out their closet and get rid of clothes they no longer wear, making room for the new.

2018 is bringing a close to multiple ventures including my employment situation.

Filtered voice: “More on that in 2019”

If you’ve been riding with Reid My Mind Radio for a while, you may know that Gatewave Radio –

Audio: “Audio for independent living”

the radio reading service in New York City played a role in this podcast.

In 2014 I began sharing the stories I produced for Gatewave Radio’s Our Voices audio magazine.

These radio reading services traditionally provided access to newspaper and magazines for people with print impairments.

With technology enabling access, many of the reading services throughout the country have been closing for years now.

I’m hopeful that technology like Smart Speakers from Amazon, Google and Apple are providing the access to information to those who will no longer have that access from the radio reading services.

It was announced that Gatewave too is shutting down at the end of the year.

The chance to produce for Gatewave came at the right time in my life. I wanted to start a podcast but had very little idea on what that should sound like. After producing my first story which was well received I figured I could share these productions.

Shout out to Gordon and Toby who I worked with directly over the years. I appreciate all of the encouraging words and production support.

Audio: Door slamming shut

Some doors are closing in 2018, but I’m going to stay optimistic that the new year will open many more for us all.

Audio: Door opening.

As far as this podcast is concerned, I have more. I have some ideas and things already in progress.

Audio:
“I gotta lotta more. A whole lotta more!” Mr. T. Final scene of Rocky III

TR:

To some extent, this podcast is an extension of my own adjustment to blindness. Some of the topics and people are things I become exposed to, ideas I think about. As these continue to expand I hope that can be reflected here.

I’m taking a short break from the podcast in order to both focus on the holiday and prepare for the new year.
I’ll be back in late January.

There may be a special episode of the podcast if my girls take it over. Theirs have proven to be way more popular than mine.

The best way to make sure you don’t miss that or when we get back in 2019;
Subscribe!
Apple Podcast, Google Podcast, Sound Cloud, Stitcher, Tune In Radio.
You can visit ReidMyMind.com and subscribe to get any updates posted there.
Just remember, that’s R, to the E I D, like my last name.

Merry Christmas, Feliz Navidad, Happy Chanukah, Happy Kwanza,
For my people who celebrate Three Kings Day, Feliz Dia de Los Tres Reyes
Happy New Year to All.

Audio: Reid My Mind Radio Outro

— Below said together…
TR:
Peace

Audio:
Peace and good will towards all men. That’s what Christmas is all about Charlie Brown!” Linus, “It’s Christmas Charlie Brown”

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Hive Uganda – A Sweet Success

Wednesday, December 5th, 2018

Picture of Ojok standing outside in front of trees under a blue sky.
For our final update from the 2017 Holman Prize winners, we hear from Ojok Simon. The founder of Hive Uganda. This social entrepreneur established the organization to train fellow blind and low vision people of Uganda to create self-sustaining businesses through bee keeping and harvesting honey.

We hear about the relationships made during the year, the impact Hive Uganda is having on the community and the challenges that come with his success.

Listen, subscribe to the podcast and then holla back! Rate and review the podcast on Apple Podcast. Send your feedback to me directly at ReidMyMindRadio@gmail.com. I’d love a voice recorded message that I could include on a future show!

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Audio: Honey Bee, Lucinda Williams – Heavy guitar intro

What’s up Reid My Mind Radio.
It’s the final episode of the 2017 Holman Prize Update.

That means there’s only one way to get this started.

Audio: Vocals come in… “Oh my little honey bee!” Lucinda Williams.

TR:
We’re kicking this one off with some real energy.

My name is T.Reid. I’m your host and producer of this here podcast.
First time here? I hope my energy doesn’t scare you.
I’m just feeling good because that’s my choice.

Like producing this podcast is my choice to focus on presenting people and topics I find compelling. Every now and then I drop some of my own experiences from my personal adjustment to blindness.

For some my energy right now may not fit what you think about being blind, having a disability.

Well that’s cool. Give me a bit of your time and just maybe something here can expand your mind.

You see, right now we are in the final episode of our look at the Holman Prize winners.

These are the 6 blind women and men to date who have received the $25,000 prize awarded by the San Francisco Lighthouse to implement their ambition.

It’s awarded in the memory of James Holman. A blind explorer in the 1800’s who travelled independently to all 6 inhabited continents.

If you haven’t yet checked those out I strongly suggest you go back and take a listen.

So let’s get this started!

Audio: Heavy guitar and drum backing track moves into lyrics, “Oh my little honey bee”
Audio: Reid My Mind Intro Music

Ojok:

First, thank you to the Lighthouse. Congratulations for the new winners of the 2018 Holman Prize winners.
And I’m ready to give my updates to the listeners.

TR:

That’s Ojok Simon. The third of the 2017 Holman Prize winners.

Before we get into his update let’s go back to the beginning of his story.

First, it starts in Uganda.
Ojok:

I am from the Northern district of Gulu.

I was a child growing up in a rural community. I used to play a lot with all my fellow peers. We enjoyed hunting for wild honey . We liked playing hide and seek games. I used to have a lot of friends.

TR:
His beginnings as it relates to blindness, well that’s a much more complicated story.

Here’s a summary from the 2017 episode.

TR in narration from 2017 episode

during the late 1980’s
Joseph Kony came into power and his Lord’s Resistance Army
terrorized Northern Uganda.

The LRA is Known for forcing children to serve in their army and
all sorts of brutal atrocities.
At 9 years old, Ojok’s home in Gulu was the site one such incident.

Ojok:

They found me and my mother were still in the house. And they thought that being a child I was going to run away. So they started to beat me at the temple of my head using the butt of the gun. I fell down with a lot of pain. I didn’t know and my parents didn’t know that there was that kind of internal injuries of my sight. After three years they started to realize that my vision started deteriorating and there was no medical attention that I could seek because everybody, every area was in war. The doctors live in fear so you can’t get medical attention.

TR:

Sometime later Ojok left his home and went to study at a school for the blind.
Returning home for the holidays, Ojok explained in 2017, is what lead to him being stung with a prize worthy idea.

Ojok in 2017:

While I was pursuing my studies one day during holiday… Remember I told you that we are also in the war torn area, people then were taken to concentration camps. I was now walking around our broken home where we used to stay. Now while I was walking around there, bees were stinging me from all directions. Then with my poor vision I was trying to run. The direction where I was running that was where the bees were coming from . Then I came across an abandoned clay pot. it was just on the ground. There were bees in that clay pot and I said wow now what can I do.

TR:
Create opportunities for himself and other blind people in his community through bee keeping and harvesting honey.

As we’ll hear from Ojok, these opportunities are more than life sustaining entrepreneurial ventures.

Since we last spoke in 2017, Ojok traveled to San Francisco to claim his prize.

Ojok:
It was my first time in San Francisco.

I stayed there for one week.

TR:

A week full of activities which included meeting the other two prize winners.

The trip gave Ojok a chance to share how blind people live in Uganda.

His presentation of bee keeping was not only to show how this can be performed by a blind person but also to prove its viability as a vocation.

On top of all that, he says he had the chance to learn.

Ojok:

… About how people keep the environment clean.
The connectedness with different human creatures – create friends, you meet with friends.

TR:

These informal networking opportunities Ojok explains inspire new ideas and thoughts. Meeting the people was just a part of what he found appealing.

Ojok:

I love the environment. The surrounding waters. I love how considerate and how they take care of different citizens from different part of the world. It’s so so amazing. I love San Francisco so much.

TR:

Following the week of activities in San Francisco, Ojok return to Uganda where he began implementing his ambition.
Training blind men and women to own and operate agriculture businesses through bee keeping.

Ojok:

Through the Holman prize, it has been amazing!

We were able to strengthen our foundation base by training 6 master trainers who help a lot to enlighten about self-employment of blind people through bee keeping.

TR:

From our initial conversation with Ojok in 2017, the trainings include much more than bee keeping. Orientation and mobility along with leadership training are a major component.

Ojok from 2017:

Now something I could not provide they can advocate for their own needs, because bee keeping might not answer all their problems. But it’s just like a spring board.

TR:

Ojok initially anticipated training about 16 people this year.

Ojok:

These master trainers were trained by Hive Uganda where they will be able to run more training whether Hive Uganda exists or not.

We were also able to reach right now 36. Imagine 36. Which is a big impact and this is not the end of the project we ar4 still moving forward.

TR:

At the time of this recording, Ojok had an additional 10 people to receive training. Bringing the total trained to 46.

That’s 46 individuals. Multiple families and communities directly impacted.

Ojok:

For instance, one person is called Okot Thomas who started bee keeping after the training. And through his effort of bee keeping he managed to change the life of a young person who is not disabled to come and work in the area of environmental conservation of bee keeping with the blind people.

TR:

The implications are social. Impacting the entire community.

Ojok:

The neighbors accept him as a blind person And then the neighbors understand how important to involve blind people in agriculture especially in bee keeping. And how sweet it is to work in the same environment with different abilities.

TR:

That positive effect has even reached the government – which Ojok says traditionally hasn’t done much for those who are blind.

Ojok:

They were monitoring our training. They were so amazed how we are promoting bee keeping for people with disabilities especially blind people. How we are promoting inclusion to the families. And how we are trained to promote extra abilities of blind people into agriculture and self-employment.

TR:
This development is quite significant.
It’s more than recognition, the government has provided assistance in the form of specific support including;

Ojok:

Inspecting the bee hive, pest control. They’re not giving money to Hive Uganda, but they start including visually impaired persons in their program when they return to the community.

[TR in conversation with Ojok:]

It’s making them official business where at some point it was a “charity”, but it’s moving from that and now they are even more officially entrepreneurs in the eyes of the government. They’re seeing them as entrepreneurs.

Ojok:

Exactly, exactly, exactly!

TR:

That shift in how the government views the bee keepers is not just symbolic, Hive Uganda has been tasked with registering their graduates as businesses with the local government.

Ojok:

So that they can easily ask the local government directly minus Hive Uganda.

TR:

You may have noticed that was the second time Ojok mentioned Hive Uganda in the past tense. As in a time when he is no longer training or supporting other bee keepers.
I’m happy to report, he has no plans of going anywhere anytime soon, rather it’s just a sign of a strong leader with good planning.

Ojok:

I am still 24/7 working with Hive Uganda. Actually, I’m looking at the sustainability at this age of mine. So that when I reach my retirement or when I say ok, let me sit down Hive Uganda should continue.

TR:
In case you’re not familiar with the terminology…

Ojok:

24 hours a day

[TR in conversation with Ojok:]
Mm hmm! (As in agreeing)!

Ojok:
7 days a week.

[TR in conversation with Ojok:]
Do you ever get any people with other disabilities who want to participate outside of blindness?

Ojok:

Through the last training that we had, that was in July, we had to force people to go back because our target was to train 16. But people were demanding the services. They are people with disabilities. They look at that as an opportunity. Just waiting for the opportunity so they can also jump in.

TR:

While Hive Uganda’s focus continues to be supporting those who are blind and low vision , future increased resources
could enable their expansion.

Hive Uganda has already developed cross disability partnerships.
As Ojok explains, the value goes beyond economics.

Ojok:
To build strong advocacy system we need to also bring other people so that when we are talking to the government , when we are going to speak to other development partners we will say yes, this is the need for people with disabilities.

TR:

Expanding Hive Uganda’s reach also means geographic.

Ojok

Remember we are in Gulu. Uganda is a big country. Where we are is less than ten percent of the population. It’s not even more than five percent of the population, but the need is still too much. We want to reach other parts of the country.

TR:

Extending the reach of Hive Uganda is now more possible with the training and deployment of the six master trainers.

[TR in conversation with Ojok:]
This all started [from] a tragic situation. In terms of how you lost your sight and then how you almost literally stumbled upon the idea. How does that feel when you look at where you come from brother? How does that feel for you?

Ojok:
When I look at where I came from and where we are sometimes I have mixed feelings. Yes I’m helping . I’m trying to show to the whole world that yes, out of sight is not out of mind. Should I be the victim of my own success? When I say the victim of my own success, yes I’m doing great what is that reality that will make you self-sustaining If the project of Holman ends, which is coming to September, what will happen next? You . You have raised a lot of expectation, you have proved that you are able to do it, are you going to continue? So that makes me do so much concentrated fundraising , trying networking with others so that we can all together come and say yes.

TR:
Yes to the future of Hive Uganda.

That future right now could be summarized based on their 5 years strategic plan.

Ojok:
One, continue training of blind people around Uganda as well as if possible East Africa.

Also, continue doing value addition to honey and wax products supplied by blind people because we already have a production unit. And then continue advocating for inclusion and participation for people with visual impairment into agriculture livelihood especially in the rural setting. And continued mobilization of resources because all of this to be done, Hive Uganda is in a developing country where everything is not the same. You have to fundraise, look for possible partners, share your ideas so that you’re able to be self-sustaining.

TR:
Strategic plans look forward. Sometimes there’s value in looking back.

[TR in conversation with Ojok:]

At some point along this whole journey of yours, you have to reflect on the lives you touched. Hive Uganda is already a success.

Ojok:
Laughs, yes that is true!

[TR in conversation with Ojok:]
You changed people’s lives. You have and so I salute you for that You know, you are the man to do this 24 7and I’m happy to see that’s what you are doing.

yeh man, don’t put too much pressure on yourself Laughs… because that’s what it sounds like.

Ojok:
Laughing, yes thank you, thank you… thank you for encouraging me.

TR:
He’s the one doing the encouraging.

Whether it’s the students of Hive Uganda or those who are exposed to his story. Ojok’s passion for creating opportunities for people with disabilities through bee keeping is infectious.

During an interview with New Vision a local newspaper in Uganda, Hive Uganda Master Trainer Francis Okello Oloya describes the programs beneficiaries as
“change agents in their communities.”

It’s as if the new entrepreneurs are out spreading the message that blindness alone is no real barrier for participation in any aspect of life. Sort of pollenating the community with the hopes of reaping a sweeter life for themselves and others.

While back in San Francisco reporting on their progress during what is the conclusion of their Holman term, Ojok plans to visit bee keeping friends in San Diego. This is just one of the relationships established as a result of the prize.

Ojok:

We congratulate Lighthouse for coming up with such amazing idea.

Whether with the Holman Project or not we will remain in collaboration with the Lighthouse.

I have to remain.

TR:

To stay up to date or find out how you can support their mission visit HiveUganda.org.

Once again, salute to Mr. Ojok Simon and yes, may you remain!

Audio: “Honey, Honey” Fiest

By the time this podcast is published December 4th, I believe the 2017 Holman Prize trio would have met for their final reports in San Francisco.

I really did consider trying to make my way out there to meet them all in person. Unfortunately, personal obligations and finances in that order didn’t permit that from happening.

First of all, it would have been nice to just give them a hug or shake their hand. Ah, forget that, everybody would get a hug!

Of course I would bring you the listener along. I think it would make for a great episode and I have the feeling you all grew almost as fond as I have of these three.

That’s Penny Melville Brown, Ahmet Ustenel and Ojok Simon.

Shout out to the San Francisco Lighthouse and everyone responsible for the Holman Prize including the judges,
Jason Roberts, author of the biography A Sense of the World: How a Blind Man Became History’s Greatest Traveler.    

Shout out to Lucinda Williams on the opening track Honey Bee and Feist for Honey Honey riding underneath us right now.

Shout out to you the listeners. I truly hope you enjoy these episode because I have a good time producing them.

I hope to have another episode to finish out the year. I’m not sure if my daughters are taking over the podcast this year for the last episode. My oldest is 21 and the other 15. If not I think I have a good way to wrap up the year.

You know what’s a good way to wrap up this episode…
Subscribing to the podcast! You can use Apple Podcast, Google Podcast, Sound Cloud, Stitcher, Tune In Radio or your favorite podcast app.
You can always slide on over to ReidMyMind.com and sign up for the email notifications

You know, I would love your feedback. Either

Rate the podcast on iTunes if you like it of course. If you don’t like it I’m not sure why you are still listening. I have no plans on doing anything differently at this stage in the game.

You can even leave a review there.

Send me direct feedback at Reid My Mind Radio @ gmail.com.
If you feel up to it, you could even record a message on your voice recorder and send that over. That would make my day!

Plus my daughter doesn’t believe anyone listens so it will help me convince her! Yawl think I’m joking’?
She says like all the time. I’m talking’ 24/7
Ojok:
24 hours a day

[TR in conversation with Ojok:]
Mm hmm! (As in agreeing)!

Ojok:
7 days a week.

TR:
Peace!

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